#chronicpain — Public Fediverse posts

RE: https://mastodon.social/@ellespeaks/117271041546276204

Please help! Anything helps
Stalled for 12 days

@[email protected] @[email protected] @disabledvoices
@povertyandinequality

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid

RE: https://mastodon.social/@ellespeaks/117255430152864799

Still stalled at $0!

I am grateful for any help as ive had congestion for over 10 days.
(Dr says antibiotics wont help i just had an x ray to check for pneumonia).

V d_fay
P peach77

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid
@disabledvoices
@directaid @mutualaid

An essay about how senseless abuse is reproduced within communities shaped by suffering, and the invalidation and alienation that follow when there is nowhere—socially or internally—to retreat to. #NotBornToWrite #Aphantasia #Endometriosis #Trauma #Neurodivergence #ChronicPain https://cristinagherghel.substack.com/p/not-born-for-this-world-on-aphantasia?r=6bmg7x&utm_campaign=post-expanded-share&utm_medium=web

RE: https://mastodon.social/@ellespeaks/117255430152864799

Still stalled, still sick. anything at all helps‼‼🆘️

I do not have anyone else to turn to and I am disabled and cannot work
I really need to start feeling a little better here physically.

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq

RE: https://mastodon.social/@ellespeaks/117255430152864799

Still stalled, still sick. anything at all helps‼‼🆘️

I do not have anyone else to turn to and I am disabled and cannot work
I really need to start feeling a little better here physically.

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq

RE: https://mastodon.social/@ellespeaks/117255430152864799

Still stalled, still sick. anything at all helps‼‼🆘️

I do not have anyone else to turn to and I am disabled and cannot work
I really need to start feeling a little better here physically.

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq

RE: https://mastodon.social/@ellespeaks/117255430152864799

Still stalled, still sick. anything at all helps‼‼🆘️

I do not have anyone else to turn to and I am disabled and cannot work
I really need to start feeling a little better here physically.

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq

Making a note to record that I have just taken my former full dose of painkillers for the first time in weeks. I had thought that I had weaned off them & remained functional. I had but now I'm not so functional anymore. Sigh. The future is very murky.

#chronicpain

Making a note to record that I have just taken my former full dose of painkillers for the first time in weeks. I had thought that I had weaned off them & remained functional. I had but now I'm not so functional anymore. Sigh. The future is very murky.

#chronicpain

Making a note to record that I have just taken my former full dose of painkillers for the first time in weeks. I had thought that I had weaned off them & remained functional. I had but now I'm not so functional anymore. Sigh. The future is very murky.

#chronicpain

Making a note to record that I have just taken my former full dose of painkillers for the first time in weeks. I had thought that I had weaned off them & remained functional. I had but now I'm not so functional anymore. Sigh. The future is very murky.

#chronicpain

@MutualAidBot @mutualaid

Stalled 10 days
$325 left for September

$100 - for food
$125 - for pharmacy
$50 - cell bill
$50 - co pay for pain management appt

Im diabetic, disabled and queer. I live below the poverty line and unable to work. Any help is life saving.
Thank you

V: d_fay
P: peach77

#mutualaid #disabled #disabledmutualaid #disabledartist #queer #lgbtq #spoonie @disabledvoices @disability @creativearts #mentalhealth #chronicpain #help #boost #summer #chronicillness

@MutualAidBot @mutualaid

Stalled 10 days
$325 left for September

$100 - for food
$125 - for pharmacy
$50 - cell bill
$50 - co pay for pain management appt

Im diabetic, disabled and queer. I live below the poverty line and unable to work. Any help is life saving.
Thank you

V: d_fay
P: peach77

#mutualaid #disabled #disabledmutualaid #disabledartist #queer #lgbtq #spoonie @disabledvoices @disability @creativearts #mentalhealth #chronicpain #help #boost #summer #chronicillness

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

3/

"The film does a great job of conveying the emotional experience of living with chronic illness/pain" - Christina Donnelly, Chronic Pain Ireland.

#chronicillnesses #chronicpain
@mecfs @pots @longcovid

3/

"The film does a great job of conveying the emotional experience of living with chronic illness/pain" - Christina Donnelly, Chronic Pain Ireland.

#chronicillnesses #chronicpain
@mecfs @pots @longcovid

3/

"The film does a great job of conveying the emotional experience of living with chronic illness/pain" - Christina Donnelly, Chronic Pain Ireland.

#chronicillnesses #chronicpain
@mecfs @pots @longcovid

3/

"The film does a great job of conveying the emotional experience of living with chronic illness/pain" - Christina Donnelly, Chronic Pain Ireland.

#chronicillnesses #chronicpain
@mecfs @pots @longcovid

3/

"The film does a great job of conveying the emotional experience of living with chronic illness/pain" - Christina Donnelly, Chronic Pain Ireland.

#chronicillnesses #chronicpain
@mecfs @pots @longcovid

2/
“Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

#invisibleillness #chronicallyill #chronicpain #undiagnosed

@mecfs @pots @longcovid

2/
“Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

#invisibleillness #chronicallyill #chronicpain #undiagnosed

@mecfs @pots @longcovid

2/
“Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

#invisibleillness #chronicallyill #chronicpain #undiagnosed

@mecfs @pots @longcovid

2/
“Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

#invisibleillness #chronicallyill #chronicpain #undiagnosed

@mecfs @pots @longcovid

2/
“Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

#invisibleillness #chronicallyill #chronicpain #undiagnosed

@mecfs @pots @longcovid

Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
https://www.underground-cinema.com/screening-room?wix-vod-video-id=e133c0f3001b4d09ad9e8ed8aab8c804&wix-vod-comp-id=comp-mtueb2ju

*just create a login & scroll to see Warrior Short Film until midnight Sun 13

As someone who took 5+ years to get diagnosed, sadly I can relate

#chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain

Somatic symptom disorder: Why your doctor doesn't believe you're really sick

https://mecfs.substack.com/p/somatic-symptom-disorder-why-your

Screenshot from July 2026 AMMES newsletter

#Psychologicalisation #chronicillness #ChronicPain #hiddenillness #invisibleillness

Long COVID patients are told symptoms are in their head – here’s how to change the narrative
#Health #LongCOVID #MECFS #ChronicIllness #COVID19 #PostCOVID #LongHaulers #BrainHealth #NervousSystem #PatientCare #InvisibleIllness #ChronicPain #Rehabilitation
https://the-14.com/long-covid-patients-are-told-symptoms-are-in-their-head-heres-how-to-change-the-narrative/

The #Finch app said I should "doodle a quick self-portrait" today.

I don't like looking at my face, and I suck at drawing human faces.

So I did... Depictions instead.

#depression #indecision #Fibromyalgia #ChronicPain #doodle #sketch

🌩️ Flare Report: Pain

Pain isn’t always visible.

It can burn, ache, throb, stab, or feel like your entire body weighs a thousand pounds. Just because others can’t see it doesn’t mean it isn’t real.

💜 If you’re hurting today, remember: You don’t have to earn your rest. Pain is reason enough.

❓What’s ONE thing you wish healthy people understood about chronic pain?

#ChronicPain #ChronicIllness #Spoonie #InvisibleIllness #FlareReport #PainAwareness #Disability #spoonielife

One of the hardest parts of chronic illness isn’t just the fatigue.

It’s grieving the life you thought you’d have.

Today’s Funny Friday Flare Report features Chaos, who reminds us:

🐱 “Apparently surviving counts as productivity today.”

And on some days… that’s more than enough. 💜

What has chronic illness made you grieve that people don’t usually think about?

