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#psoriaticarthritis — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #psoriaticarthritis, aggregated by home.social.

  1. Lately, there's been too much noise in my mind, residual activity generated by the amount of information I absorb from social media, the internet, messaging apps, and various other sources. This is becoming increasingly difficult for me. My body is aging with difficulty, and my brain is becoming more and more hypersensitive to stimuli. It's not without its challenges to be autistic, bipolar, and have the "curse of intellectual ability." And that's not even mentioning the metabolic and autoimmune problems that seem to worsen with each passing year and month.
    Honestly, I'm exhausted, not from activities, stimulation, or relationships anymore, but from the mere fact of having to stay alive every day. From eating and defecating to breathing and sleeping, it involves a lot of difficulties, worry, and time that I have to dedicate to it daily. The very basic functioning of my body takes a heavy toll every single day.
    I can still do things—go out, walk, read, program, play guitar—but I can hardly work on anything very demanding for more than one or two hours at a time. Living like this is becoming a real nightmare. I'm a burden to my wife, I have very little work, and I don't even earn enough to buy the medication I need and my food (which is becoming increasingly restricted).
    I see people on the internet romanticizing the fact of having autoimmune diseases and mental illnesses or conditions, and I wonder if they really have them and understand how awful it is to live like that.
    Every achievement he has had, everything he has done throughout his life loses all meaning when he reaches this situation.
    One of the things I'm considering is gradually reducing my digital activity or even quitting it altogether, but I don't do it completely because it's one of those things that keeps me entertained and prevents me from going out into the street with a chainsaw and attacking anyone who looks at me the wrong way.
    Okay, enough complaining. Maybe I shouldn't even be saying this here, but this is a place where there are people like me with similar problems, and they'll be able to understand my current mood.
    I'm not saying this to ask for sympathy or hugs. It's just like I have a fart stuck in my soul and I want someone to hear it so I can laugh a little at my misfortunes.
    I'll think of things to share, anecdotes, lessons learned, stories, poems and tales I have saved, as if to rescue light things to compensate for the shit of anguish.

    Bye..

    #actuallyautistic #bipolar #autism #bipolarlife #giftedness #autoimmunedisease #autoimmune #diabetes #thyroid #hashimoto #psoriasis #psoriaticarthritis

  2. Lately, there's been too much noise in my mind, residual activity generated by the amount of information I absorb from social media, the internet, messaging apps, and various other sources. This is becoming increasingly difficult for me. My body is aging with difficulty, and my brain is becoming more and more hypersensitive to stimuli. It's not without its challenges to be autistic, bipolar, and have the "curse of intellectual ability." And that's not even mentioning the metabolic and autoimmune problems that seem to worsen with each passing year and month.
    Honestly, I'm exhausted, not from activities, stimulation, or relationships anymore, but from the mere fact of having to stay alive every day. From eating and defecating to breathing and sleeping, it involves a lot of difficulties, worry, and time that I have to dedicate to it daily. The very basic functioning of my body takes a heavy toll every single day.
    I can still do things—go out, walk, read, program, play guitar—but I can hardly work on anything very demanding for more than one or two hours at a time. Living like this is becoming a real nightmare. I'm a burden to my wife, I have very little work, and I don't even earn enough to buy the medication I need and my food (which is becoming increasingly restricted).
    I see people on the internet romanticizing the fact of having autoimmune diseases and mental illnesses or conditions, and I wonder if they really have them and understand how awful it is to live like that.
    Every achievement he has had, everything he has done throughout his life loses all meaning when he reaches this situation.
    One of the things I'm considering is gradually reducing my digital activity or even quitting it altogether, but I don't do it completely because it's one of those things that keeps me entertained and prevents me from going out into the street with a chainsaw and attacking anyone who looks at me the wrong way.
    Okay, enough complaining. Maybe I shouldn't even be saying this here, but this is a place where there are people like me with similar problems, and they'll be able to understand my current mood.
    I'm not saying this to ask for sympathy or hugs. It's just like I have a fart stuck in my soul and I want someone to hear it so I can laugh a little at my misfortunes.
    I'll think of things to share, anecdotes, lessons learned, stories, poems and tales I have saved, as if to rescue light things to compensate for the shit of anguish.

    Bye..

    #actuallyautistic #bipolar #autism #bipolarlife #giftedness #autoimmunedisease #autoimmune #diabetes #thyroid #hashimoto #psoriasis #psoriaticarthritis

  3. Lately, there's been too much noise in my mind, residual activity generated by the amount of information I absorb from social media, the internet, messaging apps, and various other sources. This is becoming increasingly difficult for me. My body is aging with difficulty, and my brain is becoming more and more hypersensitive to stimuli. It's not without its challenges to be autistic, bipolar, and have the "curse of intellectual ability." And that's not even mentioning the metabolic and autoimmune problems that seem to worsen with each passing year and month.
    Honestly, I'm exhausted, not from activities, stimulation, or relationships anymore, but from the mere fact of having to stay alive every day. From eating and defecating to breathing and sleeping, it involves a lot of difficulties, worry, and time that I have to dedicate to it daily. The very basic functioning of my body takes a heavy toll every single day.
    I can still do things—go out, walk, read, program, play guitar—but I can hardly work on anything very demanding for more than one or two hours at a time. Living like this is becoming a real nightmare. I'm a burden to my wife, I have very little work, and I don't even earn enough to buy the medication I need and my food (which is becoming increasingly restricted).
    I see people on the internet romanticizing the fact of having autoimmune diseases and mental illnesses or conditions, and I wonder if they really have them and understand how awful it is to live like that.
    Every achievement he has had, everything he has done throughout his life loses all meaning when he reaches this situation.
    One of the things I'm considering is gradually reducing my digital activity or even quitting it altogether, but I don't do it completely because it's one of those things that keeps me entertained and prevents me from going out into the street with a chainsaw and attacking anyone who looks at me the wrong way.
    Okay, enough complaining. Maybe I shouldn't even be saying this here, but this is a place where there are people like me with similar problems, and they'll be able to understand my current mood.
    I'm not saying this to ask for sympathy or hugs. It's just like I have a fart stuck in my soul and I want someone to hear it so I can laugh a little at my misfortunes.
    I'll think of things to share, anecdotes, lessons learned, stories, poems and tales I have saved, as if to rescue light things to compensate for the shit of anguish.

    Bye..

    #actuallyautistic #bipolar #autism #bipolarlife #giftedness #autoimmunedisease #autoimmune #diabetes #thyroid #hashimoto #psoriasis #psoriaticarthritis

  4. Lately, there's been too much noise in my mind, residual activity generated by the amount of information I absorb from social media, the internet, messaging apps, and various other sources. This is becoming increasingly difficult for me. My body is aging with difficulty, and my brain is becoming more and more hypersensitive to stimuli. It's not without its challenges to be autistic, bipolar, and have the "curse of intellectual ability." And that's not even mentioning the metabolic and autoimmune problems that seem to worsen with each passing year and month.
    Honestly, I'm exhausted, not from activities, stimulation, or relationships anymore, but from the mere fact of having to stay alive every day. From eating and defecating to breathing and sleeping, it involves a lot of difficulties, worry, and time that I have to dedicate to it daily. The very basic functioning of my body takes a heavy toll every single day.
    I can still do things—go out, walk, read, program, play guitar—but I can hardly work on anything very demanding for more than one or two hours at a time. Living like this is becoming a real nightmare. I'm a burden to my wife, I have very little work, and I don't even earn enough to buy the medication I need and my food (which is becoming increasingly restricted).
    I see people on the internet romanticizing the fact of having autoimmune diseases and mental illnesses or conditions, and I wonder if they really have them and understand how awful it is to live like that.
    Every achievement he has had, everything he has done throughout his life loses all meaning when he reaches this situation.
    One of the things I'm considering is gradually reducing my digital activity or even quitting it altogether, but I don't do it completely because it's one of those things that keeps me entertained and prevents me from going out into the street with a chainsaw and attacking anyone who looks at me the wrong way.
    Okay, enough complaining. Maybe I shouldn't even be saying this here, but this is a place where there are people like me with similar problems, and they'll be able to understand my current mood.
    I'm not saying this to ask for sympathy or hugs. It's just like I have a fart stuck in my soul and I want someone to hear it so I can laugh a little at my misfortunes.
    I'll think of things to share, anecdotes, lessons learned, stories, poems and tales I have saved, as if to rescue light things to compensate for the shit of anguish.

    Bye..

    #actuallyautistic #bipolar #autism #bipolarlife #giftedness #autoimmunedisease #autoimmune #diabetes #thyroid #hashimoto #psoriasis #psoriaticarthritis

  5. Lately, there's been too much noise in my mind, residual activity generated by the amount of information I absorb from social media, the internet, messaging apps, and various other sources. This is becoming increasingly difficult for me. My body is aging with difficulty, and my brain is becoming more and more hypersensitive to stimuli. It's not without its challenges to be autistic, bipolar, and have the "curse of intellectual ability." And that's not even mentioning the metabolic and autoimmune problems that seem to worsen with each passing year and month.
    Honestly, I'm exhausted, not from activities, stimulation, or relationships anymore, but from the mere fact of having to stay alive every day. From eating and defecating to breathing and sleeping, it involves a lot of difficulties, worry, and time that I have to dedicate to it daily. The very basic functioning of my body takes a heavy toll every single day.
    I can still do things—go out, walk, read, program, play guitar—but I can hardly work on anything very demanding for more than one or two hours at a time. Living like this is becoming a real nightmare. I'm a burden to my wife, I have very little work, and I don't even earn enough to buy the medication I need and my food (which is becoming increasingly restricted).
    I see people on the internet romanticizing the fact of having autoimmune diseases and mental illnesses or conditions, and I wonder if they really have them and understand how awful it is to live like that.
    Every achievement he has had, everything he has done throughout his life loses all meaning when he reaches this situation.
    One of the things I'm considering is gradually reducing my digital activity or even quitting it altogether, but I don't do it completely because it's one of those things that keeps me entertained and prevents me from going out into the street with a chainsaw and attacking anyone who looks at me the wrong way.
    Okay, enough complaining. Maybe I shouldn't even be saying this here, but this is a place where there are people like me with similar problems, and they'll be able to understand my current mood.
    I'm not saying this to ask for sympathy or hugs. It's just like I have a fart stuck in my soul and I want someone to hear it so I can laugh a little at my misfortunes.
    I'll think of things to share, anecdotes, lessons learned, stories, poems and tales I have saved, as if to rescue light things to compensate for the shit of anguish.

    Bye..

    #actuallyautistic #bipolar #autism #bipolarlife #giftedness #autoimmunedisease #autoimmune #diabetes #thyroid #hashimoto #psoriasis #psoriaticarthritis

  6. If you have autism and bipolar disorder, you're a poor kid with two disabilities.
    But if you also have high intellectual abilities, gifted, let's say, then you're a damn arrogant jerk.
    What the hell is wrong with those people?
    It turns out that anywhere, physical or virtual, where you try to mention that you have a very high IQ but at the same time have a lot of trouble navigating the human world, you will be stoned by an angry mob of ignorant people who overvalue intelligence (and hate and fear it).
    Yes, I'm a damn genius at many things, as I'm also level 2 autistic and have a pretty severe mixed bipolar disorder. And all of that with real, official diagnoses that required years of therapy, psychiatrists, hundreds of tests and some hospitalizations in psychiatric hospitals.
    I have a long list of achievements and professions and an equally long list of failures, illness, and suicide attempts.
    I'm now trying to compile information and studies on comorbidities or overlaps of these three things, and if anyone finds anything, please share the link.
    Overlap or multiple exceptionality of autism+bipolar+giftedness. I want to delve deeper into this to understand it more thoroughly and refine my personal therapies.
    I also have an overlap of autoimmune diseases and metabolic disorders. In other words, it's not an easy matter.
    I have been practicing traditional Chinese medicine for almost 40 years and have practiced various martial arts and therapeutic techniques for almost the same amount of time. That's how I've stayed fairly stable for the last 15 years, without psychiatric medication and with very little for thyroid and allergies.
    In order to extrapolate the theoretical framework to natural medicine and the methods I use, I need to study much more.

    And obviously share all of that with people who have similar problems.

    #autism #actuallyautistic #bipolardisorder #giftedness #autoimmunedisease #neurology #hashimoto #psoriasis #psoriaticarthritis #inflammatoryboweldisease #diabetes #hashimotoencephalitis

  7. CW: Health - medication question, migraine

    I hesitate to ask, but doc has prescribed me a new painkiller - a step up from the novamin drops I used for migraines but have stopped working after menopause. (Codeine hasn’t worked for years)

    Does anyone have experience with tilidine? (with naloxone in the same tablet)
    Does it hit the kidneys?
    Or cause constipation?

    *nervous about this one*

    #spoonies #migraine #ChronicPain #PsoriaticArthritis #SystemicSclerosis

  8. The combination of a broken foot, bad pollen allergy and having had a root canal is really getting to me. So tired.
    But I have work that has to be done today, so as soon as my pain killers start working I need to start on that
    My #psoriaticarthritis is , however, not as bad as it could be
    #chronicillness #chronicpain #pollenallergy

  9. So much pain today.
    Psoriatic arthritis: 0/10 stars, do not recommend.
    I am mending a blanket from Greenlandic wool that I bought in a charity shop, and watching a conference on Historical Clothing and Textiles in Northern and Eastern Europe.
    #DressHistory #chronicpain #psoriaticarthritis

  10. @billyjoebowers That’s my natural hair cut in a fauxhawk—I was so lucky to have inherited my bio mother’s hair. The drugs I used to take for #PsoriaticArthritis made a lot of it fall out, so I shaved my head. I’m on a different med now, so I may try to grow it back out—but I kinda like being bald. Especially in this heat!

    Wigs are fun, too—even tho all the wigs I own right now look like my natural hair, on a whim, I can have any color & style I want. So I’m on the fence. Ha.

  11. Has anyone gotten Pemgarda? Kaiser says, and I quote, "...Pemgarda is not offered at Kaiser, pending further safety and data review. There is no clear timeline as to when it may be approved and/or offered to select patients through Kaiser." Let's ignore the FDA said it's safe enough to use in this emergency situation for immunocompromised patients. tbf I'm cheaper to Kaiser dead of covid. I'm willing to pay out of pocket if needs must. #NEISVoid #Pemgarda #Immunosuppressed #PsoriaticArthritis

  12. This is my first allergy season on super mega doses of immune suppressants. So I guess I get to pick from getting sores from using non-lotion tissues, and they'll eventually get infected, or I can get pimples from using lotion-y tissues. yay. Both hurt. #NEISvoid #Inflectra #Methotrexate #PsoriaticArthritis #Pollen

  13. A mani recommendation!

    You guys know I have #PsoriaticSpondylitis , which is basically #PsoriaticArthritis that affects my spine & SI joints. Outside of that, it rly jacks w/ a couple of organs (liver & lungs) & my nails. Oh, my poor nails. They're a MESS--brittle, thin, weak, & w/ ridges that constantly split & bleed. I used to wear acrylic nails, but they're just so unhealthy. Plus, they're expensive & require a 3 hr round trip to have them done every month. +

  14. CW: Hashtags Galore! (including NSFW ones)
  15. Hi, I'm Kym (aka Seirff) - an always cold fire #dragon.

    Work: #Freelance #techwriter with a computer science degree, #ghostwriter, #editor & #proofreader, #translator (DE>EN), & former #ESL teacher. I write and draw diagrams at drawio.com.

