#heds — Public Fediverse posts

I'm so embarrassed and so sorry. 😖
#NEISvoid #hEDS #marfansyndrome #EDS #MECFS #POTS #MCAS #AuDHD #actuallyautistic #ADHD #disabled #longcovid #spooniechat #fibromyalgia #chiarimalformation #tetheredcord #mutualaid

RE: https://plasmatrap.com/notes/amt3jiihdr

Have you ever wondered about rheumatoid arthritis but were afraid to ask? Do you want to know my story? #ChronicIllness #ChronicPain

First: RA is an autoimmune disorder where the immune system attacks healthy joint tissue. It’s debilitatingly painful, causes joint deformation, and is difficult to treat in some (lucky me). It can affect organs, too.

Second: Osteoarthritis is common, age related, and happens gradually over time to most who live long enough or have had joint injuries. It’s not autoimmune, it occurs naturally.

Let me show you with these two photos of my hands:

The first one was taken in 2017 when I *first* had symptoms but was dismissed for the next 6 years. At that time, I was diagnosed with #hEDS connective tissue disorder (correct) and it wasn’t further investigated as autoimmune pain (wrong). I finally got diagnosed with #RA in 2023.

The second one was taken this morning. This hand now has constant pain and stiffness. I’m on 3 different medications trying to keep my disease under control.

I’ve used my hands my whole life to enjoy many different hobbies (sports, music, photography). It’s been devastating to lose, but I’m doing my best.

🫶🏻 TY for reading.

Have you ever wondered about rheumatoid arthritis but were afraid to ask? Do you want to know my story? #ChronicIllness #ChronicPain

First: RA is an autoimmune disorder where the immune system attacks healthy joint tissue. It’s debilitatingly painful, causes joint deformation, and is difficult to treat in some (lucky me). It can affect organs, too.

Second: Osteoarthritis is common, age related, and happens gradually over time to most who live long enough or have had joint injuries. It’s not autoimmune, it occurs naturally.

Let me show you with these two photos of my hands:

The first one was taken in 2017 when I *first* had symptoms but was dismissed for the next 6 years. At that time, I was diagnosed with #hEDS connective tissue disorder (correct) and it wasn’t further investigated as autoimmune pain (wrong). I finally got diagnosed with #RA in 2023.

The second one was taken this morning. This hand now has constant pain and stiffness. I’m on 3 different medications trying to keep my disease under control.

I’ve used my hands my whole life to enjoy many different hobbies (sports, music, photography). It’s been devastating to lose, but I’m doing my best.

🫶🏻 TY for reading.

Have you ever wondered about rheumatoid arthritis but were afraid to ask? Do you want to know my story? #ChronicIllness #ChronicPain

First: RA is an autoimmune disorder where the immune system attacks healthy joint tissue. It’s debilitatingly painful, causes joint deformation, and is difficult to treat in some (lucky me). It can affect organs, too.

Second: Osteoarthritis is common, age related, and happens gradually over time to most who live long enough or have had joint injuries. It’s not autoimmune, it occurs naturally.

Let me show you with these two photos of my hands:

The first one was taken in 2017 when I *first* had symptoms but was dismissed for the next 6 years. At that time, I was diagnosed with #hEDS connective tissue disorder (correct) and it wasn’t further investigated as autoimmune pain (wrong). I finally got diagnosed with #RA in 2023.

The second one was taken this morning. This hand now has constant pain and stiffness. I’m on 3 different medications trying to keep my disease under control.

I’ve used my hands my whole life to enjoy many different hobbies (sports, music, photography). It’s been devastating to lose, but I’m doing my best.

🫶🏻 TY for reading.

Have you ever wondered about rheumatoid arthritis but were afraid to ask? Do you want to know my story? #ChronicIllness #ChronicPain

First: RA is an autoimmune disorder where the immune system attacks healthy joint tissue. It’s debilitatingly painful, causes joint deformation, and is difficult to treat in some (lucky me). It can affect organs, too.

Second: Osteoarthritis is common, age related, and happens gradually over time to most who live long enough or have had joint injuries. It’s not autoimmune, it occurs naturally.

Let me show you with these two photos of my hands:

The first one was taken in 2017 when I *first* had symptoms but was dismissed for the next 6 years. At that time, I was diagnosed with #hEDS connective tissue disorder (correct) and it wasn’t further investigated as autoimmune pain (wrong). I finally got diagnosed with #RA in 2023.

The second one was taken this morning. This hand now has constant pain and stiffness. I’m on 3 different medications trying to keep my disease under control.

I’ve used my hands my whole life to enjoy many different hobbies (sports, music, photography). It’s been devastating to lose, but I’m doing my best.

🫶🏻 TY for reading.

Have you ever wondered about rheumatoid arthritis but were afraid to ask? Do you want to know my story? #ChronicIllness #ChronicPain

First: RA is an autoimmune disorder where the immune system attacks healthy joint tissue. It’s debilitatingly painful, causes joint deformation, and is difficult to treat in some (lucky me). It can affect organs, too.

Second: Osteoarthritis is common, age related, and happens gradually over time to most who live long enough or have had joint injuries. It’s not autoimmune, it occurs naturally.

Let me show you with these two photos of my hands:

The first one was taken in 2017 when I *first* had symptoms but was dismissed for the next 6 years. At that time, I was diagnosed with #hEDS connective tissue disorder (correct) and it wasn’t further investigated as autoimmune pain (wrong). I finally got diagnosed with #RA in 2023.

The second one was taken this morning. This hand now has constant pain and stiffness. I’m on 3 different medications trying to keep my disease under control.

I’ve used my hands my whole life to enjoy many different hobbies (sports, music, photography). It’s been devastating to lose, but I’m doing my best.

🫶🏻 TY for reading.

🔥 psa for anyone taking quercetin on a regular basis 🔥

this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!

(and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)

i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:

take care people and good luck :Blobhaj_Heart_Rainbow:

#MCAS #POTS #hEDS #LongCovid #allergies

🔥 psa for anyone taking quercetin on a regular basis 🔥

this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!

(and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)

i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:

take care people and good luck :Blobhaj_Heart_Rainbow:

#MCAS #POTS #hEDS #LongCovid #allergies

🔥 psa for anyone taking quercetin on a regular basis 🔥

this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!

(and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)

i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:

take care people and good luck :Blobhaj_Heart_Rainbow:

#MCAS #POTS #hEDS #LongCovid #allergies

🔥 psa for anyone taking quercetin on a regular basis 🔥

this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!

(and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)

i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:

take care people and good luck :Blobhaj_Heart_Rainbow:

#MCAS #POTS #hEDS #LongCovid #allergies

🔥 psa for anyone taking quercetin on a regular basis 🔥

this may be common knowledge and just previously unknown to me, but i've just today discovered that quercetin chelates iron/blocks iron absorption and can lead to anaemia and/or low ferritin levels. so if you're taking it regularly, please have things checked!

(and if ferritin is low enough, just stopping quercetin won't be enough to bring it up and possibly neither will otc iron supplements, so please do get some numbers / help if necessary)

i've just been in tears from finding this out as quercetin is one of the few things that helps me at all, and given i have no medical care, one of the few things i can access. i've been taking a decent dose daily for the past ... 13 years? but my ferritin was on the floor at my last blood test a year ago (ofc i couldn't find anyone to do anything about that). and i can't even take oral iron, not that it would help if i could, given my levels, but. yes. yay :blobsweatsweary:

take care people and good luck :Blobhaj_Heart_Rainbow:

#MCAS #POTS #hEDS #LongCovid #allergies

Today is #MEAwarenessDay!

The Swedish study finding 1 in 5 people with hypermobile Ehlers Danlos Syndrome #hEDS or hypermobility spectrum disorder #HSD (which the EDS Society found are the same) have myalgic encephalomyelitis/chronic fatigue syndrome #MECFS #pwME: https://pmc.ncbi.nlm.nih.gov/articles/PMC7485557/

The study found 20% #pwME studied had #hEDS and 50% had #HSD

This study was prior to the 2026 reclassification merging HSD and hEDS

Given 2026 changes, 44 hEDS + 115 HSD = 159 hEDS of 229 is 69.43%

Today is #MEAwarenessDay!

The Swedish study finding 1 in 5 people with hypermobile Ehlers Danlos Syndrome #hEDS or hypermobility spectrum disorder #HSD (which the EDS Society found are the same) have myalgic encephalomyelitis/chronic fatigue syndrome #MECFS #pwME: https://pmc.ncbi.nlm.nih.gov/articles/PMC7485557/

The study found 20% #pwME studied had #hEDS and 50% had #HSD

This study was prior to the 2026 reclassification merging HSD and hEDS

Given 2026 changes, 44 hEDS + 115 HSD = 159 hEDS of 229 is 69.43%

Today is #MEAwarenessDay!

The Swedish study finding 1 in 5 people with hypermobile Ehlers Danlos Syndrome #hEDS or hypermobility spectrum disorder #HSD (which the EDS Society found are the same) have myalgic encephalomyelitis/chronic fatigue syndrome #MECFS #pwME: https://pmc.ncbi.nlm.nih.gov/articles/PMC7485557/

The study found 20% #pwME studied had #hEDS and 50% had #HSD

This study was prior to the 2026 reclassification merging HSD and hEDS

Given 2026 changes, 44 hEDS + 115 HSD = 159 hEDS of 229 is 69.43%

Today is #MEAwarenessDay!

The Swedish study finding 1 in 5 people with hypermobile Ehlers Danlos Syndrome #hEDS or hypermobility spectrum disorder #HSD (which the EDS Society found are the same) have myalgic encephalomyelitis/chronic fatigue syndrome #MECFS #pwME: https://pmc.ncbi.nlm.nih.gov/articles/PMC7485557/

The study found 20% #pwME studied had #hEDS and 50% had #HSD

This study was prior to the 2026 reclassification merging HSD and hEDS

Given 2026 changes, 44 hEDS + 115 HSD = 159 hEDS of 229 is 69.43%

Oh my goodness, I'm so nervous. I have a very important doctor's appointment in a half an hour that I really NEED to go well. I'd appreciate it if anyone sends me good vibes/wishes me luck/whatever. Aaaaa!!! 😖
#chronicpain #chronicillness #NEISvoid #ehlersdanlossyndrome #hEDS

guyyyyys i've just hit my first #hEDS milestone! There's a stretchmark on my side and on one of my hips.

guyyyyys i've just hit my first #hEDS milestone! There's a stretchmark on my side and on one of my hips.

guyyyyys i've just hit my first #hEDS milestone! There's a stretchmark on my side and on one of my hips.

guyyyyys i've just hit my first #hEDS milestone! There's a stretchmark on my side and on one of my hips.

guyyyyys i've just hit my first #hEDS milestone! There's a stretchmark on my side and on one of my hips.

#hEDS spoonies: have yall noticed that your hEDS symptoms get worse with age? Im nearing 30 and idk if im just more aware or sth, but i swear i can feel my arm subluxing sometimes #disabled

#hEDS spoonies: have yall noticed that your hEDS symptoms get worse with age? Im nearing 30 and idk if im just more aware or sth, but i swear i can feel my arm subluxing sometimes #disabled

#hEDS spoonies: have yall noticed that your hEDS symptoms get worse with age? Im nearing 30 and idk if im just more aware or sth, but i swear i can feel my arm subluxing sometimes #disabled

#hEDS spoonies: have yall noticed that your hEDS symptoms get worse with age? Im nearing 30 and idk if im just more aware or sth, but i swear i can feel my arm subluxing sometimes #disabled

#hEDS spoonies: have yall noticed that your hEDS symptoms get worse with age? Im nearing 30 and idk if im just more aware or sth, but i swear i can feel my arm subluxing sometimes #disabled

Pour commencer par un truc intéressant : étude[1] rétrospective sur des dossiers médicaux qui cherche à évaluer la prévalence de SEDh/HSD (syndrôme d'Ehlers-Danlos type hypermobile/trouble du spectre de l'hypermobilité) chez les personnes trans/nb. Elle trouve :

• prévalence de 2.62% chez les personnes transmasc
• prévalence de 1% chez les personnes transfem
• pas de différence significative dans la prévalence vis-à-vis de la prise ou non de TH

La même étude trouve une prévalence de 0.16% chez les femmes cis et 0.04% chez les hommes cis ; ça fait presque 20 fois plus de chances d'avoir un SED chez les personnes trans (OR 18.45).

