#spoonie — Public Fediverse posts

Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.

On my wishlist. https://throne.com/kswriteshere

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.

On my wishlist. https://throne.com/kswriteshere

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.

On my wishlist. https://throne.com/kswriteshere

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.

On my wishlist. https://throne.com/kswriteshere

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.

On my wishlist. https://throne.com/kswriteshere

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

I did *not* need a flare 4 days before surgery, no thank you. I hope it’s just the heat. Not that it’ll be much cooler in Porto. And the Ragweed pollen certainly isn’t helping.

I was planning to deep clean the bathroom today so it’ll be clean when we get back. It’s pretty fucking gross, ngl. But I’m in so much pain :(

#spoonie #MCAS

I did *not* need a flare 4 days before surgery, no thank you. I hope it’s just the heat. Not that it’ll be much cooler in Porto. And the Ragweed pollen certainly isn’t helping.

I was planning to deep clean the bathroom today so it’ll be clean when we get back. It’s pretty fucking gross, ngl. But I’m in so much pain :(

#spoonie #MCAS

I did *not* need a flare 4 days before surgery, no thank you. I hope it’s just the heat. Not that it’ll be much cooler in Porto. And the Ragweed pollen certainly isn’t helping.

I was planning to deep clean the bathroom today so it’ll be clean when we get back. It’s pretty fucking gross, ngl. But I’m in so much pain :(

#spoonie #MCAS

I did *not* need a flare 4 days before surgery, no thank you. I hope it’s just the heat. Not that it’ll be much cooler in Porto. And the Ragweed pollen certainly isn’t helping.

I was planning to deep clean the bathroom today so it’ll be clean when we get back. It’s pretty fucking gross, ngl. But I’m in so much pain :(

#spoonie #MCAS

So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?

So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?

So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?

So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?

So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?

Ok, cute tie-in!

Thanks, #TubiThursday friends.

Please uplift my ask for #urgent move?

I appreciate you all.

https://me.dm/@kshernandez/117205123370324265

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Ok, cute tie-in!

Thanks, #TubiThursday friends.

Please uplift my ask for #urgent move?

I appreciate you all.

https://me.dm/@kshernandez/117205123370324265

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Ok, cute tie-in!

Thanks, #TubiThursday friends.

Please uplift my ask for #urgent move?

I appreciate you all.

https://me.dm/@kshernandez/117205123370324265

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Ok, cute tie-in!

Thanks, #TubiThursday friends.

Please uplift my ask for #urgent move?

I appreciate you all.

https://me.dm/@kshernandez/117205123370324265

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/117205123370324265

If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/117205123370324265

If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/117205123370324265

If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/117205123370324265

If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/117205123370324265

If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

From Canada 🇨🇦

‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/

#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs

From Canada 🇨🇦

‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/

#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs

From Canada 🇨🇦

‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/

#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs

From Canada 🇨🇦

‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/

#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs

From Canada 🇨🇦

‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/

#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs

RE: https://mastodon.social/@ellespeaks/117199420020373951

$25 due in 12hrs!
for my co pay or i have to cancel the appt 🆘️⚠️

Im disabled, queer + estranged from family since losing my gram September 2024. Anything helps!

V: d_fay
Pp: peach77
Kofi: https://ko-fi.com/ellespeaks

#mutualaid #MutualAidSavesLives #MutualAidRequest #helpfolkslive #disabled #spoonie #chronicillness #lgbtq #crowdfunding #gofundme #directaid #queer #hunger #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @queer @disability #disabledmutualaid @povertyandinequality

RE: https://mastodon.social/@ellespeaks/117163537926818064

Stalled for 3 days
Please put laptop in the notes if for laptop 💻

Needing food $ and co pay!
$50/$200 - food
$0/$50 - co pay
$25/$400 - laptop

Anything helps🤞🏻 Tysm

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #lgbtq #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq @creativearts @queer

RE: https://mastodon.social/@ellespeaks/117163537926818064

Stalled for 3 days
Please put laptop in the notes if for laptop 💻

Needing food $ and co pay!
$50/$200 - food
$0/$50 - co pay
$25/$400 - laptop

Anything helps🤞🏻 Tysm

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #lgbtq #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq @creativearts @queer

RE: https://mastodon.social/@ellespeaks/117163537926818064

Stalled for 3 days
Please put laptop in the notes if for laptop 💻

Needing food $ and co pay!
$50/$200 - food
$0/$50 - co pay
$25/$400 - laptop

Anything helps🤞🏻 Tysm

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #lgbtq #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq @creativearts @queer

$0/$50 - co pay due 9/3 ⚠️
$50/$200 - September food

Anything helps! Im disabled, queer and have no support. Living below the poverty line. I appreciate any help at all 💕

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq @queer

$0/$50 - co pay due 9/3 ⚠️
$50/$200 - September food

Anything helps! Im disabled, queer and have no support. Living below the poverty line. I appreciate any help at all 💕

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq @queer

$0/$50 - co pay due 9/3 ⚠️
$50/$200 - September food

Anything helps! Im disabled, queer and have no support. Living below the poverty line. I appreciate any help at all 💕

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq @queer

$0/$50 - co pay due 9/3 ⚠️
$50/$200 - September food

Anything helps! Im disabled, queer and have no support. Living below the poverty line. I appreciate any help at all 💕

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq @queer

I forgot to update a few times under this post specifically. I'm up to $440/$630 so $190 to go

$38 is still due today for my daily goal! Any bit helps a lot! Tysm.

V: d_fay
P: peach77

#mutualaid #MutualAidRequest #MutualAidSavesLives #disabled #queer #lgbtq @mutualaid @[email protected] @[email protected] @disabledvoices @povertyandinequality @disability #artist #help #diabetic #spoonie

I forgot to update a few times under this post specifically. I'm up to $440/$630 so $190 to go

$38 is still due today for my daily goal! Any bit helps a lot! Tysm.

V: d_fay
P: peach77

#mutualaid #MutualAidRequest #MutualAidSavesLives #disabled #queer #lgbtq @mutualaid @[email protected] @[email protected] @disabledvoices @povertyandinequality @disability #artist #help #diabetic #spoonie

RE: https://mastodon.social/@ellespeaks/116996844601522894

Stalled ‼
Needing to raise $39 today if im going to make it to my goal on time next week.
But anything helps and I appreciate it so much!

$400/$630 = $230 USD to go.⌛‼
For: food, co pay, phone bill, hygiene

V: d_fay
Pp: peach77

Thank you!!

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #lgbtq #crowdfunding #gofundme #directaid #queer #diabetic #poverty
@[email protected] @[email protected] @disabledvoices @lgbtq

RE: https://mastodon.social/@ellespeaks/116996844601522894

Stalled ‼
Needing to raise $39 today if im going to make it to my goal on time next week.
But anything helps and I appreciate it so much!

$400/$630 = $230 USD to go.⌛‼
For: food, co pay, phone bill, hygiene

V: d_fay
Pp: peach77

Thank you!!

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #lgbtq #crowdfunding #gofundme #directaid #queer #diabetic #poverty
@[email protected] @[email protected] @disabledvoices @lgbtq