Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed
Screenshot from AMMES October 2026 newsletter
#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
#myalgicencephalomyelitis — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #myalgicencephalomyelitis, aggregated by home.social.
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"The survey has identified multiple different ways that psychologists can potentially give that support and help people with ME/CFS"
Extract from British Psychological Society ME/CFS Guidelines (September 2026 Update)
https://meassociation.org.uk/wp-content/uploads/2026/09/BPS-ME-guidelines-September-2026-update.pdf
#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs -
RE: https://mastodon.ie/@IrishMECFSAssociation/117406724926487533
Hope to see a few of you at this. 👋
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #LongCovid @mecfs @longcovid
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Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @tomkindlon on Friday, October 23
Hopefully we’ll see some of you there
https://irishmecfs.org/blog/friday-october-23-dublin-informal-mecfs-social-meet-up-hosted-by-tom-kindlon-irish-mecfs-associationCarers/parents/similar welcome.
#MEcfs #LongCovid #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #Mastodaoine
@mecfs @longcovid -
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New from the US 🇺🇸
searchMECFS: An Online, Interactive Platform to Facilitate Secondary Use of Biospecimens and Associated Research Data From Myalgic Encephalomyelitis Studies
https://doi.org/10.3768/rtipress.2026.mr.0058.2609
#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs
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Some people with ME/CFS complain they can feel groggy in the morning. But maybe rather than fight, it could be welcomed as an opportunity to get good rest?#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
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If you're looking for more information after watching this short video here are 3 links:
* "Introduction to ME/CFS"
(fact sheet from the Science for ME forum)https://s4me.info/threads/fact-sheet-1-introduction-to-me-cfs.51744/#post-596527
* "What is M.E.?"
(information from #MEAction, a patient advocacy group)https://www.meaction.net/what-is-me
* "COVID-19 Triggers ME/CFS"
(blog post by the Bateman Horne Center) -
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Somebody elsewhere asked about what "feet up" means in this case:So I am lying on a couch with my feet on top of cushions which are on
top of the elevated end of a couch#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs
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Legend: The lower the bars are at any time, the less stress your body is under. So orange represents a more stressful period than blue. This is from a Garmin smartwatch.