#chronicpain — Public Fediverse posts

Last push before bed

$100 for food needed
$125 for meds
$100 for bills

Anything helps, no movement in a week as of midnight. Im sick and having a hard time getting online to boost.

Any help is life saving , thank you

V: d_fay
Pp: peach77

#mutualaid #lgbtq #disabled #disabledmutualaid #MutualAidRequest #directaid #chronicpain #spoonie #queer @mutualaid @disability @disabledvoices @povertyandinequality @creativearts #community #boost #helpfolkslive2026 #ptsd

@shrugdealer tysm!

$325 left for September

$125 due yesterday for pharmacy + foods needed

Please help if you can! been stalled for 6.5 days. Even a few dollars helps a lot.

Thank you 💕

V: d_fay
Pp: peach77

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #queer #artist #disabledmutualaid @disabledvoices @[email protected] @[email protected] @queer @lgbtq #emergency #urgent

$125 due yesterday for pharmacy

Im disabled and cant work. I dont have support from family.

Absolutely anything helps here. No movement in almost 6 days. I appreciate every dollar!!

V: d_fay
P: peach77

THANK YOU 🥲
#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #crowdfunding #helpfolkslive2026 #lgbtq #queer #artist #disabledmutualaid @[email protected] @[email protected] @disabledvoices @povertyandinequality @lgbtq @queer @5=5

$125 due yesterday for pharmacy

Im disabled and cant work. I dont have support from family.

Absolutely anything helps here. No movement in almost 6 days. I appreciate every dollar!!

V: d_fay
P: peach77

THANK YOU 🥲
#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #crowdfunding #helpfolkslive2026 #lgbtq #queer #artist #disabledmutualaid @[email protected] @[email protected] @disabledvoices @povertyandinequality @lgbtq @queer @5=5

$125 due yesterday for pharmacy

Im disabled and cant work. I dont have support from family.

Absolutely anything helps here. No movement in almost 6 days. I appreciate every dollar!!

V: d_fay
P: peach77

THANK YOU 🥲
#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #crowdfunding #helpfolkslive2026 #lgbtq #queer #artist #disabledmutualaid @[email protected] @[email protected] @disabledvoices @povertyandinequality @lgbtq @queer @5=5

Various meds side effects and high pain. Need another nap.

#nap #babyyoda #pain #chronicpain

BOOST PLEASE!

Ah heck, I forgot about my Internet bill being due🥺 As a disabled trans guy who is often bedbound, I need my Internet to stay connected so that I can actually interact with the world and have a life, social interaction etc, but I live under the poverty line, and with the recent other health diagnoses, meds side effects and waiting for my next operation, it completely slipped my mind and now I'm very stuck. I need $65 to cover it so it doesn't get cut off. Could you help me reach that goal please friends? It's much appreciated. Thank you🥰

https://ko-fi.com/aces_funhouse

#mutualaid #hope #gratitude #fediverse #MutualAidRequest #mutualaidboost #disabled #disability #bisexual #trans #disabledlife #queer #lgbtqia #lgbt #trans #transgender #chronically_ill #chronicillness #chronicpain #brainfog #disabilitycrowdfund #disabilitymutualaid #transmutualaid @[email protected] @[email protected] @[email protected] #goodthings #community #communitymatters #CommunityAction #love #loveinaction #cats #MutualAidSavesLives #friendship #friends #loveisaverb #internet #social #disabledrights #positivity #boost

BOOST PLEASE!

