home.social

#pwme — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #pwme, aggregated by home.social.

  1. 4/
    Here is a link to the LinkedIn post on this, if anyone wants to like it/react to it; comment on it; and/or repost it:
    lnkd.in/p/dx3ptwiS

    It already has over 2000 views so likely reaching outside the bubble.
    #mecfs #pwme #cfs
    @mecfs

  2. 4/
    Here is a link to the LinkedIn post on this, if anyone wants to like it/react to it; comment on it; and/or repost it:
    lnkd.in/p/dx3ptwiS

    It already has over 2000 views so likely reaching outside the bubble.
    #mecfs #pwme #cfs
    @mecfs

  3. 4/
    Here is a link to the LinkedIn post on this, if anyone wants to like it/react to it; comment on it; and/or repost it:
    lnkd.in/p/dx3ptwiS

    It already has over 2000 views so likely reaching outside the bubble.
    #mecfs #pwme #cfs
    @mecfs

  4. 4/
    Here is a link to the LinkedIn post on this, if anyone wants to like it/react to it; comment on it; and/or repost it:
    lnkd.in/p/dx3ptwiS

    It already has over 2000 views so likely reaching outside the bubble.
    #mecfs #pwme #cfs
    @mecfs

  5. 4/
    Here is a link to the LinkedIn post on this, if anyone wants to like it/react to it; comment on it; and/or repost it:
    lnkd.in/p/dx3ptwiS

    It already has over 2000 views so likely reaching outside the bubble.
    #mecfs #pwme #cfs
    @mecfs

  6. 3/
    The main re-analysis paper can be read for free here:
    Rethinking the treatment of chronic fatigue syndrome—a reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT
    link.springer.com/article/10.1

    #mecfs #cfs #pwme

    @mecfs

  7. 3/
    The main re-analysis paper can be read for free here:
    Rethinking the treatment of chronic fatigue syndrome—a reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT
    link.springer.com/article/10.1

    #mecfs #cfs #pwme

    @mecfs

  8. 3/
    The main re-analysis paper can be read for free here:
    Rethinking the treatment of chronic fatigue syndrome—a reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT
    link.springer.com/article/10.1

    #mecfs #cfs #pwme

    @mecfs

  9. 3/
    The main re-analysis paper can be read for free here:
    Rethinking the treatment of chronic fatigue syndrome—a reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT
    link.springer.com/article/10.1

    #mecfs #cfs #pwme

    @mecfs

  10. 3/
    The main re-analysis paper can be read for free here:
    Rethinking the treatment of chronic fatigue syndrome—a reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT
    link.springer.com/article/10.1

    #mecfs #cfs #pwme

    @mecfs

  11. 4/

    I see the paperback edition of this is now available.

    #MEcfs #PwME

    @mecfs

  12. 4/

    I see the paperback edition of this is now available.

    #MEcfs #PwME

    @mecfs

  13. 4/

    I see the paperback edition of this is now available.

    #MEcfs #PwME

    @mecfs

  14. 4/

    I see the paperback edition of this is now available.

    #MEcfs #PwME

    @mecfs

  15. 4/

    I see the paperback edition of this is now available.

    #MEcfs #PwME

    @mecfs

  16. 🚨CDC ME/CFS SEC Conference Call 🚨
    (SEC = Stakeholder Engagement and Communications)

    Friday, September 18
    3:00 - 4:30 pm EDT

    Guest speaker Nancy Klimas, MD: "How Progress in Long COVID is helping us understand ME/CFS”

    The CDC has not held one of these ME/CFS calls for a long time - last one was Dec. 2024!

    Online meeting using Microsoft Teams. Registration required.

    Details here:
    events.gcc.teams.microsoft.com

    @mecfs

    #MEcfs #PwME #LongCovid #CDC

  17. 🚨CDC ME/CFS SEC Conference Call 🚨
    (SEC = Stakeholder Engagement and Communications)

    Friday, September 18
    3:00 - 4:30 pm EDT

    Guest speaker Nancy Klimas, MD: "How Progress in Long COVID is helping us understand ME/CFS”

    The CDC has not held one of these ME/CFS calls for a long time - last one was Dec. 2024!

    Online meeting using Microsoft Teams. Registration required.

    Details here:
    events.gcc.teams.microsoft.com

    @mecfs

    #MEcfs #PwME #LongCovid #CDC

  18. 🚨CDC ME/CFS SEC Conference Call 🚨
    (SEC = Stakeholder Engagement and Communications)

    Friday, September 18
    3:00 - 4:30 pm EDT

    Guest speaker Nancy Klimas, MD: "How Progress in Long COVID is helping us understand ME/CFS”

    The CDC has not held one of these ME/CFS calls for a long time - last one was Dec. 2024!

    Online meeting using Microsoft Teams. Registration required.

    Details here:
    events.gcc.teams.microsoft.com

    @mecfs

    #MEcfs #PwME #LongCovid #CDC

  19. 🚨CDC ME/CFS SEC Conference Call 🚨
    (SEC = Stakeholder Engagement and Communications)

    Friday, September 18
    3:00 - 4:30 pm EDT

    Guest speaker Nancy Klimas, MD: "How Progress in Long COVID is helping us understand ME/CFS”

    The CDC has not held one of these ME/CFS calls for a long time - last one was Dec. 2024!

    Online meeting using Microsoft Teams. Registration required.

    Details here:
    events.gcc.teams.microsoft.com

    @mecfs

    #MEcfs #PwME #LongCovid #CDC

  20. 🚨CDC ME/CFS SEC Conference Call 🚨
    (SEC = Stakeholder Engagement and Communications)

    Friday, September 18
    3:00 - 4:30 pm EDT

    Guest speaker Nancy Klimas, MD: "How Progress in Long COVID is helping us understand ME/CFS”

    The CDC has not held one of these ME/CFS calls for a long time - last one was Dec. 2024!

    Online meeting using Microsoft Teams. Registration required.

    Details here:
    events.gcc.teams.microsoft.com

    @mecfs

    #MEcfs #PwME #LongCovid #CDC

  21. RE: disabled.social/@tomkindlon/11

    I’m sure I can speak for the PACE Trial investigators [Peter White, Michael Sharpe & Trudie Chalder] when I say they love when the re-analyses are highlighted online. 😜
    #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs

  22. RE: disabled.social/@tomkindlon/11

    I’m sure I can speak for the PACE Trial investigators [Peter White, Michael Sharpe & Trudie Chalder] when I say they love when the re-analyses are highlighted online. 😜
    #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs

  23. RE: disabled.social/@tomkindlon/11

    I’m sure I can speak for the PACE Trial investigators [Peter White, Michael Sharpe & Trudie Chalder] when I say they love when the re-analyses are highlighted online. 😜
    #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs

  24. RE: disabled.social/@tomkindlon/11

    I’m sure I can speak for the PACE Trial investigators [Peter White, Michael Sharpe & Trudie Chalder] when I say they love when the re-analyses are highlighted online. 😜
    #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs

  25. RE: disabled.social/@tomkindlon/11

    I’m sure I can speak for the PACE Trial investigators [Peter White, Michael Sharpe & Trudie Chalder] when I say they love when the re-analyses are highlighted online. 😜
    #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs

  26. 2/
    I very rarely post on LinkedIn these days but decided to do a longer post today on this.

    With a lot of researchers posting less often if at all on X, more are communicating via LinkedIn.

    #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs

  27. 2/
    I very rarely post on LinkedIn these days but decided to do a longer post today on this.

    With a lot of researchers posting less often if at all on X, more are communicating via LinkedIn.

    #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs

  28. 2/
    I very rarely post on LinkedIn these days but decided to do a longer post today on this.

    With a lot of researchers posting less often if at all on X, more are communicating via LinkedIn.

    #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs

  29. 2/
    I very rarely post on LinkedIn these days but decided to do a longer post today on this.

    With a lot of researchers posting less often if at all on X, more are communicating via LinkedIn.

    #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs

  30. 2/
    I very rarely post on LinkedIn these days but decided to do a longer post today on this.

    With a lot of researchers posting less often if at all on X, more are communicating via LinkedIn.

    #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs

  31. 10 years today, after a David vs Goliath Freedom of information (FOI) legal battle that damaged Alem Matthees' health, Peter White et al were forced to release data from PACETrial that cost UK taxpayers £5M showing graded exercise therapy & CBT didn’t lead to an increased recovery rate for CFS.

    pubmed.ncbi.nlm.nih.gov/295629

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  32. 10 years today, after a David vs Goliath Freedom of information (FOI) legal battle that damaged Alem Matthees' health, Peter White et al were forced to release data from PACETrial that cost UK taxpayers £5M showing graded exercise therapy & CBT didn’t lead to an increased recovery rate for CFS.

    pubmed.ncbi.nlm.nih.gov/295629

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  33. 10 years today, after a David vs Goliath Freedom of information (FOI) legal battle that damaged Alem Matthees' health, Peter White et al were forced to release data from PACETrial that cost UK taxpayers £5M showing graded exercise therapy & CBT didn’t lead to an increased recovery rate for CFS.

    pubmed.ncbi.nlm.nih.gov/295629

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  34. 10 years today, after a David vs Goliath Freedom of information (FOI) legal battle that damaged Alem Matthees' health, Peter White et al were forced to release data from PACETrial that cost UK taxpayers £5M showing graded exercise therapy & CBT didn’t lead to an increased recovery rate for CFS.

    pubmed.ncbi.nlm.nih.gov/295629

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  35. 10 years today, after a David vs Goliath Freedom of information (FOI) legal battle that damaged Alem Matthees' health, Peter White et al were forced to release data from PACETrial that cost UK taxpayers £5M showing graded exercise therapy & CBT didn’t lead to an increased recovery rate for CFS.

    pubmed.ncbi.nlm.nih.gov/295629

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  36. New:

    Stigmatization in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): A scoping review

    psycnet.apa.org/record/2028-18

    "Individuals with ME/CFS can be profoundly affected by stigmatization"

    #MEcfs #PwME #CFS
    #ME #MyalgicE
    @mecfs

  37. New:

    Stigmatization in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): A scoping review

    psycnet.apa.org/record/2028-18

    "Individuals with ME/CFS can be profoundly affected by stigmatization"

    #MEcfs #PwME #CFS
    #ME #MyalgicE
    @mecfs