#meaction — Public Fediverse posts

From #MEAction for Severe ME Day (Aug. 8)

"Honoring Severe ME Day & Sharing our Severe ME Artists Project 2026"

https://www.meaction.net/post/honoring-severe-me-day-sharing-our-severe-me-artists-project-2026

"#MEAction is proud to share the Severe ME Artists Project 2026!

... over 100 of you submitted photos, drawings, writing, and videos of your work! We debuted this project in 2021 and five years later we continue to be humbled and honored to bring you the work of the Severe ME community"

1/3

@mecfs

#MEcfs #SevereME #SevereMEcfs #PwME #Art #Disability

From #MEAction for Severe ME Day (Aug. 8)

"Honoring Severe ME Day & Sharing our Severe ME Artists Project 2026"

https://www.meaction.net/post/honoring-severe-me-day-sharing-our-severe-me-artists-project-2026

"#MEAction is proud to share the Severe ME Artists Project 2026!

... over 100 of you submitted photos, drawings, writing, and videos of your work! We debuted this project in 2021 and five years later we continue to be humbled and honored to bring you the work of the Severe ME community"

1/3

@mecfs

#MEcfs #SevereME #SevereMEcfs #PwME #Art #Disability

From #MEAction for Severe ME Day (Aug. 8)

"Honoring Severe ME Day & Sharing our Severe ME Artists Project 2026"

https://www.meaction.net/post/honoring-severe-me-day-sharing-our-severe-me-artists-project-2026

"#MEAction is proud to share the Severe ME Artists Project 2026!

... over 100 of you submitted photos, drawings, writing, and videos of your work! We debuted this project in 2021 and five years later we continue to be humbled and honored to bring you the work of the Severe ME community"

1/3

@mecfs

#MEcfs #SevereME #SevereMEcfs #PwME #Art #Disability

From #MEAction for Severe ME Day (Aug. 8)

"Honoring Severe ME Day & Sharing our Severe ME Artists Project 2026"

https://www.meaction.net/post/honoring-severe-me-day-sharing-our-severe-me-artists-project-2026

"#MEAction is proud to share the Severe ME Artists Project 2026!

... over 100 of you submitted photos, drawings, writing, and videos of your work! We debuted this project in 2021 and five years later we continue to be humbled and honored to bring you the work of the Severe ME community"

1/3

@mecfs

#MEcfs #SevereME #SevereMEcfs #PwME #Art #Disability

From #MEAction for Severe ME Day (Aug. 8)

"Honoring Severe ME Day & Sharing our Severe ME Artists Project 2026"

https://www.meaction.net/post/honoring-severe-me-day-sharing-our-severe-me-artists-project-2026

"#MEAction is proud to share the Severe ME Artists Project 2026!

... over 100 of you submitted photos, drawings, writing, and videos of your work! We debuted this project in 2021 and five years later we continue to be humbled and honored to bring you the work of the Severe ME community"

1/3

@mecfs

#MEcfs #SevereME #SevereMEcfs #PwME #Art #Disability

#meltICE #longCOVID #MEAction

https://thesicktimes.org/2026/07/07/how-to-protect-your-community-from-ice-when-you-have-long-covid/

#meltICE #longCOVID #MEAction

https://thesicktimes.org/2026/07/07/how-to-protect-your-community-from-ice-when-you-have-long-covid/

#meltICE #longCOVID #MEAction

https://thesicktimes.org/2026/07/07/how-to-protect-your-community-from-ice-when-you-have-long-covid/

#meltICE #longCOVID #MEAction

https://thesicktimes.org/2026/07/07/how-to-protect-your-community-from-ice-when-you-have-long-covid/

#meltICE #longCOVID #MEAction

https://thesicktimes.org/2026/07/07/how-to-protect-your-community-from-ice-when-you-have-long-covid/

@vicfroh And don't forget about the new Medicaid rules which require folks to work 80 hours a month, unless they can prove they are “medically frail."