#ChronicIllness #Spoonie #InvisibleIllness #Fatigue #Grief #ChronicPain #Disability #funnyfriday

📖 Spoonie Word of the Day

Flarecation (noun): A vacation you never wanted but your body booked anyway. 😅

No beach. No suitcase. Just fatigue, pain, brain fog, canceled plans, and hoping tomorrow is a little kinder.

💜 What’s the symptom that usually sends you on a flarecation?

#Spoonie #ChronicIllness #ChronicPain #InvisibleIllness #Flarecation #BrainFog #Fatigue #MedicalHumor #LivinInAFlare

🌩️ Today’s Flare Report: Fatigue

Not all fatigue is solved by sleep.

Sometimes it’s waking up exhausted.
Sometimes it’s choosing between a shower and making dinner.
Sometimes surviving the day is the accomplishment.

💜 Pain: Moderate
🌬️ Energy: Low
🧠 Brain Fog: High
🥄 Spoon Forecast: Limited

If today’s forecast matches yours, be gentle with yourself.

How’s your forecast today? 💜

#ChronicIllness #ChronicPain #Fatigue #BrainFog #Spoonie #InvisibleIllness #Disability #ChronicFatigue

💔 Losing your career because of chronic illness is a grief many people don’t talk about.

It’s not just the job.

It’s the independence, purpose, routine, and future you imagined.

If you’ve had to leave a career because of your health, please know you’re not alone.

Your worth is not defined by a job title. You are still valuable, capable, and worthy. 💜

What career or job do you miss the most?

#ChronicIllness #ChronicPain #Spoonie #InvisibleIllness #Disability #ChronicIllnessCommunity l

🏅 Former Athlete. Current Professional Napper. 😴

Chronic illness has a funny way of changing your goals.

I used to celebrate being busy. Now I celebrate listening to my body before it forces me to slow down.

And honestly? Some naps deserve Olympic recognition. 😂💜

What’s your chronic illness superpower?

#ChronicIllness #ChronicPain #Spoonie #InvisibleIllness #disabilityhumor

🦩 Daily Reminder from Flare-a

Check in with your body before making plans.

Not every day comes with the same energy, symptoms, or limitations. Before you commit, take a moment to ask yourself what your body can realistically handle today.

Listening to your body isn’t weakness. It’s wisdom. 💗

What is your body trying to tell you today?

#ChronicIllness #ChronicPain #Spoonie #InvisibleIllness #Disability #SelfCare #EnergyManagement #LivinInAFlare

Do you ever miss your old life?

Not because you’re ungrateful.

But because chronic illness changed things.

The independence.
The freedom.
The ability to make plans without calculating recovery time.

Missing your old life doesn’t mean you’re giving up. It means you’re grieving a loss.

And that’s okay.

💜 What do you miss most about your old life?

#ChronicIllness #ChronicPain #Spoonie #InvisibleIllness #disability

💜 What do you miss most about your life before chronic illness?

Sometimes it’s not the big things.

It’s running errands without exhaustion.

Taking a shower without needing a recovery day.

Making plans without wondering if your body will cooperate.

Being spontaneous.

Feeling like yourself.

Living with chronic illness means grieving parts of life that healthy people rarely think about.

💜 What do you miss most?

#ChronicIllness #ChronicPain #SpoonieLife #InvisibleIllness #disability

I miss making plans without calculating recovery time.

With chronic illness, one fun day can turn into several recovery days.

It’s the prep.
The pacing.
The symptoms.
The crash afterward.
The guilt if you cancel.
The recovery nobody sees.

Chronic illness math is brutal.

What’s something you miss doing without having to “pay for it” later?

#ChronicIllness #ChronicPain #Spoonie #InvisibleIllness #disability

💜 Tiny’s Daily Reminder 💜

Drink some water.

A gentle reminder from one spoonie to another that your body deserves care today.

How much water have you had so far?

#ChronicIllness #Spoonie #ChronicPain #invisibleillness

What’s something healthy people take for granted that you think about every day?

For me, it’s the tiny everyday things that aren’t tiny anymore.

Showering.
Leaving the house.
Standing in line.
Making plans.
Doing one “normal” thing without calculating the recovery cost.

Chronic illness changes the way you move through the world.

What’s one thing you wish people understood?

#ChronicIllness #ChronicPain #SpoonieLife #InvisibleIllness #DisabledLife #ChronicIllnessAwareness #Pacing

Just realized the weight ive recently put on might actually be muscle??? Crying bc no other reaction feels to quite fit this emotion im experiencing/failing to name

I havent been trying to gain or lose weight, just doing range of motion and flexibility stuff plus the odd dance movement with a fancy French name... i have a few what feel to me both modest and extravagant dance aspirations, so in some ways this development makes sense, its just so incredibly alien to me to actually detect progress toward those goals!!

For context: ive been #chronicallyill since at least 2012, and was fully bedridden for at least seven of those years. Im still rather severely mentally ill but my body has been doing somewhat better lately (ongoing problems notwithstanding), for which im endlessly grateful and going to make the most of while I can, whatever that ends up looking like

Random snaps my partner took of me the other day, for attention and bc i look fantastic 🩷

#ChronicFatigue #ChronicPain #mecfs #fibromyalgia #hypermobility

7.7: Ariel & Christina Discuss Living with a Disability as a Solarpunk

Today Christina talks to Ariel about what it's been like to live as a solarpunk with a visible - and then invisible - disability. Science fiction has spent decades dreaming of how future tech will make disabled people able to function as if they were fully abled. Now solarpunk has arrived on the scene to ask why should disabled bodies have to always be the ones to adapt? It can be uncomfortable, intrusive - not to mention expensive. Solarpunk wonders why can't cities, society, workplaces, and the like be the ones to use the tech to make themselves more accessible to and inclusive of disabled people?

Tune in as Ariel and Christina discuss the portrayal of disability in science fiction and solarpunk and how having to suddenly live with a disability opens your eyes to many of the ways cities fail people with disabilities.

https://youtu.be/nITURrKfwvI

#solarpunk #SolarpunkPresentsPodcast #Episode #SeasonSeven #disability #spoony #SpoonTheory #spoonies #ChronicPain #ChronicFatigue #SolarpunkAndDisability #Ableism #InvisibleDisability #ScienceFiction #SciFiAndDisability

Evening, Twters.

Genuinely having a tough time of it. House hunting is not going well, though we've 3 more viewings lined up for tomorrow.

The news about #pip is terrifying - PIP makes up about 33% of my income so losing it will be devastating, and there's not a lot I can do about it as my condition fluctuates. I'm having a really tough day during a really tough time, and I'm about ready to crawl into bed and not emerge again til it's all better.

#MentalHealth #NerveDamage #ChronicPain

Morning Twters.

Been awake since 3,30 this morning with dreadful nerve pain in my leg. I've taken as much medication as I can, which has just about taken the edge off it, but has also made me quite woozy and thick headed (thanks, opioids).

Need to ring the gp at 8 to do a medication review anyway, then I will try to get some more sleep.

I hope you all have a much better start to your days! 😘

#ChronicPain #NerveDamage

Hidradenitis suppurativa: The silent suffering no one talks about

Christopher Sayed is a dermatologist.

https://youtube.com/shorts/bweGkusPG6o

Listen here: https://kevinmd.com/podcast

#HidradenitisSuppurativa #SkinCondition #ChronicPain #Dermatology #InvisibleIllness #HealthAwareness #Stigma #Support #LivingWithHS #SkinHealth #HiddenStruggles

Self-care is very important for healthy people & super crucial for those living with a disease(s). This is an article I wrote about why I practice self-care daily.

Why I Practice Self-care Daily
https://restlesslegssyndrome.sleep-disorders.net/living/self-care

#Selfcare #SelfcareIsntSelfish #Endometriosis #Fibromyalgia #IBS #RLS #ObstructiveSleepApnea #spoonie #chronicpain #NEISvoid