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#chronicpain — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #chronicpain, aggregated by home.social.

  1. I have to believe that good things happen and that they can happen to me.

    $2162 to go and I need it right away!

    Please help all you can.

    chuffed.org/project/blessks
    v: skillingmesoftly
    p: kshernandezinc

    #mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

  2. I have to believe that good things happen and that they can happen to me.

    $2162 to go and I need it right away!

    Please help all you can.

    chuffed.org/project/blessks
    v: skillingmesoftly
    p: kshernandezinc

    #mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

  3. I have to believe that good things happen and that they can happen to me.

    $2162 to go and I need it right away!

    Please help all you can.

    chuffed.org/project/blessks
    v: skillingmesoftly
    p: kshernandezinc

    #mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

  4. I have to believe that good things happen and that they can happen to me.

    $2162 to go and I need it right away!

    Please help all you can.

    chuffed.org/project/blessks
    v: skillingmesoftly
    p: kshernandezinc

    #mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

  5. I have to believe that good things happen and that they can happen to me.

    $2162 to go and I need it right away!

    Please help all you can.

    chuffed.org/project/blessks
    v: skillingmesoftly
    p: kshernandezinc

    #mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

  6. How To Design #Inclusive #CommunityGardens For All Abilities

    by Kristian Angelov, Last Updated June 10, 2026

    "An inclusive community garden works when people can arrive, move through the site, reach the soil, use water, rest, understand the rules, join workdays, and harvest with dignity. A garden can have wide paths and still exclude people if the gate is hard to open, the hose is heavy, all beds are low to the ground, signs use tiny print, or meetings happen at times that conflict with caregiving and shift work.

    "Designing for all abilities means treating #accessibility as a whole garden system. Paths, beds, tool sheds, water points, seating, shade, compost areas, harvest tables, volunteer schedules, and decision processes all shape who can participate. Welcoming gardens reduce unnecessary effort so more people can stay involved in the activity.

    "A shared growing space should give #wheelchair users, older adults, children, people with #LowVision, #NeurodivergentGardeners, people with #ChronicPain or #fatigue, new gardeners, caregivers, and neighbors with different languages or schedules a usable way to belong.

    Key Takeaways

    - Inclusive community garden design starts with the full route from street, transit, parking, or sidewalk to every shared task.
    - Paths need firm surfaces, clear width, turning space, drainage, edge cues, and maintenance after storms.
    - #RaisedBeds, #TabletopBeds, containers, vertical planters, and ground plots should work together so gardeners can choose the posture that fits them.
    - Water, tools, compost, signs, seating, shade, and harvest areas need the same access planning as growing beds.
    - Sensory and cognitive access matter: clear routes, predictable rules, quiet zones, tactile cues, pictograms, and low-overload work options expand participation.
    - Community process is part of the design because schedules, plot rules, language access, and conflict systems decide who stays involved."

    Learn more:
    gardeninsider.org/gardening/st

    #SolarPunkSunday #CommunityGardening #AccessibleGardens #Inclusivity #Accessibility #BuildingCommunity
    #SensoryPlants #SpendTimeInNature

  7. CW: Suicide, mental illness

    “Mother’s Day”

    Today my dad will call my mom
    And thank her for my existence
    I do not thank her for it
    But I can’t say that aloud
    I am not suicidal!
    But I am always terrified or unhappy
    Maybe not always
    How often do you feel hopeless, like you would be better off dead?
    Most days, some days, or not at all?
    I roll the question around in my brain
    Some days.
    I don’t want to die.
    Actually I’m terrified of death
    I want to live so badly
    I want to experience everything
    Fear and chronic symptoms
    That’s what holds me back
    Today my dad will call my mom
    To thank her for my existence
    Today I will take several pills
    They keep me here
    But they don’t fix me.


