#myalgice — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #myalgice, aggregated by home.social.
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Recording of 7-minute TV segment: "Unraveling chronic fatigue syndrome: Insights from top scientist on myalgic encephalomyelitis"
Screenshot from July 2026 AMMES newsletter
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Recording of 7-minute TV segment: "Unraveling chronic fatigue syndrome: Insights from top scientist on myalgic encephalomyelitis"
Screenshot from July 2026 AMMES newsletter
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The millions missing song by PFM (2026) (3 minutes)
Choose your preferred music service:
https://ditto.fm/millions-missingProbably not the sweetest of voices but they have put some thought into the lyrics so well done and thanks to them. 👍👏
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The millions missing song by PFM (2026) (3 minutes)
Choose your preferred music service:
https://ditto.fm/millions-missingProbably not the sweetest of voices but they have put some thought into the lyrics so well done and thanks to them. 👍👏
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Development and validation of the Tiredness Identification Index (TIDI): a combined scale for the assessment of fatigue and sleepiness
https://dx.doi.org/10.1093/sleepadvances/zpag072
Screenshot from the latest Science for ME weekly update
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Development and validation of the Tiredness Identification Index (TIDI): a combined scale for the assessment of fatigue and sleepiness
https://dx.doi.org/10.1093/sleepadvances/zpag072
Screenshot from the latest Science for ME weekly update
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Development and validation of the Tiredness Identification Index (TIDI): a combined scale for the assessment of fatigue and sleepiness
https://dx.doi.org/10.1093/sleepadvances/zpag072
Screenshot from the latest Science for ME weekly update
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Development and validation of the Tiredness Identification Index (TIDI): a combined scale for the assessment of fatigue and sleepiness
https://dx.doi.org/10.1093/sleepadvances/zpag072
Screenshot from the latest Science for ME weekly update
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Development and validation of the Tiredness Identification Index (TIDI): a combined scale for the assessment of fatigue and sleepiness
https://dx.doi.org/10.1093/sleepadvances/zpag072
Screenshot from the latest Science for ME weekly update
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Metabolomic Classification of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome via Explainable Ensemble Learning and Pareto-Guided Feature Selection
https://www.mdpi.com/1422-0067/27/13/5920
Screenshot from the latest Science for ME weekly update
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Metabolomic Classification of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome via Explainable Ensemble Learning and Pareto-Guided Feature Selection
https://www.mdpi.com/1422-0067/27/13/5920
Screenshot from the latest Science for ME weekly update
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PRIME International Symposium: a two-day hybrid event exploring the latest developments in ME/CFS research
Links:
https://www.actionforme.org.uk/register-for-the-prime-international-symposium/https://www.tickettailor.com/events/universityofedinburgh12/2155140
Screenshot from the latest Science for ME weekly update
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PRIME International Symposium: a two-day hybrid event exploring the latest developments in ME/CFS research
Links:
https://www.actionforme.org.uk/register-for-the-prime-international-symposium/https://www.tickettailor.com/events/universityofedinburgh12/2155140
Screenshot from the latest Science for ME weekly update
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On May 12, ANZMES "launched a vital new clinical resource: Key Red Flags Guide to help GPs recognise ME/CFS earlier & prevent avoidable harm"
Access the free 9-page guide here & share with your GP: https://drive.google.com/file/d/1QGyYLzGt6CPGTORWQJd_TFhT1GjLMi8_/view
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On May 12, ANZMES "launched a vital new clinical resource: Key Red Flags Guide to help GPs recognise ME/CFS earlier & prevent avoidable harm"
Access the free 9-page guide here & share with your GP: https://drive.google.com/file/d/1QGyYLzGt6CPGTORWQJd_TFhT1GjLMi8_/view
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News from the WE&ME Foundation
https://www.weandmecfs.org/weme-award-unraveling-biological-differences-in-me-cfs/
Screenshot from the latest Science for ME weekly update
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News from the WE&ME Foundation
https://www.weandmecfs.org/weme-award-unraveling-biological-differences-in-me-cfs/
Screenshot from the latest Science for ME weekly update
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"Take a Deep Dive Into the Work of the Selin Lab and Collaborators"
https://solvecfs.org/research/ramsay-research-grants/
https://www.healthrising.org/blog/2026/06/09/t-cell-long-covid-me-cfs
https://www.youtube.com/watch?v=-g3Zz8DwK_c
Screenshot from July 2026 Massachusetts ME/CFS & FM Association newsletter
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"Take a Deep Dive Into the Work of the Selin Lab and Collaborators"
https://solvecfs.org/research/ramsay-research-grants/
https://www.healthrising.org/blog/2026/06/09/t-cell-long-covid-me-cfs
https://www.youtube.com/watch?v=-g3Zz8DwK_c
Screenshot from July 2026 Massachusetts ME/CFS & FM Association newsletter
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NIH:
Study finds gastrointestinal symptoms play clinical role in ME/CFShttps://www.linkedin.com/pulse/study-finds-gastrointestinal-symptoms-play-4s88e/
#MEcfs #PwME #ME #MyalgicE
@mecfs #IrritableBowelSyndrome #IBS -
NIH:
Study finds gastrointestinal symptoms play clinical role in ME/CFShttps://www.linkedin.com/pulse/study-finds-gastrointestinal-symptoms-play-4s88e/
#MEcfs #PwME #ME #MyalgicE
@mecfs #IrritableBowelSyndrome #IBS -
An interview with Bita Nezamdoust PhD
https://chroniclivingtherapy.com/nezamdoust-marginalisation-neglect-severe-me/
Screenshot from AMMES July 2026 Newsletter
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An interview with Bita Nezamdoust PhD
https://chroniclivingtherapy.com/nezamdoust-marginalisation-neglect-severe-me/
Screenshot from AMMES July 2026 Newsletter
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From Germany 🇩🇪
Evaluation of an Integrated Multidisciplinary Care Model for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: a Prospective, Open-label, Non-randomized Controlled Intervention Study
https://papers.ssrn.com/sol3/papers.cfm?abstract_id=6989698
Screenshot from latest Science for ME weekly update
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From Germany 🇩🇪
Evaluation of an Integrated Multidisciplinary Care Model for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: a Prospective, Open-label, Non-randomized Controlled Intervention Study
https://papers.ssrn.com/sol3/papers.cfm?abstract_id=6989698
Screenshot from latest Science for ME weekly update
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Cluster analysis of ME/CFS symptoms in DecodeME reveals two subgroups and a link to onset type
https://www.medrxiv.org/content/10.64898/2026.06.29.26356818v1
Screenshot from latest Science for ME weekly update
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Cluster analysis of ME/CFS symptoms in DecodeME reveals two subgroups and a link to onset type
https://www.medrxiv.org/content/10.64898/2026.06.29.26356818v1
Screenshot from latest Science for ME weekly update
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Solve-Funded Study Shows Gastrointestinal Symptoms Are Core Features of ME/CFS
Screenshot from latest Science for ME weekly update
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Solve-Funded Study Shows Gastrointestinal Symptoms Are Core Features of ME/CFS
Screenshot from latest Science for ME weekly update
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"Western key hub for Horizon Europe-funded project studying disabling chronic illness: Dr Douglas Fraser & Mark Daley will use laboratory science & computational biology to study ME/CFS"
https://news.westernu.ca/2026/07/horizon-europe-discover-me/
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"Western key hub for Horizon Europe-funded project studying disabling chronic illness: Dr Douglas Fraser & Mark Daley will use laboratory science & computational biology to study ME/CFS"
https://news.westernu.ca/2026/07/horizon-europe-discover-me/
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Counting my blessings.
With the ME, I’m heat sensitive but it generally doesn’t get too hot here in Ireland where we have our mobile home. The sea breeze helps. Not the best place if you want to get a tan but that doesn’t interest me. Often some rain but none due 🙂 (15C=59F; 20C=68F). Thoughts are with those struggling with the weather.
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Counting my blessings.
With the ME, I’m heat sensitive but it generally doesn’t get too hot here in Ireland where we have our mobile home. The sea breeze helps. Not the best place if you want to get a tan but that doesn’t interest me. Often some rain but none due 🙂 (15C=59F; 20C=68F). Thoughts are with those struggling with the weather.
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Hilda Bastian @hildabast : "Values and Conflicts at Journals" (re: disputed Cochrane review on exercise for ME/CFS, etc.)
https://absolutelymaybe.plos.org/2026/06/24/values-and-conflicts-at-journals/
Screenshot from latest Science for ME @s4me weekly update
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Hilda Bastian @hildabast : "Values and Conflicts at Journals" (re: disputed Cochrane review on exercise for ME/CFS, etc.)
https://absolutelymaybe.plos.org/2026/06/24/values-and-conflicts-at-journals/
Screenshot from latest Science for ME @s4me weekly update
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HERITAGE study is open for UK participants: "The aim is to understand people’s experiences and help improve future NHS services"
https://heritage.leeds.ac.uk/join/
Screenshot from latest Science for ME weekly update
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HERITAGE study is open for UK participants: "The aim is to understand people’s experiences and help improve future NHS services"
https://heritage.leeds.ac.uk/join/
Screenshot from latest Science for ME weekly update
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From Norway
Exploring differences in protein cargo of extracellular vesicles from ME/CFS patient plasma compared to healthy controls
https://www.sciencedirect.com/science/article/pii/S2405580826002396
Screenshot from latest Science for ME weekly update
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From Norway
Exploring differences in protein cargo of extracellular vesicles from ME/CFS patient plasma compared to healthy controls
https://www.sciencedirect.com/science/article/pii/S2405580826002396
Screenshot from latest Science for ME weekly update
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iPSC-Derived Myogenic Progenitor Cells from People with ME/CFS Reveal Altered Genes and Pathways with Drug Repurposing Potential
https://www.researchsquare.com/article/rs-10015511/v1
Screenshot from latest Science for ME weekly update
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iPSC-Derived Myogenic Progenitor Cells from People with ME/CFS Reveal Altered Genes and Pathways with Drug Repurposing Potential
https://www.researchsquare.com/article/rs-10015511/v1
Screenshot from latest Science for ME weekly update
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Interesting page with info on how much each institution is getting for:
Biological evidence & mechanism-based disease classification for the improved diagnosis, prognosis & treatment of ME/CFS (DISCOVER-ME)
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Interesting page with info on how much each institution is getting for:
Biological evidence & mechanism-based disease classification for the improved diagnosis, prognosis & treatment of ME/CFS (DISCOVER-ME)
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4 new links on the €7.5+ million of EU Horizon funding for ME research
https://emerg.eu/emergnews260601.shtml
https://www.europeanmealliance.org/news-Q22026-horizon.shtml
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4 new links on the €7.5+ million of EU Horizon funding for ME research
https://emerg.eu/emergnews260601.shtml
https://www.europeanmealliance.org/news-Q22026-horizon.shtml
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Press release from NCNED (Australia):
Chain reaction in cells may be driving low energy in ME/CFS patients
Full research paper:
https://link.springer.com/article/10.1186/s12865-026-00849-1