#neisvoid — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #neisvoid, aggregated by home.social.
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💔 Today is Friday, and my children went without their Friday meal. There is nothing left on our table
Please, don’t let them sleep hungry. 🙏 Even €1 can help us put food on the table today. If you can’t donate, please share.
#Palestine #HelpGaza
@mutualaid @mutual_aid @MutualAidVisibility @disability @blackmastodon @edendestroyer
#MutualAidRequest #disabilitycrowdfund #disabledmastodon #HelpFolksLive2026 #NEISvoid #blackmutualaid #emergencycrowdfund #disabilityaid
https://chuffed.org/project/178829
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RE: https://vis.social/@lia_pas/116920216340348395
Unbound is now available to watch on YouTube! https://www.youtube.com/watch?v=mxK6UKtWuLc
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For more information about this film, including cast names and bios, see director Sara Nesson's website:
https://www.saranesson.com/unbound
I've also attached an important disclaimer (see image) from the website.
2/2
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"Unbound: Illness is not the end of dance"
A short film
(about 6 1/2 minutes)"Twenty bodies. One thread of movement. Unbound is a short dance film created by individuals living with ME/CFS and/or Long COVID, exploring the tension between constraint and expression, stillness and vitality."
https://www.youtube.com/watch?v=mxK6UKtWuLc
For blind or visually impaired viewers there's an audio track with descriptions of the movements.
1/2
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RE: https://vis.social/@lia_pas/116920216340348395
Unbound premieres in one week!
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A beautiful essay on Unbound from a health humanities perspective
https://medicalhealthhumanities.com/2026/07/20/grace-under-constraint-unbound-as-health-humanities/
Join us for our film premiere on July 29
https://www.eventbrite.com/e/unbound-global-premiere-live-qa-tickets-1990987249459
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What if movement didn't have to be big to matter? Unbound is a film woven from 20 bodies, 20 stories, and 1 thread of connection.
Join us for the premiere on July 29th at 6:30 PM ET. https://www.eventbrite.com/e/unbound-global-premiere-live-qa-tickets-1990987249459
A reflection on my process for this film on my blog: https://liapas.com/2026/07/11/unbound-a-dance-film/
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Ugh I do not have spoons to shower, and yet if I am not showered for all of tomorrow's errands I am going to be incredibly depressed, and I leave too early to put it off til then.
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Please share, if you can. I'm so deeply sorry & embarrassed. I'm desperate and not doing well without my medications. 😖
#NEISvoid #hEDS #chronicpain #marfansyndrome #EDS #MECFS #POTS #MCAS #AuDHD #actuallyautistic #ADHD #disabled #longcovid #mutualaid #spooniechat #chronicillness #crowdfund #emergencycrowdfund
RE: https://plasmatrap.com/notes/aoctlai1vp -
In my feels about the weird ways people react to chronic illness stuff and often just don't believe that you not being available the way they want when they want is a snub, so then they start snubbing you.
There's just so much loss... #NEISvoid
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I came across a new BPSM term today - 'neuroplastic' (as in 'MCAS is neuroplastic') - not really a new term, but new in this context. Another way of saying you can think yourself better.
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Friends in the #PwME circle, I was trying to find an article but I'm drawing a blank. It was about why normal sleep hygiene doesn't work for someone with ME/CFS, and was written by a medical ME expert I think? If anyone knows what I'm referring to, please drop the link!
#NEISvoid #LongCovid -
Please sign this petition to prevent the NHS from killing another very severe ME patient by their ignorance and lack of empathy and respect for their patients and patients' carers/loved ones. It must be stopped. #PwME #VerySevereME #NEISvoid #LongCovid #CCI
Sign the Petition -
Shedding Light on FIRE Syndrome: An Overview of a Novel Condition in Eosinophilic Esophagitis [2025]
https://www.mdpi.com/2076-3417/15/11/6375Like this redditor - I'm triggered by inhaling VOCs
https://www.reddit.com/r/EosinophilicE/comments/1cjbdld/fire_like_reaction_from_something_inhaled/If I get exposed to VOCs, my reactivity to food increases - so not exactly like the OP on the reddit thread.
#EosinophilicEsophagitis #NEISVoid #AirPollution #EnvironmentalHealth
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CW: Health/vision neg
I'm 57 years old, and I can't read normal print worth a damn anymore, much less fine print, even with glasses.
I used to be able to by concentrating, but not anymore. Sometimes holding it close under a very bright helps, but not always.
If there's something I have to read, I often end up passing it to Jalan to ask what it says.
My progressives are some years old at this point (5?), but my visual clarity seems to have lost a lot in just the past few months.
And my severe #MECFS would hardly tolerate a vision exam, much less something like cataract surgery (if that's the issue -- I know I've had them growing for years).
Fuck.
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"What changed was not the existence of invisible illness.
What changed was the number of people experiencing it all at once.
Once millions of previously healthy people began experiencing chronic exhaustion, cognitive dysfunction, and functional instability simultaneously, the limitations of the healthcare system became far harder to dismiss."
#MEcfs #LongCovid #CovidIsNotOver #ChronicIllness #InvisibleIllness #NEISvoid #Healthcare