    #Ramblings #poem #spoonie #disabled #anxiety-disorder #depression #chronic-pain
  8. CW: Suicide, mental illness

    “Mother’s Day”

    Today my dad will call my mom
    And thank her for my existence
    I do not thank her for it
    But I can’t say that aloud
    I am not suicidal!
    But I am always terrified or unhappy
    Maybe not always
    How often do you feel hopeless, like you would be better off dead?
    Most days, some days, or not at all?
    I roll the question around in my brain
    Some days.
    I don’t want to die.
    Actually I’m terrified of death
    I want to live so badly
    I want to experience everything
    Fear and chronic symptoms
    That’s what holds me back
    Today my dad will call my mom
    To thank her for my existence
    Today I will take several pills
    They keep me here
    But they don’t fix me.


    #Ramblings #poem #spoonie #disabled #anxiety-disorder #depression #chronic-pain
  9. CW: Suicide, mental illness

    “Mother’s Day”

    Today my dad will call my mom
    And thank her for my existence
    I do not thank her for it
    But I can’t say that aloud
    I am not suicidal!
    But I am always terrified or unhappy
    Maybe not always
    How often do you feel hopeless, like you would be better off dead?
    Most days, some days, or not at all?
    I roll the question around in my brain
    Some days.
    I don’t want to die.
    Actually I’m terrified of death
    I want to live so badly
    I want to experience everything
    Fear and chronic symptoms
    That’s what holds me back
    Today my dad will call my mom
    To thank her for my existence
    Today I will take several pills
    They keep me here
    But they don’t fix me.


    #Ramblings #poem #spoonie #disabled #anxiety-disorder #depression #chronic-pain
  10. The science of unlearning pain: A new German approach to chronic suffering.

    Chronic pain affects millions and often resists medical treatment.

    German researchers are exploring how the brain’s pain matrix can be retrained, offering hope to those trapped in cycles of constant pain.

    mediafaro.org/article/20251124

    #ChronicPain #Health #Healthcare #Brain #Painkillers #Biology #Psychology #Science

  11. Worst part about having once #LowBackPain:

    It always looms around you, to hit you back when you worst expect it.

    This time, same place, but the other side. Kudos to the fucking restaurant bathroom with their inclined seat.

    #Health #LBP #LowBack #Back #Sitting #Sit #BackPain #Pain #TreatmentOptions #ChronicPain #BackPainRelief #Medical #Doctor #MedicalSchience #Spine #Traumatologist #Traumatology

  12. Feeling very poorly (quelle surprise!) so I tried for a nap.

    The boys joined me, making the day's heat even worse.

    I left them to watch birds in the snow. It worked… for a bit.

    I had a cold shower - all three cats now camped outside the bathroom door.

    No matter what happens, at least they love me.

    #Cats #CatsOfMastodon #ChronicPain #Disabled #Exhausted #IndoorCats #ActuallyAutistic

  13. Cats in crocheted hats!!! For science.

    L’université de Montréal researchers find a cute, more ethical and effective way to find out what’s going on in cats brains with EEGs.

    “In a world first, researchers devised a way to non-invasively scan the brains of awake cats — instead of drilling electrodes into their skulls.”

    Woke up to this cheering story about a new smart and kind way to study cats’ experiences of chronic pain and alternative ways to soothe it.

    ‘ “We knew that crochet hats only existed to be cute and we wanted to adapt them to our scientific purpose,” Delsart told the Star. “A successful bet!”

    Another student and ardent crocheter in their lab got to work knitting the hats, into which were embedded ten gold-plated EEG electrodes.’

    thestar.com/news/canada/cat-sc

    #Cats #Mastocats #Caturday #Crafting #Crochet #Yarn #YarnCrafts #ChronicPain #ResearchOnAnimals #VeterinaryCare #Veterinary #Arthritis #LUniversitéDeMontréal #Québec #Canada

  14. 👋🏽 #GoodMorning from my home #studio! ✒️🎨👗🏙️💙🧃☕️🕯️☺️

    Up last night with #ChronicConditions symptoms but when #sunlight arrived this #morning I felt inspired 😍🙏🏽😍

    Symptoms gone? Heck no! 😝

    Yet #inspiration goes a long, LONG way 🙌🏽

    Sharing the good vibes! 🥳

    #art #coffee #PlantBased #photo #photography #Glasgow #Scotland #HomeOffice #wellbeing #wellness #ChronicIllness #disability #ChronicPain #Migraine #POTS #MECFS #pwME #Dysautonomia #health #MentalHealth
    @chronicillness @mecfs

  15. 🙌🏽🥳 Ahhh, the elation of simply not feeling *absolutely terrible*!

    I dedicate this special moment (passing as it might be 😝) to folks out there also with #ChronicConditions (1 or 10+ of them 😂) 🤙🏽

    You rock, *even if / when you don't feel like it*! 🤘🏽

    #wellbeing #wellness #ChronicIllness #disability #disabilities #ChronicPain #Migraine #POTS #MECFS #CFS #MyalgicEncephalomyelitis #EhlersDanlosSyndrome #Hypermobility #Dysautonomia #health #MentalHealth
    @chronicillness @mecfs

  16. CW: CW: No GP will help / ME, disabled despair

    #Boost please

    GPs in clinics are waiting for me to:

    1. Go into #agedcare (I’m not aged.)
    2. To see a #GP (Who works in their clinic.)
    3. Because I don’t fit their business model. (They won’t #homevisit or #Telehealth me even if I see them once.)

    Yes they literally said this.

    (So I am too sick to help now, but as a younger person in aged care I wouldn’t be?….???!!! What???)

    Someone help me! 😭

    @mecfs
    @chronicpain @chronicillness
    #PwME #MEAwarenesshour #MECFS #ChronicPain
    #ChronicIllness #PwLC
    #Healthcare #MedMastodon
    #Australia #Medicine #PatientRights #doctor

  17. #Boost please

    GPs in clinics are waiting for me to:

    1. Go into #agedcare (I’m not aged.)
    2. To see a #GP (Who works in their clinic.)
    3. Because I don’t fit their business model. (They won’t #homevisit or #Telehealth me even if I see them once.)

    Yes they literally said this.

    Someone help me! 😭

    @mecfs
    @chronicpain @chronicillness
    @disabilityjustice
    #PwME #MEAwarenesshour #MECFS #ChronicPain
    #ChronicIllness #PwLC
    #Healthcare #MedMastodon
    #Australia #Disability #PatientRights #Accessibility

  18. Good morning. I woke up about 5:30 am after getting just over six hours sleep. Another night of interrupted sleep.

    Between "She Who Must Be Obeyed" (bladder) and lower leg cramps from yesterday's outing, it was a fun night. For some definitions of fun.

    My neck is hurting. I guess I slept wrong. My lower intestines are cramping. And my nose is stuffy.

    OTC Meds are on board.

    Have a blessed day.

    #spoonie #ChronicPain #fibro #fibromyalgia #StatusReport

  19. question: does anyone know if any neurologists or headache experts would be interested in my notes and observations surrounding my migraines? like in an scientific/academic sense?

    one of my scientist friends who i shared them with said i should consider reaching out to somebody since theyre so in-depth and ive been documenting my migraines for years. but idk how to do that or if there would actually be any interest lol

    boosts appreciated! 🙏
    #askFedi #askFediverse #askMastodon #neurology #MigraineChat #migraine #migraines #chronicMigraine #chronicMigraines #chronicPain #chronicIllness

  20. Wide awake tonight because I slept until 3:00 PM yesterday and spent a lot of the rest of the day in bed. Just doing stuff on my computer. Had a rough day with #headaches, sound sensitivity, and whooshing in ears from #IIH (high pressure in skull), neck pain, and #fatigue. Lol actually wanted to go back to sleep but headache meds didn't knock me out like they usually do. Anyone else awake? #NEISvoid #ChronicIllness #ChronicPain

  21. A few updates, so I'll post a few times instead of trying to cram them into 500 characters. Had to stop wearing the soft neck collar. It was somehow making the high pressure in my skull from #IIH worse, so my #headaches and the whooshing I hear in my ears sometimes got worse. I was in a lot of pain for a couple of days until my mom figured out what was wrong and told me to take the collar off. Luckily, I have my first #physicaltherapy appointment on Monday. #NEISvoid #ChronicIllness #ChronicPain