#severeme — Public Fediverse posts

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Extract from "Understanding ME/CFS An Introduction to a Complex Illness" (August 2026) by Dr med Michaela Bauer

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #SevereME
@mecfs

@Lalelilolu

#mecfs #spoonie #severeme #millionsmissing #disabilityrepresentation

@Lalelilolu

#mecfs #spoonie #severeme #millionsmissing #disabilityrepresentation

@Lalelilolu

#mecfs #spoonie #severeme #millionsmissing #disabilityrepresentation

@Lalelilolu

#mecfs #spoonie #severeme #millionsmissing #disabilityrepresentation

Therapy via Messaging

https://chroniclivingtherapy.com/insights-text-based-therapy/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MEcfs #Spoonies #PwME #Spoonie #SevereME #LongCovid #CFS #chronicillness
@mecfs @longcovid #POTS @pots

#Liegenddemo #MECFS #cureMECFS #LongCovid #PostCovid #EBV #Influenza #Demonstration #severeME #severeMEAwarnessDay #Awarness #Trauergang #Liegenddemo2025 #MEAwarness #München #Karlsplatz @liegenddemo.bsky.social

Dr Nigel Speight Talk on "ME/CFS in Children and Adults: An Overview" (2024)

YouTube link:
https://www.youtube.com/watch?v=Qi8uzGbHFpA

It would be great if more people could subscribe to our channel

#MyalgicEncephalomyelitis #SevereME #MEcfs #MyalgicE #PwME #TogetherWeAreStronger @mecfs @severeme
#SevereME #SevereMECFS
#SevereCFS #VerySevereME

I have signed up to #OpenMedicineFoundation‘s volunteer research-participant register, #StudyME , whereby scientists can locate potential contributors. The sign-up takes approximately five minutes.

I have #SevereME and the last page of text was the most difficult & time-consuming section for me to follow.

#InternationalMEAwarenessMonth #MEAwarenessMonth
#pwME #MyalgicEncephalomyelitis #MECFS
#pwFM #Fibromyalgia
#PVFS #PostViralFatigueSyndrome

https://www.omf.ngo/studyme/

@jlthoughts I am inter alia a #pwME #SevereME & #pwFM and I have a blog. I try to publish several blog-posts each year as energy & cognition permit. Please share the link to your blog - once published - as I am happy to share. 🙏🏻🌈💕🤓💙

Over several weeks I composed a letter to the social-worker who has taken over my case, as they wanted to know about my abilities to communicate. I have now published the (redacted) letter on my blog, entitled “Communications Difficulties with Severe #MyalgicEncephalomyelitis” as it may be useful to other #pwME / #pwFM. #SevereME

Link to my blog on #Blogger :

https://crippledqueeranglo-europeanranter.blogspot.com/2023/02/communications-difficulties-with-severe.html

#pwME #pwFM #pwOA
#SevereME

Do other folks experience some pains as sounds? For me some hum, others have a high-pitched whistling-sound.

#Pain #ChronicPain

Since #carers stopped coming in early Dec., I leave my bed even more rarely as donæ feel safe if no-one around or due to be. Had my first #fall of 2023 en route to wc. No damage done. Just a tad shaken. 🙏🏻

#pwME #pwFM #pwOA
#MyalgicEncephalomyelitis #SevereME
#Fibromyalgia
#OsteoArthritis

#SocialCare #SocialCareCrisis

#Pain #ChronicPain #ChronicIllness
#pwME #MyalgicEncephalomyelitis #SevereME
#pwFM #Fibromyalgia
#pwOA #OsteoArthritis #Arthritis

[Sorry due to #Disabilities, incl. above, I cannæ type text from meme.]