home.social

#spoonies — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #spoonies, aggregated by home.social.

  1. Rosanna @[email protected] ·

    Wenn alles klappt, schaffe ich es morgen das erste Mal zur #Liegenddemo seit Erkrankungsbeginn vor 8 Jahren. Wer kommt mit? 👀

    liegenddemo.de/#termine

    #GoFundMECFS #spoonies #Flensburg

    #liegenddemo #gofundmecfs #spoonies #flensburg
  2. Dave Underwood @[email protected] ·

    Hi there,

    I just wanted to surface a Reddit post here on the fediverse. A very severe/extreme ME/CFS sufferer is currently in a precarious situation and needing financial support.

    Her name is Ali and you can read more about her situation on Reddit here:

    reddit.com/r/cfs/comments/1t11

    Thanks.

    #MECFS #MyalgicEncephalomyelitis #CFS #MyalgicE #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome #spoonie #spoonies

    #mecfs #myalgicencephalomyelitis #cfs #myalgice #chronicillness #chronicfatigue
  3. Dave Underwood @[email protected] ·

    Hi there,

    I just wanted to surface a Reddit post here on the fediverse. A very severe/extreme ME/CFS sufferer is currently in a precarious situation and needing financial support.

    Her name is Ali and you can read more about her situation on Reddit here:

    reddit.com/r/cfs/comments/1t11

    Thanks.

    #MECFS #MyalgicEncephalomyelitis #CFS #MyalgicE #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome #spoonie #spoonies

    #mecfs #myalgicencephalomyelitis #cfs #myalgice #chronicillness #chronicfatigue
  4. Dave Underwood @[email protected] ·

    Hi there,

    I just wanted to surface a Reddit post here on the fediverse. A very severe/extreme ME/CFS sufferer is currently in a precarious situation and needing financial support.

    Her name is Ali and you can read more about her situation on Reddit here:

    reddit.com/r/cfs/comments/1t11

    Thanks.

    #MECFS #MyalgicEncephalomyelitis #CFS #MyalgicE #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome #spoonie #spoonies

    #mecfs #myalgicencephalomyelitis #cfs #myalgice #chronicillness #chronicfatigue
  5. Dave Underwood @[email protected] ·

    Hi there,

    I just wanted to surface a Reddit post here on the fediverse. A very severe/extreme ME/CFS sufferer is currently in a precarious situation and needing financial support.

    Her name is Ali and you can read more about her situation on Reddit here:

    reddit.com/r/cfs/comments/1t11

    Thanks.

    #MECFS #MyalgicEncephalomyelitis #CFS #MyalgicE #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome #spoonie #spoonies

    #spoonies #spoonie #chronicfatiguesyndrome #chronicfatigue #chronicillness #myalgice
  6. Dave Underwood @[email protected] ·

    Hi there,

    I just wanted to surface a Reddit post here on the fediverse. A very severe/extreme ME/CFS sufferer is currently in a precarious situation and needing financial support.

    Her name is Ali and you can read more about her situation on Reddit here:

    reddit.com/r/cfs/comments/1t11

    Thanks.

    #MECFS #MyalgicEncephalomyelitis #CFS #MyalgicE #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome #spoonie #spoonies

    #mecfs #myalgicencephalomyelitis #cfs #myalgice #chronicillness #chronicfatigue
  7. Tom Kindlon @[email protected] ·

    3/

    Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:

    • Insufficient preparation for chronic illness
    • Common and serious diseases are neglected in medical training
    • Psychosomatic illness
    • Inability to accept uncertainty

    #MedicalGaslighting #Gaslighting #MedMastodon
    @longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses

    #medicalgaslighting #gaslighting #medmastodon #chronicillness #spoonies #neisvoid
  8. Tom Kindlon @[email protected] ·

    3/

    Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:

    • Insufficient preparation for chronic illness
    • Common and serious diseases are neglected in medical training
    • Psychosomatic illness
    • Inability to accept uncertainty

    #MedicalGaslighting #Gaslighting #MedMastodon
    @longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses

    #medicalgaslighting #gaslighting #medmastodon #chronicillness #spoonies #neisvoid
  9. Tom Kindlon @[email protected] ·

    3/

    Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:

    • Insufficient preparation for chronic illness
    • Common and serious diseases are neglected in medical training
    • Psychosomatic illness
    • Inability to accept uncertainty

    #MedicalGaslighting #Gaslighting #MedMastodon
    @longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses

    #medicalgaslighting #gaslighting #medmastodon #chronicillness #spoonies #neisvoid
  10. Tom Kindlon @[email protected] ·

    3/

    Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:

    • Insufficient preparation for chronic illness
    • Common and serious diseases are neglected in medical training
    • Psychosomatic illness
    • Inability to accept uncertainty

    #MedicalGaslighting #Gaslighting #MedMastodon
    @longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses

    #hiddenillnesses #chronicillnesses #neisvoid #spoonies #chronicillness #medmastodon
  11. Tom Kindlon @[email protected] ·

    3/

    Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:

    • Insufficient preparation for chronic illness
    • Common and serious diseases are neglected in medical training
    • Psychosomatic illness
    • Inability to accept uncertainty

    #MedicalGaslighting #Gaslighting #MedMastodon
    @longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses

    #medicalgaslighting #gaslighting #medmastodon #chronicillness #spoonies #neisvoid
  12. Tom Kindlon @[email protected] ·

    🧵
    "How medical training promotes medical gaslighting" by K. Johnstone

    mecfs.substack.com/p/how-medic

    This is not illness specific.

    #chronicillness #hiddenillness #invisibleillness @longcovid
    #LongCovid #MEcfs
    @mecfs #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    1/

    #chronicillness #hiddenillness #invisibleillness #longcovid #mecfs #chronicillnesses
  13. Tom Kindlon @[email protected] ·

    🧵
    "How medical training promotes medical gaslighting" by K. Johnstone

    mecfs.substack.com/p/how-medic

    This is not illness specific.

    #chronicillness #hiddenillness #invisibleillness @longcovid
    #LongCovid #MEcfs
    @mecfs #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    1/

    #chronicillness #hiddenillness #invisibleillness #longcovid #mecfs #chronicillnesses
  14. Tom Kindlon @[email protected] ·

    🧵
    "How medical training promotes medical gaslighting" by K. Johnstone

    mecfs.substack.com/p/how-medic

    This is not illness specific.

    #chronicillness #hiddenillness #invisibleillness @longcovid
    #LongCovid #MEcfs
    @mecfs #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    1/

    #chronicallyill #spoonie #spoonies #chronicillnesses #mecfs #longcovid
  15. Tom Kindlon @[email protected] ·

    🧵
    "How medical training promotes medical gaslighting" by K. Johnstone

    mecfs.substack.com/p/how-medic

    This is not illness specific.

    #chronicillness #hiddenillness #invisibleillness @longcovid
    #LongCovid #MEcfs
    @mecfs #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    1/

    #chronicillness #hiddenillness #invisibleillness #longcovid #mecfs #chronicillnesses
  16. Tom Kindlon @[email protected] ·

    🧵
    "How medical training promotes medical gaslighting" by K. Johnstone

    mecfs.substack.com/p/how-medic

    This is not illness specific.

    #chronicillness #hiddenillness #invisibleillness @longcovid
    #LongCovid #MEcfs
    @mecfs #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    1/

    #chronicillness #hiddenillness #invisibleillness #longcovid #mecfs #chronicillnesses
  17. Tom Kindlon @[email protected] ·

    "Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone

    mecfs.substack.com/p/medical-g

    #MedicalGaslighting #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    #medicalgaslighting #neisvoid #chronicillness #chroniclife #chronicpain #spoonielife
  18. Tom Kindlon @[email protected] ·

    "Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone

    mecfs.substack.com/p/medical-g

    #MedicalGaslighting #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    #medicalgaslighting #neisvoid #chronicillness #chroniclife #chronicpain #spoonielife
  19. Tom Kindlon @[email protected] ·

    "Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone

    mecfs.substack.com/p/medical-g

    #MedicalGaslighting #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    #chronicallyill #spoonie #spoonies #chronicillnesses #invisibleillness #hiddenillness
  20. Tom Kindlon @[email protected] ·

    "Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone

    mecfs.substack.com/p/medical-g

    #MedicalGaslighting #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    #medicalgaslighting #neisvoid #chronicillness #chroniclife #chronicpain #spoonielife
  21. Tom Kindlon @[email protected] ·

    "Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone

    mecfs.substack.com/p/medical-g

    #MedicalGaslighting #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    #medicalgaslighting #neisvoid #chronicillness #chroniclife #chronicpain #spoonielife
  22. Kymberly @[email protected] ·

    Quilt is bound (hand stitched the top binding with various multi-coloured cottons. Nothing is straight or even, so the puffiness hides a lot of that - I don’t want to completely flatten it.
    I’ll add slow ‘big stitch’ quilting (a la sashiko) with fine perle cottons gradually, at least in the big border, to tone down and anchor some of that wooly puffiness before it gets de-furred and washed and properly photographed.

    But for now, I can use it as a big warm blanket.

    #SlowQuilts should be a tag for #spoonies :-)

    #quilting #patchwork #FiberArts

    #slowquilts #spoonies #quilting #patchwork #fiberarts
  23. Aria.DNE @[email protected] ·

    :boost_requested: Please boost!

    Genuine question for the Spoonies, mobile devs, and FOSS people of the fediverse:

    I'm currently sitting on an Android project that is ~85% ready for release to the public. It's a medication tracking app. Scheduling, refill reminders, notifications, etc.

    - fully FOSS
    - no AI involvement
    - no account creation
    - no unnecessary permissions
    - doesn't harvest your data

    The intent is to make it available for free. I would happily accept tips and donations toward support and maintenance, or a Pay-What-You-Want model. So the question is, what would you be willing to do to support?

    #Android #AndroidDev #Spoonie #Spoonies #FOSS #IndieDev

    #android #androiddev #spoonie #spoonies #foss #indiedev
  24. Tom Kindlon @[email protected] ·

    4/
    “When capacity is finite (& always it is, for everyone, whether we admit it or not) every small demand carries weight. What looks trivial on the surface becomes consequential underneath. Saving a small amount of energy in one place can mean having a little more available somewhere else”

    #mecfs #longcovid #spoonie #spoonies
    @pots @longcovid @mecfs

    #mecfs #longcovid #spoonie #spoonies
  25. Sp4rkR4t :yes_scotland: @[email protected] ·

    As much as I rate #ZenInternet as a ISP, talking to them about a slow connection and getting them to understand my health means I can't be unplugging things on my network and also I wouldn't be phoning them if was just a device on the network or something connected over wifi because that would be dumb is frustrating to say the least.
    I thought I had a few spoons to play with today but they are all gone now, retreating back to the bedroom, but the engineer is coming out Friday. #spoonies #mecfs

    #mecfs #spoonies #zeninternet
  26. Tom Kindlon @[email protected] ·

    News Release 9-Mar-2026

    Telemedicine remains popular, but who uses it varies widely

    eurekalert.org/news-releases/1

    “Telemedicine is no longer just a pandemic workaround—it has become a routine part of care delivery,”

    #chronicillness #Spoonie #ChronicallyIll #ChronicIllnesses #Spoonies

    #chronicillness #spoonie #chronicallyill #chronicillnesses #spoonies
  27. Tom Kindlon @[email protected] ·

    News Release 9-Mar-2026

    Telemedicine remains popular, but who uses it varies widely

    eurekalert.org/news-releases/1

    “Telemedicine is no longer just a pandemic workaround—it has become a routine part of care delivery,”

    #chronicillness #Spoonie #ChronicallyIll #ChronicIllnesses #Spoonies

    #chronicillness #spoonie #chronicallyill #chronicillnesses #spoonies
  28. Tom Kindlon @[email protected] ·

    Years of scapegoating rhetoric has led to ‘envy & resentment’ of those with blue badges, research finds

    Note: blue badge = UK name for disabled parking permit

    disabilitynewsservice.com/year

    Screenshot from AMMES March 2026 Newsletter

    #Disabled #Disability #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll
    #MEcfs #CFS #PwME
    @mecfs @longcovid
    #LongCovid #POTS @pots

    #disabled #disability #chronicillness #chroniclife #chronicpain #spoonielife
  29. Tom Kindlon @[email protected] ·

    Years of scapegoating rhetoric has led to ‘envy & resentment’ of those with blue badges, research finds

    Note: blue badge = UK name for disabled parking permit

    disabilitynewsservice.com/year

    Screenshot from AMMES March 2026 Newsletter

    #Disabled #Disability #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll
    #MEcfs #CFS #PwME
    @mecfs @longcovid
    #LongCovid #POTS @pots

    #disabled #disability #chronicillness #chroniclife #chronicpain #spoonielife
  30. Tom Kindlon @[email protected] ·

    Years of scapegoating rhetoric has led to ‘envy & resentment’ of those with blue badges, research finds

    Note: blue badge = UK name for disabled parking permit

    disabilitynewsservice.com/year

    Screenshot from AMMES March 2026 Newsletter

    #Disabled #Disability #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll
    #MEcfs #CFS #PwME
    @mecfs @longcovid
    #LongCovid #POTS @pots

    #disabled #disability #chronicillness #chroniclife #chronicpain #spoonielife
  31. Tom Kindlon @[email protected] ·

    Years of scapegoating rhetoric has led to ‘envy & resentment’ of those with blue badges, research finds

    Note: blue badge = UK name for disabled parking permit

    disabilitynewsservice.com/year

    Screenshot from AMMES March 2026 Newsletter

    #Disabled #Disability #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll
    #MEcfs #CFS #PwME
    @mecfs @longcovid
    #LongCovid #POTS @pots

    #pots #longcovid #pwme #cfs #mecfs #chronicallyill
  32. Tom Kindlon @[email protected] ·

    Years of scapegoating rhetoric has led to ‘envy & resentment’ of those with blue badges, research finds

    Note: blue badge = UK name for disabled parking permit

    disabilitynewsservice.com/year

    Screenshot from AMMES March 2026 Newsletter

    #Disabled #Disability #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll
    #MEcfs #CFS #PwME
    @mecfs @longcovid
    #LongCovid #POTS @pots

    #disabled #disability #chronicillness #chroniclife #chronicpain #spoonielife
  33. Kymberly @[email protected] ·

    “I really can’t recommend systemic sclerosis as a preventative.”

    I was explaining how SSc messes with collagen and causes fibrosis inside and she made the link with far too much wonder and glee “that’s why you have no wrinkles!”

    #SystemicSclerosis #autoimmunedisease #spoonies #ChronicIllness

    #systemicsclerosis #autoimmunedisease #spoonies #chronicillness
  34. Kymberly @[email protected] ·

    “I really can’t recommend systemic sclerosis as a preventative.”

    I was explaining how SSc messes with collagen and causes fibrosis inside and psych made the link with far too much wonder and glee “that’s why you have no wrinkles!”

    #systemicsclerosis #autoimmunedisease #spoonies #chronicillness

    #systemicsclerosis #autoimmunedisease #spoonies #chronicillness
  35. Kymberly @[email protected] ·

    “I really can’t recommend systemic sclerosis as a preventative.”

    I was explaining how SSc messes with collagen and causes fibrosis inside and psych made the link with far too much wonder and glee “that’s why you have no wrinkles!”

