#pwme — Public Fediverse posts

The Hidden Hierarchy of Illness

https://journals.sagepub.com/doi/full/10.1177/27536351261431723

Screenshot from September AMMES newsletter

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

The Hidden Hierarchy of Illness

https://journals.sagepub.com/doi/full/10.1177/27536351261431723

Screenshot from September AMMES newsletter

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

The Hidden Hierarchy of Illness

https://journals.sagepub.com/doi/full/10.1177/27536351261431723

Screenshot from September AMMES newsletter

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

The Hidden Hierarchy of Illness

https://journals.sagepub.com/doi/full/10.1177/27536351261431723

Screenshot from September AMMES newsletter

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

The Hidden Hierarchy of Illness

https://journals.sagepub.com/doi/full/10.1177/27536351261431723

Screenshot from September AMMES newsletter

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

Trial By Error: Norway Disability Case Exposes Flaws in Draft Guideline for “Long-Term Fatigue–including ME/CFS”

https://virology.ws/2026/03/13/trial-by-error-norway-disability-case-exposes-flaws-in-draft-guideline-for-long-term-fatigue-including-me-cfs/

Screenshot from September AMMES newsletter

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

Trial By Error: Norway Disability Case Exposes Flaws in Draft Guideline for “Long-Term Fatigue–including ME/CFS”

https://virology.ws/2026/03/13/trial-by-error-norway-disability-case-exposes-flaws-in-draft-guideline-for-long-term-fatigue-including-me-cfs/

Screenshot from September AMMES newsletter

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

Trial By Error: Norway Disability Case Exposes Flaws in Draft Guideline for “Long-Term Fatigue–including ME/CFS”

https://virology.ws/2026/03/13/trial-by-error-norway-disability-case-exposes-flaws-in-draft-guideline-for-long-term-fatigue-including-me-cfs/

Screenshot from September AMMES newsletter

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

Trial By Error: Norway Disability Case Exposes Flaws in Draft Guideline for “Long-Term Fatigue–including ME/CFS”

https://virology.ws/2026/03/13/trial-by-error-norway-disability-case-exposes-flaws-in-draft-guideline-for-long-term-fatigue-including-me-cfs/

Screenshot from September AMMES newsletter

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

Trial By Error: Norway Disability Case Exposes Flaws in Draft Guideline for “Long-Term Fatigue–including ME/CFS”

https://virology.ws/2026/03/13/trial-by-error-norway-disability-case-exposes-flaws-in-draft-guideline-for-long-term-fatigue-including-me-cfs/

Screenshot from September AMMES newsletter

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

ME Research UK

In the third deep-dive of our weekly Symptom Saturday series, we explore sleep dysfunction in ME/CFS – including lived experience, different patterns of sleep disruption, and research suggesting challenges across the brain and nervous system.

Read more:
https://www.meresearch.org.uk/sleep-dysfunction-in-me-cfs/

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

ME Research UK

In the third deep-dive of our weekly Symptom Saturday series, we explore sleep dysfunction in ME/CFS – including lived experience, different patterns of sleep disruption, and research suggesting challenges across the brain and nervous system.

Read more:
https://www.meresearch.org.uk/sleep-dysfunction-in-me-cfs/

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

ME Research UK

In the third deep-dive of our weekly Symptom Saturday series, we explore sleep dysfunction in ME/CFS – including lived experience, different patterns of sleep disruption, and research suggesting challenges across the brain and nervous system.

Read more:
https://www.meresearch.org.uk/sleep-dysfunction-in-me-cfs/

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

ME Research UK

In the third deep-dive of our weekly Symptom Saturday series, we explore sleep dysfunction in ME/CFS – including lived experience, different patterns of sleep disruption, and research suggesting challenges across the brain and nervous system.

Read more:
https://www.meresearch.org.uk/sleep-dysfunction-in-me-cfs/

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

ME Research UK

In the third deep-dive of our weekly Symptom Saturday series, we explore sleep dysfunction in ME/CFS – including lived experience, different patterns of sleep disruption, and research suggesting challenges across the brain and nervous system.

Read more:
https://www.meresearch.org.uk/sleep-dysfunction-in-me-cfs/

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 7 - 13.

https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC

Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 7 - 13.

https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC

Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 7 - 13.

https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC

Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 7 - 13.

https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC

Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 7 - 13.

https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Therapy via Messaging

https://chroniclivingtherapy.com/insights-text-based-therapy/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MEcfs #Spoonies #PwME #Spoonie #SevereME #LongCovid #CFS #chronicillness
@mecfs @longcovid #POTS @pots

Therapy via Messaging

https://chroniclivingtherapy.com/insights-text-based-therapy/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MEcfs #Spoonies #PwME #Spoonie #SevereME #LongCovid #CFS #chronicillness
@mecfs @longcovid #POTS @pots

Therapy via Messaging

https://chroniclivingtherapy.com/insights-text-based-therapy/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MEcfs #Spoonies #PwME #Spoonie #SevereME #LongCovid #CFS #chronicillness
@mecfs @longcovid #POTS @pots

Therapy via Messaging

https://chroniclivingtherapy.com/insights-text-based-therapy/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MEcfs #Spoonies #PwME #Spoonie #SevereME #LongCovid #CFS #chronicillness
@mecfs @longcovid #POTS @pots

Therapy via Messaging

https://chroniclivingtherapy.com/insights-text-based-therapy/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MEcfs #Spoonies #PwME #Spoonie #SevereME #LongCovid #CFS #chronicillness
@mecfs @longcovid #POTS @pots

Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
https://www.underground-cinema.com/screening-room?wix-vod-video-id=e133c0f3001b4d09ad9e8ed8aab8c804&wix-vod-comp-id=comp-mtueb2ju

*just create a login & scroll to see Warrior Short Film until midnight Sun 13

As someone who took 5+ years to get diagnosed, sadly I can relate

#chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain

Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
https://www.underground-cinema.com/screening-room?wix-vod-video-id=e133c0f3001b4d09ad9e8ed8aab8c804&wix-vod-comp-id=comp-mtueb2ju

*just create a login & scroll to see Warrior Short Film until midnight Sun 13

As someone who took 5+ years to get diagnosed, sadly I can relate

#chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain

Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
https://www.underground-cinema.com/screening-room?wix-vod-video-id=e133c0f3001b4d09ad9e8ed8aab8c804&wix-vod-comp-id=comp-mtueb2ju

*just create a login & scroll to see Warrior Short Film until midnight Sun 13

As someone who took 5+ years to get diagnosed, sadly I can relate

#chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain

Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
https://www.underground-cinema.com/screening-room?wix-vod-video-id=e133c0f3001b4d09ad9e8ed8aab8c804&wix-vod-comp-id=comp-mtueb2ju

*just create a login & scroll to see Warrior Short Film until midnight Sun 13

As someone who took 5+ years to get diagnosed, sadly I can relate

#chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain

Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
https://www.underground-cinema.com/screening-room?wix-vod-video-id=e133c0f3001b4d09ad9e8ed8aab8c804&wix-vod-comp-id=comp-mtueb2ju

*just create a login & scroll to see Warrior Short Film until midnight Sun 13

As someone who took 5+ years to get diagnosed, sadly I can relate

#chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain

Media gaslighting = patient harm

https://chroniclivingtherapy.com/brain-retraining-merry-go-round/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MEcfs #PwME #LongCovid #CFS #chronicillness
@mecfs @longcovid

Media gaslighting = patient harm

https://chroniclivingtherapy.com/brain-retraining-merry-go-round/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MEcfs #PwME #LongCovid #CFS #chronicillness
@mecfs @longcovid

Media gaslighting = patient harm

https://chroniclivingtherapy.com/brain-retraining-merry-go-round/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MEcfs #PwME #LongCovid #CFS #chronicillness
@mecfs @longcovid

Media gaslighting = patient harm

https://chroniclivingtherapy.com/brain-retraining-merry-go-round/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MEcfs #PwME #LongCovid #CFS #chronicillness
@mecfs @longcovid

Media gaslighting = patient harm

https://chroniclivingtherapy.com/brain-retraining-merry-go-round/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MEcfs #PwME #LongCovid #CFS #chronicillness
@mecfs @longcovid

"ME, CFS and Long Covid Service Care and Support Plan (CSP)"

3-page document, one of a number of potentially useful files available here:
https://suffolkfed.org.uk/healthcare-services/me-cfs-long-covid/

This service development used a lot of patient input

#MEcfs #LongCovid #PwME 
@mecfs @longcovid

"ME, CFS and Long Covid Service Care and Support Plan (CSP)"

3-page document, one of a number of potentially useful files available here:
https://suffolkfed.org.uk/healthcare-services/me-cfs-long-covid/

This service development used a lot of patient input

#MEcfs #LongCovid #PwME 
@mecfs @longcovid

"ME, CFS and Long Covid Service Care and Support Plan (CSP)"

3-page document, one of a number of potentially useful files available here:
https://suffolkfed.org.uk/healthcare-services/me-cfs-long-covid/

This service development used a lot of patient input

#MEcfs #LongCovid #PwME 
@mecfs @longcovid

"ME, CFS and Long Covid Service Care and Support Plan (CSP)"

3-page document, one of a number of potentially useful files available here:
https://suffolkfed.org.uk/healthcare-services/me-cfs-long-covid/

This service development used a lot of patient input

#MEcfs #LongCovid #PwME 
@mecfs @longcovid

"ME, CFS and Long Covid Service Care and Support Plan (CSP)"

3-page document, one of a number of potentially useful files available here:
https://suffolkfed.org.uk/healthcare-services/me-cfs-long-covid/

This service development used a lot of patient input

#MEcfs #LongCovid #PwME 
@mecfs @longcovid

Ahh, the art. So fascinating, so wonderful. Here, we see the illmarks website, returning to life, with news of one of my favorite procedures. Cholecystectomy. Yes, of course the artist needed more health problems, you silly!

More #SequenceME news coverage:

"UK to sequence genomes of 6,000 ME/CFS patients for treatment clues"

https://www.pulsetoday.co.uk/news/clinical-areas/mental-health-pain-and-addiction/uk-to-sequence-genomes-of-6000-me-cfs-patients-for-treatment-clues/

"The work will build on the earlier DecodeME study, which created the world’s largest ME/CFS research cohort."

@mecfs

#MEcfs #PwME #Genetics #Research #DecodeME

Check out the latest News in Brief (May 11 - 17) from the Science for ME forum. It's a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.

https://www.s4me.info/threads/news-in-brief-may-2026.50158/#post-693584

Good news - Major funding secured for Sequence ME & Long Covid research project!

https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC #SequenceME #DecodeME #Science4ME

Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of May 11 - 17.

https://www.s4me.info/threads/news-in-brief-may-2026.50158/#post-693584

Highlight: Major funding secured for Sequence ME & Long Covid! (DecodeMe project)

https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC #SequenceME #DecodeME

⚠️ Update: si un enlace no funcione o hay algún error en el texto avisadme, por favor. Ya está arreglado y podéis leerlo.
✩₊˚.⋆☾𓃦☽⋆⁺₊✧ ✩
Y de noche recuerdo esta #poesia sobre la luz, los colores y el sol. Mis ex.

#203 Oculta entre las sombras, la luz sigue ahí 🐺https://domandoallobo.blogspot.com/2016/08/203-oculta-entre-las-sombras-la-luz.html #blog

#DiaDeLaPoesia #WorldPoetryDay #poema #Lupus #Sjögren #EncefalomielitisMiálgica #pwME #Fibromialgia #Migraña #POTS #fotofobia #fotosensibilidad #mastoblog #mastobloggers #mastobloggers