Many disabled folks who are unable to work will have difficulty proving it.

25 states are suing:

https://www.opb.org/article/2026/07/01/oregon-lawsuit-trump-administration-medicaid-work-requirements/

See also #MEAction's "Frail and Furious" campaign:

https://www.meaction.net/frail-and-furious-usa

#USPol #Disability #Medicaid #Resist

@vicfroh And don't forget about the new Medicaid rules which require folks to work 80 hours a month, unless they can prove they are “medically frail."

Many disabled folks who are unable to work will have difficulty proving it.

25 states are suing:

https://www.opb.org/article/2026/07/01/oregon-lawsuit-trump-administration-medicaid-work-requirements/

See also #MEAction's "Frail and Furious" campaign:

https://www.meaction.net/frail-and-furious-usa

#USPol #Disability #Medicaid #Resist

@vicfroh And don't forget about the new Medicaid rules which require folks to work 80 hours a month, unless they can prove they are “medically frail."

Many disabled folks who are unable to work will have difficulty proving it.

25 states are suing:

https://www.opb.org/article/2026/07/01/oregon-lawsuit-trump-administration-medicaid-work-requirements/

See also #MEAction's "Frail and Furious" campaign:

https://www.meaction.net/frail-and-furious-usa

#USPol #Disability #Medicaid #Resist

@vicfroh And don't forget about the new Medicaid rules which require folks to work 80 hours a month, unless they can prove they are “medically frail."

Many disabled folks who are unable to work will have difficulty proving it.

25 states are suing:

https://www.opb.org/article/2026/07/01/oregon-lawsuit-trump-administration-medicaid-work-requirements/

See also #MEAction's "Frail and Furious" campaign:

https://www.meaction.net/frail-and-furious-usa

#USPol #Disability #Medicaid #Resist

@vicfroh And don't forget about the new Medicaid rules which require folks to work 80 hours a month, unless they can prove they are “medically frail."

Many disabled folks who are unable to work will have difficulty proving it.

25 states are suing:

https://www.opb.org/article/2026/07/01/oregon-lawsuit-trump-administration-medicaid-work-requirements/

See also #MEAction's "Frail and Furious" campaign:

https://www.meaction.net/frail-and-furious-usa

#USPol #Disability #Medicaid #Resist

#MEAction
Six Months In: Here Is What We Have Built Together

Screenshot from latest Science for ME weekly update

https://www.meaction.net/post/six-months-in-here-is-what-we-have-built-together

#MEcfs #PwME @mecfs

#MEAction
Six Months In: Here Is What We Have Built Together

Screenshot from latest Science for ME weekly update

https://www.meaction.net/post/six-months-in-here-is-what-we-have-built-together

#MEcfs #PwME @mecfs

#MEAction
Six Months In: Here Is What We Have Built Together

Screenshot from latest Science for ME weekly update

https://www.meaction.net/post/six-months-in-here-is-what-we-have-built-together

#MEcfs #PwME @mecfs

#MEAction
Six Months In: Here Is What We Have Built Together

Screenshot from latest Science for ME weekly update

https://www.meaction.net/post/six-months-in-here-is-what-we-have-built-together

#MEcfs #PwME @mecfs

#MEAction
Six Months In: Here Is What We Have Built Together

Screenshot from latest Science for ME weekly update

https://www.meaction.net/post/six-months-in-here-is-what-we-have-built-together

#MEcfs #PwME @mecfs

#MEAction is hosting an online writing workshop this week for Disability Pride month.

Thursday, July 9, 2 pm EDT

Details:

https://www.meaction.net/event-details/disability-pride-workshop

Registration:

https://us06web.zoom.us/meeting/register/IAePBkNyQ7CTXibpJG8VVQ#/registration

#Writing #Disability #DisabilityPride #MEcfs #LongCovid #POTS

#MEAction is hosting an online writing workshop this week for Disability Pride month.

Thursday, July 9, 2 pm EDT

Details:

https://www.meaction.net/event-details/disability-pride-workshop

Registration:

https://us06web.zoom.us/meeting/register/IAePBkNyQ7CTXibpJG8VVQ#/registration

#Writing #Disability #DisabilityPride #MEcfs #LongCovid #POTS

#MEAction is hosting an online writing workshop this week for Disability Pride month.

Thursday, July 9, 2 pm EDT

Details:

https://www.meaction.net/event-details/disability-pride-workshop

Registration:

https://us06web.zoom.us/meeting/register/IAePBkNyQ7CTXibpJG8VVQ#/registration

#Writing #Disability #DisabilityPride #MEcfs #LongCovid #POTS

#MEAction is hosting an online writing workshop this week for Disability Pride month.

Thursday, July 9, 2 pm EDT

Details:

https://www.meaction.net/event-details/disability-pride-workshop

Registration:

https://us06web.zoom.us/meeting/register/IAePBkNyQ7CTXibpJG8VVQ#/registration

#Writing #Disability #DisabilityPride #MEcfs #LongCovid #POTS

#MEAction is hosting an online writing workshop this week for Disability Pride month.

Thursday, July 9, 2 pm EDT

Details:

https://www.meaction.net/event-details/disability-pride-workshop

Registration:

https://us06web.zoom.us/meeting/register/IAePBkNyQ7CTXibpJG8VVQ#/registration

#Writing #Disability #DisabilityPride #MEcfs #LongCovid #POTS

#MEAction and Mayo Clinic: Researchers Launch Initiative to Transform Emergency Department Care for People with ME/CFS and Long COVID

https://www.meaction.net/post/meaction-and-mayo-clinic-researchers-launch-initiative-to-transform-emergency-department-care-for-p

Screenshot from latest Science for ME weekly update

#MEcfs #LongCovid
@mecfs @longcovid

#MEAction and Mayo Clinic: Researchers Launch Initiative to Transform Emergency Department Care for People with ME/CFS and Long COVID

https://www.meaction.net/post/meaction-and-mayo-clinic-researchers-launch-initiative-to-transform-emergency-department-care-for-p

Screenshot from latest Science for ME weekly update

#MEcfs #LongCovid
@mecfs @longcovid

#MEAction and Mayo Clinic: Researchers Launch Initiative to Transform Emergency Department Care for People with ME/CFS and Long COVID

https://www.meaction.net/post/meaction-and-mayo-clinic-researchers-launch-initiative-to-transform-emergency-department-care-for-p

Screenshot from latest Science for ME weekly update

#MEcfs #LongCovid
@mecfs @longcovid

#MEAction and Mayo Clinic: Researchers Launch Initiative to Transform Emergency Department Care for People with ME/CFS and Long COVID

https://www.meaction.net/post/meaction-and-mayo-clinic-researchers-launch-initiative-to-transform-emergency-department-care-for-p

Screenshot from latest Science for ME weekly update

#MEcfs #LongCovid
@mecfs @longcovid

#MEAction and Mayo Clinic: Researchers Launch Initiative to Transform Emergency Department Care for People with ME/CFS and Long COVID

https://www.meaction.net/post/meaction-and-mayo-clinic-researchers-launch-initiative-to-transform-emergency-department-care-for-p

Screenshot from latest Science for ME weekly update

#MEcfs #LongCovid
@mecfs @longcovid

From Jaime Seltzer, Scientific Director at #MEAction

"Great news! We were just awarded a seed grant for our Emergency Department Project from the General Internal Medicine CME Education Committee at Mayo Clinic!

We're that much closer to funding the entire project, thanks to hard work from our team and all of your support!"

You can read more about this project at the donation link:

https://millionsmissing.funraise.org/fundraiser/meactionemergencydepartmentproject

@mecfs

#MEcfs #PwME #Healthcare #EmergencyRoom

From Jaime Seltzer, Scientific Director at #MEAction

"Great news! We were just awarded a seed grant for our Emergency Department Project from the General Internal Medicine CME Education Committee at Mayo Clinic!

We're that much closer to funding the entire project, thanks to hard work from our team and all of your support!"

You can read more about this project at the donation link:

https://millionsmissing.funraise.org/fundraiser/meactionemergencydepartmentproject

@mecfs

#MEcfs #PwME #Healthcare #EmergencyRoom

From Jaime Seltzer, Scientific Director at #MEAction

"Great news! We were just awarded a seed grant for our Emergency Department Project from the General Internal Medicine CME Education Committee at Mayo Clinic!

We're that much closer to funding the entire project, thanks to hard work from our team and all of your support!"

You can read more about this project at the donation link:

https://millionsmissing.funraise.org/fundraiser/meactionemergencydepartmentproject

@mecfs

#MEcfs #PwME #Healthcare #EmergencyRoom

From Jaime Seltzer, Scientific Director at #MEAction

"Great news! We were just awarded a seed grant for our Emergency Department Project from the General Internal Medicine CME Education Committee at Mayo Clinic!

We're that much closer to funding the entire project, thanks to hard work from our team and all of your support!"

You can read more about this project at the donation link:

https://millionsmissing.funraise.org/fundraiser/meactionemergencydepartmentproject

@mecfs

#MEcfs #PwME #Healthcare #EmergencyRoom

From Jaime Seltzer, Scientific Director at #MEAction

"Great news! We were just awarded a seed grant for our Emergency Department Project from the General Internal Medicine CME Education Committee at Mayo Clinic!

We're that much closer to funding the entire project, thanks to hard work from our team and all of your support!"

You can read more about this project at the donation link:

https://millionsmissing.funraise.org/fundraiser/meactionemergencydepartmentproject

@mecfs

#MEcfs #PwME #Healthcare #EmergencyRoom

"What Juneteenth reminds us for ME and Long COVID communities"

https://www.meaction.net/post/what-juneteenth-reminds-us-for-me-and-long-covid-communities

"Black Americans are also significantly more likely to develop Long COVID than white Americans.

Yet they are less likely to receive a formal diagnosis or appropriate follow-up care. The same medical disbelief and diagnostic delays that have plagued the ME/CFS community for decades fall harder on patients of color, compounding an already inequitable system."

#MEcfs #LongCovid #Disability #Racism #MEAction

"What Juneteenth reminds us for ME and Long COVID communities"

https://www.meaction.net/post/what-juneteenth-reminds-us-for-me-and-long-covid-communities

"Black Americans are also significantly more likely to develop Long COVID than white Americans.

Yet they are less likely to receive a formal diagnosis or appropriate follow-up care. The same medical disbelief and diagnostic delays that have plagued the ME/CFS community for decades fall harder on patients of color, compounding an already inequitable system."

#MEcfs #LongCovid #Disability #Racism #MEAction

"What Juneteenth reminds us for ME and Long COVID communities"

https://www.meaction.net/post/what-juneteenth-reminds-us-for-me-and-long-covid-communities

"Black Americans are also significantly more likely to develop Long COVID than white Americans.

Yet they are less likely to receive a formal diagnosis or appropriate follow-up care. The same medical disbelief and diagnostic delays that have plagued the ME/CFS community for decades fall harder on patients of color, compounding an already inequitable system."

#MEcfs #LongCovid #Disability #Racism #MEAction

"What Juneteenth reminds us for ME and Long COVID communities"

https://www.meaction.net/post/what-juneteenth-reminds-us-for-me-and-long-covid-communities

"Black Americans are also significantly more likely to develop Long COVID than white Americans.

Yet they are less likely to receive a formal diagnosis or appropriate follow-up care. The same medical disbelief and diagnostic delays that have plagued the ME/CFS community for decades fall harder on patients of color, compounding an already inequitable system."

#MEcfs #LongCovid #Disability #Racism #MEAction

"What Juneteenth reminds us for ME and Long COVID communities"

https://www.meaction.net/post/what-juneteenth-reminds-us-for-me-and-long-covid-communities

"Black Americans are also significantly more likely to develop Long COVID than white Americans.

Yet they are less likely to receive a formal diagnosis or appropriate follow-up care. The same medical disbelief and diagnostic delays that have plagued the ME/CFS community for decades fall harder on patients of color, compounding an already inequitable system."

#MEcfs #LongCovid #Disability #Racism #MEAction

From #MEAction :

"Our Severe ME Artists Project 2026 is coming in recognition of Severe ME day! Full details:

https://www.meaction.net/post/severe-me-artists-project-2026-call-for-entries

Please note: Many people with Severe ME can no longer practice art. Others have been able to find creative ways to continue. We hold space for those grieving."

@mecfs

#MEcfs #SevereME #PwME #Artist #Art

From #MEAction :

"Our Severe ME Artists Project 2026 is coming in recognition of Severe ME day! Full details:

https://www.meaction.net/post/severe-me-artists-project-2026-call-for-entries

Please note: Many people with Severe ME can no longer practice art. Others have been able to find creative ways to continue. We hold space for those grieving."

@mecfs

#MEcfs #SevereME #PwME #Artist #Art

From #MEAction :

"Our Severe ME Artists Project 2026 is coming in recognition of Severe ME day! Full details:

https://www.meaction.net/post/severe-me-artists-project-2026-call-for-entries

Please note: Many people with Severe ME can no longer practice art. Others have been able to find creative ways to continue. We hold space for those grieving."

@mecfs

#MEcfs #SevereME #PwME #Artist #Art

From #MEAction :

"Our Severe ME Artists Project 2026 is coming in recognition of Severe ME day! Full details:

https://www.meaction.net/post/severe-me-artists-project-2026-call-for-entries

Please note: Many people with Severe ME can no longer practice art. Others have been able to find creative ways to continue. We hold space for those grieving."

@mecfs

#MEcfs #SevereME #PwME #Artist #Art

From #MEAction :

"Our Severe ME Artists Project 2026 is coming in recognition of Severe ME day! Full details:

https://www.meaction.net/post/severe-me-artists-project-2026-call-for-entries

Please note: Many people with Severe ME can no longer practice art. Others have been able to find creative ways to continue. We hold space for those grieving."

@mecfs

#MEcfs #SevereME #PwME #Artist #Art

The Sick Times: “How is Minnesota Addressing Long COVID?” ‘As many governments shutter and defund their Long COVID programs, Minnesota is ramping up’ Betsy Ladyzhets speaks with Kate Murray from MDH and Terri Wilder of #MEAction Minnesota open.spotify.com/episode/19sM...

How is Minnesota addressing Lo...

The Sick Times: “How is Minnesota Addressing Long COVID?” ‘As many governments shutter and defund their Long COVID programs, Minnesota is ramping up’ Betsy Ladyzhets speaks with Kate Murray from MDH and Terri Wilder of #MEAction Minnesota open.spotify.com/episode/19sM...

How is Minnesota addressing Lo...

The Sick Times: “How is Minnesota Addressing Long COVID?”

‘As many governments shutter and defund their Long COVID programs, Minnesota is ramping up’

Betsy Ladyzhets speaks with Kate Murray from MDH and Terri Wilder of #MEAction Minnesota

open.spotify.com/episode/19sM...

How is Minnesota addressing Lo...

The Sick Times: “How is Minnesota Addressing Long COVID?”

‘As many governments shutter and defund their Long COVID programs, Minnesota is ramping up’

Betsy Ladyzhets speaks with Kate Murray from MDH and Terri Wilder of #MEAction Minnesota

open.spotify.com/episode/19sM...

How is Minnesota addressing Lo...

The Sick Times: “How is Minnesota Addressing Long COVID?”

‘As many governments shutter and defund their Long COVID programs, Minnesota is ramping up’

Betsy Ladyzhets speaks with Kate Murray from MDH and Terri Wilder of #MEAction Minnesota

open.spotify.com/episode/19sM...

How is Minnesota addressing Lo...

(USA)
#MEAction "We’re furious: Last-minute changes to defining medical frailty"

https://www.meaction.net/post/we-re-furious-last-minute-changes-to-defining-medical-frailty

Screenshot from AMMES June 2026 newsletter

#MEcfs #PwME #ME #MyalgicE
@mecfs

(USA)
#MEAction "We’re furious: Last-minute changes to defining medical frailty"

https://www.meaction.net/post/we-re-furious-last-minute-changes-to-defining-medical-frailty

Screenshot from AMMES June 2026 newsletter

#MEcfs #PwME #ME #MyalgicE
@mecfs

(USA)
#MEAction "We’re furious: Last-minute changes to defining medical frailty"

https://www.meaction.net/post/we-re-furious-last-minute-changes-to-defining-medical-frailty

Screenshot from AMMES June 2026 newsletter

#MEcfs #PwME #ME #MyalgicE
@mecfs

(USA)
#MEAction "We’re furious: Last-minute changes to defining medical frailty"

https://www.meaction.net/post/we-re-furious-last-minute-changes-to-defining-medical-frailty

Screenshot from AMMES June 2026 newsletter

#MEcfs #PwME #ME #MyalgicE
@mecfs

(USA)
#MEAction "We’re furious: Last-minute changes to defining medical frailty"

https://www.meaction.net/post/we-re-furious-last-minute-changes-to-defining-medical-frailty

Screenshot from AMMES June 2026 newsletter

#MEcfs #PwME #ME #MyalgicE
@mecfs

Good video (about 5 1/2 minutes) from the #MEAction Millions Missing event on May 12:

https://www.youtube.com/watch?v=UE3U8O5rWcg

I got a chuckle from this line:

"And to everyone who has had to explain this illness for the 700th time this week, I see you."

Anyone else out there who can relate to having to explain this illness over and over again?

@mecfs

#MEcfs #LongCovid #PwME #Caregivers #ChronicIllness #MillionsMissing

Good video (about 5 1/2 minutes) from the #MEAction Millions Missing event on May 12:

https://www.youtube.com/watch?v=UE3U8O5rWcg

I got a chuckle from this line:

"And to everyone who has had to explain this illness for the 700th time this week, I see you."

Anyone else out there who can relate to having to explain this illness over and over again?

@mecfs

#MEcfs #LongCovid #PwME #Caregivers #ChronicIllness #MillionsMissing

Good video (about 5 1/2 minutes) from the #MEAction Millions Missing event on May 12:

https://www.youtube.com/watch?v=UE3U8O5rWcg

I got a chuckle from this line:

"And to everyone who has had to explain this illness for the 700th time this week, I see you."

Anyone else out there who can relate to having to explain this illness over and over again?

@mecfs

#MEcfs #LongCovid #PwME #Caregivers #ChronicIllness #MillionsMissing

Good video (about 5 1/2 minutes) from the #MEAction Millions Missing event on May 12:

https://www.youtube.com/watch?v=UE3U8O5rWcg

I got a chuckle from this line:

"And to everyone who has had to explain this illness for the 700th time this week, I see you."

Anyone else out there who can relate to having to explain this illness over and over again?

@mecfs

#MEcfs #LongCovid #PwME #Caregivers #ChronicIllness #MillionsMissing

Good video (about 5 1/2 minutes) from the #MEAction Millions Missing event on May 12:

https://www.youtube.com/watch?v=UE3U8O5rWcg

I got a chuckle from this line:

"And to everyone who has had to explain this illness for the 700th time this week, I see you."

Anyone else out there who can relate to having to explain this illness over and over again?

@mecfs

#MEcfs #LongCovid #PwME #Caregivers #ChronicIllness #MillionsMissing