home.social

#pwme — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #pwme, aggregated by home.social.

  1. Tom Kindlon @[email protected] ·

    Energy Points Chart

    ltcovh.prod.acquia-sites.com/s

    Modified from BE Ainsworth et al. Compendium of physical activities: An update of activity codes and MET intensities.

    #MEcfs #LongCovid #PwME #CFS #Spoonies #Spoonie @mecfs @longcovid

    #mecfs #longcovid #pwme #cfs #spoonies #spoonie
  2. Tom Kindlon @[email protected] ·

    Energy Points Chart

    ltcovh.prod.acquia-sites.com/s

    Modified from BE Ainsworth et al. Compendium of physical activities: An update of activity codes and MET intensities.

    #MEcfs #LongCovid #PwME #CFS #Spoonies #Spoonie @mecfs @longcovid

    #mecfs #longcovid #pwme #cfs #spoonies #spoonie
  3. Tom Kindlon @[email protected] ·

    Energy Points Chart

    ltcovh.prod.acquia-sites.com/s

    Modified from BE Ainsworth et al. Compendium of physical activities: An update of activity codes and MET intensities.

    #MEcfs #LongCovid #PwME #CFS #Spoonies #Spoonie @mecfs @longcovid

    #mecfs #longcovid #pwme #cfs #spoonies #spoonie
  4. Tom Kindlon @[email protected] ·

    Energy Points Chart

    ltcovh.prod.acquia-sites.com/s

    Modified from BE Ainsworth et al. Compendium of physical activities: An update of activity codes and MET intensities.

    #MEcfs #LongCovid #PwME #CFS #Spoonies #Spoonie @mecfs @longcovid

    #spoonie #spoonies #cfs #pwme #longcovid #mecfs
  5. Julia @[email protected] ·

    RE: aus.social/@halcionandon/11695

    Looking for a safe home for Anna.

    More information:

    thecanary.co/global/world-anal

    chuffed.org/project/161937-hel

    Please share and/or help.🩵

    #Australia
    #Melbourne
    #disability
    #mutualaid
    #mecfs
    #SevereME
    #pwME
    #domesticviolence

    #australia #melbourne #disability #mutualaid #mecfs #severeme
  6. Julia @[email protected] ·

    RE: aus.social/@halcionandon/11695

    Looking for a safe home for Anna.

    More information:

    thecanary.co/global/world-anal

    chuffed.org/project/161937-hel

    Please share and/or help.🩵

    #Australia
    #Melbourne
    #disability
    #mutualaid
    #mecfs
    #SevereME
    #pwME
    #domesticviolence

    #australia #melbourne #disability #mutualaid #mecfs #severeme
  7. Julia @[email protected] ·

    RE: aus.social/@halcionandon/11695

    Looking for a safe home for Anna.

    More information:

    thecanary.co/global/world-anal

    chuffed.org/project/161937-hel

    Please share and/or help.🩵

    #Australia
    #Melbourne
    #disability
    #mutualaid
    #mecfs
    #SevereME
    #pwME
    #domesticviolence

    #australia #melbourne #disability #mutualaid #mecfs #severeme
  8. Julia @[email protected] ·

    RE: aus.social/@halcionandon/11695

    Looking for a safe home for Anna.

    More information:

    thecanary.co/global/world-anal

    chuffed.org/project/161937-hel

    Please share and/or help.🩵

    #Australia
    #Melbourne
    #disability
    #mutualaid
    #mecfs
    #SevereME
    #pwME
    #domesticviolence

    #australia #melbourne #disability #mutualaid #mecfs #severeme
  9. Julia @[email protected] ·

    RE: aus.social/@halcionandon/11695

    Looking for a safe home for Anna.

    More information:

    thecanary.co/global/world-anal

    chuffed.org/project/161937-hel

    Please share and/or help.🩵

    #Australia
    #Melbourne
    #disability
    #mutualaid
    #mecfs
    #SevereME
    #pwME
    #domesticviolence

    #domesticviolence #pwme #severeme #mecfs #mutualaid #disability
  10. Tom Kindlon @[email protected] ·

    3/

    Science Spotlight: Solve-Funded Study Shows Gastrointestinal Symptoms Are Core Features of ME/CFS

    solvecfs.org/science-spotlight

    #MEcfs #PwME 

    @mecfs

    #mecfs #pwme
  11. Tom Kindlon @[email protected] ·

    3/

    Science Spotlight: Solve-Funded Study Shows Gastrointestinal Symptoms Are Core Features of ME/CFS

    solvecfs.org/science-spotlight

    #MEcfs #PwME 

    @mecfs

    #mecfs #pwme
  12. Tom Kindlon @[email protected] ·

    3/

    Science Spotlight: Solve-Funded Study Shows Gastrointestinal Symptoms Are Core Features of ME/CFS

    solvecfs.org/science-spotlight

    #MEcfs #PwME 

    @mecfs

    #mecfs #pwme
  13. Tom Kindlon @[email protected] ·

    3/

    Science Spotlight: Solve-Funded Study Shows Gastrointestinal Symptoms Are Core Features of ME/CFS

    solvecfs.org/science-spotlight

    #MEcfs #PwME 

    @mecfs

    #pwme #mecfs
  14. Tom Kindlon @[email protected] ·

    3/

    Science Spotlight: Solve-Funded Study Shows Gastrointestinal Symptoms Are Core Features of ME/CFS

    solvecfs.org/science-spotlight

    #MEcfs #PwME 

    @mecfs

    #mecfs #pwme
  15. Tom Kindlon @[email protected] ·

    "Is diagnosis of CFS harder if symptoms are mild or fluctuate?"

    mypatientadvice.co.uk/knowledg

    "This article explores the complexities of diagnosing mild or fluctuating ME/CFS within the UK healthcare system" but still relevant to people elsewhere

    #MEcfs #PwME #CFS #ME #MyalgicE @mecfs

    1/

    #mecfs #pwme #cfs #me #myalgice
  16. Tom Kindlon @[email protected] ·

    "Is diagnosis of CFS harder if symptoms are mild or fluctuate?"

    mypatientadvice.co.uk/knowledg

    "This article explores the complexities of diagnosing mild or fluctuating ME/CFS within the UK healthcare system" but still relevant to people elsewhere

    #MEcfs #PwME #CFS #ME #MyalgicE @mecfs

    1/

    #mecfs #pwme #cfs #me #myalgice
  17. Tom Kindlon @[email protected] ·

    "Is diagnosis of CFS harder if symptoms are mild or fluctuate?"

    mypatientadvice.co.uk/knowledg

    "This article explores the complexities of diagnosing mild or fluctuating ME/CFS within the UK healthcare system" but still relevant to people elsewhere

    #MEcfs #PwME #CFS #ME #MyalgicE @mecfs

    1/

    #mecfs #pwme #cfs #me #myalgice
  18. Tom Kindlon @[email protected] ·

    "Is diagnosis of CFS harder if symptoms are mild or fluctuate?"

    mypatientadvice.co.uk/knowledg

    "This article explores the complexities of diagnosing mild or fluctuating ME/CFS within the UK healthcare system" but still relevant to people elsewhere

    #MEcfs #PwME #CFS #ME #MyalgicE @mecfs

    1/

    #mecfs #pwme #cfs #me #myalgice
  19. Tom Kindlon @[email protected] ·

    "Is diagnosis of CFS harder if symptoms are mild or fluctuate?"

    mypatientadvice.co.uk/knowledg

    "This article explores the complexities of diagnosing mild or fluctuating ME/CFS within the UK healthcare system" but still relevant to people elsewhere

    #MEcfs #PwME #CFS #ME #MyalgicE @mecfs

    1/

    #myalgice #me #cfs #pwme #mecfs
  20. Tom Kindlon @[email protected] ·

    RE: mastodon.ie/@IrishMECFSAssocia

    Hope to see a few of you at this. 👋
    #Louth #MEcfs #LongCovid #PwME @mecfs @longcovid #mastodaoine

    #louth #mecfs #longcovid #pwme #mastodaoine
  21. Tom Kindlon @[email protected] ·

    RE: mastodon.ie/@IrishMECFSAssocia

    Hope to see a few of you at this. 👋
    #Louth #MEcfs #LongCovid #PwME @mecfs @longcovid #mastodaoine

    #louth #mecfs #longcovid #pwme #mastodaoine
  22. Tom Kindlon @[email protected] ·

    RE: mastodon.ie/@IrishMECFSAssocia

    Hope to see a few of you at this. 👋
    #Louth #MEcfs #LongCovid #PwME @mecfs @longcovid #mastodaoine

    #louth #mecfs #longcovid #pwme #mastodaoine
  23. Tom Kindlon @[email protected] ·

    RE: mastodon.ie/@IrishMECFSAssocia

    Hope to see a few of you at this. 👋
    #Louth #MEcfs #LongCovid #PwME @mecfs @longcovid #mastodaoine

    #mastodaoine #pwme #longcovid #mecfs #louth
  24. Tom Kindlon @[email protected] ·

    RE: mastodon.ie/@IrishMECFSAssocia

    Hope to see a few of you at this. 👋
    #Louth #MEcfs #LongCovid #PwME @mecfs @longcovid #mastodaoine

    #louth #mecfs #longcovid #pwme #mastodaoine
  25. Irish ME/CFS Association @[email protected] ·

    Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, August 5

    irishmecfs.org/blog/dundalk-in

    Hopefully we’ll see some of you there.

    #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #longcovid @mecfs @longcovid

    #mecfs #pwme #cfs #myalgicencephalomyelitis #chronicfatiguesyndrome #longcovid
  26. Irish ME/CFS Association @[email protected] ·

    Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, August 5

    irishmecfs.org/blog/dundalk-in

    Hopefully we’ll see some of you there.

    #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #longcovid @mecfs @longcovid

    #mecfs #pwme #cfs #myalgicencephalomyelitis #chronicfatiguesyndrome #longcovid
  27. Irish ME/CFS Association @[email protected] ·

    Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, August 5

    irishmecfs.org/blog/dundalk-in

    Hopefully we’ll see some of you there.

    #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #longcovid @mecfs @longcovid

    #mecfs #pwme #cfs #myalgicencephalomyelitis #chronicfatiguesyndrome #longcovid
  28. Irish ME/CFS Association @[email protected] ·

    Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, August 5

    irishmecfs.org/blog/dundalk-in

    Hopefully we’ll see some of you there.

    #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #longcovid @mecfs @longcovid

    #longcovid #chronicfatiguesyndrome #myalgicencephalomyelitis #cfs #pwme #mecfs
  29. Irish ME/CFS Association @[email protected] ·

    Informal ME/CFS social meet-up in Dundalk hosted by Tom Kindlon @tomkindlon on Wednesday, August 5

    irishmecfs.org/blog/dundalk-in

    Hopefully we’ll see some of you there.

    #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #longcovid @mecfs @longcovid

    #mecfs #pwme #cfs #myalgicencephalomyelitis #chronicfatiguesyndrome #longcovid
  30. Tom Kindlon @[email protected] ·

    Symptom Tracker

    ltcovh.prod.acquia-sites.com/s

    #MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

    #mecfs #longcovid #pwme #cfs
  31. Tom Kindlon @[email protected] ·

    Symptom Tracker

    ltcovh.prod.acquia-sites.com/s

    #MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

    #mecfs #longcovid #pwme #cfs
  32. Tom Kindlon @[email protected] ·

    Symptom Tracker

    ltcovh.prod.acquia-sites.com/s

    #MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

    #mecfs #longcovid #pwme #cfs
  33. Tom Kindlon @[email protected] ·

    Symptom Tracker

    ltcovh.prod.acquia-sites.com/s

    #MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

    #cfs #pwme #longcovid #mecfs
  34. Tom Kindlon @[email protected] ·

    Symptom Tracker

    ltcovh.prod.acquia-sites.com/s

    #MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

    #mecfs #longcovid #pwme #cfs
  35. Ahimsa @[email protected] ·

    Check out the latest News in Brief (July 13 - 19) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.

    s4me.info/threads/news-in-brie

    Anyone can read public forum posts but if you become a forum member then you can join the discussion 😁

    @mecfs @longcovid

    #MEcfs #PwME #LongCovid #PwLC #Science4ME #S4ME

    #mecfs #pwme #longcovid #pwlc #science4me #s4me
  36. Ahimsa @[email protected] ·

    Check out the latest News in Brief (July 13 - 19) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.

    s4me.info/threads/news-in-brie

    Anyone can read public forum posts but if you become a forum member then you can join the discussion 😁

    @mecfs @longcovid

    #MEcfs #PwME #LongCovid #PwLC #Science4ME #S4ME

    #mecfs #pwme #longcovid #pwlc #science4me #s4me
  37. Ahimsa @[email protected] ·

    Check out the latest News in Brief (July 13 - 19) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.

    s4me.info/threads/news-in-brie

    Anyone can read public forum posts but if you become a forum member then you can join the discussion 😁

    @mecfs @longcovid

    #MEcfs #PwME #LongCovid #PwLC #Science4ME #S4ME

    #mecfs #pwme #longcovid #pwlc #science4me #s4me
  38. Ahimsa @[email protected] ·

    Check out the latest News in Brief (July 13 - 19) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.

    s4me.info/threads/news-in-brie

    Anyone can read public forum posts but if you become a forum member then you can join the discussion 😁

    @mecfs @longcovid

    #MEcfs #PwME #LongCovid #PwLC #Science4ME #S4ME

    #s4me #science4me #pwlc #longcovid #pwme #mecfs
  39. Ahimsa @[email protected] ·

    Check out the latest News in Brief (July 13 - 19) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.

    s4me.info/threads/news-in-brie

    Anyone can read public forum posts but if you become a forum member then you can join the discussion 😁

    @mecfs @longcovid

    #MEcfs #PwME #LongCovid #PwLC #Science4ME #S4ME

    #mecfs #pwme #longcovid #pwlc #science4me #s4me
  40. Tom Kindlon @[email protected] ·

    RE: mastodon.ie/@IrishMECFSAssocia

    As well as being quoted in this, I presented the journalist with various individuals who were available for interview including the two interviewed.
    #MEcfs #PwME #CFS @mecfs

    #mecfs #pwme #cfs
  41. Tom Kindlon @[email protected] ·

    RE: mastodon.ie/@IrishMECFSAssocia

    As well as being quoted in this, I presented the journalist with various individuals who were available for interview including the two interviewed.
    #MEcfs #PwME #CFS @mecfs

    #mecfs #pwme #cfs
  42. Tom Kindlon @[email protected] ·

    RE: mastodon.ie/@IrishMECFSAssocia

    As well as being quoted in this, I presented the journalist with various individuals who were available for interview including the two interviewed.
    #MEcfs #PwME #CFS @mecfs

    #mecfs #pwme #cfs
  43. Tom Kindlon @[email protected] ·

    RE: mastodon.ie/@IrishMECFSAssocia

    As well as being quoted in this, I presented the journalist with various individuals who were available for interview including the two interviewed.
    #MEcfs #PwME #CFS @mecfs

    #cfs #pwme #mecfs
  44. Tom Kindlon @[email protected] ·

    RE: mastodon.ie/@IrishMECFSAssocia

    As well as being quoted in this, I presented the journalist with various individuals who were available for interview including the two interviewed.
    #MEcfs #PwME #CFS @mecfs

    #mecfs #pwme #cfs
  45. Irish ME/CFS Association @[email protected] ·

    Article can be read for free here: irishtimes.com/health/2026/07/

    Thanks to everyone who made themselves available for interview including the two people quoted

    #mecfs #cfs #pwme @mecfs

    #mecfs #cfs #pwme
  46. Irish ME/CFS Association @[email protected] ·

    Article can be read for free here: irishtimes.com/health/2026/07/

    Thanks to everyone who made themselves available for interview including the two people quoted

    #mecfs #cfs #pwme @mecfs

    #mecfs #cfs #pwme
  47. Irish ME/CFS Association @[email protected] ·

    Article can be read for free here: irishtimes.com/health/2026/07/

    Thanks to everyone who made themselves available for interview including the two people quoted

    #mecfs #cfs #pwme @mecfs

    #mecfs #cfs #pwme
  48. Irish ME/CFS Association @[email protected] ·

    Article can be read for free here: irishtimes.com/health/2026/07/

    Thanks to everyone who made themselves available for interview including the two people quoted

    #mecfs #cfs #pwme @mecfs

    #pwme #cfs #mecfs
  49. Irish ME/CFS Association @[email protected] ·

    Article can be read for free here: irishtimes.com/health/2026/07/

    Thanks to everyone who made themselves available for interview including the two people quoted

    #mecfs #cfs #pwme @mecfs

    #mecfs #cfs #pwme
  50. Ahimsa @[email protected] ·

    "For 15,000 Mainers with ME/CFS, the next step is in Congress’ hands"

    pressherald.com/2026/07/19/for

    "Myalgic encephalomyelitis/chronic fatigue syndrome is an illness as debilitating as it is overlooked."

    Article urging Congress to fund the ME/CFS Research Roadmap which was approved by NIH in 2024 but still not funded.

    @mecfs

    #MEcfs #PwME #Research #NIH #USPol

    #mecfs #pwme #research #nih #uspol