#chronicfatigue — Public Fediverse posts

This week has felt like being stretched thin between hope and heaviness, a kind of ache under the skin that refuses to be smoothed over. Scrolling through timelines and hashtags has been more like wandering in unfamiliar streets than finding a home, a restless motion through spaces that don’t quite know what to do with people like me. Every platform promises connection, yet so many conversations skate across the surface, too fast and polished for the slower, tangled reality of neurodivergent and disabled lives.

Community keeps tugging at my thoughts, demanding a deeper definition than follower counts, boosts or reach. Connection becomes real when someone else carries similar static in their head and is trying to carve out something gentler for themselves and others, without pretending it’s easy. Timelines feel different when posts about neurodiversity and disability emerge from lived experience rather than from branding or performance. Some days, those posts light up my screen and remind me that others are fighting the same internal battles. Other days, it feels like standing in a noisy room where our existence is discussed like a topic, not honoured as a lived reality.

Labour has become impossible to ignore. Emotional labour. Cognitive labour. Sensory labour. Curating feeds to protect fragile nervous systems, blocking harm before it embeds, tracking subtle ableism in replies and boosts, choosing between educating yet again and guarding limited energy. Social media carries a quiet toll when you are the one translating your experience into digestible fragments so others don’t turn away. That toll rarely appears in cheerful posts about community, but it weighs on the people whose identities are constantly explained and defended.

Under all the frustration, a tender strand keeps me from walking away. Care, stubborn and inconvenient, threads through everything. Care for strangers who cling to timelines because offline life hurts too much. Care for the possibility that one honest post about burnout, sensory overload, or faith in crisis might reach someone on a night when they’re wondering if they can keep going. Care for the dream that we are slowly cobbling together spaces where neurodivergent and disabled people don’t have to sand off their edges to be tolerated.

Resolution doesn’t appear, and maybe that’s honest. Exhaustion is real, yet presence continues. New platforms and instances are tested, different timelines explored, not out of a desire for novelty but out of a longing for places that can hold the complexity of living at the intersections of neurodivergence, disability, and spiritual fatigue. Quiet, uncompromising voices keep posting from the margins, refusing to dilute their truth to fit a neat narrative. Effort from those voices matters, even when algorithms barely notice. Void or no void, scattered or gathered, the fact that we keep speaking from these edges means our lives are more than background noise, and that conviction alone keeps me here.

#ActuallyAutistic #AutisticAndADHD #Neurodivergent #Disability #ChronicFatigue #MentalHealth #TraumaRecovery #SpiritualBurnout #Fediverse #Mastodon #DisabledAndNeurodivergent

#HealthJourney #FunctionalMedicine #HealthCollapse #CognitiveDecline #MemoryLoss #ChronicFatigue #FunctionalMedicine #WellnessJourney #HealthTransformation #PersonalStory #HealingJourney #wellnesslifestyle #wellnesswarrior #healthandwellbeing #wellnessgoals #wellnessadvocate #wellnesscoaching #MedicalDiscovery https://mastodon.social/@biohackingpathway/116832395315529272

How Drinking an Olive Oil Shot Every Morning Transformed My Skin and Lowered My Stress

“Hearst Magazines and Yahoo may earn commission or revenue on some items through these links.” For yea…
#dining #cooking #diet #food #MediterraneanOliveOil #OliveOil #chronicfatigue #freshlemonjuice #Mediterranean #MonounsaturatedFat #Olive #RhianStephenson #Stephenson #wellnessshot
https://www.diningandcooking.com/2670462/how-drinking-an-olive-oil-shot-every-morning-transformed-my-skin-and-lowered-my-stress/

2/
Introducing “Energy Limiting Conditions”: The Emergence and Evolution of a New Impairment Concept

https://www.scienceopen.com/hosted-document?doi=10.13169/intljofdissocjus.5.2.0001

Screenshot from latest Science for ME weekly update

#EnergyLimitingConditions #Spoonie #chronicillness #Spoonies #ELCI #MEcfs #LongCovid #ChronicFatigue @mecfs @longcovid @pots

Another long day of study: manuscript edits this morning, referencing all afternoon, and Lent study tonight. I also had my first session with a new therapist—she seems good, more somatic-focused compared to my previous psychodynamic one. Different energy. I’ve also joined the Christian Union at Deakin. The Bible teaching is brilliant, though socialising is tough with all the noise—I can’t hear well enough to join in.

#StudentLife #CPTSD #TherapyJourney #SomaticTherapy #Lent #ChristianUnion #DeakinUniversity #BlindAndStudying #ChronicFatigue #NeurodivergentFaith

New factsheet from The Sick Times team:

"What are fatigue and Post-Exertional Malaise (PEM)?"
https://longcovidjustice.org/PEM

3-page PDF:
https://longcovidjustice.org/wp-content/uploads/PEM-LCE-series-2024.pdf

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #PostExertionalMalaise #ChronicFatigue #PostViralFatigueSyndrome #PostViralSyndrome #PVFS #postviralillness

I finished¹ #EchoesOfWisdom about a week after it came out², and then, instead of starting #LinksAwakening, which I bought at the same time, or trying to finish #SkywardSword (I'm stuck at a really hard boss fight), I started a new³ #BreathOfTheWild game

it was so obvious that EoW was directed by a woman while I was playing it, but comparing it to BotW (which I adore)???

like, the whole Great Plateau tutorial is The Old Man tricking Link into doing things by offering him equipment that he needs

🧵 1/2

¹ Xan has been telling ppl I 100%'d EoW a week after it came out, and I would like to state, for the record, that I 91%'d EoW a week after it came out, and I haven't gone back to try to 100% it bc the stuff that's left over is HARD

² why yes, I do have too much time on my hands due to #chronicPain and #chronicFatigue

³ my fourth, one of which was Master Mode

New US research:
Defining fatigue from the experiences of patients living with chronic fatigue

https://www.frontiersin.org/journals/medicine/articles/10.3389/fmed.2024.1429275/full

From what I can see, this does not refer to CFS specifically but CFS wasn't an exclusion either

#chronicfatigue #Spoonies #Spoonie #Spoonielife #ELCI
#chronicillness @chronicillness
@spoonies
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

2-month period of 500mg lecithin-based delivery form of #quercetin
daily supplementation counterbalances chronic fatigue symptoms: A double-blind placebo controlled clinical trial

https://www.sciencedirect.com/science/article/pii/S0753332223012519

Not a #CFS study but interesting to see such a large difference in steps

#fatigue #chronicfatigue

Me whenever I meet anyone new IRL or online anywhere 😂 #meme #thoughtoftheday #wednesdaythoughts #randomthoughts #bpd #BPDfam #MadMastodon #MadTwitter #disability #disabled #chronicillness #chronicpain #chronicfatigue #chronicfatiguesyndrome #neurodivergent #neurodiverse #mentalhealth #mentalillness #spoonie #fibromyalgia #fibro #twittermigration