#severeme — Public Fediverse posts

“Trial By Error: Newly Knighted Anil van der Zee @anilvanderzee Discusses his Royal Honor” By David Tuller

https://virology.ws/2026/09/06/trial-by-error-newly-knighted-anil-van-der-zee-discusses-his-royal-honor/

#MEcfs #PwME #severeme @mecfs

“Trial By Error: Newly Knighted Anil van der Zee @anilvanderzee Discusses his Royal Honor” By David Tuller

https://virology.ws/2026/09/06/trial-by-error-newly-knighted-anil-van-der-zee-discusses-his-royal-honor/

#MEcfs #PwME #severeme @mecfs

“Trial By Error: Newly Knighted Anil van der Zee @anilvanderzee Discusses his Royal Honor” By David Tuller

https://virology.ws/2026/09/06/trial-by-error-newly-knighted-anil-van-der-zee-discusses-his-royal-honor/

#MEcfs #PwME #severeme @mecfs

“Trial By Error: Newly Knighted Anil van der Zee @anilvanderzee Discusses his Royal Honor” By David Tuller

https://virology.ws/2026/09/06/trial-by-error-newly-knighted-anil-van-der-zee-discusses-his-royal-honor/

#MEcfs #PwME #severeme @mecfs

“Trial By Error: Newly Knighted Anil van der Zee @anilvanderzee Discusses his Royal Honor” By David Tuller

https://virology.ws/2026/09/06/trial-by-error-newly-knighted-anil-van-der-zee-discusses-his-royal-honor/

#MEcfs #PwME #severeme @mecfs

ME/CFS Tube Feeding Survey Report by the British Association of Clinicians in ME/CFS

https://meassociation.org.uk/wp-content/uploads/2026/09/BACME-MECFS-Tube-Feeding-Survey-Report-Sept-2026.pdf

https://s4me.info/threads/uk-bacme-tube-feeding-survey-2025-closes-30th-september-2025.45619/post-718718

Screenshot from latest Science for ME weekly update

#MEcfs #SevereME #PwME #CFS @mecfs

RE: https://mastodon.social/@NichtGenesen/117031541066177194

#Liegenddemo am 07. oder 08.08.für schwer von #mecfs Betroffene

#SevereME

#Berlin
#Oldenburg
#Köln
#Frankfurtammain
#Regensburg
#Essen
#Hamburg
#Stuttgart
#Göttingen

“People have no idea what Severe ME is like” – Nevra, Pakistan

Unfortunately, Nevra's condition keeps getting worse. If you can, please support her GoFundMe campaign.
Thanks!

🩵 https://gofund.me/919653851

Articles about Nevra:

December 2025
https://thesicktimes.org/2025/12/15/medically-neglected-and-structurally-erased-international-network-appeals-for-me-advocate-nevra-elis/

November 2024
https://www.thecanary.co/global/world-analysis/2024/11/07/nevra-mecfs-pakistan/

April 2024
https://worldmealliance.org/2024/04/people-have-no-idea-what-severe-me-is-like-nevra-pakistan/

#GlobalVoiceForME
#Pakistan
#SevereME
#MECFS
#disability
#POTS
#MCAS
#PMDD
#OCD
#Hypermobility
#endometriosis
#TMJdisorder
#CCI
#domesticviolence

Our latest News in Brief post has headlines and links to further reading for #MECFS and #LongCovid news, advocacy, and research for the week of Aug 4 - 10.

Don't miss the news about the #DecodeME initial DNA results!

There's also news about #SevereME Day, Aug 8.

https://www.s4me.info/threads/news-in-brief-august-2025.45582/#post-632266

@mecfs

11/

#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day

&

May is #MECFSawarenessmonth

Please help by reposting and/or liking this 12-minute documentary which features Whitney Dafoe & others

https://www.youtube.com/watch?v=9_HwOUiImvw

#Day11

#PwME #SevereME #SevereMECFS
#mecfs #VerySevereME
@mecfs

A veces se hace duro ver tanta vida fuera, dejando pasar la mía entre estas paredes.
Y a la vez agradecer poder estar al día de cosas que nunca vería o sabría si no fuera por una pantalla.
Hace años el aislamiento debería ser aún más duro.

#EncefalomielitisMialgicaSevera #EncefalomielitisMialgica #MEcfs #EMsfc #SFCem #severeME #encamada #confinamiento #pacientes #cronicos #bedbound #housebound #aislamiento #isolation #soledad #lonely #Lonelines #autoimmunes #Metabólicas #autoimmune