Ah heck, I forgot about my Internet bill being due🥺 As a disabled trans guy who is often bedbound, I need my Internet to stay connected so that I can actually interact with the world and have a life, social interaction etc, but I live under the poverty line, and with the recent other health diagnoses, meds side effects and waiting for my next operation, it completely slipped my mind and now I'm very stuck. I need $65 to cover it so it doesn't get cut off. Could you help me reach that goal please friends? It's much appreciated. Thank you🥰

https://ko-fi.com/aces_funhouse

#mutualaid #hope #gratitude #fediverse #MutualAidRequest #mutualaidboost #disabled #disability #bisexual #trans #disabledlife #queer #lgbtqia #lgbt #trans #transgender #chronically_ill #chronicillness #chronicpain #brainfog #disabilitycrowdfund #disabilitymutualaid #transmutualaid @[email protected] @[email protected] @[email protected] #goodthings #community #communitymatters #CommunityAction #love #loveinaction #cats #MutualAidSavesLives #friendship #friends #loveisaverb #internet #social #disabledrights #positivity #boost

BOOST PLEASE!

Ah heck, I forgot about my Internet bill being due🥺 As a disabled trans guy who is often bedbound, I need my Internet to stay connected so that I can actually interact with the world and have a life, social interaction etc, but I live under the poverty line, and with the recent other health diagnoses, meds side effects and waiting for my next operation, it completely slipped my mind and now I'm very stuck. I need $65 to cover it so it doesn't get cut off. Could you help me reach that goal please friends? It's much appreciated. Thank you🥰

https://ko-fi.com/aces_funhouse

#mutualaid #hope #gratitude #fediverse #MutualAidRequest #mutualaidboost #disabled #disability #bisexual #trans #disabledlife #queer #lgbtqia #lgbt #trans #transgender #chronically_ill #chronicillness #chronicpain #brainfog #disabilitycrowdfund #disabilitymutualaid #transmutualaid @[email protected] @[email protected] @[email protected] #goodthings #community #communitymatters #CommunityAction #love #loveinaction #cats #MutualAidSavesLives #friendship #friends #loveisaverb #internet #social #disabledrights #positivity #boost

BOOST PLEASE!

Ah heck, I forgot about my Internet bill being due🥺 As a disabled trans guy who is often bedbound, I need my Internet to stay connected so that I can actually interact with the world and have a life, social interaction etc, but I live under the poverty line, and with the recent other health diagnoses, meds side effects and waiting for my next operation, it completely slipped my mind and now I'm very stuck. I need $65 to cover it so it doesn't get cut off. Could you help me reach that goal please friends? It's much appreciated. Thank you🥰

https://ko-fi.com/aces_funhouse

#mutualaid #hope #gratitude #fediverse #MutualAidRequest #mutualaidboost #disabled #disability #bisexual #trans #disabledlife #queer #lgbtqia #lgbt #trans #transgender #chronically_ill #chronicillness #chronicpain #brainfog #disabilitycrowdfund #disabilitymutualaid #transmutualaid @[email protected] @[email protected] @[email protected] #goodthings #community #communitymatters #CommunityAction #love #loveinaction #cats #MutualAidSavesLives #friendship #friends #loveisaverb #internet #social #disabledrights #positivity #boost

BOOST PLEASE!

Ah heck, I forgot about my Internet bill being due🥺 As a disabled trans guy who is often bedbound, I need my Internet to stay connected so that I can actually interact with the world and have a life, social interaction etc, but I live under the poverty line, and with the recent other health diagnoses, meds side effects and waiting for my next operation, it completely slipped my mind and now I'm very stuck. I need $65 to cover it so it doesn't get cut off. Could you help me reach that goal please friends? It's much appreciated. Thank you🥰

https://ko-fi.com/aces_funhouse

#mutualaid #hope #gratitude #fediverse #MutualAidRequest #mutualaidboost #disabled #disability #bisexual #trans #disabledlife #queer #lgbtqia #lgbt #trans #transgender #chronically_ill #chronicillness #chronicpain #brainfog #disabilitycrowdfund #disabilitymutualaid #transmutualaid @[email protected] @[email protected] @[email protected] #goodthings #community #communitymatters #CommunityAction #love #loveinaction #cats #MutualAidSavesLives #friendship #friends #loveisaverb #internet #social #disabledrights #positivity #boost

RE: https://mastodon.social/@Toadlyturtle/117237086564366993

Meeting this STAT means that Sabi and her mom might get to have some food tonight.

Who's got it?

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://mastodon.social/@Toadlyturtle/117237086564366993

Meeting this STAT means that Sabi and her mom might get to have some food tonight.

Who's got it?

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://mastodon.social/@Toadlyturtle/117237086564366993

Meeting this STAT means that Sabi and her mom might get to have some food tonight.

Who's got it?

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://mastodon.social/@Toadlyturtle/117237086564366993

Meeting this STAT means that Sabi and her mom might get to have some food tonight.

Who's got it?

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://mastodon.social/@Toadlyturtle/117237086564366993

Meeting this STAT means that Sabi and her mom might get to have some food tonight.

Who's got it?

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Hey y'all! Can you uplift for Lucy, maybe chip in? Every dime helps! She's totally out of insulin so it's #urgent!

#mutualaid #directaid #disabled #artist #poverty @[email protected] @[email protected] @disabledvoices @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spooni

Hey y'all! Can you uplift for Lucy, maybe chip in? Every dime helps! She's totally out of insulin so it's #urgent!

#mutualaid #directaid #disabled #artist #poverty @[email protected] @[email protected] @disabledvoices @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spooni

Hey y'all! Can you uplift for Lucy, maybe chip in? Every dime helps! She's totally out of insulin so it's #urgent!

#mutualaid #directaid #disabled #artist #poverty @[email protected] @[email protected] @disabledvoices @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spooni

Hey y'all! Can you uplift for Lucy, maybe chip in? Every dime helps! She's totally out of insulin so it's #urgent!

#mutualaid #directaid #disabled #artist #poverty @[email protected] @[email protected] @disabledvoices @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spooni

Hey y'all! Can you uplift for Lucy, maybe chip in? Every dime helps! She's totally out of insulin so it's #urgent!

#mutualaid #directaid #disabled #artist #poverty @[email protected] @[email protected] @disabledvoices @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spooni

I have an appointment this afternoon with a doctor in the local pain clinic. Mostly what I want is to understand whether I can stop taking the two medications that I'm currently taking and perhaps to learn some new strategies and skills to deal with pain.

Last night I made a list of things I want to talk about because often I go blank when I walk in to a doctors office. As I made my list and then organized it, I realize that going blank is my version of dissociating. Not only that, just making the list caused me to dissociate and I had to tug myself back into my body.

So today should be fun. I hope it's useful and that he's not a dick.
#ChronicPain #ChronicIllness #WhiteCoatSyndrome

@QuyetPawz @[email protected] Hey Pawz and everyone!

Raising to move to a safer home!!

Deets and tally: https://chuffed.org/project/blessks

vnm: skillingmesoftly
pypl: kshernandezinc

OP: https://me.dm/@kshernandez/117227066550867983

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

@QuyetPawz @[email protected] Hey Pawz and everyone!

Raising to move to a safer home!!

Deets and tally: https://chuffed.org/project/blessks

vnm: skillingmesoftly
pypl: kshernandezinc

OP: https://me.dm/@kshernandez/117227066550867983

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

@QuyetPawz @[email protected] Hey Pawz and everyone!

Raising to move to a safer home!!

Deets and tally: https://chuffed.org/project/blessks

vnm: skillingmesoftly
pypl: kshernandezinc

OP: https://me.dm/@kshernandez/117227066550867983

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

@QuyetPawz @[email protected] Hey Pawz and everyone!

Raising to move to a safer home!!

Deets and tally: https://chuffed.org/project/blessks

vnm: skillingmesoftly
pypl: kshernandezinc

OP: https://me.dm/@kshernandez/117227066550867983

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

@QuyetPawz @[email protected] Hey Pawz and everyone!

Raising to move to a safer home!!

Deets and tally: https://chuffed.org/project/blessks

vnm: skillingmesoftly
pypl: kshernandezinc

OP: https://me.dm/@kshernandez/117227066550867983

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

@[email protected]

Hi! TYSM

I'm raising to move to a safer home.

Deets and tally: https://chuffed.org/project/blessks

OP: https://me.dm/@kshernandez/117227066550867983

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness #catmom @spoonie @queer

@mutualaidspace @[email protected] @[email protected] @[email protected] @disability @QuyetPawz @ellespeaks @edendestroyer

@[email protected]

Hi! TYSM

I'm raising to move to a safer home.

Deets and tally: https://chuffed.org/project/blessks

OP: https://me.dm/@kshernandez/117227066550867983

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness #catmom @spoonie @queer

@mutualaidspace @[email protected] @[email protected] @[email protected] @disability @QuyetPawz @ellespeaks @edendestroyer

@[email protected]

Hi! TYSM

I'm raising to move to a safer home.

Deets and tally: https://chuffed.org/project/blessks

OP: https://me.dm/@kshernandez/117227066550867983

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness #catmom @spoonie @queer

@mutualaidspace @[email protected] @[email protected] @[email protected] @disability @QuyetPawz @ellespeaks @edendestroyer

@[email protected]

Hi! TYSM

I'm raising to move to a safer home.

Deets and tally: https://chuffed.org/project/blessks

OP: https://me.dm/@kshernandez/117227066550867983

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness #catmom @spoonie @queer

@mutualaidspace @[email protected] @[email protected] @[email protected] @disability @QuyetPawz @ellespeaks @edendestroyer

@shrugdealer Hi! TYSM!!

Raising to move to safe housing!

Deets and tally: https://chuffed.org/project/blessks

OP: https://me.dm/@kshernandez/117227066550867983

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

@shrugdealer Hi! TYSM!!

Raising to move to safe housing!

Deets and tally: https://chuffed.org/project/blessks

OP: https://me.dm/@kshernandez/117227066550867983

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

@shrugdealer Hi! TYSM!!

Raising to move to safe housing!

Deets and tally: https://chuffed.org/project/blessks

OP: https://me.dm/@kshernandez/117227066550867983

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

@shrugdealer Hi! TYSM!!

Raising to move to safe housing!

Deets and tally: https://chuffed.org/project/blessks

OP: https://me.dm/@kshernandez/117227066550867983

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Still out of spoons, fedi friends. Back when I'm able.

#disabled #disability #chronicillness #chronicpain #fatigue

Still out of spoons, fedi friends. Back when I'm able.

#disabled #disability #chronicillness #chronicpain #fatigue

Still out of spoons, fedi friends. Back when I'm able.

#disabled #disability #chronicillness #chronicpain #fatigue

Still out of spoons, fedi friends. Back when I'm able.

#disabled #disability #chronicillness #chronicpain #fatigue

Still out of spoons, fedi friends. Back when I'm able.

#disabled #disability #chronicillness #chronicpain #fatigue

Your little reminder that you can be a positive and optimistic person, and still have days where you're frustrated and angry about your medical conditions and disability. It's valid to have low days. This stuff is hard work.

#disability #disabled #chronicillness #chronically_ill #fibromyalgia #chronicpain #kidneys #kidneysurgery #hearthealth #ptsd #cptsd #bpd #illness #migraines

Stumbling Block

It seems I have always been stumbling, tripping over the unintended in a fog of wandering wonder.

The mist has been ever around me, my cloud by day. I am enveloped by mystery.

You do indeed love to surprise me, O God;

two girls find shiny stones in a fountain and their joy chases away the despair at not finding a loved one,

the hospitality of friends lightens the weight upon a heavy chest from a returning to what was and the traveler can breathe again into what will be,

a mother’s words and the night breeze dries a daughter’s tears and she can smile at the deep thrum of a bullfrog,

lovers lie for a moment in the morning and the frustrations of yesterday fade into the quiet beginnings of another day.

It is time then.

I rise up into the bone crackling morning, my body protesting, my spirit already stretching out along the places I will see.

Inside, I find I am ready for more stumbling.

July 29, 2022

Somatic symptom disorder: Why your doctor doesn't believe you're really sick

https://mecfs.substack.com/p/somatic-symptom-disorder-why-your

Screenshot from July 2026 AMMES newsletter

#Psychologicalisation #chronicillness #ChronicPain #hiddenillness #invisibleillness

Long COVID patients are told symptoms are in their head – here’s how to change the narrative
#Health #LongCOVID #MECFS #ChronicIllness #COVID19 #PostCOVID #LongHaulers #BrainHealth #NervousSystem #PatientCare #InvisibleIllness #ChronicPain #Rehabilitation
https://the-14.com/long-covid-patients-are-told-symptoms-are-in-their-head-heres-how-to-change-the-narrative/

🌩️ Flare Report: Pain

Pain isn’t always visible.

It can burn, ache, throb, stab, or feel like your entire body weighs a thousand pounds. Just because others can’t see it doesn’t mean it isn’t real.

💜 If you’re hurting today, remember: You don’t have to earn your rest. Pain is reason enough.

❓What’s ONE thing you wish healthy people understood about chronic pain?

#ChronicPain #ChronicIllness #Spoonie #InvisibleIllness #FlareReport #PainAwareness #Disability #spoonielife

One of the hardest parts of chronic illness isn’t just the fatigue.

It’s grieving the life you thought you’d have.

Today’s Funny Friday Flare Report features Chaos, who reminds us:

🐱 “Apparently surviving counts as productivity today.”

And on some days… that’s more than enough. 💜

What has chronic illness made you grieve that people don’t usually think about?

#ChronicIllness #Spoonie #InvisibleIllness #Fatigue #Grief #ChronicPain #Disability #funnyfriday

📖 Spoonie Word of the Day

Flarecation (noun): A vacation you never wanted but your body booked anyway. 😅

No beach. No suitcase. Just fatigue, pain, brain fog, canceled plans, and hoping tomorrow is a little kinder.

💜 What’s the symptom that usually sends you on a flarecation?

#Spoonie #ChronicIllness #ChronicPain #InvisibleIllness #Flarecation #BrainFog #Fatigue #MedicalHumor #LivinInAFlare

🌩️ Today’s Flare Report: Fatigue

Not all fatigue is solved by sleep.

Sometimes it’s waking up exhausted.
Sometimes it’s choosing between a shower and making dinner.
Sometimes surviving the day is the accomplishment.

💜 Pain: Moderate
🌬️ Energy: Low
🧠 Brain Fog: High
🥄 Spoon Forecast: Limited

If today’s forecast matches yours, be gentle with yourself.

How’s your forecast today? 💜

#ChronicIllness #ChronicPain #Fatigue #BrainFog #Spoonie #InvisibleIllness #Disability #ChronicFatigue

💔 Losing your career because of chronic illness is a grief many people don’t talk about.

It’s not just the job.

It’s the independence, purpose, routine, and future you imagined.

If you’ve had to leave a career because of your health, please know you’re not alone.

Your worth is not defined by a job title. You are still valuable, capable, and worthy. 💜

What career or job do you miss the most?

#ChronicIllness #ChronicPain #Spoonie #InvisibleIllness #Disability #ChronicIllnessCommunity l

🏅 Former Athlete. Current Professional Napper. 😴

Chronic illness has a funny way of changing your goals.

I used to celebrate being busy. Now I celebrate listening to my body before it forces me to slow down.

And honestly? Some naps deserve Olympic recognition. 😂💜

What’s your chronic illness superpower?

#ChronicIllness #ChronicPain #Spoonie #InvisibleIllness #disabilityhumor