#invisibleillness — Public Fediverse posts

"I look fine, but dealing with chronic illness is my full-time job"

https://www.publicsource.org/pots-long-covid-navigating-invisible-illnesses/

"My illnesses don’t show up on lab tests, nor do they affect my appearance. Some people think this makes them less real, but a few strong supporters keep me going."

@mecfs @longcovid

#LongCovid #MEcfs #POTS #ChronicIllness #InvisibleIllness #Disabiliity

"I look fine, but dealing with chronic illness is my full-time job"

https://www.publicsource.org/pots-long-covid-navigating-invisible-illnesses/

"My illnesses don’t show up on lab tests, nor do they affect my appearance. Some people think this makes them less real, but a few strong supporters keep me going."

@mecfs @longcovid

#LongCovid #MEcfs #POTS #ChronicIllness #InvisibleIllness #Disabiliity

"I look fine, but dealing with chronic illness is my full-time job"

https://www.publicsource.org/pots-long-covid-navigating-invisible-illnesses/

"My illnesses don’t show up on lab tests, nor do they affect my appearance. Some people think this makes them less real, but a few strong supporters keep me going."

@mecfs @longcovid

#LongCovid #MEcfs #POTS #ChronicIllness #InvisibleIllness #Disabiliity

"I look fine, but dealing with chronic illness is my full-time job"

https://www.publicsource.org/pots-long-covid-navigating-invisible-illnesses/

"My illnesses don’t show up on lab tests, nor do they affect my appearance. Some people think this makes them less real, but a few strong supporters keep me going."

@mecfs @longcovid

#LongCovid #MEcfs #POTS #ChronicIllness #InvisibleIllness #Disabiliity

"I look fine, but dealing with chronic illness is my full-time job"

https://www.publicsource.org/pots-long-covid-navigating-invisible-illnesses/

"My illnesses don’t show up on lab tests, nor do they affect my appearance. Some people think this makes them less real, but a few strong supporters keep me going."

@mecfs @longcovid

#LongCovid #MEcfs #POTS #ChronicIllness #InvisibleIllness #Disabiliity

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

2/
“Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

#invisibleillness #chronicallyill #chronicpain #undiagnosed

@mecfs @pots @longcovid

2/
“Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

#invisibleillness #chronicallyill #chronicpain #undiagnosed

@mecfs @pots @longcovid

2/
“Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

#invisibleillness #chronicallyill #chronicpain #undiagnosed

@mecfs @pots @longcovid

2/
“Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

#invisibleillness #chronicallyill #chronicpain #undiagnosed

@mecfs @pots @longcovid

2/
“Jenny's invisible chronic illness has negatively impacted her life for almost a decade... As her next doctor's appointment draws near, painful memories resurface, and the depth of the injustice she has endured becomes clear."

#invisibleillness #chronicallyill #chronicpain #undiagnosed

@mecfs @pots @longcovid

Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
https://www.underground-cinema.com/screening-room?wix-vod-video-id=e133c0f3001b4d09ad9e8ed8aab8c804&wix-vod-comp-id=comp-mtueb2ju

*just create a login & scroll to see Warrior Short Film until midnight Sun 13

As someone who took 5+ years to get diagnosed, sadly I can relate

#chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain

Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
https://www.underground-cinema.com/screening-room?wix-vod-video-id=e133c0f3001b4d09ad9e8ed8aab8c804&wix-vod-comp-id=comp-mtueb2ju

*just create a login & scroll to see Warrior Short Film until midnight Sun 13

As someone who took 5+ years to get diagnosed, sadly I can relate

#chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain

Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
https://www.underground-cinema.com/screening-room?wix-vod-video-id=e133c0f3001b4d09ad9e8ed8aab8c804&wix-vod-comp-id=comp-mtueb2ju

*just create a login & scroll to see Warrior Short Film until midnight Sun 13

As someone who took 5+ years to get diagnosed, sadly I can relate

#chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain

Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
https://www.underground-cinema.com/screening-room?wix-vod-video-id=e133c0f3001b4d09ad9e8ed8aab8c804&wix-vod-comp-id=comp-mtueb2ju

*just create a login & scroll to see Warrior Short Film until midnight Sun 13

As someone who took 5+ years to get diagnosed, sadly I can relate

#chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain

Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
https://www.underground-cinema.com/screening-room?wix-vod-video-id=e133c0f3001b4d09ad9e8ed8aab8c804&wix-vod-comp-id=comp-mtueb2ju

*just create a login & scroll to see Warrior Short Film until midnight Sun 13

As someone who took 5+ years to get diagnosed, sadly I can relate

#chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain

From Canada 🇨🇦

‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/

#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs

From Canada 🇨🇦

‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/

#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs

From Canada 🇨🇦

‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/

#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs

From Canada 🇨🇦

‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/

#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs

From Canada 🇨🇦

‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/

#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs

Had my 2-yearly opticians appointment. My /physical/ eyes have only slightly changed.

But it seems my #Fibromyalgia is once again the main thing affecting my vision.

Then I need lighter glasses as my current ones hit too many pressure points on my head, plus two on my nose, exacerbating my head pain.

It's one of those reminders that Fibro is an #InvisibleIllness because my eyes are /healthy/ but they're stopped from working properly due to pain.

Had my 2-yearly opticians appointment. My /physical/ eyes have only slightly changed.

But it seems my #Fibromyalgia is once again the main thing affecting my vision.

Then I need lighter glasses as my current ones hit too many pressure points on my head, plus two on my nose, exacerbating my head pain.

It's one of those reminders that Fibro is an #InvisibleIllness because my eyes are /healthy/ but they're stopped from working properly due to pain.

Had my 2-yearly opticians appointment. My /physical/ eyes have only slightly changed.

But it seems my #Fibromyalgia is once again the main thing affecting my vision.

Then I need lighter glasses as my current ones hit too many pressure points on my head, plus two on my nose, exacerbating my head pain.

It's one of those reminders that Fibro is an #InvisibleIllness because my eyes are /healthy/ but they're stopped from working properly due to pain.

Had my 2-yearly opticians appointment. My /physical/ eyes have only slightly changed.

But it seems my #Fibromyalgia is once again the main thing affecting my vision.

Then I need lighter glasses as my current ones hit too many pressure points on my head, plus two on my nose, exacerbating my head pain.

It's one of those reminders that Fibro is an #InvisibleIllness because my eyes are /healthy/ but they're stopped from working properly due to pain.

Had my 2-yearly opticians appointment. My /physical/ eyes have only slightly changed.

But it seems my #Fibromyalgia is once again the main thing affecting my vision.

Then I need lighter glasses as my current ones hit too many pressure points on my head, plus two on my nose, exacerbating my head pain.

It's one of those reminders that Fibro is an #InvisibleIllness because my eyes are /healthy/ but they're stopped from working properly due to pain.

Episode 20: She Wasn’t Expected to Live—But God Had Other Plans | EP 20 Heather’s Story

https://gemsofknowledge.com/2026/08/17/episode-20-she-wasnt-expected-to-live-but-god-had-other-plans-ep-20-heathers-story/

Episode 20: She Wasn’t Expected to Live—But God Had Other Plans | EP 20 Heather’s Story

https://gemsofknowledge.com/2026/08/17/episode-20-she-wasnt-expected-to-live-but-god-had-other-plans-ep-20-heathers-story/

Episode 20: She Wasn’t Expected to Live—But God Had Other Plans | EP 20 Heather’s Story

https://gemsofknowledge.com/2026/08/17/episode-20-she-wasnt-expected-to-live-but-god-had-other-plans-ep-20-heathers-story/

Episode 20: She Wasn’t Expected to Live—But God Had Other Plans | EP 20 Heather’s Story

https://gemsofknowledge.com/2026/08/17/episode-20-she-wasnt-expected-to-live-but-god-had-other-plans-ep-20-heathers-story/

#chronicillness
#disability

Using aids and maybe looking/acting different than others expect:

'I don't really care anymore what people think of me.'

'Well, better look silly than feel terrible.'

'I quite enjoy being weird. (..) I hope that everyone can just go out there and be their own weird self after this conversation.'

#physicaltherapy tools to reduce crashes and improve quality of life for:

https://madevisible.podbean.com/e/38-pacing-is-power-pots-pem-eds-mcas-strategies-with-dr-clayton-powers/

#POTS
#PEM
#EDS
#MCAS
#MECFS
#LongCovid
#servicedog
#invisibleillness

#chronicillness
#disability

Using aids and maybe looking/acting different than others expect:

'I don't really care anymore what people think of me.'

'Well, better look silly than feel terrible.'

'I quite enjoy being weird. (..) I hope that everyone can just go out there and be their own weird self after this conversation.'

#physicaltherapy tools to reduce crashes and improve quality of life for:

https://madevisible.podbean.com/e/38-pacing-is-power-pots-pem-eds-mcas-strategies-with-dr-clayton-powers/

#POTS
#PEM
#EDS
#MCAS
#MECFS
#LongCovid
#servicedog
#invisibleillness

#chronicillness
#disability

Using aids and maybe looking/acting different than others expect:

'I don't really care anymore what people think of me.'

'Well, better look silly than feel terrible.'

'I quite enjoy being weird. (..) I hope that everyone can just go out there and be their own weird self after this conversation.'

#physicaltherapy tools to reduce crashes and improve quality of life for:

https://madevisible.podbean.com/e/38-pacing-is-power-pots-pem-eds-mcas-strategies-with-dr-clayton-powers/

#POTS
#PEM
#EDS
#MCAS
#MECFS
#LongCovid
#servicedog
#invisibleillness

#chronicillness
#disability

Using aids and maybe looking/acting different than others expect:

'I don't really care anymore what people think of me.'

'Well, better look silly than feel terrible.'

'I quite enjoy being weird. (..) I hope that everyone can just go out there and be their own weird self after this conversation.'

#physicaltherapy tools to reduce crashes and improve quality of life for:

https://madevisible.podbean.com/e/38-pacing-is-power-pots-pem-eds-mcas-strategies-with-dr-clayton-powers/

#POTS
#PEM
#EDS
#MCAS
#MECFS
#LongCovid
#servicedog
#invisibleillness

#chronicillness
#disability

Using aids and maybe looking/acting different than others expect:

'I don't really care anymore what people think of me.'

'Well, better look silly than feel terrible.'

'I quite enjoy being weird. (..) I hope that everyone can just go out there and be their own weird self after this conversation.'

#physicaltherapy tools to reduce crashes and improve quality of life for:

https://madevisible.podbean.com/e/38-pacing-is-power-pots-pem-eds-mcas-strategies-with-dr-clayton-powers/

#POTS
#PEM
#EDS
#MCAS
#MECFS
#LongCovid
#servicedog
#invisibleillness

From @onelife_livedwell on IG:
Let’s talk about the unofficial evaluation that can determine belief, treatment, or accommodations. What’s being measured is legibility in the eyes of the system you’re dealing with.

#mecfs #fibromyalgia #invisibleillness #pwme #cfs @mecfs

From @onelife_livedwell on IG:
Let’s talk about the unofficial evaluation that can determine belief, treatment, or accommodations. What’s being measured is legibility in the eyes of the system you’re dealing with.

#mecfs #fibromyalgia #invisibleillness #pwme #cfs @mecfs

From @onelife_livedwell on IG:
Let’s talk about the unofficial evaluation that can determine belief, treatment, or accommodations. What’s being measured is legibility in the eyes of the system you’re dealing with.

#mecfs #fibromyalgia #invisibleillness #pwme #cfs @mecfs

From @onelife_livedwell on IG:
Let’s talk about the unofficial evaluation that can determine belief, treatment, or accommodations. What’s being measured is legibility in the eyes of the system you’re dealing with.

#mecfs #fibromyalgia #invisibleillness #pwme #cfs @mecfs

From @onelife_livedwell on IG:
Let’s talk about the unofficial evaluation that can determine belief, treatment, or accommodations. What’s being measured is legibility in the eyes of the system you’re dealing with.

#mecfs #fibromyalgia #invisibleillness #pwme #cfs @mecfs

4/
“If this is where you are, or where someone you love is, I hope this phrase gives you a small place to stand and is a reminder that the journey has a name💛”

#undiagnosed #undiagnosedillness #invisibleillness #spoonie #chronicillness

4/
“If this is where you are, or where someone you love is, I hope this phrase gives you a small place to stand and is a reminder that the journey has a name💛”

#undiagnosed #undiagnosedillness #invisibleillness #spoonie #chronicillness

4/
“If this is where you are, or where someone you love is, I hope this phrase gives you a small place to stand and is a reminder that the journey has a name💛”

#undiagnosed #undiagnosedillness #invisibleillness #spoonie #chronicillness

4/
“If this is where you are, or where someone you love is, I hope this phrase gives you a small place to stand and is a reminder that the journey has a name💛”

#undiagnosed #undiagnosedillness #invisibleillness #spoonie #chronicillness

4/
“If this is where you are, or where someone you love is, I hope this phrase gives you a small place to stand and is a reminder that the journey has a name💛”

#undiagnosed #undiagnosedillness #invisibleillness #spoonie #chronicillness

3/

The invisible illness tax is real, but so is the growing body of research, education, and education working to reform it.

#chronicillnesssupport #invisibleillnessawareness #invisibleillness #advocacy #spooniesupport #chronicillness @mecfs @longcovid @pots

3/

The invisible illness tax is real, but so is the growing body of research, education, and education working to reform it.

#chronicillnesssupport #invisibleillnessawareness #invisibleillness #advocacy #spooniesupport #chronicillness @mecfs @longcovid @pots

3/

The invisible illness tax is real, but so is the growing body of research, education, and education working to reform it.

#chronicillnesssupport #invisibleillnessawareness #invisibleillness #advocacy #spooniesupport #chronicillness @mecfs @longcovid @pots

3/

The invisible illness tax is real, but so is the growing body of research, education, and education working to reform it.

#chronicillnesssupport #invisibleillnessawareness #invisibleillness #advocacy #spooniesupport #chronicillness @mecfs @longcovid @pots

3/

The invisible illness tax is real, but so is the growing body of research, education, and education working to reform it.

#chronicillnesssupport #invisibleillnessawareness #invisibleillness #advocacy #spooniesupport #chronicillness @mecfs @longcovid @pots

Share your story below. Let’s remind each other we’re not failing — we’re enduring.

#ChronicFatigue #InvisibleIllness #FinancialStruggle #ChronicIllness #MentalHealthMatters

Somatic symptom disorder: Why your doctor doesn't believe you're really sick

https://mecfs.substack.com/p/somatic-symptom-disorder-why-your

Screenshot from July 2026 AMMES newsletter

#Psychologicalisation #chronicillness #ChronicPain #hiddenillness #invisibleillness

Somatic symptom disorder: Why your doctor doesn't believe you're really sick

https://mecfs.substack.com/p/somatic-symptom-disorder-why-your

Screenshot from July 2026 AMMES newsletter

#Psychologicalisation #chronicillness #ChronicPain #hiddenillness #invisibleillness

Somatic symptom disorder: Why your doctor doesn't believe you're really sick

https://mecfs.substack.com/p/somatic-symptom-disorder-why-your

Screenshot from July 2026 AMMES newsletter

#Psychologicalisation #chronicillness #ChronicPain #hiddenillness #invisibleillness

Somatic symptom disorder: Why your doctor doesn't believe you're really sick

https://mecfs.substack.com/p/somatic-symptom-disorder-why-your

Screenshot from July 2026 AMMES newsletter

#Psychologicalisation #chronicillness #ChronicPain #hiddenillness #invisibleillness

Somatic symptom disorder: Why your doctor doesn't believe you're really sick

https://mecfs.substack.com/p/somatic-symptom-disorder-why-your

Screenshot from July 2026 AMMES newsletter

#Psychologicalisation #chronicillness #ChronicPain #hiddenillness #invisibleillness