#fibromyalgia — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #fibromyalgia, aggregated by home.social.
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Why brain, why..?
When your brain can't make up it's mind... When your brain wants things that your body can not accomplish... When you want to deal with positives, and your brain keeps triggering the negatives... It's an exhausting process to deal with, and unfortunately, it's something I've been dealing with for over 14 years. Ever since I started struggling with my, then undiagnosed, fibro... My brain and my body have been struggling to agree upon things for so long now, that you'd think I'd be used to it. You'd think I would have find a way to deal with it, to "go with the flow" and just keep going strong. Well, I wish that I could tell you that this was/is indeed the case. But, you may have guessed it... Nope, unfortunately, it's not... 😢 […] -
Why brain, why..?
When your brain can't make up it's mind... When your brain wants things that your body can not accomplish... When you want to deal with positives, and your brain keeps triggering the negatives... It's an exhausting process to deal with, and unfortunately, it's something I've been dealing with for over 14 years. Ever since I started struggling with my, then undiagnosed, fibro... My brain and my body have been struggling to agree upon things for so long now, that you'd think I'd be used to it. You'd think I would have find a way to deal with it, to "go with the flow" and just keep going strong. Well, I wish that I could tell you that this was/is indeed the case. But, you may have guessed it... Nope, unfortunately, it's not... 😢 […] -
Financial Advice in Social Media Support Groups
Screenshot from latest Emerge Australia email bulletin
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Financial Advice in Social Media Support Groups
Screenshot from latest Emerge Australia email bulletin
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Financial Advice in Social Media Support Groups
Screenshot from latest Emerge Australia email bulletin
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Financial Advice in Social Media Support Groups
Screenshot from latest Emerge Australia email bulletin
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Financial Advice in Social Media Support Groups
Screenshot from latest Emerge Australia email bulletin
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The overlap between CFS/ME and Fibromyalgia
As someone with both conditions I'd prefer them to have an additional group when researching CFS/ME, ie control, CFS/ME, and a third group with CFS/ME plus #Fibromyalgia, rather than excluding us from any research.
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The overlap between CFS/ME and Fibromyalgia
As someone with both conditions I'd prefer them to have an additional group when researching CFS/ME, ie control, CFS/ME, and a third group with CFS/ME plus #Fibromyalgia, rather than excluding us from any research.
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The overlap between CFS/ME and Fibromyalgia
As someone with both conditions I'd prefer them to have an additional group when researching CFS/ME, ie control, CFS/ME, and a third group with CFS/ME plus #Fibromyalgia, rather than excluding us from any research.
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The overlap between CFS/ME and Fibromyalgia
As someone with both conditions I'd prefer them to have an additional group when researching CFS/ME, ie control, CFS/ME, and a third group with CFS/ME plus #Fibromyalgia, rather than excluding us from any research.
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The overlap between CFS/ME and Fibromyalgia
As someone with both conditions I'd prefer them to have an additional group when researching CFS/ME, ie control, CFS/ME, and a third group with CFS/ME plus #Fibromyalgia, rather than excluding us from any research.
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busybee: fluffy rambles: Visual snow syndrome https://beesbuzz.biz/blog/13726-Visual-snow-syndrome #Fibromyalgia #BrainStuff #Neurology #Musings #Blog
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busybee: fluffy rambles: Visual snow syndrome https://beesbuzz.biz/blog/13726-Visual-snow-syndrome #Fibromyalgia #BrainStuff #Neurology #Musings #Blog
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busybee: fluffy rambles: Visual snow syndrome https://beesbuzz.biz/blog/13726-Visual-snow-syndrome #Fibromyalgia #BrainStuff #Neurology #Musings #Blog
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busybee: fluffy rambles: Visual snow syndrome https://beesbuzz.biz/blog/13726-Visual-snow-syndrome #Fibromyalgia #BrainStuff #Neurology #Musings #Blog
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busybee: fluffy rambles: Visual snow syndrome https://beesbuzz.biz/blog/13726-Visual-snow-syndrome #Fibromyalgia #BrainStuff #Neurology #Musings #Blog
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Just Watched this video it’s a great one about the links between neuro variance and chronic illness.
#adhd #autism #audhd #Fibromyalgia #hEDS
https://www.youtube.com/watch?is=NOXUP8y1quAu9A79&v=KIQN5iUOgzo&feature=youtu.be
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Just Watched this video it’s a great one about the links between neuro variance and chronic illness.
#adhd #autism #audhd #Fibromyalgia #hEDS
https://www.youtube.com/watch?is=NOXUP8y1quAu9A79&v=KIQN5iUOgzo&feature=youtu.be
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Just Watched this video it’s a great one about the links between neuro variance and chronic illness.
#adhd #autism #audhd #Fibromyalgia #hEDS
https://www.youtube.com/watch?is=NOXUP8y1quAu9A79&v=KIQN5iUOgzo&feature=youtu.be
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Just Watched this video it’s a great one about the links between neuro variance and chronic illness.
#adhd #autism #audhd #Fibromyalgia #hEDS
https://www.youtube.com/watch?is=NOXUP8y1quAu9A79&v=KIQN5iUOgzo&feature=youtu.be
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Just Watched this video it’s a great one about the links between neuro variance and chronic illness.
#adhd #autism #audhd #Fibromyalgia #hEDS
https://www.youtube.com/watch?is=NOXUP8y1quAu9A79&v=KIQN5iUOgzo&feature=youtu.be
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Fibro thoughts
There’s a lot of self blame out there about this awful disease or “syndrome” as my pain doc put it.“it’s your bodies reaction to trauma you never delt with.”
Way to victim blame it’s essentially saying it’s your own faultMeditate and it will get easier and the pain will ease.
Look I get the brain body stress make everything worse link, for my AUDHD ass it doesn’t work I meditate a lot buuut it doesn’t make the flares lessen, when existing and moving in the world causes the nervous system to explode how could it.Here we’ll give you this gabapentin and that will lessen the nerve signals.
That shit is bad yeah it works for a while then it’s less and less effective I’m coming off it now they don’t tell you you develop dependence (hooked) and tapering HURTS nor do they tell you it completely kills sexual desire and mutes the fuck out of your brain oh also yeah you’ll get dementia.
But they won’t prescribe opioids because you’ll get hooked ??? Wtf 🤬Meg: rant over
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Fibro thoughts
There’s a lot of self blame out there about this awful disease or “syndrome” as my pain doc put it.“it’s your bodies reaction to trauma you never delt with.”
Way to victim blame it’s essentially saying it’s your own faultMeditate and it will get easier and the pain will ease.
Look I get the brain body stress make everything worse link, for my AUDHD ass it doesn’t work I meditate a lot buuut it doesn’t make the flares lessen, when existing and moving in the world causes the nervous system to explode how could it.Here we’ll give you this gabapentin and that will lessen the nerve signals.
That shit is bad yeah it works for a while then it’s less and less effective I’m coming off it now they don’t tell you you develop dependence (hooked) and tapering HURTS nor do they tell you it completely kills sexual desire and mutes the fuck out of your brain oh also yeah you’ll get dementia.
But they won’t prescribe opioids because you’ll get hooked ??? Wtf 🤬Meg: rant over
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Fibro thoughts
There’s a lot of self blame out there about this awful disease or “syndrome” as my pain doc put it.“it’s your bodies reaction to trauma you never delt with.”
Way to victim blame it’s essentially saying it’s your own faultMeditate and it will get easier and the pain will ease.
Look I get the brain body stress make everything worse link, for my AUDHD ass it doesn’t work I meditate a lot buuut it doesn’t make the flares lessen, when existing and moving in the world causes the nervous system to explode how could it.Here we’ll give you this gabapentin and that will lessen the nerve signals.
