#longcovid — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #longcovid, aggregated by home.social.
-
CW: disability, expenses, long covid, POTS
being disabled is always expensive (I have to pay more for things I can use instead of being able to do it myself), but here's an example of a cost that might not be obvious:
I have POTS (postural orthostatic tachycardia syndrome), which means my heartrate spikes when not laying flat :psyduck_sweat:
one tool used to mitigate some of the effects is compression leggings (from my ankles to the bottom of my ribcage), which were $30~40 for a decent pair...
which now doesn't compress my butt and torso very well because I've lost so much of my musculature over the last year of being bedridden :frog_sus:
I've been contemplating having to get a new pair that fits a bit better, but I'm also unsure how long that would last :bear_shrug:
#Disability #Covid #LongCovid #MECFS #POTS
p.s. if you're not disabled, I need you to take in this information, use it to fuel your empathy for disabled people (you will join us one day, as a note), and act on that empathy :hug_love:
-
From the Netherlands 🇳🇱
A brief report: absence of elevated circulating NETosis markers in long-term long COVID
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers -
In den vergangenen Jahren habe sich bereits viel bewegt. Ihr Fazit: „Es darf nicht aufhören, und es muss weitergehen.“
Mehr Informationen findet ihr auf unserer Website unter: https://www.fatigatio.de/aktuelles
#MECFS #LongCovid #Patientenbeteiligung #Gesundheitspolitik #Versorgung #Fatigatio
(3/3)
-
From Poland 🇵🇱
Microvascular Dysfunction and Redox Imbalance in Long COVID
https://onlinelibrary.wiley.com/doi/10.1111/micc.70085
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers -
From Poland 🇵🇱
Microvascular Dysfunction and Redox Imbalance in Long COVID
https://onlinelibrary.wiley.com/doi/10.1111/micc.70085
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers -
From Poland 🇵🇱
Microvascular Dysfunction and Redox Imbalance in Long COVID
https://onlinelibrary.wiley.com/doi/10.1111/micc.70085
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers -
From Poland 🇵🇱
Microvascular Dysfunction and Redox Imbalance in Long COVID
https://onlinelibrary.wiley.com/doi/10.1111/micc.70085
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers -
From Poland 🇵🇱
Microvascular Dysfunction and Redox Imbalance in Long COVID
https://onlinelibrary.wiley.com/doi/10.1111/micc.70085
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers -
Here's the latest News in Brief (Sept. 7 - 13) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450
Public posts on the forum can be read by anyone, but if you'd like to join the discussion then you'll need to become a forum member. It's free 😁
-
Here's the latest News in Brief (Sept. 7 - 13) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450
Public posts on the forum can be read by anyone, but if you'd like to join the discussion then you'll need to become a forum member. It's free 😁
-
Here's the latest News in Brief (Sept. 7 - 13) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450
Public posts on the forum can be read by anyone, but if you'd like to join the discussion then you'll need to become a forum member. It's free 😁
-
Here's the latest News in Brief (Sept. 7 - 13) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450
Public posts on the forum can be read by anyone, but if you'd like to join the discussion then you'll need to become a forum member. It's free 😁
-
Here's the latest News in Brief (Sept. 7 - 13) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450
Public posts on the forum can be read by anyone, but if you'd like to join the discussion then you'll need to become a forum member. It's free 😁
-
Long Covid Kids have developed resources for children and parents including an Individual Healthcare Plan (IHCP) template, available for download as Word or PDF
https://www.longcovidkids.org/download-resources
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
#LongCovidKids #PASC -
Long Covid Kids have developed resources for children and parents including an Individual Healthcare Plan (IHCP) template, available for download as Word or PDF
https://www.longcovidkids.org/download-resources
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
#LongCovidKids #PASC -
Long Covid Kids have developed resources for children and parents including an Individual Healthcare Plan (IHCP) template, available for download as Word or PDF
https://www.longcovidkids.org/download-resources
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
#LongCovidKids #PASC -
Long Covid Kids have developed resources for children and parents including an Individual Healthcare Plan (IHCP) template, available for download as Word or PDF
https://www.longcovidkids.org/download-resources
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
#LongCovidKids #PASC -
Long Covid Kids have developed resources for children and parents including an Individual Healthcare Plan (IHCP) template, available for download as Word or PDF
https://www.longcovidkids.org/download-resources
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
#LongCovidKids #PASC -
@whn
I'm wearing my mask, the contractor is wearing theirs, and 2 air purifiers are running (different rooms) while some repairs are being done inside our house.I know nothing is 100% safe but that doesn't mean taking precautions is useless!
-
@whn
I'm wearing my mask, the contractor is wearing theirs, and 2 air purifiers are running (different rooms) while some repairs are being done inside our house.I know nothing is 100% safe but that doesn't mean taking precautions is useless!
-
@whn
I'm wearing my mask, the contractor is wearing theirs, and 2 air purifiers are running (different rooms) while some repairs are being done inside our house.I know nothing is 100% safe but that doesn't mean taking precautions is useless!
-
@whn
I'm wearing my mask, the contractor is wearing theirs, and 2 air purifiers are running (different rooms) while some repairs are being done inside our house.I know nothing is 100% safe but that doesn't mean taking precautions is useless!
-
@whn
I'm wearing my mask, the contractor is wearing theirs, and 2 air purifiers are running (different rooms) while some repairs are being done inside our house.I know nothing is 100% safe but that doesn't mean taking precautions is useless!
-
Meine Kolumne für das Mo Magazin für Menschenrechte über ME/CFS
-
Meine Kolumne für das Mo Magazin für Menschenrechte über ME/CFS
-
Meine Kolumne für das Mo Magazin für Menschenrechte über ME/CFS
-
Meine Kolumne für das Mo Magazin für Menschenrechte über ME/CFS
-
Meine Kolumne für das Mo Magazin für Menschenrechte über ME/CFS
-
2/
“Discussion of LP, its use of NLP, the SMILE trial, the Jason Busse LP trial was thorough and accurate.”
#LongCovid #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
@mecfs @longcovid -
2/
“Discussion of LP, its use of NLP, the SMILE trial, the Jason Busse LP trial was thorough and accurate.”
#LongCovid #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
@mecfs @longcovid -
2/
“Discussion of LP, its use of NLP, the SMILE trial, the Jason Busse LP trial was thorough and accurate.”
#LongCovid #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
@mecfs @longcovid -
2/
“Discussion of LP, its use of NLP, the SMILE trial, the Jason Busse LP trial was thorough and accurate.”
#LongCovid #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
@mecfs @longcovid -
2/
“Discussion of LP, its use of NLP, the SMILE trial, the Jason Busse LP trial was thorough and accurate.”
#LongCovid #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
@mecfs @longcovid -
Seen in the Dr. Ruth report: "...Shionogi states on their website that Ensitrelvir [Xocova] contains gluten which is very important for Celiac patients to know."
Link to site, though it redirects if you select that you are not a medical professional: https://www.shionogimedical.com/search?product=00P00000000H001&t=0&key_w=gluten
-
Seen in the Dr. Ruth report: "...Shionogi states on their website that Ensitrelvir [Xocova] contains gluten which is very important for Celiac patients to know."
Link to site, though it redirects if you select that you are not a medical professional: https://www.shionogimedical.com/search?product=00P00000000H001&t=0&key_w=gluten
-
Seen in the Dr. Ruth report: "...Shionogi states on their website that Ensitrelvir [Xocova] contains gluten which is very important for Celiac patients to know."
Link to site, though it redirects if you select that you are not a medical professional: https://www.shionogimedical.com/search?product=00P00000000H001&t=0&key_w=gluten
-
Seen in the Dr. Ruth report: "...Shionogi states on their website that Ensitrelvir [Xocova] contains gluten which is very important for Celiac patients to know."
