Live and recent posts from across the Fediverse tagged #longcovidkids, aggregated by home.social.
Kids housebound or bedbound with Long COVID created superheroes inspired by their experiences with chronic illness and disability. Their heroes find strength in resting, asking for help and compassion. The characters now feature in a 72-page full-colour comic, Long Covid Superheroes.
Source: https://thesicktimes.org/2026/10/05/kids-with-long-covid-co-created-their-own-superhero-comic-book/
"COVID may worsen existing health problems long-term, study suggests"
In other breaking news: Fork Found in Kitchen
#CovidIsNotOver #Covid19 #SARSCoV2 #PublicHealth #Pandemic #Disability #MassDisablement #PostViralIllness #LongCovid #LongCovidKids
RECOVER researchers and caregivers shared insights into Long COVID social risk factors and how Long COVID affects children’s learning and school experiences—including what researchers hope to learn next.
Text plus video recording
https://recovercovid.org/r3-seminar-series/growing-long-covid-risk-factors-and-school-impacts
Long Covid Kids have developed resources for children and parents including an Individual Healthcare Plan (IHCP) template, available for download as Word or PDF
https://www.longcovidkids.org/download-resources
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
#LongCovidKids #PASC
Haven’t had a chance to watch this yet but I’ll leave this. I have it saved for my overnight shift. ##CovidIsNotOver #COVIDisAirborne #N95sSaveLives #CleanAirNow #LongCovid #LongCovidKids #WeNotMe #TogetherWeCan #ShareTheCare
RE: https://bsky.app/profile/did:plc:43fze2pjimhk2aj6g3oskb2y/post/3muqk55ismk2s
RE: https://troet.cafe/@Lalelilolu/117064643103977063
#Podcast: ME/CFS Kids Mobil
"In Deutschland leiden nach Schätzungen 650.000 Menschen an dieser neuroimmunologischen Erkrankung (..). Auch Kinder und Jugendliche sind betroffen – einige von ihnen so stark, dass sie gar nicht in der Lage sind, eine Praxis aufzusuchen.
(..) Ein spezialisiertes Team sucht dabei die Betroffenen in ihrem Zuhause auf und bietet ihnen dort medizinische und psychosoziale Hilfe."
The Burden of Long-COVID-19 Among Pediatric Subjects: A Systematic Review and Meta-Analysis
https://www.mdpi.com/2077-0383/15/14/5597
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#LongCovid #LongCovidKids #LCKids #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
Articles specifically discussing ME/CFS and long Covid in children and young people can be useful.
This 5-page article is from the Bateman Horne Center Clinical Care Guide
#MEcfs #LongCovid #LongCovidkids #LCkids #PwME #CFS @mecfs @longcovid
"What Parents Need to Know About Long COVID in Kids"
“Surprisingly, we see a lot of kids coming in who have either asymptomatic COVID infection or mild COVID symptoms that wind up with Long COVID symptoms”
Source: https://www.lung.org/blog/child-long-covid
Study: https://jamanetwork.com/journals/jamapediatrics/fullarticle/2834480
2/
“The prevalence among children remained about one-quarter to one-third that of adults throughout all epidemic waves,” Sugiyama said. “Notably, no children in the study experienced disruptions to daily life for more than two years after infection, even when symptoms persisted.”
Comment: Other studies have found the illness does not disappear in all children like this.
From Germany 🇩🇪
Retinal microvascular alterations consistent with endothelial dysregulation in paediatric post-COVID-19 syndrome: A prospective matched-cohort study
https://www.nature.com/articles/s41598-026-54086-y
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@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
#LongCovidKids #LCKids
Risk factors for severe post-COVID condition in children, adolescents, and young adults
https://link.springer.com/article/10.1007/s00431-026-06995-3
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#MEcfs @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
#LongCovidKids #PwME #ME #MyalgicE
@mecfs
From Germany 🇩🇪
Immune-metabolic trajectories delineate subgroups in paediatric long COVID
https://www.nature.com/articles/s41467-026-72224-y
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Risk factors for severe post-COVID condition in children, adolescents, & young adults
https://link.springer.com/article/10.1007/s00431-026-06995-3
"24% of patients fulfilled ME/CFS criteria—all within the severe cluster—highlighting a distinct high-risk subgroup that necessitates early stratification & care."
#LongCovidKids #LongCovid @longcovid @mecfs #mecfs
From the US
Interdisciplinary Pediatric Long-COVID Care: A Descriptive Study of Interventions and Health-Related Quality of Life
https://academic.oup.com/ofid/article/13/4/ofag155/8651135
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Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
#LongCovidKids
From the US 🇺🇸 & Canada 🇨🇦
Endovascular profiles linked to neutrophil activation in children and young adults with long COVID
https://www.nature.com/articles/s41390-026-05024-1
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#SarsCoV2 Er zijn ons geen nieuwe agressieve varianten bekend, al zijn er wel berichten dat variant Cicada (BA.3.2), die in NL vanaf november op beperkte schaal rondging, nu ook elders in de wereld in opmars is. Daarbij lijkt deze variant vooral (zeer) jonge kinderen te treffen.
From the US 🇺🇸
School Difficulties and Long COVID in Children and Adolescents
https://www.academicpedsjnl.net/article/S1876-2859(26)00096-3/abstract
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Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
#LongCovidKids #LCKids
#LongCovidKids The short answer is yes—children who got COVID-19 again were more likely to experience long-term issues. Long COVID can include a variety of symptoms that linger or appear after the initial illness, often affecting several body systems. https://johnsnowproject.org/primers/reducing-the-risk-of-long-covid-in-kids-why-reinfection-matters-and-what-we-can-do/
#SarsCoV2
Severe acute COVID-19 and early long COVID signals in paediatric cohorts: an analysis of real-world data from two health departments, Germany
https://link.springer.com/article/10.1186/s12887-026-06724-7
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Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver
#LongCovidKids #LCKids
From Germany 🇩🇪
"Our findings collectively reveal substantial microvascular impairments and increased arterial stiffness in pediatric Long COVID patients, particularly among those presenting with dyspnea."
https://link.springer.com/article/10.1007/s00431-026-06825-6
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Hashtags
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #SARSCoV2 #auscovid19 #CovidIsNotOver
#LongCovidKids
#ZdenekVrozina on X wrote:
When a child looks fine after COVID but is suddenly exhausted, foggy, short of breath, or no longer coping with school the way they used to, parents often feel something is wrong long before anyone can explain it🧵https://threadreaderapp.com/thread/2032428841621184764.html
Besorgniserregende Ergebnisse einer neuen großen pädiatrischen Kohortenstudie:
"Reinfektionen mit SARS-CoV-2 erhöhen das Risiko für Long COVID bei Kindern und Jugendlichen deutlich"👇
From 🇪🇸
"Our findings indicate pediatric long COVID is associated with a dysregulated immune response characterized by altered innate immunity & overactivated T-, B- and NK-cell responses."
https://insight.jci.org/articles/view/201111
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@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#LongCovidKids #LCKids
#HarrySpoelstra on X wrote:
Phenotyping Pediatric Long COVID: Symptom Clusters from a Longitudinal Multicenter Italian Cohort
🧵 https://threadreaderapp.com/thread/2024445744824918099.html
underscoring that NO age group is entirely spared and tailored management should account for residual risks across ALL! EVEN BETTER:
#PROTECTCHILDREN #MITIGATION #AVOIDREINFECTIONS
"Back-to-School Guide" from the Emerge Australia newsletter
https://emerge.org.au/your-child-or-young-person-with-me-cfs-and-school/
#MEcfs #LongCovid @longcovid #LongCovidKids #LCKids #CFS #PwME @mecfs
Anybody got a zine or other handout for kids about how to wear a mask?
My kiddo has been giving colourful kn95s to other interested kids... but those kids often have no info on how to wear them properly, how to handle them safely, why bother, etc. I have printables for grown-ups but it would be rad to have something cute and easy to read for the under 10 crowd.
#CovidIsNotOver #YallMasking #CovidIsAirborne #zines #kids #parenting #LongCovidKids
From the CDC:
Functional Limitations and Illness-Related Absenteeism among School-Aged Children with and without Long COVID, United States, 2022–2023
https://wwwnc.cdc.gov/eid/article/31/14/25-1035_article
Screenshot from latest Science for ME weekly update
#LongCovidKids #LCKids @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver
2/
Social Determinants of Health and Pediatric Long COVID in the US
https://jamanetwork.com/journals/jamapediatrics/fullarticle/2843098
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Exhaled breath-based clusters in children with post-COVID condition
https://iopscience.iop.org/article/10.1088/1752-7163/ae33e1
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver
#LongCovidKids #LCKids #PASC
