#migraine — Public Fediverse posts

https://www.europesays.com/be-nl/140030/ Ellen Terwindt leeft al sinds haar achtste met migraine #BE #België #Belgium #DagVanDeMigraine #EllenTerwindt #Gezondheid #Health #interview #migraine #StudioMigraine

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Maandag, kastelendag

Kluskasteeltje van vandaag

#Fundafun #Funda #kasteel #Maandagkastelendag #kluskasteel #chateaux #migraine #castle #France #Frankrijk #Thouars #projectje #uitdaging #moneypit

https://www.french-property.com/sale-property/3772-A1o5cnrax726vxg5

Migraine, Perception, and Creative Flow

Living Inside A Migraine

When pain, perception, and medication reshape daily life

I’ve been dealing with a migraine for nine days. This isn’t just a headache—it comes with aura, Alice in Wonderland syndrome, and persistent vertigo with nausea. My perception gets distorted, my thinking slows down, and basic tasks become difficult. The medication helps with the pain, but it brings its own side effects, and overall, it’s been hard to function.

In the middle of this, something unexpected happened.

A Brief Shift in State

Unexpected focus and creative flow during disruption

While I was heavily medicated, I had a period of intense creative focus. For a few hours, I was able to paint with a level of freedom that I don’t usually reach. It felt like my usual mental filters were lowered. I wasn’t second‑guessing decisions or holding back. I just worked.

The result was different from my normal work—more direct, less controlled, but also more expressive.

This raised a question for me: what actually changed in that moment?

Changes in Perception

How migraine and medication alter access, not ability

Triptans, the medication I use for acute migraine attacks, act on serotonin receptors. They’re not psychedelics, but they do affect how the brain processes signals. Combined with the migraine itself—especially aura, which already alters perception—the overall effect is a shift in how I experience space, color, and thought.

That shift isn’t comfortable. Most of it is disorienting and unpleasant. But within it, there was a brief window where my usual patterns loosened. And in that space, creative work felt easier.

Access, Not Creation

The work was already there—the conditions just changed

It’s important to be clear: the migraine didn’t “create” anything. The creativity was already there. What changed was how accessible it felt. The conditions removed some of the internal constraints I usually work within—habits, expectations, and self‑editing.

That’s not something I want to rely on. The cost is too high. But it does point to something useful.

If a change in mental state can affect how I access creativity, then there may be other ways to reach similar openness without the physical toll. It suggests that part of my creative process is limited not by ability, but by structure—how tightly I control the outcome, how much I filter while working.

There’s also a broader connection here. Decades ago, I had experiences with psychedelics that shifted how I saw the world and myself. Those experiences helped me let go of a lot of fear and rigidity. I don’t return to them now, but the perspective they opened up has stayed with me.

That perspective has been important in dealing with chronic migraine. The pain itself isn’t optional, but my response to it isn’t fixed. Over time, I’ve learned to manage the mental side of it—how much resistance I bring to it, how I interpret it, and how I move through it. That doesn’t eliminate suffering, but it changes its intensity and impact.

The recent experience fits into that same pattern. Even in a difficult state, there was a moment where something shifted—not into relief exactly, but into clarity of a different kind.

For me, the takeaway isn’t about the medication or the migraine. It’s about access.

The kind of creative flow I felt isn’t something external that I need to recreate through extreme conditions. It’s something internal that I was briefly able to reach under unusual circumstances.

Openness and Letting Go

When the boundary between experience and experiencer softens

There’s also a quality in that state that’s familiar from meditation. It’s a kind of openness where the usual sense of separation starts to fade. Instead of feeling like an observer acting on an experience, there’s just the experience itself—no clear boundary between the one perceiving and what’s being perceived. In that space, the need to control or interpret loosens, and the work unfolds more directly, without the usual distance between intention and action.

Working with Pain

Perspective, resistance, and what can shift

Another layer to this is perspective. The difference between being overwhelmed by the experience and moving through it often comes down to how it’s held. I wrote previously about the Four Noble Truths and the Eightfold Path as a framework for navigating chronic pain from migraine and lupus. What stands out to me now is how practical that framework is—not as philosophy, but as a way of adjusting perspective in real time.

When The Pain Takes Over

A reminder that practice isn’t always accessible

Pain is present. That part isn’t optional. But the added weight—resistance, fear, frustration—can shift depending on how tightly I hold the experience. That said, this isn’t always accessible. There are moments when the pain takes over completely. Last night was one of those times. I woke up in the middle of the night in severe pain after my first medication didn’t work. I couldn’t find my stronger medication, didn’t have my glasses, and ended up searching through cabinets, drawers, and bags in a panic. I knew that without it, I might end up in the ER—where the treatment helps, but comes with hours of discomfort and side effects. I was overwhelmed, in tears, and scared.

In moments like that, there isn’t much space for perspective or practice. But experiences like this also make something clear to me: without meditation, without the framework I’ve built from Buddhist practice, I would likely be living in that state of panic much more often. My commotion woke up my husband, who came in—calm, steady, not caught in the panic I was in. He found the medication, and he cleaned up the mess I had made searching as I went back to bed. That contrast stood out. It reminded me that while I can’t always access those tools in the moment, they still shape how I move through these experiences over time.

Returning to Openness

Creative flow, meditation, and another way of relating to experience

It’s not easy to stay open in the middle of persistent pain. In those moments, it’s hard to remember that the pain will pass—that it isn’t permanent. Pain forces attention into the present, but not calmly or intentionally. It can narrow everything down to urgency and survival. At the same time, it can act as a kind of teacher. It shows where resistance builds, where fear takes hold, and how quickly the mind tries to escape what’s happening. When I’m able to step back, even slightly, I can see it less as something to fight and more as something that reveals how I relate to experience.

What I keep coming back to is this: the experience changes depending on how I meet it. Not completely, not all at once, but enough to matter. And in those moments of openness, there is less separation—and a little more space for things to be as they are.

I painted this over six hours while medicated for a migraine, drifting in and out of focus. The haze loosened my usual self‑judgment, and the work shifted into something more fluid and intuitive. It’s not complete, but the evolution itself tells the story.

2026_2_16 “Botox for Migraine” Injection Set #2, and 5 Hour Drive to/from Appt

https://www.illmarks.com/2026_2_16-botox-for-migraine-injection-set-2-and-5-hour-drive-to-from-appt/

#2 #art #bodyHorror #bodyMapping #bodyart #bodymapping #chronicIllness #chronicIllness #chronicmigraine #disability #disabilityart #DisabledArtist #eds #healthcare #heds #longCovid #longcovid #mcas #medart #medical #medicalArt #migraine #MillionsMissing #neurology #POTS #pwLC #pwme #queer #QueerArt #QueerArtist #SciArt #SciComms #trans #transArt #TransPride

#ArtVsArtist2025: @illmarks edition!

here’s the first one of these where I kept it only to art I did this year

I think it’s intriguing to see the themes change/evolve. This year involved more Chronic Migraine, GI, and Mast Cell Activation Syndrome issues.

#NonbinaryFashion #disabilityArt #DisabledArt #Migraine #MCAS #GI #IBS #ArtVsArtist #2025artVsArtist

How can I promote my #crowdfund if I can barely get online? I won’t survive much longer in this house. My doctor agrees. I’m declining and there’s no treatment that can work while I’m constantly being #abused #neglected #controlled you name it.

Please help promote my crowdfund I don’t have long.

https://chuffed.org/project/161937-help-anna-escape

#mutualAid #ChronicIllness #MeCFS
#LongCovid #SevereME #narcissisticAbuse #PwME #PWLC #Migraine

@[email protected] @[email protected]
@[email protected] @[email protected]
@MutualAidNet @FediAid
@mecfs

