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#worldmeday — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #worldmeday, aggregated by home.social.

  1. Ahimsa @[email protected] ·

    Okay, that's all for today! If you made it all the way here, thanks so for reading! ❤️

    Please share this information with others! Boost this thread, share links with friends & family, etc.

    I'll end with a quote from Naomi Whittingham:

    "No matter how isolated you might be, you are inextricably connected to the rest of humanity in ways you can’t fully imagine."

    Source = alifehidden.com/2026/05/10/not

    23/23

    @mecfs @longcovid

    #MEcfs #LongCovid #MillionsMissing #MEAwarenessDay #WorldMEDay

    #mecfs #longcovid #millionsmissing #meawarenessday #worldmeday
  2. Leah McElrath @[email protected] ·

    I live with Myalgic Encephalomyelitis (aka “Chronic Fatigue Sydrome”) and a host of related disorders. We say #MillionsMissing because the conditions are so debilitating that they cause us to have to drop out of our lives. Sending 💜 on #WorldMEday to all those who suffer. You are not alone.

    RE: https://bsky.app/profile/did:plc:hedpcce7vylvdgibxuxjsuzb/post/3mloisvsgp22k

    #millionsmissing #worldmeday
  3. Ahimsa @[email protected] ·

    OK, I'm gonna take a rest break!

    I'm trying to avoid PEM (post-exertional malaise), aka PESE (post-exertional symptom exacerbation)

    Pacing is hard! It often fails due to some unplanned exertion which can't be avoided. And sometimes adrenaline takes over when I should be resting.

    In short, it's easy to do too much and crash. Fact sheet about PEM:

    s4me.info/threads/science-for-

    I'll be back later today! 😁

    9/n

    @mecfs @longcovid

    #MEcfs #LongCovid #MillionsMissing #MEAwarenessDay #WorldMEDay

    #mecfs #longcovid #millionsmissing #meawarenessday #worldmeday
  4. Ahimsa @[email protected] ·

    What does #MillionsMissing mean?

    Even mild cases of ME/CFS cause significant loss. So people with ME/CFS are "missing" from work, socializing, exercise, etc.

    Moderate cases cause more loss so that people can rarely leave the house.

    People with severe cases are in bed, rarely able to intereact with anyone.

    As ME/CFS gets worse a person's life shrinks more and more.

    The attached comic is by Kornelia Paulsen.

    8/n

    @mecfs @longcovid

    #MEcfs #LongCovid #SevereME #MEAwarenessDay #WorldMEDay

    #millionsmissing #mecfs #longcovid #severeme #meawarenessday #worldmeday
  5. Ahimsa @[email protected] ·

    If you learn nothing else from my thread today, please remember this:

    🚨 Exercise is NOT recommended for people with ME/CFS!

    Any exertion, mental or physical, is not good for people who have post-exertional malaise (PEM), sometimes called post-exertional symptom exacerbation (PESE)

    This includes a significant portion of people with Long Covid.

    Video with more info:

    youtube.com/watch?v=wxSwYUennBA

    4/n

    @mecfs @longcovid

    #MEcfs #LongCovid #MillionsMissing #MEAwarenessDay #WorldMEDay #PEM #PESE

    #mecfs #longcovid #millionsmissing #meawarenessday #worldmeday #pem
  6. Ahimsa @[email protected] ·

    💙 It's May 12th, International ME/CFS Awareness Day 💙

    Also called World M.E. Day!

    🧵 This thread talks about 4 things:

    1. My ME/CFS story (brief)

    2. Facts about ME/CFS and Long Covid

    3. Helpful resources for patients (and friends/family)

    4. Actions you can take to help folks with ME/CFS & Long Covid!

    Some will be easy things anyone can do! 👍

    Other actions (re: #Medicaid) are for US residents only.

    1/n

    @mecfs @longcovid

    #MEcfs #LongCovid #MillionsMissing #MEAwarenessDay #WorldMEDay

    #medicaid #mecfs #longcovid #millionsmissing #meawarenessday #worldmeday