#fibromyalgia — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #fibromyalgia, aggregated by home.social.
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I'm so embarrassed and so sorry. 😖
#NEISvoid #hEDS #marfansyndrome #EDS #MECFS #POTS #MCAS #AuDHD #actuallyautistic #ADHD #disabled #longcovid #spooniechat #fibromyalgia #chiarimalformation #tetheredcord #mutualaid
RE: https://plasmatrap.com/notes/amt3jiihdr -
RE: https://disabled.social/@ahimsa_pdx/116641683206006955
if there is one thing i’ve learned from the pandemic is that #LongCOVID isn't unique; that other viral infections ―especially #influenza― can leave us with long-term chronic illnesses after we’ve “gotten over” the infection.
got me thinking when did i start feeling achy all the time? am almost certain i developed #fibromyalgia after a bad #flu infection, turned into “walking” #pneumonia in the 1990s.
can we correlate the explosion of chronic diseases with the normalization of #flu infections?
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I made this #crochet pot holder yesterday while watching Deadpool 2. It was a bad movie. Is this what movies are like now? I think I’ve been crocheting a lot lately because it helps me think (yes I’m the kind of person that would otherwise be on my phone during a movie) but also because I can do it while lying down and I’ve been trying to give my body a lot of grace while I figure out my #fibromyalgia
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Well, the next step on my #fibromyalgia journey is to start taking 100mg of gabapentin before bed, which is also the amount that I give to my cat every day. So now my cats and I are on SSRIs, gabepentin and Zyrtec together. You know what they say, don’t give anything to your cats you wouldn’t eat yourself???
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Tonix Pharmaceuticals publishes peer-reviewed study confirming TONMYA's superior pharmacokinetic profile for fibromyalgia treatment, the first new therapy in 15+ years. #Biotech #Fibromyalgia
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Tonix Pharmaceuticals publishes peer-reviewed study confirming TONMYA's superior pharmacokinetic profile for fibromyalgia treatment, the first new therapy in 15+ years. #Biotech #Fibromyalgia
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Tonix Pharmaceuticals publishes peer-reviewed study confirming TONMYA's superior pharmacokinetic profile for fibromyalgia treatment, the first new therapy in 15+ years. #Biotech #Fibromyalgia
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Tonix Pharmaceuticals publishes peer-reviewed study confirming TONMYA's superior pharmacokinetic profile for fibromyalgia treatment, the first new therapy in 15+ years. #Biotech #Fibromyalgia
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Tonix Pharmaceuticals publishes peer-reviewed study confirming TONMYA's superior pharmacokinetic profile for fibromyalgia treatment, the first new therapy in 15+ years. #Biotech #Fibromyalgia
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Great to see this eletter in the Canadian Family Physician journal
"Exercise May Cause Harm in a Subset of Fibromyalgia Patients"
https://www.cfp.ca/content/exercise-may-cause-harm-subset-fibromyalgia-patients
[I have not included the full text in the screenshot]
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Great to see this eletter in the Canadian Family Physician journal
"Exercise May Cause Harm in a Subset of Fibromyalgia Patients"
https://www.cfp.ca/content/exercise-may-cause-harm-subset-fibromyalgia-patients
[I have not included the full text in the screenshot]
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Great to see this eletter in the Canadian Family Physician journal
"Exercise May Cause Harm in a Subset of Fibromyalgia Patients"
https://www.cfp.ca/content/exercise-may-cause-harm-subset-fibromyalgia-patients
[I have not included the full text in the screenshot]
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Great to see this eletter in the Canadian Family Physician journal
"Exercise May Cause Harm in a Subset of Fibromyalgia Patients"
https://www.cfp.ca/content/exercise-may-cause-harm-subset-fibromyalgia-patients
[I have not included the full text in the screenshot]
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Great to see this eletter in the Canadian Family Physician journal
"Exercise May Cause Harm in a Subset of Fibromyalgia Patients"
https://www.cfp.ca/content/exercise-may-cause-harm-subset-fibromyalgia-patients
[I have not included the full text in the screenshot]
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After numerous trials I’ve finally found a mask that works for me on my CPAP. According to the machine I clocked 7 hrs sleep last night. I feel like a new woman!! Plus I haven’t had one fibromyalgia flare since being on the CPAP. According to my doctor they’re finding people who have fibromyalgia might actually have sleep apnea. #CPAP #Sleep #Fibromyalgia
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After numerous trials I’ve finally found a mask that works for me on my CPAP. According to the machine I clocked 7 hrs sleep last night. I feel like a new woman!! Plus I haven’t had one fibromyalgia flare since being on the CPAP. According to my doctor they’re finding people who have fibromyalgia might actually have sleep apnea. #CPAP #Sleep #Fibromyalgia
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After numerous trials I’ve finally found a mask that works for me on my CPAP. According to the machine I clocked 7 hrs sleep last night. I feel like a new woman!! Plus I haven’t had one fibromyalgia flare since being on the CPAP. According to my doctor they’re finding people who have fibromyalgia might actually have sleep apnea. #CPAP #Sleep #Fibromyalgia
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After numerous trials I’ve finally found a mask that works for me on my CPAP. According to the machine I clocked 7 hrs sleep last night. I feel like a new woman!! Plus I haven’t had one fibromyalgia flare since being on the CPAP. According to my doctor they’re finding people who have fibromyalgia might actually have sleep apnea. #CPAP #Sleep #Fibromyalgia
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After numerous trials I’ve finally found a mask that works for me on my CPAP. According to the machine I clocked 7 hrs sleep last night. I feel like a new woman!! Plus I haven’t had one fibromyalgia flare since being on the CPAP. According to my doctor they’re finding people who have fibromyalgia might actually have sleep apnea. #CPAP #Sleep #Fibromyalgia
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Today is International Awareness Day for Chronic Immunological and Neurological Diseases such as ME/CFS and Fibromyalgia.
Whether you are affected by one of these diseases, or know someone who is (Alzheimer's, Autism and Epilepsy also belong in this category, as well as many others), hopefully these conditions will be given more research and funding in the future.
It is held on Florence Nightingale's birthday as it is believed she had MECFS.
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Today is International Awareness Day for Chronic Immunological and Neurological Diseases such as ME/CFS and Fibromyalgia.
Whether you are affected by one of these diseases, or know someone who is (Alzheimer's, Autism and Epilepsy also belong in this category, as well as many others), hopefully these conditions will be given more research and funding in the future.
It is held on Florence Nightingale's birthday as it is believed she had MECFS.
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Today is International Awareness Day for Chronic Immunological and Neurological Diseases such as ME/CFS and Fibromyalgia.
Whether you are affected by one of these diseases, or know someone who is (Alzheimer's, Autism and Epilepsy also belong in this category, as well as many others), hopefully these conditions will be given more research and funding in the future.
It is held on Florence Nightingale's birthday as it is believed she had MECFS.
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Today is International Awareness Day for Chronic Immunological and Neurological Diseases such as ME/CFS and Fibromyalgia.
Whether you are affected by one of these diseases, or know someone who is (Alzheimer's, Autism and Epilepsy also belong in this category, as well as many others), hopefully these conditions will be given more research and funding in the future.
It is held on Florence Nightingale's birthday as it is believed she had MECFS.
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Today is International Awareness Day for Chronic Immunological and Neurological Diseases such as ME/CFS and Fibromyalgia.
Whether you are affected by one of these diseases, or know someone who is (Alzheimer's, Autism and Epilepsy also belong in this category, as well as many others), hopefully these conditions will be given more research and funding in the future.
It is held on Florence Nightingale's birthday as it is believed she had MECFS.
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RE: https://kolektiva.social/@aredridel/116552279213533823
This is helpful, I’ll be telling my doc about it.
By this metric I’m at a 7 about 90% of the time (an 8 the rest of the tine). A really good day is a 6. I haven’t been at a 4 since 2015 or so. My last time at a 0 was 2007.
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RE: https://kolektiva.social/@aredridel/116552279213533823
This is helpful, I’ll be telling my doc about it.
By this metric I’m at a 7 about 90% of the time (an 8 the rest of the tine). A really good day is a 6. I haven’t been at a 4 since 2015 or so. My last time at a 0 was 2007.
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RE: https://kolektiva.social/@aredridel/116552279213533823
This is helpful, I’ll be telling my doc about it.
By this metric I’m at a 7 about 90% of the time (an 8 the rest of the tine). A really good day is a 6. I haven’t been at a 4 since 2015 or so. My last time at a 0 was 2007.
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RE: https://kolektiva.social/@aredridel/116552279213533823
This is helpful, I’ll be telling my doc about it.
By this metric I’m at a 7 about 90% of the time (an 8 the rest of the tine). A really good day is a 6. I haven’t been at a 4 since 2015 or so. My last time at a 0 was 2007.
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RE: https://kolektiva.social/@aredridel/116552279213533823
This is helpful, I’ll be telling my doc about it.
By this metric I’m at a 7 about 90% of the time (an 8 the rest of the tine). A really good day is a 6. I haven’t been at a 4 since 2015 or so. My last time at a 0 was 2007.
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Crash may be easing up? I really dislike how hard it can be to tell.
At any rate, it's a gorgeous day. Am plotting how to both rest and do things, simultaneously. This is the alchemy of chronic illness.
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Crash may be easing up? I really dislike how hard it can be to tell.
At any rate, it's a gorgeous day. Am plotting how to both rest and do things, simultaneously. This is the alchemy of chronic illness.
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Crash may be easing up? I really dislike how hard it can be to tell.
At any rate, it's a gorgeous day. Am plotting how to both rest and do things, simultaneously. This is the alchemy of chronic illness.
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Crash may be easing up? I really dislike how hard it can be to tell.
At any rate, it's a gorgeous day. Am plotting how to both rest and do things, simultaneously. This is the alchemy of chronic illness.
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Crash may be easing up? I really dislike how hard it can be to tell.
At any rate, it's a gorgeous day. Am plotting how to both rest and do things, simultaneously. This is the alchemy of chronic illness.
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Demo tape to get back into making music in spite of my chronic pain.
sickhurtfuck.bandcamp.com/album/affliction
#alternative #experimental #fusion #jazz #metal #trap #unitedkingdom #fibromyalgia #bandcamp
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Demo tape to get back into making music in spite of my chronic pain.
sickhurtfuck.bandcamp.com/album/affliction
#alternative #experimental #fusion #jazz #metal #trap #unitedkingdom #fibromyalgia #bandcamp
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Demo tape to get back into making music in spite of my chronic pain.
sickhurtfuck.bandcamp.com/album/affliction
#alternative #experimental #fusion #jazz #metal #trap #unitedkingdom #fibromyalgia #bandcamp
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Demo tape to get back into making music in spite of my chronic pain.
sickhurtfuck.bandcamp.com/album/affliction
#alternative #experimental #fusion #jazz #metal #trap #unitedkingdom #fibromyalgia #bandcamp
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Demo tape to get back into making music in spite of my chronic pain.
sickhurtfuck.bandcamp.com/album/affliction
#alternative #experimental #fusion #jazz #metal #trap #unitedkingdom #fibromyalgia #bandcamp
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Schonen oder powern?
Das weiß man mit Fibromyalgie manchmal nicht so recht. Wann ist Ausruhen, Pause angesagt und wann eher Aktivierung, Bewegung? Vermutlich muss das jede und jeder Betroffene für sich selbst entscheiden. ⚖️
Wichtig dabei zu wissen ist aber, dass Sport ohne Überforderung, also vor allem niedrig dosiertes Ausdauertraining, in jedem Fall eine gute Entscheidung ist. 👟
Eine Studie aus 2025 belegt, dass körperliche Fitness durch ein angeleitetes dreiwöchiges Aktivierungsprogramm (Fibro-Aktiv) verbessert wird und sich dadurch Symptome verringern können. 💪
Vielleicht auch ein gutes Kriterium bei der Suche nach einer Reha-Klinik, ob dort das Fibro-Aktiv-Programm bereits angeboten wird.
#Fibromyalgie #Fibromyalgia #FibroRunner #Studie #FibroAktiv #Reha
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Schonen oder powern?
Das weiß man mit Fibromyalgie manchmal nicht so recht. Wann ist Ausruhen, Pause angesagt und wann eher Aktivierung, Bewegung? Vermutlich muss das jede und jeder Betroffene für sich selbst entscheiden. ⚖️
Wichtig dabei zu wissen ist aber, dass Sport ohne Überforderung, also vor allem niedrig dosiertes Ausdauertraining, in jedem Fall eine gute Entscheidung ist. 👟
Eine Studie aus 2025 belegt, dass körperliche Fitness durch ein angeleitetes dreiwöchiges Aktivierungsprogramm (Fibro-Aktiv) verbessert wird und sich dadurch Symptome verringern können. 💪
Vielleicht auch ein gutes Kriterium bei der Suche nach einer Reha-Klinik, ob dort das Fibro-Aktiv-Programm bereits angeboten wird.
#Fibromyalgie #Fibromyalgia #FibroRunner #Studie #FibroAktiv #Reha
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Schonen oder powern?
Das weiß man mit Fibromyalgie manchmal nicht so recht. Wann ist Ausruhen, Pause angesagt und wann eher Aktivierung, Bewegung? Vermutlich muss das jede und jeder Betroffene für sich selbst entscheiden. ⚖️
Wichtig dabei zu wissen ist aber, dass Sport ohne Überforderung, also vor allem niedrig dosiertes Ausdauertraining, in jedem Fall eine gute Entscheidung ist. 👟
Eine Studie aus 2025 belegt, dass körperliche Fitness durch ein angeleitetes dreiwöchiges Aktivierungsprogramm (Fibro-Aktiv) verbessert wird und sich dadurch Symptome verringern können. 💪
Vielleicht auch ein gutes Kriterium bei der Suche nach einer Reha-Klinik, ob dort das Fibro-Aktiv-Programm bereits angeboten wird.
#Fibromyalgie #Fibromyalgia #FibroRunner #Studie #FibroAktiv #Reha
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Useful link.
My GP never followed up on my neurologist's request to check if I have ME/CFS.
But I am diagnosed with Fibromyalgia so this probably applies even without that.
Certainly my breathing is depressed after. -
Useful link.
My GP never followed up on my neurologist's request to check if I have ME/CFS.
But I am diagnosed with Fibromyalgia so this probably applies even without that.
Certainly my breathing is depressed after. -
Useful link.
My GP never followed up on my neurologist's request to check if I have ME/CFS.
But I am diagnosed with Fibromyalgia so this probably applies even without that.
Certainly my breathing is depressed after. -
Useful link.
My GP never followed up on my neurologist's request to check if I have ME/CFS.
But I am diagnosed with Fibromyalgia so this probably applies even without that.
Certainly my breathing is depressed after. -
Useful link.
My GP never followed up on my neurologist's request to check if I have ME/CFS.
But I am diagnosed with Fibromyalgia so this probably applies even without that.
Certainly my breathing is depressed after. -
(Spain)
Court Grants Disability Pension to Cleaner with Fibromyalgia: 63-year-old cleaner denied disability pension: court's final decision -
(Spain)
Court Grants Disability Pension to Cleaner with Fibromyalgia: 63-year-old cleaner denied disability pension: court's final decision -
(Spain)
Court Grants Disability Pension to Cleaner with Fibromyalgia: 63-year-old cleaner denied disability pension: court's final decision