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#severeme — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #severeme, aggregated by home.social.

  1. 6/

    “Listening also means paying attention to the environment. Light, sound, touch, temperature, conversation, upright positioning, movement, even other people being in or near the room – all of it can be a physiologic stressor. The environment itself can determine whether a healthcare visit is accessible or harmful.”
    #severeme #mecfs #pwme #cfs
    @mecfs

  2. 6/

    “Listening also means paying attention to the environment. Light, sound, touch, temperature, conversation, upright positioning, movement, even other people being in or near the room – all of it can be a physiologic stressor. The environment itself can determine whether a healthcare visit is accessible or harmful.”
    #severeme #mecfs #pwme #cfs
    @mecfs

  3. 6/

    “Listening also means paying attention to the environment. Light, sound, touch, temperature, conversation, upright positioning, movement, even other people being in or near the room – all of it can be a physiologic stressor. The environment itself can determine whether a healthcare visit is accessible or harmful.”
    #severeme #mecfs #pwme #cfs
    @mecfs

  4. 6/

    “Listening also means paying attention to the environment. Light, sound, touch, temperature, conversation, upright positioning, movement, even other people being in or near the room – all of it can be a physiologic stressor. The environment itself can determine whether a healthcare visit is accessible or harmful.”
    #severeme #mecfs #pwme #cfs
    @mecfs

  5. 6/

    “Listening also means paying attention to the environment. Light, sound, touch, temperature, conversation, upright positioning, movement, even other people being in or near the room – all of it can be a physiologic stressor. The environment itself can determine whether a healthcare visit is accessible or harmful.”
    #severeme #mecfs #pwme #cfs
    @mecfs

  6. 4/

    Bateman Horne Center on
    “Listen. Believe. Do No Harm.”

    #SevereME #PwME #CFS #MEcfs
    @mecfs

  7. 4/

    Bateman Horne Center on
    “Listen. Believe. Do No Harm.”

    #SevereME #PwME #CFS #MEcfs
    @mecfs

  8. 4/

    Bateman Horne Center on
    “Listen. Believe. Do No Harm.”

    #SevereME #PwME #CFS #MEcfs
    @mecfs

  9. 4/

    Bateman Horne Center on
    “Listen. Believe. Do No Harm.”

    #SevereME #PwME #CFS #MEcfs
    @mecfs

  10. 4/

    Bateman Horne Center on
    “Listen. Believe. Do No Harm.”

    #SevereME #PwME #CFS #MEcfs
    @mecfs

  11. 3/
    “care should be built around what a person’s body can actually tolerate, not around what we’ve been trained to expect a patient to tolerate.”

    #SevereME #MEcfs #PwME #CFS #SevereCFS

    @mecfs

  12. 3/
    “care should be built around what a person’s body can actually tolerate, not around what we’ve been trained to expect a patient to tolerate.”

    #SevereME #MEcfs #PwME #CFS #SevereCFS

    @mecfs

  13. 3/
    “care should be built around what a person’s body can actually tolerate, not around what we’ve been trained to expect a patient to tolerate.”

    #SevereME #MEcfs #PwME #CFS #SevereCFS

    @mecfs

  14. 3/
    “care should be built around what a person’s body can actually tolerate, not around what we’ve been trained to expect a patient to tolerate.”

    #SevereME #MEcfs #PwME #CFS #SevereCFS

    @mecfs

  15. 3/
    “care should be built around what a person’s body can actually tolerate, not around what we’ve been trained to expect a patient to tolerate.”

    #SevereME #MEcfs #PwME #CFS #SevereCFS

    @mecfs

  16. I thought this was very good (as usual from Amy Mooney). Notice the audio version.

    "Listen. Believe. Do No Harm: An occupational therapist’s guidance for caring well for people with severe ME/CFS"

    batemanhornecenter.org/listen_

    #SevereME #MEcfs #PwME #CFS #SevereMECFS @mecfs

  17. I thought this was very good (as usual from Amy Mooney). Notice the audio version.

    "Listen. Believe. Do No Harm: An occupational therapist’s guidance for caring well for people with severe ME/CFS"

    batemanhornecenter.org/listen_

    #SevereME #MEcfs #PwME #CFS #SevereMECFS @mecfs

  18. I thought this was very good (as usual from Amy Mooney). Notice the audio version.

    "Listen. Believe. Do No Harm: An occupational therapist’s guidance for caring well for people with severe ME/CFS"

    batemanhornecenter.org/listen_

    #SevereME #MEcfs #PwME #CFS #SevereMECFS @mecfs

  19. I thought this was very good (as usual from Amy Mooney). Notice the audio version.

    "Listen. Believe. Do No Harm: An occupational therapist’s guidance for caring well for people with severe ME/CFS"

    batemanhornecenter.org/listen_

    #SevereME #MEcfs #PwME #CFS #SevereMECFS @mecfs

  20. I thought this was very good (as usual from Amy Mooney). Notice the audio version.

    "Listen. Believe. Do No Harm: An occupational therapist’s guidance for caring well for people with severe ME/CFS"

    batemanhornecenter.org/listen_

    #SevereME #MEcfs #PwME #CFS #SevereMECFS @mecfs

  21. CW: Spende / Severe ME

    Anlässlich des heutigen ME Awareness Day könntet ihr ja, sofern ihr könnt, was an Darya spenden, die unter schwerstem ME leidet und weiterhin finanzielle Hilfe gebrauchen könnte.

    Geht auch via Paypal: paypal.com/paypalme/JBuckley485

    gogetfunding.com/help-daryna-s

    #Spendenaufruf #SevereME

  22. A veces se hace duro ver tanta vida fuera, dejando pasar la mía entre estas paredes.
    Y a la vez agradecer poder estar al día de cosas que nunca vería o sabría si no fuera por una pantalla.
    Hace años el aislamiento debería ser aún más duro.

    #EncefalomielitisMialgicaSevera #EncefalomielitisMialgica #MEcfs #EMsfc #SFCem #severeME #encamada #confinamiento #pacientes #cronicos #bedbound #housebound #aislamiento #isolation #soledad #lonely #Lonelines #autoimmunes #Metabólicas #autoimmune