Ça recoupe quelques autres études qui montrent une prévalence importante de SEDh chez les personnes trans :

• étude[2] dans un centre médical prescrivant des TH qui trouve une prévalence de SEDh de 2.7% chez des personnes trans
• étude[3] dans un centre médical trouvant une prévalence de SED de 2.6% chez des personnes trans ayant eu une opération de transition (72% SEDh, le reste pas spécifié ; ~70% transmasc). Pas de surrisque de complications postop ou de réopérations dans ce groupe, pour principalement des mammecs, qqs orchis, et d'autres opés.
• étude[4] dans un centre pédiatrique de prise en charge du SED trouvant une prévalence de dysphorie de genre de 17% chez des ados avec un diag de SED(h)/HSD

[1] : Prevalence of Hypermobile Ehlers-Danlos Syndrome in Transgender and Gender Diverse Individuals: A Retrospective Cohort Study. Tabernacki T et al., 2025. https://doi.org/10.1177/23258292251382250

[2] : The prevalence of hypermobile Ehlers–Danlos syndrome at a gender-affirming primary care clinic. Stein T et al., 2025. https://doi.org/10.1177/20503121251315021

[3] : Ehlers-Danlos syndrome: prevalence and outcomes in gender affirming surgery - a single institution experience. Najafian A, 2022. https://doi.org/10.20517/2347-9264.2021.89

[4] : Gender dysphoria in adolescents with Ehlers–Danlos syndrome. Jones JT et al., 2022. https://doi.org/10.1177/20503121221146074

#EDS #hEDS #trans #hypermobility #hypermobileEhlersDanlosSyndrome #HSD

Pour commencer par un truc intéressant : étude[1] rétrospective sur des dossiers médicaux qui cherche à évaluer la prévalence de SEDh/HSD (syndrôme d'Ehlers-Danlos type hypermobile/trouble du spectre de l'hypermobilité) chez les personnes trans/nb. Elle trouve :

• prévalence de 2.62% chez les personnes transmasc
• prévalence de 1% chez les personnes transfem
• pas de différence significative dans la prévalence vis-à-vis de la prise ou non de THLa même étude trouve une prévalence de 0.16% chez les femmes cis et 0.04% chez les hommes cis ; ça fait presque 20 fois plus de chances d'avoir un SED chez les personnes trans (OR 18.45).

Ça recoupe quelques autres études qui montrent une prévalence importante de SEDh chez les personnes trans :

• étude[2] dans un centre médical prescrivant des TH qui trouve une prévalence de SEDh de 2.7% chez des personnes trans
• étude[3] dans un centre médical trouvant une prévalence de SED de 2.6% chez des personnes trans ayant eu une opération de transition (72% SEDh, le reste pas spécifié ; ~70% transmasc). Pas de surrisque de complications postop ou de réopérations dans ce groupe, pour principalement des mammecs, qqs orchis, et d'autres opés.
• étude[4] dans un centre pédiatrique de prise en charge du SED trouvant une prévalence de dysphorie de genre de 17% chez des ados avec un diag de SED(h)/HSD

[1] : Prevalence of Hypermobile Ehlers-Danlos Syndrome in Transgender and Gender Diverse Individuals: A Retrospective Cohort Study. Tabernacki T et al., 2025. https://doi.org/10.1177/23258292251382250
[2] : The prevalence of hypermobile Ehlers–Danlos syndrome at a gender-affirming primary care clinic. Stein T et al., 2025. https://doi.org/10.1177/20503121251315021
[3] : Ehlers-Danlos syndrome: prevalence and outcomes in gender affirming surgery - a single institution experience. Najafian A, 2022. https://doi.org/10.20517/2347-9264.2021.89
[4] : Gender dysphoria in adolescents with Ehlers–Danlos syndrome. Jones JT et al., 2022. https://doi.org/10.1177/20503121221146074
#EDS #hEDS #trans #hypermobility #hypermobileEhlersDanlosSyndrome #HSD

Pour commencer par un truc intéressant : étude[1] rétrospective sur des dossiers médicaux qui cherche à évaluer la prévalence de SEDh/HSD (syndrôme d'Ehlers-Danlos type hypermobile/trouble du spectre de l'hypermobilité) chez les personnes trans/nb. Elle trouve :

• prévalence de 2.62% chez les personnes transmasc
• prévalence de 1% chez les personnes transfem
• pas de différence significative dans la prévalence vis-à-vis de la prise ou non de THLa même étude trouve une prévalence de 0.16% chez les femmes cis et 0.04% chez les hommes cis ; ça fait presque 20 fois plus de chances d'avoir un SED chez les personnes trans (OR 18.45).

