#longcovid — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #longcovid, aggregated by home.social.
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From Germany 🇩🇪
Impact of immunoadsorption on autoantibodies and physical performance in post-COVID patients: a prospective exploratory study of 18 participants
https://link.springer.com/article/10.1007/s15010-026-02914-8
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers -
Tenslotte schieten de aanmeldingen van #LongCovid -patiënten bij C-Support omhoog na de mededeling dat de organisatie eind 2026 stopt wegens onvoldoende financiering (afb. 4): 375 nieuwe aanmeldingen in juli! Dit is een duidelijk signaal hoe hoog de nood is bij LongCovid-patiënten, die nu in een diep gat dreigen te vallen!
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Es gab so einen Kipppunkt - ich erinnere mich noch an eine PK von Kretschmann, wo er sinngemäß sagte, man hätte jetzt die Wahl gehabt, zu entscheiden, ob man andere Infektionskrankheiten so behandele wie Covid-19 (mit Tests, Quarantäne usw.) oder Covid-19 so wie andere Infektionskrankheiten.
Die Mittel wären dagewesen, es gab Schnelltests auch f. Grippe, es gab Wissen über Aerosole und Wirkung von Masken.
Wir haben das mit den Fähnchen gemacht. 🤷♀️
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Over 60,000 people in the German state of North Rhine-Westphalia sought treatment last year for severe long-term effects linked to #COVID, with many being unable to work & isolated. This is 0.3% of the population, in only one year: rp-online.de/nrw/landespo... #Covid19 #LongCovid #MECFS #Health
Mehr Fälle von ME/CFS seit Cor... -
It seems like there is constantly something that needs doing that hasn't been done in a year or more. Today I assisted in pollarding our trees which hadn't been done in seven years! We're still catching up on the things I couldn't do while being unwell and then doing a dissertaion. I'm still limited in what I can do but not severely.
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"Canada’s McMaster University Launches Trial of Lightning Process for Long Covid" By David Tuller
https://virology.ws/2026/08/22/trial-by-error-canadas-mcmaster-university-launches-trial-of-lightning-process-for-long-covid/Most important point to me is lack of objective outcome measures where people are trained to say they are well and not mention impairments or symptoms.
I like first comment under blog post
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Healthcare utilisation and cost among individuals with Long COVID in England and Wales: potential value of specialised post-COVID services
https://journals.sagepub.com/doi/10.1177/01410768261476537
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers -
From Germany 🇩🇪
Peripheral metabolic signatures in patients with neuropsychiatric long COVID syndrome
https://www.medrxiv.org/content/10.64898/2026.08.07.26359942v1
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers -
#SarsCoV2 Hoogleraar Machteld Vonk van de Radboud Universiteit (Nijmegen) merkt in een Linkedin-post op dat het hebben van #LongCovid noch het risico om het te krijgen na een Covidinfectie, geen overweging is bij de beschikbaarstelling van het Covid-vaccin. Dit jaar krijgt uitsluitend de groep 70+ nog het vaccin aangeboden. Weliswaar loopt die groep een duidelijk hoger risico op een ziekenhuisopname na een Covidinfectie, maar de 5-25% mensen die na een Covidinfectie langdurige klachten houden is veel minder afhankelijk van leeftijd. Nog steeds kijkt de Gezondheidsraad uitsluitend naar het risico op ziekenhuisopname na een acute infectie, zoals alle jaren in de pandemie bij het nemen van maatregelen het risico op Long Covid steeds genegeerd is. En bij de Parlementaire Enquête Corona wordt het wéér genegeerd.
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"Questions to ask when evaluating evidence from clinical trials" By Simon Spichak
https://thesicktimes.org/questions-to-ask-when-evaluating-evidence-from-clinical-trials/
Although this makes some references to long Covid when giving examples, it's relevant and informative for all conditions
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Four in ten is NOT rare.
“Four in ten healthcare workers worldwide who were infected with SARS-CoV-2 during the pandemic developed long covid, and a quarter still had symptoms after a year, a report has found.”
#COVID #LongCovid
https://www.bmj.com/content/394/bmj-2026-100628 -
"How to interpret clinical trial results for Long COVID"
"Even when results are 'statistically significant, the treatment might not actually work."
https://thesicktimes.org/2026/07/21/how-to-interpret-clinical-trial-results-for-long-covid/
Equally relevant for other conditions. Some well-known ME/CFS and long Covid figures are quoted.
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The responses:
* Yale has a #LongCOVID support group. I guess that’s nice but it’s not exactly treating the condition(s).
* Here, I Googled some shit, have a link.
* Gaslighting, though not about the long Covid itself .So, better than expected. But also worse, because OP doesn’t seem to have gotten any actual answers.
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From @onelife_livedwell on IG: Interoception is your body’s ability to sense what’s happening on the inside. In athletes, we call this body awareness, but in chronic conditions, it’s too often labeled anxiety.
#chronicillness #spoonie #mecfs #longtermillness #longcovid @mecfs
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Nextdoor post from somebody looking for a #LongCOVID doctor?
I may actually sign in to read this.
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CW: Health & Friendship
I had a pretty long (few years) experience with a mystery (maybe LC maybe not) sick.
It has been getting better, a lot so... I'm in a gross right now worse than usu and tbh it might be silver linings bc we may have found a reason and an effective cure. But that's kind of not what I want to talk abt
You... kind of realize how few ppl actually give a fk abt u when u are sick. Ppl are quick to claim u as a friend when they need u, or when they need a weirdly hellion pal, but when you need someone to lean on... everyone is busy, or unavailable, or they ditch out bc hey, the weirdly girl is actually ppl too.
I wish I didn't feel that way but I do.
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From Saudi Arabia 🇸🇦
Postural control and trunk mobility impairments in adults with long COVID: A cross-sectional study using computerized posturography and clinical biomechanical tools
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0354593
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers -
From Canada 🇨🇦
Identifying EEG biomarkers of fatigue and brain fog in long COVID: insights from rest and movement-related brain activity
https://www.jocn-journal.com/article/S0967-5868(26)00381-4/abstract
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC -
From the US 🇺🇸
Multiomic and Spatial Profiling of Colorectal Tissue Reveals Viral Persistence and Immune Dysregulation in Long COVID
https://www.biorxiv.org/content/10.64898/2026.08.07.743616v1
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers -
“Trial By Error: Some Things I’ve Recently Read…Ponting on BPS, Viral Reactivation, and ME/CFS and HIV/AIDS” by David Tuller DrPH
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@staringatclouds @PhoenixSerenity
I hope that's the case!According to CDC, 40% of covid positive individuals were completely asymptomatic. Asymptomatic infections can still cause #LongCovid, for anyone who wasn't aware:
https://en.wikipedia.org/wiki/Statistics_of_the_COVID-19_pandemic_in_the_United_States -
CW: COVID News Pandemic Long COVID
Pandemic Roundup: August 20, 2026 by @violetblue
https://www.patreon.com/violetblue/posts/pandemic-roundup-167171246
#Cyclosporiasis in the US: Officials still have not identified a source, there are seven active FDA investigations
#Ebola: Death rate has reached 46%, with 5,021 cases & 2,378 deaths
#COVID: CDC has once again refreshed its Covid color scheme to add soothing colors
And much more.
"Stay apart, stand together, mask up, & stay strong."
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As of late i notice a pattern with people that i asked if they were willing to be considerate in regards to my illness, for instance to wear a mask around me, who started to turn passive-aggressive or openly hostile towards me. I wonder if this a cultural thing, typical for the country where i live, or if other people make the same experience. It has started in the last three months or so.
I would much prefer if people outright told me what their issue was. But hey.