#pacing — Public Fediverse posts

QUESTIONS

1
My main question is for tips on how to manage orthostatic hypotension.
There is a lot of discussion about what to concentrate on during training with hypotension versus hypertension, but the first question is probably: Should I even treat this as a hypotension and concentrate on getting my blood pressure up or should I rather concentrate on better regulation of blood pressure, if that is even possible. For example for burnout I learned that to reduce stress the goal is not to get the heart rate down, but to increase the heart rate variability (HRV). Is there such a thing as training for blood pressure variability/flexibility?

2
Next question is for tips on how to manage burnout and PAIS if and when I get both at the same time.
My burnout management involves lots of activities ranging from light intensity long walks to sprints and high intensity interval training and strength training as well as lots of meditation, breathing exercises. I try to go for a walk for at least one hour after every meal, because (at least during a sick-leave) meals cause the most and longest lasting stress if I don't walk it out. That's why I try to eat only once a day at noon - eating in the evening can ruin my sleep.
My management during an infection that feels like the start of a PAIS involves lots of sleeping without any circadian rhythm detectable and very little activity.
My management of PAIS involves pacing which I'm not good at yet though. It's really hard to know what is too much and what is too little. But I guess I can't be very wrong with just lots of slow walking without too much uphill parts.

3
Now if you have any other general tips on managing any of the mentioned ailments feel free to let me know. I didn't mention everything I know already, but feel free to also mention things you assume I already know.

#FollowerPower #PleaseHelp #AskFedi #question #burnout #pais #PostCovid #LongCovid #MECFS #FatigueSyndrome #fatigue #orthostasis #OrthostaticHypotension #OrthostaticDysregulation #pacing #HRV #BloodPressure #BloodPressureManagement #syncopation #BurnoutManagement #PAISManagement

QUESTIONS

1
My main question is for tips on how to manage orthostatic hypotension.
There is a lot of discussion about what to concentrate on during training with hypotension versus hypertension, but the first question is probably: Should I even treat this as a hypotension and concentrate on getting my blood pressure up or should I rather concentrate on better regulation of blood pressure, if that is even possible. For example for burnout I learned that to reduce stress the goal is not to get the heart rate down, but to increase the heart rate variability (HRV). Is there such a thing as training for blood pressure variability/flexibility?

2
Next question is for tips on how to manage burnout and PAIS if and when I get both at the same time.
My burnout management involves lots of activities ranging from light intensity long walks to sprints and high intensity interval training and strength training as well as lots of meditation, breathing exercises. I try to go for a walk for at least one hour after every meal, because (at least during a sick-leave) meals cause the most and longest lasting stress if I don't walk it out. That's why I try to eat only once a day at noon - eating in the evening can ruin my sleep.
My management during an infection that feels like the start of a PAIS involves lots of sleeping without any circadian rhythm detectable and very little activity.
My management of PAIS involves pacing which I'm not good at yet though. It's really hard to know what is too much and what is too little. But I guess I can't be very wrong with just lots of slow walking without too much uphill parts.

3
Now if you have any other general tips on managing any of the mentioned ailments feel free to let me know. I didn't mention everything I know already, but feel free to also mention things you assume I already know.

#FollowerPower #PleaseHelp #AskFedi #question #burnout #pais #PostCovid #LongCovid #MECFS #FatigueSyndrome #fatigue #orthostasis #OrthostaticHypotension #OrthostaticDysregulation #pacing #HRV #BloodPressure #BloodPressureManagement #syncopation #BurnoutManagement #PAISManagement

QUESTIONS

1
My main question is for tips on how to manage orthostatic hypotension.
There is a lot of discussion about what to concentrate on during training with hypotension versus hypertension, but the first question is probably: Should I even treat this as a hypotension and concentrate on getting my blood pressure up or should I rather concentrate on better regulation of blood pressure, if that is even possible. For example for burnout I learned that to reduce stress the goal is not to get the heart rate down, but to increase the heart rate variability (HRV). Is there such a thing as training for blood pressure variability/flexibility?

2
Next question is for tips on how to manage burnout and PAIS if and when I get both at the same time.
My burnout management involves lots of activities ranging from light intensity long walks to sprints and high intensity interval training and strength training as well as lots of meditation, breathing exercises. I try to go for a walk for at least one hour after every meal, because (at least during a sick-leave) meals cause the most and longest lasting stress if I don't walk it out. That's why I try to eat only once a day at noon - eating in the evening can ruin my sleep.
My management during an infection that feels like the start of a PAIS involves lots of sleeping without any circadian rhythm detectable and very little activity.
My management of PAIS involves pacing which I'm not good at yet though. It's really hard to know what is too much and what is too little. But I guess I can't be very wrong with just lots of slow walking without too much uphill parts.

3
Now if you have any other general tips on managing any of the mentioned ailments feel free to let me know. I didn't mention everything I know already, but feel free to also mention things you assume I already know.

#FollowerPower #PleaseHelp #AskFedi #question #burnout #pais #PostCovid #LongCovid #MECFS #FatigueSyndrome #fatigue #orthostasis #OrthostaticHypotension #OrthostaticDysregulation #pacing #HRV #BloodPressure #BloodPressureManagement #syncopation #BurnoutManagement #PAISManagement

QUESTIONS

1
My main question is for tips on how to manage orthostatic hypotension.
There is a lot of discussion about what to concentrate on during training with hypotension versus hypertension, but the first question is probably: Should I even treat this as a hypotension and concentrate on getting my blood pressure up or should I rather concentrate on better regulation of blood pressure, if that is even possible. For example for burnout I learned that to reduce stress the goal is not to get the heart rate down, but to increase the heart rate variability (HRV). Is there such a thing as training for blood pressure variability/flexibility?

2
Next question is for tips on how to manage burnout and PAIS if and when I get both at the same time.
My burnout management involves lots of activities ranging from light intensity long walks to sprints and high intensity interval training and strength training as well as lots of meditation, breathing exercises. I try to go for a walk for at least one hour after every meal, because (at least during a sick-leave) meals cause the most and longest lasting stress if I don't walk it out. That's why I try to eat only once a day at noon - eating in the evening can ruin my sleep.
My management during an infection that feels like the start of a PAIS involves lots of sleeping without any circadian rhythm detectable and very little activity.
My management of PAIS involves pacing which I'm not good at yet though. It's really hard to know what is too much and what is too little. But I guess I can't be very wrong with just lots of slow walking without too much uphill parts.

3
Now if you have any other general tips on managing any of the mentioned ailments feel free to let me know. I didn't mention everything I know already, but feel free to also mention things you assume I already know.

#FollowerPower #PleaseHelp #AskFedi #question #burnout #pais #PostCovid #LongCovid #MECFS #FatigueSyndrome #fatigue #orthostasis #OrthostaticHypotension #OrthostaticDysregulation #pacing #HRV #BloodPressure #BloodPressureManagement #syncopation #BurnoutManagement #PAISManagement

I have questions to people who have knowledge about Burnout, PAIS (post-acute infection syndromes, like Post/Long-Covid, ME/CFS, etc...), orthostatic hypotension, blood pressure management, fitness, pacing, etc.

This will be a long post and you don't have to read all of it. Just look for the paragraph with the headline "questions" in the first reply.
I'm mostly writing so much to get my own thoughts in order.

NOTICE

I'm asking this here in the Fediverse because this is the best place to reach actual people who know stuff. Before the ecocide slop boom I'd have started with internet research, but that's no real option anymore. If an account answers me that seems like AI it will be blocked. If you answer me with what you just found on random internet sites, you will be blocked. Everybody else: Thank you! Btw you don't have to be a formal expert on any of the subject matters. Anecdotal evidence by people affected or relatives is highly valuable too.

BACKGROUND

I'm prone to both burnout and PAIS (undiagnosed, because the health system is inadequate) but haven't yet had both of them at the same time. This might be different now. My burnout is definitely back and I'm having an infection that feels a lot like it will turn into a PAIS. I've had a PAIS two times both starting in MAy of 2024 and 2025 and lasting for 3 months each. So this would be the right time to get it again. Since the last PAIS I've had two infections though that felt like the start of PAIS, but I probably stopped them with lots of medication, supplements and other methods.
My last sick-leave was due to my first burnout for 6 weeks (obviously not long enough).
I'm on sick-leave again since Wednesday because the burnout is back - the infection broke out one day later, but probably already made my body weaker before, playing a role in the burnout-relapse.

MY SYMPTOMS

For burnout my main symptoms are: tinnitus, tensions in the ear, jaw & neck area, headaches, bad sleep, fatigue, susceptibility to stress, low psychic resilience.
For the PAIS its fatigue, bad sleep, brain fog, bad performance in all systems (fitness, cognition, social, etc..), malaise, some symptoms of a cold or allergy (constant tingle in my nose, running nose, sometimes coughing and sneezing, ...) and bad memory that lasts longer than everything else (years instead of months).

SPECIAL SYMPTOM: ORTHOSTATIC HYPOTENSION

I've had bad orthostatic hypotension as a child with regular syncopations. It has gotten better (rarer) and I've learned how to deal with it, at least a bit. I do still have it whenever I have an illness that makes me bedridden, like infections and depressions.
There are basically 4 levels:
1 (usually without positional change): I feel that something is wrong with my orthostasis.
2 (usually with some positional change, like from lying to sitting): I feel dizzy and weak, like my brain is not supplied with blood as it should be, but no signs of unconsciousness.
3 (usually when changing from lying to standing): I feel my conciseness fading, I get tunnel vision, my legs let up and I have to hold tight to make sure I don't fall. I get the feeling of a slight dissociation, but I'm still there enough to control it and it slowly fades away giving me a warm comfortable feeling when the blood flows back to everywhere where it's needed.
4. (sometimes combined with 3 and me not controlling it well, sometimes immediately after standing up too quick after lying for a while): I loose consciousness and fall down, sometimes banging my head badly. I haven't had this level since my teenage years and my consciousness always came back immediately when I'm on the ground.
Now I've learned that orthostatic hypotension is both a symptom and a risk factor for PAIS and since I've had it forever I think it might be a good idea to learn to manage it better as to not get PAIS again or at least less frequent.

#FollowerPower #PleaseHelp #AskFedi #question #burnout #pais #PostCovid #LongCovid #MECFS #FatigueSyndrome #fatigue #orthostasis #OrthostaticHypotension #OrthostaticDysregulation #pacing #HRV #BloodPressure #BloodPressureManagement #syncopation #BurnoutManagement #PAISManagement

I have questions to people who have knowledge about Burnout, PAIS (post-acute infection syndromes, like Post/Long-Covid, ME/CFS, etc...), orthostatic hypotension, blood pressure management, fitness, pacing, etc.

This will be a long post and you don't have to read all of it. Just look for the paragraph with the headline "questions" in the first reply.
I'm mostly writing so much to get my own thoughts in order.

NOTICE

I'm asking this here in the Fediverse because this is the best place to reach actual people who know stuff. Before the ecocide slop boom I'd have started with internet research, but that's no real option anymore. If an account answers me that seems like AI it will be blocked. If you answer me with what you just found on random internet sites, you will be blocked. Everybody else: Thank you! Btw you don't have to be a formal expert on any of the subject matters. Anecdotal evidence by people affected or relatives is highly valuable too.

BACKGROUND

I'm prone to both burnout and PAIS (undiagnosed, because the health system is inadequate) but haven't yet had both of them at the same time. This might be different now. My burnout is definitely back and I'm having an infection that feels a lot like it will turn into a PAIS. I've had a PAIS two times both starting in MAy of 2024 and 2025 and lasting for 3 months each. So this would be the right time to get it again. Since the last PAIS I've had two infections though that felt like the start of PAIS, but I probably stopped them with lots of medication, supplements and other methods.
My last sick-leave was due to my first burnout for 6 weeks (obviously not long enough).
I'm on sick-leave again since Wednesday because the burnout is back - the infection broke out one day later, but probably already made my body weaker before, playing a role in the burnout-relapse.

MY SYMPTOMS

For burnout my main symptoms are: tinnitus, tensions in the ear, jaw & neck area, headaches, bad sleep, fatigue, susceptibility to stress, low psychic resilience.
For the PAIS its fatigue, bad sleep, brain fog, bad performance in all systems (fitness, cognition, social, etc..), malaise, some symptoms of a cold or allergy (constant tingle in my nose, running nose, sometimes coughing and sneezing, ...) and bad memory that lasts longer than everything else (years instead of months).

SPECIAL SYMPTOM: ORTHOSTATIC HYPOTENSION

I've had bad orthostatic hypotension as a child with regular syncopations. It has gotten better (rarer) and I've learned how to deal with it, at least a bit. I do still have it whenever I have an illness that makes me bedridden, like infections and depressions.
There are basically 4 levels:
1 (usually without positional change): I feel that something is wrong with my orthostasis.
2 (usually with some positional change, like from lying to sitting): I feel dizzy and weak, like my brain is not supplied with blood as it should be, but no signs of unconsciousness.
3 (usually when changing from lying to standing): I feel my conciseness fading, I get tunnel vision, my legs let up and I have to hold tight to make sure I don't fall. I get the feeling of a slight dissociation, but I'm still there enough to control it and it slowly fades away giving me a warm comfortable feeling when the blood flows back to everywhere where it's needed.
4. (sometimes combined with 3 and me not controlling it well, sometimes immediately after standing up too quick after lying for a while): I loose consciousness and fall down, sometimes banging my head badly. I haven't had this level since my teenage years and my consciousness always came back immediately when I'm on the ground.
Now I've learned that orthostatic hypotension is both a symptom and a risk factor for PAIS and since I've had it forever I think it might be a good idea to learn to manage it better as to not get PAIS again or at least less frequent.

#FollowerPower #PleaseHelp #AskFedi #question #burnout #pais #PostCovid #LongCovid #MECFS #FatigueSyndrome #fatigue #orthostasis #OrthostaticHypotension #OrthostaticDysregulation #pacing #HRV #BloodPressure #BloodPressureManagement #syncopation #BurnoutManagement #PAISManagement

I have questions to people who have knowledge about Burnout, PAIS (post-acute infection syndromes, like Post/Long-Covid, ME/CFS, etc...), orthostatic hypotension, blood pressure management, fitness, pacing, etc.

This will be a long post and you don't have to read all of it. Just look for the paragraph with the headline "questions" in the first reply.
I'm mostly writing so much to get my own thoughts in order.

NOTICE

I'm asking this here in the Fediverse because this is the best place to reach actual people who know stuff. Before the ecocide slop boom I'd have started with internet research, but that's no real option anymore. If an account answers me that seems like AI it will be blocked. If you answer me with what you just found on random internet sites, you will be blocked. Everybody else: Thank you! Btw you don't have to be a formal expert on any of the subject matters. Anecdotal evidence by people affected or relatives is highly valuable too.

BACKGROUND

I'm prone to both burnout and PAIS (undiagnosed, because the health system is inadequate) but haven't yet had both of them at the same time. This might be different now. My burnout is definitely back and I'm having an infection that feels a lot like it will turn into a PAIS. I've had a PAIS two times both starting in MAy of 2024 and 2025 and lasting for 3 months each. So this would be the right time to get it again. Since the last PAIS I've had two infections though that felt like the start of PAIS, but I probably stopped them with lots of medication, supplements and other methods.
My last sick-leave was due to my first burnout for 6 weeks (obviously not long enough).
I'm on sick-leave again since Wednesday because the burnout is back - the infection broke out one day later, but probably already made my body weaker before, playing a role in the burnout-relapse.

MY SYMPTOMS

For burnout my main symptoms are: tinnitus, tensions in the ear, jaw & neck area, headaches, bad sleep, fatigue, susceptibility to stress, low psychic resilience.
For the PAIS its fatigue, bad sleep, brain fog, bad performance in all systems (fitness, cognition, social, etc..), malaise, some symptoms of a cold or allergy (constant tingle in my nose, running nose, sometimes coughing and sneezing, ...) and bad memory that lasts longer than everything else (years instead of months).

SPECIAL SYMPTOM: ORTHOSTATIC HYPOTENSION

I've had bad orthostatic hypotension as a child with regular syncopations. It has gotten better (rarer) and I've learned how to deal with it, at least a bit. I do still have it whenever I have an illness that makes me bedridden, like infections and depressions.
There are basically 4 levels:
1 (usually without positional change): I feel that something is wrong with my orthostasis.
2 (usually with some positional change, like from lying to sitting): I feel dizzy and weak, like my brain is not supplied with blood as it should be, but no signs of unconsciousness.
3 (usually when changing from lying to standing): I feel my conciseness fading, I get tunnel vision, my legs let up and I have to hold tight to make sure I don't fall. I get the feeling of a slight dissociation, but I'm still there enough to control it and it slowly fades away giving me a warm comfortable feeling when the blood flows back to everywhere where it's needed.
4. (sometimes combined with 3 and me not controlling it well, sometimes immediately after standing up too quick after lying for a while): I loose consciousness and fall down, sometimes banging my head badly. I haven't had this level since my teenage years and my consciousness always came back immediately when I'm on the ground.
Now I've learned that orthostatic hypotension is both a symptom and a risk factor for PAIS and since I've had it forever I think it might be a good idea to learn to manage it better as to not get PAIS again or at least less frequent.

#FollowerPower #PleaseHelp #AskFedi #question #burnout #pais #PostCovid #LongCovid #MECFS #FatigueSyndrome #fatigue #orthostasis #OrthostaticHypotension #OrthostaticDysregulation #pacing #HRV #BloodPressure #BloodPressureManagement #syncopation #BurnoutManagement #PAISManagement

I have questions to people who have knowledge about Burnout, PAIS (post-acute infection syndromes, like Post/Long-Covid, ME/CFS, etc...), orthostatic hypotension, blood pressure management, fitness, pacing, etc.

This will be a long post and you don't have to read all of it. Just look for the paragraph with the headline "questions" in the first reply.
I'm mostly writing so much to get my own thoughts in order.

NOTICE

I'm asking this here in the Fediverse because this is the best place to reach actual people who know stuff. Before the ecocide slop boom I'd have started with internet research, but that's no real option anymore. If an account answers me that seems like AI it will be blocked. If you answer me with what you just found on random internet sites, you will be blocked. Everybody else: Thank you! Btw you don't have to be a formal expert on any of the subject matters. Anecdotal evidence by people affected or relatives is highly valuable too.

BACKGROUND

I'm prone to both burnout and PAIS (undiagnosed, because the health system is inadequate) but haven't yet had both of them at the same time. This might be different now. My burnout is definitely back and I'm having an infection that feels a lot like it will turn into a PAIS. I've had a PAIS two times both starting in MAy of 2024 and 2025 and lasting for 3 months each. So this would be the right time to get it again. Since the last PAIS I've had two infections though that felt like the start of PAIS, but I probably stopped them with lots of medication, supplements and other methods.
My last sick-leave was due to my first burnout for 6 weeks (obviously not long enough).
I'm on sick-leave again since Wednesday because the burnout is back - the infection broke out one day later, but probably already made my body weaker before, playing a role in the burnout-relapse.

MY SYMPTOMS

For burnout my main symptoms are: tinnitus, tensions in the ear, jaw & neck area, headaches, bad sleep, fatigue, susceptibility to stress, low psychic resilience.
For the PAIS its fatigue, bad sleep, brain fog, bad performance in all systems (fitness, cognition, social, etc..), malaise, some symptoms of a cold or allergy (constant tingle in my nose, running nose, sometimes coughing and sneezing, ...) and bad memory that lasts longer than everything else (years instead of months).

SPECIAL SYMPTOM: ORTHOSTATIC HYPOTENSION

I've had bad orthostatic hypotension as a child with regular syncopations. It has gotten better (rarer) and I've learned how to deal with it, at least a bit. I do still have it whenever I have an illness that makes me bedridden, like infections and depressions.
There are basically 4 levels:
1 (usually without positional change): I feel that something is wrong with my orthostasis.
2 (usually with some positional change, like from lying to sitting): I feel dizzy and weak, like my brain is not supplied with blood as it should be, but no signs of unconsciousness.
3 (usually when changing from lying to standing): I feel my conciseness fading, I get tunnel vision, my legs let up and I have to hold tight to make sure I don't fall. I get the feeling of a slight dissociation, but I'm still there enough to control it and it slowly fades away giving me a warm comfortable feeling when the blood flows back to everywhere where it's needed.
4. (sometimes combined with 3 and me not controlling it well, sometimes immediately after standing up too quick after lying for a while): I loose consciousness and fall down, sometimes banging my head badly. I haven't had this level since my teenage years and my consciousness always came back immediately when I'm on the ground.
Now I've learned that orthostatic hypotension is both a symptom and a risk factor for PAIS and since I've had it forever I think it might be a good idea to learn to manage it better as to not get PAIS again or at least less frequent.

#FollowerPower #PleaseHelp #AskFedi #question #burnout #pais #PostCovid #LongCovid #MECFS #FatigueSyndrome #fatigue #orthostasis #OrthostaticHypotension #OrthostaticDysregulation #pacing #HRV #BloodPressure #BloodPressureManagement #syncopation #BurnoutManagement #PAISManagement

Hausarbeit ist für mich immer eine besondere Herausforderung und bedeutet Frust, weil ich kaum mehr als einen Raum auf einmal schaffe. Also bringe ich das Wenige möglichst zügig hinter mich. Sprich: wenig geschafft, viel Schmerz usw.
Nun mache ich es genau umgekehrt:
Ich unterbreche die (sehr) ausgedehnten Pausen mit jeweils kurzer Arbeitszeit und nenne das ab jetzt 'Slow Cleaning'.
So hab ich heute 3 Zimmer geputzt 🥳.
Danke, T. ❤️

#LebenmitMECFS #LebenmitSchmerzen #Pacing #Resilienz

Hausarbeit ist für mich immer eine besondere Herausforderung und bedeutet Frust, weil ich kaum mehr als einen Raum auf einmal schaffe. Also bringe ich das Wenige möglichst zügig hinter mich. Sprich: wenig geschafft, viel Schmerz usw.
Nun mache ich es genau umgekehrt:
Ich unterbreche die (sehr) ausgedehnten Pausen mit jeweils kurzer Arbeitszeit und nenne das ab jetzt 'Slow Cleaning'.
So hab ich heute 3 Zimmer geputzt 🥳.
Danke, T. ❤️

#LebenmitMECFS #LebenmitSchmerzen #Pacing #Resilienz

Hausarbeit ist für mich immer eine besondere Herausforderung und bedeutet Frust, weil ich kaum mehr als einen Raum auf einmal schaffe. Also bringe ich das Wenige möglichst zügig hinter mich. Sprich: wenig geschafft, viel Schmerz usw.
Nun mache ich es genau umgekehrt:
Ich unterbreche die (sehr) ausgedehnten Pausen mit jeweils kurzer Arbeitszeit und nenne das ab jetzt 'Slow Cleaning'.
So hab ich heute 3 Zimmer geputzt 🥳.
Danke, T. ❤️

#LebenmitMECFS #LebenmitSchmerzen #Pacing #Resilienz

Hausarbeit ist für mich immer eine besondere Herausforderung und bedeutet Frust, weil ich kaum mehr als einen Raum auf einmal schaffe. Also bringe ich das Wenige möglichst zügig hinter mich. Sprich: wenig geschafft, viel Schmerz usw.
Nun mache ich es genau umgekehrt:
Ich unterbreche die (sehr) ausgedehnten Pausen mit jeweils kurzer Arbeitszeit und nenne das ab jetzt 'Slow Cleaning'.
So hab ich heute 3 Zimmer geputzt 🥳.
Danke, T. ❤️

#LebenmitMECFS #LebenmitSchmerzen #Pacing #Resilienz

Ik kreeg deze tip van @MargotvdBerg : Pacely, een app die je helpt om te pacen. Voor bijvoorbeeld mensen met post-covid of ME.

Wat op de site staat, ziet er al goed en interessant uit. Ik ga 'm proberen:

https://pacely.nl/

#postcovid #LongCovid #pacing

Ik kreeg deze tip van @MargotvdBerg : Pacely, een app die je helpt om te pacen. Voor bijvoorbeeld mensen met post-covid of ME.

Wat op de site staat, ziet er al goed en interessant uit. Ik ga 'm proberen:

https://pacely.nl/

#postcovid #LongCovid #pacing

Ik kreeg deze tip van @MargotvdBerg : Pacely, een app die je helpt om te pacen. Voor bijvoorbeeld mensen met post-covid of ME.

Wat op de site staat, ziet er al goed en interessant uit. Ik ga 'm proberen:

https://pacely.nl/

#postcovid #LongCovid #pacing

Ik kreeg deze tip van @MargotvdBerg : Pacely, een app die je helpt om te pacen. Voor bijvoorbeeld mensen met post-covid of ME.

Wat op de site staat, ziet er al goed en interessant uit. Ik ga 'm proberen:

https://pacely.nl/

#postcovid #LongCovid #pacing

Ik kreeg deze tip van @MargotvdBerg : Pacely, een app die je helpt om te pacen. Voor bijvoorbeeld mensen met post-covid of ME.

Wat op de site staat, ziet er al goed en interessant uit. Ik ga 'm proberen:

https://pacely.nl/

#postcovid #LongCovid #pacing

#MEAwarenessDay

Er is (nog) geen genezing voor ME/CVS, maar pacing (energiemanagement) is de meest effectieve strategie om PEM (post-exertionele malaise) te voorkomen en levenskwaliteit te verbeteren. Luister naar je lichaam, doseer activiteiten en plan rust. ⚠️ CGT en GET zijn niet aanbevolen—ze kunnen symptomen verergeren! Pacing werkt—probeer het! 💙
#MEcvs #Pacing #PacingWerkt #WetenschappelijkOnderbouwd

Nieuwe app bij de garmin LongCovid pacing app: History!
Pakt de data en geeft je dag inzicht en grafieken met interval van een week tot max 6 weken.

Developer info
https://sites.google.com/view/pacing-with-garmin/

#pacing #longcovid #garmin
@longcovid @mecfs

https://www.europesays.com/at/139853/ Fatigue trifft Blutzucker: Wie ME/CFS und Diabetes zusammenhängen #AID #AT #Austria #AutonomesNervensystem #BrainFog #CGM #ChronischesFatigueSyndrom #DDG #DiabetesMellitus #Diabetesberatung #Gesundheit #GLP1Rezeptoragonisten #Health #Hypoglykämie #Insulinresistenz #Komorbidität #LongCOVID #ME/CFS #Metformin #Österreich #Pacing #PostCOVID #PostExertionelleMalaise #VDBD

Er, I also have a side hustle providing feedback to #writers on their work. I focus on #voice, #narrative, #dialog, and #pacing, among other things. Need somebody to read your latest #shortstory, or #memoir, or #flash fiction? I'm your guy.

#writer #editor #reader

Also you can download this simple website to use offline! Unlike planet-killing AI / LLM plagiarism machines.

https://youfeellikeshit.com/

#ND #NeuroDivergent #NeuroDiverse #SelfCare #MentalIllness #MentalHealth #Healthcare #PhysicalHealth #Hygiene #PersonalHygiene #Nutrition #Movement #Stretch #UnclenchYourJaw #Exercise #Water #Drink #GoDrinkWater #Liquid #Fluid #Juice #ADL #ActivitiesOfDailyLiving #Living #Mobility #MobilityAides #Health #Disability #Disabled #Disabilities #Spoonie #SpoonTheory #ChronicallyIll #ChronicIllness #ChronicWellness #Pacing #PaceYourself

Also you can download this simple website to use offline! Unlike planet-killing AI / LLM plagiarism machines.

https://youfeellikeshit.com/

#ND #NeuroDivergent #NeuroDiverse #SelfCare #MentalIllness #MentalHealth #Healthcare #PhysicalHealth #Hygiene #PersonalHygiene #Nutrition #Movement #Stretch #UnclenchYourJaw #Exercise #Water #Drink #GoDrinkWater #Liquid #Fluid #Juice #ADL #ActivitiesOfDailyLiving #Living #Mobility #MobilityAides #Health #Disability #Disabled #Disabilities #Spoonie #SpoonTheory #ChronicallyIll #ChronicIllness #ChronicWellness #Pacing #PaceYourself

Also you can download this simple website to use offline! Unlike planet-killing AI / LLM plagiarism machines.

https://youfeellikeshit.com/

#ND #NeuroDivergent #NeuroDiverse #SelfCare #MentalIllness #MentalHealth #Healthcare #PhysicalHealth #Hygiene #PersonalHygiene #Nutrition #Movement #Stretch #UnclenchYourJaw #Exercise #Water #Drink #GoDrinkWater #Liquid #Fluid #Juice #ADL #ActivitiesOfDailyLiving #Living #Mobility #MobilityAides #Health #Disability #Disabled #Disabilities #Spoonie #SpoonTheory #ChronicallyIll #ChronicIllness #ChronicWellness #Pacing #PaceYourself

Also you can download this simple website to use offline! Unlike planet-killing AI / LLM plagiarism machines.

https://youfeellikeshit.com/

#ND #NeuroDivergent #NeuroDiverse #SelfCare #MentalIllness #MentalHealth #Healthcare #PhysicalHealth #Hygiene #PersonalHygiene #Nutrition #Movement #Stretch #UnclenchYourJaw #Exercise #Water #Drink #GoDrinkWater #Liquid #Fluid #Juice #ADL #ActivitiesOfDailyLiving #Living #Mobility #MobilityAides #Health #Disability #Disabled #Disabilities #Spoonie #SpoonTheory #ChronicallyIll #ChronicIllness #ChronicWellness #Pacing #PaceYourself

Also you can download this simple website to use offline! Unlike planet-killing AI / LLM plagiarism machines.

https://youfeellikeshit.com/

#ND #NeuroDivergent #NeuroDiverse #SelfCare #MentalIllness #MentalHealth #Healthcare #PhysicalHealth #Hygiene #PersonalHygiene #Nutrition #Movement #Stretch #UnclenchYourJaw #Exercise #Water #Drink #GoDrinkWater #Liquid #Fluid #Juice #ADL #ActivitiesOfDailyLiving #Living #Mobility #MobilityAides #Health #Disability #Disabled #Disabilities #Spoonie #SpoonTheory #ChronicallyIll #ChronicIllness #ChronicWellness #Pacing #PaceYourself

ME/CFS und die Suche nach einer Rehaklink
https://maintz.org/mecfs-rehaklinik

#MECFS #Pacing #PEM #PostCovid #KrankzuHause #Crash

Teilt doch mal bitte den Post von @mel

https://metalhead.club/@mel/116447924692431282

#FediHelp #FediPower #MECFS #Pacing #PEM #PostCovid #KrankzuHause #Crash

Hallöchen meine Lieben, mal eine kleine Frage an die ME/CFS erkrankten oder diejenigen die damit Erfahrung haben.

Ich suche eine Rehaklinik die sich mit ME/CFS auskennt und das Pacing berücksichtigt.

Meine Situation hat sich verschlechtert und der MDK hat eine Reha empfohlen, nur will ich nicht mit meinem Crash erneut meine Situation verschlechtern.

Hat vielleicht Jemand eine Idee?

Gerne teilen, danke. ❤️

#PostCovidMECFS #MECFS #Pacing #PEM

I just wanted to say a huge thank you to MEAction Network (https://www.meaction.net/) and Visible (https://www.makevisible.com/) for the Visible band I won last month 👍 Having had ME/CFS for over 15 years I thought I knew everything about pacing but the Visible band has even taught this old dog some new tricks. Very cool 😎

#MECFS #MEAction #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #ChronicIllness #CFS #Spoons #Spoonie #Pacing #Health #Visible #Visibleband

I just wanted to say a huge thank you to MEAction Network (https://www.meaction.net/) and Visible (https://www.makevisible.com/) for the Visible band I won last month 👍 Having had ME/CFS for over 15 years I thought I knew everything about pacing but the Visible band has even taught this old dog some new tricks. Very cool 😎

#MECFS #MEAction #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #ChronicIllness #CFS #Spoons #Spoonie #Pacing #Health #Visible #Visibleband

I just wanted to say a huge thank you to MEAction Network (https://www.meaction.net/) and Visible (https://www.makevisible.com/) for the Visible band I won last month 👍 Having had ME/CFS for over 15 years I thought I knew everything about pacing but the Visible band has even taught this old dog some new tricks. Very cool 😎

#MECFS #MEAction #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #ChronicIllness #CFS #Spoons #Spoonie #Pacing #Health #Visible #Visibleband

I just wanted to say a huge thank you to MEAction Network (https://www.meaction.net/) and Visible (https://www.makevisible.com/) for the Visible band I won last month 👍 Having had ME/CFS for over 15 years I thought I knew everything about pacing but the Visible band has even taught this old dog some new tricks. Very cool 😎

#MECFS #MEAction #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #ChronicIllness #CFS #Spoons #Spoonie #Pacing #Health #Visible #Visibleband

I just wanted to say a huge thank you to MEAction Network (https://www.meaction.net/) and Visible (https://www.makevisible.com/) for the Visible band I won last month 👍 Having had ME/CFS for over 15 years I thought I knew everything about pacing but the Visible band has even taught this old dog some new tricks. Very cool 😎

#MECFS #MEAction #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #ChronicIllness #CFS #Spoons #Spoonie #Pacing #Health #Visible #Visibleband

#LongCOVID #MECFS

Sudden 1-week #PEM rollercoaster after a VERY relaxing trip to my Swiss mountain home.

I just can't seem to recover. And no idea why except, perhaps, for the (mild) cold I caught while traveling? The 1st in months, btw, thanks to masking.

#Pacing is everything, I know. But how do I pace myself, if triggers/thresholds seem to be constantly shifting, for 2.5 yrs already now?

This must be one of the most frustrating diseases ever. I don't know my body & its limits anymore...

So ihr kleinen süßen Dämonen :dragon_heart:

habt alle noch einen schönen Sonntagabend, die Wirtin macht sich jetzt vom Acker und überlässt dem jungen Ogar und seiner Assistentin Elfie die Taverne.

Dank Überlastug brauche ich jetzt etwas Ruhe und muss runterfahren die nächsten Tage.

Kommt gut in die Neue Woche und lasst euch nicht zu sehr ärgern. 😘

#MECFS #PEM #Pacing #Crash

So ihr Lieben, habt alle noch einen schönen Sonntagabend, ich mach mich vom Acker.

Dank Überlastug brauche ich jetzt etwas Ruhe und muss runterfahren die nächsten Tage.

Kommt gut in die Neue Woche und lasst euch nicht zu sehr ärgern. 😘

#MECFS #PEM #Pacing #Crash

@pixeldailies.bsky.social

@pixeldailies.bsky.social blocked

(it was a little too fast so I slowed it down)

@pixeldailies.bsky.social

@pixeldailies.bsky.social blocked

(it was a little too fast so I slowed it down)

@pixeldailies.bsky.social

@pixeldailies.bsky.social blocked

(it was a little too fast so I slowed it down)

@pixeldailies.bsky.social

@pixeldailies.bsky.social blocked

(it was a little too fast so I slowed it down)

@pixeldailies.bsky.social

@pixeldailies.bsky.social blocked

(it was a little too fast so I slowed it down)

@eliasulrich
Here the Garmin LongCovid and MEcfs app
https://sites.google.com/view/pacing-with-garmin/

#pacing #longcovid #MEcfs

@longcovid @mecfs

"The proper way to talk about what I’m doing is to say that I use fitness trackers to “pace.” #Pacing is an energy management technique that involves balancing periods of activity with periods of rest to avoid physical and mental overexertion. The idea behind the practice is that by carefully planning and prioritizing the tasks and activities you do throughout your day, people with energy-limiting conditions like mine can avoid falling into a cycle of repeated crashes or worsening symptoms. Pacing isn’t a cure or even a way to improve your overall condition, at least not inherently. But for many people with these conditions — folks with #MECFs (#LongCovid or formerly referred to as “#chronicfatigue”), #POTS, #fibromyalgia, or even #Parkinson’s, for example — pacing can make life a little more predictable."

https://www.theverge.com/features/889835/fitness-trackers-chronic-illness-visible-whoop

Bin gerade im höchsten Gang des E-Rollstuhls in die Kurve und hab ein Rad zum Sliden gebracht.
Hach, schön. Mein Monats-Highlight.

Jetzt 2 Tage dummes Pacing im Liegen im Dunkeln. Ich darf jetzt nix machen, gar nix, außer bissel Handy. 😞 #PEM #Pacing

#MEcfs

2/
“We have this cultural narrative that rest should feel refreshing, noticeable, or deeply restorative, but the truth is, early rest often feels boring, anticlimactic, or pointless.

You don’t feel better right away, but you can avoid feeling dramatically worse later.”

#mecfs #longcovid #pacing
@mecfs @longcovid @pots

3/
From "Pacing in the Real World"

Another blogpost I liked a lot by this OT who specialises in ME/CFS & long Covid

Contains lots of practical tips. As she says,an emphasis is harm reduction rather than perfection

https://onelifelivedwell.substack.com/p/pacing-in-the-real-world

#MEcfs #LongCovid #CFS #PwME #Pacing @mecfs @longcovid

RE: https://disabled.social/@tomkindlon/116031805210181495

Mijn dagelijkse mantra voor pacing: PRET. Pauzeer regelmatig. Rustige omgeving. Eén ding tegelijk. Tempo aanpassen.

#PostCovid #Pacing

"Pacing in the Real World"

Another blogpost I liked a lot by this OT who specialises in ME/CFS & long Covid.

Contains lots of practical tips. As she says, an emphasis is harm reduction rather than perfection

https://onelifelivedwell.substack.com/p/pacing-in-the-real-world

#MEcfs #LongCovid #CFS #PwME #Pacing #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @mecfs @longcovid

I’m fortunate to hold occasional dinner parties with groups of my healthy friends (my parents do all the work). Accommodations include having my feet up & going for a rest (or two). 21 minutes yesterday: hard to break away from the chat but worth it

#MyalgicEncephalomyelitis #pacing #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #spoonie #spoonies