#postcovid — Public Fediverse posts

QUESTIONS

1
My main question is for tips on how to manage orthostatic hypotension.
There is a lot of discussion about what to concentrate on during training with hypotension versus hypertension, but the first question is probably: Should I even treat this as a hypotension and concentrate on getting my blood pressure up or should I rather concentrate on better regulation of blood pressure, if that is even possible. For example for burnout I learned that to reduce stress the goal is not to get the heart rate down, but to increase the heart rate variability (HRV). Is there such a thing as training for blood pressure variability/flexibility?

2
Next question is for tips on how to manage burnout and PAIS if and when I get both at the same time.
My burnout management involves lots of activities ranging from light intensity long walks to sprints and high intensity interval training and strength training as well as lots of meditation, breathing exercises. I try to go for a walk for at least one hour after every meal, because (at least during a sick-leave) meals cause the most and longest lasting stress if I don't walk it out. That's why I try to eat only once a day at noon - eating in the evening can ruin my sleep.
My management during an infection that feels like the start of a PAIS involves lots of sleeping without any circadian rhythm detectable and very little activity.
My management of PAIS involves pacing which I'm not good at yet though. It's really hard to know what is too much and what is too little. But I guess I can't be very wrong with just lots of slow walking without too much uphill parts.

3
Now if you have any other general tips on managing any of the mentioned ailments feel free to let me know. I didn't mention everything I know already, but feel free to also mention things you assume I already know.

#FollowerPower #PleaseHelp #AskFedi #question #burnout #pais #PostCovid #LongCovid #MECFS #FatigueSyndrome #fatigue #orthostasis #OrthostaticHypotension #OrthostaticDysregulation #pacing #HRV #BloodPressure #BloodPressureManagement #syncopation #BurnoutManagement #PAISManagement

QUESTIONS

1
My main question is for tips on how to manage orthostatic hypotension.
There is a lot of discussion about what to concentrate on during training with hypotension versus hypertension, but the first question is probably: Should I even treat this as a hypotension and concentrate on getting my blood pressure up or should I rather concentrate on better regulation of blood pressure, if that is even possible. For example for burnout I learned that to reduce stress the goal is not to get the heart rate down, but to increase the heart rate variability (HRV). Is there such a thing as training for blood pressure variability/flexibility?

2
Next question is for tips on how to manage burnout and PAIS if and when I get both at the same time.
My burnout management involves lots of activities ranging from light intensity long walks to sprints and high intensity interval training and strength training as well as lots of meditation, breathing exercises. I try to go for a walk for at least one hour after every meal, because (at least during a sick-leave) meals cause the most and longest lasting stress if I don't walk it out. That's why I try to eat only once a day at noon - eating in the evening can ruin my sleep.
My management during an infection that feels like the start of a PAIS involves lots of sleeping without any circadian rhythm detectable and very little activity.
My management of PAIS involves pacing which I'm not good at yet though. It's really hard to know what is too much and what is too little. But I guess I can't be very wrong with just lots of slow walking without too much uphill parts.

3
Now if you have any other general tips on managing any of the mentioned ailments feel free to let me know. I didn't mention everything I know already, but feel free to also mention things you assume I already know.

#FollowerPower #PleaseHelp #AskFedi #question #burnout #pais #PostCovid #LongCovid #MECFS #FatigueSyndrome #fatigue #orthostasis #OrthostaticHypotension #OrthostaticDysregulation #pacing #HRV #BloodPressure #BloodPressureManagement #syncopation #BurnoutManagement #PAISManagement

QUESTIONS

1
My main question is for tips on how to manage orthostatic hypotension.
There is a lot of discussion about what to concentrate on during training with hypotension versus hypertension, but the first question is probably: Should I even treat this as a hypotension and concentrate on getting my blood pressure up or should I rather concentrate on better regulation of blood pressure, if that is even possible. For example for burnout I learned that to reduce stress the goal is not to get the heart rate down, but to increase the heart rate variability (HRV). Is there such a thing as training for blood pressure variability/flexibility?

2
Next question is for tips on how to manage burnout and PAIS if and when I get both at the same time.
My burnout management involves lots of activities ranging from light intensity long walks to sprints and high intensity interval training and strength training as well as lots of meditation, breathing exercises. I try to go for a walk for at least one hour after every meal, because (at least during a sick-leave) meals cause the most and longest lasting stress if I don't walk it out. That's why I try to eat only once a day at noon - eating in the evening can ruin my sleep.
My management during an infection that feels like the start of a PAIS involves lots of sleeping without any circadian rhythm detectable and very little activity.
My management of PAIS involves pacing which I'm not good at yet though. It's really hard to know what is too much and what is too little. But I guess I can't be very wrong with just lots of slow walking without too much uphill parts.

3
Now if you have any other general tips on managing any of the mentioned ailments feel free to let me know. I didn't mention everything I know already, but feel free to also mention things you assume I already know.

#FollowerPower #PleaseHelp #AskFedi #question #burnout #pais #PostCovid #LongCovid #MECFS #FatigueSyndrome #fatigue #orthostasis #OrthostaticHypotension #OrthostaticDysregulation #pacing #HRV #BloodPressure #BloodPressureManagement #syncopation #BurnoutManagement #PAISManagement

QUESTIONS

1
My main question is for tips on how to manage orthostatic hypotension.
There is a lot of discussion about what to concentrate on during training with hypotension versus hypertension, but the first question is probably: Should I even treat this as a hypotension and concentrate on getting my blood pressure up or should I rather concentrate on better regulation of blood pressure, if that is even possible. For example for burnout I learned that to reduce stress the goal is not to get the heart rate down, but to increase the heart rate variability (HRV). Is there such a thing as training for blood pressure variability/flexibility?

2
Next question is for tips on how to manage burnout and PAIS if and when I get both at the same time.
My burnout management involves lots of activities ranging from light intensity long walks to sprints and high intensity interval training and strength training as well as lots of meditation, breathing exercises. I try to go for a walk for at least one hour after every meal, because (at least during a sick-leave) meals cause the most and longest lasting stress if I don't walk it out. That's why I try to eat only once a day at noon - eating in the evening can ruin my sleep.
My management during an infection that feels like the start of a PAIS involves lots of sleeping without any circadian rhythm detectable and very little activity.
My management of PAIS involves pacing which I'm not good at yet though. It's really hard to know what is too much and what is too little. But I guess I can't be very wrong with just lots of slow walking without too much uphill parts.

3
Now if you have any other general tips on managing any of the mentioned ailments feel free to let me know. I didn't mention everything I know already, but feel free to also mention things you assume I already know.

#FollowerPower #PleaseHelp #AskFedi #question #burnout #pais #PostCovid #LongCovid #MECFS #FatigueSyndrome #fatigue #orthostasis #OrthostaticHypotension #OrthostaticDysregulation #pacing #HRV #BloodPressure #BloodPressureManagement #syncopation #BurnoutManagement #PAISManagement

I have questions to people who have knowledge about Burnout, PAIS (post-acute infection syndromes, like Post/Long-Covid, ME/CFS, etc...), orthostatic hypotension, blood pressure management, fitness, pacing, etc.

This will be a long post and you don't have to read all of it. Just look for the paragraph with the headline "questions" in the first reply.
I'm mostly writing so much to get my own thoughts in order.

NOTICE

I'm asking this here in the Fediverse because this is the best place to reach actual people who know stuff. Before the ecocide slop boom I'd have started with internet research, but that's no real option anymore. If an account answers me that seems like AI it will be blocked. If you answer me with what you just found on random internet sites, you will be blocked. Everybody else: Thank you! Btw you don't have to be a formal expert on any of the subject matters. Anecdotal evidence by people affected or relatives is highly valuable too.

BACKGROUND

I'm prone to both burnout and PAIS (undiagnosed, because the health system is inadequate) but haven't yet had both of them at the same time. This might be different now. My burnout is definitely back and I'm having an infection that feels a lot like it will turn into a PAIS. I've had a PAIS two times both starting in MAy of 2024 and 2025 and lasting for 3 months each. So this would be the right time to get it again. Since the last PAIS I've had two infections though that felt like the start of PAIS, but I probably stopped them with lots of medication, supplements and other methods.
My last sick-leave was due to my first burnout for 6 weeks (obviously not long enough).
I'm on sick-leave again since Wednesday because the burnout is back - the infection broke out one day later, but probably already made my body weaker before, playing a role in the burnout-relapse.

MY SYMPTOMS

For burnout my main symptoms are: tinnitus, tensions in the ear, jaw & neck area, headaches, bad sleep, fatigue, susceptibility to stress, low psychic resilience.
For the PAIS its fatigue, bad sleep, brain fog, bad performance in all systems (fitness, cognition, social, etc..), malaise, some symptoms of a cold or allergy (constant tingle in my nose, running nose, sometimes coughing and sneezing, ...) and bad memory that lasts longer than everything else (years instead of months).

SPECIAL SYMPTOM: ORTHOSTATIC HYPOTENSION

I've had bad orthostatic hypotension as a child with regular syncopations. It has gotten better (rarer) and I've learned how to deal with it, at least a bit. I do still have it whenever I have an illness that makes me bedridden, like infections and depressions.
There are basically 4 levels:
1 (usually without positional change): I feel that something is wrong with my orthostasis.
2 (usually with some positional change, like from lying to sitting): I feel dizzy and weak, like my brain is not supplied with blood as it should be, but no signs of unconsciousness.
3 (usually when changing from lying to standing): I feel my conciseness fading, I get tunnel vision, my legs let up and I have to hold tight to make sure I don't fall. I get the feeling of a slight dissociation, but I'm still there enough to control it and it slowly fades away giving me a warm comfortable feeling when the blood flows back to everywhere where it's needed.
4. (sometimes combined with 3 and me not controlling it well, sometimes immediately after standing up too quick after lying for a while): I loose consciousness and fall down, sometimes banging my head badly. I haven't had this level since my teenage years and my consciousness always came back immediately when I'm on the ground.
Now I've learned that orthostatic hypotension is both a symptom and a risk factor for PAIS and since I've had it forever I think it might be a good idea to learn to manage it better as to not get PAIS again or at least less frequent.

#FollowerPower #PleaseHelp #AskFedi #question #burnout #pais #PostCovid #LongCovid #MECFS #FatigueSyndrome #fatigue #orthostasis #OrthostaticHypotension #OrthostaticDysregulation #pacing #HRV #BloodPressure #BloodPressureManagement #syncopation #BurnoutManagement #PAISManagement

I have questions to people who have knowledge about Burnout, PAIS (post-acute infection syndromes, like Post/Long-Covid, ME/CFS, etc...), orthostatic hypotension, blood pressure management, fitness, pacing, etc.

This will be a long post and you don't have to read all of it. Just look for the paragraph with the headline "questions" in the first reply.
I'm mostly writing so much to get my own thoughts in order.

NOTICE

I'm asking this here in the Fediverse because this is the best place to reach actual people who know stuff. Before the ecocide slop boom I'd have started with internet research, but that's no real option anymore. If an account answers me that seems like AI it will be blocked. If you answer me with what you just found on random internet sites, you will be blocked. Everybody else: Thank you! Btw you don't have to be a formal expert on any of the subject matters. Anecdotal evidence by people affected or relatives is highly valuable too.

BACKGROUND

I'm prone to both burnout and PAIS (undiagnosed, because the health system is inadequate) but haven't yet had both of them at the same time. This might be different now. My burnout is definitely back and I'm having an infection that feels a lot like it will turn into a PAIS. I've had a PAIS two times both starting in MAy of 2024 and 2025 and lasting for 3 months each. So this would be the right time to get it again. Since the last PAIS I've had two infections though that felt like the start of PAIS, but I probably stopped them with lots of medication, supplements and other methods.
My last sick-leave was due to my first burnout for 6 weeks (obviously not long enough).
I'm on sick-leave again since Wednesday because the burnout is back - the infection broke out one day later, but probably already made my body weaker before, playing a role in the burnout-relapse.

MY SYMPTOMS

For burnout my main symptoms are: tinnitus, tensions in the ear, jaw & neck area, headaches, bad sleep, fatigue, susceptibility to stress, low psychic resilience.
For the PAIS its fatigue, bad sleep, brain fog, bad performance in all systems (fitness, cognition, social, etc..), malaise, some symptoms of a cold or allergy (constant tingle in my nose, running nose, sometimes coughing and sneezing, ...) and bad memory that lasts longer than everything else (years instead of months).

SPECIAL SYMPTOM: ORTHOSTATIC HYPOTENSION

I've had bad orthostatic hypotension as a child with regular syncopations. It has gotten better (rarer) and I've learned how to deal with it, at least a bit. I do still have it whenever I have an illness that makes me bedridden, like infections and depressions.
There are basically 4 levels:
1 (usually without positional change): I feel that something is wrong with my orthostasis.
2 (usually with some positional change, like from lying to sitting): I feel dizzy and weak, like my brain is not supplied with blood as it should be, but no signs of unconsciousness.
3 (usually when changing from lying to standing): I feel my conciseness fading, I get tunnel vision, my legs let up and I have to hold tight to make sure I don't fall. I get the feeling of a slight dissociation, but I'm still there enough to control it and it slowly fades away giving me a warm comfortable feeling when the blood flows back to everywhere where it's needed.
4. (sometimes combined with 3 and me not controlling it well, sometimes immediately after standing up too quick after lying for a while): I loose consciousness and fall down, sometimes banging my head badly. I haven't had this level since my teenage years and my consciousness always came back immediately when I'm on the ground.
Now I've learned that orthostatic hypotension is both a symptom and a risk factor for PAIS and since I've had it forever I think it might be a good idea to learn to manage it better as to not get PAIS again or at least less frequent.

#FollowerPower #PleaseHelp #AskFedi #question #burnout #pais #PostCovid #LongCovid #MECFS #FatigueSyndrome #fatigue #orthostasis #OrthostaticHypotension #OrthostaticDysregulation #pacing #HRV #BloodPressure #BloodPressureManagement #syncopation #BurnoutManagement #PAISManagement

I have questions to people who have knowledge about Burnout, PAIS (post-acute infection syndromes, like Post/Long-Covid, ME/CFS, etc...), orthostatic hypotension, blood pressure management, fitness, pacing, etc.

This will be a long post and you don't have to read all of it. Just look for the paragraph with the headline "questions" in the first reply.
I'm mostly writing so much to get my own thoughts in order.

NOTICE

I'm asking this here in the Fediverse because this is the best place to reach actual people who know stuff. Before the ecocide slop boom I'd have started with internet research, but that's no real option anymore. If an account answers me that seems like AI it will be blocked. If you answer me with what you just found on random internet sites, you will be blocked. Everybody else: Thank you! Btw you don't have to be a formal expert on any of the subject matters. Anecdotal evidence by people affected or relatives is highly valuable too.

BACKGROUND

I'm prone to both burnout and PAIS (undiagnosed, because the health system is inadequate) but haven't yet had both of them at the same time. This might be different now. My burnout is definitely back and I'm having an infection that feels a lot like it will turn into a PAIS. I've had a PAIS two times both starting in MAy of 2024 and 2025 and lasting for 3 months each. So this would be the right time to get it again. Since the last PAIS I've had two infections though that felt like the start of PAIS, but I probably stopped them with lots of medication, supplements and other methods.
My last sick-leave was due to my first burnout for 6 weeks (obviously not long enough).
I'm on sick-leave again since Wednesday because the burnout is back - the infection broke out one day later, but probably already made my body weaker before, playing a role in the burnout-relapse.

MY SYMPTOMS

For burnout my main symptoms are: tinnitus, tensions in the ear, jaw & neck area, headaches, bad sleep, fatigue, susceptibility to stress, low psychic resilience.
For the PAIS its fatigue, bad sleep, brain fog, bad performance in all systems (fitness, cognition, social, etc..), malaise, some symptoms of a cold or allergy (constant tingle in my nose, running nose, sometimes coughing and sneezing, ...) and bad memory that lasts longer than everything else (years instead of months).

SPECIAL SYMPTOM: ORTHOSTATIC HYPOTENSION

I've had bad orthostatic hypotension as a child with regular syncopations. It has gotten better (rarer) and I've learned how to deal with it, at least a bit. I do still have it whenever I have an illness that makes me bedridden, like infections and depressions.
There are basically 4 levels:
1 (usually without positional change): I feel that something is wrong with my orthostasis.
2 (usually with some positional change, like from lying to sitting): I feel dizzy and weak, like my brain is not supplied with blood as it should be, but no signs of unconsciousness.
3 (usually when changing from lying to standing): I feel my conciseness fading, I get tunnel vision, my legs let up and I have to hold tight to make sure I don't fall. I get the feeling of a slight dissociation, but I'm still there enough to control it and it slowly fades away giving me a warm comfortable feeling when the blood flows back to everywhere where it's needed.
4. (sometimes combined with 3 and me not controlling it well, sometimes immediately after standing up too quick after lying for a while): I loose consciousness and fall down, sometimes banging my head badly. I haven't had this level since my teenage years and my consciousness always came back immediately when I'm on the ground.
Now I've learned that orthostatic hypotension is both a symptom and a risk factor for PAIS and since I've had it forever I think it might be a good idea to learn to manage it better as to not get PAIS again or at least less frequent.

#FollowerPower #PleaseHelp #AskFedi #question #burnout #pais #PostCovid #LongCovid #MECFS #FatigueSyndrome #fatigue #orthostasis #OrthostaticHypotension #OrthostaticDysregulation #pacing #HRV #BloodPressure #BloodPressureManagement #syncopation #BurnoutManagement #PAISManagement

I have questions to people who have knowledge about Burnout, PAIS (post-acute infection syndromes, like Post/Long-Covid, ME/CFS, etc...), orthostatic hypotension, blood pressure management, fitness, pacing, etc.

This will be a long post and you don't have to read all of it. Just look for the paragraph with the headline "questions" in the first reply.
I'm mostly writing so much to get my own thoughts in order.

NOTICE

I'm asking this here in the Fediverse because this is the best place to reach actual people who know stuff. Before the ecocide slop boom I'd have started with internet research, but that's no real option anymore. If an account answers me that seems like AI it will be blocked. If you answer me with what you just found on random internet sites, you will be blocked. Everybody else: Thank you! Btw you don't have to be a formal expert on any of the subject matters. Anecdotal evidence by people affected or relatives is highly valuable too.

BACKGROUND

I'm prone to both burnout and PAIS (undiagnosed, because the health system is inadequate) but haven't yet had both of them at the same time. This might be different now. My burnout is definitely back and I'm having an infection that feels a lot like it will turn into a PAIS. I've had a PAIS two times both starting in MAy of 2024 and 2025 and lasting for 3 months each. So this would be the right time to get it again. Since the last PAIS I've had two infections though that felt like the start of PAIS, but I probably stopped them with lots of medication, supplements and other methods.
My last sick-leave was due to my first burnout for 6 weeks (obviously not long enough).
I'm on sick-leave again since Wednesday because the burnout is back - the infection broke out one day later, but probably already made my body weaker before, playing a role in the burnout-relapse.

MY SYMPTOMS

For burnout my main symptoms are: tinnitus, tensions in the ear, jaw & neck area, headaches, bad sleep, fatigue, susceptibility to stress, low psychic resilience.
For the PAIS its fatigue, bad sleep, brain fog, bad performance in all systems (fitness, cognition, social, etc..), malaise, some symptoms of a cold or allergy (constant tingle in my nose, running nose, sometimes coughing and sneezing, ...) and bad memory that lasts longer than everything else (years instead of months).

SPECIAL SYMPTOM: ORTHOSTATIC HYPOTENSION

I've had bad orthostatic hypotension as a child with regular syncopations. It has gotten better (rarer) and I've learned how to deal with it, at least a bit. I do still have it whenever I have an illness that makes me bedridden, like infections and depressions.
There are basically 4 levels:
1 (usually without positional change): I feel that something is wrong with my orthostasis.
2 (usually with some positional change, like from lying to sitting): I feel dizzy and weak, like my brain is not supplied with blood as it should be, but no signs of unconsciousness.
3 (usually when changing from lying to standing): I feel my conciseness fading, I get tunnel vision, my legs let up and I have to hold tight to make sure I don't fall. I get the feeling of a slight dissociation, but I'm still there enough to control it and it slowly fades away giving me a warm comfortable feeling when the blood flows back to everywhere where it's needed.
4. (sometimes combined with 3 and me not controlling it well, sometimes immediately after standing up too quick after lying for a while): I loose consciousness and fall down, sometimes banging my head badly. I haven't had this level since my teenage years and my consciousness always came back immediately when I'm on the ground.
Now I've learned that orthostatic hypotension is both a symptom and a risk factor for PAIS and since I've had it forever I think it might be a good idea to learn to manage it better as to not get PAIS again or at least less frequent.

#FollowerPower #PleaseHelp #AskFedi #question #burnout #pais #PostCovid #LongCovid #MECFS #FatigueSyndrome #fatigue #orthostasis #OrthostaticHypotension #OrthostaticDysregulation #pacing #HRV #BloodPressure #BloodPressureManagement #syncopation #BurnoutManagement #PAISManagement

From the Netherlands

Decreased functional connectivity in post-COVID syndrome patients with high neuroinflammatory activity

https://www.sciencedirect.com/science/article/pii/S1053811926002661

Screenshot from Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

From the Netherlands

Decreased functional connectivity in post-COVID syndrome patients with high neuroinflammatory activity

https://www.sciencedirect.com/science/article/pii/S1053811926002661

Screenshot from Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

From the Netherlands

Decreased functional connectivity in post-COVID syndrome patients with high neuroinflammatory activity

https://www.sciencedirect.com/science/article/pii/S1053811926002661

Screenshot from Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

From the Netherlands

Decreased functional connectivity in post-COVID syndrome patients with high neuroinflammatory activity

https://www.sciencedirect.com/science/article/pii/S1053811926002661

Screenshot from Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

From the Netherlands

Decreased functional connectivity in post-COVID syndrome patients with high neuroinflammatory activity

https://www.sciencedirect.com/science/article/pii/S1053811926002661

Screenshot from Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

Great to see first Latin American randomized clinical trial on #LongCOVID:

Use of Pyridostigmine [Mestinon] in Long COVID: Evidence for Hemodynamic Phenotype-guided Therapy

https://academic.oup.com/ajrccm/article/212/Supplement_1/aamag162.5501/8685335

Pre-specified subgroup analysis or what might be called "p-hacking"?

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

Great to see first Latin American randomized clinical trial on #LongCOVID:

Use of Pyridostigmine [Mestinon] in Long COVID: Evidence for Hemodynamic Phenotype-guided Therapy

https://academic.oup.com/ajrccm/article/212/Supplement_1/aamag162.5501/8685335

Pre-specified subgroup analysis or what might be called "p-hacking"?

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

Great to see first Latin American randomized clinical trial on #LongCOVID:

Use of Pyridostigmine [Mestinon] in Long COVID: Evidence for Hemodynamic Phenotype-guided Therapy

https://academic.oup.com/ajrccm/article/212/Supplement_1/aamag162.5501/8685335

Pre-specified subgroup analysis or what might be called "p-hacking"?

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

Great to see first Latin American randomized clinical trial on #LongCOVID:

Use of Pyridostigmine [Mestinon] in Long COVID: Evidence for Hemodynamic Phenotype-guided Therapy

https://academic.oup.com/ajrccm/article/212/Supplement_1/aamag162.5501/8685335

Pre-specified subgroup analysis or what might be called "p-hacking"?

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

Great to see first Latin American randomized clinical trial on #LongCOVID:

Use of Pyridostigmine [Mestinon] in Long COVID: Evidence for Hemodynamic Phenotype-guided Therapy

https://academic.oup.com/ajrccm/article/212/Supplement_1/aamag162.5501/8685335

Pre-specified subgroup analysis or what might be called "p-hacking"?

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

From Finland:

Association between post-COVID-19 neuropsychiatric symptoms and persistent glial activation in the limbic system: a TSPO PET study

https://link.springer.com/article/10.1007/s00415-026-13842-w

Screenshot from Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

1/

From Finland:

Association between post-COVID-19 neuropsychiatric symptoms and persistent glial activation in the limbic system: a TSPO PET study

https://link.springer.com/article/10.1007/s00415-026-13842-w

Screenshot from Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

1/

From Finland:

Association between post-COVID-19 neuropsychiatric symptoms and persistent glial activation in the limbic system: a TSPO PET study

https://link.springer.com/article/10.1007/s00415-026-13842-w

Screenshot from Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

1/

From Finland:

Association between post-COVID-19 neuropsychiatric symptoms and persistent glial activation in the limbic system: a TSPO PET study

https://link.springer.com/article/10.1007/s00415-026-13842-w

Screenshot from Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

1/

From Finland:

Association between post-COVID-19 neuropsychiatric symptoms and persistent glial activation in the limbic system: a TSPO PET study

https://link.springer.com/article/10.1007/s00415-026-13842-w

Screenshot from Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

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Wat een indrukwekkende, en ook wel confronterende, aflevering over de impact van post-covid en hoe de overheid de handen trekt van de al zo beperkte zorg. Het enige dat mist is dat iedereen nog steeds post-covid kan krijgen en dat dat niet alleen iets uit de lock-downperiode is:

https://npo.nl/start/afspelen/meldpunt-actueel_37

Met dank aan @Dehuisgenoot voor de tip.

#PostCovid #LongCovid

Wat een indrukwekkende, en ook wel confronterende, aflevering over de impact van post-covid en hoe de overheid de handen trekt van de al zo beperkte zorg. Het enige dat mist is dat iedereen nog steeds post-covid kan krijgen en dat dat niet alleen iets uit de lock-downperiode is:

https://npo.nl/start/afspelen/meldpunt-actueel_37

Met dank aan @Dehuisgenoot voor de tip.

#PostCovid #LongCovid

Wat een indrukwekkende, en ook wel confronterende, aflevering over de impact van post-covid en hoe de overheid de handen trekt van de al zo beperkte zorg. Het enige dat mist is dat iedereen nog steeds post-covid kan krijgen en dat dat niet alleen iets uit de lock-downperiode is:

https://npo.nl/start/afspelen/meldpunt-actueel_37

Met dank aan @Dehuisgenoot voor de tip.

#PostCovid #LongCovid

Wat een indrukwekkende, en ook wel confronterende, aflevering over de impact van post-covid en hoe de overheid de handen trekt van de al zo beperkte zorg. Het enige dat mist is dat iedereen nog steeds post-covid kan krijgen en dat dat niet alleen iets uit de lock-downperiode is:

https://npo.nl/start/afspelen/meldpunt-actueel_37

Met dank aan @Dehuisgenoot voor de tip.

#PostCovid #LongCovid

Wat een indrukwekkende, en ook wel confronterende, aflevering over de impact van post-covid en hoe de overheid de handen trekt van de al zo beperkte zorg. Het enige dat mist is dat iedereen nog steeds post-covid kan krijgen en dat niet alleen iets uit de lock-downperiode is:

https://npo.nl/start/afspelen/meldpunt-actueel_37

Met dank aan @Dehuisgenoot voor de tip.

#PostCovid #LongCovid

Je krijgt weleens een adviesje…
#postcovid #longcovid

Je krijgt weleens een adviesje…
#postcovid #longcovid

Je krijgt weleens een adviesje…
#postcovid #longcovid

Je krijgt weleens een adviesje…
#postcovid #longcovid

Je krijgt weleens een adviesje…
#postcovid #longcovid

Pathogenic IgG from long COVID patients with neurological sequelae triggers sensitive but not cognitive impairments upon transfer into mice

https://link.springer.com/article/10.1007/s00401-026-03019-0

Screenshot from Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

Pathogenic IgG from long COVID patients with neurological sequelae triggers sensitive but not cognitive impairments upon transfer into mice

https://link.springer.com/article/10.1007/s00401-026-03019-0

Screenshot from Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

Pathogenic IgG from long COVID patients with neurological sequelae triggers sensitive but not cognitive impairments upon transfer into mice

https://link.springer.com/article/10.1007/s00401-026-03019-0

Screenshot from Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

Pathogenic IgG from long COVID patients with neurological sequelae triggers sensitive but not cognitive impairments upon transfer into mice

https://link.springer.com/article/10.1007/s00401-026-03019-0

Screenshot from Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

Pathogenic IgG from long COVID patients with neurological sequelae triggers sensitive but not cognitive impairments upon transfer into mice

https://link.springer.com/article/10.1007/s00401-026-03019-0

Screenshot from Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC

The Dutch Health Council has published its report on Long Covid. It urges the government to improve care, track Long Covid cases and invest in a long-term research program on post-acute infectious diseases.

https://www.dutchnews.nl/2026/05/dutch-health-council-urges-government-action-on-long-covid/

#LongCovid #PASC #PostCovid #PostCovid19 @longcovid

The Dutch Health Council has published its report on Long Covid. It urges the government to improve care, track Long Covid cases and invest in a long-term research program on post-acute infectious diseases.

https://www.dutchnews.nl/2026/05/dutch-health-council-urges-government-action-on-long-covid/

#LongCovid #PASC #PostCovid #PostCovid19 @longcovid

The Dutch Health Council has published its report on Long Covid. It urges the government to improve care, track Long Covid cases and invest in a long-term research program on post-acute infectious diseases.

https://www.dutchnews.nl/2026/05/dutch-health-council-urges-government-action-on-long-covid/

#LongCovid #PASC #PostCovid #PostCovid19 @longcovid

The Dutch Health Council has published its report on Long Covid. It urges the government to improve care, track Long Covid cases and invest in a long-term research program on post-acute infectious diseases.

https://www.dutchnews.nl/2026/05/dutch-health-council-urges-government-action-on-long-covid/

#LongCovid #PASC #PostCovid #PostCovid19 @longcovid

The Dutch Health Council has published its report on Long Covid. It urges the government to improve care, track Long Covid cases and invest in a long-term research program on post-acute infectious diseases.

https://www.dutchnews.nl/2026/05/dutch-health-council-urges-government-action-on-long-covid/

#LongCovid #PASC #PostCovid #PostCovid19 @longcovid

'Vrijdag op tv: post covidpatiënten in de kou door dreigende sluiting expertisecentra'

"De 6 post covid expertisecentra in ons land dreigen per 1 januari 2027 geen geld meer te krijgen uit Den Haag, tenzij minister Hermans van Volksgezondheid alsnog akkoord gaat. Sluiting van deze centra betekent voor honderdduizenden patiënten met post covid dat zij hier niet meer terecht kunnen voor behandeling, onderzoek en advies. Het is te zien in Meldpunt Actueel op vrijdag 22 mei om 19.50 uur bij MAX op NPO 2."

"Voor 450.000 patiënten met post covidklachten (klachten die blijven nadat de corona-infectie voorbij is) zijn de expertisecentra de laatste strohalm. […] Als deze centra sluiten, komen deze patiënten weer onder behandeling van een huisarts. Maar deze missen vaak de expertise en ervaring met deze langdurige aandoening."

https://www.maxmeldpunt.nl/gezondheid/vrijdag-op-tv-post-covidpatienten-in-de-kou-door-dreigende-sluiting-expertisecentra/

@longcovid

#gezondheid #LongCovid #PostCovid #TVtip

De vrouw van een mede-freelancer is al een jaar ziek, en pas een paar maanden geleden heeft ze de diagnose post covid gekregen. Een van de zeer weinige handvatten om hiermee om te gaan: pacen. Maar er bleken nauwelijks goede tools te zijn om daarmee te helpen. Dus heeft hij zelf een tool gemaakt: pacely. Op linkedin werd dat heel snel heel groot.

https://www.linkedin.com/feed/update/urn:li:activity:7460237002802683904/
https://pacely.nl/
#postCovid #longCovid #cvs #me #cvsME

@alikatze @Lancker Kommt mir bekannt vor, mir ergeht es ähnlich, wenn ich auf meine kleine Enkelin aufpassen darf. Ruhe und Gelassenheit über kommt mich und an dem Tagen habe ich kaum bis keine Schmerzen und Erschöpfungssyndrome.
#mecfs #postcovid #postCOVID19

Hammer:
An der Charité Berlin wird ein Test zur "Objektivierung" (messbarer Nachweis) der PEM entwickelt.
Aktueller Stand: frei zugänglich.

Und gemessen wird nicht mit irgendeiner Goldrandlösung, sondern einem Plastik-Gerät vom Online-Marktplatz eures Vertrauens!
Sowas gibt's ab 20€. 🤯

*We measured the HGS with a digital hand dynamometer (CAMRY, model: SCACAM-EH101) in two separate sessions with a recovery break of 60 min between the sessions.*

https://www.mecfs.de/was-ist-me-cfs/pem/

Studie:
https://link.springer.com/article/10.1186/s12967-021-02774-w

#LongCovid #PostCovid #MECFS #PEM #PostExertionalMalaise #Fatigue

Hammer:
An der Charité Berlin wird ein Test zur "Objektivierung" (messbarer Nachweis) der PEM entwickelt.
Aktueller Stand: frei zugänglich.

Und gemessen wird nicht mit irgendeiner Goldrandlösung, sondern einem Plastik-Gerät vom Online-Marktplatz eures Vertrauens!
Sowas gibt's ab 20€. 🤯

*We measured the HGS with a digital hand dynamometer (CAMRY, model: SCACAM-EH101) in two separate sessions with a recovery break of 60 min between the sessions.*

https://www.mecfs.de/was-ist-me-cfs/pem/

Studie:
https://link.springer.com/article/10.1186/s12967-021-02774-w

#LongCovid #PostCovid #MECFS #PEM #PostExertionalMalaise #Fatigue

Hammer:
An der Charité Berlin wird ein Test zur "Objektivierung" (messbarer Nachweis) der PEM entwickelt.
Aktueller Stand: frei zugänglich.

Und gemessen wird nicht mit irgendeiner Goldrandlösung, sondern einem Plastik-Gerät vom Online-Marktplatz eures Vertrauens!
Sowas gibt's ab 20€. 🤯

*We measured the HGS with a digital hand dynamometer (CAMRY, model: SCACAM-EH101) in two separate sessions with a recovery break of 60 min between the sessions.*

https://www.mecfs.de/was-ist-me-cfs/pem/

Studie:
https://link.springer.com/article/10.1186/s12967-021-02774-w

#LongCovid #PostCovid #MECFS #PEM #PostExertionalMalaise #Fatigue

Hammer:
An der Charité Berlin wird ein Test zur "Objektivierung" (messbarer Nachweis) der PEM entwickelt.
Aktueller Stand: frei zugänglich.

Und gemessen wird nicht mit irgendeiner Goldrandlösung, sondern einem Plastik-Gerät vom Online-Marktplatz eures Vertrauens!
Sowas gibt's ab 20€. 🤯

*We measured the HGS with a digital hand dynamometer (CAMRY, model: SCACAM-EH101) in two separate sessions with a recovery break of 60 min between the sessions.*

https://www.mecfs.de/was-ist-me-cfs/pem/

Studie:
https://link.springer.com/article/10.1186/s12967-021-02774-w

#LongCovid #PostCovid #MECFS #PEM #PostExertionalMalaise #Fatigue