#severeme — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #severeme, aggregated by home.social.
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Extract from "Understanding ME/CFS An Introduction to a Complex Illness" (August 2026) by Dr med Michaela Bauer
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #SevereME
@mecfs -
Therapy via Messaging
https://chroniclivingtherapy.com/insights-text-based-therapy/
Screenshot from latest edition of the Chronic Living Therapy email bulletin
#MEcfs #Spoonies #PwME #Spoonie #SevereME #LongCovid #CFS #chronicillness
@mecfs @longcovid #POTS @pots -
Dr Nigel Speight Talk on "ME/CFS in Children and Adults: An Overview" (2024)
YouTube link:
https://www.youtube.com/watch?v=Qi8uzGbHFpAIt would be great if more people could subscribe to our channel
#MyalgicEncephalomyelitis #SevereME #MEcfs #MyalgicE #PwME #TogetherWeAreStronger @mecfs @severeme
#SevereME #SevereMECFS
#SevereCFS #VerySevereME -
I have signed up to #OpenMedicineFoundation‘s volunteer research-participant register, #StudyME , whereby scientists can locate potential contributors. The sign-up takes approximately five minutes.
I have #SevereME and the last page of text was the most difficult & time-consuming section for me to follow.
#InternationalMEAwarenessMonth #MEAwarenessMonth
#pwME #MyalgicEncephalomyelitis #MECFS
#pwFM #Fibromyalgia
#PVFS #PostViralFatigueSyndrome -
@jlthoughts I am inter alia a #pwME #SevereME & #pwFM and I have a blog. I try to publish several blog-posts each year as energy & cognition permit. Please share the link to your blog - once published - as I am happy to share. 🙏🏻🌈💕🤓💙
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Over several weeks I composed a letter to the social-worker who has taken over my case, as they wanted to know about my abilities to communicate. I have now published the (redacted) letter on my blog, entitled “Communications Difficulties with Severe #MyalgicEncephalomyelitis” as it may be useful to other #pwME / #pwFM. #SevereME
Link to my blog on #Blogger :
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Do other folks experience some pains as sounds? For me some hum, others have a high-pitched whistling-sound.
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Since #carers stopped coming in early Dec., I leave my bed even more rarely as donæ feel safe if no-one around or due to be. Had my first #fall of 2023 en route to wc. No damage done. Just a tad shaken. 🙏🏻
#pwME #pwFM #pwOA
#MyalgicEncephalomyelitis #SevereME
#Fibromyalgia
#OsteoArthritis -
#Pain #ChronicPain #ChronicIllness
#pwME #MyalgicEncephalomyelitis #SevereME
#pwFM #Fibromyalgia
#pwOA #OsteoArthritis #Arthritis[Sorry due to #Disabilities, incl. above, I cannæ type text from meme.]