#medicalgaslighting — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #medicalgaslighting, aggregated by home.social.
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Medical Gaslighting
Viele kennen es, man sitzt vor dem oder der Ärzt*in und fühlt sich einfach nicht richtig ernst genommen. Doch wenige wissen, dass es sich dabei um ein eigenes Phänomen handelt. Welche Konsequenzen sich daraus für Betroffene und Ärzt*innen ergeben, erkl…... mehr
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Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:
• Insufficient preparation for chronic illness
• Common and serious diseases are neglected in medical training
• Psychosomatic illness
• Inability to accept uncertainty#MedicalGaslighting #Gaslighting #MedMastodon
@longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses -
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Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:
• Insufficient preparation for chronic illness
• Common and serious diseases are neglected in medical training
• Psychosomatic illness
• Inability to accept uncertainty#MedicalGaslighting #Gaslighting #MedMastodon
@longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses -
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Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:
• Insufficient preparation for chronic illness
• Common and serious diseases are neglected in medical training
• Psychosomatic illness
• Inability to accept uncertainty#MedicalGaslighting #Gaslighting #MedMastodon
@longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses -
3/
Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:
• Insufficient preparation for chronic illness
• Common and serious diseases are neglected in medical training
• Psychosomatic illness
• Inability to accept uncertainty#MedicalGaslighting #Gaslighting #MedMastodon
@longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses -
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Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:
• Insufficient preparation for chronic illness
• Common and serious diseases are neglected in medical training
• Psychosomatic illness
• Inability to accept uncertainty#MedicalGaslighting #Gaslighting #MedMastodon
@longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses -
We do not get a prize for suffering in silence.
In our latest Girls Gone Menopause deep-dive, Alison and I break down the science of modern HRT, debunk the terrifying myths from that flawed 2002 study
https://youtu.be/CaxPoO6n8nk
#BlackWomensHealth #HRT #MedicalGaslighting #GenX #Blacksky -
Berufserfahrung und was - Bauchgefühl? - zu verlassen. Was Sie präsentieren zeigt haargenau, was medizinisch im Umgang mit Post-Covid schief läuft: #MedicalGaslighting, #Stigmatisierung, #Psychologisierung und ausbleibende Versorgung. 5/
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We do not get a prize for suffering in silence.
In our latest Girls Gone Menopause deep-dive, Alison and I break down the science of modern HRT, debunk the terrifying myths from that flawed 2002 study
https://youtu.be/CaxPoO6n8nk
#BlackWomensHealth #HRT #MedicalGaslighting #GenX #Blacksky -
We do not get a prize for suffering in silence.
In our latest Girls Gone Menopause deep-dive, Alison and I break down the science of modern HRT, debunk the terrifying myths from that flawed 2002 study
https://youtu.be/CaxPoO6n8nk
#BlackWomensHealth #HRT #MedicalGaslighting #GenX #Blacksky -
We do not get a prize for suffering in silence.
In our latest Girls Gone Menopause deep-dive, Alison and I break down the science of modern HRT, debunk the terrifying myths from that flawed 2002 study
https://youtu.be/CaxPoO6n8nk
#BlackWomensHealth #HRT #MedicalGaslighting #GenX #Blacksky -
We do not get a prize for suffering in silence.
In our latest Girls Gone Menopause deep-dive, Alison and I break down the science of modern HRT, debunk the terrifying myths from that flawed 2002 study
https://youtu.be/CaxPoO6n8nk
#BlackWomensHealth #HRT #MedicalGaslighting #GenX #Blacksky -
We do not get a prize for suffering in silence.
In our latest Girls Gone Menopause deep-dive, Alison and I break down the science of modern HRT, debunk the terrifying myths from that flawed 2002 study
https://youtu.be/CaxPoO6n8nk
#BlackWomensHealth #HRT #MedicalGaslighting #GenX #Blacksky -
"Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone
https://mecfs.substack.com/p/medical-gaslighting-is-serious-harmful
#MedicalGaslighting #neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll -
"Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone
https://mecfs.substack.com/p/medical-gaslighting-is-serious-harmful
#MedicalGaslighting #neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll -
"Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone
https://mecfs.substack.com/p/medical-gaslighting-is-serious-harmful
#MedicalGaslighting #neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll -
"Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone
https://mecfs.substack.com/p/medical-gaslighting-is-serious-harmful
#MedicalGaslighting #neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll -
"Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone
https://mecfs.substack.com/p/medical-gaslighting-is-serious-harmful
#MedicalGaslighting #neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll -
We do not get a prize for suffering in silence.
