Live and recent posts from across the Fediverse tagged #mecfsawarenessmonth, aggregated by home.social.
"Research shows that ME/CFS is a biological illness – so why do some people still think it is psychological in nature?
(..)
The article notes that, throughout history, many biological diseases have been dismissed as psychosomatic. While the majority of these diseases (...) are now accepted as ‘biological’ by medical professionals, the same cannot be said for others, including ME/CFS."
Unfortunately still relevant..🙄
“International #MECFS Day has been on Florence Nightingale's birthday since the early 1990s. Florence Nightingale, the founder of modern Western nursing, was bedridden for decades after contracting Crimean fever, suffering from post-infectious symptoms similar to those of ME/CFS, yet she continued to do much good from her bed.”
About Florence:
https://www.meresearch.org.uk/international-me-awareness-day-and-world-me-day-2026/
(in German)
https://bsky.app/profile/did:plc:sxphshtspyjmwnjd43t5zynl/post/3mle4ydsots2q
Quotes above
(Year updated):
https://www.mecfs.de/mecfs-tag-2022/
"The World Health Organization (WHO) classified ME/CFS as a neurological disease 57 years ago, yet patients and their families must continue to fight for recognition, care, and research—sometimes from their beds.
For something that should actually be a given:
that seriously ill people receive adequate medical and social care."
German Society for #mecfs
"Der Internationale ME/CFS-Tag findet seit Anfang der 90er Jahre am Geburtstag von Florence Nightingale statt. Florence Nightingale, die Begründerin der modernen westlichen Krankenpflege, war nach dem Krimfieber selbst jahrzehntelang postinfektiös mit ME/CFS-ähnlichen Symptomen bettlägerig und hat vom Bett aus noch viel Gutes bewirkt."
Zu Florence:
https://bsky.app/profile/did:plc:sxphshtspyjmwnjd43t5zynl/post/3mle4ydsots2q
Link/Zitate
(Jahreszahl aktualisiert von mir):
11/
#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonth
Please help by reposting and/or liking this 12-minute documentary
which features Whitney Dafoe & others
https://www.youtube.com/watch?v=9_HwOUiImvw
Day11
Reminder: Protestaktion zum Internationalen MECFS-Tag morgen, 9. Mai in vier österreichischen Städten. Kommet!
Wien: 9. Mai, 14:00 – 16:00 Uhr, Platz der Menschenrechte
Bregenz: 9. Mai, 14:00 – 15:00 Uhr, Bregenz Hafen
St. Pölten: 12. Mai, 16:00 – 17:00 Uhr, Am Rathausplatz Nord
Graz: 17. Mai, 11:00 – 18:00 Uhr, Hauptplatz Graz
Für viele schwer an ME/CFS erkrankte Menschen ist ein Arztbesuch schlicht unmöglich. Sie sind zu krank, um das Haus zu verlassen, und Hausbesuche werden ihnen meist verweigert. Die Lost Voices Stiftung hat eine Lösung: eine virtuelle Sprechstunde, die speziell auf die Bedürfnisse dieser Patient:innen zugeschnitten ist.
Die Erfahrung zeigt, dass “eine Klinik derzeit kein geeigneter Ort für Menschen ist, die an #mecfs leiden."
#mecfsawarenessmonth
Spenden helfen sehr 🙏🏼
https://www.betterplace.org/de/projects/154773?utm_campaign=user_share&utm_medium=ppp_sticky&utm_source=Whatsapp&utm_content=bp
11/
#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonth
Please help by reposting and/or liking this 12-minute documentary which features Whitney Dafoe & others
On 12.05.2024 it was #MECFSAwarenessDay
A most horrific disease with no treatment available and still severely underfunded in terms of recognition and research
In support of a good friend slowly dying from it and all the others suffering unseen, decided to join in with an art-statement in my finest pyjamas in front of #semperoper in #dresden
11/
#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonth
Please help by reposting and/or liking this 12-minute documentary which features Whitney Dafoe & others
https://www.youtube.com/watch?v=9_HwOUiImvw
#PwME #SevereME #SevereMECFS
#mecfs #VerySevereME
@mecfs @severeme
11/
#May12 is #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Day
&
May is #MECFSawarenessmonth
Please help by retooting this 12-minute documentary which features Whitney Dafoe & others
https://youtube.com/watch?v=9_HwOUiImvw
#PwME @mecfs @cfs #SevereME #SevereMECFS
#SevereCFS #VerySevereME @SevereME