#pwme — Public Fediverse posts

Irish ME Trust social gatherings next week in KILKENNY, CORK, LIMERICK, DUBLIN & BRAY

#MEcfs #PwME #CFS #ME #MyalgicE @mecfs

5/
Critical discussion on the Science for ME @s4me forum on this research. Thread started in 2024 but includes numerous posts in the last 24 hours:
https://s4me.info/threads/recovery-is-possible-lessons-in-%E2%80%98me-cfs%E2%80%99-recovery-from-youtube-goldsmiths.38843/

#mecfs #longcovid #pwme #cfs
@mecfs @longcovid

2/
I don't believe a lot of the testimony in this area. For example, after you have done lightning process you are supposed to not mention any impairments you have, that is part of the process. Similarly many people have conflicts of interest from making money from such approaches.

#PwME #CFS #ME @mecfs @longcovid #MEcfs #LongCovid

(Australia)
Emerge Australia has partnered with Edith Cowan University (ECU) to measure the impact of ME/CFS and long COVID

https://eaecu.au1.qualtrics.com/jfe/form/SV_d13rwqVw4UaOFEy

Screenshot from latest Emerge Australia email bulletin

#MEcfs #LongCovid #PwME #CFS #ME #MyalgicE @mecfs @longcovid

Perioperative outcomes in patients with myalgic encephalomyelitis/chronic fatigue syndrome undergoing general anesthesia: a retrospective matched-pair study

https://link.springer.com/article/10.1186/s12871-026-04102-5

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

Perioperative outcomes in patients with myalgic encephalomyelitis/chronic fatigue syndrome undergoing general anesthesia: a retrospective matched-pair study

https://link.springer.com/article/10.1186/s12871-026-04102-5

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

Perioperative outcomes in patients with myalgic encephalomyelitis/chronic fatigue syndrome undergoing general anesthesia: a retrospective matched-pair study

https://link.springer.com/article/10.1186/s12871-026-04102-5

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

Perioperative outcomes in patients with myalgic encephalomyelitis/chronic fatigue syndrome undergoing general anesthesia: a retrospective matched-pair study

https://link.springer.com/article/10.1186/s12871-026-04102-5

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

Perioperative outcomes in patients with myalgic encephalomyelitis/chronic fatigue syndrome undergoing general anesthesia: a retrospective matched-pair study

https://link.springer.com/article/10.1186/s12871-026-04102-5

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

Proposed Framework for Personalized Severity Assessment in ME/CFS to Capture Variation in ME/CFS Severity and Life Impairment across Patients and Time (2024)

https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1369295/full

#MEcfs #CFS #PwME #SevereME #SevereMECFS
#SevereCFS #VerySevereME @mecfs

Proposed Framework for Personalized Severity Assessment in ME/CFS to Capture Variation in ME/CFS Severity and Life Impairment across Patients and Time (2024)

https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1369295/full

#MEcfs #CFS #PwME #SevereME #SevereMECFS
#SevereCFS #VerySevereME @mecfs

Proposed Framework for Personalized Severity Assessment in ME/CFS to Capture Variation in ME/CFS Severity and Life Impairment across Patients and Time (2024)

https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1369295/full

#MEcfs #CFS #PwME #SevereME #SevereMECFS
#SevereCFS #VerySevereME @mecfs

Proposed Framework for Personalized Severity Assessment in ME/CFS to Capture Variation in ME/CFS Severity and Life Impairment across Patients and Time (2024)

https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1369295/full

#MEcfs #CFS #PwME #SevereME #SevereMECFS
#SevereCFS #VerySevereME @mecfs

Proposed Framework for Personalized Severity Assessment in ME/CFS to Capture Variation in ME/CFS Severity and Life Impairment across Patients and Time (2024)

https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2024.1369295/full

#MEcfs #CFS #PwME #SevereME #SevereMECFS
#SevereCFS #VerySevereME @mecfs

Energy Points Chart

https://ltcovh.prod.acquia-sites.com/sites/default/files/2024-02/Energy%20EnvelopeENG.pdf

Modified from BE Ainsworth et al. Compendium of physical activities: An update of activity codes and MET intensities.

#MEcfs #LongCovid #PwME #CFS #Spoonies #Spoonie @mecfs @longcovid

Energy Points Chart

https://ltcovh.prod.acquia-sites.com/sites/default/files/2024-02/Energy%20EnvelopeENG.pdf

Modified from BE Ainsworth et al. Compendium of physical activities: An update of activity codes and MET intensities.

#MEcfs #LongCovid #PwME #CFS #Spoonies #Spoonie @mecfs @longcovid

Energy Points Chart

https://ltcovh.prod.acquia-sites.com/sites/default/files/2024-02/Energy%20EnvelopeENG.pdf

Modified from BE Ainsworth et al. Compendium of physical activities: An update of activity codes and MET intensities.

