#chronicpain — Public Fediverse posts

I have to believe that good things happen and that they can happen to me.

$2162 to go and I need it right away!

Please help all you can.

https://chuffed.org/project/blessks
v: skillingmesoftly
p: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

I have to believe that good things happen and that they can happen to me.

$2162 to go and I need it right away!

Please help all you can.

https://chuffed.org/project/blessks
v: skillingmesoftly
p: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

I have to believe that good things happen and that they can happen to me.

$2162 to go and I need it right away!

Please help all you can.

https://chuffed.org/project/blessks
v: skillingmesoftly
p: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

I have to believe that good things happen and that they can happen to me.

$2162 to go and I need it right away!

Please help all you can.

https://chuffed.org/project/blessks
v: skillingmesoftly
p: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

I have to believe that good things happen and that they can happen to me.

$2162 to go and I need it right away!

Please help all you can.

https://chuffed.org/project/blessks
v: skillingmesoftly
p: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://mastodon.social/@ellespeaks/117271041546276204

Please help! Anything helps
Stalled for 12 days

@[email protected] @[email protected] @disabledvoices
@povertyandinequality

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid

RE: https://mastodon.social/@ellespeaks/117271041546276204

Please help! Anything helps
Stalled for 12 days

@[email protected] @[email protected] @disabledvoices
@povertyandinequality

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid

RE: https://mastodon.social/@ellespeaks/117271041546276204

Please help! Anything helps
Stalled for 12 days

@[email protected] @[email protected] @disabledvoices
@povertyandinequality

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid

RE: https://mastodon.social/@ellespeaks/117271041546276204

Please help! Anything helps
Stalled for 12 days

@[email protected] @[email protected] @disabledvoices
@povertyandinequality

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid

RE: https://mastodon.social/@ellespeaks/117255430152864799

Still stalled at $0!

I am grateful for any help as ive had congestion for over 10 days.
(Dr says antibiotics wont help i just had an x ray to check for pneumonia).

V d_fay
P peach77

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid
@disabledvoices
@directaid @mutualaid

An essay about how senseless abuse is reproduced within communities shaped by suffering, and the invalidation and alienation that follow when there is nowhere—socially or internally—to retreat to. #NotBornToWrite #Aphantasia #Endometriosis #Trauma #Neurodivergence #ChronicPain https://cristinagherghel.substack.com/p/not-born-for-this-world-on-aphantasia?r=6bmg7x&utm_campaign=post-expanded-share&utm_medium=web

A memory conjured by Gloria Steinem's passing.

https://ko-fi.com/post/My-Thoughts-on-Gloria-Steinham-N8V826R843

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness #catmom @spoonie @queer @feminism #GloriaSteinem #dorothypitmanhughes #Feminism #USPol #Memories #Childhood #BlackLivesMatter

Finally had my #physio consultation, 4 months after surgery. Not too bad a wait in the grand scheme of things I guess.

Quick recap: For 5 years I had chronic lower back pain that got worse over time, reducing my activity and mobility until I needed a walking stick and weighed around 17.5 stone. Then a melon sized ovarian cyst was discovered (by accident when I had a post-menopausal bleed) that I believe had been putting pressure on my lower spine. Cyst was removed in March and back pain completely disappeared literally overnight. I am getting more active and have lost 2 stone, but self referred for physio as my core strength is shot and I want to build that back up before I take on a more strenuous work out routine.

Anyway, it went well. Physio dude confirmed (3rd medical professional to have done so since surgery) that yes, a cyst of that size can and does cause pressure and pain in the lower back.

I've got an exercise plan based on pilates to follow for 4 weeks and then will have a follow up to see if I can start proper strength training.

I will get my muscle tone back, although it will never be what it could be now if I hadn't been medically gaslit for 5 years. Coming to terms with that gradually.

And I don't want my body back to how it was 6 years ago for vanity reasons. It's for my health, and so I can do things I love again like hiking, camping etc. It's also so I can show those fucking doctors how wrong they were when they wrote me off as lazy and inactive.

