#pacing — Public Fediverse posts

Ik kreeg deze tip van @MargotvdBerg : Pacely, een app die je helpt om te pacen. Voor bijvoorbeeld mensen met post-covid of ME.

Wat op de site staat, ziet er al goed en interessant uit. Ik ga 'm proberen:

https://pacely.nl/

#postcovid #LongCovid #pacing

Nieuwe app bij de garmin LongCovid pacing app: History!
Pakt de data en geeft je dag inzicht en grafieken met interval van een week tot max 6 weken.

Developer info
https://sites.google.com/view/pacing-with-garmin/

#pacing #longcovid #garmin
@longcovid @mecfs

Er, I also have a side hustle providing feedback to #writers on their work. I focus on #voice, #narrative, #dialog, and #pacing, among other things. Need somebody to read your latest #shortstory, or #memoir, or #flash fiction? I'm your guy.

#writer #editor #reader

Also you can download this simple website to use offline! Unlike planet-killing AI / LLM plagiarism machines.

https://youfeellikeshit.com/

#ND #NeuroDivergent #NeuroDiverse #SelfCare #MentalIllness #MentalHealth #Healthcare #PhysicalHealth #Hygiene #PersonalHygiene #Nutrition #Movement #Stretch #UnclenchYourJaw #Exercise #Water #Drink #GoDrinkWater #Liquid #Fluid #Juice #ADL #ActivitiesOfDailyLiving #Living #Mobility #MobilityAides #Health #Disability #Disabled #Disabilities #Spoonie #SpoonTheory #ChronicallyIll #ChronicIllness #ChronicWellness #Pacing #PaceYourself

Also you can download this simple website to use offline! Unlike planet-killing AI / LLM plagiarism machines.

https://youfeellikeshit.com/

#ND #NeuroDivergent #NeuroDiverse #SelfCare #MentalIllness #MentalHealth #Healthcare #PhysicalHealth #Hygiene #PersonalHygiene #Nutrition #Movement #Stretch #UnclenchYourJaw #Exercise #Water #Drink #GoDrinkWater #Liquid #Fluid #Juice #ADL #ActivitiesOfDailyLiving #Living #Mobility #MobilityAides #Health #Disability #Disabled #Disabilities #Spoonie #SpoonTheory #ChronicallyIll #ChronicIllness #ChronicWellness #Pacing #PaceYourself

Also you can download this simple website to use offline! Unlike planet-killing AI / LLM plagiarism machines.

https://youfeellikeshit.com/

#ND #NeuroDivergent #NeuroDiverse #SelfCare #MentalIllness #MentalHealth #Healthcare #PhysicalHealth #Hygiene #PersonalHygiene #Nutrition #Movement #Stretch #UnclenchYourJaw #Exercise #Water #Drink #GoDrinkWater #Liquid #Fluid #Juice #ADL #ActivitiesOfDailyLiving #Living #Mobility #MobilityAides #Health #Disability #Disabled #Disabilities #Spoonie #SpoonTheory #ChronicallyIll #ChronicIllness #ChronicWellness #Pacing #PaceYourself

Also you can download this simple website to use offline! Unlike planet-killing AI / LLM plagiarism machines.

https://youfeellikeshit.com/

#ND #NeuroDivergent #NeuroDiverse #SelfCare #MentalIllness #MentalHealth #Healthcare #PhysicalHealth #Hygiene #PersonalHygiene #Nutrition #Movement #Stretch #UnclenchYourJaw #Exercise #Water #Drink #GoDrinkWater #Liquid #Fluid #Juice #ADL #ActivitiesOfDailyLiving #Living #Mobility #MobilityAides #Health #Disability #Disabled #Disabilities #Spoonie #SpoonTheory #ChronicallyIll #ChronicIllness #ChronicWellness #Pacing #PaceYourself

Also you can download this simple website to use offline! Unlike planet-killing AI / LLM plagiarism machines.

https://youfeellikeshit.com/

#ND #NeuroDivergent #NeuroDiverse #SelfCare #MentalIllness #MentalHealth #Healthcare #PhysicalHealth #Hygiene #PersonalHygiene #Nutrition #Movement #Stretch #UnclenchYourJaw #Exercise #Water #Drink #GoDrinkWater #Liquid #Fluid #Juice #ADL #ActivitiesOfDailyLiving #Living #Mobility #MobilityAides #Health #Disability #Disabled #Disabilities #Spoonie #SpoonTheory #ChronicallyIll #ChronicIllness #ChronicWellness #Pacing #PaceYourself

ME/CFS und die Suche nach einer Rehaklink
https://maintz.org/mecfs-rehaklinik

#MECFS #Pacing #PEM #PostCovid #KrankzuHause #Crash

Teilt doch mal bitte den Post von @mel

https://metalhead.club/@mel/116447924692431282

#FediHelp #FediPower #MECFS #Pacing #PEM #PostCovid #KrankzuHause #Crash

Hallöchen meine Lieben, mal eine kleine Frage an die ME/CFS erkrankten oder diejenigen die damit Erfahrung haben.

Ich suche eine Rehaklinik die sich mit ME/CFS auskennt und das Pacing berücksichtigt.

Meine Situation hat sich verschlechtert und der MDK hat eine Reha empfohlen, nur will ich nicht mit meinem Crash erneut meine Situation verschlechtern.

Hat vielleicht Jemand eine Idee?

Gerne teilen, danke. ❤️

#PostCovidMECFS #MECFS #Pacing #PEM

I just wanted to say a huge thank you to MEAction Network (https://www.meaction.net/) and Visible (https://www.makevisible.com/) for the Visible band I won last month 👍 Having had ME/CFS for over 15 years I thought I knew everything about pacing but the Visible band has even taught this old dog some new tricks. Very cool 😎

#MECFS #MEAction #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #ChronicIllness #CFS #Spoons #Spoonie #Pacing #Health #Visible #Visibleband

#LongCOVID #MECFS

Sudden 1-week #PEM rollercoaster after a VERY relaxing trip to my Swiss mountain home.

I just can't seem to recover. And no idea why except, perhaps, for the (mild) cold I caught while traveling? The 1st in months, btw, thanks to masking.

#Pacing is everything, I know. But how do I pace myself, if triggers/thresholds seem to be constantly shifting, for 2.5 yrs already now?

This must be one of the most frustrating diseases ever. I don't know my body & its limits anymore...

So ihr kleinen süßen Dämonen :dragon_heart:

habt alle noch einen schönen Sonntagabend, die Wirtin macht sich jetzt vom Acker und überlässt dem jungen Ogar und seiner Assistentin Elfie die Taverne.

Dank Überlastug brauche ich jetzt etwas Ruhe und muss runterfahren die nächsten Tage.

Kommt gut in die Neue Woche und lasst euch nicht zu sehr ärgern. 😘

#MECFS #PEM #Pacing #Crash

So ihr Lieben, habt alle noch einen schönen Sonntagabend, ich mach mich vom Acker.

Dank Überlastug brauche ich jetzt etwas Ruhe und muss runterfahren die nächsten Tage.

Kommt gut in die Neue Woche und lasst euch nicht zu sehr ärgern. 😘

#MECFS #PEM #Pacing #Crash

@pixeldailies.bsky.social

@pixeldailies.bsky.social blocked

(it was a little too fast so I slowed it down)

@eliasulrich
Here the Garmin LongCovid and MEcfs app
https://sites.google.com/view/pacing-with-garmin/

#pacing #longcovid #MEcfs

@longcovid @mecfs

"The proper way to talk about what I’m doing is to say that I use fitness trackers to “pace.” #Pacing is an energy management technique that involves balancing periods of activity with periods of rest to avoid physical and mental overexertion. The idea behind the practice is that by carefully planning and prioritizing the tasks and activities you do throughout your day, people with energy-limiting conditions like mine can avoid falling into a cycle of repeated crashes or worsening symptoms. Pacing isn’t a cure or even a way to improve your overall condition, at least not inherently. But for many people with these conditions — folks with #MECFs (#LongCovid or formerly referred to as “#chronicfatigue”), #POTS, #fibromyalgia, or even #Parkinson’s, for example — pacing can make life a little more predictable."

https://www.theverge.com/features/889835/fitness-trackers-chronic-illness-visible-whoop

Bin gerade im höchsten Gang des E-Rollstuhls in die Kurve und hab ein Rad zum Sliden gebracht.
Hach, schön. Mein Monats-Highlight.

Jetzt 2 Tage dummes Pacing im Liegen im Dunkeln. Ich darf jetzt nix machen, gar nix, außer bissel Handy. 😞 #PEM #Pacing

#MEcfs

2/
“We have this cultural narrative that rest should feel refreshing, noticeable, or deeply restorative, but the truth is, early rest often feels boring, anticlimactic, or pointless.

You don’t feel better right away, but you can avoid feeling dramatically worse later.”

#mecfs #longcovid #pacing
@mecfs @longcovid @pots

3/
From "Pacing in the Real World"

Another blogpost I liked a lot by this OT who specialises in ME/CFS & long Covid

Contains lots of practical tips. As she says,an emphasis is harm reduction rather than perfection

https://onelifelivedwell.substack.com/p/pacing-in-the-real-world

#MEcfs #LongCovid #CFS #PwME #Pacing @mecfs @longcovid

RE: https://disabled.social/@tomkindlon/116031805210181495

Mijn dagelijkse mantra voor pacing: PRET. Pauzeer regelmatig. Rustige omgeving. Eén ding tegelijk. Tempo aanpassen.

#PostCovid #Pacing

"Pacing in the Real World"

Another blogpost I liked a lot by this OT who specialises in ME/CFS & long Covid.

Contains lots of practical tips. As she says, an emphasis is harm reduction rather than perfection

https://onelifelivedwell.substack.com/p/pacing-in-the-real-world

#MEcfs #LongCovid #CFS #PwME #Pacing #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs @longcovid

I’m fortunate to hold occasional dinner parties with groups of my healthy friends (my parents do all the work). Accommodations include having my feet up & going for a rest (or two). 21 minutes yesterday: hard to break away from the chat but worth it

#MyalgicEncephalomyelitis #pacing #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #spoonie #spoonies

The Day I ran my First Semi-Marathon

Yesterday was cold and grey when I set off on my daily walk/run and my intention was to go up to Cheserex across to Tranchepied and then back down towards Nyon. I had no intention of running a semi-marathon.

The reason for which I ran so far is that I saw dog walkers and their dogs were not leashed. Years ago I was agressed by three dogs, one of them every time we crosssed paths, so now, if I'm alone, and I see a dog, I cross where the field boundary is, and then I continue my walk, run or bike ride.

Dog Walkers and My Running Detours to Avoid Them

It's not that I had a bad phobia of dogs, but that in one situation I was standing, unable to move, as a woman just watched me. She didn't leash the dog, she didn't do anything to help me. Eventually the dog charged me and I began to run. I then had the common sense to stop running and froze. After this incident my phobia of dogs, when walking alone was radical.

I never, ever, ever want to be so close to being mauled again. That's why I backtrack as soon as I see dogs in the distance and find another route.

It's relevant to how I ran my first semi-marathon. If the dog walkers hadn't been on the path between Cheserex and Tranche-Pied I would not have taken a detour, and if I had not seen a crowd walking around Tranche-Pied, then I would have headed down, and my run would have been short.

It's thanks to those dogs I saw that I took a détour. It's thanks to those people that I didn't head home. It's thanks to these people that I decided to try running to Divonne, and then I ran towards Céligny, and from Céligny towards Eysins. Without the dogs I'd have had a long run, but not this long.

A Cycling Route

I know of the connections between La Rippe and Divonne through cycling with two or three groups. It is by cycling with them that I discovered these alternative, lower traffic paths. They're good to know about because you can run, and cycle, without roads and cars for quite a distance.

A Slight surprise

When I ran from La Rippe to Divonne I was surprised to come out where I did. I came out right by the voie verte. From there I could have easily run to Crassier, and then back home, rather than run along the Lac de Divonne before crossing the border and towards Bogis Bossey and Céligny.

Through the Fields or through the Villages

I considered whether to run down to Céligny and then along the roads to Crans and then back up but chose not to run that route because of dog walkers. Dog walkers are just as likely on the route I did run but I could usually see them from a distance so I could easily avoid them.

In the end the route was perfect to achieve a 21km loop, with minimal walking to get home, at the end of the run.

Two Changes

When I run this distance again I will make sure to have fuel with me, in the form of either energy gels or the haribo style fruit things. I did this 21km run without water and without any fuel. The reason for this is that I had no intention of beating my distance record. It was a fluke occurence. I'm proud of this achievement but I will take a day or two to rest and recover. I don't want to end up injured.

And Finally

If I had run just 6km I would have reached the 100km mark, so far this year. By overshooting like I did I achieved two notable things. Furthest distance, and most running in a week.

I suspect that running in Spain, on those steep gradients, really helped me to get better at running in switzerland.

At this time I do not plan to attempt a marathon. I plan to do a few shorter runs. I don't want to overdo it.

Just about avoided exceeding my nominal #KiActiv '4000-calories-per-day' movement budget 👇

And I've ended the day just 4 minutes of 'Moderate' exertion over my nominal '60 minutes' limit.

Movement-wise I've paced well.

Heartrate-wise (and therefore #Visible Pacepoints-wise) I'm well over-budget.

#Pacing to avoid the debilitating #PEM associated with my #LongCovid 🙏

Got home from work soon after 6pm.

Was in bed within the hour.

Only now - FIFTEEN HOURS after my heartrate was elevated this morning - has it returned to a steady Resting Pace.

With 7.5 hours of sleep on top, I'm hoping to have my body 'Back In Balance' before work tomorrow.

#Pacing to avoid #PEM

#LongCovid

...and my third HRV app @kubiosHRV shows a nice and high Readiness of 82%

I've got an extra job to do at lunchtime today too - supporting my Sustainable Leaders in their fundraising efforts.

Today I'll be #Pacing as much as possible to keep the #PEM at bay 🙏

#LongCovid

My self-set daily PacePoints budget is 30...

Only one more lesson this afternoon 🙏

#Pacing to avoid #LongCovid #PEM

HT @visible_health

Back in Balance and Ready for Wednesday 😊

#Pacing to avoid the debilitating #PEM associated with my #LongCovid 🙏

#EliteHRV 10/10 Readiness, in balance and with MeanRR and PNN50 values back up

#KubiosHRV Readiness also High at 82%

Well-and-truly RESTED today; just a short shopping trip and some hoovering to get some light movement in.

Going to end the day more than 20 #VisibleHealth PacePoints behind today's pacesetter 🙏

#Pacing to avoid debilitating #LongCovid #PEM symptoms.

What’s More Important: Storytelling or Writing Craft?

When first learning how to write, we often focus on the skills of writing craft—grammar rules, point of view, etc.—but storytelling skills are just as important. Some might even say they’re more important. After all, we can probably think of popular…
https://writershelpingwriters.net/2025/12/whats-more-important-storytelling-or-writing-craft/

#Characters #Pacing #PointofView #ResidentWritingCoach #ShowDontTell

I wonder if there are any studies of how #pacing affects the ability to build #GSO #UDP #packets?

One for all my friends suffering with ME/CFS and Long Covid.

Source: https://x.com/pain_lyn/status/1860971946126496012

#MECFS #LongCovid #BrainFog #ChronicIllness #pacing #pem #pese #CFS #ChronicFatigue #pwme

24 New Songs Out Today
https://www.brooklynvegan.com/24-new-songs-out-today-58/

#brooklynvegan_category_music #Music #Alan_Sparhawk #Azalia_Snail #Caleb_Landry_Jones #Career_Woman #chanel_beads #Coffins #Cola #destroy_boys #Drowse #fair_visions #Graywave #Gustaf #Hana_Vu #Low #Lula_Asplund #Mary_Lattimore #mountain_movers #New_Songs #New_Tracks #Pacing #The_Secret_Sisters #Walt_McClements #Zombi