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#severeme — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #severeme, aggregated by home.social.

  1. 6/

    “Listening also means paying attention to the environment. Light, sound, touch, temperature, conversation, upright positioning, movement, even other people being in or near the room – all of it can be a physiologic stressor. The environment itself can determine whether a healthcare visit is accessible or harmful.”
    #severeme #mecfs #pwme #cfs
    @mecfs

  2. 4/

    Bateman Horne Center on
    “Listen. Believe. Do No Harm.”

    #SevereME #PwME #CFS #MEcfs
    @mecfs

  3. 4/

    Bateman Horne Center on
    “Listen. Believe. Do No Harm.”

    #SevereME #PwME #CFS #MEcfs
    @mecfs

  4. 4/

    Bateman Horne Center on
    “Listen. Believe. Do No Harm.”

    #SevereME #PwME #CFS #MEcfs
    @mecfs

  5. 4/

    Bateman Horne Center on
    “Listen. Believe. Do No Harm.”

    #SevereME #PwME #CFS #MEcfs
    @mecfs

  6. 4/

    Bateman Horne Center on
    “Listen. Believe. Do No Harm.”

    #SevereME #PwME #CFS #MEcfs
    @mecfs

  7. 3/
    “care should be built around what a person’s body can actually tolerate, not around what we’ve been trained to expect a patient to tolerate.”

    #SevereME #MEcfs #PwME #CFS #SevereCFS

    @mecfs

  8. 3/
    “care should be built around what a person’s body can actually tolerate, not around what we’ve been trained to expect a patient to tolerate.”

    #SevereME #MEcfs #PwME #CFS #SevereCFS

    @mecfs

  9. 3/
    “care should be built around what a person’s body can actually tolerate, not around what we’ve been trained to expect a patient to tolerate.”

    #SevereME #MEcfs #PwME #CFS #SevereCFS

    @mecfs

  10. 3/
    “care should be built around what a person’s body can actually tolerate, not around what we’ve been trained to expect a patient to tolerate.”

    #SevereME #MEcfs #PwME #CFS #SevereCFS

    @mecfs

  11. 3/
    “care should be built around what a person’s body can actually tolerate, not around what we’ve been trained to expect a patient to tolerate.”

    #SevereME #MEcfs #PwME #CFS #SevereCFS

    @mecfs

  12. I thought this was very good (as usual from Amy Mooney). Notice the audio version.

    "Listen. Believe. Do No Harm: An occupational therapist’s guidance for caring well for people with severe ME/CFS"

    batemanhornecenter.org/listen_

    #SevereME #MEcfs #PwME #CFS #SevereMECFS @mecfs

  13. I thought this was very good (as usual from Amy Mooney). Notice the audio version.

    "Listen. Believe. Do No Harm: An occupational therapist’s guidance for caring well for people with severe ME/CFS"

    batemanhornecenter.org/listen_

    #SevereME #MEcfs #PwME #CFS #SevereMECFS @mecfs

  14. I thought this was very good (as usual from Amy Mooney). Notice the audio version.

    "Listen. Believe. Do No Harm: An occupational therapist’s guidance for caring well for people with severe ME/CFS"

    batemanhornecenter.org/listen_

    #SevereME #MEcfs #PwME #CFS #SevereMECFS @mecfs

  15. I thought this was very good (as usual from Amy Mooney). Notice the audio version.

    "Listen. Believe. Do No Harm: An occupational therapist’s guidance for caring well for people with severe ME/CFS"

    batemanhornecenter.org/listen_

    #SevereME #MEcfs #PwME #CFS #SevereMECFS @mecfs

  16. I thought this was very good (as usual from Amy Mooney). Notice the audio version.

    "Listen. Believe. Do No Harm: An occupational therapist’s guidance for caring well for people with severe ME/CFS"

    batemanhornecenter.org/listen_

    #SevereME #MEcfs #PwME #CFS #SevereMECFS @mecfs

  17. A veces se hace duro ver tanta vida fuera, dejando pasar la mía entre estas paredes.
    Y a la vez agradecer poder estar al día de cosas que nunca vería o sabría si no fuera por una pantalla.
    Hace años el aislamiento debería ser aún más duro.

    #EncefalomielitisMialgicaSevera #EncefalomielitisMialgica #MEcfs #EMsfc #SFCem #severeME #encamada #confinamiento #pacientes #cronicos #bedbound #housebound #aislamiento #isolation #soledad #lonely #Lonelines #autoimmunes #Metabólicas #autoimmune