#myalgicencephalomyelitis — Public Fediverse posts

Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, August 5

https://irishmecfs.org/blog/dundalk-informal-mecfs-social-meet-up-on-wednesday-august-5-hosted-by-tom-kindlon

Hopefully we’ll see some of you there.

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #longcovid @mecfs @longcovid

Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, August 5

https://irishmecfs.org/blog/dundalk-informal-mecfs-social-meet-up-on-wednesday-august-5-hosted-by-tom-kindlon

Hopefully we’ll see some of you there.

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #longcovid @mecfs @longcovid

Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, August 5

https://irishmecfs.org/blog/dundalk-informal-mecfs-social-meet-up-on-wednesday-august-5-hosted-by-tom-kindlon

Hopefully we’ll see some of you there.

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #longcovid @mecfs @longcovid

Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, August 5

https://irishmecfs.org/blog/dundalk-informal-mecfs-social-meet-up-on-wednesday-august-5-hosted-by-tom-kindlon

Hopefully we’ll see some of you there.

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #longcovid @mecfs @longcovid

Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, August 5

https://irishmecfs.org/blog/dundalk-informal-mecfs-social-meet-up-on-wednesday-august-5-hosted-by-tom-kindlon

Hopefully we’ll see some of you there.

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #longcovid @mecfs @longcovid

Latest View from the Trenches of #MyalgicEncephalomyelitis covers:

ME Global Chronicle #57

US News: Medicare Advantage rules changing, Medicaid work requirement rule update, GLP-1 covered by Medicare bridge program

View from the Trenches of ME is free to read.

https://open.substack.com/pub/colleensteckelmeiccinfo/p/news-2026-july-19?utm_source=share&utm_medium=android&r=deavh

Latest View from the Trenches of #MyalgicEncephalomyelitis covers:

ME Global Chronicle #57

US News: Medicare Advantage rules changing, Medicaid work requirement rule update, GLP-1 covered by Medicare bridge program

View from the Trenches of ME is free to read.

https://open.substack.com/pub/colleensteckelmeiccinfo/p/news-2026-july-19?utm_source=share&utm_medium=android&r=deavh

Latest View from the Trenches of #MyalgicEncephalomyelitis covers:

ME Global Chronicle #57

US News: Medicare Advantage rules changing, Medicaid work requirement rule update, GLP-1 covered by Medicare bridge program

View from the Trenches of ME is free to read.

https://open.substack.com/pub/colleensteckelmeiccinfo/p/news-2026-july-19?utm_source=share&utm_medium=android&r=deavh

https://www.europesays.com/ch/104160/ The Brain Has Its Own Drainage System and It May Work Differently in Chronic Fatigue Syndrome #Alps #BrainFog #BrainHealth #ChronicFatigueSyndrome #GlymphaticSystem #ME/CFS #MyalgicEncephalomyelitis #Neuroscience

Latest View from the Trenches of #MyalgicEncephalomyelitis discusses impaired glymphatic function making the news.

Includes concerns about how this could lead to Drs pushing exercise which would be very dangerous for people with ME.

https://open.substack.com/pub/colleensteckelmeiccinfo/p/glymphatic-function-is-disrupted?utm_source=share&utm_medium=android&r=deavh

Latest View from the Trenches of #MyalgicEncephalomyelitis discusses impaired glymphatic function making the news.

Includes concerns about how this could lead to Drs pushing exercise which would be very dangerous for people with ME.

https://open.substack.com/pub/colleensteckelmeiccinfo/p/glymphatic-function-is-disrupted?utm_source=share&utm_medium=android&r=deavh

Latest View from the Trenches of #MyalgicEncephalomyelitis discusses impaired glymphatic function making the news.

Includes concerns about how this could lead to Drs pushing exercise which would be very dangerous for people with ME.

https://open.substack.com/pub/colleensteckelmeiccinfo/p/glymphatic-function-is-disrupted?utm_source=share&utm_medium=android&r=deavh

While views aren’t the only metric to assess the value of social media output, sometimes it’s useful to reach a significant number of people.

So I’m pleased that the extra time/energy I have been putting into my FB page is yielding results.

#MEcfs #PwME #LongCovid #MyalgicEncephalomyelitis #CFS @mecfs

While views aren’t the only metric to assess the value of social media output, sometimes it’s useful to reach a significant number of people.

So I’m pleased that the extra time/energy I have been putting into my FB page is yielding results.

#MEcfs #PwME #LongCovid #MyalgicEncephalomyelitis #CFS @mecfs

While views aren’t the only metric to assess the value of social media output, sometimes it’s useful to reach a significant number of people.

So I’m pleased that the extra time/energy I have been putting into my FB page is yielding results.

#MEcfs #PwME #LongCovid #MyalgicEncephalomyelitis #CFS @mecfs

While views aren’t the only metric to assess the value of social media output, sometimes it’s useful to reach a significant number of people.

So I’m pleased that the extra time/energy I have been putting into my FB page is yielding results.

#MEcfs #PwME #LongCovid #MyalgicEncephalomyelitis #CFS @mecfs

While views aren’t the only metric to assess the value of social media output, sometimes it’s useful to reach a significant number of people.

So I’m pleased that the extra time/energy I have been putting into my FB page is yielding results.

#MEcfs #PwME #LongCovid #MyalgicEncephalomyelitis #CFS @mecfs

4/
“Cochrane’s interest in maintaining the trust of deliberative bodies is about getting its products used (helping to justify whatever funding it receives from whatever source). Its interest in maintaining the trust of the scientific community is about being able to attract reviewers.”

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

@hildabast @mecfs

4/
“Cochrane’s interest in maintaining the trust of deliberative bodies is about getting its products used (helping to justify whatever funding it receives from whatever source). Its interest in maintaining the trust of the scientific community is about being able to attract reviewers.”

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

@hildabast @mecfs

4/
“Cochrane’s interest in maintaining the trust of deliberative bodies is about getting its products used (helping to justify whatever funding it receives from whatever source). Its interest in maintaining the trust of the scientific community is about being able to attract reviewers.”

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

@hildabast @mecfs

4/
“Cochrane’s interest in maintaining the trust of deliberative bodies is about getting its products used (helping to justify whatever funding it receives from whatever source). Its interest in maintaining the trust of the scientific community is about being able to attract reviewers.”

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

@hildabast @mecfs

4/
“Cochrane’s interest in maintaining the trust of deliberative bodies is about getting its products used (helping to justify whatever funding it receives from whatever source). Its interest in maintaining the trust of the scientific community is about being able to attract reviewers.”

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

@hildabast @mecfs

Press Release Date 07-06-2026

Count ME: A Milestone for ME/CFS Recognition in Australia

https://natlawreview.com/press-releases/count-me-milestone-mecfs-recognition-australia

#MEcfs #CFS #MyalgicEncephalomyelitis #PwME @mecfs

Press Release Date 07-06-2026

Count ME: A Milestone for ME/CFS Recognition in Australia

https://natlawreview.com/press-releases/count-me-milestone-mecfs-recognition-australia

#MEcfs #CFS #MyalgicEncephalomyelitis #PwME @mecfs

Press Release Date 07-06-2026

Count ME: A Milestone for ME/CFS Recognition in Australia

https://natlawreview.com/press-releases/count-me-milestone-mecfs-recognition-australia

#MEcfs #CFS #MyalgicEncephalomyelitis #PwME @mecfs

Press Release Date 07-06-2026

Count ME: A Milestone for ME/CFS Recognition in Australia

https://natlawreview.com/press-releases/count-me-milestone-mecfs-recognition-australia

#MEcfs #CFS #MyalgicEncephalomyelitis #PwME @mecfs

Press Release Date 07-06-2026

Count ME: A Milestone for ME/CFS Recognition in Australia

https://natlawreview.com/press-releases/count-me-milestone-mecfs-recognition-australia

#MEcfs #CFS #MyalgicEncephalomyelitis #PwME @mecfs

I really hope this catches on.
Thanks so much to the participants ❤️

#Plank4ME #PwME #SevereME #MyalgicEncephalomyelitis #LongCovid #PostCovid #OMF

@diyaeatswell you're up next! ...

Reflections from the organiser following an art exhibition in the Netherlands on ME.

https://meglobalchronicle.wordpress.com/2026/06/12/unbroken-a-reflection/

#MyalgicEncephalomyelitis #MEawareness #MEcfs #PwME @mecfs

Reflections from the organiser following an art exhibition in the Netherlands on ME.

https://meglobalchronicle.wordpress.com/2026/06/12/unbroken-a-reflection/

#MyalgicEncephalomyelitis #MEawareness #MEcfs #PwME @mecfs

Reflections from the organiser following an art exhibition in the Netherlands on ME.

