#spoonies — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #spoonies, aggregated by home.social.
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One perk of a mobile home is everything is so close.
Now here on holidays for a full week and no days with over 1000 steps. Includes Saturday where lots of family here for day so had lots of trips to bedroom for 30-minute rest breaks.
My discipline paid off as no significant post-exertional malaise. 🙂
#PwME #MEcfs #longcovid #spoonie #spoonies #chronicillness @mecfs @longcovid
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One perk of a mobile home is everything is so close.
Now here on holidays for a full week and no days with over 1000 steps. Includes Saturday where lots of family here for day so had lots of trips to bedroom for 30-minute rest breaks.
My discipline paid off as no significant post-exertional malaise. 🙂
#PwME #MEcfs #longcovid #spoonie #spoonies #chronicillness @mecfs @longcovid
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One perk of a mobile home is everything is so close.
Now here on holidays for a full week and no days with over 1000 steps. Includes Saturday where lots of family here for day so had lots of trips to bedroom for 30-minute rest breaks.
My discipline paid off as no significant post-exertional malaise. 🙂
#PwME #MEcfs #longcovid #spoonie #spoonies #chronicillness @mecfs @longcovid
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One perk of a mobile home is everything is so close.
Now here on holidays for a full week and no days with over 1000 steps. Includes Saturday where lots of family here for day so had lots of trips to bedroom for 30-minute rest breaks.
My discipline paid off as no significant post-exertional malaise. 🙂
#PwME #MEcfs #longcovid #spoonie #spoonies #chronicillness @mecfs @longcovid
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One perk of a mobile home is everything is so close.
Now here on holidays for a full week and no days with over 1000 steps. Includes Saturday where lots of family here for day so had lots of trips to bedroom for 30-minute rest breaks.
My discipline paid off as no significant post-exertional malaise. 🙂
#PwME #MEcfs #longcovid #spoonie #spoonies #chronicillness @mecfs @longcovid
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"Navigating Clinical Uncertainty: Practical Tips for ME/CFS and Long COVID Caregivers" by Kim Moy
Her focus in general is on caregivers but most of this article is also relevant for patients
#MEcfs #LongCovid #Spoonies #Spoonie #ChronicallyIll @mecfs @longcovid #POTS @pots
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"Navigating Clinical Uncertainty: Practical Tips for ME/CFS and Long COVID Caregivers" by Kim Moy
Her focus in general is on caregivers but most of this article is also relevant for patients
#MEcfs #LongCovid #Spoonies #Spoonie #ChronicallyIll @mecfs @longcovid #POTS @pots
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"Navigating Clinical Uncertainty: Practical Tips for ME/CFS and Long COVID Caregivers" by Kim Moy
Her focus in general is on caregivers but most of this article is also relevant for patients
#MEcfs #LongCovid #Spoonies #Spoonie #ChronicallyIll @mecfs @longcovid #POTS @pots
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"Navigating Clinical Uncertainty: Practical Tips for ME/CFS and Long COVID Caregivers" by Kim Moy
Her focus in general is on caregivers but most of this article is also relevant for patients
#MEcfs #LongCovid #Spoonies #Spoonie #ChronicallyIll @mecfs @longcovid #POTS @pots
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"Navigating Clinical Uncertainty: Practical Tips for ME/CFS and Long COVID Caregivers" by Kim Moy
Her focus in general is on caregivers but most of this article is also relevant for patients
#MEcfs #LongCovid #Spoonies #Spoonie #ChronicallyIll @mecfs @longcovid #POTS @pots
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(Not specific to any one disability or illness)
EquipOT has some videos of disability hacks/tips:
https://www.youtube.com/@EquipMeOT/playlists#disability #chronicillness #spoonie #spoonies #disabilityaid
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(Not specific to any one disability or illness)
EquipOT has some videos of disability hacks/tips:
https://www.youtube.com/@EquipMeOT/playlists#disability #chronicillness #spoonie #spoonies #disabilityaid
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(Not specific to any one disability or illness)
EquipOT has some videos of disability hacks/tips:
https://www.youtube.com/@EquipMeOT/playlists#disability #chronicillness #spoonie #spoonies #disabilityaid
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(Not specific to any one disability or illness)
EquipOT has some videos of disability hacks/tips:
https://www.youtube.com/@EquipMeOT/playlists#disability #chronicillness #spoonie #spoonies #disabilityaid
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(Not specific to any one disability or illness)
EquipOT has some videos of disability hacks/tips:
https://www.youtube.com/@EquipMeOT/playlists#disability #chronicillness #spoonie #spoonies #disabilityaid
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🧵
"How to Apply For—and Receive—Your SSDI: Long COVID makes it tricky. Know the rules"https://longcovidmd.substack.com/p/you-may-qualify-for-ssdi
Blog with linked video recording.