#MEcfs #LongCovid #PwME #CFS #Spoonies #Spoonie @mecfs @longcovid

Energy Points Chart

https://ltcovh.prod.acquia-sites.com/sites/default/files/2024-02/Energy%20EnvelopeENG.pdf

Modified from BE Ainsworth et al. Compendium of physical activities: An update of activity codes and MET intensities.

#MEcfs #LongCovid #PwME #CFS #Spoonies #Spoonie @mecfs @longcovid

Energy Points Chart

https://ltcovh.prod.acquia-sites.com/sites/default/files/2024-02/Energy%20EnvelopeENG.pdf

Modified from BE Ainsworth et al. Compendium of physical activities: An update of activity codes and MET intensities.

#MEcfs #LongCovid #PwME #CFS #Spoonies #Spoonie @mecfs @longcovid

RE: https://aus.social/@halcionandon/116959775697960381

Looking for a safe home for Anna.

More information:

https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/

https://chuffed.org/project/161937-help-anna-escape

Please share and/or help.🩵

#Australia
#Melbourne
#disability
#mutualaid
#mecfs
#SevereME
#pwME
#domesticviolence

RE: https://aus.social/@halcionandon/116959775697960381

Looking for a safe home for Anna.

More information:

https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/

https://chuffed.org/project/161937-help-anna-escape

Please share and/or help.🩵

#Australia
#Melbourne
#disability
#mutualaid
#mecfs
#SevereME
#pwME
#domesticviolence

RE: https://aus.social/@halcionandon/116959775697960381

Looking for a safe home for Anna.

More information:

https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/

https://chuffed.org/project/161937-help-anna-escape

Please share and/or help.🩵

#Australia
#Melbourne
#disability
#mutualaid
#mecfs
#SevereME
#pwME
#domesticviolence

RE: https://aus.social/@halcionandon/116959775697960381

Looking for a safe home for Anna.

More information:

https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/

https://chuffed.org/project/161937-help-anna-escape

Please share and/or help.🩵

#Australia
#Melbourne
#disability
#mutualaid
#mecfs
#SevereME
#pwME
#domesticviolence

RE: https://aus.social/@halcionandon/116959775697960381

Looking for a safe home for Anna.

More information:

https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/

https://chuffed.org/project/161937-help-anna-escape

Please share and/or help.🩵

#Australia
#Melbourne
#disability
#mutualaid
#mecfs
#SevereME
#pwME
#domesticviolence

3/

Science Spotlight: Solve-Funded Study Shows Gastrointestinal Symptoms Are Core Features of ME/CFS

https://solvecfs.org/science-spotlight-solve-funded-study-shows-gastrointestinal-symptoms-are-core-features-of-me-cfs/

#MEcfs #PwME 

@mecfs

3/

Science Spotlight: Solve-Funded Study Shows Gastrointestinal Symptoms Are Core Features of ME/CFS

https://solvecfs.org/science-spotlight-solve-funded-study-shows-gastrointestinal-symptoms-are-core-features-of-me-cfs/

#MEcfs #PwME 

@mecfs

3/

Science Spotlight: Solve-Funded Study Shows Gastrointestinal Symptoms Are Core Features of ME/CFS

https://solvecfs.org/science-spotlight-solve-funded-study-shows-gastrointestinal-symptoms-are-core-features-of-me-cfs/

#MEcfs #PwME 

@mecfs

3/

Science Spotlight: Solve-Funded Study Shows Gastrointestinal Symptoms Are Core Features of ME/CFS

https://solvecfs.org/science-spotlight-solve-funded-study-shows-gastrointestinal-symptoms-are-core-features-of-me-cfs/

#MEcfs #PwME 

@mecfs

3/

Science Spotlight: Solve-Funded Study Shows Gastrointestinal Symptoms Are Core Features of ME/CFS

https://solvecfs.org/science-spotlight-solve-funded-study-shows-gastrointestinal-symptoms-are-core-features-of-me-cfs/

#MEcfs #PwME 

@mecfs

"Is diagnosis of CFS harder if symptoms are mild or fluctuate?"

https://mypatientadvice.co.uk/knowledge-base/is-diagnosis-of-cfs-harder-if-symptoms-are-mild-or-fluctuate/

"This article explores the complexities of diagnosing mild or fluctuating ME/CFS within the UK healthcare system" but still relevant to people elsewhere

#MEcfs #PwME #CFS #ME #MyalgicE @mecfs

1/

"Is diagnosis of CFS harder if symptoms are mild or fluctuate?"

https://mypatientadvice.co.uk/knowledge-base/is-diagnosis-of-cfs-harder-if-symptoms-are-mild-or-fluctuate/

"This article explores the complexities of diagnosing mild or fluctuating ME/CFS within the UK healthcare system" but still relevant to people elsewhere

#MEcfs #PwME #CFS #ME #MyalgicE @mecfs

1/

"Is diagnosis of CFS harder if symptoms are mild or fluctuate?"

https://mypatientadvice.co.uk/knowledge-base/is-diagnosis-of-cfs-harder-if-symptoms-are-mild-or-fluctuate/

"This article explores the complexities of diagnosing mild or fluctuating ME/CFS within the UK healthcare system" but still relevant to people elsewhere

#MEcfs #PwME #CFS #ME #MyalgicE @mecfs

1/

"Is diagnosis of CFS harder if symptoms are mild or fluctuate?"

https://mypatientadvice.co.uk/knowledge-base/is-diagnosis-of-cfs-harder-if-symptoms-are-mild-or-fluctuate/

"This article explores the complexities of diagnosing mild or fluctuating ME/CFS within the UK healthcare system" but still relevant to people elsewhere

#MEcfs #PwME #CFS #ME #MyalgicE @mecfs

1/

"Is diagnosis of CFS harder if symptoms are mild or fluctuate?"

https://mypatientadvice.co.uk/knowledge-base/is-diagnosis-of-cfs-harder-if-symptoms-are-mild-or-fluctuate/

"This article explores the complexities of diagnosing mild or fluctuating ME/CFS within the UK healthcare system" but still relevant to people elsewhere

#MEcfs #PwME #CFS #ME #MyalgicE @mecfs

1/

RE: https://mastodon.ie/@IrishMECFSAssociation/116954067547991100

Hope to see a few of you at this. 👋
#Louth #MEcfs #LongCovid #PwME @mecfs @longcovid #mastodaoine

RE: https://mastodon.ie/@IrishMECFSAssociation/116954067547991100

Hope to see a few of you at this. 👋
#Louth #MEcfs #LongCovid #PwME @mecfs @longcovid #mastodaoine

RE: https://mastodon.ie/@IrishMECFSAssociation/116954067547991100

Hope to see a few of you at this. 👋
#Louth #MEcfs #LongCovid #PwME @mecfs @longcovid #mastodaoine

RE: https://mastodon.ie/@IrishMECFSAssociation/116954067547991100

Hope to see a few of you at this. 👋
#Louth #MEcfs #LongCovid #PwME @mecfs @longcovid #mastodaoine

RE: https://mastodon.ie/@IrishMECFSAssociation/116954067547991100

Hope to see a few of you at this. 👋
#Louth #MEcfs #LongCovid #PwME @mecfs @longcovid #mastodaoine

Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, August 5

https://irishmecfs.org/blog/dundalk-informal-mecfs-social-meet-up-on-wednesday-august-5-hosted-by-tom-kindlon

Hopefully we’ll see some of you there.

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #longcovid @mecfs @longcovid

Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, August 5

https://irishmecfs.org/blog/dundalk-informal-mecfs-social-meet-up-on-wednesday-august-5-hosted-by-tom-kindlon

Hopefully we’ll see some of you there.

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #longcovid @mecfs @longcovid

Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, August 5

https://irishmecfs.org/blog/dundalk-informal-mecfs-social-meet-up-on-wednesday-august-5-hosted-by-tom-kindlon

Hopefully we’ll see some of you there.

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #longcovid @mecfs @longcovid

Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, August 5

https://irishmecfs.org/blog/dundalk-informal-mecfs-social-meet-up-on-wednesday-august-5-hosted-by-tom-kindlon

Hopefully we’ll see some of you there.

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #longcovid @mecfs @longcovid

Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, August 5

https://irishmecfs.org/blog/dundalk-informal-mecfs-social-meet-up-on-wednesday-august-5-hosted-by-tom-kindlon

Hopefully we’ll see some of you there.

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #longcovid @mecfs @longcovid

Symptom Tracker

https://ltcovh.prod.acquia-sites.com/sites/default/files/2024-02/Symptom%20tracker%20ENG.pdf

#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

Symptom Tracker

https://ltcovh.prod.acquia-sites.com/sites/default/files/2024-02/Symptom%20tracker%20ENG.pdf

#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

Symptom Tracker

https://ltcovh.prod.acquia-sites.com/sites/default/files/2024-02/Symptom%20tracker%20ENG.pdf

#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

Symptom Tracker

https://ltcovh.prod.acquia-sites.com/sites/default/files/2024-02/Symptom%20tracker%20ENG.pdf

#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

Symptom Tracker

https://ltcovh.prod.acquia-sites.com/sites/default/files/2024-02/Symptom%20tracker%20ENG.pdf

#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

Check out the latest News in Brief (July 13 - 19) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.

https://s4me.info/threads/news-in-brief-july-2026.51240/#post-707945

Anyone can read public forum posts but if you become a forum member then you can join the discussion 😁

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC #Science4ME #S4ME