#severeme — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #severeme, aggregated by home.social.
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Extract from "Understanding ME/CFS An Introduction to a Complex Illness" (August 2026) by Dr med Michaela Bauer
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #SevereME
@mecfs -
#MECFS
#SevereME
#POTS
#MillionsMissing#SaveLizNevra current situation:
- urgently requires a safe, accessible, exposure-free apartment
- finding a trustworthy personal assistance- environment flares her symptoms & has caused her health to deteriorate again
- managing multiple important tasks
- coping with severe symptoms & exhaustion/ causing #PEMFunds for:
- essential living costs
- med. appointments
- investigations
- treatment
- advocacy
- care coordination -
I just tweeted - the orgs are not on Mastodon as far as I know:
“Housemate made a rare visit home during the working-day, so I got a snack - a buttered hot-cross bun with an espresso. 😊
#SocialCareCrisis #Bedridden #SevereME
Only average 1 meal/day usually.
@CareQualityComm @TraffordCouncil @gmpolice “
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Over the past few days I went 26 hours without a meal, at which point ex-boyf stepped in, came over and cooked some pasta. Then another 49 hours without a meal. In the past 13 weeks I have averaged exactly one day/week with no food. I ate 1 meal per day on average. #SocialCareCrisis #pwME #bedridden #SevereME #Malnutrition #BloodSugar #Dehydration
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Since #carers stopped coming in early Dec., I leave my bed even more rarely as donæ feel safe if no-one around or due to be. Had my first #fall of 2023 en route to wc. No damage done. Just a tad shaken. 🙏🏻
#pwME #pwFM #pwOA
#MyalgicEncephalomyelitis #SevereME
#Fibromyalgia
#OsteoArthritis
