#chronicillness — Public Fediverse posts

RE: https://mastodon.social/@ellespeaks/116568671463983381

95$ needed by tomorrow for meds
Urgent! 2$ helps Anything helps

exhausted but i have to at least try to make this goal. My body needs relief

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #lgbtqia #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty
@lgbtq
@disabledvoices
@[email protected] @[email protected] @povertyandinequality

I’ve had to move apartments and it’s been absolutely brutal on my baseline. The setback has been humbling, terrifying and frustrating in equal measure.

This is life with chronic illness.

Everything is so much harder.

Any significant upheaval can cause major losses of function.

To make matters worse I found mold in my closet and it appears most of my wardrobe got contaminated.

It’s just been one thing after another.

A friend is trying to salvage them, but with the severity of my MCAS I suspect I may have to toss and replace.

That said, hit me up with any tips you might have for removing mold and mildew from clothes. Or hidden gems for finding cheap but comfortable, ethical clothing. I can only wear loose cotton and my clothes were all good quality (and I hate shopping).

I plan to write a series of articles once I recover, including one about housing instability and another about setbacks and contingency planning when chronically ill.

Thank you to everyone who’s been supporting me and patiently waiting for me to get back to writing!

#chronicillness #ableism #mcas #disability

I’ve had to move apartments and it’s been absolutely brutal on my baseline. The setback has been humbling, terrifying and frustrating in equal measure.

This is life with chronic illness.

Everything is so much harder.

Any significant upheaval can cause major losses of function.

To make matters worse I found mold in my closet and it appears most of my wardrobe got contaminated.

It’s just been one thing after another.

A friend is trying to salvage them, but with the severity of my MCAS I suspect I may have to toss and replace.

That said, hit me up with any tips you might have for removing mold and mildew from clothes. Or hidden gems for finding cheap but comfortable, ethical clothing. I can only wear loose cotton and my clothes were all good quality (and I hate shopping).

I plan to write a series of articles once I recover, including one about housing instability and another about setbacks and contingency planning when chronically ill.

Thank you to everyone who’s been supporting me and patiently waiting for me to get back to writing!

#chronicillness #ableism #mcas #disability

I’ve had to move apartments and it’s been absolutely brutal on my baseline. The setback has been humbling, terrifying and frustrating in equal measure.

This is life with chronic illness.

Everything is so much harder.

Any significant upheaval can cause major losses of function.

To make matters worse I found mold in my closet and it appears most of my wardrobe got contaminated.

It’s just been one thing after another.

A friend is trying to salvage them, but with the severity of my MCAS I suspect I may have to toss and replace.

That said, hit me up with any tips you might have for removing mold and mildew from clothes. Or hidden gems for finding cheap but comfortable, ethical clothing. I can only wear loose cotton and my clothes were all good quality (and I hate shopping).

I plan to write a series of articles once I recover, including one about housing instability and another about setbacks and contingency planning when chronically ill.

Thank you to everyone who’s been supporting me and patiently waiting for me to get back to writing!

#chronicillness #ableism #mcas #disability

I’ve had to move apartments and it’s been absolutely brutal on my baseline. The setback has been humbling, terrifying and frustrating in equal measure.

This is life with chronic illness.

Everything is so much harder.

Any significant upheaval can cause major losses of function.

To make matters worse I found mold in my closet and it appears most of my wardrobe got contaminated.

It’s just been one thing after another.

A friend is trying to salvage them, but with the severity of my MCAS I suspect I may have to toss and replace.

That said, hit me up with any tips you might have for removing mold and mildew from clothes. Or hidden gems for finding cheap but comfortable, ethical clothing. I can only wear loose cotton and my clothes were all good quality (and I hate shopping).

I plan to write a series of articles once I recover, including one about housing instability and another about setbacks and contingency planning when chronically ill.

Thank you to everyone who’s been supporting me and patiently waiting for me to get back to writing!

#chronicillness #ableism #mcas #disability

I’ve had to move apartments and it’s been absolutely brutal on my baseline. The setback has been humbling, terrifying and frustrating in equal measure.

This is life with chronic illness.

Everything is so much harder.

Any significant upheaval can cause major losses of function.

To make matters worse I found mold in my closet and it appears most of my wardrobe got contaminated.

It’s just been one thing after another.

A friend is trying to salvage them, but with the severity of my MCAS I suspect I may have to toss and replace.

That said, hit me up with any tips you might have for removing mold and mildew from clothes. Or hidden gems for finding cheap but comfortable, ethical clothing. I can only wear loose cotton and my clothes were all good quality (and I hate shopping).

I plan to write a series of articles once I recover, including one about housing instability and another about setbacks and contingency planning when chronically ill.

Thank you to everyone who’s been supporting me and patiently waiting for me to get back to writing!

#chronicillness #ableism #mcas #disability

RE: https://mastodon.social/@ellespeaks/116568671463983381

Co pay covered thank you so so much.

I was wrong about the amount of scripts i needed/their cost

$120 is needed by friday for meds. Any help is life saving

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid
@mutualaid
@lgbtq
@povertyandinequality

RE: https://mastodon.social/@ellespeaks/116568671463983381

Co pay covered thank you so so much.

I was wrong about the amount of scripts i needed/their cost

$120 is needed by friday for meds. Any help is life saving

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid
@mutualaid
@lgbtq
@povertyandinequality

RE: https://mastodon.social/@ellespeaks/116568671463983381

Co pay covered thank you so so much.

I was wrong about the amount of scripts i needed/their cost

$120 is needed by friday for meds. Any help is life saving

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid
@mutualaid
@lgbtq
@povertyandinequality

RE: https://mastodon.social/@ellespeaks/116568671463983381

Co pay covered thank you so so much.

I was wrong about the amount of scripts i needed/their cost

$120 is needed by friday for meds. Any help is life saving

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid
@mutualaid
@lgbtq
@povertyandinequality

RE: https://mastodon.social/@ellespeaks/116568671463983381

Co pay covered thank you so so much.

I was wrong about the amount of scripts i needed/their cost

$120 is needed by friday for meds. Any help is life saving

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid
@mutualaid
@lgbtq
@povertyandinequality

RE: https://mastodon.social/@ellespeaks/116564946140616225

$95 due tomorrow morning. Scared is an under statement.

5 people sending $19 = SAFE for now.
I dont have any one to ask. I need help.
Ive been trying every day, for hours.
Too sick for this.
Venmo d_fay
Ppal peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #lgbtqia #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty

RE: https://mastodon.social/@ellespeaks/116564946140616225

$95 due tomorrow morning. Scared is an under statement.

5 people sending $19 = SAFE for now.
I dont have any one to ask. I need help.
Ive been trying every day, for hours.
Too sick for this.
Venmo d_fay
Ppal peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #lgbtqia #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty

RE: https://mastodon.social/@ellespeaks/116564946140616225

$95 due tomorrow morning. Scared is an under statement.

5 people sending $19 = SAFE for now.
I dont have any one to ask. I need help.
Ive been trying every day, for hours.
Too sick for this.
Venmo d_fay
Ppal peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #lgbtqia #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty

RE: https://mastodon.social/@ellespeaks/116564946140616225

$95 due tomorrow morning. Scared is an under statement.

5 people sending $19 = SAFE for now.
I dont have any one to ask. I need help.
Ive been trying every day, for hours.
Too sick for this.
Venmo d_fay
Ppal peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #lgbtqia #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty

In remission but wondering if coffee, a beer, or Diet Coke is off the table?

After 24 years with Crohn's, here's my honest answer — including what I actually drink and why. The answer is more nuanced than most people want to hear.

https://ibdmovement.com/coffee-alcohol-and-carbonated-drinks-in-ibd-remission-my-experience/?utm_source=mastodon #CrohnsDisease #IBD #ChronicIllness #IBDAwareness

In remission but wondering if coffee, a beer, or Diet Coke is off the table?

After 24 years with Crohn's, here's my honest answer — including what I actually drink and why. The answer is more nuanced than most people want to hear.

https://ibdmovement.com/coffee-alcohol-and-carbonated-drinks-in-ibd-remission-my-experience/?utm_source=mastodon #CrohnsDisease #IBD #ChronicIllness #IBDAwareness

In remission but wondering if coffee, a beer, or Diet Coke is off the table?

After 24 years with Crohn's, here's my honest answer — including what I actually drink and why. The answer is more nuanced than most people want to hear.

https://ibdmovement.com/coffee-alcohol-and-carbonated-drinks-in-ibd-remission-my-experience/?utm_source=mastodon #CrohnsDisease #IBD #ChronicIllness #IBDAwareness

In remission but wondering if coffee, a beer, or Diet Coke is off the table?

After 24 years with Crohn's, here's my honest answer — including what I actually drink and why. The answer is more nuanced than most people want to hear.

https://ibdmovement.com/coffee-alcohol-and-carbonated-drinks-in-ibd-remission-my-experience/?utm_source=mastodon #CrohnsDisease #IBD #ChronicIllness #IBDAwareness

From the AOF Studio New from the Studio: My Lesions Are Real. Your “Hallucinations” Are Just Bad Maths https://www.artoffaceless.com/my-lesions-are-real-your-hallucinations/?utm_source=dlvr.it&utm_medium=mastodon #MultipleSclerosis #SPMS #ChronicIllness #MentalHealth #InvisibleIllness

Honestly, I am totally here for this strategy. ;)

#spoonie #ChronicIllness

Honestly, I am totally here for this strategy. ;)

#spoonie #ChronicIllness

Honestly, I am totally here for this strategy. ;)

#spoonie #ChronicIllness

Honestly, I am totally here for this strategy. ;)

#spoonie #ChronicIllness

Honestly, I am totally here for this strategy. ;)

#spoonie #ChronicIllness

Hiking with chronic illness is possible—with the right approach. These 12 practical tips focus on pacing, energy management, and choosing the right trails so you can enjoy hiking without triggering fatigue or flare-ups. #Hiking #Outdoors #ChronicIllness #Nature

https://thechronictraveler.com/hiking-chronic-illness/?utm_source=flipboard&utm_medium=activitypub

Posted into Outdoor Travel, Unscripted @outdoor-travel-unscripted-CareyOnTravels

Hiking with chronic illness is possible—with the right approach. These 12 practical tips focus on pacing, energy management, and choosing the right trails so you can enjoy hiking without triggering fatigue or flare-ups. #Hiking #Outdoors #ChronicIllness #Nature

https://thechronictraveler.com/hiking-chronic-illness/?utm_source=flipboard&utm_medium=activitypub

Posted into Outdoor Travel, Unscripted @outdoor-travel-unscripted-CareyOnTravels

Hiking with chronic illness is possible—with the right approach. These 12 practical tips focus on pacing, energy management, and choosing the right trails so you can enjoy hiking without triggering fatigue or flare-ups. #Hiking #Outdoors #ChronicIllness #Nature

https://thechronictraveler.com/hiking-chronic-illness/?utm_source=flipboard&utm_medium=activitypub

Posted into Outdoor Travel, Unscripted @outdoor-travel-unscripted-CareyOnTravels

RE: https://mastodon.social/@ellespeaks/116451856702315325

Its May 12th. Almost the 13th!
and I am running behind!

I need $99 by the 14th to stay on track, get food, and not cancel my appointment

Anything helps

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #lgbtqia #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty
@disabledvoices
@[email protected]
@[email protected]
@lgbtq

RE: https://mastodon.social/@ellespeaks/116451856702315325

Its May 12th. Almost the 13th!
and I am running behind!

I need $99 by the 14th to stay on track, get food, and not cancel my appointment

Anything helps

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #lgbtqia #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty
@disabledvoices
@[email protected]
@[email protected]
@lgbtq

RE: https://mastodon.social/@ellespeaks/116451856702315325

Its May 12th. Almost the 13th!
and I am running behind!

I need $99 by the 14th to stay on track, get food, and not cancel my appointment

Anything helps

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #lgbtqia #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty
@disabledvoices
@[email protected]
@[email protected]
@lgbtq

RE: https://mastodon.social/@ellespeaks/116451856702315325

Its May 12th. Almost the 13th!
and I am running behind!

I need $99 by the 14th to stay on track, get food, and not cancel my appointment

Anything helps

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #lgbtqia #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty
@disabledvoices
@[email protected]
@[email protected]
@lgbtq

RE: https://mastodon.social/@ellespeaks/116451856702315325

Its May 12th. Almost the 13th!
and I am running behind!

I need $99 by the 14th to stay on track, get food, and not cancel my appointment

Anything helps

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #lgbtqia #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty
@disabledvoices
@[email protected]
@[email protected]
@lgbtq

RE: https://mastodon.social/@ellespeaks/116556644177996867

4 days STALLED, $99 needed by the 14th
Need $50 to keep my appt fri

Please help. no one to ask irl ):

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #lgbtqia #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty
@disabledvoices
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@povertyandinequality

RE: https://mastodon.social/@ellespeaks/116556644177996867

4 days STALLED, $99 needed by the 14th
Need $50 to keep my appt fri

Please help. no one to ask irl ):

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #lgbtqia #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty
@disabledvoices
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@povertyandinequality

RE: https://mastodon.social/@ellespeaks/116556644177996867

4 days STALLED, $99 needed by the 14th
Need $50 to keep my appt fri

Please help. no one to ask irl ):

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #lgbtqia #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty
@disabledvoices
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@povertyandinequality

RE: https://mastodon.social/@ellespeaks/116556644177996867

4 days STALLED, $99 needed by the 14th
Need $50 to keep my appt fri

Please help. no one to ask irl ):

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #lgbtqia #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty
@disabledvoices
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@povertyandinequality

goals tbh

#disability #ChronicIllness #autoimmune

goals tbh

#disability #ChronicIllness #autoimmune

goals tbh

#disability #ChronicIllness #autoimmune

goals tbh

#disability #ChronicIllness #autoimmune

goals tbh

#disability #ChronicIllness #autoimmune

Oh my goodness, I'm so nervous. I have a very important doctor's appointment in a half an hour that I really NEED to go well. I'd appreciate it if anyone sends me good vibes/wishes me luck/whatever. Aaaaa!!! 😖
#chronicpain #chronicillness #NEISvoid #ehlersdanlossyndrome #hEDS

MS isn't always a 'brave journey'—sometimes it's just a 14th meltdown and a broken internal thermostat. 🌡️ If you’re done with the toxic positivity, these captions are for you. No filters, just the messy, wobbly truth.

#SpoonieLife, #MultipleSclerosis, #ChronicIllness, #MSAwareness, #InvisibleIllness

Read more: https://mooddrafts.com/ditch-the-fluff-real-ms-captions-for-your-darkest-days/

MS isn't always a 'brave journey'—sometimes it's just a 14th meltdown and a broken internal thermostat. 🌡️ If you’re done with the toxic positivity, these captions are for you. No filters, just the messy, wobbly truth.

#SpoonieLife, #MultipleSclerosis, #ChronicIllness, #MSAwareness, #InvisibleIllness

Read more: https://mooddrafts.com/ditch-the-fluff-real-ms-captions-for-your-darkest-days/

MS isn't always a 'brave journey'—sometimes it's just a 14th meltdown and a broken internal thermostat. 🌡️ If you’re done with the toxic positivity, these captions are for you. No filters, just the messy, wobbly truth.

#SpoonieLife, #MultipleSclerosis, #ChronicIllness, #MSAwareness, #InvisibleIllness

Read more: https://mooddrafts.com/ditch-the-fluff-real-ms-captions-for-your-darkest-days/

MS isn't always a 'brave journey'—sometimes it's just a 14th meltdown and a broken internal thermostat. 🌡️ If you’re done with the toxic positivity, these captions are for you. No filters, just the messy, wobbly truth.

#SpoonieLife, #MultipleSclerosis, #ChronicIllness, #MSAwareness, #InvisibleIllness

Read more: https://mooddrafts.com/ditch-the-fluff-real-ms-captions-for-your-darkest-days/

Posting for World MS Day isn't just about orange ribbons—it's about honoring the 'terms and conditions' of a body that moves at its own pace. Whether you're a warrior or an ally, your voice matters. Let's make the invisible visible. 🧡

#WorldMSDay, #MSWarrior, #InvisibleIllness, #MyMSDiagnosis, #ChronicIllness, #MSAwareness

Read more: https://mooddrafts.com/world-ms-day-captions-powerful-ways-to-share-your-story/

Posting for World MS Day isn't just about orange ribbons—it's about honoring the 'terms and conditions' of a body that moves at its own pace. Whether you're a warrior or an ally, your voice matters. Let's make the invisible visible. 🧡

#WorldMSDay, #MSWarrior, #InvisibleIllness, #MyMSDiagnosis, #ChronicIllness, #MSAwareness

Read more: https://mooddrafts.com/world-ms-day-captions-powerful-ways-to-share-your-story/

Posting for World MS Day isn't just about orange ribbons—it's about honoring the 'terms and conditions' of a body that moves at its own pace. Whether you're a warrior or an ally, your voice matters. Let's make the invisible visible. 🧡

#WorldMSDay, #MSWarrior, #InvisibleIllness, #MyMSDiagnosis, #ChronicIllness, #MSAwareness

Read more: https://mooddrafts.com/world-ms-day-captions-powerful-ways-to-share-your-story/