#disabledlife — Public Fediverse posts

From being abused by staff and other travellers to being denied access to toilets, flying is an increasingly distressing and frustrating experience for many wheelchair users. Here, they share their stories

https://www.theguardian.com/world/2026/jul/24/the-captain-told-me-to-wear-a-nappy-on-board-why-is-air-travel-so-humiliating-for-disabled-passengers

#disability #disabled #DisabledRights #airtravel #disabledlife #accessibility

A fun thing about being on different meds after my operation is that my fibro numbers are wonderfully low today😂 Gotta take the good where you can find it😁😉

#fibromyalgia #kidney #disabled #kidneys #disabledlife #cptsd #ptsd

What’s something healthy people take for granted that you think about every day?

For me, it’s the tiny everyday things that aren’t tiny anymore.

Showering.
Leaving the house.
Standing in line.
Making plans.
Doing one “normal” thing without calculating the recovery cost.

Chronic illness changes the way you move through the world.

What’s one thing you wish people understood?

#ChronicIllness #ChronicPain #SpoonieLife #InvisibleIllness #DisabledLife #ChronicIllnessAwareness #Pacing

in better news, I showered! I hadn't been well enough for three days. #disabledLife

On a completely different note: I finally started the process of getting new prosthetic eyes.
I've been wearing poorly fitting ones since I was 16. They became too painful and uncomfortable to tolerate, so I'd mostly stopped wearing them.
This week I got new molds made. They might need to be slightly larger next time, though. My ocularist wants me to wear the current shells and see if my eyelids open up more.
I could only manage a few hours before needing a break, so I'm definitely readjusting.
It's uncomfortable. It's tiring. But it also feels like progress after a long time.

#Disability #Blind #ProstheticEyes #DisabledLife

Got expired kidneys in the back. Vintage. No warranty, refunds, or returns. All sales final. DM for questionable pricing & vague info. 😂
#DarkHumor #ChronicIllness #OrganDonorFail #DisabledLife

If I can’t make fun of my situation, what’s the point in living, right?

I was productive today. I finished my comic for Friday, continued client piece, and started inking a fantasy map to stay awake. Mysteriously I am not done with my to-do list despite these efforts.

Almost like dishes don't do themselves, important papers don't find themselves, laundry isn't able to crawl from the hamper into the machine by magic and...yeah that's it.

Good that there is some day left because I need a nap. And food that doesn't like to just...appear.

#artist #disabledlife

Disabled? What does the acronym TGIF mean to you?

#TGIF #disability #DisabledLife

3 good things
-IRL visit to SSA office was super easy and effective
-sincere sunshine and blue skies today
-started to titer off an RX I don't like
#3goodthings #DisabledLife

I am baking (sitting on sofa, with a huge headach, waiting the dough to rise and partner to come home) a loaf of bread.

#baking #bread #DisabledLife #Exhaustion #IWouldKillForSomeThaiFood

I wrote everyday and read everyday and worked on my projects everyday this week I should be thankful I got fired lmaoooo #disabledlife (I cried if anger but I should see the positives, it's always like this, if I don't see the good I will die)

It would be very stupid to spend £100 on a new scanner without first trying to find the cables for my old one and giving it a go.

But finding said cables and 'giving it a go' in fact involves way, way more spoons.

#DisabledLife

I felt the urge to post a little instagram update - phone can't find the image I took - I give up.

This is why I suck at social media.

(Attatched the photo I wanted to post because this is only Instagram/Facebook/Meta issue)

#SocialMedia #NotAnInfluencer #DisabledLife

Surviving is when you know you are one single bad day away from a disaster that will pull you under for weeks, months, even years...

Living is when you have a breathing room and it takes more than one day to collapse you.

Thriving...I wouldn't know of because I've never been there. I've only had brief moments of living, and mostly endless survival. Like currently.

Today was a bad day.

I am so tired.

#Disabled #DisabledLife #Surviving #Life #BadDay #Help

There's so much more walking than I thought there'd be to get to the library, and I desperately wish I was able to use my wheelchair to get over there, because I am in so much pain. However, between the inaccessibility of the sidewalks and public transit and how poor my upper body strength is, that wouldn't be feasible without shit for my chair that I will never be able to afford 😭 #disabled #disabledlife

For the first time, we have #Covid in our house. My caregiver, after three years of isolating with me, is sick. My bf is staying here to handle my care, while my caregiver isolates upstairs. Just praying for a short, mild illness. At least we're all vaxed up.

#Disability #DisabledLife