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#spoonie — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #spoonie, aggregated by home.social.

  1. 4/
    “It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

    #chronicillness #spoonie #mecfs #longcovid
    @mecfs @longcovid

  2. 4/
    “It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

    #chronicillness #spoonie #mecfs #longcovid
    @mecfs @longcovid

  3. 4/
    “It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

    #chronicillness #spoonie #mecfs #longcovid
    @mecfs @longcovid

  4. 4/
    “It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

    #chronicillness #spoonie #mecfs #longcovid
    @mecfs @longcovid

  5. 4/
    “It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

    #chronicillness #spoonie #mecfs #longcovid
    @mecfs @longcovid

  6. ‪2/‬

    ‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

    ‪#spoonie #spoonies#spoonie #PEM #PwME #LongCovid

    @mecfs @longcovid

  7. ‪2/‬

    ‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

    ‪#spoonie #spoonies#spoonie #PEM #PwME #LongCovid

    @mecfs @longcovid

  8. ‪2/‬

    ‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

    ‪#spoonie #spoonies#spoonie #PEM #PwME #LongCovid

    @mecfs @longcovid

  9. ‪2/‬

    ‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

    ‪#spoonie #spoonies#spoonie #PEM #PwME #LongCovid

    @mecfs @longcovid

  10. ‪2/‬

    ‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

    ‪#spoonie #spoonies#spoonie #PEM #PwME #LongCovid

    @mecfs @longcovid

  11. I did *not* need a flare 4 days before surgery, no thank you. I hope it’s just the heat. Not that it’ll be much cooler in Porto. And the Ragweed pollen certainly isn’t helping.

    I was planning to deep clean the bathroom today so it’ll be clean when we get back. It’s pretty fucking gross, ngl. But I’m in so much pain :(

    #spoonie #MCAS

  12. I did *not* need a flare 4 days before surgery, no thank you. I hope it’s just the heat. Not that it’ll be much cooler in Porto. And the Ragweed pollen certainly isn’t helping.

    I was planning to deep clean the bathroom today so it’ll be clean when we get back. It’s pretty fucking gross, ngl. But I’m in so much pain :(

    #spoonie #MCAS

  13. I did *not* need a flare 4 days before surgery, no thank you. I hope it’s just the heat. Not that it’ll be much cooler in Porto. And the Ragweed pollen certainly isn’t helping.

    I was planning to deep clean the bathroom today so it’ll be clean when we get back. It’s pretty fucking gross, ngl. But I’m in so much pain :(

    #spoonie #MCAS

  14. I did *not* need a flare 4 days before surgery, no thank you. I hope it’s just the heat. Not that it’ll be much cooler in Porto. And the Ragweed pollen certainly isn’t helping.

    I was planning to deep clean the bathroom today so it’ll be clean when we get back. It’s pretty fucking gross, ngl. But I’m in so much pain :(

    #spoonie #MCAS

  15. So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?

  16. So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?

  17. So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?

  18. So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?

  19. So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?

  20. From Canada 🇨🇦

    ‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

    Free fulltext:
    digitalcommons.osgoode.yorku.c

    #MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    @mecfs

  21. From Canada 🇨🇦

    ‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

    Free fulltext:
    digitalcommons.osgoode.yorku.c

    #MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    @mecfs

  22. From Canada 🇨🇦

    ‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

    Free fulltext:
    digitalcommons.osgoode.yorku.c

    #MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    @mecfs

  23. From Canada 🇨🇦

    ‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

    Free fulltext:
    digitalcommons.osgoode.yorku.c

    #MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    @mecfs

  24. Und was macht ihr so, wenn ihr zu kaputt seid, um was zu machen? 🤔

    #overwhelmed #spoonie

  25. RE: mastodon.social/@ellespeaks/11

    Really would appreciate art supplies as im running out

    - clay
    - clay molds
    - beading trays
    - beads
    - beading n*edles

    im trying some artsy stuff i didnt get to try as a younger teen/kid because my house wasnt safe enough to explore interests.

    Anything is so appreciated, fr.
    Its been about 7 months since my last art package. 🎨

    #artist #disabledartist #disabled #queer #gay #mutualaid #directaid #MutualAidRequest #spoonie #beading #clayart @creativearts @disabledvoices @mutualaid

  26. I've pretty much spent all weekend in bed due to fatigue. I feel lazy, but I think my body needs it and it's going to be a busy week

    #ChronicDisease #SpoonieCommunity #spoonie #ChronicFatigue

  27. CN Food

    Ich leg euch mal kurz vor Weihnachten noch was brandheißes auf den Teller: Mein neues, kleines Kochbuch "Frühstück, Snack & Co.: 14 einfache & gute Meal-Prep Rezepte" ist gerade ganz frisch erschienen und passt perfekt als Geschenk unter den Weihnachtsbaum.
    Die Rezepte gehen von omnivor bis vegan, viele sind auch glutenfrei.

    Ihr könnt es direkt via Amazon kaufen (Werbung. Link zu Amazon: amazon.de/dp/B0G6XZYHGV )

    Alternativ könnt ihr mein Buch ab Mitte Januar direkt bei mir bestellen, gerne auch mit Widmung (via [email protected]).

    Liebe Grüße & schöne Feiertage
    Shermin

    #food #kochen #Kochbuch #MealPrep #Spoonie #chronicallyIll #Foodie #Foodblog #Frühstück #FreezerMeal #Porridge #Pizza #Granola #Muffins #Burritos #glutenfrei #Bookstodon #Werbung

  28. 2/

    "Akin to the ideal victim, the ideal claimant of hidden disability must navigate a system built by (and from the perspective of) those with specific preconceived notions of what it means to be a person with a disability and to present as one."

    #MEcfs #invisibleillness #hiddenillness #spoonie @mecfs #hiddendisability #invisibledisabilityawareness #invisibledisability #invisibledisabilities

  29. Then just a random list of random things! :blobcatheart:

    #CriticalRole
    #ttrpgs
    #DnD
    #Moomin
    #tea
    #cats and #dogs and especially wellbeing of animals and #doglanguage
    #folkore
    #mythology
    #tarot
    #spoonie
    #kpop
    #kdrama
    #podcasts
    #crochet
    #crossStitch
    #DoctorWho and #TheXFiles (couldn't fit to my list of shows earlier :D)
    #Lovecraft
    #horror
    #fantasy
    #scifi

    I also take way too many #screenshots in my games :D
    Especially in #FF14 #gpose is the true end game