#chronicpain — Public Fediverse posts

While I’ve spent over a decade trying to accept & prioritize caring for my disabilities… I’m finally processing how difficult this year’s many new, unexpected, and worsening symptom experiences have been.

I think that’s why, when I was looking for a resource I could offer alongside this image, The Thriving Spoonie’s “Burnout With Chronic Illness: Why It Isn’t a Phase” hit me so hard:

You keep showing up because you have to. You adapt because there isn’t another option. And over time, exhaustion stops feeling like a temporary setback and starts feeling like your baseline.

Burnout becomes especially difficult to recognize when it’s woven into survival. You adjust expectations. You compensate where you can. You normalize being depleted. And because you are still technically functioning, it’s easy to miss how much this way of living is costing you until your body forces a reckoning.

Please take care, however you need.

I’m sending you lots and lots of love.

– n

While I’ve spent over a decade trying to accept & prioritize caring for my disabilities… I’m finally processing how difficult this year’s many new, unexpected, and worsening symptom experiences have been.

I think that’s why, when I was looking for a resource I could offer alongside this image, The Thriving Spoonie’s “Burnout With Chronic Illness: Why It Isn’t a Phase” hit me so hard:

You keep showing up because you have to. You adapt because there isn’t another option. And over time, exhaustion stops feeling like a temporary setback and starts feeling like your baseline.

Burnout becomes especially difficult to recognize when it’s woven into survival. You adjust expectations. You compensate where you can. You normalize being depleted. And because you are still technically functioning, it’s easy to miss how much this way of living is costing you until your body forces a reckoning.

Please take care, however you need.

I’m sending you lots and lots of love.

– n

While I’ve spent over a decade trying to accept & prioritize caring for my disabilities… I’m finally processing how difficult this year’s many new, unexpected, and worsening symptom experiences have been.

I think that’s why, when I was looking for a resource I could offer alongside this image, The Thriving Spoonie’s “Burnout With Chronic Illness: Why It Isn’t a Phase” hit me so hard:

You keep showing up because you have to. You adapt because there isn’t another option. And over time, exhaustion stops feeling like a temporary setback and starts feeling like your baseline.

Burnout becomes especially difficult to recognize when it’s woven into survival. You adjust expectations. You compensate where you can. You normalize being depleted. And because you are still technically functioning, it’s easy to miss how much this way of living is costing you until your body forces a reckoning.

Please take care, however you need.

I’m sending you lots and lots of love.

– n

While I’ve spent over a decade trying to accept & prioritize caring for my disabilities… I’m finally processing how difficult this year’s many new, unexpected, and worsening symptom experiences have been.

I think that’s why, when I was looking for a resource I could offer alongside this image, The Thriving Spoonie’s “Burnout With Chronic Illness: Why It Isn’t a Phase” hit me so hard:

You keep showing up because you have to. You adapt because there isn’t another option. And over time, exhaustion stops feeling like a temporary setback and starts feeling like your baseline.

Burnout becomes especially difficult to recognize when it’s woven into survival. You adjust expectations. You compensate where you can. You normalize being depleted. And because you are still technically functioning, it’s easy to miss how much this way of living is costing you until your body forces a reckoning.

Please take care, however you need.

I’m sending you lots and lots of love.

– n

While I’ve spent over a decade trying to accept & prioritize caring for my disabilities… I’m finally processing how difficult this year’s many new, unexpected, and worsening symptom experiences have been.

I think that’s why, when I was looking for a resource I could offer alongside this image, The Thriving Spoonie’s “Burnout With Chronic Illness: Why It Isn’t a Phase” hit me so hard:

You keep showing up because you have to. You adapt because there isn’t another option. And over time, exhaustion stops feeling like a temporary setback and starts feeling like your baseline.

Burnout becomes especially difficult to recognize when it’s woven into survival. You adjust expectations. You compensate where you can. You normalize being depleted. And because you are still technically functioning, it’s easy to miss how much this way of living is costing you until your body forces a reckoning.

Please take care, however you need.

I’m sending you lots and lots of love.

– n

RE: https://me.dm/@kshernandez/116735297261197109

Not one jot, not one tittle received! The abusive environment persists, the abusive people remain.

If you wanna see me out of this situation, chip in.

Chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/116735297261197109

Not one jot, not one tittle received! The abusive environment persists, the abusive people remain.

If you wanna see me out of this situation, chip in.

Chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/116735297261197109

Not one jot, not one tittle received! The abusive environment persists, the abusive people remain.

If you wanna see me out of this situation, chip in.

Chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/116735297261197109

Not one jot, not one tittle received! The abusive environment persists, the abusive people remain.

If you wanna see me out of this situation, chip in.

Chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/116735297261197109

Not one jot, not one tittle received! The abusive environment persists, the abusive people remain.

If you wanna see me out of this situation, chip in.

Chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://mastodon.social/@ellespeaks/117305693148190974

I have lost weight due to lack of food and not having my meds. Its triggering my old eating disorder too 😪

$186 is left for September. For food/meds. Absolutely anything helps + is appreciated. Thank you so much. 💓

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #directaid #disabledmutualaid #lgbtq #queer #disabled #lesbian #artist #hungry #diabetic #crowdfunding #spoonie #chronicpain #helpfolkslive @[email protected] @[email protected] @disabledvoices @lgbtq @povertyandinequality

RE: https://mastodon.social/@ellespeaks/117305693148190974

I have lost weight due to lack of food and not having my meds. Its triggering my old eating disorder too 😪

$186 is left for September. For food/meds. Absolutely anything helps + is appreciated. Thank you so much. 💓

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #directaid #disabledmutualaid #lgbtq #queer #disabled #lesbian #artist #hungry #diabetic #crowdfunding #spoonie #chronicpain #helpfolkslive @[email protected] @[email protected] @disabledvoices @lgbtq @povertyandinequality

RE: https://mastodon.social/@ellespeaks/117305693148190974

I have lost weight due to lack of food and not having my meds. Its triggering my old eating disorder too 😪

$186 is left for September. For food/meds. Absolutely anything helps + is appreciated. Thank you so much. 💓

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #directaid #disabledmutualaid #lgbtq #queer #disabled #lesbian #artist #hungry #diabetic #crowdfunding #spoonie #chronicpain #helpfolkslive @[email protected] @[email protected] @disabledvoices @lgbtq @povertyandinequality

RE: https://mastodon.social/@ellespeaks/117305693148190974

I have lost weight due to lack of food and not having my meds. Its triggering my old eating disorder too 😪

$186 is left for September. For food/meds. Absolutely anything helps + is appreciated. Thank you so much. 💓

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #directaid #disabledmutualaid #lgbtq #queer #disabled #lesbian #artist #hungry #diabetic #crowdfunding #spoonie #chronicpain #helpfolkslive @[email protected] @[email protected] @disabledvoices @lgbtq @povertyandinequality

Not one dime rolled in yesterday. Unusual for a Friday...

Can we change that today, so I can move to a safer home?

Ways to aid:
https://Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#FatBearWeek

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Not one dime rolled in yesterday. Unusual for a Friday...

Can we change that today, so I can move to a safer home?

Ways to aid:
https://Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#FatBearWeek

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Not one dime rolled in yesterday. Unusual for a Friday...

Can we change that today, so I can move to a safer home?

Ways to aid:
https://Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#FatBearWeek

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Not one dime rolled in yesterday. Unusual for a Friday...

Can we change that today, so I can move to a safer home?

Ways to aid:
https://Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#FatBearWeek

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Not one dime rolled in yesterday. Unusual for a Friday...

Can we change that today, so I can move to a safer home?

Ways to aid:
https://Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#FatBearWeek

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

$211 over due for September
STALLED - food and meds!

Meds: 17 DAYS overdue
Food: 3 days overdue
I am diabetic and this adds a layer of danger. Im fatigued with brain fog. I just want food to keep my brain alert and on..

Even $5 is a HUGE help! Ty!

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #disabled #spoonie #chronicpain #chronicillness #crowdfund #lgbtq #queer #gay #poverty #artist #catmom @[email protected] @[email protected] @disabledvoices @disability @lgbtq @queer

$211 over due for September
STALLED - food and meds!

Meds: 17 DAYS overdue
Food: 3 days overdue
I am diabetic and this adds a layer of danger. Im fatigued with brain fog. I just want food to keep my brain alert and on..

Even $5 is a HUGE help! Ty!

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #disabled #spoonie #chronicpain #chronicillness #crowdfund #lgbtq #queer #gay #poverty #artist #catmom @[email protected] @[email protected] @disabledvoices @disability @lgbtq @queer

RE: https://mastodon.social/@ellespeaks/117305693148190974

Happy Fund Friday!
Im so close to closing September. Down to just meds and food needed.

$211 to go and absolutely any amount is helpful in reaching it

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #crowdfunding #gofundme #directaid #queer #poverty @[email protected] @[email protected] @directaid @disabledvoices @disability @lgbtq @creativearts

RE: https://mastodon.social/@ellespeaks/117305693148190974

Happy Fund Friday!
Im so close to closing September. Down to just meds and food needed.

$211 to go and absolutely any amount is helpful in reaching it

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #crowdfunding #gofundme #directaid #queer #poverty @[email protected] @[email protected] @directaid @disabledvoices @disability @lgbtq @creativearts

RE: https://mastodon.social/@ellespeaks/117305693148190974

Happy Fund Friday!
Im so close to closing September. Down to just meds and food needed.

$211 to go and absolutely any amount is helpful in reaching it

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #crowdfunding #gofundme #directaid #queer #poverty @[email protected] @[email protected] @directaid @disabledvoices @disability @lgbtq @creativearts

RE: https://mastodon.social/@ellespeaks/117305693148190974

Happy Fund Friday!
Im so close to closing September. Down to just meds and food needed.

$211 to go and absolutely any amount is helpful in reaching it

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #crowdfunding #gofundme #directaid #queer #poverty @[email protected] @[email protected] @directaid @disabledvoices @disability @lgbtq @creativearts

RE: https://lgbtqia.space/@aceofcosmicspace/117330115102138641

My stress is through the roof today, which isn't helping my other conditions😅This unexpected result(and now the need for meds I didn't account for) has thrown me off. If you could help please fedi friends, it would be much appreciated.

#trans #transcrowdfund #crowdfund #hopeful #breathe #calm #disabledlife #spoonie #SpoonieLife #chronicpain #ChronicIllnesses #chronicillnesswarrior #ptsdawareness #ptsdrecovery #fatigue #heart #australia #pride #optimism #bedrest #food #gratitude #lgbt #bisexual #friday #friyay #WeekendThoughts #please #thankyou #thanks #BoostsAreAppreciated #BoostsAreAppreciated #mastodon #disabledrights #cptsd #neurodivergent #autism #ahdh #audhd #neurodiversity #hangon #hanginthere #keepgoing @MutualAidNet @MediaActivist @mutualaid @broadwaybabyto @mobility #CommunityPower #CommunityAction #kind #kindnessispunk #kindnesswillprevail #loveyourneighborasyourself #mutualaidiscommunitycare #mutualaidisrevolution #kindnessrocks #kindnessnetwork

RE: https://lgbtqia.space/@aceofcosmicspace/117330115102138641

My stress is through the roof today, which isn't helping my other conditions😅This unexpected result(and now the need for meds I didn't account for) has thrown me off. If you could help please fedi friends, it would be much appreciated.

#trans #transcrowdfund #crowdfund #hopeful #breathe #calm #disabledlife #spoonie #SpoonieLife #chronicpain #ChronicIllnesses #chronicillnesswarrior #ptsdawareness #ptsdrecovery #fatigue #heart #australia #pride #optimism #bedrest #food #gratitude #lgbt #bisexual #friday #friyay #WeekendThoughts #please #thankyou #thanks #BoostsAreAppreciated #BoostsAreAppreciated #mastodon #disabledrights #cptsd #neurodivergent #autism #ahdh #audhd #neurodiversity #hangon #hanginthere #keepgoing @MutualAidNet @MediaActivist @mutualaid @broadwaybabyto @mobility #CommunityPower #CommunityAction #kind #kindnessispunk #kindnesswillprevail #loveyourneighborasyourself #mutualaidiscommunitycare #mutualaidisrevolution #kindnessrocks #kindnessnetwork

RE: https://lgbtqia.space/@aceofcosmicspace/117330115102138641

My stress is through the roof today, which isn't helping my other conditions😅This unexpected result(and now the need for meds I didn't account for) has thrown me off. If you could help please fedi friends, it would be much appreciated.

#trans #transcrowdfund #crowdfund #hopeful #breathe #calm #disabledlife #spoonie #SpoonieLife #chronicpain #ChronicIllnesses #chronicillnesswarrior #ptsdawareness #ptsdrecovery #fatigue #heart #australia #pride #optimism #bedrest #food #gratitude #lgbt #bisexual #friday #friyay #WeekendThoughts #please #thankyou #thanks #BoostsAreAppreciated #BoostsAreAppreciated #mastodon #disabledrights #cptsd #neurodivergent #autism #ahdh #audhd #neurodiversity #hangon #hanginthere #keepgoing @MutualAidNet @MediaActivist @mutualaid @broadwaybabyto @mobility #CommunityPower #CommunityAction #kind #kindnessispunk #kindnesswillprevail #loveyourneighborasyourself #mutualaidiscommunitycare #mutualaidisrevolution #kindnessrocks #kindnessnetwork

RE: https://lgbtqia.space/@aceofcosmicspace/117330115102138641

My stress is through the roof today, which isn't helping my other conditions😅This unexpected result(and now the need for meds I didn't account for) has thrown me off. If you could help please fedi friends, it would be much appreciated.

#trans #transcrowdfund #crowdfund #hopeful #breathe #calm #disabledlife #spoonie #SpoonieLife #chronicpain #ChronicIllnesses #chronicillnesswarrior #ptsdawareness #ptsdrecovery #fatigue #heart #australia #pride #optimism #bedrest #food #gratitude #lgbt #bisexual #friday #friyay #WeekendThoughts #please #thankyou #thanks #BoostsAreAppreciated #BoostsAreAppreciated #mastodon #disabledrights #cptsd #neurodivergent #autism #ahdh #audhd #neurodiversity #hangon #hanginthere #keepgoing @MutualAidNet @MediaActivist @mutualaid @broadwaybabyto @mobility #CommunityPower #CommunityAction #kind #kindnessispunk #kindnesswillprevail #loveyourneighborasyourself #mutualaidiscommunitycare #mutualaidisrevolution #kindnessrocks #kindnessnetwork

RE: https://lgbtqia.space/@aceofcosmicspace/117330115102138641

My stress is through the roof today, which isn't helping my other conditions😅This unexpected result(and now the need for meds I didn't account for) has thrown me off. If you could help please fedi friends, it would be much appreciated.

#trans #transcrowdfund #crowdfund #hopeful #breathe #calm #disabledlife #spoonie #SpoonieLife #chronicpain #ChronicIllnesses #chronicillnesswarrior #ptsdawareness #ptsdrecovery #fatigue #heart #australia #pride #optimism #bedrest #food #gratitude #lgbt #bisexual #friday #friyay #WeekendThoughts #please #thankyou #thanks #BoostsAreAppreciated #BoostsAreAppreciated #mastodon #disabledrights #cptsd #neurodivergent #autism #ahdh #audhd #neurodiversity #hangon #hanginthere #keepgoing @MutualAidNet @MediaActivist @mutualaid @broadwaybabyto @mobility #CommunityPower #CommunityAction #kind #kindnessispunk #kindnesswillprevail #loveyourneighborasyourself #mutualaidiscommunitycare #mutualaidisrevolution #kindnessrocks #kindnessnetwork