#pwme — Public Fediverse posts

10 years today, after a David vs Goliath Freedom of information (FOI) legal battle that damaged Alem Matthees' health, Peter White et al were forced to release data from PACETrial that cost UK taxpayers £5M showing graded exercise therapy & CBT didn’t lead to an increased recovery rate for CFS.

https://pubmed.ncbi.nlm.nih.gov/29562932/

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

Comprehensive review of myalgic encephalomyelitis/chronic fatigue syndrome

https://link.springer.com/article/10.1186/s12967-026-08833-4

https://s4me.info/threads/comprehensive-review-of-myalgic-encephalomyelitis-chronic-fatigue-syndrome-2026-jeyaraman-et-al.52166/

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS
@mecfs

9/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME
@mecfs

9/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME

@mecfs

New:

Stigmatization in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): A scoping review

https://psycnet.apa.org/record/2028-18274-001

"Individuals with ME/CFS can be profoundly affected by stigmatization"

#MEcfs #PwME #CFS
#ME #MyalgicE
@mecfs

9/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

@mecfs

“Trial By Error: Newly Knighted Anil van der Zee @anilvanderzee Discusses his Royal Honor” By David Tuller

https://virology.ws/2026/09/06/trial-by-error-newly-knighted-anil-van-der-zee-discusses-his-royal-honor/

#MEcfs #PwME #severeme @mecfs

“Trial By Error: Newly Knighted Anil van der Zee @anilvanderzee Discusses his Royal Honor” By David Tuller

https://virology.ws/2026/09/06/trial-by-error-newly-knighted-anil-van-der-zee-discusses-his-royal-honor/

#MEcfs #PwME #severeme @mecfs

“Trial By Error: Newly Knighted Anil van der Zee @anilvanderzee Discusses his Royal Honor” By David Tuller

https://virology.ws/2026/09/06/trial-by-error-newly-knighted-anil-van-der-zee-discusses-his-royal-honor/

#MEcfs #PwME #severeme @mecfs

“Trial By Error: Newly Knighted Anil van der Zee @anilvanderzee Discusses his Royal Honor” By David Tuller

https://virology.ws/2026/09/06/trial-by-error-newly-knighted-anil-van-der-zee-discusses-his-royal-honor/

#MEcfs #PwME #severeme @mecfs

“Trial By Error: Newly Knighted Anil van der Zee @anilvanderzee Discusses his Royal Honor” By David Tuller

https://virology.ws/2026/09/06/trial-by-error-newly-knighted-anil-van-der-zee-discusses-his-royal-honor/

#MEcfs #PwME #severeme @mecfs

8/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME
@mecfs

8/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

@mecfs

8/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

@mecfs

8/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

@mecfs

8/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

@mecfs

8/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

@mecfs

7/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME @mecfs

7/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME @mecfs

7/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME @mecfs

7/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME @mecfs

7/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME @mecfs

7/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

@mecfs

7/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

@mecfs

7/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

@mecfs

7/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

@mecfs

7/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME

@mecfs

PRIME International Symposium a two-day hybrid event exploring the latest developments in ME/CFS research

Links
https://www.actionforme.org.uk/register-for-the-prime-international-symposium/

https://www.actionforme.org.uk/wp-content/uploads/2026/06/PRIME-2026-Symposium-Preliminary-Program-v1-1.pdf

https://www.tickettailor.com/events/universityofedinburgh12/2155140

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS
@mecfs

PRIME International Symposium a two-day hybrid event exploring the latest developments in ME/CFS research

Links
https://www.actionforme.org.uk/register-for-the-prime-international-symposium/

https://www.actionforme.org.uk/wp-content/uploads/2026/06/PRIME-2026-Symposium-Preliminary-Program-v1-1.pdf

https://www.tickettailor.com/events/universityofedinburgh12/2155140

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS
@mecfs

PRIME International Symposium a two-day hybrid event exploring the latest developments in ME/CFS research

Links
https://www.actionforme.org.uk/register-for-the-prime-international-symposium/

https://www.actionforme.org.uk/wp-content/uploads/2026/06/PRIME-2026-Symposium-Preliminary-Program-v1-1.pdf

https://www.tickettailor.com/events/universityofedinburgh12/2155140

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS
@mecfs

PRIME International Symposium a two-day hybrid event exploring the latest developments in ME/CFS research

Links
https://www.actionforme.org.uk/register-for-the-prime-international-symposium/

https://www.actionforme.org.uk/wp-content/uploads/2026/06/PRIME-2026-Symposium-Preliminary-Program-v1-1.pdf

https://www.tickettailor.com/events/universityofedinburgh12/2155140

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS
@mecfs

PRIME International Symposium a two-day hybrid event exploring the latest developments in ME/CFS research

Links
https://www.actionforme.org.uk/register-for-the-prime-international-symposium/

https://www.actionforme.org.uk/wp-content/uploads/2026/06/PRIME-2026-Symposium-Preliminary-Program-v1-1.pdf

https://www.tickettailor.com/events/universityofedinburgh12/2155140

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS
@mecfs

6/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME

@mecfs

6/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME

@mecfs

6/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME

@mecfs

6/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME

@mecfs

6/
What cognitive dysfunction (brain fog) in ME/CFS feels like

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME

@mecfs

Check out the latest News in Brief (Aug. 31 - Sept. 6) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.

https://s4me.info/threads/news-in-brief-september-2026.52320/#post-719398

Public posts on the forum can be read by anyone, but if you'd like to join the discussion then you'll need to become a forum member. It's free 😁

https://
s4me.info/threads/welcome.38181/

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC #S4ME

Check out the latest News in Brief (Aug. 31 - Sept. 6) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.

https://s4me.info/threads/news-in-brief-september-2026.52320/#post-719398

Public posts on the forum can be read by anyone, but if you'd like to join the discussion then you'll need to become a forum member. It's free 😁

https://
s4me.info/threads/welcome.38181/

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC #S4ME

Check out the latest News in Brief (Aug. 31 - Sept. 6) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.

https://s4me.info/threads/news-in-brief-september-2026.52320/#post-719398

Public posts on the forum can be read by anyone, but if you'd like to join the discussion then you'll need to become a forum member. It's free 😁

https://
s4me.info/threads/welcome.38181/

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC #S4ME

Check out the latest News in Brief (Aug. 31 - Sept. 6) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.

https://s4me.info/threads/news-in-brief-september-2026.52320/#post-719398

Public posts on the forum can be read by anyone, but if you'd like to join the discussion then you'll need to become a forum member. It's free 😁

https://
s4me.info/threads/welcome.38181/

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC #S4ME

Check out the latest News in Brief (Aug. 31 - Sept. 6) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.

https://s4me.info/threads/news-in-brief-september-2026.52320/#post-719398

Public posts on the forum can be read by anyone, but if you'd like to join the discussion then you'll need to become a forum member. It's free 😁

https://
s4me.info/threads/welcome.38181/

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC #S4ME

6/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME @mecfs

6/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME @mecfs

6/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME @mecfs

6/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME @mecfs

6/
Impact of cognitive dysfunction in ME/CFS from ME Research UK

Careers are impacted, cherished hobbies become exhausting, and relationships grow strained.

https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/

#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME @mecfs

The union news site Arbetsvärlden in Sweden writes about the hardship patients with ME face when assessed for being fit to work

Google translation links
https://translate.google.com/translate?sl=se&tl=en&u=https://www.arbetsvarlden.se/efter-sex-ar-med-sjukpenning-drogs-allt-in-mitt-batteri-ar-standigt-pa-10-procent/

https://www-arbetsvarlden-se.translate.goog/forsakringskassan-om-kritiken-allt-ska-vagas-in/?_x_tr_sl=se&_x_tr_tl=en&_x_tr_hl=en-GB

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS
@mecfs

The union news site Arbetsvärlden in Sweden writes about the hardship patients with ME face when assessed for being fit to work

Google translation links
https://translate.google.com/translate?sl=se&tl=en&u=https://www.arbetsvarlden.se/efter-sex-ar-med-sjukpenning-drogs-allt-in-mitt-batteri-ar-standigt-pa-10-procent/

https://www-arbetsvarlden-se.translate.goog/forsakringskassan-om-kritiken-allt-ska-vagas-in/?_x_tr_sl=se&_x_tr_tl=en&_x_tr_hl=en-GB

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS
@mecfs

The union news site Arbetsvärlden in Sweden writes about the hardship patients with ME face when assessed for being fit to work

Google translation links
https://translate.google.com/translate?sl=se&tl=en&u=https://www.arbetsvarlden.se/efter-sex-ar-med-sjukpenning-drogs-allt-in-mitt-batteri-ar-standigt-pa-10-procent/

https://www-arbetsvarlden-se.translate.goog/forsakringskassan-om-kritiken-allt-ska-vagas-in/?_x_tr_sl=se&_x_tr_tl=en&_x_tr_hl=en-GB

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #CFS
@mecfs