#chronicpain — Public Fediverse posts

Errands run, dishes done, and bed made with fresh sheets so I can come home to a comfy bed after hospital. Having a little rest, and then we tackle some tidying. I have to fast from midnight, so I'm eating as much as I want until then, and have upped my water intake over the past day so that I give myself the best chance of staying hydrated, and not getting a migraine before surgery(or after, though I'm prone to them after anaesthetic). Resting in between tasks because pain is high, but feeling like I'm on track to being ready😁

#preparing #optimism #hope #focus #disability #chronicillness #chronicpain #hearthealth #kidneys #ptsd #fibromyalgia

Errands run, dishes done, and bed made with fresh sheets so I can come home to a comfy bed after hospital. Having a little rest, and then we tackle some tidying. I have to fast from midnight, so I'm eating as much as I want until then, and have upped my water intake over the past day so that I give myself the best chance of staying hydrated, and not getting a migraine before surgery(or after, though I'm prone to them after anaesthetic). Resting in between tasks because pain is high, but feeling like I'm on track to being ready😁

#preparing #optimism #hope #focus #disability #chronicillness #chronicpain #hearthealth #kidneys #ptsd #fibromyalgia

Errands run, dishes done, and bed made with fresh sheets so I can come home to a comfy bed after hospital. Having a little rest, and then we tackle some tidying. I have to fast from midnight, so I'm eating as much as I want until then, and have upped my water intake over the past day so that I give myself the best chance of staying hydrated, and not getting a migraine before surgery(or after, though I'm prone to them after anaesthetic). Resting in between tasks because pain is high, but feeling like I'm on track to being ready😁

#preparing #optimism #hope #focus #disability #chronicillness #chronicpain #hearthealth #kidneys #ptsd #fibromyalgia

Errands run, dishes done, and bed made with fresh sheets so I can come home to a comfy bed after hospital. Having a little rest, and then we tackle some tidying. I have to fast from midnight, so I'm eating as much as I want until then, and have upped my water intake over the past day so that I give myself the best chance of staying hydrated, and not getting a migraine before surgery(or after, though I'm prone to them after anaesthetic). Resting in between tasks because pain is high, but feeling like I'm on track to being ready😁

#preparing #optimism #hope #focus #disability #chronicillness #chronicpain #hearthealth #kidneys #ptsd #fibromyalgia

Errands run, dishes done, and bed made with fresh sheets so I can come home to a comfy bed after hospital. Having a little rest, and then we tackle some tidying. I have to fast from midnight, so I'm eating as much as I want until then, and have upped my water intake over the past day so that I give myself the best chance of staying hydrated, and not getting a migraine before surgery(or after, though I'm prone to them after anaesthetic). Resting in between tasks because pain is high, but feeling like I'm on track to being ready😁

#preparing #optimism #hope #focus #disability #chronicillness #chronicpain #hearthealth #kidneys #ptsd #fibromyalgia

Kept Up

Yesterday with all the walking I had to do with this sore toe I was able to keep up with everyone and didn’t have to slow down once. My daughter picked me up around 9:30 am and we met up with my other daughter, son-in-law and one of my grandsons to watch my other grandson’s basketball game. My grandson had a great game with two steals and a block. His team won.
After the game my both of my daughters and one of my grandsons and I headed over to Target so both my daughters could shop for the birthday party. I pushed the cart and leaned on it through the store. We stopped back at my youngest daughter’s house to pick up my other grandson and we went to the birthday party. After the birthday party we dropped off my daughter and two grandsons and had to fly back over to my other daughter’s house to pick up both of my granddaughter’s and get to the candy store before they closed at 5 pm. On the way to pick up my granddaughters I took a 50 mg cube of THC gummy. My toe was sore and I wanted to keep up through the candy store. We made it to the candy store with 30 minutes to spare before closing. That store was an experience. Rows and rows of every type of candy ever made. I’m happy to report I kept up with everyone all day and this sore toe and bad back didn’t slow me down. I got home around 5:30 pm and took 100 mg of the Brix THC gummies. I took another 100 mg around 7:45 pm and I was set for the evening. I’m not going to lie, I was beat and more than ready to chill in my recliner watching mindless television until I stretched and went to bed. Overall I’d say it was a fun filled busy day spent with my children and grandchildren. The birthday party was nice. It was fun watching the kids in the bounce house and the birthday girl loved all her presents. She looked absolutely adorable in her pretty dress and black little shoes. They had a life sized pinata of Minnie Mouse that all the older kids had fun trying to break. That thing stood at least 4 feet tall. I guess they went down to Mexico and bought it for $100.00 where it would have cost over triple that here. I guess I should let you know my great niece and her boyfriend live about two hours from the border and had the birthday party up here in the valley because they live two hours away from us so all of us didn’t have to drive two hours each way on a Saturday afternoon. We are about 4 to five hours from the border here in Phoenix. They live halfway. After all the running and birthday party I got home and still did laundry so I wouldn’t have to do it today. I want to rest. We are supposed to go over to my niece’s house this morning so my daughter and husband can try to finish up the tile in the kitchen. We can’t stay over there too long as my husband goes to bed earlier on Sunday’s for work. Once we get home I plan on parking my butt in front of the television for an afternoon of football. I imagine the early game will be on at my niece’s house as they are big football fans too. I’ve got to check the local dispensaries to see if any of them have a good deal on Rick Simpson Oil. I am completely out and only have the Brix THC gummies left so it is time to stock up. Tomorrow I’m going dress shopping with my daughter and two granddaughters. I sure hope I find something, we are coming down to the wire with two weeks left before the Quencenara. I’ve still got to buy my husband something to wear, he won’t dress up. The most I’ll get him in is some dress shorts and a polo shirt. I’m going to wear a full length dress. With this toe I’ll hide my crocs under the dress. I plan on having my Brix THC gummies with me for the day of shopping so I can keep up and not slow us down. So far I’ll give the Brix THC gummies credit, they have not let me down when it comes to breakthrough aches that could slow me down. With the rain on its way I’m still not doing too darn bad. My ankle is at a mild ache so I’ll count that as a win for the day. All because I chose a plant over a pill. Thank you marijuana!

Kept Up

Yesterday with all the walking I had to do with this sore toe I was able to keep up with everyone and didn’t have to slow down once. My daughter picked me up around 9:30 am and we met up with my other daughter, son-in-law and one of my grandsons to watch my other grandson’s basketball game. My grandson had a great game with two steals and a block. His team won.
After the game my both of my daughters and one of my grandsons and I headed over to Target so both my daughters could shop for the birthday party. I pushed the cart and leaned on it through the store. We stopped back at my youngest daughter’s house to pick up my other grandson and we went to the birthday party. After the birthday party we dropped off my daughter and two grandsons and had to fly back over to my other daughter’s house to pick up both of my granddaughter’s and get to the candy store before they closed at 5 pm. On the way to pick up my granddaughters I took a 50 mg cube of THC gummy. My toe was sore and I wanted to keep up through the candy store. We made it to the candy store with 30 minutes to spare before closing. That store was an experience. Rows and rows of every type of candy ever made. I’m happy to report I kept up with everyone all day and this sore toe and bad back didn’t slow me down. I got home around 5:30 pm and took 100 mg of the Brix THC gummies. I took another 100 mg around 7:45 pm and I was set for the evening. I’m not going to lie, I was beat and more than ready to chill in my recliner watching mindless television until I stretched and went to bed. Overall I’d say it was a fun filled busy day spent with my children and grandchildren. The birthday party was nice. It was fun watching the kids in the bounce house and the birthday girl loved all her presents. She looked absolutely adorable in her pretty dress and black little shoes. They had a life sized pinata of Minnie Mouse that all the older kids had fun trying to break. That thing stood at least 4 feet tall. I guess they went down to Mexico and bought it for $100.00 where it would have cost over triple that here. I guess I should let you know my great niece and her boyfriend live about two hours from the border and had the birthday party up here in the valley because they live two hours away from us so all of us didn’t have to drive two hours each way on a Saturday afternoon. We are about 4 to five hours from the border here in Phoenix. They live halfway. After all the running and birthday party I got home and still did laundry so I wouldn’t have to do it today. I want to rest. We are supposed to go over to my niece’s house this morning so my daughter and husband can try to finish up the tile in the kitchen. We can’t stay over there too long as my husband goes to bed earlier on Sunday’s for work. Once we get home I plan on parking my butt in front of the television for an afternoon of football. I imagine the early game will be on at my niece’s house as they are big football fans too. I’ve got to check the local dispensaries to see if any of them have a good deal on Rick Simpson Oil. I am completely out and only have the Brix THC gummies left so it is time to stock up. Tomorrow I’m going dress shopping with my daughter and two granddaughters. I sure hope I find something, we are coming down to the wire with two weeks left before the Quencenara. I’ve still got to buy my husband something to wear, he won’t dress up. The most I’ll get him in is some dress shorts and a polo shirt. I’m going to wear a full length dress. With this toe I’ll hide my crocs under the dress. I plan on having my Brix THC gummies with me for the day of shopping so I can keep up and not slow us down. So far I’ll give the Brix THC gummies credit, they have not let me down when it comes to breakthrough aches that could slow me down. With the rain on its way I’m still not doing too darn bad. My ankle is at a mild ache so I’ll count that as a win for the day. All because I chose a plant over a pill. Thank you marijuana!

Kept Up

Yesterday with all the walking I had to do with this sore toe I was able to keep up with everyone and didn’t have to slow down once. My daughter picked me up around 9:30 am and we met up with my other daughter, son-in-law and one of my grandsons to watch my other grandson’s basketball game. My grandson had a great game with two steals and a block. His team won.
After the game my both of my daughters and one of my grandsons and I headed over to Target so both my daughters could shop for the birthday party. I pushed the cart and leaned on it through the store. We stopped back at my youngest daughter’s house to pick up my other grandson and we went to the birthday party. After the birthday party we dropped off my daughter and two grandsons and had to fly back over to my other daughter’s house to pick up both of my granddaughter’s and get to the candy store before they closed at 5 pm. On the way to pick up my granddaughters I took a 50 mg cube of THC gummy. My toe was sore and I wanted to keep up through the candy store. We made it to the candy store with 30 minutes to spare before closing. That store was an experience. Rows and rows of every type of candy ever made. I’m happy to report I kept up with everyone all day and this sore toe and bad back didn’t slow me down. I got home around 5:30 pm and took 100 mg of the Brix THC gummies. I took another 100 mg around 7:45 pm and I was set for the evening. I’m not going to lie, I was beat and more than ready to chill in my recliner watching mindless television until I stretched and went to bed. Overall I’d say it was a fun filled busy day spent with my children and grandchildren. The birthday party was nice. It was fun watching the kids in the bounce house and the birthday girl loved all her presents. She looked absolutely adorable in her pretty dress and black little shoes. They had a life sized pinata of Minnie Mouse that all the older kids had fun trying to break. That thing stood at least 4 feet tall. I guess they went down to Mexico and bought it for $100.00 where it would have cost over triple that here. I guess I should let you know my great niece and her boyfriend live about two hours from the border and had the birthday party up here in the valley because they live two hours away from us so all of us didn’t have to drive two hours each way on a Saturday afternoon. We are about 4 to five hours from the border here in Phoenix. They live halfway. After all the running and birthday party I got home and still did laundry so I wouldn’t have to do it today. I want to rest. We are supposed to go over to my niece’s house this morning so my daughter and husband can try to finish up the tile in the kitchen. We can’t stay over there too long as my husband goes to bed earlier on Sunday’s for work. Once we get home I plan on parking my butt in front of the television for an afternoon of football. I imagine the early game will be on at my niece’s house as they are big football fans too. I’ve got to check the local dispensaries to see if any of them have a good deal on Rick Simpson Oil. I am completely out and only have the Brix THC gummies left so it is time to stock up. Tomorrow I’m going dress shopping with my daughter and two granddaughters. I sure hope I find something, we are coming down to the wire with two weeks left before the Quencenara. I’ve still got to buy my husband something to wear, he won’t dress up. The most I’ll get him in is some dress shorts and a polo shirt. I’m going to wear a full length dress. With this toe I’ll hide my crocs under the dress. I plan on having my Brix THC gummies with me for the day of shopping so I can keep up and not slow us down. So far I’ll give the Brix THC gummies credit, they have not let me down when it comes to breakthrough aches that could slow me down. With the rain on its way I’m still not doing too darn bad. My ankle is at a mild ache so I’ll count that as a win for the day. All because I chose a plant over a pill. Thank you marijuana!

Kept Up

Yesterday with all the walking I had to do with this sore toe I was able to keep up with everyone and didn’t have to slow down once. My daughter picked me up around 9:30 am and we met up with my other daughter, son-in-law and one of my grandsons to watch my other grandson’s basketball game. My grandson had a great game with two steals and a block. His team won.
After the game my both of my daughters and one of my grandsons and I headed over to Target so both my daughters could shop for the birthday party. I pushed the cart and leaned on it through the store. We stopped back at my youngest daughter’s house to pick up my other grandson and we went to the birthday party. After the birthday party we dropped off my daughter and two grandsons and had to fly back over to my other daughter’s house to pick up both of my granddaughter’s and get to the candy store before they closed at 5 pm. On the way to pick up my granddaughters I took a 50 mg cube of THC gummy. My toe was sore and I wanted to keep up through the candy store. We made it to the candy store with 30 minutes to spare before closing. That store was an experience. Rows and rows of every type of candy ever made. I’m happy to report I kept up with everyone all day and this sore toe and bad back didn’t slow me down. I got home around 5:30 pm and took 100 mg of the Brix THC gummies. I took another 100 mg around 7:45 pm and I was set for the evening. I’m not going to lie, I was beat and more than ready to chill in my recliner watching mindless television until I stretched and went to bed. Overall I’d say it was a fun filled busy day spent with my children and grandchildren. The birthday party was nice. It was fun watching the kids in the bounce house and the birthday girl loved all her presents. She looked absolutely adorable in her pretty dress and black little shoes. They had a life sized pinata of Minnie Mouse that all the older kids had fun trying to break. That thing stood at least 4 feet tall. I guess they went down to Mexico and bought it for $100.00 where it would have cost over triple that here. I guess I should let you know my great niece and her boyfriend live about two hours from the border and had the birthday party up here in the valley because they live two hours away from us so all of us didn’t have to drive two hours each way on a Saturday afternoon. We are about 4 to five hours from the border here in Phoenix. They live halfway. After all the running and birthday party I got home and still did laundry so I wouldn’t have to do it today. I want to rest. We are supposed to go over to my niece’s house this morning so my daughter and husband can try to finish up the tile in the kitchen. We can’t stay over there too long as my husband goes to bed earlier on Sunday’s for work. Once we get home I plan on parking my butt in front of the television for an afternoon of football. I imagine the early game will be on at my niece’s house as they are big football fans too. I’ve got to check the local dispensaries to see if any of them have a good deal on Rick Simpson Oil. I am completely out and only have the Brix THC gummies left so it is time to stock up. Tomorrow I’m going dress shopping with my daughter and two granddaughters. I sure hope I find something, we are coming down to the wire with two weeks left before the Quencenara. I’ve still got to buy my husband something to wear, he won’t dress up. The most I’ll get him in is some dress shorts and a polo shirt. I’m going to wear a full length dress. With this toe I’ll hide my crocs under the dress. I plan on having my Brix THC gummies with me for the day of shopping so I can keep up and not slow us down. So far I’ll give the Brix THC gummies credit, they have not let me down when it comes to breakthrough aches that could slow me down. With the rain on its way I’m still not doing too darn bad. My ankle is at a mild ache so I’ll count that as a win for the day. All because I chose a plant over a pill. Thank you marijuana!

Kept Up

Yesterday with all the walking I had to do with this sore toe I was able to keep up with everyone and didn’t have to slow down once. My daughter picked me up around 9:30 am and we met up with my other daughter, son-in-law and one of my grandsons to watch my other grandson’s basketball game. My grandson had a great game with two steals and a block. His team won.
After the game my both of my daughters and one of my grandsons and I headed over to Target so both my daughters could shop for the birthday party. I pushed the cart and leaned on it through the store. We stopped back at my youngest daughter’s house to pick up my other grandson and we went to the birthday party. After the birthday party we dropped off my daughter and two grandsons and had to fly back over to my other daughter’s house to pick up both of my granddaughter’s and get to the candy store before they closed at 5 pm. On the way to pick up my granddaughters I took a 50 mg cube of THC gummy. My toe was sore and I wanted to keep up through the candy store. We made it to the candy store with 30 minutes to spare before closing. That store was an experience. Rows and rows of every type of candy ever made. I’m happy to report I kept up with everyone all day and this sore toe and bad back didn’t slow me down. I got home around 5:30 pm and took 100 mg of the Brix THC gummies. I took another 100 mg around 7:45 pm and I was set for the evening. I’m not going to lie, I was beat and more than ready to chill in my recliner watching mindless television until I stretched and went to bed. Overall I’d say it was a fun filled busy day spent with my children and grandchildren. The birthday party was nice. It was fun watching the kids in the bounce house and the birthday girl loved all her presents. She looked absolutely adorable in her pretty dress and black little shoes. They had a life sized pinata of Minnie Mouse that all the older kids had fun trying to break. That thing stood at least 4 feet tall. I guess they went down to Mexico and bought it for $100.00 where it would have cost over triple that here. I guess I should let you know my great niece and her boyfriend live about two hours from the border and had the birthday party up here in the valley because they live two hours away from us so all of us didn’t have to drive two hours each way on a Saturday afternoon. We are about 4 to five hours from the border here in Phoenix. They live halfway. After all the running and birthday party I got home and still did laundry so I wouldn’t have to do it today. I want to rest. We are supposed to go over to my niece’s house this morning so my daughter and husband can try to finish up the tile in the kitchen. We can’t stay over there too long as my husband goes to bed earlier on Sunday’s for work. Once we get home I plan on parking my butt in front of the television for an afternoon of football. I imagine the early game will be on at my niece’s house as they are big football fans too. I’ve got to check the local dispensaries to see if any of them have a good deal on Rick Simpson Oil. I am completely out and only have the Brix THC gummies left so it is time to stock up. Tomorrow I’m going dress shopping with my daughter and two granddaughters. I sure hope I find something, we are coming down to the wire with two weeks left before the Quencenara. I’ve still got to buy my husband something to wear, he won’t dress up. The most I’ll get him in is some dress shorts and a polo shirt. I’m going to wear a full length dress. With this toe I’ll hide my crocs under the dress. I plan on having my Brix THC gummies with me for the day of shopping so I can keep up and not slow us down. So far I’ll give the Brix THC gummies credit, they have not let me down when it comes to breakthrough aches that could slow me down. With the rain on its way I’m still not doing too darn bad. My ankle is at a mild ache so I’ll count that as a win for the day. All because I chose a plant over a pill. Thank you marijuana!

DATE: September 27, 2026 at 06:49AM
SOURCE: SCIENCE DAILY MIND-BRAIN FEED

TITLE: Why rheumatoid arthritis pain may persist even when inflammation is under control

URL: https://www.sciencedaily.com/releases/2026/09/260925093208.htm

Pain and fatigue in rheumatoid arthritis can persist even after inflammation improves, with depression, poor sleep, obesity, smoking, and chronic pain potentially helping sustain symptoms. Researchers say identifying these hidden drivers could prevent unnecessary medication changes and lead to more personalized treatment.

URL: https://www.sciencedaily.com/releases/2026/09/260925093208.htm

-------------------------------------------------

Private, vetted email list for mental health professionals: https://www.clinicians-exchange.org

Unofficial Psychology Today Xitter to toot feed at Psych Today Unofficial Bot @PTUnofficialBot

-------------------------------------------------

#psychology #counseling #socialwork #psychotherapy @psychotherapist @psychotherapists @psychology @socialpsych @socialwork @psychiatry #mentalhealth #psychiatry #healthcare #depression #psychotherapist #RheumatoidArthritis #RApain #ChronicPain #InflammationControl #PainPersistence #RAfatigue #MentalHealthRA #SleepQuality #PersonalizedMedicine #RAresearch

DATE: September 27, 2026 at 06:49AM
SOURCE: SCIENCE DAILY MIND-BRAIN FEED

TITLE: Why rheumatoid arthritis pain may persist even when inflammation is under control

URL: https://www.sciencedaily.com/releases/2026/09/260925093208.htm

Pain and fatigue in rheumatoid arthritis can persist even after inflammation improves, with depression, poor sleep, obesity, smoking, and chronic pain potentially helping sustain symptoms. Researchers say identifying these hidden drivers could prevent unnecessary medication changes and lead to more personalized treatment.

URL: https://www.sciencedaily.com/releases/2026/09/260925093208.htm

-------------------------------------------------

Private, vetted email list for mental health professionals: https://www.clinicians-exchange.org

Unofficial Psychology Today Xitter to toot feed at Psych Today Unofficial Bot @PTUnofficialBot

-------------------------------------------------

#psychology #counseling #socialwork #psychotherapy @psychotherapist @psychotherapists @psychology @socialpsych @socialwork @psychiatry #mentalhealth #psychiatry #healthcare #depression #psychotherapist #RheumatoidArthritis #RApain #ChronicPain #InflammationControl #PainPersistence #RAfatigue #MentalHealthRA #SleepQuality #PersonalizedMedicine #RAresearch

DATE: September 27, 2026 at 06:49AM
SOURCE: SCIENCE DAILY MIND-BRAIN FEED

TITLE: Why rheumatoid arthritis pain may persist even when inflammation is under control

URL: https://www.sciencedaily.com/releases/2026/09/260925093208.htm

Pain and fatigue in rheumatoid arthritis can persist even after inflammation improves, with depression, poor sleep, obesity, smoking, and chronic pain potentially helping sustain symptoms. Researchers say identifying these hidden drivers could prevent unnecessary medication changes and lead to more personalized treatment.

URL: https://www.sciencedaily.com/releases/2026/09/260925093208.htm

-------------------------------------------------

Private, vetted email list for mental health professionals: https://www.clinicians-exchange.org

Unofficial Psychology Today Xitter to toot feed at Psych Today Unofficial Bot @PTUnofficialBot

-------------------------------------------------

#psychology #counseling #socialwork #psychotherapy @psychotherapist @psychotherapists @psychology @socialpsych @socialwork @psychiatry #mentalhealth #psychiatry #healthcare #depression #psychotherapist #RheumatoidArthritis #RApain #ChronicPain #InflammationControl #PainPersistence #RAfatigue #MentalHealthRA #SleepQuality #PersonalizedMedicine #RAresearch

While I’ve spent over a decade trying to accept & prioritize caring for my disabilities… I’m finally processing how difficult this year’s many new, unexpected, and worsening symptom experiences have been.

I think that’s why, when I was looking for a resource I could offer alongside this image, The Thriving Spoonie’s “Burnout With Chronic Illness: Why It Isn’t a Phase” hit me so hard:

You keep showing up because you have to. You adapt because there isn’t another option. And over time, exhaustion stops feeling like a temporary setback and starts feeling like your baseline.

Burnout becomes especially difficult to recognize when it’s woven into survival. You adjust expectations. You compensate where you can. You normalize being depleted. And because you are still technically functioning, it’s easy to miss how much this way of living is costing you until your body forces a reckoning.

Please take care, however you need.

I’m sending you lots and lots of love.

– n

While I’ve spent over a decade trying to accept & prioritize caring for my disabilities… I’m finally processing how difficult this year’s many new, unexpected, and worsening symptom experiences have been.

I think that’s why, when I was looking for a resource I could offer alongside this image, The Thriving Spoonie’s “Burnout With Chronic Illness: Why It Isn’t a Phase” hit me so hard:

You keep showing up because you have to. You adapt because there isn’t another option. And over time, exhaustion stops feeling like a temporary setback and starts feeling like your baseline.

Burnout becomes especially difficult to recognize when it’s woven into survival. You adjust expectations. You compensate where you can. You normalize being depleted. And because you are still technically functioning, it’s easy to miss how much this way of living is costing you until your body forces a reckoning.

Please take care, however you need.

I’m sending you lots and lots of love.

– n

While I’ve spent over a decade trying to accept & prioritize caring for my disabilities… I’m finally processing how difficult this year’s many new, unexpected, and worsening symptom experiences have been.

I think that’s why, when I was looking for a resource I could offer alongside this image, The Thriving Spoonie’s “Burnout With Chronic Illness: Why It Isn’t a Phase” hit me so hard:

You keep showing up because you have to. You adapt because there isn’t another option. And over time, exhaustion stops feeling like a temporary setback and starts feeling like your baseline.

Burnout becomes especially difficult to recognize when it’s woven into survival. You adjust expectations. You compensate where you can. You normalize being depleted. And because you are still technically functioning, it’s easy to miss how much this way of living is costing you until your body forces a reckoning.

Please take care, however you need.

I’m sending you lots and lots of love.

– n

While I’ve spent over a decade trying to accept & prioritize caring for my disabilities… I’m finally processing how difficult this year’s many new, unexpected, and worsening symptom experiences have been.

I think that’s why, when I was looking for a resource I could offer alongside this image, The Thriving Spoonie’s “Burnout With Chronic Illness: Why It Isn’t a Phase” hit me so hard:

You keep showing up because you have to. You adapt because there isn’t another option. And over time, exhaustion stops feeling like a temporary setback and starts feeling like your baseline.

Burnout becomes especially difficult to recognize when it’s woven into survival. You adjust expectations. You compensate where you can. You normalize being depleted. And because you are still technically functioning, it’s easy to miss how much this way of living is costing you until your body forces a reckoning.

Please take care, however you need.

I’m sending you lots and lots of love.

– n

While I’ve spent over a decade trying to accept & prioritize caring for my disabilities… I’m finally processing how difficult this year’s many new, unexpected, and worsening symptom experiences have been.

I think that’s why, when I was looking for a resource I could offer alongside this image, The Thriving Spoonie’s “Burnout With Chronic Illness: Why It Isn’t a Phase” hit me so hard:

You keep showing up because you have to. You adapt because there isn’t another option. And over time, exhaustion stops feeling like a temporary setback and starts feeling like your baseline.

Burnout becomes especially difficult to recognize when it’s woven into survival. You adjust expectations. You compensate where you can. You normalize being depleted. And because you are still technically functioning, it’s easy to miss how much this way of living is costing you until your body forces a reckoning.

Please take care, however you need.

I’m sending you lots and lots of love.

– n

RE: https://me.dm/@kshernandez/116735297261197109

Not one jot, not one tittle received! The abusive environment persists, the abusive people remain.

If you wanna see me out of this situation, chip in.

Chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/116735297261197109

Not one jot, not one tittle received! The abusive environment persists, the abusive people remain.

If you wanna see me out of this situation, chip in.

Chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/116735297261197109

Not one jot, not one tittle received! The abusive environment persists, the abusive people remain.

If you wanna see me out of this situation, chip in.

Chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/116735297261197109

Not one jot, not one tittle received! The abusive environment persists, the abusive people remain.

If you wanna see me out of this situation, chip in.

Chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/116735297261197109

Not one jot, not one tittle received! The abusive environment persists, the abusive people remain.

If you wanna see me out of this situation, chip in.

Chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://mastodon.social/@ellespeaks/117305693148190974

I have lost weight due to lack of food and not having my meds. Its triggering my old eating disorder too 😪

$186 is left for September. For food/meds. Absolutely anything helps + is appreciated. Thank you so much. 💓

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #directaid #disabledmutualaid #lgbtq #queer #disabled #lesbian #artist #hungry #diabetic #crowdfunding #spoonie #chronicpain #helpfolkslive @[email protected] @[email protected] @disabledvoices @lgbtq @povertyandinequality

RE: https://mastodon.social/@ellespeaks/117305693148190974

I have lost weight due to lack of food and not having my meds. Its triggering my old eating disorder too 😪

$186 is left for September. For food/meds. Absolutely anything helps + is appreciated. Thank you so much. 💓

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #directaid #disabledmutualaid #lgbtq #queer #disabled #lesbian #artist #hungry #diabetic #crowdfunding #spoonie #chronicpain #helpfolkslive @[email protected] @[email protected] @disabledvoices @lgbtq @povertyandinequality

RE: https://mastodon.social/@ellespeaks/117305693148190974

I have lost weight due to lack of food and not having my meds. Its triggering my old eating disorder too 😪

$186 is left for September. For food/meds. Absolutely anything helps + is appreciated. Thank you so much. 💓

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #directaid #disabledmutualaid #lgbtq #queer #disabled #lesbian #artist #hungry #diabetic #crowdfunding #spoonie #chronicpain #helpfolkslive @[email protected] @[email protected] @disabledvoices @lgbtq @povertyandinequality

RE: https://mastodon.social/@ellespeaks/117305693148190974

I have lost weight due to lack of food and not having my meds. Its triggering my old eating disorder too 😪

$186 is left for September. For food/meds. Absolutely anything helps + is appreciated. Thank you so much. 💓

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #directaid #disabledmutualaid #lgbtq #queer #disabled #lesbian #artist #hungry #diabetic #crowdfunding #spoonie #chronicpain #helpfolkslive @[email protected] @[email protected] @disabledvoices @lgbtq @povertyandinequality

Not one dime rolled in yesterday. Unusual for a Friday...

Can we change that today, so I can move to a safer home?

Ways to aid:
https://Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#FatBearWeek

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Not one dime rolled in yesterday. Unusual for a Friday...

Can we change that today, so I can move to a safer home?

Ways to aid:
https://Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#FatBearWeek

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Not one dime rolled in yesterday. Unusual for a Friday...

Can we change that today, so I can move to a safer home?

Ways to aid:
https://Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#FatBearWeek

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Not one dime rolled in yesterday. Unusual for a Friday...

Can we change that today, so I can move to a safer home?

Ways to aid:
https://Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#FatBearWeek

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Not one dime rolled in yesterday. Unusual for a Friday...

Can we change that today, so I can move to a safer home?

Ways to aid:
https://Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#FatBearWeek

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer