#chronicpain — Public Fediverse posts

An essay about how senseless abuse is reproduced within communities shaped by suffering, and the invalidation and alienation that follow when there is nowhere—socially or internally—to retreat to. #NotBornToWrite #Aphantasia #Endometriosis #Trauma #Neurodivergence #ChronicPain https://cristinagherghel.substack.com/p/not-born-for-this-world-on-aphantasia?r=6bmg7x&utm_campaign=post-expanded-share&utm_medium=web

RE: https://mastodon.social/@ellespeaks/117255430152864799

Still stalled, still sick. anything at all helps‼‼🆘️

I do not have anyone else to turn to and I am disabled and cannot work
I really need to start feeling a little better here physically.

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq

RE: https://mastodon.social/@ellespeaks/117255430152864799

Still stalled, still sick. anything at all helps‼‼🆘️

I do not have anyone else to turn to and I am disabled and cannot work
I really need to start feeling a little better here physically.

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq

RE: https://mastodon.social/@ellespeaks/117255430152864799

Still stalled, still sick. anything at all helps‼‼🆘️

I do not have anyone else to turn to and I am disabled and cannot work
I really need to start feeling a little better here physically.

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq

RE: https://mastodon.social/@ellespeaks/117255430152864799

Still stalled, still sick. anything at all helps‼‼🆘️

I do not have anyone else to turn to and I am disabled and cannot work
I really need to start feeling a little better here physically.

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq

Making a note to record that I have just taken my former full dose of painkillers for the first time in weeks. I had thought that I had weaned off them & remained functional. I had but now I'm not so functional anymore. Sigh. The future is very murky.

#chronicpain

Making a note to record that I have just taken my former full dose of painkillers for the first time in weeks. I had thought that I had weaned off them & remained functional. I had but now I'm not so functional anymore. Sigh. The future is very murky.

#chronicpain

Making a note to record that I have just taken my former full dose of painkillers for the first time in weeks. I had thought that I had weaned off them & remained functional. I had but now I'm not so functional anymore. Sigh. The future is very murky.

#chronicpain

Making a note to record that I have just taken my former full dose of painkillers for the first time in weeks. I had thought that I had weaned off them & remained functional. I had but now I'm not so functional anymore. Sigh. The future is very murky.

#chronicpain

@MutualAidBot @mutualaid

Stalled 10 days
$325 left for September

$100 - for food
$125 - for pharmacy
$50 - cell bill
$50 - co pay for pain management appt

Im diabetic, disabled and queer. I live below the poverty line and unable to work. Any help is life saving.
Thank you

V: d_fay
P: peach77

#mutualaid #disabled #disabledmutualaid #disabledartist #queer #lgbtq #spoonie @disabledvoices @disability @creativearts #mentalhealth #chronicpain #help #boost #summer #chronicillness

@MutualAidBot @mutualaid

Stalled 10 days
$325 left for September

$100 - for food
$125 - for pharmacy
$50 - cell bill
$50 - co pay for pain management appt

Im diabetic, disabled and queer. I live below the poverty line and unable to work. Any help is life saving.
Thank you

V: d_fay
P: peach77

#mutualaid #disabled #disabledmutualaid #disabledartist #queer #lgbtq #spoonie @disabledvoices @disability @creativearts #mentalhealth #chronicpain #help #boost #summer #chronicillness

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

3/

"The film does a great job of conveying the emotional experience of living with chronic illness/pain" - Christina Donnelly, Chronic Pain Ireland.

#chronicillnesses #chronicpain
@mecfs @pots @longcovid

3/

"The film does a great job of conveying the emotional experience of living with chronic illness/pain" - Christina Donnelly, Chronic Pain Ireland.

#chronicillnesses #chronicpain
@mecfs @pots @longcovid

3/

"The film does a great job of conveying the emotional experience of living with chronic illness/pain" - Christina Donnelly, Chronic Pain Ireland.

#chronicillnesses #chronicpain
@mecfs @pots @longcovid

3/

"The film does a great job of conveying the emotional experience of living with chronic illness/pain" - Christina Donnelly, Chronic Pain Ireland.

#chronicillnesses #chronicpain
@mecfs @pots @longcovid

3/

"The film does a great job of conveying the emotional experience of living with chronic illness/pain" - Christina Donnelly, Chronic Pain Ireland.

#chronicillnesses #chronicpain
@mecfs @pots @longcovid

2/
“Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

#invisibleillness #chronicallyill #chronicpain #undiagnosed

@mecfs @pots @longcovid

2/
“Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

#invisibleillness #chronicallyill #chronicpain #undiagnosed

@mecfs @pots @longcovid

2/
“Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

#invisibleillness #chronicallyill #chronicpain #undiagnosed

@mecfs @pots @longcovid

2/
“Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

#invisibleillness #chronicallyill #chronicpain #undiagnosed

@mecfs @pots @longcovid

2/
“Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

#invisibleillness #chronicallyill #chronicpain #undiagnosed

@mecfs @pots @longcovid

Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
https://www.underground-cinema.com/screening-room?wix-vod-video-id=e133c0f3001b4d09ad9e8ed8aab8c804&wix-vod-comp-id=comp-mtueb2ju

*just create a login & scroll to see Warrior Short Film until midnight Sun 13

As someone who took 5+ years to get diagnosed, sadly I can relate

#chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain

Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
https://www.underground-cinema.com/screening-room?wix-vod-video-id=e133c0f3001b4d09ad9e8ed8aab8c804&wix-vod-comp-id=comp-mtueb2ju

*just create a login & scroll to see Warrior Short Film until midnight Sun 13

As someone who took 5+ years to get diagnosed, sadly I can relate

#chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain

Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
https://www.underground-cinema.com/screening-room?wix-vod-video-id=e133c0f3001b4d09ad9e8ed8aab8c804&wix-vod-comp-id=comp-mtueb2ju

*just create a login & scroll to see Warrior Short Film until midnight Sun 13

As someone who took 5+ years to get diagnosed, sadly I can relate

#chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain

Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
https://www.underground-cinema.com/screening-room?wix-vod-video-id=e133c0f3001b4d09ad9e8ed8aab8c804&wix-vod-comp-id=comp-mtueb2ju

*just create a login & scroll to see Warrior Short Film until midnight Sun 13

As someone who took 5+ years to get diagnosed, sadly I can relate

#chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain

Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
https://www.underground-cinema.com/screening-room?wix-vod-video-id=e133c0f3001b4d09ad9e8ed8aab8c804&wix-vod-comp-id=comp-mtueb2ju

*just create a login & scroll to see Warrior Short Film until midnight Sun 13

As someone who took 5+ years to get diagnosed, sadly I can relate

#chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain

The doctor lowered my Lyrica again because of the swelling I'm still having in my legs, feet and ankles. She also added Cymbalta, because I was already having a rough time in pain from when she last lowered the Lyrica. Things have been rough. I keep having to cancel plans because I can't handle them with how much pain I'm in. Sitting sucks, walking sucks... It all sucks. #ChronicPain #ChronicIllness #Fibromyalgia

The doctor lowered my Lyrica again because of the swelling I'm still having in my legs, feet and ankles. She also added Cymbalta, because I was already having a rough time in pain from when she last lowered the Lyrica. Things have been rough. I keep having to cancel plans because I can't handle them with how much pain I'm in. Sitting sucks, walking sucks... It all sucks. #ChronicPain #ChronicIllness #Fibromyalgia

9/11 25 Years Ago Today

I still remember it like it was yesterday. The terrible terrorist attack on our country. All those innocent lives lost. Every year since I watch each and every program about it out of respect for those that lost their lives on that horrible day 25 years ago. I’ll never understand the amount of evil it took or wrap my mind around all the horror witnessed that day. So today of all days, please take the time to remember and never forget what happened to us on that terrible day. There are several stair climbing charity events across the valley and we have the “healing field” of flags representing each person who lost their life on that day at one of our bigger local parks to go walk through with a ceremony this morning and a candlelight vigil tonight. Yesterday I got a call from my doctor’s office. My lab work came back that I’m anemic and need to start taking iron. I’m going back in for an appointment on Monday morning to discuss the results of my x-rays. That will be interesting. I’ve still got my fingers crossed he’ll give me an injection of some kind to hold me over to at least make it through the Quensenara next month. The one thing I don’t want to hear is that I need a new hip or hips. I’ll cross that bridge when I get to it. Last night my daughter and son-in-law picked me up to go see the play at the high school. I had a proud Nana moment seeing both of my granddaughter’s names in the program. My oldest granddaughter had one of the bigger roles in the play and was absolutely perfect with her lines. My younger granddaughter was behind the scenes moving the set around in between scenes. My other daughter, son-in-law and one of my grandsons also met us there for the show. It was a cute play and well put together. Of course the drama teacher is still the same one my daughter had when she was in high school. He knows us and can’t believe he is teaching her kids now. I took my ½ gram of Rick Simpson Oil at 4 pm and by the time we got to the play before 7 pm I was pretty high and didn’t give all the walking we had to do a second thought. The play was not in the auditorium and instead was in the drama room with hard plastic seats. By the time I got home close to 9 pm I took a 50 mg cube of Brix THC gummy to ease the ache that was starting in my hip from those hard seats. I stretched and went to bed. This morning I plan on making the meatballs I wanted to make yesterday. My wonderful husband put the hamburger and sausage in the freezer for some reason. So when I went to make them yesterday and discovered what he did I was beyond pissed. He told me he thought I wasn’t interested in making them. WTF? Please make it make sense! Some of the things he does freaks me out. His memory isn’t where it used to be that is for sure. Today my sciatic or hip, whichever it is, is aching. I imagine sitting on that hard plastic chair for two hours last night is the reason. We’ve also got plenty of moisture in the air so that can’t be helping much either. This afternoon I’m picking up my grandson after school. Once I pick him up we are going over to the high school to pick up both of my granddaughters and take them home first. Otherwise they would be standing outside until my daughter gets off of work, my son-in-law has to work later today so I told her I’d pick them up. I’ll be out and about and it is not out of my way since they live so close to me. Plus, if you know me, I never turn down the chance to spend time with my grandchildren, even for a short car ride. It gives me a chance to catch up with what is new with them. I haven’t decided if I want to make a stop at the dispensary today, I’ve still got distillate to take for the next couple of nights or the Brix THC gummies. Maybe I’ll check to see if anyone has RSO on sale. I’ll keep you posted. As for the rest of the day I plan on taking it easy with this ache, hoping it stretches out as the day goes on. If not, I can handle the ache, it is the bone deep constant pain I don’t miss one bit. All because I chose a plant over a pill. Thank you marijuana!

9/11 25 Years Ago Today

I still remember it like it was yesterday. The terrible terrorist attack on our country. All those innocent lives lost. Every year since I watch each and every program about it out of respect for those that lost their lives on that horrible day 25 years ago. I’ll never understand the amount of evil it took or wrap my mind around all the horror witnessed that day. So today of all days, please take the time to remember and never forget what happened to us on that terrible day. There are several stair climbing charity events across the valley and we have the “healing field” of flags representing each person who lost their life on that day at one of our bigger local parks to go walk through with a ceremony this morning and a candlelight vigil tonight. Yesterday I got a call from my doctor’s office. My lab work came back that I’m anemic and need to start taking iron. I’m going back in for an appointment on Monday morning to discuss the results of my x-rays. That will be interesting. I’ve still got my fingers crossed he’ll give me an injection of some kind to hold me over to at least make it through the Quensenara next month. The one thing I don’t want to hear is that I need a new hip or hips. I’ll cross that bridge when I get to it. Last night my daughter and son-in-law picked me up to go see the play at the high school. I had a proud Nana moment seeing both of my granddaughter’s names in the program. My oldest granddaughter had one of the bigger roles in the play and was absolutely perfect with her lines. My younger granddaughter was behind the scenes moving the set around in between scenes. My other daughter, son-in-law and one of my grandsons also met us there for the show. It was a cute play and well put together. Of course the drama teacher is still the same one my daughter had when she was in high school. He knows us and can’t believe he is teaching her kids now. I took my ½ gram of Rick Simpson Oil at 4 pm and by the time we got to the play before 7 pm I was pretty high and didn’t give all the walking we had to do a second thought. The play was not in the auditorium and instead was in the drama room with hard plastic seats. By the time I got home close to 9 pm I took a 50 mg cube of Brix THC gummy to ease the ache that was starting in my hip from those hard seats. I stretched and went to bed. This morning I plan on making the meatballs I wanted to make yesterday. My wonderful husband put the hamburger and sausage in the freezer for some reason. So when I went to make them yesterday and discovered what he did I was beyond pissed. He told me he thought I wasn’t interested in making them. WTF? Please make it make sense! Some of the things he does freaks me out. His memory isn’t where it used to be that is for sure. Today my sciatic or hip, whichever it is, is aching. I imagine sitting on that hard plastic chair for two hours last night is the reason. We’ve also got plenty of moisture in the air so that can’t be helping much either. This afternoon I’m picking up my grandson after school. Once I pick him up we are going over to the high school to pick up both of my granddaughters and take them home first. Otherwise they would be standing outside until my daughter gets off of work, my son-in-law has to work later today so I told her I’d pick them up. I’ll be out and about and it is not out of my way since they live so close to me. Plus, if you know me, I never turn down the chance to spend time with my grandchildren, even for a short car ride. It gives me a chance to catch up with what is new with them. I haven’t decided if I want to make a stop at the dispensary today, I’ve still got distillate to take for the next couple of nights or the Brix THC gummies. Maybe I’ll check to see if anyone has RSO on sale. I’ll keep you posted. As for the rest of the day I plan on taking it easy with this ache, hoping it stretches out as the day goes on. If not, I can handle the ache, it is the bone deep constant pain I don’t miss one bit. All because I chose a plant over a pill. Thank you marijuana!

9/11 25 Years Ago Today

I still remember it like it was yesterday. The terrible terrorist attack on our country. All those innocent lives lost. Every year since I watch each and every program about it out of respect for those that lost their lives on that horrible day 25 years ago. I’ll never understand the amount of evil it took or wrap my mind around all the horror witnessed that day. So today of all days, please take the time to remember and never forget what happened to us on that terrible day. There are several stair climbing charity events across the valley and we have the “healing field” of flags representing each person who lost their life on that day at one of our bigger local parks to go walk through with a ceremony this morning and a candlelight vigil tonight. Yesterday I got a call from my doctor’s office. My lab work came back that I’m anemic and need to start taking iron. I’m going back in for an appointment on Monday morning to discuss the results of my x-rays. That will be interesting. I’ve still got my fingers crossed he’ll give me an injection of some kind to hold me over to at least make it through the Quensenara next month. The one thing I don’t want to hear is that I need a new hip or hips. I’ll cross that bridge when I get to it. Last night my daughter and son-in-law picked me up to go see the play at the high school. I had a proud Nana moment seeing both of my granddaughter’s names in the program. My oldest granddaughter had one of the bigger roles in the play and was absolutely perfect with her lines. My younger granddaughter was behind the scenes moving the set around in between scenes. My other daughter, son-in-law and one of my grandsons also met us there for the show. It was a cute play and well put together. Of course the drama teacher is still the same one my daughter had when she was in high school. He knows us and can’t believe he is teaching her kids now. I took my ½ gram of Rick Simpson Oil at 4 pm and by the time we got to the play before 7 pm I was pretty high and didn’t give all the walking we had to do a second thought. The play was not in the auditorium and instead was in the drama room with hard plastic seats. By the time I got home close to 9 pm I took a 50 mg cube of Brix THC gummy to ease the ache that was starting in my hip from those hard seats. I stretched and went to bed. This morning I plan on making the meatballs I wanted to make yesterday. My wonderful husband put the hamburger and sausage in the freezer for some reason. So when I went to make them yesterday and discovered what he did I was beyond pissed. He told me he thought I wasn’t interested in making them. WTF? Please make it make sense! Some of the things he does freaks me out. His memory isn’t where it used to be that is for sure. Today my sciatic or hip, whichever it is, is aching. I imagine sitting on that hard plastic chair for two hours last night is the reason. We’ve also got plenty of moisture in the air so that can’t be helping much either. This afternoon I’m picking up my grandson after school. Once I pick him up we are going over to the high school to pick up both of my granddaughters and take them home first. Otherwise they would be standing outside until my daughter gets off of work, my son-in-law has to work later today so I told her I’d pick them up. I’ll be out and about and it is not out of my way since they live so close to me. Plus, if you know me, I never turn down the chance to spend time with my grandchildren, even for a short car ride. It gives me a chance to catch up with what is new with them. I haven’t decided if I want to make a stop at the dispensary today, I’ve still got distillate to take for the next couple of nights or the Brix THC gummies. Maybe I’ll check to see if anyone has RSO on sale. I’ll keep you posted. As for the rest of the day I plan on taking it easy with this ache, hoping it stretches out as the day goes on. If not, I can handle the ache, it is the bone deep constant pain I don’t miss one bit. All because I chose a plant over a pill. Thank you marijuana!

9/11 25 Years Ago Today

I still remember it like it was yesterday. The terrible terrorist attack on our country. All those innocent lives lost. Every year since I watch each and every program about it out of respect for those that lost their lives on that horrible day 25 years ago. I’ll never understand the amount of evil it took or wrap my mind around all the horror witnessed that day. So today of all days, please take the time to remember and never forget what happened to us on that terrible day. There are several stair climbing charity events across the valley and we have the “healing field” of flags representing each person who lost their life on that day at one of our bigger local parks to go walk through with a ceremony this morning and a candlelight vigil tonight. Yesterday I got a call from my doctor’s office. My lab work came back that I’m anemic and need to start taking iron. I’m going back in for an appointment on Monday morning to discuss the results of my x-rays. That will be interesting. I’ve still got my fingers crossed he’ll give me an injection of some kind to hold me over to at least make it through the Quensenara next month. The one thing I don’t want to hear is that I need a new hip or hips. I’ll cross that bridge when I get to it. Last night my daughter and son-in-law picked me up to go see the play at the high school. I had a proud Nana moment seeing both of my granddaughter’s names in the program. My oldest granddaughter had one of the bigger roles in the play and was absolutely perfect with her lines. My younger granddaughter was behind the scenes moving the set around in between scenes. My other daughter, son-in-law and one of my grandsons also met us there for the show. It was a cute play and well put together. Of course the drama teacher is still the same one my daughter had when she was in high school. He knows us and can’t believe he is teaching her kids now. I took my ½ gram of Rick Simpson Oil at 4 pm and by the time we got to the play before 7 pm I was pretty high and didn’t give all the walking we had to do a second thought. The play was not in the auditorium and instead was in the drama room with hard plastic seats. By the time I got home close to 9 pm I took a 50 mg cube of Brix THC gummy to ease the ache that was starting in my hip from those hard seats. I stretched and went to bed. This morning I plan on making the meatballs I wanted to make yesterday. My wonderful husband put the hamburger and sausage in the freezer for some reason. So when I went to make them yesterday and discovered what he did I was beyond pissed. He told me he thought I wasn’t interested in making them. WTF? Please make it make sense! Some of the things he does freaks me out. His memory isn’t where it used to be that is for sure. Today my sciatic or hip, whichever it is, is aching. I imagine sitting on that hard plastic chair for two hours last night is the reason. We’ve also got plenty of moisture in the air so that can’t be helping much either. This afternoon I’m picking up my grandson after school. Once I pick him up we are going over to the high school to pick up both of my granddaughters and take them home first. Otherwise they would be standing outside until my daughter gets off of work, my son-in-law has to work later today so I told her I’d pick them up. I’ll be out and about and it is not out of my way since they live so close to me. Plus, if you know me, I never turn down the chance to spend time with my grandchildren, even for a short car ride. It gives me a chance to catch up with what is new with them. I haven’t decided if I want to make a stop at the dispensary today, I’ve still got distillate to take for the next couple of nights or the Brix THC gummies. Maybe I’ll check to see if anyone has RSO on sale. I’ll keep you posted. As for the rest of the day I plan on taking it easy with this ache, hoping it stretches out as the day goes on. If not, I can handle the ache, it is the bone deep constant pain I don’t miss one bit. All because I chose a plant over a pill. Thank you marijuana!

The writing progress has been slow lately as I haven't been feeling so good. 😒

#AmWriting #Indie #IndieAuthor #Writing
#Retired #With #ChronicPain #ChronicIllness

The writing progress has been slow lately as I haven't been feeling so good. 😒

#AmWriting #Indie #IndieAuthor #Writing
#Retired #With #ChronicPain #ChronicIllness

The writing progress has been slow lately as I haven't been feeling so good. 😒

#AmWriting #Indie #IndieAuthor #Writing
#Retired #With #ChronicPain #ChronicIllness

The writing progress has been slow lately as I haven't been feeling so good. 😒

#AmWriting #Indie #IndieAuthor #Writing
#Retired #With #ChronicPain #ChronicIllness

$0/$50 - co pay due 9/3 ⚠️
$50/$200 - September food

Anything helps! Im disabled, queer and have no support. Living below the poverty line. I appreciate any help at all 💕

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq @queer

Hey fedi friends, long shot but does anyone have experience with Buprenorphine patches for long term #painmanagement and have any tips?

