#disabilitysos — Public Fediverse posts

New video from #MEAction

"The #MillionsMissing Share Their Stories 2025"

https://www.youtube.com/watch?v=BTCqXA1p8OY

"…a small sampling of the Millions Missing. You sent in your photos and a few words for us to display at #MillionsMissing 2025.

These stories deserve to be told. Each person deserves to be seen. And know that they represent so many others."

Still images here:

https://www.meactions.org/the-millions-missing

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC #MEAwareness #MillionsMissing #Disability #DisabilitySOS

Email update from #MEAction

"Millions Missing 2025: SOS - The Signal Was Sent!"

https://mailchi.mp/meaction/millionsmissing-2025-our-common-fight-is-what-matters-3574417

Lots more photos and videos - from the protest in DC, from folks who posted from home, and from other countries.

Also includes updates on meetings with congress, more signatures on the #MEAction letter to NIH, the fight to save Medicaid from budget cuts, and more.

@mecfs

#MEcfs #LongCovid #MillionsMissing #Medicaid #SaveMedicaid #DisabilitySOS

Okay, I think that's it! If you've made it all the way to the end of my thread, thanks so much for reading! 😁

I may be done posting but I'll continue to look for and boost other posts about World ME Day / ME Awareness Day / Millions Missing.

I'll end with a story by The Sick Times about the #MEAction Millions Missing protest at the capitol:

https://thesicktimes.org/2025/05/12/millions-missing-protest-at-the-capitol-demands-myalgic-encephalomyelitis-funding-social-support/

16/16

@mecfs @longcovid
@disability

#MEcfs #LongCovid #MillionsMissing #DisabilitySOS #MEAwarenessDay #WorldMEDay

💙 It's May 12th, International ME/CFS Awareness Day 💙

My ME/CFS onset was in Jan 1990

🚨 Many recent ME/CFS cases have been triggered by COVID 🚨

In this thread I plan to post about 3 main things:

1. My ME/CFS story (briefly)

2. Helpful resources for patients and clinicians

3. Advocacy options for patients & allies (friends/family) - mostly US based

1/n

@mecfs @longcovid

#MEcfs #LongCovid #PostCovid #Disability #DisabilitySOS #CovidIsNotOver #MillionsMissing #MEAwareness #WorldMEDay

Jamie Seltzer from #MEAction talks about tomorrow's Millions Missing S.O.S. protest in Washington, DC (at noon EDT)

https://www.youtube.com/watch?v=3CFxmR7QxUw

Want to join in? Go to

https://www.meactions.org/millionsmissing25

#MEAction encourages all people with disabilities to join this fight!

@mecfs @longcovid @disability

#MillionsMissing #MEcfs #LongCovid #MEAwareness #Disability #DisabilitySOS

Message from #MEAction

"‪Sign up now for our #MillionsMissing storytelling training coming up this Sunday, April 27th at 12 pm PT/ 3 pm ET!

Expert storyteller, Kirsten Ferrell, will help us articulate our SOS stories in a quick and effective way"

Event lasts about 1 1/2 hours.

https://www.eventbrite.com/e/millionsmissing-2025-sos-storytelling-training-tickets-1329189033179

@mecfs

#USPol #MEcfs #PwME #Disability #DisabilitySOS #MEAwareness #Activism