#spoonie — Public Fediverse posts

RE: https://mastodon.social/@broodcoffee/116454754564011275

Haven't reached last month's goal that I have to clear off my MA request ASAP, need $420 by 09/13...
Could use some aid cover urgent survival needs. 💸💕 Any amount you can spare helps🙏

https://ko-fi.com/broodcoffee

@MutualAidBot
@[email protected] @[email protected] @[email protected] @mutual_aid @disability @mutualaidspace

#MutualAidRequest #crowdfund #FediAid #HelpFolksLive2026 #mutualaid #FediHelp #fediverse #BIPOCMA #MutualAidSavesLives #maboost #spoonie #kofi #helpneeded #directaid #SignalBoost

RE: https://mastodon.social/@broodcoffee/116454754564011275

Haven't reached last month's goal that I have to clear off my MA request ASAP, need $420 by 09/13...
Could use some aid cover urgent survival needs. 💸💕 Any amount you can spare helps🙏

https://ko-fi.com/broodcoffee

@MutualAidBot
@[email protected] @[email protected] @[email protected] @mutual_aid @disability @mutualaidspace

#MutualAidRequest #crowdfund #FediAid #HelpFolksLive2026 #mutualaid #FediHelp #fediverse #BIPOCMA #MutualAidSavesLives #maboost #spoonie #kofi #helpneeded #directaid #SignalBoost

RE: https://mastodon.social/@broodcoffee/116454754564011275

Haven't reached last month's goal that I have to clear off my MA request ASAP, need $420 by 09/13...
Could use some aid cover urgent survival needs. 💸💕 Any amount you can spare helps🙏

https://ko-fi.com/broodcoffee

@MutualAidBot
@[email protected] @[email protected] @[email protected] @mutual_aid @disability @mutualaidspace

#MutualAidRequest #crowdfund #FediAid #HelpFolksLive2026 #mutualaid #FediHelp #fediverse #BIPOCMA #MutualAidSavesLives #maboost #spoonie #kofi #helpneeded #directaid #SignalBoost

RE: https://mastodon.social/@broodcoffee/116454754564011275

Haven't reached last month's goal that I have to clear off my MA request ASAP, need $420 by 09/13...
Could use some aid cover urgent survival needs. 💸💕 Any amount you can spare helps🙏

https://ko-fi.com/broodcoffee

@MutualAidBot
@[email protected] @[email protected] @[email protected] @mutual_aid @disability @mutualaidspace

#MutualAidRequest #crowdfund #FediAid #HelpFolksLive2026 #mutualaid #FediHelp #fediverse #BIPOCMA #MutualAidSavesLives #maboost #spoonie #kofi #helpneeded #directaid #SignalBoost

Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.

On my wishlist. https://throne.com/kswriteshere

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.

On my wishlist. https://throne.com/kswriteshere

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.

On my wishlist. https://throne.com/kswriteshere

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.

On my wishlist. https://throne.com/kswriteshere

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.

On my wishlist. https://throne.com/kswriteshere

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

I did *not* need a flare 4 days before surgery, no thank you. I hope it’s just the heat. Not that it’ll be much cooler in Porto. And the Ragweed pollen certainly isn’t helping.

I was planning to deep clean the bathroom today so it’ll be clean when we get back. It’s pretty fucking gross, ngl. But I’m in so much pain :(

#spoonie #MCAS

I did *not* need a flare 4 days before surgery, no thank you. I hope it’s just the heat. Not that it’ll be much cooler in Porto. And the Ragweed pollen certainly isn’t helping.

I was planning to deep clean the bathroom today so it’ll be clean when we get back. It’s pretty fucking gross, ngl. But I’m in so much pain :(

#spoonie #MCAS

I did *not* need a flare 4 days before surgery, no thank you. I hope it’s just the heat. Not that it’ll be much cooler in Porto. And the Ragweed pollen certainly isn’t helping.

I was planning to deep clean the bathroom today so it’ll be clean when we get back. It’s pretty fucking gross, ngl. But I’m in so much pain :(

#spoonie #MCAS

I did *not* need a flare 4 days before surgery, no thank you. I hope it’s just the heat. Not that it’ll be much cooler in Porto. And the Ragweed pollen certainly isn’t helping.

I was planning to deep clean the bathroom today so it’ll be clean when we get back. It’s pretty fucking gross, ngl. But I’m in so much pain :(

#spoonie #MCAS

So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?

So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?

So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?

So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?

So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?

Ok, cute tie-in!

Thanks, #TubiThursday friends.

Please uplift my ask for #urgent move?

I appreciate you all.

https://me.dm/@kshernandez/117205123370324265

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Ok, cute tie-in!

Thanks, #TubiThursday friends.

Please uplift my ask for #urgent move?

I appreciate you all.

https://me.dm/@kshernandez/117205123370324265

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Ok, cute tie-in!

Thanks, #TubiThursday friends.

Please uplift my ask for #urgent move?

I appreciate you all.

https://me.dm/@kshernandez/117205123370324265

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Ok, cute tie-in!

Thanks, #TubiThursday friends.

Please uplift my ask for #urgent move?

I appreciate you all.

https://me.dm/@kshernandez/117205123370324265

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/117205123370324265

If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/117205123370324265

If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/117205123370324265

If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/117205123370324265

If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://me.dm/@kshernandez/117205123370324265

If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

From Canada 🇨🇦

‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/

#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs

Who can match the 35 received today

A great #WhiskersWednesday shot from a favorite #Twitch stream. #CatsofMastodon

I'm hoping these lovely kitties will inspire folks to help me with my #urgent move goal.

Do they? Can you?
All is appreciated!

Deets and ways to aid: https://linktr.ee/khernandez

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

my allergy shots didn’t get delivered yesterday as this is a specific medication can only be given exactly 2 weeks apart not even a day early if I get them of my current schedule I’ll
Have to cancel & reschedule 12 appointments so the next two weeks I need extra support & if I go MIA you know why 😂

#MCAS #chronicillness #spoonie

RE: https://mastodon.social/@ellespeaks/117199420020373951

$25 due in 12hrs!
for my co pay or i have to cancel the appt 🆘️⚠️

Im disabled, queer + estranged from family since losing my gram September 2024. Anything helps!

V: d_fay
Pp: peach77
Kofi: https://ko-fi.com/ellespeaks

#mutualaid #MutualAidSavesLives #MutualAidRequest #helpfolkslive #disabled #spoonie #chronicillness #lgbtq #crowdfunding #gofundme #directaid #queer #hunger #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @queer @disability #disabledmutualaid @povertyandinequality

Und was macht ihr so, wenn ihr zu kaputt seid, um was zu machen? 🤔

#overwhelmed #spoonie

From @dougieslifewithmecfs on IG:
Today is severe ME awareness day. If you can please show love and support to this post for all the people suffering and having suffered from severe ME.

#mecfs #mecfsawareness #severemeawareness #severemeawarenessday #spoonie @mecfs

#neuroplasticity #buddhism #buddhist #vajrayana #himalayan #lojong #mind #mindtraining #perception #philosophy #suffering #meditation #TibetanBuddhism #yogini #compassion #MentalHealth #MentalWellness #spoonie #spoonielife

Lojong is a simple and transformative practice for freeing your mind from suffering and discontent. No need to go to a temple or spend money or spend lots of time studying.

Jetsunma is a truly inspiring modern era female Buddhist lama.

https://www.indigo.ca/products/change-your-mind-change-your-life-2?variant=46704091463890

Sitze an meiner Steuer, habe mir beim Sachen-aus-dem-Drucker-fischen die Schulter verrenkt. Mir ist dizzy und schlecht, muss da jetzt durch.
Aber ich sehe gerade nochmal eure Unterstützungen und super lieben Kommentare, die via Ko-Fi eingingen. Ich blende Gutes so oft unbewusst aus. Danke, ihr Hasen! 😭💚

https://ko-fi.com/magic_cauldron

#spoonie #support #food #foodblog #autorin #spoonieSupport #meCfs #steuer

Schönes im Osternest statt Billigschoki
Okay, okay! Nix gegen Schoki. (Glashaus. Steine. 😅 Bin ich in meiner Rage-Bait-Era? 😬🙏) Ich kann ja auch nicht ohne. Zum Frühstück oder für Snacks brauche ich aber etwas mehr. Mein kleines Kochbuch passt auch toll ins Osterkörbchen, macht noch länger Freude und hilft gegen Hungi.
Rausgebracht im Selbstverlag. Erhältlich via Amazon, direkt bei mir oder über meinen Ko-Fi-Shop. (Werbung.)

https://www.amazon.de/dp/B0G6XZYHGV?
(Link zu Amazon)

https://ko-fi.com/s/8dee3a1e7b
(Link zu Ko-Fi)

Bestellung bei mir: [email protected]

Wie immer ganz lieben Dank für Boosts! Ohne euch geht halt gar nix. 🥰

#Osternest #Ostergeschenk #Ostern #Kochbuch #Ostern #Buch #Bookstodon
#FroheOstern #Geschenkideen #Spoonie #MealPrep #Selfpublishing #SpoonieSupport #SpooniesLife

+++ Off-Topic: ME/CFS +++

Im Krankenhaus habe ich die Dokumentarfilmerin und Regisseurin Sibylle Dahrendorf kennengelernt, die seit Jahren mit ME/CFS lebt. Ihre Ausdauer und innere Stärke haben mich tief beeindruckt.

Die Dokumentation „Chronisch krank, chronisch ignoriert“ (ARTE, 2025) thematisiert eindringlich die Multisystemerkrankung ME/CFS, ihre Komorbiditäten und die strukturellen Versorgungslücken.

Bitte um Beteiligung, damit die wichtige Doku verfügbar bleibt:
https://www.openpetition.de/petition/online/verlaengerung-der-online-verfuegbarkeit-arte-doku-chronisch-krank-chronisch-ignoriert

#MECFS #LongCovid #CFSME #ChronicFatigueSyndrome #MEAwareness #CFSAwareness #Spoonie #ChronicIllness #OpenPetition #Petition #ARTE #Gesundheitssystem #ChronischKrankChronischIgnoriert

I'm on prednisone right now for a gout flare. Prednisone insomnia has arrived. Luckily it's only 3 more days. 🤷‍♀️

I also am on Albuterol inhaler for what has been diagnosed as viral bronchitis. So all the steroids. Fun times. Been awake since about 1:45 am and sleep is nowhere near. It's almost 4 am now. I imagine there will be a nap later.

#spoonie #bronchitis #gout
@spoonies

I'm on prednisone right now for a gout flare. Prednisone insomnia has arrived. Luckily it's only 3 more days. 🤷‍♀️

I also am on Albuterol inhaler for what has been diagnosed as viral bronchitis. So all the steroids. Fun times. Been awake since about 1:45 am and sleep is nowhere near. It's almost 4 am now. I imagine there will be a nap later.

#spoonie #bronchitis #gout
@spoonies

I'm on prednisone right now for a gout flare. Prednisone insomnia has arrived. Luckily it's only 3 more days. 🤷‍♀️

I also am on Albuterol inhaler for what has been diagnosed as viral bronchitis. So all the steroids. Fun times. Been awake since about 1:45 am and sleep is nowhere near. It's almost 4 am now. I imagine there will be a nap later.

#spoonie #bronchitis #gout
@spoonies