My doctor didn’t tell me annnnything and I’m trying to avoid Dr. Google :blobfoxgooglytrash:

#askfedi #chronicpain

RE: https://mastodon.social/@ellespeaks/117136737602448332

$25/$400 - $375 to go for fundraising portion

15 more people sending $25 each will get me to my goal. I do not have any one else to fall back on. I cannot work due to disabilities

Any help is so appreciated

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #disabled #spoonie #queer #lgbtq #tech #chronicillness #chronicpain #directaid #helpneeded @[email protected] @[email protected] @directaid @queer @lgbtq @disabledvoices @disability @spoonie @creativearts #creative #gofundme #boost

For those of you following about my most recent emergency hospital stay, operation due to more kidney stones, discovering kidney injury, and placement of stent:

I'm still waiting for news of when my next operation is. I'm managing reasonably well with the stent, although pain is quite high, causing additional issues with my fibro. The combination of meds are making me drowsy, brain foggy on top of fibro fog, and giving me some digestive issues. Overall, could be worse, so I'm hanging in there. Joys of disabled life😁
#kidney #disabledlife #disabled #kidneystones #chronicillness #chronicpain

https://www.europesays.com/ie/625462/ New review explores purinergic signaling pathways in osteoarthritis progression #Arthritis #Bone #Cartilage #Cell #CellBiology #Chronic #ChronicPain #Disability #Éire #Gene #Genes #Health #IE #inflammation #Ireland #JointInflammation #Osteoarthritis #Pain #Pathophysiology #Receptor #Research

Melatonin Offers Modest Relief for Chronic Muscle and Joint Pain

📰 Original title: Melatonin may have a modest effect on chronic joint and muscle pain

🤖 IA: It's not clickbait ✅
👥 Users: It's not clickbait ✅

View full AI summary https://en.killbait.com/melatonin-offers-modest-relief-for-chronic-muscle-and-joint-pain.html?utm_source=mastodon_world&utm_medium=social&utm_campaign=killbait.mastodon_world

#health #chronicpain #melatonin #painmanagement

The #Finch app said I should "doodle a quick self-portrait" today.

I don't like looking at my face, and I suck at drawing human faces.

So I did... Depictions instead.

#depression #indecision #Fibromyalgia #ChronicPain #doodle #sketch

What’s something healthy people take for granted that you think about every day?

For me, it’s the tiny everyday things that aren’t tiny anymore.

Showering.
Leaving the house.
Standing in line.
Making plans.
Doing one “normal” thing without calculating the recovery cost.

Chronic illness changes the way you move through the world.

What’s one thing you wish people understood?

#ChronicIllness #ChronicPain #SpoonieLife #InvisibleIllness #DisabledLife #ChronicIllnessAwareness #Pacing

Migraine, Perception, and Creative Flow

Living Inside A Migraine

When pain, perception, and medication reshape daily life

I’ve been dealing with a migraine for nine days. This isn’t just a headache—it comes with aura, Alice in Wonderland syndrome, and persistent vertigo with nausea. My perception gets distorted, my thinking slows down, and basic tasks become difficult. The medication helps with the pain, but it brings its own side effects, and overall, it’s been hard to function.

In the middle of this, something unexpected happened.

A Brief Shift in State

Unexpected focus and creative flow during disruption

While I was heavily medicated, I had a period of intense creative focus. For a few hours, I was able to paint with a level of freedom that I don’t usually reach. It felt like my usual mental filters were lowered. I wasn’t second‑guessing decisions or holding back. I just worked.

The result was different from my normal work—more direct, less controlled, but also more expressive.

This raised a question for me: what actually changed in that moment?

Changes in Perception

How migraine and medication alter access, not ability

Triptans, the medication I use for acute migraine attacks, act on serotonin receptors. They’re not psychedelics, but they do affect how the brain processes signals. Combined with the migraine itself—especially aura, which already alters perception—the overall effect is a shift in how I experience space, color, and thought.