    #systemicsclerosis #autoimmunedisease #spoonies #chronicillness

    #systemicsclerosis #autoimmunedisease #spoonies #chronicillness
  36. Kymberly @[email protected] ·

    “I really can’t recommend systemic sclerosis as a preventative.”

    I was explaining how SSc messes with collagen and causes fibrosis inside and psych made the link with far too much wonder and glee “that’s why you have no wrinkles!”

    #systemicsclerosis #autoimmunedisease #spoonies #chronicillness

    #chronicillness #spoonies #autoimmunedisease #systemicsclerosis
  37. Kymberly @[email protected] ·

    “I really can’t recommend systemic sclerosis as a preventative.”

    I was explaining how SSc messes with collagen and causes fibrosis inside and she made the link with far too much wonder and glee “that’s why you have no wrinkles!”

    #SystemicSclerosis #autoimmunedisease #spoonies #ChronicIllness

    #systemicsclerosis #autoimmunedisease #spoonies #chronicillness
  38. Tom Kindlon @[email protected] ·

    3/
    From: "The Quiet Art of Extending a Life: Notes on Assistive Tools, Capacity, and the Dignity of Support"

    onelifelivedwell.substack.com/

    #Spoonies #ChronicallyIll #Disabled #Disability
    #Chronicillnessblogger #Chronicillnessquotes
    @mecfs @longcovid @pots

    #spoonies #chronicallyill #disabled #disability #chronicillnessblogger #chronicillnessquotes
  39. Tom Kindlon @[email protected] ·

    2/
    "assistive devices, adaptive equipment, whatever term you prefer, they’re not evidence of decline. They’re evidence of a body trying, and of a person choosing to keep living on their own terms."

    #Spoonies #ChronicallyIll #Disabled #Disability
    #Chronicillnessblogger #Chronicillnessquotes
    @mecfs @longcovid @pots

    #spoonies #chronicallyill #disabled #disability #chronicillnessblogger #chronicillnessquotes
  40. Tom Kindlon @[email protected] ·

    "Rather than holding onto the idea that the only life worth living is one without disease, consider expanding your definition of hope to include connection, purpose, & meaning under any circumstances"

    From:
    Recap: Support group: Coping with Depression & Emotional Overload
    batemanhornecenter.org/wp-cont

    #MEcfs #CFS #PwME
    @mecfs @longcovid
    #LongCovid #POTS @pots #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    #mecfs #cfs #pwme #longcovid #pots #chronicillness
  41. Tom Kindlon @[email protected] ·

    "Rather than holding onto the idea that the only life worth living is one without disease, consider expanding your definition of hope to include connection, purpose, & meaning under any circumstances"

    From:
    Recap: Support group: Coping with Depression & Emotional Overload
    batemanhornecenter.org/wp-cont

    #MEcfs #CFS #PwME
    @mecfs @longcovid
    #LongCovid #POTS @pots #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    #mecfs #cfs #pwme #longcovid #pots #chronicillness
  42. Tom Kindlon @[email protected] ·

    "Rather than holding onto the idea that the only life worth living is one without disease, consider expanding your definition of hope to include connection, purpose, & meaning under any circumstances"

    From:
    Recap: Support group: Coping with Depression & Emotional Overload
    batemanhornecenter.org/wp-cont

    #MEcfs #CFS #PwME
    @mecfs @longcovid
    #LongCovid #POTS @pots #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    #mecfs #cfs #pwme #longcovid #pots #chronicillness
  43. Tom Kindlon @[email protected] ·

    "Rather than holding onto the idea that the only life worth living is one without disease, consider expanding your definition of hope to include connection, purpose, & meaning under any circumstances"

    From:
    Recap: Support group: Coping with Depression & Emotional Overload
    batemanhornecenter.org/wp-cont

    #MEcfs #CFS #PwME
    @mecfs @longcovid
    #LongCovid #POTS @pots #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    #chronicallyill #spoonie #spoonies #chronicillnesses #hiddenillness #spoonielife
  44. Tom Kindlon @[email protected] ·

    "Rather than holding onto the idea that the only life worth living is one without disease, consider expanding your definition of hope to include connection, purpose, & meaning under any circumstances"

    From:
    Recap: Support group: Coping with Depression & Emotional Overload
    batemanhornecenter.org/wp-cont

    #MEcfs #CFS #PwME
    @mecfs @longcovid
    #LongCovid #POTS @pots #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    #mecfs #cfs #pwme #longcovid #pots #chronicillness
  45. Tom Kindlon @[email protected] ·

    🧵
    "The Quiet Art of Extending a Life: Notes on Assistive Tools, Capacity, and the Dignity of Support"

    onelifelivedwell.substack.com/

    Another thoughtful post from this OT who specialises in ME/CFS & long Covid

    She calls such devices "capacity extenders".

    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll
    #MEcfs #CFS #PwME
    @mecfs @longcovid
    #LongCovid #POTS @pots
    #Disabled
    #Disability

    1/

    #chronicillness #chroniclife #chronicpain #spoonielife #hiddenillness #invisibleillness
  46. Tom Kindlon @[email protected] ·

    🧵
    "The Quiet Art of Extending a Life: Notes on Assistive Tools, Capacity, and the Dignity of Support"

    onelifelivedwell.substack.com/

    Another thoughtful post from this OT who specialises in ME/CFS & long Covid

    She calls such devices "capacity extenders".

    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll
    #MEcfs #CFS #PwME
    @mecfs @longcovid
    #LongCovid #POTS @pots
    #Disabled
    #Disability

    1/

    #chronicillness #chroniclife #chronicpain #spoonielife #hiddenillness #invisibleillness
  47. Tom Kindlon @[email protected] ·

    🧵
    "The Quiet Art of Extending a Life: Notes on Assistive Tools, Capacity, and the Dignity of Support"

    onelifelivedwell.substack.com/

    Another thoughtful post from this OT who specialises in ME/CFS & long Covid

    She calls such devices "capacity extenders".

    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll
    #MEcfs #CFS #PwME
    @mecfs @longcovid
    #LongCovid #POTS @pots
    #Disabled
    #Disability

    1/

    #chronicillness #chroniclife #chronicpain #spoonielife #hiddenillness #invisibleillness
  48. Tom Kindlon @[email protected] ·

    🧵
    "The Quiet Art of Extending a Life: Notes on Assistive Tools, Capacity, and the Dignity of Support"

    onelifelivedwell.substack.com/

    Another thoughtful post from this OT who specialises in ME/CFS & long Covid

    She calls such devices "capacity extenders".

    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll
    #MEcfs #CFS #PwME
    @mecfs @longcovid
    #LongCovid #POTS @pots
    #Disabled
    #Disability

    1/

    #disability #disabled #pots #longcovid #pwme #cfs
  49. Tom Kindlon @[email protected] ·

    🧵
    "The Quiet Art of Extending a Life: Notes on Assistive Tools, Capacity, and the Dignity of Support"

    onelifelivedwell.substack.com/

    Another thoughtful post from this OT who specialises in ME/CFS & long Covid

    She calls such devices "capacity extenders".

    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll
    #MEcfs #CFS #PwME
    @mecfs @longcovid
    #LongCovid #POTS @pots
    #Disabled
    #Disability

    1/

    #chronicillness #chroniclife #chronicpain #spoonielife #hiddenillness #invisibleillness
  50. Tom Kindlon @[email protected] ·

    🧵
    Another thoughtful blog post from this blogger:

    "Some people feel validated by an FND diagnosis; we should treat these people with respect, understanding and compassion (even if we think they're wrong). It’s complicated!" by K. Johnstone

    mecfs.substack.com/p/some-peop

    #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    1/

    #neisvoid #chronicillness #chroniclife #chronicpain #spoonielife #hiddenillness