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#pwme — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #pwme, aggregated by home.social.

  1. Emily Johnson @[email protected] ·

    “There appears to be a bidirectional relationship between connective tissue disorders and ME/CFS: underlying connective tissue abnormalities may increase susceptibility to ME/CFS, while #MECFS may aggravate connective tissue pathology.” #pwME #EDS #Marfans preprints.org/frontend/manuscr

    #mecfs #pwme #eds #marfans
  2. Emily Johnson @[email protected] ·

    “There appears to be a bidirectional relationship between connective tissue disorders and ME/CFS: underlying connective tissue abnormalities may increase susceptibility to ME/CFS, while #MECFS may aggravate connective tissue pathology.” #pwME #EDS #Marfans preprints.org/frontend/manuscr

    #mecfs #pwme #eds #marfans
  3. Emily Johnson @[email protected] ·

    “There appears to be a bidirectional relationship between connective tissue disorders and ME/CFS: underlying connective tissue abnormalities may increase susceptibility to ME/CFS, while #MECFS may aggravate connective tissue pathology.” #pwME #EDS #Marfans preprints.org/frontend/manuscr

    #mecfs #pwme #eds #marfans
  4. Emily Johnson @[email protected] ·

    “There appears to be a bidirectional relationship between connective tissue disorders and ME/CFS: underlying connective tissue abnormalities may increase susceptibility to ME/CFS, while #MECFS may aggravate connective tissue pathology.” #pwME #EDS #Marfans preprints.org/frontend/manuscr

    #mecfs #pwme #eds #marfans
  5. Irish ME/CFS Association @[email protected] ·

    We got this request this morning from the Limerick Today show on Live 95 FM:
    --
    "Ahead of the Limerick event next week, would you have a Limerick resident who suffers from ME and would be willing to chat about it on our show?  I'm looking at next Tuesday morning?"
    --
    Please get in touch if you think you would be available. It would be a terrible shame if the opportunity to raise awareness and understanding was missed.

    #MEcfs #PwME @mecfs

    #mecfs #pwme
  6. Irish ME/CFS Association @[email protected] ·

    RE: mastodon.ie/@IrishMECFSAssocia

    2 days to go to start of tour.
    #PwME #MEcfs #CFS #Ireland #mastodaoine @mecfs

    #pwme #mecfs #cfs #ireland #mastodaoine
  7. Irish ME/CFS Association @[email protected] ·

    RE: mastodon.ie/@IrishMECFSAssocia

    2 days to go to start of tour.
    #PwME #MEcfs #CFS #Ireland #mastodaoine @mecfs

    #pwme #mecfs #cfs #ireland #mastodaoine
  8. Irish ME/CFS Association @[email protected] ·

    RE: mastodon.ie/@IrishMECFSAssocia

    2 days to go to start of tour.
    #PwME #MEcfs #CFS #Ireland #mastodaoine @mecfs

    #pwme #mecfs #cfs #ireland #mastodaoine
  9. Irish ME/CFS Association @[email protected] ·

    RE: mastodon.ie/@IrishMECFSAssocia

    2 days to go to start of tour.
    #PwME #MEcfs #CFS #Ireland #mastodaoine @mecfs

    #mastodaoine #ireland #cfs #mecfs #pwme
  10. Irish ME/CFS Association @[email protected] ·

    RE: mastodon.ie/@IrishMECFSAssocia

    2 days to go to start of tour.
    #PwME #MEcfs #CFS #Ireland #mastodaoine @mecfs

    #pwme #mecfs #cfs #ireland #mastodaoine
  11. Tom Kindlon @[email protected] ·

    Great to see this eletter in the Canadian Family Physician journal

    "Exercise May Cause Harm in a Subset of Fibromyalgia Patients"

    cfp.ca/content/exercise-may-ca

    [I have not included the full text in the screenshot]

    #Fibromyalgia #MEcfs #PwME @mecfs

    #fibromyalgia #mecfs #pwme
  12. Irish ME/CFS Association @[email protected] ·

    We would welcome nominations to help win 1 of 10 prizes of £5000 for health charities.

    People can nominate us here (you don't have to say anything about us):
    movementforgood.com/draws/spec

    You can vote for more than one charity.

    Cheers

    #MEcfs #PwME @mecfs

    #mecfs #pwme
  13. Irish ME/CFS Association @[email protected] ·

    The upcoming 5 Dr Amolak Bansal events involve a lot of resources (both money & time/energy) so we are spending some money on advertising.

    Here is one ad going in the Cork Independent.

    Note: Typo. The speaker's name is Dr Amolak Bansal

    irishmecfs.org/blog/may-2026-5

    #MEcfs #PwME #CFS #mastodaoine @mecfs

    #mecfs #pwme #cfs #mastodaoine
  14. Irish ME/CFS Association @[email protected] ·

    The upcoming 5 Dr Amolak Bansal events involve a lot of resources (both money & time/energy) so we are spending some money on advertising.

    Here is one ad going in the Cork Independent.

    Note: Typo. The speaker's name is Dr Amolak Bansal

    irishmecfs.org/blog/may-2026-5

    #MEcfs #PwME #CFS #mastodaoine @mecfs

    #mecfs #pwme #cfs #mastodaoine
  15. Irish ME/CFS Association @[email protected] ·

    The upcoming 5 Dr Amolak Bansal events involve a lot of resources (both money & time/energy) so we are spending some money on advertising.

    Here is one ad going in the Cork Independent.

    Note: Typo. The speaker's name is Dr Amolak Bansal

    irishmecfs.org/blog/may-2026-5

    #MEcfs #PwME #CFS #mastodaoine @mecfs

    #mecfs #pwme #cfs #mastodaoine
  16. Irish ME/CFS Association @[email protected] ·

    The upcoming 5 Dr Amolak Bansal events involve a lot of resources (both money & time/energy) so we are spending some money on advertising.

    Here is one ad going in the Cork Independent.

    Note: Typo. The speaker's name is Dr Amolak Bansal

    irishmecfs.org/blog/may-2026-5

    #MEcfs #PwME #CFS #mastodaoine @mecfs

    #mastodaoine #cfs #pwme #mecfs
  17. Irish ME/CFS Association @[email protected] ·

    The upcoming 5 Dr Amolak Bansal events involve a lot of resources (both money & time/energy) so we are spending some money on advertising.

    Here is one ad going in the Cork Independent.

    Note: Typo. The speaker's name is Dr Amolak Bansal

    irishmecfs.org/blog/may-2026-5

    #MEcfs #PwME #CFS #mastodaoine @mecfs

    #mecfs #pwme #cfs #mastodaoine
  18. Tom Kindlon @[email protected] ·

    90-second local TV news (in New Mexico) segment on recent study looking at memorial messages for 500 people with ME/CFS

    Universal links:
    msn.com/en-us/health/medical/s
    or
    youtube.com/watch?v=7T91vSdfL5g

    This link won't work for many people:
    koat.com/article/study-says-ch

    #MEcfs #PwME #CFS @mecfs

    #mecfs #pwme #cfs
  19. Tom Kindlon @[email protected] ·

    90-second local TV news (in New Mexico) segment on recent study looking at memorial messages for 500 people with ME/CFS

    Universal links:
    msn.com/en-us/health/medical/s
    or
    youtube.com/watch?v=7T91vSdfL5g

    This link won't work for many people:
    koat.com/article/study-says-ch

    #MEcfs #PwME #CFS @mecfs

    #mecfs #pwme #cfs
  20. Tom Kindlon @[email protected] ·

    90-second local TV news (in New Mexico) segment on recent study looking at memorial messages for 500 people with ME/CFS

    Universal links:
    msn.com/en-us/health/medical/s
    or
    youtube.com/watch?v=7T91vSdfL5g

    This link won't work for many people:
    koat.com/article/study-says-ch

    #MEcfs #PwME #CFS @mecfs

    #mecfs #pwme #cfs
  21. Tom Kindlon @[email protected] ·

    90-second local TV news (in New Mexico) segment on recent study looking at memorial messages for 500 people with ME/CFS

    Universal links:
    msn.com/en-us/health/medical/s
    or
    youtube.com/watch?v=7T91vSdfL5g

    This link won't work for many people:
    koat.com/article/study-says-ch

    #MEcfs #PwME #CFS @mecfs

    #cfs #pwme #mecfs
  22. Tom Kindlon @[email protected] ·

    90-second local TV news (in New Mexico) segment on recent study looking at memorial messages for 500 people with ME/CFS

    Universal links:
    msn.com/en-us/health/medical/s
    or
    youtube.com/watch?v=7T91vSdfL5g

    This link won't work for many people:
    koat.com/article/study-says-ch

    #MEcfs #PwME #CFS @mecfs

    #mecfs #pwme #cfs
  23. Tom Kindlon @[email protected] ·

    UK government press release: "Thousands of ME/CFS patients to benefit from first genomics study: People with chronic fatigue syndrome, also known as ME, to benefit from world-first genomics study"

    gov.uk/government/news/thousan

    #MEcfs #PwME #CFS @mecfs

    #mecfs #pwme #cfs
  24. Tom Kindlon @[email protected] ·

    UK government press release: "Thousands of ME/CFS patients to benefit from first genomics study: People with chronic fatigue syndrome, also known as ME, to benefit from world-first genomics study"

    gov.uk/government/news/thousan

    #MEcfs #PwME #CFS @mecfs

    #mecfs #pwme #cfs
  25. Tom Kindlon @[email protected] ·

    UK government press release: "Thousands of ME/CFS patients to benefit from first genomics study: People with chronic fatigue syndrome, also known as ME, to benefit from world-first genomics study"

    gov.uk/government/news/thousan

    #MEcfs #PwME #CFS @mecfs

    #mecfs #pwme #cfs
  26. Tom Kindlon @[email protected] ·

    UK government press release: "Thousands of ME/CFS patients to benefit from first genomics study: People with chronic fatigue syndrome, also known as ME, to benefit from world-first genomics study"

    gov.uk/government/news/thousan

    #MEcfs #PwME #CFS @mecfs

    #cfs #pwme #mecfs
  27. Tom Kindlon @[email protected] ·

    UK government press release: "Thousands of ME/CFS patients to benefit from first genomics study: People with chronic fatigue syndrome, also known as ME, to benefit from world-first genomics study"

    gov.uk/government/news/thousan

    #MEcfs #PwME #CFS @mecfs

    #mecfs #pwme #cfs
  28. Irish ME/CFS Association @[email protected] ·

    Thanks very much to our member, Éabha Melvin, for doing this interview today on Nuacht TG4 to mark May 12.

    This clip was posted on X. On tv, the newsreader also said a little about it by way of introduction.

    #MEcfs #PwME #May12 #Mastodaoine @mecfs

    #mecfs #pwme #may12 #mastodaoine
  29. Emily Johnson @[email protected] ·

    Today is #MEAwarenessDay!

    The Swedish study finding 1 in 5 people with hypermobile Ehlers Danlos Syndrome #hEDS or hypermobility spectrum disorder #HSD (which the EDS Society found are the same) have myalgic encephalomyelitis/chronic fatigue syndrome #MECFS #pwME: pmc.ncbi.nlm.nih.gov/articles/

    The study found 20% #pwME studied had #hEDS and 50% had #HSD

    This study was prior to the 2026 reclassification merging HSD and hEDS

    Given 2026 changes, 44 hEDS + 115 HSD = 159 hEDS of 229 is 69.43%

    #heds #hsd #mecfs #pwme #meawarenessday
  30. Emily Johnson @[email protected] ·

    Today is #MEAwarenessDay!

    The Swedish study finding 1 in 5 people with hypermobile Ehlers Danlos Syndrome #hEDS or hypermobility spectrum disorder #HSD (which the EDS Society found are the same) have myalgic encephalomyelitis/chronic fatigue syndrome #MECFS #pwME: pmc.ncbi.nlm.nih.gov/articles/

    The study found 20% #pwME studied had #hEDS and 50% had #HSD

    This study was prior to the 2026 reclassification merging HSD and hEDS

    Given 2026 changes, 44 hEDS + 115 HSD = 159 hEDS of 229 is 69.43%

    #heds #hsd #mecfs #pwme #meawarenessday
  31. Emily Johnson @[email protected] ·

    Today is #MEAwarenessDay!

    The Swedish study finding 1 in 5 people with hypermobile Ehlers Danlos Syndrome #hEDS or hypermobility spectrum disorder #HSD (which the EDS Society found are the same) have myalgic encephalomyelitis/chronic fatigue syndrome #MECFS #pwME: pmc.ncbi.nlm.nih.gov/articles/

    The study found 20% #pwME studied had #hEDS and 50% had #HSD

    This study was prior to the 2026 reclassification merging HSD and hEDS

    Given 2026 changes, 44 hEDS + 115 HSD = 159 hEDS of 229 is 69.43%

    #heds #hsd #mecfs #pwme #meawarenessday
  32. Emily Johnson @[email protected] ·

    Today is #MEAwarenessDay!

    The Swedish study finding 1 in 5 people with hypermobile Ehlers Danlos Syndrome #hEDS or hypermobility spectrum disorder #HSD (which the EDS Society found are the same) have myalgic encephalomyelitis/chronic fatigue syndrome #MECFS #pwME: pmc.ncbi.nlm.nih.gov/articles/

    The study found 20% #pwME studied had #hEDS and 50% had #HSD

    This study was prior to the 2026 reclassification merging HSD and hEDS

    Given 2026 changes, 44 hEDS + 115 HSD = 159 hEDS of 229 is 69.43%

    #heds #hsd #mecfs #pwme #meawarenessday
  33. Ahimsa @[email protected] ·
    CW: Severe ME, death, suicide

    Symptom severity ranges from mild to very severe. But even so-called "mild" ME/CFS has an enormous impact what a person can do.

    With severe ME/CFS the person is mostly housebound or completely bedbound.

    Anil van der Zee, a former professional dancer who now has severe ME, made this video:

    youtube.com/watch?v=XhrAhGkrGuQ

    Read the YouTube summary for more details

    5/n

    @mecfs @longcovid

    #MEcfs #PwME #SevereME #MEAwarenessDay #WorldMEDay #MyalgicEncephalomyelitis

    #mecfs #pwme #severeme #meawarenessday #worldmeday #myalgicencephalomyelitis
  34. Ahimsa @[email protected] ·
    CW: Severe ME, death, suicide

    Symptom severity ranges from mild to very severe. But even so-called "mild" ME/CFS has an enormous impact what a person can do.

    With severe ME/CFS the person is mostly housebound or completely bedbound.

    Anil van der Zee, a former professional dancer who now has severe ME, made this video:

    youtube.com/watch?v=XhrAhGkrGuQ

    Read the YouTube summary for more details

    5/n

    @mecfs @longcovid

    #MEcfs #PwME #SevereME #MEAwarenessDay #WorldMEDay #MyalgicEncephalomyelitis

    #mecfs #pwme #severeme #meawarenessday #worldmeday #myalgicencephalomyelitis
  35. Ahimsa @[email protected] ·
    CW: Severe ME, death, suicide

    Symptom severity ranges from mild to very severe. But even so-called "mild" ME/CFS has an enormous impact what a person can do.

    With severe ME/CFS the person is mostly housebound or completely bedbound.

    Anil van der Zee, a former professional dancer who now has severe ME, made this video:

    youtube.com/watch?v=XhrAhGkrGuQ

    Read the YouTube summary for more details

    5/n

    @mecfs @longcovid

    #MEcfs #PwME #SevereME #MEAwarenessDay #WorldMEDay #MyalgicEncephalomyelitis

    #mecfs #pwme #severeme #meawarenessday #worldmeday #myalgicencephalomyelitis
  36. Ahimsa @[email protected] ·
    CW: Severe ME, death, suicide

    Symptom severity ranges from mild to very severe. But even so-called "mild" ME/CFS has an enormous impact what a person can do.

    With severe ME/CFS the person is mostly housebound or completely bedbound.

    Anil van der Zee, a former professional dancer who now has severe ME, made this video:

    youtube.com/watch?v=XhrAhGkrGuQ

    Read the YouTube summary for more details

    5/n

    @mecfs @longcovid

    #MEcfs #PwME #SevereME #MEAwarenessDay #WorldMEDay #MyalgicEncephalomyelitis

    #myalgicencephalomyelitis #worldmeday #meawarenessday #severeme #pwme #mecfs
  37. Ahimsa @[email protected] ·
    CW: Severe ME, death, suicide

    Symptom severity ranges from mild to very severe. But even so-called "mild" ME/CFS has an enormous impact what a person can do.

    With severe ME/CFS the person is mostly housebound or completely bedbound.

    Anil van der Zee, a former professional dancer who now has severe ME, made this video:

    youtube.com/watch?v=XhrAhGkrGuQ

    Read the YouTube summary for more details

    5/n

    @mecfs @longcovid

    #MEcfs #PwME #SevereME #MEAwarenessDay #WorldMEDay #MyalgicEncephalomyelitis

    #mecfs #pwme #severeme #meawarenessday #worldmeday #myalgicencephalomyelitis
  38. Irish ME/CFS Association @[email protected] ·

    RE: mastodon.ie/@IrishMECFSAssocia

    Éabha was filmed today so looking good it goes out tonight on Nuacht TG4 (19:00-19:30).
    #MEcfs #PwME @mecfs

    #mecfs #pwme
  39. Tom Kindlon @[email protected] ·

    I had a stressful dream last night, maybe appropriate for May 12! In the dream, I have a new or stand-in GP [family physician] and I am trying to persuade them to sign a disability form. They are smirking away, not very sympathetic. So I have to list my symptoms and losses over the years.

    #MEcfs #May12 #May12th #WorldMEday #pwme @mecfs

    #mecfs #may12 #may12th #worldmeday #pwme
  40. Anna @[email protected] ·

    Managed a post on #MEAwarenessDay.
    Must nap now!

    Help me escape #abusers & have a chance at life. Dying of abuse/neglect - running out of time.
    $250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Can you spare a room? Land? Time? Know someone who can?

    Info & help with costs:
    (I either write too much or not enough depending on who you ask so further info in fund & Canary article link)

    💸Fund: chuffed.org/project/161937-hel
    ☕️BMaC: buymeacoffee.com/Halcionandon
    🎁AmazonAU: amazon.com.au/hz/wishlist/ls/1
    ᯓ➤Beem: Halcionandon
    🗞️Article: “Nearly a year on and severe ME patient Anna is still trapped in life-threatening domestic abuse”thecanary.co/global/world-anal

    #mutualaid
    #MECFS #PWME #SevereME #MyalgicEncephalomyelitis
    #MEAwarenessweek

    @mecfs
    @[email protected]
    @DisabilityJustice
    @[email protected]

    #meawarenessday #abusers #dsp #community #mutualaid #mecfs
  41. Anna @[email protected] ·

    Managed a post on #MEAwarenessDay.
    Must nap now!

    Help me escape #abusers & have a chance at life. Dying of abuse/neglect - running out of time.
    $250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Can you spare a room? Land? Time? Know someone who can?

    Info & help with costs:
    (I either write too much or not enough depending on who you ask so further info in fund & Canary article link)

    💸Fund: chuffed.org/project/161937-hel
    ☕️BMaC: buymeacoffee.com/Halcionandon
    🎁AmazonAU: amazon.com.au/hz/wishlist/ls/1
    ᯓ➤Beem: Halcionandon
    🗞️Article: “Nearly a year on and severe ME patient Anna is still trapped in life-threatening domestic abuse”thecanary.co/global/world-anal

    #mutualaid
    #MECFS #PWME #SevereME #MyalgicEncephalomyelitis
    #MEAwarenessweek

    @mecfs
    @[email protected]
    @DisabilityJustice
    @[email protected]

    #meawarenessday #abusers #dsp #community #mutualaid #mecfs
  42. Anna @[email protected] ·

    Managed a post on #MEAwarenessDay.
    Must nap now!

    Help me escape #abusers & have a chance at life. Dying of abuse/neglect - running out of time.
    $250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Can you spare a room? Land? Time? Know someone who can?

    Info & help with costs:
    (I either write too much or not enough depending on who you ask so further info in fund & Canary article link)

    💸Fund: chuffed.org/project/161937-hel
    ☕️BMaC: buymeacoffee.com/Halcionandon
    🎁AmazonAU: amazon.com.au/hz/wishlist/ls/1
    ᯓ➤Beem: Halcionandon
    🗞️Article: “Nearly a year on and severe ME patient Anna is still trapped in life-threatening domestic abuse”thecanary.co/global/world-anal

    #mutualaid
    #MECFS #PWME #SevereME #MyalgicEncephalomyelitis
    #MEAwarenessweek

    @mecfs
    @[email protected]
    @DisabilityJustice
    @[email protected]

    #meawarenessday #abusers #dsp #community #mutualaid #mecfs
  43. Anna @[email protected] ·

    Managed a post on #MEAwarenessDay.
    Must nap now!

    Help me escape #abusers & have a chance at life. Dying of abuse/neglect - running out of time.
    $250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Can you spare a room? Land? Time? Know someone who can?

    Info & help with costs:
    (I either write too much or not enough depending on who you ask so further info in fund & Canary article link)

    💸Fund: chuffed.org/project/161937-hel
    ☕️BMaC: buymeacoffee.com/Halcionandon
    🎁AmazonAU: amazon.com.au/hz/wishlist/ls/1
    ᯓ➤Beem: Halcionandon
    🗞️Article: “Nearly a year on and severe ME patient Anna is still trapped in life-threatening domestic abuse”thecanary.co/global/world-anal

    #mutualaid
    #MECFS #PWME #SevereME #MyalgicEncephalomyelitis
    #MEAwarenessweek

    @mecfs
    @[email protected]
    @DisabilityJustice
    @[email protected]

    #meawarenessweek #myalgicencephalomyelitis #severeme #pwme #mecfs #mutualaid
  44. Anna @[email protected] ·

    Managed a post on #MEAwarenessDay.
    Must nap now!

    Help me escape #abusers & have a chance at life. Dying of abuse/neglect - running out of time.
    $250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Can you spare a room? Land? Time? Know someone who can?

    Info & help with costs:
    (I either write too much or not enough depending on who you ask so further info in fund & Canary article link)

    💸Fund: chuffed.org/project/161937-hel
    ☕️BMaC: buymeacoffee.com/Halcionandon
    🎁AmazonAU: amazon.com.au/hz/wishlist/ls/1
    ᯓ➤Beem: Halcionandon
    🗞️Article: “Nearly a year on and severe ME patient Anna is still trapped in life-threatening domestic abuse”thecanary.co/global/world-anal

    #mutualaid
    #MECFS #PWME #SevereME #MyalgicEncephalomyelitis
    #MEAwarenessweek

    @mecfs
    @[email protected]
    @DisabilityJustice
    @[email protected]

    #meawarenessday #abusers #dsp #community #mutualaid #mecfs
  45. Anna @[email protected] ·

    No fancy post for #MEAwarenessDay

    Help me escape #abusers & have a chance at life. Dying of abuse- running out of time.
    $250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Info & help with costs:

    💸Fund: chuffed.org/project/161937-hel
    ☕️BMaC: buymeacoffee.com/Halcionandon
    🎁AmazonAU: amazon.com.au/hz/wishlist/ls/1
    ᯓ➤Beem: Halcionandon

    #mutualaid
    #MECFS #PWME #SevereME #MyalgicEncephalomyelitis
    #MEAwarenessweek

    @mecfs
    @mutualaid

    #meawarenessday #abusers #dsp #community #mutualaid #mecfs
  46. Anna @[email protected] ·

    No fancy post for #MEAwarenessDay

    Help me escape #abusers & have a chance at life. Dying of abuse- running out of time.
    $250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Info & help with costs:

    💸Fund: chuffed.org/project/161937-hel
    ☕️BMaC: buymeacoffee.com/Halcionandon
    🎁AmazonAU: amazon.com.au/hz/wishlist/ls/1
    ᯓ➤Beem: Halcionandon

    #mutualaid
    #MECFS #PWME #SevereME #MyalgicEncephalomyelitis
    #MEAwarenessweek

    @mecfs
    @mutualaid

    #meawarenessday #abusers #dsp #community #mutualaid #mecfs
  47. Anna @[email protected] ·

    No fancy post for #MEAwarenessDay

    Help me escape #abusers & have a chance at life. Dying of abuse- running out of time.
    $250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Info & help with costs:

    💸Fund: chuffed.org/project/161937-hel
    ☕️BMaC: buymeacoffee.com/Halcionandon
    🎁AmazonAU: amazon.com.au/hz/wishlist/ls/1
    ᯓ➤Beem: Halcionandon

    #mutualaid
    #MECFS #PWME #SevereME #MyalgicEncephalomyelitis
    #MEAwarenessweek

    @mecfs
    @mutualaid

    #meawarenessday #abusers #dsp #community #mutualaid #mecfs
  48. Anna @[email protected] ·

    No fancy post for #MEAwarenessDay

    Help me escape #abusers & have a chance at life. Dying of abuse- running out of time.
    $250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Info & help with costs:

    💸Fund: chuffed.org/project/161937-hel
    ☕️BMaC: buymeacoffee.com/Halcionandon
    🎁AmazonAU: amazon.com.au/hz/wishlist/ls/1
    ᯓ➤Beem: Halcionandon

    #mutualaid
    #MECFS #PWME #SevereME #MyalgicEncephalomyelitis
    #MEAwarenessweek

    @mecfs
    @mutualaid

    #meawarenessweek #myalgicencephalomyelitis #severeme #pwme #mecfs #mutualaid
  49. Anna @[email protected] ·

    No fancy post for #MEAwarenessDay

    Help me escape #abusers & have a chance at life. Dying of abuse- running out of time.
    $250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Info & help with costs:

    💸Fund: chuffed.org/project/161937-hel
    ☕️BMaC: buymeacoffee.com/Halcionandon
    🎁AmazonAU: amazon.com.au/hz/wishlist/ls/1
    ᯓ➤Beem: Halcionandon

    #mutualaid
    #MECFS #PWME #SevereME #MyalgicEncephalomyelitis
    #MEAwarenessweek

    @mecfs
    @mutualaid

    #meawarenessday #abusers #dsp #community #mutualaid #mecfs
  50. Tom Kindlon @[email protected] ·

    I actually deteriorated over time, through following exercise, like many others with #MyalgicEncephalomyelitis.

    Improving or even stabilising is not the only possible outcome following an infection.

    Plenty of research shows a significant percentage of those with #LongCovid satisfy #MECFS criteria

    Unfortunately, through a lack of research, proven effective treatments don't exist for ME so people can be left languish for decades with debilitating symptoms, like I have been

    #May12 #PwME @mecfs

    #myalgicencephalomyelitis #longcovid #mecfs #may12 #pwme