#migraine — Public Fediverse posts

Spaarne Gasthuis organiseert informatieavond over migraine en nieuwe behandelingen: Voor ongeveer twee miljoen Nederlanders is migraine allang geen gewone hoofdpijn meer, maar een aandoening die het dagelijks leven uren of dagenlang volledig stillegt. Het moeten afzeggen van een verjaardag, niet kunnen werken of de zorg voor het gezin overdragen omdat licht, geluid en beweging te veel pijn doen: de impact is enorm.… https://www.haarlemupdates.nl/2026/09/08/spaarne-gasthuis-organiseert-informatieavond-over-migraine-en-nieuwe-behandelingen/?utm_source=dlvr.it&utm_medium=mastodon #Haarlem #informatieavond #SpaarneGasthuis #migraine

A study showed Mast Cell Activation Syndrome patients had higher rates in all but 1-2 of 19 neurological disorders studied.

Among 14 psychiatric disorders additionally studied, female MCAS patients reported higher rates in all and male MCAS patients reported higher rates in 8 disorders.

“MCAS subjects have significantly elevated odds ratios for many neuropsychiatric disorders and may see improvement of symptoms using MCAS-targeted therapies, suggesting that mast cell dysregulation affects the brain and peripheral nervous systems and contributes to neuropsychiatric symptoms.”

PubMed: Prevalence and treatment response of neuropsychiatric disorders in mast cell activation syndrome

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Well that was unpleasant, entire Sunday spent feel dreadful with a cold that turned into a #migraine

Managed to get some painkillers this morning and have had some marmite and coffee which seems to work for me, but hardly slept

Permettre la prise en charge de l' #emgality (injection contre la #migraine) en France

https://petitions.lecese.fr/initiatives/i-900

#CESE

I have a medical procedure coming up and had to answer a questionnaire. Among other things, I was asked if I have problems with “blenching”. I looked that word up, but can find no definition. There was also no way for me to request feedback, so I’m left wondering if they meant belching, blanching, or something else altogether. Ugh. Also, I was asked if I experience headaches, gut issues, congestion, coughing, etc. The answer is yes. Those are all part of a normal day for me. Oh, the joys of having chronic health issues which match up with COVID symptoms. Just to be sure, I tested myself, and came up negative. #ChronicHealthIssues #ChronicPain #RespiratoryDisease #IBS #Migraine #PostnasalDrip #InvisibleDisabilities #MaskUp #Proofreading