#invisibleillness — Public Fediverse posts on home.social

Tom Kindlon @[email protected] · 2026-09-03 · 17:42 UTC

From Canada 🇨🇦

‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/

#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs

#mecfs #chronicillness #disability #pwme #cfs #hiddenillness

FJ Brodie @[email protected] · 2026-08-22 · 14:56 UTC

Had my 2-yearly opticians appointment. My /physical/ eyes have only slightly changed.

But it seems my #Fibromyalgia is once again the main thing affecting my vision.

Then I need lighter glasses as my current ones hit too many pressure points on my head, plus two on my nose, exacerbating my head pain.

It's one of those reminders that Fibro is an #InvisibleIllness because my eyes are /healthy/ but they're stopped from working properly due to pain.

#fibromyalgia #invisibleillness

Tom Kindlon @[email protected] · 2026-07-31 · 19:45 UTC

3/

The invisible illness tax is real, but so is the growing body of research, education, and education working to reform it.

#chronicillnesssupport #invisibleillnessawareness #invisibleillness #advocacy #spooniesupport #chronicillness @mecfs @longcovid @pots

#chronicillnesssupport #invisibleillnessawareness #invisibleillness #advocacy #spooniesupport #chronicillness

Kimberlee Plezia @[email protected] · 2026-06-19 · 21:59 UTC

What’s something healthy people take for granted that you think about every day?

For me, it’s the tiny everyday things that aren’t tiny anymore.

Showering.
Leaving the house.
Standing in line.
Making plans.
Doing one “normal” thing without calculating the recovery cost.

Chronic illness changes the way you move through the world.

What’s one thing you wish people understood?

#ChronicIllness #ChronicPain #SpoonieLife #InvisibleIllness #DisabledLife #ChronicIllnessAwareness #Pacing

#chronicillness #chronicpain #spoonielife #invisibleillness #disabledlife #chronicillnessawareness

Tom Kindlon @[email protected] · 2026-04-21 · 16:15 UTC

2/

So when something feels harder to name or hold, it’s often not about the reality of the symptoms, but about the way we see them. #chronicillnesssupport #invisibleillness #advocacy #spooniesupport #occupationaltherapy

Tom: Doesn’t reference ME/CFS or Long Covid but does mention Fibromyalgia

#Fibromyalgia

#chronicillnesssupport #invisibleillness #advocacy #spooniesupport #occupationaltherapy #fibromyalgia

Tom Kindlon @[email protected] · 2026-04-21 · 16:10 UTC

From @onelife_livedwell on IG: Let’s talk about the disease prestige hierarchy, or the way some diagnoses are consistently seen as more legitimate and easier to recognize than others. Research shows this pattern holds over time, shaping what gets attention, funding, and clinical confidence. Layered into it is disability bias, the quiet pull to take conditions that aren’t easily fixed less seriously.

#chronicillness #invisibleillness #spooniesupport
1/

#chronicillness #invisibleillness #spooniesupport

Tom Kindlon @[email protected] · 2026-03-28 · 23:24 UTC

From @onelife_livedwell on IG:
The PACE trial shaped an entire research paradigm, but the methodology tells a more complicated story. This is what happens when lived experience and research conclusions don’t align and why how we define things matters so much. #invisibleillness #invisibleillness #spooniesupport #mecfs #longcovid @mecfs @longcovid