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#pwme — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #pwme, aggregated by home.social.

  1. There is now an ME page on the HSE website. It includes details for the Lived Experience Groups that are still recruiting "people living with ME and those who support them"

    healthservice.hse.ie/staff/inf

    #MyalgicEncephalomyelitis #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  2. There is now an ME page on the HSE website. It includes details for the Lived Experience Groups that are still recruiting "people living with ME and those who support them"

    healthservice.hse.ie/staff/inf

    #MyalgicEncephalomyelitis #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  3. There is now an ME page on the HSE website. It includes details for the Lived Experience Groups that are still recruiting "people living with ME and those who support them"

    healthservice.hse.ie/staff/inf

    #MyalgicEncephalomyelitis #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  4. There is now an ME page on the HSE website. It includes details for the Lived Experience Groups that are still recruiting "people living with ME and those who support them"

    healthservice.hse.ie/staff/inf

    #MyalgicEncephalomyelitis #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  5. There is now an ME page on the HSE website. It includes details for the Lived Experience Groups that are still recruiting "people living with ME and those who support them"

    healthservice.hse.ie/staff/inf

    #MyalgicEncephalomyelitis #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  6. Myalgic encephalomyelitis/chronic fatigue syndrome and overlapping post-acute infection syndromes: international expert consensus framework for diagnostic standardization

    link.springer.com/article/10.1

    s4me.info/threads/me-cfs-and-o

    Screenshot from latest Science for ME weekly update

    #MEcfs #PwME #CFS
    @mecfs

  7. A YouTuber, Skallagrim, with 1.63 million followers has created a 31-minute video, “What ME/CFS is, and how it is wrecking me” with over 170,000 views

    youtube.com/watch?v=GILP6q7zUGY

    See next post for a few quick thoughts

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #PwME #CFS @mecfs

    1/

  8. A YouTuber, Skallagrim, with 1.63 million followers has created a 31-minute video, “What ME/CFS is, and how it is wrecking me” with over 170,000 views

    youtube.com/watch?v=GILP6q7zUGY

    See next post for a few quick thoughts

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #PwME #CFS @mecfs

    1/

  9. A YouTuber, Skallagrim, with 1.63 million followers has created a 31-minute video, “What ME/CFS is, and how it is wrecking me” with over 170,000 views

    youtube.com/watch?v=GILP6q7zUGY

    See next post for a few quick thoughts

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #PwME #CFS @mecfs

    1/

  10. A YouTuber, Skallagrim, with 1.63 million followers has created a 31-minute video, “What ME/CFS is, and how it is wrecking me” with over 170,000 views

    youtube.com/watch?v=GILP6q7zUGY

    See next post for a few quick thoughts

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #PwME #CFS @mecfs

    1/

  11. A YouTuber, Skallagrim, with 1.63 million followers has created a 31-minute video, “What ME/CFS is, and how it is wrecking me” with over 170,000 views

    youtube.com/watch?v=GILP6q7zUGY

    See next post for a few quick thoughts

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #PwME #CFS @mecfs

    1/

  12. 6/

    “Why can medicine help so little?”

    From "Understanding ME/CFS An Introduction to a Complex Illness" (August 2026) by Dr med Michaela Bauer

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
    @mecfs

  13. 6/

    “Why can medicine help so little?”

    From "Understanding ME/CFS An Introduction to a Complex Illness" (August 2026) by Dr med Michaela Bauer

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
    @mecfs

  14. 6/

    “Why can medicine help so little?”

    From "Understanding ME/CFS An Introduction to a Complex Illness" (August 2026) by Dr med Michaela Bauer

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
    @mecfs

  15. 6/

    “Why can medicine help so little?”

    From "Understanding ME/CFS An Introduction to a Complex Illness" (August 2026) by Dr med Michaela Bauer

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
    @mecfs

  16. 6/

    “Why can medicine help so little?”

    From "Understanding ME/CFS An Introduction to a Complex Illness" (August 2026) by Dr med Michaela Bauer

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
    @mecfs

  17. 5/

    “What is pacing?”

    From "Understanding ME/CFS An Introduction to a Complex Illness" (August 2026) by Dr med Michaela Bauer

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

  18. 5/

    “What is pacing?”

    From "Understanding ME/CFS An Introduction to a Complex Illness" (August 2026) by Dr med Michaela Bauer

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

  19. 5/

    “What is pacing?”

    From "Understanding ME/CFS An Introduction to a Complex Illness" (August 2026) by Dr med Michaela Bauer

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

  20. 5/

    “What is pacing?”

    From "Understanding ME/CFS An Introduction to a Complex Illness" (August 2026) by Dr med Michaela Bauer

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

  21. 5/

    “What is pacing?”

    From "Understanding ME/CFS An Introduction to a Complex Illness" (August 2026) by Dr med Michaela Bauer

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

  22. We have been asked the following. Feel free to message us if you prefer:

    “any chance please you know of any GPs in Kilkenny city that people are happy with ie they either have some knowledge about ME or at a minimum are sympathetic towards it?”

    #MEcfs #Kilkenny #PwME #CFS #KilkennyCity @mecfs #mastodaoine