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#chronicfatiguesyndrome — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #chronicfatiguesyndrome, aggregated by home.social.

  1. 4/
    “Cochrane’s interest in maintaining the trust of deliberative bodies is about getting its products used (helping to justify whatever funding it receives from whatever source). Its interest in maintaining the trust of the scientific community is about being able to attract reviewers.”

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

    @hildabast @mecfs

  2. 4/
    “Cochrane’s interest in maintaining the trust of deliberative bodies is about getting its products used (helping to justify whatever funding it receives from whatever source). Its interest in maintaining the trust of the scientific community is about being able to attract reviewers.”

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

    @hildabast @mecfs

  3. 4/
    “Cochrane’s interest in maintaining the trust of deliberative bodies is about getting its products used (helping to justify whatever funding it receives from whatever source). Its interest in maintaining the trust of the scientific community is about being able to attract reviewers.”

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

    @hildabast @mecfs

  4. 4/
    “Cochrane’s interest in maintaining the trust of deliberative bodies is about getting its products used (helping to justify whatever funding it receives from whatever source). Its interest in maintaining the trust of the scientific community is about being able to attract reviewers.”

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

    @hildabast @mecfs

  5. 4/
    “Cochrane’s interest in maintaining the trust of deliberative bodies is about getting its products used (helping to justify whatever funding it receives from whatever source). Its interest in maintaining the trust of the scientific community is about being able to attract reviewers.”

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

    @hildabast @mecfs

  6. ME/CFS San Diego Heat Guide 2026:

    Updated resource for managing ME/CFS heat intolerance. This page features an evidence-based medication risk guide, practical cooling strategies, & tips for temperature instability: mecfssandiego.com/mecfs-resour (website & PDF)

    @mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

  7. ME/CFS San Diego Heat Guide 2026:

    Updated resource for managing ME/CFS heat intolerance. This page features an evidence-based medication risk guide, practical cooling strategies, & tips for temperature instability: mecfssandiego.com/mecfs-resour (website & PDF)

    @mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

  8. ME/CFS San Diego Heat Guide 2026:

    Updated resource for managing ME/CFS heat intolerance. This page features an evidence-based medication risk guide, practical cooling strategies, & tips for temperature instability: mecfssandiego.com/mecfs-resour (website & PDF)

    @mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

  9. ME/CFS San Diego Heat Guide 2026:

    Updated resource for managing ME/CFS heat intolerance. This page features an evidence-based medication risk guide, practical cooling strategies, & tips for temperature instability: mecfssandiego.com/mecfs-resour (website & PDF)

    @mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

  10. ME/CFS San Diego Heat Guide 2026:

    Updated resource for managing ME/CFS heat intolerance. This page features an evidence-based medication risk guide, practical cooling strategies, & tips for temperature instability: mecfssandiego.com/mecfs-resour (website & PDF)

    @mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

  11. 2/

    Screenshot from latest Science for ME weekly update

    Hydrocarbon Receptor Agonists in the Gut Microbiome of People With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

    onlinelibrary.wiley.com/doi/10

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
    @mecfs

  12. 2/

    Screenshot from latest Science for ME weekly update

    Hydrocarbon Receptor Agonists in the Gut Microbiome of People With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

    onlinelibrary.wiley.com/doi/10

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
    @mecfs

  13. 2/

    Screenshot from latest Science for ME weekly update

    Hydrocarbon Receptor Agonists in the Gut Microbiome of People With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

    onlinelibrary.wiley.com/doi/10

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
    @mecfs

  14. 2/

    Screenshot from latest Science for ME weekly update

    Hydrocarbon Receptor Agonists in the Gut Microbiome of People With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

    onlinelibrary.wiley.com/doi/10

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
    @mecfs

  15. 2/

    Screenshot from latest Science for ME weekly update

    Hydrocarbon Receptor Agonists in the Gut Microbiome of People With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

    onlinelibrary.wiley.com/doi/10

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
    @mecfs

  16. Understanding Akureyri Disease and Its Link to ME/CFS

    In the winter of 1948, the quiet town of Akureyri, Iceland, became the epicenter of a medical mystery. An unusual illness swept through the community, affecting hundreds of residents—particularly teenagers and young adults. Historically known as Akureyri disease (or "Iceland disease"), this outbreak is now recognized by medical historians as one of the earliest and most well-documented clusters of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS). 🔍 What Happened in […]

    sahanasa.wordpress.com/2026/06

  17. "What Medicine Misses When You Feel Ill"

    medscape.com/viewarticle/what-

    CFS is listed in this as an illness rather than a disease but I think once the biology is better understood, ME/CFS will be classified as a disease.

    "Individuals may find themselves in the paradoxical position of feeling seriously unwell while lacking the forms of evidence that society has come to associate with legitimate illness."

    #MEcfs #CFS #PwME #ME #MyalgicE
    @mecfs
    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

    1/

  18. "What Medicine Misses When You Feel Ill"

    medscape.com/viewarticle/what-

    CFS is listed in this as an illness rather than a disease but I think once the biology is better understood, ME/CFS will be classified as a disease.

    "Individuals may find themselves in the paradoxical position of feeling seriously unwell while lacking the forms of evidence that society has come to associate with legitimate illness."

    #MEcfs #CFS #PwME #ME #MyalgicE
    @mecfs
    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

    1/

  19. Research Digest #127 highlights Australian-led research advancing our understanding of ME/CFS across quality of life and biology.

    Audio versions at link:

    emerge.org.au/researchdigest/r

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

  20. Research Digest #127 highlights Australian-led research advancing our understanding of ME/CFS across quality of life and biology.

    Audio versions at link:

    emerge.org.au/researchdigest/r

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

  21. Thursday's Question for Short Debate by Baroness Scott of Needham Market asked the government "what is their policy towards the (1) treatment of, and (2) research into, severe myalgic encephalomyelitis."

    Read ME Research UK's synopsis - tinyurl.com/ntpnd8ns

    #severeme #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

  22. Thursday's Question for Short Debate by Baroness Scott of Needham Market asked the government "what is their policy towards the (1) treatment of, and (2) research into, severe myalgic encephalomyelitis."

    Read ME Research UK's synopsis - tinyurl.com/ntpnd8ns

    #severeme #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

  23. 2/

    Great to see this being highlighted. I imagine it is an issue for some people with ME/CFS or Long Covid in most if not all countries

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #PASC #SevereME @mecfs @longcovid #longcovid

  24. 2/

    Great to see this being highlighted. I imagine it is an issue for some people with ME/CFS or Long Covid in most if not all countries

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #PASC #SevereME @mecfs @longcovid #longcovid

  25. Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Leading to Assisted Suicide in a Patient in Her Late 30s: A Case Report

    cureus.com/articles/487401-sev

    A case report detailing the failure of medical care in a young Swiss woman, that resulted in the patient deteriorating to an extremely severe level of ME/CFS.

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

  26. Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Leading to Assisted Suicide in a Patient in Her Late 30s: A Case Report

    cureus.com/articles/487401-sev

    A case report detailing the failure of medical care in a young Swiss woman, that resulted in the patient deteriorating to an extremely severe level of ME/CFS.

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs