#mecfsawareness — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #mecfsawareness, aggregated by home.social.
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From @dougieslifewithmecfs on IG:
Today is severe ME awareness day. If you can please show love and support to this post for all the people suffering and having suffered from severe ME.#mecfs #mecfsawareness #severemeawareness #severemeawarenessday #spoonie @mecfs
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“International #MECFS Day has been on Florence Nightingale's birthday since the early 1990s. Florence Nightingale, the founder of modern Western nursing, was bedridden for decades after contracting Crimean fever, suffering from post-infectious symptoms similar to those of ME/CFS, yet she continued to do much good from her bed.”
About Florence:
https://www.meresearch.org.uk/international-me-awareness-day-and-world-me-day-2026/(in German)
https://bsky.app/profile/did:plc:sxphshtspyjmwnjd43t5zynl/post/3mle4ydsots2qQuotes above
(Year updated):
https://www.mecfs.de/mecfs-tag-2022/ -
"The World Health Organization (WHO) classified ME/CFS as a neurological disease 57 years ago, yet patients and their families must continue to fight for recognition, care, and research—sometimes from their beds.
For something that should actually be a given:
that seriously ill people receive adequate medical and social care."German Society for #mecfs
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And "Blue Sunday: Tea party for M.E." will be on Sunday, May 17 this year:
https://www.s4me.info/threads/blue-sunday-tea-party-for-m-e-sunday-may-17-2026.50132/
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Tuesday, May 12, is International ME/CFS Awareness Day (World ME Day)
This forum thread lists some of the events planned for that day:
https://www.s4me.info/threads/world-me-day-2026-may-12th.50092/#post-690953
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Reminder: Protestaktion zum Internationalen MECFS-Tag morgen, 9. Mai in vier österreichischen Städten. Kommet!
Wien: 9. Mai, 14:00 – 16:00 Uhr, Platz der Menschenrechte
Bregenz: 9. Mai, 14:00 – 15:00 Uhr, Bregenz Hafen
St. Pölten: 12. Mai, 16:00 – 17:00 Uhr, Am Rathausplatz Nord
Graz: 17. Mai, 11:00 – 18:00 Uhr, Hauptplatz Graz
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#LIEGENDDEMO hingehen, hinlegen, weitersagen!!! #MECFSAWARENESS
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Fajnie że w nurcie popularnym pojawia się artykuł o #mecfs 🖤 przeczytajcie
https://naukawpolsce.pl/aktualnosci/news%2C112133%2Cprzeciwciala-moga-zaburzac-prace-mitochondriow-u-osob-z-z-zespolem
#covid #mecfsawareness #ebv #zmeczenie #chronicznezmeczenie
@mecfs -
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High contrast version of popular awareness image "Life shrinks with ME/CFS"#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfsAwareness
@mecfs -
An alle Läufer*innen, ob kurze oder lange Strecke: Meldet euch bei under_a_rest.me auf Insta, ⬇️ https://www.instagram.com/under_a_rest.me?igsh=N2ZqNWwxaG94NnFz
wenn ihr Awareness für die schwere Erkrankung #MEcfs unterstützen wollt.🙏🫶
Gerne Boost!
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Oder startet natürlich gerne eigene Petitionen (epetitionen.bundestag.de).
Verfasst informative und evidenzbasierte Posts :)
Und schon sind wir gemeinsam laut :3
#MECFS #MECFSawareness #LongCovid #LongCovidAwareness #PostCovid #PostCovidAwareness #LongCovidKids #PostCovidKids #MECFSKids
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In dem Sinne:
Bleibt laut für die, die es nicht mehr können.
Gibt Jenen eure Stimmen, die keine mehr haben oder sie nicht mehr 'erheben' können. Seit die Stimme für diejenigen, die aus unserer Gesellschaft verschwinden.Eure Jeanine
#mecfs #mecfsawareness #maskup #ffp2mask #ffp2 -
Neuer Podcast zu #MEcfs!
Bitte hören, bitte teilen!"Über 20 Menschen mit schwerem ME/CFS haben uns ihre Stimmen geschickt. Was sie erzählen, lässt uns nicht los." Karina Sturm
Neue Folge #DieNeueNorm – mit Alina Snowhite.
https://dieneuenorm.de/#MEcfs #invisibleillness #mecfsawareness
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But behind every closed door, there is still a person. Still hoping to be seen. Still fighting to be heard.
We made this video because we refuse to stay silent. This is what M.E really looks like. It’s painful. It’s lonely. It’s real.
If you’ve never heard of M.E, this is your chance to understand. And if you have - please share this video so more people can see it.
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Today is the International ME/CFS Awareness Day. I wrote a bit about my life with ME/CFS and ME/CFS in general.
https://blogs.gnome.org/sophieh/2025/05/12/international-me-cfs-awareness-day/
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!!!Update🪧ME/CFS #LiegendDemo Awareness Days 2025! Übersicht der teilnehmenden Städten, die jeweils am 10.- 12.05. eine LiegendDemo organisieren. 🪧💪
Wir freuen uns, wenn ihr dabei seid. 💕 #LiegendDemo #MECFS #LongCovid #Forschung @fatigatio.mecfs #PostCovid #PostVac #Belastungsintoleranz #demonstration #epsteinbarrvirus #influenza #mecfsawareness #Infektionsschutz #dieMaskebleibtauf #COVIDisAirborne #CovidIsntOver #MillionMissing #CureMECFS #FightMECFS" -
💙 May is ME/CFS Awareness Month! Support OMF's #MayMomentum campaign to drive urgent research for #MECFS and #LongCOVID
👉🏼 https://www.omf.ngo/maymomentum/
This May, let’s stand together and keep the momentum strong—because progress depends on all of us.
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People can still access this online ME/CFS art exhibition at the moment
https://mecfssa.org.au/event/forever-in-lockdown
#MECFS #mecfsawareness #MillionsMissing #chronicillness #spoonie #invisibledisability #invisibleillness @mecfs