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#invisibleillness — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #invisibleillness, aggregated by home.social.

  1. Tom Kindlon @[email protected] ·

    From Canada 🇨🇦

    ‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

    Free fulltext:
    digitalcommons.osgoode.yorku.c

    #MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    @mecfs

    #mecfs #chronicillness #disability #pwme #cfs #hiddenillness
  2. Tom Kindlon @[email protected] ·

    From Canada 🇨🇦

    ‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

    Free fulltext:
    digitalcommons.osgoode.yorku.c

    #MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    @mecfs

    #mecfs #chronicillness #disability #pwme #cfs #hiddenillness
  3. Tom Kindlon @[email protected] ·

    From Canada 🇨🇦

    ‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

    Free fulltext:
    digitalcommons.osgoode.yorku.c

    #MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    @mecfs

    #spoonie #spoonies #chronicillnesses #invisibleillness #hiddenillness #cfs
  4. Tom Kindlon @[email protected] ·

    From Canada 🇨🇦

    ‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

    Free fulltext:
    digitalcommons.osgoode.yorku.c

    #MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    @mecfs

    #mecfs #chronicillness #disability #pwme #cfs #hiddenillness
  5. Tom Kindlon @[email protected] ·

    From Canada 🇨🇦

    ‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

    Free fulltext:
    digitalcommons.osgoode.yorku.c

    #MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    @mecfs

    #mecfs #chronicillness #disability #pwme #cfs #hiddenillness
  6. Tom Kindlon @[email protected] ·

    🧵
    "How medical training promotes medical gaslighting" by K. Johnstone

    mecfs.substack.com/p/how-medic

    This is not illness specific.

    #chronicillness #hiddenillness #invisibleillness @longcovid
    #LongCovid #MEcfs
    @mecfs #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    1/

    #chronicillness #hiddenillness #invisibleillness #longcovid #mecfs #chronicillnesses
  7. Tom Kindlon @[email protected] ·

    "Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone

    mecfs.substack.com/p/medical-g

    #MedicalGaslighting #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    #medicalgaslighting #neisvoid #chronicillness #chroniclife #chronicpain #spoonielife
  8. Tom Kindlon @[email protected] ·

    Years of scapegoating rhetoric has led to ‘envy & resentment’ of those with blue badges, research finds

    Note: blue badge = UK name for disabled parking permit

    disabilitynewsservice.com/year

    Screenshot from AMMES March 2026 Newsletter

    #Disabled #Disability #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll
    #MEcfs #CFS #PwME
    @mecfs @longcovid
    #LongCovid #POTS @pots

    #disabled #disability #chronicillness #chroniclife #chronicpain #spoonielife
  9. Tom Kindlon @[email protected] ·

    🧵
    "The Quiet Art of Extending a Life: Notes on Assistive Tools, Capacity, and the Dignity of Support"

    onelifelivedwell.substack.com/

    Another thoughtful post from this OT who specialises in ME/CFS & long Covid

    She calls such devices "capacity extenders".

    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll
    #MEcfs #CFS #PwME
    @mecfs @longcovid
    #LongCovid #POTS @pots
    #Disabled
    #Disability

    1/

    #chronicillness #chroniclife #chronicpain #spoonielife #hiddenillness #invisibleillness
  10. Tom Kindlon @[email protected] ·

    🧵
    Another thoughtful blog post from this blogger:

    "Some people feel validated by an FND diagnosis; we should treat these people with respect, understanding and compassion (even if we think they're wrong). It’s complicated!" by K. Johnstone

    mecfs.substack.com/p/some-peop

    #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    1/

    #neisvoid #chronicillness #chroniclife #chronicpain #spoonielife #hiddenillness
  11. Tom Kindlon @[email protected] ·

    🧵
    "Somatic symptom disorder: Why your doctor doesn't believe you're really sick: SSD is a mainly-female condition which medicine treats as real and common, but which has no solid scientific basis"

    mecfs.substack.com/p/somatic-s

    I have been impressed by this blogger.

    #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    1/

    #neisvoid #chronicillness #chroniclife #chronicpain #spoonielife #hiddenillness
  12. Tom Kindlon @[email protected] ·

    The Emotional Toll of Chronic Illness: Naming the Invisible Grief | Grief is the New Normal

    youtube.com/watch?v=pgqi2W9dmLc

    From February 2026 Massachusetts ME/CFS & FM Association newsletter

    massme.monkeypod.io/mailcoach/

    Comment: I haven't watched it myself so far

    #chronicillness #chroniclife #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll
    #MEcfs #CFS #PwME
    @mecfs @longcovid
    #LongCovid #POTS @pots #Fibromyalgia #Fibro #FMS #FM

    #chronicillness #chroniclife #spoonielife #hiddenillness #invisibleillness #chronicillnesses
  13. Tom Kindlon @[email protected] ·

    How can we manage our wellbeing when interacting with others online?

    actionforme.org.uk/resource/be

    "In this article, we start a conversation about life online, with some reflections on how to manage our wellbeing in this environment."

    #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #LongCovid #chronicillness @mecfs #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie

    #mecfs #cfs #pwme #myalgicencephalomyelitis #longcovid #chronicillness
  14. Tom Kindlon @[email protected] ·

    Short blog post by K. Johnstone:

    "'You'd get better if you just....' is bullying and we don't deserve it."

    substack.com/@mecfs/note/c-203

    #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
    @mecfs
    #chronicillness #hiddenillness #invisibleillness #ChronicIllnesses #LongCovid @longcovid #ChronicPain

    #mecfs #cfs #pwme #myalgicencephalomyelitis #chronicfatiguesyndrome #chronicillness
  15. Tom Kindlon @[email protected] ·

    "Creativity and chronic illness" (from the Chronic Living Therapy newsletter)
    chroniclivingtherapy.com/creat

    Features:

    - Ballet dancer, @anilvanderzee

    - Red Tree and ME – international collaborative art project

    - Jeremy Jeffs, Photography project

    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll
    #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
    @mecfs #TheRedTreeandME

    1/

    #chronicillness #chroniclife #chronicpain #spoonielife #hiddenillness #invisibleillness
  16. Tom Kindlon @[email protected] ·

    I saw this 36-page booklet recommended for people with disabilities & chronic illnesses as well as older people but haven't read.

    aarp.org/livable-communities/h

    Not sure whether it is mainly of use to those in the US or whether it is pretty international?

    #Disabled #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll
    #Disability

    1/

    #disabled #chronicillness #chroniclife #chronicpain #spoonielife #hiddenillness
  17. Tom Kindlon @[email protected] ·

    Many with ME/CFS and other chronic illnesses may be able to relate some if not many of these

    This was posted as a comment on my FB page today, but I'm not sure who created it originally.

    Hashtags:
    @longcovid
    #LongCovid #PASC #PwLC #postcovid #postcovid19 @mecfs
    #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #chronicillness #hiddenillness #invisibleillness
    #ChronicIllnesses #Spoonies #Spoonie #POTS @pots #Fibromyalgia #Fibro #FMS #FM

    #longcovid #pasc #pwlc #postcovid #postcovid19 #mecfs
  18. Irish ME/CFS Association @[email protected] ·

    (Not ME-specific)

    "Cost-of-disability payment a priority for 2026, says social protection minister"

    "Dara Calleary said he wanted to see a budget proposal provided to him before the summer"

    irishexaminer.com/news/politic

    #Disabled
    #Disability
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    #disabled #disability #chronicillness #chroniclife #chronicpain #spoonielife
  19. Tom Kindlon @[email protected] ·

    Bateman Horne Center's "'Coffee'" with a Clinician: Pacing for Holidays and Special Events"

    Recording
    youtube.com/watch?v=BNZ563Uktaw

    Slides
    batemanhornecenter.org/wp-cont

    Transcript
    batemanhornecenter.org/wp-cont

    I haven't watched it but slides seem sensible

    #LongCovid @longcovid @mecfs
    #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #POTS @pots #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    #longcovid #mecfs #cfs #pwme #myalgicencephalomyelitis #chronicfatiguesyndrome
  20. Tom Kindlon @[email protected] ·

    See post #2 for a vaguely related comment from me on orthostatic intolerance

    #POTS @pots #OI #OrthostaticIntolerance #chronicillness #chroniclife
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll
    #ChronicIllnessMemes
    @mecfs
    #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
    #LongCovid

    1/

    #pots #oi #orthostaticintolerance #chronicillness #chroniclife #spoonielife
  21. Tom Kindlon @[email protected] ·

    #mecfs @mecfs #longcovid @longcovid #pots @pots #chronicillness

    #chroniclife

    #ChronicPain

    #Spoonielife

    #hiddenillness

    #invisibleillness

    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    #ChronicIllnessMemes

    #mecfs #longcovid #pots #chronicillness #chroniclife #chronicpain
  22. Tom Kindlon @[email protected] ·

    Australia:

    If you’re living with ME/CFS, Long COVID or want to volunteer as a ‘healthy control’ for medical research studies, signing up and becoming an AusME Registry participant is the single easiest way to become involved in research! Learn more today

    vist.ly/3b4pb #mecfs

    #chronicillness #myalgicencphalopmyelitis #chronicfatiguesyndrome #invisibleillness #chronicfatigue #mecfsawarenss #me #longcovid #biobank #registry #AusME
    @mecfs @longcovid @auscovid19 #auscovid19

    #mecfs #chronicillness #myalgicencphalopmyelitis #chronicfatiguesyndrome #invisibleillness #chronicfatigue