#spoonies — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #spoonies, aggregated by home.social.
-
3/
Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:
• Insufficient preparation for chronic illness
• Common and serious diseases are neglected in medical training
• Psychosomatic illness
• Inability to accept uncertainty#MedicalGaslighting #Gaslighting #MedMastodon
@longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses -
3/
Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:
• Insufficient preparation for chronic illness
• Common and serious diseases are neglected in medical training
• Psychosomatic illness
• Inability to accept uncertainty#MedicalGaslighting #Gaslighting #MedMastodon
@longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses -
3/
Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:
• Insufficient preparation for chronic illness
• Common and serious diseases are neglected in medical training
• Psychosomatic illness
• Inability to accept uncertainty#MedicalGaslighting #Gaslighting #MedMastodon
@longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses -
3/
Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:
• Insufficient preparation for chronic illness
• Common and serious diseases are neglected in medical training
• Psychosomatic illness
• Inability to accept uncertainty#MedicalGaslighting #Gaslighting #MedMastodon
@longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses -
3/
Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:
• Insufficient preparation for chronic illness
• Common and serious diseases are neglected in medical training
• Psychosomatic illness
• Inability to accept uncertainty#MedicalGaslighting #Gaslighting #MedMastodon
@longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses -
🧵
"How medical training promotes medical gaslighting" by K. Johnstonehttps://mecfs.substack.com/p/how-medical-training-promotes-medical
This is not illness specific.
#chronicillness #hiddenillness #invisibleillness @longcovid
#LongCovid #MEcfs
@mecfs #ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll1/
-
🧵
"How medical training promotes medical gaslighting" by K. Johnstonehttps://mecfs.substack.com/p/how-medical-training-promotes-medical
This is not illness specific.
#chronicillness #hiddenillness #invisibleillness @longcovid
#LongCovid #MEcfs
@mecfs #ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll1/
-
🧵
"How medical training promotes medical gaslighting" by K. Johnstonehttps://mecfs.substack.com/p/how-medical-training-promotes-medical
This is not illness specific.
#chronicillness #hiddenillness #invisibleillness @longcovid
#LongCovid #MEcfs
@mecfs #ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll1/
-
🧵
"How medical training promotes medical gaslighting" by K. Johnstonehttps://mecfs.substack.com/p/how-medical-training-promotes-medical
This is not illness specific.
#chronicillness #hiddenillness #invisibleillness @longcovid
#LongCovid #MEcfs
@mecfs #ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll1/
-
🧵
"How medical training promotes medical gaslighting" by K. Johnstonehttps://mecfs.substack.com/p/how-medical-training-promotes-medical
This is not illness specific.
#chronicillness #hiddenillness #invisibleillness @longcovid
#LongCovid #MEcfs
@mecfs #ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll1/
-
"Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone
https://mecfs.substack.com/p/medical-gaslighting-is-serious-harmful
#MedicalGaslighting #neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll -
"Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone
https://mecfs.substack.com/p/medical-gaslighting-is-serious-harmful
#MedicalGaslighting #neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll -
"Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone
https://mecfs.substack.com/p/medical-gaslighting-is-serious-harmful
#MedicalGaslighting #neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll -
"Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone
https://mecfs.substack.com/p/medical-gaslighting-is-serious-harmful
#MedicalGaslighting #neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll -
"Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone
https://mecfs.substack.com/p/medical-gaslighting-is-serious-harmful
#MedicalGaslighting #neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll -
News Release 9-Mar-2026
Telemedicine remains popular, but who uses it varies widely
https://www.eurekalert.org/news-releases/1119321
“Telemedicine is no longer just a pandemic workaround—it has become a routine part of care delivery,”
#chronicillness #Spoonie #ChronicallyIll #ChronicIllnesses #Spoonies
-
News Release 9-Mar-2026
Telemedicine remains popular, but who uses it varies widely
https://www.eurekalert.org/news-releases/1119321
“Telemedicine is no longer just a pandemic workaround—it has become a routine part of care delivery,”
#chronicillness #Spoonie #ChronicallyIll #ChronicIllnesses #Spoonies
-
News Release 9-Mar-2026
Telemedicine remains popular, but who uses it varies widely
https://www.eurekalert.org/news-releases/1119321
“Telemedicine is no longer just a pandemic workaround—it has become a routine part of care delivery,”
#chronicillness #Spoonie #ChronicallyIll #ChronicIllnesses #Spoonies
-
News Release 9-Mar-2026
Telemedicine remains popular, but who uses it varies widely
https://www.eurekalert.org/news-releases/1119321
“Telemedicine is no longer just a pandemic workaround—it has become a routine part of care delivery,”
#chronicillness #Spoonie #ChronicallyIll #ChronicIllnesses #Spoonies
-
News Release 9-Mar-2026
Telemedicine remains popular, but who uses it varies widely
https://www.eurekalert.org/news-releases/1119321
“Telemedicine is no longer just a pandemic workaround—it has become a routine part of care delivery,”
#chronicillness #Spoonie #ChronicallyIll #ChronicIllnesses #Spoonies
-
Years of scapegoating rhetoric has led to ‘envy & resentment’ of those with blue badges, research finds
Note: blue badge = UK name for disabled parking permit
Screenshot from AMMES March 2026 Newsletter
#Disabled #Disability #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots -
Years of scapegoating rhetoric has led to ‘envy & resentment’ of those with blue badges, research finds
Note: blue badge = UK name for disabled parking permit
Screenshot from AMMES March 2026 Newsletter
#Disabled #Disability #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots -
Years of scapegoating rhetoric has led to ‘envy & resentment’ of those with blue badges, research finds
Note: blue badge = UK name for disabled parking permit
Screenshot from AMMES March 2026 Newsletter
#Disabled #Disability #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots -
Years of scapegoating rhetoric has led to ‘envy & resentment’ of those with blue badges, research finds
Note: blue badge = UK name for disabled parking permit
Screenshot from AMMES March 2026 Newsletter
#Disabled #Disability #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots -
Years of scapegoating rhetoric has led to ‘envy & resentment’ of those with blue badges, research finds
Note: blue badge = UK name for disabled parking permit
Screenshot from AMMES March 2026 Newsletter
#Disabled #Disability #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots -
"Rather than holding onto the idea that the only life worth living is one without disease, consider expanding your definition of hope to include connection, purpose, & meaning under any circumstances"
From:
Recap: Support group: Coping with Depression & Emotional Overload
https://batemanhornecenter.org/wp-content/uploads/2026/02/20260217-Support-Group-Recap.pdf#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll -
"Rather than holding onto the idea that the only life worth living is one without disease, consider expanding your definition of hope to include connection, purpose, & meaning under any circumstances"
From:
Recap: Support group: Coping with Depression & Emotional Overload
https://batemanhornecenter.org/wp-content/uploads/2026/02/20260217-Support-Group-Recap.pdf#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll -
"Rather than holding onto the idea that the only life worth living is one without disease, consider expanding your definition of hope to include connection, purpose, & meaning under any circumstances"
From:
Recap: Support group: Coping with Depression & Emotional Overload
https://batemanhornecenter.org/wp-content/uploads/2026/02/20260217-Support-Group-Recap.pdf#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll -
"Rather than holding onto the idea that the only life worth living is one without disease, consider expanding your definition of hope to include connection, purpose, & meaning under any circumstances"
From:
Recap: Support group: Coping with Depression & Emotional Overload
https://batemanhornecenter.org/wp-content/uploads/2026/02/20260217-Support-Group-Recap.pdf#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll -
"Rather than holding onto the idea that the only life worth living is one without disease, consider expanding your definition of hope to include connection, purpose, & meaning under any circumstances"
From:
Recap: Support group: Coping with Depression & Emotional Overload
https://batemanhornecenter.org/wp-content/uploads/2026/02/20260217-Support-Group-Recap.pdf#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll -
🧵
"The Quiet Art of Extending a Life: Notes on Assistive Tools, Capacity, and the Dignity of Support"https://onelifelivedwell.substack.com/p/the-quiet-art-of-extending-a-life
Another thoughtful post from this OT who specialises in ME/CFS & long Covid
She calls such devices "capacity extenders".
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots
#Disabled
#Disability1/
-
🧵
"The Quiet Art of Extending a Life: Notes on Assistive Tools, Capacity, and the Dignity of Support"https://onelifelivedwell.substack.com/p/the-quiet-art-of-extending-a-life
Another thoughtful post from this OT who specialises in ME/CFS & long Covid
She calls such devices "capacity extenders".
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots
#Disabled
#Disability1/
-
Image is from an email from Institute for Neuro-Immune Medicine Center for Collaborative Research
Links from image:
https://www.cards2warriors.org/
https://www.cards2warriors.org/happy-mail#chronicillness #illness #Illhealth #ChronicIllnesses #Spoonies #Spoonie #ChronicallyIll
-
Image is from an email from Institute for Neuro-Immune Medicine Center for Collaborative Research
Links from image:
https://www.cards2warriors.org/
https://www.cards2warriors.org/happy-mail#chronicillness #illness #Illhealth #ChronicIllnesses #Spoonies #Spoonie #ChronicallyIll
-
🙈😭🙈 HIDING 🙈😭🙈
I'm usually a major stoic when having a medically bad day. Why? In part, a Nordic upbringing. But there's more.
Years, hiding out in the "Disability Closet." It's primal, this instinct to mask our weaknesses. Over 20+ years, I fine-honed masking, fearing loss of family, friends, business, independence. Who wants to hear about pain? Soul-crushing fatigue? Costly specialists? No one, not really.
❓️❓️❓️ #Spoonies, ever felt this way? ❓️❓️❓️
-
🙈😭🙈 HIDING 🙈😭🙈
I'm usually a major stoic when having a medically bad day. Why? In part, a Nordic upbringing. But there's more.
Years, hiding out in the "Disability Closet." It's primal, this instinct to mask our weaknesses. Over 20+ years, I fine-honed masking, fearing loss of family, friends, business, independence. Who wants to hear about pain? Soul-crushing fatigue? Costly specialists? No one, not really.
❓️❓️❓️ #Spoonies, ever felt this way? ❓️❓️❓️
-
🧵
From Blanchardstown Centre for Independent Living on X🎙 On #DisabilityMatters, Mary Tynan shares how ME & access barriers shape her life — and art, talks about her new film Nadirshah.
📻 Thurs 4PM | 5 Jun on @925PhoenixFMMore:
https://bcil.ie/archives/8344#Disability #PwME #MEcfs #CFS @disability @mecfs #myalgicencephalomyelitis @chronicillness #chronicillness @spoonies #spoonie #spoonies
1/
-
🧵
From Blanchardstown Centre for Independent Living on X🎙 On #DisabilityMatters, Mary Tynan shares how ME & access barriers shape her life — and art, talks about her new film Nadirshah.
📻 Thurs 4PM | 5 Jun on @925PhoenixFMMore:
https://bcil.ie/archives/8344#Disability #PwME #MEcfs #CFS @disability @mecfs #myalgicencephalomyelitis @chronicillness #chronicillness @spoonies #spoonie #spoonies
1/
-
Please donate to help my friend with chronic illness afford food this month. 💗 🙏
mealtrain.com/56g64r
@crowdfunding @chronicillness @disability @disabilityjustice
#mutualaid #disability #spoonies #chronicillness #covid #covidsafe
-
"Ways you can support a friend and chronic pain"
Also applies to many with chronic illnesses and disabilities
=================
Hashtags:
#ChronicPain #ChronicPainWarrior #ChronicPainAwareness
@chronicillness
@spoonies
@disability
@chronicpain @longcovid
#LongCovid @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #chronicillness #chroniclife
#Spoonielife #hiddenillness
#invisibleillness #ChronicIllnesses #Spoonies
#Spoonie #ChronicallyIll
#ChronicIllnessMemes -
"Ways you can support a friend and chronic pain"
Also applies to many with chronic illnesses and disabilities
=================
Hashtags:
#ChronicPain #ChronicPainWarrior #ChronicPainAwareness
@chronicillness
@spoonies
@disability
@chronicpain @longcovid
#LongCovid @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #chronicillness #chroniclife
#Spoonielife #hiddenillness
#invisibleillness #ChronicIllnesses #Spoonies
#Spoonie #ChronicallyIll
#ChronicIllnessMemes -
Ever feel like you're only being held together by adrenalin and caffeine? God help me if one of them runs out 🤪🥴
#spoonies #neisvoid #ADHDers #neurodivergent #chronicpain #TNWarrior
-
Ever feel like you're only being held together by adrenalin and caffeine? God help me if one of them runs out 🤪🥴
#spoonies #neisvoid #ADHDers #neurodivergent #chronicpain #TNWarrior
-
Ever feel like you're only being held together by adrenalin and caffeine? God help me if one of them runs out 🤪🥴
#spoonies #neisvoid #ADHDers #neurodivergent #chronicpain #TNWarrior
-
I just saw a recipe for shrimp porridge by Maangchi and wanted to comment on some possible adaptations for #spoonies or fellow #ADHDers who don't deal well with keeping an eye on something for 30 minutes or more.
Note, this is probably not going to taste like hers, but hopefully as tasty.
-
I just saw a recipe for shrimp porridge by Maangchi and wanted to comment on some possible adaptations for #spoonies or fellow #ADHDers who don't deal well with keeping an eye on something for 30 minutes or more.
Note, this is probably not going to taste like hers, but hopefully as tasty.
-
I just saw a recipe for shrimp porridge by Maangchi and wanted to comment on some possible adaptations for #spoonies or fellow #ADHDers who don't deal well with keeping an eye on something for 30 minutes or more.
Note, this is probably not going to taste like hers, but hopefully as tasty.
-
I just saw a recipe for shrimp porridge by Maangchi and wanted to comment on some possible adaptations for #spoonies or fellow #ADHDers who don't deal well with keeping an eye on something for 30 minutes or more.
Note, this is probably not going to taste like hers, but hopefully as tasty.
-
I just saw a recipe for shrimp porridge by Maangchi and wanted to comment on some possible adaptations for #spoonies or fellow #ADHDers who don't deal well with keeping an eye on something for 30 minutes or more.
Note, this is probably not going to taste like hers, but hopefully as tasty.
-
6/
"7. “I’m in more pain than someone could even imagine. I wouldn’t wish this pain on my worst enemies. I don’t like to complain to those around me because if I did, I’d be complaining 24/7 and I don’t want to be ‘annoying’ or ‘a burden’ to anyone.”
@chronicillness @spoonies #fatigue #chronicillness #chroniclife
#Spoonielife #hiddenillness
#invisibleillness #ChronicIllnesses #Spoonies
#Spoonie #ChronicallyIll #ChronicPain #ChronicPainWarrior #ChronicPainAwareness