#severeme — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #severeme, aggregated by home.social.
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“Trial By Error: Newly Knighted Anil van der Zee @anilvanderzee Discusses his Royal Honor” By David Tuller
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“Trial By Error: Newly Knighted Anil van der Zee @anilvanderzee Discusses his Royal Honor” By David Tuller
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“Trial By Error: Newly Knighted Anil van der Zee @anilvanderzee Discusses his Royal Honor” By David Tuller
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“Trial By Error: Newly Knighted Anil van der Zee @anilvanderzee Discusses his Royal Honor” By David Tuller
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“Trial By Error: Newly Knighted Anil van der Zee @anilvanderzee Discusses his Royal Honor” By David Tuller
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ME/CFS Tube Feeding Survey Report by the British Association of Clinicians in ME/CFS
Screenshot from latest Science for ME weekly update
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ME/CFS Tube Feeding Survey Report by the British Association of Clinicians in ME/CFS
Screenshot from latest Science for ME weekly update
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ME/CFS Tube Feeding Survey Report by the British Association of Clinicians in ME/CFS
Screenshot from latest Science for ME weekly update
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ME/CFS Tube Feeding Survey Report by the British Association of Clinicians in ME/CFS
Screenshot from latest Science for ME weekly update
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ME/CFS Tube Feeding Survey Report by the British Association of Clinicians in ME/CFS
Screenshot from latest Science for ME weekly update
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6/
“Listening also means paying attention to the environment. Light, sound, touch, temperature, conversation, upright positioning, movement, even other people being in or near the room – all of it can be a physiologic stressor. The environment itself can determine whether a healthcare visit is accessible or harmful.”
#severeme #mecfs #pwme #cfs
@mecfs -
6/
“Listening also means paying attention to the environment. Light, sound, touch, temperature, conversation, upright positioning, movement, even other people being in or near the room – all of it can be a physiologic stressor. The environment itself can determine whether a healthcare visit is accessible or harmful.”
#severeme #mecfs #pwme #cfs
@mecfs -
6/
“Listening also means paying attention to the environment. Light, sound, touch, temperature, conversation, upright positioning, movement, even other people being in or near the room – all of it can be a physiologic stressor. The environment itself can determine whether a healthcare visit is accessible or harmful.”
#severeme #mecfs #pwme #cfs
@mecfs -
6/
“Listening also means paying attention to the environment. Light, sound, touch, temperature, conversation, upright positioning, movement, even other people being in or near the room – all of it can be a physiologic stressor. The environment itself can determine whether a healthcare visit is accessible or harmful.”
#severeme #mecfs #pwme #cfs
@mecfs -
6/
“Listening also means paying attention to the environment. Light, sound, touch, temperature, conversation, upright positioning, movement, even other people being in or near the room – all of it can be a physiologic stressor. The environment itself can determine whether a healthcare visit is accessible or harmful.”
#severeme #mecfs #pwme #cfs
@mecfs -
3/
“care should be built around what a person’s body can actually tolerate, not around what we’ve been trained to expect a patient to tolerate.” -
3/
“care should be built around what a person’s body can actually tolerate, not around what we’ve been trained to expect a patient to tolerate.” -
3/
“care should be built around what a person’s body can actually tolerate, not around what we’ve been trained to expect a patient to tolerate.” -
3/
“care should be built around what a person’s body can actually tolerate, not around what we’ve been trained to expect a patient to tolerate.” -
3/
“care should be built around what a person’s body can actually tolerate, not around what we’ve been trained to expect a patient to tolerate.” -
I thought this was very good (as usual from Amy Mooney). Notice the audio version.
"Listen. Believe. Do No Harm: An occupational therapist’s guidance for caring well for people with severe ME/CFS"
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I thought this was very good (as usual from Amy Mooney). Notice the audio version.
"Listen. Believe. Do No Harm: An occupational therapist’s guidance for caring well for people with severe ME/CFS"
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I thought this was very good (as usual from Amy Mooney). Notice the audio version.
"Listen. Believe. Do No Harm: An occupational therapist’s guidance for caring well for people with severe ME/CFS"
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I thought this was very good (as usual from Amy Mooney). Notice the audio version.
"Listen. Believe. Do No Harm: An occupational therapist’s guidance for caring well for people with severe ME/CFS"
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I thought this was very good (as usual from Amy Mooney). Notice the audio version.
"Listen. Believe. Do No Harm: An occupational therapist’s guidance for caring well for people with severe ME/CFS"
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“Accelerating Severe ME/CFS Research”
(August 6, 2026) by the Solve ME/CFS Initiative -
“Accelerating Severe ME/CFS Research”
(August 6, 2026) by the Solve ME/CFS Initiative -
“Accelerating Severe ME/CFS Research”
(August 6, 2026) by the Solve ME/CFS Initiative -
“Accelerating Severe ME/CFS Research”
(August 6, 2026) by the Solve ME/CFS Initiative -
“Accelerating Severe ME/CFS Research”
(August 6, 2026) by the Solve ME/CFS Initiative -
When My Myalgic Encephalomyelitis Was Severe
Lisa Marie, a member of the WIMEL Writers group, shares an excerpt from her essay "When My Myalgic Encephalomyelitis Was Severe."https://www.youtube.com/watch?v=sj8FuSFMchg
Screenshot from latest Science for ME weekly update
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When My Myalgic Encephalomyelitis Was Severe
Lisa Marie, a member of the WIMEL Writers group, shares an excerpt from her essay "When My Myalgic Encephalomyelitis Was Severe."https://www.youtube.com/watch?v=sj8FuSFMchg
Screenshot from latest Science for ME weekly update
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When My Myalgic Encephalomyelitis Was Severe
Lisa Marie, a member of the WIMEL Writers group, shares an excerpt from her essay "When My Myalgic Encephalomyelitis Was Severe."https://www.youtube.com/watch?v=sj8FuSFMchg
Screenshot from latest Science for ME weekly update
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When My Myalgic Encephalomyelitis Was Severe
Lisa Marie, a member of the WIMEL Writers group, shares an excerpt from her essay "When My Myalgic Encephalomyelitis Was Severe."https://www.youtube.com/watch?v=sj8FuSFMchg
Screenshot from latest Science for ME weekly update
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When My Myalgic Encephalomyelitis Was Severe
Lisa Marie, a member of the WIMEL Writers group, shares an excerpt from her essay "When My Myalgic Encephalomyelitis Was Severe."https://www.youtube.com/watch?v=sj8FuSFMchg
Screenshot from latest Science for ME weekly update
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"Severe-Very Severe Myalgic Encephalomyelitis: What GPs need to Know" 60-second Guide
whānau means extended family
https://anzmes.org.nz/world-me-day/severe-me-day/severe-me-day-2026/
#MyalgicEncephalomyelitis #MEcfs #PwME #CFS #ME #MyalgicE
@mecfs
#SevereME -
"Severe-Very Severe Myalgic Encephalomyelitis: What GPs need to Know" 60-second Guide
whānau means extended family
https://anzmes.org.nz/world-me-day/severe-me-day/severe-me-day-2026/
#MyalgicEncephalomyelitis #MEcfs #PwME #CFS #ME #MyalgicE
@mecfs
#SevereME -
"Severe-Very Severe Myalgic Encephalomyelitis: What GPs need to Know" 60-second Guide
whānau means extended family
https://anzmes.org.nz/world-me-day/severe-me-day/severe-me-day-2026/
#MyalgicEncephalomyelitis #MEcfs #PwME #CFS #ME #MyalgicE
@mecfs
#SevereME -
"Severe-Very Severe Myalgic Encephalomyelitis: What GPs need to Know" 60-second Guide
whānau means extended family
https://anzmes.org.nz/world-me-day/severe-me-day/severe-me-day-2026/
#MyalgicEncephalomyelitis #MEcfs #PwME #CFS #ME #MyalgicE
@mecfs
#SevereME -
"Severe-Very Severe Myalgic Encephalomyelitis: What GPs need to Know" 60-second Guide
whānau means extended family
https://anzmes.org.nz/world-me-day/severe-me-day/severe-me-day-2026/
#MyalgicEncephalomyelitis #MEcfs #PwME #CFS #ME #MyalgicE
@mecfs
#SevereME