#disabledlife — Public Fediverse posts

A fun thing about being on different meds after my operation is that my fibro numbers are wonderfully low today😂 Gotta take the good where you can find it😁😉

#fibromyalgia #kidney #disabled #kidneys #disabledlife #cptsd #ptsd

A fun thing about being on different meds after my operation is that my fibro numbers are wonderfully low today😂 Gotta take the good where you can find it😁😉

#fibromyalgia #kidney #disabled #kidneys #disabledlife #cptsd #ptsd

A fun thing about being on different meds after my operation is that my fibro numbers are wonderfully low today😂 Gotta take the good where you can find it😁😉

#fibromyalgia #kidney #disabled #kidneys #disabledlife #cptsd #ptsd

A fun thing about being on different meds after my operation is that my fibro numbers are wonderfully low today😂 Gotta take the good where you can find it😁😉

#fibromyalgia #kidney #disabled #kidneys #disabledlife #cptsd #ptsd

A fun thing about being on different meds after my operation is that my fibro numbers are wonderfully low today😂 Gotta take the good where you can find it😁😉

#fibromyalgia #kidney #disabled #kidneys #disabledlife #cptsd #ptsd

Last day before I go back to hospital again for another operation. This time it's removal of one stent, replacing it with another, and hopefully blasting some kidney stones in the process. The house is clean and tidy, and all that needs doing is to pack a bag with essentials. My kidneys have been giving me issues for a long time, and I've had a few trips to hospital now for operations, as well as passing stones at home over the years. The past weeks have been challenging with this stent and side effects, plus managing my other disabilities on top, but at least I'm almost done with this stage😁

#kidneys #disability #disabledlife #hospital #fibromyalgia #cptsd #disabled

Last day before I go back to hospital again for another operation. This time it's removal of one stent, replacing it with another, and hopefully blasting some kidney stones in the process. The house is clean and tidy, and all that needs doing is to pack a bag with essentials. My kidneys have been giving me issues for a long time, and I've had a few trips to hospital now for operations, as well as passing stones at home over the years. The past weeks have been challenging with this stent and side effects, plus managing my other disabilities on top, but at least I'm almost done with this stage😁

#kidneys #disability #disabledlife #hospital #fibromyalgia #cptsd #disabled

What’s something healthy people take for granted that you think about every day?

For me, it’s the tiny everyday things that aren’t tiny anymore.

Showering.
Leaving the house.
Standing in line.
Making plans.
Doing one “normal” thing without calculating the recovery cost.

Chronic illness changes the way you move through the world.

What’s one thing you wish people understood?

#ChronicIllness #ChronicPain #SpoonieLife #InvisibleIllness #DisabledLife #ChronicIllnessAwareness #Pacing

What’s something healthy people take for granted that you think about every day?

For me, it’s the tiny everyday things that aren’t tiny anymore.

Showering.
Leaving the house.
Standing in line.
Making plans.
Doing one “normal” thing without calculating the recovery cost.

Chronic illness changes the way you move through the world.

What’s one thing you wish people understood?

#ChronicIllness #ChronicPain #SpoonieLife #InvisibleIllness #DisabledLife #ChronicIllnessAwareness #Pacing

What’s something healthy people take for granted that you think about every day?

For me, it’s the tiny everyday things that aren’t tiny anymore.

Showering.
Leaving the house.
Standing in line.
Making plans.
Doing one “normal” thing without calculating the recovery cost.

Chronic illness changes the way you move through the world.

What’s one thing you wish people understood?

#ChronicIllness #ChronicPain #SpoonieLife #InvisibleIllness #DisabledLife #ChronicIllnessAwareness #Pacing

What’s something healthy people take for granted that you think about every day?

For me, it’s the tiny everyday things that aren’t tiny anymore.

Showering.
Leaving the house.
Standing in line.
Making plans.
Doing one “normal” thing without calculating the recovery cost.

Chronic illness changes the way you move through the world.

What’s one thing you wish people understood?

#ChronicIllness #ChronicPain #SpoonieLife #InvisibleIllness #DisabledLife #ChronicIllnessAwareness #Pacing

in better news, I showered! I hadn't been well enough for three days. #disabledLife

in better news, I showered! I hadn't been well enough for three days. #disabledLife

in better news, I showered! I hadn't been well enough for three days. #disabledLife

in better news, I showered! I hadn't been well enough for three days. #disabledLife

in better news, I showered! I hadn't been well enough for three days. #disabledLife

On a completely different note: I finally started the process of getting new prosthetic eyes.
I've been wearing poorly fitting ones since I was 16. They became too painful and uncomfortable to tolerate, so I'd mostly stopped wearing them.
This week I got new molds made. They might need to be slightly larger next time, though. My ocularist wants me to wear the current shells and see if my eyelids open up more.
I could only manage a few hours before needing a break, so I'm definitely readjusting.
It's uncomfortable. It's tiring. But it also feels like progress after a long time.

#Disability #Blind #ProstheticEyes #DisabledLife

On a completely different note: I finally started the process of getting new prosthetic eyes.
I've been wearing poorly fitting ones since I was 16. They became too painful and uncomfortable to tolerate, so I'd mostly stopped wearing them.
This week I got new molds made. They might need to be slightly larger next time, though. My ocularist wants me to wear the current shells and see if my eyelids open up more.
I could only manage a few hours before needing a break, so I'm definitely readjusting.
It's uncomfortable. It's tiring. But it also feels like progress after a long time.

#Disability #Blind #ProstheticEyes #DisabledLife

On a completely different note: I finally started the process of getting new prosthetic eyes.
I've been wearing poorly fitting ones since I was 16. They became too painful and uncomfortable to tolerate, so I'd mostly stopped wearing them.
This week I got new molds made. They might need to be slightly larger next time, though. My ocularist wants me to wear the current shells and see if my eyelids open up more.
I could only manage a few hours before needing a break, so I'm definitely readjusting.
It's uncomfortable. It's tiring. But it also feels like progress after a long time.

#Disability #Blind #ProstheticEyes #DisabledLife

On a completely different note: I finally started the process of getting new prosthetic eyes.
I've been wearing poorly fitting ones since I was 16. They became too painful and uncomfortable to tolerate, so I'd mostly stopped wearing them.
This week I got new molds made. They might need to be slightly larger next time, though. My ocularist wants me to wear the current shells and see if my eyelids open up more.
I could only manage a few hours before needing a break, so I'm definitely readjusting.
It's uncomfortable. It's tiring. But it also feels like progress after a long time.

#Disability #Blind #ProstheticEyes #DisabledLife

On a completely different note: I finally started the process of getting new prosthetic eyes.
I've been wearing poorly fitting ones since I was 16. They became too painful and uncomfortable to tolerate, so I'd mostly stopped wearing them.
This week I got new molds made. They might need to be slightly larger next time, though. My ocularist wants me to wear the current shells and see if my eyelids open up more.
I could only manage a few hours before needing a break, so I'm definitely readjusting.
It's uncomfortable. It's tiring. But it also feels like progress after a long time.

#Disability #Blind #ProstheticEyes #DisabledLife

Some days the emotional weight hurts more than the physical pain.
This space is for naming what actually hurt today.

#InvisiblePain #ChronicPainAwareness #MentalHealthMatters #SpoonieCommunity #ChronicIllnessSupport #NightThoughts #DisabledLife

Got expired kidneys in the back. Vintage. No warranty, refunds, or returns. All sales final. DM for questionable pricing & vague info. 😂
#DarkHumor #ChronicIllness #OrganDonorFail #DisabledLife

If I can’t make fun of my situation, what’s the point in living, right?

Got expired kidneys in the back. Vintage. No warranty, refunds, or returns. All sales final. DM for questionable pricing & vague info. 😂
#DarkHumor #ChronicIllness #OrganDonorFail #DisabledLife

If I can’t make fun of my situation, what’s the point in living, right?

Got expired kidneys in the back. Vintage. No warranty, refunds, or returns. All sales final. DM for questionable pricing & vague info. 😂
#DarkHumor #ChronicIllness #OrganDonorFail #DisabledLife

If I can’t make fun of my situation, what’s the point in living, right?

Got expired kidneys in the back. Vintage. No warranty, refunds, or returns. All sales final. DM for questionable pricing & vague info. 😂
#DarkHumor #ChronicIllness #OrganDonorFail #DisabledLife

If I can’t make fun of my situation, what’s the point in living, right?

peak #DisabledLife #WheelchairLife is referring to getting between point a and point b without the use of a vehicle (car, bicycle, bus, whatever) as walking.

yes, even when I'm using my wheelchair.

yes, even when I'm using my power wheelchair.

and all the disabled people understand but the abled people are confused as shit.

peak #DisabledLife #WheelchairLife is referring to getting between point a and point b without the use of a vehicle (car, bicycle, bus, whatever) as walking.

yes, even when I'm using my wheelchair.

yes, even when I'm using my power wheelchair.

and all the disabled people understand but the abled people are confused as shit.

Whew, cleaning warms a body up too much. We've got a session with our declutterer in two weeks, and we wanted to do some pre-work on the kitchen. So we did! Spouse and I are both disabled (him long covid, me chronic fatigue and others), so it takes some rubbing of spoons to make these moments happen. But hey, progress is good, and means that we'll be able to better focus our time with Samantha (the declutterer). We've worked with her before and we love her lots.

Past that, just curled up with games-and-yarn. Enjoying the fact it's super overcast outside; it makes my soul happy. Where's my fellow Reverse SAD folx, ha ha, y'all know the score.

Right, gotta cool off now. I had to put the a/c on for a bit to help with the post-cleaning overwarm, so between that and the external gloom I'm starting to feel my flavour of cozy. xD

#deardiary #dailylog #disabledlife

Whew, cleaning warms a body up too much. We've got a session with our declutterer in two weeks, and we wanted to do some pre-work on the kitchen. So we did! Spouse and I are both disabled (him long covid, me chronic fatigue and others), so it takes some rubbing of spoons to make these moments happen. But hey, progress is good, and means that we'll be able to better focus our time with Samantha (the declutterer). We've worked with her before and we love her lots.

Past that, just curled up with games-and-yarn. Enjoying the fact it's super overcast outside; it makes my soul happy. Where's my fellow Reverse SAD folx, ha ha, y'all know the score.

Right, gotta cool off now. I had to put the a/c on for a bit to help with the post-cleaning overwarm, so between that and the external gloom I'm starting to feel my flavour of cozy. xD

#deardiary #dailylog #disabledlife

appreciate mingling with others who also have to save up spoons for showers #spoonie #DisabledLife

appreciate mingling with others who also have to save up spoons for showers #spoonie #DisabledLife

Have to change out of these new shoes I'm trying out from Zappoos before I make lunch so I don't get quesadilla on them
#spoonie #DisabledLife

Have to change out of these new shoes I'm trying out from Zappoos before I make lunch so I don't get quesadilla on them
#spoonie #DisabledLife

I was productive today. I finished my comic for Friday, continued client piece, and started inking a fantasy map to stay awake. Mysteriously I am not done with my to-do list despite these efforts.

Almost like dishes don't do themselves, important papers don't find themselves, laundry isn't able to crawl from the hamper into the machine by magic and...yeah that's it.

Good that there is some day left because I need a nap. And food that doesn't like to just...appear.

#artist #disabledlife

I was productive today. I finished my comic for Friday, continued client piece, and started inking a fantasy map to stay awake. Mysteriously I am not done with my to-do list despite these efforts.

Almost like dishes don't do themselves, important papers don't find themselves, laundry isn't able to crawl from the hamper into the machine by magic and...yeah that's it.

Good that there is some day left because I need a nap. And food that doesn't like to just...appear.

#artist #disabledlife

I was productive today. I finished my comic for Friday, continued client piece, and started inking a fantasy map to stay awake. Mysteriously I am not done with my to-do list despite these efforts.

Almost like dishes don't do themselves, important papers don't find themselves, laundry isn't able to crawl from the hamper into the machine by magic and...yeah that's it.

Good that there is some day left because I need a nap. And food that doesn't like to just...appear.

#artist #disabledlife

I'm still angry, but mostly... I'm heartbroken over the incredible thoughtlessness that went into the choice (because someone made a choice) to cut off elevator access to multiple units with NO WARNING, and no other accessible options.

Fleas of a thousand camels into the undergarments and nether regions of every person involved in making that choice.

#Accessibility #DisabledLife

I'm still angry, but mostly... I'm heartbroken over the incredible thoughtlessness that went into the choice (because someone made a choice) to cut off elevator access to multiple units with NO WARNING, and no other accessible options.

Fleas of a thousand camels into the undergarments and nether regions of every person involved in making that choice.

#Accessibility #DisabledLife

I'm still angry, but mostly... I'm heartbroken over the incredible thoughtlessness that went into the choice (because someone made a choice) to cut off elevator access to multiple units with NO WARNING, and no other accessible options.

Fleas of a thousand camels into the undergarments and nether regions of every person involved in making that choice.

#Accessibility #DisabledLife

Disabled? What does the acronym TGIF mean to you?

#TGIF #disability #DisabledLife

Disabled? What does the acronym TGIF mean to you?

#TGIF #disability #DisabledLife

Disabled? What does the acronym TGIF mean to you?

#TGIF #disability #DisabledLife

Disabled? What does the acronym TGIF mean to you?

#TGIF #disability #DisabledLife

3 good things
-IRL visit to SSA office was super easy and effective
-sincere sunshine and blue skies today
-started to titer off an RX I don't like
#3goodthings #DisabledLife

3 good things
-IRL visit to SSA office was super easy and effective
-sincere sunshine and blue skies today
-started to titer off an RX I don't like
#3goodthings #DisabledLife

3 good things
-IRL visit to SSA office was super easy and effective
-sincere sunshine and blue skies today
-started to titer off an RX I don't like
#3goodthings #DisabledLife

3 good things
-IRL visit to SSA office was super easy and effective
-sincere sunshine and blue skies today
-started to titer off an RX I don't like
#3goodthings #DisabledLife

I am baking (sitting on sofa, with a huge headach, waiting the dough to rise and partner to come home) a loaf of bread.

#baking #bread #DisabledLife #Exhaustion #IWouldKillForSomeThaiFood

I am baking (sitting on sofa, with a huge headach, waiting the dough to rise and partner to come home) a loaf of bread.

#baking #bread #DisabledLife #Exhaustion #IWouldKillForSomeThaiFood