#pwme — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #pwme, aggregated by home.social.
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🚨CDC ME/CFS SEC Conference Call 🚨
(SEC = Stakeholder Engagement and Communications)Friday, September 18
3:00 - 4:30 pm EDTGuest speaker Nancy Klimas, MD: "How Progress in Long COVID is helping us understand ME/CFS”
The CDC has not held one of these ME/CFS calls for a long time - last one was Dec. 2024!
Online meeting using Microsoft Teams. Registration required.
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“Trial By Error: A Study of The Switch, New Zealand’s Homegrown Version of the Lightning Process, Yields Meaningless Findings” By David Tuller
#MEcfs #LongCovid #Sceptic #Skeptic #CFS #PwME @mecfs @longcovid
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RE: https://disabled.social/@tomkindlon/117238006960525328
I’m sure I can speak for the PACE Trial investigators [Peter White, Michael Sharpe & Trudie Chalder] when I say they love when the re-analyses are highlighted online. 😜
#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs -
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I very rarely post on LinkedIn these days but decided to do a longer post today on this.With a lot of researchers posting less often if at all on X, more are communicating via LinkedIn.
#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs
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10 years today, after a David vs Goliath Freedom of information (FOI) legal battle that damaged Alem Matthees' health, Peter White et al were forced to release data from PACETrial that cost UK taxpayers £5M showing graded exercise therapy & CBT didn’t lead to an increased recovery rate for CFS.
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10 years today, after a David vs Goliath Freedom of information (FOI) legal battle that damaged Alem Matthees' health, Peter White et al were forced to release data from PACETrial that cost UK taxpayers £5M showing graded exercise therapy & CBT didn’t lead to an increased recovery rate for CFS.
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10 years today, after a David vs Goliath Freedom of information (FOI) legal battle that damaged Alem Matthees' health, Peter White et al were forced to release data from PACETrial that cost UK taxpayers £5M showing graded exercise therapy & CBT didn’t lead to an increased recovery rate for CFS.
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10 years today, after a David vs Goliath Freedom of information (FOI) legal battle that damaged Alem Matthees' health, Peter White et al were forced to release data from PACETrial that cost UK taxpayers £5M showing graded exercise therapy & CBT didn’t lead to an increased recovery rate for CFS.
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10 years today, after a David vs Goliath Freedom of information (FOI) legal battle that damaged Alem Matthees' health, Peter White et al were forced to release data from PACETrial that cost UK taxpayers £5M showing graded exercise therapy & CBT didn’t lead to an increased recovery rate for CFS.
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Comprehensive review of myalgic encephalomyelitis/chronic fatigue syndrome
https://link.springer.com/article/10.1186/s12967-026-08833-4
Screenshot from latest Science for ME weekly update
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10/
What cognitive dysfunction (brain fog) in ME/CFS feels like#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME
@mecfs -
9/
What cognitive dysfunction (brain fog) in ME/CFS feels like#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME
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New:
Stigmatization in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): A scoping review
https://psycnet.apa.org/record/2028-18274-001
"Individuals with ME/CFS can be profoundly affected by stigmatization"
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New:
Stigmatization in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): A scoping review
https://psycnet.apa.org/record/2028-18274-001
"Individuals with ME/CFS can be profoundly affected by stigmatization"
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New:
Stigmatization in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): A scoping review
https://psycnet.apa.org/record/2028-18274-001
"Individuals with ME/CFS can be profoundly affected by stigmatization"
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New:
Stigmatization in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): A scoping review
https://psycnet.apa.org/record/2028-18274-001
"Individuals with ME/CFS can be profoundly affected by stigmatization"
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New:
Stigmatization in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): A scoping review
https://psycnet.apa.org/record/2028-18274-001
"Individuals with ME/CFS can be profoundly affected by stigmatization"
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9/
Impact of cognitive dysfunction in ME/CFS from ME Research UKCareers are impacted, cherished hobbies become exhausting, and relationships grow strained.
https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/
#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME -
“Trial By Error: Newly Knighted Anil van der Zee @anilvanderzee Discusses his Royal Honor” By David Tuller
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“Trial By Error: Newly Knighted Anil van der Zee @anilvanderzee Discusses his Royal Honor” By David Tuller
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“Trial By Error: Newly Knighted Anil van der Zee @anilvanderzee Discusses his Royal Honor” By David Tuller
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“Trial By Error: Newly Knighted Anil van der Zee @anilvanderzee Discusses his Royal Honor” By David Tuller
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“Trial By Error: Newly Knighted Anil van der Zee @anilvanderzee Discusses his Royal Honor” By David Tuller
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8/
What cognitive dysfunction (brain fog) in ME/CFS feels like#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME
@mecfs -
8/
Impact of cognitive dysfunction in ME/CFS from ME Research UKCareers are impacted, cherished hobbies become exhausting, and relationships grow strained.
https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/
#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME -
8/
Impact of cognitive dysfunction in ME/CFS from ME Research UKCareers are impacted, cherished hobbies become exhausting, and relationships grow strained.
https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/
#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME -
8/
Impact of cognitive dysfunction in ME/CFS from ME Research UKCareers are impacted, cherished hobbies become exhausting, and relationships grow strained.
https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/
#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME -
8/
Impact of cognitive dysfunction in ME/CFS from ME Research UKCareers are impacted, cherished hobbies become exhausting, and relationships grow strained.
https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/
#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME -
8/
Impact of cognitive dysfunction in ME/CFS from ME Research UKCareers are impacted, cherished hobbies become exhausting, and relationships grow strained.
https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/
#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME -
7/
What cognitive dysfunction (brain fog) in ME/CFS feels like#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME @mecfs
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7/
What cognitive dysfunction (brain fog) in ME/CFS feels like#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME @mecfs
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7/
What cognitive dysfunction (brain fog) in ME/CFS feels like#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME @mecfs
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7/
What cognitive dysfunction (brain fog) in ME/CFS feels like#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME @mecfs
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7/
What cognitive dysfunction (brain fog) in ME/CFS feels like#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME @mecfs
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7/
Impact of cognitive dysfunction in ME/CFS from ME Research UKCareers are impacted, cherished hobbies become exhausting, and relationships grow strained.
https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/
#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME -
7/
Impact of cognitive dysfunction in ME/CFS from ME Research UKCareers are impacted, cherished hobbies become exhausting, and relationships grow strained.
https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/
#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME -
7/
Impact of cognitive dysfunction in ME/CFS from ME Research UKCareers are impacted, cherished hobbies become exhausting, and relationships grow strained.
https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/
#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME -
7/
Impact of cognitive dysfunction in ME/CFS from ME Research UKCareers are impacted, cherished hobbies become exhausting, and relationships grow strained.
https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/
#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME -
7/
Impact of cognitive dysfunction in ME/CFS from ME Research UKCareers are impacted, cherished hobbies become exhausting, and relationships grow strained.
https://www.meresearch.org.uk/the-experience-and-impact-of-cognitive-dysfunction-in-me-cfs/
#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME -
PRIME International Symposium a two-day hybrid event exploring the latest developments in ME/CFS research
Links
https://www.actionforme.org.uk/register-for-the-prime-international-symposium/https://www.tickettailor.com/events/universityofedinburgh12/2155140
Screenshot from latest Science for ME weekly update
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PRIME International Symposium a two-day hybrid event exploring the latest developments in ME/CFS research
Links
https://www.actionforme.org.uk/register-for-the-prime-international-symposium/https://www.tickettailor.com/events/universityofedinburgh12/2155140
Screenshot from latest Science for ME weekly update
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PRIME International Symposium a two-day hybrid event exploring the latest developments in ME/CFS research
Links
https://www.actionforme.org.uk/register-for-the-prime-international-symposium/https://www.tickettailor.com/events/universityofedinburgh12/2155140
Screenshot from latest Science for ME weekly update
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PRIME International Symposium a two-day hybrid event exploring the latest developments in ME/CFS research
Links
https://www.actionforme.org.uk/register-for-the-prime-international-symposium/https://www.tickettailor.com/events/universityofedinburgh12/2155140
Screenshot from latest Science for ME weekly update
-
PRIME International Symposium a two-day hybrid event exploring the latest developments in ME/CFS research
Links
https://www.actionforme.org.uk/register-for-the-prime-international-symposium/https://www.tickettailor.com/events/universityofedinburgh12/2155140
Screenshot from latest Science for ME weekly update
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6/
What cognitive dysfunction (brain fog) in ME/CFS feels like#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME
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6/
What cognitive dysfunction (brain fog) in ME/CFS feels like#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME
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6/
What cognitive dysfunction (brain fog) in ME/CFS feels like#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME
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6/
What cognitive dysfunction (brain fog) in ME/CFS feels like#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME
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6/
What cognitive dysfunction (brain fog) in ME/CFS feels like#BrainFog #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME
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Check out the latest News in Brief (Aug. 31 - Sept. 6) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-719398
Public posts on the forum can be read by anyone, but if you'd like to join the discussion then you'll need to become a forum member. It's free 😁
https://
s4me.info/threads/welcome.38181/