#disabledlife — Public Fediverse posts

A fun thing about being on different meds after my operation is that my fibro numbers are wonderfully low today😂 Gotta take the good where you can find it😁😉

#fibromyalgia #kidney #disabled #kidneys #disabledlife #cptsd #ptsd

A fun thing about being on different meds after my operation is that my fibro numbers are wonderfully low today😂 Gotta take the good where you can find it😁😉

#fibromyalgia #kidney #disabled #kidneys #disabledlife #cptsd #ptsd

What’s something healthy people take for granted that you think about every day?

For me, it’s the tiny everyday things that aren’t tiny anymore.

Showering.
Leaving the house.
Standing in line.
Making plans.
Doing one “normal” thing without calculating the recovery cost.

Chronic illness changes the way you move through the world.

What’s one thing you wish people understood?

#ChronicIllness #ChronicPain #SpoonieLife #InvisibleIllness #DisabledLife #ChronicIllnessAwareness #Pacing

What’s something healthy people take for granted that you think about every day?

For me, it’s the tiny everyday things that aren’t tiny anymore.

Showering.
Leaving the house.
Standing in line.
Making plans.
Doing one “normal” thing without calculating the recovery cost.

Chronic illness changes the way you move through the world.

What’s one thing you wish people understood?

#ChronicIllness #ChronicPain #SpoonieLife #InvisibleIllness #DisabledLife #ChronicIllnessAwareness #Pacing

in better news, I showered! I hadn't been well enough for three days. #disabledLife

in better news, I showered! I hadn't been well enough for three days. #disabledLife

On a completely different note: I finally started the process of getting new prosthetic eyes.
I've been wearing poorly fitting ones since I was 16. They became too painful and uncomfortable to tolerate, so I'd mostly stopped wearing them.
This week I got new molds made. They might need to be slightly larger next time, though. My ocularist wants me to wear the current shells and see if my eyelids open up more.
I could only manage a few hours before needing a break, so I'm definitely readjusting.
It's uncomfortable. It's tiring. But it also feels like progress after a long time.

#Disability #Blind #ProstheticEyes #DisabledLife

On a completely different note: I finally started the process of getting new prosthetic eyes.
I've been wearing poorly fitting ones since I was 16. They became too painful and uncomfortable to tolerate, so I'd mostly stopped wearing them.
This week I got new molds made. They might need to be slightly larger next time, though. My ocularist wants me to wear the current shells and see if my eyelids open up more.
I could only manage a few hours before needing a break, so I'm definitely readjusting.
It's uncomfortable. It's tiring. But it also feels like progress after a long time.

#Disability #Blind #ProstheticEyes #DisabledLife

Some days the emotional weight hurts more than the physical pain.
This space is for naming what actually hurt today.

#InvisiblePain #ChronicPainAwareness #MentalHealthMatters #SpoonieCommunity #ChronicIllnessSupport #NightThoughts #DisabledLife

Got expired kidneys in the back. Vintage. No warranty, refunds, or returns. All sales final. DM for questionable pricing & vague info. 😂
#DarkHumor #ChronicIllness #OrganDonorFail #DisabledLife

If I can’t make fun of my situation, what’s the point in living, right?

Got expired kidneys in the back. Vintage. No warranty, refunds, or returns. All sales final. DM for questionable pricing & vague info. 😂
#DarkHumor #ChronicIllness #OrganDonorFail #DisabledLife

If I can’t make fun of my situation, what’s the point in living, right?

I was productive today. I finished my comic for Friday, continued client piece, and started inking a fantasy map to stay awake. Mysteriously I am not done with my to-do list despite these efforts.

Almost like dishes don't do themselves, important papers don't find themselves, laundry isn't able to crawl from the hamper into the machine by magic and...yeah that's it.

Good that there is some day left because I need a nap. And food that doesn't like to just...appear.

#artist #disabledlife

Disabled? What does the acronym TGIF mean to you?

#TGIF #disability #DisabledLife

3 good things
-IRL visit to SSA office was super easy and effective
-sincere sunshine and blue skies today
-started to titer off an RX I don't like
#3goodthings #DisabledLife

I am baking (sitting on sofa, with a huge headach, waiting the dough to rise and partner to come home) a loaf of bread.

#baking #bread #DisabledLife #Exhaustion #IWouldKillForSomeThaiFood

I am baking (sitting on sofa, with a huge headach, waiting the dough to rise and partner to come home) a loaf of bread.

#baking #bread #DisabledLife #Exhaustion #IWouldKillForSomeThaiFood

I wrote everyday and read everyday and worked on my projects everyday this week I should be thankful I got fired lmaoooo #disabledlife (I cried if anger but I should see the positives, it's always like this, if I don't see the good I will die)

I wrote everyday and read everyday and worked on my projects everyday this week I should be thankful I got fired lmaoooo #disabledlife (I cried if anger but I should see the positives, it's always like this, if I don't see the good I will die)

It would be very stupid to spend £100 on a new scanner without first trying to find the cables for my old one and giving it a go.

But finding said cables and 'giving it a go' in fact involves way, way more spoons.

#DisabledLife

It would be very stupid to spend £100 on a new scanner without first trying to find the cables for my old one and giving it a go.

But finding said cables and 'giving it a go' in fact involves way, way more spoons.

#DisabledLife

I felt the urge to post a little instagram update - phone can't find the image I took - I give up.

This is why I suck at social media.

(Attatched the photo I wanted to post because this is only Instagram/Facebook/Meta issue)

#SocialMedia #NotAnInfluencer #DisabledLife

I felt the urge to post a little instagram update - phone can't find the image I took - I give up.

This is why I suck at social media.

(Attatched the photo I wanted to post because this is only Instagram/Facebook/Meta issue)

#SocialMedia #NotAnInfluencer #DisabledLife

Surviving is when you know you are one single bad day away from a disaster that will pull you under for weeks, months, even years...

Living is when you have a breathing room and it takes more than one day to collapse you.

Thriving...I wouldn't know of because I've never been there. I've only had brief moments of living, and mostly endless survival. Like currently.

Today was a bad day.

I am so tired.

#Disabled #DisabledLife #Surviving #Life #BadDay #Help

Surviving is when you know you are one single bad day away from a disaster that will pull you under for weeks, months, even years...

Living is when you have a breathing room and it takes more than one day to collapse you.

Thriving...I wouldn't know of because I've never been there. I've only had brief moments of living, and mostly endless survival. Like currently.

Today was a bad day.

I am so tired.

#Disabled #DisabledLife #Surviving #Life #BadDay #Help

There's so much more walking than I thought there'd be to get to the library, and I desperately wish I was able to use my wheelchair to get over there, because I am in so much pain. However, between the inaccessibility of the sidewalks and public transit and how poor my upper body strength is, that wouldn't be feasible without shit for my chair that I will never be able to afford 😭 #disabled #disabledlife

There's so much more walking than I thought there'd be to get to the library, and I desperately wish I was able to use my wheelchair to get over there, because I am in so much pain. However, between the inaccessibility of the sidewalks and public transit and how poor my upper body strength is, that wouldn't be feasible without shit for my chair that I will never be able to afford 😭 #disabled #disabledlife

For the first time, we have #Covid in our house. My caregiver, after three years of isolating with me, is sick. My bf is staying here to handle my care, while my caregiver isolates upstairs. Just praying for a short, mild illness. At least we're all vaxed up.

#Disability #DisabledLife

My naps are getting worse and worse due to the heat which is really detiriorating my health. I feel horrible.
There is no existance without a constant fan blowing to my face and drying my eyeballs, and a rag clinging to my hair that is getting brittle fron the constant wet-dry-wet-dry treatment. I smell of damp and misery.

AC's should be a human right at this point.
Every rent aparment should have one.

#ClimateChange #Heatwave #Finland #DisabledLife

Me to my mom: "I'm finally ordering a cane and it has to be pink. I would order a purple cane but those are only for grandmothers and pimps. :-/"
#DisabledLife #MobilityAid

We are £505 away from our target on the #GoFundMe to get @QueenOfNaps a more suitable wheelchair!

Donna and I are honestly astounded by the response, thank you so much to everyone who has donated and shared so far.

We're so close now, any donations or shares would be massively appreciated!

https://gofund.me/72caabd2

#Disability #Wheelchair #Accessibility #DisabledLife

👋 i’m a 28yo disabled queerean woman trying to crowdfund for my survival fund bc of increases in essential bills, decreases in benefits (😪), & bc in the midst of all this i still can’t work in my current state of health.

you see 7yrs ago i had 2 near-fatal attempts, a month apart, that resulted in a 3-day coma, 2 traumatic involuntary stays & 6mo later i was sexually assaulted. all of which resulted in ptsd which combined w/my chronic pain, adhd, eating disorder, & severe treatment-resistant depression made going to my undergrad classes nearly impossible. i ended up going from a scholarship-winning, 4.0 gpa student to a student who was academically dismissed bc she couldn’t even leave her apt or read a few pages of schoolwork. luckily with some hard work on treatment & explaining my circumstances with my college, i was able to reenroll for the fall semester right before the pandemic started 💀 anyways, that & issues w/medicaid that caused major setbacks in treatment & recovery progress.

since then, i’ve been trying real hard to get my health/wellbeing back to a state where i am recovered, manage my chronic health issues & can study again to pursue my degrees.

PLS donate &/or boost to help me raise $$$ for my survival fund ♡ no amount is too small & i wouldn’t be begging like this if i didn’t need to 😔 

cashapp: $jazzafraz
https://gofund.me/069deda8

#disabledcrowdfund #crowdfunding #disabledqueer #disabledlife #disabled #crowdfundingcampaign #MutualAidRequest #mutualaid #disabilitycrowdfund #mentalillness #bpd #depression #adhd #ADHDwomen #bi #QTBIPOC #bipoc #lgbtqia #fibromyalgia #mecfs #ChronicPain #chronicillness #chronicallyill #chronicfatigue #ChronicFatigueSyndrome #MyalgicEncephalomyelitis #eatingdisorder #BDD #ED #DPDR #disability #crowdfund #MajorDepressiveDisorder #ptsd #cptsd #invisibledisabilities #invisibledisability #invisibleillness #queercrowdfund #donate #neisvoid #VoidGives #disabilitycommunity #DisabilityMastodon #disabilitytwitter #DisabilitySupport #disabilitymstdn #disabledlife #disabledcommunity #disabilitychat #disabledtwitter