#longcovid — Public Fediverse posts

“For Many Americans, Covid Is Still a Chronic, Disabling Disease. These Scientists Are Working Tirelessly to Bring Them Relief” (Smithsonian magazine) by Mike Mariani

https://www.smithsonianmag.com/innovation/many-americans-covid-still-chronic-disabling-disease-scientists-working-tirelessly-bring-them-relief-180989290/

Feature article on research into Long Covid.

#LongCovid #PASC #PostCovid #PostCovid19 @longcovid

Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Aug. 31 - Sept. 6.

https://s4me.info/threads/news-in-brief-september-2026.52320/#post-719398

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC

3/

“rest is rarely respected as the critical & often sole medical intervention it is. For this reason, even those who mean us no harm may actively encourage us to push through dangerous symptoms, believing our mindset to be, at least in part, playing a role.”

#MEcfs #LongCovid #Pacing #PwME #CFS
@mecfs @longcovid

3/

“rest is rarely respected as the critical & often sole medical intervention it is. For this reason, even those who mean us no harm may actively encourage us to push through dangerous symptoms, believing our mindset to be, at least in part, playing a role.”

#MEcfs #LongCovid #Pacing #PwME #CFS
@mecfs @longcovid

3/

“rest is rarely respected as the critical & often sole medical intervention it is. For this reason, even those who mean us no harm may actively encourage us to push through dangerous symptoms, believing our mindset to be, at least in part, playing a role.”

#MEcfs #LongCovid #Pacing #PwME #CFS
@mecfs @longcovid

3/

“rest is rarely respected as the critical & often sole medical intervention it is. For this reason, even those who mean us no harm may actively encourage us to push through dangerous symptoms, believing our mindset to be, at least in part, playing a role.”

#MEcfs #LongCovid #Pacing #PwME #CFS
@mecfs @longcovid

3/

“rest is rarely respected as the critical & often sole medical intervention it is. For this reason, even those who mean us no harm may actively encourage us to push through dangerous symptoms, believing our mindset to be, at least in part, playing a role.”

#MEcfs #LongCovid #Pacing #PwME #CFS
@mecfs @longcovid

2/

Headings (contd):

4. The Brick Wall of Welfare
5. The Social Toll - Relentless Interrogation
6. Worn Out Carers
7. The Gagged Target of Vitriol
8. Conclusion

#PwME #LongCovid #MyalgicEncephalomyelitis #MEcfs

@mecfs @longcovid

2/

Headings (contd):

4. The Brick Wall of Welfare
5. The Social Toll - Relentless Interrogation
6. Worn Out Carers
7. The Gagged Target of Vitriol
8. Conclusion

#PwME #LongCovid #MyalgicEncephalomyelitis #MEcfs

@mecfs @longcovid

2/

Headings (contd):

4. The Brick Wall of Welfare
5. The Social Toll - Relentless Interrogation
6. Worn Out Carers
7. The Gagged Target of Vitriol
8. Conclusion

#PwME #LongCovid #MyalgicEncephalomyelitis #MEcfs

@mecfs @longcovid

2/

Headings (contd):

4. The Brick Wall of Welfare
5. The Social Toll - Relentless Interrogation
6. Worn Out Carers
7. The Gagged Target of Vitriol
8. Conclusion

#PwME #LongCovid #MyalgicEncephalomyelitis #MEcfs

@mecfs @longcovid

2/

Headings (contd):

4. The Brick Wall of Welfare
5. The Social Toll - Relentless Interrogation
6. Worn Out Carers
7. The Gagged Target of Vitriol
8. Conclusion

#PwME #LongCovid #MyalgicEncephalomyelitis #MEcfs

@mecfs @longcovid

Focuses on ME and other related conditions (dysautonomia, MCAS & long COVID)

https://pollypauthor.substack.com/p/the-hidden-burdens-of-unacceptable

Author is in the UK and discusses the situation in the UK but many people in other countries will be able to resonate with what is discussed

Headings:
1. The Diagnostic Battle
2. “It’s A Trap!” - Diagnoses of Exclusion
3. Unpaid NHS Admin Duties

(Continues)

@mecfs @longcovid #mecfs #pwme #MyalgicEncephalomyelitis #longcovid #cfs
#mcas

1/

Focuses on ME and other related conditions (dysautonomia, MCAS & long COVID)

https://pollypauthor.substack.com/p/the-hidden-burdens-of-unacceptable

Author is in the UK and discusses the situation in the UK but many people in other countries will be able to resonate with what is discussed

Headings:
1. The Diagnostic Battle
2. “It’s A Trap!” - Diagnoses of Exclusion
3. Unpaid NHS Admin Duties

(Continues)

@mecfs @longcovid #mecfs #pwme #MyalgicEncephalomyelitis #longcovid #cfs
#mcas

1/

Focuses on ME and other related conditions (dysautonomia, MCAS & long COVID)

https://pollypauthor.substack.com/p/the-hidden-burdens-of-unacceptable

Author is in the UK and discusses the situation in the UK but many people in other countries will be able to resonate with what is discussed

Headings:
1. The Diagnostic Battle
2. “It’s A Trap!” - Diagnoses of Exclusion
3. Unpaid NHS Admin Duties

(Continues)

@mecfs @longcovid #mecfs #pwme #MyalgicEncephalomyelitis #longcovid #cfs
#mcas

1/

Focuses on ME and other related conditions (dysautonomia, MCAS & long COVID)

https://pollypauthor.substack.com/p/the-hidden-burdens-of-unacceptable

Author is in the UK and discusses the situation in the UK but many people in other countries will be able to resonate with what is discussed

Headings:
1. The Diagnostic Battle
2. “It’s A Trap!” - Diagnoses of Exclusion
3. Unpaid NHS Admin Duties

(Continues)

@mecfs @longcovid #mecfs #pwme #MyalgicEncephalomyelitis #longcovid #cfs
#mcas

1/

Focuses on ME and other related conditions (dysautonomia, MCAS & long COVID)

https://pollypauthor.substack.com/p/the-hidden-burdens-of-unacceptable

Author is in the UK and discusses the situation in the UK but many people in other countries will be able to resonate with what is discussed

Headings:
1. The Diagnostic Battle
2. “It’s A Trap!” - Diagnoses of Exclusion
3. Unpaid NHS Admin Duties

(Continues)

@mecfs @longcovid #mecfs #pwme #MyalgicEncephalomyelitis #longcovid #cfs
#mcas

1/

I biked to and from a friend's house yesterday. Luckily she lives on this side of town so it's not too hilly or far. I went slow which made it less fun. But still, it's good to get on a bike again. Hopefully the smartwatch can make that possible more. Since I already felt somewhat bad yesterday I can't tell if it caused any pem though.

#longcovid

I biked to and from a friend's house yesterday. Luckily she lives on this side of town so it's not too hilly or far. I went slow which made it less fun. But still, it's good to get on a bike again. Hopefully the smartwatch can make that possible more. Since I already felt somewhat bad yesterday I can't tell if it caused any pem though.

#longcovid

#FYI #USA #MicrobeTV #ThisWeekInVirology #DanielGriffin #VincentRacaniello #MASA #MakeAmericaSaneAgain #infectiousdiseases #vaccinate #vaccines #covid19 #covid #sarscov2 #LongCovid #shingles #cyclospora #cyclosporiasis #Ecoli #screwworm #malaria #measles #RSV #influenza #flu

#TWIV 1354 clinical update 06.Sep.2026

https://youtu.be/vc7X6TXXKCI

#FYI #USA #MicrobeTV #ThisWeekInVirology #DanielGriffin #VincentRacaniello #MASA #MakeAmericaSaneAgain #infectiousdiseases #vaccinate #vaccines #covid19 #covid #sarscov2 #LongCovid #shingles #cyclospora #cyclosporiasis #Ecoli #screwworm #malaria #measles #RSV #influenza #flu

#TWIV 1354 clinical update 06.Sep.2026

https://youtu.be/vc7X6TXXKCI

#FYI #USA #MicrobeTV #ThisWeekInVirology #DanielGriffin #VincentRacaniello #MASA #MakeAmericaSaneAgain #infectiousdiseases #vaccinate #vaccines #covid19 #covid #sarscov2 #LongCovid #shingles #cyclospora #cyclosporiasis #Ecoli #screwworm #malaria #measles #RSV #influenza #flu

#TWIV 1354 clinical update 06.Sep.2026

https://youtu.be/vc7X6TXXKCI

#FYI #USA #MicrobeTV #ThisWeekInVirology #DanielGriffin #VincentRacaniello #MASA #MakeAmericaSaneAgain #infectiousdiseases #vaccinate #vaccines #covid19 #covid #sarscov2 #LongCovid #shingles #cyclospora #cyclosporiasis #Ecoli #screwworm #malaria #measles #RSV #influenza #flu

#TWIV 1354 clinical update 06.Sep.2026

https://youtu.be/vc7X6TXXKCI

#FYI #USA #MicrobeTV #ThisWeekInVirology #DanielGriffin #VincentRacaniello #MASA #MakeAmericaSaneAgain #infectiousdiseases #vaccinate #vaccines #covid19 #covid #sarscov2 #LongCovid #shingles #cyclospora #cyclosporiasis #Ecoli #screwworm #malaria #measles #RSV #influenza #flu

#TWIV 1354 clinical update 06.Sep.2026

https://youtu.be/vc7X6TXXKCI

5/
“Participant shared that constantly calculating whether their body can handle an activity had made them feel “incompetent”, until they recognized that this calculation is not incompetence but triage, a precise management of a limited resource and a skill most healthy people never have to build...”

#mecfs #LongCovid
@mecfs @longcovid

5/
“Participant shared that constantly calculating whether their body can handle an activity had made them feel “incompetent”, until they recognized that this calculation is not incompetence but triage, a precise management of a limited resource and a skill most healthy people never have to build...”

#mecfs #LongCovid
@mecfs @longcovid

5/
“Participant shared that constantly calculating whether their body can handle an activity had made them feel “incompetent”, until they recognized that this calculation is not incompetence but triage, a precise management of a limited resource and a skill most healthy people never have to build...”

#mecfs #LongCovid
@mecfs @longcovid

5/
“Participant shared that constantly calculating whether their body can handle an activity had made them feel “incompetent”, until they recognized that this calculation is not incompetence but triage, a precise management of a limited resource and a skill most healthy people never have to build...”

#mecfs #LongCovid
@mecfs @longcovid

5/
“Participant shared that constantly calculating whether their body can handle an activity had made them feel “incompetent”, until they recognized that this calculation is not incompetence but triage, a precise management of a limited resource and a skill most healthy people never have to build...”

#mecfs #LongCovid
@mecfs @longcovid

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

https://www.europesays.com/be-nl/136640/ Bij veel ziektes, zoals long covid of PTSS, speelt vermoeidheid een belangrijke rol: wetenschappers snappen nu waarom #BE #België #Belgium #ChronischeVermoeidheid #DNA #genetica #Gezondheid #Health #LongCovid #ME/CVS #MS #RA #vermoeidheid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

‪2/‬

‪“We are not incompetent. We have an illness. We are NOT our illness. Our job is to find out what we CAN do within our spoons allotment each day and avoid crashes from using too much energy.”‬

‪#spoonie #spoonies‬ #spoonie #PEM #PwME #LongCovid

@mecfs @longcovid

Recap of "Support Group: Dealing with the Harsh Inner Critic - Developing Selfcompassion for Resilience and Strength Amidst Disease"

https://batemanhornecenter.org/wp-content/uploads/2026/08/20260818-Support-Group-Recap.pdf

#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

1/

Recap of "Support Group: Dealing with the Harsh Inner Critic - Developing Selfcompassion for Resilience and Strength Amidst Disease"

https://batemanhornecenter.org/wp-content/uploads/2026/08/20260818-Support-Group-Recap.pdf

#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

1/

Recap of "Support Group: Dealing with the Harsh Inner Critic - Developing Selfcompassion for Resilience and Strength Amidst Disease"

https://batemanhornecenter.org/wp-content/uploads/2026/08/20260818-Support-Group-Recap.pdf

#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

1/

Recap of "Support Group: Dealing with the Harsh Inner Critic - Developing Selfcompassion for Resilience and Strength Amidst Disease"

https://batemanhornecenter.org/wp-content/uploads/2026/08/20260818-Support-Group-Recap.pdf

#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

1/

Recap of "Support Group: Dealing with the Harsh Inner Critic - Developing Selfcompassion for Resilience and Strength Amidst Disease"

https://batemanhornecenter.org/wp-content/uploads/2026/08/20260818-Support-Group-Recap.pdf

#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

1/

https://www.europesays.com/it/666527/ Long Covid, la svolta: non è una sola malattia. E ora la ricerca cerca il suo “interruttore” #autoanticorpi #autoimmunità #DavisHE #EpsteinBarrVirus #Health #IT #Italia #Italy #LongCovid #ME/CFS #nature #Salute #SARSCoV2 #VirusReactivation #WorldHealthOrganization

eNOS Uncoupling, Shear-Stress Tolerance, and the Two-Threshold Model of Post-Exertional Malaise in Long COVID

https://onlinelibrary.wiley.com/doi/10.1111/micc.70082

Discussion where lead author takes part:
https://s4me.info/threads/shear-stress-tolerance-threshold-enos-uncoupling-and-the-two-threshold-model-of-pem-in-lc-a-mechanistic-hypothesis-2026-karipidis-et-al.49777/

Screenshot from latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
#PostExertionalMalaise #PEM

eNOS Uncoupling, Shear-Stress Tolerance, and the Two-Threshold Model of Post-Exertional Malaise in Long COVID

https://onlinelibrary.wiley.com/doi/10.1111/micc.70082

Discussion where lead author takes part:
https://s4me.info/threads/shear-stress-tolerance-threshold-enos-uncoupling-and-the-two-threshold-model-of-pem-in-lc-a-mechanistic-hypothesis-2026-karipidis-et-al.49777/

Screenshot from latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
#PostExertionalMalaise #PEM

eNOS Uncoupling, Shear-Stress Tolerance, and the Two-Threshold Model of Post-Exertional Malaise in Long COVID

https://onlinelibrary.wiley.com/doi/10.1111/micc.70082

Discussion where lead author takes part:
https://s4me.info/threads/shear-stress-tolerance-threshold-enos-uncoupling-and-the-two-threshold-model-of-pem-in-lc-a-mechanistic-hypothesis-2026-karipidis-et-al.49777/

Screenshot from latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
#PostExertionalMalaise #PEM

eNOS Uncoupling, Shear-Stress Tolerance, and the Two-Threshold Model of Post-Exertional Malaise in Long COVID

https://onlinelibrary.wiley.com/doi/10.1111/micc.70082

Discussion where lead author takes part:
https://s4me.info/threads/shear-stress-tolerance-threshold-enos-uncoupling-and-the-two-threshold-model-of-pem-in-lc-a-mechanistic-hypothesis-2026-karipidis-et-al.49777/

Screenshot from latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
#PostExertionalMalaise #PEM