#chronicpain — Public Fediverse posts

RE: https://mastodon.social/@ellespeaks/117271041546276204

Please help! Anything helps
Stalled for 12 days

@[email protected] @[email protected] @disabledvoices
@povertyandinequality

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid

RE: https://mastodon.social/@ellespeaks/117255430152864799

Still stalled at $0!

I am grateful for any help as ive had congestion for over 10 days.
(Dr says antibiotics wont help i just had an x ray to check for pneumonia).

V d_fay
P peach77

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid
@disabledvoices
@directaid @mutualaid

An essay about how senseless abuse is reproduced within communities shaped by suffering, and the invalidation and alienation that follow when there is nowhere—socially or internally—to retreat to. #NotBornToWrite #Aphantasia #Endometriosis #Trauma #Neurodivergence #ChronicPain https://cristinagherghel.substack.com/p/not-born-for-this-world-on-aphantasia?r=6bmg7x&utm_campaign=post-expanded-share&utm_medium=web

RE: https://mastodon.social/@ellespeaks/117255430152864799

Still stalled, still sick. anything at all helps‼‼🆘️

I do not have anyone else to turn to and I am disabled and cannot work
I really need to start feeling a little better here physically.

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq

RE: https://mastodon.social/@ellespeaks/117255430152864799

Still stalled, still sick. anything at all helps‼‼🆘️

I do not have anyone else to turn to and I am disabled and cannot work
I really need to start feeling a little better here physically.

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq

RE: https://mastodon.social/@ellespeaks/117255430152864799

Still stalled, still sick. anything at all helps‼‼🆘️

I do not have anyone else to turn to and I am disabled and cannot work
I really need to start feeling a little better here physically.

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq

RE: https://mastodon.social/@ellespeaks/117255430152864799

Still stalled, still sick. anything at all helps‼‼🆘️

I do not have anyone else to turn to and I am disabled and cannot work
I really need to start feeling a little better here physically.

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq

Making a note to record that I have just taken my former full dose of painkillers for the first time in weeks. I had thought that I had weaned off them & remained functional. I had but now I'm not so functional anymore. Sigh. The future is very murky.

#chronicpain

Making a note to record that I have just taken my former full dose of painkillers for the first time in weeks. I had thought that I had weaned off them & remained functional. I had but now I'm not so functional anymore. Sigh. The future is very murky.

#chronicpain

Making a note to record that I have just taken my former full dose of painkillers for the first time in weeks. I had thought that I had weaned off them & remained functional. I had but now I'm not so functional anymore. Sigh. The future is very murky.

#chronicpain

Making a note to record that I have just taken my former full dose of painkillers for the first time in weeks. I had thought that I had weaned off them & remained functional. I had but now I'm not so functional anymore. Sigh. The future is very murky.

#chronicpain

@MutualAidBot @mutualaid

Stalled 10 days
$325 left for September

$100 - for food
$125 - for pharmacy
$50 - cell bill
$50 - co pay for pain management appt

Im diabetic, disabled and queer. I live below the poverty line and unable to work. Any help is life saving.
Thank you

V: d_fay
P: peach77

#mutualaid #disabled #disabledmutualaid #disabledartist #queer #lgbtq #spoonie @disabledvoices @disability @creativearts #mentalhealth #chronicpain #help #boost #summer #chronicillness

@MutualAidBot @mutualaid

Stalled 10 days
$325 left for September

$100 - for food
$125 - for pharmacy
$50 - cell bill
$50 - co pay for pain management appt

Im diabetic, disabled and queer. I live below the poverty line and unable to work. Any help is life saving.
Thank you

V: d_fay
P: peach77

#mutualaid #disabled #disabledmutualaid #disabledartist #queer #lgbtq #spoonie @disabledvoices @disability @creativearts #mentalhealth #chronicpain #help #boost #summer #chronicillness

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

3/

"The film does a great job of conveying the emotional experience of living with chronic illness/pain" - Christina Donnelly, Chronic Pain Ireland.

#chronicillnesses #chronicpain
@mecfs @pots @longcovid

3/

"The film does a great job of conveying the emotional experience of living with chronic illness/pain" - Christina Donnelly, Chronic Pain Ireland.

#chronicillnesses #chronicpain
@mecfs @pots @longcovid

3/

"The film does a great job of conveying the emotional experience of living with chronic illness/pain" - Christina Donnelly, Chronic Pain Ireland.

#chronicillnesses #chronicpain
@mecfs @pots @longcovid

3/

"The film does a great job of conveying the emotional experience of living with chronic illness/pain" - Christina Donnelly, Chronic Pain Ireland.

#chronicillnesses #chronicpain
@mecfs @pots @longcovid

3/

"The film does a great job of conveying the emotional experience of living with chronic illness/pain" - Christina Donnelly, Chronic Pain Ireland.

#chronicillnesses #chronicpain
@mecfs @pots @longcovid

2/
“Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

#invisibleillness #chronicallyill #chronicpain #undiagnosed

@mecfs @pots @longcovid

2/
“Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

#invisibleillness #chronicallyill #chronicpain #undiagnosed

@mecfs @pots @longcovid

2/
“Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

#invisibleillness #chronicallyill #chronicpain #undiagnosed

@mecfs @pots @longcovid

2/
“Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

#invisibleillness #chronicallyill #chronicpain #undiagnosed

@mecfs @pots @longcovid

2/
“Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

#invisibleillness #chronicallyill #chronicpain #undiagnosed

@mecfs @pots @longcovid

Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
https://www.underground-cinema.com/screening-room?wix-vod-video-id=e133c0f3001b4d09ad9e8ed8aab8c804&wix-vod-comp-id=comp-mtueb2ju

*just create a login & scroll to see Warrior Short Film until midnight Sun 13

As someone who took 5+ years to get diagnosed, sadly I can relate

#chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain

Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
https://www.underground-cinema.com/screening-room?wix-vod-video-id=e133c0f3001b4d09ad9e8ed8aab8c804&wix-vod-comp-id=comp-mtueb2ju

*just create a login & scroll to see Warrior Short Film until midnight Sun 13

As someone who took 5+ years to get diagnosed, sadly I can relate

#chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain

Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
https://www.underground-cinema.com/screening-room?wix-vod-video-id=e133c0f3001b4d09ad9e8ed8aab8c804&wix-vod-comp-id=comp-mtueb2ju

*just create a login & scroll to see Warrior Short Film until midnight Sun 13

As someone who took 5+ years to get diagnosed, sadly I can relate

#chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain

Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
https://www.underground-cinema.com/screening-room?wix-vod-video-id=e133c0f3001b4d09ad9e8ed8aab8c804&wix-vod-comp-id=comp-mtueb2ju

*just create a login & scroll to see Warrior Short Film until midnight Sun 13

As someone who took 5+ years to get diagnosed, sadly I can relate

#chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain

Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
https://www.underground-cinema.com/screening-room?wix-vod-video-id=e133c0f3001b4d09ad9e8ed8aab8c804&wix-vod-comp-id=comp-mtueb2ju

*just create a login & scroll to see Warrior Short Film until midnight Sun 13

As someone who took 5+ years to get diagnosed, sadly I can relate

#chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain

A memory conjured by Gloria Steinem's passing.

https://ko-fi.com/post/My-Thoughts-on-Gloria-Steinham-N8V826R843

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness #catmom @spoonie @queer @feminism #GloriaSteinem #dorothypitmanhughes #Feminism #USPol #Memories #Childhood #BlackLivesMatter

@shrugdealer tysm!

$325 left for September

$125 due yesterday for pharmacy + foods needed

Please help if you can! been stalled for 6.5 days. Even a few dollars helps a lot.

Thank you 💕

V: d_fay
Pp: peach77

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #queer #artist #disabledmutualaid @disabledvoices @[email protected] @[email protected] @queer @lgbtq #emergency #urgent

Oof, pain levels high even on meds today. Of course I also have medical appointments to attend *Sigh*. Walking stick, and take it slow, and it will all get done😁

#disabled #chronicallyill #fatigue #chronicpain #disability #ivegotthis

$0/$50 - co pay due 9/3 ⚠️
$50/$200 - September food

Anything helps! Im disabled, queer and have no support. Living below the poverty line. I appreciate any help at all 💕

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq @queer

Today I am very much over having this stent. Hurry up next operation date I guess....which will also bring with it another stent😅

#chronicallyill #chronicpain #disabled #disability

RE: https://mastodon.social/@ellespeaks/116996844601522894

Stalled ‼
Needing to raise $39 today if im going to make it to my goal on time next week.
But anything helps and I appreciate it so much!

$400/$630 = $230 USD to go.⌛‼
For: food, co pay, phone bill, hygiene

V: d_fay
Pp: peach77

Thank you!!

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #lgbtq #crowdfunding #gofundme #directaid #queer #diabetic #poverty
@[email protected] @[email protected] @disabledvoices @lgbtq

RE: https://mastodon.social/@ellespeaks/117084050225487780

$0/$230 left for august⚠️⏳

Needing hygiene, food, and funds for my co pay for pain management.

Disabled and cant work, with no family support. Living below the poverty line. Anything helps.

V: d_fay || P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #poverty @[email protected] @[email protected] @disabledvoices

I'm very bad at pacing, I get excited and don't know my limit until I go past it. I had another crash. It's been really bad over the last 7-8 days. So if anyone else paces for chronic pain and chronic fatigue I'd love to know what works for you.

This is aimed at people who are dealing with chronic pain and / or chronic fatigue, so if you are not dealing with these I'd rather respectfully ask for a boost than advice or comments.

I used to have a Fitbit to help me track what I was doing but one of the metal plates on the back came off. I could glue it back on but knowing my luck, I don't know if that would interfere with it's function. 🤔

Edit: Thank you for the suggestions. ❤️ I will try to see if I can repair my Fitbit and possibly save for a Garmin to help me manage these symptoms.

#disability #fatigue #chronicfatigue #chronicillness #chronicpain

@MutualAidBot @mutualaid

Urgent over due day 3⌛
♡$30 needed for my co pay
♡$150 for august food needed asap

Im so grateful for any help. $5 is a huge blessing

Thanks🫂

V: d_fay
P: peach77
K: https://ko-fi.com/ellespeaks

#mutualaid #MutualAidSavesLives #MutualAidRequest #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #lgbtqia #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty
@disability @lgbtq

RE: https://mastodon.social/@ellespeaks/116996844601522894

$255/$290 = $35 left for copay due yesterday❣

I have augusts' food to worry about next so anything helps at all ‼🦋 read graphic for info. Tysm.

V: d_fay
P: peach77
Ko: https://ko-fi.com/ellespeaks

#mutualaid #MutualAidSavesLives #MutualAidRequest #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @disability @povertyandinequality @queer

RE: https://mastodon.social/@ellespeaks/116996844601522894

DUE NOW
$200 for meds due today
$40 for JULYs food over due by 6 days ⚠️

Urgent! Anything helps 🙏🏻

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #lgbtqia #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @disability @queer @disabledvoices @[email protected] @directaid @[email protected] @[email protected] @povertyandinequality

RE: https://mastodon.social/@ellespeaks/117021712223725016

Very stressed. Got antibiotics. Home now. Would be nice to rest but its hard when i dont have my medications and food in the house you know?

If 8 people sent $30 each, i would reach my goal!

V: d_fay
Pp: peach77
Ko: https://ko-fi.com/ellespeaks

#mutualaid #MutualAidSavesLives #MutualAidRequest #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #kofi #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @mutualaid @MutualAidBot

EMERGENCY

$240 due in 2 days

$40 for julys food was due the 28th
$200 for meds is due aug 3rd
Desperate need of movement. Anything at all helps. No movement for 2 days

V: d_fay
PP: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #leftist #lgbtq #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @povertyandinequality

Hi! Im a disabled lesbian artist.
I am almost out of beads. I love making art but live 26% below the poverty line

Wishlist:
https://www.amazon.com/hz/wishlist/ls/7Q84O6MBOV2Z?ref_=wl_share

Thank-you !

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #lgbtq #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @disability @[email protected] @[email protected] #artist #queerartist

RE: https://mastodon.social/@ellespeaks/116996844601522894

2 days over due for food
$60 needed asap. Please help!

Diabetic and officially out of food

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #lgbtqia #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @mutualaid @disabledvoices

Stumbling Block

It seems I have always been stumbling, tripping over the unintended in a fog of wandering wonder.

The mist has been ever around me, my cloud by day. I am enveloped by mystery.

You do indeed love to surprise me, O God;

two girls find shiny stones in a fountain and their joy chases away the despair at not finding a loved one,

the hospitality of friends lightens the weight upon a heavy chest from a returning to what was and the traveler can breathe again into what will be,

a mother’s words and the night breeze dries a daughter’s tears and she can smile at the deep thrum of a bullfrog,

lovers lie for a moment in the morning and the frustrations of yesterday fade into the quiet beginnings of another day.

It is time then.

I rise up into the bone crackling morning, my body protesting, my spirit already stretching out along the places I will see.

Inside, I find I am ready for more stumbling.

July 29, 2022

RE: https://mastodon.social/@ellespeaks/116813597037701800

$540/$630 = $90 until safe 🆘️

-$10/$50 = $40 until i can turn my phone on
-$0/$50 = $50 until i can my co pay. Due today

Anything helps.
Phones been off 2 days

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #lgbtqia #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty
@[email protected] @[email protected] @disabledvoices @lgbtq