Ça recoupe quelques autres études qui montrent une prévalence importante de SEDh chez les personnes trans :

• étude[2] dans un centre médical prescrivant des TH qui trouve une prévalence de SEDh de 2.7% chez des personnes trans
• étude[3] dans un centre médical trouvant une prévalence de SED de 2.6% chez des personnes trans ayant eu une opération de transition (72% SEDh, le reste pas spécifié ; ~70% transmasc). Pas de surrisque de complications postop ou de réopérations dans ce groupe, pour principalement des mammecs, qqs orchis, et d'autres opés.
• étude[4] dans un centre pédiatrique de prise en charge du SED trouvant une prévalence de dysphorie de genre de 17% chez des ados avec un diag de SED(h)/HSD

[1] : Prevalence of Hypermobile Ehlers-Danlos Syndrome in Transgender and Gender Diverse Individuals: A Retrospective Cohort Study. Tabernacki T et al., 2025. https://doi.org/10.1177/23258292251382250
[2] : The prevalence of hypermobile Ehlers–Danlos syndrome at a gender-affirming primary care clinic. Stein T et al., 2025. https://doi.org/10.1177/20503121251315021
[3] : Ehlers-Danlos syndrome: prevalence and outcomes in gender affirming surgery - a single institution experience. Najafian A, 2022. https://doi.org/10.20517/2347-9264.2021.89
[4] : Gender dysphoria in adolescents with Ehlers–Danlos syndrome. Jones JT et al., 2022. https://doi.org/10.1177/20503121221146074
#EDS #hEDS #trans #hypermobility #hypermobileEhlersDanlosSyndrome #HSD

Pour commencer par un truc intéressant : étude[1] rétrospective sur des dossiers médicaux qui cherche à évaluer la prévalence de SEDh/HSD (syndrôme d'Ehlers-Danlos type hypermobile/trouble du spectre de l'hypermobilité) chez les personnes trans/nb. Elle trouve :

• prévalence de 2.62% chez les personnes transmasc
• prévalence de 1% chez les personnes transfem
• pas de différence significative dans la prévalence vis-à-vis de la prise ou non de THLa même étude trouve une prévalence de 0.16% chez les femmes cis et 0.04% chez les hommes cis ; ça fait presque 20 fois plus de chances d'avoir un SED chez les personnes trans (OR 18.45).

Ça recoupe quelques autres études qui montrent une prévalence importante de SEDh chez les personnes trans :

• étude[2] dans un centre médical prescrivant des TH qui trouve une prévalence de SEDh de 2.7% chez des personnes trans
• étude[3] dans un centre médical trouvant une prévalence de SED de 2.6% chez des personnes trans ayant eu une opération de transition (72% SEDh, le reste pas spécifié ; ~70% transmasc). Pas de surrisque de complications postop ou de réopérations dans ce groupe, pour principalement des mammecs, qqs orchis, et d'autres opés.
• étude[4] dans un centre pédiatrique de prise en charge du SED trouvant une prévalence de dysphorie de genre de 17% chez des ados avec un diag de SED(h)/HSD

[1] : Prevalence of Hypermobile Ehlers-Danlos Syndrome in Transgender and Gender Diverse Individuals: A Retrospective Cohort Study. Tabernacki T et al., 2025. https://doi.org/10.1177/23258292251382250
[2] : The prevalence of hypermobile Ehlers–Danlos syndrome at a gender-affirming primary care clinic. Stein T et al., 2025. https://doi.org/10.1177/20503121251315021
[3] : Ehlers-Danlos syndrome: prevalence and outcomes in gender affirming surgery - a single institution experience. Najafian A, 2022. https://doi.org/10.20517/2347-9264.2021.89
[4] : Gender dysphoria in adolescents with Ehlers–Danlos syndrome. Jones JT et al., 2022. https://doi.org/10.1177/20503121221146074
#EDS #hEDS #trans #hypermobility #hypermobileEhlersDanlosSyndrome #HSD

Pour commencer par un truc intéressant : étude[1] rétrospective sur des dossiers médicaux qui cherche à évaluer la prévalence de SEDh/HSD (syndrôme d'Ehlers-Danlos type hypermobile/trouble du spectre de l'hypermobilité) chez les personnes trans/nb. Elle trouve :

• prévalence de 2.62% chez les personnes transmasc
• prévalence de 1% chez les personnes transfem
• pas de différence significative dans la prévalence vis-à-vis de la prise ou non de TH

La même étude trouve une prévalence de 0.16% chez les femmes cis et 0.04% chez les hommes cis ; ça fait presque 20 fois plus de chances d'avoir un SED chez les personnes trans (OR 18.45).

Ça recoupe quelques autres études qui montrent une prévalence importante de SEDh chez les personnes trans :

• étude[2] dans un centre médical prescrivant des TH qui trouve une prévalence de SEDh de 2.7% chez des personnes trans
• étude[3] dans un centre médical trouvant une prévalence de SED de 2.6% chez des personnes trans ayant eu une opération de transition (72% SEDh, le reste pas spécifié ; ~70% transmasc). Pas de surrisque de complications postop ou de réopérations dans ce groupe, pour principalement des mammecs, qqs orchis, et d'autres opés.
• étude[4] dans un centre pédiatrique de prise en charge du SED trouvant une prévalence de dysphorie de genre de 17% chez des ados avec un diag de SED(h)/HSD

[1] : Prevalence of Hypermobile Ehlers-Danlos Syndrome in Transgender and Gender Diverse Individuals: A Retrospective Cohort Study. Tabernacki T et al., 2025. https://doi.org/10.1177/23258292251382250

[2] : The prevalence of hypermobile Ehlers–Danlos syndrome at a gender-affirming primary care clinic. Stein T et al., 2025. https://doi.org/10.1177/20503121251315021

[3] : Ehlers-Danlos syndrome: prevalence and outcomes in gender affirming surgery - a single institution experience. Najafian A, 2022. https://doi.org/10.20517/2347-9264.2021.89

[4] : Gender dysphoria in adolescents with Ehlers–Danlos syndrome. Jones JT et al., 2022. https://doi.org/10.1177/20503121221146074

#EDS #hEDS #trans #hypermobility #hypermobileEhlersDanlosSyndrome #HSD

Asking your parents (who are in their 70's) to get a shower stool for their bathroom.

Not for themselves, but for when you're visiting...

#JustDisabilityThings #POTS #HypermobileEhlersDanlosSyndrome #heds

Asking your parents (who are in their 70's) to get a shower stool for their bathroom.

Not for themselves, but for when you're visiting...

#JustDisabilityThings #POTS #HypermobileEhlersDanlosSyndrome #heds

Asking your parents (who are in their 70's) to get a shower stool for their bathroom.

Not for themselves, but for when you're visiting...

#JustDisabilityThings #POTS #HypermobileEhlersDanlosSyndrome #heds

Asking your parents (who are in their 70's) to get a shower stool for their bathroom.

Not for themselves, but for when you're visiting...

#JustDisabilityThings #POTS #HypermobileEhlersDanlosSyndrome #heds

As a #disabled #gardener…it is really frustrating when the weight of tools is not listed online when purchasing ⛏️ :meow_cowboy:

#gardening #HEDS #fibromyalgia #hypermobility #badback

As a #disabled #gardener…it is really frustrating when the weight of tools is not listed online when purchasing ⛏️ :meow_cowboy:

#gardening #HEDS #fibromyalgia #hypermobility #badback

As a #disabled #gardener…it is really frustrating when the weight of tools is not listed online when purchasing ⛏️ :meow_cowboy:

#gardening #HEDS #fibromyalgia #hypermobility #badback

As a #disabled #gardener…it is really frustrating when the weight of tools is not listed online when purchasing ⛏️ :meow_cowboy:

#gardening #HEDS #fibromyalgia #hypermobility #badback