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#chronicpain — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #chronicpain, aggregated by home.social.

  1. Making a note to record that I have just taken my former full dose of painkillers for the first time in weeks. I had thought that I had weaned off them & remained functional. I had but now I'm not so functional anymore. Sigh. The future is very murky.

    #chronicpain

  2. Making a note to record that I have just taken my former full dose of painkillers for the first time in weeks. I had thought that I had weaned off them & remained functional. I had but now I'm not so functional anymore. Sigh. The future is very murky.

    #chronicpain

  3. Making a note to record that I have just taken my former full dose of painkillers for the first time in weeks. I had thought that I had weaned off them & remained functional. I had but now I'm not so functional anymore. Sigh. The future is very murky.

    #chronicpain

  4. Making a note to record that I have just taken my former full dose of painkillers for the first time in weeks. I had thought that I had weaned off them & remained functional. I had but now I'm not so functional anymore. Sigh. The future is very murky.

    #chronicpain

  5. @MutualAidBot @mutualaid

    Stalled 10 days
    $325 left for September

    $100 - for food
    $125 - for pharmacy
    $50 - cell bill
    $50 - co pay for pain management appt

    Im diabetic, disabled and queer. I live below the poverty line and unable to work. Any help is life saving.
    Thank you

    V: d_fay
    P: peach77

    #mutualaid #disabled #disabledmutualaid #disabledartist #queer #lgbtq #spoonie @disabledvoices @disability @creativearts #mentalhealth #chronicpain #help #boost #summer #chronicillness

  6. @MutualAidBot @mutualaid

    Stalled 10 days
    $325 left for September

    $100 - for food
    $125 - for pharmacy
    $50 - cell bill
    $50 - co pay for pain management appt

    Im diabetic, disabled and queer. I live below the poverty line and unable to work. Any help is life saving.
    Thank you

    V: d_fay
    P: peach77

    #mutualaid #disabled #disabledmutualaid #disabledartist #queer #lgbtq #spoonie @disabledvoices @disability @creativearts #mentalhealth #chronicpain #help #boost #summer #chronicillness

  7. 3/

    "The film does a great job of conveying the emotional experience of living with chronic illness/pain" - Christina Donnelly, Chronic Pain Ireland.

    #chronicillnesses #chronicpain
    @mecfs @pots @longcovid

  8. 3/

    "The film does a great job of conveying the emotional experience of living with chronic illness/pain" - Christina Donnelly, Chronic Pain Ireland.

    #chronicillnesses #chronicpain
    @mecfs @pots @longcovid

  9. 3/

    "The film does a great job of conveying the emotional experience of living with chronic illness/pain" - Christina Donnelly, Chronic Pain Ireland.

    #chronicillnesses #chronicpain
    @mecfs @pots @longcovid

  10. 3/

    "The film does a great job of conveying the emotional experience of living with chronic illness/pain" - Christina Donnelly, Chronic Pain Ireland.

    #chronicillnesses #chronicpain
    @mecfs @pots @longcovid

  11. 3/

    "The film does a great job of conveying the emotional experience of living with chronic illness/pain" - Christina Donnelly, Chronic Pain Ireland.

    #chronicillnesses #chronicpain
    @mecfs @pots @longcovid

  12. 2/
    “Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

    #invisibleillness #chronicallyill #chronicpain #undiagnosed

    @mecfs @pots @longcovid

  13. 2/
    “Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

    #invisibleillness #chronicallyill #chronicpain #undiagnosed

    @mecfs @pots @longcovid

  14. 2/
    “Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

    #invisibleillness #chronicallyill #chronicpain #undiagnosed

    @mecfs @pots @longcovid

  15. 2/
    “Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

    #invisibleillness #chronicallyill #chronicpain #undiagnosed

    @mecfs @pots @longcovid

  16. 2/
    “Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

    #invisibleillness #chronicallyill #chronicpain #undiagnosed

    @mecfs @pots @longcovid

  17. Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
    underground-cinema.com/screeni

    *just create a login & scroll to see Warrior Short Film until midnight Sun 13

    As someone who took 5+ years to get diagnosed, sadly I can relate

    #chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain

  18. Your little reminder that you can be a positive and optimistic person, and still have days where you're frustrated and angry about your medical conditions and disability. It's valid to have low days. This stuff is hard work.

    #disability #disabled #chronicillness #chronically_ill #fibromyalgia #chronicpain #kidneys #kidneysurgery #hearthealth #ptsd #cptsd #bpd #illness #migraines

  19. I'm very bad at pacing, I get excited and don't know my limit until I go past it. I had another crash. It's been really bad over the last 7-8 days. So if anyone else paces for chronic pain and chronic fatigue I'd love to know what works for you.

    This is aimed at people who are dealing with chronic pain and / or chronic fatigue, so if you are not dealing with these I'd rather respectfully ask for a boost than advice or comments.

    I used to have a Fitbit to help me track what I was doing but one of the metal plates on the back came off. I could glue it back on but knowing my luck, I don't know if that would interfere with it's function. 🤔

    Edit: Thank you for the suggestions. ❤️ I will try to see if I can repair my Fitbit and possibly save for a Garmin to help me manage these symptoms.

    #disability #fatigue #chronicfatigue #chronicillness #chronicpain

  20. Stumbling Block

    It seems I have always been stumbling, tripping over the unintended in a fog of wandering wonder.

    The mist has been ever around me, my cloud by day. I am enveloped by mystery.

    You do indeed love to surprise me, O God;

    two girls find shiny stones in a fountain and their joy chases away the despair at not finding a loved one,

    the hospitality of friends lightens the weight upon a heavy chest from a returning to what was and the traveler can breathe again into what will be,

    a mother’s words and the night breeze dries a daughter’s tears and she can smile at the deep thrum of a bullfrog,

    lovers lie for a moment in the morning and the frustrations of yesterday fade into the quiet beginnings of another day.

    It is time then.

    I rise up into the bone crackling morning, my body protesting, my spirit already stretching out along the places I will see.

    Inside, I find I am ready for more stumbling.

    July 29, 2022

    #boneCracklingMorning #bullfrog #chronicPain #ContemplativePoetry #ContemplativeWriting #Despair #divineSurprise #embodiment #Faith #FaithAndLife #Family #findingJoy #fog #friends #God #GodIsMystery #Grace #Gratitude #Hope #Hospitality #ListeningToTheSoul #Love #marriage #mist #Morning #mothersAndDaughters #movingForward #mystery #personalReflection #pilgrimage #Poems #readiness #renewal #resilience #sacredOrdinary #SpiritualJourney #SpiritualReflection #SubmissionToGod #surprise #tearsAndHealing #Travel #wanderingWonder #Wonder
  21. Stumbling Block

    It seems I have always been stumbling, tripping over the unintended in a fog of wandering wonder.

    The mist has been ever around me, my cloud by day. I am enveloped by mystery.

    You do indeed love to surprise me, O God;

    two girls find shiny stones in a fountain and their joy chases away the despair at not finding a loved one,

    the hospitality of friends lightens the weight upon a heavy chest from a returning to what was and the traveler can breathe again into what will be,

    a mother’s words and the night breeze dries a daughter’s tears and she can smile at the deep thrum of a bullfrog,

    lovers lie for a moment in the morning and the frustrations of yesterday fade into the quiet beginnings of another day.

    It is time then.

    I rise up into the bone crackling morning, my body protesting, my spirit already stretching out along the places I will see.

    Inside, I find I am ready for more stumbling.

    July 29, 2022

    #boneCracklingMorning #bullfrog #chronicPain #ContemplativePoetry #ContemplativeWriting #Despair #divineSurprise #embodiment #Faith #FaithAndLife #Family #findingJoy #fog #friends #God #GodIsMystery #Grace #Gratitude #Hope #Hospitality #ListeningToTheSoul #Love #marriage #mist #Morning #mothersAndDaughters #movingForward #mystery #personalReflection #pilgrimage #Poems #readiness #renewal #resilience #sacredOrdinary #SpiritualJourney #SpiritualReflection #SubmissionToGod #surprise #tearsAndHealing #Travel #wanderingWonder #Wonder
  22. 🌩️ Today’s Flare Report: Fatigue

    Not all fatigue is solved by sleep.

    Sometimes it’s waking up exhausted.
    Sometimes it’s choosing between a shower and making dinner.
    Sometimes surviving the day is the accomplishment.

    💜 Pain: Moderate
    🌬️ Energy: Low
    🧠 Brain Fog: High
    🥄 Spoon Forecast: Limited

    If today’s forecast matches yours, be gentle with yourself.

    How’s your forecast today? 💜

    #ChronicIllness #ChronicPain #Fatigue #BrainFog #Spoonie #InvisibleIllness #Disability #ChronicFatigue

  23. Migraine, Perception, and Creative Flow

    Living Inside A Migraine

    When pain, perception, and medication reshape daily life

    I’ve been dealing with a migraine for nine days. This isn’t just a headache—it comes with aura, Alice in Wonderland syndrome, and persistent vertigo with nausea. My perception gets distorted, my thinking slows down, and basic tasks become difficult. The medication helps with the pain, but it brings its own side effects, and overall, it’s been hard to function.

    In the middle of this, something unexpected happened.

    A Brief Shift in State

    Unexpected focus and creative flow during disruption

    While I was heavily medicated, I had a period of intense creative focus. For a few hours, I was able to paint with a level of freedom that I don’t usually reach. It felt like my usual mental filters were lowered. I wasn’t second‑guessing decisions or holding back. I just worked.

    The result was different from my normal work—more direct, less controlled, but also more expressive.

    This raised a question for me: what actually changed in that moment?

    Changes in Perception

    How migraine and medication alter access, not ability

    Triptans, the medication I use for acute migraine attacks, act on serotonin receptors. They’re not psychedelics, but they do affect how the brain processes signals. Combined with the migraine itself—especially aura, which already alters perception—the overall effect is a shift in how I experience space, color, and thought.

    That shift isn’t comfortable. Most of it is disorienting and unpleasant. But within it, there was a brief window where my usual patterns loosened. And in that space, creative work felt easier.

    Access, Not Creation

    The work was already there—the conditions just changed

    It’s important to be clear: the migraine didn’t “create” anything. The creativity was already there. What changed was how accessible it felt. The conditions removed some of the internal constraints I usually work within—habits, expectations, and self‑editing.

    That’s not something I want to rely on. The cost is too high. But it does point to something useful.

    If a change in mental state can affect how I access creativity, then there may be other ways to reach similar openness without the physical toll. It suggests that part of my creative process is limited not by ability, but by structure—how tightly I control the outcome, how much I filter while working.

    There’s also a broader connection here. Decades ago, I had experiences with psychedelics that shifted how I saw the world and myself. Those experiences helped me let go of a lot of fear and rigidity. I don’t return to them now, but the perspective they opened up has stayed with me.

    That perspective has been important in dealing with chronic migraine. The pain itself isn’t optional, but my response to it isn’t fixed. Over time, I’ve learned to manage the mental side of it—how much resistance I bring to it, how I interpret it, and how I move through it. That doesn’t eliminate suffering, but it changes its intensity and impact.

    The recent experience fits into that same pattern. Even in a difficult state, there was a moment where something shifted—not into relief exactly, but into clarity of a different kind.

    For me, the takeaway isn’t about the medication or the migraine. It’s about access.

    The kind of creative flow I felt isn’t something external that I need to recreate through extreme conditions. It’s something internal that I was briefly able to reach under unusual circumstances.

    Openness and Letting Go

    When the boundary between experience and experiencer softens

    There’s also a quality in that state that’s familiar from meditation. It’s a kind of openness where the usual sense of separation starts to fade. Instead of feeling like an observer acting on an experience, there’s just the experience itself—no clear boundary between the one perceiving and what’s being perceived. In that space, the need to control or interpret loosens, and the work unfolds more directly, without the usual distance between intention and action.

    Working with Pain

    Perspective, resistance, and what can shift

    Another layer to this is perspective. The difference between being overwhelmed by the experience and moving through it often comes down to how it’s held. I wrote previously about the Four Noble Truths and the Eightfold Path as a framework for navigating chronic pain from migraine and lupus. What stands out to me now is how practical that framework is—not as philosophy, but as a way of adjusting perspective in real time.

    When The Pain Takes Over

    A reminder that practice isn’t always accessible

    Pain is present. That part isn’t optional. But the added weight—resistance, fear, frustration—can shift depending on how tightly I hold the experience. That said, this isn’t always accessible. There are moments when the pain takes over completely. Last night was one of those times. I woke up in the middle of the night in severe pain after my first medication didn’t work. I couldn’t find my stronger medication, didn’t have my glasses, and ended up searching through cabinets, drawers, and bags in a panic. I knew that without it, I might end up in the ER—where the treatment helps, but comes with hours of discomfort and side effects. I was overwhelmed, in tears, and scared.

    In moments like that, there isn’t much space for perspective or practice. But experiences like this also make something clear to me: without meditation, without the framework I’ve built from Buddhist practice, I would likely be living in that state of panic much more often. My commotion woke up my husband, who came in—calm, steady, not caught in the panic I was in. He found the medication, and he cleaned up the mess I had made searching as I went back to bed. That contrast stood out. It reminded me that while I can’t always access those tools in the moment, they still shape how I move through these experiences over time.

    Returning to Openness

    Creative flow, meditation, and another way of relating to experience

    It’s not easy to stay open in the middle of persistent pain. In those moments, it’s hard to remember that the pain will pass—that it isn’t permanent. Pain forces attention into the present, but not calmly or intentionally. It can narrow everything down to urgency and survival. At the same time, it can act as a kind of teacher. It shows where resistance builds, where fear takes hold, and how quickly the mind tries to escape what’s happening. When I’m able to step back, even slightly, I can see it less as something to fight and more as something that reveals how I relate to experience.

    What I keep coming back to is this: the experience changes depending on how I meet it. Not completely, not all at once, but enough to matter. And in those moments of openness, there is less separation—and a little more space for things to be as they are.

    I painted this over six hours while medicated for a migraine, drifting in and out of focus. The haze loosened my usual self‑judgment, and the work shifted into something more fluid and intuitive. It’s not complete, but the evolution itself tells the story.

    #acceptance #alteredStates #artisticFlow #awareness #BuddhistPhilosophy #chronicIllness #chronicPain #consciousness #creativeExpression #creativeProcess #creativity #eightfoldPath #flowState #fourNobleTruths #innerLandscape #innerWork #intuitiveArt #lettingGo #livedExperience #lupus #meditation #migraine #migraineAura #mindfulness #nondualAwareness #openness #painting #perception #personalEssay #perspectiveShift #presence #resilience #transformation
  24. Mind and Body Exercises - whole health wisdom blog & resources @mindandbodyexercises.wordpress.com@mindandbodyexercises.wordpress.com ·

    The One-Handed Bow and Shaolin Salute

    A Symbolic Gesture Bridging Buddhism, Martial Arts, and Philosophy

    Among the many ritual gestures in martial arts and Buddhist practice, few are as rich in symbolism as the one-handed bow and the Shaolin salute. These simple movements embody centuries of cultural synthesis, spanning Buddhist devotion, Confucian ethics, and Taoist philosophy. Though often performed without conscious reflection, these gestures are living links to profound stories of sacrifice, humility, and moral discipline.

    It is also important to distinguish between “bowing toward” someone and “bowing down to” them. In Buddhist and martial traditions, a bow is not a sign of subjugation or inferiority, but rather a gesture of mutual respect, recognition, and presence. To bow toward someone is to acknowledge their humanity, their role as teacher or peer, or their shared path. In contrast, bowing down to someone implies surrender, hierarchy, or submission, a dynamic not typically encouraged in authentic Chan or martial teachings, which emphasize non-attachment, humility, and equality of spirit (Suzuki, 1956; Shahar, 2008). The gesture is not about worship, but about mindful reverence for the moment and the relationship.

    The Story of Huike and the One-Handed Bow

    The origins of the one-handed bow can be traced to a pivotal moment in Chan (Zen)Buddhist history. In the 5th or 6th century CE, the Indian monk Bodhidharma (Damo) traveled to China, bringing the profound teachings of Dhyana (meditation) Buddhism. According to legend, Bodhidharma secluded himself in a cave near the Shaolin Temple, meditating in silence for nine years (Suzuki, 1959).

    During this time, a Chinese monk named Huike sought to become his disciple. Initially rejected, Huike demonstrated his unwavering determination by standing outside Bodhidharma’s cave through a snowstorm. To further prove his sincerity, Huike cut off his own hand and presented it to Bodhidharma. Moved by this act of sacrifice, Bodhidharma finally accepted him as a student (Cleary, 1999).

    The one-handed bow evolved partly from this story. In Chan circles, bowing with one hand came to symbolize total devotion, humility, and the willingness to transcend ego and attachment. The gesture visually echoes Huike’s sacrifice, representing a commitment to the Dharma that goes beyond the physical form.

    Practical Monastic Roots

    Beyond its symbolic meaning, the one-handed bow also has practical origins. Buddhist monks traditionally carried alms bowls or staffs, often leaving one hand occupied. The gesture of bowing with the free hand thus became a mindful adaptation, embodying presence and respect even in simple actions (Strong, 2001).

    In Shaolin monastic life, where martial training intertwined with Buddhist practice, this gesture naturally merged with martial etiquette. Over time, it evolved into the more formalized Shaolin salute, now widely recognized across martial arts traditions.

    The Shaolin Salute (Fist Wrapped in Palm)

    The Shaolin salute, performed with the left open palm wrapping over the right closed fist encapsulates a deep philosophical message:

    • The left palm symbolizes wisdom, virtue, and restraint.
    • The right fist represents martial strength and discipline.
    • Together, they convey the ideal that strength must serve wisdom, and that martial power should always be governed by moral integrity (Henning, 1999).

    The gesture is performed at the start and end of training, as a sign of respect toward teachers, fellow practitioners, and the lineage itself.

    Northern vs. Southern Shaolin Variations

    Northern Shaolin

    • Gesture held closer to the chest, with a more upright posture.
    • Strong emphasis on Chan Buddhist origins, honoring the story of Huike and Bodhidharma.
    • Used as a reminder that martial arts is a spiritual path, not merely a physical practice.

