#mcas — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #mcas, aggregated by home.social.
-
I'm so embarrassed and so sorry. 😖
#NEISvoid #hEDS #marfansyndrome #EDS #MECFS #POTS #MCAS #AuDHD #actuallyautistic #ADHD #disabled #longcovid #spooniechat #fibromyalgia #chiarimalformation #tetheredcord #mutualaid
RE: https://plasmatrap.com/notes/amt3jiihdr -
For anyone with allergies, I just found out that a lot of companies use potato starch to seal teabags in the UK, not sure about other countries.
I don’t drink tea, and usually have dried mint leaves if I have peppermint tea.
We need nightshade and allium highlighted on food. Someone could get very sick because of this.
#Allergies #MCAS #HistamineIntolerance #NightShade #Allium #NightshadeAllergy #AlliumAllergy
-
Please boost: My spouse can no longer work due to #MultipleSclerosis, #MCAS and other complications; please help our queer family survive.
https://chuffed.org/project/kat
Our most urgent needs:
$50/150 cat food and litter
$0/60 medicine
$0/60 dog food
Venmo: @bohe2389
Cashapp: $bohe2389 -
Please boost: My spouse can no longer work due to #MultipleSclerosis, #MCAS and other complications; please help our queer family survive.
https://chuffed.org/project/kat
Our most urgent needs:
$50/150 cat food and litter
$0/60 medicine
$0/60 dog food
Venmo: @bohe2389
Cashapp: $bohe2389 -
Please boost: My spouse can no longer work due to #MultipleSclerosis, #MCAS and other complications; please help our queer family survive.
https://chuffed.org/project/kat
Our most urgent needs:
$50/150 cat food and litter
$0/60 medicine
$0/60 dog food
Venmo: @bohe2389
Cashapp: $bohe2389 -
Please boost: My spouse can no longer work due to #MultipleSclerosis, #MCAS and other complications; please help our queer family survive.
https://chuffed.org/project/kat
Our most urgent needs:
$50/150 cat food and litter
$0/60 medicine
$0/60 dog food
Venmo: @bohe2389
Cashapp: $bohe2389 -
Please boost: My spouse can no longer work due to #MultipleSclerosis, #MCAS and other complications; please help our queer family survive.
https://chuffed.org/project/kat
Our most urgent needs:
$50/150 cat food and litter
$0/60 medicine
$0/60 dog food
Venmo: @bohe2389
Cashapp: $bohe2389 -
Do you have #histamine intolerance & other issues as well? I attended day 1 of this workshop. Her approach is interesting.
Histamine is complex: can be both a symptom & a cause of other issues: asthma, brain fog, nervous system dysregulation, IBD, chronic pain, hormonal & emotional dysreg'n.
Today's recording: https://detoxnation.com/triggered-replays/
Join tomorrow for an approach to this complex picture:
Free 3-Day Histamine & Sensitivity Cycle Workshop w. Sinclair Kennally
https://reset.sinclairkennally.com/triggered-reg-w
#MCAS #CFS -
Do you have #histamine intolerance & other issues as well? I attended day 1 of this workshop. Her approach is interesting.
Histamine is complex: can be both a symptom & a cause of other issues: asthma, brain fog, nervous system dysregulation, IBD, chronic pain, hormonal & emotional dysreg'n.
Today's recording: https://detoxnation.com/triggered-replays/
Join tomorrow for an approach to this complex picture:
Free 3-Day Histamine & Sensitivity Cycle Workshop w. Sinclair Kennally
https://reset.sinclairkennally.com/triggered-reg-w
#MCAS #CFS -
Do you have #histamine intolerance & other issues as well? I attended day 1 of this workshop. Her approach is interesting.
Histamine is complex: can be both a symptom & a cause of other issues: asthma, brain fog, nervous system dysregulation, IBD, chronic pain, hormonal & emotional dysreg'n.
Today's recording: https://detoxnation.com/triggered-replays/
Join tomorrow for an approach to this complex picture:
Free 3-Day Histamine & Sensitivity Cycle Workshop w. Sinclair Kennally
https://reset.sinclairkennally.com/triggered-reg-w
#MCAS #CFS -
Do you have #histamine intolerance & other issues as well? I attended day 1 of this workshop. Her approach is interesting.
Histamine is complex: can be both a symptom & a cause of other issues: asthma, brain fog, nervous system dysregulation, IBD, chronic pain, hormonal & emotional dysreg'n.
Today's recording: https://detoxnation.com/triggered-replays/
Join tomorrow for an approach to this complex picture:
Free 3-Day Histamine & Sensitivity Cycle Workshop w. Sinclair Kennally
https://reset.sinclairkennally.com/triggered-reg-w
#MCAS #CFS -
Do you have #histamine intolerance & other issues as well? I attended day 1 of this workshop. Her approach is interesting.
Histamine is complex: can be both a symptom & a cause of other issues: asthma, brain fog, nervous system dysregulation, IBD, chronic pain, hormonal & emotional dysreg'n.
Today's recording: https://detoxnation.com/triggered-replays/
Join tomorrow for an approach to this complex picture:
Free 3-Day Histamine & Sensitivity Cycle Workshop w. Sinclair Kennally
https://reset.sinclairkennally.com/triggered-reg-w
#MCAS #CFS -
This is vegan, gluten free, nightshade (and allium) free, also gum free and as low histamine, as I can get. It turned out really well, nice crust and texture. It tastes good, nice toasted, and no weird aftertaste.
Sorghum Bread
A vegan, gluten free and gum free recipe.
Prep time: 15 mins + 60 mins rise
Cook time: 60 mins
Cooling 2hrs
Yields: 1 loafIngredients
Dry:
1.5 cups (180g) Sorghum Flour
1 cup (120g) Tapioca Starch (or Arrowroot)
half cup (60g) Brown Rice Flour
2 tsp Instant Yeast (ensure certified gluten-
free)
1-2 tbsp Maple Syrup (sugar feeds yeast)
1tsp SaltWet:
1 and a quarter to 1.5 cups Warm Water
3 tbsp Olive Oil
1 tsp Apple Cider VinegarInstructions:
1. Activate Yeast: In a small bowl, combine
warm water, maple syrup, and yeast. Let it sit
for 5-10 minutes until foamy.2. Mix Dry Ingredients: In a large bowl, whisk
together sorghum flour, tapioca starch, brown
rice flour, and salt.3. Combine: Add the yeast mixture, olive oil, and apple cider vinegar to the dry ingredients. Use a hand mixer or stand mixer to combine for 2-3 minutes. The dough should be thick and sticky, not pourable like cake batter.
4. Proof: Transfer the dough into a parchment-
lined 2lb loaf tin. Smooth the top with wet
fingers or a spatula. Cover with a damp towel
and let it rise in a warm place for 60 minutes
or until doubled in size.5. Bake: Preheat oven to 375°F (190°C). Bake
for 50-60 minutes. The loaf is done when it is
golden brown, sounds hollow when tapped,
and has pulled away slightly from the sides.6. Cool: Allow the bread to cool completely in
the tin before slicing, otherwise, the center
will be gummy.Notes: As this recipe contains no gums or
psyllium, the tapioca starch acting as the binder requires a full cool-down to set the
Structure.I cooked in my air fryer oven 185 • c on bake, and completely cool down in tin for 2 hours before removing and slicing.
I’m moving soon, and packed my loaf tins, as didn’t expect to have the spoons to try a new recipe before the move. I used a smallish Pyrex this time, but will use the loaf time next time.
#GlutenFree #Baking #GlutenFreeBaking #Bread #GlutenFreeBread #Vegan #GumFree #NightshadeFree #AlliumFree #MCAS #Allergies #HistamineIntolerance
-
This is vegan, gluten free, nightshade (and allium) free, also gum free and as low histamine, as I can get. It turned out really well, nice crust and texture. It tastes good, nice toasted, and no weird aftertaste.
Sorghum Bread
A vegan, gluten free and gum free recipe.
Prep time: 15 mins + 60 mins rise
Cook time: 60 mins
Cooling 2hrs
Yields: 1 loafIngredients
Dry:
1.5 cups (180g) Sorghum Flour
1 cup (120g) Tapioca Starch (or Arrowroot)
half cup (60g) Brown Rice Flour
2 tsp Instant Yeast (ensure certified gluten-
free)
1-2 tbsp Maple Syrup (sugar feeds yeast)
1tsp SaltWet:
1 and a quarter to 1.5 cups Warm Water
3 tbsp Olive Oil
1 tsp Apple Cider VinegarInstructions:
1. Activate Yeast: In a small bowl, combine
warm water, maple syrup, and yeast. Let it sit
for 5-10 minutes until foamy.2. Mix Dry Ingredients: In a large bowl, whisk
together sorghum flour, tapioca starch, brown
rice flour, and salt.3. Combine: Add the yeast mixture, olive oil, and apple cider vinegar to the dry ingredients. Use a hand mixer or stand mixer to combine for 2-3 minutes. The dough should be thick and sticky, not pourable like cake batter.
4. Proof: Transfer the dough into a parchment-
lined 2lb loaf tin. Smooth the top with wet
fingers or a spatula. Cover with a damp towel
and let it rise in a warm place for 60 minutes
or until doubled in size.5. Bake: Preheat oven to 375°F (190°C). Bake
for 50-60 minutes. The loaf is done when it is
golden brown, sounds hollow when tapped,
and has pulled away slightly from the sides.6. Cool: Allow the bread to cool completely in
the tin before slicing, otherwise, the center
will be gummy.Notes: As this recipe contains no gums or
psyllium, the tapioca starch acting as the binder requires a full cool-down to set the
Structure.I cooked in my air fryer oven 185 • c on bake, and completely cool down in tin for 2 hours before removing and slicing.
I’m moving soon, and packed my loaf tins, as didn’t expect to have the spoons to try a new recipe before the move. I used a smallish Pyrex this time, but will use the loaf time next time.
#GlutenFree #Baking #GlutenFreeBaking #Bread #GlutenFreeBread #Vegan #GumFree #NightshadeFree #AlliumFree #MCAS #Allergies #HistamineIntolerance
-
This is vegan, gluten free, nightshade (and allium) free, also gum free and as low histamine, as I can get. It turned out really well, nice crust and texture. It tastes good, nice toasted, and no weird aftertaste.
Sorghum Bread
A vegan, gluten free and gum free recipe.
Prep time: 15 mins + 60 mins rise
Cook time: 60 mins
Cooling 2hrs
Yields: 1 loafIngredients
Dry:
1.5 cups (180g) Sorghum Flour
1 cup (120g) Tapioca Starch (or Arrowroot)
half cup (60g) Brown Rice Flour
2 tsp Instant Yeast (ensure certified gluten-
free)
1-2 tbsp Maple Syrup (sugar feeds yeast)
1tsp SaltWet:
1 and a quarter to 1.5 cups Warm Water
3 tbsp Olive Oil
1 tsp Apple Cider VinegarInstructions:
1. Activate Yeast: In a small bowl, combine
warm water, maple syrup, and yeast. Let it sit
for 5-10 minutes until foamy.2. Mix Dry Ingredients: In a large bowl, whisk
together sorghum flour, tapioca starch, brown
rice flour, and salt.3. Combine: Add the yeast mixture, olive oil, and apple cider vinegar to the dry ingredients. Use a hand mixer or stand mixer to combine for 2-3 minutes. The dough should be thick and sticky, not pourable like cake batter.
4. Proof: Transfer the dough into a parchment-
lined 2lb loaf tin. Smooth the top with wet
fingers or a spatula. Cover with a damp towel
and let it rise in a warm place for 60 minutes
or until doubled in size.5. Bake: Preheat oven to 375°F (190°C). Bake
for 50-60 minutes. The loaf is done when it is
golden brown, sounds hollow when tapped,
and has pulled away slightly from the sides.6. Cool: Allow the bread to cool completely in
the tin before slicing, otherwise, the center
will be gummy.Notes: As this recipe contains no gums or
psyllium, the tapioca starch acting as the binder requires a full cool-down to set the
Structure.I cooked in my air fryer oven 185 • c on bake, and completely cool down in tin for 2 hours before removing and slicing.
I’m moving soon, and packed my loaf tins, as didn’t expect to have the spoons to try a new recipe before the move. I used a smallish Pyrex this time, but will use the loaf time next time.
#GlutenFree #Baking #GlutenFreeBaking #Bread #GlutenFreeBread #Vegan #GumFree #NightshadeFree #AlliumFree #MCAS #Allergies #HistamineIntolerance
-
This is vegan, gluten free, nightshade (and allium) free, also gum free and as low histamine, as I can get. It turned out really well, nice crust and texture. It tastes good, nice toasted, and no weird aftertaste.
Sorghum Bread
A vegan, gluten free and gum free recipe.
Prep time: 15 mins + 60 mins rise
Cook time: 60 mins
Cooling 2hrs
Yields: 1 loafIngredients
Dry:
1.5 cups (180g) Sorghum Flour
1 cup (120g) Tapioca Starch (or Arrowroot)
half cup (60g) Brown Rice Flour
2 tsp Instant Yeast (ensure certified gluten-
free)
1-2 tbsp Maple Syrup (sugar feeds yeast)
1tsp SaltWet:
1 and a quarter to 1.5 cups Warm Water
3 tbsp Olive Oil
1 tsp Apple Cider VinegarInstructions:
1. Activate Yeast: In a small bowl, combine
warm water, maple syrup, and yeast. Let it sit
for 5-10 minutes until foamy.2. Mix Dry Ingredients: In a large bowl, whisk
together sorghum flour, tapioca starch, brown
rice flour, and salt.3. Combine: Add the yeast mixture, olive oil, and apple cider vinegar to the dry ingredients. Use a hand mixer or stand mixer to combine for 2-3 minutes. The dough should be thick and sticky, not pourable like cake batter.
4. Proof: Transfer the dough into a parchment-
lined 2lb loaf tin. Smooth the top with wet
fingers or a spatula. Cover with a damp towel
and let it rise in a warm place for 60 minutes
or until doubled in size.5. Bake: Preheat oven to 375°F (190°C). Bake
for 50-60 minutes. The loaf is done when it is
golden brown, sounds hollow when tapped,
and has pulled away slightly from the sides.6. Cool: Allow the bread to cool completely in
the tin before slicing, otherwise, the center
will be gummy.Notes: As this recipe contains no gums or
psyllium, the tapioca starch acting as the binder requires a full cool-down to set the
Structure.I cooked in my air fryer oven 185 • c on bake, and completely cool down in tin for 2 hours before removing and slicing.
I’m moving soon, and packed my loaf tins, as didn’t expect to have the spoons to try a new recipe before the move. I used a smallish Pyrex this time, but will use the loaf time next time.
#GlutenFree #Baking #GlutenFreeBaking #Bread #GlutenFreeBread #Vegan #GumFree #NightshadeFree #AlliumFree #MCAS #Allergies #HistamineIntolerance
-
This is vegan, gluten free, nightshade (and allium) free, also gum free and as low histamine, as I can get. It turned out really well, nice crust and texture. It tastes good, nice toasted, and no weird aftertaste.
Sorghum Bread
A vegan, gluten free and gum free recipe.
Prep time: 15 mins + 60 mins rise
Cook time: 60 mins
Cooling 2hrs
Yields: 1 loafIngredients
Dry:
1.5 cups (180g) Sorghum Flour
1 cup (120g) Tapioca Starch (or Arrowroot)
half cup (60g) Brown Rice Flour
2 tsp Instant Yeast (ensure certified gluten-
free)
1-2 tbsp Maple Syrup (sugar feeds yeast)
1tsp SaltWet:
1 and a quarter to 1.5 cups Warm Water
3 tbsp Olive Oil
1 tsp Apple Cider VinegarInstructions:
1. Activate Yeast: In a small bowl, combine
warm water, maple syrup, and yeast. Let it sit
for 5-10 minutes until foamy.2. Mix Dry Ingredients: In a large bowl, whisk
together sorghum flour, tapioca starch, brown
rice flour, and salt.3. Combine: Add the yeast mixture, olive oil, and apple cider vinegar to the dry ingredients. Use a hand mixer or stand mixer to combine for 2-3 minutes. The dough should be thick and sticky, not pourable like cake batter.
4. Proof: Transfer the dough into a parchment-
lined 2lb loaf tin. Smooth the top with wet
fingers or a spatula. Cover with a damp towel
and let it rise in a warm place for 60 minutes
or until doubled in size.5. Bake: Preheat oven to 375°F (190°C). Bake
for 50-60 minutes. The loaf is done when it is
golden brown, sounds hollow when tapped,
and has pulled away slightly from the sides.6. Cool: Allow the bread to cool completely in
the tin before slicing, otherwise, the center
will be gummy.Notes: As this recipe contains no gums or
psyllium, the tapioca starch acting as the binder requires a full cool-down to set the
Structure.I cooked in my air fryer oven 185 • c on bake, and completely cool down in tin for 2 hours before removing and slicing.
I’m moving soon, and packed my loaf tins, as didn’t expect to have the spoons to try a new recipe before the move. I used a smallish Pyrex this time, but will use the loaf time next time.
#GlutenFree #Baking #GlutenFreeBaking #Bread #GlutenFreeBread #Vegan #GumFree #NightshadeFree #AlliumFree #MCAS #Allergies #HistamineIntolerance
-
I think I’m officially giving up and admitting defeat with my moldy clothes. I’m losing my baseline so fast because my caregivers are spending all their time trying to salvage items that probably can’t be salvaged.
It’s almost my entire wardrobe.
The stress of thinking about how to replace it is also tough on my baseline… but I’ve got to tell myself mold is simply not worth the risk. Especially with severe MCAS.
This is another great example of the “crip tax”. If it weren’t for my disability, I wouldn’t need specific types of clothes. I would be able to soak and salvage them myself. I wouldn’t be restricted to only online shopping. I wouldn’t be on a fixed income.
This feels like a disaster, but it’s better than making myself sicker.
Let me know your best suggestions for affordable all cotton clothing (tshirts, zip up sweaters, sweat pants, socks)
#clothing #mold #mcas #disability #chronicillness #ableism #criptax
-
I think I’m officially giving up and admitting defeat with my moldy clothes. I’m losing my baseline so fast because my caregivers are spending all their time trying to salvage items that probably can’t be salvaged.
It’s almost my entire wardrobe.
The stress of thinking about how to replace it is also tough on my baseline… but I’ve got to tell myself mold is simply not worth the risk. Especially with severe MCAS.
This is another great example of the “crip tax”. If it weren’t for my disability, I wouldn’t need specific types of clothes. I would be able to soak and salvage them myself. I wouldn’t be restricted to only online shopping. I wouldn’t be on a fixed income.
This feels like a disaster, but it’s better than making myself sicker.
Let me know your best suggestions for affordable all cotton clothing (tshirts, zip up sweaters, sweat pants, socks)
#clothing #mold #mcas #disability #chronicillness #ableism #criptax
-
I think I’m officially giving up and admitting defeat with my moldy clothes. I’m losing my baseline so fast because my caregivers are spending all their time trying to salvage items that probably can’t be salvaged.
It’s almost my entire wardrobe.
The stress of thinking about how to replace it is also tough on my baseline… but I’ve got to tell myself mold is simply not worth the risk. Especially with severe MCAS.
This is another great example of the “crip tax”. If it weren’t for my disability, I wouldn’t need specific types of clothes. I would be able to soak and salvage them myself. I wouldn’t be restricted to only online shopping. I wouldn’t be on a fixed income.
This feels like a disaster, but it’s better than making myself sicker.
Let me know your best suggestions for affordable all cotton clothing (tshirts, zip up sweaters, sweat pants, socks)
#clothing #mold #mcas #disability #chronicillness #ableism #criptax
-
I think I’m officially giving up and admitting defeat with my moldy clothes. I’m losing my baseline so fast because my caregivers are spending all their time trying to salvage items that probably can’t be salvaged.
It’s almost my entire wardrobe.
The stress of thinking about how to replace it is also tough on my baseline… but I’ve got to tell myself mold is simply not worth the risk. Especially with severe MCAS.
This is another great example of the “crip tax”. If it weren’t for my disability, I wouldn’t need specific types of clothes. I would be able to soak and salvage them myself. I wouldn’t be restricted to only online shopping. I wouldn’t be on a fixed income.
This feels like a disaster, but it’s better than making myself sicker.
Let me know your best suggestions for affordable all cotton clothing (tshirts, zip up sweaters, sweat pants, socks)
#clothing #mold #mcas #disability #chronicillness #ableism #criptax
-
I think I’m officially giving up and admitting defeat with my moldy clothes. I’m losing my baseline so fast because my caregivers are spending all their time trying to salvage items that probably can’t be salvaged.
It’s almost my entire wardrobe.
The stress of thinking about how to replace it is also tough on my baseline… but I’ve got to tell myself mold is simply not worth the risk. Especially with severe MCAS.
This is another great example of the “crip tax”. If it weren’t for my disability, I wouldn’t need specific types of clothes. I would be able to soak and salvage them myself. I wouldn’t be restricted to only online shopping. I wouldn’t be on a fixed income.
This feels like a disaster, but it’s better than making myself sicker.
Let me know your best suggestions for affordable all cotton clothing (tshirts, zip up sweaters, sweat pants, socks)
#clothing #mold #mcas #disability #chronicillness #ableism #criptax
-
🔥 psa for anyone taking quercetin on a regular basis 🔥
this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!
(and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)
i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:
take care people and good luck :Blobhaj_Heart_Rainbow:
-
🔥 psa for anyone taking quercetin on a regular basis 🔥
this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!
(and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)
i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:
take care people and good luck :Blobhaj_Heart_Rainbow:
-
🔥 psa for anyone taking quercetin on a regular basis 🔥
this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!
(and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)
i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:
take care people and good luck :Blobhaj_Heart_Rainbow:
-
🔥 psa for anyone taking quercetin on a regular basis 🔥
this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!
(and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)
i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:
take care people and good luck :Blobhaj_Heart_Rainbow:
-
🔥 psa for anyone taking quercetin on a regular basis 🔥
this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!
(and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)
i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:
take care people and good luck :Blobhaj_Heart_Rainbow:
-
I’ve had to move apartments and it’s been absolutely brutal on my baseline. The setback has been humbling, terrifying and frustrating in equal measure.
This is life with chronic illness.
Everything is so much harder.
Any significant upheaval can cause major losses of function.
To make matters worse I found mold in my closet and it appears most of my wardrobe got contaminated.
It’s just been one thing after another.
A friend is trying to salvage them, but with the severity of my MCAS I suspect I may have to toss and replace.
That said, hit me up with any tips you might have for removing mold and mildew from clothes. Or hidden gems for finding cheap but comfortable, ethical clothing. I can only wear loose cotton and my clothes were all good quality (and I hate shopping).
I plan to write a series of articles once I recover, including one about housing instability and another about setbacks and contingency planning when chronically ill.
Thank you to everyone who’s been supporting me and patiently waiting for me to get back to writing!
-
I’ve had to move apartments and it’s been absolutely brutal on my baseline. The setback has been humbling, terrifying and frustrating in equal measure.
This is life with chronic illness.
Everything is so much harder.
Any significant upheaval can cause major losses of function.
To make matters worse I found mold in my closet and it appears most of my wardrobe got contaminated.
It’s just been one thing after another.
A friend is trying to salvage them, but with the severity of my MCAS I suspect I may have to toss and replace.
That said, hit me up with any tips you might have for removing mold and mildew from clothes. Or hidden gems for finding cheap but comfortable, ethical clothing. I can only wear loose cotton and my clothes were all good quality (and I hate shopping).
I plan to write a series of articles once I recover, including one about housing instability and another about setbacks and contingency planning when chronically ill.
Thank you to everyone who’s been supporting me and patiently waiting for me to get back to writing!
-
I’ve had to move apartments and it’s been absolutely brutal on my baseline. The setback has been humbling, terrifying and frustrating in equal measure.
This is life with chronic illness.
Everything is so much harder.
Any significant upheaval can cause major losses of function.
To make matters worse I found mold in my closet and it appears most of my wardrobe got contaminated.
It’s just been one thing after another.
A friend is trying to salvage them, but with the severity of my MCAS I suspect I may have to toss and replace.
That said, hit me up with any tips you might have for removing mold and mildew from clothes. Or hidden gems for finding cheap but comfortable, ethical clothing. I can only wear loose cotton and my clothes were all good quality (and I hate shopping).
I plan to write a series of articles once I recover, including one about housing instability and another about setbacks and contingency planning when chronically ill.
Thank you to everyone who’s been supporting me and patiently waiting for me to get back to writing!
-
I’ve had to move apartments and it’s been absolutely brutal on my baseline. The setback has been humbling, terrifying and frustrating in equal measure.
This is life with chronic illness.
Everything is so much harder.
Any significant upheaval can cause major losses of function.
To make matters worse I found mold in my closet and it appears most of my wardrobe got contaminated.
It’s just been one thing after another.
A friend is trying to salvage them, but with the severity of my MCAS I suspect I may have to toss and replace.
That said, hit me up with any tips you might have for removing mold and mildew from clothes. Or hidden gems for finding cheap but comfortable, ethical clothing. I can only wear loose cotton and my clothes were all good quality (and I hate shopping).
I plan to write a series of articles once I recover, including one about housing instability and another about setbacks and contingency planning when chronically ill.
Thank you to everyone who’s been supporting me and patiently waiting for me to get back to writing!
-
I’ve had to move apartments and it’s been absolutely brutal on my baseline. The setback has been humbling, terrifying and frustrating in equal measure.
This is life with chronic illness.
Everything is so much harder.
Any significant upheaval can cause major losses of function.
To make matters worse I found mold in my closet and it appears most of my wardrobe got contaminated.
It’s just been one thing after another.
A friend is trying to salvage them, but with the severity of my MCAS I suspect I may have to toss and replace.
That said, hit me up with any tips you might have for removing mold and mildew from clothes. Or hidden gems for finding cheap but comfortable, ethical clothing. I can only wear loose cotton and my clothes were all good quality (and I hate shopping).
I plan to write a series of articles once I recover, including one about housing instability and another about setbacks and contingency planning when chronically ill.
Thank you to everyone who’s been supporting me and patiently waiting for me to get back to writing!
-
Please boost: My spouse can no longer work due to #MultipleSclerosis, #MCAS and other complications; please help our queer family survive.
https://chuffed.org/project/kat
Our most urgent needs:
$50/150 cat food and litter
$0/60 medicine
$0/60 dog food
Venmo: @bohe2389
Cashapp: $bohe2389 -
Please boost: My spouse can no longer work due to #MultipleSclerosis, #MCAS and other complications; please help our queer family survive.
https://chuffed.org/project/kat
Our most urgent needs:
$50/150 cat food and litter
$0/60 medicine
$0/60 dog food
Venmo: @bohe2389
Cashapp: $bohe2389 -
Please boost: My spouse can no longer work due to #MultipleSclerosis, #MCAS and other complications; please help our queer family survive.
https://chuffed.org/project/kat
Our most urgent needs:
$50/150 cat food and litter
$0/60 medicine
$0/60 dog food
Venmo: @bohe2389
Cashapp: $bohe2389 -
Please boost: My spouse can no longer work due to #MultipleSclerosis, #MCAS and other complications; please help our queer family survive.
https://chuffed.org/project/kat
Our most urgent needs:
$50/150 cat food and litter
$0/60 medicine
$0/60 dog food
Venmo: @bohe2389
Cashapp: $bohe2389 -
Please boost: My spouse can no longer work due to #MultipleSclerosis, #MCAS and other complications; please help our queer family survive.
https://chuffed.org/project/kat
Our most urgent needs:
$50/150 cat food and litter
$0/60 medicine
$0/60 dog food
Venmo: @bohe2389
Cashapp: $bohe2389 -
So sorry to everyone I owe replies to … the move was far harder on me than I anticipated. A number of items need to be completely thrown out which is a huge unexpected expense… and only about half my stuff actually got moved in the time we had.
Needless to say I’m having to accept that my baseline is shattered and it might be a bit longer than usual before I can be writing again.
Nothing good comes from pushing our bodies past what they can do, so I’m focusing on rest and finishing this move.
Honestly I wish there was secure and affordable housing for disabled people for life. Being forced to move when you can’t even get out of bed is one of the most stressful things you can be put through … and it Happens to way too many of us.
I fully plan to write an article on housing instability and discrimination against disabled people once I’m back to baseline !
In the meantime I need suggestions for cheap but safe online retailers where I can replace clothes. Due to a severe mold problem in old apartment almost everything has to be tossed. With my severe MCAS I can’t wear a lot of fabrics so if anyone knows of a unicorn store please let me know (my go to Canadian brand has become too expensive for me)
#disability #ableism #chronicillness #mcas #eugenics #clothing #mold #mecfs #housingisahumanright
-
So sorry to everyone I owe replies to … the move was far harder on me than I anticipated. A number of items need to be completely thrown out which is a huge unexpected expense… and only about half my stuff actually got moved in the time we had.
Needless to say I’m having to accept that my baseline is shattered and it might be a bit longer than usual before I can be writing again.
Nothing good comes from pushing our bodies past what they can do, so I’m focusing on rest and finishing this move.
Honestly I wish there was secure and affordable housing for disabled people for life. Being forced to move when you can’t even get out of bed is one of the most stressful things you can be put through … and it Happens to way too many of us.
I fully plan to write an article on housing instability and discrimination against disabled people once I’m back to baseline !
In the meantime I need suggestions for cheap but safe online retailers where I can replace clothes. Due to a severe mold problem in old apartment almost everything has to be tossed. With my severe MCAS I can’t wear a lot of fabrics so if anyone knows of a unicorn store please let me know (my go to Canadian brand has become too expensive for me)
#disability #ableism #chronicillness #mcas #eugenics #clothing #mold #mecfs #housingisahumanright
-
So sorry to everyone I owe replies to … the move was far harder on me than I anticipated. A number of items need to be completely thrown out which is a huge unexpected expense… and only about half my stuff actually got moved in the time we had.
Needless to say I’m having to accept that my baseline is shattered and it might be a bit longer than usual before I can be writing again.
Nothing good comes from pushing our bodies past what they can do, so I’m focusing on rest and finishing this move.
Honestly I wish there was secure and affordable housing for disabled people for life. Being forced to move when you can’t even get out of bed is one of the most stressful things you can be put through … and it Happens to way too many of us.
I fully plan to write an article on housing instability and discrimination against disabled people once I’m back to baseline !
In the meantime I need suggestions for cheap but safe online retailers where I can replace clothes. Due to a severe mold problem in old apartment almost everything has to be tossed. With my severe MCAS I can’t wear a lot of fabrics so if anyone knows of a unicorn store please let me know (my go to Canadian brand has become too expensive for me)
#disability #ableism #chronicillness #mcas #eugenics #clothing #mold #mecfs #housingisahumanright
-
So sorry to everyone I owe replies to … the move was far harder on me than I anticipated. A number of items need to be completely thrown out which is a huge unexpected expense… and only about half my stuff actually got moved in the time we had.
Needless to say I’m having to accept that my baseline is shattered and it might be a bit longer than usual before I can be writing again.
Nothing good comes from pushing our bodies past what they can do, so I’m focusing on rest and finishing this move.
Honestly I wish there was secure and affordable housing for disabled people for life. Being forced to move when you can’t even get out of bed is one of the most stressful things you can be put through … and it Happens to way too many of us.
I fully plan to write an article on housing instability and discrimination against disabled people once I’m back to baseline !
In the meantime I need suggestions for cheap but safe online retailers where I can replace clothes. Due to a severe mold problem in old apartment almost everything has to be tossed. With my severe MCAS I can’t wear a lot of fabrics so if anyone knows of a unicorn store please let me know (my go to Canadian brand has become too expensive for me)
#disability #ableism #chronicillness #mcas #eugenics #clothing #mold #mecfs #housingisahumanright
-
So sorry to everyone I owe replies to … the move was far harder on me than I anticipated. A number of items need to be completely thrown out which is a huge unexpected expense… and only about half my stuff actually got moved in the time we had.
Needless to say I’m having to accept that my baseline is shattered and it might be a bit longer than usual before I can be writing again.
Nothing good comes from pushing our bodies past what they can do, so I’m focusing on rest and finishing this move.
Honestly I wish there was secure and affordable housing for disabled people for life. Being forced to move when you can’t even get out of bed is one of the most stressful things you can be put through … and it Happens to way too many of us.
I fully plan to write an article on housing instability and discrimination against disabled people once I’m back to baseline !
In the meantime I need suggestions for cheap but safe online retailers where I can replace clothes. Due to a severe mold problem in old apartment almost everything has to be tossed. With my severe MCAS I can’t wear a lot of fabrics so if anyone knows of a unicorn store please let me know (my go to Canadian brand has become too expensive for me)
#disability #ableism #chronicillness #mcas #eugenics #clothing #mold #mecfs #housingisahumanright
-
Eine meiner ehemaligen Abiturient*innen (jetzt schon lange Studentin) war heute in Berlin auf der #Liegenddemo. Diese Solidarität berührt mich sehr.
-
Eine meiner ehemaligen Abiturient*innen (jetzt schon lange Studentin) war heute in Berlin auf der #Liegenddemo. Diese Solidarität berührt mich sehr.
-
Eine meiner ehemaligen Abiturient*innen (jetzt schon lange Studentin) war heute in Berlin auf der #Liegenddemo. Diese Solidarität berührt mich sehr.
-
Eine meiner ehemaligen Abiturient*innen (jetzt schon lange Studentin) war heute in Berlin auf der #Liegenddemo. Diese Solidarität berührt mich sehr.
-
Eine meiner ehemaligen Abiturient*innen (jetzt schon lange Studentin) war heute in Berlin auf der #Liegenddemo. Diese Solidarität berührt mich sehr.
-
Please boost: My spouse can no longer work due to #MultipleSclerosis, #MCAS and other complications; please help our queer family survive.
https://chuffed.org/project/kat
Our most urgent needs:
$50/150 cat food and litter
$0/60 medicine
$0/60 dog food
Venmo: @bohe2389
Cashapp: $bohe2389 -
Please boost: My spouse can no longer work due to #MultipleSclerosis, #MCAS and other complications; please help our queer family survive.
https://chuffed.org/project/kat
Our most urgent needs:
$125/172 for groceries
$0/150 cat food and litter for 2 cats
$0/60 medicine
$0/60 dog food (sensitive skin and stomach)
Venmo: @bohe2389
Cashapp: $bohe2389 -
Please boost: My spouse can no longer work due to #MultipleSclerosis, #MCAS and other complications; please help our queer family survive.
https://chuffed.org/project/kat
Our most urgent needs:
$50/150 cat food and litter
$0/60 medicine
$0/60 dog food
Venmo: @bohe2389
Cashapp: $bohe2389