#lupus — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #lupus, aggregated by home.social.
-
I am totally geeking out having just ordered a Solarmeter 5.7 UV light meter!
Now I'll be able to know for sure if the UV protection on our windows in the house still works, if the UV protection in the car is enough for me, and if American made UPF clothing is any better than the smaller brand stuff probably made in China. American made upf clothing is about 3 x as much as as smaller brands like Coofandy and Baeleaf.
-
I am totally geeking out having just ordered a Solarmeter 5.7 UV light meter!
Now I'll be able to know for sure if the UV protection on our windows in the house still works, if the UV protection in the car is enough for me, and if American made UPF clothing is any better than the smaller brand stuff probably made in China. American made upf clothing is about 3 x as much as as smaller brands like Coofandy and Baeleaf.
-
People with the autoimmune disease systemic lupus erythematosus are known to have an altered gut microbiome. *Faecalibacterium prausnitzii* abundance is depressed. A mouse study finds that supplemental *F. prausnitzii* changed the gut microbiome and reduced the symptoms of lupus.
Summary: https://medicalxpress.com/news/2026-06-potential-probiotic-treatment-lupus.html
Original paper: https://www.nature.com/articles/s41467-026-71718-z
-
People with the autoimmune disease systemic lupus erythematosus are known to have an altered gut microbiome. *Faecalibacterium prausnitzii* abundance is depressed. A mouse study finds that supplemental *F. prausnitzii* changed the gut microbiome and reduced the symptoms of lupus.
Summary: https://medicalxpress.com/news/2026-06-potential-probiotic-treatment-lupus.html
Original paper: https://www.nature.com/articles/s41467-026-71718-z
-
Mit über 20 Jahren Erfahrung als Fotografin, Designerin & Citizen Scientist, die Weltraumdaten verarbeitet, brauche ich Hilfe. Um alte Schulden (Kontopfändung) aus der Zeit der Alkoholsucht zu begleichen und trotz Lupus meinen Umzug zu finanzieren, starte ich diesen Aufruf.
Seit 3 Jahren & 3 Monaten trocken.
Meine ehrliche Geschichte & Link:
https://whydonate.com/fundraising/help-jackie-overcome-the-final-hurdle
Bitte teilen (Boost)! 🤍
#MutualAidDE #Spendenaufruf #TransFrau #ChronischKrank #Lupus #Astronomie #AnonymeAlkoholiker
-
With 20+ years of experience as a photographer, designer & citizen scientist processing space mission data, my pride must step aside. I face a final roadblock—a legal debt from past alcoholism struggles—blocking my path to relocation and lupus treatment.
Proudly sober for 3 years & 3 months.
Full honest story & fundraiser here:
https://whydonate.com/fundraising/help-jackie-overcome-the-final-hurdle
Please Boost! 🤍
#MutualAid #TransArtist #CitizenScience #Lupus #SoberLife #Crowdfunding #SpaceArt
-
With 20+ years of experience as a photographer, designer & citizen scientist processing space mission data, my pride must step aside. I face a final roadblock—a legal debt from past alcoholism struggles—blocking my path to relocation and lupus treatment.
Proudly sober for 3 years & 3 months.
Full honest story & fundraiser here:
https://whydonate.com/fundraising/help-jackie-overcome-the-final-hurdle
Please Boost! 🤍
#MutualAid #TransArtist #CitizenScience #Lupus #SoberLife #Crowdfunding #SpaceArt
-
Desde hace años no puedo evitar preguntarme si ese #Mediterráneo que tantas veces me dio paz, respuestas... lo miraría igual ahora que es cementerio (DEP 🙏🏾) y vertedero 🛞🧴🩴
Pero hoy quiero recordarlo como era.Llevo siglos buscando una lámina para tapar un cuadro eléctrico.
Este me evoca al revolcón de ola siendo niña y ha llegado justo para la #NochedeSanJuan.
#18 El sol y la playa. Mis amores prohibidos
https://domandoallobo.blogspot.com/2015/02/18-el-sol-y-la-playa-mis-amores.html #Lupus #EncefalomielitisMiálgica #Fibromialgia #Sjögren -
Migraine, Perception, and Creative Flow
Living Inside A Migraine
When pain, perception, and medication reshape daily life
I’ve been dealing with a migraine for nine days. This isn’t just a headache—it comes with aura, Alice in Wonderland syndrome, and persistent vertigo with nausea. My perception gets distorted, my thinking slows down, and basic tasks become difficult. The medication helps with the pain, but it brings its own side effects, and overall, it’s been hard to function.
In the middle of this, something unexpected happened.
A Brief Shift in State
Unexpected focus and creative flow during disruption
While I was heavily medicated, I had a period of intense creative focus. For a few hours, I was able to paint with a level of freedom that I don’t usually reach. It felt like my usual mental filters were lowered. I wasn’t second‑guessing decisions or holding back. I just worked.
The result was different from my normal work—more direct, less controlled, but also more expressive.
This raised a question for me: what actually changed in that moment?
Changes in Perception
How migraine and medication alter access, not ability
Triptans, the medication I use for acute migraine attacks, act on serotonin receptors. They’re not psychedelics, but they do affect how the brain processes signals. Combined with the migraine itself—especially aura, which already alters perception—the overall effect is a shift in how I experience space, color, and thought.
That shift isn’t comfortable. Most of it is disorienting and unpleasant. But within it, there was a brief window where my usual patterns loosened. And in that space, creative work felt easier.
Access, Not Creation
The work was already there—the conditions just changed
It’s important to be clear: the migraine didn’t “create” anything. The creativity was already there. What changed was how accessible it felt. The conditions removed some of the internal constraints I usually work within—habits, expectations, and self‑editing.
That’s not something I want to rely on. The cost is too high. But it does point to something useful.
If a change in mental state can affect how I access creativity, then there may be other ways to reach similar openness without the physical toll. It suggests that part of my creative process is limited not by ability, but by structure—how tightly I control the outcome, how much I filter while working.
There’s also a broader connection here. Decades ago, I had experiences with psychedelics that shifted how I saw the world and myself. Those experiences helped me let go of a lot of fear and rigidity. I don’t return to them now, but the perspective they opened up has stayed with me.
That perspective has been important in dealing with chronic migraine. The pain itself isn’t optional, but my response to it isn’t fixed. Over time, I’ve learned to manage the mental side of it—how much resistance I bring to it, how I interpret it, and how I move through it. That doesn’t eliminate suffering, but it changes its intensity and impact.
The recent experience fits into that same pattern. Even in a difficult state, there was a moment where something shifted—not into relief exactly, but into clarity of a different kind.
For me, the takeaway isn’t about the medication or the migraine. It’s about access.
The kind of creative flow I felt isn’t something external that I need to recreate through extreme conditions. It’s something internal that I was briefly able to reach under unusual circumstances.
Openness and Letting Go
When the boundary between experience and experiencer softens
There’s also a quality in that state that’s familiar from meditation. It’s a kind of openness where the usual sense of separation starts to fade. Instead of feeling like an observer acting on an experience, there’s just the experience itself—no clear boundary between the one perceiving and what’s being perceived. In that space, the need to control or interpret loosens, and the work unfolds more directly, without the usual distance between intention and action.
Working with Pain
Perspective, resistance, and what can shift
Another layer to this is perspective. The difference between being overwhelmed by the experience and moving through it often comes down to how it’s held. I wrote previously about the Four Noble Truths and the Eightfold Path as a framework for navigating chronic pain from migraine and lupus. What stands out to me now is how practical that framework is—not as philosophy, but as a way of adjusting perspective in real time.
When The Pain Takes Over
A reminder that practice isn’t always accessible
Pain is present. That part isn’t optional. But the added weight—resistance, fear, frustration—can shift depending on how tightly I hold the experience. That said, this isn’t always accessible. There are moments when the pain takes over completely. Last night was one of those times. I woke up in the middle of the night in severe pain after my first medication didn’t work. I couldn’t find my stronger medication, didn’t have my glasses, and ended up searching through cabinets, drawers, and bags in a panic. I knew that without it, I might end up in the ER—where the treatment helps, but comes with hours of discomfort and side effects. I was overwhelmed, in tears, and scared.
In moments like that, there isn’t much space for perspective or practice. But experiences like this also make something clear to me: without meditation, without the framework I’ve built from Buddhist practice, I would likely be living in that state of panic much more often. My commotion woke up my husband, who came in—calm, steady, not caught in the panic I was in. He found the medication, and he cleaned up the mess I had made searching as I went back to bed. That contrast stood out. It reminded me that while I can’t always access those tools in the moment, they still shape how I move through these experiences over time.
Returning to Openness
Creative flow, meditation, and another way of relating to experience
It’s not easy to stay open in the middle of persistent pain. In those moments, it’s hard to remember that the pain will pass—that it isn’t permanent. Pain forces attention into the present, but not calmly or intentionally. It can narrow everything down to urgency and survival. At the same time, it can act as a kind of teacher. It shows where resistance builds, where fear takes hold, and how quickly the mind tries to escape what’s happening. When I’m able to step back, even slightly, I can see it less as something to fight and more as something that reveals how I relate to experience.
What I keep coming back to is this: the experience changes depending on how I meet it. Not completely, not all at once, but enough to matter. And in those moments of openness, there is less separation—and a little more space for things to be as they are.
I painted this over six hours while medicated for a migraine, drifting in and out of focus. The haze loosened my usual self‑judgment, and the work shifted into something more fluid and intuitive. It’s not complete, but the evolution itself tells the story.
#acceptance #alteredStates #artisticFlow #awareness #BuddhistPhilosophy #chronicIllness #chronicPain #consciousness #creativeExpression #creativeProcess #creativity #eightfoldPath #flowState #fourNobleTruths #innerLandscape #innerWork #intuitiveArt #lettingGo #livedExperience #lupus #meditation #migraine #migraineAura #mindfulness #nondualAwareness #openness #painting #perception #personalEssay #perspectiveShift #presence #resilience #transformation -
“Why #endometriosis should be classified as a whole‑body inflammatory disorder like #lupus or multiple sclerosis”
-
“Why #endometriosis should be classified as a whole‑body inflammatory disorder like #lupus or multiple sclerosis”
-
Tiptoeing out here to say in a whisper that May was #Lupus Awareness Month and so I [lowers voice] started a TikTok about my journey, here: https://www.tiktok.com/@potterdc
-
Tiptoeing out here to say in a whisper that May was #Lupus Awareness Month and so I [lowers voice] started a TikTok about my journey, here: https://www.tiktok.com/@potterdc
-
Here's a new #introduction for pinning purposes because it's been a couple of years since my original one.
I'm Daisy (she/her), a totally blind radical leftist queer poet trapped in Oklahoma with two #cats. My primary sources of dopamine are #horror movies and acquiring new #books. I also love hip-hop and folk music, podcasts, fairy tales, birds, plants, breakfast food, and autumn, and I collect vinyl and tea sets and indie perfume oils.
Consistent use of alt text is mandatory for me to follow you. I will always boost bees, geese, mice, hedgehogs, and sunflowers, and I love food posting and miniature creations and pen and ink talk. I feel very strongly about politics, but i don't always talk about it here because I need at least one space on the internet that makes me feel good. My posts are a mix of chronicling the movies I watch, complaining about the horrors of having a body with #lupus, selfies and photos of my cats, and an occasional #3GoodThings list, interspersed with random thoughts about random things.
-
The Healing Journey: Small Steps to Wellness
Last weekend, I hiked the easy Inman Pond trail in the Adirondacks. With an elevation gain of only about 475 ft., it was a manageable hike. A year ago, I would have found it painful and challenging; three years ago, the Inman Pond trail would have felt almost impossible.
Perspective Shift
The extent to which chronic migraine, lupus, and endometriosis have shifted my life and my perspective over the last six years is not as vast as I had once believed. Through the often relentless pain and suffering, I am still me; the inherent essence of who I am sits quietly behind the pain, behind the striving for healing.
The Still Point
This still point, a sanctuary amidst the chaos, is my anchor. It was from this point of calm and clarity that I began to make small but significant changes to aid in my healing journey. I have learned to listen to my body, understanding its rhythms and needs, allowing myself to rest when required and gradually incorporating gentle movements that foster both physical and emotional well-being.
Health Shifts
Of course, my doctors have prescribed medications to help control the symptoms of these ailments, which help but do not cure or obliterate the pain. These medications can provide temporary relief, yet the underlying struggles remain, weighing heavily on my daily life. I had lost so much strength, muscle, and ability, and no magic pill was going to bring that back.
Living Fully
Before lupus and the resurgence of my chronic migraine, I was heavily involved in community and physical activity. Helping with local school musical productions from set work to directing, while running 15 to 20 miles a week, attending multiple yoga classes, and engaging in vigorous strength training, I was on fire!
The Fire Goes Out
Photo by Keenan Constance on Pexels.comThat fire didn’t burn out slowly; it was extinguished with a suddenness that took me by surprise. In a few months, I went from seemingly healthy—exercising regularly and enjoying life—to struggling to walk and speak, tasks that once felt second nature. Simple conversations became exhausting, and I found myself grappling with frustration as my body betrayed me. At its worst, I was sent to the ER because my doctor thought I was having a stroke, a harrowing experience that left me feeling both helpless and afraid for my future. Each day felt like a battle, leaving me to question how quickly everything could change.
Rediscovering The Still Point
The journey to reclaim my former self has been an uphill battle, filled with moments of frustration and doubt. I had to rely on my inner strength, digging deep to unearth reserves of resilience that I never knew I possessed. It was crucial for me to continuously find that still point amid the pain, a place of calm where I could gather my thoughts and recharge my spirit, reminding myself that each day was another opportunity for growth and healing despite the challenges I faced.
Incorporating Wellness Practices
Through these small steps, such as taking the stairs at work instead of the elevator, adding moments of reflection and meditation to my day, and shifting towards an anti-inflammatory diet, I have made tremendous progress over the last year.
Learning Patience
I was occasionally impatient with my progress; for example, I work on the eighth floor, so I decided that taking the stairs would be a good way to gradually increase my strength over time. I assumed steady progress would be the norm. However, on certain days when I could only make it to the fourth floor and had to take the elevator, I would feel betrayed by my body. It was frustrating to realize that despite my efforts, my physical limitations sometimes got the better of me, leaving me to wonder if I was truly making any progress at all. Each setback felt like a personal defeat, yet deep down, I knew every little attempt contributed to my journey toward better health.
Small Steps = Great Progress
These efforts, which seemed minor at first, have collectively contributed to a healthier lifestyle and improved well-being. I have found that the more I prioritize my physical health and mental clarity, the more energized and motivated I feel. As a result, I can finally get out and enjoy trekking through my favorite place in the world, the Adirondacks, where majestic mountains and serene lakes rejuvenate my spirit and provide a sense of peace.
The Beauty of Struggle
Had I had a life without turmoil, backsliding, or trauma, I would not be managing stress the way I can today. Every hardship in my life has taught me resilience, how to move through difficulty with grace and flow. Challenges taught me the importance of patience and critical thinking, and that most things are not as unbearable as they seem. Each experience, whether it felt overwhelming or insurmountable at the time, has carved out a deeper understanding within me.
Suffering as Wisdom
I discovered that suffering is a teacher, imparting wisdom that becomes a part of my very being. I spoke about ways of coping in the piece “Navigating Suffering Through Buddhist Wisdom” a few weeks ago, sharing insights that arise from reflecting on my journey. Using this framework, I can patiently and deliberately move towards wholeness, embracing not only the light but also the shadows that shape my existence.
Returning To Wholeness
My journey through chronic pain and illness has not only reshaped my physical abilities but has also profoundly influenced my perspective on life. The trials I have faced have cultivated resilience, compassion, and an understanding that healing is a multifaceted process that encompasses both body and mind.
Moving Forward
By embracing the small victories and honoring my body’s signals, I have discovered a renewed sense of purpose and clarity. The Adirondacks, with their rugged beauty, serve as a reminder of the peace that can exist alongside struggle. As I continue to navigate my healing path, I carry forward the lessons learned through suffering, committed to nurturing both my physical health and my spirit, and embracing each step as part of a greater journey toward wholeness.
Below, I have lovingly cultivated a list of gentle practices to help you embark on your healing journey. Please remember to be patient with yourself; healing is rarely a straightforward path. We meander and flow, gathering momentum and wisdom as we navigate our healing journey with intentionality and compassion
Gentle Ways To Begin Healing
- Listen to Your Body: Pay attention to the signals your body sends. Acknowledge when you need rest and allow yourself the time to recuperate.
- Incorporate Gentle Movements: Start with simple stretches or light activities that your body can handle. Aim to gradually increase your activity levels as your strength improves.
- Practice Mindfulness and Meditation: Set aside moments each day for mindfulness or meditation. Use this time to center yourself, breathe deeply, and cultivate inner peace.
- Focus on Nutrition: Transition to an anti-inflammatory diet that includes whole foods. Incorporate more fruits, vegetables, whole grains, and lean proteins into your meals.
- Engage in Reflective Practices: Take time for journaling or reflection. Consider your thoughts, feelings, and experiences, and how they contribute to your healing process.
- Seek Support: Connect with friends, family, or support groups who understand your journey. Sharing your challenges can foster a sense of community and belonging.
- Embrace Nature: Spend time outdoors in natural settings. Activities like hiking, walking, or simply sitting in a park can provide rejuvenation for both mind and spirit.
- Be Patient with Yourself: Understand that healing is a journey that takes time. Be compassionate toward yourself, acknowledging that ups and downs are a natural part of the process.
- Create a Healthy Sleep Routine: Aim for consistent sleep patterns. Prioritize restful sleep by creating a calming bedtime environment.
- Limit Screen Time: Reduce exposure to screens, especially before bed. This can help improve sleep quality and reduce fatigue.
- Practice Gratitude: Keep a gratitude journal to document what you appreciate each day. This can shift your mindset and enhance overall well-being.
If you are beginning your healing journey, I suggest starting with listening to your body. This is where we truly learn the wisdom held within ourselves. Our bodies possess innate knowledge that guides us; they know when we need rest, self-care, or movement. By taking the time to listen deeply to the inherent wisdom, we allow the body and mind to communicate with each other, opening the pathways to wholeness. This connection fosters a deeper understanding of our needs, cultivating an environment where healing can flourish. As you engage in this practice, you may discover signals that indicate emotional or physical states, helping you to navigate life’s challenges with greater awareness and resilience. Remember, each step you take in tuning into your body’s messages brings you closer to a harmonious balance, nurturing both your inner self and overall well-being.
For deeper emotional healing, I offer you this free guide to Somatic Experiencing, which delves into the profound connection between our bodies and our feelings. This guide is designed to help you understand how our physical sensations can inform our emotional states and facilitate healing. By engaging with the principles of Somatic Experiencing, you will learn practical techniques to process trauma, release tension, and foster a sense of safety within your body. Embrace this opportunity to explore a holistic approach to healing, enabling you to cultivate resilience and emotional well-being.
Somatic Experiencing for WellbeingDownload #awareness #balance #bodyMindSpirit #chronicIllness #easyStepsForHealing #experience #flow #healing #healingPath #healthyLife #journeyToWholeness #limits #lupus #meditation #mentalHealth #migraine #migraineHealing #mindful #mindfulHealing #MindfulLiving #mindfulness #moments #naturalLife #pain #physicalLimitation #practice #regainingStrength #resilience #stepsForHealing #suffering #thoughtfulHealing #thoughtfulLiving #wellbeing #wellness #wholeness #wisdom -
The Healing Journey: Small Steps to Wellness
Last weekend, I hiked the easy Inman Pond trail in the Adirondacks. With an elevation gain of only about 475 ft., it was a manageable hike. A year ago, I would have found it painful and challenging; three years ago, the Inman Pond trail would have felt almost impossible.
Perspective Shift
The extent to which chronic migraine, lupus, and endometriosis have shifted my life and my perspective over the last six years is not as vast as I had once believed. Through the often relentless pain and suffering, I am still me; the inherent essence of who I am sits quietly behind the pain, behind the striving for healing.
The Still Point
This still point, a sanctuary amidst the chaos, is my anchor. It was from this point of calm and clarity that I began to make small but significant changes to aid in my healing journey. I have learned to listen to my body, understanding its rhythms and needs, allowing myself to rest when required and gradually incorporating gentle movements that foster both physical and emotional well-being.
Health Shifts
Of course, my doctors have prescribed medications to help control the symptoms of these ailments, which help but do not cure or obliterate the pain. These medications can provide temporary relief, yet the underlying struggles remain, weighing heavily on my daily life. I had lost so much strength, muscle, and ability, and no magic pill was going to bring that back.
Living Fully
Before lupus and the resurgence of my chronic migraine, I was heavily involved in community and physical activity. Helping with local school musical productions from set work to directing, while running 15 to 20 miles a week, attending multiple yoga classes, and engaging in vigorous strength training, I was on fire!
The Fire Goes Out
Photo by Keenan Constance on Pexels.comThat fire didn’t burn out slowly; it was extinguished with a suddenness that took me by surprise. In a few months, I went from seemingly healthy—exercising regularly and enjoying life—to struggling to walk and speak, tasks that once felt second nature. Simple conversations became exhausting, and I found myself grappling with frustration as my body betrayed me. At its worst, I was sent to the ER because my doctor thought I was having a stroke, a harrowing experience that left me feeling both helpless and afraid for my future. Each day felt like a battle, leaving me to question how quickly everything could change.
Rediscovering The Still Point
The journey to reclaim my former self has been an uphill battle, filled with moments of frustration and doubt. I had to rely on my inner strength, digging deep to unearth reserves of resilience that I never knew I possessed. It was crucial for me to continuously find that still point amid the pain, a place of calm where I could gather my thoughts and recharge my spirit, reminding myself that each day was another opportunity for growth and healing despite the challenges I faced.
Incorporating Wellness Practices
Through these small steps, such as taking the stairs at work instead of the elevator, adding moments of reflection and meditation to my day, and shifting towards an anti-inflammatory diet, I have made tremendous progress over the last year.
Learning Patience
I was occasionally impatient with my progress; for example, I work on the eighth floor, so I decided that taking the stairs would be a good way to gradually increase my strength over time. I assumed steady progress would be the norm. However, on certain days when I could only make it to the fourth floor and had to take the elevator, I would feel betrayed by my body. It was frustrating to realize that despite my efforts, my physical limitations sometimes got the better of me, leaving me to wonder if I was truly making any progress at all. Each setback felt like a personal defeat, yet deep down, I knew every little attempt contributed to my journey toward better health.
Small Steps = Great Progress
These efforts, which seemed minor at first, have collectively contributed to a healthier lifestyle and improved well-being. I have found that the more I prioritize my physical health and mental clarity, the more energized and motivated I feel. As a result, I can finally get out and enjoy trekking through my favorite place in the world, the Adirondacks, where majestic mountains and serene lakes rejuvenate my spirit and provide a sense of peace.
The Beauty of Struggle
Had I had a life without turmoil, backsliding, or trauma, I would not be managing stress the way I can today. Every hardship in my life has taught me resilience, how to move through difficulty with grace and flow. Challenges taught me the importance of patience and critical thinking, and that most things are not as unbearable as they seem. Each experience, whether it felt overwhelming or insurmountable at the time, has carved out a deeper understanding within me.
Suffering as Wisdom
I discovered that suffering is a teacher, imparting wisdom that becomes a part of my very being. I spoke about ways of coping in the piece “Navigating Suffering Through Buddhist Wisdom” a few weeks ago, sharing insights that arise from reflecting on my journey. Using this framework, I can patiently and deliberately move towards wholeness, embracing not only the light but also the shadows that shape my existence.
Returning To Wholeness
My journey through chronic pain and illness has not only reshaped my physical abilities but has also profoundly influenced my perspective on life. The trials I have faced have cultivated resilience, compassion, and an understanding that healing is a multifaceted process that encompasses both body and mind.
Moving Forward
By embracing the small victories and honoring my body’s signals, I have discovered a renewed sense of purpose and clarity. The Adirondacks, with their rugged beauty, serve as a reminder of the peace that can exist alongside struggle. As I continue to navigate my healing path, I carry forward the lessons learned through suffering, committed to nurturing both my physical health and my spirit, and embracing each step as part of a greater journey toward wholeness.
Below, I have lovingly cultivated a list of gentle practices to help you embark on your healing journey. Please remember to be patient with yourself; healing is rarely a straightforward path. We meander and flow, gathering momentum and wisdom as we navigate our healing journey with intentionality and compassion
Gentle Ways To Begin Healing
- Listen to Your Body: Pay attention to the signals your body sends. Acknowledge when you need rest and allow yourself the time to recuperate.
- Incorporate Gentle Movements: Start with simple stretches or light activities that your body can handle. Aim to gradually increase your activity levels as your strength improves.
- Practice Mindfulness and Meditation: Set aside moments each day for mindfulness or meditation. Use this time to center yourself, breathe deeply, and cultivate inner peace.
- Focus on Nutrition: Transition to an anti-inflammatory diet that includes whole foods. Incorporate more fruits, vegetables, whole grains, and lean proteins into your meals.
- Engage in Reflective Practices: Take time for journaling or reflection. Consider your thoughts, feelings, and experiences, and how they contribute to your healing process.
- Seek Support: Connect with friends, family, or support groups who understand your journey. Sharing your challenges can foster a sense of community and belonging.
- Embrace Nature: Spend time outdoors in natural settings. Activities like hiking, walking, or simply sitting in a park can provide rejuvenation for both mind and spirit.
- Be Patient with Yourself: Understand that healing is a journey that takes time. Be compassionate toward yourself, acknowledging that ups and downs are a natural part of the process.
- Create a Healthy Sleep Routine: Aim for consistent sleep patterns. Prioritize restful sleep by creating a calming bedtime environment.
- Limit Screen Time: Reduce exposure to screens, especially before bed. This can help improve sleep quality and reduce fatigue.
- Practice Gratitude: Keep a gratitude journal to document what you appreciate each day. This can shift your mindset and enhance overall well-being.
If you are beginning your healing journey, I suggest starting with listening to your body. This is where we truly learn the wisdom held within ourselves. Our bodies possess innate knowledge that guides us; they know when we need rest, self-care, or movement. By taking the time to listen deeply to the inherent wisdom, we allow the body and mind to communicate with each other, opening the pathways to wholeness. This connection fosters a deeper understanding of our needs, cultivating an environment where healing can flourish. As you engage in this practice, you may discover signals that indicate emotional or physical states, helping you to navigate life’s challenges with greater awareness and resilience. Remember, each step you take in tuning into your body’s messages brings you closer to a harmonious balance, nurturing both your inner self and overall well-being.
For deeper emotional healing, I offer you this free guide to Somatic Experiencing, which delves into the profound connection between our bodies and our feelings. This guide is designed to help you understand how our physical sensations can inform our emotional states and facilitate healing. By engaging with the principles of Somatic Experiencing, you will learn practical techniques to process trauma, release tension, and foster a sense of safety within your body. Embrace this opportunity to explore a holistic approach to healing, enabling you to cultivate resilience and emotional well-being.
Somatic Experiencing for WellbeingDownload #awareness #balance #bodyMindSpirit #chronicIllness #easyStepsForHealing #experience #flow #healing #healingPath #healthyLife #journeyToWholeness #limits #lupus #meditation #mentalHealth #migraine #migraineHealing #mindful #mindfulHealing #MindfulLiving #mindfulness #moments #naturalLife #pain #physicalLimitation #practice #regainingStrength #resilience #stepsForHealing #suffering #thoughtfulHealing #thoughtfulLiving #wellbeing #wellness #wholeness #wisdom -
RE: https://biologists.social/@biorxivpreprint/116562497726010094
Pre-print on study using mouse model of lupus
#AutoimmuneDisease #NaturalProducts #GutMicrobiome #UrolithinA #Lupus
-
Das Chamäleon der Krankheiten
Bei Rebecca Fakundiny wurde 2014 die Autoimmunerkrankung Lupus diagnostiziert. Heute setzt sich die 30-jährige mit ihrem Blog „lupusdiary.de“ und durch Vorträge für die Sichtbarkeit und den Umgang mit der Krankheit ein.
von Caroline Alberta Glabacs
https://www.stuz.de/2026/05/12/das-chamaeleon-der-krankheiten/
-
Can lupus cause kidney problems? #lupus #kidneydisease #autoimmunedisease #kidneyhealth ... Continue to: https://www.facebook.com/reel/1365401842076946/
-
Did you know the immune system that protects your body from diseases can sometimes become too active and attack the body itself? 🧬⚠️
This can happen in conditions like (Lupus), where the immune system mistakenly attacks healthy cells and tissues .🤯
It’s a reminder that the human body is incredibly powerful but also incredibly complex .🔬
-
Did you know the immune system that protects your body from diseases can sometimes become too active and attack the body itself? 🧬⚠️
This can happen in conditions like (Lupus), where the immune system mistakenly attacks healthy cells and tissues .🤯
It’s a reminder that the human body is incredibly powerful but also incredibly complex .🔬
-
Advocates Urge Stronger Awareness and Support for Lupus Patients in Nigeria
📰 Original title: World Lupus Day: Stakeholders seek improved care
🤖 IA: It's not clickbait ✅
👥 Users: It's not clickbait ✅ -
Advocates Urge Stronger Awareness and Support for Lupus Patients in Nigeria
📰 Original title: World Lupus Day: Stakeholders seek improved care
🤖 IA: It's not clickbait ✅
👥 Users: It's not clickbait ✅ -
We are live today with @[email protected] ’s VP of Research, Joy Buie (2pm for interview EDT) for a real conversation about the science of #lupus and LFA research as we raise money for science! @[email protected] link: tilt.fyi/A8YwXeChIn twitch.tv/sciants_streams
-
Join the us tomorrow with @[email protected] ’s VP of Research, Joy Buie on @Twitch 5/3 @ 2pm EDT for a real conversation about the science of #lupus and LFA research as we raise money for science! @[email protected] link: tilt.fyi/A8YwXeChIn Stream: twitch.tv/sciants_streams
-
If you like coloring books and video games and hate lupus, all the proceeds of this go to fighting lupus and it’s got some of my art in it.
-
Where Pain Learns to Breathe: And Still, I Do
I cherish what is good— those fragile, golden fragments of ease— but I dread what is required: the procedures, the waiting, the quiet endurance of pain. Still, it humbles me. It teaches me to love as if each day is a final draft, as if time itself is borrowed…https://kandiblaze.wordpress.com/2026/04/29/where-pain-learns-to-breathe-and-still-i-do/
-
Where Pain Learns to Breathe: And Still, I Do
I cherish what is good— those fragile, golden fragments of ease— but I dread what is required: the procedures, the waiting, the quiet endurance of pain. Still, it humbles me. It teaches me to love as if each day is a final draft, as if time itself is borrowed…https://kandiblaze.wordpress.com/2026/04/29/where-pain-learns-to-breathe-and-still-i-do/
-
Navigating Suffering with Buddhist Wisdom
Navigating chronic illness and disability is challenging at times, often requiring us to confront unexpected setbacks and emotional hurdles. Discovering unique ways to cope, build resilience, and remain mindful is key to healing and mental well-being.
During meditation this morning, I realized that I can view my neurological disorders through the lens of the Four Noble Truths. This perspective offers a unique approach, allowing me not only to confront my struggles but also to embrace them as integral parts of my journey. I have often used the pain I experience as a path to understanding; however, I have not yet applied the Noble Truths as a process to work through health issues. By examining the nature of suffering and acknowledging its presence in my life, I can begin to explore the deeper causes behind it, leading me to cultivate mindfulness and compassion, both for myself and others who endure similar challenges. Recognizing that there is a path out of suffering encourages me to actively seek solutions and cultivate a more balanced state of being.
The four noble truths of Buddhism help us to see life through a different perspective and gain clarity on why we suffer and how to alleviate this. By understanding these fundamental principles, we begin to recognize the nature of suffering, which is an inherent part of the human experience. This realization encourages us to confront our pain rather than avoid it. The first truth identifies suffering as an unavoidable aspect of life, while the second truth explores the origins of this suffering, rooted in attachment and desire. The third noble truth offers hope, revealing that liberation from suffering is achievable, and the fourth truth provides a practical path through the Eightfold Path, guiding us on how to cultivate mindfulness, ethical conduct, and mental discipline to ultimately foster a more compassionate and fulfilled existence. Embracing these truths can transform our perception of life, allowing us to navigate our challenges with wisdom and resilience.
The Truth of Suffering (Dukkha): Life includes dissatisfaction, suffering, and pain. This encompasses obvious suffering (birth, sickness, death) and subtle dissatisfaction (impermanence, lack of fulfillment).
The Truth of the Cause of Suffering (Samudaya): Suffering is caused by craving, grasping, or thirsting for pleasure, existence, or non-existence. This stems from ignorance about the true nature of reality.
The Truth of the Cessation of Suffering (Nirodha): It is possible to end suffering and achieve a state of liberation known as Nirvana. This occurs by letting go of cravings and attachment.
The Truth of the Path (Magga): The way to end suffering is the Noble Eightfold Path, which includes cultivating right understanding, intention, speech, action, livelihood, effort, mindfulness, and concentration.~from Lion’s Roar
On The Path Of Truth
Now, to apply this to my physical health issues, I can begin with the first noble truth of suffering. Obviously, the pain I experience can be considered suffering, manifesting itself in both a physical and emotional burden that weighs heavily on my daily life. Move on to the second noble truth – the cause of suffering could be the dysregulation of my nervous system, which might lead to heightened sensitivity to pain and an inability to process discomfort in a healthy way. On the other hand, I could look at the cause of my suffering as my intense desire to avoid pain, which creates a cycle of fear and anxiety that exacerbates my condition. By viewing physical pain as only suffering, I am missing the point of the pain, for it can also be a valuable teacher, offering insights into my body’s limits and encouraging me to explore alternative healing methods, mindfulness practices, and ultimately, a deeper understanding of my own well-being.
Photo by Summer Stock on Pexels.comHeeding the Messenger
Pain indicates a problem with the body’s balance. If I view pain as a messenger, I immediately alleviate some suffering, as the second noble truth reminds us that suffering is due to wanting or craving things to be other than they are. This perspective shift is not merely a change in thought but a profound transformation in my relationship with my own experience of discomfort. By embracing pain as a guide rather than an adversary, I can begin to uncover underlying issues that may be affecting my well-being. I recognize that every ache and pang carries vital information about my physical state, urging me to pay attention, to adjust, and perhaps to heal. This mindful awareness opens a pathway to understanding the intelligence of my body within the message of pain, enabling me to respond with compassion rather than resistance, and thus fostering a deeper connection with myself.
Releasing Suffering
The third noble truth explains how to remove suffering by eliminating craving. When I view pain as the intelligence of my body, the craving drops away, and the message becomes clearer, revealing insights I might have otherwise overlooked. In this way, I become an active listener to my body’s wisdom, fostering a deeper connection with myself. The pain indicates energies that should be cleared out, shifted, and realigned; it serves as a guiding signal that I need to pause, slow down, and be more in tune with my own physicality and emotional landscape. It urges me to explore the underlying causes of my discomfort rather than shying away from it. When I stop demanding the pain vanish, I allow myself to truly experience this moment, embracing instead of resisting, and I stop abandoning myself in the moments it appears, cultivating compassion and understanding for my own journey through discomfort and healing.
Discovering Truth
This softening, this release of craving, naturally leads to the Fourth Noble Truth: the path of liberation. With this shift in perspective, I find that I am no longer tied to the identity of my disability; instead, I embrace a broader definition of self that transcends physical limitations. I am no longer a person in pain but a vibrant entity filled with potential and possibility. I recognize that I am body, mind, and spirit, a flowing intelligence that is deeper than I can imagine, expressing itself in myriad ways that I begin to understand when I take the time to settle, quiet my mind, and listen deeply. This internal dialogue reveals an inherent intelligence that guides me, enabling my life to become expansive, interconnected, and richly textured. Through this journey of self-discovery, I uncover facets of my being that bring joy and fulfillment, creating a tapestry of existence that is not defined by suffering but rather illuminated by resilience and hope.
Walking The Path
The shift in my relationship with pain opens naturally into the eightfold path, not as a set of rules, but as a way of living that grows from this new understanding. When I listen to my body’s wisdom, right view becomes clarity, right intention becomes gentleness, and right mindfulness becomes a simple act of staying with myself. The path becomes a lived expression of liberation, a way of moving through the world with presence, compassion, and integrity. In this way, the Fourth Noble Truth is not an ending, but an invitation, a reminder that freedom is something I practice with each breath, each choice, each moment I refuse to abandon myself.
Sometimes, we all need a gentle reminder of our truth, of the inherent sacredness that resides within us. In the midst of our hectic and hurried lives, it’s so easy to lose sight of our innate worth and our unique place in the vast cosmos. Yet, when we take a moment to pause and truly embrace each experience, we open ourselves to the wonder that surrounds us, awakening our senses and rejuvenating our spirit. Consider giving yourself the gift of stillness and sacredness throughout your day by journeying inward, as we connect with the infinite through the soothing practices of meditation and affirmations.
#4NobleTruths #8FoldPath #anxiety #awareness #balance #buddha #buddhist #buddhistWisdom #challenges #disability #eightFoldPath #experience #flow #fourNobleTruths #healing #healingMigraine #learning #lifeLessons #lupus #meditaion #meditation #mentalHealth #mentalWellness #migraine #mindful #mindfulness #moments #neurologicalDisorders #practice #resilience #wisdom -
Navigating Suffering with Buddhist Wisdom
Navigating chronic illness and disability is challenging at times, often requiring us to confront unexpected setbacks and emotional hurdles. Discovering unique ways to cope, build resilience, and remain mindful is key to healing and mental well-being.
During meditation this morning, I realized that I can view my neurological disorders through the lens of the Four Noble Truths. This perspective offers a unique approach, allowing me not only to confront my struggles but also to embrace them as integral parts of my journey. I have often used the pain I experience as a path to understanding; however, I have not yet applied the Noble Truths as a process to work through health issues. By examining the nature of suffering and acknowledging its presence in my life, I can begin to explore the deeper causes behind it, leading me to cultivate mindfulness and compassion, both for myself and others who endure similar challenges. Recognizing that there is a path out of suffering encourages me to actively seek solutions and cultivate a more balanced state of being.
The four noble truths of Buddhism help us to see life through a different perspective and gain clarity on why we suffer and how to alleviate this. By understanding these fundamental principles, we begin to recognize the nature of suffering, which is an inherent part of the human experience. This realization encourages us to confront our pain rather than avoid it. The first truth identifies suffering as an unavoidable aspect of life, while the second truth explores the origins of this suffering, rooted in attachment and desire. The third noble truth offers hope, revealing that liberation from suffering is achievable, and the fourth truth provides a practical path through the Eightfold Path, guiding us on how to cultivate mindfulness, ethical conduct, and mental discipline to ultimately foster a more compassionate and fulfilled existence. Embracing these truths can transform our perception of life, allowing us to navigate our challenges with wisdom and resilience.
The Truth of Suffering (Dukkha): Life includes dissatisfaction, suffering, and pain. This encompasses obvious suffering (birth, sickness, death) and subtle dissatisfaction (impermanence, lack of fulfillment).
The Truth of the Cause of Suffering (Samudaya): Suffering is caused by craving, grasping, or thirsting for pleasure, existence, or non-existence. This stems from ignorance about the true nature of reality.
The Truth of the Cessation of Suffering (Nirodha): It is possible to end suffering and achieve a state of liberation known as Nirvana. This occurs by letting go of cravings and attachment.
The Truth of the Path (Magga): The way to end suffering is the Noble Eightfold Path, which includes cultivating right understanding, intention, speech, action, livelihood, effort, mindfulness, and concentration.~from Lion’s Roar
On The Path Of Truth
Now, to apply this to my physical health issues, I can begin with the first noble truth of suffering. Obviously, the pain I experience can be considered suffering, manifesting itself in both a physical and emotional burden that weighs heavily on my daily life. Move on to the second noble truth – the cause of suffering could be the dysregulation of my nervous system, which might lead to heightened sensitivity to pain and an inability to process discomfort in a healthy way. On the other hand, I could look at the cause of my suffering as my intense desire to avoid pain, which creates a cycle of fear and anxiety that exacerbates my condition. By viewing physical pain as only suffering, I am missing the point of the pain, for it can also be a valuable teacher, offering insights into my body’s limits and encouraging me to explore alternative healing methods, mindfulness practices, and ultimately, a deeper understanding of my own well-being.
Photo by Summer Stock on Pexels.comHeeding the Messenger
Pain indicates a problem with the body’s balance. If I view pain as a messenger, I immediately alleviate some suffering, as the second noble truth reminds us that suffering is due to wanting or craving things to be other than they are. This perspective shift is not merely a change in thought but a profound transformation in my relationship with my own experience of discomfort. By embracing pain as a guide rather than an adversary, I can begin to uncover underlying issues that may be affecting my well-being. I recognize that every ache and pang carries vital information about my physical state, urging me to pay attention, to adjust, and perhaps to heal. This mindful awareness opens a pathway to understanding the intelligence of my body within the message of pain, enabling me to respond with compassion rather than resistance, and thus fostering a deeper connection with myself.
Releasing Suffering
The third noble truth explains how to remove suffering by eliminating craving. When I view pain as the intelligence of my body, the craving drops away, and the message becomes clearer, revealing insights I might have otherwise overlooked. In this way, I become an active listener to my body’s wisdom, fostering a deeper connection with myself. The pain indicates energies that should be cleared out, shifted, and realigned; it serves as a guiding signal that I need to pause, slow down, and be more in tune with my own physicality and emotional landscape. It urges me to explore the underlying causes of my discomfort rather than shying away from it. When I stop demanding the pain vanish, I allow myself to truly experience this moment, embracing instead of resisting, and I stop abandoning myself in the moments it appears, cultivating compassion and understanding for my own journey through discomfort and healing.
Discovering Truth
This softening, this release of craving, naturally leads to the Fourth Noble Truth: the path of liberation. With this shift in perspective, I find that I am no longer tied to the identity of my disability; instead, I embrace a broader definition of self that transcends physical limitations. I am no longer a person in pain but a vibrant entity filled with potential and possibility. I recognize that I am body, mind, and spirit, a flowing intelligence that is deeper than I can imagine, expressing itself in myriad ways that I begin to understand when I take the time to settle, quiet my mind, and listen deeply. This internal dialogue reveals an inherent intelligence that guides me, enabling my life to become expansive, interconnected, and richly textured. Through this journey of self-discovery, I uncover facets of my being that bring joy and fulfillment, creating a tapestry of existence that is not defined by suffering but rather illuminated by resilience and hope.
Walking The Path
The shift in my relationship with pain opens naturally into the eightfold path, not as a set of rules, but as a way of living that grows from this new understanding. When I listen to my body’s wisdom, right view becomes clarity, right intention becomes gentleness, and right mindfulness becomes a simple act of staying with myself. The path becomes a lived expression of liberation, a way of moving through the world with presence, compassion, and integrity. In this way, the Fourth Noble Truth is not an ending, but an invitation, a reminder that freedom is something I practice with each breath, each choice, each moment I refuse to abandon myself.
Sometimes, we all need a gentle reminder of our truth, of the inherent sacredness that resides within us. In the midst of our hectic and hurried lives, it’s so easy to lose sight of our innate worth and our unique place in the vast cosmos. Yet, when we take a moment to pause and truly embrace each experience, we open ourselves to the wonder that surrounds us, awakening our senses and rejuvenating our spirit. Consider giving yourself the gift of stillness and sacredness throughout your day by journeying inward, as we connect with the infinite through the soothing practices of meditation and affirmations.
#4NobleTruths #8FoldPath #anxiety #awareness #balance #buddha #buddhist #buddhistWisdom #challenges #disability #eightFoldPath #experience #flow #fourNobleTruths #healing #healingMigraine #learning #lifeLessons #lupus #meditaion #meditation #mentalHealth #mentalWellness #migraine #mindful #mindfulness #moments #neurologicalDisorders #practice #resilience #wisdom -
Am Wochenende fühlte ich mich endlich wieder wie ein Mensch, das war echt eine heftige Erkältung. Ich fuhr Einkaufen und andere Besorgungen machen. Zurück zuhause nette Post vom Landgericht… Augen auf bei der Partnerwahl!
#Lupus #chronischkrank #tagebuchbloggen #RA -
Figured out I should probably take the night off from work when I realized I was verbalizing my symptoms like Leeloo from The 5th Element.
"Fatigue. Faa-teeegue. Faaaaaaateeeeeeguuuuuh."
-
Figured out I should probably take the night off from work when I realized I was verbalizing my symptoms like Leeloo from The 5th Element.
"Fatigue. Faa-teeegue. Faaaaaaateeeeeeguuuuuh."
-
Samstag nacht fuhren wir nach Hamburg, parkten das Auto und flogen um 6.00 nach München, von dort nach Heraklion. Mittags kamen wir im Hotel an, wir legten nur kurz unsere Sachen ab, ehe wir uns etwas zu essen suchten.
In den folgenden Tagen erkundeten wir Heraklion, Knossos, eine Olivenfarm, Chania, Rethymnon, den Kournas See und Agios Nikolaios. Unterwegs zu Fuss und mit dem Bus.
#Freitagszeuch #Lupus #chronischkrank #tagebuchbloggen #RA -
Im März 2026
- war ich noch eine Woche mit dem gebrochenen Fuss krank geschrieben
- hatte ich Kontrollen bei der Rheumatologin
- und der Gynäkologin
- räumten wir die Gartenparzelle einbisschen auf
- ging ich endlich nach 6 Wochen wieder arbeiten
- und startete gleich mit einer schönen Wochenenddienstwoche
- wurde mein Baby 22
- übte ich mich im Sauerteigbrot backen
#Monatsübersicht #Lupus #chronischkrank #tagebuchbloggen #RA -
Ich hatte ein richtig schönes Wochenende. Schon Freitag begann ich mit einer kleiner Radtour durch die neue Hood. Samstag fuhren wir nach Kaltenkirchen, in die Holstentherme. Sehr schönes Schwimmbad, eines der hübschesten. Ich dümpelte hauptsächlich im warmen Wasser herum und hatte es gemütlich. Auf der Rückfahrt machten wir einen Zwischenstopp im DesignerOutlet.
#Freitagszeuch #Lupus #chronischkrank #tagebuchbloggen #RA -
Detroit Pistons host a special game night for kids with illnesses https://www.rawchili.com/nba/679506/ #7ActionNews #7NewsDetroit #AKidAgain #Basketball #Children'sHealth #CommunityEvent #Detroit #DetroitPistons #DetroitPistons #LittleCaesarsArena #lupus #NBA #Pistons #WXYZTV
-
I feel like I'm always borrowing energy from tomorrow with interest.
-
I feel like I'm always borrowing energy from tomorrow with interest.
-
To those who know I have lupus, my condition has recently worsened.I now suffer from memory loss, brain fog, and vision problems, and I can no longer afford the supplements and care I need.Living in Gaza with rising costs has made things even harder.Any support or share would mean a lot 🙏🤍
#Gaza #Lupus #Help#Gaza #GazaVerified #settlerColonialism @chielk #FreePalestine #fediAid@D1@aral@neutrinoceros@DenisCOVIDinfoguy@evan@gimulnautti@anilmc@chielk@rysiek -
To those who know I have lupus, my condition has recently worsened.I now suffer from memory loss, brain fog, and vision problems, and I can no longer afford the supplements and care I need.Living in Gaza with rising costs has made things even harder.Any support or share would mean a lot 🙏🤍
#Gaza #Lupus #Help#Gaza #GazaVerified #settlerColonialism @chielk #FreePalestine #fediAid@D1@aral@neutrinoceros@DenisCOVIDinfoguy@evan@gimulnautti@anilmc@chielk@rysiek -
⚠️ Update: si un enlace no funcione o hay algún error en el texto avisadme, por favor. Ya está arreglado y podéis leerlo.
✩₊˚.⋆☾𓃦☽⋆⁺₊✧ ✩
Y de noche recuerdo esta #poesia sobre la luz, los colores y el sol. Mis ex.#203 Oculta entre las sombras, la luz sigue ahí 🐺https://domandoallobo.blogspot.com/2016/08/203-oculta-entre-las-sombras-la-luz.html #blog
#DiaDeLaPoesia #WorldPoetryDay #poema #Lupus #Sjögren #EncefalomielitisMiálgica #pwME #Fibromialgia #Migraña #POTS #fotofobia #fotosensibilidad #mastoblog #mastobloggers #mastobloggers
-
⚠️ Update: si un enlace no funcione o hay algún error en el texto avisadme, por favor. Ya está arreglado y podéis leerlo.
✩₊˚.⋆☾𓃦☽⋆⁺₊✧ ✩
Y de noche recuerdo esta #poesia sobre la luz, los colores y el sol. Mis ex.#203 Oculta entre las sombras, la luz sigue ahí 🐺https://domandoallobo.blogspot.com/2016/08/203-oculta-entre-las-sombras-la-luz.html #blog
#DiaDeLaPoesia #WorldPoetryDay #poema #Lupus #Sjögren #EncefalomielitisMiálgica #pwME #Fibromialgia #Migraña #POTS #fotofobia #fotosensibilidad #mastoblog #mastobloggers #mastobloggers
-
SLE (#lupus) is associated with genetic variants in the X-linked gene TASL. Julia Johnstone, Alex Clarke &co show that TASL is required for B cell activation, age-associated B cell formation and lupus-like disease #InMice, suggesting its potential as a therapeutic target
https://plos.io/47yDuXv -
💔 I need your help 💔
I am living with lupus, and my condition is getting worse every day. I cannot afford my essential medicines or vitamins.
Simple daily tasks have become a struggle, and without your support, things get even harder.
Please, share my story. Even a small boost can make a huge difference. Let my voice reach the world. 🌍🙏
#Help #Support #SignalBoost #Lupus #ChronicIllness #Humanity #Solidarity #HelpNeeded -
Doctors been telling me nothing is wrong for a year. I just went to the GP and turns out I didnt notice I had Gastroenteritis because the symptoms were basically the same as my regular flares barring one.
#symptoms #chronicillness #lupus #autoimmune #gastro #stomachflu
-
Akram has been overwhelmed, repeatedly sick, and unable to get much help. His sister’s lupus needs constant care, while all his siblings and mom need consistent nutrition during Ramadan.
Anything helps! Give/find the Abdelwahed’s link here: https://chuffed.org/project/hope-giving-circle #lupus
-
Today we highlight Akram, his five younger siblings, & their mom. They’re struggling with a lot of urgent needs, between Sarah’s lupus care and a barely-standing home, plus sustained nutrition for Ramadan.
Give/find the Abdelwahed family's link here: https://chuffed.org/project/hope-giving-circle
@palestine
#MutualAid #MutualAidRequest #Gaza #Palestine #lupus -
Akram has been ao overwhelmed, between his sister’s severe lupus and working hard to get repairs done on his family's home. This family of seven still needs our support with basics to survive.
Anything helps! Give/find the Abdelwahed’s link here: https://chuffed.org/project/hope-giving-circle #lupus
-
"Let me open up my diagnosis box and see if I have something that explains why this situation went this way."
#Autism #ADHD #audhd #neurodivergent #CFS #lupus #hypermobility
-
FDA Issues CRL for Saphnelo Subcutaneous BLA
The FDA issued a complete response letter (CRL) regarding the Biologics License Application for Saphnelo (anifrolumab) subcutaneous administration in adults with systemic lupus erythematosus (SLE). AstraZeneca submitted the BLA based on a planned interim analysis of the Phase III TULIP-SC trial, which met its primary endpoint.
