#mecfs — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #mecfs, aggregated by home.social.
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Spoons zählen und im absoluten Minus landen. Ich hoffe mein Körper hält diese Woche gut durch, schafft alle Termine und schreit nicht mal wieder mittendrin "Surpriiise! 😈".
Dieses "Ich will tausend Dinge machen. Aber ich habe null Energie." frisst einen zusätzlich auf. -
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Hallo Fedifreunde,
bitte teilt diesen Beitrag in der Hoffnung, dass er möglichst viele aktiv, aber auch passiv Betroffene Menschen mit ME/CFS erreicht. Ich suche primär in Baden-Württemberg Anlaufstellen für Betroffene. Wo werden sie ernst genommen und nicht als depressiv/psychisch abgetan (nicht abwertend gemeint!). Bin über jeden Hinweis sehr dankbar!
:BoostOK:
#mecfs #Postvac -
About the What Is Myalgic Encephalomyelitis Like? (WIMEL) writers:
The WIMEL writers are an international group of people living with ME and related illnesses who come together to write. Our goals are to advocate and spread accurate, truthful information and awareness about ME, especially to healthcare professionals, students, and policy-makers who may have limited knowledge about the illness.
Website: https://wimel2.wordpress.com/
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“Hope to outlast the storm”: How severe ME impacts two brothers
https://thesicktimes.org/2026/08/21/hope-to-outlast-the-storm-how-severe-me-impacts-two-brothers/
"ME is like being in a raging storm while caught in the open ocean. You can’t think, you can’t breathe, and you are constantly thrown about by circumstances out of your control. You can’t even move in any direction because you have no control over your life. All you can do is hope to outlast the storm without going under."
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@aceofcosmicspace Same. It's so lovely! 😊
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of August 17 - 23.
https://s4me.info/threads/news-in-brief-august-2026.51739/#post-715428
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ME/CFS Australia 2026 Scholarship/Grant recipients
Tara Sallows: LaTrobe Uni (Dr Sarah Annesley)
Wenjie Shan: Uni of Melbourne (Dr Chris Armstrong)
Urooj Ishrat: Griffith Uni (Professor Sonya Marshall-Gradisnik, Dr Natalie Eaton-Fitch, Dr Kiran Thapaliya) -
PAIS conference Amsterdam 26 - 29 August.
https://islc-pais.org/program/
Speakers include Danny Altmann, Eva Untermayr, Carmen Scheibenbogen, Rob Wüst and Mark Faghy.
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Congress’s 2027 budget could include new funding for Long COVID and ME - @thesicktimes
Advocates are calling on senators and representatives to include the ME/CFS Research Roadmap and new #LongCOVID funding in the fiscal year 2027 budget.
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Impact of PEM in ME/CFS#PEM #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #longcovid
@mecfs -
ME Research UK
Research from Ass. Prof Rob Wüst – who is working on ME Research UK-funded project – highlighted in webinar as some of the most exciting research relating to the pathophysiology of PEM right now.
Read more https://bit.ly/4wRkCxw
Watch YouTube webinar https://bit.ly/45UOKw8 -
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Last week, Simmaron Research Centre highlighted that “one of the biggest challenges in ME/CFS research has been patient heterogeneity”. Therefore, ME Research UK has written about why this matters and how it can blur research findings.
Read more: https://bit.ly/4x11hdC
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Using advanced MRI techniques, ME Research UK-funded researchers at Griffith University have detected subtle alterations in brain tissue microstructure in ME/CFS & long COVID, supporting the idea that the illnesses share underlying neurological features https://bit.ly/4i8mYn9
