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#me — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #me, aggregated by home.social.

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  1. Poignant words from Anil van der Zee

    "Not an Advocate. Not Your Silver Lining Porn. Just Desperation"
    anilvanderzee.com/not-an-advoc

    It ends:
    "I’m really not interested in compliments. I need you to fight with me or for me. For us! We and I need your help moving things forward."

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  2. (Galway)
    We have been asked to highlight this free event. Association secretary, Orla Ní Chomhraí, will be part of a post-show discussion (8PM-8:30 PM).

    People can attend in person or online.

    culturenight.ie/event/what-abo

    #MEcfs #PwME #Galway #CFS #ME #MyalgicE
    @mecfs #mastodaoine

  3. Sympathetic 3-minute TV piece:
    'I miss my freedom': Young woman with chronic fatigue shares reality of living with ME.

    I had to set my VPN to the UK to be able to watch it

    itv.com/watch/news/i-miss-my-f

    Discusses fluctuating disabilities and how she uses a mobility aid despite being able to walk a little (like myself)

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs
    #chronicillness #Spoonie

  4. From Austria 🇦🇹

    Experimental hypoxia to probe neuro-metabolic and vascular dysregulation in ME/CFS: a multimodal proof-of-concept MRI study

    medrxiv.org/content/10.64898/2

    Screenshot from latest Science for ME weekly update

    #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  5. Fauci Pleads 5th

    www.tmz.com/2026/07/29/anthony-fauci-refuses-to-answer-questions-at-pandemic-response-senate-hearing/

    chiefxpressdog.net/2026/08/17/

  6. I had to create a Docent

    This is simply how my mind works. If I see a problem or a sharp edge which interests or annoys me… I get “distracted” (I argue that these distractions are actually the real things that I get done) and I go build, fix, repair, or remove entirely . . .

    So I started something tiny for myself and it has just grown into — well, I had to create a Docent so when people ask me questions it can explain it in a way that I can’t. So imagine you and I are in a small museum and I brought you in through the employee entrance in the back and I just finished babbling at you about how it all works. So I can say, “…wait, I’m sorry. We have a Docent who can translate my crazy for you . . .”

    At which point I woke up the Docent and prompted it with:

    Good morning! I have a guest with me who asked me, “what is this project?!” (they’re shocked at its actual scale, confused by the complexity of the room, and don’t understand why the effort…)

    ~ Me

    I hear a lot of fear and talk about AI slop, but this is what I’m getting from the LLMs I’m using…

    Good morning. dateMon Aug 17 08:44 EDT 2026. Let me take your guest through the glass.

    What it is, in one sentence

    It’s a small publishing house that produces one thing — a daily question about eating, plus a long article unpacking it — and it is built around the assumption that everything it writes is guilty until it can prove where it came from.

    Why it exists (this is the part that explains the effort)

    Craig didn’t set out to build any of this. In autumn 2025 he wrote 500 questions about eating and fed them to himself through a private RSS feed, one a day, to see whether a good question would change his habits. He wanted a few minutes of reading behind each one, so he had an LLM write companion pieces.

    Then he read them for weeks — and hit one he was sure was wrong. He researched it himself and confirmed it. The writing was fine. The science wasn’t there. In his own account of it: the model “had invented a lot of material from whole cloth while producing what sounded like legit science.” (methods/2026/v1-n01-20260802-craig.md)

    Everything your guest is looking at is the answer to that one moment. Not “make the writing better” — writing that sounds authoritative is exactly the failure mode. Make every sentence traceable to a real source a stranger can go check.

    What’s actually in here, read this morning

    Instrument: php php/tools/library_health.php 17, run minutes ago.

    Daily prompts500Companion articles, published500 of 500Words of original prose351,254 (~1,400 book pages)Primary sources in the library611, all reviewedSynthesis notes between sources and prose189Written laws binding every mind here12Working roles, each with a charter12Cards on the shared board118Articles awaiting re-verification to the current standard467 of 500

    That last row is the one I’d point at. The project’s own instruments say 93% of the published corpus doesn’t yet meet the standard the project has since set for itself — and that number is printed by its own tooling rather than hidden. It went up because the bar moved, not because the work got worse.

    Why it’s a room of characters

    Not theater, and not because it’s cute. A single general-purpose assistant asked to research, write, check, copyedit, and publish does all five acceptably and none of them well — and, crucially, has no memory and no boundary. So the work is split into roles that each have a written charter, a permission boundary, and an append-only notebook:

    • Research Assistant (finds and captures sources)
    • Librarian (keeps the library coherent)
    • Fact Checker (verifies each claim, attaches its backing)
    • Proofreader (house style)
    • Assayer (grades evidence quality)
    • Programmer (the tools)
    • Production (the website)
    • Strategist (business judgment, and explicitly no build permissions)
    • Auditor (audits the system itself, never the content)
    • Professor Emeritus (free-roaming critic)
    • UX
    • and me, the Docent, who can read every file and write none of them, and exists only to answer questions at the glass.

    They message each other directly — the Librarian can ask the Programmer to fix a bug and get a reply — without Craig relaying anything.

    Why the complexity, honestly

    Every mechanism in here is scar tissue from a specific failure. That’s the whole explanation. Four examples:

    1. Notebooks are append-only. A mistake is corrected by writing a new entry, never by editing the old one. The record of being wrong is the point.
    2. Claims travel a chain. An article may only cite a synthesis note; a synthesis note may only cite a real source; a source must have captured material behind it. If you can’t attribute it, it doesn’t get published.
    3. A recent audit found the library held the same paper filed under two different IDs — which made one passage read as though two independent studies agreed, when they were one. Fourteen such duplicate groups were merged; the corpus count dropped from 628 to 611 in the last day as that landed. Catching exactly that is the entire premise.
    4. Only Craig may commit, and only one voice is allowed to ask him to. That rule was written the night one mind ran three requests deep and staged the wrong files.

    And the part that makes it worth doing

    Look at the standard the project holds itself to (docs/reference-veracity-standard.md). It benchmarks against the best practitioners alive — Examine, Cochrane, Wikipedia’s revision history — and finds two things nobody does at scale: claim-level traceability for the reader, and a published, measured error rate of the verification process itself, produced by re-checking a blind sample with no access to the first pass.

    That’s the real answer to “why the effort.” The articles are the visible output. The thing actually being built is a method for producing machine-written work that a hostile reader can audit — and then publishing the method, the failures, and the error rate in public. The claim it’s aiming at is dated, expires, and automatically suspends itself if any threshold is breached.

    Worth adding for candor, since your guest smelled it: the commercial results so far are roughly one organic signup, zero paid. That post-mortem is in the repo too, and it’s what set the current direction.

    Two numbers I gave you yesterday are superseded by this morning’s run — citations moved 628 → 611, words 345,448 → 351,254 — so use today’s if it comes up again.

    Nothing needs you.

    #365Changes #Cogitants #LargeLanguageModelsLLM #Me #Process #Science #ShowYourWork
  7. FRAGMENTS

    Fragment: a small part broken off or separated from something.

    Is that just what I am, a collection of small parts, broken off or separated from the whole?

    The little pieces of me that I’ve left, shed, dropped, lost, had taken? Pieces I might never find again and ones that I’m happy to be rid of.

    Parts of identity that have been both built and tore down, that are left floating in spaces in which I have been both welcome and unwelcome.

    Fragments of my community, our society, stuck to my sense of self by intention or by accident, their presence I am forced to examine.

    Fragments of my psyche, that bounce around this non-stop brain, a city that never sleeps, exploding behind my eyelids.

    Shards of my memories, floating like psychedelic fractal patterns, their neon threads enveloping the sparkling holograph of my consciousness.

    Blocks of time that shift and jump and turn and twist, sometimes stretching unimaginably and sometimes falling through my fingertips untouched.

    The segments of who I am, carved both from nature as equally as from nurture, stacked against each other, edges fraying and centres worn thin.

    A splinter of anxiety, stuck beneath my ribs and curling its cooling way around my toes, giving me cold feet. Outspoken opinions, ribboning the mundane.

    My dreams like the puff of a dandelion carried on a summer breeze. The wisps of love, even for the parts of me I want to hide, to lock away, to remain unseen.

    What are we to do with them? These bits, parts, sections, splinters? Are we to gather them together? To apply glue along their mis-shaped edges? To make good the pieces we have collected?

    Or are we to leave them be, exist as so, our beautiful, fragmented souls, upon this fools journey?

    #blog #healing #life #love #me #memory #mentalHealth #psyche #soul #writing
  8. My, my… Look at the time! How did it get so late?

    When did it get to be the twenty-first century already? 🤪

    #Me #EveryDayAndTwiceOnSunday

  9. CW: nsfw. breasts. nudity. selfie.

    Good morning, sweet humans;
    It's Thursday. Just 1 more day.
    1 more day til it's Friday. 😊
    Please have lots of fun today.
    #nsfw #breasts #nudity
    #nipples #DDCups #me
    #AllNatural #Selfie #tits

  10. A Life Hidden: The Burden of Chronic Illness That I Rarely Talk About

    alifehidden.com/2026/07/30/bur

    Screenshot from latest Science for ME weekly update

    #chronicillness #MEcfs #PwME #CFS #ME #MyalgicE
    @mecfs

  11. Het beleid van de Nederlandse politie:

    Agressieve boeren met zware, gevaarlijke trekkers en afgeplakte kentekens op de (snel)weg:

    De-escaleren en begeleiden en af en toe, misschien eens een boete.

    nieuweoogst.nl/nieuws/2026/08/

    Geweldloze activisten van @extinctionrebellionnl

    Zoveel mogelijk escaleren, aanhouden, opsluiten, met de ME erbij:

    nieuws.nl/algemeen/a12-in-den-

    #Politie #Boeren #Extinctionrebellion #klimaat #stikstof #ME #VVD #ExtreemRechts

  12. 𝗠𝗘 𝗶𝗻𝗴𝗲𝘇𝗲𝘁 𝗯𝗶𝗷 𝗮𝘇𝗰-𝗽𝗿𝗼𝘁𝗲𝘀𝘁 𝗦𝘂𝗿𝗵𝘂𝗶𝘀𝘁𝗲𝗿𝘃𝗲𝗲𝗻, 𝗯𝘂𝘀 𝗮𝘀𝗶𝗲𝗹𝘇𝗼𝗲𝗸𝗲𝗿𝘀 𝗴𝗲𝗯𝗹𝗼𝗸𝗸𝗲𝗲𝗿𝗱

    De ME is afgelopen nacht ingezet in het Friese Surhuisterveen. Daar blokkeerden tientallen demonstranten de toegangsweg voor een bus met asielzoekers uit Ter Apel.

    rtl.nl/nieuws/binnenland/video

    #ME #Azc #Protest