#chronicpain — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #chronicpain, aggregated by home.social.
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I have to believe that good things happen and that they can happen to me.
$2162 to go and I need it right away!
Please help all you can.
https://chuffed.org/project/blessks
v: skillingmesoftly
p: kshernandezinc#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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I have to believe that good things happen and that they can happen to me.
$2162 to go and I need it right away!
Please help all you can.
https://chuffed.org/project/blessks
v: skillingmesoftly
p: kshernandezinc#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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I have to believe that good things happen and that they can happen to me.
$2162 to go and I need it right away!
Please help all you can.
https://chuffed.org/project/blessks
v: skillingmesoftly
p: kshernandezinc#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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I have to believe that good things happen and that they can happen to me.
$2162 to go and I need it right away!
Please help all you can.
https://chuffed.org/project/blessks
v: skillingmesoftly
p: kshernandezinc#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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I have to believe that good things happen and that they can happen to me.
$2162 to go and I need it right away!
Please help all you can.
https://chuffed.org/project/blessks
v: skillingmesoftly
p: kshernandezinc#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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RE: https://mastodon.social/@ellespeaks/117271041546276204
Please help! Anything helps
Stalled for 12 days@[email protected] @[email protected] @disabledvoices
@povertyandinequality#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid
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RE: https://mastodon.social/@ellespeaks/117271041546276204
Please help! Anything helps
Stalled for 12 days@[email protected] @[email protected] @disabledvoices
@povertyandinequality#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid
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RE: https://mastodon.social/@ellespeaks/117271041546276204
Please help! Anything helps
Stalled for 12 days@[email protected] @[email protected] @disabledvoices
@povertyandinequality#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid
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RE: https://mastodon.social/@ellespeaks/117271041546276204
Please help! Anything helps
Stalled for 12 days@[email protected] @[email protected] @disabledvoices
@povertyandinequality#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid
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RE: https://mastodon.social/@ellespeaks/117255430152864799
Still stalled at $0!
I am grateful for any help as ive had congestion for over 10 days.
(Dr says antibiotics wont help i just had an x ray to check for pneumonia).V d_fay
P peach77#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid
@disabledvoices
@directaid @mutualaid -
An essay about how senseless abuse is reproduced within communities shaped by suffering, and the invalidation and alienation that follow when there is nowhere—socially or internally—to retreat to. #NotBornToWrite #Aphantasia #Endometriosis #Trauma #Neurodivergence #ChronicPain https://cristinagherghel.substack.com/p/not-born-for-this-world-on-aphantasia?r=6bmg7x&utm_campaign=post-expanded-share&utm_medium=web
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RE: https://mastodon.social/@ellespeaks/117255430152864799
Still stalled, still sick. anything at all helps‼‼🆘️
I do not have anyone else to turn to and I am disabled and cannot work
I really need to start feeling a little better here physically.V: d_fay
Pp: peach77#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq
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RE: https://mastodon.social/@ellespeaks/117255430152864799
Still stalled, still sick. anything at all helps‼‼🆘️
I do not have anyone else to turn to and I am disabled and cannot work
I really need to start feeling a little better here physically.V: d_fay
Pp: peach77#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq
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RE: https://mastodon.social/@ellespeaks/117255430152864799
Still stalled, still sick. anything at all helps‼‼🆘️
I do not have anyone else to turn to and I am disabled and cannot work
I really need to start feeling a little better here physically.V: d_fay
Pp: peach77#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq
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RE: https://mastodon.social/@ellespeaks/117255430152864799
Still stalled, still sick. anything at all helps‼‼🆘️
I do not have anyone else to turn to and I am disabled and cannot work
I really need to start feeling a little better here physically.V: d_fay
Pp: peach77#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq
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Polly Patterson - Supporting Clients Through Medical Gaslighting
https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/
Screenshot from latest edition of the Chronic Living Therapy email bulletin
#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll -
Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
https://www.underground-cinema.com/screening-room?wix-vod-video-id=e133c0f3001b4d09ad9e8ed8aab8c804&wix-vod-comp-id=comp-mtueb2ju*just create a login & scroll to see Warrior Short Film until midnight Sun 13
As someone who took 5+ years to get diagnosed, sadly I can relate
#chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain
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How To Design #Inclusive #CommunityGardens For All Abilities
by Kristian Angelov, Last Updated June 10, 2026
"An inclusive community garden works when people can arrive, move through the site, reach the soil, use water, rest, understand the rules, join workdays, and harvest with dignity. A garden can have wide paths and still exclude people if the gate is hard to open, the hose is heavy, all beds are low to the ground, signs use tiny print, or meetings happen at times that conflict with caregiving and shift work.
"Designing for all abilities means treating #accessibility as a whole garden system. Paths, beds, tool sheds, water points, seating, shade, compost areas, harvest tables, volunteer schedules, and decision processes all shape who can participate. Welcoming gardens reduce unnecessary effort so more people can stay involved in the activity.
"A shared growing space should give #wheelchair users, older adults, children, people with #LowVision, #NeurodivergentGardeners, people with #ChronicPain or #fatigue, new gardeners, caregivers, and neighbors with different languages or schedules a usable way to belong.
Key Takeaways
- Inclusive community garden design starts with the full route from street, transit, parking, or sidewalk to every shared task.
- Paths need firm surfaces, clear width, turning space, drainage, edge cues, and maintenance after storms.
- #RaisedBeds, #TabletopBeds, containers, vertical planters, and ground plots should work together so gardeners can choose the posture that fits them.
- Water, tools, compost, signs, seating, shade, and harvest areas need the same access planning as growing beds.
- Sensory and cognitive access matter: clear routes, predictable rules, quiet zones, tactile cues, pictograms, and low-overload work options expand participation.
- Community process is part of the design because schedules, plot rules, language access, and conflict systems decide who stays involved."Learn more:
https://gardeninsider.org/gardening/stress-reduction/designing-inclusive-community-gardens/#SolarPunkSunday #CommunityGardening #AccessibleGardens #Inclusivity #Accessibility #BuildingCommunity
#SensoryPlants #SpendTimeInNature -
CW: Suicide, mental illness
“Mother’s Day”
Today my dad will call my mom
And thank her for my existence
I do not thank her for it
But I can’t say that aloud
I am not suicidal!
But I am always terrified or unhappy
Maybe not always
How often do you feel hopeless, like you would be better off dead?
Most days, some days, or not at all?
I roll the question around in my brain
Some days.
I don’t want to die.
Actually I’m terrified of death
I want to live so badly
I want to experience everything
Fear and chronic symptoms
That’s what holds me back
Today my dad will call my mom
To thank her for my existence
Today I will take several pills
They keep me here
But they don’t fix me.
#Ramblings #poem #spoonie #disabled #anxiety-disorder #depression #chronic-pain -
CW: Suicide, mental illness
“Mother’s Day”
Today my dad will call my mom
And thank her for my existence
I do not thank her for it
But I can’t say that aloud
I am not suicidal!
But I am always terrified or unhappy
Maybe not always
How often do you feel hopeless, like you would be better off dead?
Most days, some days, or not at all?
I roll the question around in my brain
Some days.
I don’t want to die.
Actually I’m terrified of death
I want to live so badly
I want to experience everything
Fear and chronic symptoms
That’s what holds me back
Today my dad will call my mom
To thank her for my existence
Today I will take several pills
They keep me here
But they don’t fix me.
#Ramblings #poem #spoonie #disabled #anxiety-disorder #depression #chronic-pain -
CW: Suicide, mental illness
“Mother’s Day”
Today my dad will call my mom
And thank her for my existence
I do not thank her for it
But I can’t say that aloud
I am not suicidal!
But I am always terrified or unhappy
Maybe not always
How often do you feel hopeless, like you would be better off dead?
Most days, some days, or not at all?
I roll the question around in my brain
Some days.
I don’t want to die.
Actually I’m terrified of death
I want to live so badly
I want to experience everything
Fear and chronic symptoms
That’s what holds me back
Today my dad will call my mom
To thank her for my existence
Today I will take several pills
They keep me here
But they don’t fix me.
#Ramblings #poem #spoonie #disabled #anxiety-disorder #depression #chronic-pain -
The science of unlearning pain: A new German approach to chronic suffering.
Chronic pain affects millions and often resists medical treatment.
German researchers are exploring how the brain’s pain matrix can be retrained, offering hope to those trapped in cycles of constant pain.
#ChronicPain #Health #Healthcare #Brain #Painkillers #Biology #Psychology #Science
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Why do we ‘age’ & what to do about it. #fitness
https://www.youtube.com/channel/UCHU76n84QBkTKnihFUyz7jgIn this video Tommy gives some detail on exactly how and why we become effected by aging. Why are we more susceptible to disease and decline. #injuryrecovery #chronicpain #painmanagement #aging #aginggracefully from Pain & Performance Clinic
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2025-8-17 The water isn’t the whole picture… but what is?
https://www.illmarks.com/2025-8-17-the-water-isnt-the-whole-picture-but-what-is/
#allergen #allergy #art #autoimmune #bodyHorror #bodyMapping #chronicIllness #chronicPain #chronicIllness #chronicPain #dermatology #longCovid #longcovid #mastCell #mcas #meCfs #mecfs #medart #medical #medicalArt #medicine #migraine #MillionsMissing #pwLC #pwme #rash #rheumatology #SciArt #sciartseptember #water
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Worst part about having once #LowBackPain:
It always looms around you, to hit you back when you worst expect it.
This time, same place, but the other side. Kudos to the fucking restaurant bathroom with their inclined seat.
#Health #LBP #LowBack #Back #Sitting #Sit #BackPain #Pain #TreatmentOptions #ChronicPain #BackPainRelief #Medical #Doctor #MedicalSchience #Spine #Traumatologist #Traumatology
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BLOG | Time Has No Meaning... Neither Does Life
Everything is too much and too little...
https://delphinemusic.wordpress.com/2024/12/05/time-has-no-meaning/ #Abscess, #Anguish, #autism #Autistc , #AutisticBurnout, #ChronicConditions, #ChronicIllness #chronicpain #Degrading #Depression #Despair #Destroyed, #Devastated, #Disabilities, #Disability #Disabled, #Distraught, #Distress, #Distressed, #Fibromyalgia, #Fibroplegia, #FND, #Health, #Healthcare, #Incontinence, #livingwithdisability #MentalHealth, #neuropathicpain #Shame
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Feeling very poorly (quelle surprise!) so I tried for a nap.
The boys joined me, making the day's heat even worse.
I left them to watch birds in the snow. It worked… for a bit.
I had a cold shower - all three cats now camped outside the bathroom door.
No matter what happens, at least they love me.
#Cats #CatsOfMastodon #ChronicPain #Disabled #Exhausted #IndoorCats #ActuallyAutistic
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Cats in crocheted hats!!! For science.
L’université de Montréal researchers find a cute, more ethical and effective way to find out what’s going on in cats brains with EEGs.
“In a world first, researchers devised a way to non-invasively scan the brains of awake cats — instead of drilling electrodes into their skulls.”
Woke up to this cheering story about a new smart and kind way to study cats’ experiences of chronic pain and alternative ways to soothe it.
‘ “We knew that crochet hats only existed to be cute and we wanted to adapt them to our scientific purpose,” Delsart told the Star. “A successful bet!”
Another student and ardent crocheter in their lab got to work knitting the hats, into which were embedded ten gold-plated EEG electrodes.’
#Cats #Mastocats #Caturday #Crafting #Crochet #Yarn #YarnCrafts #ChronicPain #ResearchOnAnimals #VeterinaryCare #Veterinary #Arthritis #LUniversitéDeMontréal #Québec #Canada
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👋🏽 #GoodMorning from my home #studio! ✒️🎨👗🏙️💙🧃☕️🕯️☺️
Up last night with #ChronicConditions symptoms but when #sunlight arrived this #morning I felt inspired 😍🙏🏽😍
Symptoms gone? Heck no! 😝
Yet #inspiration goes a long, LONG way 🙌🏽
Sharing the good vibes! 🥳
#art #coffee #PlantBased #photo #photography #Glasgow #Scotland #HomeOffice #wellbeing #wellness #ChronicIllness #disability #ChronicPain #Migraine #POTS #MECFS #pwME #Dysautonomia #health #MentalHealth
@chronicillness @mecfs -
🙌🏽🥳 Ahhh, the elation of simply not feeling *absolutely terrible*!
I dedicate this special moment (passing as it might be 😝) to folks out there also with #ChronicConditions (1 or 10+ of them 😂) 🤙🏽
You rock, *even if / when you don't feel like it*! 🤘🏽
#wellbeing #wellness #ChronicIllness #disability #disabilities #ChronicPain #Migraine #POTS #MECFS #CFS #MyalgicEncephalomyelitis #EhlersDanlosSyndrome #Hypermobility #Dysautonomia #health #MentalHealth
@chronicillness @mecfs -
#TheMetalDogArticleList
#BLABBERMOUTH
OZZY OSBOURNE Says He 'Can't Have Any More Surgery': 'I Had Seven Surgeries In Five Years'#OzzyOsbourne
#Surgery
#Health
#Musician
#Injury
#Performing
#Recovery
#ChronicPain
#Treatment
#FamilySupport
#TriumphOverAdversity -
CW: CW: No GP will help / ME, disabled despair
#Boost please
GPs in clinics are waiting for me to:
1. Go into #agedcare (I’m not aged.)
2. To see a #GP (Who works in their clinic.)
3. Because I don’t fit their business model. (They won’t #homevisit or #Telehealth me even if I see them once.)Yes they literally said this.
(So I am too sick to help now, but as a younger person in aged care I wouldn’t be?….???!!! What???)
Someone help me! 😭
@mecfs
@chronicpain @chronicillness
#PwME #MEAwarenesshour #MECFS #ChronicPain
#ChronicIllness #PwLC
#Healthcare #MedMastodon
#Australia #Medicine #PatientRights #doctor -
#Boost please
GPs in clinics are waiting for me to:
1. Go into #agedcare (I’m not aged.)
2. To see a #GP (Who works in their clinic.)
3. Because I don’t fit their business model. (They won’t #homevisit or #Telehealth me even if I see them once.)Yes they literally said this.
Someone help me! 😭
@mecfs
@chronicpain @chronicillness
@disabilityjustice
#PwME #MEAwarenesshour #MECFS #ChronicPain
#ChronicIllness #PwLC
#Healthcare #MedMastodon
#Australia #Disability #PatientRights #Accessibility -
Good morning. I woke up about 5:30 am after getting just over six hours sleep. Another night of interrupted sleep.
Between "She Who Must Be Obeyed" (bladder) and lower leg cramps from yesterday's outing, it was a fun night. For some definitions of fun.
My neck is hurting. I guess I slept wrong. My lower intestines are cramping. And my nose is stuffy.
OTC Meds are on board.
Have a blessed day.
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question: does anyone know if any neurologists or headache experts would be interested in my notes and observations surrounding my migraines? like in an scientific/academic sense?
one of my scientist friends who i shared them with said i should consider reaching out to somebody since theyre so in-depth and ive been documenting my migraines for years. but idk how to do that or if there would actually be any interest lol
boosts appreciated! 🙏
#askFedi #askFediverse #askMastodon #neurology #MigraineChat #migraine #migraines #chronicMigraine #chronicMigraines #chronicPain #chronicIllness -
Wide awake tonight because I slept until 3:00 PM yesterday and spent a lot of the rest of the day in bed. Just doing stuff on my computer. Had a rough day with #headaches, sound sensitivity, and whooshing in ears from #IIH (high pressure in skull), neck pain, and #fatigue. Lol actually wanted to go back to sleep but headache meds didn't knock me out like they usually do. Anyone else awake? #NEISvoid #ChronicIllness #ChronicPain
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A few updates, so I'll post a few times instead of trying to cram them into 500 characters. Had to stop wearing the soft neck collar. It was somehow making the high pressure in my skull from #IIH worse, so my #headaches and the whooshing I hear in my ears sometimes got worse. I was in a lot of pain for a couple of days until my mom figured out what was wrong and told me to take the collar off. Luckily, I have my first #physicaltherapy appointment on Monday. #NEISvoid #ChronicIllness #ChronicPain