#severeme — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #severeme, aggregated by home.social.
-
What does #MillionsMissing mean?
Even mild cases of ME/CFS cause significant loss. So people with ME/CFS are "missing" from work, socializing, exercise, etc.
Moderate cases cause more loss so that people can rarely leave the house.
People with severe cases are in bed, rarely able to intereact with anyone.
As ME/CFS gets worse a person's life shrinks more and more.
The attached comic is by Kornelia Paulsen.
8/n
-
What does #MillionsMissing mean?
Even mild cases of ME/CFS cause significant loss. So people with ME/CFS are "missing" from work, socializing, exercise, etc.
Moderate cases cause more loss so that people can rarely leave the house.
People with severe cases are in bed, rarely able to intereact with anyone.
As ME/CFS gets worse a person's life shrinks more and more.
The attached comic is by Kornelia Paulsen.
8/n
-
What does #MillionsMissing mean?
Even mild cases of ME/CFS cause significant loss. So people with ME/CFS are "missing" from work, socializing, exercise, etc.
Moderate cases cause more loss so that people can rarely leave the house.
People with severe cases are in bed, rarely able to intereact with anyone.
As ME/CFS gets worse a person's life shrinks more and more.
The attached comic is by Kornelia Paulsen.
8/n
-
What does #MillionsMissing mean?
Even mild cases of ME/CFS cause significant loss. So people with ME/CFS are "missing" from work, socializing, exercise, etc.
Moderate cases cause more loss so that people can rarely leave the house.
People with severe cases are in bed, rarely able to intereact with anyone.
As ME/CFS gets worse a person's life shrinks more and more.
The attached comic is by Kornelia Paulsen.
8/n
-
What does #MillionsMissing mean?
Even mild cases of ME/CFS cause significant loss. So people with ME/CFS are "missing" from work, socializing, exercise, etc.
Moderate cases cause more loss so that people can rarely leave the house.
People with severe cases are in bed, rarely able to intereact with anyone.
As ME/CFS gets worse a person's life shrinks more and more.
The attached comic is by Kornelia Paulsen.
8/n
-
CW: Severe ME, death, suicide
Symptom severity ranges from mild to very severe. But even so-called "mild" ME/CFS has an enormous impact what a person can do.
With severe ME/CFS the person is mostly housebound or completely bedbound.
Anil van der Zee, a former professional dancer who now has severe ME, made this video:
https://www.youtube.com/watch?v=XhrAhGkrGuQ
Read the YouTube summary for more details
5/n
#MEcfs #PwME #SevereME #MEAwarenessDay #WorldMEDay #MyalgicEncephalomyelitis
-
CW: Severe ME, death, suicide
Symptom severity ranges from mild to very severe. But even so-called "mild" ME/CFS has an enormous impact what a person can do.
With severe ME/CFS the person is mostly housebound or completely bedbound.
Anil van der Zee, a former professional dancer who now has severe ME, made this video:
https://www.youtube.com/watch?v=XhrAhGkrGuQ
Read the YouTube summary for more details
5/n
#MEcfs #PwME #SevereME #MEAwarenessDay #WorldMEDay #MyalgicEncephalomyelitis
-
CW: Severe ME, death, suicide
Symptom severity ranges from mild to very severe. But even so-called "mild" ME/CFS has an enormous impact what a person can do.
With severe ME/CFS the person is mostly housebound or completely bedbound.
Anil van der Zee, a former professional dancer who now has severe ME, made this video:
https://www.youtube.com/watch?v=XhrAhGkrGuQ
Read the YouTube summary for more details
5/n
#MEcfs #PwME #SevereME #MEAwarenessDay #WorldMEDay #MyalgicEncephalomyelitis
-
CW: Severe ME, death, suicide
Symptom severity ranges from mild to very severe. But even so-called "mild" ME/CFS has an enormous impact what a person can do.
With severe ME/CFS the person is mostly housebound or completely bedbound.
Anil van der Zee, a former professional dancer who now has severe ME, made this video:
https://www.youtube.com/watch?v=XhrAhGkrGuQ
Read the YouTube summary for more details
5/n
#MEcfs #PwME #SevereME #MEAwarenessDay #WorldMEDay #MyalgicEncephalomyelitis
-
CW: Severe ME, death, suicide
Symptom severity ranges from mild to very severe. But even so-called "mild" ME/CFS has an enormous impact what a person can do.
With severe ME/CFS the person is mostly housebound or completely bedbound.
Anil van der Zee, a former professional dancer who now has severe ME, made this video:
https://www.youtube.com/watch?v=XhrAhGkrGuQ
Read the YouTube summary for more details
5/n
#MEcfs #PwME #SevereME #MEAwarenessDay #WorldMEDay #MyalgicEncephalomyelitis
-
Managed a post on #MEAwarenessDay.
Must nap now!Help me escape #abusers & have a chance at life. Dying of abuse/neglect - running out of time.
$250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Can you spare a room? Land? Time? Know someone who can?Info & help with costs:
(I either write too much or not enough depending on who you ask so further info in fund & Canary article link)💸Fund: https://www.chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://www.buymeacoffee.com/Halcionandon
🎁AmazonAU: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem: Halcionandon
🗞️Article: “Nearly a year on and severe ME patient Anna is still trapped in life-threatening domestic abuse”https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/#mutualaid
#MECFS #PWME #SevereME #MyalgicEncephalomyelitis
#MEAwarenessweek
@mecfs
@[email protected]
@DisabilityJustice
@[email protected] -
Managed a post on #MEAwarenessDay.
Must nap now!Help me escape #abusers & have a chance at life. Dying of abuse/neglect - running out of time.
$250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Can you spare a room? Land? Time? Know someone who can?Info & help with costs:
(I either write too much or not enough depending on who you ask so further info in fund & Canary article link)💸Fund: https://www.chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://www.buymeacoffee.com/Halcionandon
🎁AmazonAU: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem: Halcionandon
🗞️Article: “Nearly a year on and severe ME patient Anna is still trapped in life-threatening domestic abuse”https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/#mutualaid
#MECFS #PWME #SevereME #MyalgicEncephalomyelitis
#MEAwarenessweek
@mecfs
@[email protected]
@DisabilityJustice
@[email protected] -
Managed a post on #MEAwarenessDay.
Must nap now!Help me escape #abusers & have a chance at life. Dying of abuse/neglect - running out of time.
$250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Can you spare a room? Land? Time? Know someone who can?Info & help with costs:
(I either write too much or not enough depending on who you ask so further info in fund & Canary article link)💸Fund: https://www.chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://www.buymeacoffee.com/Halcionandon
🎁AmazonAU: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem: Halcionandon
🗞️Article: “Nearly a year on and severe ME patient Anna is still trapped in life-threatening domestic abuse”https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/#mutualaid
#MECFS #PWME #SevereME #MyalgicEncephalomyelitis
#MEAwarenessweek
@mecfs
@[email protected]
@DisabilityJustice
@[email protected] -
Managed a post on #MEAwarenessDay.
Must nap now!Help me escape #abusers & have a chance at life. Dying of abuse/neglect - running out of time.
$250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Can you spare a room? Land? Time? Know someone who can?Info & help with costs:
(I either write too much or not enough depending on who you ask so further info in fund & Canary article link)💸Fund: https://www.chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://www.buymeacoffee.com/Halcionandon
🎁AmazonAU: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem: Halcionandon
🗞️Article: “Nearly a year on and severe ME patient Anna is still trapped in life-threatening domestic abuse”https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/#mutualaid
#MECFS #PWME #SevereME #MyalgicEncephalomyelitis
#MEAwarenessweek
@mecfs
@[email protected]
@DisabilityJustice
@[email protected] -
Managed a post on #MEAwarenessDay.
Must nap now!Help me escape #abusers & have a chance at life. Dying of abuse/neglect - running out of time.
$250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Can you spare a room? Land? Time? Know someone who can?Info & help with costs:
(I either write too much or not enough depending on who you ask so further info in fund & Canary article link)💸Fund: https://www.chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://www.buymeacoffee.com/Halcionandon
🎁AmazonAU: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem: Halcionandon
🗞️Article: “Nearly a year on and severe ME patient Anna is still trapped in life-threatening domestic abuse”https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/#mutualaid
#MECFS #PWME #SevereME #MyalgicEncephalomyelitis
#MEAwarenessweek
@mecfs
@[email protected]
@DisabilityJustice
@[email protected] -
No fancy post for #MEAwarenessDay
Help me escape #abusers & have a chance at life. Dying of abuse- running out of time.
$250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Info & help with costs:💸Fund: https://www.chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://www.buymeacoffee.com/Halcionandon
🎁AmazonAU: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem: Halcionandon#mutualaid
#MECFS #PWME #SevereME #MyalgicEncephalomyelitis
#MEAwarenessweek
@mecfs
@mutualaid -
No fancy post for #MEAwarenessDay
Help me escape #abusers & have a chance at life. Dying of abuse- running out of time.
$250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Info & help with costs:💸Fund: https://www.chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://www.buymeacoffee.com/Halcionandon
🎁AmazonAU: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem: Halcionandon#mutualaid
#MECFS #PWME #SevereME #MyalgicEncephalomyelitis
#MEAwarenessweek
@mecfs
@mutualaid -
No fancy post for #MEAwarenessDay
Help me escape #abusers & have a chance at life. Dying of abuse- running out of time.
$250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Info & help with costs:💸Fund: https://www.chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://www.buymeacoffee.com/Halcionandon
🎁AmazonAU: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem: Halcionandon#mutualaid
#MECFS #PWME #SevereME #MyalgicEncephalomyelitis
#MEAwarenessweek
@mecfs
@mutualaid -
No fancy post for #MEAwarenessDay
Help me escape #abusers & have a chance at life. Dying of abuse- running out of time.
$250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Info & help with costs:💸Fund: https://www.chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://www.buymeacoffee.com/Halcionandon
🎁AmazonAU: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem: Halcionandon#mutualaid
#MECFS #PWME #SevereME #MyalgicEncephalomyelitis
#MEAwarenessweek
@mecfs
@mutualaid -
No fancy post for #MEAwarenessDay
Help me escape #abusers & have a chance at life. Dying of abuse- running out of time.
$250wk negotiable for rent, room, land for caravan/cabin- anywhere safe & accessible. On #DSP can’t afford much. #Community help needed. Info & help with costs:💸Fund: https://www.chuffed.org/project/161937-help-anna-escape
☕️BMaC: https://www.buymeacoffee.com/Halcionandon
🎁AmazonAU: https://www.amazon.com.au/hz/wishlist/ls/1B9A74NSROTQZ
ᯓ➤Beem: Halcionandon#mutualaid
#MECFS #PWME #SevereME #MyalgicEncephalomyelitis
#MEAwarenessweek
@mecfs
@mutualaid -
11/
#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonthPlease help by reposting and/or liking this 12-minute documentary
which features Whitney Dafoe & othershttps://www.youtube.com/watch?v=9_HwOUiImvw
Day11
-
11/
#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonthPlease help by reposting and/or liking this 12-minute documentary
which features Whitney Dafoe & othershttps://www.youtube.com/watch?v=9_HwOUiImvw
Day11
-
11/
#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonthPlease help by reposting and/or liking this 12-minute documentary
which features Whitney Dafoe & othershttps://www.youtube.com/watch?v=9_HwOUiImvw
Day11
-
11/
#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonthPlease help by reposting and/or liking this 12-minute documentary
which features Whitney Dafoe & othershttps://www.youtube.com/watch?v=9_HwOUiImvw
Day11
-
11/
#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonthPlease help by reposting and/or liking this 12-minute documentary
which features Whitney Dafoe & othershttps://www.youtube.com/watch?v=9_HwOUiImvw
Day11
-
Freedom is not free - a poem by Nevra
(Click on this post or the link to read it)
Please donate/share to help Nevra access lifesaving medical care and rental housing.
🩵http://gofundme.com/f/save-nevra
#SaveLizNevra
#MECFS
#pwME
#ChronicIllness
#severeME
#disability
#donesticviolence -
Freedom is not free - a poem by Nevra
(Click on this post or the link to read it)
Please donate/share to help Nevra access lifesaving medical care and rental housing.
🩵http://gofundme.com/f/save-nevra
#SaveLizNevra
#MECFS
#pwME
#ChronicIllness
#severeME
#disability
#donesticviolence -
Freedom is not free - a poem by Nevra
(Click on this post or the link to read it)
Please donate/share to help Nevra access lifesaving medical care and rental housing.
🩵http://gofundme.com/f/save-nevra
#SaveLizNevra
#MECFS
#pwME
#ChronicIllness
#severeME
#disability
#donesticviolence -
Freedom is not free - a poem by Nevra
(Click on this post or the link to read it)
Please donate/share to help Nevra access lifesaving medical care and rental housing.
🩵http://gofundme.com/f/save-nevra
#SaveLizNevra
#MECFS
#pwME
#ChronicIllness
#severeME
#disability
#donesticviolence -
"Walk On By"
A poem by R.M. Carlson, shared in honor of Millions Missing. Carlson has lived with moderately severe ME/CFS for 3 years.
#MEcfs #PwME #SevereME #MillionsMissing #FrailAndFurious #Poetry #Disability
-
"Walk On By"
A poem by R.M. Carlson, shared in honor of Millions Missing. Carlson has lived with moderately severe ME/CFS for 3 years.
#MEcfs #PwME #SevereME #MillionsMissing #FrailAndFurious #Poetry #Disability
-
"Walk On By"
A poem by R.M. Carlson, shared in honor of Millions Missing. Carlson has lived with moderately severe ME/CFS for 3 years.
#MEcfs #PwME #SevereME #MillionsMissing #FrailAndFurious #Poetry #Disability
-
"Walk On By"
A poem by R.M. Carlson, shared in honor of Millions Missing. Carlson has lived with moderately severe ME/CFS for 3 years.
#MEcfs #PwME #SevereME #MillionsMissing #FrailAndFurious #Poetry #Disability
-
"Walk On By"
A poem by R.M. Carlson, shared in honor of Millions Missing. Carlson has lived with moderately severe ME/CFS for 3 years.
#MEcfs #PwME #SevereME #MillionsMissing #FrailAndFurious #Poetry #Disability
-
8/
May is #MyalgicEncephalomyelitis (M.E.) Awareness Month. You can help by sharing +/or liking this video.It was made by a woman, Laurel, with severe ME @dreamsatstake . Living with Severe ME (5 minutes 13 seconds)
https://youtu.be/LvweCk44WHsDay 8
-
8/
May is #MyalgicEncephalomyelitis (M.E.) Awareness Month. You can help by sharing +/or liking this video.It was made by a woman, Laurel, with severe ME @dreamsatstake . Living with Severe ME (5 minutes 13 seconds)
https://youtu.be/LvweCk44WHsDay 8
-
8/
May is #MyalgicEncephalomyelitis (M.E.) Awareness Month. You can help by sharing +/or liking this video.It was made by a woman, Laurel, with severe ME @dreamsatstake . Living with Severe ME (5 minutes 13 seconds)
https://youtu.be/LvweCk44WHsDay 8
-
8/
May is #MyalgicEncephalomyelitis (M.E.) Awareness Month. You can help by sharing +/or liking this video.It was made by a woman, Laurel, with severe ME @dreamsatstake . Living with Severe ME (5 minutes 13 seconds)
https://youtu.be/LvweCk44WHsDay 8
-
8/
May is #MyalgicEncephalomyelitis (M.E.) Awareness Month. You can help by sharing +/or liking this video.It was made by a woman, Laurel, with severe ME @dreamsatstake . Living with Severe ME (5 minutes 13 seconds)
https://youtu.be/LvweCk44WHsDay 8
-
film about death within the ME community
'I hope the film helps raise awareness. ME kills directly and it kills through the way people with ME are treated and ignored.'
⚠️Contains:
Neglect, medical #gaslighting , starvation, dehydration, death, (assisted) #suicide and other severe topics
If you're sensitive to sound:
There's rustling of plastic in the background sometimes.https://youtube.com/watch?v=XhrAhGkrGuQ&is=XPowqpwZ9GnltMLZ
(13 min.) -
Bitte geht am kommenden Wochenende zu einer #liegenddemo in Eurer Nähe. Macht Aufmerksam, verteilt den Link, schickt Freunde, Verwandte, Kollegen!
-
Bitte geht am kommenden Wochenende zu einer #liegenddemo in Eurer Nähe. Macht Aufmerksam, verteilt den Link, schickt Freunde, Verwandte, Kollegen!
-
Bitte geht am kommenden Wochenende zu einer #liegenddemo in Eurer Nähe. Macht Aufmerksam, verteilt den Link, schickt Freunde, Verwandte, Kollegen!
-
Bitte geht am kommenden Wochenende zu einer #liegenddemo in Eurer Nähe. Macht Aufmerksam, verteilt den Link, schickt Freunde, Verwandte, Kollegen!
-
Bitte geht am kommenden Wochenende zu einer #liegenddemo in Eurer Nähe. Macht Aufmerksam, verteilt den Link, schickt Freunde, Verwandte, Kollegen!
-
The father of someone severely affected by ME/CFS recorded a song and produced a video to go with it.
I couldn’t watch the whole video (it was too exhausting, unfortunately), but the clips were both humorous, sad, and hopeful.
Very well done!🩵
Flowers for Jonas:
https://youtu.be/Qz1fYbYSZm8?si=NhkOnSEjJKT28v_z
He welcomes donations, for example to the Open Medicine Foundation:
-
The father of someone severely affected by ME/CFS recorded a song and produced a video to go with it.
I couldn’t watch the whole video (it was too exhausting, unfortunately), but the clips were both humorous, sad, and hopeful.
Very well done!🩵
Flowers for Jonas:
https://youtu.be/Qz1fYbYSZm8?si=NhkOnSEjJKT28v_z
He welcomes donations, for example to the Open Medicine Foundation:
-
The father of someone severely affected by ME/CFS recorded a song and produced a video to go with it.
I couldn’t watch the whole video (it was too exhausting, unfortunately), but the clips were both humorous, sad, and hopeful.
Very well done!🩵
Flowers for Jonas:
https://youtu.be/Qz1fYbYSZm8?si=NhkOnSEjJKT28v_z
He welcomes donations, for example to the Open Medicine Foundation:
-
The father of someone severely affected by ME/CFS recorded a song and produced a video to go with it.
I couldn’t watch the whole video (it was too exhausting, unfortunately), but the clips were both humorous, sad, and hopeful.
Very well done!🩵
Flowers for Jonas:
https://youtu.be/Qz1fYbYSZm8?si=NhkOnSEjJKT28v_z
He welcomes donations, for example to the Open Medicine Foundation:
-
The father of someone severely affected by ME/CFS recorded a song and produced a video to go with it.
I couldn’t watch the whole video (it was too exhausting, unfortunately), but the clips were both humorous, sad, and hopeful.
Very well done!🩵
Flowers for Jonas:
https://youtu.be/Qz1fYbYSZm8?si=NhkOnSEjJKT28v_z
He welcomes donations, for example to the Open Medicine Foundation: