#migraine — Public Fediverse posts

My #Migraine #kit: :blobcatscared: :blobsweats: :BlobfoxTeaTerrified:
-Nerivio device
-blue light blocking glasses
-lip gloss
-liquid IV packets
-cooling compression cap
-emergency meds: triptan, zofran, compazine, vistaril
-loop ear plugs
-acupressure hand clip
-peppermints, sour candy
-calm carry relaxation tool

Decided to make the switch from #Migraine Buddy to #Bearable. I am gonna test bearable and see if it's any more or less helpful. 🤔

MB is great for granular migraine tracking but when you have other things going on and the migraine is a symptom (with multiple symptoms within it) of this ongoing illness it becomes a lot to track so I am going to see if it helps to consolidate some things or not.

Decided to make the switch from #Migraine Buddy to #Bearable. I am gonna test bearable and see if it's any more or less helpful. 🤔

MB is great for granular migraine tracking but when you have other things going on and the migraine is a symptom (with multiple symptoms within it) of this ongoing illness it becomes a lot to track so I am going to see if it helps to consolidate some things or not.

Iran war renews concerns about the lasting toll of traumatic brain injuries to US troops

Shearer, 40, of Colorado Springs, Colo., links both events in 2005 to traumatic brain injuries, which were only…
#NewsBeep #News #BreakingNews #2024-2026Mideastwars #breakingnews #Generalnews #Headinjuries #Health #injuries #Iran #Migraine #U.S.news #Washingtonnews #Worldnews
https://www.newsbeep.com/681405/

#introduction. I'm Sunflower (not my real name), & I'm new to #Mastodon. (She/her/y'all). 30-something w/ fond memories of the #90s & early #2000s. I live w/ a hidden #disability & chronic #migraine. I like writing #altText on my photos, & maybe I have a bit too much fun w/ it. I love #crafting #hiking #photography #books & #fungi. I'm passionate about #Appalachia #Travel & #coffee. I love #rain, rainy days are my favorite. I try to practice #gratitude & see myself as a #nerd. Thx for ⭐️ & 🔄!

#introduction. I'm Sunflower (not my real name), & I'm new to #Mastodon. (She/her/y'all). 30-something w/ fond memories of the #90s & early #2000s. I live w/ a hidden #disability & chronic #migraine. I like writing #altText on my photos, & maybe I have a bit too much fun w/ it. I love #crafting #hiking #photography #books & #fungi. I'm passionate about #Appalachia #Travel & #coffee. I love #rain, rainy days are my favorite. I try to practice #gratitude & see myself as a #nerd. Thx for ⭐️ & 🔄!

Veterans explain toll of traumatic brain injuries now seen in Iran war

WASHINGTON (AP) — When Joe Shearer was a Marine fighting in Iraq, a blast from an enemy mortar…
#NewsBeep #News #Headlines #2024-2025MideastWars #2024-2026Mideastwars #Afghanistan #APTopNews #COStateWire #Colorado #Generalnews #Headinjuries #Health #injuries #Iran #iranwar #Iraq #JoeShearer #Kuwait #Migraine #U.S.news #UnitedStates #Us #USA #Washingtonnews #Worldnews
https://www.newsbeep.com/681330/

It's so hard when you have depression and a migraine with a severe prodrome and anhedonia at the same time.

There was one day when I didn't think about death, but it seems that was a very short episode.

Before that, I found out that the insurance company won't pay my family if I decide to end my life, because they won't let me get life insurance due to my diagnoses already being in the database, and they specifically account for cases like this.

So I won't be able to pull off that trick. That upset me.

#MentalHealth #Health #Life #Depression #Migraine #Thoughts #Blog #Fediverse #Anhedonia

It's so hard when you have depression and a migraine with a severe prodrome and anhedonia at the same time.

There was one day when I didn't think about death, but it seems that was a very short episode.

Before that, I found out that the insurance company won't pay my family if I decide to end my life, because they won't let me get life insurance due to my diagnoses already being in the database, and they specifically account for cases like this.

So I won't be able to pull off that trick. That upset me.

#MentalHealth #Health #Life #Depression #Migraine #Thoughts #Blog #Fediverse #Anhedonia

Maandag, kastelendag

Kluskasteeltje van vandaag

#Fundafun #Funda #kasteel #Maandagkastelendag #kluskasteel #chateaux #migraine #castle #France #Frankrijk #Thouars #projectje #uitdaging #moneypit

https://www.french-property.com/sale-property/3772-A1o5cnrax726vxg5

Maandag, kastelendag

Kluskasteeltje van vandaag

#Fundafun #Funda #kasteel #Maandagkastelendag #kluskasteel #chateaux #migraine #castle #France #Frankrijk #Thouars #projectje #uitdaging #moneypit

https://www.french-property.com/sale-property/3772-A1o5cnrax726vxg5

Ho une semaine qui commence avec une #migraine de compétition ! Vas chier migraine !

Now I try to drink mostly decaf coffee. I know it's not 0mg caffeine, but it's definitely a lot less than I was consuming before.

If I wake up with a #migraine, or start with one around lunch, I will generally have a 1/2 caff or regular coffee to try and help it go away (did not work today).

Why do I still have two decaf coffee a day? Because I enjoy the taste, and it's a habit that I've gotten used to. /3

Now I try to drink mostly decaf coffee. I know it's not 0mg caffeine, but it's definitely a lot less than I was consuming before.

If I wake up with a #migraine, or start with one around lunch, I will generally have a 1/2 caff or regular coffee to try and help it go away (did not work today).

Why do I still have two decaf coffee a day? Because I enjoy the taste, and it's a habit that I've gotten used to. /3

If you are someone who drinks a decent amount of coffee (I consider 2+ cups a day a decent amount), and gets #migraine, and have been considering cutting out the caffeine to see if it helps your #migraine (intensity, duration, frequency), this is how I recently cut mine way back without getting withdrawal headaches.

Disclaimer: I work from home, use reusable keurig style pods, and have enough money and time to mix up my own coffee grounds. /1

If you are someone who drinks a decent amount of coffee (I consider 2+ cups a day a decent amount), and gets #migraine, and have been considering cutting out the caffeine to see if it helps your #migraine (intensity, duration, frequency), this is how I recently cut mine way back without getting withdrawal headaches.

Disclaimer: I work from home, use reusable keurig style pods, and have enough money and time to mix up my own coffee grounds. /1

Pain as a Doorway: Finding Agency in Chronic Illness

Pain may not be a choice. The way I meet the world often is.

The last few weeks have been marked by migraines and the familiar ache of endometriosis. Some days simply getting through work requires more effort than anyone around me realizes. The pain is real. The fatigue is real. And yet, I’ve noticed something that surprises people when they learn I’m not feeling well…

Most of the time, they had no idea.

Every difficult season offers countless doorways. Some lead toward bitterness. Some toward self-pity. Some toward deeper compassion—for ourselves and for everyone else carrying invisible burdens.

There is a common misconception that suffering somehow entitles us to spread our suffering, even when that isn’t our intention.

When we’re in pain—whether it’s physical, emotional, or both—we naturally want to be seen. We want someone to understand. We speak about our diagnoses, our symptoms, our losses, hoping to find compassion.

Most people respond with the best of intentions. They meet our story with one of their own.

“You have migraines? I get headaches too.”

“Your joints hurt? Mine have been bothering me for years.”

This is often how humans communicate empathy. We reach for a shared experience and say, “You’re not alone.”

There is comfort in that. Feeling understood matters.

But there is also a subtle danger.

Pain asks for our attention. It doesn’t have to become our personality.

If every conversation circles back to our pain, our identity can begin to orbit around it. We stop relating to ourselves as a whole person who happens to be suffering and begin relating to ourselves primarily as someone who is suffering. Without realizing it, pain becomes the lens through which we interpret our lives.

I’ve noticed this occasionally in online support groups. Their purpose is a beautiful one: to remind us that we are not alone. Many people find genuine comfort, practical advice, and lasting friendships there.

Yet sometimes these spaces become little more than an exchange of symptoms. Each person contributes another story of exhaustion, another setback, another reason to lose hope. Compassion slowly shifts into collective despair.

No one intends this. Everyone is simply trying to be understood.

But if we never share how we continue living despite the pain—how we found a moment of beauty, laughed with a friend, created something meaningful, or simply made it through another difficult day—we can unintentionally reinforce the belief that pain is all there is.

Over time, this can cultivate a victim mindset. Victimhood is not the same as being a victim. Terrible things happen. Chronic illness is real. Grief is real. Trauma is real. There are seasons when we genuinely need support and care.

A victim mindset, however, is something different. It is the gradual belief that our suffering has become the defining truth of who we are. Once that identity takes hold, it can become difficult to imagine ourselves outside of it. Hope diminishes. Depression often follows. Ironically, our experience of suffering may deepen even further.

Compassion should never invite us to remain stuck. Its highest expression isn’t simply saying, “I hurt too.” It is also saying, “I know this road is hard, and I’m walking it with you. Life is still possible here.”

Pain is a doorway. Like any doorway, it leads somewhere. We don’t always get to choose whether we arrive at it, but we do have some influence over whether we remain standing in the threshold, retreat into the room of despair, or continue walking toward compassion, resilience, and a wider view of life.

Perhaps the greatest gift we can offer one another isn’t shared misery, but shared courage.

This isn’t about pretending we’re fine or refusing help. Hiding our pain is simply another kind of performance.

Instead, it’s about remembering that even in the midst of suffering, we retain agency. There is a quiet dignity in choosing not to let pain become the whole story of who we are.

I can’t choose

• whether a migraine arrives.
• whether endometriosis flares.
• whether my body cooperates today.

But I often can choose

• how I speak to my husband.
• whether I pause before reacting.
• whether I notice something beautiful on the walk to my car.
• whether I allow pain to become my entire identity.

That’s not toxic positivity. It’s agency.

The robin outside my office doesn’t stop singing because my head hurts. The goldenrod still flowers. The evening light still catches the leaves in the same way it did yesterday. The world gently reminds me that while pain is part of my experience, it is not the whole of reality.

I still have migraines. I still have endometriosis and lupus. Tomorrow may be another difficult day.

None of that is within my control.

But every morning I am offered a quieter choice.

Not whether I will suffer, but who I will be while I suffer.

Will pain become the story I tell the world?

Or will it simply be one part of the story of a life still capable of kindness, wonder, creativity, and love?

Pain may not be a choice. The way I meet the world often is.

If this reflection resonates with you, I’ve also recorded a guided meditation, Easing Pain: A Meditative Journey, that explores this practice more directly. It isn’t about pretending pain isn’t there or trying to force it away. Instead, it offers a gentle invitation to meet discomfort with awareness, kindness, and presence—perhaps discovering that even in difficult moments, there is still space to breathe, to soften, and to choose how we respond.

https://open.spotify.com/episode/0aAbwS4h06BaL9GSyYlaQk?si=5e188abef1d74d47

Pain as a Doorway: Finding Agency in Chronic Illness

Pain may not be a choice. The way I meet the world often is.

The last few weeks have been marked by migraines and the familiar ache of endometriosis. Some days simply getting through work requires more effort than anyone around me realizes. The pain is real. The fatigue is real. And yet, I’ve noticed something that surprises people when they learn I’m not feeling well…

Most of the time, they had no idea.

Every difficult season offers countless doorways. Some lead toward bitterness. Some toward self-pity. Some toward deeper compassion—for ourselves and for everyone else carrying invisible burdens.

There is a common misconception that suffering somehow entitles us to spread our suffering, even when that isn’t our intention.

When we’re in pain—whether it’s physical, emotional, or both—we naturally want to be seen. We want someone to understand. We speak about our diagnoses, our symptoms, our losses, hoping to find compassion.

Most people respond with the best of intentions. They meet our story with one of their own.

“You have migraines? I get headaches too.”

“Your joints hurt? Mine have been bothering me for years.”

This is often how humans communicate empathy. We reach for a shared experience and say, “You’re not alone.”

There is comfort in that. Feeling understood matters.

But there is also a subtle danger.

Pain asks for our attention. It doesn’t have to become our personality.

If every conversation circles back to our pain, our identity can begin to orbit around it. We stop relating to ourselves as a whole person who happens to be suffering and begin relating to ourselves primarily as someone who is suffering. Without realizing it, pain becomes the lens through which we interpret our lives.

I’ve noticed this occasionally in online support groups. Their purpose is a beautiful one: to remind us that we are not alone. Many people find genuine comfort, practical advice, and lasting friendships there.

Yet sometimes these spaces become little more than an exchange of symptoms. Each person contributes another story of exhaustion, another setback, another reason to lose hope. Compassion slowly shifts into collective despair.

No one intends this. Everyone is simply trying to be understood.

But if we never share how we continue living despite the pain—how we found a moment of beauty, laughed with a friend, created something meaningful, or simply made it through another difficult day—we can unintentionally reinforce the belief that pain is all there is.

Over time, this can cultivate a victim mindset. Victimhood is not the same as being a victim. Terrible things happen. Chronic illness is real. Grief is real. Trauma is real. There are seasons when we genuinely need support and care.

A victim mindset, however, is something different. It is the gradual belief that our suffering has become the defining truth of who we are. Once that identity takes hold, it can become difficult to imagine ourselves outside of it. Hope diminishes. Depression often follows. Ironically, our experience of suffering may deepen even further.

Compassion should never invite us to remain stuck. Its highest expression isn’t simply saying, “I hurt too.” It is also saying, “I know this road is hard, and I’m walking it with you. Life is still possible here.”

Pain is a doorway. Like any doorway, it leads somewhere. We don’t always get to choose whether we arrive at it, but we do have some influence over whether we remain standing in the threshold, retreat into the room of despair, or continue walking toward compassion, resilience, and a wider view of life.

Perhaps the greatest gift we can offer one another isn’t shared misery, but shared courage.

This isn’t about pretending we’re fine or refusing help. Hiding our pain is simply another kind of performance.

Instead, it’s about remembering that even in the midst of suffering, we retain agency. There is a quiet dignity in choosing not to let pain become the whole story of who we are.

I can’t choose

• whether a migraine arrives.
• whether endometriosis flares.
• whether my body cooperates today.

But I often can choose

• how I speak to my husband.
• whether I pause before reacting.
• whether I notice something beautiful on the walk to my car.
• whether I allow pain to become my entire identity.

That’s not toxic positivity. It’s agency.

The robin outside my office doesn’t stop singing because my head hurts. The goldenrod still flowers. The evening light still catches the leaves in the same way it did yesterday. The world gently reminds me that while pain is part of my experience, it is not the whole of reality.

I still have migraines. I still have endometriosis and lupus. Tomorrow may be another difficult day.

None of that is within my control.

But every morning I am offered a quieter choice.

Not whether I will suffer, but who I will be while I suffer.

Will pain become the story I tell the world?

Or will it simply be one part of the story of a life still capable of kindness, wonder, creativity, and love?

Pain may not be a choice. The way I meet the world often is.

If this reflection resonates with you, I’ve also recorded a guided meditation, Easing Pain: A Meditative Journey, that explores this practice more directly. It isn’t about pretending pain isn’t there or trying to force it away. Instead, it offers a gentle invitation to meet discomfort with awareness, kindness, and presence—perhaps discovering that even in difficult moments, there is still space to breathe, to soften, and to choose how we respond.

https://open.spotify.com/episode/0aAbwS4h06BaL9GSyYlaQk?si=5e188abef1d74d47

I'm supposed to start a new medication tomorrow, it's IV infusion for migraines. It's given every three months.

Last night I started to think about what it would be like to be on a medication that works for three months no matter how I react to it. So I checked again on the potential side effects.

So, I'll be calling to cancel in a few minutes.
#migraine

I'm supposed to start a new medication tomorrow, it's IV infusion for migraines. It's given every three months.

Last night I started to think about what it would be like to be on a medication that works for three months no matter how I react to it. So I checked again on the potential side effects.

So, I'll be calling to cancel in a few minutes.
#migraine

Jaggies gone.

#StupidBiology #Migraine #Jaggies

Jaggies gone.

#StupidBiology #Migraine #Jaggies

RE: https://mastodon.social/@ianRobinson/117008429648660066

Lots of jaggies. Most in a migraine for a long time. Almost all of my right side vision field of view is gone.

It’s just a matter of waiting for it to end. Usually about 20 minutes.

#StupidBiology #Migraine #Jaggies

RE: https://mastodon.social/@ianRobinson/117008429648660066

Lots of jaggies. Most in a migraine for a long time. Almost all of my right side vision field of view is gone.

It’s just a matter of waiting for it to end. Usually about 20 minutes.

#StupidBiology #Migraine #Jaggies

Another day, and another migraine from an indie game that had a sudden extreme flashing sequece...now, say it with me once more:

FLASHING VISUALS ARE NOT SCARY, THEY ARE JUST HARD TO SEE AND CAUSE MIGRAINES, AND SEIZURES.

Gamedevs, seriously it is not hard to not have them in your games and expand your player base by avoiding them.

Also if you have them - MAKE A BIG FUCKING WARNING IN THE BEGINNING!

#ganedev #indiegame #accessability #migraine #flashing #fuckYou

Another day, and another migraine from an indie game that had a sudden extreme flashing sequece...now, say it with me once more:

FLASHING VISUALS ARE NOT SCARY, THEY ARE JUST HARD TO SEE AND CAUSE MIGRAINES, AND SEIZURES.

Gamedevs, seriously it is not hard to not have them in your games and expand your player base by avoiding them.

Also if you have them - MAKE A BIG FUCKING WARNING IN THE BEGINNING!

#ganedev #indiegame #accessability #migraine #flashing #fuckYou

I don't like posting from #instagram, and I don't use it myself, but as a #migraine sufferer, someone sent* this to me and it was on point.

https://www.instagram.com/p/DbVwIojDrJU/?img_index=1

edit: typo

I don't like posting from #instagram, and I don't use it myself, but as a #migraine sufferer, someone went this to me and it was on point.

https://www.instagram.com/p/DbVwIojDrJU/?img_index=1

#Migraine rates rise during periods of #wildfire smoke: research report

Fyi @ottaross

#Migraine rates rise during periods of #wildfire smoke: research report

Fyi @ottaross

Migraine overnight and unsure of its attribution. I had stayed away from all my normal triggers all week. 🙁

That leaves two physically-hard concrete driveway repair-work sessions Sat & Sun, air quality issues, plus a weather change overnight. Something in there pushed me into the pit. First hint was late afternoon.

Oh well - meds are usually on top of it quickly. Such is life.

#migraine #migraineur

Migraine overnight and unsure of its attribution. I had stayed away from all my normal triggers all week. 🙁

That leaves two physically-hard concrete driveway repair-work sessions Sat & Sun, air quality issues, plus a weather change overnight. Something in there pushed me into the pit. First hint was late afternoon.

Oh well - meds are usually on top of it quickly. Such is life.

#migraine #migraineur

🔥 International researchers say there is a link between particulate matter caused by wildfires and people heading to the ED with migraine or headache symptoms

✨Follow the link for more information on this story✨
https://www.scimex.org/newsfeed/smoke-from-wildfires-linked-with-ed-visits-for-headache-and-migraine

#science #sciencenews #research #stem #facts #knowledge #sciencefacts #bushfire #wildfire #smoke #headache #migraine #PM2.5

🔥 International researchers say there is a link between particulate matter caused by wildfires and people heading to the ED with migraine or headache symptoms

✨Follow the link for more information on this story✨
https://www.scimex.org/newsfeed/smoke-from-wildfires-linked-with-ed-visits-for-headache-and-migraine

#science #sciencenews #research #stem #facts #knowledge #sciencefacts #bushfire #wildfire #smoke #headache #migraine #PM2.5

Not so much to say. #migraine again. Just like yesterday. Just like since ever.

Not so much to say. #migraine again. Just like yesterday. Just like since ever.

Does anyone here have any experience (good or bad) with Vyepti for migraines?

I told my neurologist I was willing to live with the constant low grade pain with occasional outbursts of high grade pain. She said that her concern is that I have the best possible quality of life and she recommends that I at least try this. It's an IV every three months.

#migraine #vyepti #ChronicPain

Does anyone here have any experience (good or bad) with Vyepti for migraines?

I told my neurologist I was willing to live with the constant low grade pain with occasional outbursts of high grade pain. She said that her concern is that I have the best possible quality of life and she recommends that I at least try this. It's an IV every three months.

#migraine #vyepti #ChronicPain

Well, I threw up both the mug of tea, coca cola & crisps 🤷🏼‍♀️ but I feel so much better. The weirdness of the human migraine body 🤷🏼‍♀️

#Migraine #ChronicMigraine

Oof, I so enjoy being woken up by my brain going we can't lie down any longer (hit the pain button) you couldn't have just sent a wake up signal 🙄 pain meds on boarded, hoping that as I move around abet slowly until the pain goes away, will also have a coca cola & crisps.

It's also Ajovy stab day 💉

#Migraine #ChronicMigraine
#Ajovy

Over the last decade, the understanding of these devastating headaches has grown enormously, as has the understanding of what can be done to treat them We’ve been trying to cure migraines – without… #wellness #migraine #neuroscience

https://www.theguardian.com/lifeandstyle/2026/jul/19/banging-headache-mysteries-migraine-treatments?utm_source=flipboard&utm_medium=activitypub

Posted into FLIPBOARD EXCHANGE FEED 🗞️ @flipboard-exchange-feed-Econopass

An actually accurate piece on migraines, absent the woo that usually accompanies them.

Need to get 'prodrome' in my lexicon in place of 'aura' (I thought they were one and the same) and 'postdrome' for the post-migraine fatigue.

#migraine

https://www.theguardian.com/lifeandstyle/2026/jul/19/banging-headache-mysteries-migraine-treatments

An actually accurate piece on migraines, absent the woo that usually accompanies them.

Need to get 'prodrome' in my lexicon in place of 'aura' (I thought they were one and the same) and 'postdrome' for the post-migraine fatigue.

#migraine

https://www.theguardian.com/lifeandstyle/2026/jul/19/banging-headache-mysteries-migraine-treatments

Migraines? Turns out the fried catfish doesn't work.

#migraine

https://www.theguardian.com/lifeandstyle/2026/jul/19/banging-headache-mysteries-migraine-treatments

Migraines? Turns out the fried catfish doesn't work.

#migraine

https://www.theguardian.com/lifeandstyle/2026/jul/19/banging-headache-mysteries-migraine-treatments

Oh fun 🙄 a zero to 100 migraine, abortive taken, nap time.

I am due my Ajovy on Wednesday so not unexpected, earplugs in as the crouch goblins are screaming & someone's chiselling something near by.

#NapTime #AbortTheMigraine #Migraine #ChromicMigraine

the sound of the pulsing migraine can seem like someone is dropping bags of wet sand inside my head. pulsing waves of sand woke me last night.

there is also a physical feeling of my head becoming full, kinda close to blood rushing to my head, except that i am lying down and it's not synchronized to my heartbeat (i do not get pulsile tinnitus).

typically it is matched with muscle movement and sound. this morning i felt it sync up with a bird hopping around outside my window. i have often caused it to happen by simply moving my eyes, or tilting my head to one side. my shitty neighbor idles his old truck under my bedroom window so the gas fumes did not help.

sometimes if they occur early in the evening, a couple of benedryl will clear it up by morning. but i can't take this too far into sleep or i will wake up as a zombie. that was my fear today, and i skipped it. in these cases i lie as still as possible and practice deep breathing.

i exercised a little, but i pushed my body a lot this weekend clearing a space for a stair replacement dude that isn't showing up, so i mostly just stretched.

called in sick for work, tho. trying to avoid the emotional dysfunction. i will probably sit here and finish rings of power season two. i think it probably gave me the fascist invasion dreams i had last night, but unlike many of my hero-nightmares, i survived and stayed safe. perhaps it helped me do that, too.

#migraine #cptsd #tinnitus