#may12 — Public Fediverse posts

Thanks very much to our member, Éabha Melvin, for doing this interview today on Nuacht TG4 to mark May 12.

This clip was posted on X. On tv, the newsreader also said a little about it by way of introduction.

#MEcfs #PwME #May12 #Mastodaoine @mecfs

12/

May 12 is International Myalgic Encephalomyelitis (ME) Day (and May is
ME Awareness Month).

You can help by sharing and/or liking this image.

Day #12

#MyalgicE #MyalgicEncephalomyelitis #May12 #May12th #MEAwarenessDay
#MillionsMissing #mecfs
@mecfs

I had a stressful dream last night, maybe appropriate for May 12! In the dream, I have a new or stand-in GP [family physician] and I am trying to persuade them to sign a disability form. They are smirking away, not very sympathetic. So I have to list my symptoms and losses over the years.

#MEcfs #May12 #May12th #WorldMEday #pwme @mecfs

12/

May 12 is International #MyalgicEncephalomyelitis (ME) Day (and May is ME Awareness Month) You can help by sharing and/or liking this (well-made) video.

(3 minutes)

https://www.youtube.com/watch?v=IOflARSgNnE

Day 12
#MyalgicE #May12 #May12th #WorldMEDay2026
#WorldMEday #MEAwarenessDay
#mecfs
@mecfs

💙 May 12 — International Women in Mathematics Day

Today we celebrate women in mathematics and remember Maryam Mirzakhani, the first woman to receive the Fields Medal.

As part of the May12 initiative, several free screenings of the documentary "Secrets of the Surface: The Mathematical Vision of Maryam Mirzakhani" are being organized worldwide. 🎬✨

Discover events and screenings here:

https://may12.womeninmaths.org/

#May12 #WomenInMath #WomenInSTEM #MaryamMirzakhani #HerMathsStory #MathCommunity

I actually deteriorated over time, through following exercise, like many others with #MyalgicEncephalomyelitis.

Improving or even stabilising is not the only possible outcome following an infection.

Plenty of research shows a significant percentage of those with #LongCovid satisfy #MECFS criteria

Unfortunately, through a lack of research, proven effective treatments don't exist for ME so people can be left languish for decades with debilitating symptoms, like I have been

#May12 #PwME @mecfs

I'm one of millions missing from our lives due to Myalgic Encephalomyelitis, each with their own challenges and losses.

Unlike Covid lockdowns, the lockdowns we have dealt with for years due to #ME continue

#May12 #MEcfs #PwME #ME #MyalgicE
@mecfs

11/
May is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Awareness Month, with May 12 being International ME/CFS Day.

You can help by sharing +/or liking this image.

Day #11

#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #May12 #May12th
@mecfs

11/

#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonth

Please help by reposting and/or liking this 12-minute documentary
which features Whitney Dafoe & others

https://www.youtube.com/watch?v=9_HwOUiImvw

Day11

#PwME #SevereME
#mecfs

@mecfs

🧵 Info on #MEAction's Millions Missing 2026 campaign!

https://www.meaction.net/millionsmissing26

International ME/CFS Awareness Day is coming soon - May 12!

ME/CFS (myalgic encephalomyelitis / chronic fatigue syndrome) and Long Covid are disabling chronic illnesses that get far less funding for research than they deserve based on disease burden.

You can find some basic facts about ME/CFS here:

https://www.meaction.net/learn/what-is-me

1/5

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC #MillionsMissing #May12

From ME/CFS San Diego:

"Help ME/CFS San Diego raise awareness for ME/CFS this May!

We’re preparing for May awareness month and May/12 & need individuals to help distribute ribbons + makers to create them.

Groups and Organizations: Please partner with us to expand our reach."

Send email to [email protected]

Visit their website at https://www.mecfssandiego.com/

@mecfs

#MEcfs #PwME #May12 #MillionsMissing

12/

May 12 is International #MyalgicEncephalomyelitis (ME) Day (and May is ME Awareness Month) You can help by sharing and/or liking this
(well-made) video.

(3 minutes)

https://www.youtube.com/watch?v=IOflARSgNnE

Day 12
#MyalgicE #May12 #May12th #WorldMEDay2023
#WorldMEday #MEAwarenessDay

@mecfs

In spite of it all, I persevere.

I do as much as I can every day to maintain what little stamina and fitness I have, whilst keeping below a level at which I'll provoke a crash.

I can poke the internet, staying in contact with other people, because I have a properly set up computer, and I pretty much touch type, so little to no wrist involvement.

But in between activities, when I MUST rest, I rage, against the people who deny, deny and defund research into the condition.

#May12 #PwME #MECFS

"Happy" International ME Day!

So how is it today?

I did some cleaning last week, stopping Saturday. The pain in my muscles is constant, even in my sleep. My arms are fizzy today, worse than previous days. My right wrist has flared up so no lifting/using it.

Washing was a struggle this morning.

I required assistance to bring in the food delivery.

I batch cooked before starting the housework, because I knew I'd be unable to cook for days.

#May12 #PwME #MECFS #MyalgicEncephalomyelitis

۱۲ می و ۲۲ اردیبهشت، زادروز مریم میرزاخانی و‌ روز جهانی زنان در ریاضیات رو به همه تبریک میگم.

https://may12.womeninmaths.org/why

#12May #may12 #may12th #women #mathematics
#ریاضیات #زنان #۲۲اردیبهشت

12/

May 12 is International Myalgic Encephalomyelitis (ME) Day (and May is ME Awareness Month).

You can help by sharing and/or liking this image.

Day #12

#MyalgicE #MyalgicEncephalomyelitis #May12 #May12th #MEAwarenessDay #MillionsMissing
@mecfs

From World ME Alliance:

"Country-by-Country Highlights for World ME Day 2025"

https://worldmealliance.org/2025/05/country-by-country-highlights-for-world-me-day-2025/

"… a breakdown of national events and campaigns happening by country, highlighting the wide range of efforts to raise awareness, push for better care, and demand action for people living with Myalgic Encephalomyelitis (ME)"

#MEcfs #PwME #MEAwareness #MEAwarenessDay #May12 #MillionsMissing

Country-by-Country Highlights for World ME Day 2025

https://worldmealliance.org/2025/05/country-by-country-highlights-for-world-me-day-2025/

#May12 #WorldMEDay @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

11/
May is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Awareness Month, with May 12 being International ME/CFS Day.

You can help by sharing +/or liking this image.

Day #11

#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #May12 #May12th

@mecfs

11/

#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day

&

May is #MECFSawarenessmonth

Please help by reposting and/or liking this 12-minute documentary which features Whitney Dafoe & others

https://www.youtube.com/watch?v=9_HwOUiImvw

#Day11

#PwME #SevereME #SevereMECFS
#mecfs #VerySevereME
@mecfs

It's great that the august CDC continues to highlight May 12, ME/CFS Awareness Day.

https://www.cdc.gov/me-cfs/awareness-day/index.html

The provisional 2026 budget plans to scrap the CDC's ME/CFS research program. Hopefully lobbying will change this proposal.

#May12 @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

I actually deteriorated over time, through following exercise, like many others with #MyalgicEncephalomyelitis. Improving or even stabilising is not the only possible outcome following an infection.

Plenty of research shows a significant percentage of those with #LongCovid satisfy #MECFS criteria

Unfortunately, through a lack of research, effective treatments don't exist for ME so people can be left languish for decades with debilitating symptoms, like I have been
#May12 #PwME @mecfs

“ME/CFS and Long-COVID International Awareness Day - May 12” by Suzan Jackson

https://livewithcfs.blogspot.com/2025/05/mecfs-and-long-covid-international.html

#MEcfs #CFS #May12 #May12th @mecfs

I'm one of millions missing from our lives due to Myalgic Encephalomyelitis, each with their own challenges and losses.

Unlike Covid lockdowns, the lockdowns we have dealt with for years due to #ME continue

#May12 #MEcfs #PwME @mecfs

MAY 12th: International ME/CFS and FM Awareness Day

Links in image:
https://worldmealliance.org/worldmeday/custom-poster/

https://www.facebook.com/theslowlaneME/posts/blue-sunday-2025-a-day-of-community-and-fundraising-withfor-the-mecfs-community-/1537495707180020/

Screenshot from the AMMES May email newsletter

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #May12th #May12

🗣️ Reminder - May 12 is International ME Awareness Day!

Want to join #MEAction's Millions Missing 2025 protest in Washington, DC but can't go in person?

You can attend virtually by submitting a photo of yourself:

https://airtable.com/appvOnNOiTgI2nkvZ/pag2nXKnHLIHypnN7/form

🚨Deadline is May 5th! (end of day)🚨

Find more advocacy actions on the main Millions Missing 2025 website:

https://www.meactions.org/millionsmissing2025

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PASC #PostViral #MillionsMissing #May12

#MillionsMissing 2025: Sending Out An SOS

Reminder: Two planning meetings for #MEAction Millions Missing 2025 (for ME/CFS Awareness Day - May 12) are scheduled for tomorrow!

https://www.meaction.net/2025/04/08/why-were-sending-out-an-sos-this-millionsmissing/

Here's how to sign up

Meeting 1: Thursday, April 10, 12 pm Pacific, 3 pm Eastern

https://us06web.zoom.us/meeting/register/EHwZzzubSpqIi31vM1VRNQ#/registration

Meeting 2: Thursday, April 10, 3 pm Pacific / 6 pm Eastern

https://us06web.zoom.us/meeting/register/2hriH4c1RU6VbSGbEBrjHA#/registration

@mecfs

#MEcfs #PwME #MEAwareness #MyalgicEncephalomyelitis #May12