#longcovid — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #longcovid, aggregated by home.social.
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Ik had een dut willen doen maar het lijf zit vol tegengestelde signalen. Het is moe, het hoofd is druk en dat veroorzaakt onrust in alles. Het nieuwste zijn de spiertrekkingen waar ik geen invloed op heb. Vannacht wakker van een soort epileptische aanval van het middenrif. #longcovid #ikhamynnocht
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Ik had een dut willen doen maar het lijf zit vol tegengestelde signalen. Het is moe, het hoofd is druk en dat veroorzaakt onrust in alles. Het nieuwste zijn de spiertrekkingen waar ik geen invloed op heb. Vannacht wakker van een soort epileptische aanval van het middenrif. #longcovid #ikhamynnocht
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Ik had een dut willen doen maar het lijf zit vol tegengestelde signalen. Het is moe, het hoofd is druk en dat veroorzaakt onrust in alles. Het nieuwste zijn de spiertrekkingen waar ik geen invloed op heb. Vannacht wakker van een soort epileptische aanval van het middenrif. #longcovid #ikhamynnocht
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Ik had een dut willen doen maar het lijf zit vol tegengestelde signalen. Het is moe, het hoofd is druk en dat veroorzaakt onrust in alles. Het nieuwste zijn de spiertrekkingen waar ik geen invloed op heb. Vannacht wakker van een soort epileptische aanval van het middenrif. #longcovid #ikhamynnocht
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Has anyone seen any studies or is using a protocol for #longCOVID #brainFog based on #creatine ?
I've seen a few studies on sleep deprivation and high dose (~25g but based on body weight) that looked pretty good. Thus I decided to experiment on myself.
My kidneys have always been good so I'm not worried about that potential issue with high creatine doses.
I've done a few experiments with taking 20 or 25 grams before bed and it's definitely helped me feel pretty normal and be high functioning the next day but it unsurprisingly keeps me awake for a few hours after taking it. I think I'm going to try taking it upon waking to see what that does. And eventually I'll try spreading it out throughout a day.
Note that I'm two years past my COVID infection and I don't have much in the way of post exertion malaise anymore. I am heat intolerant (especially with humidity) though and I do have some mild brain fog. But I'm working full time at a mentally demanding job, I am quite sleep deprived due to needing to wake up every few hours to care for someone, and I don't have any issues with travel or generally any other life tasks. Oh I'm also on a 12.5 dose of Zepbound. The original smallest dose of Zepbound dug me out of the hole I was in post COVID infection and allowed me to function at work again. I've slowly increased the dose over the past year and a half to keep getting the good effects from that and I stopped low dose naltrexone which I had started a few months after the infection last December after the nightmares got to be too disruptive on my sleep. So generally I'm doing great compared to a lot of people with long COVID.
The effects I've observed with the higher dose of creatine are better vocabulary and word recall, reduced slurred speech, better retention and memory recall reading long (200+ page) technical documents, and an easier time developing novel ideas.
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Has anyone seen any studies or is using a protocol for #longCOVID #brainFog based on #creatine ?
I've seen a few studies on sleep deprivation and high dose (~25g but based on body weight) that looked pretty good. Thus I decided to experiment on myself.
My kidneys have always been good so I'm not worried about that potential issue with high creatine doses.
I've done a few experiments with taking 20 or 25 grams before bed and it's definitely helped me feel pretty normal and be high functioning the next day but it unsurprisingly keeps me awake for a few hours after taking it. I think I'm going to try taking it upon waking to see what that does. And eventually I'll try spreading it out throughout a day.
Note that I'm two years past my COVID infection and I don't have much in the way of post exertion malaise anymore. I am heat intolerant (especially with humidity) though and I do have some mild brain fog. But I'm working full time at a mentally demanding job, I am quite sleep deprived due to needing to wake up every few hours to care for someone, and I don't have any issues with travel or generally any other life tasks. Oh I'm also on a 12.5 dose of Zepbound. The original smallest dose of Zepbound dug me out of the hole I was in post COVID infection and allowed me to function at work again. I've slowly increased the dose over the past year and a half to keep getting the good effects from that and I stopped low dose naltrexone which I had started a few months after the infection last December after the nightmares got to be too disruptive on my sleep. So generally I'm doing great compared to a lot of people with long COVID.
