#spoonie — Public Fediverse posts

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?

Ok, cute tie-in!

Thanks, #TubiThursday friends.

Please uplift my ask for #urgent move?

I appreciate you all.

https://me.dm/@kshernandez/117205123370324265

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Ok, cute tie-in!

Thanks, #TubiThursday friends.

Please uplift my ask for #urgent move?

I appreciate you all.

https://me.dm/@kshernandez/117205123370324265

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Ok, cute tie-in!

Thanks, #TubiThursday friends.

Please uplift my ask for #urgent move?

I appreciate you all.

https://me.dm/@kshernandez/117205123370324265

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Ok, cute tie-in!

Thanks, #TubiThursday friends.

Please uplift my ask for #urgent move?

I appreciate you all.

https://me.dm/@kshernandez/117205123370324265

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/117205123370324265

If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/117205123370324265

If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/117205123370324265

If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/117205123370324265

If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/117205123370324265

If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

From Canada 🇨🇦

‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/

#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs

From Canada 🇨🇦

‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/

#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs

From Canada 🇨🇦

‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/

#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs

From Canada 🇨🇦

‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/

#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs

From Canada 🇨🇦

‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/

#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs

I’m a customer at companies that insist in using their own ‘inbox’. So instead of sending me an email – or a letter – they use only their own website/app.

They still send me emails, though: ‘There’s a new document in your inbox!’

So, every time I have to go there, enter my credentials, and check out what they sent me. Nine out of ten times it’s just bullshit.

Do they have any idea how hard it is for me to find the energy to do that?!

#inclusion #spoonie #AdhdBrain #hypoactive #accessability

Who can match the 35 received today

A great #WhiskersWednesday shot from a favorite #Twitch stream. #CatsofMastodon

I'm hoping these lovely kitties will inspire folks to help me with my #urgent move goal.

Do they? Can you?
All is appreciated!

Deets and ways to aid: https://linktr.ee/khernandez

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Who can match the 35 received today

A great #WhiskersWednesday shot from a favorite #Twitch stream. #CatsofMastodon

I'm hoping these lovely kitties will inspire folks to help me with my #urgent move goal.

Do they? Can you?
All is appreciated!

Deets and ways to aid: https://linktr.ee/khernandez

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Who can match the 35 received today

A great #WhiskersWednesday shot from a favorite #Twitch stream. #CatsofMastodon

I'm hoping these lovely kitties will inspire folks to help me with my #urgent move goal.

Do they? Can you?
All is appreciated!

Deets and ways to aid: https://linktr.ee/khernandez

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Who can match the 35 received today

A great #WhiskersWednesday shot from a favorite #Twitch stream. #CatsofMastodon

I'm hoping these lovely kitties will inspire folks to help me with my #urgent move goal.

Do they? Can you?
All is appreciated!

Deets and ways to aid: https://linktr.ee/khernandez

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Who can match the 35 received today

A great #WhiskersWednesday shot from a favorite #Twitch stream. #CatsofMastodon

I'm hoping these lovely kitties will inspire folks to help me with my #urgent move goal.

Do they? Can you?
All is appreciated!

Deets and ways to aid: https://linktr.ee/khernandez

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

my allergy shots didn’t get delivered yesterday as this is a specific medication can only be given exactly 2 weeks apart not even a day early if I get them of my current schedule I’ll
Have to cancel & reschedule 12 appointments so the next two weeks I need extra support & if I go MIA you know why 😂

#MCAS #chronicillness #spoonie

$150/$550 September necessities ‼

Food: $50/$200 = $150 remains for food!

Absolutely any help is life saving. I dont have support from family and I am too sick to work unfortunately. Im disabled and queer. Any help means a lot.

V: d_fay | PP: peach77

#mutualaid #MutualAidRequest #MutualAidSavesLives #disabled #disabledmutualaid #chronicpain #spoonie #queer #lgbtq #artist #poverty #directaid #fediverse @[email protected] @mutualaidspace @[email protected] @disabledvoices @lgbtq #crowdfund

RE: https://mastodon.social/@ellespeaks/117199420020373951

$25 due in 12hrs!
for my co pay or i have to cancel the appt 🆘️⚠️

Im disabled, queer + estranged from family since losing my gram September 2024. Anything helps!

V: d_fay
Pp: peach77
Kofi: https://ko-fi.com/ellespeaks

#mutualaid #MutualAidSavesLives #MutualAidRequest #helpfolkslive #disabled #spoonie #chronicillness #lgbtq #crowdfunding #gofundme #directaid #queer #hunger #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @queer @disability #disabledmutualaid @povertyandinequality

“The Relentless Work of Being Sick”

“A new book examines the labor of getting chronic illness diagnosed and treated—for those lucky enough to get care.”

https://www.motherjones.com/media/2026/09/rogers-sick-work-duke-press-qa-interview-chronic-illness/

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #spoonie

RE: https://mastodon.social/@ellespeaks/117185849880983055

stalled
$50 needed asap + anything for food (almost out)

Im diabetic and do not have family to turn to. I have food allergies so food pantries arent ideal unfortunately

I appreciate any help at all + am v grateful. Thank you!

V: d_fay
P: peach77
Ko: https://ko-fi.com/ellespeaks

#Mutualaid #MutualAidRequest #MutualAidSavesLives #disabled #spoonie #chronicpain #chronicillness #helpfolkslive2026 #lgbtq #queer @povertyandinequality @disabledvoices @queer @[email protected] @directaid @[email protected] @lgbtq

Things are getting bleak

I need my co pay asap or ill have to cancel (pain management appointment)
I also need med and food money.

I dont have anyone to turn to, so please understand $2 makes a difference. It truly does i appreciate any help

$100/$550 - September necessities
V: d_fay
Pp: peach77

#mutualaid #directaid #queer #disabled #MutualAidRequest #spoonie #artist #helpfolkslive2026 #disability #lgbtq @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @queer @povertyandinequality

$0/$50 - co pay due 9/3 ⚠️
$50/$200 - September food

Anything helps! Im disabled, queer and have no support. Living below the poverty line. I appreciate any help at all 💕

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq @queer

Not enough spoons and very migraine-y today so plans to go to #Lords for the #cricket are scuppered.
#spoonie

When you are an autistic spoonie and your lack of spoons leads to losing spoons, because you accidently drop a spoon full of wet dog food. What a mess. 🙄

#ActuallyAutistic #Disabled #Spoonie
@autistics

3/
Long COVID in the Workplace

https://recovercovid.org/sites/default/files/docs/Long-COVID-Workplace.pdf

#LongCovid @longcovid #Spoonies
#Spoonie

RE: https://mastodon.social/@ellespeaks/117163537926818064

Still stalled ⚠️
Desperate for food and pharmacy help

Please, any amount makes a difference. Tysm.

V: d_fay
P: peach77

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid @[email protected] @[email protected] @directaid @lgbtq @queer @spoonie @creativearts

September MA for necessities & Laptop Fundraiser ❣

- Laptop: $25/$400 - please put "laptop" in note!
- September: $150/$550

Please read the flyers below for more detailed info! I truly appreciate any help. Even a few dollars makes a big impact.
Thank you!

Tags:
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness #catmom @spoonie @queer

RE: https://mastodon.social/@broodcoffee/116454754564011275

Still stalled😞
Have to raise the remaining $400 ASAP to clear my August MA goal 💸💕
This covers my food, laundry, hygiene needs & other dues I have to pay...
Please help🙇‍♀️

https://ko-fi.com/broodcoffee

@MutualAidBot
@[email protected] @[email protected] @[email protected] @mutual_aid @disability @mutualaidspace

#MutualAidRequest #crowdfund #FediAid #HelpFolksLive2026 #mutualaid #FediHelp #fediverse #BIPOCMA #MutualAidSavesLives #maboost #spoonie #kofi #helpneeded #directaid #SignalBoost

RE: https://mastodon.social/@ellespeaks/117153570926297870

stalled day 6‼
A lil worried bc I'm using an old backup that's also broken.it's only a matter of time until that breaks too. Laptops my only form of entertainment/distraction in the house so its important

Also need pharmacy/food ⚠️

V: d_fay
P: peach77

anything helps
Thank you

@[email protected] @[email protected] @disabledvoices @lgbtq
#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #disabled #spoonie #chronicpain #chronicillness #crowdfunding #helpfolkslive2026 #lgbtq #queer #artist

RE: https://mastodon.social/@broodcoffee/116454754564011275

Need $400 ASAP towards my survival needs this August💸💕
I don't wish to add this stalled amount to next month & make the goal even tougher for me to reach😞 Please help🙇‍♀️

https://ko-fi.com/broodcoffee

@MutualAidBot
@[email protected] @[email protected] @[email protected] @mutual_aid @disability @mutualaidspace

#MutualAidRequest #crowdfund #FediAid #HelpFolksLive2026 #mutualaid #FediHelp #fediverse #BIPOCMA #MutualAidSavesLives #maboost #spoonie #kofi #helpneeded #directaid #SignalBoost

RE: https://mastodon.social/@ellespeaks/117153553341810844

September is right around the corner
I could really use some funds for food and medical supplies

🙏🏻 Any help is a blessing, there is no amount thats too small. Mutual aid truly is life-saving! Thank you!

V: d_fay
P: peach77

#mutualaid #urgent #MutualAidRequest #disabled #queer #lgbtq #spoonie #artist
@mutualaid @disabledvoices
@povertyandinequality

- $100/$550 - september needs

- $25/$400 - refurbished laptop 💻 ‼
mine broke 1+ week ago. Its a lifeline bc im stuck @ home a lot. in the note pls put "LAPTOP"

Thank you anything is a blessing and truly makes a difference - even $1!

flyers explain the situations 🙏🏻

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #disabled #spoonie #chronicpain #chronicillness #crowdfunding #helpneeded #poverty #artist @spoonie @queer @mutualaid @lgbtq #pisces #disabledartist

@shrugdealer

$100/$550 September needs

and trying to get a refurbished laptop because mine broke 5 days ago
If for laptop in the note please write "LAPTOP"
Thank you anything is a blessing and truly makes a difference - even $1!

Both flyers to explain the situations 🙏🏻

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #disabled #spoonie #chronicpain #chronicillness #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq @mutualaid @disabledvoices

Needing $60 towards Septembers meds.
Anything helps 💕 much appreciated. Even a few dollars goes a long way

$0/$60

V: d_fay
Pp: peach77

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid
@[email protected] @[email protected] @disabledvoices @queer @povertyandinequality @spoonie @lgbtq