#meawarenessday — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #meawarenessday, aggregated by home.social.
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☔ Gestern haben wir uns trotz Regen und frischer 8 °C nicht aufhalten lassen: Gemeinsam setzen wir uns für mehr Sichtbarkeit, bessere Versorgung und mehr Forschung zu Myalgische Enzephalomyelitis/Chronisches Fatigue-Syndrom ein. #MECFS #MyalgischeEnzephalomyelitis #ChronischesFatigueSyndrom #TagDerPflege #Solidarität #Inklusion #MEAwarenessDay
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☔ Gestern haben wir uns trotz Regen und frischer 8 °C nicht aufhalten lassen: Gemeinsam setzen wir uns für mehr Sichtbarkeit, bessere Versorgung und mehr Forschung zu Myalgische Enzephalomyelitis/Chronisches Fatigue-Syndrom ein. #MECFS #MyalgischeEnzephalomyelitis #ChronischesFatigueSyndrom #TagDerPflege #Solidarität #Inklusion #MEAwarenessDay
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☔ Gestern haben wir uns trotz Regen und frischer 8 °C nicht aufhalten lassen: Gemeinsam setzen wir uns für mehr Sichtbarkeit, bessere Versorgung und mehr Forschung zu Myalgische Enzephalomyelitis/Chronisches Fatigue-Syndrom ein. #MECFS #MyalgischeEnzephalomyelitis #ChronischesFatigueSyndrom #TagDerPflege #Solidarität #Inklusion #MEAwarenessDay
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☔ Gestern haben wir uns trotz Regen und frischer 8 °C nicht aufhalten lassen: Gemeinsam setzen wir uns für mehr Sichtbarkeit, bessere Versorgung und mehr Forschung zu Myalgische Enzephalomyelitis/Chronisches Fatigue-Syndrom ein. #MECFS #MyalgischeEnzephalomyelitis #ChronischesFatigueSyndrom #TagDerPflege #Solidarität #Inklusion #MEAwarenessDay
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☔ Gestern haben wir uns trotz Regen und frischer 8 °C nicht aufhalten lassen: Gemeinsam setzen wir uns für mehr Sichtbarkeit, bessere Versorgung und mehr Forschung zu Myalgische Enzephalomyelitis/Chronisches Fatigue-Syndrom ein. #MECFS #MyalgischeEnzephalomyelitis #ChronischesFatigueSyndrom #TagDerPflege #Solidarität #Inklusion #MEAwarenessDay
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For ME/CFS AwarenessDay I posted a long thread on Mastodon - here's the link! 😁 disabled.social/@ahimsa_pdx/... If you prefer an "unrolled" thread here's that link: mastoreader.io?url=https%3A... #MEcfs #LongCovid #MEAwarenessDay #WorldMEDay
Ahimsa (@[email protected]... -
For ME/CFS AwarenessDay I posted a long thread on Mastodon - here's the link! 😁 disabled.social/@ahimsa_pdx/... If you prefer an "unrolled" thread here's that link: mastoreader.io?url=https%3A... #MEcfs #LongCovid #MEAwarenessDay #WorldMEDay
Ahimsa (@[email protected]... -
For ME/CFS AwarenessDay I posted a long thread on Mastodon - here's the link! 😁 disabled.social/@ahimsa_pdx/... If you prefer an "unrolled" thread here's that link: mastoreader.io?url=https%3A... #MEcfs #LongCovid #MEAwarenessDay #WorldMEDay
Ahimsa (@[email protected]... -
For ME/CFS AwarenessDay I posted a long thread on Mastodon - here's the link! 😁 disabled.social/@ahimsa_pdx/... If you prefer an "unrolled" thread here's that link: mastoreader.io?url=https%3A... #MEcfs #LongCovid #MEAwarenessDay #WorldMEDay
Ahimsa (@[email protected]... -
For ME/CFS AwarenessDay I posted a long thread on Mastodon - here's the link! 😁 disabled.social/@ahimsa_pdx/... If you prefer an "unrolled" thread here's that link: mastoreader.io?url=https%3A... #MEcfs #LongCovid #MEAwarenessDay #WorldMEDay
Ahimsa (@[email protected]... -
Okay, that's all for today! If you made it all the way here, thanks so for reading! ❤️
Please share this information with others! Boost this thread, share links with friends & family, etc.
I'll end with a quote from Naomi Whittingham:
"No matter how isolated you might be, you are inextricably connected to the rest of humanity in ways you can’t fully imagine."
Source = https://alifehidden.com/2026/05/10/not-forgotten/
23/23
#MEcfs #LongCovid #MillionsMissing #MEAwarenessDay #WorldMEDay
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Okay, that's all for today! If you made it all the way here, thanks so for reading! ❤️
Please share this information with others! Boost this thread, share links with friends & family, etc.
I'll end with a quote from Naomi Whittingham:
"No matter how isolated you might be, you are inextricably connected to the rest of humanity in ways you can’t fully imagine."
Source = https://alifehidden.com/2026/05/10/not-forgotten/
23/23
#MEcfs #LongCovid #MillionsMissing #MEAwarenessDay #WorldMEDay
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Okay, that's all for today! If you made it all the way here, thanks so for reading! ❤️
Please share this information with others! Boost this thread, share links with friends & family, etc.
I'll end with a quote from Naomi Whittingham:
"No matter how isolated you might be, you are inextricably connected to the rest of humanity in ways you can’t fully imagine."
Source = https://alifehidden.com/2026/05/10/not-forgotten/
23/23
#MEcfs #LongCovid #MillionsMissing #MEAwarenessDay #WorldMEDay
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Okay, that's all for today! If you made it all the way here, thanks so for reading! ❤️
Please share this information with others! Boost this thread, share links with friends & family, etc.
I'll end with a quote from Naomi Whittingham:
"No matter how isolated you might be, you are inextricably connected to the rest of humanity in ways you can’t fully imagine."
Source = https://alifehidden.com/2026/05/10/not-forgotten/
23/23
#MEcfs #LongCovid #MillionsMissing #MEAwarenessDay #WorldMEDay
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Okay, that's all for today! If you made it all the way here, thanks so for reading! ❤️
Please share this information with others! Boost this thread, share links with friends & family, etc.
I'll end with a quote from Naomi Whittingham:
"No matter how isolated you might be, you are inextricably connected to the rest of humanity in ways you can’t fully imagine."
Source = https://alifehidden.com/2026/05/10/not-forgotten/
23/23
#MEcfs #LongCovid #MillionsMissing #MEAwarenessDay #WorldMEDay
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Today's top ten tag trends:
10: #gitlab
9: #TextureTuesday
8: #meawarenessday
7: #tercinema
6: #windowsanddoors
5: #TuneTuesday
4: #DisclaimersForBooksOrMovies
3: #ESC2026
2: #esc
1: #eurovision -
Today's top ten tag trends:
10: #gitlab
9: #TextureTuesday
8: #meawarenessday
7: #tercinema
6: #windowsanddoors
5: #TuneTuesday
4: #DisclaimersForBooksOrMovies
3: #ESC2026
2: #esc
1: #eurovision -
Today's top ten tag trends:
10: #gitlab
9: #TextureTuesday
8: #meawarenessday
7: #tercinema
6: #windowsanddoors
5: #TuneTuesday
4: #DisclaimersForBooksOrMovies
3: #ESC2026
2: #esc
1: #eurovision -
Today's top ten tag trends:
10: #gitlab
9: #TextureTuesday
8: #meawarenessday
7: #tercinema
6: #windowsanddoors
5: #TuneTuesday
4: #DisclaimersForBooksOrMovies
3: #ESC2026
2: #esc
1: #eurovision -
Today's top ten tag trends:
10: #gitlab
9: #TextureTuesday
8: #meawarenessday
7: #tercinema
6: #windowsanddoors
5: #TuneTuesday
4: #DisclaimersForBooksOrMovies
3: #ESC2026
2: #esc
1: #eurovision -
I'm taking another break while I gather up and organize the final section of this thread, actions you can take to help folks with ME/CFS & Long Covid.
Stay tuned - I will be back a bit later to finish the thread!
16/n
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I'm taking another break while I gather up and organize the final section of this thread, actions you can take to help folks with ME/CFS & Long Covid.
Stay tuned - I will be back a bit later to finish the thread!
16/n
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I'm taking another break while I gather up and organize the final section of this thread, actions you can take to help folks with ME/CFS & Long Covid.
Stay tuned - I will be back a bit later to finish the thread!
16/n
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I'm taking another break while I gather up and organize the final section of this thread, actions you can take to help folks with ME/CFS & Long Covid.
Stay tuned - I will be back a bit later to finish the thread!
16/n
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I'm taking another break while I gather up and organize the final section of this thread, actions you can take to help folks with ME/CFS & Long Covid.
Stay tuned - I will be back a bit later to finish the thread!
16/n
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Want to discuss the science of ME/CFS & Long Covid with patients, doctors, researchers, other interested folks?
There's a moderated forum called Science for ME:
Full disclosure, I'm a forum member and one of the volunteers who do the "News in Brief" summary. It's posted weekly on Mastodon and Bluesky.
The forum also has subforums where patients can chat or share funny/silly stuff. Come join us! 😁
15/n
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Want to discuss the science of ME/CFS & Long Covid with patients, doctors, researchers, other interested folks?
There's a moderated forum called Science for ME:
Full disclosure, I'm a forum member and one of the volunteers who do the "News in Brief" summary. It's posted weekly on Mastodon and Bluesky.
The forum also has subforums where patients can chat or share funny/silly stuff. Come join us! 😁
15/n
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Want to discuss the science of ME/CFS & Long Covid with patients, doctors, researchers, other interested folks?
There's a moderated forum called Science for ME:
Full disclosure, I'm a forum member and one of the volunteers who do the "News in Brief" summary. It's posted weekly on Mastodon and Bluesky.
The forum also has subforums where patients can chat or share funny/silly stuff. Come join us! 😁
15/n
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Want to discuss the science of ME/CFS & Long Covid with patients, doctors, researchers, other interested folks?
There's a moderated forum called Science for ME:
Full disclosure, I'm a forum member and one of the volunteers who do the "News in Brief" summary. It's posted weekly on Mastodon and Bluesky.
The forum also has subforums where patients can chat or share funny/silly stuff. Come join us! 😁
15/n
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Want to discuss the science of ME/CFS & Long Covid with patients, doctors, researchers, other interested folks?
There's a moderated forum called Science for ME:
Full disclosure, I'm a forum member and one of the volunteers who do the "News in Brief" summary. It's posted weekly on Mastodon and Bluesky.
The forum also has subforums where patients can chat or share funny/silly stuff. Come join us! 😁
15/n
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Another ME/CFS research & advocacy group is Solve M.E.
They hold Advocacy Week every year, meeting with government representatives to lobby for legislation that will help ME/CFS and Long Covid (research funding and other asks).
They also run the Ramsay Research Grant Program - since 2016, 37 studies have been supported by Ramsay Grants.
https://solvecfs.org/research/ramsay-research-grants/
14/n
#MEcfs #LongCovid #MEAwarenessDay #WorldMEDay #MedMastodon #SolveME
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Another ME/CFS research & advocacy group is Solve M.E.
They hold Advocacy Week every year, meeting with government representatives to lobby for legislation that will help ME/CFS and Long Covid (research funding and other asks).
They also run the Ramsay Research Grant Program - since 2016, 37 studies have been supported by Ramsay Grants.
https://solvecfs.org/research/ramsay-research-grants/
14/n
#MEcfs #LongCovid #MEAwarenessDay #WorldMEDay #MedMastodon #SolveME
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Another ME/CFS research & advocacy group is Solve M.E.
They hold Advocacy Week every year, meeting with government representatives to lobby for legislation that will help ME/CFS and Long Covid (research funding and other asks).
They also run the Ramsay Research Grant Program - since 2016, 37 studies have been supported by Ramsay Grants.
https://solvecfs.org/research/ramsay-research-grants/
14/n
#MEcfs #LongCovid #MEAwarenessDay #WorldMEDay #MedMastodon #SolveME
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Another ME/CFS research & advocacy group is Solve M.E.
They hold Advocacy Week every year, meeting with government representatives to lobby for legislation that will help ME/CFS and Long Covid (research funding and other asks).
They also run the Ramsay Research Grant Program - since 2016, 37 studies have been supported by Ramsay Grants.
https://solvecfs.org/research/ramsay-research-grants/
14/n
#MEcfs #LongCovid #MEAwarenessDay #WorldMEDay #MedMastodon #SolveME
-
Another ME/CFS research & advocacy group is Solve M.E.
They hold Advocacy Week every year, meeting with government representatives to lobby for legislation that will help ME/CFS and Long Covid (research funding and other asks).
They also run the Ramsay Research Grant Program - since 2016, 37 studies have been supported by Ramsay Grants.
https://solvecfs.org/research/ramsay-research-grants/
14/n
#MEcfs #LongCovid #MEAwarenessDay #WorldMEDay #MedMastodon #SolveME
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Another ME/CFS group is #MEAction. They've done great advocacy work over the years, including this protest in 2023. They put 300 cots on the lawn at the Washington Monument.
People with ME/CFS or Long Covid sent in pillowcases with personalized messages - you can see some of the pillows in this video.
Video from the event:
https://www.youtube.com/watch?v=FULqhB--k7k
Website:
https://storyofmillionsmissing.org/dc-protest/
This event got good press coverage.
13/n
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Another ME/CFS group is #MEAction. They've done great advocacy work over the years, including this protest in 2023. They put 300 cots on the lawn at the Washington Monument.
People with ME/CFS or Long Covid sent in pillowcases with personalized messages - you can see some of the pillows in this video.
Video from the event:
https://www.youtube.com/watch?v=FULqhB--k7k
Website:
https://storyofmillionsmissing.org/dc-protest/
This event got good press coverage.
13/n
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Another ME/CFS group is #MEAction. They've done great advocacy work over the years, including this protest in 2023. They put 300 cots on the lawn at the Washington Monument.
People with ME/CFS or Long Covid sent in pillowcases with personalized messages - you can see some of the pillows in this video.
Video from the event:
https://www.youtube.com/watch?v=FULqhB--k7k
Website:
https://storyofmillionsmissing.org/dc-protest/
This event got good press coverage.
13/n
-
Another ME/CFS group is #MEAction. They've done great advocacy work over the years, including this protest in 2023. They put 300 cots on the lawn at the Washington Monument.
People with ME/CFS or Long Covid sent in pillowcases with personalized messages - you can see some of the pillows in this video.
Video from the event:
https://www.youtube.com/watch?v=FULqhB--k7k
Website:
https://storyofmillionsmissing.org/dc-protest/
This event got good press coverage.
13/n
-
Another ME/CFS group is #MEAction. They've done great advocacy work over the years, including this protest in 2023. They put 300 cots on the lawn at the Washington Monument.
People with ME/CFS or Long Covid sent in pillowcases with personalized messages - you can see some of the pillows in this video.
Video from the event:
https://www.youtube.com/watch?v=FULqhB--k7k
Website:
https://storyofmillionsmissing.org/dc-protest/
This event got good press coverage.
13/n
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Next I'll list some of the ME/CFS groups which have resources for patients and clinicians.
I'll start with the Bateman Horne Center since I just mentioned them. They have online support group meetings twice a month.
They also have regular "Coffee" with a Clinician sessions where they talk about different ME/CFS issues.
Event calendar:
https://batemanhornecenter.org/events/
Home page:
https://batemanhornecenter.org/
12/n
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Next I'll list some of the ME/CFS groups which have resources for patients and clinicians.
I'll start with the Bateman Horne Center since I just mentioned them. They have online support group meetings twice a month.
They also have regular "Coffee" with a Clinician sessions where they talk about different ME/CFS issues.
Event calendar:
https://batemanhornecenter.org/events/
Home page:
https://batemanhornecenter.org/
12/n
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Next I'll list some of the ME/CFS groups which have resources for patients and clinicians.
I'll start with the Bateman Horne Center since I just mentioned them. They have online support group meetings twice a month.
They also have regular "Coffee" with a Clinician sessions where they talk about different ME/CFS issues.
Event calendar:
https://batemanhornecenter.org/events/
Home page:
https://batemanhornecenter.org/
12/n
-
Next I'll list some of the ME/CFS groups which have resources for patients and clinicians.
I'll start with the Bateman Horne Center since I just mentioned them. They have online support group meetings twice a month.
They also have regular "Coffee" with a Clinician sessions where they talk about different ME/CFS issues.
Event calendar:
https://batemanhornecenter.org/events/
Home page:
https://batemanhornecenter.org/
12/n
-
Next I'll list some of the ME/CFS groups which have resources for patients and clinicians.
I'll start with the Bateman Horne Center since I just mentioned them. They have online support group meetings twice a month.
They also have regular "Coffee" with a Clinician sessions where they talk about different ME/CFS issues.
Event calendar:
https://batemanhornecenter.org/events/
Home page:
https://batemanhornecenter.org/
12/n
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Das dritte Jahr in Folge, ab heute ist es Tradition:
#LightUpTheNight4ME in #Mönchengladbach für den #MEAwarenessDayWegen dem Um-/Neubau in #Rheydt wurde dies mal das Rathaus Abtei beleuchtet und wie mir eine Mitarbeiterin der Stadt Mönchengladbach vor Ort erklärte gab es einige Probleme. Ich war dann völlig gerührt mit wie viel Engagment sie es dann trotzdem noch hin bekommen haben.
Vielen Dank jenen, die das heute möglich gemacht haben!
1/3 -
Das dritte Jahr in Folge, ab heute ist es Tradition:
#LightUpTheNight4ME in #Mönchengladbach für den #MEAwarenessDayWegen dem Um-/Neubau in #Rheydt wurde dies mal das Rathaus Abtei beleuchtet und wie mir eine Mitarbeiterin der Stadt Mönchengladbach vor Ort erklärte gab es einige Probleme. Ich war dann völlig gerührt mit wie viel Engagment sie es dann trotzdem noch hin bekommen haben.
Vielen Dank jenen, die das heute möglich gemacht haben!
1/3 -
Das dritte Jahr in Folge, ab heute ist es Tradition:
#LightUpTheNight4ME in #Mönchengladbach für den #MEAwarenessDayWegen dem Um-/Neubau in #Rheydt wurde dies mal das Rathaus Abtei beleuchtet und wie mir eine Mitarbeiterin der Stadt Mönchengladbach vor Ort erklärte gab es einige Probleme. Ich war dann völlig gerührt mit wie viel Engagment sie es dann trotzdem noch hin bekommen haben.
Vielen Dank jenen, die das heute möglich gemacht haben!
1/3 -
Das dritte Jahr in Folge, ab heute ist es Tradition:
#LightUpTheNight4ME in #Mönchengladbach für den #MEAwarenessDayWegen dem Um-/Neubau in #Rheydt wurde dies mal das Rathaus Abtei beleuchtet und wie mir eine Mitarbeiterin der Stadt Mönchengladbach vor Ort erklärte gab es einige Probleme. Ich war dann völlig gerührt mit wie viel Engagment sie es dann trotzdem noch hin bekommen haben.
Vielen Dank jenen, die das heute möglich gemacht haben!
1/3
