#chronicillness — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #chronicillness, aggregated by home.social.
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RE: https://wrzky.com/mutual-aid-request-august/
Still no movement at all.
Deadline ASAP:
⏳ $55/$250 for groceries, $195 still needed to cover my monthly groceries. I really need food to survive.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.Deadline 16 August 2026:
⏳ $0/$125 for electricity, water, and internet$538 in total still needed this month.
Please support within your capacity. Any amount helps. Boosting this post also helps. I need it shared further than my reach.
https://ko-fi.com/wrzky/goalThank you, thank you 🙂↕️💜
@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund -
RE: https://wrzky.com/mutual-aid-request-august/
Still no movement at all.
Deadline ASAP:
⏳ $55/$250 for groceries, $195 still needed to cover my monthly groceries. I really need food to survive.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.Deadline 16 August 2026:
⏳ $0/$125 for electricity, water, and internet$538 in total still needed this month.
Please support within your capacity. Any amount helps. Boosting this post also helps. I need it shared further than my reach.
https://ko-fi.com/wrzky/goalThank you, thank you 🙂↕️💜
@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund -
“If it were really that bad you would have more support”.
People believe that when you’re disabled, help magically appears.
That when you get worse, you get more help and/or funding.
The reality is far different.
There’s little to no help.
We live in legislated poverty.
When there’s a setback, no one comes to save you.
We rely on community care and mutual aid because the capitalist system views us as expendable.
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“If it were really that bad you would have more support”.
People believe that when you’re disabled, help magically appears.
That when you get worse, you get more help and/or funding.
The reality is far different.
There’s little to no help.
We live in legislated poverty.
When there’s a setback, no one comes to save you.
We rely on community care and mutual aid because the capitalist system views us as expendable.
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$230 left for august due urgently ‼⚠️⏳
$400/$630 - anything helps! For food, hygiene, co pay, phone bill.
V: d_fay
Pp: peach77Tags: ⬇️
#mutualaid #directaid #disabled #spoonie #chronicpain #lgbtq #queer #artist #helpneeded @mutualaid @queer @disabledvoices @povertyandinequality #chronicillness #disabledartist -
$230 left for august.
Im disabled and cant work. No family around because they are homophobic and ableist. I live 26% below the poverty line
Needing: Co pay, phone bill, and food are dire right now. Anything at all helps. Tysm.
#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid
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A Life Hidden: The Burden of Chronic Illness That I Rarely Talk About
https://alifehidden.com/2026/07/30/burden/
Screenshot from latest Science for ME weekly update
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A Life Hidden: The Burden of Chronic Illness That I Rarely Talk About
https://alifehidden.com/2026/07/30/burden/
Screenshot from latest Science for ME weekly update
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America should be ashamed.
No one should ever have to delay medical care due to cost.
The US is the only developed country that doesn’t guarantee healthcare to its citizens, and as a result they have extremely poor outcomes & lower life expectancy.
Healthcare is a human right.
https://www.independent.co.uk/us/money/us-medical-costs-doctors-health-insurance-b3026479.html
#poverty #UniversalHealthcare #healthcare
#uspol #disability #ableism #chronicillness -
America should be ashamed.
No one should ever have to delay medical care due to cost.
The US is the only developed country that doesn’t guarantee healthcare to its citizens, and as a result they have extremely poor outcomes & lower life expectancy.
Healthcare is a human right.
https://www.independent.co.uk/us/money/us-medical-costs-doctors-health-insurance-b3026479.html
#poverty #UniversalHealthcare #healthcare
#uspol #disability #ableism #chronicillness -
Really needing help!
$150 left for August but also i have 2 unexpected expenses.1 - eczema cream $30
2 - more food $50 so new total is $230to go.Anything helps. Really been a rough month. Still sick.
#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid @[email protected] @[email protected] @disabledvoices
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Really needing help!
$150 left for August but also i have 2 unexpected expenses.1 - eczema cream $30
2 - more food $50 so new total is $230to go.Anything helps. Really been a rough month. Still sick.
#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid @[email protected] @[email protected] @disabledvoices
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RE: https://mastodon.social/@ellespeaks/116996844601522894
urgent‼
$150 left for August for necessities. Unfortunately I need more $$ for food then planned.
No movement for 2 days, bills are coming up. Anything at all is a blessing. So close to finishing! 🤞🏻 🙏🏻 💕 tysm.
V: d_fay
P: peach77#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #disabled #spoonie #chronicpain #chronicillness #Kofi #crowdfunding #helpfolkslive2026 #lgbtq #lesbian #queer #artist @[email protected] @[email protected] @disabledvoices @povertyandinequality @queer @disability
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RE: https://mastodon.social/@ellespeaks/116996844601522894
urgent‼
$150 left for August for necessities. Unfortunately I need more $$ for food then planned.
No movement for 2 days, bills are coming up. Anything at all is a blessing. So close to finishing! 🤞🏻 🙏🏻 💕 tysm.
V: d_fay
P: peach77#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #disabled #spoonie #chronicpain #chronicillness #Kofi #crowdfunding #helpfolkslive2026 #lgbtq #lesbian #queer #artist @[email protected] @[email protected] @disabledvoices @povertyandinequality @queer @disability
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The Oldest Shadow: a poem on solar eclipse day
Birds remember the ancient darkness—a poem on eclipse, endurance, and light returning.https://neurodivine.ie/2026/08/12/the-oldest-shadow-a-poem-on-solar-eclipse-day/
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The Oldest Shadow: a poem on solar eclipse day
Birds remember the ancient darkness—a poem on eclipse, endurance, and light returning.https://neurodivine.ie/2026/08/12/the-oldest-shadow-a-poem-on-solar-eclipse-day/
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Using aids and maybe looking/acting different than others expect:
'I don't really care anymore what people think of me.'
'Well, better look silly than feel terrible.'
'I quite enjoy being weird. (..) I hope that everyone can just go out there and be their own weird self after this conversation.'
#physicaltherapy tools to reduce crashes and improve quality of life for:
#POTS
#PEM
#EDS
#MCAS
#MECFS
#LongCovid
#servicedog
#invisibleillness -
Using aids and maybe looking/acting different than others expect:
'I don't really care anymore what people think of me.'
'Well, better look silly than feel terrible.'
'I quite enjoy being weird. (..) I hope that everyone can just go out there and be their own weird self after this conversation.'
#physicaltherapy tools to reduce crashes and improve quality of life for:
#POTS
#PEM
#EDS
#MCAS
#MECFS
#LongCovid
#servicedog
#invisibleillness -
RE: https://wrzky.com/mutual-aid-request-august/
No movement.
Deadline ASAP:
⏳ $55/$250 for groceries, $195 still needed to cover my monthly groceries. I really need food to survive.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.Deadline 16 August 2026:
⏳ $0/$125 for electricity, water, and internet$538 in total still needed this month.
Any support is appreciated. Please boost so this reaches further than my feed.
https://ko-fi.com/wrzky/goalThank you, thank you 🙂↕️💜
@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund -
RE: https://wrzky.com/mutual-aid-request-august/
No movement.
Deadline ASAP:
⏳ $55/$250 for groceries, $195 still needed to cover my monthly groceries. I really need food to survive.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.Deadline 16 August 2026:
⏳ $0/$125 for electricity, water, and internet$538 in total still needed this month.
Any support is appreciated. Please boost so this reaches further than my feed.
https://ko-fi.com/wrzky/goalThank you, thank you 🙂↕️💜
@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund -
Privilege and luck play a huge role in whether you survive our healthcare system.
Bias, racism and misogyny are rampant and frequently cost people their lives.
A surgical complication almost killed me when I was 24.
Luck, privilege and a 22 year old boy saved my life.
No one’s survival should be based on luck or how much privilege they have.
People should have a reasonable expectation of safety in a hospital.
They should be treated the same regardless of their skin colour, marital status, sexual orientation or insurance status.
Sadly that’s not how things work.
I had a hysterectomy when I was 24. Doctors expected me to “sail through” recovery because I was young and fit.
Unfortunately they were wrong. My body wasn’t recovering, it was decompensating.
I had many abdominal surgeries before the hysterectomy. I knew the difference between normal post op pain and something being “wrong”.
After surgery I felt like I was dying.
My pain worsened every day.
I became more fatigued. I couldn’t eat or sleep.
But no one believed me.
The surgeon discharged me.
I returned to the ER and told them something was wrong.
They dismissed me and sent me home.
I went back multiple times and each time was treated like a nuisance.
I was gaslit and told my pain was “normal”.
No one even ran basic tests.
Even people in my life started to doubt me.
Told me I should just rest and stop bothering the folks at the ER.
I KNEW something was wrong but I was rapidly losing the ability to self advocate as I became too weak to speak or even sit up.
My 22 year old boyfriend came to check on me and instantly realized things were dire.
He called a coworker to take us back to the hospital.
He caused a scene to ensure a doctor saw me and I wasn’t sent home again.
They threatened to call the police but he refused to back down.
He was right.
I had a massive internal bleed and an infected abscess.
I was immediately evacuated to a larger hospital for emergency surgery and only given a 50/50 chance of survival.
I spent nearly a month in the hospital recovering.
I didn’t even want to go back to the ER that day.
I was thoroughly beaten down.
Being dismissed and mistreated so many times left me feeling hopeless and like I would rather die in my own bed than be disrespected in the hospital AGAIN.
No one should face these types of decisions.
No one should have to fight that hard for care.
Had my boyfriend not believed me, I would have died.
Had he told me to stop bothering ER staff, I would have died.
Had he not come to check on me that night, I would have died.
He wasn’t prepared to handle such an intense life or death situation… but he stepped up because no one else did.
He saw the danger and fought like hell to protect me.
That’s privilege.
The fact that he wasn’t arrested? Privilege and luck.
I’m grateful to him for being willing to risk his own safety to ensure I got the care I needed, but I hate that it took a man causing a scene to get the healthcare system to pay attention.
I hate that others have died simply because they didn’t have someone to fight for them.
We must do better.
We must call out the bias in medicine and ensure everyone is equally protected.
We must establish networks of community care so that no one ever has to face the ER alone.
We must tell our stories so people know they aren’t alone.
We must amplify the stories of those without platforms so their voices are heard too.
If you’ve been mistreated, know that it’s not your fault.
The system needs to change, and we will keep fighting until it does.
#ableism #racism #misogyny #chronicillness #disability #medicalmisogyny
-
Privilege and luck play a huge role in whether you survive our healthcare system.
Bias, racism and misogyny are rampant and frequently cost people their lives.
A surgical complication almost killed me when I was 24.
Luck, privilege and a 22 year old boy saved my life.
No one’s survival should be based on luck or how much privilege they have.
People should have a reasonable expectation of safety in a hospital.
They should be treated the same regardless of their skin colour, marital status, sexual orientation or insurance status.
Sadly that’s not how things work.
I had a hysterectomy when I was 24. Doctors expected me to “sail through” recovery because I was young and fit.
Unfortunately they were wrong. My body wasn’t recovering, it was decompensating.
I had many abdominal surgeries before the hysterectomy. I knew the difference between normal post op pain and something being “wrong”.
After surgery I felt like I was dying.
My pain worsened every day.
I became more fatigued. I couldn’t eat or sleep.
But no one believed me.
The surgeon discharged me.
I returned to the ER and told them something was wrong.
They dismissed me and sent me home.
I went back multiple times and each time was treated like a nuisance.
I was gaslit and told my pain was “normal”.
No one even ran basic tests.
Even people in my life started to doubt me.
Told me I should just rest and stop bothering the folks at the ER.
I KNEW something was wrong but I was rapidly losing the ability to self advocate as I became too weak to speak or even sit up.
My 22 year old boyfriend came to check on me and instantly realized things were dire.
He called a coworker to take us back to the hospital.
He caused a scene to ensure a doctor saw me and I wasn’t sent home again.
They threatened to call the police but he refused to back down.
He was right.
I had a massive internal bleed and an infected abscess.
I was immediately evacuated to a larger hospital for emergency surgery and only given a 50/50 chance of survival.
I spent nearly a month in the hospital recovering.
I didn’t even want to go back to the ER that day.
I was thoroughly beaten down.
Being dismissed and mistreated so many times left me feeling hopeless and like I would rather die in my own bed than be disrespected in the hospital AGAIN.
No one should face these types of decisions.
No one should have to fight that hard for care.
Had my boyfriend not believed me, I would have died.
Had he told me to stop bothering ER staff, I would have died.
Had he not come to check on me that night, I would have died.
He wasn’t prepared to handle such an intense life or death situation… but he stepped up because no one else did.
He saw the danger and fought like hell to protect me.
That’s privilege.
The fact that he wasn’t arrested? Privilege and luck.
I’m grateful to him for being willing to risk his own safety to ensure I got the care I needed, but I hate that it took a man causing a scene to get the healthcare system to pay attention.
I hate that others have died simply because they didn’t have someone to fight for them.
We must do better.
We must call out the bias in medicine and ensure everyone is equally protected.
We must establish networks of community care so that no one ever has to face the ER alone.
We must tell our stories so people know they aren’t alone.
We must amplify the stories of those without platforms so their voices are heard too.
If you’ve been mistreated, know that it’s not your fault.
The system needs to change, and we will keep fighting until it does.
#ableism #racism #misogyny #chronicillness #disability #medicalmisogyny
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I can’t believe I used to have energy to shower everyday. Now it’s like once or twice a week. Even that gets exhausting.
#mecfs #pots #chronicillness -
I can’t believe I used to have energy to shower everyday. Now it’s like once or twice a week. Even that gets exhausting.
#mecfs #pots #chronicillness -
I'm relishing feeling up to doing hands-on things again. Knitting. Crocheting. Gardening. I still have to do most things in little bites with plenty of rest in between, but seeing progress is heartening. (And the fresh air and movement out in the garden will be doing me good too.)
It's inconsistent and it's slow, but *I am getting better*.
#CFS #ChronicIllness #hope -
I'm relishing feeling up to doing hands-on things again. Knitting. Crocheting. Gardening. I still have to do most things in little bites with plenty of rest in between, but seeing progress is heartening. (And the fresh air and movement out in the garden will be doing me good too.)
It's inconsistent and it's slow, but *I am getting better*.
#CFS #ChronicIllness #hope -
Wrote a letter to my patrons today about shutting down my Patreon. You can read it here if you like: https://www.patreon.com/audioerotica/posts/final-post-166389114
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Wrote a letter to my patrons today about shutting down my Patreon. You can read it here if you like: https://www.patreon.com/audioerotica/posts/final-post-166389114
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Disability will happen to almost everyone.
Most people are only temporarily abled.
It’s not a moral failing.
It’s not a choice people make.
The human body is frail.
It only takes one illness, accident or stroke of bad luck to forever change your health.
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Disability will happen to almost everyone.
Most people are only temporarily abled.
It’s not a moral failing.
It’s not a choice people make.
The human body is frail.
It only takes one illness, accident or stroke of bad luck to forever change your health.
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When you’re disabled, people will treat you like you’re broken.
They’ll act like you’re in the wrong no matter what you do.
They will insinuate you could “try harder”.
They will blame you for their discomfort.
Your disability is not your fault.
People just can’t face it.
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When you’re disabled, people will treat you like you’re broken.
They’ll act like you’re in the wrong no matter what you do.
They will insinuate you could “try harder”.
They will blame you for their discomfort.
Your disability is not your fault.
People just can’t face it.
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$150 left for august
Phone, a co pay, gas, hygiene‼V: d_fay
P: peach77
K: https://ko-fi.com/ellespeaksAbsolutely any help is appreciated and life saving.
Thank you 💕
#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #spoonie #disabled #spoonie #chronicpain #chronicillness #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid
@[email protected] @[email protected] @[email protected] @disabledvoices @queer @creativearts @povertyandinequality @disability @[email protected] -
$150 left for august
Phone, a co pay, gas, hygiene‼V: d_fay
P: peach77
K: https://ko-fi.com/ellespeaksAbsolutely any help is appreciated and life saving.
Thank you 💕
#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #spoonie #disabled #spoonie #chronicpain #chronicillness #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid
@[email protected] @[email protected] @[email protected] @disabledvoices @queer @creativearts @povertyandinequality @disability @[email protected] -
https://mastodon.social/@ellespeaks/117012322882252345
^^ If anyone would be so kind as to help me get some art supplies, im close to running out.
Otherwise, august is at: $400/$550
Food is always needed. Disabled. Lesbian. Diabetic.Thank you💕
#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #disabled #spoonie #chronicpain #chronicillness #ptsd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid @mutualaid @lgbtq @disability #artist
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https://mastodon.social/@ellespeaks/117012322882252345
^^ If anyone would be so kind as to help me get some art supplies, im close to running out.
Otherwise, august is at: $400/$550
Food is always needed. Disabled. Lesbian. Diabetic.Thank you💕
#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #disabled #spoonie #chronicpain #chronicillness #ptsd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid @mutualaid @lgbtq @disability #artist
-
RE: https://wrzky.com/mutual-aid-request-august/
2 days now. No movement.
