#chronicpain — Public Fediverse posts

Errands run, dishes done, and bed made with fresh sheets so I can come home to a comfy bed after hospital. Having a little rest, and then we tackle some tidying. I have to fast from midnight, so I'm eating as much as I want until then, and have upped my water intake over the past day so that I give myself the best chance of staying hydrated, and not getting a migraine before surgery(or after, though I'm prone to them after anaesthetic). Resting in between tasks because pain is high, but feeling like I'm on track to being ready😁

#preparing #optimism #hope #focus #disability #chronicillness #chronicpain #hearthealth #kidneys #ptsd #fibromyalgia

Errands run, dishes done, and bed made with fresh sheets so I can come home to a comfy bed after hospital. Having a little rest, and then we tackle some tidying. I have to fast from midnight, so I'm eating as much as I want until then, and have upped my water intake over the past day so that I give myself the best chance of staying hydrated, and not getting a migraine before surgery(or after, though I'm prone to them after anaesthetic). Resting in between tasks because pain is high, but feeling like I'm on track to being ready😁

#preparing #optimism #hope #focus #disability #chronicillness #chronicpain #hearthealth #kidneys #ptsd #fibromyalgia

Errands run, dishes done, and bed made with fresh sheets so I can come home to a comfy bed after hospital. Having a little rest, and then we tackle some tidying. I have to fast from midnight, so I'm eating as much as I want until then, and have upped my water intake over the past day so that I give myself the best chance of staying hydrated, and not getting a migraine before surgery(or after, though I'm prone to them after anaesthetic). Resting in between tasks because pain is high, but feeling like I'm on track to being ready😁

#preparing #optimism #hope #focus #disability #chronicillness #chronicpain #hearthealth #kidneys #ptsd #fibromyalgia

Errands run, dishes done, and bed made with fresh sheets so I can come home to a comfy bed after hospital. Having a little rest, and then we tackle some tidying. I have to fast from midnight, so I'm eating as much as I want until then, and have upped my water intake over the past day so that I give myself the best chance of staying hydrated, and not getting a migraine before surgery(or after, though I'm prone to them after anaesthetic). Resting in between tasks because pain is high, but feeling like I'm on track to being ready😁

#preparing #optimism #hope #focus #disability #chronicillness #chronicpain #hearthealth #kidneys #ptsd #fibromyalgia

Errands run, dishes done, and bed made with fresh sheets so I can come home to a comfy bed after hospital. Having a little rest, and then we tackle some tidying. I have to fast from midnight, so I'm eating as much as I want until then, and have upped my water intake over the past day so that I give myself the best chance of staying hydrated, and not getting a migraine before surgery(or after, though I'm prone to them after anaesthetic). Resting in between tasks because pain is high, but feeling like I'm on track to being ready😁

#preparing #optimism #hope #focus #disability #chronicillness #chronicpain #hearthealth #kidneys #ptsd #fibromyalgia

DATE: September 27, 2026 at 06:49AM
SOURCE: SCIENCE DAILY MIND-BRAIN FEED

TITLE: Why rheumatoid arthritis pain may persist even when inflammation is under control

URL: https://www.sciencedaily.com/releases/2026/09/260925093208.htm

Pain and fatigue in rheumatoid arthritis can persist even after inflammation improves, with depression, poor sleep, obesity, smoking, and chronic pain potentially helping sustain symptoms. Researchers say identifying these hidden drivers could prevent unnecessary medication changes and lead to more personalized treatment.

URL: https://www.sciencedaily.com/releases/2026/09/260925093208.htm

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Private, vetted email list for mental health professionals: https://www.clinicians-exchange.org

Unofficial Psychology Today Xitter to toot feed at Psych Today Unofficial Bot @PTUnofficialBot

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#psychology #counseling #socialwork #psychotherapy @psychotherapist @psychotherapists @psychology @socialpsych @socialwork @psychiatry #mentalhealth #psychiatry #healthcare #depression #psychotherapist #RheumatoidArthritis #RApain #ChronicPain #InflammationControl #PainPersistence #RAfatigue #MentalHealthRA #SleepQuality #PersonalizedMedicine #RAresearch

DATE: September 27, 2026 at 06:49AM
SOURCE: SCIENCE DAILY MIND-BRAIN FEED

TITLE: Why rheumatoid arthritis pain may persist even when inflammation is under control

URL: https://www.sciencedaily.com/releases/2026/09/260925093208.htm

Pain and fatigue in rheumatoid arthritis can persist even after inflammation improves, with depression, poor sleep, obesity, smoking, and chronic pain potentially helping sustain symptoms. Researchers say identifying these hidden drivers could prevent unnecessary medication changes and lead to more personalized treatment.

URL: https://www.sciencedaily.com/releases/2026/09/260925093208.htm

-------------------------------------------------

Private, vetted email list for mental health professionals: https://www.clinicians-exchange.org

Unofficial Psychology Today Xitter to toot feed at Psych Today Unofficial Bot @PTUnofficialBot

-------------------------------------------------

#psychology #counseling #socialwork #psychotherapy @psychotherapist @psychotherapists @psychology @socialpsych @socialwork @psychiatry #mentalhealth #psychiatry #healthcare #depression #psychotherapist #RheumatoidArthritis #RApain #ChronicPain #InflammationControl #PainPersistence #RAfatigue #MentalHealthRA #SleepQuality #PersonalizedMedicine #RAresearch

DATE: September 27, 2026 at 06:49AM
SOURCE: SCIENCE DAILY MIND-BRAIN FEED

TITLE: Why rheumatoid arthritis pain may persist even when inflammation is under control

URL: https://www.sciencedaily.com/releases/2026/09/260925093208.htm

Pain and fatigue in rheumatoid arthritis can persist even after inflammation improves, with depression, poor sleep, obesity, smoking, and chronic pain potentially helping sustain symptoms. Researchers say identifying these hidden drivers could prevent unnecessary medication changes and lead to more personalized treatment.

URL: https://www.sciencedaily.com/releases/2026/09/260925093208.htm

-------------------------------------------------

Private, vetted email list for mental health professionals: https://www.clinicians-exchange.org

Unofficial Psychology Today Xitter to toot feed at Psych Today Unofficial Bot @PTUnofficialBot

-------------------------------------------------

#psychology #counseling #socialwork #psychotherapy @psychotherapist @psychotherapists @psychology @socialpsych @socialwork @psychiatry #mentalhealth #psychiatry #healthcare #depression #psychotherapist #RheumatoidArthritis #RApain #ChronicPain #InflammationControl #PainPersistence #RAfatigue #MentalHealthRA #SleepQuality #PersonalizedMedicine #RAresearch

While I’ve spent over a decade trying to accept & prioritize caring for my disabilities… I’m finally processing how difficult this year’s many new, unexpected, and worsening symptom experiences have been.

I think that’s why, when I was looking for a resource I could offer alongside this image, The Thriving Spoonie’s “Burnout With Chronic Illness: Why It Isn’t a Phase” hit me so hard:

You keep showing up because you have to. You adapt because there isn’t another option. And over time, exhaustion stops feeling like a temporary setback and starts feeling like your baseline.

Burnout becomes especially difficult to recognize when it’s woven into survival. You adjust expectations. You compensate where you can. You normalize being depleted. And because you are still technically functioning, it’s easy to miss how much this way of living is costing you until your body forces a reckoning.

Please take care, however you need.

I’m sending you lots and lots of love.

– n

While I’ve spent over a decade trying to accept & prioritize caring for my disabilities… I’m finally processing how difficult this year’s many new, unexpected, and worsening symptom experiences have been.

I think that’s why, when I was looking for a resource I could offer alongside this image, The Thriving Spoonie’s “Burnout With Chronic Illness: Why It Isn’t a Phase” hit me so hard:

You keep showing up because you have to. You adapt because there isn’t another option. And over time, exhaustion stops feeling like a temporary setback and starts feeling like your baseline.

Burnout becomes especially difficult to recognize when it’s woven into survival. You adjust expectations. You compensate where you can. You normalize being depleted. And because you are still technically functioning, it’s easy to miss how much this way of living is costing you until your body forces a reckoning.

Please take care, however you need.

I’m sending you lots and lots of love.

– n

While I’ve spent over a decade trying to accept & prioritize caring for my disabilities… I’m finally processing how difficult this year’s many new, unexpected, and worsening symptom experiences have been.

I think that’s why, when I was looking for a resource I could offer alongside this image, The Thriving Spoonie’s “Burnout With Chronic Illness: Why It Isn’t a Phase” hit me so hard:

You keep showing up because you have to. You adapt because there isn’t another option. And over time, exhaustion stops feeling like a temporary setback and starts feeling like your baseline.

Burnout becomes especially difficult to recognize when it’s woven into survival. You adjust expectations. You compensate where you can. You normalize being depleted. And because you are still technically functioning, it’s easy to miss how much this way of living is costing you until your body forces a reckoning.

Please take care, however you need.

I’m sending you lots and lots of love.

– n

While I’ve spent over a decade trying to accept & prioritize caring for my disabilities… I’m finally processing how difficult this year’s many new, unexpected, and worsening symptom experiences have been.

I think that’s why, when I was looking for a resource I could offer alongside this image, The Thriving Spoonie’s “Burnout With Chronic Illness: Why It Isn’t a Phase” hit me so hard:

You keep showing up because you have to. You adapt because there isn’t another option. And over time, exhaustion stops feeling like a temporary setback and starts feeling like your baseline.

Burnout becomes especially difficult to recognize when it’s woven into survival. You adjust expectations. You compensate where you can. You normalize being depleted. And because you are still technically functioning, it’s easy to miss how much this way of living is costing you until your body forces a reckoning.

Please take care, however you need.

I’m sending you lots and lots of love.

– n

While I’ve spent over a decade trying to accept & prioritize caring for my disabilities… I’m finally processing how difficult this year’s many new, unexpected, and worsening symptom experiences have been.

I think that’s why, when I was looking for a resource I could offer alongside this image, The Thriving Spoonie’s “Burnout With Chronic Illness: Why It Isn’t a Phase” hit me so hard:

You keep showing up because you have to. You adapt because there isn’t another option. And over time, exhaustion stops feeling like a temporary setback and starts feeling like your baseline.

Burnout becomes especially difficult to recognize when it’s woven into survival. You adjust expectations. You compensate where you can. You normalize being depleted. And because you are still technically functioning, it’s easy to miss how much this way of living is costing you until your body forces a reckoning.

Please take care, however you need.

I’m sending you lots and lots of love.

– n

RE: https://me.dm/@kshernandez/116735297261197109

Not one jot, not one tittle received! The abusive environment persists, the abusive people remain.

If you wanna see me out of this situation, chip in.

Chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/116735297261197109

Not one jot, not one tittle received! The abusive environment persists, the abusive people remain.

If you wanna see me out of this situation, chip in.

Chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/116735297261197109

Not one jot, not one tittle received! The abusive environment persists, the abusive people remain.

If you wanna see me out of this situation, chip in.

Chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/116735297261197109

Not one jot, not one tittle received! The abusive environment persists, the abusive people remain.

If you wanna see me out of this situation, chip in.

Chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/116735297261197109

Not one jot, not one tittle received! The abusive environment persists, the abusive people remain.

If you wanna see me out of this situation, chip in.

Chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://mastodon.social/@ellespeaks/117305693148190974

I have lost weight due to lack of food and not having my meds. Its triggering my old eating disorder too 😪

$186 is left for September. For food/meds. Absolutely anything helps + is appreciated. Thank you so much. 💓

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #directaid #disabledmutualaid #lgbtq #queer #disabled #lesbian #artist #hungry #diabetic #crowdfunding #spoonie #chronicpain #helpfolkslive @[email protected] @[email protected] @disabledvoices @lgbtq @povertyandinequality

RE: https://mastodon.social/@ellespeaks/117305693148190974

I have lost weight due to lack of food and not having my meds. Its triggering my old eating disorder too 😪

$186 is left for September. For food/meds. Absolutely anything helps + is appreciated. Thank you so much. 💓

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #directaid #disabledmutualaid #lgbtq #queer #disabled #lesbian #artist #hungry #diabetic #crowdfunding #spoonie #chronicpain #helpfolkslive @[email protected] @[email protected] @disabledvoices @lgbtq @povertyandinequality

RE: https://mastodon.social/@ellespeaks/117305693148190974

I have lost weight due to lack of food and not having my meds. Its triggering my old eating disorder too 😪

$186 is left for September. For food/meds. Absolutely anything helps + is appreciated. Thank you so much. 💓

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #directaid #disabledmutualaid #lgbtq #queer #disabled #lesbian #artist #hungry #diabetic #crowdfunding #spoonie #chronicpain #helpfolkslive @[email protected] @[email protected] @disabledvoices @lgbtq @povertyandinequality

RE: https://mastodon.social/@ellespeaks/117305693148190974

I have lost weight due to lack of food and not having my meds. Its triggering my old eating disorder too 😪

$186 is left for September. For food/meds. Absolutely anything helps + is appreciated. Thank you so much. 💓

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #directaid #disabledmutualaid #lgbtq #queer #disabled #lesbian #artist #hungry #diabetic #crowdfunding #spoonie #chronicpain #helpfolkslive @[email protected] @[email protected] @disabledvoices @lgbtq @povertyandinequality

Not one dime rolled in yesterday. Unusual for a Friday...

Can we change that today, so I can move to a safer home?

Ways to aid:
https://Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#FatBearWeek

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Not one dime rolled in yesterday. Unusual for a Friday...

Can we change that today, so I can move to a safer home?

Ways to aid:
https://Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#FatBearWeek

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Not one dime rolled in yesterday. Unusual for a Friday...

Can we change that today, so I can move to a safer home?

Ways to aid:
https://Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#FatBearWeek

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Not one dime rolled in yesterday. Unusual for a Friday...

Can we change that today, so I can move to a safer home?

Ways to aid:
https://Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#FatBearWeek

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Not one dime rolled in yesterday. Unusual for a Friday...

Can we change that today, so I can move to a safer home?

Ways to aid:
https://Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#FatBearWeek

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

$211 over due for September
STALLED - food and meds!

Meds: 17 DAYS overdue
Food: 3 days overdue
I am diabetic and this adds a layer of danger. Im fatigued with brain fog. I just want food to keep my brain alert and on..

Even $5 is a HUGE help! Ty!

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #disabled #spoonie #chronicpain #chronicillness #crowdfund #lgbtq #queer #gay #poverty #artist #catmom @[email protected] @[email protected] @disabledvoices @disability @lgbtq @queer

$211 over due for September
STALLED - food and meds!

Meds: 17 DAYS overdue
Food: 3 days overdue
I am diabetic and this adds a layer of danger. Im fatigued with brain fog. I just want food to keep my brain alert and on..

Even $5 is a HUGE help! Ty!

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #disabled #spoonie #chronicpain #chronicillness #crowdfund #lgbtq #queer #gay #poverty #artist #catmom @[email protected] @[email protected] @disabledvoices @disability @lgbtq @queer