#chronicfatigue — Public Fediverse posts

I'm very bad at pacing, I get excited and don't know my limit until I go past it. I had another crash. It's been really bad over the last 7-8 days. So if anyone else paces for chronic pain and chronic fatigue I'd love to know what works for you.

This is aimed at people who are dealing with chronic pain and / or chronic fatigue, so if you are not dealing with these I'd rather respectfully ask for a boost than advice or comments.

I used to have a Fitbit to help me track what I was doing but one of the metal plates on the back came off. I could glue it back on but knowing my luck, I don't know if that would interfere with it's function. 🤔

Edit: Thank you for the suggestions. ❤️ I will try to see if I can repair my Fitbit and possibly save for a Garmin to help me manage these symptoms.

#disability #fatigue #chronicfatigue #chronicillness #chronicpain

I'm very bad at pacing, I get excited and don't know my limit until I go past it. I had another crash. It's been really bad over the last 7-8 days. So if anyone else paces for chronic pain and chronic fatigue I'd love to know what works for you.

This is aimed at people who are dealing with chronic pain and / or chronic fatigue, so if you are not dealing with these I'd rather respectfully ask for a boost than advice or comments.

I used to have a Fitbit to help me track what I was doing but one of the metal plates on the back came off. I could glue it back on but knowing my luck, I don't know if that would interfere with it's function. 🤔

Edit: Thank you for the suggestions. ❤️ I will try to see if I can repair my Fitbit and possibly save for a Garmin to help me manage these symptoms.

#disability #fatigue #chronicfatigue #chronicillness #chronicpain

This week has felt like being stretched thin between hope and heaviness, a kind of ache under the skin that refuses to be smoothed over. Scrolling through timelines and hashtags has been more like wandering in unfamiliar streets than finding a home, a restless motion through spaces that don’t quite know what to do with people like me. Every platform promises connection, yet so many conversations skate across the surface, too fast and polished for the slower, tangled reality of neurodivergent and disabled lives.

Community keeps tugging at my thoughts, demanding a deeper definition than follower counts, boosts or reach. Connection becomes real when someone else carries similar static in their head and is trying to carve out something gentler for themselves and others, without pretending it’s easy. Timelines feel different when posts about neurodiversity and disability emerge from lived experience rather than from branding or performance. Some days, those posts light up my screen and remind me that others are fighting the same internal battles. Other days, it feels like standing in a noisy room where our existence is discussed like a topic, not honoured as a lived reality.

Labour has become impossible to ignore. Emotional labour. Cognitive labour. Sensory labour. Curating feeds to protect fragile nervous systems, blocking harm before it embeds, tracking subtle ableism in replies and boosts, choosing between educating yet again and guarding limited energy. Social media carries a quiet toll when you are the one translating your experience into digestible fragments so others don’t turn away. That toll rarely appears in cheerful posts about community, but it weighs on the people whose identities are constantly explained and defended.

Under all the frustration, a tender strand keeps me from walking away. Care, stubborn and inconvenient, threads through everything. Care for strangers who cling to timelines because offline life hurts too much. Care for the possibility that one honest post about burnout, sensory overload, or faith in crisis might reach someone on a night when they’re wondering if they can keep going. Care for the dream that we are slowly cobbling together spaces where neurodivergent and disabled people don’t have to sand off their edges to be tolerated.

Resolution doesn’t appear, and maybe that’s honest. Exhaustion is real, yet presence continues. New platforms and instances are tested, different timelines explored, not out of a desire for novelty but out of a longing for places that can hold the complexity of living at the intersections of neurodivergence, disability, and spiritual fatigue. Quiet, uncompromising voices keep posting from the margins, refusing to dilute their truth to fit a neat narrative. Effort from those voices matters, even when algorithms barely notice. Void or no void, scattered or gathered, the fact that we keep speaking from these edges means our lives are more than background noise, and that conviction alone keeps me here.

#ActuallyAutistic #AutisticAndADHD #Neurodivergent #Disability #ChronicFatigue #MentalHealth #TraumaRecovery #SpiritualBurnout #Fediverse #Mastodon #DisabledAndNeurodivergent

This week has felt like being stretched thin between hope and heaviness, a kind of ache under the skin that refuses to be smoothed over. Scrolling through timelines and hashtags has been more like wandering in unfamiliar streets than finding a home, a restless motion through spaces that don’t quite know what to do with people like me. Every platform promises connection, yet so many conversations skate across the surface, too fast and polished for the slower, tangled reality of neurodivergent and disabled lives.