Deadline ASAP:
⏳ $50/$250 for groceries, $200 still needed to cover my monthly groceries. I really need food to survive.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.Deadline 16 August 2026:
⏳ $0/$125 for electricity, water, and internet$543 in total still needed this month.
Please support however you can. Sharing this also goes a long way.
https://ko-fi.com/wrzky/goalThank you, thank you 🙂↕️💜
@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund -
RE: https://wrzky.com/mutual-aid-request-august/
2 days now. No movement.
Deadline ASAP:
⏳ $50/$250 for groceries, $200 still needed to cover my monthly groceries. I really need food to survive.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.Deadline 16 August 2026:
⏳ $0/$125 for electricity, water, and internet$543 in total still needed this month.
Please support however you can. Sharing this also goes a long way.
https://ko-fi.com/wrzky/goalThank you, thank you 🙂↕️💜
@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund -
#HypertensionAwareness #HealthTips #DementiaPrevention #WellnessJourney #HealthyLiving #ChronicIllness #PatientEmpowerment #wellnesslifestyle #wellnesswarrior #healthandwellbeing #wellnessgoals #wellnessadvocate #wellnesscoaching #MentalHealthMatters #VitaminD #HealthcareInsights https://mastodon.social/@biohackingpathway/117070209952629459
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RE: https://mastodon.social/@ellespeaks/116996844601522894
$180 over due! URGENT ‼
co pay due 5 days ago. If I cant pay it, a late fee will be added.
Co pay: $20/$50 = $30 remainsI also need food. Im out + diabetic.
Food: $0/$150 ⚠️
Anythings a blessing, ty 💕Vn: d_fay
Pp: peach77#mutualaid #MutualAidSavesLives #MutualAidRequest #disabled #spoonie #chronicillness #lgbtq #kofi #helpneeded #gofundme #directaid #queer #diabetic #hunger #poverty #mutualaidmonday @povertyandinequality @mutualaid @directaid @queer @disabledvoices
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RE: https://mastodon.social/@ellespeaks/116996844601522894
$180 over due! URGENT ‼
co pay due 5 days ago. If I cant pay it, a late fee will be added.
Co pay: $20/$50 = $30 remainsI also need food. Im out + diabetic.
Food: $0/$150 ⚠️
Anythings a blessing, ty 💕Vn: d_fay
Pp: peach77#mutualaid #MutualAidSavesLives #MutualAidRequest #disabled #spoonie #chronicillness #lgbtq #kofi #helpneeded #gofundme #directaid #queer #diabetic #hunger #poverty #mutualaidmonday @povertyandinequality @mutualaid @directaid @queer @disabledvoices
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RE: https://mastodon.social/@ellespeaks/116996844601522894
Things are very bleak - out of food
I need food/to pay off my co pay.My bluesky was zapped and my threads is suppressed so this is my only platform with visibility
$20/200
V: d_fay
P: peach77#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @mutualaid @disabledvoices @lgbtq
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Beautiful writing from Naomi Whittingham's blog, A Life Hidden:
"The Burden of Chronic Illness That I Rarely Talk About"
https://alifehidden.com/2026/07/30/burden/#
"Today’s suffering, however bad it may be, is usually not the hardest part: it’s tomorrow’s uncertainty that is heaviest to bear"
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Beautiful writing from Naomi Whittingham's blog, A Life Hidden:
"The Burden of Chronic Illness That I Rarely Talk About"
https://alifehidden.com/2026/07/30/burden/#
"Today’s suffering, however bad it may be, is usually not the hardest part: it’s tomorrow’s uncertainty that is heaviest to bear"
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RE: https://mastodon.social/@ellespeaks/117051661501807053
help needed - $180 due - URGENT‼
Hey friends. No movement in 3days + co pay was due 5 days ago. If I cant pay it off soon, I'll have a late fee added
Co pay: $20/$50 = $30 remainsThe other necessity is food. Im out and diabetic.
Food: $0/$150 ⚠️⚠️Anything is a blessing, thank you
Vn: d_fay
Pp: peach77#mutualaid #disabled @[email protected] @[email protected] @disability @[email protected] @[email protected] @creativearts #artist #disabledartist #spoonie #chronicillness #chronicpain #helpfolkslive #DisabilityCrowdfund #gofundme
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RE: https://mastodon.social/@ellespeaks/117051661501807053
help needed - $180 due - URGENT‼
Hey friends. No movement in 3days + co pay was due 5 days ago. If I cant pay it off soon, I'll have a late fee added
Co pay: $20/$50 = $30 remainsThe other necessity is food. Im out and diabetic.
Food: $0/$150 ⚠️⚠️Anything is a blessing, thank you
Vn: d_fay
Pp: peach77#mutualaid #disabled @[email protected] @[email protected] @disability @[email protected] @[email protected] @creativearts #artist #disabledartist #spoonie #chronicillness #chronicpain #helpfolkslive #DisabilityCrowdfund #gofundme
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RE: https://wrzky.com/mutual-aid-request-august/
Still no movement.
⏳️ $50/$250 for groceries, $200 still needed to cover my monthly groceries. I really need food to survive.
⏳️ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳️ $0/$125 for electricity, water, and internet
$543 in total still needed this month.
Deadline: groceries and meds needed ASAP. Bills due 16 August 2026.
Please support within your capacity.
https://ko-fi.com/wrzky/goalBoosting this post also helps. I need this shared further than my reach. Thank you, thank you 🙂↕️💜
@[email protected] @[email protected] @mutualaidspace @disability @[email protected] @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive2026 #activism #activitypub #mentalhealth #healthcare #chronicillness #neurodivergence #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund #writer #disabledwriters #press #books
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RE: https://wrzky.com/mutual-aid-request-august/
Still no movement.
⏳️ $50/$250 for groceries, $200 still needed to cover my monthly groceries. I really need food to survive.
⏳️ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳️ $0/$125 for electricity, water, and internet
$543 in total still needed this month.
Deadline: groceries and meds needed ASAP. Bills due 16 August 2026.
Please support within your capacity.
https://ko-fi.com/wrzky/goalBoosting this post also helps. I need this shared further than my reach. Thank you, thank you 🙂↕️💜
@[email protected] @[email protected] @mutualaidspace @disability @[email protected] @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive2026 #activism #activitypub #mentalhealth #healthcare #chronicillness #neurodivergence #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund #writer #disabledwriters #press #books
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Auf der Suche nach den aktuellen Ozonwerten bin ich auf diese praktische Seite gestoßen 🙌
Infos zur Luftqualität mit konkreten Daten, auch UV-Index und Einordnung, wirklich hilfreich.
#Luftqualität #Ozon #Feinstaub #UVIndex #Asthma #ChronischKrank #ChronicIllness #Running #Walking
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Auf der Suche nach den aktuellen Ozonwerten bin ich auf diese praktische Seite gestoßen 🙌
Infos zur Luftqualität mit konkreten Daten, auch UV-Index und Einordnung, wirklich hilfreich.
#Luftqualität #Ozon #Feinstaub #UVIndex #Asthma #ChronischKrank #ChronicIllness #Running #Walking
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I'm very bad at pacing, I get excited and don't know my limit until I go past it. I had another crash. It's been really bad over the last 7-8 days. So if anyone else paces for chronic pain and chronic fatigue I'd love to know what works for you.
This is aimed at people who are dealing with chronic pain and / or chronic fatigue, so if you are not dealing with these I'd rather respectfully ask for a boost than advice or comments.
I used to have a Fitbit to help me track what I was doing but one of the metal plates on the back came off. I could glue it back on but knowing my luck, I don't know if that would interfere with it's function. 🤔
Edit: Thank you for the suggestions. ❤️ I will try to see if I can repair my Fitbit and possibly save for a Garmin to help me manage these symptoms.
#disability #fatigue #chronicfatigue #chronicillness #chronicpain
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I'm very bad at pacing, I get excited and don't know my limit until I go past it. I had another crash. It's been really bad over the last 7-8 days. So if anyone else paces for chronic pain and chronic fatigue I'd love to know what works for you.
This is aimed at people who are dealing with chronic pain and / or chronic fatigue, so if you are not dealing with these I'd rather respectfully ask for a boost than advice or comments.
I used to have a Fitbit to help me track what I was doing but one of the metal plates on the back came off. I could glue it back on but knowing my luck, I don't know if that would interfere with it's function. 🤔
Edit: Thank you for the suggestions. ❤️ I will try to see if I can repair my Fitbit and possibly save for a Garmin to help me manage these symptoms.
#disability #fatigue #chronicfatigue #chronicillness #chronicpain