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#chronicillness — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #chronicillness, aggregated by home.social.

  1. The Quiet Ache of Being Seen

    Have you ever had one of those days where nothing particularly terrible happened, yet somehow everything felt heavier than it should? Sometimes our emotions are gently pointing us toward something much deeper. This reflection explores the quiet human longing to feel truly seen and the healing that begins when we slow down long enough to listen.

    angelblessings11.com/2026/07/2

  2. Today was one of those days where everything moved at once.

    I shipped two versions of my NVDA word prediction add-on. v1.0.0 fixed keyboard conflicts that were pointed out by a community member, moved the management keys to NVDA+Alt+P/O/L, and added a custom app exclusion list so users can disable predictions in apps where they don't want them. v1.1.0 added punctuation-aware insertion, so when you accept a prediction after a period, it adds the space and capitalizes for you. Both are on GitHub.

    I published a new essay called "Becoming" on lanie.work. It's about the last seven months. The psych eval that stopped short. The health decline. Letting go of the identity I was clinging to. Disowning my sisters. Embracing long-term care. Finding peace with who I'm becoming, even while some questions are still unanswered.

    Then I checked my Cloudflare analytics. 1,780 unique visitors in the last 24 hours. 15,520 in the last 30 days. Nearly a gigabyte of my words served in a month. I'm still processing that.

    I got invited to interview with Fable. I found out my group home initial meeting is Thursday at 11 AM. And I applied to two paid research studies on User Interviews, one about small business ownership and one about AI tool usage, both of which I'm a good fit for.

    I'm lying in bed with a V8 energy drink, We the Kingdom playing "Waking Up" on my Spotify Upbeat Mix, and a grin on my face that won't quit.

    This year took almost everything. And what's left is somehow more honest, more real, more me than anything I was before.

    lanie.work/advocacy/becoming/
    github.com/RareBird15/wordpredictor

    #ActuallyAutistic #Disability #Accessibility #NVDA #Faith #ChronicIllness

  3. Today was one of those days where everything moved at once.

    I shipped two versions of my NVDA word prediction add-on. v1.0.0 fixed keyboard conflicts that were pointed out by a community member, moved the management keys to NVDA+Alt+P/O/L, and added a custom app exclusion list so users can disable predictions in apps where they don't want them. v1.1.0 added punctuation-aware insertion, so when you accept a prediction after a period, it adds the space and capitalizes for you. Both are on GitHub.

    I published a new essay called "Becoming" on lanie.work. It's about the last seven months. The psych eval that stopped short. The health decline. Letting go of the identity I was clinging to. Disowning my sisters. Embracing long-term care. Finding peace with who I'm becoming, even while some questions are still unanswered.

    Then I checked my Cloudflare analytics. 1,780 unique visitors in the last 24 hours. 15,520 in the last 30 days. Nearly a gigabyte of my words served in a month. I'm still processing that.

    I got invited to interview with Fable. I found out my group home initial meeting is Thursday at 11 AM. And I applied to two paid research studies on User Interviews, one about small business ownership and one about AI tool usage, both of which I'm a good fit for.

    I'm lying in bed with a V8 energy drink, We the Kingdom playing "Waking Up" on my Spotify Upbeat Mix, and a grin on my face that won't quit.

    This year took almost everything. And what's left is somehow more honest, more real, more me than anything I was before.

    lanie.work/advocacy/becoming/
    github.com/RareBird15/wordpredictor

    #ActuallyAutistic #Disability #Accessibility #NVDA #Faith #ChronicIllness

  4. Today was one of those days where everything moved at once.

    I shipped two versions of my NVDA word prediction add-on. v1.0.0 fixed keyboard conflicts that were pointed out by a community member, moved the management keys to NVDA+Alt+P/O/L, and added a custom app exclusion list so users can disable predictions in apps where they don't want them. v1.1.0 added punctuation-aware insertion, so when you accept a prediction after a period, it adds the space and capitalizes for you. Both are on GitHub.

    I published a new essay called "Becoming" on lanie.work. It's about the last seven months. The psych eval that stopped short. The health decline. Letting go of the identity I was clinging to. Disowning my sisters. Embracing long-term care. Finding peace with who I'm becoming, even while some questions are still unanswered.

    Then I checked my Cloudflare analytics. 1,780 unique visitors in the last 24 hours. 15,520 in the last 30 days. Nearly a gigabyte of my words served in a month. I'm still processing that.

    I got invited to interview with Fable. I found out my group home initial meeting is Thursday at 11 AM. And I applied to two paid research studies on User Interviews, one about small business ownership and one about AI tool usage, both of which I'm a good fit for.

    I'm lying in bed with a V8 energy drink, We the Kingdom playing "Waking Up" on my Spotify Upbeat Mix, and a grin on my face that won't quit.

    This year took almost everything. And what's left is somehow more honest, more real, more me than anything I was before.

    lanie.work/advocacy/becoming/
    github.com/RareBird15/wordpredictor

    #ActuallyAutistic #Disability #Accessibility #NVDA #Faith #ChronicIllness

  5. Today was one of those days where everything moved at once.

    I shipped two versions of my NVDA word prediction add-on. v1.0.0 fixed keyboard conflicts that were pointed out by a community member, moved the management keys to NVDA+Alt+P/O/L, and added a custom app exclusion list so users can disable predictions in apps where they don't want them. v1.1.0 added punctuation-aware insertion, so when you accept a prediction after a period, it adds the space and capitalizes for you. Both are on GitHub.

    I published a new essay called "Becoming" on lanie.work. It's about the last seven months. The psych eval that stopped short. The health decline. Letting go of the identity I was clinging to. Disowning my sisters. Embracing long-term care. Finding peace with who I'm becoming, even while some questions are still unanswered.

    Then I checked my Cloudflare analytics. 1,780 unique visitors in the last 24 hours. 15,520 in the last 30 days. Nearly a gigabyte of my words served in a month. I'm still processing that.

    I got invited to interview with Fable. I found out my group home initial meeting is Thursday at 11 AM. And I applied to two paid research studies on User Interviews, one about small business ownership and one about AI tool usage, both of which I'm a good fit for.

    I'm lying in bed with a V8 energy drink, We the Kingdom playing "Waking Up" on my Spotify Upbeat Mix, and a grin on my face that won't quit.

    This year took almost everything. And what's left is somehow more honest, more real, more me than anything I was before.

    lanie.work/advocacy/becoming/
    github.com/RareBird15/wordpredictor

    #ActuallyAutistic #Disability #Accessibility #NVDA #Faith #ChronicIllness

  6. Today was one of those days where everything moved at once.

    I shipped two versions of my NVDA word prediction add-on. v1.0.0 fixed keyboard conflicts that were pointed out by a community member, moved the management keys to NVDA+Alt+P/O/L, and added a custom app exclusion list so users can disable predictions in apps where they don't want them. v1.1.0 added punctuation-aware insertion, so when you accept a prediction after a period, it adds the space and capitalizes for you. Both are on GitHub.

    I published a new essay called "Becoming" on lanie.work. It's about the last seven months. The psych eval that stopped short. The health decline. Letting go of the identity I was clinging to. Disowning my sisters. Embracing long-term care. Finding peace with who I'm becoming, even while some questions are still unanswered.

    Then I checked my Cloudflare analytics. 1,780 unique visitors in the last 24 hours. 15,520 in the last 30 days. Nearly a gigabyte of my words served in a month. I'm still processing that.

    I got invited to interview with Fable. I found out my group home initial meeting is Thursday at 11 AM. And I applied to two paid research studies on User Interviews, one about small business ownership and one about AI tool usage, both of which I'm a good fit for.

    I'm lying in bed with a V8 energy drink, We the Kingdom playing "Waking Up" on my Spotify Upbeat Mix, and a grin on my face that won't quit.

    This year took almost everything. And what's left is somehow more honest, more real, more me than anything I was before.

    lanie.work/advocacy/becoming/
    github.com/RareBird15/wordpredictor

    #ActuallyAutistic #Disability #Accessibility #NVDA #Faith #ChronicIllness

  7. July - $530/$630
    -$50 due NOW (7/20) for phone ⚠️⚠️
    -$50 more due by 7/22 for co pay

    I just need a few people to care and show it. 🥲 no movement in 5.5 days. I cant work due to disabilities.

    Any help is LIFE SAVING 🆘️

    Ven: d_fay || ppal: peach77

    #Mutualaid #MutualAidRequest #MutualAidSavesLives #disabled #spoonie #chronicpain #chronicillness #Kofi #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #DisabilityCrowdfund #queer #artist @[email protected] @[email protected] @povertyandinequality

  8. July - $530/$630
    -$50 due NOW (7/20) for phone ⚠️⚠️
    -$50 more due by 7/22 for co pay

    I just need a few people to care and show it. 🥲 no movement in 5.5 days. I cant work due to disabilities.

    Any help is LIFE SAVING 🆘️

    Ven: d_fay || ppal: peach77

    #Mutualaid #MutualAidRequest #MutualAidSavesLives #disabled #spoonie #chronicpain #chronicillness #Kofi #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #DisabilityCrowdfund #queer #artist @[email protected] @[email protected] @povertyandinequality

  9. July - $530/$630
    -$50 due NOW (7/20) for phone ⚠️⚠️
    -$50 more due by 7/22 for co pay

    I just need a few people to care and show it. 🥲 no movement in 5.5 days. I cant work due to disabilities.

