#migraine — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #migraine, aggregated by home.social.
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One thing I discussed with my neurologist was his suggestion to my GP in 2917 about possible chronic fatigue syndrome, and again in 2022. Neither followed up.
And the overlaps between #Fibromyalgia, #CFS, #Migraine, #Anxiety and #Depression which share certain genetic markers."This study provides robust genetic evidence defining fibromyalgia as a central nervous system disorder, thereby establishing a biological framework for its complex pathophysiology and extensive clinical comorbidities."
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One thing I discussed with my neurologist was his suggestion to my GP in 2917 about possible chronic fatigue syndrome, and again in 2022. Neither followed up.
And the overlaps between #Fibromyalgia, #CFS, #Migraine, #Anxiety and #Depression which share certain genetic markers."This study provides robust genetic evidence defining fibromyalgia as a central nervous system disorder, thereby establishing a biological framework for its complex pathophysiology and extensive clinical comorbidities."
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One thing I discussed with my neurologist was his suggestion to my GP in 2917 about possible chronic fatigue syndrome, and again in 2022. Neither followed up.
And the overlaps between #Fibromyalgia, #CFS, #Migraine, #Anxiety and #Depression which share certain genetic markers."This study provides robust genetic evidence defining fibromyalgia as a central nervous system disorder, thereby establishing a biological framework for its complex pathophysiology and extensive clinical comorbidities."
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One thing I discussed with my neurologist was his suggestion to my GP in 2917 about possible chronic fatigue syndrome, and again in 2022. Neither followed up.
And the overlaps between #Fibromyalgia, #CFS, #Migraine, #Anxiety and #Depression which share certain genetic markers."This study provides robust genetic evidence defining fibromyalgia as a central nervous system disorder, thereby establishing a biological framework for its complex pathophysiology and extensive clinical comorbidities."
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One thing I discussed with my neurologist was his suggestion to my GP in 2917 about possible chronic fatigue syndrome, and again in 2022. Neither followed up.
And the overlaps between #Fibromyalgia, #CFS, #Migraine, #Anxiety and #Depression which share certain genetic markers."This study provides robust genetic evidence defining fibromyalgia as a central nervous system disorder, thereby establishing a biological framework for its complex pathophysiology and extensive clinical comorbidities."
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https://www.europesays.com/ch-fr/307112/ Migraine chez l’enfant : une scolarité sous pression #enfants #HandicapInvisible #Health #MaladieChronique #Migraine #Santé #Scolarité #Suisse
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https://www.europesays.com/be-fr/251668/ Migraine chez l’enfant : une scolarité sous pression #BE #BEFr #Belgique #Belgium #Enfants #HandicapInvisible #Health #MaladieChronique #Migraine #Santé #scolarité
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Spaarne Gasthuis organiseert informatieavond over migraine en nieuwe behandelingen: Voor ongeveer twee miljoen Nederlanders is migraine allang geen gewone hoofdpijn meer, maar een aandoening die het dagelijks leven uren of dagenlang volledig stillegt. Het moeten afzeggen van een verjaardag, niet kunnen werken of de zorg voor het gezin overdragen omdat licht, geluid en beweging te veel pijn doen: de impact is enorm.… https://www.haarlemupdates.nl/2026/09/08/spaarne-gasthuis-organiseert-informatieavond-over-migraine-en-nieuwe-behandelingen/?utm_source=dlvr.it&utm_medium=mastodon #Haarlem #informatieavond #SpaarneGasthuis #migraine
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2026-7-27 MCAS flare makes my brain try to eat me aliveA study showed Mast Cell Activation Syndrome patients had higher rates in all but 1-2 of 19 neurological disorders studied.
Among 14 psychiatric disorders additionally studied, female MCAS patients reported higher rates in all and male MCAS patients reported higher rates in 8 disorders.
“MCAS subjects have significantly elevated odds ratios for many neuropsychiatric disorders and may see improvement of symptoms using MCAS-targeted therapies, suggesting that mast cell dysregulation affects the brain and peripheral nervous systems and contributes to neuropsychiatric symptoms.”
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https://www.illmarks.com/2026-7-27-mcas-flare-makes-my-brain-try-to-eat-me-alive/ #HumanMade #mcas #medicine #MentalHealth #migraine #neurology #psychiatry -
Well that was unpleasant, entire Sunday spent feel dreadful with a cold that turned into a #migraine
Managed to get some painkillers this morning and have had some marmite and coffee which seems to work for me, but hardly slept
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Permettre la prise en charge de l' #emgality (injection contre la #migraine) en France
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I just had about 2 hours of agonising gastroparesis (stomach not emptying) after I drank a litre of soy milk. It was related to the #migraine I've had all day and about a 7/10 pain. It's still probably 5/10
https://www.disabled-world.com/health/pain/scale.php (scroll down to the Pain Scale Table with Faces)https://www.migraineagain.com/migraine-and-gastroparesis-two-debilitating-conditions/
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CW: Slightly grumpy prodrome thing
The food court at the Eaton Centre looks nice, but every single chair I’ve sat in there makes an obnoxiously loud squeaking sound when you pull it out or push it in.
I wish they had tested that design thoroughly before choosing it, preferably with the input of people who have sound sensitivities for any number of medical reasons.
Am I already grumpy before it hurts my ears? Regretfully yes. Is it still really annoying? Also yes. 😂
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"In 78 subjects, two- and four-hour pain reduction was not significantly different between groups. In post-hoc analyses of headaches with baseline pain scores ≥ 2, a mixed-effects model suggested that IPRGC lenses were associated with clinically and statistically significant reductions in two- and four-hour headache pain..."
Yet, the company announces the FDA authorizes Avulux lenses for migraine light sensitivity
https://www.jocn-journal.com/article/S0967-5868(23)00095-4/abstract
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It's a #migraine attack day. I have few of these now so I'm grateful. Utilized triptan, Nerivio, and zofran. Going to be gentle and get through the pain as best I can.
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Day 8 of vertigo + migraine. This morning it waited to pounce until I had been up and awake for a while. So I'm counting that as a win.😵💫
#vertigo #migraine #ChronicIllness -
Day 6 of vertigo + migraine and all the associated symptoms. I feel so bad for #SunshineSadie - our walks are necessarily too short for her. I'm mostly ok if I stay very still and quiet and move slowly when it's necessary. I hope it's resolved soon.
#vertigo #migraine #ChronicIllness -
This migraine sucks big, ugly, underripe avocados
#migraine #migrainessuck -
My #Migraine #kit: :blobcatscared: :blobsweats: :BlobfoxTeaTerrified:
-Nerivio device
-blue light blocking glasses
-lip gloss
-liquid IV packets
-cooling compression cap
-emergency meds: triptan, zofran, compazine, vistaril
-loop ear plugs
-acupressure hand clip
-peppermints, sour candy
-calm carry relaxation tool -
Decided to make the switch from #Migraine Buddy to #Bearable. I am gonna test bearable and see if it's any more or less helpful. 🤔
MB is great for granular migraine tracking but when you have other things going on and the migraine is a symptom (with multiple symptoms within it) of this ongoing illness it becomes a lot to track so I am going to see if it helps to consolidate some things or not.
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Iran war renews concerns about the lasting toll of traumatic brain injuries to US troops
Shearer, 40, of Colorado Springs, Colo., links both events in 2005 to traumatic brain injuries, which were only…
#NewsBeep #News #BreakingNews #2024-2026Mideastwars #breakingnews #Generalnews #Headinjuries #Health #injuries #Iran #Migraine #U.S.news #Washingtonnews #Worldnews
https://www.newsbeep.com/681405/ -
#introduction. I'm Sunflower (not my real name), & I'm new to #Mastodon. (She/her/y'all). 30-something w/ fond memories of the #90s & early #2000s. I live w/ a hidden #disability & chronic #migraine. I like writing #altText on my photos, & maybe I have a bit too much fun w/ it. I love #crafting #hiking #photography #books & #fungi. I'm passionate about #Appalachia #Travel & #coffee. I love #rain, rainy days are my favorite. I try to practice #gratitude & see myself as a #nerd. Thx for ⭐️ & 🔄!
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Veterans explain toll of traumatic brain injuries now seen in Iran war
WASHINGTON (AP) — When Joe Shearer was a Marine fighting in Iraq, a blast from an enemy mortar…
#NewsBeep #News #Headlines #2024-2025MideastWars #2024-2026Mideastwars #Afghanistan #APTopNews #COStateWire #Colorado #Generalnews #Headinjuries #Health #injuries #Iran #iranwar #Iraq #JoeShearer #Kuwait #Migraine #U.S.news #UnitedStates #Us #USA #Washingtonnews #Worldnews
https://www.newsbeep.com/681330/ -
It's so hard when you have depression and a migraine with a severe prodrome and anhedonia at the same time.
There was one day when I didn't think about death, but it seems that was a very short episode.
Before that, I found out that the insurance company won't pay my family if I decide to end my life, because they won't let me get life insurance due to my diagnoses already being in the database, and they specifically account for cases like this.
So I won't be able to pull off that trick. That upset me.
#MentalHealth #Health #Life #Depression #Migraine #Thoughts #Blog #Fediverse #Anhedonia
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CW: Intentional weight loss
It’s been a little over a year since I started trying to lose weight.
Vigorious exercise, getting dehydrated, and cutting calories are migraine triggers for me, so I knew my weight loss needed to be slow and steady.
I am down nearly 8 kilograms (or almost 20 pounds) as of today. My body fat percentage dropped from 43% to 38%.
I’m sleeping better at night and have more energy during the day. 💪
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Maandag, kastelendag
Kluskasteeltje van vandaag
#Fundafun #Funda #kasteel #Maandagkastelendag #kluskasteel #chateaux #migraine #castle #France #Frankrijk #Thouars #projectje #uitdaging #moneypit
https://www.french-property.com/sale-property/3772-A1o5cnrax726vxg5
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Ho une semaine qui commence avec une #migraine de compétition ! Vas chier migraine !
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Now I try to drink mostly decaf coffee. I know it's not 0mg caffeine, but it's definitely a lot less than I was consuming before.
If I wake up with a #migraine, or start with one around lunch, I will generally have a 1/2 caff or regular coffee to try and help it go away (did not work today).
Why do I still have two decaf coffee a day? Because I enjoy the taste, and it's a habit that I've gotten used to. /3
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#STAGE Ecco le proposte live dal roster di PEYOTE ✨
Disponibilità per #Kozminski, #TheRootworkers, #CobolPongide, #GianlucaNatanti, #PaleBlueDot, #Māyā, #Migraine, #FiestaAlba, #Cowards, #MishaChylkova e #Kaouenn! Tutte le info al link: https://bit.ly/49HefV4 🎸In foto Kozminski live @ NOISE il Cinemino, Milano 📸
#concerti #livemusic #liveshow #onstage #peyotestage #bookingagency #newcollaboration #newroster #musicaindipendente #peyotezone
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#STAGE Ecco le proposte live dal roster di PEYOTE ✨
Disponibilità per #CobolPongide, #PaleBlueDot, #Māyā, #FiestaAlba, #Migraine, #Cowards, #TipografiaSonora, #TacetTacetTacet, #SebastianoLillo, #MishaChylkova, #Kaouenn e #MATA! Tutte le info al link https://bit.ly/3ZH7qgh 🎸In foto i Cobol Pongide live 📸
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#STAGE Ecco le proposte live dal roster di PEYOTE ✨
Disponibilità per #PaleBlueDot, #Māyā, #FiestaAlba, #Migraine, #Cowards, #TipografiaSonora, #TacetTacetTacet, #SebastianoLillo, #MishaChylkova, #Kaouenn e #MATA! Tutte le info al link https://b7e4h.r.a.d.sendibm1.com/mk/mr/sh/OycXxko2a8zXNWXlU5bBjXz4/XHFu1_M7OsHl 🎸In foto i Pale Blue Dot live 📸
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#STAGE Ecco le proposte live dal roster di PEYOTE ✨
Disponibilità per #Māyā, #FiestaAlba, #Migraine, #Cowards, #TipografiaSonora, #TacetTacetTacet, #SebastianoLillo, #MishaChylkova, #Kaouenn e #MATA! Tutte le info al link https://b7e4h.r.a.d.sendibm1.com/mk/mr/sh/6rqJ8GoudeITQFYVJuiiRz1q7hW/6sPyNVtsqKQB
In foto i Māyā live 📸
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February 18, Support Group on When Things Get Tough – Managing Guilt and Shame with #chronicillness
Recaphttps://batemanhornecenter.org/wp-content/uploads/2025/02/202050218-Support-Group-Recap.pdf
@chronicillness
@spoonies
#neisvoid
#chroniclife
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#ChronicIllnessMemes
@longcovid
#LongCovid @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #Migraine @migrainechatgroup @migrainechat @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM -
Support Group Recap: Self-Compassion Amidst Chronic Illness February 11, 2025
https://batemanhornecenter.org/wp-content/uploads/2025/02/20250211-Support-Group-Recap.pdf@chronicillness
@spoonies
#neisvoid
#chronicillness
#chroniclife
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#ChronicIllnessMemes
@longcovid
#LongCovid @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #Migraine #migraines @migrainechatgroup @migrainechat @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM -
No sé qué pasó pq estoy posteando poco y escribiendo menos, pero la semana pasada el #blog tuvo una barbaridad de visitas.
A los seguidores y a los que distéis con él por casualidad, #GRACIAS#blogger #bloguera #Bloguers #Mastoblog #Mastobloguers #Mastoblogger #salud #health #Lupus #LES #SEL #EncefalomielitisMialgica #MyalgicencEphalomyelitis #Sjögren #Sjögrens #Fibromialgia #fibromyalgia #migraña #migrañas #migraine #migraines #Raynaud #raynauds #RaynaudsDisease #natura
https://domandoallobo.blogspot.com -
CW: What is an Ecology of Protections?
What is an Ecology of Protections?
In our paper, we illustrate how social media and information infrastructures can be imagined as an ecosystem of agents interacting through processes (policies) and behaviors (actions of users and automations).
This ecosystem model makes it possible to understand how our current protections for photosensitive users are inadequate, allowing for multiple vectors of accidental and malicious exposure to dangerous flashing content.
[Image 1: Narrative Description of Diagram:
Platform Executives and Marketing Clients have a cyclical revenue relationship.
Platform Executives influence Platform Designers and Developers.
WCAG guidelines are meant to support Designers/Developers, but may not always be followed.
Marketing Clients sometimes create flashing content.
Non-sensitive users who are unaware of photosensitivity may also create and share and circulate flashing content, which can lead to accidental exposure for Photosensitive Users.
When Non-sensitive Users who are aware of photosensitivity are exposed to flashing content, they may warn photosensitive users.
Non-sensitive Users who are aware of photosensitivity may also intentionally or maliciously expose sensitive users.
If any user attempts to report a flashing graphic, reporting features do not have appropriate categories, and platform developers are never notified of the problem.
Sensitive users may also experience resets or overrides to their safety settings on major app updates.]
A more robust ecology of protections centers the photosensitive user, even though they are not "the majority", providing them with multiple layers which they can control to protect themselves from exposures when other policies and community norms fail.
[Image 2: Narrative description of the aggregate re-world map.
The photosensitive user is protected from ambient, accidental, and malicious exposure by a dual layer of protection by device level settings and app level settings.
If a developer update overrides app-level settings, the device level settings correct this.
Users who are aware of photosensitivity are able to educate other users to prevent circulation of dangerous content.
Advertisers and other users may still create and share flashing content, but an enforcement body can punish advertisers and platforms for creating or failing to prevent the circulation of flashing content.
Users are able to report dangerous content to both the platform and to regulatory bodies.
Malicious attacks are met with suspension or bans.]
Such a nested system of protections can prevent ambient, accidental, and malicious exposure to dangerous flashing media. Establishing these features and community norms may further protect all users from psychologically harmful content.
It is important to note that such provisions rely on centering user safety over corporate interests which rely on non-vonsensual auto-play to hook user attention and manipulate purchasing behavior. To this I say, get more creative. Or maybe... stop being a predator.
Additionally, the central layer of protection requires implementation by OS developers to provide an optional postprocess filter which can inturrupt dangerous luminance shifts at the pixel buffer level. Other research attempts to classify and predict dangerous flashes through ML techniques, but this is not necessary. A always-on simple algorithmic edit to the next array of pixels provides fail-safe protection at a minor aesthetic expense - a ghost or trailing effect.
[Image 3: An original sequence of frames which flash between pure black and pure white.
A flash detection mask is calculated and a pixel-attenuation filter is loaded.
In the final sequence, each frame is attenuated by the detection mask and filter, producing the impression of a flash without the actual danger.]
Image 3 demonstrates the proposed filter applied to a full screen blink sequence. Between-frame calculations of flash detection using South et al.’s algorithm would produce a full white mask for each frame, indicating that each frame change was dangerous and needed to be adjusted. In other examples, the calculated mask would identify specific regions for pixel filtering. The mask could then be applied to a calculation which adjusts how much the next frame transitions between the previous frame and the intended next frame. In the example here, frame 2 becomes frame B, which is two plus the mask (Δ1), multiplied by a fraction (q). Frame 3 becomes frame C, which is the original frame 3 plus the calculated difference between frames 2 and 3 (Δ2), minus the pixel values in frame B. The first flashing sequence is significantly faded, and over time the flashing sequence averages out to show level changes without strobing.
This effect may look strange, but photosensitive users already use "unaesthetic" filters to limit the overall brightness of their devices. Such filters may even enable content creators to change their aesthetic choices to eliminate ghosting which would indicate a safer content for all.
https://dl.acm.org/doi/abs/10.1145/3663548.3675610
#ASSETS2024 #GraphicsProgramming #TechnologyPolicy #Migraine #Epilepsy #photosensitivity #photophobia
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Yesterday, my students presented our work at the ACM ASSETS conference. "Not Only Annpying. But Dangerous": Devising an Ecology of Protections for Photosensitive Social Media Users" https://dl.acm.org/doi/abs/10.1145/3663548.3675610
In this study, we investigate prior work, conduct survey inquiries, and use co-design methods to explore how social media design choices influence exposure to dangerous flashing content which can trigger seizures, migraines, nausea, and disorientation for photosensitive users.
Through our analysis, we identify the current ecosystem of flashing content on the Internet, and propose a more robust ecology of protections, including on-device graphics filters that directly edit pixels buffers to prevent flashing before it occurs.
First, existing WCAG guidelines against auto-play of media need to be enforced. Second, users should have device level control over animation that may trigger flashing, and this control shpuld not be able to be reset by platforms that try to enforce autoplay to support their own ad revenue. Third, other users need to be aware of what makes content dangerous, so thay they may stop circulating it and causing accidental exposure. Fourth, creators need to know what makes content dangerous, and how they can test for danger, to prevent them from creating dangerous media in the first place. This includes corporate creators, like movie studios, whose ads for acrion movies have been a recent source of autoplaying strobing content in movie trailors posted via ad platforms. Fifth, platforms, including GIF libraries, but also all social platforms, need to implement reporting mechanisms specifically for flashing content which can remove that content from circulation. Sixth, there should be actual penalties for platforms and creators that do not react to, correct, and remove dangerous content, or who force auto-play on users.
And seventh, device manufacturers and operating system developers need to create on-device filters that eliminate flashing through simple real time post-processing. Machine Learning classification and prediction algorithms ARE NOT NECESSARY. We can do this with simple math. Yes it may sometimes look weird. But also people won't be dying in their sleep.
This work is very important to me, and I've been working on it (on the side) since 2017. I wasn't allowed to pursue it fully as a graduate student. As faculty, I still had to string the project together on wishes. And I'm still looking for a collaborator to work on the implementation, though if industry would just get their shit together and do it themselves, that'd be great.
#ASSETS2024 #accessibility #Epilepsy #migraine #photophobia #photosensitivity #NEISVoid #graphicsProgramming
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How do people use ring lights on web-cams and not just want to pull their eyes out?
I never feel like I need to use the one on mine, but decided to try it today for our lab meeting, and my eyes just wanted to bug out of my head. And that was on the "warm" setting!
I normally don't think I have #photophobia from my #migraine , but I can't do this, and I keep my external monitor on a brightness of 0.
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CW: photophobia, sun exposure
My #photophobia is real today. Was outside yesterday in the sun chatting with friends for about an hour. Wore FL-41 lenses as always, but my fairer-than-fair skin burned.
Today any light brighter than our dim interior lights is physically painful even with the lenses on, and my brain feels like scrambled eggs. Not sure if this is because of the sun exposure from yesterday or related to last week's #migraine. Either way, camping out with blackout curtains today.
