#longcovid — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #longcovid, aggregated by home.social.
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Darf es mir gut gehen, obwohl es mir schlecht geht?
Auch inmitten von schwerer Krankheit und Einschränkungen sind schöne und zufriedene Momente möglich. Diese Momente sind erlaubt.
Und ein bisschen mehr "im Moment sein" würde uns allen gut tun.
Zu meinem aktuellen Blogartikel: https://longcovidonline.blog/2026/09/07/darf-es-mir-gut-gehen-obwohl-es-mir-schlecht-geht/
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Hier muss dringend etwas unternommen werden. Betroffene werden zur Teilnahme an Rehabilitationsmaßnahmen gezwungen, die potenziell ihren Gesundheitszustand verschlechtern.
Die Petition Keine Reha-Pflicht bei ME/CFS – Rehabilitation muss freiwillig sein ist mir wichtig! ✍️ Bitte unterschreibe auch:
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https://www.europesays.com/it/668772/ Quella stanchezza che non passa: cosa hanno scoperto studiando cinque malattie molto diverse #ArtriteReumatoide #DisturboDaStressPostTraumatico #EpiSwitch #Health #HunterE #IT #Italia #Italy #JournalOfTranslationalMedicine #LongCovid #ME/CFS #orion #Salute #SclerosiMultipla #UniversityOfEastAnglia
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"Why Is No One Talking About Long COVID?
— Attention has waned but patients are still suffering"
https://www.medpagetoday.com/opinion/second-opinions/122902
Pretty good basic info, but sadly ME/CFS is not mentioned even though COVID infections can trigger ME/CFS. The number of ME/CFS cases have increased since the pandemic.
See this Bateman Horne blog post ("COVID-19 Triggers ME/CFS") for more:
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"Why Is No One Talking About Long COVID?
— Attention has waned but patients are still suffering"
https://www.medpagetoday.com/opinion/second-opinions/122902
Pretty good basic info, but sadly ME/CFS is not mentioned even though COVID infections can trigger ME/CFS. The number of ME/CFS cases have increased since the pandemic.
See this Bateman Horne blog post ("COVID-19 Triggers ME/CFS") for more:
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"Why Is No One Talking About Long COVID?
— Attention has waned but patients are still suffering"
https://www.medpagetoday.com/opinion/second-opinions/122902
Pretty good basic info, but sadly ME/CFS is not mentioned even though COVID infections can trigger ME/CFS. The number of ME/CFS cases have increased since the pandemic.
See this Bateman Horne blog post ("COVID-19 Triggers ME/CFS") for more:
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"Why Is No One Talking About Long COVID?
— Attention has waned but patients are still suffering"
https://www.medpagetoday.com/opinion/second-opinions/122902
Pretty good basic info, but sadly ME/CFS is not mentioned even though COVID infections can trigger ME/CFS. The number of ME/CFS cases have increased since the pandemic.
See this Bateman Horne blog post ("COVID-19 Triggers ME/CFS") for more:
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"Why Is No One Talking About Long COVID?
— Attention has waned but patients are still suffering"
https://www.medpagetoday.com/opinion/second-opinions/122902
Pretty good basic info, but sadly ME/CFS is not mentioned even though COVID infections can trigger ME/CFS. The number of ME/CFS cases have increased since the pandemic.
See this Bateman Horne blog post ("COVID-19 Triggers ME/CFS") for more:
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THIS: "Millions of Americans are thought to be suffering but not receiving appropriate clinical care. Furthermore, even now, well after the acute phase of the #COVID pandemic has passed, an estimated 30,000 Americans are newly diagnosed with #LongCOVID each year. But this is far fewer than expected, based on 2023 data. Thus, long COVID appears to have become a hidden cause of disease and disability."
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THIS: "Millions of Americans are thought to be suffering but not receiving appropriate clinical care. Furthermore, even now, well after the acute phase of the #COVID pandemic has passed, an estimated 30,000 Americans are newly diagnosed with #LongCOVID each year. But this is far fewer than expected, based on 2023 data. Thus, long COVID appears to have become a hidden cause of disease and disability."
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THIS: "Millions of Americans are thought to be suffering but not receiving appropriate clinical care. Furthermore, even now, well after the acute phase of the #COVID pandemic has passed, an estimated 30,000 Americans are newly diagnosed with #LongCOVID each year. But this is far fewer than expected, based on 2023 data. Thus, long COVID appears to have become a hidden cause of disease and disability."
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THIS: "Millions of Americans are thought to be suffering but not receiving appropriate clinical care. Furthermore, even now, well after the acute phase of the #COVID pandemic has passed, an estimated 30,000 Americans are newly diagnosed with #LongCOVID each year. But this is far fewer than expected, based on 2023 data. Thus, long COVID appears to have become a hidden cause of disease and disability."
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THIS: "Millions of Americans are thought to be suffering but not receiving appropriate clinical care. Furthermore, even now, well after the acute phase of the #COVID pandemic has passed, an estimated 30,000 Americans are newly diagnosed with #LongCOVID each year. But this is far fewer than expected, based on 2023 data. Thus, long COVID appears to have become a hidden cause of disease and disability."
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"Nirmatrelvir–ritonavir for 15 days or 25 days showed no evidence of benefit in long COVID"
“Across all three phenotypes, substantial percentages of participants showed improvement over time by PROMs and less so by performance measures."
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"Nirmatrelvir–ritonavir for 15 days or 25 days showed no evidence of benefit in long COVID"
“Across all three phenotypes, substantial percentages of participants showed improvement over time by PROMs and less so by performance measures."
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"Nirmatrelvir–ritonavir for 15 days or 25 days showed no evidence of benefit in long COVID"
“Across all three phenotypes, substantial percentages of participants showed improvement over time by PROMs and less so by performance measures."
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2/
"Nirmatrelvir–ritonavir for 15 days or 25 days showed no evidence of benefit in long COVID"
“Across all three phenotypes, substantial percentages of participants showed improvement over time by PROMs and less so by performance measures."
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"Nirmatrelvir–ritonavir for 15 days or 25 days showed no evidence of benefit in long COVID"
“Across all three phenotypes, substantial percentages of participants showed improvement over time by PROMs and less so by performance measures."
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I've been contacted by somebody I cut ties with years ago, because they went along with the end of Covid safety protocols with a cheerful vengeance. They're now asking if I know of a doctor who treats Long Covid. I have to figure out what to say.
I think it's a "teachable moment"? If I can find a way to get some info across without being a dick about it? Obviously "Well well well, look who's..." is not the correct option. No. #covid #longcOVID #covidIsNotOver
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I've been contacted by somebody I cut ties with years ago, because they went along with the end of Covid safety protocols with a cheerful vengeance. They're now asking if I know of a doctor who treats Long Covid. I have to figure out what to say.
I think it's a "teachable moment"? If I can find a way to get some info across without being a dick about it? Obviously "Well well well, look who's..." is not the correct option. No. #covid #longcOVID #covidIsNotOver
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I've been contacted by somebody I cut ties with years ago, because they went along with the end of Covid safety protocols with a cheerful vengeance. They're now asking if I know of a doctor who treats Long Covid. I have to figure out what to say.
I think it's a "teachable moment"? If I can find a way to get some info across without being a dick about it? Obviously "Well well well, look who's..." is not the correct option. No. #covid #longcOVID #covidIsNotOver
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I've been contacted by somebody I cut ties with years ago, because they went along with the end of Covid safety protocols with a cheerful vengeance. They're now asking if I know of a doctor who treats Long Covid. I have to figure out what to say.
I think it's a "teachable moment"? If I can find a way to get some info across without being a dick about it? Obviously "Well well well, look who's..." is not the correct option. No. #covid #longcOVID #covidIsNotOver
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I've been contacted by somebody I cut ties with years ago, because they went along with the end of Covid safety protocols with a cheerful vengeance. They're now asking if I know of a doctor who treats Long Covid. I have to figure out what to say.
I think it's a "teachable moment"? If I can find a way to get some info across without being a dick about it? Obviously "Well well well, look who's..." is not the correct option. No. #covid #longcOVID #covidIsNotOver
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“For Many Americans, Covid Is Still a Chronic, Disabling Disease. These Scientists Are Working Tirelessly to Bring Them Relief” (Smithsonian magazine) by Mike Mariani
Feature article on research into Long Covid.
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“For Many Americans, Covid Is Still a Chronic, Disabling Disease. These Scientists Are Working Tirelessly to Bring Them Relief” (Smithsonian magazine) by Mike Mariani
Feature article on research into Long Covid.
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“For Many Americans, Covid Is Still a Chronic, Disabling Disease. These Scientists Are Working Tirelessly to Bring Them Relief” (Smithsonian magazine) by Mike Mariani
Feature article on research into Long Covid.
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“For Many Americans, Covid Is Still a Chronic, Disabling Disease. These Scientists Are Working Tirelessly to Bring Them Relief” (Smithsonian magazine) by Mike Mariani
Feature article on research into Long Covid.
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“For Many Americans, Covid Is Still a Chronic, Disabling Disease. These Scientists Are Working Tirelessly to Bring Them Relief” (Smithsonian magazine) by Mike Mariani
Feature article on research into Long Covid.
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https://www.europesays.com/nl/303032/ Bij veel ziektes, zoals long covid of PTSS, speelt vermoeidheid een belangrijke rol: wetenschappers snappen nu waarom #ChronischeVermoeidheid #DNA #Dutch #Genetica #Gezondheid #Health #LongCovid #ME/CVS #ms #Nederland #Nederlanden #Nederlands #Netherlands #NL #RA #vermoeidheid
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Aug. 31 - Sept. 6.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-719398
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Aug. 31 - Sept. 6.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-719398
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Aug. 31 - Sept. 6.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-719398
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Aug. 31 - Sept. 6.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-719398
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Aug. 31 - Sept. 6.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-719398
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“rest is rarely respected as the critical & often sole medical intervention it is. For this reason, even those who mean us no harm may actively encourage us to push through dangerous symptoms, believing our mindset to be, at least in part, playing a role.”
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“rest is rarely respected as the critical & often sole medical intervention it is. For this reason, even those who mean us no harm may actively encourage us to push through dangerous symptoms, believing our mindset to be, at least in part, playing a role.”
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3/
“rest is rarely respected as the critical & often sole medical intervention it is. For this reason, even those who mean us no harm may actively encourage us to push through dangerous symptoms, believing our mindset to be, at least in part, playing a role.”
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3/
“rest is rarely respected as the critical & often sole medical intervention it is. For this reason, even those who mean us no harm may actively encourage us to push through dangerous symptoms, believing our mindset to be, at least in part, playing a role.”
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“rest is rarely respected as the critical & often sole medical intervention it is. For this reason, even those who mean us no harm may actively encourage us to push through dangerous symptoms, believing our mindset to be, at least in part, playing a role.”
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Headings (contd):
4. The Brick Wall of Welfare
5. The Social Toll - Relentless Interrogation
6. Worn Out Carers
7. The Gagged Target of Vitriol
8. Conclusion -
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Headings (contd):
4. The Brick Wall of Welfare
5. The Social Toll - Relentless Interrogation
6. Worn Out Carers
7. The Gagged Target of Vitriol
8. Conclusion -
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Headings (contd):
4. The Brick Wall of Welfare
5. The Social Toll - Relentless Interrogation
6. Worn Out Carers
7. The Gagged Target of Vitriol
8. Conclusion -
2/
Headings (contd):
4. The Brick Wall of Welfare
5. The Social Toll - Relentless Interrogation
6. Worn Out Carers
7. The Gagged Target of Vitriol
8. Conclusion -
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Headings (contd):
4. The Brick Wall of Welfare
5. The Social Toll - Relentless Interrogation
6. Worn Out Carers
7. The Gagged Target of Vitriol
8. Conclusion -
Focuses on ME and other related conditions (dysautonomia, MCAS & long COVID)
https://pollypauthor.substack.com/p/the-hidden-burdens-of-unacceptable
Author is in the UK and discusses the situation in the UK but many people in other countries will be able to resonate with what is discussed
Headings:
1. The Diagnostic Battle
2. “It’s A Trap!” - Diagnoses of Exclusion
3. Unpaid NHS Admin Duties(Continues)
@mecfs @longcovid #mecfs #pwme #MyalgicEncephalomyelitis #longcovid #cfs
#mcas1/
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Focuses on ME and other related conditions (dysautonomia, MCAS & long COVID)
https://pollypauthor.substack.com/p/the-hidden-burdens-of-unacceptable
Author is in the UK and discusses the situation in the UK but many people in other countries will be able to resonate with what is discussed
Headings:
1. The Diagnostic Battle
2. “It’s A Trap!” - Diagnoses of Exclusion
3. Unpaid NHS Admin Duties(Continues)
@mecfs @longcovid #mecfs #pwme #MyalgicEncephalomyelitis #longcovid #cfs
#mcas1/
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Focuses on ME and other related conditions (dysautonomia, MCAS & long COVID)
https://pollypauthor.substack.com/p/the-hidden-burdens-of-unacceptable
Author is in the UK and discusses the situation in the UK but many people in other countries will be able to resonate with what is discussed
Headings:
1. The Diagnostic Battle
2. “It’s A Trap!” - Diagnoses of Exclusion
3. Unpaid NHS Admin Duties(Continues)
@mecfs @longcovid #mecfs #pwme #MyalgicEncephalomyelitis #longcovid #cfs
#mcas1/
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Focuses on ME and other related conditions (dysautonomia, MCAS & long COVID)
https://pollypauthor.substack.com/p/the-hidden-burdens-of-unacceptable
Author is in the UK and discusses the situation in the UK but many people in other countries will be able to resonate with what is discussed
Headings:
1. The Diagnostic Battle
2. “It’s A Trap!” - Diagnoses of Exclusion
3. Unpaid NHS Admin Duties(Continues)
@mecfs @longcovid #mecfs #pwme #MyalgicEncephalomyelitis #longcovid #cfs
#mcas1/
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Focuses on ME and other related conditions (dysautonomia, MCAS & long COVID)
https://pollypauthor.substack.com/p/the-hidden-burdens-of-unacceptable
Author is in the UK and discusses the situation in the UK but many people in other countries will be able to resonate with what is discussed
Headings:
1. The Diagnostic Battle
2. “It’s A Trap!” - Diagnoses of Exclusion
3. Unpaid NHS Admin Duties(Continues)
@mecfs @longcovid #mecfs #pwme #MyalgicEncephalomyelitis #longcovid #cfs
#mcas1/
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I biked to and from a friend's house yesterday. Luckily she lives on this side of town so it's not too hilly or far. I went slow which made it less fun. But still, it's good to get on a bike again. Hopefully the smartwatch can make that possible more. Since I already felt somewhat bad yesterday I can't tell if it caused any pem though.