#postcovid — Public Fediverse posts

𝗠𝗲𝗻𝘀𝗲𝗻 𝗺𝗲𝘁 𝗽𝗼𝘀𝘁𝗰𝗼𝘃𝗶𝗱 𝘃𝗼𝗲𝗹𝗲𝗻 𝘇𝗶𝗰𝗵 𝗺𝗮𝘀𝘀𝗮𝗮𝗹 𝗶𝗻 𝗱𝗲 𝘀𝘁𝗲𝗲𝗸 𝗴𝗲𝗹𝗮𝘁𝗲𝗻: '𝗣𝗼𝗹𝗶𝘁𝗶𝗲𝗸 𝗹𝗮𝗮𝘁 𝗼𝗻𝘀 𝗮𝗮𝗻 𝗼𝗻𝘀 𝗹𝗼𝘁 𝗼𝘃𝗲𝗿'

Ze voelen zich in de steek gelaten en vergeten, de naar schatting honderdduizenden postcovidpatiënten in Nederland. En ze voelen zich vooral niet serieus genomen door de politiek, blijkt uit een peiling van het RTL Nieuwspanel. 96...

https://www.rtl.nl/nieuws/binnenland/artikel/5649003/corona-post-long-covid-onderzoek-enquete-politiek-peiling-panel

#Postcovid #Politiek #SteekGelaten

From Germany 🇩🇪

Registered interventional trials fail to cover patient-prioritised treatments in Post-COVID condition (PCC)

https://www.researchsquare.com/article/rs-10851936/v1

https://s4me.info/threads/registered-interventional-trials-fail-to-cover-patient-prioritised-treatments-in-post-covid-condition-pcc-2026-gabriel-et-al.52296/

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #PostExertionalMalaise

From Germany 🇩🇪

Registered interventional trials fail to cover patient-prioritised treatments in Post-COVID condition (PCC)

https://www.researchsquare.com/article/rs-10851936/v1

https://s4me.info/threads/registered-interventional-trials-fail-to-cover-patient-prioritised-treatments-in-post-covid-condition-pcc-2026-gabriel-et-al.52296/

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #PostExertionalMalaise

From Germany 🇩🇪

Registered interventional trials fail to cover patient-prioritised treatments in Post-COVID condition (PCC)

https://www.researchsquare.com/article/rs-10851936/v1

https://s4me.info/threads/registered-interventional-trials-fail-to-cover-patient-prioritised-treatments-in-post-covid-condition-pcc-2026-gabriel-et-al.52296/

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #PostExertionalMalaise

From Germany 🇩🇪

Registered interventional trials fail to cover patient-prioritised treatments in Post-COVID condition (PCC)

https://www.researchsquare.com/article/rs-10851936/v1

https://s4me.info/threads/registered-interventional-trials-fail-to-cover-patient-prioritised-treatments-in-post-covid-condition-pcc-2026-gabriel-et-al.52296/

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #PostExertionalMalaise

From Germany 🇩🇪

Registered interventional trials fail to cover patient-prioritised treatments in Post-COVID condition (PCC)

https://www.researchsquare.com/article/rs-10851936/v1

https://s4me.info/threads/registered-interventional-trials-fail-to-cover-patient-prioritised-treatments-in-post-covid-condition-pcc-2026-gabriel-et-al.52296/

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #PostExertionalMalaise

A new U.S. clinical trials program called PROBE-PASC was announced at the conference in Amsterdam

https://thesicktimes.org/2026/09/01/department-of-defense-funds-8-million-grant-for-long-covid-trials/

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

A new U.S. clinical trials program called PROBE-PASC was announced at the conference in Amsterdam

https://thesicktimes.org/2026/09/01/department-of-defense-funds-8-million-grant-for-long-covid-trials/

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

A new U.S. clinical trials program called PROBE-PASC was announced at the conference in Amsterdam

https://thesicktimes.org/2026/09/01/department-of-defense-funds-8-million-grant-for-long-covid-trials/

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

A new U.S. clinical trials program called PROBE-PASC was announced at the conference in Amsterdam

https://thesicktimes.org/2026/09/01/department-of-defense-funds-8-million-grant-for-long-covid-trials/

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

A new U.S. clinical trials program called PROBE-PASC was announced at the conference in Amsterdam

https://thesicktimes.org/2026/09/01/department-of-defense-funds-8-million-grant-for-long-covid-trials/

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

From Germany 🇩🇪

Impaired Auditory Sensory Gating as a Neurophysiological Correlate of Cognitive Fatigue in Long COVID

https://psycnet.apa.org/fulltext/2028-18753-001.html

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

From Germany 🇩🇪

Impaired Auditory Sensory Gating as a Neurophysiological Correlate of Cognitive Fatigue in Long COVID

https://psycnet.apa.org/fulltext/2028-18753-001.html

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

From Germany 🇩🇪

Impaired Auditory Sensory Gating as a Neurophysiological Correlate of Cognitive Fatigue in Long COVID

https://psycnet.apa.org/fulltext/2028-18753-001.html

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

From Germany 🇩🇪

Impaired Auditory Sensory Gating as a Neurophysiological Correlate of Cognitive Fatigue in Long COVID

https://psycnet.apa.org/fulltext/2028-18753-001.html

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

From Germany 🇩🇪

Impaired Auditory Sensory Gating as a Neurophysiological Correlate of Cognitive Fatigue in Long COVID

https://psycnet.apa.org/fulltext/2028-18753-001.html

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

Hier muss dringend etwas unternommen werden. Betroffene werden zur Teilnahme an Rehabilitationsmaßnahmen gezwungen, die potenziell ihren Gesundheitszustand verschlechtern.

Die Petition Keine Reha-Pflicht bei ME/CFS – Rehabilitation muss freiwillig sein ist mir wichtig! ✍️ Bitte unterschreibe auch:

https://openpetition.de/qfwjf

#mecfs #longcovid #postcovid

Hier muss dringend etwas unternommen werden. Betroffene werden zur Teilnahme an Rehabilitationsmaßnahmen gezwungen, die potenziell ihren Gesundheitszustand verschlechtern.

Die Petition Keine Reha-Pflicht bei ME/CFS – Rehabilitation muss freiwillig sein ist mir wichtig! ✍️ Bitte unterschreibe auch:

https://openpetition.de/qfwjf

#mecfs #longcovid #postcovid

Hier muss dringend etwas unternommen werden. Betroffene werden zur Teilnahme an Rehabilitationsmaßnahmen gezwungen, die potenziell ihren Gesundheitszustand verschlechtern.

Die Petition Keine Reha-Pflicht bei ME/CFS – Rehabilitation muss freiwillig sein ist mir wichtig! ✍️ Bitte unterschreibe auch:

https://openpetition.de/qfwjf

#mecfs #longcovid #postcovid

Hier muss dringend etwas unternommen werden. Betroffene werden zur Teilnahme an Rehabilitationsmaßnahmen gezwungen, die potenziell ihren Gesundheitszustand verschlechtern.

Die Petition Keine Reha-Pflicht bei ME/CFS – Rehabilitation muss freiwillig sein ist mir wichtig! ✍️ Bitte unterschreibe auch:

https://openpetition.de/qfwjf

#mecfs #longcovid #postcovid

Hier muss dringend etwas unternommen werden. Betroffene werden zur Teilnahme an Rehabilitationsmaßnahmen gezwungen, die potenziell ihren Gesundheitszustand verschlechtern.

Die Petition Keine Reha-Pflicht bei ME/CFS – Rehabilitation muss freiwillig sein ist mir wichtig! ✍️ Bitte unterschreibe auch:

https://openpetition.de/qfwjf

#mecfs #longcovid #postcovid

“For Many Americans, Covid Is Still a Chronic, Disabling Disease. These Scientists Are Working Tirelessly to Bring Them Relief” (Smithsonian magazine) by Mike Mariani

https://www.smithsonianmag.com/innovation/many-americans-covid-still-chronic-disabling-disease-scientists-working-tirelessly-bring-them-relief-180989290/

Feature article on research into Long Covid.

#LongCovid #PASC #PostCovid #PostCovid19 @longcovid

“For Many Americans, Covid Is Still a Chronic, Disabling Disease. These Scientists Are Working Tirelessly to Bring Them Relief” (Smithsonian magazine) by Mike Mariani

https://www.smithsonianmag.com/innovation/many-americans-covid-still-chronic-disabling-disease-scientists-working-tirelessly-bring-them-relief-180989290/

Feature article on research into Long Covid.

#LongCovid #PASC #PostCovid #PostCovid19 @longcovid

“For Many Americans, Covid Is Still a Chronic, Disabling Disease. These Scientists Are Working Tirelessly to Bring Them Relief” (Smithsonian magazine) by Mike Mariani

https://www.smithsonianmag.com/innovation/many-americans-covid-still-chronic-disabling-disease-scientists-working-tirelessly-bring-them-relief-180989290/

Feature article on research into Long Covid.

#LongCovid #PASC #PostCovid #PostCovid19 @longcovid

“For Many Americans, Covid Is Still a Chronic, Disabling Disease. These Scientists Are Working Tirelessly to Bring Them Relief” (Smithsonian magazine) by Mike Mariani

https://www.smithsonianmag.com/innovation/many-americans-covid-still-chronic-disabling-disease-scientists-working-tirelessly-bring-them-relief-180989290/

Feature article on research into Long Covid.

#LongCovid #PASC #PostCovid #PostCovid19 @longcovid

“For Many Americans, Covid Is Still a Chronic, Disabling Disease. These Scientists Are Working Tirelessly to Bring Them Relief” (Smithsonian magazine) by Mike Mariani

https://www.smithsonianmag.com/innovation/many-americans-covid-still-chronic-disabling-disease-scientists-working-tirelessly-bring-them-relief-180989290/

Feature article on research into Long Covid.

#LongCovid #PASC #PostCovid #PostCovid19 @longcovid

eNOS Uncoupling, Shear-Stress Tolerance, and the Two-Threshold Model of Post-Exertional Malaise in Long COVID

https://onlinelibrary.wiley.com/doi/10.1111/micc.70082

Discussion where lead author takes part:
https://s4me.info/threads/shear-stress-tolerance-threshold-enos-uncoupling-and-the-two-threshold-model-of-pem-in-lc-a-mechanistic-hypothesis-2026-karipidis-et-al.49777/

Screenshot from latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
#PostExertionalMalaise #PEM

eNOS Uncoupling, Shear-Stress Tolerance, and the Two-Threshold Model of Post-Exertional Malaise in Long COVID

https://onlinelibrary.wiley.com/doi/10.1111/micc.70082

Discussion where lead author takes part:
https://s4me.info/threads/shear-stress-tolerance-threshold-enos-uncoupling-and-the-two-threshold-model-of-pem-in-lc-a-mechanistic-hypothesis-2026-karipidis-et-al.49777/

Screenshot from latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
#PostExertionalMalaise #PEM

eNOS Uncoupling, Shear-Stress Tolerance, and the Two-Threshold Model of Post-Exertional Malaise in Long COVID

https://onlinelibrary.wiley.com/doi/10.1111/micc.70082

Discussion where lead author takes part:
https://s4me.info/threads/shear-stress-tolerance-threshold-enos-uncoupling-and-the-two-threshold-model-of-pem-in-lc-a-mechanistic-hypothesis-2026-karipidis-et-al.49777/

Screenshot from latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
#PostExertionalMalaise #PEM

eNOS Uncoupling, Shear-Stress Tolerance, and the Two-Threshold Model of Post-Exertional Malaise in Long COVID

https://onlinelibrary.wiley.com/doi/10.1111/micc.70082

Discussion where lead author takes part:
https://s4me.info/threads/shear-stress-tolerance-threshold-enos-uncoupling-and-the-two-threshold-model-of-pem-in-lc-a-mechanistic-hypothesis-2026-karipidis-et-al.49777/

Screenshot from latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
#PostExertionalMalaise #PEM

eNOS Uncoupling, Shear-Stress Tolerance, and the Two-Threshold Model of Post-Exertional Malaise in Long COVID

https://onlinelibrary.wiley.com/doi/10.1111/micc.70082

Discussion where lead author takes part:
https://s4me.info/threads/shear-stress-tolerance-threshold-enos-uncoupling-and-the-two-threshold-model-of-pem-in-lc-a-mechanistic-hypothesis-2026-karipidis-et-al.49777/

Screenshot from latest Science for ME weekly update

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
#PostExertionalMalaise #PEM

NIH (USA): New curriculum empowers future healthcare providers to recognize and treat Long COVID

https://recovercovid.org/news/new-curriculum-empowers-future-healthcare-providers-recognize-and-treat-long-covid

A new online curriculum provides free #LongCOVID education for healthcare providers.

#MedMastodon #CME #CPD #PostCovid @longcovid #PASC

Speaking Your Body’s Truth: Talking to Providers About Post-Exertional Symptom Exacerbation

https://onelifelivedwell.substack.com/p/speaking-your-bodys-truth-talking

Screenshot from AMMES May 2026 Newsletter

#MEcfs @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #PEM #PESE #PwME #ME #MyalgicE
@mecfs #PosturalOrthostaticTachycardiaSyndrome #POTS @pots

(US)
"Medicaid Work Requirements Will Devastate People With Invisible Disabilities — ME/CFS & #longCOVID patients must qualify as 'medically frail'" (October 7 2025) by Laurie Jones

https://www.medpagetoday.com/opinion/second-opinions/117839

3 min read

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#PASC #PwLC #postcovid #POTS @pots #postcovid19 #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

By @RTHM_Health

"A new study suggests that exercise doesn’t clear microclots in people with Long COVID—it just fragments them into smaller ones. These smaller clots are linked to increased inflammation and impaired oxygen transport, which may help explain post-exertional malaise (PEM) and post-exertional symptom exacerbation (PESE)—a worsening of symptoms after even mild physical or mental effort."

"Researchers observed these microclot and inflammatory changes even after submaximal exertion, highlighting the need for caution when recommending exercise-based therapies."

Want more research breakdowns like this? Sign up for our email list at https://linktr.ee/rthm_health

🔗 DOI: https://doi.org/10.21203/rs.3.rs-6717727/v1

#LongCOVID #ChronicFatigue #pwLC #PostCOVID #rthm_health #LongCOVIDResearch #PESE #PEM #IACC #COVID19 #Microclots @auscovid19

Die größte #PostCovid-Studie Deutschlands zeigt: Zwei Drittel der Betroffenen erfahren auch Monate nach der #Infektion keine Besserung. Studienleiter Prof. Dr. Winfried Kern erläutert im #Exklusiv-Interview mit @martinruecker die wichtigsten Erkenntnisse: https://www.riffreporter.de/de/wissen/long-covid-epiloc-studie-langzeitfolgen-corona-mecfs-forschung-interview-winfried-kern

( #Cambridge, MA, USA)
Research subjects sought for Lyme & Long COVID Research Study at MIT

https://talresearchgroup.mit.edu/mitmaestro

From the Massachusetts ME/CFS & FM Association
https://massmecfs.org/newsletters/912-2024-12-december-newsletter

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain
#Lyme #ChronicLyme @lyme

New UK study:

Effect of a Personalised Pacing and Active Rest Rehabilitation Programme on Post-Exertional Symptom Exacerbation and Health Status in Long COVID (PACELOC).

https://www.preprints.org/manuscript/202412.0230/v1

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers
#PESE #PEM @mecfs #mecfs

Congratulations to Mark Vink on his new paper 👏

Using Exercise Therapy for #LongCOVID Without Screening for Post-Exertional Symptom Exacerbation Potentially Increases the Risks for Patients Who Suffer from it: A Reanalysis of 3 Systematic Reviews

https://crimsonpublishers.com/rism/pdf/RISM.000748.pdf

Hashtags:
@longcovid
#PwLC #postcovid #postcovid19 #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC
@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2
@auscovid19
#PESE #PostExertionalMalaise #PEM

#Massachusetts

2 studies still recruiting

https://talresearchgroup.mit.edu/mitmaestro

https://www.omf.ngo/mecfs-sleep-disturbance-study/

From the MassME newsletter
https://massmecfs.org/newsletters/906-2024-10-october-newsletter

#ChronicLyme #Lyme @lyme #MEcfs #CFS #PwME @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome @longcovid
#LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC #COVIDBrain

Vocational rehabilitation for Long Covid: a roadmap for recovery

https://t.co/oqCQPoxwt7

"Long Covid and similar energy-limiting illnesses cause a range of health problems which result in long-term sickness absence and long-term unemployment in an era of workforce shortage."

Hashtags:
@longcovid
#LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC #COVIDBrain
#OccupationalMedicine #OccupationalHealth #Spoonie @spoonies
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