Tagging #ChronicPain in case anyone with ovaries is reading this and also has chronic lower back pain they cant get any help for. Please ask for a scan to check for large cysts 🙏

Ibuprofen for joint pain: what you really need to know
#Ibuprofen #JointPain #Arthritis #Osteoarthritis #Health #Healthcare #PainRelief #Physiotherapy #Wellness #Exercise #WeightLoss #Medication #MedicalResearch #ChronicPain #JointHealth #Medicine
https://the-14.com/ibuprofen-for-joint-pain-what-you-really-need-to-know/

My last three days have sucked. Big pain days due to a dislocated rib, and I can't get to physio for another two weeks. I think I coaxed the rib back into place, but the muscles on my shoulder and neck are freaking out now. Why do bodies do this shit? #InvisibleDisability #ChronicPain

I’m really unwell. Please 🔄SHARE my pinned crowdfund &💸 GIVE if you can. Share on all social media platforms you’re on. I can’t get to many.l 😞

It’s not looking great. Doctor confirmed I’m slowly dying in this environment. I don’t even get regular food.
I need to escape ASAP. PLEASE HELP 🙏

https://www.chuffed.org/project/161937-help-anna-escape

From Crowdfund:

🚨EMERGENCY🚨

Anna, an #Australian woman battling severe #MyalgicEncephalomyelitis (#ME) for over 20 years, is trapped in a toxic home with #abusive family members. She has multiple chronic illnesses too

#Bedbound & forced to stay in a dark room, she is very vulnerable and that is taken advantage of. She is not allowed to access #disabilityaids or supportworkers & needs approval for all mailed items including food, which may be binned or sold regardless. She faces deliberate exposure to sensory overload, days without food, constant yelling, gaslighting, called every insult, stolen belongings - the list is endless.

She has been infected with #COVID 3 times in 15 months due to unmasked family members, who have ignored the pleas of her doctor to be Covid conscious. She now has #LongCovid as well.

This is compounded by #endometriosis, #hypothyroidism, #POTS, #chronicpain, & more. She was forced to decline surgery to remove endometriosis after her family denied her after care & would not allow support workers to assist. One of many examples where medical care was denied by #CoersiveControl

As a result of all this her health is deteriorating rapidly. She is living in "survival mode” but can’t for much longer.

There are no steady rules, just excuses for her #abuse.

** Her doctor fears staying in this environment will kill her.**

Australia's #healthcare, #disability, & #domesticviolence systems have failed her catastrophically, This systemic #neglect has created a #lifethreatening crisis – & for Anna, it's already too late to wait.

**Anna's Critical Needs***

- **Safe #Housing ASAP:** Anna desperately needs a quiet #room in a COVID-conscious (masking) home in #Melbourne. She can pay rent $250 per week,funded meals & limited care hours; long-term help may qualify for Carer's Allowance. You’re not required to be a carer but can choose to.

- **Secure Relocation:** Ambulance transport to reduce infection risks & reduce further stress & worsening of symptoms.

- **Expert Advocacy:** A #disabilityadvocate for complex cases to navigate the system with her. She can’t do this alone.

- **Communication Help (#Australia, preferably #Victoria):** Someone to handle phone tasks – all info provided. She can’t use the #phone due to the severity of her illness.

Read more about Anna's story:

"Australia’s state & services are trapping a woman living with #severeME in #domesticabuse

And they keep passing the buck"

https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/

Please donate, share, or offer direct help now!

If you can provide housing, advocacy, or calls, contact immediately - Halcionandon at gmail dot com

Thanks. ❣️

#MutualAid #FediAid

I need 1 good person to get me out of here please get me out of here. JUST ONE.😭

Stuck with one diagnosed #narcissist/ #psychopath but the others are the same. I don’t want to die here. Doctor literally said I’m dying here. There’s nowhere to go. I’ve asked all the helplines, churches, community groups, everybody!!! They send you round in circles.

I severely ill. I can’t help myself. I can improve In a better environment. They deliberately keep me sick so I can’t get away.

Help please.!!!!!🙏

#MECFS
#SevereME
#LongCovid
#ChronicPain
#Hypothyroidism
#Endometriosis
#Abuse
#NarcissisticAbuse
#Neglect
#FDV
#DV
#MutualAid #MutualAidRequest
#HelpFolksLive2026

I need 1 good person to get me out of here please get me out of here. JUST ONE.😭

Stuck with one diagnosed #narcissist/ #psychopath but others are the same. I don’t want to die here.

Help please.!!!!!🙏

#MECFS
#SevereME
#LongCovid
#ChronicPain
#Hypothyroidism
#Endometriosis
#Abuse
#NarcissisticAbuse
#Neglect
#FDV
#DV
#MutualAid #MutualAidRequest

Help me escape abuse & finally get out of here this #NewYear 🎉🥳

Please help by hitting 🔄 BOOST , 📝QUOTE & 💸 GIVE if you can. Share on all social media platforms.

https://chuffed.org/project/161937-help-anna-escape

### Urgent Appeal: Help Anna #Escape #Abuse – Time is Running Out!

🚨EMERGENCY: Anna's Life Hangs in the Balance – Act NOW to Rescue Her from #Abuse and #Neglect!

Anna, an Australian woman battling severe #MyalgicEncephalomyelitis (#ME) for over 20 years, is trapped in a toxic home with abusive family members. Bedbound and forced to stay in a dark room, she is vulnerable and that vulnerability is taken advantage of. She is not allowed access to #disability aids or workers and needs approval for all mailed items including food, which may be binned or sold regardless. There are no steady rules, just excuses for her abuse. She faces deliberate exposure to sensory overload, days without food, constant yelling, stolen belongings, and three #COVID infections in 15 months due to unmasked family members. She now has #LongCovid as well. Compounded by #endometriosis, #hypothyroidism, #POTS, #chronicpain, and more - her health is deteriorating rapidly.

** Her doctor fears that staying in this environment will kill her.**

#Australia's #healthcare, #disability, and #domesticviolence systems have failed her catastrophically,. This systemic neglect has created a life-threatening crisis – and for Anna, it's already too late to wait.

**Anna's Critical Needs – Your Support Can Save Her:**

- **Safe Housing ASAP:** Anna desperately needs a quiet room in a COVID-conscious (masking) home in #Melbourne. She can pay rent $250 per week, with funded meals and limited care hours; long-term help may qualify for Carer's Allowance. She has indicated she may need incidental help.

- **Secure Relocation:** Specialized transport to reduce infection risks and suit her ME. Funds needed for moving costs and aids until #NDIS access.

- **Expert Advocacy:** A #DisabilityAdvocate for complex cases to navigate the system with her. Even a friend just willing to help. She can’t do this alone.

- **Communication Aid (#Australia, preferably #Victoria):** Someone to handle phone tasks – all documents provided. Brain injury has made phone use impossible.

-**This is a Shameful Failure – But You Can Help** In a resource-rich nation, no one should rot in abuse while services ignore them. Don't let Anna become a statistic.

Please #donate, #share, or offer direct #help now!

If you can provide #housing, #advocacy, or calls, contact immediately at -

Halcionandon at gmail dot com

If Chuffed is not your thing, you can donate at:
BMaC- https://www.buymeacoffee.com/Halcionandon
Beem: Halcionandon

Thanks so much for reading. Please share!

Read more about Anna's story:
https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/

#MutualAidRequest #MutualAid #Narcissist #NarcissisticAbuse #Crowdfund #Neglect
@mutualaid
#LongCovid #NewYear #PWLc
#MECFS #PWME #SevereME #ChronicPain
@mecfs

I feel that escape to a better place soon might be possible. BUT if it doesn’t happen I’ll be crushed beyond anything I can imagine.

What’s that quote? Paraphrase: It’s not the despair. I can handle the despair. It’s the hope that kills you.

Except I’m gonna die if I don’t escape so yeah.

No really, my doctor said so. I’ll die if I stay here. I’m already far sicker than I was a year ago because I keep getting exposed to Covid. And that’s the 1% of problems if you’ve been following. My profile is full unhappy and abuse stories if you haven’t been following & want a deleting read. I’ve even had my story published.

