#ppms — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #ppms, aggregated by home.social.
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Je viens de vivre, coup sur coup, deux #PPMS (risque chimique et intrusion) gérés avec #Whatsapp ! Les profs disent où ils sont, avec combien d'élèves… dans une espèce de marmelade de communications toutes aussi innexploitables les unes que les autres. Les consignes officielles se retrouvent perdues dans tout ce méli-mélo inepte. Pas certain que cela soit la meilleure solution de communication que d'utiliser cet outil privateur pour des informations aussi critiques. @alainmi11
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@tomkindlon just adding more hashtags to your (great) thread because these are concerns which effect the entire spectrum of disabled/chronic/invisible illness communities
#MultipleSclerosis #RRMS #PPMS #SPMS #DemyelinatingDisease
#LymeDisease #Fibromyalgia #PsoriaticArthritis #RheumatoidArthritis #SleepDisorders #SleepApnea #Narcolepsy #Parasomnia #CircadianRhythmDisorders #non24 #ShiftWorkDisorder #IdiopathicHypersomnia -
@tomkindlon just adding more hashtags to your (great) thread because these are concerns which effect the entire spectrum of disabled/chronic/invisible illness communities
#MultipleSclerosis #RRMS #PPMS #SPMS #DemyelinatingDisease
#LymeDisease #Fibromyalgia #PsoriaticArthritis #RheumatoidArthritis #SleepDisorders #SleepApnea #Narcolepsy #Parasomnia #CircadianRhythmDisorders #non24 #ShiftWorkDisorder #IdiopathicHypersomnia -
@tomkindlon just adding more hashtags to your (great) thread because these are concerns which effect the entire spectrum of disabled/chronic/invisible illness communities
#MultipleSclerosis #RRMS #PPMS #SPMS #DemyelinatingDisease
#LymeDisease #Fibromyalgia #PsoriaticArthritis #RheumatoidArthritis #SleepDisorders #SleepApnea #Narcolepsy #Parasomnia #CircadianRhythmDisorders #non24 #ShiftWorkDisorder #IdiopathicHypersomnia -
Hello #PWMS, #Researchers #FediScience #Neuros
UPDATE UPDATE UPDATE
I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.
Can we use
👉🏼 #MultipleSclerosis 👈🏼 AND #MSChat
for #MS related stuff
AND STILL use a subtopic hashtag to introduce folks to the wide variety of topics and interests.
I hoping we get some #researchers, #scientists, and #neuros in the loop.
Thank for boosting.
❤️Anne
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Hello #PWMS, #Researchers #FediScience #Neuros
UPDATE UPDATE UPDATE
I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.
Can we use
👉🏼 #MultipleSclerosis 👈🏼 AND #MSChat
for #MS related stuff
AND STILL use a subtopic hashtag to introduce folks to the wide variety of topics and interests.
I hoping we get some #researchers, #scientists, and #neuros in the loop.
Thank for boosting.
❤️Anne
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Hello #PWMS.
UPDATE UPDATE UPDATE
I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.
Can we use
👉🏼 #MultipleSclerosis 👈🏼 AND #MSChat
for #MS related stuff
AND STILL use a subtopic hashtag to introduce folks to the wide variety of topics and interests.
I hoping we get some #researchers, #scientists, and #neuros in the loop.
Thank for for your suggestions, past boosts of my posts and following me.
❤️Anne
-
Hello #PWMS.
UPDATE UPDATE UPDATE
I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.
Can we use
👉🏼 #MultipleSclerosis 👈🏼 AND #MSChat
for #MS related stuff
AND STILL use a subtopic hashtag to introduce folks to the wide variety of topics and interests.
I hoping we get some #researchers, #scientists, and #neuros in the loop.
Thank for for your suggestions, past boosts of my posts and following me.
❤️Anne
-
Hello #PWMS
I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.
Can we try consolidating under #MultipleSclerosis AND #MSChat For all things #MultipleSclerosis related
AND still use a subtopic hashtag to introduce folks to the wide variety?
I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.
Thank for for your past boosts of my posts and following me.
❤️Anne
-
Hello #PWMS
I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.
Can we try consolidating under #MSChat For all things #MultipleSclerosis related and still use a subtopic hashtag to introduce folks to the wide variety?
I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.
Thank for for your past boosts of my posts and following me.
❤️Anne
-
Hello #PWMS
I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.
Can we try consolidating under #MultipleSclerosis AND #MSChat For all things #MultipleSclerosis related
AND still use a subtopic hashtag to introduce folks to the wide variety?
I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.
Thank for for your past boosts of my posts and following me.
❤️Anne
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#Read a lot of #Books & watch a lot of #TV.
Paint #Art tho' I can’t feel my fingers so well these days.
Left-leaning, happy old duffer who has to use a #Wheelchair or can take a few steps with walking frame. #MS #PPMS #Ocrevus.
“ ‘er indoors” because I can’t get out easily. Live in a very beautiful place, the weather is pretty appalling.
Fond of #Animals & #Nature #Trees #Dogs.Plan to build an air & weather-tight Scandi #PassivHaus #PassiveHouse.
She/Her