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#chronicfatigue — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #chronicfatigue, aggregated by home.social.

  1. Very recent videopresentation about ME/CFS and potential treatment using novel molecule IVO-21, from dr Jay H. Chung lab.

    youtube.com/watch?v=IBXYhRInY0o

  2. Gang, help. How do you have energy to DO stuff? Like-

    I have a solid 3 or 4, could be more, "projects" I'd like to devote regular time to. On top of work, I can do about one "extra" thing a day. And even on weekends I'm RECOVERING to my energy to available time ratio is technically even lower.

    Just… maybe I wouldn't hate my stupid miserable life so much if I could ACCOMPLISH some of these GOALS and DREAMS. Like music - I could be recording and releasing but - physical energy, emotional energy, SUSTAINED AND SUSTAINABLE energy, I have none.


    #autistic #autism #adhd #add #audhd #audd #musicians #musician-problems #chronic-illness #chronic-fatigue #cfs #burnout
  3. “Rest recharges my energy”; experiences and perceptions of rest in adults with long-term conditions and fatigue in rehabilitation: a qualitative study
    tandfonline.com/doi/full/10.10

    "Lived-experience participants noted physical symptoms, while HCPs highlighted “all-or-nothing” thinking as a significant barrier."

    #longcovid @longcovid #fatigue #chronicfatigue #fibromyalgia @fibromyalgia #multiplesclerosis @multiplesclerosis #arthritis #Sjogren #Sjögrens