#spoonie — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #spoonie, aggregated by home.social.
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Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.
On my wishlist. https://throne.com/kswriteshere
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.
On my wishlist. https://throne.com/kswriteshere
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.
On my wishlist. https://throne.com/kswriteshere
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.
On my wishlist. https://throne.com/kswriteshere
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.
On my wishlist. https://throne.com/kswriteshere
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid -
4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid -
4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid -
4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid -
4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid -
2/
“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”
#spoonie #spoonies #spoonie #PEM #PwME #LongCovid
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2/
“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”
#spoonie #spoonies #spoonie #PEM #PwME #LongCovid
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2/
“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”
#spoonie #spoonies #spoonie #PEM #PwME #LongCovid
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2/
“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”
#spoonie #spoonies #spoonie #PEM #PwME #LongCovid
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2/
“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”
#spoonie #spoonies #spoonie #PEM #PwME #LongCovid
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I did *not* need a flare 4 days before surgery, no thank you. I hope it’s just the heat. Not that it’ll be much cooler in Porto. And the Ragweed pollen certainly isn’t helping.
I was planning to deep clean the bathroom today so it’ll be clean when we get back. It’s pretty fucking gross, ngl. But I’m in so much pain :(
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I did *not* need a flare 4 days before surgery, no thank you. I hope it’s just the heat. Not that it’ll be much cooler in Porto. And the Ragweed pollen certainly isn’t helping.
I was planning to deep clean the bathroom today so it’ll be clean when we get back. It’s pretty fucking gross, ngl. But I’m in so much pain :(
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I did *not* need a flare 4 days before surgery, no thank you. I hope it’s just the heat. Not that it’ll be much cooler in Porto. And the Ragweed pollen certainly isn’t helping.
I was planning to deep clean the bathroom today so it’ll be clean when we get back. It’s pretty fucking gross, ngl. But I’m in so much pain :(
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I did *not* need a flare 4 days before surgery, no thank you. I hope it’s just the heat. Not that it’ll be much cooler in Porto. And the Ragweed pollen certainly isn’t helping.
I was planning to deep clean the bathroom today so it’ll be clean when we get back. It’s pretty fucking gross, ngl. But I’m in so much pain :(
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So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?
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So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?
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So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?
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So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?
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So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?
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Ok, cute tie-in!
Thanks, #TubiThursday friends.
Please uplift my ask for #urgent move?
I appreciate you all.
https://me.dm/@kshernandez/117205123370324265
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Ok, cute tie-in!
Thanks, #TubiThursday friends.
Please uplift my ask for #urgent move?
I appreciate you all.
https://me.dm/@kshernandez/117205123370324265
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Ok, cute tie-in!
Thanks, #TubiThursday friends.
Please uplift my ask for #urgent move?
I appreciate you all.
https://me.dm/@kshernandez/117205123370324265
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Ok, cute tie-in!
Thanks, #TubiThursday friends.
Please uplift my ask for #urgent move?
I appreciate you all.
https://me.dm/@kshernandez/117205123370324265
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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RE: https://me.dm/@kshernandez/117205123370324265
If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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RE: https://me.dm/@kshernandez/117205123370324265
If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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RE: https://me.dm/@kshernandez/117205123370324265
If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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RE: https://me.dm/@kshernandez/117205123370324265
If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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RE: https://me.dm/@kshernandez/117205123370324265
If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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From Canada 🇨🇦
‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications
Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs -
From Canada 🇨🇦
‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications
Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs -
From Canada 🇨🇦
‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications
Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs -
From Canada 🇨🇦
‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications
Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs -
From Canada 🇨🇦
‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications
Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs -
Where Pain Learns to Breathe: And Still, I Do
I cherish what is good— those fragile, golden fragments of ease— but I dread what is required: the procedures, the waiting, the quiet endurance of pain. Still, it humbles me. It teaches me to love as if each day is a final draft, as if time itself is borrowed…https://kandiblaze.wordpress.com/2026/04/29/where-pain-learns-to-breathe-and-still-i-do/
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Sitze an meiner Steuer, habe mir beim Sachen-aus-dem-Drucker-fischen die Schulter verrenkt. Mir ist dizzy und schlecht, muss da jetzt durch.
Aber ich sehe gerade nochmal eure Unterstützungen und super lieben Kommentare, die via Ko-Fi eingingen. Ich blende Gutes so oft unbewusst aus. Danke, ihr Hasen! 😭💚https://ko-fi.com/magic_cauldron
#spoonie #support #food #foodblog #autorin #spoonieSupport #meCfs #steuer
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Schönes im Osternest statt Billigschoki
Okay, okay! Nix gegen Schoki. (Glashaus. Steine. 😅 Bin ich in meiner Rage-Bait-Era? 😬🙏) Ich kann ja auch nicht ohne. Zum Frühstück oder für Snacks brauche ich aber etwas mehr. Mein kleines Kochbuch passt auch toll ins Osterkörbchen, macht noch länger Freude und hilft gegen Hungi.
Rausgebracht im Selbstverlag. Erhältlich via Amazon, direkt bei mir oder über meinen Ko-Fi-Shop. (Werbung.)https://www.amazon.de/dp/B0G6XZYHGV?
(Link zu Amazon)https://ko-fi.com/s/8dee3a1e7b
(Link zu Ko-Fi)Bestellung bei mir: [email protected]
Wie immer ganz lieben Dank für Boosts! Ohne euch geht halt gar nix. 🥰
#Osternest #Ostergeschenk #Ostern #Kochbuch #Ostern #Buch #Bookstodon
#FroheOstern #Geschenkideen #Spoonie #MealPrep #Selfpublishing #SpoonieSupport #SpooniesLife -
Some tips on showering and washing from a sympathetic & knowledgeable occupational therapist who specialises in ME/CFS, Long Covid & other energy-limiting chronic conditions
https://onelifelivedwell.substack.com/p/showers-shouldnt-cost-your-energy
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
@longcovid #LongCovid #PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance #Spoonies #Spoonie -
"When I Don't Feel 'Disabled Enough' as Someone With a Chronic Illness"
https://themighty.com/topic/fibromyalgia/feeling-not-disabled-enough-chronic-illness
"How many of you who have fibromyalgia or similar #chronicillness sometimes feel like you’re judged for not being 'disabled enough?'”
#invisibleillness #Spoonie #hiddenillness #Spoonielife #PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance @longcovid
#LongCovid #MEcfs #
@mecfs -
"Media Baffled by Wheelchair ‘Miracles’ Because They Don’t Understand Disability"
https://fair.org/home/media-baffled-by-wheelchair-miracles-because-they-dont-understand-disability/
"The distance from the entrance to the gate at larger airports is about a mile, an impossible distance for many with #MECFS"
#LongCovid & the Covid pandemic is mentioned as is #POTS
#spoonie #Disability #CFS #PwME #MyalgicEncephalomyelitis
@mecfs
#invisibleillness #Hiddendisabilities @longcovid
#PASC #PwLC #postcovid #postcovid19 #LC #PostCovidSyndrome #chronicillness @pots -
Blog post about using props (like pillows, bolsters, and wedges) to help promote relaxation, by a sympathetic and knowledgeable occupational therapist who focuses on ME/CFS and long Covid.
https://onelifelivedwell.substack.com/p/repose-the-new-relaxation
@longcovid
#LongCovid #PASC #PwLC #postcovid #MEcfs #chronicillness #Spoonie @mecfs
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PosturalOrthostaticTachycardiaSyndrome #POTS @pots -
(US)
Another piece on the important recent federal court ruling that judges in disability cases shouldn't rely solely on objective medical evidence in some scenarios such as with fibromyalgia#Fibromyalgia #Fibro #FMS #chronicillness #Spoonie #MEcfs @mecfs #LongCovid @longcovid #PosturalOrthostaticTachycardiaSyndrome #POTS @pots
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See post #2 for a vaguely related comment from me on orthostatic intolerance
#POTS @pots #OI #OrthostaticIntolerance #chronicillness #chroniclife
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#ChronicIllnessMemes
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid1/