In our latest Girls Gone Menopause deep-dive, Alison and I break down the science of modern HRT, debunk the terrifying myths from that flawed 2002 study
https://youtu.be/CaxPoO6n8nk
#BlackWomensHealth #HRT #MedicalGaslighting #GenX #Blacksky -
We do not get a prize for suffering in silence.
In our latest Girls Gone Menopause deep-dive, Alison and I break down the science of modern HRT, debunk the terrifying myths from that flawed 2002 study
https://youtu.be/CaxPoO6n8nk
#BlackWomensHealth #HRT #MedicalGaslighting #GenX #Blacksky -
We do not get a prize for suffering in silence.
In our latest Girls Gone Menopause deep-dive, Alison and I break down the science of modern HRT, debunk the terrifying myths from that flawed 2002 study
https://youtu.be/CaxPoO6n8nk
#BlackWomensHealth #HRT #MedicalGaslighting #GenX #Blacksky -
We do not get a prize for suffering in silence.
In our latest Girls Gone Menopause deep-dive, Alison and I break down the science of modern HRT, debunk the terrifying myths from that flawed 2002 study
https://youtu.be/CaxPoO6n8nk
#BlackWomensHealth #HRT #MedicalGaslighting #GenX #Blacksky -
I've had enough. Time to be that bitch!
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I've had enough. Time to be that bitch!
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I've had enough. Time to be that bitch!
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I've had enough. Time to be that bitch!
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Well worth reading this article, especially if you've experienced medical gaslighting, minimizing, dismissal, or abuse. And if you haven't, still worth reading -- the chronic illness and disability communities are two that any person can join at any time, without warning.
https://drzedzha.substack.com/p/the-patient-with-the-splinter
#LongCovid #ComplexChronicIllness #MECFS #undiagnosedillness #IACC #InfectionAssociatedChronicConditions #PostViralIllness #spoonie #disability #medicalgaslighting
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Well worth reading this article, especially if you've experienced medical gaslighting, minimizing, dismissal, or abuse. And if you haven't, still worth reading -- the chronic illness and disability communities are two that any person can join at any time, without warning.
https://drzedzha.substack.com/p/the-patient-with-the-splinter
#LongCovid #ComplexChronicIllness #MECFS #undiagnosedillness #IACC #InfectionAssociatedChronicConditions #PostViralIllness #spoonie #disability #medicalgaslighting
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Well worth reading this article, especially if you've experienced medical gaslighting, minimizing, dismissal, or abuse. And if you haven't, still worth reading -- the chronic illness and disability communities are two that any person can join at any time, without warning.
https://drzedzha.substack.com/p/the-patient-with-the-splinter
#LongCovid #ComplexChronicIllness #MECFS #undiagnosedillness #IACC #InfectionAssociatedChronicConditions #PostViralIllness #spoonie #disability #medicalgaslighting
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Well worth reading this article, especially if you've experienced medical gaslighting, minimizing, dismissal, or abuse. And if you haven't, still worth reading -- the chronic illness and disability communities are two that any person can join at any time, without warning.
https://drzedzha.substack.com/p/the-patient-with-the-splinter
#LongCovid #ComplexChronicIllness #MECFS #undiagnosedillness #IACC #InfectionAssociatedChronicConditions #PostViralIllness #spoonie #disability #medicalgaslighting
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Well worth reading this article, especially if you've experienced medical gaslighting, minimizing, dismissal, or abuse. And if you haven't, still worth reading -- the chronic illness and disability communities are two that any person can join at any time, without warning.
https://drzedzha.substack.com/p/the-patient-with-the-splinter
#LongCovid #ComplexChronicIllness #MECFS #undiagnosedillness #IACC #InfectionAssociatedChronicConditions #PostViralIllness #spoonie #disability #medicalgaslighting
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For two years, the system misdiagnosed my Akathisia as "panic." The truth? A chatbot identified the drug overdose, forcing me to become my own advocate.
#Akathisia #MentalHealth #MedicalGaslighting #Psychiatry #SystemicFailure #HumaneTech #AIinHealthcare #Advocacy #Neurodiversity #Olanzapine #SideEffects #PatientRights #Malaysia #HealthEquity #Truth #SilentTorture #Diagnosis #HealthcareSystem
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For two years, the system misdiagnosed my Akathisia as "panic." The truth? A chatbot identified the drug overdose, forcing me to become my own advocate.
#Akathisia #MentalHealth #MedicalGaslighting #Psychiatry #SystemicFailure #HumaneTech #AIinHealthcare #Advocacy #Neurodiversity #Olanzapine #SideEffects #PatientRights #Malaysia #HealthEquity #Truth #SilentTorture #Diagnosis #HealthcareSystem
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For two years, the system misdiagnosed my Akathisia as "panic." The truth? A chatbot identified the drug overdose, forcing me to become my own advocate.
#Akathisia #MentalHealth #MedicalGaslighting #Psychiatry #SystemicFailure #HumaneTech #AIinHealthcare #Advocacy #Neurodiversity #Olanzapine #SideEffects #PatientRights #Malaysia #HealthEquity #Truth #SilentTorture #Diagnosis #HealthcareSystem
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For two years, the system misdiagnosed my Akathisia as "panic." The truth? A chatbot identified the drug overdose, forcing me to become my own advocate.
#Akathisia #MentalHealth #MedicalGaslighting #Psychiatry #SystemicFailure #HumaneTech #AIinHealthcare #Advocacy #Neurodiversity #Olanzapine #SideEffects #PatientRights #Malaysia #HealthEquity #Truth #SilentTorture #Diagnosis #HealthcareSystem
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Seems my GP practice has finally caught up after 5 years of #medicalgaslighting to the fact that my chronic lower back pain is likely caused by this mahoosive ovarian cyst (12cm) pushing everything back causing pressure and deferred pain in my lower spine.
Got a text from them today asking me to book an apt after my hysterectomy next week to discuss my back issues.
Fuck them. they can communicate via my clinical negligence solicitor.
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I have a 12cm #ovariancyst that I suspect has been the cause of my back pain and bloating, and subsequent weight gain and loss of mobility over the last 5 years. Apt in couple weeks to discuss surgery but in the meantime I’m collecting evidence of #clinicalnegligence / #medicalgaslighting. I’ve been begging my gp for help with this chronic back pain and bloating and kept being gaslit. I had an MRI in feb 23 and told nothing wrong. I have the MRI images from last month and from February 23 to compare, but I’m not sure which mass is the cyst. Are there any #radiologist or #doctor who could take a Quick Look and identify the parts for me? 🙏
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The new website for Medical Gaslighting has launched, continuing its mission despite poor health. Amongst others issues, we will focus on the Lampard Inquiry into NELFT. Readers are encouraged to share stories. We respect victims' privacy and offer anonymous communication channels for those sharing sensitive information on medical abuses
#NSUN #enby #lgbtqia #NELFT #MedicalGaslighting #MedicalGaslightingKills #LampardInquiry #NHSComplaints #PatientSafety #PHSOmbudsman
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We remember the victims, but also the perpetrators ... nobody should get away with allowing patients to die!
https://medicalgaslighting.online/remembering-victims/
#NSUN #enby #lgbtqia #NELFT #MedicalGaslighting #MedicalGaslightingKills #LampardInquiry #NHSComplaints #PatientSafety #PHSOmbudsman
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CW: FODMAP, food, medical
It was my intention to post regularly what I'm eating while staying low #FODMAP but I only really eat three things: omelette with vegetables and Colby Jack (paprika and tumeric), oatmeal with almond butter and cranberries (cinnamon and nutmeg), and CF Brownie Crunch cereal with oatmilk. Plus either green tea or tumeric ginger tea depending on how I'm feeling. Also a handful of vitamins and small salads now that I'm out of acute crisis.
My gastroenterologist, who is a dismissive and disinterested ahole generally, says that he recommends --against-- low FODMAP for #IBS , #IBD , #postinfectousIBS , ect. because it's "too restrictive," but what was really restrictive was never leaving my house, barely parenting my children, and being absent to my friends and community because I was in constant excruciating and unpredictable pain.
If I lived in a major metro area, this is the phase where I would see a nutritionist to reintroduce things so that my diet could become less restrictive but still provide management benefits, but I don't.
Instead I get stuck here, letting my body heal in strict mode, because I enjoy being able to just function for a while and I'll do anything it takes to maintain that.
This isn't the whole story ( #endometriosis , hospital-acquired #CDiff , #medicalmalpractice , #medicalgaslighting ) but I feel like I need to share because there are other people like me who have to figure this out on their own.
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Satz mit X: Die 2. Arztperson, die mir erklärt, dass ich die Symptome (Alles verschwommen, Wellenlinien/Knicke, 40 % dunkler, Farbverfälschung), die direkt nach der 3. Laserbehandlung auftraten, vorher nur einfach nicht bemerkt habe. 🙄
Ich weiß gerade nicht mehr weiter. 😭
#Augenarzt #MedicalGaslighting -
I’ve been feeling a lot of grief this weekend after reading about Professor Amit Patel - a nationally recognized doctor & expert in the rare disease HLH - who died in hospital when medical staff refused to acknowledge his expertise in his own condition.
Many disabled and chronically ill individuals know how dangerous hospitals can be - but reading about a doctor (who had a spouse who was also a physician advocating for him) being unable to get the care he needed to stay alive? It’s terrifying.
I wrote about his death, my own experiences with medical trauma and the need for a safer system for all.
https://open.substack.com/pub/disabledginger/p/prof-amit-patel-death?r=19dk2e&utm_medium=ios
#Disability #ChronicIllness #RareDisease #Spoonies #Ableism #gaslighting #HLH #MedicalTrauma #MedicalGaslighting #Discrimination #DisabilityRights #CovidIsNotOver #CovidCaution
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ways to resist medical gaslighting
https://www.youtube.com/watch?v=CH3iSKanN7s1. have someone with you at medical appointments
2. write things down while you're with the dr.
3. diary at home: track symptoms
4. ask the medical professional to sit down; ask if you can get dressed again for the conversation -
Bereits vor meiner Geburt wurde 1969 #MECFS von der WHO klassifiziert - und imme rnoch fehlt so vieles, auch in Österreich, von Behandlung bis Prävention.
#MECFSAwarenessDay #LongCovid schafft täglich neue Fälle, die dann von der PVA als Simulant*innen bezeichnet werden! #Medizin #soNicht #Gaslighting #MedicalGaslighting -
Long COVID is debilitating children. Doctors worry there aren’t enough centers to treat them
Story by Elizabeth Hlavinka, August 29, 2023"When 11-year-old Jack Coviello contracted COVID-19 in January 2022, his worst symptom was a sore throat that kept him out of school for a week. A couple of days later, graver symptoms started to appear: gastrointestinal issues, tachycardia, panic attacks, and extreme fatigue that kept him sleeping 20 hours a day.
"It would be a full month of running tests in which doctors continued to say Jack was 'fine,' until his pediatrician diagnosed him with post-COVID syndrome, also known as long COVID, and referred him to a specialized clinic, said his mother, Kelli Coviello, who is a principal's assistant at an elementary school in Massachusetts.
"'It's been a challenge of them not really, truly understanding,' Coviello told Salon in a phone interview. "They think it's just school avoidance, and he doesn't want to come in or maybe it's just anxiety, and all this other stuff. … But he's an 11-year-old boy, who is looking at you saying, 'Am I dying? What's happening to me?'"
"Jack is one of thousands of children that has been diagnosed with long COVID. Last month, the National Institutes of Health updated its considerations for long COVID to say the burden of the condition in children "may be quite large." Studies estimating its prevalence in pediatric populations are limited and conflicting, estimating up to 25% of children infected with the SARS-CoV-2 virus could go on to develop long COVID, though it's more likely between 2% and 10%. Older children with existing chronic diseases or who had a more severe COVID-19 infection have an increased risk.
"As COVID cases rise again and new variants emerge, coupled with school starting up again, previous waves indicate that long COVID cases could spike along with hospitalizations and deaths. Though kids generally have milder infections, they aren't always spared from the worst outcomes of infection.
"However, evidence suggests long COVID is underestimated in adults, and the same is likely true for children. Plus, some providers still don't know much about long COVID, which may delay diagnoses, said Dr. Alexandra Yonts, a pediatric infectious disease physician at the Pediatric Post-COVID program at Children's National Hospital.
"'I've heard from a lot of our families that they had to go to multiple different doctors to even find someone that believed what their child was experiencing was true,' Yonts told Salon in a phone interview."
#LongCovid #MedicalGaslighting #Covid #LongHaul #Covid19 #CovidIsntOver
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#endometriosis no longer keeps me from my best #queer sex https://www.autostraddle.com/endometriosis-adenomyosis-queer-health/
Why the F--- is there so little research and funding going in to #PelvicPain where billions are spent on cis men who can’t get it up?
#MedicalGaslighting #adenomyosis #WomenWithDisabilities #WomensHealth -
Receiving all the #ableist anti mask corporate, capitalist responses from legislators and medical administrators that removing masks in medical settings is necessary is #eugenics I am over sharing our #covid19 near death stories only to experience #medicalgaslighting Fuck the #MedicalIndustrialComplex My child and millions of other #disabled folx require access to medical supports to stay alive. Please speak out against eugenics policies. #MaskUp #AbledSupremacy #antifa #anticapitalism #oregon
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#endometriosis no longer keeps me from my best #queer sex https://www.autostraddle.com/endometriosis-adenomyosis-queer-health/
Why the F--- is there so little research and funding going in to #PelvicPain where billions are spent on cis men who can’t get it up?
#MedicalGaslighting #adenomyosis #WomenWithDisabilities #WomensHealth