https://meglobalchronicle.wordpress.com/2026/06/12/unbroken-a-reflection/

#MyalgicEncephalomyelitis #MEawareness #MEcfs #PwME @mecfs

Reflections from the organiser following an art exhibition in the Netherlands on ME.

https://meglobalchronicle.wordpress.com/2026/06/12/unbroken-a-reflection/

#MyalgicEncephalomyelitis #MEawareness #MEcfs #PwME @mecfs

Reflections from the organiser following an art exhibition in the Netherlands on ME.

https://meglobalchronicle.wordpress.com/2026/06/12/unbroken-a-reflection/

#MyalgicEncephalomyelitis #MEawareness #MEcfs #PwME @mecfs

Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, July 15

https://irishmecfs.org/blog/dundalk-informal-mecfs-social-meet-up-on-wednesday-july-15-hosted-by-tom-kindlon

Hopefully we’ll see some of you there.

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs #longcovid @longcovid

Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, July 15

https://irishmecfs.org/blog/dundalk-informal-mecfs-social-meet-up-on-wednesday-july-15-hosted-by-tom-kindlon

Hopefully we’ll see some of you there.

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs #longcovid @longcovid

Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, July 15

https://irishmecfs.org/blog/dundalk-informal-mecfs-social-meet-up-on-wednesday-july-15-hosted-by-tom-kindlon

Hopefully we’ll see some of you there.

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs #longcovid @longcovid

Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, July 15

https://irishmecfs.org/blog/dundalk-informal-mecfs-social-meet-up-on-wednesday-july-15-hosted-by-tom-kindlon

Hopefully we’ll see some of you there.

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs #longcovid @longcovid

Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, July 15

https://irishmecfs.org/blog/dundalk-informal-mecfs-social-meet-up-on-wednesday-july-15-hosted-by-tom-kindlon

Hopefully we’ll see some of you there.

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs #longcovid @longcovid

2/
Here’s the accompanying message she posted on IG:

#MEawareness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs

2/
Here’s the accompanying message she posted on IG:

#MEawareness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs

2/
Here’s the accompanying message she posted on IG:

#MEawareness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs

2/
Here’s the accompanying message she posted on IG:

#MEawareness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs

2/
Here’s the accompanying message she posted on IG:

#MEawareness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs

Latest View from the Trenches of #MyalgicEncephalomyelitis has news about U.S. Gov changes to funding research and changes to Medicaid coverage.

Includes my thoughts on how systemic bias has put people with ME at unnecessary risk.

https://open.substack.com/pub/colleensteckelmeiccinfo/p/news-2026-july-1?utm_source=share&utm_medium=android&r=deavh

Latest View from the Trenches of #MyalgicEncephalomyelitis has news about U.S. Gov changes to funding research and changes to Medicaid coverage.

Includes my thoughts on how systemic bias has put people with ME at unnecessary risk.

https://open.substack.com/pub/colleensteckelmeiccinfo/p/news-2026-july-1?utm_source=share&utm_medium=android&r=deavh

Latest View from the Trenches of #MyalgicEncephalomyelitis has news about U.S. Gov changes to funding research and changes to Medicaid coverage.

Includes my thoughts on how systemic bias has put people with ME at unnecessary risk.

https://open.substack.com/pub/colleensteckelmeiccinfo/p/news-2026-july-1?utm_source=share&utm_medium=android&r=deavh

ME/CFS San Diego Heat Guide 2026:

Updated resource for managing ME/CFS heat intolerance. This page features an evidence-based medication risk guide, practical cooling strategies, & tips for temperature instability: https://www.mecfssandiego.com/mecfs-resources/MECFS-Heat-Tips (website & PDF)

@mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

ME/CFS San Diego Heat Guide 2026:

Updated resource for managing ME/CFS heat intolerance. This page features an evidence-based medication risk guide, practical cooling strategies, & tips for temperature instability: https://www.mecfssandiego.com/mecfs-resources/MECFS-Heat-Tips (website & PDF)

@mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

ME/CFS San Diego Heat Guide 2026:

Updated resource for managing ME/CFS heat intolerance. This page features an evidence-based medication risk guide, practical cooling strategies, & tips for temperature instability: https://www.mecfssandiego.com/mecfs-resources/MECFS-Heat-Tips (website & PDF)

@mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

ME/CFS San Diego Heat Guide 2026:

Updated resource for managing ME/CFS heat intolerance. This page features an evidence-based medication risk guide, practical cooling strategies, & tips for temperature instability: https://www.mecfssandiego.com/mecfs-resources/MECFS-Heat-Tips (website & PDF)

@mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME