#stoprestpace — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #stoprestpace, aggregated by home.social.
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Video from Solve ME, about 13 minutes long.
"Hollis Mickey on Pacing with Severe M.E."
https://www.youtube.com/watch?v=5LUox41bP94
"Often we say, 'I crashed myself,' or feel frustrated or blame ourselves for exceeding a threshold. I am the biggest culprit of this. But crashing is not always predictable"
"My body is having an unreasonable reaction to a reasonable action."
Transcript:
https://solvecfs.org/wp-content/uploads/2025/08/Pacing-With-Severe-M.E.pdf
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Video from Solve ME, about 13 minutes long.
"Hollis Mickey on Pacing with Severe M.E."
https://www.youtube.com/watch?v=5LUox41bP94
"Often we say, 'I crashed myself,' or feel frustrated or blame ourselves for exceeding a threshold. I am the biggest culprit of this. But crashing is not always predictable"
"My body is having an unreasonable reaction to a reasonable action."
Transcript:
https://solvecfs.org/wp-content/uploads/2025/08/Pacing-With-Severe-M.E.pdf
-
Video from Solve ME, about 13 minutes long.
"Hollis Mickey on Pacing with Severe M.E."
https://www.youtube.com/watch?v=5LUox41bP94
"Often we say, 'I crashed myself,' or feel frustrated or blame ourselves for exceeding a threshold. I am the biggest culprit of this. But crashing is not always predictable"
"My body is having an unreasonable reaction to a reasonable action."
Transcript:
https://solvecfs.org/wp-content/uploads/2025/08/Pacing-With-Severe-M.E.pdf
-
Video from Solve ME, about 13 minutes long.
"Hollis Mickey on Pacing with Severe M.E."
https://www.youtube.com/watch?v=5LUox41bP94
"Often we say, 'I crashed myself,' or feel frustrated or blame ourselves for exceeding a threshold. I am the biggest culprit of this. But crashing is not always predictable"
"My body is having an unreasonable reaction to a reasonable action."
Transcript:
https://solvecfs.org/wp-content/uploads/2025/08/Pacing-With-Severe-M.E.pdf
-
Video from Solve ME, about 13 minutes long.
"Hollis Mickey on Pacing with Severe M.E."
https://www.youtube.com/watch?v=5LUox41bP94
"Often we say, 'I crashed myself,' or feel frustrated or blame ourselves for exceeding a threshold. I am the biggest culprit of this. But crashing is not always predictable"
"My body is having an unreasonable reaction to a reasonable action."
Transcript:
https://solvecfs.org/wp-content/uploads/2025/08/Pacing-With-Severe-M.E.pdf
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New video from Solve ME, a recording of the EmPower M.E. event on June 27:
Pacing: Power In Slowing Down
(about one hour long)https://www.youtube.com/watch?v=to9xPPuRM1o
"Pacing is one of the most talked-about — but often misunderstood — tools in chronic illness management. In this informative session, we’ll break down what pacing really means, why it works, and how it works — so no family has to learn the hard way."
#MEcfs #LongCovid #PwME #PEM #SevereME #StopRestPace #SolveME
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New video from Solve ME, a recording of the EmPower M.E. event on June 27:
Pacing: Power In Slowing Down
(about one hour long)https://www.youtube.com/watch?v=to9xPPuRM1o
"Pacing is one of the most talked-about — but often misunderstood — tools in chronic illness management. In this informative session, we’ll break down what pacing really means, why it works, and how it works — so no family has to learn the hard way."
#MEcfs #LongCovid #PwME #PEM #SevereME #StopRestPace #SolveME
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New video from Solve ME, a recording of the EmPower M.E. event on June 27:
Pacing: Power In Slowing Down
(about one hour long)https://www.youtube.com/watch?v=to9xPPuRM1o
"Pacing is one of the most talked-about — but often misunderstood — tools in chronic illness management. In this informative session, we’ll break down what pacing really means, why it works, and how it works — so no family has to learn the hard way."
#MEcfs #LongCovid #PwME #PEM #SevereME #StopRestPace #SolveME
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New video from Solve ME, a recording of the EmPower M.E. event on June 27:
Pacing: Power In Slowing Down
(about one hour long)https://www.youtube.com/watch?v=to9xPPuRM1o
"Pacing is one of the most talked-about — but often misunderstood — tools in chronic illness management. In this informative session, we’ll break down what pacing really means, why it works, and how it works — so no family has to learn the hard way."
#MEcfs #LongCovid #PwME #PEM #SevereME #StopRestPace #SolveME
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New video from Solve ME, a recording of the EmPower M.E. event on June 27:
Pacing: Power In Slowing Down
(about one hour long)https://www.youtube.com/watch?v=to9xPPuRM1o
"Pacing is one of the most talked-about — but often misunderstood — tools in chronic illness management. In this informative session, we’ll break down what pacing really means, why it works, and how it works — so no family has to learn the hard way."
#MEcfs #LongCovid #PwME #PEM #SevereME #StopRestPace #SolveME
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From the #ThereForME series:
"The importance of understanding rest"
https://www.thereforme.uk/p/the-importance-of-understanding-rest
"This cultural dismissal of rest is especially harmful to people with ME or Long Covid, who must often rest for prolonged or indefinite periods. They face not only the impact of their condition, but also repeatedly justifying their need to adapt."
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Some ME/CFS resources (groups, documents, videos) in no particular order:
I mentioned the #MEAction group earlier in this thread (see #StopRestPace post)
Their website has lots of good info!
Their events calendar includes support groups, advocacy meetings, and support for artists and writers:
https://www.meactions.org/event-list
Recent youtube posts:
https://www.youtube.com/@MEActNet/shorts
8/n
#MEcfs #PwME #LongCovid #MillionsMissing #WorldMEDay #MEAwarenessDay
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Okay, taking a break for a while!
I'm resting to avoid PEM (post-exertional malaise) also called PESE (post-exertional symptom exacerbation)
Speaking of resting here's a link to the #StopRestPace page by #MEAction which was created a few years back to explain the importance of pacing and resting to new Long Covid patients:
https://www.meaction.net/stoprestpace/
It has links to a few different pacing and management guides.
6/n