#severemecfs — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #severemecfs, aggregated by home.social.
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I thought this was very good (as usual from Amy Mooney). Notice the audio version.
"Listen. Believe. Do No Harm: An occupational therapist’s guidance for caring well for people with severe ME/CFS"
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Wales Petition: Take urgent action so those with Severe Myalgic Encephalomyelitis in Wales are no longer left without vital medical care
https://petitions.senedd.wales/petitions/247069
Screenshot from latest Science for ME weekly update
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Science for ME @s4me Fact Sheet 4: Management of severe and very severe ME/CFS
https://s4me.info/docs/Management%20of%20severe%20and%20very%20severe%20MECFS.pdf
https://s4me.info/threads/fact-sheet-4-management-of-severe-and-very-severe-me-cfs.51793/
Screenshot from latest Science for ME weekly update
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ME Research UK:
An article entitled “Guidance on Home-Based Care for People with Severe ME/CFS: A Transdisciplinary Expert Statement” has been published.
Read more: https://tinyurl.com/yc264wbm
#severeme #verysevereme #severemecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs
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From #MEAction for Severe ME Day (Aug. 8)
"Honoring Severe ME Day & Sharing our Severe ME Artists Project 2026"
https://www.meaction.net/post/honoring-severe-me-day-sharing-our-severe-me-artists-project-2026
"#MEAction is proud to share the Severe ME Artists Project 2026!
... over 100 of you submitted photos, drawings, writing, and videos of your work! We debuted this project in 2021 and five years later we continue to be humbled and honored to bring you the work of the Severe ME community"
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Today is Severe ME Day (August 8)
Here's a video posted by Solve ME last year:
"Hollis Mickey on Pacing with Severe M.E."
https://www.youtube.com/watch?v=5LUox41bP94
"Hollis Mickey shares her personal experience with pacing and Severe M.E. -- including some of the less obvious types of exertion to be considered when pacing."