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#mcas — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #mcas, aggregated by home.social.

  1. 🔥 psa for anyone taking quercetin on a regular basis 🔥

    this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!

    (and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)

    i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:

    take care people and good luck :Blobhaj_Heart_Rainbow:

    #MCAS #POTS #hEDS #LongCovid #allergies

  2. 🔥 psa for anyone taking quercetin on a regular basis 🔥

    this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!

    (and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)

    i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:

    take care people and good luck :Blobhaj_Heart_Rainbow:

    #MCAS #POTS #hEDS #LongCovid #allergies

  3. 🔥 psa for anyone taking quercetin on a regular basis 🔥

    this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!

    (and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)

    i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:

    take care people and good luck :Blobhaj_Heart_Rainbow:

    #MCAS #POTS #hEDS #LongCovid #allergies

  4. 🔥 psa for anyone taking quercetin on a regular basis 🔥

    this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!

    (and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)

    i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:

    take care people and good luck :Blobhaj_Heart_Rainbow:

    #MCAS #POTS #hEDS #LongCovid #allergies

  5. 🔥 psa for anyone taking quercetin on a regular basis 🔥

    this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!

    (and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)

    i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:

    take care people and good luck :Blobhaj_Heart_Rainbow:

    #MCAS #POTS #hEDS #LongCovid #allergies

  6. I’ve had to move apartments and it’s been absolutely brutal on my baseline. The setback has been humbling, terrifying and frustrating in equal measure.

    This is life with chronic illness.

    Everything is so much harder.

    Any significant upheaval can cause major losses of function.

    To make matters worse I found mold in my closet and it appears most of my wardrobe got contaminated.

    It’s just been one thing after another.

    A friend is trying to salvage them, but with the severity of my MCAS I suspect I may have to toss and replace.

    That said, hit me up with any tips you might have for removing mold and mildew from clothes. Or hidden gems for finding cheap but comfortable, ethical clothing. I can only wear loose cotton and my clothes were all good quality (and I hate shopping).

    I plan to write a series of articles once I recover, including one about housing instability and another about setbacks and contingency planning when chronically ill.

    Thank you to everyone who’s been supporting me and patiently waiting for me to get back to writing!

    #chronicillness #ableism #mcas #disability

  7. I’ve had to move apartments and it’s been absolutely brutal on my baseline. The setback has been humbling, terrifying and frustrating in equal measure.

    This is life with chronic illness.

    Everything is so much harder.

    Any significant upheaval can cause major losses of function.

    To make matters worse I found mold in my closet and it appears most of my wardrobe got contaminated.

    It’s just been one thing after another.

    A friend is trying to salvage them, but with the severity of my MCAS I suspect I may have to toss and replace.

    That said, hit me up with any tips you might have for removing mold and mildew from clothes. Or hidden gems for finding cheap but comfortable, ethical clothing. I can only wear loose cotton and my clothes were all good quality (and I hate shopping).

    I plan to write a series of articles once I recover, including one about housing instability and another about setbacks and contingency planning when chronically ill.

    Thank you to everyone who’s been supporting me and patiently waiting for me to get back to writing!

    #chronicillness #ableism #mcas #disability

  8. I’ve had to move apartments and it’s been absolutely brutal on my baseline. The setback has been humbling, terrifying and frustrating in equal measure.

    This is life with chronic illness.

    Everything is so much harder.

    Any significant upheaval can cause major losses of function.

    To make matters worse I found mold in my closet and it appears most of my wardrobe got contaminated.

    It’s just been one thing after another.

    A friend is trying to salvage them, but with the severity of my MCAS I suspect I may have to toss and replace.

    That said, hit me up with any tips you might have for removing mold and mildew from clothes. Or hidden gems for finding cheap but comfortable, ethical clothing. I can only wear loose cotton and my clothes were all good quality (and I hate shopping).

    I plan to write a series of articles once I recover, including one about housing instability and another about setbacks and contingency planning when chronically ill.

    Thank you to everyone who’s been supporting me and patiently waiting for me to get back to writing!

    #chronicillness #ableism #mcas #disability

  9. I’ve had to move apartments and it’s been absolutely brutal on my baseline. The setback has been humbling, terrifying and frustrating in equal measure.

    This is life with chronic illness.

    Everything is so much harder.

    Any significant upheaval can cause major losses of function.

    To make matters worse I found mold in my closet and it appears most of my wardrobe got contaminated.

    It’s just been one thing after another.

    A friend is trying to salvage them, but with the severity of my MCAS I suspect I may have to toss and replace.

    That said, hit me up with any tips you might have for removing mold and mildew from clothes. Or hidden gems for finding cheap but comfortable, ethical clothing. I can only wear loose cotton and my clothes were all good quality (and I hate shopping).

    I plan to write a series of articles once I recover, including one about housing instability and another about setbacks and contingency planning when chronically ill.

    Thank you to everyone who’s been supporting me and patiently waiting for me to get back to writing!

    #chronicillness #ableism #mcas #disability

  10. I’ve had to move apartments and it’s been absolutely brutal on my baseline. The setback has been humbling, terrifying and frustrating in equal measure.

    This is life with chronic illness.

    Everything is so much harder.

    Any significant upheaval can cause major losses of function.

    To make matters worse I found mold in my closet and it appears most of my wardrobe got contaminated.

    It’s just been one thing after another.

    A friend is trying to salvage them, but with the severity of my MCAS I suspect I may have to toss and replace.

    That said, hit me up with any tips you might have for removing mold and mildew from clothes. Or hidden gems for finding cheap but comfortable, ethical clothing. I can only wear loose cotton and my clothes were all good quality (and I hate shopping).

    I plan to write a series of articles once I recover, including one about housing instability and another about setbacks and contingency planning when chronically ill.

    Thank you to everyone who’s been supporting me and patiently waiting for me to get back to writing!

    #chronicillness #ableism #mcas #disability

  11. Please boost: My spouse can no longer work due to #MultipleSclerosis, #MCAS and other complications; please help our queer family survive.

    chuffed.org/project/kat

    Our most urgent needs:
    $125/172 for groceries
    $0/150 cat food and litter for 2 cats
    $0/60 medicine
    $0/60 dog food (sensitive skin and stomach)

    Venmo: @bohe2389
    Cashapp: $bohe2389

    #MutualAid #MutualAidRequest #DisabledAid #Queer #Trans

  12. So sorry to everyone I owe replies to … the move was far harder on me than I anticipated. A number of items need to be completely thrown out which is a huge unexpected expense… and only about half my stuff actually got moved in the time we had.

    Needless to say I’m having to accept that my baseline is shattered and it might be a bit longer than usual before I can be writing again.

    Nothing good comes from pushing our bodies past what they can do, so I’m focusing on rest and finishing this move.

    Honestly I wish there was secure and affordable housing for disabled people for life. Being forced to move when you can’t even get out of bed is one of the most stressful things you can be put through … and it Happens to way too many of us.

    I fully plan to write an article on housing instability and discrimination against disabled people once I’m back to baseline !

    In the meantime I need suggestions for cheap but safe online retailers where I can replace clothes. Due to a severe mold problem in old apartment almost everything has to be tossed. With my severe MCAS I can’t wear a lot of fabrics so if anyone knows of a unicorn store please let me know (my go to Canadian brand has become too expensive for me)

    #disability #ableism #chronicillness #mcas #eugenics #clothing #mold #mecfs #housingisahumanright

  13. So sorry to everyone I owe replies to … the move was far harder on me than I anticipated. A number of items need to be completely thrown out which is a huge unexpected expense… and only about half my stuff actually got moved in the time we had.

    Needless to say I’m having to accept that my baseline is shattered and it might be a bit longer than usual before I can be writing again.

    Nothing good comes from pushing our bodies past what they can do, so I’m focusing on rest and finishing this move.

    Honestly I wish there was secure and affordable housing for disabled people for life. Being forced to move when you can’t even get out of bed is one of the most stressful things you can be put through … and it Happens to way too many of us.

    I fully plan to write an article on housing instability and discrimination against disabled people once I’m back to baseline !

    In the meantime I need suggestions for cheap but safe online retailers where I can replace clothes. Due to a severe mold problem in old apartment almost everything has to be tossed. With my severe MCAS I can’t wear a lot of fabrics so if anyone knows of a unicorn store please let me know (my go to Canadian brand has become too expensive for me)

    #disability #ableism #chronicillness #mcas #eugenics #clothing #mold #mecfs #housingisahumanright

  14. So sorry to everyone I owe replies to … the move was far harder on me than I anticipated. A number of items need to be completely thrown out which is a huge unexpected expense… and only about half my stuff actually got moved in the time we had.

    Needless to say I’m having to accept that my baseline is shattered and it might be a bit longer than usual before I can be writing again.

    Nothing good comes from pushing our bodies past what they can do, so I’m focusing on rest and finishing this move.

    Honestly I wish there was secure and affordable housing for disabled people for life. Being forced to move when you can’t even get out of bed is one of the most stressful things you can be put through … and it Happens to way too many of us.

    I fully plan to write an article on housing instability and discrimination against disabled people once I’m back to baseline !

    In the meantime I need suggestions for cheap but safe online retailers where I can replace clothes. Due to a severe mold problem in old apartment almost everything has to be tossed. With my severe MCAS I can’t wear a lot of fabrics so if anyone knows of a unicorn store please let me know (my go to Canadian brand has become too expensive for me)

    #disability #ableism #chronicillness #mcas #eugenics #clothing #mold #mecfs #housingisahumanright

  15. So sorry to everyone I owe replies to … the move was far harder on me than I anticipated. A number of items need to be completely thrown out which is a huge unexpected expense… and only about half my stuff actually got moved in the time we had.

    Needless to say I’m having to accept that my baseline is shattered and it might be a bit longer than usual before I can be writing again.

    Nothing good comes from pushing our bodies past what they can do, so I’m focusing on rest and finishing this move.

    Honestly I wish there was secure and affordable housing for disabled people for life. Being forced to move when you can’t even get out of bed is one of the most stressful things you can be put through … and it Happens to way too many of us.

    I fully plan to write an article on housing instability and discrimination against disabled people once I’m back to baseline !

    In the meantime I need suggestions for cheap but safe online retailers where I can replace clothes. Due to a severe mold problem in old apartment almost everything has to be tossed. With my severe MCAS I can’t wear a lot of fabrics so if anyone knows of a unicorn store please let me know (my go to Canadian brand has become too expensive for me)

    #disability #ableism #chronicillness #mcas #eugenics #clothing #mold #mecfs #housingisahumanright

  16. So sorry to everyone I owe replies to … the move was far harder on me than I anticipated. A number of items need to be completely thrown out which is a huge unexpected expense… and only about half my stuff actually got moved in the time we had.

    Needless to say I’m having to accept that my baseline is shattered and it might be a bit longer than usual before I can be writing again.

    Nothing good comes from pushing our bodies past what they can do, so I’m focusing on rest and finishing this move.

    Honestly I wish there was secure and affordable housing for disabled people for life. Being forced to move when you can’t even get out of bed is one of the most stressful things you can be put through … and it Happens to way too many of us.

    I fully plan to write an article on housing instability and discrimination against disabled people once I’m back to baseline !

    In the meantime I need suggestions for cheap but safe online retailers where I can replace clothes. Due to a severe mold problem in old apartment almost everything has to be tossed. With my severe MCAS I can’t wear a lot of fabrics so if anyone knows of a unicorn store please let me know (my go to Canadian brand has become too expensive for me)

    #disability #ableism #chronicillness #mcas #eugenics #clothing #mold #mecfs #housingisahumanright

  17. Eine meiner ehemaligen Abiturient*innen (jetzt schon lange Studentin) war heute in Berlin auf der #Liegenddemo. Diese Solidarität berührt mich sehr.

    #MEcfs #POTS #MCAS #CCI

  18. Eine meiner ehemaligen Abiturient*innen (jetzt schon lange Studentin) war heute in Berlin auf der #Liegenddemo. Diese Solidarität berührt mich sehr.

    #MEcfs #POTS #MCAS #CCI

  19. Eine meiner ehemaligen Abiturient*innen (jetzt schon lange Studentin) war heute in Berlin auf der #Liegenddemo. Diese Solidarität berührt mich sehr.

    #MEcfs #POTS #MCAS #CCI

  20. Eine meiner ehemaligen Abiturient*innen (jetzt schon lange Studentin) war heute in Berlin auf der #Liegenddemo. Diese Solidarität berührt mich sehr.

    #MEcfs #POTS #MCAS #CCI

  21. Eine meiner ehemaligen Abiturient*innen (jetzt schon lange Studentin) war heute in Berlin auf der #Liegenddemo. Diese Solidarität berührt mich sehr.

    #MEcfs #POTS #MCAS #CCI

  22. Please boost: My spouse can no longer work due to #MultipleSclerosis, #MCAS and other complications; please help our queer family survive.

    chuffed.org/project/kat

    Our most urgent needs:
    $125/172 for groceries
    $0/150 cat food and litter for 2 cats
    $0/60 medicine
    $0/60 dog food (sensitive skin and stomach)

    Venmo: @bohe2389
    Cashapp: $bohe2389

    #MutualAid #MutualAidRequest #DisabledAid #Queer #Trans

  23. Replies might be slow bc I’m in nightmare migraine land & exhausted, but I appreciate any and all the ideas.

    The house had remodeling done before we moved in 1.5 yesrss ago and I didn’t know that was going to be an issue…

    We tried cookouts & their efficacy was negligible especially for how much of a PITA they are, but if anyone w expertise thinks that there’s something to be gained by doing a ton more I will.

    I really really don’t want to have to move…

    #MCAS #airQuality #MCS

  24. Replies might be slow bc I’m in nightmare migraine land & exhausted, but I appreciate any and all the ideas.

    The house had remodeling done before we moved in 1.5 yesrss ago and I didn’t know that was going to be an issue…

    We tried cookouts & their efficacy was negligible especially for how much of a PITA they are, but if anyone w expertise thinks that there’s something to be gained by doing a ton more I will.

    I really really don’t want to have to move…

    #MCAS #airQuality #MCS

  25. Replies might be slow bc I’m in nightmare migraine land & exhausted, but I appreciate any and all the ideas.

    The house had remodeling done before we moved in 1.5 yesrss ago and I didn’t know that was going to be an issue…

    We tried cookouts & their efficacy was negligible especially for how much of a PITA they are, but if anyone w expertise thinks that there’s something to be gained by doing a ton more I will.

    I really really don’t want to have to move…

    #MCAS #airQuality #MCS

  26. Replies might be slow bc I’m in nightmare migraine land & exhausted, but I appreciate any and all the ideas.

    The house had remodeling done before we moved in 1.5 yesrss ago and I didn’t know that was going to be an issue…

    We tried cookouts & their efficacy was negligible especially for how much of a PITA they are, but if anyone w expertise thinks that there’s something to be gained by doing a ton more I will.

    I really really don’t want to have to move…

    #MCAS #airQuality #MCS

  27. Replies might be slow bc I’m in nightmare migraine land & exhausted, but I appreciate any and all the ideas.

    The house had remodeling done before we moved in 1.5 yesrss ago and I didn’t know that was going to be an issue…

    We tried cookouts & their efficacy was negligible especially for how much of a PITA they are, but if anyone w expertise thinks that there’s something to be gained by doing a ton more I will.

    I really really don’t want to have to move…

    #MCAS #airQuality #MCS

  28. Please boost: My spouse can no longer work due to #MultipleSclerosis, #MCAS and other complications; please help our queer family survive.

    chuffed.org/project/kat

    Our most urgent needs:
    $125/172 for groceries
    $0/150 cat food and litter for 2 cats
    $0/60 medicine
    $0/60 dog food (sensitive skin and stomach)

    Venmo: @bohe2389
    Cashapp: $bohe2389

    #MutualAid #MutualAidRequest #DisabledAid #Queer #Trans

  29. I think salting my food increases my reactivity. It's disappointing, since I don't have a lot of variety in my food or options for seasoning it. However, I went salt-free last night at dinner and I enjoyed it - the onions were still quite good.

    Though the focus is often on the sodium in table salt, in this case I think the issue might be chloride, so switching to KCl salt substitute would not help - but perhaps I should try it as a test.

    #MCAS #MastCells #allergies

  30. Please boost: My spouse can no longer work due to #MultipleSclerosis, #MCAS and other complications; please help our queer family survive.

    chuffed.org/project/kat

    Our most urgent needs:
    $125/172 for groceries
    $0/150 cat food and litter for 2 cats
    $0/60 medicine

    Venmo: @bohe2389
    Cashapp: $bohe2389

    #MutualAid #MutualAidRequest #DisabledAid #Queer #Trans

  31. Crashed by abuse. Nothing stops them. Stupidly warned them I needed rest or may need treatment making me sicker long term. (GP advice.) Of course they abused me on purpose. Fever, swollen ribs, pain, screaming. No food or help. Escape ASAP killing me. #Mecfs #Longcovid #pwme #MCAS #ChronicIllness #Covid

  32. Crashed by abuse. Nothing stops them. Stupidly warned them I needed rest or may need treatment making me sicker long term. (GP advice.) Of course they abused me on purpose. Fever, swollen ribs, pain, screaming. No food or help. Escape ASAP killing me. #Mecfs #Longcovid #pwme #MCAS #ChronicIllness #Covid

  33. Weltlage: Scheiße.
    Hier: das LDN scheint anzuschlagen. Lisa 💘 ist aus eigener Kraft zwei Treppenstufen gegangen.

    Dass die einzig wirksame Medikation (low-dose Naltrexon) natürlich "off-label" ist, mithin alles aus dem eigenen Taschengeld zu bezahlen ohne jegliche Rückerstattung, wen wundert's?

    #MCAS #EDS #MECFS #LdN

  34. Meine Krankenkasse lehnt andauernd alle Kostenübernahmen für meine Medikamente ab mit der Begründung, es müsse eine begründete Aussicht auf Besserung bestehen. Ich war vor der Einnahme meiner Medikamente 23h/Tag bettlägerig und kann jetzt 3x/Woche die Wohnung verlassen.
    Ich weiß ehrlich gesagt nicht, wie das alles noch zu rechtfertigen ist. Ich kann ohne diese Medikamente null am sozialen Leben teilhaben, mit zumindest ein wenig.
    #MEcfs #POTS #MCAS #CCI

  35. Meine Krankenkasse lehnt andauernd alle Kostenübernahmen für meine Medikamente ab mit der Begründung, es müsse eine begründete Aussicht auf Besserung bestehen. Ich war vor der Einnahme meiner Medikamente 23h/Tag bettlägerig und kann jetzt 3x/Woche die Wohnung verlassen.
    Ich weiß ehrlich gesagt nicht, wie das alles noch zu rechtfertigen ist. Ich kann ohne diese Medikamente null am sozialen Leben teilhaben, mit zumindest ein wenig.
    #MEcfs #POTS #MCAS #CCI

  36. Meine Krankenkasse lehnt andauernd alle Kostenübernahmen für meine Medikamente ab mit der Begründung, es müsse eine begründete Aussicht auf Besserung bestehen. Ich war vor der Einnahme meiner Medikamente 23h/Tag bettlägerig und kann jetzt 3x/Woche die Wohnung verlassen.
    Ich weiß ehrlich gesagt nicht, wie das alles noch zu rechtfertigen ist. Ich kann ohne diese Medikamente null am sozialen Leben teilhaben, mit zumindest ein wenig.
    #MEcfs #POTS #MCAS #CCI

  37. Meine Krankenkasse lehnt andauernd alle Kostenübernahmen für meine Medikamente ab mit der Begründung, es müsse eine begründete Aussicht auf Besserung bestehen. Ich war vor der Einnahme meiner Medikamente 23h/Tag bettlägerig und kann jetzt 3x/Woche die Wohnung verlassen.
    Ich weiß ehrlich gesagt nicht, wie das alles noch zu rechtfertigen ist. Ich kann ohne diese Medikamente null am sozialen Leben teilhaben, mit zumindest ein wenig.
    #MEcfs #POTS #MCAS #CCI

  38. Meine Krankenkasse lehnt andauernd alle Kostenübernahmen für meine Medikamente ab mit der Begründung, es müsse eine begründete Aussicht auf Besserung bestehen. Ich war vor der Einnahme meiner Medikamente 23h/Tag bettlägerig und kann jetzt 3x/Woche die Wohnung verlassen.
    Ich weiß ehrlich gesagt nicht, wie das alles noch zu rechtfertigen ist. Ich kann ohne diese Medikamente null am sozialen Leben teilhaben, mit zumindest ein wenig.
    #MEcfs #POTS #MCAS #CCI

  39. Ich wirke gesund. Aber dieser eine Moment kostet mich oft Tage.

    Viele bezeichnen mich wie das "blühende Leben" wenn sie mich sehen (viele bekommen mich allerdings nicht zu Gesicht). Doch der Eindruck täuscht. Ich möchte euch jetzt zeigen, was ihr nicht seht, wenn ihr mich seht.

    longcovidonline.blog/2026/04/1

    #longcovid #mecfs #chronischkrank #mcas

  40. Ich wirke gesund. Aber dieser eine Moment kostet mich oft Tage.

    Viele bezeichnen mich wie das "blühende Leben" wenn sie mich sehen (viele bekommen mich allerdings nicht zu Gesicht). Doch der Eindruck täuscht. Ich möchte euch jetzt zeigen, was ihr nicht seht, wenn ihr mich seht.

    longcovidonline.blog/2026/04/1

    #longcovid #mecfs #chronischkrank #mcas

  41. Ich wirke gesund. Aber dieser eine Moment kostet mich oft Tage.

    Viele bezeichnen mich wie das "blühende Leben" wenn sie mich sehen (viele bekommen mich allerdings nicht zu Gesicht). Doch der Eindruck täuscht. Ich möchte euch jetzt zeigen, was ihr nicht seht, wenn ihr mich seht.

    longcovidonline.blog/2026/04/1

    #longcovid #mecfs #chronischkrank #mcas

  42. Ich wirke gesund. Aber dieser eine Moment kostet mich oft Tage.

    Viele bezeichnen mich wie das "blühende Leben" wenn sie mich sehen (viele bekommen mich allerdings nicht zu Gesicht). Doch der Eindruck täuscht. Ich möchte euch jetzt zeigen, was ihr nicht seht, wenn ihr mich seht.

    longcovidonline.blog/2026/04/1

    #longcovid #mecfs #chronischkrank #mcas

  43. Ich wirke gesund. Aber dieser eine Moment kostet mich oft Tage.

    Viele bezeichnen mich wie das "blühende Leben" wenn sie mich sehen (viele bekommen mich allerdings nicht zu Gesicht). Doch der Eindruck täuscht. Ich möchte euch jetzt zeigen, was ihr nicht seht, wenn ihr mich seht.

    longcovidonline.blog/2026/04/1

    #longcovid #mecfs #chronischkrank #mcas

  44. Good news, my safe foods I’d been reacting to these last few weeks has gone back to lower reaction. It’s my last lot of antibiotics tomorrow, so looks like being ill made everything worse, which makes sense.

    When I went to the drs last week, they were surprised I didn’t know I had strep throat. I said I’m just used to feeling really ill and being told it’s fibromyalgia, or just something I have to deal with, I hadn’t even gone about my sore throat snd earache 😂 This was a sympathetic locum, who said it shouldn’t be like this.

    #ChronicIllness #Fibromyalgia #Fibro #ME #CFSME #ChronicPain #MCAS #Anxiety #Perimenopause #Depression #Agoraphobia #ADHD #AuDHD #Autistic #Palpatations probably more

  45. Recently, I've been repeatedly tagged by people who mistakenly believe my account belongs to astronaut Christina Koch.
    I'm not her.
    I can barely make it to the next train station, let alone into space. I'm severely ill with #MEcfs #POTS #CCI #MCAS and housebound most days.

  46. Recently, I've been repeatedly tagged by people who mistakenly believe my account belongs to astronaut Christina Koch.
    I'm not her.
    I can barely make it to the next train station, let alone into space. I'm severely ill with #MEcfs #POTS #CCI #MCAS and housebound most days.