#pacing — Public Fediverse posts

I'm on the bus from North Bay to Toronto and then I'm getting on the midnight flight to UK. I hope the assistance is better than previous times and it doesn't take me a week to recover.

The water was finally properly warm yesterday and I had a good swim with my mom. It seems if I just use my legs my heart rate stays reasonably low. I can't say for definite I won't get pem but it seems promising. Arms need to be strengthened with activities that don't involve much movement I guess.

#pem
#pacing

4 Tips for Successfully Writing Picture Books

Did you know I cut my teeth writing picture books? Well, technically, my first attempt was a chapter book. I didn’t bother doing any research; as a first grade teacher, I’d read hundreds of them to my students, so how hard could it be? Hard enough that I soon switched to picture books, because I’d...
The post 4 Tips for Successfully Writing Picture Books appeared first on WRITERS HELPING WRITERS®.
https://writershelpingwriters.net/2026/08/4-tips-for-successfully-writing-picture-books/

#Characters #MGAndKidlit #Pacing #WritingCraft

Maybe I'm finally the point where I'm "I could just go to bed early and that'll actually work" level of tired.

#MECFS #Recovery2026 #pacing

2 stressful days - 2 chilled days.

It's treacherous, because I've gotten so good at pacing, that on the morning of day 3 I feel relatively fine cuz I have prioritized sleep and watched out for what I ate and drank on the stressful days. So I FEEL as if I am okay, but I'm actually not. If I should have a 3rd stressful day with lots of interaction, activity and stuff, 2 days won't be enough to recuperate quickly and I'll fall into an hole of overwhelm and exhaustion.

#ActuallyAutistic #pacing

The unusual method I use to help encourage me to rest 5-7 hours per day

What do you do to help encourage yourself to rest?

#MEcfs #pacing #rest #pwme #longcovid @mecfs @longcovid

Recognising #PEM early in your patients is critical for safe and #MECFS informed care.

PEM can be hidden - patients may appear well during appointments but experience significant deterioration afterwards.

You can learn more about PEM and #pacing - https://zurl.co/nnY1W

#MEcfs #LongCovid #PostExertionalMalaise #PEM @mecfs @longcovid

How to fix your pacing: it is not about how fast the story moves, it is about where you let it stop. Think of the calm meal before the journey turns dark. Those quiet beats are where readers catch their breath and start to care. Master the stops and you master the speed. Writing tips for your first draft and beyond.🙌

#writingcommunity #amWriting #writing #writingtips #pacing #creativewriting

What’s something healthy people take for granted that you think about every day?

For me, it’s the tiny everyday things that aren’t tiny anymore.

Showering.
Leaving the house.
Standing in line.
Making plans.
Doing one “normal” thing without calculating the recovery cost.

Chronic illness changes the way you move through the world.

What’s one thing you wish people understood?

#ChronicIllness #ChronicPain #SpoonieLife #InvisibleIllness #DisabledLife #ChronicIllnessAwareness #Pacing

2/2 For Apple watch theres TachyMon. It ticks a lot of the boxes - although apple doesn't calculate stress or body battery.

https://www.whipdev.com/tachymon

#pacing #pots #mecfs #longcovid #smartwatchPacing #garmin

Does anyone know of (or, long shot, can you make one) a Garmin app that will actively measure your heartrate (ie, all sensors engaged, not the standard continuous measuring), without labeling it as activity/excercise?

I'd like to monitor more precisely at certain times, and the best way to do that to my knowledge is to start an activity. But activities exclude the time spent from the stress graph, while I'd like it to be included.

1/2

#pacing #LongCovid #mecfs #POTS #smartwatchPacing #Garmin

post covid + burnout = bad combination.
0/5 stars. would not recommend.

#PostCovid #PAIS #burnout #pacing

QUESTIONS

1
My main question is for tips on how to manage orthostatic hypotension.
There is a lot of discussion about what to concentrate on during training with hypotension versus hypertension, but the first question is probably: Should I even treat this as a hypotension and concentrate on getting my blood pressure up or should I rather concentrate on better regulation of blood pressure, if that is even possible. For example for burnout I learned that to reduce stress the goal is not to get the heart rate down, but to increase the heart rate variability (HRV). Is there such a thing as training for blood pressure variability/flexibility?

2
Next question is for tips on how to manage burnout and PAIS if and when I get both at the same time.
My burnout management involves lots of activities ranging from light intensity long walks to sprints and high intensity interval training and strength training as well as lots of meditation, breathing exercises. I try to go for a walk for at least one hour after every meal, because (at least during a sick-leave) meals cause the most and longest lasting stress if I don't walk it out. That's why I try to eat only once a day at noon - eating in the evening can ruin my sleep.
My management during an infection that feels like the start of a PAIS involves lots of sleeping without any circadian rhythm detectable and very little activity.
My management of PAIS involves pacing which I'm not good at yet though. It's really hard to know what is too much and what is too little. But I guess I can't be very wrong with just lots of slow walking without too much uphill parts.

3
Now if you have any other general tips on managing any of the mentioned ailments feel free to let me know. I didn't mention everything I know already, but feel free to also mention things you assume I already know.

#FollowerPower #PleaseHelp #AskFedi #question #burnout #pais #PostCovid #LongCovid #MECFS #FatigueSyndrome #fatigue #orthostasis #OrthostaticHypotension #OrthostaticDysregulation #pacing #HRV #BloodPressure #BloodPressureManagement #syncopation #BurnoutManagement #PAISManagement

I have questions to people who have knowledge about Burnout, PAIS (post-acute infection syndromes, like Post/Long-Covid, ME/CFS, etc...), orthostatic hypotension, blood pressure management, fitness, pacing, etc.

This will be a long post and you don't have to read all of it. Just look for the paragraph with the headline "questions" in the first reply.
I'm mostly writing so much to get my own thoughts in order.

NOTICE

I'm asking this here in the Fediverse because this is the best place to reach actual people who know stuff. Before the ecocide slop boom I'd have started with internet research, but that's no real option anymore. If an account answers me that seems like AI it will be blocked. If you answer me with what you just found on random internet sites, you will be blocked. Everybody else: Thank you! Btw you don't have to be a formal expert on any of the subject matters. Anecdotal evidence by people affected or relatives is highly valuable too.

BACKGROUND

I'm prone to both burnout and PAIS (undiagnosed, because the health system is inadequate) but haven't yet had both of them at the same time. This might be different now. My burnout is definitely back and I'm having an infection that feels a lot like it will turn into a PAIS. I've had a PAIS two times both starting in MAy of 2024 and 2025 and lasting for 3 months each. So this would be the right time to get it again. Since the last PAIS I've had two infections though that felt like the start of PAIS, but I probably stopped them with lots of medication, supplements and other methods.
My last sick-leave was due to my first burnout for 6 weeks (obviously not long enough).
I'm on sick-leave again since Wednesday because the burnout is back - the infection broke out one day later, but probably already made my body weaker before, playing a role in the burnout-relapse.

MY SYMPTOMS

For burnout my main symptoms are: tinnitus, tensions in the ear, jaw & neck area, headaches, bad sleep, fatigue, susceptibility to stress, low psychic resilience.
For the PAIS its fatigue, bad sleep, brain fog, bad performance in all systems (fitness, cognition, social, etc..), malaise, some symptoms of a cold or allergy (constant tingle in my nose, running nose, sometimes coughing and sneezing, ...) and bad memory that lasts longer than everything else (years instead of months).

SPECIAL SYMPTOM: ORTHOSTATIC HYPOTENSION

I've had bad orthostatic hypotension as a child with regular syncopations. It has gotten better (rarer) and I've learned how to deal with it, at least a bit. I do still have it whenever I have an illness that makes me bedridden, like infections and depressions.
There are basically 4 levels:
1 (usually without positional change): I feel that something is wrong with my orthostasis.
2 (usually with some positional change, like from lying to sitting): I feel dizzy and weak, like my brain is not supplied with blood as it should be, but no signs of unconsciousness.
3 (usually when changing from lying to standing): I feel my conciseness fading, I get tunnel vision, my legs let up and I have to hold tight to make sure I don't fall. I get the feeling of a slight dissociation, but I'm still there enough to control it and it slowly fades away giving me a warm comfortable feeling when the blood flows back to everywhere where it's needed.
4. (sometimes combined with 3 and me not controlling it well, sometimes immediately after standing up too quick after lying for a while): I loose consciousness and fall down, sometimes banging my head badly. I haven't had this level since my teenage years and my consciousness always came back immediately when I'm on the ground.
Now I've learned that orthostatic hypotension is both a symptom and a risk factor for PAIS and since I've had it forever I think it might be a good idea to learn to manage it better as to not get PAIS again or at least less frequent.

#FollowerPower #PleaseHelp #AskFedi #question #burnout #pais #PostCovid #LongCovid #MECFS #FatigueSyndrome #fatigue #orthostasis #OrthostaticHypotension #OrthostaticDysregulation #pacing #HRV #BloodPressure #BloodPressureManagement #syncopation #BurnoutManagement #PAISManagement

with adhd you can get your daily steps in without leaving the house #hikkikomori #pacing

Hausarbeit ist für mich immer eine besondere Herausforderung und bedeutet Frust, weil ich kaum mehr als einen Raum auf einmal schaffe. Also bringe ich das Wenige möglichst zügig hinter mich. Sprich: wenig geschafft, viel Schmerz usw.
Nun mache ich es genau umgekehrt:
Ich unterbreche die (sehr) ausgedehnten Pausen mit jeweils kurzer Arbeitszeit und nenne das ab jetzt 'Slow Cleaning'.
So hab ich heute 3 Zimmer geputzt 🥳.
Danke, T. ❤️

#LebenmitMECFS #LebenmitSchmerzen #Pacing #Resilienz

Ik kreeg deze tip van @MargotvdBerg : Pacely, een app die je helpt om te pacen. Voor bijvoorbeeld mensen met post-covid of ME.

Wat op de site staat, ziet er al goed en interessant uit. Ik ga 'm proberen:

https://pacely.nl/

#postcovid #LongCovid #pacing

Nieuwe app bij de garmin LongCovid pacing app: History!
Pakt de data en geeft je dag inzicht en grafieken met interval van een week tot max 6 weken.

Developer info
https://sites.google.com/view/pacing-with-garmin/

#pacing #longcovid #garmin
@longcovid @mecfs

Er, I also have a side hustle providing feedback to #writers on their work. I focus on #voice, #narrative, #dialog, and #pacing, among other things. Need somebody to read your latest #shortstory, or #memoir, or #flash fiction? I'm your guy.

#writer #editor #reader

Also you can download this simple website to use offline! Unlike planet-killing AI / LLM plagiarism machines.

https://youfeellikeshit.com/

#ND #NeuroDivergent #NeuroDiverse #SelfCare #MentalIllness #MentalHealth #Healthcare #PhysicalHealth #Hygiene #PersonalHygiene #Nutrition #Movement #Stretch #UnclenchYourJaw #Exercise #Water #Drink #GoDrinkWater #Liquid #Fluid #Juice #ADL #ActivitiesOfDailyLiving #Living #Mobility #MobilityAides #Health #Disability #Disabled #Disabilities #Spoonie #SpoonTheory #ChronicallyIll #ChronicIllness #ChronicWellness #Pacing #PaceYourself

ME/CFS und die Suche nach einer Rehaklink
https://maintz.org/mecfs-rehaklinik

#MECFS #Pacing #PEM #PostCovid #KrankzuHause #Crash

Teilt doch mal bitte den Post von @mel

https://metalhead.club/@mel/116447924692431282

#FediHelp #FediPower #MECFS #Pacing #PEM #PostCovid #KrankzuHause #Crash

Hallöchen meine Lieben, mal eine kleine Frage an die ME/CFS erkrankten oder diejenigen die damit Erfahrung haben.

Ich suche eine Rehaklinik die sich mit ME/CFS auskennt und das Pacing berücksichtigt.

Meine Situation hat sich verschlechtert und der MDK hat eine Reha empfohlen, nur will ich nicht mit meinem Crash erneut meine Situation verschlechtern.

Hat vielleicht Jemand eine Idee?

Gerne teilen, danke. ❤️

#PostCovidMECFS #MECFS #Pacing #PEM

I just wanted to say a huge thank you to MEAction Network (https://www.meaction.net/) and Visible (https://www.makevisible.com/) for the Visible band I won last month 👍 Having had ME/CFS for over 15 years I thought I knew everything about pacing but the Visible band has even taught this old dog some new tricks. Very cool 😎

#MECFS #MEAction #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigue #ChronicFatigueSyndrome #ChronicIllness #CFS #Spoons #Spoonie #Pacing #Health #Visible #Visibleband

#LongCOVID #MECFS

Sudden 1-week #PEM rollercoaster after a VERY relaxing trip to my Swiss mountain home.

I just can't seem to recover. And no idea why except, perhaps, for the (mild) cold I caught while traveling? The 1st in months, btw, thanks to masking.

#Pacing is everything, I know. But how do I pace myself, if triggers/thresholds seem to be constantly shifting, for 2.5 yrs already now?

This must be one of the most frustrating diseases ever. I don't know my body & its limits anymore...

So ihr kleinen süßen Dämonen :dragon_heart:

habt alle noch einen schönen Sonntagabend, die Wirtin macht sich jetzt vom Acker und überlässt dem jungen Ogar und seiner Assistentin Elfie die Taverne.

Dank Überlastug brauche ich jetzt etwas Ruhe und muss runterfahren die nächsten Tage.

Kommt gut in die Neue Woche und lasst euch nicht zu sehr ärgern. 😘

#MECFS #PEM #Pacing #Crash

So ihr Lieben, habt alle noch einen schönen Sonntagabend, ich mach mich vom Acker.

Dank Überlastug brauche ich jetzt etwas Ruhe und muss runterfahren die nächsten Tage.

Kommt gut in die Neue Woche und lasst euch nicht zu sehr ärgern. 😘

#MECFS #PEM #Pacing #Crash

@pixeldailies.bsky.social

@pixeldailies.bsky.social blocked

(it was a little too fast so I slowed it down)