#severeme — Public Fediverse posts

Ror Preston:

Whilst we know the average quality of life for ME/CFS patients is amongst the very worst for chronic diseases, I think in advocacy the true disaster that is severe / very severe ME has been significantly underplayed.

New @wecrunchme visual on this topic 💙

Link to this new visual on the CrunchME website, along with notes on sources and methodology:

https://crunchme.org/visuals/2026-09-19-01/me-cfs-quality-of-life-by-disability-severity/

#SevereME #MEcfs #PwME #CFS #MyalgicEncephalomyelitis @mecfs

Ror Preston:

Whilst we know the average quality of life for ME/CFS patients is amongst the very worst for chronic diseases, I think in advocacy the true disaster that is severe / very severe ME has been significantly underplayed.

New @wecrunchme visual on this topic 💙

Link to this new visual on the CrunchME website, along with notes on sources and methodology:

https://crunchme.org/visuals/2026-09-19-01/me-cfs-quality-of-life-by-disability-severity/

#SevereME #MEcfs #PwME #CFS #MyalgicEncephalomyelitis @mecfs

Ror Preston:

Whilst we know the average quality of life for ME/CFS patients is amongst the very worst for chronic diseases, I think in advocacy the true disaster that is severe / very severe ME has been significantly underplayed.

New @wecrunchme visual on this topic 💙

Link to this new visual on the CrunchME website, along with notes on sources and methodology:

https://crunchme.org/visuals/2026-09-19-01/me-cfs-quality-of-life-by-disability-severity/

#SevereME #MEcfs #PwME #CFS #MyalgicEncephalomyelitis @mecfs

Ror Preston:

Whilst we know the average quality of life for ME/CFS patients is amongst the very worst for chronic diseases, I think in advocacy the true disaster that is severe / very severe ME has been significantly underplayed.

New @wecrunchme visual on this topic 💙

Link to this new visual on the CrunchME website, along with notes on sources and methodology:

https://crunchme.org/visuals/2026-09-19-01/me-cfs-quality-of-life-by-disability-severity/

#SevereME #MEcfs #PwME #CFS #MyalgicEncephalomyelitis @mecfs

Ror Preston:

Whilst we know the average quality of life for ME/CFS patients is amongst the very worst for chronic diseases, I think in advocacy the true disaster that is severe / very severe ME has been significantly underplayed.

New @wecrunchme visual on this topic 💙

Link to this new visual on the CrunchME website, along with notes on sources and methodology:

https://crunchme.org/visuals/2026-09-19-01/me-cfs-quality-of-life-by-disability-severity/

#SevereME #MEcfs #PwME #CFS #MyalgicEncephalomyelitis @mecfs