#chronicpain — Public Fediverse posts

I have to believe that good things happen and that they can happen to me.

$2162 to go and I need it right away!

Please help all you can.

https://chuffed.org/project/blessks
v: skillingmesoftly
p: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

I have to believe that good things happen and that they can happen to me.

$2162 to go and I need it right away!

Please help all you can.

https://chuffed.org/project/blessks
v: skillingmesoftly
p: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

I have to believe that good things happen and that they can happen to me.

$2162 to go and I need it right away!

Please help all you can.

https://chuffed.org/project/blessks
v: skillingmesoftly
p: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

I have to believe that good things happen and that they can happen to me.

$2162 to go and I need it right away!

Please help all you can.

https://chuffed.org/project/blessks
v: skillingmesoftly
p: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

I have to believe that good things happen and that they can happen to me.

$2162 to go and I need it right away!

Please help all you can.

https://chuffed.org/project/blessks
v: skillingmesoftly
p: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://mastodon.social/@ellespeaks/117271041546276204

Please help! Anything helps
Stalled for 12 days

@[email protected] @[email protected] @disabledvoices
@povertyandinequality

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid

RE: https://mastodon.social/@ellespeaks/117271041546276204

Please help! Anything helps
Stalled for 12 days

@[email protected] @[email protected] @disabledvoices
@povertyandinequality

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid

RE: https://mastodon.social/@ellespeaks/117271041546276204

Please help! Anything helps
Stalled for 12 days

@[email protected] @[email protected] @disabledvoices
@povertyandinequality

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid

RE: https://mastodon.social/@ellespeaks/117271041546276204

Please help! Anything helps
Stalled for 12 days

@[email protected] @[email protected] @disabledvoices
@povertyandinequality

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid

RE: https://mastodon.social/@ellespeaks/117255430152864799

Still stalled at $0!

I am grateful for any help as ive had congestion for over 10 days.
(Dr says antibiotics wont help i just had an x ray to check for pneumonia).

V d_fay
P peach77

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid
@disabledvoices
@directaid @mutualaid

Stumbling Block

It seems I have always been stumbling, tripping over the unintended in a fog of wandering wonder.

The mist has been ever around me, my cloud by day. I am enveloped by mystery.

You do indeed love to surprise me, O God;

two girls find shiny stones in a fountain and their joy chases away the despair at not finding a loved one,

the hospitality of friends lightens the weight upon a heavy chest from a returning to what was and the traveler can breathe again into what will be,

a mother’s words and the night breeze dries a daughter’s tears and she can smile at the deep thrum of a bullfrog,

lovers lie for a moment in the morning and the frustrations of yesterday fade into the quiet beginnings of another day.

It is time then.

I rise up into the bone crackling morning, my body protesting, my spirit already stretching out along the places I will see.

Inside, I find I am ready for more stumbling.

July 29, 2022

Somatic symptom disorder: Why your doctor doesn't believe you're really sick

https://mecfs.substack.com/p/somatic-symptom-disorder-why-your

Screenshot from July 2026 AMMES newsletter

#Psychologicalisation #chronicillness #ChronicPain #hiddenillness #invisibleillness

How To Design #Inclusive #CommunityGardens For All Abilities

by Kristian Angelov, Last Updated June 10, 2026

"An inclusive community garden works when people can arrive, move through the site, reach the soil, use water, rest, understand the rules, join workdays, and harvest with dignity. A garden can have wide paths and still exclude people if the gate is hard to open, the hose is heavy, all beds are low to the ground, signs use tiny print, or meetings happen at times that conflict with caregiving and shift work.

"Designing for all abilities means treating #accessibility as a whole garden system. Paths, beds, tool sheds, water points, seating, shade, compost areas, harvest tables, volunteer schedules, and decision processes all shape who can participate. Welcoming gardens reduce unnecessary effort so more people can stay involved in the activity.

"A shared growing space should give #wheelchair users, older adults, children, people with #LowVision, #NeurodivergentGardeners, people with #ChronicPain or #fatigue, new gardeners, caregivers, and neighbors with different languages or schedules a usable way to belong.

Key Takeaways

- Inclusive community garden design starts with the full route from street, transit, parking, or sidewalk to every shared task.
- Paths need firm surfaces, clear width, turning space, drainage, edge cues, and maintenance after storms.
- #RaisedBeds, #TabletopBeds, containers, vertical planters, and ground plots should work together so gardeners can choose the posture that fits them.
- Water, tools, compost, signs, seating, shade, and harvest areas need the same access planning as growing beds.
- Sensory and cognitive access matter: clear routes, predictable rules, quiet zones, tactile cues, pictograms, and low-overload work options expand participation.
- Community process is part of the design because schedules, plot rules, language access, and conflict systems decide who stays involved."

Learn more:
https://gardeninsider.org/gardening/stress-reduction/designing-inclusive-community-gardens/

#SolarPunkSunday #CommunityGardening #AccessibleGardens #Inclusivity #Accessibility #BuildingCommunity
#SensoryPlants #SpendTimeInNature

Ibuprofen for joint pain: what you really need to know
#Ibuprofen #JointPain #Arthritis #Osteoarthritis #Health #Healthcare #PainRelief #Physiotherapy #Wellness #Exercise #WeightLoss #Medication #MedicalResearch #ChronicPain #JointHealth #Medicine
https://the-14.com/ibuprofen-for-joint-pain-what-you-really-need-to-know/

My last three days have sucked. Big pain days due to a dislocated rib, and I can't get to physio for another two weeks. I think I coaxed the rib back into place, but the muscles on my shoulder and neck are freaking out now. Why do bodies do this shit? #InvisibleDisability #ChronicPain

P2X receptors are ATP-gated #IonChannels that are targets for treating #ChronicPain & #cough. The #cryoEM structure of the human #P2X3 receptor in complex with the negative allosteric modulator sivopixant reveals how it stabilizes inhibitory conformations of P2X3 @PLOSBiology https://plos.io/4vMWCvy

2/
Extract from:
Somatic symptom disorder: Why your doctor doesn't believe you're really sick

https://mecfs.substack.com/p/somatic-symptom-disorder-why-your

#Psychologicalisation #chronicillness #ChronicPain #hiddenillness #invisibleillness

War in #Ukraine has caused a surge in chronic pain—over 15 million Ukrainians now suffer, with rates soaring among wounded soldiers and refugees. Chronic pain is a hidden epidemic of the conflict. #ChronicPain #WarImpact The Weekend Intelligence: https://podcasts.apple.com/ie/podcast/the-intelligence-from-the-economist/id1449631195

#TrigeminalNeuralgia #TNWarriors #chronicpain

#MadLiterature
Available for pre order:

A Mad Turn
Edited by Phil Smith

Written by Mad scholars, A Mad Turn explores the field of Mad Studies in theory and practice, and what Mad Studies can bring to academia and to other social institutions. What does it mean to “do” Mad Studies? What are the field’s intersections with disability justice, Mad justice, and gender and queer studies? This book is a bold step toward the Mad Studies yet-to-come—a Mad Studies that Mad people will build, twisting and turning and singing and dancing, a new realm of thinking-being-doing-knowing. Step into it with us.

https://autonomous-press.myshopify.com/products/a-mad-turn

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#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
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#Sanism #Disability #DisabilityStudies
#Stories #isolation #SystemicInjustice #AltMentalHealth #instutionalization #PeerSupport #asylum

——

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Understanding the roots of chronic pain

"A team of researchers led by Oscar Sánchez-Carranza in Professor Gary Lewin's lab at the Max Delbrück Center have identified a new function for the PIEZO2 protein -- in mediating chronic pain hypersensitivity. The research suggests a new target for analgesics and potentially explains why pain medications that target voltage gated sodium channels have been disappointing as clinical targets. "

https://www.sciencedaily.com/releases/2024/07/240711111439.htm

#ChronicPain #Piezo #Piezo2 #nociception #neuroscience #fibromyalgia

https://pubmed.ncbi.nlm.nih.gov/38979497/ Ketamine in the effective management of chronic pain, depression, and posttraumatic stress disorder for Veterans: A meta-analysis and systematic review (Liu, et al, 2024) #ketamine #pain #depression #ptsd #psychedelic #psychedelics #psychedelicresearch #psychedelicmentalhealth #mentalhealth #veterans #chronicpain #fda #studydesign #litreview #ketamineassistedtherapy #psychedelicassistedtherapy

I just got told ‘I hope you get well soon’ so I rage bought this t shirt. I’ve been meaning to buy, every time there’s a campaign. They also do an easy to read font. This campaign by The Chronic Iconic ends in 2 days.

https://www.weareprintsocial.com/campaigns/rainbowngws-3

#NotGettingWellSoon #Fibromyalgia #Fibro #CFSME #CFS #ChronicPain #ChronicFatigue #FibroFog #BrainFog #Anxiety #Depression #FibroFlare #ADHD #Autistic #AuDHD #IBS #Diabetic #TheChronicIconic #ChronicAndIconic #WeArePrintSocial

I’m interested in memoirs, blogs etcetera telling stories of resilience, surviving psychiatry, trauma (developmental). Please share them if you know any.
#MadLiterature

Lisa Wallace on why she left psychiatric care and why she may return one day

https://www.psychiatrymargins.com/p/guest-post-a-psychiatric-survivor?r=c50ah&utm_medium=ios&utm_campaign=post

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#LivedExperience #PsychSurvivor #ChronicPain
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The Soteria model relies on personal relationships, interactive activities, and minimal use of psychiatric medication within a comfortable “living community” as opposed to a conventional psychiatric setting.

#MadLiterature
How Does the Soteria House Heal?
The alternative treatment model of Soteria helps individuals suffering from schizophrenia without relying on medication or coercion.

https://www.madinamerica.com/2019/09/soteria-house-heal/

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——

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#MadLiterature
Searching for the “Psychiatric Yeti”: Schizophrenia Is Not Genetic
https://www.madinamerica.com/2024/01/psychiatric-yeti-schizophrenia-genetic/?mc_cid=91cea752ff&mc_eid=1b94bba8b7

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#MadLiterature

Empire of Normality
Neurodiversity and Capitalism
by Robert Chapman

This is a priority read for me!

I’m looking forward to how Chapman explains the emergence and rise of the pathology paradigm and its entanglement with the fundamental logic of capitalism. Specifically how the medical and scientific definitions of illness, disability, and normality have grown in response to economic and ideological developments.

https://www.plutobooks.com/9780745348667/empire-of-normality/?utm_source=substack&utm_medium=email

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…the need to offer a positive account of mental illness—one that does not define the essence of mental illness exclusively as the absence, lack, or failure of the power of reasoning…

On the Importance of Conceptual Contrasts Madness, Reason, and Mad Pride
Awais Aftab

https://muse.jhu.edu/pub/1/article/916209 (open source)
#MadLiterature

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#Stories #isolation

——

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#MadLiterature

Mad Pride and Neurodiversity
Personal Perspective: Parallel movements of lived experience.

https://www.psychologytoday.com/us/blog/beyond-mental-health/202312/mad-pride-and-neurodiversity?fbclid=IwAR0u8DfRIP4cLRQu_t0uA7MqwJfNTE9WQPwUFHzms7AQ7hbS9z4B226gDko_aem_Abdvn_RWjUPuiUr977ry7-2Dm1fT1OTQR4WSHVutATg7Y9n0HiugSwNLeguoMzZY_x0

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#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
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#Stories #isolation

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Desde el domingo con brote de #EncefalomielitisMiálgica y crisis de dolor neuropático. Al menos hoy duele menos al teclear.

A #MyalgicEncephalomyelitis crash (flare) and neuropathic pain crisis since Sunday. Typing hurts less but still.

#Dolor #DolorNeuropatico #DolorCronico #EMsfc #fibromialgia#Sjögen #Lupus #LES #NeuralgiaDelTrigemino #NdT #Migraña #Pain #ChronicPain #neuropathicPain #ME #MEcfs #fibromyalgia #Sjögrens #SLE #TrigeminalNervePain #TNP #Migraine

#MadLiterature
from lived experience to theory
Open access article

The Lived Experiences of Family Members and
Carers of People with Psychosis: A Bottom-Up
Review Co-Written by Experts by Experience and
Academics

https://pubmed.ncbi.nlm.nih.gov/36689938/

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#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories #isolation

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Alternative ways to understand psychiatric differences

#MadLiterature

Mind Freedom International library of information about mental health, psychiatry, human rights & alternatives

https://mindfreedom.org/knowledgebase/

thank you @leftvu
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industrial culture / capitalism depends on the “have-nots”

#MadLiterature

Lifting Families out of Poverty May Prevent Psychosis
https://www.madinamerica.com/2023/09/jama-psychiatry-lifting-families-out-of-poverty-may-prevent-psychosis/

thank you @leftvu

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Philosophy and Madness a combination that makes me smile!!!
#MadLiterature
Too mad to be true II - The promises and perils of the first-person perspective

https://www.psychiatrieenfilosofie.nl/too-mad-to-be-true-ii

The second Too Mad To Be True conference that was dedicated to exploring the various links between philosophy and madness. The atmosphere was vibrant and it initiated new ways of thinking and communicating around issues of madness and philosophy. The central theme was both relevant to philosophical and mad theories and practices: ' The promises and perils of the first-person perspective'. The conference was hybrid: both in person, in Ghent, Belgium, as well as online. 

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Sanism is normalized in relationships with institutions.
It’s not talked about.
It’s woven tightly into unquestioned assumptions (common sense knowledge)
It’s a tool for power and control.

#MadLiterature
The Wildflower Alliance

Grassroots Peer Support, Advocacy, and Training organization with a focus on harm reduction and human rights.
https://wildfloweralliance.org/

Thank you @leftvu 😍

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I don’t feel well today. I’m still exhausted from the gym yesterday despite sleeping in and having an afternoon nap. I managed to drag my ass to a recording studio for some narration work. Normally, I love reading aloud, but today was a real slog. It took me 90 minutes to do the recordings when I think it would normally take an hour to read what I did. I kept fucking up and having to re-record sections. I’m narrating coursework for a university. At least the studio is nice. Somehow, I have to remain awake for a couple more hours. I meet with a critique group today. Unfortunately, I’m unprepared. The story I’m supposed to critique only arrived in my inbox on Saturday, and I’ve been too busy/out of spoons to make many notes. Please, if you’re in a critique group, submit your story at least a week before you meet. You don’t know what the other people on the group are going through. #spoonie #CripTime #WritingCommunity #Narrator #VoiceOver #CritiqueGroup #ChronicPain

Pushing myself to find a new Dr/ pain meds is ironically making the pain I supposedly don’t have anymore even worse.

Aren’t doctors who do this shit ashamed of themselves?

#ChronicPain #Gaslight @chronicillness
@chronicpain #TrigeminalNervePain #Endometriosis #AllTheRest

#Covid #Covid19 #HouseholdDown #PoorlyCat #Fibromyalgia #CFS #CFSME #ME #Diabetic #MentalHealthDisorders #ChronicFatigue #ChronicPain #ChronicIllnesses #Exhausted

Two waves (1950s & 1970s) of systemic deinstitutionalisation and there are more “beds” than before; they just look different.

#MadLiterature

Busting the Deinstitutionalization Myth: We Actually Have More Beds Than Ever Before
New data upends common beliefs about asylum closures, deinstitutionalization, and rates of psychiatric coercion.

https://www.madinamerica.com/2023/08/busting-deinstitutionalization-myth/?utm_source=substack&utm_medium=email

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#eugenics #asylum #CarceralAbleism
#AntiBlackSanism #instutionalization

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#Stories #isolation

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Mad Crip doula: offering holistic and emotional spiritual bodymind care, mixed with practical and crisis support (and plant medicine). moving from a liberation-centered and anti-oppressive lens. a transition doula with skills in: abortion, death, grief, Madness, and Disability.

#MadLiterature

https://www.stefaniekaufman.com/madcripdoula

endorsing: non-carceral, peer-led mental health care systems that exist outside of the state, reimagining everything we’ve come to learn about madness, and intervening in systems that oppress, disappear, and kill Disabled and mad folks.

Please Note: I don’t know Them in any capacity and They sure look bad-ass

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#Stories #isolation

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@MadMovementMastodon
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Disability doula. Peer support. Social support. Physical support. Cultural roots.

#MadLiterature
Newly disabled people aren’t given a ‘how-to’ guide. Disability doulas are closing those gaps.
The community care practice, pioneered by queer women of color, reorients newly disabled people to a different life

https://19thnews.org/2023/07/disability-doulas-support-newly-disabled-people/

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@MadMovementMastodon
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Open Minded Online
sharing ideas and resources about holistic approaches to emotional and social wellbeing

We are two people who both have a great passion for holistic approaches to mental health. This passion has grown out of our own experiences of receiving traditional psychiatric treatment and finding it lacking.

We believe that it is possible to make sense of intense states of mind often described as psychosis.

#MadLiterature
https://openmindedonline.com/resources/

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#asylum #instutionalization
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#MadLiterature in progress:
RD Laing, David Cooper, Ervin Goffman, & Thomas Szaz
Interesting. History.
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#eugenics #asylum #CarceralAbleism.
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Enclosure and debilitating restriction.
Enmeshing of care & treatment & dehumanization and loss of agency.

#MadLiterature
Institutions Often Treat Disability and Mental Health Not With Care But Violence
by George Yancy
https://truthout.org/articles/institutions-often-treat-disability-and-mental-health-not-with-care-but-violence/

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#eugenics #asylum #CarceralAbleism.
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#Stories

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@MadMovementMastodon
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Nonnormativity.
Resist compulsory able-mindedness.
Chronically dysregulated.
Tenderness.
Inclusive neuroqueer feminist communities.

#MadLiterature
Neuroqueer Feminism: Turning with Tenderness toward Borderline Personality Disorder

By: Merri Lisa Johnson
https://sci-hub.ru/10.1086/712081

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#Stories

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Politics of madness;
racism. institutionalization. story of place. history of schizophrenia.
#MadLiterature
The Protest Psychosis: How Schizophrenia Became a Black Disease
by Jonathan Metzl

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What to do with the mad people?
Outta sight outta mind.
History. Treatments. Surgery. Sterilization.
#MadLiterature
The Rise and Fall of the Asylum
PBS series: Mysteries of Mental Illness
About an hour long
Aired: 06/23/21
Expires: 07/22/24
https://www.pbs.org/video/the-rise-and-fall-of-the-asylum-mbvisj/

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Super cool resource & literature. Need more time in a day!!! I just read the interview with Sofia Jeppsson
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The series is designed to provide a public venue for discussion with disabled philosophers about a range of topics, including their philosophical work on disability; the place of philosophy of disability vis-à-vis the discipline and profession; their experiences of institutional exclusion and personal and structural gaslighting in philosophy, in particular, and in academia, more generally; resistance to ableism, racism, sexism, and other apparatuses of power; accessibility; and anti-oppressive pedagogy.

#MadLiterature
BIOPOLITICAL PHILOSOPHY: Dialogues on Disability

https://biopoliticalphilosophy.com/dialogues-on-disability/

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——

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@disability
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