#pwme — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #pwme, aggregated by home.social.
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The advocacy group NichtGenesen @NichtGenesen has written a 11-page rebuttal of a book chapter published in Psychotherapie.
https://link.springer.com/chapter/10.1007/978-3-662-72268-8_91
https://drive.google.com/file/d/1_9Tty4qG9O_7ce6Az0xuDDBddK0tvzzY/view
Automated translations
https://s4me.info/threads/chronisches-fatigue-syndrom-2026-alexa-alica-kupferschmitt-volker-k%C3%B6llner.52263/post-719676Screenshot from latest Science for ME weekly update
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Here's the latest News in Brief (Sept. 7 - 13) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450
Public posts on the forum can be read by anyone, but if you'd like to join the discussion then you'll need to become a forum member. It's free 😁
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Here's the latest News in Brief (Sept. 7 - 13) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450
Public posts on the forum can be read by anyone, but if you'd like to join the discussion then you'll need to become a forum member. It's free 😁
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Here's the latest News in Brief (Sept. 7 - 13) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450
Public posts on the forum can be read by anyone, but if you'd like to join the discussion then you'll need to become a forum member. It's free 😁
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Here's the latest News in Brief (Sept. 7 - 13) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450
Public posts on the forum can be read by anyone, but if you'd like to join the discussion then you'll need to become a forum member. It's free 😁
-
Here's the latest News in Brief (Sept. 7 - 13) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450
Public posts on the forum can be read by anyone, but if you'd like to join the discussion then you'll need to become a forum member. It's free 😁
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From Germany 🇩🇪
Postural orthostatic tachycardia syndrome in adolescents with ME/CFS
https://www.frontiersin.org/journals/pediatrics/articles/10.3389/fped.2026.1836407/full
Screenshot from latest Science for ME weekly update
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From Germany 🇩🇪
Postural orthostatic tachycardia syndrome in adolescents with ME/CFS
https://www.frontiersin.org/journals/pediatrics/articles/10.3389/fped.2026.1836407/full
Screenshot from latest Science for ME weekly update
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From Germany 🇩🇪
Postural orthostatic tachycardia syndrome in adolescents with ME/CFS
https://www.frontiersin.org/journals/pediatrics/articles/10.3389/fped.2026.1836407/full
Screenshot from latest Science for ME weekly update
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From Germany 🇩🇪
Postural orthostatic tachycardia syndrome in adolescents with ME/CFS
https://www.frontiersin.org/journals/pediatrics/articles/10.3389/fped.2026.1836407/full
Screenshot from latest Science for ME weekly update
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From Germany 🇩🇪
Postural orthostatic tachycardia syndrome in adolescents with ME/CFS
https://www.frontiersin.org/journals/pediatrics/articles/10.3389/fped.2026.1836407/full
Screenshot from latest Science for ME weekly update
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Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @tomkindlon on Wednesday, September 30
Hopefully we’ll see some of you there
https://irishmecfs.org/blog/wednesday-september-30-dublin-informal-mecfs-social-meet-up-hosted-by-tom-kindlon-irish-mecfs-associationCarers/parents/similar welcome.
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Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @tomkindlon on Wednesday, September 30
Hopefully we’ll see some of you there
https://irishmecfs.org/blog/wednesday-september-30-dublin-informal-mecfs-social-meet-up-hosted-by-tom-kindlon-irish-mecfs-associationCarers/parents/similar welcome.
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Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @tomkindlon on Wednesday, September 30
Hopefully we’ll see some of you there
https://irishmecfs.org/blog/wednesday-september-30-dublin-informal-mecfs-social-meet-up-hosted-by-tom-kindlon-irish-mecfs-associationCarers/parents/similar welcome.
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Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @tomkindlon on Wednesday, September 30
Hopefully we’ll see some of you there
https://irishmecfs.org/blog/wednesday-september-30-dublin-informal-mecfs-social-meet-up-hosted-by-tom-kindlon-irish-mecfs-associationCarers/parents/similar welcome.
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Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @tomkindlon on Wednesday, September 30
Hopefully we’ll see some of you there
https://irishmecfs.org/blog/wednesday-september-30-dublin-informal-mecfs-social-meet-up-hosted-by-tom-kindlon-irish-mecfs-associationCarers/parents/similar welcome.
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“Discussion of LP, its use of NLP, the SMILE trial, the Jason Busse LP trial was thorough and accurate.”
#LongCovid #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
@mecfs @longcovid -
2/
“Discussion of LP, its use of NLP, the SMILE trial, the Jason Busse LP trial was thorough and accurate.”
#LongCovid #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
@mecfs @longcovid -
2/
“Discussion of LP, its use of NLP, the SMILE trial, the Jason Busse LP trial was thorough and accurate.”
#LongCovid #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
@mecfs @longcovid -
2/
“Discussion of LP, its use of NLP, the SMILE trial, the Jason Busse LP trial was thorough and accurate.”
#LongCovid #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
@mecfs @longcovid -
2/
“Discussion of LP, its use of NLP, the SMILE trial, the Jason Busse LP trial was thorough and accurate.”
#LongCovid #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
@mecfs @longcovid -
Conspirituality 325: Long COVID Profiteers
The second half of this podcast episode discusses Long Covid, ME/CFS, "neuro-bollocks"-treatments such as the Lightning Process, the weak scientific methods behind trials as FALCON, SMILE and PACE and more.
https://www.conspirituality.net/episodes/326-long-covid-updateHaven't listened so far but saw praise for it
#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid
1/
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Conspirituality 325: Long COVID Profiteers
The second half of this podcast episode discusses Long Covid, ME/CFS, "neuro-bollocks"-treatments such as the Lightning Process, the weak scientific methods behind trials as FALCON, SMILE and PACE and more.
https://www.conspirituality.net/episodes/326-long-covid-updateHaven't listened so far but saw praise for it
#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid
1/
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Conspirituality 325: Long COVID Profiteers
The second half of this podcast episode discusses Long Covid, ME/CFS, "neuro-bollocks"-treatments such as the Lightning Process, the weak scientific methods behind trials as FALCON, SMILE and PACE and more.
https://www.conspirituality.net/episodes/326-long-covid-updateHaven't listened so far but saw praise for it
#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid
1/
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Conspirituality 325: Long COVID Profiteers
The second half of this podcast episode discusses Long Covid, ME/CFS, "neuro-bollocks"-treatments such as the Lightning Process, the weak scientific methods behind trials as FALCON, SMILE and PACE and more.
https://www.conspirituality.net/episodes/326-long-covid-updateHaven't listened so far but saw praise for it
#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid
1/
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Conspirituality 325: Long COVID Profiteers
The second half of this podcast episode discusses Long Covid, ME/CFS, "neuro-bollocks"-treatments such as the Lightning Process, the weak scientific methods behind trials as FALCON, SMILE and PACE and more.
https://www.conspirituality.net/episodes/326-long-covid-updateHaven't listened so far but saw praise for it
#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid
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NINDS & MECFSnet - ME/CFS Exchange Webinar Series
Webinar 1: Persistence of Post-Acute Infection Symptoms: What Causes Them and Why Do They Persist?
Thursday, Oct. 8, 1 - 3 pm ETRegister
https://rtiorg.zoom.us/webinar/register/WN_7FrDcz58QtWn0IfMo9AWLQ#/registration -
NINDS & MECFSnet - ME/CFS Exchange Webinar Series
Webinar 1: Persistence of Post-Acute Infection Symptoms: What Causes Them and Why Do They Persist?
Thursday, Oct. 8, 1 - 3 pm ETRegister
https://rtiorg.zoom.us/webinar/register/WN_7FrDcz58QtWn0IfMo9AWLQ#/registration -
NINDS & MECFSnet - ME/CFS Exchange Webinar Series
Webinar 1: Persistence of Post-Acute Infection Symptoms: What Causes Them and Why Do They Persist?
Thursday, Oct. 8, 1 - 3 pm ETRegister
https://rtiorg.zoom.us/webinar/register/WN_7FrDcz58QtWn0IfMo9AWLQ#/registration -
NINDS & MECFSnet - ME/CFS Exchange Webinar Series
Webinar 1: Persistence of Post-Acute Infection Symptoms: What Causes Them and Why Do They Persist?
Thursday, Oct. 8, 1 - 3 pm ETRegister
https://rtiorg.zoom.us/webinar/register/WN_7FrDcz58QtWn0IfMo9AWLQ#/registration -
NINDS & MECFSnet - ME/CFS Exchange Webinar Series
Webinar 1: Persistence of Post-Acute Infection Symptoms: What Causes Them and Why Do They Persist?
Thursday, Oct. 8, 1 - 3 pm ETRegister
https://rtiorg.zoom.us/webinar/register/WN_7FrDcz58QtWn0IfMo9AWLQ#/registration -
The Hidden Hierarchy of Illness
https://journals.sagepub.com/doi/full/10.1177/27536351261431723
Screenshot from September AMMES newsletter
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The Hidden Hierarchy of Illness
https://journals.sagepub.com/doi/full/10.1177/27536351261431723
Screenshot from September AMMES newsletter
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The Hidden Hierarchy of Illness
https://journals.sagepub.com/doi/full/10.1177/27536351261431723
Screenshot from September AMMES newsletter
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The Hidden Hierarchy of Illness
https://journals.sagepub.com/doi/full/10.1177/27536351261431723
Screenshot from September AMMES newsletter
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The Hidden Hierarchy of Illness
https://journals.sagepub.com/doi/full/10.1177/27536351261431723
Screenshot from September AMMES newsletter
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Trial By Error: Norway Disability Case Exposes Flaws in Draft Guideline for “Long-Term Fatigue–including ME/CFS”
Screenshot from September AMMES newsletter
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Trial By Error: Norway Disability Case Exposes Flaws in Draft Guideline for “Long-Term Fatigue–including ME/CFS”
Screenshot from September AMMES newsletter
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Trial By Error: Norway Disability Case Exposes Flaws in Draft Guideline for “Long-Term Fatigue–including ME/CFS”
Screenshot from September AMMES newsletter
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Trial By Error: Norway Disability Case Exposes Flaws in Draft Guideline for “Long-Term Fatigue–including ME/CFS”
Screenshot from September AMMES newsletter
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Trial By Error: Norway Disability Case Exposes Flaws in Draft Guideline for “Long-Term Fatigue–including ME/CFS”
Screenshot from September AMMES newsletter
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ME Research UK
In the third deep-dive of our weekly Symptom Saturday series, we explore sleep dysfunction in ME/CFS – including lived experience, different patterns of sleep disruption, and research suggesting challenges across the brain and nervous system.
Read more:
https://www.meresearch.org.uk/sleep-dysfunction-in-me-cfs/#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs
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ME Research UK
In the third deep-dive of our weekly Symptom Saturday series, we explore sleep dysfunction in ME/CFS – including lived experience, different patterns of sleep disruption, and research suggesting challenges across the brain and nervous system.
Read more:
https://www.meresearch.org.uk/sleep-dysfunction-in-me-cfs/#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs
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ME Research UK
In the third deep-dive of our weekly Symptom Saturday series, we explore sleep dysfunction in ME/CFS – including lived experience, different patterns of sleep disruption, and research suggesting challenges across the brain and nervous system.
Read more:
https://www.meresearch.org.uk/sleep-dysfunction-in-me-cfs/#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs
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ME Research UK
In the third deep-dive of our weekly Symptom Saturday series, we explore sleep dysfunction in ME/CFS – including lived experience, different patterns of sleep disruption, and research suggesting challenges across the brain and nervous system.
Read more:
https://www.meresearch.org.uk/sleep-dysfunction-in-me-cfs/#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs
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ME Research UK
In the third deep-dive of our weekly Symptom Saturday series, we explore sleep dysfunction in ME/CFS – including lived experience, different patterns of sleep disruption, and research suggesting challenges across the brain and nervous system.
Read more:
https://www.meresearch.org.uk/sleep-dysfunction-in-me-cfs/#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 7 - 13.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450
-
Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 7 - 13.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450
-
Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 7 - 13.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450
-
Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 7 - 13.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450