#migraine — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #migraine, aggregated by home.social.
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https://www.europesays.com/be-nl/140030/ Ellen Terwindt leeft al sinds haar achtste met migraine #BE #België #Belgium #DagVanDeMigraine #EllenTerwindt #Gezondheid #Health #interview #migraine #StudioMigraine
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Spaarne Gasthuis organiseert informatieavond over migraine en nieuwe behandelingen: Voor ongeveer twee miljoen Nederlanders is migraine allang geen gewone hoofdpijn meer, maar een aandoening die het dagelijks leven uren of dagenlang volledig stillegt. Het moeten afzeggen van een verjaardag, niet kunnen werken of de zorg voor het gezin overdragen omdat licht, geluid en beweging te veel pijn doen: de impact is enorm.… https://www.haarlemupdates.nl/2026/09/08/spaarne-gasthuis-organiseert-informatieavond-over-migraine-en-nieuwe-behandelingen/?utm_source=dlvr.it&utm_medium=mastodon #Haarlem #informatieavond #SpaarneGasthuis #migraine
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2026-7-27 MCAS flare makes my brain try to eat me aliveA study showed Mast Cell Activation Syndrome patients had higher rates in all but 1-2 of 19 neurological disorders studied.
Among 14 psychiatric disorders additionally studied, female MCAS patients reported higher rates in all and male MCAS patients reported higher rates in 8 disorders.
“MCAS subjects have significantly elevated odds ratios for many neuropsychiatric disorders and may see improvement of symptoms using MCAS-targeted therapies, suggesting that mast cell dysregulation affects the brain and peripheral nervous systems and contributes to neuropsychiatric symptoms.”
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https://www.illmarks.com/2026-7-27-mcas-flare-makes-my-brain-try-to-eat-me-alive/ #HumanMade #mcas #medicine #MentalHealth #migraine #neurology #psychiatry -
Well that was unpleasant, entire Sunday spent feel dreadful with a cold that turned into a #migraine
Managed to get some painkillers this morning and have had some marmite and coffee which seems to work for me, but hardly slept
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Permettre la prise en charge de l' #emgality (injection contre la #migraine) en France
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I just had about 2 hours of agonising gastroparesis (stomach not emptying) after I drank a litre of soy milk. It was related to the #migraine I've had all day and about a 7/10 pain. It's still probably 5/10
https://www.disabled-world.com/health/pain/scale.php (scroll down to the Pain Scale Table with Faces)https://www.migraineagain.com/migraine-and-gastroparesis-two-debilitating-conditions/
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CW: Slightly grumpy prodrome thing
The food court at the Eaton Centre looks nice, but every single chair I’ve sat in there makes an obnoxiously loud squeaking sound when you pull it out or push it in.
I wish they had tested that design thoroughly before choosing it, preferably with the input of people who have sound sensitivities for any number of medical reasons.
Am I already grumpy before it hurts my ears? Regretfully yes. Is it still really annoying? Also yes. 😂
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"In 78 subjects, two- and four-hour pain reduction was not significantly different between groups. In post-hoc analyses of headaches with baseline pain scores ≥ 2, a mixed-effects model suggested that IPRGC lenses were associated with clinically and statistically significant reductions in two- and four-hour headache pain..."
Yet, the company announces the FDA authorizes Avulux lenses for migraine light sensitivity
https://www.jocn-journal.com/article/S0967-5868(23)00095-4/abstract
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It's a #migraine attack day. I have few of these now so I'm grateful. Utilized triptan, Nerivio, and zofran. Going to be gentle and get through the pain as best I can.
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Day 8 of vertigo + migraine. This morning it waited to pounce until I had been up and awake for a while. So I'm counting that as a win.😵💫
#vertigo #migraine #ChronicIllness -
Day 6 of vertigo + migraine and all the associated symptoms. I feel so bad for #SunshineSadie - our walks are necessarily too short for her. I'm mostly ok if I stay very still and quiet and move slowly when it's necessary. I hope it's resolved soon.
#vertigo #migraine #ChronicIllness -
This migraine sucks big, ugly, underripe avocados
#migraine #migrainessuck -
My #Migraine #kit: :blobcatscared: :blobsweats: :BlobfoxTeaTerrified:
-Nerivio device
-blue light blocking glasses
-lip gloss
-liquid IV packets
-cooling compression cap
-emergency meds: triptan, zofran, compazine, vistaril
-loop ear plugs
-acupressure hand clip
-peppermints, sour candy
-calm carry relaxation tool -
Decided to make the switch from #Migraine Buddy to #Bearable. I am gonna test bearable and see if it's any more or less helpful. 🤔
MB is great for granular migraine tracking but when you have other things going on and the migraine is a symptom (with multiple symptoms within it) of this ongoing illness it becomes a lot to track so I am going to see if it helps to consolidate some things or not.
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Iran war renews concerns about the lasting toll of traumatic brain injuries to US troops
Shearer, 40, of Colorado Springs, Colo., links both events in 2005 to traumatic brain injuries, which were only…
#NewsBeep #News #BreakingNews #2024-2026Mideastwars #breakingnews #Generalnews #Headinjuries #Health #injuries #Iran #Migraine #U.S.news #Washingtonnews #Worldnews
https://www.newsbeep.com/681405/ -
#introduction. I'm Sunflower (not my real name), & I'm new to #Mastodon. (She/her/y'all). 30-something w/ fond memories of the #90s & early #2000s. I live w/ a hidden #disability & chronic #migraine. I like writing #altText on my photos, & maybe I have a bit too much fun w/ it. I love #crafting #hiking #photography #books & #fungi. I'm passionate about #Appalachia #Travel & #coffee. I love #rain, rainy days are my favorite. I try to practice #gratitude & see myself as a #nerd. Thx for ⭐️ & 🔄!
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Veterans explain toll of traumatic brain injuries now seen in Iran war
WASHINGTON (AP) — When Joe Shearer was a Marine fighting in Iraq, a blast from an enemy mortar…
#NewsBeep #News #Headlines #2024-2025MideastWars #2024-2026Mideastwars #Afghanistan #APTopNews #COStateWire #Colorado #Generalnews #Headinjuries #Health #injuries #Iran #iranwar #Iraq #JoeShearer #Kuwait #Migraine #U.S.news #UnitedStates #Us #USA #Washingtonnews #Worldnews
https://www.newsbeep.com/681330/ -
It's so hard when you have depression and a migraine with a severe prodrome and anhedonia at the same time.
There was one day when I didn't think about death, but it seems that was a very short episode.
Before that, I found out that the insurance company won't pay my family if I decide to end my life, because they won't let me get life insurance due to my diagnoses already being in the database, and they specifically account for cases like this.
So I won't be able to pull off that trick. That upset me.
#MentalHealth #Health #Life #Depression #Migraine #Thoughts #Blog #Fediverse #Anhedonia
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CW: Intentional weight loss
It’s been a little over a year since I started trying to lose weight.
Vigorious exercise, getting dehydrated, and cutting calories are migraine triggers for me, so I knew my weight loss needed to be slow and steady.
I am down nearly 8 kilograms (or almost 20 pounds) as of today. My body fat percentage dropped from 43% to 38%.
I’m sleeping better at night and have more energy during the day. 💪
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Maandag, kastelendag
Kluskasteeltje van vandaag
#Fundafun #Funda #kasteel #Maandagkastelendag #kluskasteel #chateaux #migraine #castle #France #Frankrijk #Thouars #projectje #uitdaging #moneypit
https://www.french-property.com/sale-property/3772-A1o5cnrax726vxg5
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Ho une semaine qui commence avec une #migraine de compétition ! Vas chier migraine !
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Now I try to drink mostly decaf coffee. I know it's not 0mg caffeine, but it's definitely a lot less than I was consuming before.
If I wake up with a #migraine, or start with one around lunch, I will generally have a 1/2 caff or regular coffee to try and help it go away (did not work today).
Why do I still have two decaf coffee a day? Because I enjoy the taste, and it's a habit that I've gotten used to. /3
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If you are someone who drinks a decent amount of coffee (I consider 2+ cups a day a decent amount), and gets #migraine, and have been considering cutting out the caffeine to see if it helps your #migraine (intensity, duration, frequency), this is how I recently cut mine way back without getting withdrawal headaches.
Disclaimer: I work from home, use reusable keurig style pods, and have enough money and time to mix up my own coffee grounds. /1
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Pain as a Doorway: Finding Agency in Chronic Illness
Pain may not be a choice. The way I meet the world often is.
The last few weeks have been marked by migraines and the familiar ache of endometriosis. Some days simply getting through work requires more effort than anyone around me realizes. The pain is real. The fatigue is real. And yet, I’ve noticed something that surprises people when they learn I’m not feeling well…
Most of the time, they had no idea.
Every difficult season offers countless doorways. Some lead toward bitterness. Some toward self-pity. Some toward deeper compassion—for ourselves and for everyone else carrying invisible burdens.
There is a common misconception that suffering somehow entitles us to spread our suffering, even when that isn’t our intention.
When we’re in pain—whether it’s physical, emotional, or both—we naturally want to be seen. We want someone to understand. We speak about our diagnoses, our symptoms, our losses, hoping to find compassion.
Most people respond with the best of intentions. They meet our story with one of their own.
“You have migraines? I get headaches too.”
“Your joints hurt? Mine have been bothering me for years.”
This is often how humans communicate empathy. We reach for a shared experience and say, “You’re not alone.”
There is comfort in that. Feeling understood matters.
But there is also a subtle danger.
Pain asks for our attention. It doesn’t have to become our personality.
If every conversation circles back to our pain, our identity can begin to orbit around it. We stop relating to ourselves as a whole person who happens to be suffering and begin relating to ourselves primarily as someone who is suffering. Without realizing it, pain becomes the lens through which we interpret our lives.
I’ve noticed this occasionally in online support groups. Their purpose is a beautiful one: to remind us that we are not alone. Many people find genuine comfort, practical advice, and lasting friendships there.
Yet sometimes these spaces become little more than an exchange of symptoms. Each person contributes another story of exhaustion, another setback, another reason to lose hope. Compassion slowly shifts into collective despair.
No one intends this. Everyone is simply trying to be understood.
But if we never share how we continue living despite the pain—how we found a moment of beauty, laughed with a friend, created something meaningful, or simply made it through another difficult day—we can unintentionally reinforce the belief that pain is all there is.
Over time, this can cultivate a victim mindset. Victimhood is not the same as being a victim. Terrible things happen. Chronic illness is real. Grief is real. Trauma is real. There are seasons when we genuinely need support and care.
A victim mindset, however, is something different. It is the gradual belief that our suffering has become the defining truth of who we are. Once that identity takes hold, it can become difficult to imagine ourselves outside of it. Hope diminishes. Depression often follows. Ironically, our experience of suffering may deepen even further.
Compassion should never invite us to remain stuck. Its highest expression isn’t simply saying, “I hurt too.” It is also saying, “I know this road is hard, and I’m walking it with you. Life is still possible here.”
Pain is a doorway. Like any doorway, it leads somewhere. We don’t always get to choose whether we arrive at it, but we do have some influence over whether we remain standing in the threshold, retreat into the room of despair, or continue walking toward compassion, resilience, and a wider view of life.
Perhaps the greatest gift we can offer one another isn’t shared misery, but shared courage.
This isn’t about pretending we’re fine or refusing help. Hiding our pain is simply another kind of performance.
Instead, it’s about remembering that even in the midst of suffering, we retain agency. There is a quiet dignity in choosing not to let pain become the whole story of who we are.
I can’t choose
• whether a migraine arrives.
• whether endometriosis flares.
• whether my body cooperates today.But I often can choose
• how I speak to my husband.
• whether I pause before reacting.
• whether I notice something beautiful on the walk to my car.
• whether I allow pain to become my entire identity.That’s not toxic positivity. It’s agency.
The robin outside my office doesn’t stop singing because my head hurts. The goldenrod still flowers. The evening light still catches the leaves in the same way it did yesterday. The world gently reminds me that while pain is part of my experience, it is not the whole of reality.
I still have migraines. I still have endometriosis and lupus. Tomorrow may be another difficult day.
None of that is within my control.
But every morning I am offered a quieter choice.
Not whether I will suffer, but who I will be while I suffer.
Will pain become the story I tell the world?
Or will it simply be one part of the story of a life still capable of kindness, wonder, creativity, and love?
Pain may not be a choice. The way I meet the world often is.
If this reflection resonates with you, I’ve also recorded a guided meditation, Easing Pain: A Meditative Journey, that explores this practice more directly. It isn’t about pretending pain isn’t there or trying to force it away. Instead, it offers a gentle invitation to meet discomfort with awareness, kindness, and presence—perhaps discovering that even in difficult moments, there is still space to breathe, to soften, and to choose how we respond.
https://open.spotify.com/episode/0aAbwS4h06BaL9GSyYlaQk?si=5e188abef1d74d47
#agency #awareness #compassion #healing #livingWithDiscomfort #livingWithPain #meditation #migraine #mindfulness -
The 20 ‘most painful' health conditions, according to the NHS
https://www.msn.com/en-gb/health/medical/the-20-most-painful-health-conditions-according-to-the-nhs/ar-AA1kSjMR?cvid=0891b67d26254255841cf61460de207b&ocid=winp2fptaskbarhover&ei=7#Pain
#NHS
#Endometriosis
#SlippedDisc
#Appendicitis
#BrokenBones
#Shingles
#FrozenShoulder
#ClusterHeadaches
#ComplexRegionalPainSyndrome
#CRPS
#HeartAttack
#KidneyStones
#Arthritis
#Gout
#SickleCellDisease
#SickelCell
#Fibromyalgia
#Migraine
#Sciatica
#TrigeminalNeuralgia
#AcutePancreatitus
#StomachUlcer
#PáinAfterSurgery
