#postcovid — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #postcovid, aggregated by home.social.
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'Nieuw onderzoekscentrum long covid zoekt steun bij publieke en private investeerders'
"Er komt een nationaal Research & Innovation Center voor long covid en andere post-acute infectieuze syndromen (PAIS). De Stichting Long Covid heeft het initiatief genomen voor een onafhankelijke stichting"
"De Stichting Long Covid heeft aan zeven wetenschappers financiering toegekend. Het gaat om Jeroen den Dunnen, Brent Appelman en Michele van Vugt van Amsterdam UMC, Rob Wüst van de Vrije Universiteit Amsterdam, Niels Eijkelkamp van UMC Utrecht en Melvin Lafeber en Sandra Hoeboer van Erasmus MC. Immunoloog Jeroen den Dunnen is aangesteld als wetenschappelijk onderzoeksleider. De onderzoekers kunnen direct van start."
"Zodra onderzoek aanknopingspunten voor een mogelijke behandeling oplevert, wil het centrum deze zo snel mogelijk in klinische studies verder onderzoeken.
De stichting werkt nu aan de opbouw van het centrum en aan een fysieke basis. Het streven is om dit voor het einde van 2026 duidelijk te hebben."
https://www.skipr.nl/nieuws/onderzoekscentrum-voor-long-covid/
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'Nieuw onderzoekscentrum postcovid: ‘Als we nu opgeven, gaat alle kennis verloren’
"De Stichting Long Covid […] heeft alvast aan zeven wetenschappers uit Amsterdam, Rotterdam en Utrecht een structureel budget toegekend van 100 duizend euro per jaar. Als de financiën dat toelaten, volgen er meer. Daarmee blijven ze behouden voor het onderzoeksveld en kunnen ze vernieuwend vrijdagmiddagonderzoek doen."
"Ze vertrouwt erop dat die subsidie er uiteindelijk komt, nu steeds duidelijker wordt hoe groot de maatschappelijke gevolgen zijn van postcovid. Dit voorjaar becijferde de Oeso, de organisatie van 38 welvarende industrielanden, dat postcovid de lidstaten de komende tien jaar tot 135 miljard per jaar kan gaan kosten."
"de voornaamste opdracht voor de komende jaren, vertelt hij: die subgroepen onderscheiden en bestaande medicijnen vinden die alleen bij die groep passen. Of andersom: nieuwe behandelingen testen en van de patiënten bij wie de medicijnen aanslaan uitzoeken wat hen onderling bindt."
Zonder paywall:
https://archive.ph/tyjP0 -
From Germany 🇩🇪
Additional effects of group training and online exercise to a 12-week online pacing and education module on health-related quality of life in adult patients with post COVID-19: a randomized controlled trial
https://link.springer.com/article/10.1007/s11332-026-01886-4
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers -
From Germany 🇩🇪
Impact of immunoadsorption on autoantibodies and physical performance in post-COVID patients: a prospective exploratory study of 18 participants
https://link.springer.com/article/10.1007/s15010-026-02914-8
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers -
Healthcare utilisation and cost among individuals with Long COVID in England and Wales: potential value of specialised post-COVID services
https://journals.sagepub.com/doi/10.1177/01410768261476537
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers -
From Germany 🇩🇪
Peripheral metabolic signatures in patients with neuropsychiatric long COVID syndrome
https://www.medrxiv.org/content/10.64898/2026.08.07.26359942v1
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers -
From Saudi Arabia 🇸🇦
Postural control and trunk mobility impairments in adults with long COVID: A cross-sectional study using computerized posturography and clinical biomechanical tools
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0354593
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers -
From Canada 🇨🇦
Identifying EEG biomarkers of fatigue and brain fog in long COVID: insights from rest and movement-related brain activity
https://www.jocn-journal.com/article/S0967-5868(26)00381-4/abstract
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC -
From the US 🇺🇸
Multiomic and Spatial Profiling of Colorectal Tissue Reveals Viral Persistence and Immune Dysregulation in Long COVID
https://www.biorxiv.org/content/10.64898/2026.08.07.743616v1
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers -
VIPER aims to fast track Long COVID biomarkers. Here's how it works - by David Tuller
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC -
#Freundschaft bei chronischer Erkrankung ist für beide Seiten mit Herausforderungen verbunden.
Für alle, die mit #MECFS , #postCovid , #longCovid , #PostVac und dem #PAIVS Spektrum zu tun haben, gibt es hier ein paar Anregungen von #EmptyStands 💙
https://www.instagram.com/p/DXFCCnfiNVT/?igsh=MWJraG9xbGhzODExcA==
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From Germany 🇩🇪
Subclinical neurovascular and immune correlates of post-COVID-19 syndrome detected by retinal imaging
https://www.sciencedirect.com/science/article/pii/S2666354626001481
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC -
From Germany 🇩🇪
The Mammillary Body-Fornix Gate in Long COVID An exploratory structural and diffusion MRI study of tremor-like symptoms, internal vibrations, and neuromuscular fatigue
https://www.medrxiv.org/content/10.64898/2026.07.31.26359395v1
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC -
From Canada
Haptoglobin Phenotypes Stratify Post-Exertional Cognitive Dysfunction Associated with Altered Cerebral Oxygenation and Metabolic Signatures in Long COVID
https://www.mdpi.com/1422-0067/27/15/7000
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC -
RE: https://mastodon.social/@NichtGenesen/117089430124859888
#DieNeueNorm , #FrankfurterRundschau & #TheGlobalDisabilityNewsNetwork suchen
Berichte von #Eltern medizinisch komplex erkrankter Kinder (z.B. #EDS #MECFS #LongCovid #PostCovid , seltenen Schmerzsyndromen u.a.), die fälschlicherweise verdächtigt werden, ihr Kind absichtlich krank zu machen („Münchausen by Proxy“).Mehr Infos auf der Website (s.u.), bei Fragen:
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Woke up at 04:30 to go to the bathroom. Vision is a blur of lights, eyedrops are essential right now if i want to see anything. Fuck #postcovid eyeproblems
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#postcovid #mecfs
Gerichtlicher Gutachter wegen Erstellung von Falschgutachten bei den oben genannten Krankheiten verklagt.
anwalt.de/rechtstipps/po... -
It’s not your fault that the rules have changed for businesses and banks because of Covid. It IS your fault if you didn’t adjust accordingly. And many didn’t. Some thoughts on #smallbusiness #banking: https://www.martinbihl.com/business-thinking/small-business-banking #banks #business #postCovid
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A year ago, I tried to walk this mountain lake trail but couldn’t finish due to LongCOVID. Last weekend, with a dear friend, I finally completed the whole route. 🥾🏔️
So happy, and very grateful to my wonderfully patient friend for organising everything, including plenty of breaks at beautiful spots, good food and enough water. ❤️@longcovid
#LongCovid #PostCovid #NietHersteld #PAIS #MentalHealth #WellBeing #HealthCare #Health -
Woke up this morning and damn #postcovid "crustiness" has started latching on to my lower right eyelid again. Have to rub it off every time or else it gets worse and worse and eventually i have to pry my eyelids open in the morning...
The problem is that if something (that feels like small shards of broken glass cutting into my eyes) gets lose and i don't remove it so it falls into the eye, i'm in for 1-2 hours of annoying crap in my eye and i have to keep the eye closed so whatever it is dissolves.
Also, eyedrops are getting expensive, basically €15 per bottle for distilled water with some minerals in it.
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Immunotherapies for postural orthostatic tachycardia syndrome, other common autonomic disorders, and Long COVID: current state and future direction by Blitshteyn et al
Screenshot from Science for ME weekly update
#LongCovid #POTS @longcovid @pots #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome
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The Burden of Long-COVID-19 Among Pediatric Subjects: A Systematic Review and Meta-Analysis
https://www.mdpi.com/2077-0383/15/14/5597
Screenshot from Science for ME weekly update
#LongCovid #LongCovidKids #LCKids #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
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VSL#3® supplementation improves fatigue in long COVID: results from the DELong#3 randomized placebo-controlled trial
"the change in [Chalder Fatigue Scale] score was greater in the VSL#3® group compared to placebo"
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NIH (USA): New curriculum empowers future healthcare providers to recognize and treat Long COVID
A new online curriculum provides free #LongCOVID education for healthcare providers.
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Long COVID The Answers: Biological evidence for #LongCOVID, post-exertional malaise (Part I)
https://youtu.be/3IFHSPlFY6E?si=qA6trWOZLuQlCapQ
Dr Funmi Okunola interviews Profs Rob Wüst & Mark Faghy about their work. Duration: 33 minutes. Part 1 of a 2-part podcast special.
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Large study by UK researchers (83% of participants were from the UK)
Long COVID affects working memory: assessment using a single rapid online test
https://www.frontiersin.org/journals/human-neuroscience/articles/10.3389/fnhum.2026.1881458/full
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
#COVIDBrain #NeuroPASC @[email protected] #novid #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 -
Long COVID symptom profiles, workforce participation, and working hours among adults in England: a population-based cohort study
https://www.sciencedirect.com/science/article/pii/S2666776226001821
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
@[email protected] #novid -
From the UK
Integrated care pathway in individuals with Long COVID: STIMULATE-ICP, a cluster-randomized, phase 3 trial
https://www.nature.com/articles/s41591-026-04552-x
Another rehab trial with poor results.
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers