#pots — Public Fediverse posts

Yes, another working weekend starts with watering 💦 duties and coffee ☕
#gardening #garden #pots #plants #watering #clothesfreeliving #naturist #naturism #naturalhumanbodies #naked #nude #absolutelynormal #nonsexualnudity #naturalgardening #normalisingnaturism #coffee #americano #workingweekend

In other words, doctors are shit and I hate that I depend on them. This one does things, which is more than not doing things, which is the only reason I go to her.

#LongCovid #sibo #pots

#chronicillness
#disability

Using aids and maybe looking/acting different than others expect:

'I don't really care anymore what people think of me.'

'Well, better look silly than feel terrible.'

'I quite enjoy being weird. (..) I hope that everyone can just go out there and be their own weird self after this conversation.'

#physicaltherapy tools to reduce crashes and improve quality of life for:

https://madevisible.podbean.com/e/38-pacing-is-power-pots-pem-eds-mcas-strategies-with-dr-clayton-powers/

#POTS
#PEM
#EDS
#MCAS
#MECFS
#LongCovid
#servicedog
#invisibleillness

#chronicillness
#disability

Using aids and maybe looking/acting different than others expect:

'I don't really care anymore what people think of me.'

'Well, better look silly than feel terrible.'

'I quite enjoy being weird. (..) I hope that everyone can just go out there and be their own weird self after this conversation.'

#physicaltherapy tools to reduce crashes and improve quality of life for:

https://madevisible.podbean.com/e/38-pacing-is-power-pots-pem-eds-mcas-strategies-with-dr-clayton-powers/

#POTS
#PEM
#EDS
#MCAS
#MECFS
#LongCovid
#servicedog
#invisibleillness

I can’t believe I used to have energy to shower everyday. Now it’s like once or twice a week. Even that gets exhausting. 🫩
#mecfs #pots #chronicillness

I can’t believe I used to have energy to shower everyday. Now it’s like once or twice a week. Even that gets exhausting. 🫩
#mecfs #pots #chronicillness

The prevalence of cardiac symptoms in Ehlers-Danlos syndrome and hypermobility spectrum disorder: a pilot study. - Abstract - Europe PMC

https://europepmc.org/article/MED/42081697

#EhlersDanlos #hEDS #POTS

The prevalence of cardiac symptoms in Ehlers-Danlos syndrome and hypermobility spectrum disorder: a pilot study. - Abstract - Europe PMC

https://europepmc.org/article/MED/42081697

#EhlersDanlos #hEDS #POTS

Excessive Hypocapnic Cerebral Vasoconstriction in Hypermobile Ehlers-Danlos Syndrome Assessed With Real-Time Magnetic Resonance Imaging During Lower-Body Negative Pressure. - Abstract - Europe PMC

https://europepmc.org/article/MED/42568068

#EhlersDanlos #POTS #hEDS

Excessive Hypocapnic Cerebral Vasoconstriction in Hypermobile Ehlers-Danlos Syndrome Assessed With Real-Time Magnetic Resonance Imaging During Lower-Body Negative Pressure. - Abstract - Europe PMC

https://europepmc.org/article/MED/42568068

#EhlersDanlos #POTS #hEDS

Immunotherapies for postural orthostatic tachycardia syndrome, other common autonomic disorders, and Long COVID: current state and future direction by Blitshteyn et al

https://www.frontiersin.org/journals/cellular-and-infection-microbiology/articles/10.3389/fcimb.2025.1647203/full

Screenshot from Science for ME weekly update

#LongCovid #POTS @longcovid @pots #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome

Immunotherapies for postural orthostatic tachycardia syndrome, other common autonomic disorders, and Long COVID: current state and future direction by Blitshteyn et al

https://www.frontiersin.org/journals/cellular-and-infection-microbiology/articles/10.3389/fcimb.2025.1647203/full

Screenshot from Science for ME weekly update

#LongCovid #POTS @longcovid @pots #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome

The first half of August is always a mental battle. Five years ago, my life forever changed with my first COVID infection and subsequent diagnosis of POTS and ME.

As I reflect this time, I can gauge that things have gotten incrementally better for me, especially over the last 18-24 months. I'm nowhere near back to normal but I can say I'm as close to it as I've ever been. With that being said, I'm still probably only around 50 percent there, but that's a drastic improvement over the first 2-3 years of this.

I remain hopeful that the trajectory stays this way. I long for doing normal things, to regain a routine and experience life in fuller portions. As much as I've grown accustomed to this current new normal, it took me the better part of three years to find it. Now I can focus on improving that baseline, little by little and as safely as possible.

Here's to hope undying (shout-out Silent Hill 2).

#longcovid #pots #chronicillness

The first half of August is always a mental battle. Five years ago, my life forever changed with my first COVID infection and subsequent diagnosis of POTS and ME.

As I reflect this time, I can gauge that things have gotten incrementally better for me, especially over the last 18-24 months. I'm nowhere near back to normal but I can say I'm as close to it as I've ever been. With that being said, I'm still probably only around 50 percent there, but that's a drastic improvement over the first 2-3 years of this.

I remain hopeful that the trajectory stays this way. I long for doing normal things, to regain a routine and experience life in fuller portions. As much as I've grown accustomed to this current new normal, it took me the better part of three years to find it. Now I can focus on improving that baseline, little by little and as safely as possible.

Here's to hope undying (shout-out Silent Hill 2).

#longcovid #pots #chronicillness

@3TomatoesShort

Good advice! Have boosted.

People who are feeling just generally rubbish and exhausted, and haven't yet been tested for postural tachycardia, see post(s) above ↑

#POTS #ChronicIllness

@3TomatoesShort

Good advice! Have boosted.

People who are feeling just generally rubbish and exhausted, and haven't yet been tested for postural tachycardia, see post(s) above ↑

#POTS #ChronicIllness

Temperatures dropping a little, Water usage definitely lower 😊
#gardening #garden #pots #plants #watering #clothesfreeliving #naturist #naturism #naturalgardening

In the background today, I heard Kathleen Stock (yes her) commenting on the decline of academic standards and in the same podcast it was said that the problem was an "epidemic of autistic people" not the usual "epidemic of overdiagnosis". The podcast also mentioned that it was a problem that people with POTS and ME were "self-identifying" which sounds like a very Kathleen Stock thing to say. I was working so i couldn't pay attention - I am not sure all gems were from terfy Kathy. The point of the podcast was how awful Professor Jason Arday is. What did this poor guy do to piss of the phobosphere?

#actuallyAutistic #trans #me #pots

In the background today, I heard Kathleen Stock (yes her) commenting on the decline of academic standards and in the same podcast it was said that the problem was an "epidemic of autistic people" not the usual "epidemic of overdiagnosis". The podcast also mentioned that it was a problem that people with POTS and ME were "self-identifying" which sounds like a very Kathleen Stock thing to say. I was working so i couldn't pay attention - I am not sure all gems were from terfy Kathy. The point of the podcast was how awful Professor Jason Arday is. What did this poor guy do to piss of the phobosphere?

#actuallyAutistic #trans #me #pots

Hello everyone - I’m learning new skills for distributing images and information!

#ME #Chronicillness #LC
#PEM #POTS #LivesWeCannotLive

Click here for digital links
tinyurl.com/2vhxe3mj

If you print the image scan the
QR code for all the links 💙💙

Hello everyone - I’m learning new skills for distributing images and information!

#ME #Chronicillness #LC
#PEM #POTS #LivesWeCannotLive

Click here for digital links
tinyurl.com/2vhxe3mj

If you print the image scan the
QR code for all the links 💙💙

2/

It falls disproportionately on people with conditions that have no definite biomarker or diagnostic test, are frequently misattributed to psychological causes, involve fluctuating symptoms and affect populations underrepresented in clinical research.

#mecfs #pots #longcovid #spoonies #chronicillness
@mecfs @longcovid @pots

2/

It falls disproportionately on people with conditions that have no definite biomarker or diagnostic test, are frequently misattributed to psychological causes, involve fluctuating symptoms and affect populations underrepresented in clinical research.

#mecfs #pots #longcovid #spoonies #chronicillness
@mecfs @longcovid @pots

From @onelife_livedwell on IG:

The invisible illness tax is what happens when system limitations impact the people it serves.

#chronicillness #spoonie #mecfs @mecfs #longcovid @longcovid #pots @pots

1/

From @onelife_livedwell on IG:

The invisible illness tax is what happens when system limitations impact the people it serves.

#chronicillness #spoonie #mecfs @mecfs #longcovid @longcovid #pots @pots

1/

My vessel feeling high and energetic when having sailine drinks with pots my beloved

#disability #pots

Baroreflex sensitivity impairment in Long-COVID patients: a diagnostic tool for classifying the autonomic dysfunction spectrum. - Abstract - Europe PMC

https://europepmc.org/article/MED/42524295

#LongCovid #POTS #dysautonomia

Baroreflex sensitivity impairment in Long-COVID patients: a diagnostic tool for classifying the autonomic dysfunction spectrum. - Abstract - Europe PMC

https://europepmc.org/article/MED/42524295

#LongCovid #POTS #dysautonomia

If doctors won’t read the science then we must educate them ourselves. Here’s a handy cut-out-and-dump leaflet for your exercise-obsesses doctor.

#ThereForME
#ME #Chronicillness #LC
#PEM #POTS #LivesWeCannotLive
#MissingMillions
@[email protected]
@[email protected]

If doctors won’t read the science then we must educate them ourselves. Here’s a handy cut-out-and-dump leaflet for your exercise-obsesses doctor.

#ThereForME
#ME #Chronicillness #LC
#PEM #POTS #LivesWeCannotLive
#MissingMillions
@[email protected]
@[email protected]

Symptom-conditioned prediction of comorbidity in the hEDS-POTS-MCAS triad - Abstract - Europe PMC

https://europepmc.org/article/PPR/PPR1287295

#hEDS #EDS #POTS #MCAS

This one is very jargon-heavy for me, I would love someone to provide a plain-language summary!

Symptom-conditioned prediction of comorbidity in the hEDS-POTS-MCAS triad - Abstract - Europe PMC

https://europepmc.org/article/PPR/PPR1287295

#hEDS #EDS #POTS #MCAS

This one is very jargon-heavy for me, I would love someone to provide a plain-language summary!

RareLens: A Quantitative Framework for Identifying Research Funding Disparities in Rare and Autoimmune Diseases Relative to Patient Burden - Abstract - Europe PMC

https://europepmc.org/article/PPR/PPR1286238

#POTS #Autoimmune

RareLens: A Quantitative Framework for Identifying Research Funding Disparities in Rare and Autoimmune Diseases Relative to Patient Burden - Abstract - Europe PMC

https://europepmc.org/article/PPR/PPR1286238

#POTS #Autoimmune

Plasma Cytokine and Caspase-1p20 Profiles in Pre-Pandemic and Long COVID-Associated Postural Orthostatic Tachycardia Syndrome. - Abstract - Europe PMC

https://europepmc.org/article/MED/42512077

#POTS #LongCovid

Plasma Cytokine and Caspase-1p20 Profiles in Pre-Pandemic and Long COVID-Associated Postural Orthostatic Tachycardia Syndrome. - Abstract - Europe PMC

https://europepmc.org/article/MED/42512077

#POTS #LongCovid

Early morning watering done and an attempt to shade my Zinnias just a little, the struggle in the full sun yesterday 😐
#gardening #garden #pots #plants #watering #clothesfreeliving #naturist #naturism #naturalhumanbodies #naturalliving #naturalgardening

Early morning watering done and an attempt to shade my Zinnias just a little, the struggle in the full sun yesterday 😐
#gardening #garden #pots #plants #watering #clothesfreeliving #naturist #naturism #naturalhumanbodies #naturalliving #naturalgardening

From the US 🇺🇸

Plasma Cytokine and Caspase-1p20 Profiles in Pre-Pandemic and Long COVID-Associated Postural Orthostatic Tachycardia Syndrome

https://www.mdpi.com/2227-9059/14/7/1605

Screenshot from Science for ME weekly update

#LongCovid #POTS @longcovid @pots

From the US 🇺🇸

Plasma Cytokine and Caspase-1p20 Profiles in Pre-Pandemic and Long COVID-Associated Postural Orthostatic Tachycardia Syndrome

https://www.mdpi.com/2227-9059/14/7/1605

Screenshot from Science for ME weekly update

#LongCovid #POTS @longcovid @pots

This summer has been so rough in the #Edmonton area with all the rain. I've been getting a lot of migraines, pain, and fatigue that has been hard to deal with. I actually splurged on some compression socks even though I haven't worn them for a couple years. They definitely help with the swollen feet and dizziness.

My mother-in-law gave me some old walker she had laying around outside, I swallowed my pride and I took it to K-days. (the place where I first suspected I had POTS in 2019, I went on a swingy ride and was screaming because my feet felt like they were going to explode) It was amazing to be able to sit or lean on something whenever I got dizzy or sore. There was not a lot of seating this year, especially at the bbno$ concert, so I was thankful I had it. I was not in as much pain the next day as I could have been, I think. It's hard to admit I need stuff like that, but it made one of the few days I could get out and have fun 100x more enjoyable. So fuck what anyone thinks, I'm using my walker when I need it. (and am looking forward to decorating it, it's pretty scuffed up)

#pots #heds #mcas #dysautonomia #chronicallyill #yeg

This summer has been so rough in the #Edmonton area with all the rain. I've been getting a lot of migraines, pain, and fatigue that has been hard to deal with. I actually splurged on some compression socks even though I haven't worn them for a couple years. They definitely help with the swollen feet and dizziness.

My mother-in-law gave me some old walker she had laying around outside, I swallowed my pride and I took it to K-days. (the place where I first suspected I had POTS in 2019, I went on a swingy ride and was screaming because my feet felt like they were going to explode) It was amazing to be able to sit or lean on something whenever I got dizzy or sore. There was not a lot of seating this year, especially at the bbno$ concert, so I was thankful I had it. I was not in as much pain the next day as I could have been, I think. It's hard to admit I need stuff like that, but it made one of the few days I could get out and have fun 100x more enjoyable. So fuck what anyone thinks, I'm using my walker when I need it. (and am looking forward to decorating it, it's pretty scuffed up)

#pots #heds #mcas #dysautonomia #chronicallyill #yeg

More gardening, planting the plants we've bought in the past few weeks. I bought a couple of new pots as well as bringing some back from our naturist club 🌺🪷😊
#gardening #garden #pots #plants #watering #clothesfreeliving #naturist #naturism #naturalhumanbodies #naturalliving #naturalgardening

V. Het zout zij met u
A. EN MET UWER BLOEDDRUK
V. Trekken wij onze kou-ousen op
A. DE KOUSEN ZIJN MET DE LIEZEN
V. Strekt nu allen het been
A. EN OOK HET LICHAAM, AMEN

#pots #middaggebed

V. Het zout zij met u
A. EN MET UWER BLOEDDRUK
V. Trekken wij onze kou-ousen op
A. DE KOUSEN ZIJN MET DE LIEZEN
V. Strekt nu allen het been
A. EN OOK HET LICHAAM, AMEN

#pots #middaggebed

TIL: RJ11 (old telephone cord) cables will plug into RJ45 (ethernet) plugs and connect the middle 4 lines. This is extremely useful in case you want to wire up old phone lines and you happen to have ethernet-oriented parts that are plentiful, cheap, and still manufactured.

Totally unrelated: have any fellow weirdos wired up an analog (POTS) phone system in their house, to use for local* calls?

* room to room

#TMYK #POTS #telephone #RJ11 #RJ45

TIL: RJ11 (old telephone cord) cables will plug into RJ45 (ethernet) plugs and connect the middle 4 lines. This is extremely useful in case you want to wire up old phone lines and you happen to have ethernet-oriented parts that are plentiful, cheap, and still manufactured.

Totally unrelated: have any fellow weirdos wired up an analog (POTS) phone system in their house, to use for local* calls?

* room to room

#TMYK #POTS #telephone #RJ11 #RJ45

Hat jemand Tipps, ob es im Raum Stuttgart jemanden gibt, der sich mit #POTS auskennt? Hab da grad nen sehr starken Verdacht und würde den gern überprüfen lassen, aber ich find leider gar nichts, nicht mal Leute, die nen Kipptischtest anbieten, das kann ja nicht sein?

laughing with my daughter about #ME

#ThereForME
@[email protected]
#ME #Chronicillness #LC
#PEM #POTS #LivesWeCannotLive
#MissingMillions
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected]

I’m on a tour of my relative’s beds in Canada. Joyous days with my daughter

#ThereForME
@[email protected]
@[email protected]
#ME #Chronicillness #LC
#PEM #POTS
#MissingMillions
@[email protected]
@[email protected]
@[email protected]

Hilarisch aan #pots is dat mijn hartslag dus lager is als ik (zonder kracht) meepeddel op de fiets dan wanneer we op een bankje zitten te pauzeren.