    Any help is LIFE SAVING 🆘️

    Ven: d_fay || ppal: peach77

    #Mutualaid #MutualAidRequest #MutualAidSavesLives #disabled #spoonie #chronicpain #chronicillness #Kofi #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #DisabilityCrowdfund #queer #artist @[email protected] @[email protected] @povertyandinequality

  10. July - $530/$630
    -$50 due NOW (7/20) for phone ⚠️⚠️
    -$50 more due by 7/22 for co pay

    I just need a few people to care and show it. 🥲 no movement in 5.5 days. I cant work due to disabilities.

    Any help is LIFE SAVING 🆘️

    Ven: d_fay || ppal: peach77

    #Mutualaid #MutualAidRequest #MutualAidSavesLives #disabled #spoonie #chronicpain #chronicillness #Kofi #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #DisabilityCrowdfund #queer #artist @[email protected] @[email protected] @povertyandinequality

  11. July - $530/$630
    -$50 due NOW (7/20) for phone ⚠️⚠️
    -$50 more due by 7/22 for co pay

    I just need a few people to care and show it. 🥲 no movement in 5.5 days. I cant work due to disabilities.

    Any help is LIFE SAVING 🆘️

    Ven: d_fay || ppal: peach77

    #Mutualaid #MutualAidRequest #MutualAidSavesLives #disabled #spoonie #chronicpain #chronicillness #Kofi #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #DisabilityCrowdfund #queer #artist @[email protected] @[email protected] @povertyandinequality

  12. anyway, if your state is being annoyingly ableist and not doing their job and you aren't receiving your services in a reasonable amount of time, you can always report them to your state's inspector general.


    #disability #ableism #chronicillness #lifeprotip #lifeprotips
  13. anyway, if your state is being annoyingly ableist and not doing their job and you aren't receiving your services in a reasonable amount of time, you can always report them to your state's inspector general.


    #disability #ableism #chronicillness #lifeprotip #lifeprotips
  14. The Weight of Wonder

    Two nights before leaving for the Pacific Northwest, I find myself surrounded by wrinkled itinerary pages, hiking gear, and a dream I’ve carried for nearly half my life. What begins as a story about planning slowly becomes something much deeper: learning that simply standing in the place you’ve longed for can matter more than finishing every mile.

    perfectlyimperfectlife.blog/20

  15. The Weight of Wonder

    Two nights before leaving for the Pacific Northwest, I find myself surrounded by wrinkled itinerary pages, hiking gear, and a dream I’ve carried for nearly half my life. What begins as a story about planning slowly becomes something much deeper: learning that simply standing in the place you’ve longed for can matter more than finishing every mile.

    perfectlyimperfectlife.blog/20

  16. The Weight of Wonder

    Two nights before leaving for the Pacific Northwest, I find myself surrounded by wrinkled itinerary pages, hiking gear, and a dream I’ve carried for nearly half my life. What begins as a story about planning slowly becomes something much deeper: learning that simply standing in the place you’ve longed for can matter more than finishing every mile.

    perfectlyimperfectlife.blog/20

  17. The Weight of Wonder

    Two nights before leaving for the Pacific Northwest, I find myself surrounded by wrinkled itinerary pages, hiking gear, and a dream I’ve carried for nearly half my life. What begins as a story about planning slowly becomes something much deeper: learning that simply standing in the place you’ve longed for can matter more than finishing every mile.

    perfectlyimperfectlife.blog/20

  18. The Weight of Wonder

    Two nights before leaving for the Pacific Northwest, I find myself surrounded by wrinkled itinerary pages, hiking gear, and a dream I’ve carried for nearly half my life. What begins as a story about planning slowly becomes something much deeper: learning that simply standing in the place you’ve longed for can matter more than finishing every mile.

    perfectlyimperfectlife.blog/20

  19. Hi! I'm #NewHere. I am a self taught "artist" and #IndieDev who has been quietly working on a browser based #PointAndClick world made of my own #HandDrawn #illustrations and animations. I am a #DisabledArtist who lives with a #ChronicIllness. Looking for others into #CreativeCoding, #WebGames and anything dealing with #nostalgia

  20. Hi! I'm #NewHere. I am a self taught "artist" and #IndieDev who has been quietly working on a browser based #PointAndClick world made of my own #HandDrawn #illustrations and animations. I am a #DisabledArtist who lives with a #ChronicIllness. Looking for others into #CreativeCoding, #WebGames and anything dealing with #nostalgia