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#fibromyalgia — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #fibromyalgia, aggregated by home.social.

  1. "Of the 26 fibromyalgia-linked variants uncovered, about half occurred near genes with neural roles, like regulating nerve cell growth and controlling pain sensitivity. But the variant most strongly linked to fibromyalgia appeared in a gene no one expected — the gene responsible for Huntington’s disease. “It’s extremely surprising,” Wainberg says."

    A massive study unveils the genetic underpinnings of fibromyalgia sciencenews.org/article/fibrom

    #Fibromyalgia

  2. So when I received my diagnosis I didn’t quite understand it, but That look of shock and pity when people heard I have fibro kinda drove it home.

    Weird that it took other peoples reaction for me to understand how fucked I was 😬😂

    #Fibromyalgia #FibroWarrior

  3. The doctor lowered my Lyrica again because of the swelling I'm still having in my legs, feet and ankles. She also added Cymbalta, because I was already having a rough time in pain from when she last lowered the Lyrica. Things have been rough. I keep having to cancel plans because I can't handle them with how much pain I'm in. Sitting sucks, walking sucks... It all sucks. #ChronicPain #ChronicIllness #Fibromyalgia

  4. The doctor lowered my Lyrica again because of the swelling I'm still having in my legs, feet and ankles. She also added Cymbalta, because I was already having a rough time in pain from when she last lowered the Lyrica. Things have been rough. I keep having to cancel plans because I can't handle them with how much pain I'm in. Sitting sucks, walking sucks... It all sucks. #ChronicPain #ChronicIllness #Fibromyalgia

  5. Brain fog, pain, fatigue. Feeling pretty flat right now, so I'm going to curl up and watch some Netflix until I manage to sleep. Have a great day. Be kind to yourselves♥️

    #brainfog #fibromyalgia #disability #ptsd #heart #kidneys #fatigue #chronicillness #chronicallyill #rest #disabled

  6. Video about DecodeME from the International ME/CFS Conference 2026. About 23 minutes.

    youtube.com/watch?v=SrPWY9v22W4

    "Prof. Dr. Chris Ponting presented findings from DecodeME, the largest ME/CFS genome-wide association study (GWAS) to date (over 20,000 participants), confirming the disease is polygenic with heritability concentrated in neural tissues and showing genetic overlap with fibromyalgia."

    @mecfs

    #MEcfs #LongCovid #Fibromyalgia #DecodeME #SequenceME #Genetics

  7. Hashtag Intro.
    Click here 🧠 to expand.
    The Proverbial list Evolved:

    #InvisibleDisabilityRights #IDR
    #LandBack #Indigenous Kahnawá:ke Nia:wen kowa

    Behind and beside: #CivilRights #MentalHealth #EndRacism #LGBTQIA #BLM #WomenRights #EqualPay #StopViolence #StopAsianHate #POC Eater of clean foods Anti-AntiSemitic #EndBigotry for #everyone
    #BeYou #BeKind #BePatient
    #UnityConquers #TearDownTheWall :solidarity: union.place ✊🏽

    Focus: :ir:
    #DisabilitySolidarity #DisabledCommunity #EndAbleism #StopAbleistHate #DisabilityAdvocacy #passionate #DisabledVoicesUnite #CrossDisabilitySupport #inclusion #ListeningEar #Here4All #NeurodivergentThinking #neurodiversity
    #ConcussionAwareness #TBI #ABI #AnoxicBrainInjury #BrainInjury #SpineInjury #fibromyalgia #LimbDifference #ActuallyAutisic #OrthopedicDisabilities #SticksAndStones #BrokenBones #NaturesPharmaceutical #DisabilityAcceptance #EndAbleistHateCrime #StopAbleistSlurs #DisabilityEconomicJustice #CripTheVote #DisabilityLobby #HumanInterest #NonPartisan #research #Education #Knowledge
    #UnityConquers #TearDownTheWall
    ✊🏽 :solidarity:

    Un peu de moi?
    Je ne parle pas couramment Français. I like using #HashtagsNobodyWillEverSearch
    #FilmMaking #Writing #poetry
    Ex-#musician #Songwriter Passé
    💐⚘🌺🏵 #GardenCreator extraordinaire. #FlowerGardens #PhotorealisticImagination
    Et Bien plus encore.

    🙏, ✌️, 💛, :solidarity: #accommodation for "👥👩🏽‍🦯👤👨🏽‍🦽" with #InvisibleDisabilities
    Just like many of us, this list is incomplete and still evolving. (he, him)

    Please read the ALT text.

  8. @liminalfiction I just read whatever strikes my fancy, whenever it strikes my fancy. I also have #hormonal, #cognitive, and #disability issues, so at certain times I'm limited. I can't read something scary when I'm in severe anxiety; can't read books when I'm having a bad #fibromyalgia or #ME/CFS episode (in that case, something short and simple is all I can manage). Or severe #depression . So my reading habits are informed by my state of being. My published work includes journalism, poetry, songwriting, and short fiction, but I read a lot of full-length nonfiction & fiction work...

  9. Hashtag Intro.
    Click here 🧠 to expand.
    The Proverbial list Evolved:

    #InvisibleDisabilityRights #IDR
    #LandBack Kahnawá:ke –Nia:wen kowa

    Behind and beside: #CivilRights #MentalHealth #EndRacism #LGBTQIA #BLM #WomenRights #EqualPay #StopViolence #StopAsianHate #POC #Anti-AntiSemitic #EndBigotry for #everyone
    #BeYou #BeKind #BePatient
    #UnityConquers #TearDownTheWall :solidarity:

    Focus – IDR:
    #DisabilitySolidarity #DisabledCommunity #EndAbleism #StopAbleistHate #DisabilityAdvocacy #passionate #DisabledVoicesUnite #CrossDisabilitySupport #inclusion #ListeningEar #Here4All #NeurodivergentThinking #neurodiversity
    #ConcussionAwareness #TBI #ABI #AnoxicBrainInjury #BrainInjury #SpineInjury #fibromyalgia #LimbDifference #ActuallyAutisic #OrthopedicDisabilities #SticksAndStones #BrokenBones #NaturesPharmaceutical #DisabilityAcceptance #StopAbleistHateCrime #StopAbleistSlurs #DisabilityEconomicJustice #CripTheVote #DisabilityLobby #Humanity #NonPartisan #research #Education #Knowledge
    #UnityConquers #TearDownTheWall
    :solidarity:

    Un peu de moi?
    Je ne parle pas couramment Français. I like using #HashtagsNobodyWillEverSearch
    #FilmMaking #Writing #poetry
    Ex-#musician #Songwriter Passé
    💐⚘🌺🏵 #GardenCreator extraordinaire. #FlowerGardens #PhotorealisticImagination
    Et Bien plus encore.

    🙏, ✌️, 💛, :solidarity: #accommodation for people with #InvisibleDisability
    Just like many of us, this list is incomplete and still evolving. (he, him, they– any)

    Blog page: @[email protected]
    Mastodon blog profile: @[email protected]

    Don't forget the ALT text.