#spoonie — Public Fediverse posts

RE: https://mastodon.social/@ellespeaks/116813597037701800

$50 due in 2 days‼⚠️

Could we clear this? My phone has to be on or its considered a fail at my recovery clinic if they call to do a random med count

Anything helps

V: d_fay
P: peach77

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronic$$pain #chronicillness #ptsd #artist #cdfunding #helpneeded #helpfolkslive÷¾2026 #lgb⁴tq #lesbian #queer #artist #disabledmutua³laid
@[email protected] @[email protected] @disability @disabledvoices #disabilitypridemonth

RE: https://mastodon.social/@ellespeaks/116813597037701800

$50 due in 2 days‼⚠️

Could we clear this? My phone has to be on or its considered a fail at my recovery clinic if they call to do a random med count

Anything helps

V: d_fay
P: peach77

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronic$$pain #chronicillness #ptsd #artist #cdfunding #helpneeded #helpfolkslive÷¾2026 #lgb⁴tq #lesbian #queer #artist #disabledmutua³laid
@[email protected] @[email protected] @disability @disabledvoices #disabilitypridemonth

The next #wip is March. I have no done February yet no 😅

This one is #Bremerhaven, another #Hanseatic city. This is a view of the climate museum and what I think is a conference building.

#nordsee #deutschland #gouache #art #mastoArt #creativeToots #spoonie #disabledArtist #queerartist #sea #river #weser

The next #wip is March. I have no done February yet no 😅

This one is #Bremerhaven, another #Hanseatic city. This is a view of the climate museum and what I think is a conference building.

#nordsee #deutschland #gouache #art #mastoArt #creativeToots #spoonie #disabledArtist #queerartist #sea #river #weser

The next #wip is March. I have no done February yet no 😅

This one is #Bremerhaven, another #Hanseatic city. This is a view of the climate museum and what I think is a conference building.

#nordsee #deutschland #gouache #art #mastoArt #creativeToots #spoonie #disabledArtist #queerartist #sea #river #weser

RE: https://mastodon.social/@ellespeaks/116813597037701800

10 hours to come up with $110 ⏳ ⚠️⚠️

$50 co pay
$60 food goal for july

Disabled lesbian unable to work. Living below the poverty line during disability pride month

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #leftist #lesbian #sapphic #lgbtq #lgbtqia #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @disability @disabledvoices @[email protected] #disabilitypridemonth

RE: https://mastodon.social/@ellespeaks/116813597037701800

10 hours to come up with $110 ⏳ ⚠️⚠️

$50 co pay
$60 food goal for july

Disabled lesbian unable to work. Living below the poverty line during disability pride month

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #leftist #lesbian #sapphic #lgbtq #lgbtqia #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @disability @disabledvoices @[email protected] #disabilitypridemonth

One perk of a mobile home is everything is so close.

Now here on holidays for a full week and no days with over 1000 steps. Includes Saturday where lots of family here for day so had lots of trips to bedroom for 30-minute rest breaks.

My discipline paid off as no significant post-exertional malaise. 🙂

#PwME #MEcfs #longcovid #spoonie #spoonies #chronicillness @mecfs @longcovid

One perk of a mobile home is everything is so close.

Now here on holidays for a full week and no days with over 1000 steps. Includes Saturday where lots of family here for day so had lots of trips to bedroom for 30-minute rest breaks.

My discipline paid off as no significant post-exertional malaise. 🙂

#PwME #MEcfs #longcovid #spoonie #spoonies #chronicillness @mecfs @longcovid

One perk of a mobile home is everything is so close.

Now here on holidays for a full week and no days with over 1000 steps. Includes Saturday where lots of family here for day so had lots of trips to bedroom for 30-minute rest breaks.

My discipline paid off as no significant post-exertional malaise. 🙂

#PwME #MEcfs #longcovid #spoonie #spoonies #chronicillness @mecfs @longcovid

One perk of a mobile home is everything is so close.

Now here on holidays for a full week and no days with over 1000 steps. Includes Saturday where lots of family here for day so had lots of trips to bedroom for 30-minute rest breaks.

My discipline paid off as no significant post-exertional malaise. 🙂

#PwME #MEcfs #longcovid #spoonie #spoonies #chronicillness @mecfs @longcovid

One perk of a mobile home is everything is so close.

Now here on holidays for a full week and no days with over 1000 steps. Includes Saturday where lots of family here for day so had lots of trips to bedroom for 30-minute rest breaks.

My discipline paid off as no significant post-exertional malaise. 🙂

#PwME #MEcfs #longcovid #spoonie #spoonies #chronicillness @mecfs @longcovid

Busy day today ahead of a busy weekend.
I have been storing my spoons and doing my best to rest.
7hr round trip this afternoon to collect C2 from Heathrow.
2nd viewings on our house tomorrow 🤞
Then 6hr round trip Sunday for 2nd viewing on house we like.🤞

I know I can get it done, but I know next week will be tricky for me.

#spoonie #spoons #chronicillness #autoimmune #fibromyalgia

Busy day today ahead of a busy weekend.
I have been storing my spoons and doing my best to rest.
7hr round trip this afternoon to collect C2 from Heathrow.
2nd viewings on our house tomorrow 🤞
Then 6hr round trip Sunday for 2nd viewing on house we like.🤞

I know I can get it done, but I know next week will be tricky for me.

#spoonie #spoons #chronicillness #autoimmune #fibromyalgia

"Navigating Clinical Uncertainty: Practical Tips for ME/CFS and Long COVID Caregivers" by Kim Moy

https://www.caregiverwisdom.net/post/navigating-clinical-uncertainty-practical-tips-for-me-cfs-and-long-covid-caregivers

Her focus in general is on caregivers but most of this article is also relevant for patients

#MEcfs #LongCovid #Spoonies #Spoonie #ChronicallyIll @mecfs @longcovid #POTS @pots

"Navigating Clinical Uncertainty: Practical Tips for ME/CFS and Long COVID Caregivers" by Kim Moy

https://www.caregiverwisdom.net/post/navigating-clinical-uncertainty-practical-tips-for-me-cfs-and-long-covid-caregivers

Her focus in general is on caregivers but most of this article is also relevant for patients

#MEcfs #LongCovid #Spoonies #Spoonie #ChronicallyIll @mecfs @longcovid #POTS @pots

"Navigating Clinical Uncertainty: Practical Tips for ME/CFS and Long COVID Caregivers" by Kim Moy

https://www.caregiverwisdom.net/post/navigating-clinical-uncertainty-practical-tips-for-me-cfs-and-long-covid-caregivers

Her focus in general is on caregivers but most of this article is also relevant for patients

#MEcfs #LongCovid #Spoonies #Spoonie #ChronicallyIll @mecfs @longcovid #POTS @pots

"Navigating Clinical Uncertainty: Practical Tips for ME/CFS and Long COVID Caregivers" by Kim Moy

https://www.caregiverwisdom.net/post/navigating-clinical-uncertainty-practical-tips-for-me-cfs-and-long-covid-caregivers

Her focus in general is on caregivers but most of this article is also relevant for patients

#MEcfs #LongCovid #Spoonies #Spoonie #ChronicallyIll @mecfs @longcovid #POTS @pots

"Navigating Clinical Uncertainty: Practical Tips for ME/CFS and Long COVID Caregivers" by Kim Moy

https://www.caregiverwisdom.net/post/navigating-clinical-uncertainty-practical-tips-for-me-cfs-and-long-covid-caregivers

Her focus in general is on caregivers but most of this article is also relevant for patients

#MEcfs #LongCovid #Spoonies #Spoonie #ChronicallyIll @mecfs @longcovid #POTS @pots

🧠☁️ Flare Report: Brain Fog

Brain fog is more than being forgetful.

It’s searching for the right words, losing your train of thought, rereading the same sentence, or walking into a room and forgetting why.

For many of us with chronic illness, it’s one of the hardest invisible symptoms to explain.

💜 Be kind to yourself on the foggy days.

What’s the funniest or most frustrating brain fog moment you’ve had?

#BrainFog #FlareReport #ChronicIllness #Spoonie #InvisibleIllness #DisabilityAwareness

🧠☁️ Flare Report: Brain Fog

Brain fog is more than being forgetful.

It’s searching for the right words, losing your train of thought, rereading the same sentence, or walking into a room and forgetting why.

For many of us with chronic illness, it’s one of the hardest invisible symptoms to explain.

💜 Be kind to yourself on the foggy days.

What’s the funniest or most frustrating brain fog moment you’ve had?

#BrainFog #FlareReport #ChronicIllness #Spoonie #InvisibleIllness #DisabilityAwareness

(Not specific to any one disability or illness)

EquipOT has some videos of disability hacks/tips:
https://www.youtube.com/@EquipMeOT/playlists

#disability #chronicillness #spoonie #spoonies #disabilityaid

(Not specific to any one disability or illness)

EquipOT has some videos of disability hacks/tips:
https://www.youtube.com/@EquipMeOT/playlists

#disability #chronicillness #spoonie #spoonies #disabilityaid

(Not specific to any one disability or illness)

EquipOT has some videos of disability hacks/tips:
https://www.youtube.com/@EquipMeOT/playlists

#disability #chronicillness #spoonie #spoonies #disabilityaid

(Not specific to any one disability or illness)

EquipOT has some videos of disability hacks/tips:
https://www.youtube.com/@EquipMeOT/playlists

#disability #chronicillness #spoonie #spoonies #disabilityaid

(Not specific to any one disability or illness)

EquipOT has some videos of disability hacks/tips:
https://www.youtube.com/@EquipMeOT/playlists

#disability #chronicillness #spoonie #spoonies #disabilityaid

🧵
"How to Apply For—and Receive—Your SSDI: Long COVID makes it tricky. Know the rules"

https://longcovidmd.substack.com/p/you-may-qualify-for-ssdi

Blog with linked video recording.
Most of the advice is specific to SSDI rather than more generally useful internationally

Also useful for other spoonies

#LongCovid #MEcfs #Spoonies
#Spoonie #POTS @pots #PwME #ME #MyalgicE
@mecfs
@longcovid

1/

🧵
"How to Apply For—and Receive—Your SSDI: Long COVID makes it tricky. Know the rules"

https://longcovidmd.substack.com/p/you-may-qualify-for-ssdi

Blog with linked video recording.
Most of the advice is specific to SSDI rather than more generally useful internationally

Also useful for other spoonies

#LongCovid #MEcfs #Spoonies
#Spoonie #POTS @pots #PwME #ME #MyalgicE
@mecfs
@longcovid

1/

🧵
"How to Apply For—and Receive—Your SSDI: Long COVID makes it tricky. Know the rules"

https://longcovidmd.substack.com/p/you-may-qualify-for-ssdi

Blog with linked video recording.
Most of the advice is specific to SSDI rather than more generally useful internationally

Also useful for other spoonies

#LongCovid #MEcfs #Spoonies
#Spoonie #POTS @pots #PwME #ME #MyalgicE
@mecfs
@longcovid

1/

🧵
"How to Apply For—and Receive—Your SSDI: Long COVID makes it tricky. Know the rules"

https://longcovidmd.substack.com/p/you-may-qualify-for-ssdi

Blog with linked video recording.
Most of the advice is specific to SSDI rather than more generally useful internationally

Also useful for other spoonies

#LongCovid #MEcfs #Spoonies
#Spoonie #POTS @pots #PwME #ME #MyalgicE
@mecfs
@longcovid

1/

🧵
"How to Apply For—and Receive—Your SSDI: Long COVID makes it tricky. Know the rules"

https://longcovidmd.substack.com/p/you-may-qualify-for-ssdi

Blog with linked video recording.
Most of the advice is specific to SSDI rather than more generally useful internationally

Also useful for other spoonies

#LongCovid #MEcfs #Spoonies
#Spoonie #POTS @pots #PwME #ME #MyalgicE
@mecfs
@longcovid

1/

Your value is not measured by your productivity.

Not by how many errands you ran.
Not by how clean your house is.
Not by how much you accomplished today.

Some days surviving is the accomplishment.

And if that's where you are today, I'm proud of you. ❤️

#ChronicIllness #ChronicPain #InvisibleIllness #Spoonie #SelfWorth

Your value is not measured by your productivity.

Not by how many errands you ran.
Not by how clean your house is.
Not by how much you accomplished today.

Some days surviving is the accomplishment.

And if that's where you are today, I'm proud of you. ❤️

#ChronicIllness #ChronicPain #InvisibleIllness #Spoonie #SelfWorth

Do you ever miss the person you used to be?

One thing chronic illness has taught me is that we don’t just grieve our health.

Sometimes we grieve our independence.
Our energy.
Our spontaneity.
The version of ourselves that existed before everything changed.

I’m learning that missing who I was doesn’t mean I don’t appreciate who I am now.

💜 What do you miss most about the person you used to be?

#ChronicIllness
#ChronicPain
#Disability
#Spoonie
#MentalHealth
#ChronicIllnessCommunity
#SelfWorth

Do you ever miss the person you used to be?

One thing chronic illness has taught me is that we don’t just grieve our health.

Sometimes we grieve our independence.
Our energy.
Our spontaneity.
The version of ourselves that existed before everything changed.

I’m learning that missing who I was doesn’t mean I don’t appreciate who I am now.

💜 What do you miss most about the person you used to be?

#ChronicIllness
#ChronicPain
#Disability
#Spoonie
#MentalHealth
#ChronicIllnessCommunity
#SelfWorth

Out of nowhere those longer intenser tremors. Coffee and eyeliner must wait or should.

#Tremor #EssentialTremor #Spoonie

Out of nowhere those longer intenser tremors. Coffee and eyeliner must wait or should.

#Tremor #EssentialTremor #Spoonie

RE: https://mastodon.social/@ellespeaks/116576602021993949

Pls put ur needs under the original post!!

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #lgbtqia #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty #bipoc #blacklivesmatter #gaza #TransRights #fundfriday #houseless

The Journey of a Glass Child: Embracing Uniqueness

https://dreamspacestudio.net/the-journey-of-a-glass-child-embracing-uniqueness/

The Journey of a Glass Child: Embracing Uniqueness

https://dreamspacestudio.net/the-journey-of-a-glass-child-embracing-uniqueness/

The Journey of a Glass Child: Embracing Uniqueness

https://dreamspacestudio.net/the-journey-of-a-glass-child-embracing-uniqueness/

The Journey of a Glass Child: Embracing Uniqueness

https://dreamspacestudio.net/the-journey-of-a-glass-child-embracing-uniqueness/

The Journey of a Glass Child: Embracing Uniqueness

https://dreamspacestudio.net/the-journey-of-a-glass-child-embracing-uniqueness/

Hi there,

I just wanted to surface a Reddit post here on the fediverse. A very severe/extreme ME/CFS sufferer is currently in a precarious situation and needing financial support.

Her name is Ali and you can read more about her situation on Reddit here:

https://www.reddit.com/r/cfs/comments/1t11zip/fundraiser_for_ali_veryextremely_severe_me/

Thanks.

#MECFS #MyalgicEncephalomyelitis #CFS #MyalgicE #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome #spoonie #spoonies

Hi there,

I just wanted to surface a Reddit post here on the fediverse. A very severe/extreme ME/CFS sufferer is currently in a precarious situation and needing financial support.

Her name is Ali and you can read more about her situation on Reddit here:

https://www.reddit.com/r/cfs/comments/1t11zip/fundraiser_for_ali_veryextremely_severe_me/

Thanks.

#MECFS #MyalgicEncephalomyelitis #CFS #MyalgicE #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome #spoonie #spoonies

Hi there,

I just wanted to surface a Reddit post here on the fediverse. A very severe/extreme ME/CFS sufferer is currently in a precarious situation and needing financial support.

Her name is Ali and you can read more about her situation on Reddit here:

https://www.reddit.com/r/cfs/comments/1t11zip/fundraiser_for_ali_veryextremely_severe_me/

Thanks.

#MECFS #MyalgicEncephalomyelitis #CFS #MyalgicE #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome #spoonie #spoonies

Hi there,

I just wanted to surface a Reddit post here on the fediverse. A very severe/extreme ME/CFS sufferer is currently in a precarious situation and needing financial support.

Her name is Ali and you can read more about her situation on Reddit here:

https://www.reddit.com/r/cfs/comments/1t11zip/fundraiser_for_ali_veryextremely_severe_me/

Thanks.

#MECFS #MyalgicEncephalomyelitis #CFS #MyalgicE #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome #spoonie #spoonies

Hi there,

I just wanted to surface a Reddit post here on the fediverse. A very severe/extreme ME/CFS sufferer is currently in a precarious situation and needing financial support.

Her name is Ali and you can read more about her situation on Reddit here:

https://www.reddit.com/r/cfs/comments/1t11zip/fundraiser_for_ali_veryextremely_severe_me/

Thanks.

#MECFS #MyalgicEncephalomyelitis #CFS #MyalgicE #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome #spoonie #spoonies

Where Pain Learns to Breathe: And Still, I Do

https://kandiblaze.wordpress.com/2026/04/29/where-pain-learns-to-breathe-and-still-i-do/

Where Pain Learns to Breathe: And Still, I Do

https://kandiblaze.wordpress.com/2026/04/29/where-pain-learns-to-breathe-and-still-i-do/