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#cfs — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #cfs, aggregated by home.social.

  1. We were involved in helping to organise this interview.

    We think it is likely in the Donegal Democrat newspaper this week as Aoife works for them
    donegallive.ie/news/milford-md

    #MEcfs #CFS @mecfs

    #CFSME #MEeps

  2. Emerge Australia:
    Communiqué: Fatigue isn't the same as post-exertional malaise (PEM)

    "PEM is real. It is serious. And it must not be made worse by misunderstanding."

    Signed by researchers, clinicians and advocates.
    emerge.org.au/wp-content/uploa

    #PEM #MEcfs #CFS #PwME @mecfs

  3. Emerge Australia:
    Communiqué: Fatigue isn't the same as post-exertional malaise (PEM)

    "PEM is real. It is serious. And it must not be made worse by misunderstanding."

    Signed by researchers, clinicians and advocates.
    emerge.org.au/wp-content/uploa

    #PEM #MEcfs #CFS #PwME @mecfs

  4. Emerge Australia:
    Communiqué: Fatigue isn't the same as post-exertional malaise (PEM)

    "PEM is real. It is serious. And it must not be made worse by misunderstanding."

    Signed by researchers, clinicians and advocates.
    emerge.org.au/wp-content/uploa

    #PEM #MEcfs #CFS #PwME @mecfs

  5. Emerge Australia:
    Communiqué: Fatigue isn't the same as post-exertional malaise (PEM)

    "PEM is real. It is serious. And it must not be made worse by misunderstanding."

    Signed by researchers, clinicians and advocates.
    emerge.org.au/wp-content/uploa

    #PEM #MEcfs #CFS #PwME @mecfs

  6. Emerge Australia:
    Communiqué: Fatigue isn't the same as post-exertional malaise (PEM)

    "PEM is real. It is serious. And it must not be made worse by misunderstanding."

    Signed by researchers, clinicians and advocates.
    emerge.org.au/wp-content/uploa

    #PEM #MEcfs #CFS #PwME @mecfs

  7. As part of ME Awareness week, ME Research UK will consider research progress, and challenges faced, when working to understand key symptoms of ME/CFS.

    Today, the focus is on Post-exertional malaise (PEM), the cardinal feature of ME/CFS.

    Read more: bit.ly/42bpC2D

    #pem #mecfs #cfs #pwme @mecfs

  8. As part of ME Awareness week, ME Research UK will consider research progress, and challenges faced, when working to understand key symptoms of ME/CFS.

    Today, the focus is on Post-exertional malaise (PEM), the cardinal feature of ME/CFS.

    Read more: bit.ly/42bpC2D

    #pem #mecfs #cfs #pwme @mecfs

  9. As part of ME Awareness week, ME Research UK will consider research progress, and challenges faced, when working to understand key symptoms of ME/CFS.

    Today, the focus is on Post-exertional malaise (PEM), the cardinal feature of ME/CFS.

    Read more: bit.ly/42bpC2D

    #pem #mecfs #cfs #pwme @mecfs

  10. As part of ME Awareness week, ME Research UK will consider research progress, and challenges faced, when working to understand key symptoms of ME/CFS.

    Today, the focus is on Post-exertional malaise (PEM), the cardinal feature of ME/CFS.

    Read more: bit.ly/42bpC2D

    #pem #mecfs #cfs #pwme @mecfs

  11. As part of ME Awareness week, ME Research UK will consider research progress, and challenges faced, when working to understand key symptoms of ME/CFS.

    Today, the focus is on Post-exertional malaise (PEM), the cardinal feature of ME/CFS.

    Read more: bit.ly/42bpC2D

    #pem #mecfs #cfs #pwme @mecfs

  12. From ME Awareness Week.
    tinyurl.com/MEAW2026

    The experience of cognitive dysfunction, ‘brain fog’, cannot be equated to the occasional forgetfulness and lapses in concentration experienced by healthy individuals.

    How does 'brain fog' impact your daily life?👇

    #mecfs #cfs #pwme #brainfog @mecfs

  13. This week, ME Awareness week 2026, ME Research UK are considering research progress, and challenges faced, when working to understand key symptoms of ME/CFS.

    Today, the focus is on Brain fog (also known as cognitive dysfunction): bit.ly/42bpC2D

    #brainfog #mecfs #cfs #pwme @mecfs

  14. From ME Awareness Week.
    tinyurl.com/MEAW2026

    Fatigue in ME/CFS is not just tiredness, it is a persistent symptom that is not adequately relieved by rest and significantly impacts activities of daily living.

    How does fatigue impact your daily life?👇

    #mecfs #cfs #fatigue #pwme @mecfs

  15. From ME Awareness Week.
    tinyurl.com/MEAW2026

    Fatigue in ME/CFS is not just tiredness, it is a persistent symptom that is not adequately relieved by rest and significantly impacts activities of daily living.

    How does fatigue impact your daily life?👇

    #mecfs #cfs #fatigue #pwme @mecfs

  16. From ME Awareness Week.
    tinyurl.com/MEAW2026

    Fatigue in ME/CFS is not just tiredness, it is a persistent symptom that is not adequately relieved by rest and significantly impacts activities of daily living.

    How does fatigue impact your daily life?👇

    #mecfs #cfs #fatigue #pwme @mecfs

  17. From ME Awareness Week.
    tinyurl.com/MEAW2026

    Fatigue in ME/CFS is not just tiredness, it is a persistent symptom that is not adequately relieved by rest and significantly impacts activities of daily living.

    How does fatigue impact your daily life?👇

    #mecfs #cfs #fatigue #pwme @mecfs

  18. From ME Awareness Week.
    tinyurl.com/MEAW2026

    Fatigue in ME/CFS is not just tiredness, it is a persistent symptom that is not adequately relieved by rest and significantly impacts activities of daily living.

    How does fatigue impact your daily life?👇

    #mecfs #cfs #fatigue #pwme @mecfs

  19. For ME Awareness week 2026, ME Research UK has considered research progress, and challenges faced, relating to key symptoms of ME/CFS.

    Today, the focus is on fatigue: bit.ly/42bpC2D

    #mecfs #cfs #fatigue #pwme @mecfs

  20. For ME Awareness week 2026, ME Research UK has considered research progress, and challenges faced, relating to key symptoms of ME/CFS.

    Today, the focus is on fatigue: bit.ly/42bpC2D

    #mecfs #cfs #fatigue #pwme @mecfs

  21. For ME Awareness week 2026, ME Research UK has considered research progress, and challenges faced, relating to key symptoms of ME/CFS.

    Today, the focus is on fatigue: bit.ly/42bpC2D

    #mecfs #cfs #fatigue #pwme @mecfs

  22. For ME Awareness week 2026, ME Research UK has considered research progress, and challenges faced, relating to key symptoms of ME/CFS.

    Today, the focus is on fatigue: bit.ly/42bpC2D

    #mecfs #cfs #fatigue #pwme @mecfs

  23. For ME Awareness week 2026, ME Research UK has considered research progress, and challenges faced, relating to key symptoms of ME/CFS.

    Today, the focus is on fatigue: bit.ly/42bpC2D

    #mecfs #cfs #fatigue #pwme @mecfs

  24. A year ago we started a CFS Recovery Plan based on guidance from The Fatigue Book by Lydia Rolley.
    This has involved a lot of resting, but rest is not synonymous with idleness or inertia.
    Here's what I've been up to, including
    #knitting #crochet #gardening and #drawing
    deborah.makarios.nz/2026/05/24
    #CFS #ChronicIllness #LydiaRolley

  25. RE: troet.cafe/@woz/11661227049775

    Es ist extrem erfreulich, endlich mal wieder einen guten Artikel zum Thema #mecfs #chronicfatique #longCovid zu lesen, indem sowohl Studien ausgewertet, als auch Betroffene ernst genommen werden

    Es ist unglaublich, dass Betroffene immer noch beschuldigt werden, sich die #Krankheit einzubilden

    Es gibt eine #Goldengirls Folge aus den 1980ern zu #cfs in der sich Dorothy all das anhören muss, was Menschen auch noch heute durchmachen müssen

    Danke @woz @errrferrr & Noëmi Landolt :awesome:

  26. RE: troet.cafe/@woz/11661227049775

    Es ist extrem erfreulich, endlich mal wieder einen guten Artikel zum Thema #mecfs #chronicfatique #longCovid zu lesen, indem sowohl Studien ausgewertet, als auch Betroffene ernst genommen werden

    Es ist unglaublich, dass Betroffene immer noch beschuldigt werden, sich die #Krankheit einzubilden

    Es gibt eine #Goldengirls Folge aus den 1980ern zu #cfs in der sich Dorothy all das anhören muss, was Menschen auch noch heute durchmachen müssen

    Danke @woz @errrferrr & Noëmi Landolt :awesome:

  27. RE: troet.cafe/@woz/11661227049775

    Es ist extrem erfreulich, endlich mal wieder einen guten Artikel zum Thema #mecfs #chronicfatique #longCovid zu lesen, indem sowohl Studien ausgewertet, als auch Betroffene ernst genommen werden

    Es ist unglaublich, dass Betroffene immer noch beschuldigt werden, sich die #Krankheit einzubilden

    Es gibt eine #Goldengirls Folge aus den 1980ern zu #cfs in der sich Dorothy all das anhören muss, was Menschen auch noch heute durchmachen müssen

    Danke @woz @errrferrr & Noëmi Landolt :awesome:

  28. RE: troet.cafe/@woz/11661227049775

    Es ist extrem erfreulich, endlich mal wieder einen guten Artikel zum Thema #mecfs #chronicfatique #longCovid zu lesen, indem sowohl Studien ausgewertet, als auch Betroffene ernst genommen werden

    Es ist unglaublich, dass Betroffene immer noch beschuldigt werden, sich die #Krankheit einzubilden

    Es gibt eine #Goldengirls Folge aus den 1980ern zu #cfs in der sich Dorothy all das anhören muss, was Menschen auch noch heute durchmachen müssen

    Danke @woz @errrferrr & Noëmi Landolt :awesome:

  29. RE: troet.cafe/@woz/11661227049775

    Es ist extrem erfreulich, endlich mal wieder einen guten Artikel zum Thema #mecfs #chronicfatique #longCovid zu lesen, indem sowohl Studien ausgewertet, als auch Betroffene ernst genommen werden

    Es ist unglaublich, dass Betroffene immer noch beschuldigt werden, sich die #Krankheit einzubilden

    Es gibt eine #Goldengirls Folge aus den 1980ern zu #cfs in der sich Dorothy all das anhören muss, was Menschen auch noch heute durchmachen müssen

    Danke @woz @errrferrr & Noëmi Landolt :awesome:

  30. 12 days left on the AppSec Village #CFP for DEF CON 34!

    If you've got an idea you've been turning over — a technique, a lesson learned, a tool you've built, there's still time to get it in.

    Talks, panels, workshops, and Arsenal demos all welcome. Every submission is reviewed blind, and we love seeing first-time speakers in the lineup!

    Deadline: May 31. We're rooting for you.

    Submit → buff.ly/j8vhDE5

    #callforspeakers #callforpapers #cfp #cfs #defcon #defcon34

  31. 12 days left on the AppSec Village #CFP for DEF CON 34!

    If you've got an idea you've been turning over — a technique, a lesson learned, a tool you've built, there's still time to get it in.

    Talks, panels, workshops, and Arsenal demos all welcome. Every submission is reviewed blind, and we love seeing first-time speakers in the lineup!

    Deadline: May 31. We're rooting for you.

    Submit → buff.ly/j8vhDE5

    #callforspeakers #callforpapers #cfp #cfs #defcon #defcon34

  32. 12 days left on the AppSec Village #CFP for DEF CON 34!

    If you've got an idea you've been turning over — a technique, a lesson learned, a tool you've built, there's still time to get it in.

    Talks, panels, workshops, and Arsenal demos all welcome. Every submission is reviewed blind, and we love seeing first-time speakers in the lineup!

    Deadline: May 31. We're rooting for you.

    Submit → buff.ly/j8vhDE5

    #callforspeakers #callforpapers #cfp #cfs #defcon #defcon34

  33. 12 days left on the AppSec Village #CFP for DEF CON 34!

    If you've got an idea you've been turning over — a technique, a lesson learned, a tool you've built, there's still time to get it in.

    Talks, panels, workshops, and Arsenal demos all welcome. Every submission is reviewed blind, and we love seeing first-time speakers in the lineup!

    Deadline: May 31. We're rooting for you.

    Submit → buff.ly/j8vhDE5

    #callforspeakers #callforpapers #cfp #cfs #defcon #defcon34

  34. #MEAction:
    We Made Real Progress at #MillionsMissing — Here's What's Next

    Update on the May 12th event at the HHS headquarters in Washington, DC, and a report on getting funding for the ME/CFS Research Roadmap.

    meaction.net/post/we-made-real

    #mecfs #pwme #CFS @mecfs