#pwme — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #pwme, aggregated by home.social.
-
One of this week's coming events -
PRIME Webinar 3: Post-Exertional Malaise (PEM)
Thursday, July 30
2-5 pm GMTAnnouncement:
https://www.actionforme.org.uk/prime-workshop-on-post-exertional-malaise/Registration (Zoom):
https://us02web.zoom.us/webinar/register/WN_l39rWIMYTlqqTF7nXixo1Q#/registrationProgramme:
https://www.actionforme.org.uk/wp-content/uploads/2026/06/PRIME-Webinar-3-Programme-PEM.pdf -
One of this week's coming events -
PRIME Webinar 3: Post-Exertional Malaise (PEM)
Thursday, July 30
2-5 pm GMTAnnouncement:
https://www.actionforme.org.uk/prime-workshop-on-post-exertional-malaise/Registration (Zoom):
https://us02web.zoom.us/webinar/register/WN_l39rWIMYTlqqTF7nXixo1Q#/registrationProgramme:
https://www.actionforme.org.uk/wp-content/uploads/2026/06/PRIME-Webinar-3-Programme-PEM.pdf -
Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of July 20 - 26.
https://s4me.info/threads/news-in-brief-july-2026.51240/#post-709358
-
Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of July 20 - 26.
https://s4me.info/threads/news-in-brief-july-2026.51240/#post-709358
-
"Glandular fever*’s not just the ‘kissing disease’...The risk of chronic fatigue [syndrome] means the ‘kissing disease’ should not be downplayed. Experts say there can be long-term consequences"
Archive
https://archive.is/4Tf0p*aka Mono
#MEcfs #PwME #CFS #ME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs
-
"Glandular fever*’s not just the ‘kissing disease’...The risk of chronic fatigue [syndrome] means the ‘kissing disease’ should not be downplayed. Experts say there can be long-term consequences"
Archive
https://archive.is/4Tf0p*aka Mono
#MEcfs #PwME #CFS #ME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs
-
"Glandular fever*’s not just the ‘kissing disease’...The risk of chronic fatigue [syndrome] means the ‘kissing disease’ should not be downplayed. Experts say there can be long-term consequences"
Archive
https://archive.is/4Tf0p*aka Mono
#MEcfs #PwME #CFS #ME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs
-
"Glandular fever*’s not just the ‘kissing disease’...The risk of chronic fatigue [syndrome] means the ‘kissing disease’ should not be downplayed. Experts say there can be long-term consequences"
Archive
https://archive.is/4Tf0p*aka Mono
#MEcfs #PwME #CFS #ME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs
-
"Glandular fever*’s not just the ‘kissing disease’...The risk of chronic fatigue [syndrome] means the ‘kissing disease’ should not be downplayed. Experts say there can be long-term consequences"
Archive
https://archive.is/4Tf0p*aka Mono
#MEcfs #PwME #CFS #ME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs
-
Australian registry reports poor health and wellbeing in people living with ME/CFS
https://link.springer.com/article/10.1186/s12967-026-08618-9
HRQoL = Health-Related Quality of Life
Screenshot from latest Science for ME weekly update
-
Australian registry reports poor health and wellbeing in people living with ME/CFS
https://link.springer.com/article/10.1186/s12967-026-08618-9
HRQoL = Health-Related Quality of Life
Screenshot from latest Science for ME weekly update
-
Australian registry reports poor health and wellbeing in people living with ME/CFS
https://link.springer.com/article/10.1186/s12967-026-08618-9
HRQoL = Health-Related Quality of Life
Screenshot from latest Science for ME weekly update
-
Australian registry reports poor health and wellbeing in people living with ME/CFS
https://link.springer.com/article/10.1186/s12967-026-08618-9
HRQoL = Health-Related Quality of Life
Screenshot from latest Science for ME weekly update
-
Australian registry reports poor health and wellbeing in people living with ME/CFS
https://link.springer.com/article/10.1186/s12967-026-08618-9
HRQoL = Health-Related Quality of Life
Screenshot from latest Science for ME weekly update
-
7/
From the report:“Almost two thirds of participants had started working in the recovery arena following their own recovery”
So *major* conflicts on interest.
-
7/
From the report:“Almost two thirds of participants had started working in the recovery arena following their own recovery”
So *major* conflicts on interest.
-
From Germany 🇩🇪
Handgrip strength in children, adolescents, and young adults with suspected myalgic encephalomyelitis/chronic fatigue syndrome
https://link.springer.com/article/10.1186/s12967-026-08654-5
Screenshot from latest Science for ME weekly update
-
From Germany 🇩🇪
Handgrip strength in children, adolescents, and young adults with suspected myalgic encephalomyelitis/chronic fatigue syndrome
https://link.springer.com/article/10.1186/s12967-026-08654-5
Screenshot from latest Science for ME weekly update
-
From Germany 🇩🇪
Handgrip strength in children, adolescents, and young adults with suspected myalgic encephalomyelitis/chronic fatigue syndrome
https://link.springer.com/article/10.1186/s12967-026-08654-5
Screenshot from latest Science for ME weekly update
-
From Germany 🇩🇪
Handgrip strength in children, adolescents, and young adults with suspected myalgic encephalomyelitis/chronic fatigue syndrome
https://link.springer.com/article/10.1186/s12967-026-08654-5
Screenshot from latest Science for ME weekly update
-
From Germany 🇩🇪
Handgrip strength in children, adolescents, and young adults with suspected myalgic encephalomyelitis/chronic fatigue syndrome
https://link.springer.com/article/10.1186/s12967-026-08654-5
Screenshot from latest Science for ME weekly update
-
6/
Comment posted on my FB about the definition of recovery used -
6/
Comment posted on my FB about the definition of recovery used -
6/
Comment posted on my FB about the definition of recovery used -
6/
Comment posted on my FB about the definition of recovery used -
6/
Comment posted on my FB about the definition of recovery used -
5/
Critical discussion on the Science for ME @s4me forum on this research. Thread started in 2024 but includes numerous posts in the last 24 hours:
https://s4me.info/threads/recovery-is-possible-lessons-in-%E2%80%98me-cfs%E2%80%99-recovery-from-youtube-goldsmiths.38843/ -
5/
Critical discussion on the Science for ME @s4me forum on this research. Thread started in 2024 but includes numerous posts in the last 24 hours:
https://s4me.info/threads/recovery-is-possible-lessons-in-%E2%80%98me-cfs%E2%80%99-recovery-from-youtube-goldsmiths.38843/ -
2/
I don't believe a lot of the testimony in this area. For example, after you have done lightning process you are supposed to not mention any impairments you have, that is part of the process. Similarly many people have conflicts of interest from making money from such approaches. -
2/
I don't believe a lot of the testimony in this area. For example, after you have done lightning process you are supposed to not mention any impairments you have, that is part of the process. Similarly many people have conflicts of interest from making money from such approaches. -
2/
I don't believe a lot of the testimony in this area. For example, after you have done lightning process you are supposed to not mention any impairments you have, that is part of the process. Similarly many people have conflicts of interest from making money from such approaches. -
2/
I don't believe a lot of the testimony in this area. For example, after you have done lightning process you are supposed to not mention any impairments you have, that is part of the process. Similarly many people have conflicts of interest from making money from such approaches. -
2/
I don't believe a lot of the testimony in this area. For example, after you have done lightning process you are supposed to not mention any impairments you have, that is part of the process. Similarly many people have conflicts of interest from making money from such approaches. -
(Australia)
Emerge Australia has partnered with Edith Cowan University (ECU) to measure the impact of ME/CFS and long COVIDhttps://eaecu.au1.qualtrics.com/jfe/form/SV_d13rwqVw4UaOFEy
Screenshot from latest Emerge Australia email bulletin
#MEcfs #LongCovid #PwME #CFS #ME #MyalgicE @mecfs @longcovid
-
(Australia)
Emerge Australia has partnered with Edith Cowan University (ECU) to measure the impact of ME/CFS and long COVIDhttps://eaecu.au1.qualtrics.com/jfe/form/SV_d13rwqVw4UaOFEy
Screenshot from latest Emerge Australia email bulletin
#MEcfs #LongCovid #PwME #CFS #ME #MyalgicE @mecfs @longcovid
-
(Australia)
Emerge Australia has partnered with Edith Cowan University (ECU) to measure the impact of ME/CFS and long COVIDhttps://eaecu.au1.qualtrics.com/jfe/form/SV_d13rwqVw4UaOFEy
Screenshot from latest Emerge Australia email bulletin
#MEcfs #LongCovid #PwME #CFS #ME #MyalgicE @mecfs @longcovid
-
Perioperative outcomes in patients with myalgic encephalomyelitis/chronic fatigue syndrome undergoing general anesthesia: a retrospective matched-pair study
https://link.springer.com/article/10.1186/s12871-026-04102-5
Screenshot from latest Science for ME weekly update
-
Perioperative outcomes in patients with myalgic encephalomyelitis/chronic fatigue syndrome undergoing general anesthesia: a retrospective matched-pair study
https://link.springer.com/article/10.1186/s12871-026-04102-5
Screenshot from latest Science for ME weekly update
-
Perioperative outcomes in patients with myalgic encephalomyelitis/chronic fatigue syndrome undergoing general anesthesia: a retrospective matched-pair study
https://link.springer.com/article/10.1186/s12871-026-04102-5
Screenshot from latest Science for ME weekly update
-
Perioperative outcomes in patients with myalgic encephalomyelitis/chronic fatigue syndrome undergoing general anesthesia: a retrospective matched-pair study
https://link.springer.com/article/10.1186/s12871-026-04102-5
Screenshot from latest Science for ME weekly update
-
Perioperative outcomes in patients with myalgic encephalomyelitis/chronic fatigue syndrome undergoing general anesthesia: a retrospective matched-pair study
https://link.springer.com/article/10.1186/s12871-026-04102-5
Screenshot from latest Science for ME weekly update
-
Proposed Framework for Personalized Severity Assessment in ME/CFS to Capture Variation in ME/CFS Severity and Life Impairment across Patients and Time (2024)
https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1369295/full
#MEcfs #CFS #PwME #SevereME #SevereMECFS
#SevereCFS #VerySevereME @mecfs -
Proposed Framework for Personalized Severity Assessment in ME/CFS to Capture Variation in ME/CFS Severity and Life Impairment across Patients and Time (2024)
https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1369295/full
#MEcfs #CFS #PwME #SevereME #SevereMECFS
#SevereCFS #VerySevereME @mecfs -
Proposed Framework for Personalized Severity Assessment in ME/CFS to Capture Variation in ME/CFS Severity and Life Impairment across Patients and Time (2024)
https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1369295/full
#MEcfs #CFS #PwME #SevereME #SevereMECFS
#SevereCFS #VerySevereME @mecfs -
Proposed Framework for Personalized Severity Assessment in ME/CFS to Capture Variation in ME/CFS Severity and Life Impairment across Patients and Time (2024)
https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1369295/full
#MEcfs #CFS #PwME #SevereME #SevereMECFS
#SevereCFS #VerySevereME @mecfs
