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#chronicfatigue — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #chronicfatigue, aggregated by home.social.

  1. Hi there,

    I just wanted to surface a Reddit post here on the fediverse. A very severe/extreme ME/CFS sufferer is currently in a precarious situation and needing financial support.

    Her name is Ali and you can read more about her situation on Reddit here:

    reddit.com/r/cfs/comments/1t11

    Thanks.

    #MECFS #MyalgicEncephalomyelitis #CFS #MyalgicE #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome #spoonie #spoonies

  2. After 2 years working to be able to walk properly again and getting myself off double forearm crutches, and then 4 years being essentially bedridden except for absolute minimal basics of daily life(and some days not even that), yesterday I moved the tv back into the lounge room. Finally feeling like I'm at the stage where I can sit and watch tv without expending too much energy, and still have ability to do other things. It's a big deal. Please clap.

    #fibromyalgia #chronicpain #chronicfatigue

  3. I just wanted to say a huge thank you to MEAction Network (meaction.net/) and Visible (makevisible.com/) for the Visible band I won last month 👍 Having had ME/CFS for over 15 years I thought I knew everything about pacing but the Visible band has even taught this old dog some new tricks. Very cool 😎

    #MECFS #MEAction #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #ChronicIllness #CFS #Spoons #Spoonie #Pacing #Health #Visible #Visibleband

  4. I just wanted to say a huge thank you to MEAction Network (meaction.net/) and Visible (makevisible.com/) for the Visible band I won last month 👍 Having had ME/CFS for over 15 years I thought I knew everything about pacing but the Visible band has even taught this old dog some new tricks. Very cool 😎

    #MECFS #MEAction #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #ChronicIllness #CFS #Spoons #Spoonie #Pacing #Health #Visible #Visibleband

  5. I just wanted to say a huge thank you to MEAction Network (meaction.net/) and Visible (makevisible.com/) for the Visible band I won last month 👍 Having had ME/CFS for over 15 years I thought I knew everything about pacing but the Visible band has even taught this old dog some new tricks. Very cool 😎

    #MECFS #MEAction #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #ChronicIllness #CFS #Spoons #Spoonie #Pacing #Health #Visible #Visibleband

  6. I just wanted to say a huge thank you to MEAction Network (meaction.net/) and Visible (makevisible.com/) for the Visible band I won last month 👍 Having had ME/CFS for over 15 years I thought I knew everything about pacing but the Visible band has even taught this old dog some new tricks. Very cool 😎

    #MECFS #MEAction #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #ChronicIllness #CFS #Spoons #Spoonie #Pacing #Health #Visible #Visibleband

  7. I just wanted to say a huge thank you to MEAction Network (meaction.net/) and Visible (makevisible.com/) for the Visible band I won last month 👍 Having had ME/CFS for over 15 years I thought I knew everything about pacing but the Visible band has even taught this old dog some new tricks. Very cool 😎

    #MECFS #MEAction #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #ChronicIllness #CFS #Spoons #Spoonie #Pacing #Health #Visible #Visibleband

  8. Massive breakthroughs with my own journey with disability today, and the realisation that I was treating a whole load of(mundane)tasks as things just I had to do before "real work" on other things. Truth is, it's ALL work. It all takes energy, especially as a disabled guy. I feel like this is a pivotal shift, and will help me be able to allocate my energy better, as well as feel like I am achieving things better.

    #disability #disabled #fibromyalgia #cptsd #chronicpain #chronicfatigue

  9. Just realized the weight ive recently put on might actually be muscle??? Crying bc no other reaction feels to quite fit this emotion im experiencing/failing to name

    I havent been trying to gain or lose weight, just doing range of motion and flexibility stuff plus the odd dance movement with a fancy French name... i have a few what feel to me both modest and extravagant dance aspirations, so in some ways this development makes sense, its just so incredibly alien to me to actually detect progress toward those goals!!

    For context: ive been #chronicallyill since at least 2012, and was fully bedridden for at least seven of those years. Im still rather severely mentally ill but my body has been doing somewhat better lately (ongoing problems notwithstanding), for which im endlessly grateful and going to make the most of while I can, whatever that ends up looking like

    Random snaps my partner took of me the other day, for attention and bc i look fantastic 🩷

    #ChronicFatigue #ChronicPain #mecfs #fibromyalgia #hypermobility

  10. Just realized the weight ive recently put on might actually be muscle??? Crying bc no other reaction feels to quite fit this emotion im experiencing/failing to name

    I havent been trying to gain or lose weight, just doing range of motion and flexibility stuff plus the odd dance movement with a fancy French name... i have a few what feel to me both modest and extravagant dance aspirations, so in some ways this development makes sense, its just so incredibly alien to me to actually detect progress toward those goals!!

    For context: ive been #chronicallyill since at least 2012, and was fully bedridden for at least seven of those years. Im still rather severely mentally ill but my body has been doing somewhat better lately (ongoing problems notwithstanding), for which im endlessly grateful and going to make the most of while I can, whatever that ends up looking like

    Random snaps my partner took of me the other day, for attention and bc i look fantastic 🩷

    #ChronicFatigue #ChronicPain #mecfs #fibromyalgia #hypermobility

  11. Just realized the weight ive recently put on might actually be muscle??? Crying bc no other reaction feels to quite fit this emotion im experiencing/failing to name

    I havent been trying to gain or lose weight, just doing range of motion and flexibility stuff plus the odd dance movement with a fancy French name... i have a few what feel to me both modest and extravagant dance aspirations, so in some ways this development makes sense, its just so incredibly alien to me to actually detect progress toward those goals!!

    For context: ive been #chronicallyill since at least 2012, and was fully bedridden for at least seven of those years. Im still rather severely mentally ill but my body has been doing somewhat better lately (ongoing problems notwithstanding), for which im endlessly grateful and going to make the most of while I can, whatever that ends up looking like

    Random snaps my partner took of me the other day, for attention and bc i look fantastic 🩷

    #ChronicFatigue #ChronicPain #mecfs #fibromyalgia #hypermobility

  12. Just realized the weight ive recently put on might actually be muscle??? Crying bc no other reaction feels to quite fit this emotion im experiencing/failing to name

    I havent been trying to gain or lose weight, just doing range of motion and flexibility stuff plus the odd dance movement with a fancy French name... i have a few what feel to me both modest and extravagant dance aspirations, so in some ways this development makes sense, its just so incredibly alien to me to actually detect progress toward those goals!!

    For context: ive been #chronicallyill since at least 2012, and was fully bedridden for at least seven of those years. Im still rather severely mentally ill but my body has been doing somewhat better lately (ongoing problems notwithstanding), for which im endlessly grateful and going to make the most of while I can, whatever that ends up looking like

    Random snaps my partner took of me the other day, for attention and bc i look fantastic 🩷

    #ChronicFatigue #ChronicPain #mecfs #fibromyalgia #hypermobility

  13. Just realized the weight ive recently put on might actually be muscle??? Crying bc no other reaction feels to quite fit this emotion im experiencing/failing to name

    I havent been trying to gain or lose weight, just doing range of motion and flexibility stuff plus the odd dance movement with a fancy French name... i have a few what feel to me both modest and extravagant dance aspirations, so in some ways this development makes sense, its just so incredibly alien to me to actually detect progress toward those goals!!

    For context: ive been #chronicallyill since at least 2012, and was fully bedridden for at least seven of those years. Im still rather severely mentally ill but my body has been doing somewhat better lately (ongoing problems notwithstanding), for which im endlessly grateful and going to make the most of while I can, whatever that ends up looking like

    Random snaps my partner took of me the other day, for attention and bc i look fantastic 🩷

    #ChronicFatigue #ChronicPain #mecfs #fibromyalgia #hypermobility

  14. "The proper way to talk about what I’m doing is to say that I use fitness trackers to “pace.” #Pacing is an energy management technique that involves balancing periods of activity with periods of rest to avoid physical and mental overexertion. The idea behind the practice is that by carefully planning and prioritizing the tasks and activities you do throughout your day, people with energy-limiting conditions like mine can avoid falling into a cycle of repeated crashes or worsening symptoms. Pacing isn’t a cure or even a way to improve your overall condition, at least not inherently. But for many people with these conditions — folks with #MECFs (#LongCovid or formerly referred to as “#chronicfatigue”), #POTS, #fibromyalgia, or even #Parkinson’s, for example — pacing can make life a little more predictable."

    theverge.com/features/889835/f

  15. Young Woman Has Health Issues That Create An Odd Sleeping Schedule, So She Gets Offended When Her Roommate Complains That She’s “Always Asleep” » TwistedSifter

    Pexels/Reddit Serious health issues can complicate our daily living situations. This young woman sleeps a lot due to…
    #NewsBeep #News #Health #aita #CA #Canada #chronicfatigue #classes #dorm #Medication #picture #Reddit #roommate #Sleep #top
    newsbeep.com/ca/434163/

  16. nature.com/news/2006/060417/fu “Immune dysregulation appears prominently, with elevated cytokines like interferon gamma, autoantibodies, and altered T-cell and NK-cell activity” - 🔬in other words chronic fatigue syndrome is a real thing. #science #medicine #chronicfatigue #education #psychology #mooddisorders

  17. I don’t know what is wrong with me, apart from all the things that are wrong with me, but I just can’t today. I’m so exhausted.

    #ChronicFatigue #CFSME #Fibromyalgia #IBS #Type2Diabetic #Anxiety #Depression #AuDHD #Autistic #ADHD #Exhausted

  18. Preliminary study of >15,500 people revealed possible #genetic clues 2 common but overlooked condition called myalgic encephalomyelitis #chronicfatigue syndrome. Millions of people R thought to have ME/CFS worldwide, it is debilitating, but not well understood and has long been dismissed as #psychological rather than physical condition. researchers uncovered 8 #genomic regions associated w ME/CFS, including some that overlap w or R near genes involved in immune function. science.org/content/article/po

  19. By @RTHM_Health

    "A new study suggests that exercise doesn’t clear microclots in people with Long COVID—it just fragments them into smaller ones. These smaller clots are linked to increased inflammation and impaired oxygen transport, which may help explain post-exertional malaise (PEM) and post-exertional symptom exacerbation (PESE)—a worsening of symptoms after even mild physical or mental effort."

    "Researchers observed these microclot and inflammatory changes even after submaximal exertion, highlighting the need for caution when recommending exercise-based therapies."

    Want more research breakdowns like this? Sign up for our email list at linktr.ee/rthm_health

    🔗 DOI: doi.org/10.21203/rs.3.rs-67177

    #LongCOVID #ChronicFatigue #pwLC #PostCOVID #rthm_health #LongCOVIDResearch #PESE #PEM #IACC #COVID19 #Microclots @auscovid19

  20. 7.7: Ariel & Christina Discuss Living with a Disability as a Solarpunk

    Today Christina talks to Ariel about what it's been like to live as a solarpunk with a visible - and then invisible - disability. Science fiction has spent decades dreaming of how future tech will make disabled people able to function as if they were fully abled. Now solarpunk has arrived on the scene to ask why should disabled bodies have to always be the ones to adapt? It can be uncomfortable, intrusive - not to mention expensive. Solarpunk wonders why can't cities, society, workplaces, and the like be the ones to use the tech to make themselves more accessible to and inclusive of disabled people?

    Tune in as Ariel and Christina discuss the portrayal of disability in science fiction and solarpunk and how having to suddenly live with a disability opens your eyes to many of the ways cities fail people with disabilities.

    youtu.be/nITURrKfwvI

    #solarpunk #SolarpunkPresentsPodcast #Episode #SeasonSeven #disability #spoony #SpoonTheory #spoonies #ChronicPain #ChronicFatigue #SolarpunkAndDisability #Ableism #InvisibleDisability #ScienceFiction #SciFiAndDisability

  21. Wellllll, I think I am getting sick again.

    Not sure what it is this time yet, but I sure do feel like ass. If you need me, I’ll be asleep or watching Gossip Girl on Netflix in a delirious blanket lump.. -Allēna

    #NEISvoid, #chronicfatigue, #sorethroat, #quindemic, #eepy, #delirium, #sickly

    #chronicfatigue #delirium #eepy #NEISvoid #quindemic #sickly #sorethroat

  22. Wellllll, I think I am getting sick again.

    Not sure what it is this time yet, but I sure do feel like ass. If you need me, I’ll be asleep or watching Gossip Girl on Netflix in a delirious blanket lump.. -Allēna

    #NEISvoid, #chronicfatigue, #sorethroat, #quindemic, #eepy, #delirium, #sickly

    #chronicfatigue #delirium #eepy #NEISvoid #quindemic #sickly #sorethroat

  23. What’s this? Another prompt I want to actually take somewhat seriously?

    Who are your favorite people to be around?

    People who are straightforward, honest, and the only bullshit they give me is the joking kind. Preferably, they can see shit about me that I can’t, and can do shit that I can’t without making me feel like shit for it. They don’t talk my ear off constantly about meaningless shit and believe that words have as much power as actions and use both in tandem.

    I’m very picky about the people I surround myself with, and it’s a high bar because I have made peace with solitude most days, being mostly housebound and all, to the point where if I prefer being alone more than I enjoy spending time with a person, I simply won’t engage with them if I don’t have to. I am too tired and have too much shit to do (as well as people I actually like) to pay the people I dislike much mind. My energy is precious and I don’t have much of it. So I do my best to use it wisely. My favorite people get that and go to great lengths to help me protect the little energy I have.

    I’m not proud of a lot of the way my life has gone, and there’s a lot that happened that’s entirely outside of my control. However, I’m damn proud of the fact that I picked great people.

    -Allēna

    #charisma #chronicfatigue #chronicillness #community #CripplePunk #dailyprompt #dailyprompt1854 #Disabled #eepy #friends #hopeposting #housebound #jointhypermobility #jointpain #MECFS #NEISvoid #neurodivergence #partners #queer #socialtime #Spoonie #strokesurvivor #winning

  24. What’s this? Another prompt I want to actually take somewhat seriously?

    Who are your favorite people to be around?

    People who are straightforward, honest, and the only bullshit they give me is the joking kind. Preferably, they can see shit about me that I can’t, and can do shit that I can’t without making me feel like shit for it. They don’t talk my ear off constantly about meaningless shit and believe that words have as much power as actions and use both in tandem.

    I’m very picky about the people I surround myself with, and it’s a high bar because I have made peace with solitude most days, being mostly housebound and all, to the point where if I prefer being alone more than I enjoy spending time with a person, I simply won’t engage with them if I don’t have to. I am too tired and have too much shit to do (as well as people I actually like) to pay the people I dislike much mind. My energy is precious and I don’t have much of it. So I do my best to use it wisely. My favorite people get that and go to great lengths to help me protect the little energy I have.

    I’m not proud of a lot of the way my life has gone, and there’s a lot that happened that’s entirely outside of my control. However, I’m damn proud of the fact that I picked great people.

    -Allēna

    #charisma #chronicfatigue #chronicillness #community #CripplePunk #dailyprompt #dailyprompt1854 #Disabled #eepy #friends #hopeposting #housebound #jointhypermobility #jointpain #MECFS #NEISvoid #neurodivergence #partners #queer #socialtime #Spoonie #strokesurvivor #winning

  25. 2/

    "Preexisting psychiatric conditions did not significantly modify the risk of postacute fatigue symptoms."

    #LongCovid #PVFS #Fatigue #ChronicFatigue
    @longcovid @covid19 #mecfs @mecfs #LongCovid

  26. Feeling really frustrated and overwhelmed lately. The job hunt has been tough, and dealing with the lack of protections for medical cannabis just adds to the stress. It’s hard to stay motivated when I’m constantly exhausted and feeling like I’m not good enough. The loneliness in this struggle is real, and it’s taking a toll on me.

    #JobHunt #MentalHealth #MedicalCannabis #ChronicFatigue #Autism #ADHD #FeelingAlone #StruggleIsReal #SupportNeeded #Frustrated #Venting

  27. Feeling really frustrated and overwhelmed lately. The job hunt has been tough, and dealing with the lack of protections for medical cannabis just adds to the stress. It’s hard to stay motivated when I’m constantly exhausted and feeling like I’m not good enough. The loneliness in this struggle is real, and it’s taking a toll on me.

    #JobHunt #MentalHealth #MedicalCannabis #ChronicFatigue #Autism #ADHD #FeelingAlone #StruggleIsReal #SupportNeeded #Frustrated #Venting

  28. Feeling really frustrated and overwhelmed lately. The job hunt has been tough, and dealing with the lack of protections for medical cannabis just adds to the stress. It’s hard to stay motivated when I’m constantly exhausted and feeling like I’m not good enough. The loneliness in this struggle is real, and it’s taking a toll on me.

    #JobHunt #MentalHealth #MedicalCannabis #ChronicFatigue #Autism #ADHD #FeelingAlone #StruggleIsReal #SupportNeeded #Frustrated #Venting

  29. Feeling really frustrated and overwhelmed lately. The job hunt has been tough, and dealing with the lack of protections for medical cannabis just adds to the stress. It’s hard to stay motivated when I’m constantly exhausted and feeling like I’m not good enough. The loneliness in this struggle is real, and it’s taking a toll on me.

    #JobHunt #MentalHealth #MedicalCannabis #ChronicFatigue #Autism #ADHD #FeelingAlone #StruggleIsReal #SupportNeeded #Frustrated #Venting