That shit is bad yeah it works for a while then it’s less and less effective I’m coming off it now they don’t tell you you develop dependence (hooked) and tapering HURTS nor do they tell you it completely kills sexual desire and mutes the fuck out of your brain oh also yeah you’ll get dementia.
But they won’t prescribe opioids because you’ll get hooked ??? Wtf 🤬Meg: rant over
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Fibro thoughts
There’s a lot of self blame out there about this awful disease or “syndrome” as my pain doc put it.“it’s your bodies reaction to trauma you never delt with.”
Way to victim blame it’s essentially saying it’s your own faultMeditate and it will get easier and the pain will ease.
Look I get the brain body stress make everything worse link, for my AUDHD ass it doesn’t work I meditate a lot buuut it doesn’t make the flares lessen, when existing and moving in the world causes the nervous system to explode how could it.Here we’ll give you this gabapentin and that will lessen the nerve signals.
That shit is bad yeah it works for a while then it’s less and less effective I’m coming off it now they don’t tell you you develop dependence (hooked) and tapering HURTS nor do they tell you it completely kills sexual desire and mutes the fuck out of your brain oh also yeah you’ll get dementia.
But they won’t prescribe opioids because you’ll get hooked ??? Wtf 🤬Meg: rant over
-
Fibro thoughts
There’s a lot of self blame out there about this awful disease or “syndrome” as my pain doc put it.“it’s your bodies reaction to trauma you never delt with.”
Way to victim blame it’s essentially saying it’s your own faultMeditate and it will get easier and the pain will ease.
Look I get the brain body stress make everything worse link, for my AUDHD ass it doesn’t work I meditate a lot buuut it doesn’t make the flares lessen, when existing and moving in the world causes the nervous system to explode how could it.Here we’ll give you this gabapentin and that will lessen the nerve signals.
That shit is bad yeah it works for a while then it’s less and less effective I’m coming off it now they don’t tell you you develop dependence (hooked) and tapering HURTS nor do they tell you it completely kills sexual desire and mutes the fuck out of your brain oh also yeah you’ll get dementia.
But they won’t prescribe opioids because you’ll get hooked ??? Wtf 🤬Meg: rant over
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Morning cuties love you,
I think the Wales holiday broke me 😢 this is the longest recovery I’ve had I still have no spoons and too much pain for the 5th day on the trotAnyway hump day hope today contains only small sleeping policeman and nothing difficult for you.
Today’s plan, nope not doing today, I’m going to disassociate in bed with meds and a hot chocolate.
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Morning cuties love you,
I think the Wales holiday broke me 😢 this is the longest recovery I’ve had I still have no spoons and too much pain for the 5th day on the trotAnyway hump day hope today contains only small sleeping policeman and nothing difficult for you.
Today’s plan, nope not doing today, I’m going to disassociate in bed with meds and a hot chocolate.
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Morning cuties love you,
I think the Wales holiday broke me 😢 this is the longest recovery I’ve had I still have no spoons and too much pain for the 5th day on the trotAnyway hump day hope today contains only small sleeping policeman and nothing difficult for you.
Today’s plan, nope not doing today, I’m going to disassociate in bed with meds and a hot chocolate.
-
Morning cuties love you,
I think the Wales holiday broke me 😢 this is the longest recovery I’ve had I still have no spoons and too much pain for the 5th day on the trotAnyway hump day hope today contains only small sleeping policeman and nothing difficult for you.
Today’s plan, nope not doing today, I’m going to disassociate in bed with meds and a hot chocolate.
-
Morning cuties love you,
I think the Wales holiday broke me 😢 this is the longest recovery I’ve had I still have no spoons and too much pain for the 5th day on the trotAnyway hump day hope today contains only small sleeping policeman and nothing difficult for you.
Today’s plan, nope not doing today, I’m going to disassociate in bed with meds and a hot chocolate.
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I’m having a #fibromyalgia flare up and I’m sure there’s some #arthritis in the mix too. The brain fog has me feeling lost creatively. And I wanted to work all day today.
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ICYMI, you can still get my latest album for free for #DisabilityPrideMonth.
This album was mostly recorded in the summer of 2025, when not on bed-rest for #longCOVID, #MECFS, #fibromyalgia.
It's a response to the rising christian nationalism/dominionism in the US and the world.
I was a worship leader for many years. I left that world for how it treated me and other queer, disabled folks.
If you grew up in the church and have been burned, this one's for you. ❤️🩹
https://arendleejessurun.bandcamp.com/album/the-tower-of-babel-falls
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ICYMI, you can still get my latest album for free for #DisabilityPrideMonth.
This album was mostly recorded in the summer of 2025, when not on bed-rest for #longCOVID, #MECFS, #fibromyalgia.
It's a response to the rising christian nationalism/dominionism in the US and the world.
I was a worship leader for many years. I left that world for how it treated me and other queer, disabled folks.
If you grew up in the church and have been burned, this one's for you. ❤️🩹
https://arendleejessurun.bandcamp.com/album/the-tower-of-babel-falls
-
ICYMI, you can still get my latest album for free for #DisabilityPrideMonth.
This album was mostly recorded in the summer of 2025, when not on bed-rest for #longCOVID, #MECFS, #fibromyalgia.
It's a response to the rising christian nationalism/dominionism in the US and the world.
I was a worship leader for many years. I left that world for how it treated me and other queer, disabled folks.
If you grew up in the church and have been burned, this one's for you. ❤️🩹
https://arendleejessurun.bandcamp.com/album/the-tower-of-babel-falls
-
ICYMI, you can still get my latest album for free for #DisabilityPrideMonth.
This album was mostly recorded in the summer of 2025, when not on bed-rest for #longCOVID, #MECFS, #fibromyalgia.
It's a response to the rising christian nationalism/dominionism in the US and the world.
I was a worship leader for many years. I left that world for how it treated me and other queer, disabled folks.
If you grew up in the church and have been burned, this one's for you. ❤️🩹
https://arendleejessurun.bandcamp.com/album/the-tower-of-babel-falls
-
ICYMI, you can still get my latest album for free for #DisabilityPrideMonth.
This album was mostly recorded in the summer of 2025, when not on bed-rest for #longCOVID, #MECFS, #fibromyalgia.
It's a response to the rising christian nationalism/dominionism in the US and the world.
I was a worship leader for many years. I left that world for how it treated me and other queer, disabled folks.
If you grew up in the church and have been burned, this one's for you. ❤️🩹
https://arendleejessurun.bandcamp.com/album/the-tower-of-babel-falls
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@Kaonarose I can empathise. Had to go out to get some food yesterday and today the pain has been so bad I can hardly bear to move. Sending gentle 🫂
#Fibromyalgia -
@Kaonarose I can empathise. Had to go out to get some food yesterday and today the pain has been so bad I can hardly bear to move. Sending gentle 🫂
#Fibromyalgia -
@Kaonarose I can empathise. Had to go out to get some food yesterday and today the pain has been so bad I can hardly bear to move. Sending gentle 🫂
#Fibromyalgia -
@Kaonarose I can empathise. Had to go out to get some food yesterday and today the pain has been so bad I can hardly bear to move. Sending gentle 🫂
#Fibromyalgia -
It's so frustrating that I can't even go out for an hour without causing a fibro flare. I had to do some errands yesterday (couldn't do them all because of pain), and I'm paying for it today. Some days I get really sick of living in this body. #Fibromyalgia #ChronicPain
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It's so frustrating that I can't even go out for an hour without causing a fibro flare. I had to do some errands yesterday (couldn't do them all because of pain), and I'm paying for it today. Some days I get really sick of living in this body. #Fibromyalgia #ChronicPain
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It's so frustrating that I can't even go out for an hour without causing a fibro flare. I had to do some errands yesterday (couldn't do them all because of pain), and I'm paying for it today. Some days I get really sick of living in this body. #Fibromyalgia #ChronicPain
