#longcovid — Public Fediverse posts

From the US 🇺🇸

EBV Reprograms B Cells in an Autoimmune-Like Fashion in Patients with COVID-19

https://www.biorxiv.org/content/10.64898/2026.08.17.745245v1

https://s4me.info/threads/ebv-reprograms-b-cells-in-an-autoimmune-like-fashion-in-patients-with-covid-19-2026-chen-et-al.51881/

Screenshot from latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
#Autoimmune

(Australia)
7 News Perth: AusME and ECU Collaboration

https://emerge.org.au/news/7-news-perth-ausme-and-ecu-collaboration/

Screenshot from the August 2026 AMMES newsletter

#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

Kelvin (23) overweegt euthanasie, net als steeds meer postcovid patiënten: 'Er is niks meer over van wie ik ooit was'

Maar volgens vrijwel iedereen op Twitter ligt het niet aan #Covid, maar aan de vaccinaties.

Vermoeiend en knettergek.

Er lijden nu zo'n 100.000 mensen in NL aan LongCovid, waarvan zo'n 10% aan de ernstigste vorm, zoals Kelvin.

Wat doet onze regering? Niks.
Alleen 70+ ers en kwetsbaren komen nog in aanmerking voor vaccinatie.

https://eenvandaag.avrotros.nl/artikelen/kelvin-23-overweegt-euthanasie-net-als-steeds-meer-postcovidpatienten-er-is-niks-meer-over-van-wie-ik-ooit-was-164626

#LongCovid #Covid

8/
Impact of post-exertional malaise (PEM) in ME/CFS

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #longcovid
@mecfs

https://www.fernarzt.com/

Versorgung bei #LongCovid
#Barmer
#AOK
#TK

A cardiometabolic perspective on post-exertional malaise in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Long COVID

https://link.springer.com/article/10.1186/s12933-026-03316-8

Screenshot from latest Science for ME weekly update

#MEcfs #LongCovid
@mecfs @longcovid

From Austria 🇦🇹

Circulating MicroRNA ratios as diagnostic biomarkers for long COVID with an independent validation cohort

https://www.nature.com/articles/s43856-026-01854-6

https://s4me.info/threads/circulating-microrna-ratios-as-diagnostic-biomarkers-for-long-covid-with-an-independent-validation-cohort-2026-han-et-al.51938/

Screenshot from latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers

Action for ME's PRIME webinar on Post-exertional malaise (PEM) is now available on YouTube

https://www.youtube.com/watch?v=Ad2RWSmpfjM

https://s4me.info/threads/fact-sheet-2-post-exertional-malaise-pem.51745/

Screenshot from latest Science for ME @s4me weekly update

#MEcfs #LongCovid @mecfs @longcovid #PwME #PostExertionalMalaise #PEM

From Germany 🇩🇪

Perivascular spaces in neuropsychiatric post-COVID syndrome

https://www.researchsquare.com/article/rs-6042521/v2

Screenshot from latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

7/
Impact of post-exertional malaise (PEM) in ME/CFS

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #longcovid

@mecfs

I believe the doctors and researchers at the Long Covid/post infectious disease conference in Amsterdam should be wearing N95s.

They need to lead by example.

Demonstrate that COVID is not over and that repeat infections only increase your risk of disability.

Stop chains of transmission.

#covid #COVIDisAirborne #longcovid #wearamask #disability #chronicillness

#

(Australia)
If ME/CFS & Long COVID Aren’t Counted, They Risk Being Overlooked

From the latest Emerge Australia email bulletin

Survey link:
https://eaecu.au1.qualtrics.com/jfe/form/SV_d13rwqVw4UaOFEy

#LongCovid #MEcfs #PwME #CFS #ME #MyalgicE @mecfs @longcovid

6/
Impact of post-exertional malaise (PEM) in ME/CFS

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #longcovid

@mecfs

"Help The Sick Times’ newsletter reach more readers"

https://thesicktimes.org/2026/08/25/help-the-sick-times-newsletter-reach-more-readers/

"To help us grow our newsletter, we’re trying out a referral program. We think this will make it easier for readers like you to share the newsletter with other community members. But we need your help to test it out!"

Sign up here:

https://pages.viral-loops.com/share-the-sick-times-newsletter-fsqni1m3

@mecfs @longcovid

#MEcfs #LongCovid #TheSickTimes #Newsletter #COVIDIsNotOver

'Nieuw onderzoekscentrum long covid zoekt steun bij publieke en private investeerders'

"Er komt een nationaal Research & Innovation Center voor long covid en andere post-acute infectieuze syndromen (PAIS). De Stichting Long Covid heeft het initiatief genomen voor een onafhankelijke stichting"

"De Stichting Long Covid heeft aan zeven wetenschappers financiering toegekend. Het gaat om Jeroen den Dunnen, Brent Appelman en Michele van Vugt van Amsterdam UMC, Rob Wüst van de Vrije Universiteit Amsterdam, Niels Eijkelkamp van UMC Utrecht en Melvin Lafeber en Sandra Hoeboer van Erasmus MC. Immunoloog Jeroen den Dunnen is aangesteld als wetenschappelijk onderzoeksleider. De onderzoekers kunnen direct van start."

"Zodra onderzoek aanknopingspunten voor een mogelijke behandeling oplevert, wil het centrum deze zo snel mogelijk in klinische studies verder onderzoeken.

De stichting werkt nu aan de opbouw van het centrum en aan een fysieke basis. Het streven is om dit voor het einde van 2026 duidelijk te hebben."

https://www.skipr.nl/nieuws/onderzoekscentrum-voor-long-covid/

#Gezondheid #LongCovid #PostCovid #PAIS #covid

@longcovid

'Nieuw onderzoekscentrum postcovid: ‘Als we nu opgeven, gaat alle kennis verloren’

"De Stichting Long Covid […] heeft alvast aan zeven wetenschappers uit Amsterdam, Rotterdam en Utrecht een structureel budget toegekend van 100 duizend euro per jaar. Als de financiën dat toelaten, volgen er meer. Daarmee blijven ze behouden voor het onderzoeksveld en kunnen ze vernieuwend vrijdagmiddagonderzoek doen."

"Ze vertrouwt erop dat die subsidie er uiteindelijk komt, nu steeds duidelijker wordt hoe groot de maatschappelijke gevolgen zijn van postcovid. Dit voorjaar becijferde de Oeso, de organisatie van 38 welvarende industrielanden, dat postcovid de lidstaten de komende tien jaar tot 135 miljard per jaar kan gaan kosten."

"de voornaamste opdracht voor de komende jaren, vertelt hij: die subgroepen onderscheiden en bestaande medicijnen vinden die alleen bij die groep passen. Of andersom: nieuwe behandelingen testen en van de patiënten bij wie de medicijnen aanslaan uitzoeken wat hen onderling bindt."

https://www.volkskrant.nl/wetenschap/nieuw-onderzoekscentrum-postcovid-als-we-nu-opgeven-gaat-alle-kennis-verloren~bd492ded/

Zonder paywall:
https://archive.ph/tyjP0

@longcovid

#gezondheid #covid #LongCOVID #postcovid #PAIS

Mixed feelings today watching Covid continue to destroy the health of my MAGA family members. Another one is in the hospital today.

They tell me that their poor health is due to vaccine mandates and some other BS false stuff they claim about masks increasing CO2 and microparticle inhalation. So they would rather believe that the things preventing Covid have caused their health issues.

Instead of the virus. The virus that we know causes brain, heart, vascular, lung, liver, thyroid, immune system, mitochondrial, and other damage. That we now have thousands of studies about.

What can I do? When someone punches a wall, do I feel bad about their broken hand?

#Covid #CovidIsNotOver #WearAMask #LongCovid

'Nederland krijgt onderzoeksprogramma long covid, voor gerichte behandelingen'

#LongCovid
#Corona

https://nos.nl/artikel/2628349-nederland-krijgt-onderzoeksprogramma-long-covid-voor-gerichte-behandelingen

Today, the Dutch Long COVID Foundation announced a new national research and innovation center for long COVID and other forms of post-acute infectious syndrome (PAIS).

https://www.stichtinglongcovid.nl/nieuws/research-innovation-center-long-covid

Great news! But funding remains a major bottleneck.

So please help, which you can do via my Amsterdam marathon fund raiser, targeting €50,- for each of my 42K:

https://supporta.com/htg9/6mynzkh7vh.

Thanks!

#longcovid #stichtinglongcovid #cfs #mecfs #mecvs #islc #islcpais #runnersofmastodon

· Another observational study found more evidence of endothelial dysfunction in #LongCOVID
[https://link.springer.com/article/10.1186/s12916-026-05144-9]

· Small clinical trial found probiotic formula called VSL#3 helped improve fatigue in people with Long COVID
[https://www.frontierspartnerships.org/journals/british-journal-of-biomedical-science/articles/10.3389/bjbs.2026.16993/full]

· Genetic molecules in the blood called “microRNA” may serve as a future biomarker for Long COVID
[https://www.nature.com/articles/s43856-026-01854-6]

https://thesicktimes.org/2026/08/25/research-updates-august-25/

#ResearchUpdates #TheSickTimes

Finally got myself a cardiology appointment in September. Hopefully to confirm my #POTS . For what good? Who knows tbh. But it'll be there lol #LongCOVID #COVIDIsnotOver #COVID #Disabled

Vanderbilt created the “Dolly Parton #COVID19 Research Fund” when she donated $1 million for Moderna research on campus. Dolly’s donation was listed alongside major sponsors such as the National Institute of Allergy and Infectious Diseases and the NIH. The #vaccine she helped fund had a 94.5% efficacy rate. I got the Moderna stick myself. Thank you, Dolly.
#otd #rip #dollyparton #medicine #covid #LongCovid #publichealth #health #tennessee #nashville

@tomkindlon @mecfs @longcovid I am once again thankful to have left twitter and come to Mastodon where I am mercifully unaware of people arguing about whether or not there's a special long covid-centric version of PEM.

Last time I checked in, general understanding was that about half of people with #LongCovid (PwLC) experienced PEM, and thus likely also qualified as being part of the people with ME/CFS (PwME) community.

This sounds like they're finding a *lot* higher percentages of PwLC who are also experiencing PEM? And I suppose some of those people really don't want to think of themselves as having ME/CFS, and are trying to find a way out of it?