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#pwme — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #pwme, aggregated by home.social.

  1. Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of July 20 - 26.

    s4me.info/threads/news-in-brie

    @mecfs @longcovid

    #MEcfs #PwME #LongCovid #PwLC

  2. Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of July 20 - 26.

    s4me.info/threads/news-in-brie

    @mecfs @longcovid

    #MEcfs #PwME #LongCovid #PwLC

  3. Australian registry reports poor health and wellbeing in people living with ME/CFS

    link.springer.com/article/10.1

    HRQoL = Health-Related Quality of Life

    Screenshot from latest Science for ME weekly update

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  4. Australian registry reports poor health and wellbeing in people living with ME/CFS

    link.springer.com/article/10.1

    HRQoL = Health-Related Quality of Life

    Screenshot from latest Science for ME weekly update

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  5. Australian registry reports poor health and wellbeing in people living with ME/CFS

    link.springer.com/article/10.1

    HRQoL = Health-Related Quality of Life

    Screenshot from latest Science for ME weekly update

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  6. Australian registry reports poor health and wellbeing in people living with ME/CFS

    link.springer.com/article/10.1

    HRQoL = Health-Related Quality of Life

    Screenshot from latest Science for ME weekly update

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  7. Australian registry reports poor health and wellbeing in people living with ME/CFS

    link.springer.com/article/10.1

    HRQoL = Health-Related Quality of Life

    Screenshot from latest Science for ME weekly update

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  8. 7/
    From the report:

    “Almost two thirds of participants had started working in the recovery arena following their own recovery”

    So *major* conflicts on interest.

    #MEcfs #PwME #CFS
    @mecfs @longcovid

  9. 7/
    From the report:

    “Almost two thirds of participants had started working in the recovery arena following their own recovery”

    So *major* conflicts on interest.

    #MEcfs #PwME #CFS
    @mecfs @longcovid

  10. From Germany 🇩🇪

    Handgrip strength in children, adolescents, and young adults with suspected myalgic encephalomyelitis/chronic fatigue syndrome

    link.springer.com/article/10.1

    Screenshot from latest Science for ME weekly update

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  11. From Germany 🇩🇪

    Handgrip strength in children, adolescents, and young adults with suspected myalgic encephalomyelitis/chronic fatigue syndrome

    link.springer.com/article/10.1

    Screenshot from latest Science for ME weekly update

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  12. From Germany 🇩🇪

    Handgrip strength in children, adolescents, and young adults with suspected myalgic encephalomyelitis/chronic fatigue syndrome

    link.springer.com/article/10.1

    Screenshot from latest Science for ME weekly update

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  13. From Germany 🇩🇪

    Handgrip strength in children, adolescents, and young adults with suspected myalgic encephalomyelitis/chronic fatigue syndrome

    link.springer.com/article/10.1

    Screenshot from latest Science for ME weekly update

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  14. From Germany 🇩🇪

    Handgrip strength in children, adolescents, and young adults with suspected myalgic encephalomyelitis/chronic fatigue syndrome

    link.springer.com/article/10.1

    Screenshot from latest Science for ME weekly update

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  15. Irish ME Trust social gatherings next week in KILKENNY, CORK, LIMERICK, DUBLIN & BRAY

    #MEcfs #PwME #CFS #ME #MyalgicE @mecfs

  16. Irish ME Trust social gatherings next week in KILKENNY, CORK, LIMERICK, DUBLIN & BRAY

    #MEcfs #PwME #CFS #ME #MyalgicE @mecfs

  17. Irish ME Trust social gatherings next week in KILKENNY, CORK, LIMERICK, DUBLIN & BRAY

    #MEcfs #PwME #CFS #ME #MyalgicE @mecfs

  18. Irish ME Trust social gatherings next week in KILKENNY, CORK, LIMERICK, DUBLIN & BRAY

    #MEcfs #PwME #CFS #ME #MyalgicE @mecfs

  19. Irish ME Trust social gatherings next week in KILKENNY, CORK, LIMERICK, DUBLIN & BRAY

    #MEcfs #PwME #CFS #ME #MyalgicE @mecfs

  20. 2/
    I don't believe a lot of the testimony in this area. For example, after you have done lightning process you are supposed to not mention any impairments you have, that is part of the process. Similarly many people have conflicts of interest from making money from such approaches.

    #PwME #CFS #ME @mecfs @longcovid #MEcfs #LongCovid

  21. 2/
    I don't believe a lot of the testimony in this area. For example, after you have done lightning process you are supposed to not mention any impairments you have, that is part of the process. Similarly many people have conflicts of interest from making money from such approaches.

    #PwME #CFS #ME @mecfs @longcovid #MEcfs #LongCovid

  22. 2/
    I don't believe a lot of the testimony in this area. For example, after you have done lightning process you are supposed to not mention any impairments you have, that is part of the process. Similarly many people have conflicts of interest from making money from such approaches.

    #PwME #CFS #ME @mecfs @longcovid #MEcfs #LongCovid

  23. 2/
    I don't believe a lot of the testimony in this area. For example, after you have done lightning process you are supposed to not mention any impairments you have, that is part of the process. Similarly many people have conflicts of interest from making money from such approaches.

    #PwME #CFS #ME @mecfs @longcovid #MEcfs #LongCovid

  24. 2/
    I don't believe a lot of the testimony in this area. For example, after you have done lightning process you are supposed to not mention any impairments you have, that is part of the process. Similarly many people have conflicts of interest from making money from such approaches.

    #PwME #CFS #ME @mecfs @longcovid #MEcfs #LongCovid

  25. (Australia)
    Emerge Australia has partnered with Edith Cowan University (ECU) to measure the impact of ME/CFS and long COVID

    eaecu.au1.qualtrics.com/jfe/fo

    Screenshot from latest Emerge Australia email bulletin

    #MEcfs #LongCovid #PwME #CFS #ME #MyalgicE @mecfs @longcovid

  26. (Australia)
    Emerge Australia has partnered with Edith Cowan University (ECU) to measure the impact of ME/CFS and long COVID

    eaecu.au1.qualtrics.com/jfe/fo

    Screenshot from latest Emerge Australia email bulletin

    #MEcfs #LongCovid #PwME #CFS #ME #MyalgicE @mecfs @longcovid

  27. (Australia)
    Emerge Australia has partnered with Edith Cowan University (ECU) to measure the impact of ME/CFS and long COVID

    eaecu.au1.qualtrics.com/jfe/fo

    Screenshot from latest Emerge Australia email bulletin

    #MEcfs #LongCovid #PwME #CFS #ME #MyalgicE @mecfs @longcovid

  28. Perioperative outcomes in patients with myalgic encephalomyelitis/chronic fatigue syndrome undergoing general anesthesia: a retrospective matched-pair study

    link.springer.com/article/10.1

    Screenshot from latest Science for ME weekly update

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  29. Perioperative outcomes in patients with myalgic encephalomyelitis/chronic fatigue syndrome undergoing general anesthesia: a retrospective matched-pair study

    link.springer.com/article/10.1

    Screenshot from latest Science for ME weekly update

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  30. Perioperative outcomes in patients with myalgic encephalomyelitis/chronic fatigue syndrome undergoing general anesthesia: a retrospective matched-pair study

    link.springer.com/article/10.1

    Screenshot from latest Science for ME weekly update

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  31. Perioperative outcomes in patients with myalgic encephalomyelitis/chronic fatigue syndrome undergoing general anesthesia: a retrospective matched-pair study

    link.springer.com/article/10.1

    Screenshot from latest Science for ME weekly update

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  32. Perioperative outcomes in patients with myalgic encephalomyelitis/chronic fatigue syndrome undergoing general anesthesia: a retrospective matched-pair study

    link.springer.com/article/10.1

    Screenshot from latest Science for ME weekly update

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  33. Proposed Framework for Personalized Severity Assessment in ME/CFS to Capture Variation in ME/CFS Severity and Life Impairment across Patients and Time (2024)

    frontiersin.org/journals/immun

    #MEcfs #CFS #PwME #SevereME #SevereMECFS
    #SevereCFS #VerySevereME @mecfs

  34. Proposed Framework for Personalized Severity Assessment in ME/CFS to Capture Variation in ME/CFS Severity and Life Impairment across Patients and Time (2024)

    frontiersin.org/journals/immun

    #MEcfs #CFS #PwME #SevereME #SevereMECFS
    #SevereCFS #VerySevereME @mecfs

  35. Proposed Framework for Personalized Severity Assessment in ME/CFS to Capture Variation in ME/CFS Severity and Life Impairment across Patients and Time (2024)

    frontiersin.org/journals/immun

    #MEcfs #CFS #PwME #SevereME #SevereMECFS
    #SevereCFS #VerySevereME @mecfs

  36. Proposed Framework for Personalized Severity Assessment in ME/CFS to Capture Variation in ME/CFS Severity and Life Impairment across Patients and Time (2024)

    frontiersin.org/journals/immun

    #MEcfs #CFS #PwME #SevereME #SevereMECFS
    #SevereCFS #VerySevereME @mecfs