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#invisibleillness — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #invisibleillness, aggregated by home.social.

  1. From Canada 🇨🇦

    ‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

    Free fulltext:
    digitalcommons.osgoode.yorku.c

    #MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    @mecfs

  2. From Canada 🇨🇦

    ‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

    Free fulltext:
    digitalcommons.osgoode.yorku.c

    #MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    @mecfs

  3. From Canada 🇨🇦

    ‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

    Free fulltext:
    digitalcommons.osgoode.yorku.c

    #MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    @mecfs

  4. From Canada 🇨🇦

    ‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

    Free fulltext:
    digitalcommons.osgoode.yorku.c

    #MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    @mecfs

  5. "Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone

    mecfs.substack.com/p/medical-g

    #MedicalGaslighting #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

  6. 🧵
    Another thoughtful blog post from this blogger:

    "Some people feel validated by an FND diagnosis; we should treat these people with respect, understanding and compassion (even if we think they're wrong). It’s complicated!" by K. Johnstone

    mecfs.substack.com/p/some-peop

    #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    1/

  7. 🧵
    "Somatic symptom disorder: Why your doctor doesn't believe you're really sick: SSD is a mainly-female condition which medicine treats as real and common, but which has no solid scientific basis"

    mecfs.substack.com/p/somatic-s

    I have been impressed by this blogger.

    #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    1/

  8. I saw this 36-page booklet recommended for people with disabilities & chronic illnesses as well as older people but haven't read.

    aarp.org/livable-communities/h

    Not sure whether it is mainly of use to those in the US or whether it is pretty international?

    #Disabled #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll
    #Disability

    1/

  9. Many with ME/CFS and other chronic illnesses may be able to relate some if not many of these

    This was posted as a comment on my FB page today, but I'm not sure who created it originally.

    Hashtags:
    @longcovid
    #LongCovid #PASC #PwLC #postcovid #postcovid19 @mecfs
    #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #chronicillness #hiddenillness #invisibleillness
    #ChronicIllnesses #Spoonies #Spoonie #POTS @pots #Fibromyalgia #Fibro #FMS #FM

  10. Australia:

    If you’re living with ME/CFS, Long COVID or want to volunteer as a ‘healthy control’ for medical research studies, signing up and becoming an AusME Registry participant is the single easiest way to become involved in research! Learn more today

    vist.ly/3b4pb #mecfs

    #chronicillness #myalgicencphalopmyelitis #chronicfatiguesyndrome #invisibleillness #chronicfatigue #mecfsawarenss #me #longcovid #biobank #registry #AusME
    @mecfs @longcovid @auscovid19 #auscovid19