#spoonie — Public Fediverse posts

RE: https://mastodon.social/@broodcoffee/116454754564011275

Haven't reached last month's goal that I have to clear off my MA request ASAP, need $420 by 09/13...
Could use some aid cover urgent survival needs. 💸💕 Any amount you can spare helps🙏

https://ko-fi.com/broodcoffee

@MutualAidBot
@[email protected] @[email protected] @[email protected] @mutual_aid @disability @mutualaidspace

#MutualAidRequest #crowdfund #FediAid #HelpFolksLive2026 #mutualaid #FediHelp #fediverse #BIPOCMA #MutualAidSavesLives #maboost #spoonie #kofi #helpneeded #directaid #SignalBoost

RE: https://mastodon.social/@broodcoffee/116454754564011275

Haven't reached last month's goal that I have to clear off my MA request ASAP, need $420 by 09/13...
Could use some aid cover urgent survival needs. 💸💕 Any amount you can spare helps🙏

https://ko-fi.com/broodcoffee

@MutualAidBot
@[email protected] @[email protected] @[email protected] @mutual_aid @disability @mutualaidspace

#MutualAidRequest #crowdfund #FediAid #HelpFolksLive2026 #mutualaid #FediHelp #fediverse #BIPOCMA #MutualAidSavesLives #maboost #spoonie #kofi #helpneeded #directaid #SignalBoost

RE: https://mastodon.social/@broodcoffee/116454754564011275

Haven't reached last month's goal that I have to clear off my MA request ASAP, need $420 by 09/13...
Could use some aid cover urgent survival needs. 💸💕 Any amount you can spare helps🙏

https://ko-fi.com/broodcoffee

@MutualAidBot
@[email protected] @[email protected] @[email protected] @mutual_aid @disability @mutualaidspace

#MutualAidRequest #crowdfund #FediAid #HelpFolksLive2026 #mutualaid #FediHelp #fediverse #BIPOCMA #MutualAidSavesLives #maboost #spoonie #kofi #helpneeded #directaid #SignalBoost

RE: https://mastodon.social/@broodcoffee/116454754564011275

Haven't reached last month's goal that I have to clear off my MA request ASAP, need $420 by 09/13...
Could use some aid cover urgent survival needs. 💸💕 Any amount you can spare helps🙏

https://ko-fi.com/broodcoffee

@MutualAidBot
@[email protected] @[email protected] @[email protected] @mutual_aid @disability @mutualaidspace

#MutualAidRequest #crowdfund #FediAid #HelpFolksLive2026 #mutualaid #FediHelp #fediverse #BIPOCMA #MutualAidSavesLives #maboost #spoonie #kofi #helpneeded #directaid #SignalBoost

Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.

On my wishlist. https://throne.com/kswriteshere

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.

On my wishlist. https://throne.com/kswriteshere

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.

On my wishlist. https://throne.com/kswriteshere

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.

On my wishlist. https://throne.com/kswriteshere

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.

On my wishlist. https://throne.com/kswriteshere

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

I did *not* need a flare 4 days before surgery, no thank you. I hope it’s just the heat. Not that it’ll be much cooler in Porto. And the Ragweed pollen certainly isn’t helping.

I was planning to deep clean the bathroom today so it’ll be clean when we get back. It’s pretty fucking gross, ngl. But I’m in so much pain :(

#spoonie #MCAS

I did *not* need a flare 4 days before surgery, no thank you. I hope it’s just the heat. Not that it’ll be much cooler in Porto. And the Ragweed pollen certainly isn’t helping.

I was planning to deep clean the bathroom today so it’ll be clean when we get back. It’s pretty fucking gross, ngl. But I’m in so much pain :(

#spoonie #MCAS

I did *not* need a flare 4 days before surgery, no thank you. I hope it’s just the heat. Not that it’ll be much cooler in Porto. And the Ragweed pollen certainly isn’t helping.

I was planning to deep clean the bathroom today so it’ll be clean when we get back. It’s pretty fucking gross, ngl. But I’m in so much pain :(

#spoonie #MCAS

I did *not* need a flare 4 days before surgery, no thank you. I hope it’s just the heat. Not that it’ll be much cooler in Porto. And the Ragweed pollen certainly isn’t helping.

I was planning to deep clean the bathroom today so it’ll be clean when we get back. It’s pretty fucking gross, ngl. But I’m in so much pain :(

#spoonie #MCAS

So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?

So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?

So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?

So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?

So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?

Ok, cute tie-in!

Thanks, #TubiThursday friends.

Please uplift my ask for #urgent move?

I appreciate you all.

https://me.dm/@kshernandez/117205123370324265

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Ok, cute tie-in!

Thanks, #TubiThursday friends.

Please uplift my ask for #urgent move?

I appreciate you all.

https://me.dm/@kshernandez/117205123370324265

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Ok, cute tie-in!

Thanks, #TubiThursday friends.

Please uplift my ask for #urgent move?

I appreciate you all.

https://me.dm/@kshernandez/117205123370324265

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Ok, cute tie-in!

Thanks, #TubiThursday friends.

Please uplift my ask for #urgent move?

I appreciate you all.

https://me.dm/@kshernandez/117205123370324265

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/117205123370324265

If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/117205123370324265

If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/117205123370324265

If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/117205123370324265

If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/117205123370324265

If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

From Canada 🇨🇦

‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/

#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs

I’m a customer at companies that insist in using their own ‘inbox’. So instead of sending me an email – or a letter – they use only their own website/app.

They still send me emails, though: ‘There’s a new document in your inbox!’

So, every time I have to go there, enter my credentials, and check out what they sent me. Nine out of ten times it’s just bullshit.

Do they have any idea how hard it is for me to find the energy to do that?!

#inclusion #spoonie #AdhdBrain #hypoactive #accessability

Who can match the 35 received today

A great #WhiskersWednesday shot from a favorite #Twitch stream. #CatsofMastodon

I'm hoping these lovely kitties will inspire folks to help me with my #urgent move goal.

Do they? Can you?
All is appreciated!

Deets and ways to aid: https://linktr.ee/khernandez

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

my allergy shots didn’t get delivered yesterday as this is a specific medication can only be given exactly 2 weeks apart not even a day early if I get them of my current schedule I’ll
Have to cancel & reschedule 12 appointments so the next two weeks I need extra support & if I go MIA you know why 😂

#MCAS #chronicillness #spoonie

$150/$550 September necessities ‼

Food: $50/$200 = $150 remains for food!

Absolutely any help is life saving. I dont have support from family and I am too sick to work unfortunately. Im disabled and queer. Any help means a lot.

V: d_fay | PP: peach77

#mutualaid #MutualAidRequest #MutualAidSavesLives #disabled #disabledmutualaid #chronicpain #spoonie #queer #lgbtq #artist #poverty #directaid #fediverse @[email protected] @mutualaidspace @[email protected] @disabledvoices @lgbtq #crowdfund

RE: https://mastodon.social/@ellespeaks/117199420020373951

$25 due in 12hrs!
for my co pay or i have to cancel the appt 🆘️⚠️

Im disabled, queer + estranged from family since losing my gram September 2024. Anything helps!

V: d_fay
Pp: peach77
Kofi: https://ko-fi.com/ellespeaks

#mutualaid #MutualAidSavesLives #MutualAidRequest #helpfolkslive #disabled #spoonie #chronicillness #lgbtq #crowdfunding #gofundme #directaid #queer #hunger #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @queer @disability #disabledmutualaid @povertyandinequality

“The Relentless Work of Being Sick”

“A new book examines the labor of getting chronic illness diagnosed and treated—for those lucky enough to get care.”

https://www.motherjones.com/media/2026/09/rogers-sick-work-duke-press-qa-interview-chronic-illness/

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #spoonie

RE: https://mastodon.social/@ellespeaks/117185849880983055

stalled
$50 needed asap + anything for food (almost out)

Im diabetic and do not have family to turn to. I have food allergies so food pantries arent ideal unfortunately

I appreciate any help at all + am v grateful. Thank you!

V: d_fay
P: peach77
Ko: https://ko-fi.com/ellespeaks

#Mutualaid #MutualAidRequest #MutualAidSavesLives #disabled #spoonie #chronicpain #chronicillness #helpfolkslive2026 #lgbtq #queer @povertyandinequality @disabledvoices @queer @[email protected] @directaid @[email protected] @lgbtq

Things are getting bleak

I need my co pay asap or ill have to cancel (pain management appointment)
I also need med and food money.

I dont have anyone to turn to, so please understand $2 makes a difference. It truly does i appreciate any help

$100/$550 - September necessities
V: d_fay
Pp: peach77

#mutualaid #directaid #queer #disabled #MutualAidRequest #spoonie #artist #helpfolkslive2026 #disability #lgbtq @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @queer @povertyandinequality

$0/$50 - co pay due 9/3 ⚠️
$50/$200 - September food

Anything helps! Im disabled, queer and have no support. Living below the poverty line. I appreciate any help at all 💕

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq @queer

Not enough spoons and very migraine-y today so plans to go to #Lords for the #cricket are scuppered.
#spoonie

When you are an autistic spoonie and your lack of spoons leads to losing spoons, because you accidently drop a spoon full of wet dog food. What a mess. 🙄

#ActuallyAutistic #Disabled #Spoonie
@autistics

3/
Long COVID in the Workplace

https://recovercovid.org/sites/default/files/docs/Long-COVID-Workplace.pdf

#LongCovid @longcovid #Spoonies
#Spoonie