That shift isn’t comfortable. Most of it is disorienting and unpleasant. But within it, there was a brief window where my usual patterns loosened. And in that space, creative work felt easier.

Access, Not Creation

The work was already there—the conditions just changed

It’s important to be clear: the migraine didn’t “create” anything. The creativity was already there. What changed was how accessible it felt. The conditions removed some of the internal constraints I usually work within—habits, expectations, and self‑editing.

That’s not something I want to rely on. The cost is too high. But it does point to something useful.

If a change in mental state can affect how I access creativity, then there may be other ways to reach similar openness without the physical toll. It suggests that part of my creative process is limited not by ability, but by structure—how tightly I control the outcome, how much I filter while working.

There’s also a broader connection here. Decades ago, I had experiences with psychedelics that shifted how I saw the world and myself. Those experiences helped me let go of a lot of fear and rigidity. I don’t return to them now, but the perspective they opened up has stayed with me.

That perspective has been important in dealing with chronic migraine. The pain itself isn’t optional, but my response to it isn’t fixed. Over time, I’ve learned to manage the mental side of it—how much resistance I bring to it, how I interpret it, and how I move through it. That doesn’t eliminate suffering, but it changes its intensity and impact.

The recent experience fits into that same pattern. Even in a difficult state, there was a moment where something shifted—not into relief exactly, but into clarity of a different kind.

For me, the takeaway isn’t about the medication or the migraine. It’s about access.

The kind of creative flow I felt isn’t something external that I need to recreate through extreme conditions. It’s something internal that I was briefly able to reach under unusual circumstances.

Openness and Letting Go

When the boundary between experience and experiencer softens

There’s also a quality in that state that’s familiar from meditation. It’s a kind of openness where the usual sense of separation starts to fade. Instead of feeling like an observer acting on an experience, there’s just the experience itself—no clear boundary between the one perceiving and what’s being perceived. In that space, the need to control or interpret loosens, and the work unfolds more directly, without the usual distance between intention and action.

Working with Pain

Perspective, resistance, and what can shift

Another layer to this is perspective. The difference between being overwhelmed by the experience and moving through it often comes down to how it’s held. I wrote previously about the Four Noble Truths and the Eightfold Path as a framework for navigating chronic pain from migraine and lupus. What stands out to me now is how practical that framework is—not as philosophy, but as a way of adjusting perspective in real time.

When The Pain Takes Over

A reminder that practice isn’t always accessible

Pain is present. That part isn’t optional. But the added weight—resistance, fear, frustration—can shift depending on how tightly I hold the experience. That said, this isn’t always accessible. There are moments when the pain takes over completely. Last night was one of those times. I woke up in the middle of the night in severe pain after my first medication didn’t work. I couldn’t find my stronger medication, didn’t have my glasses, and ended up searching through cabinets, drawers, and bags in a panic. I knew that without it, I might end up in the ER—where the treatment helps, but comes with hours of discomfort and side effects. I was overwhelmed, in tears, and scared.

In moments like that, there isn’t much space for perspective or practice. But experiences like this also make something clear to me: without meditation, without the framework I’ve built from Buddhist practice, I would likely be living in that state of panic much more often. My commotion woke up my husband, who came in—calm, steady, not caught in the panic I was in. He found the medication, and he cleaned up the mess I had made searching as I went back to bed. That contrast stood out. It reminded me that while I can’t always access those tools in the moment, they still shape how I move through these experiences over time.

Returning to Openness

Creative flow, meditation, and another way of relating to experience

It’s not easy to stay open in the middle of persistent pain. In those moments, it’s hard to remember that the pain will pass—that it isn’t permanent. Pain forces attention into the present, but not calmly or intentionally. It can narrow everything down to urgency and survival. At the same time, it can act as a kind of teacher. It shows where resistance builds, where fear takes hold, and how quickly the mind tries to escape what’s happening. When I’m able to step back, even slightly, I can see it less as something to fight and more as something that reveals how I relate to experience.

What I keep coming back to is this: the experience changes depending on how I meet it. Not completely, not all at once, but enough to matter. And in those moments of openness, there is less separation—and a little more space for things to be as they are.

I painted this over six hours while medicated for a migraine, drifting in and out of focus. The haze loosened my usual self‑judgment, and the work shifted into something more fluid and intuitive. It’s not complete, but the evolution itself tells the story.