#invisibleillness — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #invisibleillness, aggregated by home.social.
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Had my 2-yearly opticians appointment. My /physical/ eyes have only slightly changed.
But it seems my #Fibromyalgia is once again the main thing affecting my vision.
Then I need lighter glasses as my current ones hit too many pressure points on my head, plus two on my nose, exacerbating my head pain.
It's one of those reminders that Fibro is an #InvisibleIllness because my eyes are /healthy/ but they're stopped from working properly due to pain.
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Had my 2-yearly opticians appointment. My /physical/ eyes have only slightly changed.
But it seems my #Fibromyalgia is once again the main thing affecting my vision.
Then I need lighter glasses as my current ones hit too many pressure points on my head, plus two on my nose, exacerbating my head pain.
It's one of those reminders that Fibro is an #InvisibleIllness because my eyes are /healthy/ but they're stopped from working properly due to pain.
-
Had my 2-yearly opticians appointment. My /physical/ eyes have only slightly changed.
But it seems my #Fibromyalgia is once again the main thing affecting my vision.
Then I need lighter glasses as my current ones hit too many pressure points on my head, plus two on my nose, exacerbating my head pain.
It's one of those reminders that Fibro is an #InvisibleIllness because my eyes are /healthy/ but they're stopped from working properly due to pain.
-
Had my 2-yearly opticians appointment. My /physical/ eyes have only slightly changed.
But it seems my #Fibromyalgia is once again the main thing affecting my vision.
Then I need lighter glasses as my current ones hit too many pressure points on my head, plus two on my nose, exacerbating my head pain.
It's one of those reminders that Fibro is an #InvisibleIllness because my eyes are /healthy/ but they're stopped from working properly due to pain.
-
Had my 2-yearly opticians appointment. My /physical/ eyes have only slightly changed.
But it seems my #Fibromyalgia is once again the main thing affecting my vision.
Then I need lighter glasses as my current ones hit too many pressure points on my head, plus two on my nose, exacerbating my head pain.
It's one of those reminders that Fibro is an #InvisibleIllness because my eyes are /healthy/ but they're stopped from working properly due to pain.
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Episode 20: She Wasn’t Expected to Live—But God Had Other Plans | EP 20 Heather’s Story
What does faith look like when healing doesn’t come the way you hoped? Heather was born with a congenital heart defect and wasn’t expected to live. Through multiple heart surgeries, breast cancer, chronic illness, and ongoing physical challenges, God has continued to meet her again and again. In this powerful episode, Heather shares how her struggles have deepened her faith and given her a purpose—to bring hope to others walking through chronic and invisible illness. Sometimes testimony doesn’t say, “Everything is perfect now.” Sometimes it says, “Jesus is still here.” ❤️ -
Episode 20: She Wasn’t Expected to Live—But God Had Other Plans | EP 20 Heather’s Story
What does faith look like when healing doesn’t come the way you hoped? Heather was born with a congenital heart defect and wasn’t expected to live. Through multiple heart surgeries, breast cancer, chronic illness, and ongoing physical challenges, God has continued to meet her again and again. In this powerful episode, Heather shares how her struggles have deepened her faith and given her a purpose—to bring hope to others walking through chronic and invisible illness. Sometimes testimony doesn’t say, “Everything is perfect now.” Sometimes it says, “Jesus is still here.” ❤️ -
Episode 20: She Wasn’t Expected to Live—But God Had Other Plans | EP 20 Heather’s Story
What does faith look like when healing doesn’t come the way you hoped? Heather was born with a congenital heart defect and wasn’t expected to live. Through multiple heart surgeries, breast cancer, chronic illness, and ongoing physical challenges, God has continued to meet her again and again. In this powerful episode, Heather shares how her struggles have deepened her faith and given her a purpose—to bring hope to others walking through chronic and invisible illness. Sometimes testimony doesn’t say, “Everything is perfect now.” Sometimes it says, “Jesus is still here.” ❤️ -
Episode 20: She Wasn’t Expected to Live—But God Had Other Plans | EP 20 Heather’s Story
What does faith look like when healing doesn’t come the way you hoped? Heather was born with a congenital heart defect and wasn’t expected to live. Through multiple heart surgeries, breast cancer, chronic illness, and ongoing physical challenges, God has continued to meet her again and again. In this powerful episode, Heather shares how her struggles have deepened her faith and given her a purpose—to bring hope to others walking through chronic and invisible illness. Sometimes testimony doesn’t say, “Everything is perfect now.” Sometimes it says, “Jesus is still here.” ❤️ -
Using aids and maybe looking/acting different than others expect:
'I don't really care anymore what people think of me.'
'Well, better look silly than feel terrible.'
'I quite enjoy being weird. (..) I hope that everyone can just go out there and be their own weird self after this conversation.'
#physicaltherapy tools to reduce crashes and improve quality of life for:
#POTS
#PEM
#EDS
#MCAS
#MECFS
#LongCovid
#servicedog
#invisibleillness -
Using aids and maybe looking/acting different than others expect:
'I don't really care anymore what people think of me.'
'Well, better look silly than feel terrible.'
'I quite enjoy being weird. (..) I hope that everyone can just go out there and be their own weird self after this conversation.'
#physicaltherapy tools to reduce crashes and improve quality of life for:
#POTS
#PEM
#EDS
#MCAS
#MECFS
#LongCovid
#servicedog
#invisibleillness -
Using aids and maybe looking/acting different than others expect:
'I don't really care anymore what people think of me.'
'Well, better look silly than feel terrible.'
'I quite enjoy being weird. (..) I hope that everyone can just go out there and be their own weird self after this conversation.'
#physicaltherapy tools to reduce crashes and improve quality of life for:
#POTS
#PEM
#EDS
#MCAS
#MECFS
#LongCovid
#servicedog
#invisibleillness -
Using aids and maybe looking/acting different than others expect:
'I don't really care anymore what people think of me.'
'Well, better look silly than feel terrible.'
'I quite enjoy being weird. (..) I hope that everyone can just go out there and be their own weird self after this conversation.'
#physicaltherapy tools to reduce crashes and improve quality of life for:
#POTS
#PEM
#EDS
#MCAS
#MECFS
#LongCovid
#servicedog
#invisibleillness -
Using aids and maybe looking/acting different than others expect:
'I don't really care anymore what people think of me.'
'Well, better look silly than feel terrible.'
'I quite enjoy being weird. (..) I hope that everyone can just go out there and be their own weird self after this conversation.'
#physicaltherapy tools to reduce crashes and improve quality of life for:
#POTS
#PEM
#EDS
#MCAS
#MECFS
#LongCovid
#servicedog
#invisibleillness -
From @onelife_livedwell on IG:
Let’s talk about the unofficial evaluation that can determine belief, treatment, or accommodations. What’s being measured is legibility in the eyes of the system you’re dealing with. -
From @onelife_livedwell on IG:
Let’s talk about the unofficial evaluation that can determine belief, treatment, or accommodations. What’s being measured is legibility in the eyes of the system you’re dealing with. -
From @onelife_livedwell on IG:
Let’s talk about the unofficial evaluation that can determine belief, treatment, or accommodations. What’s being measured is legibility in the eyes of the system you’re dealing with. -
From @onelife_livedwell on IG:
Let’s talk about the unofficial evaluation that can determine belief, treatment, or accommodations. What’s being measured is legibility in the eyes of the system you’re dealing with. -
From @onelife_livedwell on IG:
Let’s talk about the unofficial evaluation that can determine belief, treatment, or accommodations. What’s being measured is legibility in the eyes of the system you’re dealing with. -
4/
“If this is where you are, or where someone you love is, I hope this phrase gives you a small place to stand and is a reminder that the journey has a name💛”#undiagnosed #undiagnosedillness #invisibleillness #spoonie #chronicillness
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4/
“If this is where you are, or where someone you love is, I hope this phrase gives you a small place to stand and is a reminder that the journey has a name💛”#undiagnosed #undiagnosedillness #invisibleillness #spoonie #chronicillness
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4/
“If this is where you are, or where someone you love is, I hope this phrase gives you a small place to stand and is a reminder that the journey has a name💛”#undiagnosed #undiagnosedillness #invisibleillness #spoonie #chronicillness
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4/
“If this is where you are, or where someone you love is, I hope this phrase gives you a small place to stand and is a reminder that the journey has a name💛”#undiagnosed #undiagnosedillness #invisibleillness #spoonie #chronicillness
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4/
“If this is where you are, or where someone you love is, I hope this phrase gives you a small place to stand and is a reminder that the journey has a name💛”#undiagnosed #undiagnosedillness #invisibleillness #spoonie #chronicillness
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3/
The invisible illness tax is real, but so is the growing body of research, education, and education working to reform it.
#chronicillnesssupport #invisibleillnessawareness #invisibleillness #advocacy #spooniesupport #chronicillness @mecfs @longcovid @pots
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3/
The invisible illness tax is real, but so is the growing body of research, education, and education working to reform it.
#chronicillnesssupport #invisibleillnessawareness #invisibleillness #advocacy #spooniesupport #chronicillness @mecfs @longcovid @pots
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3/
The invisible illness tax is real, but so is the growing body of research, education, and education working to reform it.
#chronicillnesssupport #invisibleillnessawareness #invisibleillness #advocacy #spooniesupport #chronicillness @mecfs @longcovid @pots
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3/
The invisible illness tax is real, but so is the growing body of research, education, and education working to reform it.
#chronicillnesssupport #invisibleillnessawareness #invisibleillness #advocacy #spooniesupport #chronicillness @mecfs @longcovid @pots
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3/
The invisible illness tax is real, but so is the growing body of research, education, and education working to reform it.
#chronicillnesssupport #invisibleillnessawareness #invisibleillness #advocacy #spooniesupport #chronicillness @mecfs @longcovid @pots
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Share your story below. Let’s remind each other we’re not failing — we’re enduring.
#ChronicFatigue #InvisibleIllness #FinancialStruggle #ChronicIllness #MentalHealthMatters
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Somatic symptom disorder: Why your doctor doesn't believe you're really sick
https://mecfs.substack.com/p/somatic-symptom-disorder-why-your
Screenshot from July 2026 AMMES newsletter
#Psychologicalisation #chronicillness #ChronicPain #hiddenillness #invisibleillness
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Somatic symptom disorder: Why your doctor doesn't believe you're really sick
https://mecfs.substack.com/p/somatic-symptom-disorder-why-your
Screenshot from July 2026 AMMES newsletter
#Psychologicalisation #chronicillness #ChronicPain #hiddenillness #invisibleillness
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Somatic symptom disorder: Why your doctor doesn't believe you're really sick
https://mecfs.substack.com/p/somatic-symptom-disorder-why-your
Screenshot from July 2026 AMMES newsletter
#Psychologicalisation #chronicillness #ChronicPain #hiddenillness #invisibleillness
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Somatic symptom disorder: Why your doctor doesn't believe you're really sick
https://mecfs.substack.com/p/somatic-symptom-disorder-why-your
Screenshot from July 2026 AMMES newsletter
#Psychologicalisation #chronicillness #ChronicPain #hiddenillness #invisibleillness
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Somatic symptom disorder: Why your doctor doesn't believe you're really sick
https://mecfs.substack.com/p/somatic-symptom-disorder-why-your
Screenshot from July 2026 AMMES newsletter
#Psychologicalisation #chronicillness #ChronicPain #hiddenillness #invisibleillness
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Evaluation of an Invisible Illness Communication Strategy Curriculum Among Internal Medicine Interns
Screenshot from latest Science for ME weekly update
#hiddenillness #invisibleillness @mecfs @longcovid
#MEcfs #LongCovid -
Evaluation of an Invisible Illness Communication Strategy Curriculum Among Internal Medicine Interns
Screenshot from latest Science for ME weekly update
#hiddenillness #invisibleillness @mecfs @longcovid
#MEcfs #LongCovid -
Evaluation of an Invisible Illness Communication Strategy Curriculum Among Internal Medicine Interns
Screenshot from latest Science for ME weekly update
#hiddenillness #invisibleillness @mecfs @longcovid
#MEcfs #LongCovid -
Evaluation of an Invisible Illness Communication Strategy Curriculum Among Internal Medicine Interns
Screenshot from latest Science for ME weekly update
#hiddenillness #invisibleillness @mecfs @longcovid
#MEcfs #LongCovid -
Evaluation of an Invisible Illness Communication Strategy Curriculum Among Internal Medicine Interns
Screenshot from latest Science for ME weekly update
#hiddenillness #invisibleillness @mecfs @longcovid
#MEcfs #LongCovid -
Long COVID patients are told symptoms are in their head – here’s how to change the narrative
#Health #LongCOVID #MECFS #ChronicIllness #COVID19 #PostCOVID #LongHaulers #BrainHealth #NervousSystem #PatientCare #InvisibleIllness #ChronicPain #Rehabilitation
https://the-14.com/long-covid-patients-are-told-symptoms-are-in-their-head-heres-how-to-change-the-narrative/ -
Long COVID patients are told symptoms are in their head – here’s how to change the narrative
#Health #LongCOVID #MECFS #ChronicIllness #COVID19 #PostCOVID #LongHaulers #BrainHealth #NervousSystem #PatientCare #InvisibleIllness #ChronicPain #Rehabilitation
https://the-14.com/long-covid-patients-are-told-symptoms-are-in-their-head-heres-how-to-change-the-narrative/ -
Long COVID patients are told symptoms are in their head – here’s how to change the narrative
#Health #LongCOVID #MECFS #ChronicIllness #COVID19 #PostCOVID #LongHaulers #BrainHealth #NervousSystem #PatientCare #InvisibleIllness #ChronicPain #Rehabilitation
https://the-14.com/long-covid-patients-are-told-symptoms-are-in-their-head-heres-how-to-change-the-narrative/ -
Long COVID patients are told symptoms are in their head – here’s how to change the narrative
#Health #LongCOVID #MECFS #ChronicIllness #COVID19 #PostCOVID #LongHaulers #BrainHealth #NervousSystem #PatientCare #InvisibleIllness #ChronicPain #Rehabilitation
https://the-14.com/long-covid-patients-are-told-symptoms-are-in-their-head-heres-how-to-change-the-narrative/ -
Long COVID patients are told symptoms are in their head – here’s how to change the narrative
#Health #LongCOVID #MECFS #ChronicIllness #COVID19 #PostCOVID #LongHaulers #BrainHealth #NervousSystem #PatientCare #InvisibleIllness #ChronicPain #Rehabilitation
https://the-14.com/long-covid-patients-are-told-symptoms-are-in-their-head-heres-how-to-change-the-narrative/ -
My cardiologist appointment is finally here, and I'm wearing my Holter monitor! 🩺✨
Full confession: I meant to record on the way, but a lady was cleaning my hallway, my dad was already waiting outside in his car, and then he walked me all the way into the clinic! 😂
Now the waiting game begins for clear results🤞🏻
Have you ever had to wear one of these heart monitors? Let me know 👇
#cardiology #holtermonitor #healthjourney #invisibleillness #jenniesworld
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My cardiologist appointment is finally here, and I'm wearing my Holter monitor! 🩺✨
Full confession: I meant to record on the way, but a lady was cleaning my hallway, my dad was already waiting outside in his car, and then he walked me all the way into the clinic! 😂
Now the waiting game begins for clear results🤞🏻
Have you ever had to wear one of these heart monitors? Let me know 👇
#cardiology #holtermonitor #healthjourney #invisibleillness #jenniesworld
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My cardiologist appointment is finally here, and I'm wearing my Holter monitor! 🩺✨
Full confession: I meant to record on the way, but a lady was cleaning my hallway, my dad was already waiting outside in his car, and then he walked me all the way into the clinic! 😂
Now the waiting game begins for clear results🤞🏻
Have you ever had to wear one of these heart monitors? Let me know 👇
#cardiology #holtermonitor #healthjourney #invisibleillness #jenniesworld
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My cardiologist appointment is finally here, and I'm wearing my Holter monitor! 🩺✨
Full confession: I meant to record on the way, but a lady was cleaning my hallway, my dad was already waiting outside in his car, and then he walked me all the way into the clinic! 😂
Now the waiting game begins for clear results🤞🏻
Have you ever had to wear one of these heart monitors? Let me know 👇
#cardiology #holtermonitor #healthjourney #invisibleillness #jenniesworld
-
My cardiologist appointment is finally here, and I'm wearing my Holter monitor! 🩺✨
Full confession: I meant to record on the way, but a lady was cleaning my hallway, my dad was already waiting outside in his car, and then he walked me all the way into the clinic! 😂
Now the waiting game begins for clear results🤞🏻
Have you ever had to wear one of these heart monitors? Let me know 👇
#cardiology #holtermonitor #healthjourney #invisibleillness #jenniesworld
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🌩️ Flare Report: Pain
Pain isn’t always visible.
It can burn, ache, throb, stab, or feel like your entire body weighs a thousand pounds. Just because others can’t see it doesn’t mean it isn’t real.
💜 If you’re hurting today, remember: You don’t have to earn your rest. Pain is reason enough.
❓What’s ONE thing you wish healthy people understood about chronic pain?
#ChronicPain #ChronicIllness #Spoonie #InvisibleIllness #FlareReport #PainAwareness #Disability #spoonielife
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🌩️ Flare Report: Pain
Pain isn’t always visible.
It can burn, ache, throb, stab, or feel like your entire body weighs a thousand pounds. Just because others can’t see it doesn’t mean it isn’t real.
💜 If you’re hurting today, remember: You don’t have to earn your rest. Pain is reason enough.
❓What’s ONE thing you wish healthy people understood about chronic pain?
#ChronicPain #ChronicIllness #Spoonie #InvisibleIllness #FlareReport #PainAwareness #Disability #spoonielife
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🌩️ Flare Report: Pain
Pain isn’t always visible.
It can burn, ache, throb, stab, or feel like your entire body weighs a thousand pounds. Just because others can’t see it doesn’t mean it isn’t real.
💜 If you’re hurting today, remember: You don’t have to earn your rest. Pain is reason enough.
❓What’s ONE thing you wish healthy people understood about chronic pain?
#ChronicPain #ChronicIllness #Spoonie #InvisibleIllness #FlareReport #PainAwareness #Disability #spoonielife
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🌩️ Flare Report: Pain
Pain isn’t always visible.
It can burn, ache, throb, stab, or feel like your entire body weighs a thousand pounds. Just because others can’t see it doesn’t mean it isn’t real.
💜 If you’re hurting today, remember: You don’t have to earn your rest. Pain is reason enough.
❓What’s ONE thing you wish healthy people understood about chronic pain?
#ChronicPain #ChronicIllness #Spoonie #InvisibleIllness #FlareReport #PainAwareness #Disability #spoonielife
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🌩️ Flare Report: Pain
Pain isn’t always visible.
It can burn, ache, throb, stab, or feel like your entire body weighs a thousand pounds. Just because others can’t see it doesn’t mean it isn’t real.
💜 If you’re hurting today, remember: You don’t have to earn your rest. Pain is reason enough.
❓What’s ONE thing you wish healthy people understood about chronic pain?
#ChronicPain #ChronicIllness #Spoonie #InvisibleIllness #FlareReport #PainAwareness #Disability #spoonielife
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🧠☁️ Flare Report: Brain Fog
Brain fog is more than being forgetful.
It’s searching for the right words, losing your train of thought, rereading the same sentence, or walking into a room and forgetting why.
For many of us with chronic illness, it’s one of the hardest invisible symptoms to explain.
💜 Be kind to yourself on the foggy days.
What’s the funniest or most frustrating brain fog moment you’ve had?
#BrainFog #FlareReport #ChronicIllness #Spoonie #InvisibleIllness #DisabilityAwareness
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🧠☁️ Flare Report: Brain Fog
Brain fog is more than being forgetful.
It’s searching for the right words, losing your train of thought, rereading the same sentence, or walking into a room and forgetting why.
For many of us with chronic illness, it’s one of the hardest invisible symptoms to explain.
💜 Be kind to yourself on the foggy days.
What’s the funniest or most frustrating brain fog moment you’ve had?
#BrainFog #FlareReport #ChronicIllness #Spoonie #InvisibleIllness #DisabilityAwareness
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🧠☁️ Flare Report: Brain Fog
Brain fog is more than being forgetful.
It’s searching for the right words, losing your train of thought, rereading the same sentence, or walking into a room and forgetting why.
For many of us with chronic illness, it’s one of the hardest invisible symptoms to explain.
💜 Be kind to yourself on the foggy days.
What’s the funniest or most frustrating brain fog moment you’ve had?
#BrainFog #FlareReport #ChronicIllness #Spoonie #InvisibleIllness #DisabilityAwareness
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🧠☁️ Flare Report: Brain Fog
Brain fog is more than being forgetful.
It’s searching for the right words, losing your train of thought, rereading the same sentence, or walking into a room and forgetting why.
For many of us with chronic illness, it’s one of the hardest invisible symptoms to explain.
💜 Be kind to yourself on the foggy days.
What’s the funniest or most frustrating brain fog moment you’ve had?
#BrainFog #FlareReport #ChronicIllness #Spoonie #InvisibleIllness #DisabilityAwareness
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One of the hardest parts of chronic illness isn’t just the fatigue.
It’s grieving the life you thought you’d have.
Today’s Funny Friday Flare Report features Chaos, who reminds us:
🐱 “Apparently surviving counts as productivity today.”
And on some days… that’s more than enough. 💜
What has chronic illness made you grieve that people don’t usually think about?
#ChronicIllness #Spoonie #InvisibleIllness #Fatigue #Grief #ChronicPain #Disability #funnyfriday