#SevereME #LongCovid #ChronicPain #Endometriosis #Neisvoid #ChronicIllness #Hypothyroidism #POTS #Dysautonomia #NarcissisticAbuse #Abuse #Narcissist #Neglect i got everything except what I need.

World Arthritis Day .

#arthritis #chronicpain #chronicillness #jointpain #rheumatoidarthritis #fibromyalgia #invisibleillness #pain #painrelief #osteoarthritis #autoimmunedisease #health #kneepain #backpain #lupus #arthritisrelief #diabetes #painmanagement #arthritisawareness #spoonie #mentalhealth #cancer #autoimmune #ankylosingspondylitis #wellness #anxiety #cbd #inflammation #chronicfatigue #endometriosis Today is World Arthritis Day. Arthritis is a disease that…

https://itsmostamazingindia.wordpress.com/2025/10/12/world-arthritis-day/

Painting on paper, 20 x 20 cm: Ambiguous impulses for your mental cinema!
#contemporaryArt #mentalCinema #analogArt #painting #rubberStamp #reliefPrinting #saveBioDiversity #climateActionNow #systemChange #endFossilFuels #makeArtNotWar #noAFD #NoRacism #NoFascism #humanRights #humanDignity #Нетвойны #scribbles #drippings #splatters #selfportraits #aging #oldWhiteMan #patriarchy #masculinity #depression #meaningOfLife #resignation #grief #sorrow #chronicPain #ancestor #familyAlbum #memories

Painting on paper, 20 x 20 cm: Ambiguous impulses for your mental cinema!
#contemporaryArt #mentalCinema #rubberStamp #reliefPrinting #saveBioDiversity #climateActionNow #systemChange #endFossilFuels #makeArtNotWar #noAFD #NoRacism #NoFascism #humanRights #humanDignity #Нетвойны #scribbles #drippings #splatters #selfportraits #arthrosis #aging #oldWhiteMan #patriarchy #masculinity #depression #meaningOfLife #resignation #grief #sorrow #chronicPain

Painting on paper, 20 x 20 cm: Ambiguous impulses for your mental cinema!
#kunst #contemporaryArt #mentalCinema #analogArt #painting #rubberStamp #reliefPrinting #saveBioDiversity #climateActionNow #systemChange #endFossilFuels #makeArtNotWar #noAFD #NoRacism #NoFascism #humanRights #humanDignity #Нетвойны #scribbles #drippings #splatters #selfportraits #arthrosis #aging #oldWhiteMan #patriarchy #masculinity #depression #meaningOfLife #resignation #grief #sorrow #chronicPain

Painting on paper, 20 x 20 cm: Ambiguous impulses for your mental cinema!
#kunst #contemporaryArt #mentalCinema #analogArt #painting #rubberStamp #reliefPrinting #saveBioDiversity #climateActionNow #systemChange #endFossilFuels #makeArtNotWar #noAFD #NoRacism #NoFascism #humanRights #humanDignity #Нетвойны #scribbles #drippings #splatters #selfportraits #arthrosis #aging #oldWhiteMan #patriarchy #masculinity #depression #meaningOfLife #resignation #grief #sorrow #chronicPain

Painting on paper, 20 x 20 cm: Ambiguous impulses for your mental cinema!
#kunst #contemporaryArt #mentalCinema #analogArt #painting #rubberStamp #reliefPrinting #saveBioDiversity #climateActionNow #systemChange #endFossilFuels #makeArtNotWar #noAFD #NoRacism #NoFascism #humanRights #humanDignity #Нетвойны #scribbles #drippings #splatters #selfportraits #arthrosis #aging #oldWhiteMan #patriarchy #masculinity #depression #meaningOfLife #resignation #grief #sorrow #chronicPain

I went looking online for contraindications to the new med I presumably have to take for the rest of my life, and found out that cannabis is on that list. I've been using cannabis to deal with chronic pain (no pun intended), and one of the side effects of the new med is widespread muscle pain and upset stomach. So I guess I'm just supposed to rawdog chronic pain now. Oof.

I wonder why I wasn't warned about this.

This is gonna suck.
#ChronicPain #Cannabis #InvisibleDisabilities

In case it was missed in the post above, this is my updated article:

👉 https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/

My doctor predicts I will die if I don’t leave soon.

I need a solid, safe, home I can go to and recover to at least a stable baseline. It’s not full recovery, but it’s better than a slow death.

Help please 🙏

#PwME #LongCovid #MECFS #Hypothyroidism #ChronicIllness #Neisvoid #Abuse #Housing #Dysautonomia #SocialWork #MedMastodon #PWLC #MutualAid
#HumanRights #Press #Housing #Journalism #MECFS #SevereME #Abuse #Neglect #MutualAid #Narcissist #Psychopath #MCAS #MCAD #Endometriosis #ChronicPain #CostOfLivingCrisis #Melbourne #Australia #DomesticAbuse #DV

@chronicillness @longcovid @neisvoid
@disabilityjustice
@disability @socialwork
@dysautonomia @mutualaid
@mecfs
@chronicpain
@mcas
@australia
@melbourne

Well, figured out what's going on with my neck/shoulder/arm. I've been diagnosed as being in the early stages of frozen shoulder. Apparently, menopausal folks are more prone to it for unknown reasons. Yay?

So I have about a year and a half until this issue goes away, and it will get worse before it gets better. The good news is that when that awful pain happens, I'm not causing myself damage. Apparently, a cortisone shot early on will help prevent some of that pain. So will continuing to exercise regularly, although I will have to avoid exercises which bring on the pain (which is sudden and intense). Massages will also help, because the surrounding muscles will lock up from that pain.

Looks like I have a rocky road ahead of me.
#FrozenShoulder #ChronicPain #InvisibleDisabilities #menopause

When I first started back at the gym three years ago, I made fantastic progress. I regained a lot of lost strength and mobility. But since I had COVID in October 2023 I have been in decline. First it was with my endurance. I went from being able to hold a >5 minute plank. A year after COVID, I struggled to hold one for 40 seconds.

Now I'm noticing a lot of old injuries have reappeared for no apparent reason. Though I haven't been doing running and jumping, my Achilles tendonopathy from several years ago has returned. My clicking hip syndrome has shown up on my good hip. The patella femoral syndrome of my youth is threatening a comeback.

And now there's something very wrong with my shoulder/neck/arm. I can no longer put on a sports bra without pain.

I find myself gripping the bannister when going down stairs. I have more frequent headaches.

I don't know if this is all related to long COVID, or if I'm just old.

I don't know what to put down for a fitness goal as I've failed every one of them for the past two years. Its disheartening, to say the least. I mourn the loss of my excellent strength and fitness.

At least I'm able to walk without exhausting myself. I'll take that as a win. There have been a few times in my life when I was too disabled to walk very much at all.
#disability #InvisibleDisabilities #ChronicPain #LongCovid #Covid #aging

Have you ever been out of spoons the minute you woke up?

Have you ever looked in the bathroom mirror first thing, only to see that your brain hung a sign across your forehead reading:

"OUT TO LUNCH UNTIL FURTHER NOTICE – KEEP OUT! THIS MEANS YOU!"

You know, the kind of morning where you're going to the bathroom and think to yourself, "If I went ahead and pissed on myself to get it over with, maybe the rest of the world won't piss on me today. Should I try to beat them to the punch?" Then, not actually meaning to, you actually do it.

It's the kind of morning when, before you even eat breakfast, your body feels like you already devoured a heaping bowl of Post-Kellogs' new Crunchy Vertebrae Cereal, with Mini Degenerative Disc Marshmallows, and a painful prize inside the box.

When you try to focus and plan your day, the only thing your brain can make out is the sound of Charlie Brown's parents. " Wha Wa Wa Wha...". Even holding the container of cat food to fill the bowl, all three cats flick their nose in the air with their paw, then turn and walk away. The outside cats moved across the street.

Then, your spouse/partner/loved one/roommate/coworker looks at you, realizing the kind of day you're having, and tells you they are there, if you need them. Even with all the love in your heart, your mouth still says "I know that you're here for me. Now go away please."

I'm calling this phenomenon Wednesday.

#Spoonie #disability #InvisibleDisabilities #fibromyalgia #TBI #ADHD #ChronicPain #humor

When I was a little kid, I fell down a lot, and it wasn't because I was clumsy. I remember going to school and being confused by how all the other kids could run quickly and not fall down. My knees bonked together. My left foot turned inward so that I tripped over it all the time.

I wore orthopedic shoes throughout my early years to correct it. I never kneeled back to sit on my feet because that made matters worse. My doctor caught me doing it once and slapped me, saying I must never sit that way.

By the time I was in grade two or three, I could walk fine. But then I went through a massive growth spurt in grade five which wrecked my knee cartilage. I didn't run because it hurt.

In grade six, my teacher called me lazy because I was so slow at running. In grade seven gym class, I was the slowest. My teacher scolded me for running more slowly than the kid with crutches and a broken leg.

By the time I was in my teens, I ignored the pain and ran everywhere. My knees were black and blue and swollen, but I ran anyway. I just couldn't squat without awful pain, and even the lightest tap on my knee could drop me.

I never got over the knee pain until I started martial arts in my late 20s, and then I had massive foot pain. My right foot has been swollen since 1999. I once spent an entire month not putting weight on that foot to see if it would help. It didn't. My swollen foot is 1.5 sizes larger than the other foot, which makes getting good-fitting shoes difficult.

And in 2012, when I was a professional dancer and a competitive athlete (weightlifting and cross country running), my hip had a massive flareup. Ends up the hip issue is congenital and was what caused my foot issue as a little kid.

I was afraid I'd never be able to walk properly again, let alone run.

I got most of my mobility back, but then I started having issues with my SI joint, also caused by the hip thing. And then I got Achilles tendonopathy.

I have almost always looked fit and strong, but have been managing invisible disabilities all my life. And I haven't even touched on my neurological, GI tract, dental, vision, PTSD, or respiratory issues.
#InvisibleDisabilities #disability #mobility #ChronicPain

I met with a new physiotherapist today for an assessment, and she thinks I should get tested for EDS. I mean, I do have a lot of the symptoms, but... ugh. #EDS #ChronicPain #hypermobility #InvisibleDisabilities

A few years ago, I developed Achilles tendonopathy. It manifested as a feeling like I had a bad blister on the back of my heels, only there was no blister. Everything looked normal. But it took me a year of daily physio and not being able to jump or move faster than a slow walk before the pain went away.

It's started to feel like that again recently, and I have no idea what could have caused it.

When I had it before, it was an overtraining injury. I was practicing Thai kickboxing several times a week. It has a LOT of hopping. And our warmups were lots of rope jumping. Double-unders and such. I loved kickboxing until my tendons wouldn't let me do it anymore.

This time, I haven't been running. I haven't been jumping. I am not overtraining at all. No idea what is causing it. I really hope it isn't returning, because the pain was often excruciating.

I'm going to a physiotherapist tomorrow. It's for something else, but hopefully they can check out my Achilles tendons and help me figure out what's going on.

My body sure loves trolling me. And I sure do miss martial arts.
#ChronicPain #tendonopathy #AchillesTendon #Injuries #InvisibleDisabilities #MartialArts
https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/achilles-tendonitis

Taking care of your teeth could help prevent #chronic #JointPain https://www.sflorg.com/2023/03/bio03062301.html
Traces of bacteria associated with #PeriodontalDisease found in samples collected from #RheumatoidArthritis patients
#WomenWithDisabilities #ChronicPain #WomensHealth

Two waves (1950s & 1970s) of systemic deinstitutionalisation and there are more “beds” than before; they just look different.

#MadLiterature

Busting the Deinstitutionalization Myth: We Actually Have More Beds Than Ever Before
New data upends common beliefs about asylum closures, deinstitutionalization, and rates of psychiatric coercion.

https://www.madinamerica.com/2023/08/busting-deinstitutionalization-myth/?utm_source=substack&utm_medium=email

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Disability doula. Peer support. Social support. Physical support. Cultural roots.

#MadLiterature
Newly disabled people aren’t given a ‘how-to’ guide. Disability doulas are closing those gaps.
The community care practice, pioneered by queer women of color, reorients newly disabled people to a different life

https://19thnews.org/2023/07/disability-doulas-support-newly-disabled-people/

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#MadLiterature in progress:
RD Laing, David Cooper, Ervin Goffman, & Thomas Szaz
Interesting. History.
——
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Enclosure and debilitating restriction.
Enmeshing of care & treatment & dehumanization and loss of agency.

#MadLiterature
Institutions Often Treat Disability and Mental Health Not With Care But Violence
by George Yancy
https://truthout.org/articles/institutions-often-treat-disability-and-mental-health-not-with-care-but-violence/

——
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Politics of madness;
racism. institutionalization. story of place. history of schizophrenia.
#MadLiterature
The Protest Psychosis: How Schizophrenia Became a Black Disease
by Jonathan Metzl

——
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What to do with the mad people?
Outta sight outta mind.
History. Treatments. Surgery. Sterilization.
#MadLiterature
The Rise and Fall of the Asylum
PBS series: Mysteries of Mental Illness
About an hour long
Aired: 06/23/21
Expires: 07/22/24
https://www.pbs.org/video/the-rise-and-fall-of-the-asylum-mbvisj/

——
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Super cool resource & literature. Need more time in a day!!! I just read the interview with Sofia Jeppsson
—
The series is designed to provide a public venue for discussion with disabled philosophers about a range of topics, including their philosophical work on disability; the place of philosophy of disability vis-à-vis the discipline and profession; their experiences of institutional exclusion and personal and structural gaslighting in philosophy, in particular, and in academia, more generally; resistance to ableism, racism, sexism, and other apparatuses of power; accessibility; and anti-oppressive pedagogy.

#MadLiterature
BIOPOLITICAL PHILOSOPHY: Dialogues on Disability

https://biopoliticalphilosophy.com/dialogues-on-disability/

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carceral logics.
carceral sanism.
victim-blaming.
coercive policy approaches.

assumes black, poor and unhoused people are disposable—
specifically those in “mental health crisis.”

Article includes links to multiple intersectional grassroots organizations.

#MadLiterature
Psychiatric Incarceration Isn’t Treatment — It’s Violence, Survivors Say

https://truthout.org/articles/psychiatric-incarceration-isnt-treatment-its-violence-survivors-say/

——
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#AntiBlackSanism
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Sanism is nested within and alongside neoliberal virtues. Colonization. Ableism. Racism. and and and.
State violence is the central theme
Upholds the normal/abnormal binary
Historical pathologization of marginalized groups

#MadLiterature

Radical Disability Allyship, Mad Activism, and Black Mental Health

https://www.invisibledisabilityproject.org/new-blog/2020/6/29/radical-disability-allyship-mad-activism-and-black-mental-health-xb4cy
——
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——

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Mad Studies (or the organization of mad people around literature and learning) needs to be more than just wypipo with wypipo ideas and wypipo histories

Anti-black violence has a long history with sanism

#MadLiterature
https://truthout.org/articles/jordan-neely-is-being-blamed-for-his-own-death-due-to-sanism-and-racism/
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Hey Mastodon friends.

I have a case of the big sads today and feeling fragile as well as down on myself.

What do you do when feeling low and down that helps you feel better but also feel better about yourself?

#MentalHealth #MentalIllness #NEISvoid #Depression #Depressed #ChronicIllness #ChronicPain #Spoonie #fibromyalgia #CFS #CFSME #mentalHealthSurvivor #introduciton #introductiontoot #introductionpost #NewbiesOK #NewbiesWelcome #Newbies #twittermigration #TwitterGang #Twittermigrators

Hey Mastodon friends.

I have a case of the big sads today and feeling fragile as well as down on myself.

What do you do when feeling low and down that helps you feel better but also feel better about yourself?

#MentalHealth #MentalIllness #NEISvoid #Depression #Depressed #ChronicIllness #ChronicPain #Spoonie #fibromyalgia #CFS #CFSME #mentalHealthSurvivor #introduciton #introductiontoot #introductionpost #NewbiesOK #NewbiesWelcome #Newbies #twittermigration #TwitterGang #Twittermigrators