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#pwme — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #pwme, aggregated by home.social.

  1. Trial By Error: Norway Disability Case Exposes Flaws in Draft Guideline for “Long-Term Fatigue–including ME/CFS”

    virology.ws/2026/03/13/trial-b

    Screenshot from September AMMES newsletter

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  2. Trial By Error: Norway Disability Case Exposes Flaws in Draft Guideline for “Long-Term Fatigue–including ME/CFS”

    virology.ws/2026/03/13/trial-b

    Screenshot from September AMMES newsletter

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  3. Trial By Error: Norway Disability Case Exposes Flaws in Draft Guideline for “Long-Term Fatigue–including ME/CFS”

    virology.ws/2026/03/13/trial-b

    Screenshot from September AMMES newsletter

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  4. Trial By Error: Norway Disability Case Exposes Flaws in Draft Guideline for “Long-Term Fatigue–including ME/CFS”

    virology.ws/2026/03/13/trial-b

    Screenshot from September AMMES newsletter

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  5. Trial By Error: Norway Disability Case Exposes Flaws in Draft Guideline for “Long-Term Fatigue–including ME/CFS”

    virology.ws/2026/03/13/trial-b

    Screenshot from September AMMES newsletter

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  6. ME Research UK

    In the third deep-dive of our weekly Symptom Saturday series, we explore sleep dysfunction in ME/CFS – including lived experience, different patterns of sleep disruption, and research suggesting challenges across the brain and nervous system.

    Read more:
    meresearch.org.uk/sleep-dysfun

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

  7. ME Research UK

    In the third deep-dive of our weekly Symptom Saturday series, we explore sleep dysfunction in ME/CFS – including lived experience, different patterns of sleep disruption, and research suggesting challenges across the brain and nervous system.

    Read more:
    meresearch.org.uk/sleep-dysfun

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

  8. ME Research UK

    In the third deep-dive of our weekly Symptom Saturday series, we explore sleep dysfunction in ME/CFS – including lived experience, different patterns of sleep disruption, and research suggesting challenges across the brain and nervous system.

    Read more:
    meresearch.org.uk/sleep-dysfun

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

  9. ME Research UK

    In the third deep-dive of our weekly Symptom Saturday series, we explore sleep dysfunction in ME/CFS – including lived experience, different patterns of sleep disruption, and research suggesting challenges across the brain and nervous system.

    Read more:
    meresearch.org.uk/sleep-dysfun

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

  10. ME Research UK

    In the third deep-dive of our weekly Symptom Saturday series, we explore sleep dysfunction in ME/CFS – including lived experience, different patterns of sleep disruption, and research suggesting challenges across the brain and nervous system.

    Read more:
    meresearch.org.uk/sleep-dysfun

    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs

  11. Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 7 - 13.

    s4me.info/threads/news-in-brie

    @mecfs @longcovid

    #MEcfs #PwME #LongCovid #PwLC

  12. Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 7 - 13.

    s4me.info/threads/news-in-brie

    @mecfs @longcovid

    #MEcfs #PwME #LongCovid #PwLC

  13. Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 7 - 13.

    s4me.info/threads/news-in-brie

    @mecfs @longcovid

    #MEcfs #PwME #LongCovid #PwLC

  14. Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 7 - 13.

    s4me.info/threads/news-in-brie

    @mecfs @longcovid

    #MEcfs #PwME #LongCovid #PwLC

  15. Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 7 - 13.

    s4me.info/threads/news-in-brie

    @mecfs @longcovid

    #MEcfs #PwME #LongCovid #PwLC

  16. Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
    underground-cinema.com/screeni

    *just create a login & scroll to see Warrior Short Film until midnight Sun 13

    As someone who took 5+ years to get diagnosed, sadly I can relate

    #chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain

  17. "ME, CFS and Long Covid Service Care and Support Plan (CSP)"

    3-page document, one of a number of potentially useful files available here:
    suffolkfed.org.uk/healthcare-s

    This service development used a lot of patient input

    #MEcfs #LongCovid #PwME 
    @mecfs @longcovid

  18. "ME, CFS and Long Covid Service Care and Support Plan (CSP)"

    3-page document, one of a number of potentially useful files available here:
    suffolkfed.org.uk/healthcare-s

    This service development used a lot of patient input

    #MEcfs #LongCovid #PwME 
    @mecfs @longcovid

  19. "ME, CFS and Long Covid Service Care and Support Plan (CSP)"

    3-page document, one of a number of potentially useful files available here:
    suffolkfed.org.uk/healthcare-s

    This service development used a lot of patient input

    #MEcfs #LongCovid #PwME 
    @mecfs @longcovid

  20. "ME, CFS and Long Covid Service Care and Support Plan (CSP)"

    3-page document, one of a number of potentially useful files available here:
    suffolkfed.org.uk/healthcare-s

    This service development used a lot of patient input

    #MEcfs #LongCovid #PwME 
    @mecfs @longcovid

  21. "ME, CFS and Long Covid Service Care and Support Plan (CSP)"

    3-page document, one of a number of potentially useful files available here:
    suffolkfed.org.uk/healthcare-s

    This service development used a lot of patient input

    #MEcfs #LongCovid #PwME 
    @mecfs @longcovid

  22. More #SequenceME news coverage:

    "UK to sequence genomes of 6,000 ME/CFS patients for treatment clues"

    pulsetoday.co.uk/news/clinical

    "The work will build on the earlier DecodeME study, which created the world’s largest ME/CFS research cohort."

    @mecfs

    #MEcfs #PwME #Genetics #Research #DecodeME

  23. Check out the latest News in Brief (May 11 - 17) from the Science for ME forum. It's a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.

    s4me.info/threads/news-in-brie

    Good news - Major funding secured for Sequence ME & Long Covid research project!

    actionforme.org.uk/major-fundi

    @mecfs @longcovid

    #MEcfs #PwME #LongCovid #PwLC #SequenceME #DecodeME #Science4ME

  24. Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of May 11 - 17.

    s4me.info/threads/news-in-brie

    Highlight: Major funding secured for Sequence ME & Long Covid! (DecodeMe project)

    actionforme.org.uk/major-fundi

    @mecfs @longcovid

    #MEcfs #PwME #LongCovid #PwLC #SequenceME #DecodeME

  25. ⚠️ Update: si un enlace no funcione o hay algún error en el texto avisadme, por favor. Ya está arreglado y podéis leerlo.
    ✩₊˚.⋆☾𓃦☽⋆⁺₊✧ ✩
    Y de noche recuerdo esta #poesia sobre la luz, los colores y el sol. Mis ex.

    #203 Oculta entre las sombras, la luz sigue ahí 🐺domandoallobo.blogspot.com/201 #blog

    #DiaDeLaPoesia #WorldPoetryDay #poema #Lupus #Sjögren #EncefalomielitisMiálgica #pwME #Fibromialgia #Migraña #POTS #fotofobia #fotosensibilidad #mastoblog #mastobloggers #mastobloggers