Most of the advice is specific to SSDI rather than more generally useful internationallyAlso useful for other spoonies
#LongCovid #MEcfs #Spoonies
#Spoonie #POTS @pots #PwME #ME #MyalgicE
@mecfs
@longcovid1/
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🧵
"How to Apply For—and Receive—Your SSDI: Long COVID makes it tricky. Know the rules"https://longcovidmd.substack.com/p/you-may-qualify-for-ssdi
Blog with linked video recording.
Most of the advice is specific to SSDI rather than more generally useful internationallyAlso useful for other spoonies
#LongCovid #MEcfs #Spoonies
#Spoonie #POTS @pots #PwME #ME #MyalgicE
@mecfs
@longcovid1/
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🧵
"How to Apply For—and Receive—Your SSDI: Long COVID makes it tricky. Know the rules"https://longcovidmd.substack.com/p/you-may-qualify-for-ssdi
Blog with linked video recording.
Most of the advice is specific to SSDI rather than more generally useful internationallyAlso useful for other spoonies
#LongCovid #MEcfs #Spoonies
#Spoonie #POTS @pots #PwME #ME #MyalgicE
@mecfs
@longcovid1/
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🧵
"How to Apply For—and Receive—Your SSDI: Long COVID makes it tricky. Know the rules"https://longcovidmd.substack.com/p/you-may-qualify-for-ssdi
Blog with linked video recording.
Most of the advice is specific to SSDI rather than more generally useful internationallyAlso useful for other spoonies
#LongCovid #MEcfs #Spoonies
#Spoonie #POTS @pots #PwME #ME #MyalgicE
@mecfs
@longcovid1/
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🧵
"How to Apply For—and Receive—Your SSDI: Long COVID makes it tricky. Know the rules"https://longcovidmd.substack.com/p/you-may-qualify-for-ssdi
Blog with linked video recording.
Most of the advice is specific to SSDI rather than more generally useful internationallyAlso useful for other spoonies
#LongCovid #MEcfs #Spoonies
#Spoonie #POTS @pots #PwME #ME #MyalgicE
@mecfs
@longcovid1/
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Any other spoonies have a very specific indicator that they're worse than usual?
For me, it's when my elbows ache. The rest of me can ache and it's "fine", but if my elbows are achy, I absolutely need to rest.
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Any other spoonies have a very specific indicator that they're worse than usual?
For me, it's when my elbows ache. The rest of me can ache and it's "fine", but if my elbows are achy, I absolutely need to rest.
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Any other spoonies have a very specific indicator that they're worse than usual?
For me, it's when my elbows ache. The rest of me can ache and it's "fine", but if my elbows are achy, I absolutely need to rest.
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Any other spoonies have a very specific indicator that they're worse than usual?
For me, it's when my elbows ache. The rest of me can ache and it's "fine", but if my elbows are achy, I absolutely need to rest.
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Any other spoonies have a very specific indicator that they're worse than usual?
For me, it's when my elbows ache. The rest of me can ache and it's "fine", but if my elbows are achy, I absolutely need to rest.
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Wenn alles klappt, schaffe ich es morgen das erste Mal selbst zur #Liegenddemo seit Erkrankungsbeginn vor 8 Jahren. Wer kommt mit? 👀
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Wenn alles klappt, schaffe ich es morgen das erste Mal zur #Liegenddemo seit Erkrankungsbeginn vor 8 Jahren. Wer kommt mit? 👀
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Wenn alles klappt, schaffe ich es morgen das erste Mal selbst zur #Liegenddemo seit Erkrankungsbeginn vor 8 Jahren. Wer kommt mit? 👀
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Wenn alles klappt, schaffe ich es morgen das erste Mal zur #Liegenddemo seit Erkrankungsbeginn vor 8 Jahren. Wer kommt mit? 👀
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Wenn alles klappt, schaffe ich es morgen das erste Mal zur #Liegenddemo seit Erkrankungsbeginn vor 8 Jahren. Wer kommt mit? 👀
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Hi there,
I just wanted to surface a Reddit post here on the fediverse. A very severe/extreme ME/CFS sufferer is currently in a precarious situation and needing financial support.
Her name is Ali and you can read more about her situation on Reddit here:
https://www.reddit.com/r/cfs/comments/1t11zip/fundraiser_for_ali_veryextremely_severe_me/
Thanks.
#MECFS #MyalgicEncephalomyelitis #CFS #MyalgicE #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome #spoonie #spoonies
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Hi there,
I just wanted to surface a Reddit post here on the fediverse. A very severe/extreme ME/CFS sufferer is currently in a precarious situation and needing financial support.
Her name is Ali and you can read more about her situation on Reddit here:
https://www.reddit.com/r/cfs/comments/1t11zip/fundraiser_for_ali_veryextremely_severe_me/
Thanks.
#MECFS #MyalgicEncephalomyelitis #CFS #MyalgicE #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome #spoonie #spoonies
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Hi there,
I just wanted to surface a Reddit post here on the fediverse. A very severe/extreme ME/CFS sufferer is currently in a precarious situation and needing financial support.
Her name is Ali and you can read more about her situation on Reddit here:
https://www.reddit.com/r/cfs/comments/1t11zip/fundraiser_for_ali_veryextremely_severe_me/
Thanks.
#MECFS #MyalgicEncephalomyelitis #CFS #MyalgicE #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome #spoonie #spoonies
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Hi there,
I just wanted to surface a Reddit post here on the fediverse. A very severe/extreme ME/CFS sufferer is currently in a precarious situation and needing financial support.
Her name is Ali and you can read more about her situation on Reddit here:
https://www.reddit.com/r/cfs/comments/1t11zip/fundraiser_for_ali_veryextremely_severe_me/
Thanks.
#MECFS #MyalgicEncephalomyelitis #CFS #MyalgicE #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome #spoonie #spoonies
-
Hi there,
I just wanted to surface a Reddit post here on the fediverse. A very severe/extreme ME/CFS sufferer is currently in a precarious situation and needing financial support.
Her name is Ali and you can read more about her situation on Reddit here:
https://www.reddit.com/r/cfs/comments/1t11zip/fundraiser_for_ali_veryextremely_severe_me/
Thanks.
#MECFS #MyalgicEncephalomyelitis #CFS #MyalgicE #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome #spoonie #spoonies
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CW: Spoonies - physiotherapists have magical hands
Gluteus medius is a pain to have cramped and become inflamed, and to have had physio on, with referred twinges around and through the hip into the thigh. It was clear where the edges gave way to the piriformis though - those too familiar sciatic tendrils reached toward the ankle. But those only get angry when poked.
Most of the physios at the reha zentrum have magical hands, and I’m grateful they have space for chronic treatments, and not just joint surgery recoveries - their primary clientele.
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CW: Spoonies - physiotherapists have magical hands
Gluteus medius is a pain to have cramped and become inflamed, and to have had physio on, with referred twinges around and through the hip into the thigh. It was clear where the edges gave way to the piriformis though - those too familiar sciatic tendrils reached toward the ankle. But those only get angry when poked.
Most of the physios at the reha zentrum have magical hands, and I’m grateful they have space for chronic treatments, and not just joint surgery recoveries - their primary clientele.
-
CW: Spoonies - physiotherapists have magical hands
Gluteus medius is a pain to have cramped and become inflamed, and to have had physio on, with referred twinges around and through the hip into the thigh. It was clear where the edges gave way to the piriformis though - those too familiar sciatic tendrils reached toward the ankle. But those only get angry when poked.
Most of the physios at the reha zentrum have magical hands, and I’m grateful they have space for chronic treatments, and not just joint surgery recoveries - their primary clientele.
-
3/
Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:
• Insufficient preparation for chronic illness
• Common and serious diseases are neglected in medical training
• Psychosomatic illness
• Inability to accept uncertainty#MedicalGaslighting #Gaslighting #MedMastodon
@longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses -
3/
Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:
• Insufficient preparation for chronic illness
• Common and serious diseases are neglected in medical training
• Psychosomatic illness
• Inability to accept uncertainty#MedicalGaslighting #Gaslighting #MedMastodon
@longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses -
3/
Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:
• Insufficient preparation for chronic illness
• Common and serious diseases are neglected in medical training
• Psychosomatic illness
• Inability to accept uncertainty#MedicalGaslighting #Gaslighting #MedMastodon
@longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses -
3/
Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:
• Insufficient preparation for chronic illness
• Common and serious diseases are neglected in medical training
• Psychosomatic illness
• Inability to accept uncertainty#MedicalGaslighting #Gaslighting #MedMastodon
@longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses -
3/
Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:
• Insufficient preparation for chronic illness
• Common and serious diseases are neglected in medical training
• Psychosomatic illness
• Inability to accept uncertainty#MedicalGaslighting #Gaslighting #MedMastodon
@longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses -
🧵
"How medical training promotes medical gaslighting" by K. Johnstonehttps://mecfs.substack.com/p/how-medical-training-promotes-medical
This is not illness specific.
#chronicillness #hiddenillness #invisibleillness @longcovid
#LongCovid #MEcfs
@mecfs #ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll1/
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🧵
"How medical training promotes medical gaslighting" by K. Johnstonehttps://mecfs.substack.com/p/how-medical-training-promotes-medical
This is not illness specific.
#chronicillness #hiddenillness #invisibleillness @longcovid
#LongCovid #MEcfs
@mecfs #ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll1/
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🧵
"How medical training promotes medical gaslighting" by K. Johnstonehttps://mecfs.substack.com/p/how-medical-training-promotes-medical
This is not illness specific.
#chronicillness #hiddenillness #invisibleillness @longcovid
#LongCovid #MEcfs
@mecfs #ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll1/
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🧵
"How medical training promotes medical gaslighting" by K. Johnstonehttps://mecfs.substack.com/p/how-medical-training-promotes-medical
This is not illness specific.
#chronicillness #hiddenillness #invisibleillness @longcovid
#LongCovid #MEcfs
@mecfs #ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll1/
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🧵
"How medical training promotes medical gaslighting" by K. Johnstonehttps://mecfs.substack.com/p/how-medical-training-promotes-medical
This is not illness specific.
#chronicillness #hiddenillness #invisibleillness @longcovid
#LongCovid #MEcfs
@mecfs #ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll1/
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"Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone
https://mecfs.substack.com/p/medical-gaslighting-is-serious-harmful
#MedicalGaslighting #neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll -
"Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone
https://mecfs.substack.com/p/medical-gaslighting-is-serious-harmful
#MedicalGaslighting #neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll