#myalgice — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #myalgice, aggregated by home.social.
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International Declaration in Support of Research and Drug Development for ME/CFS and Long Covid
https://declaration.mecfs-research.org/en/declaration
Image is from June 2026 IACFS/ME Newsletter
#MEcfs #PwME #ME #MyalgicE
@mecfs
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC -
International Declaration in Support of Research and Drug Development for ME/CFS and Long Covid
https://declaration.mecfs-research.org/en/declaration
Image is from June 2026 IACFS/ME Newsletter
#MEcfs #PwME #ME #MyalgicE
@mecfs
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC -
"The predominance of cerebral hypometabolism in [Long covid] patients with PEM draws important corollaries to similar changes seen in patients with FM & ME/CFS in prior neuroimaging studies"
https://journals.sagepub.com/doi/10.1177/21501319261458748
Screenshot from Science for ME update
#MEcfs #PwME #ME #MyalgicE
@mecfs
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC #Fibromyalgia #Fibro #FMS #FM -
"The predominance of cerebral hypometabolism in [Long covid] patients with PEM draws important corollaries to similar changes seen in patients with FM & ME/CFS in prior neuroimaging studies"
https://journals.sagepub.com/doi/10.1177/21501319261458748
Screenshot from Science for ME update
#MEcfs #PwME #ME #MyalgicE
@mecfs
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC #Fibromyalgia #Fibro #FMS #FM -
(USA)
#MEAction "We’re furious: Last-minute changes to defining medical frailty"https://www.meaction.net/post/we-re-furious-last-minute-changes-to-defining-medical-frailty
Screenshot from AMMES June 2026 newsletter
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(USA)
#MEAction "We’re furious: Last-minute changes to defining medical frailty"https://www.meaction.net/post/we-re-furious-last-minute-changes-to-defining-medical-frailty
Screenshot from AMMES June 2026 newsletter
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(USA)
#MEAction "We’re furious: Last-minute changes to defining medical frailty"https://www.meaction.net/post/we-re-furious-last-minute-changes-to-defining-medical-frailty
Screenshot from AMMES June 2026 newsletter
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(USA)
#MEAction "We’re furious: Last-minute changes to defining medical frailty"https://www.meaction.net/post/we-re-furious-last-minute-changes-to-defining-medical-frailty
Screenshot from AMMES June 2026 newsletter
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(USA)
#MEAction "We’re furious: Last-minute changes to defining medical frailty"https://www.meaction.net/post/we-re-furious-last-minute-changes-to-defining-medical-frailty
Screenshot from AMMES June 2026 newsletter
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New from Norway:
The social robot? Analyzing whether and how the telepresence robot AV1 affords socializationFree fulltext:
https://journals.sagepub.com/doi/10.1177/13548565231201774One of the cases discussed in detail has #CFS
@education @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #SpecialEd #education -
New from Norway:
The social robot? Analyzing whether and how the telepresence robot AV1 affords socializationFree fulltext:
https://journals.sagepub.com/doi/10.1177/13548565231201774One of the cases discussed in detail has #CFS
@education @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #SpecialEd #education -
New from Norway:
The social robot? Analyzing whether and how the telepresence robot AV1 affords socializationFree fulltext:
https://journals.sagepub.com/doi/10.1177/13548565231201774One of the cases discussed in detail has #CFS
@education @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #SpecialEd #education -
New from Norway:
The social robot? Analyzing whether and how the telepresence robot AV1 affords socializationFree fulltext:
https://journals.sagepub.com/doi/10.1177/13548565231201774One of the cases discussed in detail has #CFS
@education @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #SpecialEd #education -
From the prestigious CDC in the US:
Chronic Pain Among Adults — United States, 2019–2021
https://www.cdc.gov/mmwr/volumes/72/wr/mm7215a1.htm
"Among all chronic medical conditions reported, the age-adjusted prevalence of chronic pain & high-impact chronic pain was highest among adults with a history of #myalgicencephalomyelitis / #chronicfatiguesyndrome (70.0% & 43.8%,respectively) & dementia (54.9% & 34.2%"
#ChronicPain @chronicpain #MEcfs #CFS #MyalgicE #PwME @mecfs @cfs #ChronicPainWarrior
#ChronicPainAwareness -
From the prestigious CDC in the US:
Chronic Pain Among Adults — United States, 2019–2021
https://www.cdc.gov/mmwr/volumes/72/wr/mm7215a1.htm
"Among all chronic medical conditions reported, the age-adjusted prevalence of chronic pain & high-impact chronic pain was highest among adults with a history of #myalgicencephalomyelitis / #chronicfatiguesyndrome (70.0% & 43.8%,respectively) & dementia (54.9% & 34.2%"
#ChronicPain @chronicpain #MEcfs #CFS #MyalgicE #PwME @mecfs @cfs #ChronicPainWarrior
#ChronicPainAwareness