#chronicfatigue — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #chronicfatigue, aggregated by home.social.
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TL;DR: if you're consistently extremely low on energy, especially if exercise comes with mental 'fog' or delayed feelings of being drained, do not follow medical advice to gradually increase exercise to rebuild capacity until you've read up on #ChronicFatigue and #PEM (post-exertional malaise).
This one hits quite close to home; Monbiot in the Guardian gives a searing but accurate look at how poor support for anyone with #ChronicFatague / #ME / #LongCovid is in the UK and Europe - which probably includes millions of people. Why do I know it's accurate? Because I've been out of work for well over 18 months myself suffering from the condition, and I have been given exactly the bad advice in the article and had exactly the same dismissal from doctors (apart from the sexism, but that's only because I was 'lucky' enough to be born male). I don't spend a huge amount of time in the opinion sections of newspapers, but sometimes things end up there because nobody actually talking about them as news.
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TL;DR: if you're consistently extremely low on energy, especially if exercise comes with mental 'fog' or delayed feelings of being drained, do not follow medical advice to gradually increase exercise to rebuild capacity until you've read up on #ChronicFatigue and #PEM (post-exertional malaise).
This one hits quite close to home; Monbiot in the Guardian gives a searing but accurate look at how poor support for anyone with #ChronicFatague / #ME / #LongCovid is in the UK and Europe - which probably includes millions of people. Why do I know it's accurate? Because I've been out of work for well over 18 months myself suffering from the condition, and I have been given exactly the bad advice in the article and had exactly the same dismissal from doctors (apart from the sexism, but that's only because I was 'lucky' enough to be born male). I don't spend a huge amount of time in the opinion sections of newspapers, but sometimes things end up there because nobody actually talking about them as news.
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TL;DR: if you're consistently extremely low on energy, especially if exercise comes with mental 'fog' or delayed feelings of being drained, do not follow medical advice to gradually increase exercise to rebuild capacity until you've read up on #ChronicFatigue and #PEM (post-exertional malaise).
This one hits quite close to home; Monbiot in the Guardian gives a searing but accurate look at how poor support for anyone with #ChronicFatague / #ME / #LongCovid is in the UK and Europe - which probably includes millions of people. Why do I know it's accurate? Because I've been out of work for well over 18 months myself suffering from the condition, and I have been given exactly the bad advice in the article and had exactly the same dismissal from doctors (apart from the sexism, but that's only because I was 'lucky' enough to be born male). I don't spend a huge amount of time in the opinion sections of newspapers, but sometimes things end up there because nobody actually talking about them as news.
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TL;DR: if you're consistently extremely low on energy, especially if exercise comes with mental 'fog' or delayed feelings of being drained, do not follow medical advice to gradually increase exercise to rebuild capacity until you've read up on #ChronicFatigue and #PEM (post-exertional malaise).
This one hits quite close to home; Monbiot in the Guardian gives a searing but accurate look at how poor support for anyone with #ChronicFatague / #ME / #LongCovid is in the UK and Europe - which probably includes millions of people. Why do I know it's accurate? Because I've been out of work for well over 18 months myself suffering from the condition, and I have been given exactly the bad advice in the article and had exactly the same dismissal from doctors (apart from the sexism, but that's only because I was 'lucky' enough to be born male). I don't spend a huge amount of time in the opinion sections of newspapers, but sometimes things end up there because nobody actually talking about them as news.
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TL;DR: if you're consistently extremely low on energy, especially if exercise comes with mental 'fog' or delayed feelings of being drained, do not follow medical advice to gradually increase exercise to rebuild capacity until you've read up on #ChronicFatigue and #PEM (post-exertional malaise).
This one hits quite close to home; Monbiot in the Guardian gives a searing but accurate look at how poor support for anyone with #ChronicFatague / #ME / #LongCovid is in the UK and Europe - which probably includes millions of people. Why do I know it's accurate? Because I've been out of work for well over 18 months myself suffering from the condition, and I have been given exactly the bad advice in the article and had exactly the same dismissal from doctors (apart from the sexism, but that's only because I was 'lucky' enough to be born male). I don't spend a huge amount of time in the opinion sections of newspapers, but sometimes things end up there because nobody actually talking about them as news.
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PSA for couriers: the only upside of #ChronicFatigue is that I am at my home when you try and deliver. Could you at least ring the doorbell?
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PSA for couriers: the only upside of #ChronicFatigue is that I am at my home when you try and deliver. Could you at least ring the doorbell?
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PSA for couriers: the only upside of #ChronicFatigue is that I am at my home when you try and deliver. Could you at least ring the doorbell?
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PSA for couriers: the only upside of #ChronicFatigue is that I am at my home when you try and deliver. Could you at least ring the doorbell?
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PSA for couriers: the only upside of #ChronicFatigue is that I am at my home when you try and deliver. Could you at least ring the doorbell?
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Very recent videopresentation about ME/CFS and potential treatment using novel molecule IVO-21, from dr Jay H. Chung lab.
#MECFS #BrainFog #LongCovid #Mitochondria #ChronicFatigue
https://www.youtube.com/watch?v=IBXYhRInY0o -
Very recent videopresentation about ME/CFS and potential treatment using novel molecule IVO-21, from dr Jay H. Chung lab.
#MECFS #BrainFog #LongCovid #Mitochondria #ChronicFatigue
https://www.youtube.com/watch?v=IBXYhRInY0o -
Very recent videopresentation about ME/CFS and potential treatment using novel molecule IVO-21, from dr Jay H. Chung lab.
#MECFS #BrainFog #LongCovid #Mitochondria #ChronicFatigue
https://www.youtube.com/watch?v=IBXYhRInY0o -
Very recent videopresentation about ME/CFS and potential treatment using novel molecule IVO-21, from dr Jay H. Chung lab.
#MECFS #BrainFog #LongCovid #Mitochondria #ChronicFatigue
https://www.youtube.com/watch?v=IBXYhRInY0o -
Very recent videopresentation about ME/CFS and potential treatment using novel molecule IVO-21, from dr Jay H. Chung lab.
#MECFS #BrainFog #LongCovid #Mitochondria #ChronicFatigue
https://www.youtube.com/watch?v=IBXYhRInY0o -
RE: https://disabled.social/@tomkindlon/117181233011091011
Aussies, here you go. Boost for reach.
#disabled #chronicillness #mecfsawareness #mecfs #chronicfatigue
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RE: https://disabled.social/@tomkindlon/117181233011091011
Aussies, here you go. Boost for reach.
#disabled #chronicillness #mecfsawareness #mecfs #chronicfatigue
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RE: https://disabled.social/@tomkindlon/117181233011091011
Aussies, here you go. Boost for reach.
#disabled #chronicillness #mecfsawareness #mecfs #chronicfatigue
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RE: https://disabled.social/@tomkindlon/117181233011091011
Aussies, here you go. Boost for reach.
#disabled #chronicillness #mecfsawareness #mecfs #chronicfatigue
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RE: https://disabled.social/@tomkindlon/117181233011091011
Aussies, here you go. Boost for reach.
#disabled #chronicillness #mecfsawareness #mecfs #chronicfatigue
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https://www.europesays.com/videos/80341/ Channel Island students continue to outperform UK counterparts in GCSEs | ITV News Channel #alderney #ChannelIslands #ChronicFatigue #economy #farming #GCSE #GCSEs #guernsey #Health #healthcare #herm #itv #ItvNews #ItvNewsChannel #ITVNewsInFull #jersey #MinimumWage #news #police #race #racing #ResultsDay #sark #triathlete #triathlon
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I'm very bad at pacing, I get excited and don't know my limit until I go past it. I had another crash. It's been really bad over the last 7-8 days. So if anyone else paces for chronic pain and chronic fatigue I'd love to know what works for you.
This is aimed at people who are dealing with chronic pain and / or chronic fatigue, so if you are not dealing with these I'd rather respectfully ask for a boost than advice or comments.
I used to have a Fitbit to help me track what I was doing but one of the metal plates on the back came off. I could glue it back on but knowing my luck, I don't know if that would interfere with it's function. 🤔
Edit: Thank you for the suggestions. ❤️ I will try to see if I can repair my Fitbit and possibly save for a Garmin to help me manage these symptoms.
#disability #fatigue #chronicfatigue #chronicillness #chronicpain
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I'm very bad at pacing, I get excited and don't know my limit until I go past it. I had another crash. It's been really bad over the last 7-8 days. So if anyone else paces for chronic pain and chronic fatigue I'd love to know what works for you.
This is aimed at people who are dealing with chronic pain and / or chronic fatigue, so if you are not dealing with these I'd rather respectfully ask for a boost than advice or comments.
I used to have a Fitbit to help me track what I was doing but one of the metal plates on the back came off. I could glue it back on but knowing my luck, I don't know if that would interfere with it's function. 🤔
Edit: Thank you for the suggestions. ❤️ I will try to see if I can repair my Fitbit and possibly save for a Garmin to help me manage these symptoms.
#disability #fatigue #chronicfatigue #chronicillness #chronicpain
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I'm very bad at pacing, I get excited and don't know my limit until I go past it. I had another crash. It's been really bad over the last 7-8 days. So if anyone else paces for chronic pain and chronic fatigue I'd love to know what works for you.
This is aimed at people who are dealing with chronic pain and / or chronic fatigue, so if you are not dealing with these I'd rather respectfully ask for a boost than advice or comments.
I used to have a Fitbit to help me track what I was doing but one of the metal plates on the back came off. I could glue it back on but knowing my luck, I don't know if that would interfere with it's function. 🤔
Edit: Thank you for the suggestions. ❤️ I will try to see if I can repair my Fitbit and possibly save for a Garmin to help me manage these symptoms.
#disability #fatigue #chronicfatigue #chronicillness #chronicpain
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I'm very bad at pacing, I get excited and don't know my limit until I go past it. I had another crash. It's been really bad over the last 7-8 days. So if anyone else paces for chronic pain and chronic fatigue I'd love to know what works for you.
This is aimed at people who are dealing with chronic pain and / or chronic fatigue, so if you are not dealing with these I'd rather respectfully ask for a boost than advice or comments.
I used to have a Fitbit to help me track what I was doing but one of the metal plates on the back came off. I could glue it back on but knowing my luck, I don't know if that would interfere with it's function. 🤔
Edit: Thank you for the suggestions. ❤️ I will try to see if I can repair my Fitbit and possibly save for a Garmin to help me manage these symptoms.
#disability #fatigue #chronicfatigue #chronicillness #chronicpain
-
I'm very bad at pacing, I get excited and don't know my limit until I go past it. I had another crash. It's been really bad over the last 7-8 days. So if anyone else paces for chronic pain and chronic fatigue I'd love to know what works for you.
This is aimed at people who are dealing with chronic pain and / or chronic fatigue, so if you are not dealing with these I'd rather respectfully ask for a boost than advice or comments.
I used to have a Fitbit to help me track what I was doing but one of the metal plates on the back came off. I could glue it back on but knowing my luck, I don't know if that would interfere with it's function. 🤔
Edit: Thank you for the suggestions. ❤️ I will try to see if I can repair my Fitbit and possibly save for a Garmin to help me manage these symptoms.
#disability #fatigue #chronicfatigue #chronicillness #chronicpain
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A Common Antidepressant Medication Eases Long COVID’s Crushing Fatigue. #LongCOVID #Fluvoxamine #COVID19 #MedicalResearch #ChronicFatigue
https://www.instagram.com/p/DblrZZ2h8r0/ -
A Common Antidepressant Medication Eases Long COVID’s Crushing Fatigue. #LongCOVID #Fluvoxamine #COVID19 #MedicalResearch #ChronicFatigue
https://www.instagram.com/p/DblrZZ2h8r0/ -
Share your story below. Let’s remind each other we’re not failing — we’re enduring.
#ChronicFatigue #InvisibleIllness #FinancialStruggle #ChronicIllness #MentalHealthMatters
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This week has felt like being stretched thin between hope and heaviness, a kind of ache under the skin that refuses to be smoothed over. Scrolling through timelines and hashtags has been more like wandering in unfamiliar streets than finding a home, a restless motion through spaces that don’t quite know what to do with people like me. Every platform promises connection, yet so many conversations skate across the surface, too fast and polished for the slower, tangled reality of neurodivergent and disabled lives.
Community keeps tugging at my thoughts, demanding a deeper definition than follower counts, boosts or reach. Connection becomes real when someone else carries similar static in their head and is trying to carve out something gentler for themselves and others, without pretending it’s easy. Timelines feel different when posts about neurodiversity and disability emerge from lived experience rather than from branding or performance. Some days, those posts light up my screen and remind me that others are fighting the same internal battles. Other days, it feels like standing in a noisy room where our existence is discussed like a topic, not honoured as a lived reality.
Labour has become impossible to ignore. Emotional labour. Cognitive labour. Sensory labour. Curating feeds to protect fragile nervous systems, blocking harm before it embeds, tracking subtle ableism in replies and boosts, choosing between educating yet again and guarding limited energy. Social media carries a quiet toll when you are the one translating your experience into digestible fragments so others don’t turn away. That toll rarely appears in cheerful posts about community, but it weighs on the people whose identities are constantly explained and defended.
Under all the frustration, a tender strand keeps me from walking away. Care, stubborn and inconvenient, threads through everything. Care for strangers who cling to timelines because offline life hurts too much. Care for the possibility that one honest post about burnout, sensory overload, or faith in crisis might reach someone on a night when they’re wondering if they can keep going. Care for the dream that we are slowly cobbling together spaces where neurodivergent and disabled people don’t have to sand off their edges to be tolerated.
Resolution doesn’t appear, and maybe that’s honest. Exhaustion is real, yet presence continues. New platforms and instances are tested, different timelines explored, not out of a desire for novelty but out of a longing for places that can hold the complexity of living at the intersections of neurodivergence, disability, and spiritual fatigue. Quiet, uncompromising voices keep posting from the margins, refusing to dilute their truth to fit a neat narrative. Effort from those voices matters, even when algorithms barely notice. Void or no void, scattered or gathered, the fact that we keep speaking from these edges means our lives are more than background noise, and that conviction alone keeps me here.
#ActuallyAutistic #AutisticAndADHD #Neurodivergent #Disability #ChronicFatigue #MentalHealth #TraumaRecovery #SpiritualBurnout #Fediverse #Mastodon #DisabledAndNeurodivergent
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This week has felt like being stretched thin between hope and heaviness, a kind of ache under the skin that refuses to be smoothed over. Scrolling through timelines and hashtags has been more like wandering in unfamiliar streets than finding a home, a restless motion through spaces that don’t quite know what to do with people like me. Every platform promises connection, yet so many conversations skate across the surface, too fast and polished for the slower, tangled reality of neurodivergent and disabled lives.
Community keeps tugging at my thoughts, demanding a deeper definition than follower counts, boosts or reach. Connection becomes real when someone else carries similar static in their head and is trying to carve out something gentler for themselves and others, without pretending it’s easy. Timelines feel different when posts about neurodiversity and disability emerge from lived experience rather than from branding or performance. Some days, those posts light up my screen and remind me that others are fighting the same internal battles. Other days, it feels like standing in a noisy room where our existence is discussed like a topic, not honoured as a lived reality.
Labour has become impossible to ignore. Emotional labour. Cognitive labour. Sensory labour. Curating feeds to protect fragile nervous systems, blocking harm before it embeds, tracking subtle ableism in replies and boosts, choosing between educating yet again and guarding limited energy. Social media carries a quiet toll when you are the one translating your experience into digestible fragments so others don’t turn away. That toll rarely appears in cheerful posts about community, but it weighs on the people whose identities are constantly explained and defended.
Under all the frustration, a tender strand keeps me from walking away. Care, stubborn and inconvenient, threads through everything. Care for strangers who cling to timelines because offline life hurts too much. Care for the possibility that one honest post about burnout, sensory overload, or faith in crisis might reach someone on a night when they’re wondering if they can keep going. Care for the dream that we are slowly cobbling together spaces where neurodivergent and disabled people don’t have to sand off their edges to be tolerated.
Resolution doesn’t appear, and maybe that’s honest. Exhaustion is real, yet presence continues. New platforms and instances are tested, different timelines explored, not out of a desire for novelty but out of a longing for places that can hold the complexity of living at the intersections of neurodivergence, disability, and spiritual fatigue. Quiet, uncompromising voices keep posting from the margins, refusing to dilute their truth to fit a neat narrative. Effort from those voices matters, even when algorithms barely notice. Void or no void, scattered or gathered, the fact that we keep speaking from these edges means our lives are more than background noise, and that conviction alone keeps me here.
#ActuallyAutistic #AutisticAndADHD #Neurodivergent #Disability #ChronicFatigue #MentalHealth #TraumaRecovery #SpiritualBurnout #Fediverse #Mastodon #DisabledAndNeurodivergent
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This week has felt like being stretched thin between hope and heaviness, a kind of ache under the skin that refuses to be smoothed over. Scrolling through timelines and hashtags has been more like wandering in unfamiliar streets than finding a home, a restless motion through spaces that don’t quite know what to do with people like me. Every platform promises connection, yet so many conversations skate across the surface, too fast and polished for the slower, tangled reality of neurodivergent and disabled lives.
Community keeps tugging at my thoughts, demanding a deeper definition than follower counts, boosts or reach. Connection becomes real when someone else carries similar static in their head and is trying to carve out something gentler for themselves and others, without pretending it’s easy. Timelines feel different when posts about neurodiversity and disability emerge from lived experience rather than from branding or performance. Some days, those posts light up my screen and remind me that others are fighting the same internal battles. Other days, it feels like standing in a noisy room where our existence is discussed like a topic, not honoured as a lived reality.
Labour has become impossible to ignore. Emotional labour. Cognitive labour. Sensory labour. Curating feeds to protect fragile nervous systems, blocking harm before it embeds, tracking subtle ableism in replies and boosts, choosing between educating yet again and guarding limited energy. Social media carries a quiet toll when you are the one translating your experience into digestible fragments so others don’t turn away. That toll rarely appears in cheerful posts about community, but it weighs on the people whose identities are constantly explained and defended.
Under all the frustration, a tender strand keeps me from walking away. Care, stubborn and inconvenient, threads through everything. Care for strangers who cling to timelines because offline life hurts too much. Care for the possibility that one honest post about burnout, sensory overload, or faith in crisis might reach someone on a night when they’re wondering if they can keep going. Care for the dream that we are slowly cobbling together spaces where neurodivergent and disabled people don’t have to sand off their edges to be tolerated.
Resolution doesn’t appear, and maybe that’s honest. Exhaustion is real, yet presence continues. New platforms and instances are tested, different timelines explored, not out of a desire for novelty but out of a longing for places that can hold the complexity of living at the intersections of neurodivergence, disability, and spiritual fatigue. Quiet, uncompromising voices keep posting from the margins, refusing to dilute their truth to fit a neat narrative. Effort from those voices matters, even when algorithms barely notice. Void or no void, scattered or gathered, the fact that we keep speaking from these edges means our lives are more than background noise, and that conviction alone keeps me here.
#ActuallyAutistic #AutisticAndADHD #Neurodivergent #Disability #ChronicFatigue #MentalHealth #TraumaRecovery #SpiritualBurnout #Fediverse #Mastodon #DisabledAndNeurodivergent
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This week has felt like being stretched thin between hope and heaviness, a kind of ache under the skin that refuses to be smoothed over. Scrolling through timelines and hashtags has been more like wandering in unfamiliar streets than finding a home, a restless motion through spaces that don’t quite know what to do with people like me. Every platform promises connection, yet so many conversations skate across the surface, too fast and polished for the slower, tangled reality of neurodivergent and disabled lives.
Community keeps tugging at my thoughts, demanding a deeper definition than follower counts, boosts or reach. Connection becomes real when someone else carries similar static in their head and is trying to carve out something gentler for themselves and others, without pretending it’s easy. Timelines feel different when posts about neurodiversity and disability emerge from lived experience rather than from branding or performance. Some days, those posts light up my screen and remind me that others are fighting the same internal battles. Other days, it feels like standing in a noisy room where our existence is discussed like a topic, not honoured as a lived reality.
Labour has become impossible to ignore. Emotional labour. Cognitive labour. Sensory labour. Curating feeds to protect fragile nervous systems, blocking harm before it embeds, tracking subtle ableism in replies and boosts, choosing between educating yet again and guarding limited energy. Social media carries a quiet toll when you are the one translating your experience into digestible fragments so others don’t turn away. That toll rarely appears in cheerful posts about community, but it weighs on the people whose identities are constantly explained and defended.
Under all the frustration, a tender strand keeps me from walking away. Care, stubborn and inconvenient, threads through everything. Care for strangers who cling to timelines because offline life hurts too much. Care for the possibility that one honest post about burnout, sensory overload, or faith in crisis might reach someone on a night when they’re wondering if they can keep going. Care for the dream that we are slowly cobbling together spaces where neurodivergent and disabled people don’t have to sand off their edges to be tolerated.
Resolution doesn’t appear, and maybe that’s honest. Exhaustion is real, yet presence continues. New platforms and instances are tested, different timelines explored, not out of a desire for novelty but out of a longing for places that can hold the complexity of living at the intersections of neurodivergence, disability, and spiritual fatigue. Quiet, uncompromising voices keep posting from the margins, refusing to dilute their truth to fit a neat narrative. Effort from those voices matters, even when algorithms barely notice. Void or no void, scattered or gathered, the fact that we keep speaking from these edges means our lives are more than background noise, and that conviction alone keeps me here.
#ActuallyAutistic #AutisticAndADHD #Neurodivergent #Disability #ChronicFatigue #MentalHealth #TraumaRecovery #SpiritualBurnout #Fediverse #Mastodon #DisabledAndNeurodivergent
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This week has felt like being stretched thin between hope and heaviness, a kind of ache under the skin that refuses to be smoothed over. Scrolling through timelines and hashtags has been more like wandering in unfamiliar streets than finding a home, a restless motion through spaces that don’t quite know what to do with people like me. Every platform promises connection, yet so many conversations skate across the surface, too fast and polished for the slower, tangled reality of neurodivergent and disabled lives.
Community keeps tugging at my thoughts, demanding a deeper definition than follower counts, boosts or reach. Connection becomes real when someone else carries similar static in their head and is trying to carve out something gentler for themselves and others, without pretending it’s easy. Timelines feel different when posts about neurodiversity and disability emerge from lived experience rather than from branding or performance. Some days, those posts light up my screen and remind me that others are fighting the same internal battles. Other days, it feels like standing in a noisy room where our existence is discussed like a topic, not honoured as a lived reality.
Labour has become impossible to ignore. Emotional labour. Cognitive labour. Sensory labour. Curating feeds to protect fragile nervous systems, blocking harm before it embeds, tracking subtle ableism in replies and boosts, choosing between educating yet again and guarding limited energy. Social media carries a quiet toll when you are the one translating your experience into digestible fragments so others don’t turn away. That toll rarely appears in cheerful posts about community, but it weighs on the people whose identities are constantly explained and defended.
Under all the frustration, a tender strand keeps me from walking away. Care, stubborn and inconvenient, threads through everything. Care for strangers who cling to timelines because offline life hurts too much. Care for the possibility that one honest post about burnout, sensory overload, or faith in crisis might reach someone on a night when they’re wondering if they can keep going. Care for the dream that we are slowly cobbling together spaces where neurodivergent and disabled people don’t have to sand off their edges to be tolerated.
Resolution doesn’t appear, and maybe that’s honest. Exhaustion is real, yet presence continues. New platforms and instances are tested, different timelines explored, not out of a desire for novelty but out of a longing for places that can hold the complexity of living at the intersections of neurodivergence, disability, and spiritual fatigue. Quiet, uncompromising voices keep posting from the margins, refusing to dilute their truth to fit a neat narrative. Effort from those voices matters, even when algorithms barely notice. Void or no void, scattered or gathered, the fact that we keep speaking from these edges means our lives are more than background noise, and that conviction alone keeps me here.
#ActuallyAutistic #AutisticAndADHD #Neurodivergent #Disability #ChronicFatigue #MentalHealth #TraumaRecovery #SpiritualBurnout #Fediverse #Mastodon #DisabledAndNeurodivergent
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Gang, help. How do you have energy to DO stuff? Like-
I have a solid 3 or 4, could be more, "projects" I'd like to devote regular time to. On top of work, I can do about one "extra" thing a day. And even on weekends I'm RECOVERING so my energy to available time ratio is technically even lower.
Just… maybe I wouldn't hate my stupid miserable life so much if I could ACCOMPLISH some of these GOALS and DREAMS. Like music - I could be recording and releasing but - physical energy, emotional energy, SUSTAINED AND SUSTAINABLE energy, I have none.
And some of the goals need to be worked on almost daily or I won't make any progress, so… that's it. That's my one a day, maybe 5 or 6 days out of the week.
#autistic #autism #adhd #add #audhd #audd #musicians #musician-problems #chronic-illness #chronic-fatigue #cfs #burnout -
Gang, help. How do you have energy to DO stuff? Like-
I have a solid 3 or 4, could be more, "projects" I'd like to devote regular time to. On top of work, I can do about one "extra" thing a day. And even on weekends I'm RECOVERING to my energy to available time ratio is technically even lower.
