#lupus — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #lupus, aggregated by home.social.
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Am Wochenende erledigte ich Papierkram - wo kommt der immer wieder her?, las, machte die Wohnung sauber, kaufte ein bisschen ein. Was man halt so macht, wenn man wieder ankommt.
Dann startete ich mit 6 Diensten volle Kanne ins Arbeitsleben. Viel Zeit für andere Dinge blieb nicht, aber gut, die nächste Woche ist wieder besser.
#Freitagszeuch #Lupus #chronischkrank #tagebuchbloggen #RA -
I am totally geeking out having just ordered a Solarmeter 5.7 UV light meter!
Now I'll be able to know for sure if the UV protection on our windows in the house still works, if the UV protection in the car is enough for me, and if American made UPF clothing is any better than the smaller brand stuff probably made in China. American made upf clothing is about 3 x as much as as smaller brands like Coofandy and Baeleaf.
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I am totally geeking out having just ordered a Solarmeter 5.7 UV light meter!
Now I'll be able to know for sure if the UV protection on our windows in the house still works, if the UV protection in the car is enough for me, and if American made UPF clothing is any better than the smaller brand stuff probably made in China. American made upf clothing is about 3 x as much as as smaller brands like Coofandy and Baeleaf.
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https://www.europesays.com/ch/106600/ FDA grants Priority Review to Roche’s Gazyva/Gazyvaro for adults with primary membranous nephropathy #AutoimmuneDisease #CompleteRemission #FDA #Gazyva #KidneyFailure #KidneyFunction #lupus #LupusNephritis #MembranousNephropathy #NephroticSyndrome #PriorityReview #Roche
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Schön war es da :). Nachdem die Fährfahrt (bzw.
#Freitagszeuch #Lupus #chronischkrank #tagebuchbloggen #RA -
https://www.europesays.com/at/279333/ Lupus-Therapie: 14 von 15 Patienten erreichen dauerhafte Remission #AT #Austria #CarTZellen #Gesundheit #Health #Klinische #Lupus #LupusTherapie #Milliarden #Österreich #patienten #Pharmariesen #Remission #Remissionen #Studien
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Das Wochenende begann noch in Hannover - nach unserem Besuch des Kleines Festes im Großen Garten. Nach dem Auschecken suchten wir uns erstmal ein opulentes Frühstück. Das grosse Kind reiste zurück nach Bremen, wir Verbliebenen fuhren zu meinem Vater und verbrachten ein paar Stunden in meinem Elternhaus. Am frühen Abend ging es zurück in den Norden.
#Freitagszeuch #Lupus #chronischkrank #tagebuchbloggen #RA -
https://www.europesays.com/at/258189/ Lupus: Potenzielle probiotische Behandlung identifiziert – Heilpraxis #AT #Austria #Bakterien #Darmbakterien #Darmflora #Gesundheit #Health #Lupus #Österreich #Probiotika #ProbiotischeBehandlung
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Heute ist der 5. und das heisst: Frau Brüllen fragt, was machen die eigentlich den ganzen Tag (#WMDEDGT im Juli 2025)?! und die Bloggerwelt antwortet.
#WMDEDGT #Lupus #chronischkrank #tagebuchbloggen #RA -
Heute ist der 5. und das heisst: Frau Brüllen fragt, was machen die eigentlich den ganzen Tag (#WMDEDGT im Juli 2025)?! und die Bloggerwelt antwortet.
Habt es schön!
#WMDEDGT im Juli 2024
#WMDEDGT im Juli 2023
#WMDEDGT im Juli 2022
#WMDEDGT im Juli 2021
#WMDEDGT im Juli 2019
vorherige #WMDEDGT
#WMDEDGT #Lupus #chronischkrank #tagebuchbloggen #RA -
Am Wochenende war hier mal wieder einiges in Bewegung. Eigentlich war es mein Wochenende, trotzdem änderten sich die Pläne gefühlt stündlich und ich war die ganze Zeit auf Abruf. Die Jungs also auf einer Veranstaltung mit dem Vater, dann ein Kind krank, Essen gehen, kein Essen gehen, am nächsten Tag nochmal. Naja. Eigentlich alles wie immer.
#Lupus #chronischkrank #tagebuchbloggen #RA -
Im Juni 2026
- ging ich zum Friseur
- bekam das kleine Kind seien MSA Ergebnisse mitgeteilt
- war ich ein Wochenende allein zuhause!
#Monatsübersicht #Lupus #chronischkrank #tagebuchbloggen #RA -
People with the autoimmune disease systemic lupus erythematosus are known to have an altered gut microbiome. *Faecalibacterium prausnitzii* abundance is depressed. A mouse study finds that supplemental *F. prausnitzii* changed the gut microbiome and reduced the symptoms of lupus.
Summary: https://medicalxpress.com/news/2026-06-potential-probiotic-treatment-lupus.html
Original paper: https://www.nature.com/articles/s41467-026-71718-z
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People with the autoimmune disease systemic lupus erythematosus are known to have an altered gut microbiome. *Faecalibacterium prausnitzii* abundance is depressed. A mouse study finds that supplemental *F. prausnitzii* changed the gut microbiome and reduced the symptoms of lupus.
Summary: https://medicalxpress.com/news/2026-06-potential-probiotic-treatment-lupus.html
Original paper: https://www.nature.com/articles/s41467-026-71718-z
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People with the autoimmune disease systemic lupus erythematosus are known to have an altered gut microbiome. *Faecalibacterium prausnitzii* abundance is depressed. A mouse study finds that supplemental *F. prausnitzii* changed the gut microbiome and reduced the symptoms of lupus.
Summary: https://medicalxpress.com/news/2026-06-potential-probiotic-treatment-lupus.html
Original paper: https://www.nature.com/articles/s41467-026-71718-z
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People with the autoimmune disease systemic lupus erythematosus are known to have an altered gut microbiome. *Faecalibacterium prausnitzii* abundance is depressed. A mouse study finds that supplemental *F. prausnitzii* changed the gut microbiome and reduced the symptoms of lupus.
Summary: https://medicalxpress.com/news/2026-06-potential-probiotic-treatment-lupus.html
Original paper: https://www.nature.com/articles/s41467-026-71718-z
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People with the autoimmune disease systemic lupus erythematosus are known to have an altered gut microbiome. *Faecalibacterium prausnitzii* abundance is depressed. A mouse study finds that supplemental *F. prausnitzii* changed the gut microbiome and reduced the symptoms of lupus.
Summary: https://medicalxpress.com/news/2026-06-potential-probiotic-treatment-lupus.html
Original paper: https://www.nature.com/articles/s41467-026-71718-z
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Das Wochenende ereignislos, ich hatte Dienst. Samstag kauften wir nach meiner Arbeit ein, erledigten Baumarkt- und Autokram, dann zogen die Kinder wieder von dannen - die Kieler Woche lockt.
Drei Spätdienste in der aktuellen Woche. Die Hitze und die vielen PatientInnen zur Kieler Woche setzten wohl vielen zu, auch mir. Es gab viel Chaos, über alle Berufsstände und Fachrichtungen verteilt.
#Freitagszeuch #Lupus #chronischkrank #tagebuchbloggen #RA -
Mit über 20 Jahren Erfahrung als Fotografin, Designerin & Citizen Scientist, die Weltraumdaten verarbeitet, brauche ich Hilfe. Um alte Schulden (Kontopfändung) aus der Zeit der Alkoholsucht zu begleichen und trotz Lupus meinen Umzug zu finanzieren, starte ich diesen Aufruf.
Seit 3 Jahren & 3 Monaten trocken.
Meine ehrliche Geschichte & Link:
https://whydonate.com/fundraising/help-jackie-overcome-the-final-hurdle
Bitte teilen (Boost)! 🤍
#MutualAidDE #Spendenaufruf #TransFrau #ChronischKrank #Lupus #Astronomie #AnonymeAlkoholiker
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With 20+ years of experience as a photographer, designer & citizen scientist processing space mission data, my pride must step aside. I face a final roadblock—a legal debt from past alcoholism struggles—blocking my path to relocation and lupus treatment.
Proudly sober for 3 years & 3 months.
Full honest story & fundraiser here:
https://whydonate.com/fundraising/help-jackie-overcome-the-final-hurdle
Please Boost! 🤍
#MutualAid #TransArtist #CitizenScience #Lupus #SoberLife #Crowdfunding #SpaceArt
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With 20+ years of experience as a photographer, designer & citizen scientist processing space mission data, my pride must step aside. I face a final roadblock—a legal debt from past alcoholism struggles—blocking my path to relocation and lupus treatment.
Proudly sober for 3 years & 3 months.
Full honest story & fundraiser here:
https://whydonate.com/fundraising/help-jackie-overcome-the-final-hurdle
Please Boost! 🤍
#MutualAid #TransArtist #CitizenScience #Lupus #SoberLife #Crowdfunding #SpaceArt
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https://www.europesays.com/ie/554614/ Scientists find link between bacterium in the gut ecosystem and lupus #AutoimmuneDisease #bacteria #Chronic #diet #DietaryFiber #Éire #FattyAcids #Genetics #Health #IE #ImmuneSystem #Immunology #inflammation #Ireland #Lupus #LupusErythematosus #medicine #Metabolites #Microbiology #Microbiome #Multiomics #Nursing #Probiotic #Probiotics #Research #SystemicLupusErythematosus
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Desde hace años no puedo evitar preguntarme si ese #Mediterráneo que tantas veces me dio paz, respuestas... lo miraría igual ahora que es cementerio (DEP 🙏🏾) y vertedero 🛞🧴🩴
Pero hoy quiero recordarlo como era.Llevo siglos buscando una lámina para tapar un cuadro eléctrico.
Este me evoca al revolcón de ola siendo niña y ha llegado justo para la #NochedeSanJuan.
#18 El sol y la playa. Mis amores prohibidos
https://domandoallobo.blogspot.com/2015/02/18-el-sol-y-la-playa-mis-amores.html #Lupus #EncefalomielitisMiálgica #Fibromialgia #Sjögren -
Desde hace años no puedo evitar preguntarme si ese #Mediterráneo que tantas veces me dio paz, respuestas... lo miraría igual ahora que es cementerio (DEP 🙏🏾) y vertedero 🛞🧴🩴
Pero hoy quiero recordarlo como era.Llevo siglos buscando una lámina para tapar un cuadro eléctrico.
Este me evoca al revolcón de ola siendo niña y ha llegado justo para la #NochedeSanJuan.
#18 El sol y la playa. Mis amores prohibidos
https://domandoallobo.blogspot.com/2015/02/18-el-sol-y-la-playa-mis-amores.html #Lupus #EncefalomielitisMiálgica #Fibromialgia #Sjögren -
Desde hace años no puedo evitar preguntarme si ese #Mediterráneo que tantas veces me dio paz, respuestas... lo miraría igual ahora que es cementerio (DEP 🙏🏾) y vertedero 🛞🧴🩴
Pero hoy quiero recordarlo como era.Llevo siglos buscando una lámina para tapar un cuadro eléctrico.
Este me evoca al revolcón de ola siendo niña y ha llegado justo para la #NochedeSanJuan.
#18 El sol y la playa. Mis amores prohibidos
https://domandoallobo.blogspot.com/2015/02/18-el-sol-y-la-playa-mis-amores.html #Lupus #EncefalomielitisMiálgica #Fibromialgia #Sjögren -
Am Samstag war ich mit den Jungs im "König der Löwen", es war sehr toll, auch den wilden Kerlen hat es gefallen. Nach dem Musical suchten wir uns (wie immer in Hamburg) etwas leckeres zu essen und liessen den Tag indisch ausklingen. Der Sonntag dann ohne Events ;).
#Freitagszeuch #Lupus #chronischkrank #tagebuchbloggen #RA -
https://www.europesays.com/at/219240/ Lupus: Infektionen treiben Schübe deutlich stärker als bisher sichtbar #AT #Austria #Biologika #Gesundheit #Health #Immuntherapie #Infektion #KlinischeStudien #Lupus #Nephritis #Österreich #PatientReportedOutcomes #Prävention #Pro #Schub #SLE
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https://www.europesays.com/at/218316/ SLE-Infektionen: Jeder zweite Patient mit schwerer Infektion – Schubrisiko steigt deutlich #Anifrolumab #AT #Austria #Belimumab #Biologika #Gesundheit #Health #Immunsystem #Infektion #Jak2 #Klinik #Lupus #Österreich #Pipeline #Prophylaxe #Rheumatologie #Risikofaktor #Schub #SLE #TmpSmx #Valaciclovir #Zoster
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https://www.europesays.com/at/216335/ SLE-Patienten: 50% erleiden schwere Infektion – neue Präventions- und Wirkstoffdaten #Anifrolumab #AT #Austria #Belimumab #Gesundheit #Health #Infektion #Jaks #JaktInhibitor #KlinischeStudie #Lupus #Österreich #Pharmakovigilanz #Pharmastudie #Prävention #Prophylaxe #Risiko #SystemischerLupus #TmpSmx #Valaciclovir
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Migraine, Perception, and Creative Flow
Living Inside A Migraine
When pain, perception, and medication reshape daily life
I’ve been dealing with a migraine for nine days. This isn’t just a headache—it comes with aura, Alice in Wonderland syndrome, and persistent vertigo with nausea. My perception gets distorted, my thinking slows down, and basic tasks become difficult. The medication helps with the pain, but it brings its own side effects, and overall, it’s been hard to function.
In the middle of this, something unexpected happened.
A Brief Shift in State
Unexpected focus and creative flow during disruption
While I was heavily medicated, I had a period of intense creative focus. For a few hours, I was able to paint with a level of freedom that I don’t usually reach. It felt like my usual mental filters were lowered. I wasn’t second‑guessing decisions or holding back. I just worked.
The result was different from my normal work—more direct, less controlled, but also more expressive.
This raised a question for me: what actually changed in that moment?
Changes in Perception
How migraine and medication alter access, not ability
Triptans, the medication I use for acute migraine attacks, act on serotonin receptors. They’re not psychedelics, but they do affect how the brain processes signals. Combined with the migraine itself—especially aura, which already alters perception—the overall effect is a shift in how I experience space, color, and thought.
That shift isn’t comfortable. Most of it is disorienting and unpleasant. But within it, there was a brief window where my usual patterns loosened. And in that space, creative work felt easier.
Access, Not Creation
The work was already there—the conditions just changed
It’s important to be clear: the migraine didn’t “create” anything. The creativity was already there. What changed was how accessible it felt. The conditions removed some of the internal constraints I usually work within—habits, expectations, and self‑editing.
That’s not something I want to rely on. The cost is too high. But it does point to something useful.
If a change in mental state can affect how I access creativity, then there may be other ways to reach similar openness without the physical toll. It suggests that part of my creative process is limited not by ability, but by structure—how tightly I control the outcome, how much I filter while working.
There’s also a broader connection here. Decades ago, I had experiences with psychedelics that shifted how I saw the world and myself. Those experiences helped me let go of a lot of fear and rigidity. I don’t return to them now, but the perspective they opened up has stayed with me.
That perspective has been important in dealing with chronic migraine. The pain itself isn’t optional, but my response to it isn’t fixed. Over time, I’ve learned to manage the mental side of it—how much resistance I bring to it, how I interpret it, and how I move through it. That doesn’t eliminate suffering, but it changes its intensity and impact.
The recent experience fits into that same pattern. Even in a difficult state, there was a moment where something shifted—not into relief exactly, but into clarity of a different kind.
For me, the takeaway isn’t about the medication or the migraine. It’s about access.
The kind of creative flow I felt isn’t something external that I need to recreate through extreme conditions. It’s something internal that I was briefly able to reach under unusual circumstances.
Openness and Letting Go
When the boundary between experience and experiencer softens
There’s also a quality in that state that’s familiar from meditation. It’s a kind of openness where the usual sense of separation starts to fade. Instead of feeling like an observer acting on an experience, there’s just the experience itself—no clear boundary between the one perceiving and what’s being perceived. In that space, the need to control or interpret loosens, and the work unfolds more directly, without the usual distance between intention and action.
Working with Pain
Perspective, resistance, and what can shift
Another layer to this is perspective. The difference between being overwhelmed by the experience and moving through it often comes down to how it’s held. I wrote previously about the Four Noble Truths and the Eightfold Path as a framework for navigating chronic pain from migraine and lupus. What stands out to me now is how practical that framework is—not as philosophy, but as a way of adjusting perspective in real time.
When The Pain Takes Over
A reminder that practice isn’t always accessible
Pain is present. That part isn’t optional. But the added weight—resistance, fear, frustration—can shift depending on how tightly I hold the experience. That said, this isn’t always accessible. There are moments when the pain takes over completely. Last night was one of those times. I woke up in the middle of the night in severe pain after my first medication didn’t work. I couldn’t find my stronger medication, didn’t have my glasses, and ended up searching through cabinets, drawers, and bags in a panic. I knew that without it, I might end up in the ER—where the treatment helps, but comes with hours of discomfort and side effects. I was overwhelmed, in tears, and scared.
In moments like that, there isn’t much space for perspective or practice. But experiences like this also make something clear to me: without meditation, without the framework I’ve built from Buddhist practice, I would likely be living in that state of panic much more often. My commotion woke up my husband, who came in—calm, steady, not caught in the panic I was in. He found the medication, and he cleaned up the mess I had made searching as I went back to bed. That contrast stood out. It reminded me that while I can’t always access those tools in the moment, they still shape how I move through these experiences over time.
Returning to Openness
Creative flow, meditation, and another way of relating to experience
It’s not easy to stay open in the middle of persistent pain. In those moments, it’s hard to remember that the pain will pass—that it isn’t permanent. Pain forces attention into the present, but not calmly or intentionally. It can narrow everything down to urgency and survival. At the same time, it can act as a kind of teacher. It shows where resistance builds, where fear takes hold, and how quickly the mind tries to escape what’s happening. When I’m able to step back, even slightly, I can see it less as something to fight and more as something that reveals how I relate to experience.
What I keep coming back to is this: the experience changes depending on how I meet it. Not completely, not all at once, but enough to matter. And in those moments of openness, there is less separation—and a little more space for things to be as they are.
I painted this over six hours while medicated for a migraine, drifting in and out of focus. The haze loosened my usual self‑judgment, and the work shifted into something more fluid and intuitive. It’s not complete, but the evolution itself tells the story.
#acceptance #alteredStates #artisticFlow #awareness #BuddhistPhilosophy #chronicIllness #chronicPain #consciousness #creativeExpression #creativeProcess #creativity #eightfoldPath #flowState #fourNobleTruths #innerLandscape #innerWork #intuitiveArt #lettingGo #livedExperience #lupus #meditation #migraine #migraineAura #mindfulness #nondualAwareness #openness #painting #perception #personalEssay #perspectiveShift #presence #resilience #transformation -
Migraine, Perception, and Creative Flow
Living Inside A Migraine
When pain, perception, and medication reshape daily life
I’ve been dealing with a migraine for nine days. This isn’t just a headache—it comes with aura, Alice in Wonderland syndrome, and persistent vertigo with nausea. My perception gets distorted, my thinking slows down, and basic tasks become difficult. The medication helps with the pain, but it brings its own side effects, and overall, it’s been hard to function.
In the middle of this, something unexpected happened.
A Brief Shift in State
Unexpected focus and creative flow during disruption
While I was heavily medicated, I had a period of intense creative focus. For a few hours, I was able to paint with a level of freedom that I don’t usually reach. It felt like my usual mental filters were lowered. I wasn’t second‑guessing decisions or holding back. I just worked.
The result was different from my normal work—more direct, less controlled, but also more expressive.
This raised a question for me: what actually changed in that moment?
Changes in Perception
How migraine and medication alter access, not ability
Triptans, the medication I use for acute migraine attacks, act on serotonin receptors. They’re not psychedelics, but they do affect how the brain processes signals. Combined with the migraine itself—especially aura, which already alters perception—the overall effect is a shift in how I experience space, color, and thought.
That shift isn’t comfortable. Most of it is disorienting and unpleasant. But within it, there was a brief window where my usual patterns loosened. And in that space, creative work felt easier.
Access, Not Creation
The work was already there—the conditions just changed
It’s important to be clear: the migraine didn’t “create” anything. The creativity was already there. What changed was how accessible it felt. The conditions removed some of the internal constraints I usually work within—habits, expectations, and self‑editing.
That’s not something I want to rely on. The cost is too high. But it does point to something useful.
If a change in mental state can affect how I access creativity, then there may be other ways to reach similar openness without the physical toll. It suggests that part of my creative process is limited not by ability, but by structure—how tightly I control the outcome, how much I filter while working.
There’s also a broader connection here. Decades ago, I had experiences with psychedelics that shifted how I saw the world and myself. Those experiences helped me let go of a lot of fear and rigidity. I don’t return to them now, but the perspective they opened up has stayed with me.
That perspective has been important in dealing with chronic migraine. The pain itself isn’t optional, but my response to it isn’t fixed. Over time, I’ve learned to manage the mental side of it—how much resistance I bring to it, how I interpret it, and how I move through it. That doesn’t eliminate suffering, but it changes its intensity and impact.
The recent experience fits into that same pattern. Even in a difficult state, there was a moment where something shifted—not into relief exactly, but into clarity of a different kind.
For me, the takeaway isn’t about the medication or the migraine. It’s about access.
The kind of creative flow I felt isn’t something external that I need to recreate through extreme conditions. It’s something internal that I was briefly able to reach under unusual circumstances.
Openness and Letting Go
When the boundary between experience and experiencer softens
There’s also a quality in that state that’s familiar from meditation. It’s a kind of openness where the usual sense of separation starts to fade. Instead of feeling like an observer acting on an experience, there’s just the experience itself—no clear boundary between the one perceiving and what’s being perceived. In that space, the need to control or interpret loosens, and the work unfolds more directly, without the usual distance between intention and action.
Working with Pain
Perspective, resistance, and what can shift
Another layer to this is perspective. The difference between being overwhelmed by the experience and moving through it often comes down to how it’s held. I wrote previously about the Four Noble Truths and the Eightfold Path as a framework for navigating chronic pain from migraine and lupus. What stands out to me now is how practical that framework is—not as philosophy, but as a way of adjusting perspective in real time.
When The Pain Takes Over
A reminder that practice isn’t always accessible
Pain is present. That part isn’t optional. But the added weight—resistance, fear, frustration—can shift depending on how tightly I hold the experience. That said, this isn’t always accessible. There are moments when the pain takes over completely. Last night was one of those times. I woke up in the middle of the night in severe pain after my first medication didn’t work. I couldn’t find my stronger medication, didn’t have my glasses, and ended up searching through cabinets, drawers, and bags in a panic. I knew that without it, I might end up in the ER—where the treatment helps, but comes with hours of discomfort and side effects. I was overwhelmed, in tears, and scared.
In moments like that, there isn’t much space for perspective or practice. But experiences like this also make something clear to me: without meditation, without the framework I’ve built from Buddhist practice, I would likely be living in that state of panic much more often. My commotion woke up my husband, who came in—calm, steady, not caught in the panic I was in. He found the medication, and he cleaned up the mess I had made searching as I went back to bed. That contrast stood out. It reminded me that while I can’t always access those tools in the moment, they still shape how I move through these experiences over time.
Returning to Openness
Creative flow, meditation, and another way of relating to experience
It’s not easy to stay open in the middle of persistent pain. In those moments, it’s hard to remember that the pain will pass—that it isn’t permanent. Pain forces attention into the present, but not calmly or intentionally. It can narrow everything down to urgency and survival. At the same time, it can act as a kind of teacher. It shows where resistance builds, where fear takes hold, and how quickly the mind tries to escape what’s happening. When I’m able to step back, even slightly, I can see it less as something to fight and more as something that reveals how I relate to experience.
What I keep coming back to is this: the experience changes depending on how I meet it. Not completely, not all at once, but enough to matter. And in those moments of openness, there is less separation—and a little more space for things to be as they are.
I painted this over six hours while medicated for a migraine, drifting in and out of focus. The haze loosened my usual self‑judgment, and the work shifted into something more fluid and intuitive. It’s not complete, but the evolution itself tells the story.
#acceptance #alteredStates #artisticFlow #awareness #BuddhistPhilosophy #chronicIllness #chronicPain #consciousness #creativeExpression #creativeProcess #creativity #eightfoldPath #flowState #fourNobleTruths #innerLandscape #innerWork #intuitiveArt #lettingGo #livedExperience #lupus #meditation #migraine #migraineAura #mindfulness #nondualAwareness #openness #painting #perception #personalEssay #perspectiveShift #presence #resilience #transformation -
“Why #endometriosis should be classified as a whole‑body inflammatory disorder like #lupus or multiple sclerosis”
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“Why #endometriosis should be classified as a whole‑body inflammatory disorder like #lupus or multiple sclerosis”
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https://www.europesays.com/at/200558/ Multiple Sklerose: Bluttest erkennt Erkrankung 6 Jahre früher #AT #Austria #Behandlungen #Bluttest #Diabetes #Diagnostik #erkrankung #Fortschritte #Gesundheit #Health #Lupus #Multiple #Österreich #Sklerose #Studien
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Tiptoeing out here to say in a whisper that May was #Lupus Awareness Month and so I [lowers voice] started a TikTok about my journey, here: https://www.tiktok.com/@potterdc
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Tiptoeing out here to say in a whisper that May was #Lupus Awareness Month and so I [lowers voice] started a TikTok about my journey, here: https://www.tiktok.com/@potterdc
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The Healing Journey: Small Steps to Wellness
Last weekend, I hiked the easy Inman Pond trail in the Adirondacks. With an elevation gain of only about 475 ft., it was a manageable hike. A year ago, I would have found it painful and challenging; three years ago, the Inman Pond trail would have felt almost impossible.
Perspective Shift
The extent to which chronic migraine, lupus, and endometriosis have shifted my life and my perspective over the last six years is not as vast as I had once believed. Through the often relentless pain and suffering, I am still me; the inherent essence of who I am sits quietly behind the pain, behind the striving for healing.
The Still Point
This still point, a sanctuary amidst the chaos, is my anchor. It was from this point of calm and clarity that I began to make small but significant changes to aid in my healing journey. I have learned to listen to my body, understanding its rhythms and needs, allowing myself to rest when required and gradually incorporating gentle movements that foster both physical and emotional well-being.
Health Shifts
Of course, my doctors have prescribed medications to help control the symptoms of these ailments, which help but do not cure or obliterate the pain. These medications can provide temporary relief, yet the underlying struggles remain, weighing heavily on my daily life. I had lost so much strength, muscle, and ability, and no magic pill was going to bring that back.
Living Fully
Before lupus and the resurgence of my chronic migraine, I was heavily involved in community and physical activity. Helping with local school musical productions from set work to directing, while running 15 to 20 miles a week, attending multiple yoga classes, and engaging in vigorous strength training, I was on fire!
The Fire Goes Out
Photo by Keenan Constance on Pexels.comThat fire didn’t burn out slowly; it was extinguished with a suddenness that took me by surprise. In a few months, I went from seemingly healthy—exercising regularly and enjoying life—to struggling to walk and speak, tasks that once felt second nature. Simple conversations became exhausting, and I found myself grappling with frustration as my body betrayed me. At its worst, I was sent to the ER because my doctor thought I was having a stroke, a harrowing experience that left me feeling both helpless and afraid for my future. Each day felt like a battle, leaving me to question how quickly everything could change.
Rediscovering The Still Point
The journey to reclaim my former self has been an uphill battle, filled with moments of frustration and doubt. I had to rely on my inner strength, digging deep to unearth reserves of resilience that I never knew I possessed. It was crucial for me to continuously find that still point amid the pain, a place of calm where I could gather my thoughts and recharge my spirit, reminding myself that each day was another opportunity for growth and healing despite the challenges I faced.
Incorporating Wellness Practices
Through these small steps, such as taking the stairs at work instead of the elevator, adding moments of reflection and meditation to my day, and shifting towards an anti-inflammatory diet, I have made tremendous progress over the last year.
Learning Patience
I was occasionally impatient with my progress; for example, I work on the eighth floor, so I decided that taking the stairs would be a good way to gradually increase my strength over time. I assumed steady progress would be the norm. However, on certain days when I could only make it to the fourth floor and had to take the elevator, I would feel betrayed by my body. It was frustrating to realize that despite my efforts, my physical limitations sometimes got the better of me, leaving me to wonder if I was truly making any progress at all. Each setback felt like a personal defeat, yet deep down, I knew every little attempt contributed to my journey toward better health.
Small Steps = Great Progress
These efforts, which seemed minor at first, have collectively contributed to a healthier lifestyle and improved well-being. I have found that the more I prioritize my physical health and mental clarity, the more energized and motivated I feel. As a result, I can finally get out and enjoy trekking through my favorite place in the world, the Adirondacks, where majestic mountains and serene lakes rejuvenate my spirit and provide a sense of peace.
The Beauty of Struggle
Had I had a life without turmoil, backsliding, or trauma, I would not be managing stress the way I can today. Every hardship in my life has taught me resilience, how to move through difficulty with grace and flow. Challenges taught me the importance of patience and critical thinking, and that most things are not as unbearable as they seem. Each experience, whether it felt overwhelming or insurmountable at the time, has carved out a deeper understanding within me.
Suffering as Wisdom
I discovered that suffering is a teacher, imparting wisdom that becomes a part of my very being. I spoke about ways of coping in the piece “Navigating Suffering Through Buddhist Wisdom” a few weeks ago, sharing insights that arise from reflecting on my journey. Using this framework, I can patiently and deliberately move towards wholeness, embracing not only the light but also the shadows that shape my existence.
Returning To Wholeness
My journey through chronic pain and illness has not only reshaped my physical abilities but has also profoundly influenced my perspective on life. The trials I have faced have cultivated resilience, compassion, and an understanding that healing is a multifaceted process that encompasses both body and mind.
Moving Forward
By embracing the small victories and honoring my body’s signals, I have discovered a renewed sense of purpose and clarity. The Adirondacks, with their rugged beauty, serve as a reminder of the peace that can exist alongside struggle. As I continue to navigate my healing path, I carry forward the lessons learned through suffering, committed to nurturing both my physical health and my spirit, and embracing each step as part of a greater journey toward wholeness.
Below, I have lovingly cultivated a list of gentle practices to help you embark on your healing journey. Please remember to be patient with yourself; healing is rarely a straightforward path. We meander and flow, gathering momentum and wisdom as we navigate our healing journey with intentionality and compassion
Gentle Ways To Begin Healing
- Listen to Your Body: Pay attention to the signals your body sends. Acknowledge when you need rest and allow yourself the time to recuperate.
- Incorporate Gentle Movements: Start with simple stretches or light activities that your body can handle. Aim to gradually increase your activity levels as your strength improves.
- Practice Mindfulness and Meditation: Set aside moments each day for mindfulness or meditation. Use this time to center yourself, breathe deeply, and cultivate inner peace.
- Focus on Nutrition: Transition to an anti-inflammatory diet that includes whole foods. Incorporate more fruits, vegetables, whole grains, and lean proteins into your meals.
- Engage in Reflective Practices: Take time for journaling or reflection. Consider your thoughts, feelings, and experiences, and how they contribute to your healing process.
- Seek Support: Connect with friends, family, or support groups who understand your journey. Sharing your challenges can foster a sense of community and belonging.
- Embrace Nature: Spend time outdoors in natural settings. Activities like hiking, walking, or simply sitting in a park can provide rejuvenation for both mind and spirit.
- Be Patient with Yourself: Understand that healing is a journey that takes time. Be compassionate toward yourself, acknowledging that ups and downs are a natural part of the process.
- Create a Healthy Sleep Routine: Aim for consistent sleep patterns. Prioritize restful sleep by creating a calming bedtime environment.
- Limit Screen Time: Reduce exposure to screens, especially before bed. This can help improve sleep quality and reduce fatigue.
- Practice Gratitude: Keep a gratitude journal to document what you appreciate each day. This can shift your mindset and enhance overall well-being.
If you are beginning your healing journey, I suggest starting with listening to your body. This is where we truly learn the wisdom held within ourselves. Our bodies possess innate knowledge that guides us; they know when we need rest, self-care, or movement. By taking the time to listen deeply to the inherent wisdom, we allow the body and mind to communicate with each other, opening the pathways to wholeness. This connection fosters a deeper understanding of our needs, cultivating an environment where healing can flourish. As you engage in this practice, you may discover signals that indicate emotional or physical states, helping you to navigate life’s challenges with greater awareness and resilience. Remember, each step you take in tuning into your body’s messages brings you closer to a harmonious balance, nurturing both your inner self and overall well-being.
For deeper emotional healing, I offer you this free guide to Somatic Experiencing, which delves into the profound connection between our bodies and our feelings. This guide is designed to help you understand how our physical sensations can inform our emotional states and facilitate healing. By engaging with the principles of Somatic Experiencing, you will learn practical techniques to process trauma, release tension, and foster a sense of safety within your body. Embrace this opportunity to explore a holistic approach to healing, enabling you to cultivate resilience and emotional well-being.
Somatic Experiencing for WellbeingDownload #awareness #balance #bodyMindSpirit #chronicIllness #easyStepsForHealing #experience #flow #healing #healingPath #healthyLife #journeyToWholeness #limits #lupus #meditation #mentalHealth #migraine #migraineHealing #mindful #mindfulHealing #MindfulLiving #mindfulness #moments #naturalLife #pain #physicalLimitation #practice #regainingStrength #resilience #stepsForHealing #suffering #thoughtfulHealing #thoughtfulLiving #wellbeing #wellness #wholeness #wisdom -
The Healing Journey: Small Steps to Wellness
Last weekend, I hiked the easy Inman Pond trail in the Adirondacks. With an elevation gain of only about 475 ft., it was a manageable hike. A year ago, I would have found it painful and challenging; three years ago, the Inman Pond trail would have felt almost impossible.
Perspective Shift
The extent to which chronic migraine, lupus, and endometriosis have shifted my life and my perspective over the last six years is not as vast as I had once believed. Through the often relentless pain and suffering, I am still me; the inherent essence of who I am sits quietly behind the pain, behind the striving for healing.
The Still Point
This still point, a sanctuary amidst the chaos, is my anchor. It was from this point of calm and clarity that I began to make small but significant changes to aid in my healing journey. I have learned to listen to my body, understanding its rhythms and needs, allowing myself to rest when required and gradually incorporating gentle movements that foster both physical and emotional well-being.
Health Shifts
Of course, my doctors have prescribed medications to help control the symptoms of these ailments, which help but do not cure or obliterate the pain. These medications can provide temporary relief, yet the underlying struggles remain, weighing heavily on my daily life. I had lost so much strength, muscle, and ability, and no magic pill was going to bring that back.
Living Fully
Before lupus and the resurgence of my chronic migraine, I was heavily involved in community and physical activity. Helping with local school musical productions from set work to directing, while running 15 to 20 miles a week, attending multiple yoga classes, and engaging in vigorous strength training, I was on fire!
The Fire Goes Out
Photo by Keenan Constance on Pexels.comThat fire didn’t burn out slowly; it was extinguished with a suddenness that took me by surprise. In a few months, I went from seemingly healthy—exercising regularly and enjoying life—to struggling to walk and speak, tasks that once felt second nature. Simple conversations became exhausting, and I found myself grappling with frustration as my body betrayed me. At its worst, I was sent to the ER because my doctor thought I was having a stroke, a harrowing experience that left me feeling both helpless and afraid for my future. Each day felt like a battle, leaving me to question how quickly everything could change.
Rediscovering The Still Point
The journey to reclaim my former self has been an uphill battle, filled with moments of frustration and doubt. I had to rely on my inner strength, digging deep to unearth reserves of resilience that I never knew I possessed. It was crucial for me to continuously find that still point amid the pain, a place of calm where I could gather my thoughts and recharge my spirit, reminding myself that each day was another opportunity for growth and healing despite the challenges I faced.
Incorporating Wellness Practices
Through these small steps, such as taking the stairs at work instead of the elevator, adding moments of reflection and meditation to my day, and shifting towards an anti-inflammatory diet, I have made tremendous progress over the last year.
Learning Patience
I was occasionally impatient with my progress; for example, I work on the eighth floor, so I decided that taking the stairs would be a good way to gradually increase my strength over time. I assumed steady progress would be the norm. However, on certain days when I could only make it to the fourth floor and had to take the elevator, I would feel betrayed by my body. It was frustrating to realize that despite my efforts, my physical limitations sometimes got the better of me, leaving me to wonder if I was truly making any progress at all. Each setback felt like a personal defeat, yet deep down, I knew every little attempt contributed to my journey toward better health.
Small Steps = Great Progress
These efforts, which seemed minor at first, have collectively contributed to a healthier lifestyle and improved well-being. I have found that the more I prioritize my physical health and mental clarity, the more energized and motivated I feel. As a result, I can finally get out and enjoy trekking through my favorite place in the world, the Adirondacks, where majestic mountains and serene lakes rejuvenate my spirit and provide a sense of peace.
The Beauty of Struggle
Had I had a life without turmoil, backsliding, or trauma, I would not be managing stress the way I can today. Every hardship in my life has taught me resilience, how to move through difficulty with grace and flow. Challenges taught me the importance of patience and critical thinking, and that most things are not as unbearable as they seem. Each experience, whether it felt overwhelming or insurmountable at the time, has carved out a deeper understanding within me.
Suffering as Wisdom
I discovered that suffering is a teacher, imparting wisdom that becomes a part of my very being. I spoke about ways of coping in the piece “Navigating Suffering Through Buddhist Wisdom” a few weeks ago, sharing insights that arise from reflecting on my journey. Using this framework, I can patiently and deliberately move towards wholeness, embracing not only the light but also the shadows that shape my existence.
Returning To Wholeness
My journey through chronic pain and illness has not only reshaped my physical abilities but has also profoundly influenced my perspective on life. The trials I have faced have cultivated resilience, compassion, and an understanding that healing is a multifaceted process that encompasses both body and mind.
Moving Forward
By embracing the small victories and honoring my body’s signals, I have discovered a renewed sense of purpose and clarity. The Adirondacks, with their rugged beauty, serve as a reminder of the peace that can exist alongside struggle. As I continue to navigate my healing path, I carry forward the lessons learned through suffering, committed to nurturing both my physical health and my spirit, and embracing each step as part of a greater journey toward wholeness.
Below, I have lovingly cultivated a list of gentle practices to help you embark on your healing journey. Please remember to be patient with yourself; healing is rarely a straightforward path. We meander and flow, gathering momentum and wisdom as we navigate our healing journey with intentionality and compassion
Gentle Ways To Begin Healing
- Listen to Your Body: Pay attention to the signals your body sends. Acknowledge when you need rest and allow yourself the time to recuperate.
- Incorporate Gentle Movements: Start with simple stretches or light activities that your body can handle. Aim to gradually increase your activity levels as your strength improves.
- Practice Mindfulness and Meditation: Set aside moments each day for mindfulness or meditation. Use this time to center yourself, breathe deeply, and cultivate inner peace.
- Focus on Nutrition: Transition to an anti-inflammatory diet that includes whole foods. Incorporate more fruits, vegetables, whole grains, and lean proteins into your meals.
- Engage in Reflective Practices: Take time for journaling or reflection. Consider your thoughts, feelings, and experiences, and how they contribute to your healing process.
- Seek Support: Connect with friends, family, or support groups who understand your journey. Sharing your challenges can foster a sense of community and belonging.
- Embrace Nature: Spend time outdoors in natural settings. Activities like hiking, walking, or simply sitting in a park can provide rejuvenation for both mind and spirit.
- Be Patient with Yourself: Understand that healing is a journey that takes time. Be compassionate toward yourself, acknowledging that ups and downs are a natural part of the process.
- Create a Healthy Sleep Routine: Aim for consistent sleep patterns. Prioritize restful sleep by creating a calming bedtime environment.
- Limit Screen Time: Reduce exposure to screens, especially before bed. This can help improve sleep quality and reduce fatigue.
- Practice Gratitude: Keep a gratitude journal to document what you appreciate each day. This can shift your mindset and enhance overall well-being.
If you are beginning your healing journey, I suggest starting with listening to your body. This is where we truly learn the wisdom held within ourselves. Our bodies possess innate knowledge that guides us; they know when we need rest, self-care, or movement. By taking the time to listen deeply to the inherent wisdom, we allow the body and mind to communicate with each other, opening the pathways to wholeness. This connection fosters a deeper understanding of our needs, cultivating an environment where healing can flourish. As you engage in this practice, you may discover signals that indicate emotional or physical states, helping you to navigate life’s challenges with greater awareness and resilience. Remember, each step you take in tuning into your body’s messages brings you closer to a harmonious balance, nurturing both your inner self and overall well-being.
For deeper emotional healing, I offer you this free guide to Somatic Experiencing, which delves into the profound connection between our bodies and our feelings. This guide is designed to help you understand how our physical sensations can inform our emotional states and facilitate healing. By engaging with the principles of Somatic Experiencing, you will learn practical techniques to process trauma, release tension, and foster a sense of safety within your body. Embrace this opportunity to explore a holistic approach to healing, enabling you to cultivate resilience and emotional well-being.
Somatic Experiencing for WellbeingDownload #awareness #balance #bodyMindSpirit #chronicIllness #easyStepsForHealing #experience #flow #healing #healingPath #healthyLife #journeyToWholeness #limits #lupus #meditation #mentalHealth #migraine #migraineHealing #mindful #mindfulHealing #MindfulLiving #mindfulness #moments #naturalLife #pain #physicalLimitation #practice #regainingStrength #resilience #stepsForHealing #suffering #thoughtfulHealing #thoughtfulLiving #wellbeing #wellness #wholeness #wisdom -
The Healing Journey: Small Steps to Wellness
Last weekend, I hiked the easy Inman Pond trail in the Adirondacks. With an elevation gain of only about 475 ft., it was a manageable hike. A year ago, I would have found it painful and challenging; three years ago, the Inman Pond trail would have felt almost impossible.
Perspective Shift
The extent to which chronic migraine, lupus, and endometriosis have shifted my life and my perspective over the last six years is not as vast as I had once believed. Through the often relentless pain and suffering, I am still me; the inherent essence of who I am sits quietly behind the pain, behind the striving for healing.
The Still Point
This still point, a sanctuary amidst the chaos, is my anchor. It was from this point of calm and clarity that I began to make small but significant changes to aid in my healing journey. I have learned to listen to my body, understanding its rhythms and needs, allowing myself to rest when required and gradually incorporating gentle movements that foster both physical and emotional well-being.
Health Shifts
Of course, my doctors have prescribed medications to help control the symptoms of these ailments, which help but do not cure or obliterate the pain. These medications can provide temporary relief, yet the underlying struggles remain, weighing heavily on my daily life. I had lost so much strength, muscle, and ability, and no magic pill was going to bring that back.
Living Fully
Before lupus and the resurgence of my chronic migraine, I was heavily involved in community and physical activity. Helping with local school musical productions from set work to directing, while running 15 to 20 miles a week, attending multiple yoga classes, and engaging in vigorous strength training, I was on fire!
The Fire Goes Out
Photo by Keenan Constance on Pexels.comThat fire didn’t burn out slowly; it was extinguished with a suddenness that took me by surprise. In a few months, I went from seemingly healthy—exercising regularly and enjoying life—to struggling to walk and speak, tasks that once felt second nature. Simple conversations became exhausting, and I found myself grappling with frustration as my body betrayed me. At its worst, I was sent to the ER because my doctor thought I was having a stroke, a harrowing experience that left me feeling both helpless and afraid for my future. Each day felt like a battle, leaving me to question how quickly everything could change.
Rediscovering The Still Point
The journey to reclaim my former self has been an uphill battle, filled with moments of frustration and doubt. I had to rely on my inner strength, digging deep to unearth reserves of resilience that I never knew I possessed. It was crucial for me to continuously find that still point amid the pain, a place of calm where I could gather my thoughts and recharge my spirit, reminding myself that each day was another opportunity for growth and healing despite the challenges I faced.
Incorporating Wellness Practices
Through these small steps, such as taking the stairs at work instead of the elevator, adding moments of reflection and meditation to my day, and shifting towards an anti-inflammatory diet, I have made tremendous progress over the last year.
Learning Patience
I was occasionally impatient with my progress; for example, I work on the eighth floor, so I decided that taking the stairs would be a good way to gradually increase my strength over time. I assumed steady progress would be the norm. However, on certain days when I could only make it to the fourth floor and had to take the elevator, I would feel betrayed by my body. It was frustrating to realize that despite my efforts, my physical limitations sometimes got the better of me, leaving me to wonder if I was truly making any progress at all. Each setback felt like a personal defeat, yet deep down, I knew every little attempt contributed to my journey toward better health.
Small Steps = Great Progress
These efforts, which seemed minor at first, have collectively contributed to a healthier lifestyle and improved well-being. I have found that the more I prioritize my physical health and mental clarity, the more energized and motivated I feel. As a result, I can finally get out and enjoy trekking through my favorite place in the world, the Adirondacks, where majestic mountains and serene lakes rejuvenate my spirit and provide a sense of peace.
The Beauty of Struggle
Had I had a life without turmoil, backsliding, or trauma, I would not be managing stress the way I can today. Every hardship in my life has taught me resilience, how to move through difficulty with grace and flow. Challenges taught me the importance of patience and critical thinking, and that most things are not as unbearable as they seem. Each experience, whether it felt overwhelming or insurmountable at the time, has carved out a deeper understanding within me.
Suffering as Wisdom
I discovered that suffering is a teacher, imparting wisdom that becomes a part of my very being. I spoke about ways of coping in the piece “Navigating Suffering Through Buddhist Wisdom” a few weeks ago, sharing insights that arise from reflecting on my journey. Using this framework, I can patiently and deliberately move towards wholeness, embracing not only the light but also the shadows that shape my existence.
Returning To Wholeness
My journey through chronic pain and illness has not only reshaped my physical abilities but has also profoundly influenced my perspective on life. The trials I have faced have cultivated resilience, compassion, and an understanding that healing is a multifaceted process that encompasses both body and mind.
Moving Forward
By embracing the small victories and honoring my body’s signals, I have discovered a renewed sense of purpose and clarity. The Adirondacks, with their rugged beauty, serve as a reminder of the peace that can exist alongside struggle. As I continue to navigate my healing path, I carry forward the lessons learned through suffering, committed to nurturing both my physical health and my spirit, and embracing each step as part of a greater journey toward wholeness.
Below, I have lovingly cultivated a list of gentle practices to help you embark on your healing journey. Please remember to be patient with yourself; healing is rarely a straightforward path. We meander and flow, gathering momentum and wisdom as we navigate our healing journey with intentionality and compassion
Gentle Ways To Begin Healing
- Listen to Your Body: Pay attention to the signals your body sends. Acknowledge when you need rest and allow yourself the time to recuperate.
- Incorporate Gentle Movements: Start with simple stretches or light activities that your body can handle. Aim to gradually increase your activity levels as your strength improves.
- Practice Mindfulness and Meditation: Set aside moments each day for mindfulness or meditation. Use this time to center yourself, breathe deeply, and cultivate inner peace.
- Focus on Nutrition: Transition to an anti-inflammatory diet that includes whole foods. Incorporate more fruits, vegetables, whole grains, and lean proteins into your meals.
- Engage in Reflective Practices: Take time for journaling or reflection. Consider your thoughts, feelings, and experiences, and how they contribute to your healing process.
- Seek Support: Connect with friends, family, or support groups who understand your journey. Sharing your challenges can foster a sense of community and belonging.
- Embrace Nature: Spend time outdoors in natural settings. Activities like hiking, walking, or simply sitting in a park can provide rejuvenation for both mind and spirit.
- Be Patient with Yourself: Understand that healing is a journey that takes time. Be compassionate toward yourself, acknowledging that ups and downs are a natural part of the process.
- Create a Healthy Sleep Routine: Aim for consistent sleep patterns. Prioritize restful sleep by creating a calming bedtime environment.
- Limit Screen Time: Reduce exposure to screens, especially before bed. This can help improve sleep quality and reduce fatigue.
- Practice Gratitude: Keep a gratitude journal to document what you appreciate each day. This can shift your mindset and enhance overall well-being.
If you are beginning your healing journey, I suggest starting with listening to your body. This is where we truly learn the wisdom held within ourselves. Our bodies possess innate knowledge that guides us; they know when we need rest, self-care, or movement. By taking the time to listen deeply to the inherent wisdom, we allow the body and mind to communicate with each other, opening the pathways to wholeness. This connection fosters a deeper understanding of our needs, cultivating an environment where healing can flourish. As you engage in this practice, you may discover signals that indicate emotional or physical states, helping you to navigate life’s challenges with greater awareness and resilience. Remember, each step you take in tuning into your body’s messages brings you closer to a harmonious balance, nurturing both your inner self and overall well-being.
For deeper emotional healing, I offer you this free guide to Somatic Experiencing, which delves into the profound connection between our bodies and our feelings. This guide is designed to help you understand how our physical sensations can inform our emotional states and facilitate healing. By engaging with the principles of Somatic Experiencing, you will learn practical techniques to process trauma, release tension, and foster a sense of safety within your body. Embrace this opportunity to explore a holistic approach to healing, enabling you to cultivate resilience and emotional well-being.
Somatic Experiencing for WellbeingDownload #awareness #balance #bodyMindSpirit #chronicIllness #easyStepsForHealing #experience #flow #healing #healingPath #healthyLife #journeyToWholeness #limits #lupus #meditation #mentalHealth #migraine #migraineHealing #mindful #mindfulHealing #MindfulLiving #mindfulness #moments #naturalLife #pain #physicalLimitation #practice #regainingStrength #resilience #stepsForHealing #suffering #thoughtfulHealing #thoughtfulLiving #wellbeing #wellness #wholeness #wisdom -
The Healing Journey: Small Steps to Wellness
Last weekend, I hiked the easy Inman Pond trail in the Adirondacks. With an elevation gain of only about 475 ft., it was a manageable hike. A year ago, I would have found it painful and challenging; three years ago, the Inman Pond trail would have felt almost impossible.
Perspective Shift
The extent to which chronic migraine, lupus, and endometriosis have shifted my life and my perspective over the last six years is not as vast as I had once believed. Through the often relentless pain and suffering, I am still me; the inherent essence of who I am sits quietly behind the pain, behind the striving for healing.
The Still Point
This still point, a sanctuary amidst the chaos, is my anchor. It was from this point of calm and clarity that I began to make small but significant changes to aid in my healing journey. I have learned to listen to my body, understanding its rhythms and needs, allowing myself to rest when required and gradually incorporating gentle movements that foster both physical and emotional well-being.
