#longcovid — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #longcovid, aggregated by home.social.
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@tomkindlon @longcovid @novid 1- Everyone is vulnerable to #covid / #longCOVID , 2- For those that know this and are able to and are acting on it, hell yeah it's depressing watching this train wreck unfold 3- it's akin to saying people were depressed with Hitler and the Nazis actions, Or people who were enslaved were sadly upset about it. Many #CC ppl have had rights violated, health violated, been discriminated against, been ostracized from society and family and friends, lost jobs, yes.
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News Release 13-May-2026
Forgotten and isolated: 1.8 million people [in UK] still vulnerable to Covid 19 face a mental health crisis
https://www.eurekalert.org/news-releases/1128049Understanding the Psychological Impacts of Shielding From COVID-19 for Immunocompromised Individuals
http://dx.doi.org/10.1111/hex.70675@longcovid
#LongCovid #MaskUp #CovidIsAirborne #COVIDisNotOver #COVID19 #SARSCoV2 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver -
News Release 13-May-2026
Forgotten and isolated: 1.8 million people [in UK] still vulnerable to Covid 19 face a mental health crisis
https://www.eurekalert.org/news-releases/1128049Understanding the Psychological Impacts of Shielding From COVID-19 for Immunocompromised Individuals
http://dx.doi.org/10.1111/hex.70675@longcovid
#LongCovid #MaskUp #CovidIsAirborne #COVIDisNotOver #COVID19 #SARSCoV2 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver -
News Release 13-May-2026
Forgotten and isolated: 1.8 million people [in UK] still vulnerable to Covid 19 face a mental health crisis
https://www.eurekalert.org/news-releases/1128049Understanding the Psychological Impacts of Shielding From COVID-19 for Immunocompromised Individuals
http://dx.doi.org/10.1111/hex.70675@longcovid
#LongCovid #MaskUp #CovidIsAirborne #COVIDisNotOver #COVID19 #SARSCoV2 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver -
News Release 13-May-2026
Forgotten and isolated: 1.8 million people [in UK] still vulnerable to Covid 19 face a mental health crisis
https://www.eurekalert.org/news-releases/1128049Understanding the Psychological Impacts of Shielding From COVID-19 for Immunocompromised Individuals
http://dx.doi.org/10.1111/hex.70675@longcovid
#LongCovid #MaskUp #CovidIsAirborne #COVIDisNotOver #COVID19 #SARSCoV2 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver -
News Release 13-May-2026
Forgotten and isolated: 1.8 million people [in UK] still vulnerable to Covid 19 face a mental health crisis
https://www.eurekalert.org/news-releases/1128049Understanding the Psychological Impacts of Shielding From COVID-19 for Immunocompromised Individuals
http://dx.doi.org/10.1111/hex.70675@longcovid
#LongCovid #MaskUp #CovidIsAirborne #COVIDisNotOver #COVID19 #SARSCoV2 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver -
The new Threat Model from @violetblue, in addition to her standard weekly roundup of all things #Covid / #LongCovid, also provides the best coverage of #Hantavirus / #ANDV that you'll find anywhere--free to read!
Check it out, share it, consider supporting: https://www.patreon.com/posts/158228501
#pandemic #PublicHealth -
The PCR positivity map is out, and national levels are holding steady.
GP swabbing levels have leapt from 0.6% to 3.3%; per RCGP this looks to be mainly in the north of England.
No Scottish data until next week.
https://jamestindall.info/skeuomorphology/ladb_covid/index.html
1/4
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💔 Dok-Film von und mit einer ME/CFS-Betroffenen. Ein wichtiger und darüber hinaus wirklich sehr gut gemachter Film.
Im Moment für 5 € Euro online zu sehen:
https://www.dokfest-muenchen.de/films/hello-new-body-how-are-you-today#DOKfest #Dokumentarfilm #Doku #MECFS #PAIS #LongCovid #PostVac
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CW: COVID News Pandemic Long COVID
Hantavirus - Covid: May 14, 2026 by @violetblue
https://www.patreon.com/posts/hantavirus-covid-158228501
· #Hantavirus outbreak updates
· World Mask Week 2026 is May 25 - 31
· Phase 3 trial has shown contact risk dropped by more than half in people who took the antiviral ensitrelvirAnd much more.
"Stay apart, stand together, mask up, & stay strong."
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@HGrunbichler
Genau Anwesenheit und Prüfungsregime funktioniert im Abendgymnasium.Man belegt die notwendigen Fächer und sucht sich die Termine selber aus. Und wenn man dafür zwei Jahre statt nur einem braucht, ist es halt so.
Für mache SuS wäre das wohl fatal, aber bei #LongCovid ist das die Rettung.
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Ik kreeg deze tip van @MargotvdBerg : Pacely, een app die je helpt om te pacen. Voor bijvoorbeeld mensen met post-covid of ME.
Wat op de site staat, ziet er al goed en interessant uit. Ik ga 'm proberen:
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🔥 psa for anyone taking quercetin on a regular basis 🔥
this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!
(and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)
i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:
take care people and good luck :Blobhaj_Heart_Rainbow:
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🔥 psa for anyone taking quercetin on a regular basis 🔥
this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!
(and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)
i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:
take care people and good luck :Blobhaj_Heart_Rainbow:
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🔥 psa for anyone taking quercetin on a regular basis 🔥
this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!
(and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)
i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:
take care people and good luck :Blobhaj_Heart_Rainbow:
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🔥 psa for anyone taking quercetin on a regular basis 🔥
this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!
(and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)
i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:
take care people and good luck :Blobhaj_Heart_Rainbow:
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🔥 psa for anyone taking quercetin on a regular basis 🔥
this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!
(and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)
i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:
take care people and good luck :Blobhaj_Heart_Rainbow:
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@HGrunbichler
Ja, leider. Die Regelschulen sind organisatorisch gar nicht auf #LongCovid (und vermutlich auch andere chronische Krankheiten) eingerichtet. Bei meiner Tochter hat es trotz Bemühungen der Klassenvorständin nicht geklappt.Die Rettung war das Abendgymnasium Floridsdorf (in Wien). Kein Klassenbucheintrag, wenn man "unentschuldigt" fehlt. Wer möchte kann ein Schuljahr auf zwei aufteilen, wenn es sonst zu viel wird. Das ging dann.
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Today in #ChronicFatigue : I hit a week of exercising every day, without skipping any. And given it has been 15 months since I stopped work, and this is the first time, I feel the need to celebrate that. In this state it is so easy to do too much and knock yourself out for the day(s) after.
It does feel a bit strange to celebrate though, because exercise in this context is 10 minutes at 4.5 km/h on a treadmill. For those of you not used to metric measures, this is a ludicrously minimal amount of exertion; I normally walk at around 6 km/h and ten minutes is, well, ten minutes. And if I try and do this twice too close together (like walking to get an ice cream, sitting for half an hour, and walking back) I wreck my energy levels and sleep for the following several days. #PostViralFatigue #LongCovid
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10.000 Unterschriften sind geschafft!
Petition der ÖG ME/CFS:
https://www.openpetition.eu/at/petition/online/pais-aktionsplan-ohne-betroffene-diese-mindestanforderungen-muessen-im-aktionsplan-verankert-werden -
Yesterday, as part of a long thread on ME/CFS Awareness Day, I posted that the SequenceME research project had gotten partial funding.
"Major funding secured for Sequence ME & Long Covid, a DecodeMe project"
https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/
This is good news! 🎉 More funding is still needed, but this is a good start.
I'm re-posting today because it was buried in my long thread & may have been missed by a lot of folks.
#MEcfs #LongCovid #Genomics #SequenceME #DecodeME #MedMastodon
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De Gezondheidsraad heeft op verzoek van het ministerie van VWS advies gegeven over #longCovid !
Hun advies is dat het een goed idee is er iets aan te doen.
https://www.gezondheidsraad.nl/adviesonderwerpen/covid/post-covid
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'Gezondheidsraad wil meer onderzoek naar post-COVID'
"De Gezondheidsraad wil dat er meer duidelijkheid komt over de diagonstiek en behandeling van post-COVID patiënten. Dat stelt de raad in een advies aan het ministerie van VWS."
"De raad signaleert een belangrijke mate van overeenkomst tussen post-COVID en andere PAIS, zoals postinfectieuze klachten na antibiotisch behandelde lymeziekte, het Q-koortsvermoeidheidssyndroom (QVS), myalgische encefalomyelitis/chronisch vermoeidheidssyndroom (ME/CVS) en het post-sepsissyndroom."
"Volgens de raad is het dan ook belangrijk dat post-COVID en de andere PAIS erkend worden als belangrijke gezondheidsproblemen."
https://www.skipr.nl/nieuws/gezondheidsraad-wil-meer-onderzoek-naar-post-covid/
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'Gezondheidsraad wil meer onderzoek naar post-COVID'
"De Gezondheidsraad wil dat er meer duidelijkheid komt over de diagonstiek en behandeling van post-COVID patiënten. Dat stelt de raad in een advies aan het ministerie van VWS."
"De raad signaleert een belangrijke mate van overeenkomst tussen post-COVID en andere PAIS, zoals postinfectieuze klachten na antibiotisch behandelde lymeziekte, het Q-koortsvermoeidheidssyndroom (QVS), myalgische encefalomyelitis/chronisch vermoeidheidssyndroom (ME/CVS) en het post-sepsissyndroom."
"Volgens de raad is het dan ook belangrijk dat post-COVID en de andere PAIS erkend worden als belangrijke gezondheidsproblemen."
https://www.skipr.nl/nieuws/gezondheidsraad-wil-meer-onderzoek-naar-post-covid/
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'Gezondheidsraad wil meer onderzoek naar post-COVID'
"De Gezondheidsraad wil dat er meer duidelijkheid komt over de diagonstiek en behandeling van post-COVID patiënten. Dat stelt de raad in een advies aan het ministerie van VWS."
"De raad signaleert een belangrijke mate van overeenkomst tussen post-COVID en andere PAIS, zoals postinfectieuze klachten na antibiotisch behandelde lymeziekte, het Q-koortsvermoeidheidssyndroom (QVS), myalgische encefalomyelitis/chronisch vermoeidheidssyndroom (ME/CVS) en het post-sepsissyndroom."
"Volgens de raad is het dan ook belangrijk dat post-COVID en de andere PAIS erkend worden als belangrijke gezondheidsproblemen."
https://www.skipr.nl/nieuws/gezondheidsraad-wil-meer-onderzoek-naar-post-covid/
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'Gezondheidsraad wil meer onderzoek naar post-COVID'
"De Gezondheidsraad wil dat er meer duidelijkheid komt over de diagonstiek en behandeling van post-COVID patiënten. Dat stelt de raad in een advies aan het ministerie van VWS."
"De raad signaleert een belangrijke mate van overeenkomst tussen post-COVID en andere PAIS, zoals postinfectieuze klachten na antibiotisch behandelde lymeziekte, het Q-koortsvermoeidheidssyndroom (QVS), myalgische encefalomyelitis/chronisch vermoeidheidssyndroom (ME/CVS) en het post-sepsissyndroom."
"Volgens de raad is het dan ook belangrijk dat post-COVID en de andere PAIS erkend worden als belangrijke gezondheidsproblemen."
https://www.skipr.nl/nieuws/gezondheidsraad-wil-meer-onderzoek-naar-post-covid/
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In der WDR Lokalzeit aus Düsseldorf wurde gestern ein Beitrag über ME/CFS gesendet. Sie haben eine Selbsthilfegruppe besucht und mit Betroffenen gesprochen.
Da die Anmoderation auch sehr empathisch und sehenswert ist, ab 12:15 in der Mediathek.
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· New study linked ongoing endothelial dysfunction in people with #LongCOVID with neuropsychiatric symptoms
[https://www.sciencedirect.com/science/article/pii/S2666354626000803?via%3Dihub#sec11]
· Small observational study from Jamaica found nearly half of pediatric participants met the diagnostic criteria for Long COVID
[https://journals.lww.com/pidj/fulltext/9900/long_covid_19_in_hospitalized_and_ambulatory.1720.aspx]
· Long COVID clinical trial investigating the cancer drug (sirolimus) rapamycin was recently updated to have an open label extension
[https://www.als-mnd.org/support-for-pals-cals/research/open-label-extension/]https://thesicktimes.org/2026/05/12/research-updates-may-12/
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New research reveals chronic inflammation as potential key driver of long Covid, offering hope for 15 million Americans experiencing persistent symptoms. Groundbreaking study opens new treatment pathways. #LongCovid #Healthcare
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For ME/CFS AwarenessDay I posted a long thread on Mastodon - here's the link! 😁 disabled.social/@ahimsa_pdx/... If you prefer an "unrolled" thread here's that link: mastoreader.io?url=https%3A... #MEcfs #LongCovid #MEAwarenessDay #WorldMEDay
Ahimsa (@[email protected]... -
For ME/CFS AwarenessDay I posted a long thread on Mastodon - here's the link! 😁 disabled.social/@ahimsa_pdx/... If you prefer an "unrolled" thread here's that link: mastoreader.io?url=https%3A... #MEcfs #LongCovid #MEAwarenessDay #WorldMEDay
Ahimsa (@[email protected]... -
For ME/CFS AwarenessDay I posted a long thread on Mastodon - here's the link! 😁 disabled.social/@ahimsa_pdx/... If you prefer an "unrolled" thread here's that link: mastoreader.io?url=https%3A... #MEcfs #LongCovid #MEAwarenessDay #WorldMEDay
Ahimsa (@[email protected]... -
For ME/CFS AwarenessDay I posted a long thread on Mastodon - here's the link! 😁 disabled.social/@ahimsa_pdx/... If you prefer an "unrolled" thread here's that link: mastoreader.io?url=https%3A... #MEcfs #LongCovid #MEAwarenessDay #WorldMEDay
Ahimsa (@[email protected]... -
For ME/CFS AwarenessDay I posted a long thread on Mastodon - here's the link! 😁 disabled.social/@ahimsa_pdx/... If you prefer an "unrolled" thread here's that link: mastoreader.io?url=https%3A... #MEcfs #LongCovid #MEAwarenessDay #WorldMEDay
Ahimsa (@[email protected]... -
Okay, that's all for today! If you made it all the way here, thanks so for reading! ❤️
Please share this information with others! Boost this thread, share links with friends & family, etc.
I'll end with a quote from Naomi Whittingham:
"No matter how isolated you might be, you are inextricably connected to the rest of humanity in ways you can’t fully imagine."
Source = https://alifehidden.com/2026/05/10/not-forgotten/
23/23
#MEcfs #LongCovid #MillionsMissing #MEAwarenessDay #WorldMEDay
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Okay, that's all for today! If you made it all the way here, thanks so for reading! ❤️
Please share this information with others! Boost this thread, share links with friends & family, etc.
I'll end with a quote from Naomi Whittingham:
"No matter how isolated you might be, you are inextricably connected to the rest of humanity in ways you can’t fully imagine."
Source = https://alifehidden.com/2026/05/10/not-forgotten/
23/23
#MEcfs #LongCovid #MillionsMissing #MEAwarenessDay #WorldMEDay
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Okay, that's all for today! If you made it all the way here, thanks so for reading! ❤️
Please share this information with others! Boost this thread, share links with friends & family, etc.
I'll end with a quote from Naomi Whittingham:
"No matter how isolated you might be, you are inextricably connected to the rest of humanity in ways you can’t fully imagine."
Source = https://alifehidden.com/2026/05/10/not-forgotten/
23/23
#MEcfs #LongCovid #MillionsMissing #MEAwarenessDay #WorldMEDay
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Okay, that's all for today! If you made it all the way here, thanks so for reading! ❤️
Please share this information with others! Boost this thread, share links with friends & family, etc.
I'll end with a quote from Naomi Whittingham:
"No matter how isolated you might be, you are inextricably connected to the rest of humanity in ways you can’t fully imagine."
Source = https://alifehidden.com/2026/05/10/not-forgotten/
23/23
#MEcfs #LongCovid #MillionsMissing #MEAwarenessDay #WorldMEDay
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Okay, that's all for today! If you made it all the way here, thanks so for reading! ❤️
Please share this information with others! Boost this thread, share links with friends & family, etc.
I'll end with a quote from Naomi Whittingham:
"No matter how isolated you might be, you are inextricably connected to the rest of humanity in ways you can’t fully imagine."
Source = https://alifehidden.com/2026/05/10/not-forgotten/
23/23
#MEcfs #LongCovid #MillionsMissing #MEAwarenessDay #WorldMEDay
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More details about the Sequence ME and Long Covid research are in this government press release:
"Thousands of ME/CFS patients to benefit from first genomics study"
https://www.gov.uk/government/news/thousands-of-mecfs-patients-to-benefit-from-first-genomics-study
"…the study will enable the SequenceME programme to sequence the genomes of up to 6,000 ME/CFS patients, generating a world-first high-resolution genetic map of the illness."
20/n
#MEcfs #LongCovid #SequenceME #DecodeME #Genomics #MedMastodon
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Another way to help is to donate to the "Sequence ME & Long Covid" research project:
Action for M.E. just announced yesterday that this project got more funding! Read more about the project here:
https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/
19/n
#MEcfs #LongCovid #MedMastodon #SequenceME #Research #ActionForME
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If you're a US resident you can add your story to #MEAction’s story bank.
They want stories from patients, caregivers, friends & family, healthcare providers, disability advocates - anyone who wants to contribute!
They particularly need stories from folks who rely on Medicaid.
You can remain anonymous if you like. Your story can include photos or video (optional)
Details:
https://airtable.com/app4hQ0Pkj285JqK1/pag3Ar4l6GfUGtxP1/form
18/n
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If you're a US resident you can add your story to #MEAction’s story bank.
They want stories from patients, caregivers, friends & family, healthcare providers, disability advocates - anyone who wants to contribute!
They particularly need stories from folks who rely on Medicaid.
You can remain anonymous if you like. Your story can include photos or video (optional)
Details:
https://airtable.com/app4hQ0Pkj285JqK1/pag3Ar4l6GfUGtxP1/form
18/n
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If you're a US resident you can add your story to #MEAction’s story bank.
They want stories from patients, caregivers, friends & family, healthcare providers, disability advocates - anyone who wants to contribute!
They particularly need stories from folks who rely on Medicaid.
You can remain anonymous if you like. Your story can include photos or video (optional)
Details:
https://airtable.com/app4hQ0Pkj285JqK1/pag3Ar4l6GfUGtxP1/form
18/n
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If you're a US resident you can add your story to #MEAction’s story bank.
They want stories from patients, caregivers, friends & family, healthcare providers, disability advocates - anyone who wants to contribute!
They particularly need stories from folks who rely on Medicaid.
You can remain anonymous if you like. Your story can include photos or video (optional)
Details:
https://airtable.com/app4hQ0Pkj285JqK1/pag3Ar4l6GfUGtxP1/form
18/n
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If you're a US resident you can add your story to #MEAction’s story bank.
They want stories from patients, caregivers, friends & family, healthcare providers, disability advocates - anyone who wants to contribute!
They particularly need stories from folks who rely on Medicaid.
You can remain anonymous if you like. Your story can include photos or video (optional)
Details:
https://airtable.com/app4hQ0Pkj285JqK1/pag3Ar4l6GfUGtxP1/form
18/n
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I'm back to list ways you can help folks with ME/CFS & Long Covid.
USA resident? You can add your signature to #MEAction's letter to the HHS secretary!
Congress has mandated that Medicaid recipients must work 80 hours a month unless they can prove they're “medically frail." This letter urges HHS to recognize people with ME/CFS & Long COVID as “medically frail" to protect their Medicaid access.
https://www.meaction.net/savemedicaid
17/n
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I'm back to list ways you can help folks with ME/CFS & Long Covid.
USA resident? You can add your signature to #MEAction's letter to the HHS secretary!
Congress has mandated that Medicaid recipients must work 80 hours a month unless they can prove they're “medically frail." This letter urges HHS to recognize people with ME/CFS & Long COVID as “medically frail" to protect their Medicaid access.
https://www.meaction.net/savemedicaid
17/n
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I'm back to list ways you can help folks with ME/CFS & Long Covid.
USA resident? You can add your signature to #MEAction's letter to the HHS secretary!
Congress has mandated that Medicaid recipients must work 80 hours a month unless they can prove they're “medically frail." This letter urges HHS to recognize people with ME/CFS & Long COVID as “medically frail" to protect their Medicaid access.
https://www.meaction.net/savemedicaid
17/n
