#fibromyalgia — Public Fediverse posts

Baby Yoda neck pillow(with a hood), and what a game changer for my fibromyalgia! I actually managed some half decent sleep😁 Hooray!

#fibromyalgia #pillow #babyyodadada #babyyoda #grogu

The #Finch app said I should "doodle a quick self-portrait" today.

I don't like looking at my face, and I suck at drawing human faces.

So I did... Depictions instead.

#depression #indecision #Fibromyalgia #ChronicPain #doodle #sketch

The #Finch app said I should "doodle a quick self-portrait" today.

I don't like looking at my face, and I suck at drawing human faces.

So I did... Depictions instead.

#depression #indecision #Fibromyalgia #ChronicPain #doodle #sketch

The #Finch app said I should "doodle a quick self-portrait" today.

I don't like looking at my face, and I suck at drawing human faces.

So I did... Depictions instead.

#depression #indecision #Fibromyalgia #ChronicPain #doodle #sketch

The #Finch app said I should "doodle a quick self-portrait" today.

I don't like looking at my face, and I suck at drawing human faces.

So I did... Depictions instead.

#depression #indecision #Fibromyalgia #ChronicPain #doodle #sketch

The #Finch app said I should "doodle a quick self-portrait" today.

I don't like looking at my face, and I suck at drawing human faces.

So I did... Depictions instead.

#depression #indecision #Fibromyalgia #ChronicPain #doodle #sketch

UK press release:
New study reveals high rates of likely undiagnosed autism and ADHD in people with chronic pain and fatigue

https://www.bsms.ac.uk/about/news/2026/new-study-reveals-high-rates-of-likely-undiagnosed-autism-and-adhd-in-people-with-chronic-pain-and-fatigue.aspx

Comment: I’d have to see a few more rigorous studies before I might be convinced

#MEcfs #Fibromyalgia #PwME #ME #MyalgicE
@mecfs

UK press release:
New study reveals high rates of likely undiagnosed autism and ADHD in people with chronic pain and fatigue

https://www.bsms.ac.uk/about/news/2026/new-study-reveals-high-rates-of-likely-undiagnosed-autism-and-adhd-in-people-with-chronic-pain-and-fatigue.aspx

Comment: I’d have to see a few more rigorous studies before I might be convinced

#MEcfs #Fibromyalgia #PwME #ME #MyalgicE
@mecfs

A fun thing about being on different meds after my operation is that my fibro numbers are wonderfully low today😂 Gotta take the good where you can find it😁😉

#fibromyalgia #kidney #disabled #kidneys #disabledlife #cptsd #ptsd

A fun thing about being on different meds after my operation is that my fibro numbers are wonderfully low today😂 Gotta take the good where you can find it😁😉

#fibromyalgia #kidney #disabled #kidneys #disabledlife #cptsd #ptsd

"The predominance of cerebral hypometabolism in [Long covid] patients with PEM draws important corollaries to similar changes seen in patients with FM & ME/CFS in prior neuroimaging studies"

https://journals.sagepub.com/doi/10.1177/21501319261458748

Screenshot from Science for ME update

#MEcfs #PwME #ME #MyalgicE
@mecfs
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC #Fibromyalgia #Fibro #FMS #FM

"The predominance of cerebral hypometabolism in [Long covid] patients with PEM draws important corollaries to similar changes seen in patients with FM & ME/CFS in prior neuroimaging studies"

https://journals.sagepub.com/doi/10.1177/21501319261458748

Screenshot from Science for ME update

#MEcfs #PwME #ME #MyalgicE
@mecfs
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC #Fibromyalgia #Fibro #FMS #FM

Hi all,

So we had a tricky weekend helping NJ through a cartwheel-induced head collision with a stage light, a trip to the minor injuries unit for patch-up and assessment...

I've been under horrendous pain levels, despite efforts to control them, or distract myself from them.

And I'm fed up of pain. All day. Every day.

Not that there's anything I can do about it. I have to keep going.

Somehow.

Let's say...it's a good thing I have wifey and NJ.

#chronicpain #Fibromyalgia #fedup

Hi all,

So we had a tricky weekend helping NJ through a cartwheel-induced head collision with a stage light, a trip to the minor injuries unit for patch-up and assessment...

I've been under horrendous pain levels, despite efforts to control them, or distract myself from them.

And I'm fed up of pain. All day. Every day.

Not that there's anything I can do about it. I have to keep going.

Somehow.

Let's say...it's a good thing I have wifey and NJ.

#chronicpain #Fibromyalgia #fedup

End of Spring Update

Good evening, friends! Welcome back to Random Thoughts, Purposeful Life. There’s a lot to talk about tonight, so pull up a chair and grab a glass of that iced tea. Let’s chat a while, shall we?

I can’t believe I haven’t checked in since February. A lot has happened since then, so let’s get right to it.

I hinted around at a doctor’s visit I had back in late winter and early spring. The issues I’ve had with my back since Hurricane Milton aren’t getting better. In late January, I had a scare with some new numbness in my legs that had crept above my knees and into what doctors politely refer to as the “saddle area.” While the sciatica and numbness never seemed particularly concerning to my doctor, they’ve certainly been concerning to me.

A set of x-rays and a hard-fought MRI later, there have been some significant findings. One likely explains the sciatica, and all of them together explain why my back is getting ready to file for divorce any day now.

In plain English, my MRI showed narrowing in my lower spine, especially at L3-L4. The report suggests that part of my spinal canal may be naturally smaller front-to-back, described as “developmental,” while age and wear-and-tear changes in the joints and supporting structures of my spine are narrowing things further. In other words, this isn’t just a disc problem. The main issue appears to be a combination of a smaller spinal canal, arthritic changes in the facet joints, and mild vertebral slippage, all of which can crowd the nerves and contribute to sciatica-type symptoms.

Just what I wanted to hear.

If that wasn’t enough excitement for one season, both Mercy, my poor skinny little walking head case, and Bella have spent much of the spring under the weather. Mercy’s issues are ongoing. We saw a new veterinarian in early spring who believes we’re dealing with advanced gastritis. She now fights medication with the determination of a cat possessing eight additional paws, four sets of teeth, and the heart of a championship boxer.

Bella’s problems began with a urinary tract infection in January that put me on high alert. After a second round of infection, we discovered the culprit: a bladder stone. Thankfully, her bloodwork looked good, but it has been one more thing added to an already overflowing plate.

Speaking of overflowing plates, let’s move on to the grandfather of all stressors: major surgery.

Not mine, unfortunately. My back and I don’t rank high enough on the household priority list for that distinction. I’m not really joking when I say that. If I go down, the entire household stops functioning. Caregiving is the career from which there is no vacation, no sick leave, no clocking out at the end of the day, and very little pay.

If you guessed Hubby for the surgery, you win today’s consolation prize: my sob story. Now, this is an ongoing issue over the last twelve months. Pain, and what he described as “sand paper in the muscle,” needed some extra attention. What the doctor discovered was extra bone growth from his 2012 total hip replacement, except this bone is making its home in the muscles around the implant. So, he’s set for a hip revision with this extra bone removed at the same time.

I know y’all realize the problems I’ve had with Hubby over the years. And though some of you might be reluctant to remember him in prayer, I’d like to respectfully ask for some on his behalf, anyway. Yes, our past is troubled. But he’s nervous, and he has good reason to be, without me going into the laundry list of issues he is dealing with. This isn’t my place to disclose such things. But what I will say is that this date still depends on one person; the surgeon responsible for this procedure.

Well… Friday morning, the surgeon said no. And just like that, everything—the last six weeks worth of work, appointments, stress, management—wasted. Totally wasted. All because a stubborn man cannot be managed. He almost always must be tricked. Either I’m too honest, too burned out, or too afraid to cross him at this point. Maybe a combination of all three.

Y’all? I’m tired. Not in the traditional “go take a nap, silly woman” context. But a bone-weary, if nothing changes, I’ll break kind of tired. The tired of a woman carrying two sick cats, a household held together with duct tape and sarcasm, and a husband who seems convinced that doctors merely offer suggestions. The tired that comes from being the keeper of appointments, medications, emergencies, reminders, and contingency plans. The tired that whispers, “What happens if I don’t do it?” because experience has taught me the answer is usually, “Nobody else will.”

And now, because I can’t leave this post wallowing in sorrow and pain, I have some better news.

Last June, I was invited to Amazon Vine as a “Voice.” If you’re not familiar, it’s a program designed to help Amazon vendors accumulate reviews on their products. In exchange for an honest, unbiased review, these companies provide the products at no cost.

If there was ever a job that had, “Wendy” on it, it’s this one. Writing reviews? Sign me up!

Over the past year, I’ve snagged some genuinely great things, but the granddaddy of the Vine items I’ve snagged was a 55″ Samsung Smart TV. Nothing will ever top that. Ever. Where we used to have an empty spot in the living room, we now have entertainment for the low, low price of free.

Sometimes, I wonder how I get so blessed, and yes, on top of everything? I’m ridiculously blessed. Let’s list them, shall we?

• Mercy and Bella. Are they challenging? Yes. Are they worth it? Also yes.
• Both this blog and The Farmer Legacy. I’m in the process of reformatting both. If you’re into slow-burn romance, come visit the Legacy page.
• A “job” that I love. Amazon might not be a job in the traditional sense, but it’s fun and I love it.
• Family and friends, including a few people who remind me that I’m not carrying it alone.
• A life that I’m continuing to improve.
• My faith.

So yeah, I’ll take it. All of it.

Thanks for coming and sitting with me for a glass of virtual iced tea.

Featured image courtesy of OpenAI. All written content is the result of human creativity.

End of Spring Update

Good evening, friends! Welcome back to Random Thoughts, Purposeful Life. There’s a lot to talk about tonight, so pull up a chair and grab a glass of that iced tea. Let’s chat a while, shall we?

I can’t believe I haven’t checked in since February. A lot has happened since then, so let’s get right to it.

I hinted around at a doctor’s visit I had back in late winter and early spring. The issues I’ve had with my back since Hurricane Milton aren’t getting better. In late January, I had a scare with some new numbness in my legs that had crept above my knees and into what doctors politely refer to as the “saddle area.” While the sciatica and numbness never seemed particularly concerning to my doctor, they’ve certainly been concerning to me.

A set of x-rays and a hard-fought MRI later, there have been some significant findings. One likely explains the sciatica, and all of them together explain why my back is getting ready to file for divorce any day now.

In plain English, my MRI showed narrowing in my lower spine, especially at L3-L4. The report suggests that part of my spinal canal may be naturally smaller front-to-back, described as “developmental,” while age and wear-and-tear changes in the joints and supporting structures of my spine are narrowing things further. In other words, this isn’t just a disc problem. The main issue appears to be a combination of a smaller spinal canal, arthritic changes in the facet joints, and mild vertebral slippage, all of which can crowd the nerves and contribute to sciatica-type symptoms.

Just what I wanted to hear.

If that wasn’t enough excitement for one season, both Mercy, my poor skinny little walking head case, and Bella have spent much of the spring under the weather. Mercy’s issues are ongoing. We saw a new veterinarian in early spring who believes we’re dealing with advanced gastritis. She now fights medication with the determination of a cat possessing eight additional paws, four sets of teeth, and the heart of a championship boxer.

Bella’s problems began with a urinary tract infection in January that put me on high alert. After a second round of infection, we discovered the culprit: a bladder stone. Thankfully, her bloodwork looked good, but it has been one more thing added to an already overflowing plate.

Speaking of overflowing plates, let’s move on to the grandfather of all stressors: major surgery.

Not mine, unfortunately. My back and I don’t rank high enough on the household priority list for that distinction. I’m not really joking when I say that. If I go down, the entire household stops functioning. Caregiving is the career from which there is no vacation, no sick leave, no clocking out at the end of the day, and very little pay.

If you guessed Hubby for the surgery, you win today’s consolation prize: my sob story. Now, this is an ongoing issue over the last twelve months. Pain, and what he described as “sand paper in the muscle,” needed some extra attention. What the doctor discovered was extra bone growth from his 2012 total hip replacement, except this bone is making its home in the muscles around the implant. So, he’s set for a hip revision with this extra bone removed at the same time.

I know y’all realize the problems I’ve had with Hubby over the years. And though some of you might be reluctant to remember him in prayer, I’d like to respectfully ask for some on his behalf, anyway. Yes, our past is troubled. But he’s nervous, and he has good reason to be, without me going into the laundry list of issues he is dealing with. This isn’t my place to disclose such things. But what I will say is that this date still depends on one person; the surgeon responsible for this procedure.

Well… Friday morning, the surgeon said no. And just like that, everything—the last six weeks worth of work, appointments, stress, management—wasted. Totally wasted. All because a stubborn man cannot be managed. He almost always must be tricked. Either I’m too honest, too burned out, or too afraid to cross him at this point. Maybe a combination of all three.

Y’all? I’m tired. Not in the traditional “go take a nap, silly woman” context. But a bone-weary, if nothing changes, I’ll break kind of tired. The tired of a woman carrying two sick cats, a household held together with duct tape and sarcasm, and a husband who seems convinced that doctors merely offer suggestions. The tired that comes from being the keeper of appointments, medications, emergencies, reminders, and contingency plans. The tired that whispers, “What happens if I don’t do it?” because experience has taught me the answer is usually, “Nobody else will.”

And now, because I can’t leave this post wallowing in sorrow and pain, I have some better news.

Last June, I was invited to Amazon Vine as a “Voice.” If you’re not familiar, it’s a program designed to help Amazon vendors accumulate reviews on their products. In exchange for an honest, unbiased review, these companies provide the products at no cost.

If there was ever a job that had, “Wendy” on it, it’s this one. Writing reviews? Sign me up!

Over the past year, I’ve snagged some genuinely great things, but the granddaddy of the Vine items I’ve snagged was a 55″ Samsung Smart TV. Nothing will ever top that. Ever. Where we used to have an empty spot in the living room, we now have entertainment for the low, low price of free.

Sometimes, I wonder how I get so blessed, and yes, on top of everything? I’m ridiculously blessed. Let’s list them, shall we?

• Mercy and Bella. Are they challenging? Yes. Are they worth it? Also yes.
• Both this blog and The Farmer Legacy. I’m in the process of reformatting both. If you’re into slow-burn romance, come visit the Legacy page.
• A “job” that I love. Amazon might not be a job in the traditional sense, but it’s fun and I love it.
• Family and friends, including a few people who remind me that I’m not carrying it alone.
• A life that I’m continuing to improve.
• My faith.

So yeah, I’ll take it. All of it.

Thanks for coming and sitting with me for a glass of virtual iced tea.

Featured image courtesy of OpenAI. All written content is the result of human creativity.

A 64-Year-Old Gardener Stopped by Groin Pain https://www.allforgardening.com/1805052/a-64-year-old-gardener-stopped-by-groin-pain/ #arthralgia #BackPain #fibromyalgia #garden #gardener #gardening #HipPain #JointPain #OveruseInjury;RepetitiveStrainInjury;CumulativeTraumaDisorder;OccupationalOveruseSyndrome;WRULD;WorkRelatedUpperLimbDisorder;WorkRelatedUpperLimbDisorder(WRULD) #Pain #PainManagement #PainfulJoint #ShoulderPain

A 64-Year-Old Gardener Stopped by Groin Pain https://www.allforgardening.com/1805052/a-64-year-old-gardener-stopped-by-groin-pain/ #arthralgia #BackPain #fibromyalgia #garden #gardener #gardening #HipPain #JointPain #OveruseInjury;RepetitiveStrainInjury;CumulativeTraumaDisorder;OccupationalOveruseSyndrome;WRULD;WorkRelatedUpperLimbDisorder;WorkRelatedUpperLimbDisorder(WRULD) #Pain #PainManagement #PainfulJoint #ShoulderPain

Schonen oder powern?

Das weiß man mit Fibromyalgie manchmal nicht so recht. Wann ist Ausruhen, Pause angesagt und wann eher Aktivierung, Bewegung? Vermutlich muss das jede und jeder Betroffene für sich selbst entscheiden. ⚖️

Wichtig dabei zu wissen ist aber, dass Sport ohne Überforderung, also vor allem niedrig dosiertes Ausdauertraining, in jedem Fall eine gute Entscheidung ist. 👟

Eine Studie aus 2025 belegt, dass körperliche Fitness durch ein angeleitetes dreiwöchiges Aktivierungsprogramm (Fibro-Aktiv) verbessert wird und sich dadurch Symptome verringern können. 💪

Vielleicht auch ein gutes Kriterium bei der Suche nach einer Reha-Klinik, ob dort das Fibro-Aktiv-Programm bereits angeboten wird.

#Fibromyalgie #Fibromyalgia #FibroRunner #Studie #FibroAktiv #Reha

link.springer.com/article/10.1…

2/

So when something feels harder to name or hold, it’s often not about the reality of the symptoms, but about the way we see them. #chronicillnesssupport #invisibleillness #advocacy #spooniesupport #occupationaltherapy

Tom: Doesn’t reference ME/CFS or Long Covid but does mention Fibromyalgia

#Fibromyalgia

2/

So when something feels harder to name or hold, it’s often not about the reality of the symptoms, but about the way we see them. #chronicillnesssupport #invisibleillness #advocacy #spooniesupport #occupationaltherapy

Tom: Doesn’t reference ME/CFS or Long Covid but does mention Fibromyalgia

#Fibromyalgia

2/

So when something feels harder to name or hold, it’s often not about the reality of the symptoms, but about the way we see them. #chronicillnesssupport #invisibleillness #advocacy #spooniesupport #occupationaltherapy

Tom: Doesn’t reference ME/CFS or Long Covid but does mention Fibromyalgia

#Fibromyalgia

2/

So when something feels harder to name or hold, it’s often not about the reality of the symptoms, but about the way we see them. #chronicillnesssupport #invisibleillness #advocacy #spooniesupport #occupationaltherapy

Tom: Doesn’t reference ME/CFS or Long Covid but does mention Fibromyalgia

#Fibromyalgia

2/

So when something feels harder to name or hold, it’s often not about the reality of the symptoms, but about the way we see them. #chronicillnesssupport #invisibleillness #advocacy #spooniesupport #occupationaltherapy

Tom: Doesn’t reference ME/CFS or Long Covid but does mention Fibromyalgia

#Fibromyalgia

Good news, my safe foods I’d been reacting to these last few weeks has gone back to lower reaction. It’s my last lot of antibiotics tomorrow, so looks like being ill made everything worse, which makes sense.

When I went to the drs last week, they were surprised I didn’t know I had strep throat. I said I’m just used to feeling really ill and being told it’s fibromyalgia, or just something I have to deal with, I hadn’t even gone about my sore throat snd earache 😂 This was a sympathetic locum, who said it shouldn’t be like this.

#ChronicIllness #Fibromyalgia #Fibro #ME #CFSME #ChronicPain #MCAS #Anxiety #Perimenopause #Depression #Agoraphobia #ADHD #AuDHD #Autistic #Palpatations probably more

Good news, my safe foods I’d been reacting to these last few weeks has gone back to lower reaction. It’s my last lot of antibiotics tomorrow, so looks like being ill made everything worse, which makes sense.

When I went to the drs last week, they were surprised I didn’t know I had strep throat. I said I’m just used to feeling really ill and being told it’s fibromyalgia, or just something I have to deal with, I hadn’t even gone about my sore throat snd earache 😂 This was a sympathetic locum, who said it shouldn’t be like this.

#ChronicIllness #Fibromyalgia #Fibro #ME #CFSME #ChronicPain #MCAS #Anxiety #Perimenopause #Depression #Agoraphobia #ADHD #AuDHD #Autistic #Palpatations probably more

Just realized the weight ive recently put on might actually be muscle??? Crying bc no other reaction feels to quite fit this emotion im experiencing/failing to name

I havent been trying to gain or lose weight, just doing range of motion and flexibility stuff plus the odd dance movement with a fancy French name... i have a few what feel to me both modest and extravagant dance aspirations, so in some ways this development makes sense, its just so incredibly alien to me to actually detect progress toward those goals!!

For context: ive been #chronicallyill since at least 2012, and was fully bedridden for at least seven of those years. Im still rather severely mentally ill but my body has been doing somewhat better lately (ongoing problems notwithstanding), for which im endlessly grateful and going to make the most of while I can, whatever that ends up looking like

Random snaps my partner took of me the other day, for attention and bc i look fantastic 🩷

#ChronicFatigue #ChronicPain #mecfs #fibromyalgia #hypermobility

Just realized the weight ive recently put on might actually be muscle??? Crying bc no other reaction feels to quite fit this emotion im experiencing/failing to name

I havent been trying to gain or lose weight, just doing range of motion and flexibility stuff plus the odd dance movement with a fancy French name... i have a few what feel to me both modest and extravagant dance aspirations, so in some ways this development makes sense, its just so incredibly alien to me to actually detect progress toward those goals!!

For context: ive been #chronicallyill since at least 2012, and was fully bedridden for at least seven of those years. Im still rather severely mentally ill but my body has been doing somewhat better lately (ongoing problems notwithstanding), for which im endlessly grateful and going to make the most of while I can, whatever that ends up looking like

Random snaps my partner took of me the other day, for attention and bc i look fantastic 🩷

#ChronicFatigue #ChronicPain #mecfs #fibromyalgia #hypermobility

Just realized the weight ive recently put on might actually be muscle??? Crying bc no other reaction feels to quite fit this emotion im experiencing/failing to name

I havent been trying to gain or lose weight, just doing range of motion and flexibility stuff plus the odd dance movement with a fancy French name... i have a few what feel to me both modest and extravagant dance aspirations, so in some ways this development makes sense, its just so incredibly alien to me to actually detect progress toward those goals!!

For context: ive been #chronicallyill since at least 2012, and was fully bedridden for at least seven of those years. Im still rather severely mentally ill but my body has been doing somewhat better lately (ongoing problems notwithstanding), for which im endlessly grateful and going to make the most of while I can, whatever that ends up looking like

Random snaps my partner took of me the other day, for attention and bc i look fantastic 🩷

#ChronicFatigue #ChronicPain #mecfs #fibromyalgia #hypermobility

Just realized the weight ive recently put on might actually be muscle??? Crying bc no other reaction feels to quite fit this emotion im experiencing/failing to name

I havent been trying to gain or lose weight, just doing range of motion and flexibility stuff plus the odd dance movement with a fancy French name... i have a few what feel to me both modest and extravagant dance aspirations, so in some ways this development makes sense, its just so incredibly alien to me to actually detect progress toward those goals!!

For context: ive been #chronicallyill since at least 2012, and was fully bedridden for at least seven of those years. Im still rather severely mentally ill but my body has been doing somewhat better lately (ongoing problems notwithstanding), for which im endlessly grateful and going to make the most of while I can, whatever that ends up looking like

Random snaps my partner took of me the other day, for attention and bc i look fantastic 🩷

#ChronicFatigue #ChronicPain #mecfs #fibromyalgia #hypermobility

Just realized the weight ive recently put on might actually be muscle??? Crying bc no other reaction feels to quite fit this emotion im experiencing/failing to name

I havent been trying to gain or lose weight, just doing range of motion and flexibility stuff plus the odd dance movement with a fancy French name... i have a few what feel to me both modest and extravagant dance aspirations, so in some ways this development makes sense, its just so incredibly alien to me to actually detect progress toward those goals!!

For context: ive been #chronicallyill since at least 2012, and was fully bedridden for at least seven of those years. Im still rather severely mentally ill but my body has been doing somewhat better lately (ongoing problems notwithstanding), for which im endlessly grateful and going to make the most of while I can, whatever that ends up looking like

Random snaps my partner took of me the other day, for attention and bc i look fantastic 🩷

#ChronicFatigue #ChronicPain #mecfs #fibromyalgia #hypermobility

As a #disabled #gardener…it is really frustrating when the weight of tools is not listed online when purchasing ⛏️ :meow_cowboy:

#gardening #HEDS #fibromyalgia #hypermobility #badback

As a #disabled #gardener…it is really frustrating when the weight of tools is not listed online when purchasing ⛏️ :meow_cowboy:

#gardening #HEDS #fibromyalgia #hypermobility #badback

As a #disabled #gardener…it is really frustrating when the weight of tools is not listed online when purchasing ⛏️ :meow_cowboy:

#gardening #HEDS #fibromyalgia #hypermobility #badback

As a #disabled #gardener…it is really frustrating when the weight of tools is not listed online when purchasing ⛏️ :meow_cowboy:

#gardening #HEDS #fibromyalgia #hypermobility #badback

Hey all,

I'm in a really rough "place" with my #Fibromyalgia right now. Effectively my meds aren't...effective. They take a bit of the edge off the pain, but it's not enough.

I've felt incapable for most of the weekend.

I have a phone call with the doc on Wednesday to discuss my meds. I can't go on in this level of pain forever.

#ChronicPain #FedUp

Hey all,

I'm in a really rough "place" with my #Fibromyalgia right now. Effectively my meds aren't...effective. They take a bit of the edge off the pain, but it's not enough.

I've felt incapable for most of the weekend.

I have a phone call with the doc on Wednesday to discuss my meds. I can't go on in this level of pain forever.

#ChronicPain #FedUp

I'm using a combination of a #Conqueror challenge and Pokémon Go as gamification bribery to keep me walking.

Historically, I couldn't quantify "exercise" when talking about it in the context of #Fibromyalgia management. I'm still walking less than 2 miles a day, but that's an improvement.

I'm using a combination of a #Conqueror challenge and Pokémon Go as gamification bribery to keep me walking.

Historically, I couldn't quantify "exercise" when talking about it in the context of #Fibromyalgia management. I'm still walking less than 2 miles a day, but that's an improvement.

I'm using a combination of a #Conqueror challenge and Pokémon Go as gamification bribery to keep me walking.

Historically, I couldn't quantify "exercise" when talking about it in the context of #Fibromyalgia management. I'm still walking less than 2 miles a day, but that's an improvement.

I'm using a combination of a #Conqueror challenge and Pokémon Go as gamification bribery to keep me walking.

Historically, I couldn't quantify "exercise" when talking about it in the context of #Fibromyalgia management. I'm still walking less than 2 miles a day, but that's an improvement.

I'm using a combination of a #Conqueror challenge and Pokémon Go as gamification bribery to keep me walking.

Historically, I couldn't quantify "exercise" when talking about it in the context of #Fibromyalgia management. I'm still walking less than 2 miles a day, but that's an improvement.

Hey #Fibromyalgia fam, Your sudden #flare might be the #weather. ⛈️ We have an intense drop in pressure today in #Mississippi. Rapid drops often trigger #migraines & deep aches from conditions like Meteropathy. ​If you're hurting, check the barometric pressure, you might be weather-sensitive. 💗

You know you’re chronically ill when the drs is always selected whenever you open your contacts 😂

Absolute nightmare getting through this morning, I managed a to get a telephone appointment, I’ll go to walk in/A&E if anything gets worse.

#Fibromyalgia #Fibro #Type2Diabetic #CFSME #CFS #ME #Depression #Anxiety #Agoraphobia #AuDHD #ADHD #Autistic #Allergies #MCAS #HistamineIntolerance

You know you’re chronically ill when the drs is always selected whenever you open your contacts 😂

Absolute nightmare getting through this morning, I managed a to get a telephone appointment, I’ll go to walk in/A&E if anything gets worse.

#Fibromyalgia #Fibro #Type2Diabetic #CFSME #CFS #ME #Depression #Anxiety #Agoraphobia #AuDHD #ADHD #Autistic #Allergies #MCAS #HistamineIntolerance

Mindful Practices for Chronic Pain Relief and Emotional Wellness

Chronic pain manifests in various forms, complicating life and diminishing joy. Whether stemming from autoimmune diseases, arthritis, fibromyalgia, or other chronic conditions, it not only impacts physical health but also has profound emotional and psychological effects that can lead to feelings of isolation and hopelessness. This multifaceted experience often challenges our daily routines, leading individuals to navigate a world that frequently seems unforgiving. To counteract these struggles, embark on a gentle meditative journey that encourages us to fully experience the body as it is, without judgment, and to cultivate awareness of our inner sensations and emotional states. By incorporating techniques such as mindfulness and visualization, we can ease our pain through the transformative power of gratitude, fostering a deeper connection with ourselves and nurturing resilience amidst adversity.

Body Scan

A body scan incorporated into meditation can be a gentle way to ease chronic pain, offering a pathway to greater mindfulness and enhanced body awareness. As we embark on a body scan, we lovingly direct our attention to various parts of our body, acknowledging sensations or tension without judgment. This compassionate practice allows us to recognize and alleviate the anxiety and stress that often accompany chronic pain, paving the way for a more peaceful experience. By embracing relaxation, we help to release muscle tension and foster a deeper connection with ourselves, empowering us to manage our pain responses more effectively. As we cultivate acceptance and compassion towards our pain, we may discover a reduction in discomfort and an uplift in our overall well-being.

Visualization

Visualization in meditation can be a powerful ally in easing chronic pain, as it fosters a gentle mental picture of relaxation and healing, potentially transforming the way we experience pain. By engaging in focused imagery, we can nurture our minds, leading to a reduction in stress and an increase in the release of endorphins, the body’s natural pain relievers. This calming approach allows patients to create a distance from their discomfort, offering a renewed sense of control over their pain management journey. Moreover, visualization techniques can deepen mindfulness, empowering individuals to navigate their pain more effectively by reshaping emotional responses and alleviating anxiety tied to chronic conditions.

Affirmation

Affirmations like: I am in control of my body; Each breath brings me healing and relaxation; Pain is a temporary experience; I am strong and resilient; I embrace comfort and release tension, can genuinely transform how we perceive chronic pain by nurturing a sense of empowerment and mindfulness. By regularly uttering these gentle affirmations, we can forge a deeper bond with our physical sensations and emotional states. This nurturing practice invites a shift from seeing pain merely as an enemy to acknowledging it as a part of their unique journey, fostering personal growth and resilience. Furthermore, embracing the transient nature of pain can cultivate a profound appreciation for moments of relief, ultimately enhancing one’s overall well-being. In the end, such affirmations help to create a compassionate mental space where hope and positivity can blossom, leading to improved coping strategies and a more fulfilling life, even amid the challenges of chronic pain.

Gratitude

These tools offer unique ways to navigate the challenges of chronic pain, allowing glimmers of hope to shine through the clouds of distress we may face each day. I can personally empathize with how challenging it can be to cultivate gratitude during flare-ups. When caught in the grip of intense pain that lasts for hours, days, weeks, or even longer, it feels nearly impossible to foster a sense of thankfulness. Yet, I’ve discovered that embracing gratitude can be a crucial aspect of coping with chronic illness over the long haul.

Expressing Gratitude in Coping with Chronic Pain

Daily expressions of gratitude can be a powerful tool for managing chronic pain, offering both emotional and psychological benefits. When individuals take the time to acknowledge and appreciate the positive aspects of their lives, they effectively shift their focus away from pain and discomfort. This shift can create a sense of balance, allowing for moments of joy and contentment to emerge even amidst the challenges posed by chronic conditions.

Fostering a Positive Mindset

Gratitude encourages a positive mindset, which can significantly influence how we perceive and react to pain. By actively recognizing the things we are thankful for—be it supportive relationships, small victories, or moments of beauty in our daily lives—we create a mental buffer against negativity. This approach can lessen the impact of chronic pain symptoms and foster resilience, enabling us to navigate our circumstances with greater strength.

Enhancing Emotional Well-being

Chronic pain often comes with emotional burdens, such as frustration, sadness, and isolation. Practicing gratitude can counter these feelings by anchoring us in a place of appreciation and hope. Frequent acknowledgment of what we are grateful for helps to rewire our internal dialogue, promoting feelings of empowerment and control over our life experience. This emotional shift can lead to reduced anxiety and an overall enhanced sense of well-being.

Building Connections

Expressing gratitude can also strengthen social connections. When we share our gratitude with others, we open up opportunities for connection and support. This network can be vital for individuals dealing with chronic pain, as it fosters a sense of belonging and understanding. Engaging with empathetic friends, family, or support groups can enrich our coping strategies and provide avenues for sharing experiences and feelings.

Cultivating Mindfulness

Incorporating gratitude into our daily routine encourages mindfulness, prompting us to be present in the moment. This practice allows us to observe our thoughts and feelings about pain without judgment. By integrating gratitude moments into mindfulness exercises, we can deepen our awareness of both our pain and our capacity for joy, creating a holistic approach to managing chronic pain.

Developing Resilience

Finally, gratitude cultivates resilience. By focusing on the positive aspects of our lives, we can better adapt to the challenges posed by chronic pain. This resilient mindset not only helps us endure difficult moments but also empowers us to explore solutions and treatments that enhance our quality of life. Embracing gratitude invites us to see beyond our present struggles and fosters hope for healing and growth.

Daily expressions of gratitude are a transformative practice for coping with chronic pain. By fostering a positive mindset, enhancing emotional well-being, building connections, cultivating mindfulness, and developing resilience, we can navigate our journey with greater clarity and strength, ultimately leading to a more fulfilling life.

https://open.spotify.com/episode/0aAbwS4h06BaL9GSyYlaQk?si=AdV1LU1yRh6bZ-18fzWp_A

Discover the beauty of resilience as you immerse yourself in this soothing guided meditation, thoughtfully designed to ease the physical and emotional burdens of chronic pain. Carry this sense of calm with you throughout your day, reminding yourself that you possess the inner strength and tools necessary to manage your pain. Thank you for dedicating this precious time to yourself.

Namaste.

#affirmation #awareness #balance #blessed #chronicIllness #chronicPain #chronicPainManagement #chronicPainRelief #emotionalWellness #experience #fibromyalgia #flow #gratitude #healing #health #holistic #holisticHealth #illness #lupus #managingPain #meditation #mentalHealth #mentalWellbeing #mentalWellness #mindful #moments #ms #pain #practice #spoonie #visualization

"High-Functioning" is just a way to say my disabilities don't inconvenience YOU too much.

#audhd #autism #adhd #disability #neurodiverse #MentalHealth #Anxiety #MentalIllness #ocd #PTSD #agoraphobia #cptsd #fibromyalgia #ChronicPain #ChronicIllness

"High-Functioning" is just a way to say my disabilities don't inconvenience YOU too much.

#audhd #autism #adhd #disability #neurodiverse #MentalHealth #Anxiety #MentalIllness #ocd #PTSD #agoraphobia #cptsd #fibromyalgia #ChronicPain #ChronicIllness

This week, while trying to catch up on schoolwork, I've been discovering all the things that put my body into nap mode, and wow, it’s a lot. Pillows, recliner angles, even kicking my feet up can flip the switch from "study" to "sleep."
It's been like running my own ergonomic lab this week, testing what keeps me awake vs. what puts me to sleep.
Turns out I focus way better with my feet supported, but that's tricky when you’re short and most setups aren't built for you. Fully kicking my feet up feels nice… until I wake up two hours later wondering what happened.
I can't tell you how many hours I've lost to nap mode when I was trying to study, but maybe now that won't happen anymore.
#disability #DisabilityLife #ChronicIllness #Fibromyalgia #RheumatoidArthritis #Neurodivergent #Fatigue #Accessibility #StudyStruggles #Ergonomics #ShortPeopleProblems #DisabledAndStudying #NapMode #ActuallyAutistic #Spoonie #CollegeStudent
@disability @autistics @spoonies @chronicillness @accessibility

This week, while trying to catch up on schoolwork, I've been discovering all the things that put my body into nap mode, and wow, it’s a lot. Pillows, recliner angles, even kicking my feet up can flip the switch from "study" to "sleep."
It's been like running my own ergonomic lab this week, testing what keeps me awake vs. what puts me to sleep.
Turns out I focus way better with my feet supported, but that's tricky when you’re short and most setups aren't built for you. Fully kicking my feet up feels nice… until I wake up two hours later wondering what happened.
I can't tell you how many hours I've lost to nap mode when I was trying to study, but maybe now that won't happen anymore.
#disability #DisabilityLife #ChronicIllness #Fibromyalgia #RheumatoidArthritis #Neurodivergent #Fatigue #Accessibility #StudyStruggles #Ergonomics #ShortPeopleProblems #DisabledAndStudying #NapMode #ActuallyAutistic #Spoonie #CollegeStudent
@disability @autistics @spoonies @chronicillness @accessibility