#spoonie — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #spoonie, aggregated by home.social.
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Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.
On my wishlist. https://throne.com/kswriteshere
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.
On my wishlist. https://throne.com/kswriteshere
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.
On my wishlist. https://throne.com/kswriteshere
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.
On my wishlist. https://throne.com/kswriteshere
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.
On my wishlist. https://throne.com/kswriteshere
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid -
4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid -
4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid -
4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid -
4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid -
2/
“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”
#spoonie #spoonies #spoonie #PEM #PwME #LongCovid
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2/
“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”
#spoonie #spoonies #spoonie #PEM #PwME #LongCovid
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2/
“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”
#spoonie #spoonies #spoonie #PEM #PwME #LongCovid
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2/
“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”
#spoonie #spoonies #spoonie #PEM #PwME #LongCovid
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2/
“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”
#spoonie #spoonies #spoonie #PEM #PwME #LongCovid
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I did *not* need a flare 4 days before surgery, no thank you. I hope it’s just the heat. Not that it’ll be much cooler in Porto. And the Ragweed pollen certainly isn’t helping.
I was planning to deep clean the bathroom today so it’ll be clean when we get back. It’s pretty fucking gross, ngl. But I’m in so much pain :(
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I did *not* need a flare 4 days before surgery, no thank you. I hope it’s just the heat. Not that it’ll be much cooler in Porto. And the Ragweed pollen certainly isn’t helping.
I was planning to deep clean the bathroom today so it’ll be clean when we get back. It’s pretty fucking gross, ngl. But I’m in so much pain :(
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I did *not* need a flare 4 days before surgery, no thank you. I hope it’s just the heat. Not that it’ll be much cooler in Porto. And the Ragweed pollen certainly isn’t helping.
I was planning to deep clean the bathroom today so it’ll be clean when we get back. It’s pretty fucking gross, ngl. But I’m in so much pain :(
-
I did *not* need a flare 4 days before surgery, no thank you. I hope it’s just the heat. Not that it’ll be much cooler in Porto. And the Ragweed pollen certainly isn’t helping.
I was planning to deep clean the bathroom today so it’ll be clean when we get back. It’s pretty fucking gross, ngl. But I’m in so much pain :(
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So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?
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So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?
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So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?
-
So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?
-
So, a little over a month ago, one of my co-workers just quit after her shift without any sort of notice after the other front desk person had left with notice. So now, it’s just my office manager and I covering the desk. It’s been crazy and made worse by the fact I simply can’t catch up on my spoons. I’m rapidly running out of bandwidth to even put on a happy face for customers when I’m so sore and tired. Any advice from any other #spoonie ? How do you deal with something like this?
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Ok, cute tie-in!
Thanks, #TubiThursday friends.
Please uplift my ask for #urgent move?
I appreciate you all.
https://me.dm/@kshernandez/117205123370324265
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Ok, cute tie-in!
Thanks, #TubiThursday friends.
Please uplift my ask for #urgent move?
I appreciate you all.
https://me.dm/@kshernandez/117205123370324265
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Ok, cute tie-in!
Thanks, #TubiThursday friends.
Please uplift my ask for #urgent move?
I appreciate you all.
https://me.dm/@kshernandez/117205123370324265
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Ok, cute tie-in!
Thanks, #TubiThursday friends.
Please uplift my ask for #urgent move?
I appreciate you all.
https://me.dm/@kshernandez/117205123370324265
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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RE: https://me.dm/@kshernandez/117205123370324265
If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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RE: https://me.dm/@kshernandez/117205123370324265
If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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RE: https://me.dm/@kshernandez/117205123370324265
If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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RE: https://me.dm/@kshernandez/117205123370324265
If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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RE: https://me.dm/@kshernandez/117205123370324265
If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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From Canada 🇨🇦
‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications
Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs -
From Canada 🇨🇦
‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications
Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs -
From Canada 🇨🇦
‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications
Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs -
From Canada 🇨🇦
‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications
Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs -
From Canada 🇨🇦
‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications
Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs -
I’m a customer at companies that insist in using their own ‘inbox’. So instead of sending me an email – or a letter – they use only their own website/app.
They still send me emails, though: ‘There’s a new document in your inbox!’
So, every time I have to go there, enter my credentials, and check out what they sent me. Nine out of ten times it’s just bullshit.
Do they have any idea how hard it is for me to find the energy to do that?!
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RE: https://mastodon.social/@ellespeaks/117199420020373951
$25 due in 12hrs!
for my co pay or i have to cancel the appt 🆘️⚠️Im disabled, queer + estranged from family since losing my gram September 2024. Anything helps!
V: d_fay
Pp: peach77
Kofi: https://ko-fi.com/ellespeaks#mutualaid #MutualAidSavesLives #MutualAidRequest #helpfolkslive #disabled #spoonie #chronicillness #lgbtq #crowdfunding #gofundme #directaid #queer #hunger #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @queer @disability #disabledmutualaid @povertyandinequality
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$0/$50 - co pay due 9/3 ⚠️
$50/$200 - September foodAnything helps! Im disabled, queer and have no support. Living below the poverty line. I appreciate any help at all 💕
V: d_fay
Pp: peach77#mutualaid #MutualAidSavesLives #MutualAidRequest #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq @queer
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RE: https://mastodon.social/@broodcoffee/116454754564011275
Still stalled😞
Have to raise the remaining $400 ASAP to clear my August MA goal 💸💕
This covers my food, laundry, hygiene needs & other dues I have to pay...
Please help🙇♀️@MutualAidBot
@[email protected] @[email protected] @[email protected] @mutual_aid @disability @mutualaidspace#MutualAidRequest #crowdfund #FediAid #HelpFolksLive2026 #mutualaid #FediHelp #fediverse #BIPOCMA #MutualAidSavesLives #maboost #spoonie #kofi #helpneeded #directaid #SignalBoost
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RE: https://mastodon.social/@broodcoffee/116454754564011275
Need $400 ASAP towards my survival needs this August💸💕
I don't wish to add this stalled amount to next month & make the goal even tougher for me to reach😞 Please help🙇♀️@MutualAidBot
@[email protected] @[email protected] @[email protected] @mutual_aid @disability @mutualaidspace#MutualAidRequest #crowdfund #FediAid #HelpFolksLive2026 #mutualaid #FediHelp #fediverse #BIPOCMA #MutualAidSavesLives #maboost #spoonie #kofi #helpneeded #directaid #SignalBoost
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RE: https://mastodon.social/@broodcoffee/116454754564011275
Getting anxious as the month's about to be over but my MA request is stalled😞
Need $400 ASAP towards my survival (annual healthcare & essential needs this August covered) 💸💕 Please help🙇♀️@MutualAidBot
@[email protected] @[email protected] @[email protected] @mutual_aid @disability @mutualaidspace#MutualAidRequest #crowdfund #FediAid #HelpFolksLive2026 #mutualaid #FediHelp #fediverse #BIPOCMA #MutualAidSavesLives #maboost #spoonie #kofi #helpneeded #directaid #SignalBoost
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RE: https://mastodon.social/@broodcoffee/116454754564011275
Still stalled, also havin' issues accessing other platforms at the moment 😞
Need $400 ASAP to survive August💸💕 Any amount you can spare helps... please🙇♀️
@MutualAidBot
@[email protected] @[email protected] @[email protected] @mutual_aid @disability @mutualaidspace#MutualAidRequest #crowdfund #FediAid #HelpFolksLive2026 #mutualaid #FediHelp #fediverse #BIPOCMA #MutualAidSavesLives #maboost #spoonie #kofi #helpneeded #directaid #SignalBoost
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Urgently need $400 to survive August💸💕
40 people $10 each, or any amount you can spare = $400 ASAP gets me safe. Thank you for helping🙇♀️@MutualAidBot
@[email protected] @[email protected] @[email protected] @mutual_aid @disability @mutualaidspace#MutualAidRequest #crowdfund #FediAid #HelpFolksLive2026 #mutualaid #FediHelp #fediverse #BIPOCMA #MutualAidSavesLives #maboost #spoonie #kofi #helpneeded #directaid #SignalBoost
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RE: https://mastodon.social/@broodcoffee/116454754564011275
Urgently need $400 to survive August💸💕
40 people $10 each, or any amount you can spare = $400 ASAP gets me safe. Thank you for helping🙇♀️@MutualAidBot
@[email protected] @[email protected] @[email protected] @mutual_aid @disability @mutualaidspace#MutualAidRequest #crowdfund #FediAid #HelpFolksLive2026 #mutualaid #FediHelp #fediverse #BIPOCMA #MutualAidSavesLives #maboost #spoonie #kofi #helpneeded #directaid #SignalBoost
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4/
“If this is where you are, or where someone you love is, I hope this phrase gives you a small place to stand and is a reminder that the journey has a name💛”#undiagnosed #undiagnosedillness #invisibleillness #spoonie #chronicillness
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🌩️ Flare Report: Pain
Pain isn’t always visible.
It can burn, ache, throb, stab, or feel like your entire body weighs a thousand pounds. Just because others can’t see it doesn’t mean it isn’t real.
💜 If you’re hurting today, remember: You don’t have to earn your rest. Pain is reason enough.
❓What’s ONE thing you wish healthy people understood about chronic pain?
#ChronicPain #ChronicIllness #Spoonie #InvisibleIllness #FlareReport #PainAwareness #Disability #spoonielife
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🧠☁️ Flare Report: Brain Fog
Brain fog is more than being forgetful.
It’s searching for the right words, losing your train of thought, rereading the same sentence, or walking into a room and forgetting why.
For many of us with chronic illness, it’s one of the hardest invisible symptoms to explain.
💜 Be kind to yourself on the foggy days.
What’s the funniest or most frustrating brain fog moment you’ve had?
#BrainFog #FlareReport #ChronicIllness #Spoonie #InvisibleIllness #DisabilityAwareness