#myalgice — Public Fediverse posts

Recording of 7-minute TV segment: "Unraveling chronic fatigue syndrome: Insights from top scientist on myalgic encephalomyelitis"

Screenshot from July 2026 AMMES newsletter

https://www.youtube.com/watch?v=EZOHbyXIzLw

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

Recording of 7-minute TV segment: "Unraveling chronic fatigue syndrome: Insights from top scientist on myalgic encephalomyelitis"

Screenshot from July 2026 AMMES newsletter

https://www.youtube.com/watch?v=EZOHbyXIzLw

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

The millions missing song by PFM (2026) (3 minutes)

Choose your preferred music service:
https://ditto.fm/millions-missing

Probably not the sweetest of voices but they have put some thought into the lyrics so well done and thanks to them. 👍👏

#millionsmissing #MEcfs #PwME #ME #MyalgicE
@mecfs

The millions missing song by PFM (2026) (3 minutes)

Choose your preferred music service:
https://ditto.fm/millions-missing

Probably not the sweetest of voices but they have put some thought into the lyrics so well done and thanks to them. 👍👏

#millionsmissing #MEcfs #PwME #ME #MyalgicE
@mecfs

Development and validation of the Tiredness Identification Index (TIDI): a combined scale for the assessment of fatigue and sleepiness

https://dx.doi.org/10.1093/sleepadvances/zpag072

Screenshot from the latest Science for ME weekly update

#sleepiness #fatigue #MEcfs #PwME #ME #MyalgicE
@mecfs

Development and validation of the Tiredness Identification Index (TIDI): a combined scale for the assessment of fatigue and sleepiness

https://dx.doi.org/10.1093/sleepadvances/zpag072

Screenshot from the latest Science for ME weekly update

#sleepiness #fatigue #MEcfs #PwME #ME #MyalgicE
@mecfs

Development and validation of the Tiredness Identification Index (TIDI): a combined scale for the assessment of fatigue and sleepiness

https://dx.doi.org/10.1093/sleepadvances/zpag072

Screenshot from the latest Science for ME weekly update

#sleepiness #fatigue #MEcfs #PwME #ME #MyalgicE
@mecfs

Development and validation of the Tiredness Identification Index (TIDI): a combined scale for the assessment of fatigue and sleepiness

https://dx.doi.org/10.1093/sleepadvances/zpag072

Screenshot from the latest Science for ME weekly update

#sleepiness #fatigue #MEcfs #PwME #ME #MyalgicE
@mecfs

Development and validation of the Tiredness Identification Index (TIDI): a combined scale for the assessment of fatigue and sleepiness

https://dx.doi.org/10.1093/sleepadvances/zpag072

Screenshot from the latest Science for ME weekly update

#sleepiness #fatigue #MEcfs #PwME #ME #MyalgicE
@mecfs

Metabolomic Classification of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome via Explainable Ensemble Learning and Pareto-Guided Feature Selection

https://www.mdpi.com/1422-0067/27/13/5920

Screenshot from the latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

Metabolomic Classification of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome via Explainable Ensemble Learning and Pareto-Guided Feature Selection

https://www.mdpi.com/1422-0067/27/13/5920

Screenshot from the latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

PRIME International Symposium: a two-day hybrid event exploring the latest developments in ME/CFS research

Links:
https://www.actionforme.org.uk/register-for-the-prime-international-symposium/

https://www.actionforme.org.uk/wp-content/uploads/2026/06/PRIME-2026-Symposium-Preliminary-Program-v1-1.pdf

https://www.tickettailor.com/events/universityofedinburgh12/2155140

Screenshot from the latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

PRIME International Symposium: a two-day hybrid event exploring the latest developments in ME/CFS research

Links:
https://www.actionforme.org.uk/register-for-the-prime-international-symposium/

https://www.actionforme.org.uk/wp-content/uploads/2026/06/PRIME-2026-Symposium-Preliminary-Program-v1-1.pdf

https://www.tickettailor.com/events/universityofedinburgh12/2155140

Screenshot from the latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

On May 12, ANZMES "launched a vital new clinical resource: Key Red Flags Guide to help GPs recognise ME/CFS earlier & prevent avoidable harm"

Access the free 9-page guide here & share with your GP: https://drive.google.com/file/d/1QGyYLzGt6CPGTORWQJd_TFhT1GjLMi8_/view

#MEcfs #PwME #ME #MyalgicE
@mecfs

On May 12, ANZMES "launched a vital new clinical resource: Key Red Flags Guide to help GPs recognise ME/CFS earlier & prevent avoidable harm"

Access the free 9-page guide here & share with your GP: https://drive.google.com/file/d/1QGyYLzGt6CPGTORWQJd_TFhT1GjLMi8_/view

#MEcfs #PwME #ME #MyalgicE
@mecfs

News from the WE&ME Foundation

https://www.weandmecfs.org/weme-award-unraveling-biological-differences-in-me-cfs/

Screenshot from the latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

News from the WE&ME Foundation

https://www.weandmecfs.org/weme-award-unraveling-biological-differences-in-me-cfs/

Screenshot from the latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

"Take a Deep Dive Into the Work of the Selin Lab and Collaborators"

https://solvecfs.org/research/ramsay-research-grants/

https://www.healthrising.org/blog/2026/06/09/t-cell-long-covid-me-cfs

https://www.youtube.com/watch?v=-g3Zz8DwK_c

Screenshot from July 2026 Massachusetts ME/CFS & FM Association newsletter

#MEcfs #PwME #ME #MyalgicE
@mecfs

"Take a Deep Dive Into the Work of the Selin Lab and Collaborators"

https://solvecfs.org/research/ramsay-research-grants/

https://www.healthrising.org/blog/2026/06/09/t-cell-long-covid-me-cfs

https://www.youtube.com/watch?v=-g3Zz8DwK_c

Screenshot from July 2026 Massachusetts ME/CFS & FM Association newsletter

#MEcfs #PwME #ME #MyalgicE
@mecfs

NIH:
Study finds gastrointestinal symptoms play clinical role in ME/CFS

https://www.linkedin.com/pulse/study-finds-gastrointestinal-symptoms-play-4s88e/

#MEcfs #PwME #ME #MyalgicE
@mecfs #IrritableBowelSyndrome #IBS

NIH:
Study finds gastrointestinal symptoms play clinical role in ME/CFS

https://www.linkedin.com/pulse/study-finds-gastrointestinal-symptoms-play-4s88e/

#MEcfs #PwME #ME #MyalgicE
@mecfs #IrritableBowelSyndrome #IBS

An interview with Bita Nezamdoust PhD

https://chroniclivingtherapy.com/nezamdoust-marginalisation-neglect-severe-me/

Screenshot from AMMES July 2026 Newsletter

#SevereME #MEcfs #PwME #ME #MyalgicE
@mecfs

An interview with Bita Nezamdoust PhD

https://chroniclivingtherapy.com/nezamdoust-marginalisation-neglect-severe-me/

Screenshot from AMMES July 2026 Newsletter

#SevereME #MEcfs #PwME #ME #MyalgicE
@mecfs

From Germany 🇩🇪

Evaluation of an Integrated Multidisciplinary Care Model for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: a Prospective, Open-label, Non-randomized Controlled Intervention Study

https://papers.ssrn.com/sol3/papers.cfm?abstract_id=6989698

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

From Germany 🇩🇪

Evaluation of an Integrated Multidisciplinary Care Model for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: a Prospective, Open-label, Non-randomized Controlled Intervention Study

https://papers.ssrn.com/sol3/papers.cfm?abstract_id=6989698

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

Cluster analysis of ME/CFS symptoms in DecodeME reveals two subgroups and a link to onset type

https://www.medrxiv.org/content/10.64898/2026.06.29.26356818v1

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

Cluster analysis of ME/CFS symptoms in DecodeME reveals two subgroups and a link to onset type

https://www.medrxiv.org/content/10.64898/2026.06.29.26356818v1

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

Solve-Funded Study Shows Gastrointestinal Symptoms Are Core Features of ME/CFS

https://solvecfs.org/science-spotlight-solve-funded-study-shows-gastrointestinal-symptoms-are-core-features-of-me-cfs/

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

Solve-Funded Study Shows Gastrointestinal Symptoms Are Core Features of ME/CFS

https://solvecfs.org/science-spotlight-solve-funded-study-shows-gastrointestinal-symptoms-are-core-features-of-me-cfs/

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

"Western key hub for Horizon Europe-funded project studying disabling chronic illness: Dr Douglas Fraser & Mark Daley will use laboratory science & computational biology to study ME/CFS"

https://news.westernu.ca/2026/07/horizon-europe-discover-me/

#MEcfs #PwME #ME #MyalgicE
@mecfs

"Western key hub for Horizon Europe-funded project studying disabling chronic illness: Dr Douglas Fraser & Mark Daley will use laboratory science & computational biology to study ME/CFS"

https://news.westernu.ca/2026/07/horizon-europe-discover-me/

#MEcfs #PwME #ME #MyalgicE
@mecfs

Counting my blessings.

With the ME, I’m heat sensitive but it generally doesn’t get too hot here in Ireland where we have our mobile home. The sea breeze helps. Not the best place if you want to get a tan but that doesn’t interest me. Often some rain but none due 🙂 (15C=59F; 20C=68F). Thoughts are with those struggling with the weather.

#MEcfs #PwME #ME #MyalgicE
@mecfs
#chronicillness

Counting my blessings.

With the ME, I’m heat sensitive but it generally doesn’t get too hot here in Ireland where we have our mobile home. The sea breeze helps. Not the best place if you want to get a tan but that doesn’t interest me. Often some rain but none due 🙂 (15C=59F; 20C=68F). Thoughts are with those struggling with the weather.

#MEcfs #PwME #ME #MyalgicE
@mecfs
#chronicillness

Hilda Bastian @hildabast : "Values and Conflicts at Journals" (re: disputed Cochrane review on exercise for ME/CFS, etc.)

https://absolutelymaybe.plos.org/2026/06/24/values-and-conflicts-at-journals/

https://s4me.info/threads/2025-the-2019-24-cochrane-larun-review-exercise-therapy-for-cfs-including-iag-campaign-petition-comments-and-articles.42305/post-702559

Screenshot from latest Science for ME @s4me weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

Hilda Bastian @hildabast : "Values and Conflicts at Journals" (re: disputed Cochrane review on exercise for ME/CFS, etc.)

https://absolutelymaybe.plos.org/2026/06/24/values-and-conflicts-at-journals/

https://s4me.info/threads/2025-the-2019-24-cochrane-larun-review-exercise-therapy-for-cfs-including-iag-campaign-petition-comments-and-articles.42305/post-702559

Screenshot from latest Science for ME @s4me weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

Nice, 3-minute ME/CFS awareness video, accompanied by singing.

https://www.youtube.com/watch?v=kyQlnt9jWEE

See next message for background information.

#MEcfs #PwME #ME #MyalgicE
@mecfs

1/

Nice, 3-minute ME/CFS awareness video, accompanied by singing.

https://www.youtube.com/watch?v=kyQlnt9jWEE

See next message for background information.

#MEcfs #PwME #ME #MyalgicE
@mecfs

1/

HERITAGE study is open for UK participants: "The aim is to understand people’s experiences and help improve future NHS services"

https://heritage.leeds.ac.uk/join/

https://s4me.info/threads/the-heritage-study-health-effects-from-infection-sequelae-tailoring-services-and-advancing-guidance.45357/post-702492

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

HERITAGE study is open for UK participants: "The aim is to understand people’s experiences and help improve future NHS services"

https://heritage.leeds.ac.uk/join/

https://s4me.info/threads/the-heritage-study-health-effects-from-infection-sequelae-tailoring-services-and-advancing-guidance.45357/post-702492

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

From the US

Graphical abstract for:

Hydrocarbon Receptor Agonists in the Gut Microbiome of People With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

#MEcfs #PwME #ME #MyalgicE
@mecfs

1/

From the US

Graphical abstract for:

Hydrocarbon Receptor Agonists in the Gut Microbiome of People With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

#MEcfs #PwME #ME #MyalgicE
@mecfs

1/

From Norway

Exploring differences in protein cargo of extracellular vesicles from ME/CFS patient plasma compared to healthy controls

https://www.sciencedirect.com/science/article/pii/S2405580826002396

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

From Norway

Exploring differences in protein cargo of extracellular vesicles from ME/CFS patient plasma compared to healthy controls

https://www.sciencedirect.com/science/article/pii/S2405580826002396

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

iPSC-Derived Myogenic Progenitor Cells from People with ME/CFS Reveal Altered Genes and Pathways with Drug Repurposing Potential

https://www.researchsquare.com/article/rs-10015511/v1

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

iPSC-Derived Myogenic Progenitor Cells from People with ME/CFS Reveal Altered Genes and Pathways with Drug Repurposing Potential

https://www.researchsquare.com/article/rs-10015511/v1

Screenshot from latest Science for ME weekly update

#MEcfs #PwME #ME #MyalgicE
@mecfs

Interesting page with info on how much each institution is getting for:

Biological evidence & mechanism-based disease classification for the improved diagnosis, prognosis & treatment of ME/CFS (DISCOVER-ME)

https://ec.europa.eu/info/funding-tenders/opportunities/portal/screen/opportunities/projects-details/43108390/101287766/HORIZON

#MEcfs #PwME #ME #MyalgicE
@mecfs

Interesting page with info on how much each institution is getting for:

Biological evidence & mechanism-based disease classification for the improved diagnosis, prognosis & treatment of ME/CFS (DISCOVER-ME)

https://ec.europa.eu/info/funding-tenders/opportunities/portal/screen/opportunities/projects-details/43108390/101287766/HORIZON

#MEcfs #PwME #ME #MyalgicE
@mecfs

4 new links on the €7.5+ million of EU Horizon funding for ME research

https://emerg.eu/emergnews260601.shtml

https://www.europeanmealliance.org/news-Q22026-horizon.shtml

https://www.meduniwien.ac.at/web/en/about-us/news/2026/news-in-june-2026/me/cfs-international-research-project-launched-under-the-leadership-of-meduni-vienna/

https://quadram.ac.uk/quadram-institute-announces-major-european-research-milestone-in-myalgic-encephalomyelitis-me/

#MEcfs #PwME #ME #MyalgicE
@mecfs

4 new links on the €7.5+ million of EU Horizon funding for ME research

https://emerg.eu/emergnews260601.shtml

https://www.europeanmealliance.org/news-Q22026-horizon.shtml

https://www.meduniwien.ac.at/web/en/about-us/news/2026/news-in-june-2026/me/cfs-international-research-project-launched-under-the-leadership-of-meduni-vienna/

https://quadram.ac.uk/quadram-institute-announces-major-european-research-milestone-in-myalgic-encephalomyelitis-me/

#MEcfs #PwME #ME #MyalgicE
@mecfs

Press release from NCNED (Australia):

Chain reaction in cells may be driving low energy in ME/CFS patients

https://news.griffith.edu.au/2026/06/30/chain-reaction-in-cells-may-be-driving-low-energy-in-me-cfs-patients/

Full research paper:
https://link.springer.com/article/10.1186/s12865-026-00849-1

#MEcfs #PwME #ME #MyalgicE
@mecfs