    Southern Shaolin

    • Gesture held lower, sometimes with a deeper bow.
    • Greater incorporation of Confucian and Taoist elements:
      • The left palm represents civil virtue (wen).
      • The right fist represents martial courage (wu).
    • Symbolizes the ideal of the “complete person” where one who balances civil ethics with martial prowess.

    Across both traditions, the salute serves as a bridge between physical mastery and spiritual cultivation, reminding practitioners to walk the martial path with awareness, humility, and virtue.

    Philosophical Layers of the Salute

    InfluenceLeft PalmRight FistCombined GestureBuddhism (Chan)Wisdom, compassionStrength, disciplineStrength governed by wisdomConfucianismRitual propriety (礼, li)Martial courageHarmony of civil and martial virtuesTaoismYin (open hand)Yang (closed fist)Balance of opposites, alignment with Dao

    These layers reflect the syncretic nature of Chinese culture, where Buddhism, Confucianism, and Taoism enriched one another and deeply influenced the martial arts (Shahar, 2008).

    The Gesture Today

    In modern martial arts, the Shaolin salute is used worldwide. Yet, many practitioners are unaware of its spiritual and historical dimensions. The story of Huike’s sacrifice, the practicality of the one-handed bow, and the layered meaning of the salute all remind us that external movements can carry profound internal significance.

    Every time a martial artist performs this gesture, they are participating in a lineage that spans centuries of wisdom, discipline, and moral cultivation. In a world often dominated by superficial strength, the Shaolin salute offers a timeless reminder:
    True power lies in restraint, and the greatest warrior is one whose actions serve a higher wisdom.

    Conclusion

    The evolution of the one-handed bow and Shaolin salute exemplifies the essence of holistic practice, integrating the body, mind, and spirit. These gestures are not mere formalities; they are expressions of a worldview where humility tempers strength, and discipline serves compassion.

    As we move through modern life, whether in the dojo, temple, or daily interactions, this simple bow invites us to embody presence, respect, and the pursuit of wisdom in every action.

    References:

    Cleary, T. (1999). Zen Dawn: Early Zen Texts from Tun Huang. Shambhala Publications.

    Henning, S. E. (1981). The Chinese martial arts in historical perspective. In Military Affairs (Issue 4, pp. 173–179). Society for Military History. https://themartialscholar.yolasite.com/resources/henning.pdf

    Shahar, M. (2008). The Shaolin Monastery: History, Religion, and the Chinese Martial Arts. University of Hawaii Press. The Shaolin Monastery: History, Religion, and the Chinese Martial Arts on JSTOR

    Strong, J. S. (2001). The Experience of Buddhism: Sources and Interpretations (2nd ed.). Wadsworth/Thomson Learning. https://openlibrary.org/books/OL7785420M/The_Experience_of_Buddhism

    Suzuki, D. T. (1959). Zen Buddhism and Its Influence on Japanese Culture. Princeton University Press. https://archive.org/details/in.gov.ignca.16794

    #angerManagement #chronicPain #depression #healthCare #innerTransformation #martialArtsCenterForHealth #osteoporosis #ParkinsonsDisease #PTSD #Qigong #stressManagement #stressRelief #TaiChi #WinterParkPresbyterian #WinterParkTaiChi #yoga
  25. ✨ Whether you are navigating the pressure of a high stakes career, carrying ancestral patterns, struggling in difficult relationships, or healing from a broken heart, the real solution lies in recalibrating your energetic field. ... You are always welcome here.
    Link in profile.
    💗
    #mentalhealth
    #ChronicFatigue #BrainFog #SleepBetter #MigraineRelief #ChronicPain #DigitalDetox #MentalLoad #work #career #meditation

    Made with ai tools.

  26. My last three days have sucked. Big pain days due to a dislocated rib, and I can't get to physio for another two weeks. I think I coaxed the rib back into place, but the muscles on my shoulder and neck are freaking out now. Why do bodies do this shit? #InvisibleDisability #ChronicPain

  27. My last three days have sucked. Big pain days due to a dislocated rib, and I can't get to physio for another two weeks. I think I coaxed the rib back into place, but the muscles on my shoulder and neck are freaking out now. Why do bodies do this shit? #InvisibleDisability #ChronicPain

  28. My last three days have sucked. Big pain days due to a dislocated rib, and I can't get to physio for another two weeks. I think I coaxed the rib back into place, but the muscles on my shoulder and neck are freaking out now. Why do bodies do this shit? #InvisibleDisability #ChronicPain