home.social

#myalgicencephalomyelitis — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #myalgicencephalomyelitis, aggregated by home.social.

  1. 5/
    Somebody elsewhere asked about what "feet up" means in this case:

    So I am lying on a couch with my feet on top of cushions which are on
    top of the elevated end of a couch

    #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs

  2. 2/
    I think of it as a continuation of my sleep even though I spend some of the time mentally active, reading and on social media, alternating with some time listening to music.

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

  3. 🧵
    I’ve discovered that if I lie down & put my feet up soon after I get up (see red in image), it recharges my body battery well, often at a better rate than when I was sleeping! If I do the same thing, later in the day (see green in image), I often see no increase in my body battery & often some decrease. Have noticed this pattern for last month.

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

    1/

  4. New CDC study 🇺🇸

    Characterizing Pediatric Myalgic Encephalomyelitis/Chronic Fatigue Syndrome:
    Symptom Burden, Functional Impairment, and Comparison With Adults

    jpeds.com/article/S0022-3476(2

    #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs

  5. 3/
    An extract that quotes me from "Patient's knowledge, doctor's ignorance: The production of knowledge about myalgic encephalomyelitis"

    #MEcfs #PwME #epatient #epatients #MyalgicEncephalomyelitis

    @mecfs

  6. Pharmacological Treatment Approaches in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)

    scifiniti.com/3105-3874/2/2026

    Screenshot from latest Science for ME weekly update

    #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
    @mecfs

  7. 🧵
    Ultimately, fatigue in ME/CFS shrinks lives so severely that it often takes a devastating toll on mental health. This impact is unsurprising given the immense loss of careers, relationships, hobbies, and independence.

    tinyurl.com/fatigueimpactME

    #mecfs #pwME #cfs #fatigue #chronicfatigue #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs

    1/

  8. 🧵
    Fatigue is an unrelenting, deeply isolating symptom in ME/CFS. It cuts individuals off from family time, social activities, & hobbies, fundamentally fracturing their identity & how they view themselves. It leaves people grieving who they used to be.

    tinyurl.com/fatigueimpactME

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue @mecfs

    1/

Share on Mastodon

Enter the server where you have an account.