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#pots — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #pots, aggregated by home.social.

  1. 🔥 psa for anyone taking quercetin on a regular basis 🔥

    this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!

    (and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)

    i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:

    take care people and good luck :Blobhaj_Heart_Rainbow:

    #MCAS #POTS #hEDS #LongCovid #allergies

  2. 🔥 psa for anyone taking quercetin on a regular basis 🔥

    this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!

    (and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)

    i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:

    take care people and good luck :Blobhaj_Heart_Rainbow:

    #MCAS #POTS #hEDS #LongCovid #allergies

  3. 🔥 psa for anyone taking quercetin on a regular basis 🔥

    this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!

    (and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)

    i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:

    take care people and good luck :Blobhaj_Heart_Rainbow:

    #MCAS #POTS #hEDS #LongCovid #allergies

  4. 🔥 psa for anyone taking quercetin on a regular basis 🔥

    this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!

    (and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)

    i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:

    take care people and good luck :Blobhaj_Heart_Rainbow:

    #MCAS #POTS #hEDS #LongCovid #allergies

  5. 🔥 psa for anyone taking quercetin on a regular basis 🔥

    this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!

    (and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)

    i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:

    take care people and good luck :Blobhaj_Heart_Rainbow:

    #MCAS #POTS #hEDS #LongCovid #allergies

  6. CW: food; desired habit manifest as ingrained

    Ugh, but in a yay sense.

    I'm trying to eat this store bought potato salad, which I just not meeting my expectations of bulk potato salad, even with handfuls of salt*.

    I seem to have become One with my desired food habit, even when I'm not being vigilant. I have practiced only eating food that brings me Pleasure to eat. Which is not a high bar, I fuqing adore food!

    My body Now has a habit of saying No to anything less than divine. 😁

    *see also #POTS

  7. CW: food; desired habit manifest as ingrained

    Ugh, but in a yay sense.

    I'm trying to eat this store bought potato salad, which I just not meeting my expectations of bulk potato salad, even with handfuls of salt*.

    I seem to have become One with my desired food habit, even when I'm not being vigilant. I have practiced only eating food that brings me Pleasure to eat. Which is not a high bar, I fuqing adore food!

    My body Now has a habit of saying No to anything less than divine. 😁

    *see also #POTS

  8. CW: food; desired habit manifest as ingrained

    Ugh, but in a yay sense.

    I'm trying to eat this store bought potato salad, which I just not meeting my expectations of bulk potato salad, even with handfuls of salt*.

    I seem to have become One with my desired food habit, even when I'm not being vigilant. I have practiced only eating food that brings me Pleasure to eat. Which is not a high bar, I fuqing adore food!

    My body Now has a habit of saying No to anything less than divine. 😁

    *see also #POTS

  9. This 2-part video series from the Bateman Horne Center about Orthostatic Intolerance in ME/CFS is very helpful:

    "What is Orthostatic Intolerance in ME/CFS?"

    Part 1 - Diagnostic Workup

    youtube.com/watch?v=X3Ym8rnYk_4

    Part 2 - Management

    youtube.com/watch?v=GIkS4w3tIg8

    11/n

    @mecfs @longcovid

    #MEcfs #LongCovid #OrthostaticIntolerance #POTS #Dysautonomia #BatemanHorne

  10. This 2-part video series from the Bateman Horne Center about Orthostatic Intolerance in ME/CFS is very helpful:

    "What is Orthostatic Intolerance in ME/CFS?"

    Part 1 - Diagnostic Workup

    youtube.com/watch?v=X3Ym8rnYk_4

    Part 2 - Management

    youtube.com/watch?v=GIkS4w3tIg8

    11/n

    @mecfs @longcovid

    #MEcfs #LongCovid #OrthostaticIntolerance #POTS #Dysautonomia #BatemanHorne

  11. This 2-part video series from the Bateman Horne Center about Orthostatic Intolerance in ME/CFS is very helpful:

    "What is Orthostatic Intolerance in ME/CFS?"

    Part 1 - Diagnostic Workup

    youtube.com/watch?v=X3Ym8rnYk_4

    Part 2 - Management

    youtube.com/watch?v=GIkS4w3tIg8

    11/n

    @mecfs @longcovid

    #MEcfs #LongCovid #OrthostaticIntolerance #POTS #Dysautonomia #BatemanHorne

  12. This 2-part video series from the Bateman Horne Center about Orthostatic Intolerance in ME/CFS is very helpful:

    "What is Orthostatic Intolerance in ME/CFS?"

    Part 1 - Diagnostic Workup

    youtube.com/watch?v=X3Ym8rnYk_4

    Part 2 - Management

    youtube.com/watch?v=GIkS4w3tIg8

    11/n

    @mecfs @longcovid

    #MEcfs #LongCovid #OrthostaticIntolerance #POTS #Dysautonomia #BatemanHorne

  13. This 2-part video series from the Bateman Horne Center about Orthostatic Intolerance in ME/CFS is very helpful:

    "What is Orthostatic Intolerance in ME/CFS?"

    Part 1 - Diagnostic Workup

    youtube.com/watch?v=X3Ym8rnYk_4

    Part 2 - Management

    youtube.com/watch?v=GIkS4w3tIg8

    11/n

    @mecfs @longcovid

    #MEcfs #LongCovid #OrthostaticIntolerance #POTS #Dysautonomia #BatemanHorne

  14. I'm back! 😁

    Next I'll share some resources.

    I'll start by talking about Orthostatic Intolerance (OI). This is when folks get symptoms when in an upright posture, most often from standing, but also when sitting upright. This condition is common in both ME/CFS and Long Covid.

    Sadly, many doctors don't know about OI even though it's an optional diagnostic criteria for ME/CFS.

    cdc.gov/me-cfs/pdfs/toolkit/Wh

    10/n

    @mecfs @longcovid

    #MEcfs #LongCovid #OrthostaticIntolerance #POTS #Dysautonomia

  15. I'm back! 😁

    Next I'll share some resources.

    I'll start by talking about Orthostatic Intolerance (OI). This is when folks get symptoms when in an upright posture, most often from standing, but also when sitting upright. This condition is common in both ME/CFS and Long Covid.

    Sadly, many doctors don't know about OI even though it's an optional diagnostic criteria for ME/CFS.

    cdc.gov/me-cfs/pdfs/toolkit/Wh

    10/n

    @mecfs @longcovid

    #MEcfs #LongCovid #OrthostaticIntolerance #POTS #Dysautonomia

  16. I'm back! 😁

    Next I'll share some resources.

    I'll start by talking about Orthostatic Intolerance (OI). This is when folks get symptoms when in an upright posture, most often from standing, but also when sitting upright. This condition is common in both ME/CFS and Long Covid.

    Sadly, many doctors don't know about OI even though it's an optional diagnostic criteria for ME/CFS.

    cdc.gov/me-cfs/pdfs/toolkit/Wh

    10/n

    @mecfs @longcovid

    #MEcfs #LongCovid #OrthostaticIntolerance #POTS #Dysautonomia

  17. I'm back! 😁

    Next I'll share some resources.

    I'll start by talking about Orthostatic Intolerance (OI). This is when folks get symptoms when in an upright posture, most often from standing, but also when sitting upright. This condition is common in both ME/CFS and Long Covid.

    Sadly, many doctors don't know about OI even though it's an optional diagnostic criteria for ME/CFS.

    cdc.gov/me-cfs/pdfs/toolkit/Wh

    10/n

    @mecfs @longcovid

    #MEcfs #LongCovid #OrthostaticIntolerance #POTS #Dysautonomia

  18. I'm back! 😁

    Next I'll share some resources.

    I'll start by talking about Orthostatic Intolerance (OI). This is when folks get symptoms when in an upright posture, most often from standing, but also when sitting upright. This condition is common in both ME/CFS and Long Covid.

    Sadly, many doctors don't know about OI even though it's an optional diagnostic criteria for ME/CFS.

    cdc.gov/me-cfs/pdfs/toolkit/Wh

    10/n

    @mecfs @longcovid

    #MEcfs #LongCovid #OrthostaticIntolerance #POTS #Dysautonomia

  19. May 12th is

    International Awareness Day for

    Chronic Immunological and Neurological Diseases ( #CIND - awareness colour added when known)

    💙 #MECFS - Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

    #ES - Environmental Sensitivities or Intolerances
    #MCS - Multiple Chemical Sensitivity

    💜 #FM - Fibromyalgia

    #GWI Gulf War illness

    💚 #LYME Lyme disease

    🧡 #MS multiple sclerosis

    🩵 #POTS Postural Orthostatic Tachycardia Syndrome

    (More details underneath this post)

  20. May 12th is

    International Awareness Day for

    Chronic Immunological and Neurological Diseases ( #CIND - awareness colour added when known)

    💙 #MECFS - Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

    #ES - Environmental Sensitivities or Intolerances
    #MCS - Multiple Chemical Sensitivity

    💜 #FM - Fibromyalgia

    #GWI Gulf War illness

    💚 #LYME Lyme disease

    🧡 #MS multiple sclerosis

    🩵 #POTS Postural Orthostatic Tachycardia Syndrome

    (More details underneath this post)

  21. May 12th is

    International Awareness Day for

    Chronic Immunological and Neurological Diseases ( #CIND - awareness colour added when known, otherwise: 🫶)

    💙 #MECFS - Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

    #ES - Environmental Sensitivities or Intolerances
    #MCS - Multiple Chemical Sensitivity

    💜 #FM - Fibromyalgia

    🫶 #GWI Gulf War illness

    💚 #LYME Lyme disease

    🧡 #MS multiple sclerosis

    🩵 #POTS Postural Orthostatic Tachycardia Syndrome

    (More details underneath this post)

  22. May 12th is

    International Awareness Day for

    Chronic Immunological and Neurological Diseases ( #CIND - awareness colour added when known)

    💙 #MECFS - Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

    #ES - Environmental Sensitivities or Intolerances
    #MCS - Multiple Chemical Sensitivity

    💜 #FM - Fibromyalgia

    #GWI Gulf War illness

    💚 #LYME Lyme disease

    🧡 #MS multiple sclerosis

    🩵 #POTS Postural Orthostatic Tachycardia Syndrome

    (More details underneath this post)

  23. May 12th is

    International Awareness Day for

    Chronic Immunological and Neurological Diseases ( #CIND - awareness colour added when known)

    💙 #MECFS - Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

    #ES - Environmental Sensitivities or Intolerances
    #MCS - Multiple Chemical Sensitivity

    💜 #FM - Fibromyalgia

    #GWI Gulf War illness

    💚 #LYME Lyme disease

    🧡 #MS multiple sclerosis

    🩵 #POTS Postural Orthostatic Tachycardia Syndrome

    (More details underneath this post)

  24. Eine meiner ehemaligen Abiturient*innen (jetzt schon lange Studentin) war heute in Berlin auf der #Liegenddemo. Diese Solidarität berührt mich sehr.

    #MEcfs #POTS #MCAS #CCI

  25. Eine meiner ehemaligen Abiturient*innen (jetzt schon lange Studentin) war heute in Berlin auf der #Liegenddemo. Diese Solidarität berührt mich sehr.

    #MEcfs #POTS #MCAS #CCI

  26. Eine meiner ehemaligen Abiturient*innen (jetzt schon lange Studentin) war heute in Berlin auf der #Liegenddemo. Diese Solidarität berührt mich sehr.

    #MEcfs #POTS #MCAS #CCI

  27. Eine meiner ehemaligen Abiturient*innen (jetzt schon lange Studentin) war heute in Berlin auf der #Liegenddemo. Diese Solidarität berührt mich sehr.

    #MEcfs #POTS #MCAS #CCI

  28. Eine meiner ehemaligen Abiturient*innen (jetzt schon lange Studentin) war heute in Berlin auf der #Liegenddemo. Diese Solidarität berührt mich sehr.

    #MEcfs #POTS #MCAS #CCI

  29. Vriend en mentor M kwam uit Noord-Engeland. Hij vond me een redelijk geslaagd project: ik zal altijd meer Buxtehude blijven spelen dan Bach (“want dat doet iedereen al”). Het is altijd een kleine teleurstelling voor hem gebleven dat ik wel pap at, maar geen zoute, zoals hij en zijn regionale voorvaderen.

    Ik steek een duim op naar boven terwijl ik mijn dokter-voorgeschreven zout over de havermout strooi.

    #POTS

  30. Vriend en mentor M kwam uit Noord-Engeland. Hij vond me een redelijk geslaagd project: ik zal altijd meer Buxtehude blijven spelen dan Bach (“want dat doet iedereen al”). Het is altijd een kleine teleurstelling voor hem gebleven dat ik wel pap at, maar geen zoute, zoals hij en zijn regionale voorvaderen.

    Ik steek een duim op naar boven terwijl ik mijn dokter-voorgeschreven zout over de havermout strooi.

    #POTS

  31. Vriend en mentor M kwam uit Noord-Engeland. Hij vond me een redelijk geslaagd project: ik zal altijd meer Buxtehude blijven spelen dan Bach (“want dat doet iedereen al”). Het is altijd een kleine teleurstelling voor hem gebleven dat ik wel pap at, maar geen zoute, zoals hij en zijn regionale voorvaderen.

    Ik steek een duim op naar boven terwijl ik mijn dokter-voorgeschreven zout over de havermout strooi.

    #POTS

  32. Vriend en mentor M kwam uit Noord-Engeland. Hij vond me een redelijk geslaagd project: ik zal altijd meer Buxtehude blijven spelen dan Bach (“want dat doet iedereen al”). Het is altijd een kleine teleurstelling voor hem gebleven dat ik wel pap at, maar geen zoute, zoals hij en zijn regionale voorvaderen.

    Ik steek een duim op naar boven terwijl ik mijn dokter-voorgeschreven zout over de havermout strooi.

    #POTS

  33. Vriend en mentor M kwam uit Noord-Engeland. Hij vond me een redelijk geslaagd project: ik zal altijd meer Buxtehude blijven spelen dan Bach (“want dat doet iedereen al”). Het is altijd een kleine teleurstelling voor hem gebleven dat ik wel pap at, maar geen zoute, zoals hij en zijn regionale voorvaderen.

    Ik steek een duim op naar boven terwijl ik mijn dokter-voorgeschreven zout over de havermout strooi.

    #POTS

  34. In preparation for the coming summer I ordered an extra bottle of salt pills, along with fast acting chewable tablets. They're spendy, even with the 30% off for chronic illnesses club Vitassium has, but they've saved my ass on so many hot days. It's worth it. #POTS

  35. In preparation for the coming summer I ordered an extra bottle of salt pills, along with fast acting chewable tablets. They're spendy, even with the 30% off for chronic illnesses club Vitassium has, but they've saved my ass on so many hot days. It's worth it. #POTS

  36. In preparation for the coming summer I ordered an extra bottle of salt pills, along with fast acting chewable tablets. They're spendy, even with the 30% off for chronic illnesses club Vitassium has, but they've saved my ass on so many hot days. It's worth it. #POTS

  37. In preparation for the coming summer I ordered an extra bottle of salt pills, along with fast acting chewable tablets. They're spendy, even with the 30% off for chronic illnesses club Vitassium has, but they've saved my ass on so many hot days. It's worth it. #POTS

  38. In preparation for the coming summer I ordered an extra bottle of salt pills, along with fast acting chewable tablets. They're spendy, even with the 30% off for chronic illnesses club Vitassium has, but they've saved my ass on so many hot days. It's worth it. #POTS

  39. Nice. Found an old phone in a mouse-eaten box in the grain shed. TA-68 model.

    The impulse generator seems to work, the handset cable is broken though.

    Maybe I'll paint it red. Looks a lot like this one: theguardian.com/world/2016/aug

    #Phone #Telephone #POTS #Treasure

  40. Nice. Found an old phone in a mouse-eaten box in the grain shed. TA-68 model.

    The impulse generator seems to work, the handset cable is broken though.

    Maybe I'll paint it red. Looks a lot like this one: theguardian.com/world/2016/aug

    #Phone #Telephone #POTS #Treasure