Health Shifts
Of course, my doctors have prescribed medications to help control the symptoms of these ailments, which help but do not cure or obliterate the pain. These medications can provide temporary relief, yet the underlying struggles remain, weighing heavily on my daily life. I had lost so much strength, muscle, and ability, and no magic pill was going to bring that back.
Living Fully
Before lupus and the resurgence of my chronic migraine, I was heavily involved in community and physical activity. Helping with local school musical productions from set work to directing, while running 15 to 20 miles a week, attending multiple yoga classes, and engaging in vigorous strength training, I was on fire!
The Fire Goes Out
Photo by Keenan Constance on Pexels.comThat fire didn’t burn out slowly; it was extinguished with a suddenness that took me by surprise. In a few months, I went from seemingly healthy—exercising regularly and enjoying life—to struggling to walk and speak, tasks that once felt second nature. Simple conversations became exhausting, and I found myself grappling with frustration as my body betrayed me. At its worst, I was sent to the ER because my doctor thought I was having a stroke, a harrowing experience that left me feeling both helpless and afraid for my future. Each day felt like a battle, leaving me to question how quickly everything could change.
Rediscovering The Still Point
The journey to reclaim my former self has been an uphill battle, filled with moments of frustration and doubt. I had to rely on my inner strength, digging deep to unearth reserves of resilience that I never knew I possessed. It was crucial for me to continuously find that still point amid the pain, a place of calm where I could gather my thoughts and recharge my spirit, reminding myself that each day was another opportunity for growth and healing despite the challenges I faced.
Incorporating Wellness Practices
Through these small steps, such as taking the stairs at work instead of the elevator, adding moments of reflection and meditation to my day, and shifting towards an anti-inflammatory diet, I have made tremendous progress over the last year.
Learning Patience
I was occasionally impatient with my progress; for example, I work on the eighth floor, so I decided that taking the stairs would be a good way to gradually increase my strength over time. I assumed steady progress would be the norm. However, on certain days when I could only make it to the fourth floor and had to take the elevator, I would feel betrayed by my body. It was frustrating to realize that despite my efforts, my physical limitations sometimes got the better of me, leaving me to wonder if I was truly making any progress at all. Each setback felt like a personal defeat, yet deep down, I knew every little attempt contributed to my journey toward better health.
Small Steps = Great Progress
These efforts, which seemed minor at first, have collectively contributed to a healthier lifestyle and improved well-being. I have found that the more I prioritize my physical health and mental clarity, the more energized and motivated I feel. As a result, I can finally get out and enjoy trekking through my favorite place in the world, the Adirondacks, where majestic mountains and serene lakes rejuvenate my spirit and provide a sense of peace.
The Beauty of Struggle
Had I had a life without turmoil, backsliding, or trauma, I would not be managing stress the way I can today. Every hardship in my life has taught me resilience, how to move through difficulty with grace and flow. Challenges taught me the importance of patience and critical thinking, and that most things are not as unbearable as they seem. Each experience, whether it felt overwhelming or insurmountable at the time, has carved out a deeper understanding within me.
Suffering as Wisdom
I discovered that suffering is a teacher, imparting wisdom that becomes a part of my very being. I spoke about ways of coping in the piece “Navigating Suffering Through Buddhist Wisdom” a few weeks ago, sharing insights that arise from reflecting on my journey. Using this framework, I can patiently and deliberately move towards wholeness, embracing not only the light but also the shadows that shape my existence.
Returning To Wholeness
My journey through chronic pain and illness has not only reshaped my physical abilities but has also profoundly influenced my perspective on life. The trials I have faced have cultivated resilience, compassion, and an understanding that healing is a multifaceted process that encompasses both body and mind.
Moving Forward
By embracing the small victories and honoring my body’s signals, I have discovered a renewed sense of purpose and clarity. The Adirondacks, with their rugged beauty, serve as a reminder of the peace that can exist alongside struggle. As I continue to navigate my healing path, I carry forward the lessons learned through suffering, committed to nurturing both my physical health and my spirit, and embracing each step as part of a greater journey toward wholeness.
Below, I have lovingly cultivated a list of gentle practices to help you embark on your healing journey. Please remember to be patient with yourself; healing is rarely a straightforward path. We meander and flow, gathering momentum and wisdom as we navigate our healing journey with intentionality and compassion
Gentle Ways To Begin Healing
- Listen to Your Body: Pay attention to the signals your body sends. Acknowledge when you need rest and allow yourself the time to recuperate.
- Incorporate Gentle Movements: Start with simple stretches or light activities that your body can handle. Aim to gradually increase your activity levels as your strength improves.
- Practice Mindfulness and Meditation: Set aside moments each day for mindfulness or meditation. Use this time to center yourself, breathe deeply, and cultivate inner peace.
- Focus on Nutrition: Transition to an anti-inflammatory diet that includes whole foods. Incorporate more fruits, vegetables, whole grains, and lean proteins into your meals.
- Engage in Reflective Practices: Take time for journaling or reflection. Consider your thoughts, feelings, and experiences, and how they contribute to your healing process.
- Seek Support: Connect with friends, family, or support groups who understand your journey. Sharing your challenges can foster a sense of community and belonging.
- Embrace Nature: Spend time outdoors in natural settings. Activities like hiking, walking, or simply sitting in a park can provide rejuvenation for both mind and spirit.
- Be Patient with Yourself: Understand that healing is a journey that takes time. Be compassionate toward yourself, acknowledging that ups and downs are a natural part of the process.
- Create a Healthy Sleep Routine: Aim for consistent sleep patterns. Prioritize restful sleep by creating a calming bedtime environment.
- Limit Screen Time: Reduce exposure to screens, especially before bed. This can help improve sleep quality and reduce fatigue.
- Practice Gratitude: Keep a gratitude journal to document what you appreciate each day. This can shift your mindset and enhance overall well-being.
If you are beginning your healing journey, I suggest starting with listening to your body. This is where we truly learn the wisdom held within ourselves. Our bodies possess innate knowledge that guides us; they know when we need rest, self-care, or movement. By taking the time to listen deeply to the inherent wisdom, we allow the body and mind to communicate with each other, opening the pathways to wholeness. This connection fosters a deeper understanding of our needs, cultivating an environment where healing can flourish. As you engage in this practice, you may discover signals that indicate emotional or physical states, helping you to navigate life’s challenges with greater awareness and resilience. Remember, each step you take in tuning into your body’s messages brings you closer to a harmonious balance, nurturing both your inner self and overall well-being.
For deeper emotional healing, I offer you this free guide to Somatic Experiencing, which delves into the profound connection between our bodies and our feelings. This guide is designed to help you understand how our physical sensations can inform our emotional states and facilitate healing. By engaging with the principles of Somatic Experiencing, you will learn practical techniques to process trauma, release tension, and foster a sense of safety within your body. Embrace this opportunity to explore a holistic approach to healing, enabling you to cultivate resilience and emotional well-being.
Somatic Experiencing for WellbeingDownload #awareness #balance #bodyMindSpirit #chronicIllness #easyStepsForHealing #experience #flow #healing #healingPath #healthyLife #journeyToWholeness #limits #lupus #meditation #mentalHealth #migraine #migraineHealing #mindful #mindfulHealing #MindfulLiving #mindfulness #moments #naturalLife #pain #physicalLimitation #practice #regainingStrength #resilience #stepsForHealing #suffering #thoughtfulHealing #thoughtfulLiving #wellbeing #wellness #wholeness #wisdom -
The Healing Journey: Small Steps to Wellness
Last weekend, I hiked the easy Inman Pond trail in the Adirondacks. With an elevation gain of only about 475 ft., it was a manageable hike. A year ago, I would have found it painful and challenging; three years ago, the Inman Pond trail would have felt almost impossible.
Perspective Shift
The extent to which chronic migraine, lupus, and endometriosis have shifted my life and my perspective over the last six years is not as vast as I had once believed. Through the often relentless pain and suffering, I am still me; the inherent essence of who I am sits quietly behind the pain, behind the striving for healing.
The Still Point
This still point, a sanctuary amidst the chaos, is my anchor. It was from this point of calm and clarity that I began to make small but significant changes to aid in my healing journey. I have learned to listen to my body, understanding its rhythms and needs, allowing myself to rest when required and gradually incorporating gentle movements that foster both physical and emotional well-being.
Health Shifts
Of course, my doctors have prescribed medications to help control the symptoms of these ailments, which help but do not cure or obliterate the pain. These medications can provide temporary relief, yet the underlying struggles remain, weighing heavily on my daily life. I had lost so much strength, muscle, and ability, and no magic pill was going to bring that back.
Living Fully
Before lupus and the resurgence of my chronic migraine, I was heavily involved in community and physical activity. Helping with local school musical productions from set work to directing, while running 15 to 20 miles a week, attending multiple yoga classes, and engaging in vigorous strength training, I was on fire!
The Fire Goes Out
Photo by Keenan Constance on Pexels.comThat fire didn’t burn out slowly; it was extinguished with a suddenness that took me by surprise. In a few months, I went from seemingly healthy—exercising regularly and enjoying life—to struggling to walk and speak, tasks that once felt second nature. Simple conversations became exhausting, and I found myself grappling with frustration as my body betrayed me. At its worst, I was sent to the ER because my doctor thought I was having a stroke, a harrowing experience that left me feeling both helpless and afraid for my future. Each day felt like a battle, leaving me to question how quickly everything could change.
Rediscovering The Still Point
The journey to reclaim my former self has been an uphill battle, filled with moments of frustration and doubt. I had to rely on my inner strength, digging deep to unearth reserves of resilience that I never knew I possessed. It was crucial for me to continuously find that still point amid the pain, a place of calm where I could gather my thoughts and recharge my spirit, reminding myself that each day was another opportunity for growth and healing despite the challenges I faced.
Incorporating Wellness Practices
Through these small steps, such as taking the stairs at work instead of the elevator, adding moments of reflection and meditation to my day, and shifting towards an anti-inflammatory diet, I have made tremendous progress over the last year.
Learning Patience
I was occasionally impatient with my progress; for example, I work on the eighth floor, so I decided that taking the stairs would be a good way to gradually increase my strength over time. I assumed steady progress would be the norm. However, on certain days when I could only make it to the fourth floor and had to take the elevator, I would feel betrayed by my body. It was frustrating to realize that despite my efforts, my physical limitations sometimes got the better of me, leaving me to wonder if I was truly making any progress at all. Each setback felt like a personal defeat, yet deep down, I knew every little attempt contributed to my journey toward better health.
Small Steps = Great Progress
These efforts, which seemed minor at first, have collectively contributed to a healthier lifestyle and improved well-being. I have found that the more I prioritize my physical health and mental clarity, the more energized and motivated I feel. As a result, I can finally get out and enjoy trekking through my favorite place in the world, the Adirondacks, where majestic mountains and serene lakes rejuvenate my spirit and provide a sense of peace.
The Beauty of Struggle
Had I had a life without turmoil, backsliding, or trauma, I would not be managing stress the way I can today. Every hardship in my life has taught me resilience, how to move through difficulty with grace and flow. Challenges taught me the importance of patience and critical thinking, and that most things are not as unbearable as they seem. Each experience, whether it felt overwhelming or insurmountable at the time, has carved out a deeper understanding within me.
Suffering as Wisdom
I discovered that suffering is a teacher, imparting wisdom that becomes a part of my very being. I spoke about ways of coping in the piece “Navigating Suffering Through Buddhist Wisdom” a few weeks ago, sharing insights that arise from reflecting on my journey. Using this framework, I can patiently and deliberately move towards wholeness, embracing not only the light but also the shadows that shape my existence.
Returning To Wholeness
My journey through chronic pain and illness has not only reshaped my physical abilities but has also profoundly influenced my perspective on life. The trials I have faced have cultivated resilience, compassion, and an understanding that healing is a multifaceted process that encompasses both body and mind.
Moving Forward
By embracing the small victories and honoring my body’s signals, I have discovered a renewed sense of purpose and clarity. The Adirondacks, with their rugged beauty, serve as a reminder of the peace that can exist alongside struggle. As I continue to navigate my healing path, I carry forward the lessons learned through suffering, committed to nurturing both my physical health and my spirit, and embracing each step as part of a greater journey toward wholeness.
Below, I have lovingly cultivated a list of gentle practices to help you embark on your healing journey. Please remember to be patient with yourself; healing is rarely a straightforward path. We meander and flow, gathering momentum and wisdom as we navigate our healing journey with intentionality and compassion
Gentle Ways To Begin Healing
- Listen to Your Body: Pay attention to the signals your body sends. Acknowledge when you need rest and allow yourself the time to recuperate.
- Incorporate Gentle Movements: Start with simple stretches or light activities that your body can handle. Aim to gradually increase your activity levels as your strength improves.
- Practice Mindfulness and Meditation: Set aside moments each day for mindfulness or meditation. Use this time to center yourself, breathe deeply, and cultivate inner peace.
- Focus on Nutrition: Transition to an anti-inflammatory diet that includes whole foods. Incorporate more fruits, vegetables, whole grains, and lean proteins into your meals.
- Engage in Reflective Practices: Take time for journaling or reflection. Consider your thoughts, feelings, and experiences, and how they contribute to your healing process.
- Seek Support: Connect with friends, family, or support groups who understand your journey. Sharing your challenges can foster a sense of community and belonging.
- Embrace Nature: Spend time outdoors in natural settings. Activities like hiking, walking, or simply sitting in a park can provide rejuvenation for both mind and spirit.
- Be Patient with Yourself: Understand that healing is a journey that takes time. Be compassionate toward yourself, acknowledging that ups and downs are a natural part of the process.
- Create a Healthy Sleep Routine: Aim for consistent sleep patterns. Prioritize restful sleep by creating a calming bedtime environment.
- Limit Screen Time: Reduce exposure to screens, especially before bed. This can help improve sleep quality and reduce fatigue.
- Practice Gratitude: Keep a gratitude journal to document what you appreciate each day. This can shift your mindset and enhance overall well-being.
If you are beginning your healing journey, I suggest starting with listening to your body. This is where we truly learn the wisdom held within ourselves. Our bodies possess innate knowledge that guides us; they know when we need rest, self-care, or movement. By taking the time to listen deeply to the inherent wisdom, we allow the body and mind to communicate with each other, opening the pathways to wholeness. This connection fosters a deeper understanding of our needs, cultivating an environment where healing can flourish. As you engage in this practice, you may discover signals that indicate emotional or physical states, helping you to navigate life’s challenges with greater awareness and resilience. Remember, each step you take in tuning into your body’s messages brings you closer to a harmonious balance, nurturing both your inner self and overall well-being.
For deeper emotional healing, I offer you this free guide to Somatic Experiencing, which delves into the profound connection between our bodies and our feelings. This guide is designed to help you understand how our physical sensations can inform our emotional states and facilitate healing. By engaging with the principles of Somatic Experiencing, you will learn practical techniques to process trauma, release tension, and foster a sense of safety within your body. Embrace this opportunity to explore a holistic approach to healing, enabling you to cultivate resilience and emotional well-being.
Somatic Experiencing for WellbeingDownload #awareness #balance #bodyMindSpirit #chronicIllness #easyStepsForHealing #experience #flow #healing #healingPath #healthyLife #journeyToWholeness #limits #lupus #meditation #mentalHealth #migraine #migraineHealing #mindful #mindfulHealing #MindfulLiving #mindfulness #moments #naturalLife #pain #physicalLimitation #practice #regainingStrength #resilience #stepsForHealing #suffering #thoughtfulHealing #thoughtfulLiving #wellbeing #wellness #wholeness #wisdom -
Living with Lupus: Survivors Share Their Stories & Struggles
Behind every lupus diagnosis is a silent battle the world rarely sees: the pain, stigma, strength, and resilien…
#NewsBeep #News #Health #autoimmunedisease #autoimmunesupport #ChronicIllness #chronicpain #GB #healthcareinNigeria #Invisibleillness #lupus #lupusawareness #Lupusdiagnosis #lupussupport #lupussurvivors #lupussymptoms #patientadvocacy #patientstories #UK #UnitedKingdom #Women'shealth
https://www.newsbeep.com/uk/589957/ -
RE: https://biologists.social/@biorxivpreprint/116562497726010094
Pre-print on study using mouse model of lupus
#AutoimmuneDisease #NaturalProducts #GutMicrobiome #UrolithinA #Lupus
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RE: https://biologists.social/@biorxivpreprint/116562497726010094
Pre-print on study using mouse model of lupus
#AutoimmuneDisease #NaturalProducts #GutMicrobiome #UrolithinA #Lupus
-
RE: https://biologists.social/@biorxivpreprint/116562497726010094
Pre-print on study using mouse model of lupus
#AutoimmuneDisease #NaturalProducts #GutMicrobiome #UrolithinA #Lupus
-
RE: https://biologists.social/@biorxivpreprint/116562497726010094
Pre-print on study using mouse model of lupus
#AutoimmuneDisease #NaturalProducts #GutMicrobiome #UrolithinA #Lupus
