#longcovid — Public Fediverse posts

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Yesterday, Amsterdam University created the web page 'Muscle abnormalities in post-COVID and ME/CFS cannot be explained by prolonged inactivity' in English

https://www.amsterdamumc.org/en/research/news/muscle-abnormalities-in-post-covid-and-mecfs-cannot-be-explained-by-prolonged-inactivity

#MEcfs #LongCovid #PwME #CFS

@mecfs @longcovid

It may be 21C here but the humidity and atmospheric pressure has me in a pain flare.

I will be doing very little today.

#LongCovid #disability #chronicpain

@ZackPolanski We all need to be pushing for more public awareness in every country and for avoidance & precaution tips as well. #CovidIsNotOver #LongCovid #Covid

RE: https://mastodon.ie/@IrishMECFSAssociation/117089656553480886

One week to go.

#mecfs @mecfs #longcovid @longcovid

The excessive heat was a challenge as well. But it's amazing how quickly my lungs and energy went from decent to terrible as soon as some colder and more humid air came back. Dry, warm air is much better for me. Where i live this means i should move to an other country, south from here. As if that was even an option.

#LongCOVID

THREAT MODEL: COVID 🦠
for August 13th, 2026
by independent journalist @violetblue

- Trump signs EO overriding #CDC authority over childhood vaccine schedule

- #Cyclosporiasis case reporting a mess; blueberries, raspberries, & snow peas now also affected

- #Ebola outbreak started in February per genetic sequencing; current stats: 4300 confirmed cases, >1900 deaths

- New #H5N1 Watch map for #Oceania #SoutheastAsia region

- Research review: Covid may weaken bones long after recovery

- Persistent eye issues following Covid documented 3 mos to 3 yrs post-infection

- #LongCovid study finds "extensive immune abnormalities in intestinal tissue"

- How US clean-air clubs are helping protect communities from wildfire smoke

...and much more.

✨THREAT MODEL is free to read -- please help keep it accessible to all by becoming a patron, even $1 a month makes a difference!✨

https://www.patreon.com/violetblue/posts/pandemic-roundup-166552845

#ThreatModel #ThreatModelCovid #ThreatModelNewsletters #VioletBlue #COVIDnews #PublicHealth #CovidIsNotOver

· Researchers found immune abnormalities in the intestines of people with #LongCOVID
[https://www.biorxiv.org/content/10.64898/2026.08.07.743616v1]

· New government report from the U.K. found around 1 in 4 healthcare workers infected with SARS-CoV-2 early in the pandemic have had Long COVID
[https://nhsrho.org/wp-content/uploads/2026/07/ReachOut-MainReport-Final.pdf]

· Universal healthcare in the U.S. could save the lives of over 114,000 Americans a year
[https://www.medrxiv.org/content/10.64898/2026.07.22.26358689v1]

https://thesicktimes.org/2026/08/18/research-updates-august-18/

#ResearchUpdates #TheSickTimes

@stroz I hate the catch-22 of trying to get doctors to listen in appointments.

If you bring a binder of data, that's an indicator you're "obsessing over your illness" instead of trying to figure out why your body and brain feel wrong now (and they don't have time to read it anyways).

If you summarize regularly collected data, none of it is 'admissable as evidence' that there's anything wrong with you.

If you bring a list of your top three concerns, none of your other contributing factors or symptoms could possibly be relevant or a consideration. If you choose the wrong three, the doctor will get hung up on a red herring and will miss what you need.

If you bring an advocate or helper, they won't listen to you.

If the screening tests for other things come back negative, it means nothing's wrong, not that you have something wrong the tests aren't screening for.

I still gather the data - but I do it because it helps me manage my #LongCovid day-to-day and track long term capacity changes and trends, not because I ever expect a doctor to look at it.

VIPER aims to fast track Long COVID biomarkers. Here's how it works - by David Tuller

https://thesicktimes.org/2026/08/11/viper-aims-to-fast-track-long-covid-biomarkers-heres-how-it-works/

Screenshot from latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

@pwaring The other thing that's come out recently is how #LongCovid damages dopamine receptors in the brain, effectively mimicking the biological symptoms of #ADHD. So the Government policy of pandemic denial may be a contributing factor to rising demand for ADHD diagnosis, six years in.

*/Old Enemy/*

You, who I thought defeated
Slid through my defenses
And instilled that old fear
Of a life lived in pure suffering

But, old enemy
You return at a disadvantage
For though I still fear you
I fought you and won

Through years of hardship
Loss of my confidence
Terror and sleepless nights
I bested you, with help

So why do you return?
Was my reprieve only temporary
Or, my foolish foe
Do you fear what I am becoming

What I might accomplish
If, free of your binding
I could finally ascend?

#poetry #writing #writersofmastodon #covid19 #LongCOVID #ChronicIllness

https://princessnettles.com/index.php/2026/08/18/old-enemy/

ME Research UK:

In the first deep-dive of our weekly Symptom Saturday series, we unpack the reality of PEM – including its multi-dimensional nature, lived experiences, and key insights from research such as associated physiological changes.

Read more: https://tinyurl.com/PEMsymptomsat

#MEcfs #PEM #PwME @mecfs @longcovid #LongCovid

#Freundschaft bei chronischer Erkrankung ist für beide Seiten mit Herausforderungen verbunden.

Für alle, die mit #MECFS , #postCovid , #longCovid , #PostVac und dem #PAIVS Spektrum zu tun haben, gibt es hier ein paar Anregungen von #EmptyStands 💙

https://www.instagram.com/p/DXFCCnfiNVT/?igsh=MWJraG9xbGhzODExcA==

Check out the latest News in Brief (August 10-16) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.

https://s4me.info/threads/news-in-brief-august-2026.51739/#post-713907

Public forum posts can be read by anyone, but if you'd like to contribute to the discussion then you'll need to become a forum member (it's free) 😁

https://s4me.info/threads/welcome.38181/

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC #S4ME

FB changes grumble:

I can now only include two links per month (!) to posts.

Also links I post in the comments won’t be clickable either.

To get clickable links, I would have to pay €169 per month!!

#MEcfs #LongCovid @mecfs @longcovid

1/

Ik ben voorgeselecteerd voor een medicijnonderzoek!!!!! #LongCovid

Het gaat om het off-label gebruik van een al toegelaten antidepressivum. Die werkt o.a. op het immuunsysteem in de hersenen en de hoop is dat dat klachten kan verminderen.

Heel eerlijk: een deel van me hoopt dat ik niet door de screening kom, want het wordt wel intens. Het zal drie maanden of langer betekenen dat ik een stuk minder andere dingen kan doen en mogelijk een tijdje best beroerd zal zijn.

Het gaat om symptoombestrijding, niet genezing, maar mijn theorie is dat alle energie die niet naar (omgaan met) symptomen gaat naar herstel zou kunnen gaan.

YAY WETENSCHAP

https://projecten.zonmw.nl/nl/project/selectieve-serotonine-heropname-remmers-bij-post-covid-esprit

I am usually reasonably content/relaxed. But tonight I am remembering the joy I used to feel and it's sad to think about. This horrible illness makes you feel physically worse when you feel more joy/excitement. It reminds me of reading something in Little House about how adults were supposed to not be overly emotional and I thought "how boring" but that's what avoiding pem asks of you.

#pem #longcovid

Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of August 10 - 16.

https://s4me.info/threads/news-in-brief-august-2026.51739/#post-713907

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC