#pwme — Public Fediverse posts

Perioperative outcomes in patients with myalgic encephalomyelitis/chronic fatigue syndrome undergoing general anesthesia: a retrospective matched-pair study

https://link.springer.com/article/10.1186/s12871-026-04102-5

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

Perioperative outcomes in patients with myalgic encephalomyelitis/chronic fatigue syndrome undergoing general anesthesia: a retrospective matched-pair study

https://link.springer.com/article/10.1186/s12871-026-04102-5

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

Perioperative outcomes in patients with myalgic encephalomyelitis/chronic fatigue syndrome undergoing general anesthesia: a retrospective matched-pair study

https://link.springer.com/article/10.1186/s12871-026-04102-5

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

Perioperative outcomes in patients with myalgic encephalomyelitis/chronic fatigue syndrome undergoing general anesthesia: a retrospective matched-pair study

https://link.springer.com/article/10.1186/s12871-026-04102-5

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

Perioperative outcomes in patients with myalgic encephalomyelitis/chronic fatigue syndrome undergoing general anesthesia: a retrospective matched-pair study

https://link.springer.com/article/10.1186/s12871-026-04102-5

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

Proposed Framework for Personalized Severity Assessment in ME/CFS to Capture Variation in ME/CFS Severity and Life Impairment across Patients and Time (2024)

https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1369295/full

#MEcfs #CFS #PwME #SevereME #SevereMECFS
#SevereCFS #VerySevereME @mecfs

Proposed Framework for Personalized Severity Assessment in ME/CFS to Capture Variation in ME/CFS Severity and Life Impairment across Patients and Time (2024)

https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1369295/full

#MEcfs #CFS #PwME #SevereME #SevereMECFS
#SevereCFS #VerySevereME @mecfs

Proposed Framework for Personalized Severity Assessment in ME/CFS to Capture Variation in ME/CFS Severity and Life Impairment across Patients and Time (2024)

https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1369295/full

#MEcfs #CFS #PwME #SevereME #SevereMECFS
#SevereCFS #VerySevereME @mecfs

Proposed Framework for Personalized Severity Assessment in ME/CFS to Capture Variation in ME/CFS Severity and Life Impairment across Patients and Time (2024)

https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1369295/full

#MEcfs #CFS #PwME #SevereME #SevereMECFS
#SevereCFS #VerySevereME @mecfs

Proposed Framework for Personalized Severity Assessment in ME/CFS to Capture Variation in ME/CFS Severity and Life Impairment across Patients and Time (2024)

https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1369295/full

#MEcfs #CFS #PwME #SevereME #SevereMECFS
#SevereCFS #VerySevereME @mecfs

Energy Points Chart

https://ltcovh.prod.acquia-sites.com/sites/default/files/2024-02/Energy%20EnvelopeENG.pdf

Modified from BE Ainsworth et al. Compendium of physical activities: An update of activity codes and MET intensities.

#MEcfs #LongCovid #PwME #CFS #Spoonies #Spoonie @mecfs @longcovid

Energy Points Chart

https://ltcovh.prod.acquia-sites.com/sites/default/files/2024-02/Energy%20EnvelopeENG.pdf

Modified from BE Ainsworth et al. Compendium of physical activities: An update of activity codes and MET intensities.

#MEcfs #LongCovid #PwME #CFS #Spoonies #Spoonie @mecfs @longcovid

Energy Points Chart

https://ltcovh.prod.acquia-sites.com/sites/default/files/2024-02/Energy%20EnvelopeENG.pdf

Modified from BE Ainsworth et al. Compendium of physical activities: An update of activity codes and MET intensities.

#MEcfs #LongCovid #PwME #CFS #Spoonies #Spoonie @mecfs @longcovid

Energy Points Chart

https://ltcovh.prod.acquia-sites.com/sites/default/files/2024-02/Energy%20EnvelopeENG.pdf

Modified from BE Ainsworth et al. Compendium of physical activities: An update of activity codes and MET intensities.

#MEcfs #LongCovid #PwME #CFS #Spoonies #Spoonie @mecfs @longcovid

Energy Points Chart

https://ltcovh.prod.acquia-sites.com/sites/default/files/2024-02/Energy%20EnvelopeENG.pdf

Modified from BE Ainsworth et al. Compendium of physical activities: An update of activity codes and MET intensities.

#MEcfs #LongCovid #PwME #CFS #Spoonies #Spoonie @mecfs @longcovid

RE: https://aus.social/@halcionandon/116959775697960381

Looking for a safe home for Anna.

More information:

https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/

https://chuffed.org/project/161937-help-anna-escape

Please share and/or help.🩵

#Australia
#Melbourne
#disability
#mutualaid
#mecfs
#SevereME
#pwME
#domesticviolence

RE: https://aus.social/@halcionandon/116959775697960381

Looking for a safe home for Anna.

More information:

https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/

https://chuffed.org/project/161937-help-anna-escape

Please share and/or help.🩵

#Australia
#Melbourne
#disability
#mutualaid
#mecfs
#SevereME
#pwME
#domesticviolence

RE: https://aus.social/@halcionandon/116959775697960381

Looking for a safe home for Anna.

More information:

https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/

https://chuffed.org/project/161937-help-anna-escape

Please share and/or help.🩵

#Australia
#Melbourne
#disability
#mutualaid
#mecfs
#SevereME
#pwME
#domesticviolence

RE: https://aus.social/@halcionandon/116959775697960381

Looking for a safe home for Anna.

More information:

https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/

https://chuffed.org/project/161937-help-anna-escape

Please share and/or help.🩵

#Australia
#Melbourne
#disability
#mutualaid
#mecfs
#SevereME
#pwME
#domesticviolence

RE: https://aus.social/@halcionandon/116959775697960381

Looking for a safe home for Anna.

More information:

https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/

https://chuffed.org/project/161937-help-anna-escape

Please share and/or help.🩵

#Australia
#Melbourne
#disability
#mutualaid
#mecfs
#SevereME
#pwME
#domesticviolence

3/

Science Spotlight: Solve-Funded Study Shows Gastrointestinal Symptoms Are Core Features of ME/CFS

https://solvecfs.org/science-spotlight-solve-funded-study-shows-gastrointestinal-symptoms-are-core-features-of-me-cfs/

#MEcfs #PwME 

@mecfs

3/

Science Spotlight: Solve-Funded Study Shows Gastrointestinal Symptoms Are Core Features of ME/CFS

https://solvecfs.org/science-spotlight-solve-funded-study-shows-gastrointestinal-symptoms-are-core-features-of-me-cfs/

#MEcfs #PwME 

@mecfs

3/

Science Spotlight: Solve-Funded Study Shows Gastrointestinal Symptoms Are Core Features of ME/CFS

https://solvecfs.org/science-spotlight-solve-funded-study-shows-gastrointestinal-symptoms-are-core-features-of-me-cfs/

#MEcfs #PwME 

@mecfs

3/

Science Spotlight: Solve-Funded Study Shows Gastrointestinal Symptoms Are Core Features of ME/CFS

https://solvecfs.org/science-spotlight-solve-funded-study-shows-gastrointestinal-symptoms-are-core-features-of-me-cfs/

#MEcfs #PwME 

@mecfs

3/

Science Spotlight: Solve-Funded Study Shows Gastrointestinal Symptoms Are Core Features of ME/CFS

https://solvecfs.org/science-spotlight-solve-funded-study-shows-gastrointestinal-symptoms-are-core-features-of-me-cfs/

#MEcfs #PwME 

@mecfs

"Is diagnosis of CFS harder if symptoms are mild or fluctuate?"

https://mypatientadvice.co.uk/knowledge-base/is-diagnosis-of-cfs-harder-if-symptoms-are-mild-or-fluctuate/

"This article explores the complexities of diagnosing mild or fluctuating ME/CFS within the UK healthcare system" but still relevant to people elsewhere

#MEcfs #PwME #CFS #ME #MyalgicE @mecfs

1/

"Is diagnosis of CFS harder if symptoms are mild or fluctuate?"

https://mypatientadvice.co.uk/knowledge-base/is-diagnosis-of-cfs-harder-if-symptoms-are-mild-or-fluctuate/

"This article explores the complexities of diagnosing mild or fluctuating ME/CFS within the UK healthcare system" but still relevant to people elsewhere

#MEcfs #PwME #CFS #ME #MyalgicE @mecfs

1/

"Is diagnosis of CFS harder if symptoms are mild or fluctuate?"

https://mypatientadvice.co.uk/knowledge-base/is-diagnosis-of-cfs-harder-if-symptoms-are-mild-or-fluctuate/

"This article explores the complexities of diagnosing mild or fluctuating ME/CFS within the UK healthcare system" but still relevant to people elsewhere

#MEcfs #PwME #CFS #ME #MyalgicE @mecfs

1/

"Is diagnosis of CFS harder if symptoms are mild or fluctuate?"

https://mypatientadvice.co.uk/knowledge-base/is-diagnosis-of-cfs-harder-if-symptoms-are-mild-or-fluctuate/

"This article explores the complexities of diagnosing mild or fluctuating ME/CFS within the UK healthcare system" but still relevant to people elsewhere

#MEcfs #PwME #CFS #ME #MyalgicE @mecfs

1/

"Is diagnosis of CFS harder if symptoms are mild or fluctuate?"

https://mypatientadvice.co.uk/knowledge-base/is-diagnosis-of-cfs-harder-if-symptoms-are-mild-or-fluctuate/

"This article explores the complexities of diagnosing mild or fluctuating ME/CFS within the UK healthcare system" but still relevant to people elsewhere

#MEcfs #PwME #CFS #ME #MyalgicE @mecfs

1/

RE: https://mastodon.ie/@IrishMECFSAssociation/116954067547991100

Hope to see a few of you at this. 👋
#Louth #MEcfs #LongCovid #PwME @mecfs @longcovid #mastodaoine

RE: https://mastodon.ie/@IrishMECFSAssociation/116954067547991100

Hope to see a few of you at this. 👋
#Louth #MEcfs #LongCovid #PwME @mecfs @longcovid #mastodaoine

RE: https://mastodon.ie/@IrishMECFSAssociation/116954067547991100

Hope to see a few of you at this. 👋
#Louth #MEcfs #LongCovid #PwME @mecfs @longcovid #mastodaoine

RE: https://mastodon.ie/@IrishMECFSAssociation/116954067547991100

Hope to see a few of you at this. 👋
#Louth #MEcfs #LongCovid #PwME @mecfs @longcovid #mastodaoine

RE: https://mastodon.ie/@IrishMECFSAssociation/116954067547991100

Hope to see a few of you at this. 👋
#Louth #MEcfs #LongCovid #PwME @mecfs @longcovid #mastodaoine

Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, August 5

https://irishmecfs.org/blog/dundalk-informal-mecfs-social-meet-up-on-wednesday-august-5-hosted-by-tom-kindlon

Hopefully we’ll see some of you there.

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #longcovid @mecfs @longcovid

Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, August 5

https://irishmecfs.org/blog/dundalk-informal-mecfs-social-meet-up-on-wednesday-august-5-hosted-by-tom-kindlon

Hopefully we’ll see some of you there.

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #longcovid @mecfs @longcovid

Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, August 5

https://irishmecfs.org/blog/dundalk-informal-mecfs-social-meet-up-on-wednesday-august-5-hosted-by-tom-kindlon

Hopefully we’ll see some of you there.

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #longcovid @mecfs @longcovid

Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, August 5

https://irishmecfs.org/blog/dundalk-informal-mecfs-social-meet-up-on-wednesday-august-5-hosted-by-tom-kindlon

Hopefully we’ll see some of you there.

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #longcovid @mecfs @longcovid

Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, August 5

https://irishmecfs.org/blog/dundalk-informal-mecfs-social-meet-up-on-wednesday-august-5-hosted-by-tom-kindlon

Hopefully we’ll see some of you there.

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #longcovid @mecfs @longcovid

Symptom Tracker

https://ltcovh.prod.acquia-sites.com/sites/default/files/2024-02/Symptom%20tracker%20ENG.pdf

#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

Symptom Tracker

https://ltcovh.prod.acquia-sites.com/sites/default/files/2024-02/Symptom%20tracker%20ENG.pdf

#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

Symptom Tracker

https://ltcovh.prod.acquia-sites.com/sites/default/files/2024-02/Symptom%20tracker%20ENG.pdf

#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

Symptom Tracker

https://ltcovh.prod.acquia-sites.com/sites/default/files/2024-02/Symptom%20tracker%20ENG.pdf

#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

Symptom Tracker

https://ltcovh.prod.acquia-sites.com/sites/default/files/2024-02/Symptom%20tracker%20ENG.pdf

#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

Check out the latest News in Brief (July 13 - 19) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.

https://s4me.info/threads/news-in-brief-july-2026.51240/#post-707945

Anyone can read public forum posts but if you become a forum member then you can join the discussion 😁

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC #Science4ME #S4ME

Check out the latest News in Brief (July 13 - 19) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.

https://s4me.info/threads/news-in-brief-july-2026.51240/#post-707945

Anyone can read public forum posts but if you become a forum member then you can join the discussion 😁

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC #Science4ME #S4ME

Check out the latest News in Brief (July 13 - 19) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.

https://s4me.info/threads/news-in-brief-july-2026.51240/#post-707945

Anyone can read public forum posts but if you become a forum member then you can join the discussion 😁

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC #Science4ME #S4ME

Check out the latest News in Brief (July 13 - 19) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.

https://s4me.info/threads/news-in-brief-july-2026.51240/#post-707945

Anyone can read public forum posts but if you become a forum member then you can join the discussion 😁

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC #Science4ME #S4ME

Check out the latest News in Brief (July 13 - 19) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.

https://s4me.info/threads/news-in-brief-july-2026.51240/#post-707945

Anyone can read public forum posts but if you become a forum member then you can join the discussion 😁

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC #Science4ME #S4ME