Just… maybe I wouldn't hate my stupid miserable life so much if I could ACCOMPLISH some of these GOALS and DREAMS. Like music - I could be recording and releasing but - physical energy, emotional energy, SUSTAINED AND SUSTAINABLE energy, I have none.
#autistic #autism #adhd #add #audhd #audd #musicians #musician-problems #chronic-illness #chronic-fatigue #cfs #burnout -
Gang, help. How do you have energy to DO stuff? Like-
I have a solid 3 or 4, could be more, "projects" I'd like to devote regular time to. On top of work, I can do about one "extra" thing a day. And even on weekends I'm RECOVERING so my energy to available time ratio is technically even lower.
Just… maybe I wouldn't hate my stupid miserable life so much if I could ACCOMPLISH some of these GOALS and DREAMS. Like music - I could be recording and releasing but - physical energy, emotional energy, SUSTAINED AND SUSTAINABLE energy, I have none.
And some of the goals need to be worked on almost daily or I won't make any progress, so… that's it. That's my one a day, maybe 5 or 6 days out of the week.
#autistic #autism #adhd #add #audhd #audd #musicians #musician-problems #chronic-illness #chronic-fatigue #cfs #burnout -
Gang, help. How do you have energy to DO stuff? Like-
I have a solid 3 or 4, could be more, "projects" I'd like to devote regular time to. On top of work, I can do about one "extra" thing a day. And even on weekends I'm RECOVERING so my energy to available time ratio is technically even lower.
Just… maybe I wouldn't hate my stupid miserable life so much if I could ACCOMPLISH some of these GOALS and DREAMS. Like music - I could be recording and releasing but - physical energy, emotional energy, SUSTAINED AND SUSTAINABLE energy, I have none.
And some of the goals need to be worked on almost daily or I won't make any progress, so… that's it. That's my one a day, maybe 5 or 6 days out of the week.
#autistic #autism #adhd #add #audhd #audd #musicians #musician-problems #chronic-illness #chronic-fatigue #cfs #burnout -
Gang, help. How do you have energy to DO stuff? Like-
I have a solid 3 or 4, could be more, "projects" I'd like to devote regular time to. On top of work, I can do about one "extra" thing a day. And even on weekends I'm RECOVERING to my energy to available time ratio is technically even lower.
Just… maybe I wouldn't hate my stupid miserable life so much if I could ACCOMPLISH some of these GOALS and DREAMS. Like music - I could be recording and releasing but - physical energy, emotional energy, SUSTAINED AND SUSTAINABLE energy, I have none.
#autistic #autism #adhd #add #audhd #audd #musicians #musician-problems #chronic-illness #chronic-fatigue #cfs #burnout -
There will be days when getting out of bed feels impossible. When the fatigue is crushing you, you only have one job: breathe. Practice box breathing and remind your nervous system that you are safe. Just survive the day. 🛌 #ChronicFatigue #KeepBreathing
SPEAKINGBIPOLAR.COM/CLUB
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There will be days when getting out of bed feels impossible. When the fatigue is crushing you, you only have one job: breathe. Practice box breathing and remind your nervous system that you are safe. Just survive the day. 🛌 #ChronicFatigue #KeepBreathing
SPEAKINGBIPOLAR.COM/CLUB
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There will be days when getting out of bed feels impossible. When the fatigue is crushing you, you only have one job: breathe. Practice box breathing and remind your nervous system that you are safe. Just survive the day. 🛌 #ChronicFatigue #KeepBreathing
SPEAKINGBIPOLAR.COM/CLUB
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There will be days when getting out of bed feels impossible. When the fatigue is crushing you, you only have one job: breathe. Practice box breathing and remind your nervous system that you are safe. Just survive the day. 🛌 #ChronicFatigue #KeepBreathing
SPEAKINGBIPOLAR.COM/CLUB
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Article by Susanna Clarke (author of Jonathan Strange & Mr Norrell, Piranesi) on her experience of chronic illness.
#ChronicFatigue #ChronicIllness #LongCovid #JonathanStrange #MrNorrell #Piranesi
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Article by Susanna Clarke (author of Jonathan Strange & Mr Norrell, Piranesi) on her experience of chronic illness.
#ChronicFatigue #ChronicIllness #LongCovid #JonathanStrange #MrNorrell #Piranesi
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Article by Susanna Clarke (author of Jonathan Strange & Mr Norrell, Piranesi) on her experience of chronic illness.
#ChronicFatigue #ChronicIllness #LongCovid #JonathanStrange #MrNorrell #Piranesi
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Article by Susanna Clarke (author of Jonathan Strange & Mr Norrell, Piranesi) on her experience of chronic illness.
#ChronicFatigue #ChronicIllness #LongCovid #JonathanStrange #MrNorrell #Piranesi
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#HealthJourney #FunctionalMedicine #HealthCollapse #CognitiveDecline #MemoryLoss #ChronicFatigue #FunctionalMedicine #WellnessJourney #HealthTransformation #PersonalStory #HealingJourney #wellnesslifestyle #wellnesswarrior #healthandwellbeing #wellnessgoals #wellnessadvocate #wellnesscoaching #MedicalDiscovery https://mastodon.social/@biohackingpathway/116832395315529272
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🌩️ Today’s Flare Report: Fatigue
Not all fatigue is solved by sleep.
Sometimes it’s waking up exhausted.
Sometimes it’s choosing between a shower and making dinner.
Sometimes surviving the day is the accomplishment.💜 Pain: Moderate
🌬️ Energy: Low
🧠 Brain Fog: High
🥄 Spoon Forecast: LimitedIf today’s forecast matches yours, be gentle with yourself.
How’s your forecast today? 💜
#ChronicIllness #ChronicPain #Fatigue #BrainFog #Spoonie #InvisibleIllness #Disability #ChronicFatigue
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🌩️ Today’s Flare Report: Fatigue
Not all fatigue is solved by sleep.
Sometimes it’s waking up exhausted.
Sometimes it’s choosing between a shower and making dinner.
Sometimes surviving the day is the accomplishment.💜 Pain: Moderate
🌬️ Energy: Low
🧠 Brain Fog: High
🥄 Spoon Forecast: LimitedIf today’s forecast matches yours, be gentle with yourself.
How’s your forecast today? 💜
#ChronicIllness #ChronicPain #Fatigue #BrainFog #Spoonie #InvisibleIllness #Disability #ChronicFatigue
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🌩️ Today’s Flare Report: Fatigue
Not all fatigue is solved by sleep.
Sometimes it’s waking up exhausted.
Sometimes it’s choosing between a shower and making dinner.
Sometimes surviving the day is the accomplishment.💜 Pain: Moderate
🌬️ Energy: Low
🧠 Brain Fog: High
🥄 Spoon Forecast: LimitedIf today’s forecast matches yours, be gentle with yourself.
How’s your forecast today? 💜
#ChronicIllness #ChronicPain #Fatigue #BrainFog #Spoonie #InvisibleIllness #Disability #ChronicFatigue
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🌩️ Today’s Flare Report: Fatigue
Not all fatigue is solved by sleep.
Sometimes it’s waking up exhausted.
Sometimes it’s choosing between a shower and making dinner.
Sometimes surviving the day is the accomplishment.💜 Pain: Moderate
🌬️ Energy: Low
🧠 Brain Fog: High
🥄 Spoon Forecast: LimitedIf today’s forecast matches yours, be gentle with yourself.
How’s your forecast today? 💜
#ChronicIllness #ChronicPain #Fatigue #BrainFog #Spoonie #InvisibleIllness #Disability #ChronicFatigue
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CW: eye contact ^-^
Morning fedi! did You know~
That It's OK To Rest ^-^
(Especially in this heat 🥵)I'm also showing off some more of my Girlfriend's artwork ;) You can get the poster from Her Etsy store!! https://www.etsy.com/shop/HaleAndHopeful
#selfie #maypics #HaleAndHopeful #indieart #disability #chronicfatigue #POTS #smile
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CW: eye contact ^-^
Morning fedi! did You know~
That It's OK To Rest ^-^
(Especially in this heat 🥵)I'm also showing off some more of my Girlfriend's artwork ;) You can get the poster from Her Etsy store!! https://www.etsy.com/shop/HaleAndHopeful
#selfie #maypics #HaleAndHopeful #indieart #disability #chronicfatigue #POTS #smile