#PRESS 𝗘𝘀𝗰𝗲 𝗼𝗴𝗴𝗶 sul canale YouTube dei #Migraine il video di 𝙄𝙣𝙙𝙖𝙜𝙞𝙣𝙞, brano estratto dall'album 𝙐𝙣'𝘼𝙗𝙞𝙩𝙪𝙙𝙞𝙣𝙚 💥
«𝘐𝘯𝘥𝘢𝘨𝘪𝘯𝘪 𝘱𝘢𝘳𝘭𝘢 𝘥𝘦𝘭𝘭𝘢 𝘮𝘦𝘯𝘵𝘦 𝘤𝘰𝘮𝘦 𝘥𝘪 𝘶𝘯 𝘭𝘶𝘰𝘨𝘰 𝘥𝘪 𝘴𝘰𝘳𝘷𝘦𝘨𝘭𝘪𝘢𝘯𝘻𝘢 𝘤𝘰𝘴𝘵𝘢𝘯𝘵𝘦, 𝘥𝘰𝘷𝘦 𝘯𝘰𝘯 𝘦𝘴𝘪𝘴𝘵𝘰𝘯𝘰 𝘱𝘪𝘶̀ 𝘤𝘰𝘯𝘧𝘪𝘯𝘪 𝘵𝘳𝘢 𝘤𝘰𝘭𝘱𝘢 𝘦 𝘳𝘦𝘥𝘦𝘯𝘻𝘪𝘰𝘯𝘦. 𝘌̀ 𝘭𝘢 𝘳𝘪𝘤𝘦𝘳𝘤𝘢 𝘥𝘪 𝘶𝘯𝘢 𝘷𝘪𝘢 𝘥’𝘶𝘴𝘤𝘪𝘵𝘢 𝘥𝘢 𝘴𝘦́ 𝘴𝘵𝘦𝘴𝘴𝘪, 𝘮𝘢 𝘢𝘯𝘤𝘩𝘦 𝘭𝘢 𝘤𝘰𝘯𝘴𝘢𝘱𝘦𝘷𝘰𝘭𝘦𝘻𝘻𝘢 𝘤𝘩𝘦 𝘤𝘦𝘳𝘵𝘦 𝘥𝘰𝘮𝘢𝘯𝘥𝘦 𝘯𝘰𝘯 𝘢𝘷𝘳𝘢𝘯𝘯𝘰 𝘮𝘢𝘪 𝘳𝘪𝘴𝘱𝘰𝘴𝘵𝘢». https://www.youtube.com/watch?v=5Vg8Gcjw8L0
#alternativerock #stoner #rock #grunge #postcore #newvideo #releaseday #outnow #peyotezone

#STAGE Ecco le proposte live dal roster di PEYOTE ✨
Disponibilità per #Kozminski, #TheRootworkers, #CobolPongide, #GianlucaNatanti, #PaleBlueDot, #Māyā, #Migraine, #FiestaAlba, #Cowards, #MishaChylkova e #Kaouenn! Tutte le info al link: https://bit.ly/49HefV4 🎸

In foto Kozminski live @ NOISE il Cinemino, Milano 📸

#concerti #livemusic #liveshow #onstage #peyotestage #bookingagency #newcollaboration #newroster #musicaindipendente #peyotezone

https://www.europesays.com/ie/165735/ Chronic headache disorders as a threat to brain health among employees of a city office in the Tokyo metropolitan area | The Journal of Headache and Pain #AdministrativeBody #BrainHealth #CalcitoninGeneRelatedPeptide(CGRP) #ChronicHeadache #ConsultationRate #EconomicLoss #Éire #Health #IE #InternalMedicine #Ireland #migraine #neurology #PainMedicine #Presenteeism #WorkProductivity #workplace

🎮🚀 Welcome to the latest #game #sensation where #math meets a migraine! Dive into a sea of convoluted menus and #cryptic jargon, guaranteeing hours of brain-numbing #fun. Who knew sine waves could be this thrilling? 🙄🎢
https://sinerider.com/ #migraine #HackerNews #ngated

2025-8-11 My migraines are triggered by drinking water

https://www.illmarks.com/2025-8-11-my-migraines-are-triggered-by-drinking-water/

#art #bodyHorror #bodyMapping #chronicIllness #chronicMigraine #chronicPain #disability #disabled #longCovid #longcovid #mastcell #mcas #medBlog #medart #medicalArt #medicalBlog #migraine #MillionsMissing #neurology #pwLC #pwme #sciBlog #SciArt

#migraine but listening to England India test #OnTheRadio #cricket #testcricket so not bad for a Saturday. #bbc #BBCSport

#STAGE Ecco le proposte live dal roster di PEYOTE ✨
Disponibilità per #CobolPongide, #PaleBlueDot, #Māyā, #FiestaAlba, #Migraine, #Cowards, #TipografiaSonora, #TacetTacetTacet, #SebastianoLillo, #MishaChylkova, #Kaouenn e #MATA! Tutte le info al link https://bit.ly/3ZH7qgh 🎸

In foto i Cobol Pongide live 📸

#concerti #livemusic #onstage #peyotestage #peyotezone

#STAGE Ecco le proposte live dal roster di PEYOTE ✨
Disponibilità per #PaleBlueDot, #Māyā, #FiestaAlba, #Migraine, #Cowards, #TipografiaSonora, #TacetTacetTacet, #SebastianoLillo, #MishaChylkova, #Kaouenn e #MATA! Tutte le info al link https://b7e4h.r.a.d.sendibm1.com/mk/mr/sh/OycXxko2a8zXNWXlU5bBjXz4/XHFu1_M7OsHl 🎸

In foto i Pale Blue Dot live 📸

#concerti #livemusic #onstage #peyotestage #peyotezone

#STAGE Ecco le proposte live dal roster di PEYOTE ✨

Disponibilità per #Māyā, #FiestaAlba, #Migraine, #Cowards, #TipografiaSonora, #TacetTacetTacet, #SebastianoLillo, #MishaChylkova, #Kaouenn e #MATA! Tutte le info al link https://b7e4h.r.a.d.sendibm1.com/mk/mr/sh/6rqJ8GoudeITQFYVJuiiRz1q7hW/6sPyNVtsqKQB

In foto i Māyā live 📸

#concerti #livemusic #onstage #peyotestage #peyotezone

#PRESS 𝗘𝘀𝗰𝗲 𝗼𝗴𝗴𝗶 in digitale 𝙇𝙞𝙣𝙙𝙖, il nuovo singolo della band alternative-rock pugliese Migraine! Il brano trasforma la diversità in orgoglio attraverso sonorità graffianti e grande intensità. Scoprilo al link https://open.spotify.com/intl-it/album/2MYIxtg98iOzhZikvdRZTD?si=7mWTLhBIQAelanRCa1VOrQ insieme al videoclip ufficiale di Toni “Toni Vidz” Argentieri https://www.youtube.com/watch?v=ou5bAjxlp8Y

#migraine #alternativerock #stoner #rock #grunge #newsingle #newvideo #outnow #releaseday #peyotezone #peyotepress #ufficiostampa

#PRESS 𝗘𝘀𝗰𝗲 𝗼𝗴𝗴𝗶 in digitale come autoproduzione 𝙐𝙣❜𝙖𝙗𝙞𝙩𝙪𝙙𝙞𝙣𝙚, il nuovo dirompente singolo della band stoner/alternative-rock pugliese Migraine! A base di chitarre fuzzose e sezione ritmica martellante, il brano scuote le fondamenta delle relazioni logorate dalla routine. Scoprilo ai link https://open.spotify.com/intl-it/album/5h00s4gAgsIwIcCz1Flfvi 💥

#migraine #alternativerock #stoner #rock #grunge #newsingle #outnow #releaseday #peyotezone #peyotepress #ufficiostampa

No sé qué pasó pq estoy posteando poco y escribiendo menos, pero la semana pasada el #blog tuvo una barbaridad de visitas.
A los seguidores y a los que distéis con él por casualidad, #GRACIAS

#blogger #bloguera #Bloguers #Mastoblog #Mastobloguers #Mastoblogger #salud #health #Lupus #LES #SEL #EncefalomielitisMialgica #MyalgicencEphalomyelitis #Sjögren #Sjögrens #Fibromialgia #fibromyalgia #migraña #migrañas #migraine #migraines #Raynaud #raynauds #RaynaudsDisease #natura
https://domandoallobo.blogspot.com

i just got (mostly) through over a week of constant migraine

funnily enough, this is my migraine disorder getting better

i'm so behind on chores, on art, on everything and the oppressive sense of overwhelm threatens to slash at me like a cassowary looking for a snack

#migraine #migraines #myheadstillhurts #butitsmanageableiguess #cassowaries #MostCassowaryAttacksAreOverFood #don'tfeedcassowaries #theyaredinosaurs #YourPetCassowaryWillMurderYou

Having a rough day. Multiple #POTS episodes, now with headache. Not #migraine though. I haven't had a day like this since starting compression socks. 😞

#spoonie #CardiacHealth

@spoonies

‘She wants to go to school’: parents of unwell child fear truancy prosecution | School attendance and absence | The Guardian
https://www.theguardian.com/education/2024/apr/15/parents-unwell-child-fear-truancy-prosecution

#SickKids
#Truancy
#TruancyProsection
#Migraine
#SingleJusticeProcedure
#MagistratesAssociation
#EHCP
#EHCPlan
#SEN

𝗡𝗮𝗰𝗵𝘁𝗺𝗲𝗿𝗿𝗶𝗲 𝘃𝗼𝗼𝗿 𝗔𝗺𝗲𝗿𝗶𝗸𝗮𝗮𝗻: 𝗴𝗲𝗲𝗻 𝗺𝗶𝗴𝗿𝗮𝗶𝗻𝗲, 𝗺𝗮𝗮𝗿 𝗹𝗶𝗻𝘁𝘄𝗼𝗿𝗺 𝗶𝗻 𝗵𝗼𝗼𝗳𝗱

Voor een 52-jarige man uit de Verenigde Staten zal gebakken spek waarschijnlijk nooit meer hetzelfde smaken. De migraine waar hij plotseling last van had, bleek te worden veroorzaakt door lintwormlarven bij de hersenen. Vermoed wordt dat die daar terechtkwamen door het eten van...

https://www.rtlnieuws.nl/nieuws/buitenland/artikel/5440206/nachtmerrie-voor-amerikaan-geen-migraine-maar-lintworm-hoofd

#Amerikaan #migraine #lintworm

The 20 ‘most painful' health conditions, according to the NHS
https://www.msn.com/en-gb/health/medical/the-20-most-painful-health-conditions-according-to-the-nhs/ar-AA1kSjMR?cvid=0891b67d26254255841cf61460de207b&ocid=winp2fptaskbarhover&ei=7

#Pain
#NHS
#Endometriosis
#SlippedDisc
#Appendicitis
#BrokenBones
#Shingles
#FrozenShoulder
#ClusterHeadaches
#ComplexRegionalPainSyndrome
#CRPS
#HeartAttack
#KidneyStones
#Arthritis
#Gout
#SickleCellDisease
#SickelCell
#Fibromyalgia
#Migraine
#Sciatica
#TrigeminalNeuralgia
#AcutePancreatitus
#StomachUlcer
#PáinAfterSurgery

Desde el domingo con brote de #EncefalomielitisMiálgica y crisis de dolor neuropático. Al menos hoy duele menos al teclear.

A #MyalgicEncephalomyelitis crash (flare) and neuropathic pain crisis since Sunday. Typing hurts less but still.

#Dolor #DolorNeuropatico #DolorCronico #EMsfc #fibromialgia#Sjögen #Lupus #LES #NeuralgiaDelTrigemino #NdT #Migraña #Pain #ChronicPain #neuropathicPain #ME #MEcfs #fibromyalgia #Sjögrens #SLE #TrigeminalNervePain #TNP #Migraine

Insurance Barriers, Migraine Hospital Visits Linked

A review of #insurance claims shows patients facing obstacles to #coverage for their #migraine #therapies are also more likely to need #emergency care for #treatment.

https://sciencebusiness.technewslit.com/?p=44913

#News #Science #PublicHealth #Headache #InsuranceClaims #Neurology #StepTherapy #Hospital #EmergencyRoom #Race #EthnicGroup

Reconoceréis muchos síntomas en el #blog. Por eso me ha gustado la anterior infografía.
Qué malo saber que te hablan pero no comprender qué te dicen. Y hablar sin articular, igual, saber que hablas pero no qué.
Los síntomas sensoriales no son mejores. Que se te paralice medio cuerpo por una #migraña o se te "caiga" el lado derecho de la cara. El #aura visual lo llevo mejor. Me avisa que llega.

#211 #Migrañas: Mucho más que un #dolor de cabeza 🐺 https://domandoallobo.blogspot.com/2016/09/211-migrana-mas-que-un-dolor-de-cabeza.html #migraine #DolorCronico

🎵 Calm & uplifted ~ making a short #MomentsOfSound #playlist for #January #renewal (stay tuned! 🔜) & #ListeningTo track below ⤵ to soothe my nerves, ease #Migraine, & bring me #peace 🕊

Wanted to share ~ 10min of pure #peaceful good-vibes mood 💫🙏🏽💫

(This #CutCopy is far more relaxed than their other stuff : this = #ambient)

Listen ➡ https://cutcopy.bandcamp.com/track/january-tape-part-1-2

Enjoy & happy #weekend! ☺

#music #blog #NowPlaying #listening #AmbientMusic #electronic #ElectronicMusic #Bandcamp @chronicillness @mecfs

Hello this is me, yet another #Mstdn #introduction. But nice to be here. I do #lightingdesign for #theatre as an #ALPD member, #photography #code and #teach at #dramaschool #RADA. I love #ceramics (especially #teapot s). I live with and like to talk about #neuro #ChronicHealth #FND and #migraine. #constitutionallaw and #copyright when I need some light #reading.