    Open for new clients, especially academic, and diagramming topic requests for the #drawio blog.

    Where: Living in #Leipzig, Germany, after a short stay in #Fukushima, Japan. Originally from #Melbourne, Australia.

    Owned by two big fluffy Maine Coon #cats, whose fur is the bane of my and their existence.

    On the rooftop balcony I grow as much food as possible with a black thumb - #gardening.

    Eternally curious, I share my learning process, crafting, art process and deep thoughts about tricky topics with #Patreon members.

    Woven items and art, #ESLteaching and learning materials and tips are available over on #KoFi.

    Many hobbies - #languages, #art, #piano, #cello, #guitar, #gaming, #sewing, #xstitch, #tapestry, #yarn crafts like #crochet, #knitting, #weaving & #spinning.

    Occasionally also #3dPrinting & #MiniPainting.

    Gentle persistence is my mantra - #spondyloarthritis / #PsoriaticArthritis, #SystemicSclerosis, #endometriosis, complex #PTSD, #BreastCancer survivor, #migraine monster - a collection of #ChronicIllness. I rant about the health system and incompetent doctors. #spoonie

    I want to read your toots, not go down the boost content rabbit hole.

  16. Have finished my binge for the day. Have done some coloring to ease my that's just crept up on me for some unknown reason. Had to stop that because the in my right hand is giving me fits. Now I'm listening to by on to try and get thru this anxiety attack. Having said all that, I do hope all of you had a good day and are having a good evening.

  17. Have finished my #BrokenwoodMysteries binge for the day. Have done some coloring to ease my #anxiety that's just crept up on me for some unknown reason. Had to stop that because the #psoriaticarthritis in my right hand is giving me fits. Now I'm listening to #AnnaofCleve by #AlisonWeir on #Audible to try and get thru this anxiety attack. Having said all that, I do hope all of you had a good day and are having a good evening.

  18. Have finished my #BrokenwoodMysteries binge for the day. Have done some coloring to ease my #anxiety that's just crept up on me for some unknown reason. Had to stop that because the #psoriaticarthritis in my right hand is giving me fits. Now I'm listening to #AnnaofCleve by #AlisonWeir on #Audible to try and get thru this anxiety attack. Having said all that, I do hope all of you had a good day and are having a good evening.

  19. Have finished my #BrokenwoodMysteries binge for the day. Have done some coloring to ease my #anxiety that's just crept up on me for some unknown reason. Had to stop that because the #psoriaticarthritis in my right hand is giving me fits. Now I'm listening to #AnnaofCleve by #AlisonWeir on #Audible to try and get thru this anxiety attack. Having said all that, I do hope all of you had a good day and are having a good evening.

  20. Ok, here is my introduction:

    I'm a #nonbinary, #agender, #asexual, #demiromantic, #neurodivergent (#ADHD confirmed, #Autism suspected) GenXer. Also diagnosed with #PTSD, #PsoriaticArthritis, and #asthma as well.

    I'm a bit of a #history and #anthropology geek, and I like #StarTrek, other #SciFi shows, and #anime.

    The past few years, I've been particularly interested in studying #Marxist #Leninist #Maoist theories of #socialism, #communism, dialectical materialism, and historical materialism.

  21. I HATE health"care" in the US. When I checked in for my infusion this afternoon, they asked me to prepay the $2800 bill.

    Me: Why?

    #Kaiser: It's your first treatment of the new year. Your last was in late December.

    Me: Yeah, I know when I had my last infusion but why am I being asked to prepay for it? I've never been asked to prepay before and besides #Pfizer pays for it.

    K: Oh? Are you part of a trial? Why isn't that on your chart? 1/3

    #NEISVoid #PsoriaticArthritis #Inflectra

  22. CW: Hashtags Galore! (including NSFW ones)
  23. CW: Hashtags Galore! (including NSFW ones)
  24. CW: Hashtags Galore! (including NSFW ones)