Link to site, though it redirects if you select that you are not a medical professional: https://www.shionogimedical.com/search?product=00P00000000H001&t=0&key_w=gluten
-
Seen in the Dr. Ruth report: "...Shionogi states on their website that Ensitrelvir [Xocova] contains gluten which is very important for Celiac patients to know."
Link to site, though it redirects if you select that you are not a medical professional: https://www.shionogimedical.com/search?product=00P00000000H001&t=0&key_w=gluten
-
Conspirituality 325: Long COVID Profiteers
The second half of this podcast episode discusses Long Covid, ME/CFS, "neuro-bollocks"-treatments such as the Lightning Process, the weak scientific methods behind trials as FALCON, SMILE and PACE and more.
https://www.conspirituality.net/episodes/326-long-covid-updateHaven't listened so far but saw praise for it
#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid
1/
-
Conspirituality 325: Long COVID Profiteers
The second half of this podcast episode discusses Long Covid, ME/CFS, "neuro-bollocks"-treatments such as the Lightning Process, the weak scientific methods behind trials as FALCON, SMILE and PACE and more.
https://www.conspirituality.net/episodes/326-long-covid-updateHaven't listened so far but saw praise for it
#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid
1/
-
Conspirituality 325: Long COVID Profiteers
The second half of this podcast episode discusses Long Covid, ME/CFS, "neuro-bollocks"-treatments such as the Lightning Process, the weak scientific methods behind trials as FALCON, SMILE and PACE and more.
https://www.conspirituality.net/episodes/326-long-covid-updateHaven't listened so far but saw praise for it
#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid
1/
-
Conspirituality 325: Long COVID Profiteers
The second half of this podcast episode discusses Long Covid, ME/CFS, "neuro-bollocks"-treatments such as the Lightning Process, the weak scientific methods behind trials as FALCON, SMILE and PACE and more.
https://www.conspirituality.net/episodes/326-long-covid-updateHaven't listened so far but saw praise for it
#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid
1/
-
Conspirituality 325: Long COVID Profiteers
The second half of this podcast episode discusses Long Covid, ME/CFS, "neuro-bollocks"-treatments such as the Lightning Process, the weak scientific methods behind trials as FALCON, SMILE and PACE and more.
https://www.conspirituality.net/episodes/326-long-covid-updateHaven't listened so far but saw praise for it
#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid
1/
-
Very recent videopresentation about ME/CFS and potential treatment using novel molecule IVO-21, from dr Jay H. Chung lab.
#MECFS #BrainFog #LongCovid #Mitochondria #ChronicFatigue
https://www.youtube.com/watch?v=IBXYhRInY0o -
Very recent videopresentation about ME/CFS and potential treatment using novel molecule IVO-21, from dr Jay H. Chung lab.
#MECFS #BrainFog #LongCovid #Mitochondria #ChronicFatigue
https://www.youtube.com/watch?v=IBXYhRInY0o -
Very recent videopresentation about ME/CFS and potential treatment using novel molecule IVO-21, from dr Jay H. Chung lab.
#MECFS #BrainFog #LongCovid #Mitochondria #ChronicFatigue
https://www.youtube.com/watch?v=IBXYhRInY0o -
Very recent videopresentation about ME/CFS and potential treatment using novel molecule IVO-21, from dr Jay H. Chung lab.
#MECFS #BrainFog #LongCovid #Mitochondria #ChronicFatigue
https://www.youtube.com/watch?v=IBXYhRInY0o -
Very recent videopresentation about ME/CFS and potential treatment using novel molecule IVO-21, from dr Jay H. Chung lab.
#MECFS #BrainFog #LongCovid #Mitochondria #ChronicFatigue
https://www.youtube.com/watch?v=IBXYhRInY0o
