#myalgicencephalomyelitis — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #myalgicencephalomyelitis, aggregated by home.social.
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16/
May is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Awareness Month.
You can help by sharing and/or liking this image.
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16/
May is #MEcfs awareness month.
Please help by sharing +/or liking this Golden Girls episode on #CFS
https://youtu.be/vVyLZTKDy2E#Day 16
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Great News!:
The Danish short Best Practice has been selected for the OFF-Odense Film Festival and the Friss Hús Budapest International Short Film Festival.
According to director Martin Strange-Hansen it’s “a short film touching on M.E. #MyalgicEncephalomyelitis and the grey line between being a professional or a human on your job.”
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15/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image.
Day 15
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14/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image.
Day #14
#MyalgicE #MyalgicEncephalomyelitis
#mecfs @mecfs @invest_in_me_research -
14/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image.
Day #14
#MyalgicE #MyalgicEncephalomyelitis
#mecfs @mecfs @invest_in_me_research -
14/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image.
Day #14
#MyalgicE #MyalgicEncephalomyelitis
#mecfs @mecfs @invest_in_me_research -
14/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image.
Day #14
#MyalgicE #MyalgicEncephalomyelitis
#mecfs @mecfs @invest_in_me_research -
14/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image.
Day #14
#MyalgicE #MyalgicEncephalomyelitis
#mecfs @mecfs @invest_in_me_research -
14/
(2 minutes)
"How does it feel to live with ME/CFS? Patients describe what it's like"May is ME Awareness Month.
You can help raise awareness and understanding by sharing and/or
liking this video -
14/
(2 minutes)
"How does it feel to live with ME/CFS? Patients describe what it's like"May is ME Awareness Month.
You can help raise awareness and understanding by sharing and/or
liking this video -
14/
(2 minutes)
"How does it feel to live with ME/CFS? Patients describe what it's like"May is ME Awareness Month.
You can help raise awareness and understanding by sharing and/or
liking this video -
14/
(2 minutes)
"How does it feel to live with ME/CFS? Patients describe what it's like"May is ME Awareness Month.
You can help raise awareness and understanding by sharing and/or
liking this video -
14/
(2 minutes)
"How does it feel to live with ME/CFS? Patients describe what it's like"May is ME Awareness Month.
You can help raise awareness and understanding by sharing and/or
liking this video -
13/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month. You can help by sharing and/or liking this image.
Day 13
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13/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month. You can help by sharing and/or liking this image.
Day 13
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13/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month. You can help by sharing and/or liking this image.
Day 13
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13/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month. You can help by sharing and/or liking this image.
Day 13
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13/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month. You can help by sharing and/or liking this image.
Day 13
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CW: Severe ME, death, suicide
Symptom severity ranges from mild to very severe. But even so-called "mild" ME/CFS has an enormous impact what a person can do.
With severe ME/CFS the person is mostly housebound or completely bedbound.
Anil van der Zee, a former professional dancer who now has severe ME, made this video:
https://www.youtube.com/watch?v=XhrAhGkrGuQ
Read the YouTube summary for more details
5/n
#MEcfs #PwME #SevereME #MEAwarenessDay #WorldMEDay #MyalgicEncephalomyelitis
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CW: Severe ME, death, suicide
Symptom severity ranges from mild to very severe. But even so-called "mild" ME/CFS has an enormous impact what a person can do.
With severe ME/CFS the person is mostly housebound or completely bedbound.
Anil van der Zee, a former professional dancer who now has severe ME, made this video:
https://www.youtube.com/watch?v=XhrAhGkrGuQ
Read the YouTube summary for more details
5/n
#MEcfs #PwME #SevereME #MEAwarenessDay #WorldMEDay #MyalgicEncephalomyelitis
-
CW: Severe ME, death, suicide
Symptom severity ranges from mild to very severe. But even so-called "mild" ME/CFS has an enormous impact what a person can do.
With severe ME/CFS the person is mostly housebound or completely bedbound.
Anil van der Zee, a former professional dancer who now has severe ME, made this video:
https://www.youtube.com/watch?v=XhrAhGkrGuQ
Read the YouTube summary for more details
5/n
#MEcfs #PwME #SevereME #MEAwarenessDay #WorldMEDay #MyalgicEncephalomyelitis
-
CW: Severe ME, death, suicide
Symptom severity ranges from mild to very severe. But even so-called "mild" ME/CFS has an enormous impact what a person can do.
With severe ME/CFS the person is mostly housebound or completely bedbound.
Anil van der Zee, a former professional dancer who now has severe ME, made this video:
https://www.youtube.com/watch?v=XhrAhGkrGuQ
Read the YouTube summary for more details
5/n
#MEcfs #PwME #SevereME #MEAwarenessDay #WorldMEDay #MyalgicEncephalomyelitis
-
CW: Severe ME, death, suicide
Symptom severity ranges from mild to very severe. But even so-called "mild" ME/CFS has an enormous impact what a person can do.
With severe ME/CFS the person is mostly housebound or completely bedbound.
Anil van der Zee, a former professional dancer who now has severe ME, made this video:
https://www.youtube.com/watch?v=XhrAhGkrGuQ
Read the YouTube summary for more details
5/n
#MEcfs #PwME #SevereME #MEAwarenessDay #WorldMEDay #MyalgicEncephalomyelitis
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Latest View from the Trenches of #MyalgicEncephalomyelitis recognizes the importance of advocates for the existence of May 12 awareness day.
https://open.substack.com/pub/colleensteckelmeiccinfo/p/may-12-2026-me-awareness
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Latest View from the Trenches of #MyalgicEncephalomyelitis recognizes the importance of advocates for the existence of May 12 awareness day.
https://open.substack.com/pub/colleensteckelmeiccinfo/p/may-12-2026-me-awareness
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Latest View from the Trenches of #MyalgicEncephalomyelitis recognizes the importance of advocates for the existence of May 12 awareness day.
https://open.substack.com/pub/colleensteckelmeiccinfo/p/may-12-2026-me-awareness
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12/
May 12 is International Myalgic Encephalomyelitis (ME) Day (and May is
ME Awareness Month).You can help by sharing and/or liking this image.
Day #12
#MyalgicE #MyalgicEncephalomyelitis #May12 #May12th #MEAwarenessDay
#MillionsMissing #mecfs
@mecfs -
12/
May 12 is International Myalgic Encephalomyelitis (ME) Day (and May is
ME Awareness Month).You can help by sharing and/or liking this image.
Day #12
#MyalgicE #MyalgicEncephalomyelitis #May12 #May12th #MEAwarenessDay
#MillionsMissing #mecfs
@mecfs -
12/
May 12 is International Myalgic Encephalomyelitis (ME) Day (and May is
ME Awareness Month).You can help by sharing and/or liking this image.
Day #12
#MyalgicE #MyalgicEncephalomyelitis #May12 #May12th #MEAwarenessDay
#MillionsMissing #mecfs
@mecfs -
12/
May 12 is International Myalgic Encephalomyelitis (ME) Day (and May is
ME Awareness Month).You can help by sharing and/or liking this image.
Day #12
#MyalgicE #MyalgicEncephalomyelitis #May12 #May12th #MEAwarenessDay
#MillionsMissing #mecfs
@mecfs -
12/
May 12 is International Myalgic Encephalomyelitis (ME) Day (and May is
ME Awareness Month).You can help by sharing and/or liking this image.
Day #12
#MyalgicE #MyalgicEncephalomyelitis #May12 #May12th #MEAwarenessDay
#MillionsMissing #mecfs
@mecfs -
12/
May 12 is International #MyalgicEncephalomyelitis (ME) Day (and May is ME Awareness Month) You can help by sharing and/or liking this (well-made) video.
(3 minutes)
https://www.youtube.com/watch?v=IOflARSgNnE
Day 12
#MyalgicE #May12 #May12th #WorldMEDay2026
#WorldMEday #MEAwarenessDay
#mecfs
@mecfs -
12/
May 12 is International #MyalgicEncephalomyelitis (ME) Day (and May is ME Awareness Month) You can help by sharing and/or liking this (well-made) video.
(3 minutes)
https://www.youtube.com/watch?v=IOflARSgNnE
Day 12
#MyalgicE #May12 #May12th #WorldMEDay2026
#WorldMEday #MEAwarenessDay
#mecfs
@mecfs -
12/
May 12 is International #MyalgicEncephalomyelitis (ME) Day (and May is ME Awareness Month) You can help by sharing and/or liking this (well-made) video.
(3 minutes)
https://www.youtube.com/watch?v=IOflARSgNnE
Day 12
#MyalgicE #May12 #May12th #WorldMEDay2026
#WorldMEday #MEAwarenessDay
#mecfs
@mecfs -
12/
May 12 is International #MyalgicEncephalomyelitis (ME) Day (and May is ME Awareness Month) You can help by sharing and/or liking this (well-made) video.
(3 minutes)
https://www.youtube.com/watch?v=IOflARSgNnE
Day 12
#MyalgicE #May12 #May12th #WorldMEDay2026
#WorldMEday #MEAwarenessDay
#mecfs
@mecfs -
12/
May 12 is International #MyalgicEncephalomyelitis (ME) Day (and May is ME Awareness Month) You can help by sharing and/or liking this (well-made) video.
(3 minutes)
https://www.youtube.com/watch?v=IOflARSgNnE
Day 12
#MyalgicE #May12 #May12th #WorldMEDay2023
#WorldMEday #MEAwarenessDay
#mecfs
@mecfs -
Managed a post on #MEAwarenessDay.
Must nap now!Help me escape #abusers & have a chance at life. Dying of abuse/neglect - running out of time.
$250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Can you spare a room? Land? Time? Know someone who can?Info & help with costs:
(I either write too much or not enough depending on who you ask so further info in fund & Canary article link)💸Fund: https://www.chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://www.buymeacoffee.com/Halcionandon
🎁AmazonAU: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem: Halcionandon
🗞️Article: “Nearly a year on and severe ME patient Anna is still trapped in life-threatening domestic abuse”https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/#mutualaid
#MECFS #PWME #SevereME #MyalgicEncephalomyelitis
#MEAwarenessweek
@mecfs
@[email protected]
@DisabilityJustice
@[email protected] -
Managed a post on #MEAwarenessDay.
Must nap now!Help me escape #abusers & have a chance at life. Dying of abuse/neglect - running out of time.
$250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Can you spare a room? Land? Time? Know someone who can?Info & help with costs:
(I either write too much or not enough depending on who you ask so further info in fund & Canary article link)💸Fund: https://www.chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://www.buymeacoffee.com/Halcionandon
🎁AmazonAU: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem: Halcionandon
🗞️Article: “Nearly a year on and severe ME patient Anna is still trapped in life-threatening domestic abuse”https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/#mutualaid
#MECFS #PWME #SevereME #MyalgicEncephalomyelitis
#MEAwarenessweek
@mecfs
@[email protected]
@DisabilityJustice
@[email protected] -
Managed a post on #MEAwarenessDay.
Must nap now!Help me escape #abusers & have a chance at life. Dying of abuse/neglect - running out of time.
$250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Can you spare a room? Land? Time? Know someone who can?Info & help with costs:
(I either write too much or not enough depending on who you ask so further info in fund & Canary article link)💸Fund: https://www.chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://www.buymeacoffee.com/Halcionandon
🎁AmazonAU: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem: Halcionandon
🗞️Article: “Nearly a year on and severe ME patient Anna is still trapped in life-threatening domestic abuse”https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/#mutualaid
#MECFS #PWME #SevereME #MyalgicEncephalomyelitis
#MEAwarenessweek
@mecfs
@[email protected]
@DisabilityJustice
@[email protected] -
Managed a post on #MEAwarenessDay.
Must nap now!Help me escape #abusers & have a chance at life. Dying of abuse/neglect - running out of time.
$250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Can you spare a room? Land? Time? Know someone who can?Info & help with costs:
(I either write too much or not enough depending on who you ask so further info in fund & Canary article link)💸Fund: https://www.chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://www.buymeacoffee.com/Halcionandon
🎁AmazonAU: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem: Halcionandon
🗞️Article: “Nearly a year on and severe ME patient Anna is still trapped in life-threatening domestic abuse”https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/#mutualaid
#MECFS #PWME #SevereME #MyalgicEncephalomyelitis
#MEAwarenessweek
@mecfs
@[email protected]
@DisabilityJustice
@[email protected] -
Managed a post on #MEAwarenessDay.
Must nap now!Help me escape #abusers & have a chance at life. Dying of abuse/neglect - running out of time.
$250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Can you spare a room? Land? Time? Know someone who can?Info & help with costs:
(I either write too much or not enough depending on who you ask so further info in fund & Canary article link)💸Fund: https://www.chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://www.buymeacoffee.com/Halcionandon
🎁AmazonAU: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem: Halcionandon
🗞️Article: “Nearly a year on and severe ME patient Anna is still trapped in life-threatening domestic abuse”https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/#mutualaid
#MECFS #PWME #SevereME #MyalgicEncephalomyelitis
#MEAwarenessweek
@mecfs
@[email protected]
@DisabilityJustice
@[email protected] -
No fancy post for #MEAwarenessDay
Help me escape #abusers & have a chance at life. Dying of abuse- running out of time.
$250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Info & help with costs:💸Fund: https://www.chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://www.buymeacoffee.com/Halcionandon
🎁AmazonAU: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem: Halcionandon#mutualaid
#MECFS #PWME #SevereME #MyalgicEncephalomyelitis
#MEAwarenessweek
@mecfs
@mutualaid -
No fancy post for #MEAwarenessDay
Help me escape #abusers & have a chance at life. Dying of abuse- running out of time.
$250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Info & help with costs:💸Fund: https://www.chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://www.buymeacoffee.com/Halcionandon
🎁AmazonAU: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem: Halcionandon#mutualaid
#MECFS #PWME #SevereME #MyalgicEncephalomyelitis
#MEAwarenessweek
@mecfs
@mutualaid -
No fancy post for #MEAwarenessDay
Help me escape #abusers & have a chance at life. Dying of abuse- running out of time.
$250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Info & help with costs:💸Fund: https://www.chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://www.buymeacoffee.com/Halcionandon
🎁AmazonAU: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem: Halcionandon#mutualaid
#MECFS #PWME #SevereME #MyalgicEncephalomyelitis
#MEAwarenessweek
@mecfs
@mutualaid -
No fancy post for #MEAwarenessDay
Help me escape #abusers & have a chance at life. Dying of abuse- running out of time.
$250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Info & help with costs:💸Fund: https://www.chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://www.buymeacoffee.com/Halcionandon
🎁AmazonAU: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem: Halcionandon#mutualaid
#MECFS #PWME #SevereME #MyalgicEncephalomyelitis
#MEAwarenessweek
@mecfs
@mutualaid -
No fancy post for #MEAwarenessDay
Help me escape #abusers & have a chance at life. Dying of abuse- running out of time.
$250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Info & help with costs:💸Fund: https://www.chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://www.buymeacoffee.com/Halcionandon
🎁AmazonAU: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem: Halcionandon#mutualaid
#MECFS #PWME #SevereME #MyalgicEncephalomyelitis
#MEAwarenessweek
@mecfs
@mutualaid -
I actually deteriorated over time, through following exercise, like many others with #MyalgicEncephalomyelitis.
Improving or even stabilising is not the only possible outcome following an infection.
Plenty of research shows a significant percentage of those with #LongCovid satisfy #MECFS criteria
Unfortunately, through a lack of research, proven effective treatments don't exist for ME so people can be left languish for decades with debilitating symptoms, like I have been
-
I actually deteriorated over time, through following exercise, like many others with #MyalgicEncephalomyelitis.
Improving or even stabilising is not the only possible outcome following an infection.
Plenty of research shows a significant percentage of those with #LongCovid satisfy #MECFS criteria
Unfortunately, through a lack of research, proven effective treatments don't exist for ME so people can be left languish for decades with debilitating symptoms, like I have been
-
I actually deteriorated over time, through following exercise, like many others with #MyalgicEncephalomyelitis.
Improving or even stabilising is not the only possible outcome following an infection.
Plenty of research shows a significant percentage of those with #LongCovid satisfy #MECFS criteria
Unfortunately, through a lack of research, proven effective treatments don't exist for ME so people can be left languish for decades with debilitating symptoms, like I have been