Community keeps tugging at my thoughts, demanding a deeper definition than follower counts, boosts or reach. Connection becomes real when someone else carries similar static in their head and is trying to carve out something gentler for themselves and others, without pretending it’s easy. Timelines feel different when posts about neurodiversity and disability emerge from lived experience rather than from branding or performance. Some days, those posts light up my screen and remind me that others are fighting the same internal battles. Other days, it feels like standing in a noisy room where our existence is discussed like a topic, not honoured as a lived reality.

Labour has become impossible to ignore. Emotional labour. Cognitive labour. Sensory labour. Curating feeds to protect fragile nervous systems, blocking harm before it embeds, tracking subtle ableism in replies and boosts, choosing between educating yet again and guarding limited energy. Social media carries a quiet toll when you are the one translating your experience into digestible fragments so others don’t turn away. That toll rarely appears in cheerful posts about community, but it weighs on the people whose identities are constantly explained and defended.

Under all the frustration, a tender strand keeps me from walking away. Care, stubborn and inconvenient, threads through everything. Care for strangers who cling to timelines because offline life hurts too much. Care for the possibility that one honest post about burnout, sensory overload, or faith in crisis might reach someone on a night when they’re wondering if they can keep going. Care for the dream that we are slowly cobbling together spaces where neurodivergent and disabled people don’t have to sand off their edges to be tolerated.

Resolution doesn’t appear, and maybe that’s honest. Exhaustion is real, yet presence continues. New platforms and instances are tested, different timelines explored, not out of a desire for novelty but out of a longing for places that can hold the complexity of living at the intersections of neurodivergence, disability, and spiritual fatigue. Quiet, uncompromising voices keep posting from the margins, refusing to dilute their truth to fit a neat narrative. Effort from those voices matters, even when algorithms barely notice. Void or no void, scattered or gathered, the fact that we keep speaking from these edges means our lives are more than background noise, and that conviction alone keeps me here.

#ActuallyAutistic #AutisticAndADHD #Neurodivergent #Disability #ChronicFatigue #MentalHealth #TraumaRecovery #SpiritualBurnout #Fediverse #Mastodon #DisabledAndNeurodivergent

Gang, help. How do you have energy to DO stuff? Like-

I have a solid 3 or 4, could be more, "projects" I'd like to devote regular time to. On top of work, I can do about one "extra" thing a day. And even on weekends I'm RECOVERING to my energy to available time ratio is technically even lower.

Just… maybe I wouldn't hate my stupid miserable life so much if I could ACCOMPLISH some of these GOALS and DREAMS. Like music - I could be recording and releasing but - physical energy, emotional energy, SUSTAINED AND SUSTAINABLE energy, I have none.

Gang, help. How do you have energy to DO stuff? Like-

I have a solid 3 or 4, could be more, "projects" I'd like to devote regular time to. On top of work, I can do about one "extra" thing a day. And even on weekends I'm RECOVERING to my energy to available time ratio is technically even lower.

Just… maybe I wouldn't hate my stupid miserable life so much if I could ACCOMPLISH some of these GOALS and DREAMS. Like music - I could be recording and releasing but - physical energy, emotional energy, SUSTAINED AND SUSTAINABLE energy, I have none.

There will be days when getting out of bed feels impossible. When the fatigue is crushing you, you only have one job: breathe. Practice box breathing and remind your nervous system that you are safe. Just survive the day. 🛌 #ChronicFatigue #KeepBreathing

SPEAKINGBIPOLAR.COM/CLUB

Article by Susanna Clarke (author of Jonathan Strange & Mr Norrell, Piranesi) on her experience of chronic illness.

https://www.theguardian.com/books/2026/jul/05/susanna-clarke-i-had-been-ill-for-11-years-i-felt-like-i-was-about-to-fall-off-the-world

#ChronicFatigue #ChronicIllness #LongCovid #JonathanStrange #MrNorrell #Piranesi

#HealthJourney #FunctionalMedicine #HealthCollapse #CognitiveDecline #MemoryLoss #ChronicFatigue #FunctionalMedicine #WellnessJourney #HealthTransformation #PersonalStory #HealingJourney #wellnesslifestyle #wellnesswarrior #healthandwellbeing #wellnessgoals #wellnessadvocate #wellnesscoaching #MedicalDiscovery https://mastodon.social/@biohackingpathway/116832395315529272

🌩️ Today’s Flare Report: Fatigue

Not all fatigue is solved by sleep.

Sometimes it’s waking up exhausted.
Sometimes it’s choosing between a shower and making dinner.
Sometimes surviving the day is the accomplishment.

💜 Pain: Moderate
🌬️ Energy: Low
🧠 Brain Fog: High
🥄 Spoon Forecast: Limited

If today’s forecast matches yours, be gentle with yourself.

How’s your forecast today? 💜

#ChronicIllness #ChronicPain #Fatigue #BrainFog #Spoonie #InvisibleIllness #Disability #ChronicFatigue

🌩️ Today’s Flare Report: Fatigue

Not all fatigue is solved by sleep.

Sometimes it’s waking up exhausted.
Sometimes it’s choosing between a shower and making dinner.
Sometimes surviving the day is the accomplishment.

💜 Pain: Moderate
🌬️ Energy: Low
🧠 Brain Fog: High
🥄 Spoon Forecast: Limited

If today’s forecast matches yours, be gentle with yourself.

How’s your forecast today? 💜

#ChronicIllness #ChronicPain #Fatigue #BrainFog #Spoonie #InvisibleIllness #Disability #ChronicFatigue

I've pretty much spent all weekend in bed due to fatigue. I feel lazy, but I think my body needs it and it's going to be a busy week

#ChronicDisease #SpoonieCommunity #spoonie #ChronicFatigue

For the Spoonie Community, I fall asleep because I have no spoons and I wake up an hour later having recovered...no spoons

You know what I mean

#Spoonie #MultipleSclerosis #ChronicFatigue

✨ Whether you are navigating the pressure of a high stakes career, carrying ancestral patterns, struggling in difficult relationships, or healing from a broken heart, the real solution lies in recalibrating your energetic field. ... You are always welcome here.
Link in profile.
💗
#mentalhealth
#ChronicFatigue #BrainFog #SleepBetter #MigraineRelief #ChronicPain #DigitalDetox #MentalLoad #work #career #meditation

Made with ai tools.

@IcooIey nods in #allotment and #chronicfatigue

@IcooIey nods in #allotment and #chronicfatigue

How Drinking an Olive Oil Shot Every Morning Transformed My Skin and Lowered My Stress

“Hearst Magazines and Yahoo may earn commission or revenue on some items through these links.” For yea…
#dining #cooking #diet #food #MediterraneanOliveOil #OliveOil #chronicfatigue #freshlemonjuice #Mediterranean #MonounsaturatedFat #Olive #RhianStephenson #Stephenson #wellnessshot
https://www.diningandcooking.com/2670462/how-drinking-an-olive-oil-shot-every-morning-transformed-my-skin-and-lowered-my-stress/

How Drinking an Olive Oil Shot Every Morning Transformed My Skin and Lowered My Stress

“Hearst Magazines and Yahoo may earn commission or revenue on some items through these links.” For yea…
#dining #cooking #diet #food #MediterraneanOliveOil #OliveOil #chronicfatigue #freshlemonjuice #Mediterranean #MonounsaturatedFat #Olive #RhianStephenson #Stephenson #wellnessshot
https://www.diningandcooking.com/2670462/how-drinking-an-olive-oil-shot-every-morning-transformed-my-skin-and-lowered-my-stress/

How Drinking an Olive Oil Shot Every Morning Transformed My Skin and Lowered My Stress https://www.diningandcooking.com/2670462/how-drinking-an-olive-oil-shot-every-morning-transformed-my-skin-and-lowered-my-stress/ #ChronicFatigue #FreshLemonJuice #Mediterranean #MediterraneanOliveOil #MonounsaturatedFat #Olive #OliveOil #RhianStephenson #Stephenson #WellnessShot

How Drinking an Olive Oil Shot Every Morning Transformed My Skin and Lowered My Stress https://www.diningandcooking.com/2670462/how-drinking-an-olive-oil-shot-every-morning-transformed-my-skin-and-lowered-my-stress/ #ChronicFatigue #FreshLemonJuice #Mediterranean #MediterraneanOliveOil #MonounsaturatedFat #Olive #OliveOil #RhianStephenson #Stephenson #WellnessShot

CPAP fact: You can have need of a CPAP without snoring! I had a good doc who was trying to diagnose my then-mysterious fatigue. When the usual tests showed nothing, they wanted me to do a sleep test.

I protested. I didn't perceive myself to have a sleep problem, and my husband never heard me snore. Finally I gave in and went, and sure enough I had sleep apnea. It was just quiet.

This wasn't the whole answer to my fatigue but it helped a great deal, and had that doc not pushed, I don't think I'd ever know this. Sleep tests are very easy now! No more nights at labs, covered in wires. You can take one at home with light monitoring. If you even suspect you could benefit, try it. They help a lot if you need them.

#ChronicFatigue #Fibromyalgia #MECFS #ChronicIllness #CPAP

CPAP fact: You can have need of a CPAP without snoring! I had a good doc who was trying to diagnose my then-mysterious fatigue. When the usual tests showed nothing, they wanted me to do a sleep test.

I protested. I didn't perceive myself to have a sleep problem, and my husband never heard me snore. Finally I gave in and went, and sure enough I had sleep apnea. It was just quiet.

This wasn't the whole answer to my fatigue but it helped a great deal, and had that doc not pushed, I don't think I'd ever know this. Sleep tests are very easy now! No more nights at labs, covered in wires. You can take one at home with light monitoring. If you even suspect you could benefit, try it. They help a lot if you need them.

#ChronicFatigue #Fibromyalgia #MECFS #ChronicIllness #CPAP

This is actually a really good write up of #ChronicFatigue / #LongCovid in general even if it is framed from the point of view of joint pain.

mastodon.social/ap/users/116...

This is actually a really good write up of #ChronicFatigue / #LongCovid in general even if it is framed from the point of view of joint pain.

mastodon.social/ap/users/116...

Today's happy thing: my antihistamines have relieved my fatigue and it looks like I'm reaching a new baseline! Could still be a fluke but I am so unbelievably excited at the chance to get back to living
#happy #MCAS #health #chronicfatigue

Low Folate and B12 Proven to Drive Chronic Fatigue

Summary: A precision human ecology and metabolic study challenged the superficial notion that chronic exhaustion is merely a byproduct of inadequate sleep. The research demonstrates that the m…
#dining #cooking #diet #food #Nutrition #B12Deficiency #brainresearch #chronicfatigue #folate #neurobiology #neuroscience #nutrition #osakaMetropolitanUniversity
https://www.diningandcooking.com/2663016/low-folate-and-b12-proven-to-drive-chronic-fatigue/

Low Folate and B12 Proven to Drive Chronic Fatigue

Summary: A precision human ecology and metabolic study challenged the superficial notion that chronic exhaustion is merely a byproduct of inadequate sleep. The research demonstrates that the m…
#dining #cooking #diet #food #Nutrition #B12Deficiency #brainresearch #chronicfatigue #folate #neurobiology #neuroscience #nutrition #osakaMetropolitanUniversity
https://www.diningandcooking.com/2663016/low-folate-and-b12-proven-to-drive-chronic-fatigue/

Low Folate and B12 Proven to Drive Chronic Fatigue https://www.diningandcooking.com/2663016/low-folate-and-b12-proven-to-drive-chronic-fatigue/ #B12Deficiency #BrainResearch #ChronicFatigue #folate #neurobiology #neuroscience #nutrition #OsakaMetropolitanUniversity

Low Folate and B12 Proven to Drive Chronic Fatigue https://www.diningandcooking.com/2663016/low-folate-and-b12-proven-to-drive-chronic-fatigue/ #B12Deficiency #BrainResearch #ChronicFatigue #folate #neurobiology #neuroscience #nutrition #OsakaMetropolitanUniversity

One for my fellow ME/CFS sufferers…

Medications, supplements, and the evidence for them as discussed with patients of the Mayo ME/CFS Clinic:

Source: https://www.reddit.com/r/cfs/comments/1tpnwzm/mayo_clinics_mecfs_clinic_treatments_they/

#mecFS #cfs #MyalgicEncephalomyelitis #MyalgicE #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome

One for my fellow ME/CFS sufferers…

Medications, supplements, and the evidence for them as discussed with patients of the Mayo ME/CFS Clinic:

Source: https://www.reddit.com/r/cfs/comments/1tpnwzm/mayo_clinics_mecfs_clinic_treatments_they/

#mecFS #cfs #MyalgicEncephalomyelitis #MyalgicE #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome

Gee thanks, #adhd! What my #chronicfatigue really needed was new project ideas that are related enough to what I'm trying to do already I'll be constantly reminded of them, large enough to need non trivial effort, silly enough to be tempting and completely useless. Why not just hit all the high points at once?!

Gee thanks, #adhd! What my #chronicfatigue really needed was new project ideas that are related enough to what I'm trying to do already I'll be constantly reminded of them, large enough to need non trivial effort, silly enough to be tempting and completely useless. Why not just hit all the high points at once?!

Today in #ChronicFatigue : I hit a week of exercising every day, without skipping any. And given it has been 15 months since I stopped work, and this is the first time, I feel the need to celebrate that. In this state it is so easy to do too much and knock yourself out for the day(s) after.

It does feel a bit strange to celebrate though, because exercise in this context is 10 minutes at 4.5 km/h on a treadmill. For those of you not used to metric measures, this is a ludicrously minimal amount of exertion; I normally walk at around 6 km/h and ten minutes is, well, ten minutes. And if I try and do this twice too close together (like walking to get an ice cream, sitting for half an hour, and walking back) I wreck my energy levels and sleep for the following several days. #PostViralFatigue #LongCovid

Today in #ChronicFatigue : I hit a week of exercising every day, without skipping any. And given it has been 15 months since I stopped work, and this is the first time, I feel the need to celebrate that. In this state it is so easy to do too much and knock yourself out for the day(s) after.

It does feel a bit strange to celebrate though, because exercise in this context is 10 minutes at 4.5 km/h on a treadmill. For those of you not used to metric measures, this is a ludicrously minimal amount of exertion; I normally walk at around 6 km/h and ten minutes is, well, ten minutes. And if I try and do this twice too close together (like walking to get an ice cream, sitting for half an hour, and walking back) I wreck my energy levels and sleep for the following several days. #PostViralFatigue #LongCovid

#LowCortisol #Cortisol #CortisolDeficiency #HealthIssues #LymeDisease #MoldPoisoning #ChronicFatigue #LongCovid #AdrenalFatigue #HormoneHealth #Wellness https://mastodon.social/@biohackingpathway/116571950139728109

#LowCortisol #Cortisol #CortisolDeficiency #HealthIssues #LymeDisease #MoldPoisoning #ChronicFatigue #LongCovid #AdrenalFatigue #HormoneHealth #Wellness https://mastodon.social/@biohackingpathway/116571950139728109

Hi there,

I just wanted to surface a Reddit post here on the fediverse. A very severe/extreme ME/CFS sufferer is currently in a precarious situation and needing financial support.

Her name is Ali and you can read more about her situation on Reddit here:

https://www.reddit.com/r/cfs/comments/1t11zip/fundraiser_for_ali_veryextremely_severe_me/

Thanks.

#MECFS #MyalgicEncephalomyelitis #CFS #MyalgicE #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome #spoonie #spoonies

Hi there,

I just wanted to surface a Reddit post here on the fediverse. A very severe/extreme ME/CFS sufferer is currently in a precarious situation and needing financial support.

Her name is Ali and you can read more about her situation on Reddit here:

https://www.reddit.com/r/cfs/comments/1t11zip/fundraiser_for_ali_veryextremely_severe_me/

Thanks.

#MECFS #MyalgicEncephalomyelitis #CFS #MyalgicE #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome #spoonie #spoonies

xoxo.zone/users/Ashedryden/s...

Oof. This. The combination of #adhd and #chronicfatigue is a life of constant war between "you should rest immediately when you need to" and "here is your reminder of critical thing that if you don't do it right now it will drop into a black hole for ever"

xoxo.zone/users/Ashedryden/s...

Oof. This. The combination of #adhd and #chronicfatigue is a life of constant war between "you should rest immediately when you need to" and "here is your reminder of critical thing that if you don't do it right now it will drop into a black hole for ever"

I have washing up’d! (Raised the plates? Levitated the dishes? Why do we wash ‘up’ anyway?)

English be weird. And yes, it may seem strange to some of you that having done the washing up is worth celebrating but sometimes it most definitely is: blog.mavnn.eu/2022/10/14/adh... #adhd #chronicfatigue

I have washing up’d! (Raised the plates? Levitated the dishes? Why do we wash ‘up’ anyway?)

English be weird. And yes, it may seem strange to some of you that having done the washing up is worth celebrating but sometimes it most definitely is: blog.mavnn.eu/2022/10/14/adh... #adhd #chronicfatigue

@[email protected] Thanks. One of the things I hate about the combination of #chronicfatigue brain fog and #adhd impulsivity is that I know there's a huge danger of my brain just randomly starting sealioning and mansplaining across the people I follow as my brain just starts spewing random responses to stimuli. At least on this occasion I noticed...

bonfire.mavnn.eu/pub/objects...

Using #krita practice to avoid vitamin D deficiency part 2.

Turns out that when you're suffering from #chronicfatigue and don't have the energy to walk anywhere, it's really easy to get vitamin D deficiency because of the lack of sunlight. Last year I ended up needing to inject myself with extra vitamin D to get back to workable levels, this year I'm trying to be deliberate not repeating that experience.

Public service announcement over, tl;dr get some sunlight, don't give yourself skin cancer either