#myalgice — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #myalgice, aggregated by home.social.
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14/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image.
Day #14
#MyalgicE #MyalgicEncephalomyelitis
#mecfs @mecfs @invest_in_me_research -
14/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image.
Day #14
#MyalgicE #MyalgicEncephalomyelitis
#mecfs @mecfs @invest_in_me_research -
14/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image.
Day #14
#MyalgicE #MyalgicEncephalomyelitis
#mecfs @mecfs @invest_in_me_research -
14/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image.
Day #14
#MyalgicE #MyalgicEncephalomyelitis
#mecfs @mecfs @invest_in_me_research -
14/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this image.
Day #14
#MyalgicE #MyalgicEncephalomyelitis
#mecfs @mecfs @invest_in_me_research -
14/
(2 minutes)
"How does it feel to live with ME/CFS? Patients describe what it's like"May is ME Awareness Month.
You can help raise awareness and understanding by sharing and/or
liking this video -
14/
(2 minutes)
"How does it feel to live with ME/CFS? Patients describe what it's like"May is ME Awareness Month.
You can help raise awareness and understanding by sharing and/or
liking this video -
14/
(2 minutes)
"How does it feel to live with ME/CFS? Patients describe what it's like"May is ME Awareness Month.
You can help raise awareness and understanding by sharing and/or
liking this video -
14/
(2 minutes)
"How does it feel to live with ME/CFS? Patients describe what it's like"May is ME Awareness Month.
You can help raise awareness and understanding by sharing and/or
liking this video -
14/
(2 minutes)
"How does it feel to live with ME/CFS? Patients describe what it's like"May is ME Awareness Month.
You can help raise awareness and understanding by sharing and/or
liking this video -
13/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month. You can help by sharing and/or liking this image.
Day 13
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13/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month. You can help by sharing and/or liking this image.
Day 13
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13/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month. You can help by sharing and/or liking this image.
Day 13
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13/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month. You can help by sharing and/or liking this image.
Day 13
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13/
May is Myalgic Encephalomyelitis (M.E.) Awareness Month. You can help by sharing and/or liking this image.
Day 13
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12/
May 12 is International Myalgic Encephalomyelitis (ME) Day (and May is
ME Awareness Month).You can help by sharing and/or liking this image.
Day #12
#MyalgicE #MyalgicEncephalomyelitis #May12 #May12th #MEAwarenessDay
#MillionsMissing #mecfs
@mecfs -
12/
May 12 is International Myalgic Encephalomyelitis (ME) Day (and May is
ME Awareness Month).You can help by sharing and/or liking this image.
Day #12
#MyalgicE #MyalgicEncephalomyelitis #May12 #May12th #MEAwarenessDay
#MillionsMissing #mecfs
@mecfs -
12/
May 12 is International Myalgic Encephalomyelitis (ME) Day (and May is
ME Awareness Month).You can help by sharing and/or liking this image.
Day #12
#MyalgicE #MyalgicEncephalomyelitis #May12 #May12th #MEAwarenessDay
#MillionsMissing #mecfs
@mecfs -
12/
May 12 is International Myalgic Encephalomyelitis (ME) Day (and May is
ME Awareness Month).You can help by sharing and/or liking this image.
Day #12
#MyalgicE #MyalgicEncephalomyelitis #May12 #May12th #MEAwarenessDay
#MillionsMissing #mecfs
@mecfs -
12/
May 12 is International Myalgic Encephalomyelitis (ME) Day (and May is
ME Awareness Month).You can help by sharing and/or liking this image.
Day #12
#MyalgicE #MyalgicEncephalomyelitis #May12 #May12th #MEAwarenessDay
#MillionsMissing #mecfs
@mecfs -
12/
May 12 is International #MyalgicEncephalomyelitis (ME) Day (and May is ME Awareness Month) You can help by sharing and/or liking this (well-made) video.
(3 minutes)
https://www.youtube.com/watch?v=IOflARSgNnE
Day 12
#MyalgicE #May12 #May12th #WorldMEDay2026
#WorldMEday #MEAwarenessDay
#mecfs
@mecfs -
12/
May 12 is International #MyalgicEncephalomyelitis (ME) Day (and May is ME Awareness Month) You can help by sharing and/or liking this (well-made) video.
(3 minutes)
https://www.youtube.com/watch?v=IOflARSgNnE
Day 12
#MyalgicE #May12 #May12th #WorldMEDay2026
#WorldMEday #MEAwarenessDay
#mecfs
@mecfs -
12/
May 12 is International #MyalgicEncephalomyelitis (ME) Day (and May is ME Awareness Month) You can help by sharing and/or liking this (well-made) video.
(3 minutes)
https://www.youtube.com/watch?v=IOflARSgNnE
Day 12
#MyalgicE #May12 #May12th #WorldMEDay2026
#WorldMEday #MEAwarenessDay
#mecfs
@mecfs -
12/
May 12 is International #MyalgicEncephalomyelitis (ME) Day (and May is ME Awareness Month) You can help by sharing and/or liking this (well-made) video.
(3 minutes)
https://www.youtube.com/watch?v=IOflARSgNnE
Day 12
#MyalgicE #May12 #May12th #WorldMEDay2026
#WorldMEday #MEAwarenessDay
#mecfs
@mecfs -
12/
May 12 is International #MyalgicEncephalomyelitis (ME) Day (and May is ME Awareness Month) You can help by sharing and/or liking this (well-made) video.
(3 minutes)
https://www.youtube.com/watch?v=IOflARSgNnE
Day 12
#MyalgicE #May12 #May12th #WorldMEDay2023
#WorldMEday #MEAwarenessDay
#mecfs
@mecfs -
"Major funding secured for Sequence ME & Long Covid, a DecodeMe project" (11 May 2026)
"...£4.75m from the UK government..."
https://www.actionforme.org.uk/major-funding-secured-for-sequence-me-long-covid-a-decodeme-project/
The webpage includes more information on the project
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Great news from the UK🍾
£4.75 million to do whole-genome sequencing on 6000 DecodeME samplesUnfortunately it's not enough to analyse the full sample
People can find out more about SequenceME & donate here
https://megenetics.org.uk/our-projects/sequence-me-long-covid/ -
Well done to Gearóidín Nic Cárthaigh for getting the following published in the Irish-language magazine Nós
https://nos.ie/news/ag-maireachtail-le-m-e/
Translating the whole page doesn't seem to work with Google translate but pasting it into sections does at
https://translate.google.com/?sl=ga&tl=en&op=translate -
One of our members, Éabha Melvin, is scheduled to be interviewed tomorrow for Nuacht TG4*.
If something they consider more important comes up, the item could be dropped but it is in the books for now.
*TG4 is the national, taxpayer-funded Irish language TV station
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Tom Kindlon @tomkindlon : Another nice meet-up.
Next one will be in June and then there won't be another one in Dublin 15 till September or October.
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I'm one of millions missing from our lives due to Myalgic Encephalomyelitis, each with their own challenges and losses.
Unlike Covid lockdowns, the lockdowns we have dealt with for years due to #ME continue
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11/
May is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Awareness Month, with May 12 being International ME/CFS Day.You can help by sharing +/or liking this image.
Day #11
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #May12 #May12th
@mecfs -
11/
May is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Awareness Month, with May 12 being International ME/CFS Day.You can help by sharing +/or liking this image.
Day #11
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #May12 #May12th
@mecfs -
11/
May is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Awareness Month, with May 12 being International ME/CFS Day.You can help by sharing +/or liking this image.
Day #11
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #May12 #May12th
@mecfs -
11/
May is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Awareness Month, with May 12 being International ME/CFS Day.You can help by sharing +/or liking this image.
Day #11
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #May12 #May12th
@mecfs -
11/
May is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Awareness Month, with May 12 being International ME/CFS Day.You can help by sharing +/or liking this image.
Day #11
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #May12 #May12th
@mecfs -
Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) Health Research Registry
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Hi there,
I just wanted to surface a Reddit post here on the fediverse. A very severe/extreme ME/CFS sufferer is currently in a precarious situation and needing financial support.
Her name is Ali and you can read more about her situation on Reddit here:
https://www.reddit.com/r/cfs/comments/1t11zip/fundraiser_for_ali_veryextremely_severe_me/
Thanks.
#MECFS #MyalgicEncephalomyelitis #CFS #MyalgicE #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome #spoonie #spoonies
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4/
“On the theme of personal burden and quality of life, another stated, ““She said, “My life has become an inhumane existence.” She left a husband and two teenaged children whom she referred to when she said, “I believe they have lost their mother to ME.””
@mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #millionsmissing -
New:
"How visible and hidden disabilities are treated differently in clinical practice"From:
Non-visible disability in the medical curriculum: what medicine overlooks, patients inherithttps://www.frontiersin.org/journals/medicine/articles/10.3389/fmed.2026.1701393/full
#Hiddendisabilities #invisibleillness #Invisibledisability #hiddenillness #chronicillness #MEcfs #PwME #ME #MyalgicE
@mecfs -
I just wanted to say a huge thank you to MEAction Network (https://www.meaction.net/) and Visible (https://www.makevisible.com/) for the Visible band I won last month 👍 Having had ME/CFS for over 15 years I thought I knew everything about pacing but the Visible band has even taught this old dog some new tricks. Very cool 😎
#MECFS #MEAction #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #ChronicIllness #CFS #Spoons #Spoonie #Pacing #Health #Visible #Visibleband
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I just wanted to say a huge thank you to MEAction Network (https://www.meaction.net/) and Visible (https://www.makevisible.com/) for the Visible band I won last month 👍 Having had ME/CFS for over 15 years I thought I knew everything about pacing but the Visible band has even taught this old dog some new tricks. Very cool 😎
#MECFS #MEAction #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #ChronicIllness #CFS #Spoons #Spoonie #Pacing #Health #Visible #Visibleband
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I just wanted to say a huge thank you to MEAction Network (https://www.meaction.net/) and Visible (https://www.makevisible.com/) for the Visible band I won last month 👍 Having had ME/CFS for over 15 years I thought I knew everything about pacing but the Visible band has even taught this old dog some new tricks. Very cool 😎
#MECFS #MEAction #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #ChronicIllness #CFS #Spoons #Spoonie #Pacing #Health #Visible #Visibleband
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I just wanted to say a huge thank you to MEAction Network (https://www.meaction.net/) and Visible (https://www.makevisible.com/) for the Visible band I won last month 👍 Having had ME/CFS for over 15 years I thought I knew everything about pacing but the Visible band has even taught this old dog some new tricks. Very cool 😎
#MECFS #MEAction #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #ChronicIllness #CFS #Spoons #Spoonie #Pacing #Health #Visible #Visibleband
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I just wanted to say a huge thank you to MEAction Network (https://www.meaction.net/) and Visible (https://www.makevisible.com/) for the Visible band I won last month 👍 Having had ME/CFS for over 15 years I thought I knew everything about pacing but the Visible band has even taught this old dog some new tricks. Very cool 😎
#MECFS #MEAction #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #ChronicIllness #CFS #Spoons #Spoonie #Pacing #Health #Visible #Visibleband
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(US)
Tell Congress: Fund ME/CFS Research NowDeadline is April 15 I believe
https://solvecfs.quorum.us/campaign/157943/
Image is from the AMMES April 2026 newsletter
#MEcfs #PwME #ME #MyalgicE
@mecfs
#CFSME #MEeps #CFIDS #SEID #NeuroME #CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome -
Digital physiological biomarkers predict within-person symptom changes in complex chronic illness
https://www.nature.com/articles/s41746-026-02543-3
Screenshot from latest Science for ME weekly update
#MEcfs #PwME #ME #MyalgicE
@mecfs
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome -
🧵
Thoughtful blog post by somebody with long Covid and ME/CFS. Initially focuses on describing the post-exertional malaise effects of working 3 days in a row before discussing how the whole illness(es) and the effect it is having on his life is making him feel emotionallyhttps://centerleftstack.substack.com/p/the-debt-came-due
#MEcfs #PwME #ME #MyalgicE
@mecfs
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome
#PostExertionalMalaise #PEM1/
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It's 9-year anniversary of this paper of mine. It could be useful if somebody feels coerced into doing graded activity or exercise programmes; also to counter claims that the #PACEtrial showed graded activity programs are safe.
https://journals.sagepub.com/doi/full/10.1177/1359105317697323
#MEcfs #CFS #MyalgicE #CBT #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs