#chronicallyill — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #chronicallyill, aggregated by home.social.
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Hi friends!!!
Trying to find more people to follow on here. So, if the below sounds like you, LIKE this post 🥰- In the lgbtq community or an ally
- Disabled 💖 or chronically ill 💖
- 21+
- Abolish 🧊
- Down w mutual aid
- 🍃 friendly
- we support 🇵🇸 in this house.👋 thanks!!
Tags:
#lgbtq #queer #disabled #chronicillness #chronicallyill #disability #mutualaid #leftist #artist #spoonie @disabledvoices @lgbtq @creativearts
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Hi friends!!!
Trying to find more people to follow on here. So, if the below sounds like you, LIKE this post 🥰- In the lgbtq community or an ally
- Disabled 💖 or chronically ill 💖
- 21+
- Abolish 🧊
- Down w mutual aid
- 🍃 friendly
- we support 🇵🇸 in this house.👋 thanks!!
Tags:
#lgbtq #queer #disabled #chronicillness #chronicallyill #disability #mutualaid #leftist #artist #spoonie @disabledvoices @lgbtq @creativearts
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I OFFERED NUDES for HELP!!!!
HELLLOOOO?!
#ass #nsfw #nudes #wagonwednesday #mutualaid #supportsws #chronicallyill #nsfwsky
RE: https://bsky.app/profile/did:plc:f3dcsz365o4zyt7uuqyliwgt/post/3mstol2dy5s2c -
If you love what I make and want to see it continue, please repost, reshare, and tip if you can!
(Goes towards a girl with a cute butt and chronic illness)
I really appreciate any help!
Pay app links are in bio!
#mutualaid #boost #boostsky #chronicallyill #swsky #pls
RE: https://bsky.app/profile/did:plc:f3dcsz365o4zyt7uuqyliwgt/post/3mciocnh4622p -
Any self care help is highly appreciated!!!!
#chronicallyill #support
Cash tag: $jennalovely77
(Do not send to imposters!)
RE: https://bsky.app/profile/did:plc:f3dcsz365o4zyt7uuqyliwgt/post/3ms6vcng2hs2p -
@pathfinder
Thank you so much for once more putting into words what so many of us disabled and/or chronically ill people experience in different ways, to a different degree, but with similar effects on our lives and copying strategies for how do to deal with it.Being a spoonie means having a limited amount of energy per day (compared to the majority of people), so energy management is extremely important for us. To make it even more fun, these spoons do not only vary from person to person with similar disabilities and chronic illnesses, but also, as you described, from day to day, week to week, year to year. I am not even sure, if I am still in autistic burnout, or if this state of low energy is simply me existing with my disabilities in this ableist world.
We have in common, that past experiences with therapies make us spend this energy on surviving, developing coping strategies and focusing on the joy and beauty our simple lives still allow us, rather than wasting it on the energy drain of finding cures and therapies.
Short rant: Fuck this healthcare system.
And so, we embrace whatever the day brings us with stubbornness, hope for the best and expectation of the worst, trying to ignore the despair of the uncertainty of this way of life.
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@pathfinder
Thank you so much for once more putting into words what so many of us disabled and/or chronically ill people experience in different ways, to a different degree, but with similar effects on our lives and copying strategies for how do to deal with it.Being a spoonie means having a limited amount of energy per day (compared to the majority of people), so energy management is extremely important for us. To make it even more fun, these spoons do not only vary from person to person with similar disabilities and chronic illnesses, but also, as you described, from day to day, week to week, year to year. I am not even sure, if I am still in autistic burnout, or if this state of low energy is simply me existing with my disabilities in this ableist world.
We have in common, that past experiences with therapies make us spend this energy on surviving, developing coping strategies and focusing on the joy and beauty our simple lives still allow us, rather than wasting it on the energy drain of finding cures and therapies.
Short rant: Fuck this healthcare system.
And so, we embrace whatever the day brings us with stubbornness, hope for the best and expectation of the worst, trying to ignore the despair of the uncertainty of this way of life.
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This past weekend I went to a local NeuroQueer Pride! Aka queer disability pride. I live in a small state, so i was thrilled to see such a progressive, inclusive event!
I also am proud because i helped design the shirt i am wearing. I will link in the comments where you can get one! (Multiple sexualities available + trans and nb options)
#queer #lgbtq #disabled #disability #spoonie #chronicallyill #disabilitypridemonth @disability @disabledvoices
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This past weekend I went to a local NeuroQueer Pride! Aka queer disability pride. I live in a small state, so i was thrilled to see such a progressive, inclusive event!
I also am proud because i helped design the shirt i am wearing. I will link in the comments where you can get one! (Multiple sexualities available + trans and nb options)
#queer #lgbtq #disabled #disability #spoonie #chronicallyill #disabilitypridemonth @disability @disabledvoices
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This summer has been so rough in the #Edmonton area with all the rain. I've been getting a lot of migraines, pain, and fatigue that has been hard to deal with. I actually splurged on some compression socks even though I haven't worn them for a couple years. They definitely help with the swollen feet and dizziness.
My mother-in-law gave me some old walker she had laying around outside, I swallowed my pride and I took it to K-days. (the place where I first suspected I had POTS in 2019, I went on a swingy ride and was screaming because my feet felt like they were going to explode) It was amazing to be able to sit or lean on something whenever I got dizzy or sore. There was not a lot of seating this year, especially at the bbno$ concert, so I was thankful I had it. I was not in as much pain the next day as I could have been, I think. It's hard to admit I need stuff like that, but it made one of the few days I could get out and have fun 100x more enjoyable. So fuck what anyone thinks, I'm using my walker when I need it. (and am looking forward to decorating it, it's pretty scuffed up)
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This summer has been so rough in the #Edmonton area with all the rain. I've been getting a lot of migraines, pain, and fatigue that has been hard to deal with. I actually splurged on some compression socks even though I haven't worn them for a couple years. They definitely help with the swollen feet and dizziness.
My mother-in-law gave me some old walker she had laying around outside, I swallowed my pride and I took it to K-days. (the place where I first suspected I had POTS in 2019, I went on a swingy ride and was screaming because my feet felt like they were going to explode) It was amazing to be able to sit or lean on something whenever I got dizzy or sore. There was not a lot of seating this year, especially at the bbno$ concert, so I was thankful I had it. I was not in as much pain the next day as I could have been, I think. It's hard to admit I need stuff like that, but it made one of the few days I could get out and have fun 100x more enjoyable. So fuck what anyone thinks, I'm using my walker when I need it. (and am looking forward to decorating it, it's pretty scuffed up)
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Between mid-August and early September, I've got ten medical appointments. I've had quite a few these last weeks. And then they wonder that I am not a productive little worker bee.
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Between mid-August and early September, I've got ten medical appointments. I've had quite a few these last weeks. And then they wonder that I am not a productive little worker bee.
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RE: https://mastodon.social/@ellespeaks/116954838695855309
Still stuck. Can anyone send $10? I need some movement asap. Tysm
#urgent #urgentmutualaid #emergency #disabled #disability #chronicallyill #disabledartist #disabilitypridemonth #sick #MutualAidSavesLives
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RE: https://mastodon.social/@ellespeaks/116954838695855309
Still stuck. Can anyone send $10? I need some movement asap. Tysm
#urgent #urgentmutualaid #emergency #disabled #disability #chronicallyill #disabledartist #disabilitypridemonth #sick #MutualAidSavesLives
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URGENT: $420/$630 = $210 left for July
Breakdown below:$90/$150 for food
$0/$50 co pay due july 15th
$0/$50 phone bill due july 20th
$0/$50 co pay due july 29thAnything helps as always. Getting really close to my deadline. Thank you so much.
V: d_fay
P: peach77#mutualaid #disabled #helpfolkslive2026 #artist #MutualAidRequest #MutualAidSavesLives #urgent #lgbtq #disabilitypridemonth #queer #chronicallyill @disability @disabledvoices @[email protected] @[email protected] @povertyandinequality @lgbtq
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URGENT: $420/$630 = $210 left for July
Breakdown below:$90/$150 for food
$0/$50 co pay due july 15th
$0/$50 phone bill due july 20th
$0/$50 co pay due july 29thAnything helps as always. Getting really close to my deadline. Thank you so much.
V: d_fay
P: peach77#mutualaid #disabled #helpfolkslive2026 #artist #MutualAidRequest #MutualAidSavesLives #urgent #lgbtq #disabilitypridemonth #queer #chronicallyill @disability @disabledvoices @[email protected] @[email protected] @povertyandinequality @lgbtq
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Accidentally recreated a POTS* test by lying upside down to let my colon sort itself out. Completely crashed my metabolism. Ah well, preparations for a potential trip to the ER have been made, and now I hope the drops help resolve the prolapses instead.
https://en.wikipedia.org/wiki/Orthostatic_hypotension?wprov=sfla1
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Accidentally recreated a POTS* test by lying upside down to let my colon sort itself out. Completely crashed my metabolism. Ah well, preparations for a potential trip to the ER have been made, and now I hope the drops help resolve the prolapses instead.
https://en.wikipedia.org/wiki/Orthostatic_hypotension?wprov=sfla1
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"Navigating Clinical Uncertainty: Practical Tips for ME/CFS and Long COVID Caregivers" by Kim Moy
Her focus in general is on caregivers but most of this article is also relevant for patients
#MEcfs #LongCovid #Spoonies #Spoonie #ChronicallyIll @mecfs @longcovid #POTS @pots
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"Navigating Clinical Uncertainty: Practical Tips for ME/CFS and Long COVID Caregivers" by Kim Moy
Her focus in general is on caregivers but most of this article is also relevant for patients
#MEcfs #LongCovid #Spoonies #Spoonie #ChronicallyIll @mecfs @longcovid #POTS @pots
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Okay, here's my attempt at an #introduction!
Heya, I'm Fermata! I'm a demisexual mostly cis AFAB late-30s person who's been on the Fediverse for a long time. This is an anonymous alt account; my main account is elsewhere.
I'm here to talk about my #writing projects, and possibly about fandom stuff as well. Writing-wise, I'm working on an erotic Regency romance story, 80% of which is hella gay. :heart_pride: It doesn't quite have a working title yet, so I usually just refer to it as my "regency romance" or my "gay romance" story. I'll write a bit more about it in a reply for anyone interested.
Fandom-wise, I've gotten really into Japanese #otome visual novel games. :3 They're often silly and self-indulgent, but they also feature some excellent stories, wonderful characters, and a lot of heart. Favourites so far include #EvenIfTempest, #JackJeanne, and #VariableBarricade.
I'm also an #artist, and I'm only just starting to dip my toes into drawing smut/erotica/porn, so you may see some of that here, too. It'll likely be art of the main characters of my writing projects, but who knows where I'll go, haha!
EDIT: Oh, and I should also add: I'm #ChronicallyIll with an energy-limiting disease. :heart_disability:
So that's me! I'm excited to have a place to chat about my writing, blorbos, and other romance/erotica-related silliness. Feel free to follow, but make sure you're over 18. :18only:
My AO3 account: https://archiveofourown.org/users/QuietFermata/works
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Okay, here's my attempt at an #introduction!
Heya, I'm Fermata! I'm a demisexual mostly cis AFAB late-30s person who's been on the Fediverse for a long time. This is an anonymous alt account; my main account is elsewhere.
I'm here to talk about my #writing projects, and possibly about fandom stuff as well. Writing-wise, I'm working on an erotic Regency romance story, 80% of which is hella gay. :heart_pride: It doesn't quite have a working title yet, so I usually just refer to it as my "regency romance" or my "gay romance" story. I'll write a bit more about it in a reply for anyone interested.
Fandom-wise, I've gotten really into Japanese #otome visual novel games. :3 They're often silly and self-indulgent, but they also feature some excellent stories, wonderful characters, and a lot of heart. Favourites so far include #EvenIfTempest, #JackJeanne, and #VariableBarricade.
I'm also an #artist, and I'm only just starting to dip my toes into drawing smut/erotica/porn, so you may see some of that here, too. It'll likely be art of the main characters of my writing projects, but who knows where I'll go, haha!
EDIT: Oh, and I should also add: I'm #ChronicallyIll with an energy-limiting disease. :heart_disability:
So that's me! I'm excited to have a place to chat about my writing, blorbos, and other romance/erotica-related silliness. Feel free to follow, but make sure you're over 18. :18only:
My AO3 account: https://archiveofourown.org/users/QuietFermata/works
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I spent this afternoon lying on the floor, too dizzy to sit, stand or walk. But I still forced myself to work (until I fell asleep... on the floor). One day maybe I'll learn how to actually rest. Hope so.
#chronicallyill #disabled #writer -
I spent this afternoon lying on the floor, too dizzy to sit, stand or walk. But I still forced myself to work (until I fell asleep... on the floor). One day maybe I'll learn how to actually rest. Hope so.
#chronicallyill #disabled #writer -
Waiting room talk (in German):
„Maybe we should go to work.“ (instead of wasting time in the waiting room?!)
Me: „I can't work, unfortunately.“
„But you are still young.“
Me: „I am chronically ill and disabled.“
Looks me up and down. „I'm sure you can do something.“And it kept going like that. Two able-bodied men explain to me that I am healthy enough to work.
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Waiting room talk (in German):
„Maybe we should go to work.“ (instead of wasting time in the waiting room?!)
Me: „I can't work, unfortunately.“
„But you are still young.“
Me: „I am chronically ill and disabled.“
Looks me up and down. „I'm sure you can do something.“And it kept going like that. Two able-bodied men explain to me that I am healthy enough to work.
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Wobei ich mir dann auch wieder denke: So schlimm ist mein Körper gar nicht. Eigentlich ist er - unter den gegebenen Bedingungen - bewundernswert. Er hält das alles aus, beißt sich da durch. Er trägt mich bis jetzt durch den ganzen Scheiß. #chronicallyIll
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Wobei ich mir dann auch wieder denke: So schlimm ist mein Körper gar nicht. Eigentlich ist er - unter den gegebenen Bedingungen - bewundernswert. Er hält das alles aus, beißt sich da durch. Er trägt mich bis jetzt durch den ganzen Scheiß. #chronicallyIll
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Me: Yummy skyr with mirabelle jam and banana?
Stomach: sounds gooood!Five minutes later, skry bowl in hand.
Me: Oh that looks so good!
Stomach: I'm noping out. You really thought you could eat breakfast? -
Me: Yummy skyr with mirabelle jam and banana?
Stomach: sounds gooood!Five minutes later, skry bowl in hand.
Me: Oh that looks so good!
Stomach: I'm noping out. You really thought you could eat breakfast? -
"'You'd get better if you just....' is bullying and we don't deserve it." by K. Johnstone
https://substack.com/@mecfs/note/c-203079885
Screenshot from AMMES May 2026 Newsletter
#chronicillness #ChronicallyIll @longcovid
#LongCovid #MEcfs #PwME #ME #MyalgicE
@mecfs -
"'You'd get better if you just....' is bullying and we don't deserve it." by K. Johnstone
https://substack.com/@mecfs/note/c-203079885
Screenshot from AMMES May 2026 Newsletter
#chronicillness #ChronicallyIll @longcovid
#LongCovid #MEcfs #PwME #ME #MyalgicE
@mecfs -
my partner is playing Coral Island! come hang 🖤 https://twitch.tv/crows_trinket_trove #CozyGamer #Gaymer #ChronicallyIll #CoralIsland #Pride
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my partner is playing Coral Island! come hang 🖤 https://twitch.tv/crows_trinket_trove #CozyGamer #Gaymer #ChronicallyIll #CoralIsland #Pride
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Reading an article on craniocervical instability in Ehlers-Danlos Syndrome, and its again connecting some symptoms logically, and it would be so nice if I had any kind of medical guidance. Instead, I have read scientific articles on my illness all the time to understand things.
I've had back pains since my youth. It's so fucking ridiculous that I always have to figure out everything myself.
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For the first time in days, I didn't go back to bed after letting the chickens out. This damned back is slowly getting better. Could I get a new body, please? I've kinda drawn the short straw... Sorry, body, I mean, it is great how you are doing your very best and how much you manage. Grumble, grumble.
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RE: https://mastodon.social/@ellespeaks/116667180858779661
$60/$100
Trying to raise $40 more for food.
Diabetic and need food asap!I live 26% below the poverty line, cant work and lack support from family
Anything helps towards it!
Thank you! 💓V: d_fay
PP: peach77#MutualAidMonday #Mutualaid #MutualAidRequest #MutualAidSavesLives #disabled #spoonie #chronicallyill #directaid #lgbtq #lesbian #queer #helpfolkslive2026 #leftist #poverty #pridemonth #lgbtqmutualaid
@[email protected]
@[email protected]
@disabledvoices
@[email protected]
@[email protected]
@povertyandinequality -
Dear fellow #chronicallyill folks, is anyone else developing new symptoms or whole new conditions every few months? I feel pretty hopeless and alone with this since I barely have friends anymore thanks to this. My newest acquisition seems to be restless legs and trying to sleep at night just became hell on earth.
I don‘t know what my goal is with this post. Maybe venting and trying to feel less lonely, I guess.
#chronicillness -
my partner is playing Coral Island! come hang 🖤 https://twitch.tv/crows_trinket_trove #CozyGamer #Gaymer #ChronicallyIll #CoralIsland #Trans #Queer