The effects I've observed with the higher dose of creatine are better vocabulary and word recall, reduced slurred speech, better retention and memory recall reading long (200+ page) technical documents, and an easier time developing novel ideas.
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Has anyone seen any studies or is using a protocol for #longCOVID #brainFog based on #creatine ?
I've seen a few studies on sleep deprivation and high dose (~25g but based on body weight) that looked pretty good. Thus I decided to experiment on myself.
My kidneys have always been good so I'm not worried about that potential issue with high creatine doses.
I've done a few experiments with taking 20 or 25 grams before bed and it's definitely helped me feel pretty normal and be high functioning the next day but it unsurprisingly keeps me awake for a few hours after taking it. I think I'm going to try taking it upon waking to see what that does. And eventually I'll try spreading it out throughout a day.
Note that I'm two years past my COVID infection and I don't have much in the way of post exertion malaise anymore. I am heat intolerant (especially with humidity) though and I do have some mild brain fog. But I'm working full time at a mentally demanding job, I am quite sleep deprived due to needing to wake up every few hours to care for someone, and I don't have any issues with travel or generally any other life tasks. Oh I'm also on a 12.5 dose of Zepbound. The original smallest dose of Zepbound dug me out of the hole I was in post COVID infection and allowed me to function at work again. I've slowly increased the dose over the past year and a half to keep getting the good effects from that and I stopped low dose naltrexone which I had started a few months after the infection last December after the nightmares got to be too disruptive on my sleep. So generally I'm doing great compared to a lot of people with long COVID.
The effects I've observed with the higher dose of creatine are better vocabulary and word recall, reduced slurred speech, better retention and memory recall reading long (200+ page) technical documents, and an easier time developing novel ideas.
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Has anyone seen any studies or is using a protocol for #longCOVID #brainFog based on #creatine ?
I've seen a few studies on sleep deprivation and high dose (~25g but based on body weight) that looked pretty good. Thus I decided to experiment on myself.
My kidneys have always been good so I'm not worried about that potential issue with high creatine doses.
I've done a few experiments with taking 20 or 25 grams before bed and it's definitely helped me feel pretty normal and be high functioning the next day but it unsurprisingly keeps me awake for a few hours after taking it. I think I'm going to try taking it upon waking to see what that does. And eventually I'll try spreading it out throughout a day.
Note that I'm two years past my COVID infection and I don't have much in the way of post exertion malaise anymore. I am heat intolerant (especially with humidity) though and I do have some mild brain fog. But I'm working full time at a mentally demanding job, I am quite sleep deprived due to needing to wake up every few hours to care for someone, and I don't have any issues with travel or generally any other life tasks. Oh I'm also on a 12.5 dose of Zepbound. The original smallest dose of Zepbound dug me out of the hole I was in post COVID infection and allowed me to function at work again. I've slowly increased the dose over the past year and a half to keep getting the good effects from that and I stopped low dose naltrexone which I had started a few months after the infection last December after the nightmares got to be too disruptive on my sleep. So generally I'm doing great compared to a lot of people with long COVID.
The effects I've observed with the higher dose of creatine are better vocabulary and word recall, reduced slurred speech, better retention and memory recall reading long (200+ page) technical documents, and an easier time developing novel ideas.
-
Has anyone seen any studies or is using a protocol for #longCOVID #brainFog based on #creatine ?
I've seen a few studies on sleep deprivation and high dose (~25g but based on body weight) that looked pretty good. Thus I decided to experiment on myself.
My kidneys have always been good so I'm not worried about that potential issue with high creatine doses.
I've done a few experiments with taking 20 or 25 grams before bed and it's definitely helped me feel pretty normal and be high functioning the next day but it unsurprisingly keeps me awake for a few hours after taking it. I think I'm going to try taking it upon waking to see what that does. And eventually I'll try spreading it out throughout a day.
Note that I'm two years past my COVID infection and I don't have much in the way of post exertion malaise anymore. I am heat intolerant (especially with humidity) though and I do have some mild brain fog. But I'm working full time at a mentally demanding job, I am quite sleep deprived due to needing to wake up every few hours to care for someone, and I don't have any issues with travel or generally any other life tasks. Oh I'm also on a 12.5 dose of Zepbound. The original smallest dose of Zepbound dug me out of the hole I was in post COVID infection and allowed me to function at work again. I've slowly increased the dose over the past year and a half to keep getting the good effects from that and I stopped low dose naltrexone which I had started a few months after the infection last December after the nightmares got to be too disruptive on my sleep. So generally I'm doing great compared to a lot of people with long COVID.
The effects I've observed with the higher dose of creatine are better vocabulary and word recall, reduced slurred speech, better retention and memory recall reading long (200+ page) technical documents, and an easier time developing novel ideas.
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of August 17 - 23.
https://s4me.info/threads/news-in-brief-august-2026.51739/#post-715428
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of August 17 - 23.
https://s4me.info/threads/news-in-brief-august-2026.51739/#post-715428
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of August 17 - 23.
https://s4me.info/threads/news-in-brief-august-2026.51739/#post-715428
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of August 17 - 23.
https://s4me.info/threads/news-in-brief-august-2026.51739/#post-715428
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of August 17 - 23.
https://s4me.info/threads/news-in-brief-august-2026.51739/#post-715428
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PAIS conference Amsterdam 26 - 29 August.
https://islc-pais.org/program/
Speakers include Danny Altmann, Eva Untermayr, Carmen Scheibenbogen, Rob Wüst and Mark Faghy.
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PAIS conference Amsterdam 26 - 29 August.
https://islc-pais.org/program/
Speakers include Danny Altmann, Eva Untermayr, Carmen Scheibenbogen, Rob Wüst and Mark Faghy.
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PAIS conference Amsterdam 26 - 29 August.
https://islc-pais.org/program/
Speakers include Danny Altmann, Eva Untermayr, Carmen Scheibenbogen, Rob Wüst and Mark Faghy.
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PAIS conference Amsterdam 26 - 29 August.
https://islc-pais.org/program/
Speakers include Danny Altmann, Eva Untermayr, Carmen Scheibenbogen, Rob Wüst and Mark Faghy.
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PAIS conference Amsterdam 26 - 29 August.
https://islc-pais.org/program/
Speakers include Danny Altmann, Eva Untermayr, Carmen Scheibenbogen, Rob Wüst and Mark Faghy.
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Congress’s 2027 budget could include new funding for Long COVID and ME - @thesicktimes
Advocates are calling on senators and representatives to include the ME/CFS Research Roadmap and new #LongCOVID funding in the fiscal year 2027 budget.
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Congress’s 2027 budget could include new funding for Long COVID and ME - @thesicktimes
Advocates are calling on senators and representatives to include the ME/CFS Research Roadmap and new #LongCOVID funding in the fiscal year 2027 budget.
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Congress’s 2027 budget could include new funding for Long COVID and ME - @thesicktimes
Advocates are calling on senators and representatives to include the ME/CFS Research Roadmap and new #LongCOVID funding in the fiscal year 2027 budget.
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Congress’s 2027 budget could include new funding for Long COVID and ME - @thesicktimes
Advocates are calling on senators and representatives to include the ME/CFS Research Roadmap and new #LongCOVID funding in the fiscal year 2027 budget.
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Congress’s 2027 budget could include new funding for Long COVID and ME - @thesicktimes
Advocates are calling on senators and representatives to include the ME/CFS Research Roadmap and new #LongCOVID funding in the fiscal year 2027 budget.
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Impact of PEM in ME/CFS#PEM #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #longcovid
@mecfs -
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Impact of PEM in ME/CFS#PEM #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #longcovid
@mecfs -
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Impact of PEM in ME/CFS#PEM #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #longcovid
@mecfs -
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Impact of PEM in ME/CFS#PEM #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #longcovid
@mecfs -
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Impact of PEM in ME/CFS#PEM #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #longcovid
@mecfs -
ME Research UK
Research from Ass. Prof Rob Wüst – who is working on ME Research UK-funded project – highlighted in webinar as some of the most exciting research relating to the pathophysiology of PEM right now.
Read more https://bit.ly/4wRkCxw
Watch YouTube webinar https://bit.ly/45UOKw8 -
ME Research UK
Research from Ass. Prof Rob Wüst – who is working on ME Research UK-funded project – highlighted in webinar as some of the most exciting research relating to the pathophysiology of PEM right now.
Read more https://bit.ly/4wRkCxw
Watch YouTube webinar https://bit.ly/45UOKw8 -
ME Research UK
Research from Ass. Prof Rob Wüst – who is working on ME Research UK-funded project – highlighted in webinar as some of the most exciting research relating to the pathophysiology of PEM right now.
Read more https://bit.ly/4wRkCxw
Watch YouTube webinar https://bit.ly/45UOKw8 -
ME Research UK
Research from Ass. Prof Rob Wüst – who is working on ME Research UK-funded project – highlighted in webinar as some of the most exciting research relating to the pathophysiology of PEM right now.
Read more https://bit.ly/4wRkCxw
Watch YouTube webinar https://bit.ly/45UOKw8 -
ME Research UK
Research from Ass. Prof Rob Wüst – who is working on ME Research UK-funded project – highlighted in webinar as some of the most exciting research relating to the pathophysiology of PEM right now.
Read more https://bit.ly/4wRkCxw
Watch YouTube webinar https://bit.ly/45UOKw8 -
Getting more and more frustrated by not being able to do a bit of gardening. I just need the ability to lean over and get up again while using both hands plus hand-eye co-ordination for about ten minutes, but day after day it isn't manageable.
I can do walking a few steps at a time with the stick in one hand and the garden hose in the other, as long as I don't try and look in different directions, so at least that's not nothing. Not taking it for granted either, because there have been plenty of days in the last few years when I couldn't do that much.
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Getting more and more frustrated by not being able to do a bit of gardening. I just need the ability to lean over and get up again while using both hands plus hand-eye co-ordination for about ten minutes, but day after day it isn't manageable.
I can do walking a few steps at a time with the stick in one hand and the garden hose in the other, as long as I don't try and look in different directions, so at least that's not nothing. Not taking it for granted either, because there have been plenty of days in the last few years when I couldn't do that much.
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Getting more and more frustrated by not being able to do a bit of gardening. I just need the ability to lean over and get up again while using both hands plus hand-eye co-ordination for about ten minutes, but day after day it isn't manageable.
I can do walking a few steps at a time with the stick in one hand and the garden hose in the other, as long as I don't try and look in different directions, so at least that's not nothing. Not taking it for granted either, because there have been plenty of days in the last few years when I couldn't do that much.
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Getting more and more frustrated by not being able to do a bit of gardening. I just need the ability to lean over and get up again while using both hands plus hand-eye co-ordination for about ten minutes, but day after day it isn't manageable.
I can do walking a few steps at a time with the stick in one hand and the garden hose in the other, as long as I don't try and look in different directions, so at least that's not nothing. Not taking it for granted either, because there have been plenty of days in the last few years when I couldn't do that much.
-
Getting more and more frustrated by not being able to do a bit of gardening. I just need the ability to lean over and get up again while using both hands plus hand-eye co-ordination for about ten minutes, but day after day it isn't manageable.
I can do walking a few steps at a time with the stick in one hand and the garden hose in the other, as long as I don't try and look in different directions, so at least that's not nothing. Not taking it for granted either, because there have been plenty of days in the last few years when I couldn't do that much.
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Using advanced MRI techniques, ME Research UK-funded researchers at Griffith University have detected subtle alterations in brain tissue microstructure in ME/CFS & long COVID, supporting the idea that the illnesses share underlying neurological features https://bit.ly/4i8mYn9
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Using advanced MRI techniques, ME Research UK-funded researchers at Griffith University have detected subtle alterations in brain tissue microstructure in ME/CFS & long COVID, supporting the idea that the illnesses share underlying neurological features https://bit.ly/4i8mYn9
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Using advanced MRI techniques, ME Research UK-funded researchers at Griffith University have detected subtle alterations in brain tissue microstructure in ME/CFS & long COVID, supporting the idea that the illnesses share underlying neurological features https://bit.ly/4i8mYn9
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Using advanced MRI techniques, ME Research UK-funded researchers at Griffith University have detected subtle alterations in brain tissue microstructure in ME/CFS & long COVID, supporting the idea that the illnesses share underlying neurological features https://bit.ly/4i8mYn9
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Using advanced MRI techniques, ME Research UK-funded researchers at Griffith University have detected subtle alterations in brain tissue microstructure in ME/CFS & long COVID, supporting the idea that the illnesses share underlying neurological features https://bit.ly/4i8mYn9
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ME Research UK:
In a two-part episode of "Long COVID The Answers", Dr Funmi Okunola speaks with ME Research UK grant holder Professor Rob Wüst, and Professor Mark Faghy about PEM in ME/CFS and #longCOVID, and the upcoming ISLC-PAIS conference.
Read more: https://tinyurl.com/2wajkbux
