#longcovidawarenessday — Public Fediverse posts

📣 Mar. 19's #ThreatModelCovid: 🌍 #LongCovidAwarenessDay pics, NZ rejects WHO pandemic rule changes, & more 🦠 Please share & support 𝙏𝙝𝙧𝙚𝙖𝙩 𝙈𝙤𝙙𝙚𝙡 newsletters (𝘛𝘶𝘦𝘴𝘥𝘢𝘺𝘴 #infosec / 𝘛𝘩𝘶𝘳𝘴𝘥𝘢𝘺𝘴 #covid) & their maker, investigative journalist @[email protected] www.patreon.com/posts/covid-... 𝟷/𝟹

Covid: March 19, 2026 | Threat...

„Viele Ärzt*innen kennen die Krankheit nicht, sie behandeln sie falsch, man wird psychologisiert.“ Nach dem #longcovidawarenessday haben wir mit Helmut Frahs gesprochen, der seit 4 Jahren seine an #MECFS erkrankte Tochter pflegt, die mit jetzt 14 Jahren, täglich 24 h im Bett bleiben muss. Ausgelöst wurde die Krankheit durch eine #Covid Infektion. Frahs nahm sich in den letzten vier Jahren einen Tag frei. #longcovid https://rdl.de/beitrag/von-menschen-denen-man-eigentlich-vertraut-wird-man-ausgelacht

Strange when politicians who've said nothing about Long COVID, not even on #LongCovidAwarenessDay, are congratulating themselves on their public health leadership

Strange when politicians who've said nothing about Long COVID, not even on #LongCovidAwarenessDay, are congratulating themselves on their public health leadership

So sieht der #LongCovidAwarenessDay, den ich wegen Crash verpasst habe, in Canada aus. Bin geflasht.

If you are not wearing a well-fitting mask in shared spaces you are lagging behind (i.e uninformed/ignorant of the harms of SARS2) and you aren't protecting those who can't wear one. #Longcovidawarenessday

Can't believe how pretty my province is right now all lit for Long Covid. A powerful reminder that this issue is far from gone 🩵 Photo credits: 📸 Long Covid Foundation BC Parliament Science World/BC Place Canada Sails of Light With thanks to @[email protected] #LongCovidAwarenessDay

Can't believe how pretty my province is right now all lit for Long Covid. A powerful reminder that this issue is far from gone 🩵 Photo credits: 📸 Long Covid Foundation BC Parliament Science World/BC Place Canada Sails of Light With thanks to @[email protected] #LongCovidAwarenessDay

it’s #LongCovidAwarenessDay

it’s 3.5 years since my first and only known #covid infection

and i’m still sick.
still picking up the pieces.
still adjusting to my new “normal”.

heart rate alert from my watch from just standing in the kitchen after climbing the 4 steps into our house.

It’s Long Covid Awareness Day.

This year marks 3 years of living with it for me… and my health continues to be precarious.

I do my best to walk through life in the present and to manage what I’m able to - while relentlessly advocating for myself in the Canadian* medical system.

If this sounds like you too… know that you’re not alone. I see you.

#LongCovid #MECFS #POTS #LongCovidAwarenessDay

*added for clarity. I also do not currently have any spoons, I’m minus spoons and bed ridden, so I cannot reply to DMs.

Reminder for Long Covid Awareness Day:

Some research studies have found many Long Covid cases meet diagnostic criteria for ME/CFS. And many of those folks never recover.

Your risk of getting Long Covid goes up with each COVID infection. The best way to avoid Long Covid is to avoid getting a COVID infection -- get the vaccine/booster, wear a mask, improve ventilation, etc.

comic source = https://cfsgraphics.com/graphics-21

#LongCovidAwarenessDay #LongCovid #MEcfs #CovidIsNotOver #MaskUp

@bebatjof
For that matter, covid is SARS2; did anyone ever check back how the survivors of the original SARS were doing a decade later?

(spoiler: they did, it wasn't good)

#LongCovid #LongCovidAwarenessDay

Today's top ten tag trends:

10: #longcovidawarenessday
9: #caturday
8: #idesofmarch
7: #livtot
6: #oscars
5: #SilentSunday
4: #ListeningClub
3: #lfc
2: #豊臣兄弟
1: #romaneratvshows

#trendytoots 📈

Did you know?

According to a Statistics Canada report from 2023:

➡️ 1 in 9 Canadian adult have experienced long-term COVID-19 symptoms, which is approximately 3.5 million Canadians.

➡️ Only 1 in 8 Canadians who sought help felt they received adequate care.

https://www150.statcan.gc.ca/.../202.../article/00015-eng.htm

#LongCovidAwareness #LongCovidAwarenessDay #LongCovid #LongCovidResearch #LongCovidSupport

This Long Covid Awareness Day let us remember the millions who've been disabled by the virus.

The people who've been forgotten and left behind.

The folks who have to hide their diagnosis because of the stigma attached to it.

You think you don't know anyone with Long Covid?

I promise, you do:

https://www.disabledginger.com/p/long-covid-awareness-day-2026

#longcovid #longcovidawarenessday #COVIDisAirborne #CovidIsNotOver #sarscpv2 #disability #ableism

i wish we'd life in a world where #longcovidawarenessday wouldn't be needed. both to all those suffering severely, cause ya sure all don't deserve the hell longcovid brought to you and to all those with only mild issues, never aware what they actually have. there's so many without a clue..

#LongCovidAwarenessDay #mecfs

Wir sind noch meilenweit weg von einer anständigen Behandlung der mindestens 80'000 #LongCovid erkrankten in Österreich.

https://www.derstandard.at/story/3000000312217/analyse-eines-betroffenen-mecfs-und-die-erfahrungen-mit-aerzten-und-gesundheitssystem

#Firefly is now trending across Mastodon

#LongCovidAwarenessDay is now trending across Mastodon

Lieve vrienden met long covid, ik zie jullie.

#LongCovidAwarenessDay

Looking for a way to help on Long Covid Awareness Day?

Solve ME & #MEAction are looking for volunteers for Advocacy Week 2026 (March 23-27)

US doctors often have little to no formal education about ME/CFS, Long Covid, or other infection-associated chronic conditions (IACC)

So the focus this year is on medical education. Details:

https://solvecfs.org/registration-open-for-me-cfs-advocacy-week-2026/

Registration:

https://docs.google.com/forms/d/e/1FAIpQLSdR4eWbC6OWn1LAFAJhFg_CFz2xOaLYTPzj6kjSDELhAu0fdg/viewform

If you volunteer, thank you! ❤️

@longcovid

#LongCovidAwarenessDay #CovidIsNotOver #LongCovid #MEcfs

@RonjaBiernat

Sending you some love ❤️ Grieving is hard work 😔

I stand in solidarity with everyone out there who has Long Covid! 💪

As well as all the family members and caregivers who are also affected by this horrible illness.

Signed, someone who has lived with ME/CFS since 1990.

#LongCovid #PAIS #CovidIsNotOver #LongCovidAwarenessDay

"Awareness days/months matter because they help bring visibility to conditions that often go unrecognized or misunderstood.

But our work and the work of this community continues every day.

Together, through research, medical education, advocacy, and shared knowledge, we can move closer to answers and better care for everyone…

Thank you for being part of this community and for helping shine a light on Long Covid."

https://solvecfs.org/recognizing-long-covid-awareness-day-resources-for-you/

5/5

@longcovid

#LongCovidAwarenessDay #LongCovid

"Solve recently called for the designation of March 15 as International Long COVID Awareness Day in Los Angeles. The resolution passed, and City Hall was lit in teal on March 15 to mark the occasion.

We’ve also drafted a sample media pitch letter that you can personalize and send to news outlets to encourage reporters to cover Long Covid Awareness Month."

Sample letter:

https://solvecfs.org/wp-content/uploads/2026/03/Long-Covid-Awareness-Month-media-pitch.docx

4/n

@longcovid

#LongCovidAwarenessDay #LongCovid #PostCovid #CovidIsNotOver

Resources for Long Covid:

- Summaries of the latest research

- Clinical care guides dedicated to Long Covid and related conditions

- Resources for patients and caregivers navigating life with chronic illness

- Links to webinars featuring Long Covid researchers and other experts in the field

Link to Google doc with resources:

https://docs.google.com/spreadsheets/d/1yYAXIn9ae_UDR2haVl4jZnJXcMQq1Bz4nXJJotRmR5k

3/n

@longcovid

#LongCovidAwarenessDay #LongCovid #CovidIsNotOver

Today is #InternationalLongCovidAwarenessDay.

Did you know that the only way to avoid #LongCovid is to avoid a SARS-CoV-2 infection? 🦠 The best way to avoid infection is to wear a respirator mask. 😷

Find one online in our charity fundraising store: buymask.ca

Request: https://donatemask.ca/request
Donate: https://donatemask.ca/donate

#LongCovidAwarenessDay #CureLongCovidNow #MaskUp #WearAMask

"Access to clear, trustworthy resources can help people better understand what they or their loved ones may be experiencing and find ways to navigate the road ahead.

To mark Long Covid Awareness Day, we’ve joined forces with #MEAction, Bateman Horne Center, and the Open Medicine Foundation as #UnitedForME.

We’ve gathered a set of resources designed to inform and empower patients, caregivers, and supporters."

2/n

@longcovid

#LongCovidAwarenessDay #LongCovid #PostCovid #CovidIsNotOver

@longcovid The new @patientled #LongCovid Treatment Guide is out!
——
About the Guide:

This guide is meant to spark meaningful conversations with patients and their clinicians about potential treatment options. It is not an exhaustive list, nor is it intended as individualized medical advice. Instead, it offers thoughtfully selected options clinicians and patients can explore together, based on the unique symptoms, needs, and goals of
each patient.

The treatments focus on options that have shown moderate to substantial benefit in at least 20% of individuals with Long COVID in the Harvard/ Stanford TREATME Study (PMID: 40627388 ), that show meaningful promise in clinical practice, or that have shown benefit in other infection-associated chronic conditions.

The guide is focused on medications, but does include a few supplements, procedures, and lifestyle strategies to reflect the diverse nature of Long COVID care options.

https://www.rthm.com/treatmentguide
#LongCovidAwarenessDay

Long Covid Awareness Day post from Solve ME:

https://solvecfs.org/recognizing-long-covid-awareness-day-resources-for-you/

"Long Covid has affected people of all ages and backgrounds.

For many, it means navigating persistent symptoms that disrupt work, family life, and everyday routines.

For others, it has been the start of a much longer journey with infection-associated chronic conditions, including illnesses like ME/CFS and related disorders."

1/n

@longcovid

#LongCovidAwarenessDay #LongCovid #PostCovid #PASC #MEcfs #CovidIsNotOver

#LongCOVIDAwarenessDay Wer an einer Studie zur Erforschung genetischer Komponenten von Long COVID teilnehmen möchte, kann z.B. an der „genomLC-Studie“ des Universitätsklinikums Bonn teilnehmen. Unter diesem Link geht‘s zu den Infos und der Registrierung: genom-lc.de 1/3

RE: https://bsky.app/profile/did:plc:shmtd76ykcmmw2a5ioc7giq6/post/3mh44btfjps25

Home - Genom-LC

@Themikina @rybson
Here's some info from #MEAction, an advocacy group for both ME/CFS and Long Covid:

https://www.meaction.net/stoprestpace

https://www.meaction.net/long-covid-and-mecfs

Hope this helps!

PS. Long Covid page from the CDC website:

https://www.cdc.gov/long-covid/index.html

#MEcfs #LongCovid #LongCovidAwarenessDay

"LongCovid is new"

Post-viral diseases aren't new.
Dysautonomia isn't new.
ME/CFS isn't new.
Endothelial dysfunction isn't new.
MCAS isn't new.
Auto-immune issues aren't new.
Chronic inflammation isn't new.
POTS isn't new.
PEM isn't new.
Blood clots aren't new.
Tinnitus isn't new.
Mitochondrial dysfunction isn't new.
Migraine isn't new.

#LongCovid #LongCovidAwarenessDay

It's #LongCovidAwarenessDay. #longCOVID is about justice - workers' rights, equity, disability, the environment (add up the carbon footprint of the hospital days!), fighting misinfo and pseudoscience. If you care about any of those, you care about stopping COVID. #polisky #cdnpoli #scisky #medsky

RE: https://bsky.app/profile/did:plc:ou6sjyhswn7s3qyfqhw7mbk6/post/3mh447smqmk2l

Science, Pseudoscience and Pub...