#myalgicencephalomyelitis — Public Fediverse posts

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed

https://www.theguardian.com/commentisfree/2026/sep/24/abandoned-dismissed-and-gaslighted-me-sufferers-betrayed

Screenshot from AMMES October 2026 newsletter

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs

"The survey has identified multiple different ways that psychologists can potentially give that support and help people with ME/CFS"

Extract from British Psychological Society ME/CFS Guidelines (September 2026 Update)

https://meassociation.org.uk/wp-content/uploads/2026/09/BPS-ME-guidelines-September-2026-update.pdf

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs

RE: https://mastodon.ie/@IrishMECFSAssociation/117406724926487533

Hope to see a few of you at this. 👋

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #LongCovid @mecfs @longcovid

Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @tomkindlon on Friday, October 23

Hopefully we’ll see some of you there
https://irishmecfs.org/blog/friday-october-23-dublin-informal-mecfs-social-meet-up-hosted-by-tom-kindlon-irish-mecfs-association

Carers/parents/similar welcome.

#MEcfs #LongCovid #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #Mastodaoine
@mecfs @longcovid

4/
Another extract that quotes me from "Patient's knowledge, doctor's ignorance: The production of knowledge about myalgic encephalomyelitis"

#MEcfs #PwME #CFS #epatient #MyalgicEncephalomyelitis
@mecfs

New from the US 🇺🇸

searchMECFS: An Online, Interactive Platform to Facilitate Secondary Use of Biospecimens and Associated Research Data From Myalgic Encephalomyelitis Studies

https://doi.org/10.3768/rtipress.2026.mr.0058.2609

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs