#hypermobility — Public Fediverse posts on home.social

Pour commencer par un truc intéressant : étude[1] rétrospective sur des dossiers médicaux qui cherche à évaluer la prévalence de SEDh/HSD (syndrôme d'Ehlers-Danlos type hypermobile/trouble du spectre de l'hypermobilité) chez les personnes trans/nb. Elle trouve :

prévalence de 2.62% chez les personnes transmasc
prévalence de 1% chez les personnes transfem
pas de différence significative dans la prévalence vis-à-vis de la prise ou non de TH

La même étude trouve une prévalence de 0.16% chez les femmes cis et 0.04% chez les hommes cis ; ça fait presque 20 fois plus de chances d'avoir un SED chez les personnes trans (OR 18.45).

Ça recoupe quelques autres études qui montrent une prévalence importante de SEDh chez les personnes trans :

étude[2] dans un centre médical prescrivant des TH qui trouve une prévalence de SEDh de 2.7% chez des personnes trans
étude[3] dans un centre médical trouvant une prévalence de SED de 2.6% chez des personnes trans ayant eu une opération de transition (72% SEDh, le reste pas spécifié ; ~70% transmasc). Pas de surrisque de complications postop ou de réopérations dans ce groupe, pour principalement des mammecs, qqs orchis, et d'autres opés.
étude[4] dans un centre pédiatrique de prise en charge du SED trouvant une prévalence de dysphorie de genre de 17% chez des ados avec un diag de SED(h)/HSD

[1] : Prevalence of Hypermobile Ehlers-Danlos Syndrome in Transgender and Gender Diverse Individuals: A Retrospective Cohort Study. Tabernacki T et al., 2025. https://doi.org/10.1177/23258292251382250

[2] : The prevalence of hypermobile Ehlers–Danlos syndrome at a gender-affirming primary care clinic. Stein T et al., 2025. https://doi.org/10.1177/20503121251315021

[3] : Ehlers-Danlos syndrome: prevalence and outcomes in gender affirming surgery - a single institution experience. Najafian A, 2022. https://doi.org/10.20517/2347-9264.2021.89

[4] : Gender dysphoria in adolescents with Ehlers–Danlos syndrome. Jones JT et al., 2022. https://doi.org/10.1177/20503121221146074

#EDS #hEDS #trans #hypermobility #hypermobileEhlersDanlosSyndrome #HSD

#eds #heds #trans #hypermobility #hypermobileehlersdanlossyndrome #hsd

biyokea @[email protected] · 2026-04-05 · 15:33 UTC

Pour commencer par un truc intéressant : étude[1] rétrospective sur des dossiers médicaux qui cherche à évaluer la prévalence de SEDh/HSD (syndrôme d'Ehlers-Danlos type hypermobile/trouble du spectre de l'hypermobilité) chez les personnes trans/nb. Elle trouve :

prévalence de 2.62% chez les personnes transmasc
prévalence de 1% chez les personnes transfem
pas de différence significative dans la prévalence vis-à-vis de la prise ou non de THLa même étude trouve une prévalence de 0.16% chez les femmes cis et 0.04% chez les hommes cis ; ça fait presque 20 fois plus de chances d'avoir un SED chez les personnes trans (OR 18.45).

Ça recoupe quelques autres études qui montrent une prévalence importante de SEDh chez les personnes trans :

étude[2] dans un centre médical prescrivant des TH qui trouve une prévalence de SEDh de 2.7% chez des personnes trans
étude[3] dans un centre médical trouvant une prévalence de SED de 2.6% chez des personnes trans ayant eu une opération de transition (72% SEDh, le reste pas spécifié ; ~70% transmasc). Pas de surrisque de complications postop ou de réopérations dans ce groupe, pour principalement des mammecs, qqs orchis, et d'autres opés.
étude[4] dans un centre pédiatrique de prise en charge du SED trouvant une prévalence de dysphorie de genre de 17% chez des ados avec un diag de SED(h)/HSD

[1] : Prevalence of Hypermobile Ehlers-Danlos Syndrome in Transgender and Gender Diverse Individuals: A Retrospective Cohort Study. Tabernacki T et al., 2025. https://doi.org/10.1177/23258292251382250
[2] : The prevalence of hypermobile Ehlers–Danlos syndrome at a gender-affirming primary care clinic. Stein T et al., 2025. https://doi.org/10.1177/20503121251315021
[3] : Ehlers-Danlos syndrome: prevalence and outcomes in gender affirming surgery - a single institution experience. Najafian A, 2022. https://doi.org/10.20517/2347-9264.2021.89
[4] : Gender dysphoria in adolescents with Ehlers–Danlos syndrome. Jones JT et al., 2022. https://doi.org/10.1177/20503121221146074
#EDS #hEDS #trans #hypermobility #hypermobileEhlersDanlosSyndrome #HSD

#eds #heds #trans #hypermobility #hypermobileehlersdanlossyndrome #hsd

biyokea @[email protected] · 2026-04-05 · 15:33 UTC

Pour commencer par un truc intéressant : étude[1] rétrospective sur des dossiers médicaux qui cherche à évaluer la prévalence de SEDh/HSD (syndrôme d'Ehlers-Danlos type hypermobile/trouble du spectre de l'hypermobilité) chez les personnes trans/nb. Elle trouve :

prévalence de 2.62% chez les personnes transmasc
prévalence de 1% chez les personnes transfem
pas de différence significative dans la prévalence vis-à-vis de la prise ou non de THLa même étude trouve une prévalence de 0.16% chez les femmes cis et 0.04% chez les hommes cis ; ça fait presque 20 fois plus de chances d'avoir un SED chez les personnes trans (OR 18.45).

Ça recoupe quelques autres études qui montrent une prévalence importante de SEDh chez les personnes trans :

étude[2] dans un centre médical prescrivant des TH qui trouve une prévalence de SEDh de 2.7% chez des personnes trans
étude[3] dans un centre médical trouvant une prévalence de SED de 2.6% chez des personnes trans ayant eu une opération de transition (72% SEDh, le reste pas spécifié ; ~70% transmasc). Pas de surrisque de complications postop ou de réopérations dans ce groupe, pour principalement des mammecs, qqs orchis, et d'autres opés.
étude[4] dans un centre pédiatrique de prise en charge du SED trouvant une prévalence de dysphorie de genre de 17% chez des ados avec un diag de SED(h)/HSD

[1] : Prevalence of Hypermobile Ehlers-Danlos Syndrome in Transgender and Gender Diverse Individuals: A Retrospective Cohort Study. Tabernacki T et al., 2025. https://doi.org/10.1177/23258292251382250
[2] : The prevalence of hypermobile Ehlers–Danlos syndrome at a gender-affirming primary care clinic. Stein T et al., 2025. https://doi.org/10.1177/20503121251315021
[3] : Ehlers-Danlos syndrome: prevalence and outcomes in gender affirming surgery - a single institution experience. Najafian A, 2022. https://doi.org/10.20517/2347-9264.2021.89
[4] : Gender dysphoria in adolescents with Ehlers–Danlos syndrome. Jones JT et al., 2022. https://doi.org/10.1177/20503121221146074
#EDS #hEDS #trans #hypermobility #hypermobileEhlersDanlosSyndrome #HSD

#eds #heds #trans #hypermobility #hypermobileehlersdanlossyndrome #hsd

biyokea @[email protected] · 2026-04-05 · 15:33 UTC

Pour commencer par un truc intéressant : étude[1] rétrospective sur des dossiers médicaux qui cherche à évaluer la prévalence de SEDh/HSD (syndrôme d'Ehlers-Danlos type hypermobile/trouble du spectre de l'hypermobilité) chez les personnes trans/nb. Elle trouve :

prévalence de 2.62% chez les personnes transmasc
prévalence de 1% chez les personnes transfem
pas de différence significative dans la prévalence vis-à-vis de la prise ou non de THLa même étude trouve une prévalence de 0.16% chez les femmes cis et 0.04% chez les hommes cis ; ça fait presque 20 fois plus de chances d'avoir un SED chez les personnes trans (OR 18.45).

Ça recoupe quelques autres études qui montrent une prévalence importante de SEDh chez les personnes trans :

étude[2] dans un centre médical prescrivant des TH qui trouve une prévalence de SEDh de 2.7% chez des personnes trans
étude[3] dans un centre médical trouvant une prévalence de SED de 2.6% chez des personnes trans ayant eu une opération de transition (72% SEDh, le reste pas spécifié ; ~70% transmasc). Pas de surrisque de complications postop ou de réopérations dans ce groupe, pour principalement des mammecs, qqs orchis, et d'autres opés.
étude[4] dans un centre pédiatrique de prise en charge du SED trouvant une prévalence de dysphorie de genre de 17% chez des ados avec un diag de SED(h)/HSD

[1] : Prevalence of Hypermobile Ehlers-Danlos Syndrome in Transgender and Gender Diverse Individuals: A Retrospective Cohort Study. Tabernacki T et al., 2025. https://doi.org/10.1177/23258292251382250
[2] : The prevalence of hypermobile Ehlers–Danlos syndrome at a gender-affirming primary care clinic. Stein T et al., 2025. https://doi.org/10.1177/20503121251315021
[3] : Ehlers-Danlos syndrome: prevalence and outcomes in gender affirming surgery - a single institution experience. Najafian A, 2022. https://doi.org/10.20517/2347-9264.2021.89
[4] : Gender dysphoria in adolescents with Ehlers–Danlos syndrome. Jones JT et al., 2022. https://doi.org/10.1177/20503121221146074
#EDS #hEDS #trans #hypermobility #hypermobileEhlersDanlosSyndrome #HSD

#hsd #hypermobileehlersdanlossyndrome #hypermobility #trans #heds #eds

biyokea @[email protected] · 2026-04-05 · 15:33 UTC

Pour commencer par un truc intéressant : étude[1] rétrospective sur des dossiers médicaux qui cherche à évaluer la prévalence de SEDh/HSD (syndrôme d'Ehlers-Danlos type hypermobile/trouble du spectre de l'hypermobilité) chez les personnes trans/nb. Elle trouve :

prévalence de 2.62% chez les personnes transmasc
prévalence de 1% chez les personnes transfem
pas de différence significative dans la prévalence vis-à-vis de la prise ou non de TH

La même étude trouve une prévalence de 0.16% chez les femmes cis et 0.04% chez les hommes cis ; ça fait presque 20 fois plus de chances d'avoir un SED chez les personnes trans (OR 18.45).

Ça recoupe quelques autres études qui montrent une prévalence importante de SEDh chez les personnes trans :

étude[2] dans un centre médical prescrivant des TH qui trouve une prévalence de SEDh de 2.7% chez des personnes trans
étude[3] dans un centre médical trouvant une prévalence de SED de 2.6% chez des personnes trans ayant eu une opération de transition (72% SEDh, le reste pas spécifié ; ~70% transmasc). Pas de surrisque de complications postop ou de réopérations dans ce groupe, pour principalement des mammecs, qqs orchis, et d'autres opés.
étude[4] dans un centre pédiatrique de prise en charge du SED trouvant une prévalence de dysphorie de genre de 17% chez des ados avec un diag de SED(h)/HSD

[1] : Prevalence of Hypermobile Ehlers-Danlos Syndrome in Transgender and Gender Diverse Individuals: A Retrospective Cohort Study. Tabernacki T et al., 2025. https://doi.org/10.1177/23258292251382250

[2] : The prevalence of hypermobile Ehlers–Danlos syndrome at a gender-affirming primary care clinic. Stein T et al., 2025. https://doi.org/10.1177/20503121251315021

[3] : Ehlers-Danlos syndrome: prevalence and outcomes in gender affirming surgery - a single institution experience. Najafian A, 2022. https://doi.org/10.20517/2347-9264.2021.89

[4] : Gender dysphoria in adolescents with Ehlers–Danlos syndrome. Jones JT et al., 2022. https://doi.org/10.1177/20503121221146074

#EDS #hEDS #trans #hypermobility #hypermobileEhlersDanlosSyndrome #HSD

#eds #heds #trans #hypermobility #hypermobileehlersdanlossyndrome #hsd

Irene (she/they, Sir/Mr.) @[email protected] · 2026-03-30 · 22:05 UTC

Just realized the weight ive recently put on might actually be muscle??? Crying bc no other reaction feels to quite fit this emotion im experiencing/failing to name

I havent been trying to gain or lose weight, just doing range of motion and flexibility stuff plus the odd dance movement with a fancy French name... i have a few what feel to me both modest and extravagant dance aspirations, so in some ways this development makes sense, its just so incredibly alien to me to actually detect progress toward those goals!!

For context: ive been #chronicallyill since at least 2012, and was fully bedridden for at least seven of those years. Im still rather severely mentally ill but my body has been doing somewhat better lately (ongoing problems notwithstanding), for which im endlessly grateful and going to make the most of while I can, whatever that ends up looking like

Random snaps my partner took of me the other day, for attention and bc i look fantastic 🩷

#ChronicFatigue #ChronicPain #mecfs #fibromyalgia #hypermobility

#chronicallyill #chronicfatigue #chronicpain #mecfs #fibromyalgia #hypermobility

Irene (she/they, Sir/Mr.) @[email protected] · 2026-03-30 · 22:05 UTC

Just realized the weight ive recently put on might actually be muscle??? Crying bc no other reaction feels to quite fit this emotion im experiencing/failing to name

I havent been trying to gain or lose weight, just doing range of motion and flexibility stuff plus the odd dance movement with a fancy French name... i have a few what feel to me both modest and extravagant dance aspirations, so in some ways this development makes sense, its just so incredibly alien to me to actually detect progress toward those goals!!

For context: ive been #chronicallyill since at least 2012, and was fully bedridden for at least seven of those years. Im still rather severely mentally ill but my body has been doing somewhat better lately (ongoing problems notwithstanding), for which im endlessly grateful and going to make the most of while I can, whatever that ends up looking like

Random snaps my partner took of me the other day, for attention and bc i look fantastic 🩷

#ChronicFatigue #ChronicPain #mecfs #fibromyalgia #hypermobility

#chronicallyill #chronicfatigue #chronicpain #mecfs #fibromyalgia #hypermobility

Irene (she/they, Sir/Mr.) @[email protected] · 2026-03-30 · 22:05 UTC

Just realized the weight ive recently put on might actually be muscle??? Crying bc no other reaction feels to quite fit this emotion im experiencing/failing to name

I havent been trying to gain or lose weight, just doing range of motion and flexibility stuff plus the odd dance movement with a fancy French name... i have a few what feel to me both modest and extravagant dance aspirations, so in some ways this development makes sense, its just so incredibly alien to me to actually detect progress toward those goals!!

For context: ive been #chronicallyill since at least 2012, and was fully bedridden for at least seven of those years. Im still rather severely mentally ill but my body has been doing somewhat better lately (ongoing problems notwithstanding), for which im endlessly grateful and going to make the most of while I can, whatever that ends up looking like

Random snaps my partner took of me the other day, for attention and bc i look fantastic 🩷

#ChronicFatigue #ChronicPain #mecfs #fibromyalgia #hypermobility

#hypermobility #fibromyalgia #mecfs #chronicpain #chronicfatigue #chronicallyill

Irene (she/they, Sir/Mr.) @[email protected] · 2026-03-30 · 22:05 UTC

Just realized the weight ive recently put on might actually be muscle??? Crying bc no other reaction feels to quite fit this emotion im experiencing/failing to name

I havent been trying to gain or lose weight, just doing range of motion and flexibility stuff plus the odd dance movement with a fancy French name... i have a few what feel to me both modest and extravagant dance aspirations, so in some ways this development makes sense, its just so incredibly alien to me to actually detect progress toward those goals!!

For context: ive been #chronicallyill since at least 2012, and was fully bedridden for at least seven of those years. Im still rather severely mentally ill but my body has been doing somewhat better lately (ongoing problems notwithstanding), for which im endlessly grateful and going to make the most of while I can, whatever that ends up looking like

Random snaps my partner took of me the other day, for attention and bc i look fantastic 🩷

#ChronicFatigue #ChronicPain #mecfs #fibromyalgia #hypermobility

#chronicallyill #chronicfatigue #chronicpain #mecfs #fibromyalgia #hypermobility

Irene (she/they, Sir/Mr.) @[email protected] · 2026-03-30 · 22:05 UTC

Just realized the weight ive recently put on might actually be muscle??? Crying bc no other reaction feels to quite fit this emotion im experiencing/failing to name

I havent been trying to gain or lose weight, just doing range of motion and flexibility stuff plus the odd dance movement with a fancy French name... i have a few what feel to me both modest and extravagant dance aspirations, so in some ways this development makes sense, its just so incredibly alien to me to actually detect progress toward those goals!!

For context: ive been #chronicallyill since at least 2012, and was fully bedridden for at least seven of those years. Im still rather severely mentally ill but my body has been doing somewhat better lately (ongoing problems notwithstanding), for which im endlessly grateful and going to make the most of while I can, whatever that ends up looking like

Random snaps my partner took of me the other day, for attention and bc i look fantastic 🩷

#ChronicFatigue #ChronicPain #mecfs #fibromyalgia #hypermobility

#chronicallyill #chronicfatigue #chronicpain #mecfs #fibromyalgia #hypermobility

W_Dräger 🦉 @[email protected] · 2026-03-26 · 04:59 UTC

As a #disabled #gardener…it is really frustrating when the weight of tools is not listed online when purchasing ⛏️ :meow_cowboy:

#gardening #HEDS #fibromyalgia #hypermobility #badback

#disabled #gardener #gardening #heds #fibromyalgia #hypermobility

W_Dräger 🦉 @[email protected] · 2026-03-26 · 04:59 UTC

As a #disabled #gardener…it is really frustrating when the weight of tools is not listed online when purchasing ⛏️ :meow_cowboy:

#gardening #HEDS #fibromyalgia #hypermobility #badback

#disabled #gardener #gardening #heds #fibromyalgia #hypermobility

W_Dräger 🦉 @[email protected] · 2026-03-26 · 04:59 UTC

As a #disabled #gardener…it is really frustrating when the weight of tools is not listed online when purchasing ⛏️ :meow_cowboy:

#gardening #HEDS #fibromyalgia #hypermobility #badback

#disabled #gardener #gardening #heds #fibromyalgia #hypermobility

W_Dräger 🦉 @[email protected] · 2026-03-26 · 04:59 UTC

As a #disabled #gardener…it is really frustrating when the weight of tools is not listed online when purchasing ⛏️ :meow_cowboy:

#gardening #HEDS #fibromyalgia #hypermobility #badback

#badback #hypermobility #fibromyalgia #heds #gardening #gardener

Daisee (she/her) @[email protected] · 2026-03-18 · 09:43 UTC

#3GoodThings

1. Shoes
2. Crutches
3. Walking

#Walking #Mobility #Hypermobility

#3goodthings #walking #mobility #hypermobility

Gussy05 🏳️‍⚧️ @[email protected] · 2026-02-10 · 02:34 UTC

"Let me open up my diagnosis box and see if I have something that explains why this situation went this way."

#Autism #ADHD #audhd #neurodivergent #CFS #lupus #hypermobility

#autism #adhd #audhd #neurodivergent #cfs #lupus

W_Dräger 🦉 @[email protected] · 2026-01-19 · 10:10 UTC

CW: HEDS, hypermobility TW

I feel like my joint #hypermobility would thank me if I could just stand KT tape on my skin :meow_angry_intensifies: :meow_comfymelt: :meow_grimace:

#HEDS

#hypermobility #heds

illmarks @[email protected] · 2026-01-09 · 14:31 UTC

CW: bodily functions

Symptom: Chronic Diarrhea

https://www.illmarks.com/symptom-chronic-diarrhea/

#anxiety #art #autism #bodilyFunction #bodilyFunction #bodyHorror #bodyMapping #cfs #chronicIllness #depression #diarrhea #eds #ehlersdanlossyndrome #FunctionalGastrointestinalDisorder #gastroenterology #gastrointestinal #GI #gutBrainAxis #gutbrainAxis #heds #hypermobile #hypermobility #hypermobilityspectrumdisorder #ibs #longCovid #longcovid #mecfs #MECFSBuy #medart #medicalArt #MillionsMissing #MyalgicEncephalomyelitis #neurodivergence #PIIBS #postInfectiousIrritableBowelSyndrome #postIfectiousIrritibleBowelSyndrome #pwLC #pwme #rritableBowelSyndrome #SciArt #SciComms

#anxiety #art #autism #bodilyfunction #bodyhorror #bodymapping

W_Dräger 🦉 @[email protected] · 2026-01-09 · 10:51 UTC

The packaging on my mouthwash was so frustrating for my #hEDS that I just gave up and used an old travel bottle :meow_evilknife:

#hypermobility #disabled

#heds #hypermobility #disabled

Dr Zoyander Street @[email protected] · 2026-01-03 · 16:00 UTC

Following up with tags: I'm trying to learn more about intimacy with #heds, #hypermobility, and #disability more broadly. Any and all resources appreciated!

#disability #hypermobility #heds

W_Dräger 🦉 @[email protected] · 2025-12-31 · 06:22 UTC

Anyone have an office chair they can sit in for prolonged periods (ideally more than an hour)? Also open to non-conventional options. My current option really aggravates my lumbar pain. :meow_pain:

#hEDS #ehlersdanlos #hypermobility #disabled #disability #chronicillness #chronicpain

#heds #ehlersdanlos #hypermobility #disabled #disability #chronicillness

Court Cantrell won't conform @[email protected] · 2025-12-22 · 09:40 UTC

I'm basically a hot mess, emphasis on hot and emphasis on mess.

Really wish somebody had helped me figure this out 30 years ago.

#EDS
#hEDS
#EhlersDanlos
#hypermobility
#BendyBody
#BendyGirl
#ChronicIllness
#ChronicPain
#bendy
#ouch

2/2

#eds #heds #ehlersdanlos #hypermobility #bendybody #bendygirl

Strypey @[email protected] · 2025-12-16 · 00:41 UTC

I recently discovered that I'm probably hypermobile. Apparently most people can't put their hands in prayer position behind their back? Anyway, towards the end of this interview with Sophie Macfie (about 5 minutes from the end), she mentions that many neurodivergent people frequently cross our legs when sitting (which I do). A new theory on why relates to hypermobility, and whether that makes it uncomfortable to sit "normally";

https://www.hidden20.org/podcast/sophsplantkitchen

#podcasts #TheHidden20% #hypermobility

#podcasts #thehidden20 #hypermobility

illmarks @[email protected] · 2025-12-03 · 15:56 UTC

Symptom: Mast Cell Itching

https://www.illmarks.com/symptom-mast-cell-itching/

#allergicreactions #Allergies #allergy #art #bodyHorror #bodyMapping #buildingSafety #chonicillness #chronicIllness #claws #eds #ehlersdanlossyndrome #environmentalIllness #environmentalillness #fingers #formaldehyde #heds #hypermobile #hypermobility #hypermobilityspectrumdisorder #immunology #itched #itching #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastcell #mastcellactivationsyndrome #mastcelldisease #mastocytosis #mcas #medicalArt #MillionsMissing #nails #POTS #prop65 #publicHealth #publicHealth #pwLC #pwme #scratched #scratching #scratchy #severeallergy #vocs

#allergicreactions #allergies #allergy #art #bodyhorror #bodymapping

illmarks @[email protected] · 2025-12-03 · 15:56 UTC

Symptom: Mast Cell Itching

https://www.illmarks.com/symptom-mast-cell-itching/

#allergicreactions #Allergies #allergy #art #bodyHorror #bodyMapping #buildingSafety #chonicillness #chronicIllness #claws #eds #ehlersdanlossyndrome #environmentalIllness #environmentalillness #fingers #formaldehyde #heds #hypermobile #hypermobility #hypermobilityspectrumdisorder #immunology #itched #itching #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastcell #mastcellactivationsyndrome #mastcelldisease #mastocytosis #mcas #medicalArt #MillionsMissing #nails #POTS #prop65 #publicHealth #publicHealth #pwLC #pwme #scratched #scratching #scratchy #severeallergy #vocs

#scratched #scratching #scratchy #severeallergy #vocs #allergicreactions

illmarks @[email protected] · 2025-12-03 · 15:56 UTC

Symptom: Mast Cell Itching

https://www.illmarks.com/symptom-mast-cell-itching/

#allergicreactions #Allergies #allergy #art #bodyHorror #bodyMapping #buildingSafety #chonicillness #chronicIllness #claws #eds #ehlersdanlossyndrome #environmentalIllness #environmentalillness #fingers #formaldehyde #heds #hypermobile #hypermobility #hypermobilityspectrumdisorder #immunology #itched #itching #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastcell #mastcellactivationsyndrome #mastcelldisease #mastocytosis #mcas #medicalArt #MillionsMissing #nails #POTS #prop65 #publicHealth #publicHealth #pwLC #pwme #scratched #scratching #scratchy #severeallergy #vocs

#allergicreactions #allergies #allergy #art #bodyhorror #bodymapping

illmarks @[email protected] · 2025-12-03 · 15:56 UTC

Symptom: Mast Cell Itching

https://www.illmarks.com/symptom-mast-cell-itching/

#allergicreactions #Allergies #allergy #art #bodyHorror #bodyMapping #buildingSafety #chonicillness #chronicIllness #claws #eds #ehlersdanlossyndrome #environmentalIllness #environmentalillness #fingers #formaldehyde #heds #hypermobile #hypermobility #hypermobilityspectrumdisorder #immunology #itched #itching #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastcell #mastcellactivationsyndrome #mastcelldisease #mastocytosis #mcas #medicalArt #MillionsMissing #nails #POTS #prop65 #publicHealth #publicHealth #pwLC #pwme #scratched #scratching #scratchy #severeallergy #vocs

#vocs #severeallergy #scratchy #scratching #scratched #pwme

illmarks @[email protected] · 2025-12-03 · 15:56 UTC

Symptom: Mast Cell Itching

https://www.illmarks.com/symptom-mast-cell-itching/

#allergicreactions #Allergies #allergy #art #bodyHorror #bodyMapping #buildingSafety #chonicillness #chronicIllness #claws #eds #ehlersdanlossyndrome #environmentalIllness #environmentalillness #fingers #formaldehyde #heds #hypermobile #hypermobility #hypermobilityspectrumdisorder #immunology #itched #itching #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastcell #mastcellactivationsyndrome #mastcelldisease #mastocytosis #mcas #medicalArt #MillionsMissing #nails #POTS #prop65 #publicHealth #publicHealth #pwLC #pwme #scratched #scratching #scratchy #severeallergy #vocs

#allergicreactions #allergies #allergy #art #bodyhorror #bodymapping

illmarks @[email protected] · 2025-11-30 · 13:21 UTC

Diagnosis: Hypermobile Ehlers-Danlos Syndrome

After self-diagnosing, I got an official diagnosis. The victory of the official diagnosis was upstaged by the foot trauma two days previously, which I now know is a broken bone. However, at lest it’s in the same limb as all my other orthopedic trauma and severe arthritis. That’s really my saving grace right now — it’s a familiar injury. Adding another new mystery set of symptoms would be less welcome than rehatching an old burden.

Anyway, back to the art. I love some of the light interactive properties here that are hard to capture in a scan so:

Reflective properties close up, gold paint in the eyes, green metallic reflection for the dark around and in the eyes. The shimmer (ultra fine glittering particles) in the green ink are vibrant blue, and in the blue zebra stripes are color shifting, right now a rose.

Metallic version of the hardware in my leg — I looked at my own x-rays for reference!

Final close up.

https://www.illmarks.com/diagnosis-hypermobile-ehlers-danlos-syndrome/

#art #bodyHorror #bodyMapping #chronicIllness #connectivetissue #connectivetissuedisease #eds #ehlersDanlosSyndrome #ehlersdanlossyndrome #heds #hsd #hypermobile #hypermobileEhlersDanlosSyndrome #hypermobileehlersdanlossyndrome #hypermobility #hypermobilitySpectrum #hypermobilityspectrum #hypermobilityspectrumdisorder #longCovid #longcovid #medicalArt #MillionsMissing #pwLC #pwme

#art #bodyhorror #bodymapping #chronicillness #connectivetissue #connectivetissuedisease

illmarks @[email protected] · 2025-11-30 · 13:21 UTC

Diagnosis: Hypermobile Ehlers-Danlos Syndrome

After self-diagnosing, I got an official diagnosis. The victory of the official diagnosis was upstaged by the foot trauma two days previously, which I now know is a broken bone. However, at lest it’s in the same limb as all my other orthopedic trauma and severe arthritis. That’s really my saving grace right now — it’s a familiar injury. Adding another new mystery set of symptoms would be less welcome than rehatching an old burden.

Anyway, back to the art. I love some of the light interactive properties here that are hard to capture in a scan so:

Reflective properties close up, gold paint in the eyes, green metallic reflection for the dark around and in the eyes. The shimmer (ultra fine glittering particles) in the green ink are vibrant blue, and in the blue zebra stripes are color shifting, right now a rose.

Metallic version of the hardware in my leg — I looked at my own x-rays for reference!

Final close up.

https://www.illmarks.com/diagnosis-hypermobile-ehlers-danlos-syndrome/

#art #bodyHorror #bodyMapping #chronicIllness #connectivetissue #connectivetissuedisease #eds #ehlersDanlosSyndrome #ehlersdanlossyndrome #heds #hsd #hypermobile #hypermobileEhlersDanlosSyndrome #hypermobileehlersdanlossyndrome #hypermobility #hypermobilitySpectrum #hypermobilityspectrum #hypermobilityspectrumdisorder #longCovid #longcovid #medicalArt #MillionsMissing #pwLC #pwme

#art #bodyhorror #bodymapping #chronicillness #connectivetissue #connectivetissuedisease

illmarks @[email protected] · 2025-11-30 · 13:21 UTC

Diagnosis: Hypermobile Ehlers-Danlos Syndrome

After self-diagnosing, I got an official diagnosis. The victory of the official diagnosis was upstaged by the foot trauma two days previously, which I now know is a broken bone. However, at lest it’s in the same limb as all my other orthopedic trauma and severe arthritis. That’s really my saving grace right now — it’s a familiar injury. Adding another new mystery set of symptoms would be less welcome than rehatching an old burden.

Anyway, back to the art. I love some of the light interactive properties here that are hard to capture in a scan so:

Reflective properties close up, gold paint in the eyes, green metallic reflection for the dark around and in the eyes. The shimmer (ultra fine glittering particles) in the green ink are vibrant blue, and in the blue zebra stripes are color shifting, right now a rose.

Metallic version of the hardware in my leg — I looked at my own x-rays for reference!

Final close up.

https://www.illmarks.com/diagnosis-hypermobile-ehlers-danlos-syndrome/

#art #bodyHorror #bodyMapping #chronicIllness #connectivetissue #connectivetissuedisease #eds #ehlersDanlosSyndrome #ehlersdanlossyndrome #heds #hsd #hypermobile #hypermobileEhlersDanlosSyndrome #hypermobileehlersdanlossyndrome #hypermobility #hypermobilitySpectrum #hypermobilityspectrum #hypermobilityspectrumdisorder #longCovid #longcovid #medicalArt #MillionsMissing #pwLC #pwme

#art #bodyhorror #bodymapping #chronicillness #connectivetissue #connectivetissuedisease

illmarks @[email protected] · 2025-11-30 · 13:21 UTC

Diagnosis: Hypermobile Ehlers-Danlos Syndrome

After self-diagnosing, I got an official diagnosis. The victory of the official diagnosis was upstaged by the foot trauma two days previously, which I now know is a broken bone. However, at lest it’s in the same limb as all my other orthopedic trauma and severe arthritis. That’s really my saving grace right now — it’s a familiar injury. Adding another new mystery set of symptoms would be less welcome than rehatching an old burden.

Anyway, back to the art. I love some of the light interactive properties here that are hard to capture in a scan so:

Reflective properties close up, gold paint in the eyes, green metallic reflection for the dark around and in the eyes. The shimmer (ultra fine glittering particles) in the green ink are vibrant blue, and in the blue zebra stripes are color shifting, right now a rose.

Metallic version of the hardware in my leg — I looked at my own x-rays for reference!

Final close up.

https://www.illmarks.com/diagnosis-hypermobile-ehlers-danlos-syndrome/

#art #bodyHorror #bodyMapping #chronicIllness #connectivetissue #connectivetissuedisease #eds #ehlersDanlosSyndrome #ehlersdanlossyndrome #heds #hsd #hypermobile #hypermobileEhlersDanlosSyndrome #hypermobileehlersdanlossyndrome #hypermobility #hypermobilitySpectrum #hypermobilityspectrum #hypermobilityspectrumdisorder #longCovid #longcovid #medicalArt #MillionsMissing #pwLC #pwme

#pwme #pwlc #millionsmissing #medicalart #longcovid #hypermobilityspectrumdisorder

illmarks @[email protected] · 2025-11-30 · 13:21 UTC

Diagnosis: Hypermobile Ehlers-Danlos Syndrome

After self-diagnosing, I got an official diagnosis. The victory of the official diagnosis was upstaged by the foot trauma two days previously, which I now know is a broken bone. However, at lest it’s in the same limb as all my other orthopedic trauma and severe arthritis. That’s really my saving grace right now — it’s a familiar injury. Adding another new mystery set of symptoms would be less welcome than rehatching an old burden.

Anyway, back to the art. I love some of the light interactive properties here that are hard to capture in a scan so:

Reflective properties close up, gold paint in the eyes, green metallic reflection for the dark around and in the eyes. The shimmer (ultra fine glittering particles) in the green ink are vibrant blue, and in the blue zebra stripes are color shifting, right now a rose.

Metallic version of the hardware in my leg — I looked at my own x-rays for reference!

Final close up.

https://www.illmarks.com/diagnosis-hypermobile-ehlers-danlos-syndrome/

#art #bodyHorror #bodyMapping #chronicIllness #connectivetissue #connectivetissuedisease #eds #ehlersDanlosSyndrome #ehlersdanlossyndrome #heds #hsd #hypermobile #hypermobileEhlersDanlosSyndrome #hypermobileehlersdanlossyndrome #hypermobility #hypermobilitySpectrum #hypermobilityspectrum #hypermobilityspectrumdisorder #longCovid #longcovid #medicalArt #MillionsMissing #pwLC #pwme

#art #bodyhorror #bodymapping #chronicillness #connectivetissue #connectivetissuedisease

Queen 1066 @[email protected] · 2025-11-20 · 20:53 UTC

I need some advice on #hypermobility. Is there anyone here I can chat with. Thanks

#hypermobility

illmarks @[email protected] · 2025-10-01 · 02:05 UTC

Symptom: Arthralgia and Arthritis

I need to pick a “job title” to describe the work I do here. I initially tried to make a poll with a plug in, but alas it didn’t work the way I hoped.

Here are some of the options I’m considering. Feel free to reply/comment with any or suggest your own!:

Health & Care Advocacy Designer
Mast Cell Artist Syndrome
Chronically ill-ustrating Health Advocacy
Plague Artist

Rejected (not great for professional use) options that I’ll share with you because I love you, but don’t tell my PCP about any of these, k?

Notorious Self-Diagnoser
Health Insurance Reform Enthusiast
Creatinine-level Checking Creative
Medical System Subverter
Bruh They’re a Totally Sick Designer
Mario’s Brother Appreciator

https://www.illmarks.com/symptom-arthralgia-and-arthritis-and-a-poll/

#art #arthralgia #autoimmune #bodyHorror #bodyMapping #chronicIllness #eds #heds #hsd #hypermobility #hypermobilityspectrum #longCovid #longcovid #mastCell #mastcell #mcas #medicalArt #MillionsMissing #osteoarthritis #pwLC #pwme #spondylitis #symptom #symptomVisualization #symptomtracking

#art #arthralgia #autoimmune #bodyhorror #bodymapping #chronicillness

illmarks @[email protected] · 2025-10-01 · 02:05 UTC

Symptom: Arthralgia and Arthritis

I need to pick a “job title” to describe the work I do here. I initially tried to make a poll with a plug in, but alas it didn’t work the way I hoped.

Here are some of the options I’m considering. Feel free to reply/comment with any or suggest your own!:

Health & Care Advocacy Designer
Mast Cell Artist Syndrome
Chronically ill-ustrating Health Advocacy
Plague Artist

Rejected (not great for professional use) options that I’ll share with you because I love you, but don’t tell my PCP about any of these, k?

Notorious Self-Diagnoser
Health Insurance Reform Enthusiast
Creatinine-level Checking Creative
Medical System Subverter
Bruh They’re a Totally Sick Designer
Mario’s Brother Appreciator

https://www.illmarks.com/symptom-arthralgia-and-arthritis-and-a-poll/

#art #arthralgia #autoimmune #bodyHorror #bodyMapping #chronicIllness #eds #heds #hsd #hypermobility #hypermobilityspectrum #longCovid #longcovid #mastCell #mastcell #mcas #medicalArt #MillionsMissing #osteoarthritis #pwLC #pwme #spondylitis #symptom #symptomVisualization #symptomtracking

#art #arthralgia #autoimmune #bodyhorror #bodymapping #chronicillness

illmarks @[email protected] · 2025-10-01 · 02:05 UTC

Symptom: Arthralgia and Arthritis

I need to pick a “job title” to describe the work I do here. I initially tried to make a poll with a plug in, but alas it didn’t work the way I hoped.

Here are some of the options I’m considering. Feel free to reply/comment with any or suggest your own!:

Health & Care Advocacy Designer
Mast Cell Artist Syndrome
Chronically ill-ustrating Health Advocacy
Plague Artist

Rejected (not great for professional use) options that I’ll share with you because I love you, but don’t tell my PCP about any of these, k?

Notorious Self-Diagnoser
Health Insurance Reform Enthusiast
Creatinine-level Checking Creative
Medical System Subverter
Bruh They’re a Totally Sick Designer
Mario’s Brother Appreciator

https://www.illmarks.com/symptom-arthralgia-and-arthritis-and-a-poll/

#art #arthralgia #autoimmune #bodyHorror #bodyMapping #chronicIllness #eds #heds #hsd #hypermobility #hypermobilityspectrum #longCovid #longcovid #mastCell #mastcell #mcas #medicalArt #MillionsMissing #osteoarthritis #pwLC #pwme #spondylitis #symptom #symptomVisualization #symptomtracking

#art #arthralgia #autoimmune #bodyhorror #bodymapping #chronicillness

illmarks @[email protected] · 2025-10-01 · 02:05 UTC

Symptom: Arthralgia and Arthritis

I need to pick a “job title” to describe the work I do here. I initially tried to make a poll with a plug in, but alas it didn’t work the way I hoped.

Here are some of the options I’m considering. Feel free to reply/comment with any or suggest your own!:

Health & Care Advocacy Designer
Mast Cell Artist Syndrome
Chronically ill-ustrating Health Advocacy
Plague Artist

Rejected (not great for professional use) options that I’ll share with you because I love you, but don’t tell my PCP about any of these, k?

Notorious Self-Diagnoser
Health Insurance Reform Enthusiast
Creatinine-level Checking Creative
Medical System Subverter
Bruh They’re a Totally Sick Designer
Mario’s Brother Appreciator

https://www.illmarks.com/symptom-arthralgia-and-arthritis-and-a-poll/

#art #arthralgia #autoimmune #bodyHorror #bodyMapping #chronicIllness #eds #heds #hsd #hypermobility #hypermobilityspectrum #longCovid #longcovid #mastCell #mastcell #mcas #medicalArt #MillionsMissing #osteoarthritis #pwLC #pwme #spondylitis #symptom #symptomVisualization #symptomtracking

#symptomtracking #symptomvisualization #symptom #spondylitis #pwme #pwlc

illmarks @[email protected] · 2025-10-01 · 02:05 UTC

Symptom: Arthralgia and Arthritis

Rejected (not great for professional use) options that I’ll share with you because I love you but don’t tell my PCP about any of these, k?

Notorious Self-Diagnoser
Health Insurance Reform Enthusiast
Creatinine-level Checking Creative
Medical System Subverter
Bruh They’re a Totally Sick Designer
Mario’s Brother Appreciator

https://www.illmarks.com/symptom-arthralgia-and-arthritis-and-a-poll/

#art #arthralgia #autoimmune #bodyHorror #bodyMapping #chronicIllness #eds #heds #hsd #hypermobility #hypermobilityspectrum #longCovid #longcovid #mastCell #mastcell #mcas #medicalArt #MillionsMissing #osteoarthritis #pwLC #pwme #spondylitis #symptom #symptomVisualization #symptomtracking

#art #arthralgia #autoimmune #bodyhorror #bodymapping #chronicillness

SierraFrost @[email protected] · 2025-07-27 · 09:33 UTC

Ever wondered what happens when your advocacy efforts hit a wall? Discover the challenges and triumphs in my journey with suspected POTS, EDS, and hypermobility. #Advocacy #POTS #EDS #Hypermobility #HealthJourney #Chaos #Hyperhidrosis #dizzy #medicalhell #underdiagnosed

http://learnwhoiam.ca/2025/07/27/fighting-for-answers-my-ongoing-battle-with-suspected-pots-eds-and-hypermobility-part-1/?utm_source=mastodon&utm_medium=jetpack_social

#advocacy #pots #eds #hypermobility #healthjourney #chaos

Alien_Sunset @[email protected] · 2025-03-15 · 15:42 UTC

So I come to the hivemind:

do any of you all have any recommendations or favorite things that you have used on your own person to help keep you from accidentally injuring yourself?

Not just hands/fingers/wrists. But also arms/elbows, shoulders, knees and ankles.

#eds #Hypermobility #hsd
3/4

#eds #hypermobility #hsd

Rhyothemis @[email protected] · 2024-10-25 · 21:08 UTC

today I watched:

Brain Repair: The Ketamine Combo Treatment for Depression and Chronic Pain
https://youtu.be/9Z4Eg1dtyOc?si=MPMcrFYYj2De6u9Y

Very interesting and pretty technical. I will have to re-watch.

[37:00] - #POTS #MCAS #hypermobility #LongCovid

#2dayIwatched #ChronicPain #psychiatry #neuroscience #rapamycin #ketamine

#pots #mcas #hypermobility #longcovid #2dayiwatched #chronicpain

Rhyothemis @[email protected] · 2024-09-09 · 19:26 UTC

@trendless

an example of new onset skin stretchiness in someone with Long Covid, post includes photo:
https://twitter.com/D_Bone/status/1550692324941787136

It would be interesting to do skin biopsies and look at gene expression, protein level, and glycosylation differences between stretchy skin areas vs. non-stretchy skin.

~
edited to add:

So far I haven't seen a study like that for hEDS, EDS or Long Covid. It seems strange since it is the 1st thing I would do (and if I ever win the lottery, it would be the 1st study I would fund). If something similar has already been done then pls let me know.

#ConnectiveTissue #EhlersDanlos #hEDS #EDS #hypermobility #LongCovid

#connectivetissue #ehlersdanlos #heds #eds #hypermobility #longcovid

𝓖𝓲𝓪 𝓜𝓸𝓻𝓪 (she/her) @[email protected] · 2023-10-19 · 15:06 UTC

I love Dr. Linda Bluestein's #BendyBodies podcast, and this ep is a must see as her guest, Dr. Julie Robinson-Smith gives a #jaw anatomy lesson on camera. For all my #hypermobility peeps out there, you're about to have your minds (and jaws) blown.
https://www.youtube.com/watch?v=EGXZaUacqDw

#hEDS #HSD #ZebraStrong #WomensHealth #OralHealth

#bendybodies #jaw #hypermobility #heds #hsd #zebrastrong

H @[email protected] · 2023-02-05 · 22:12 UTC

Bit of a shot in the dark but any adults with adult #AcetabularUndercoverage #HipDysplasia #Hypermobility and potential #ehlersdanlos out there who can help with chair/seat recommendations? I'm waiting to see #surgeon number two but complex medical history may prevent #arthroscopy etc. I'm an admin worker and struggling to get any guidance or support in the UK for furniture solutions that don't leave me in pain. #MedicalHelp

#acetabularundercoverage #hipdysplasia #hypermobility #ehlersdanlos #surgeon #arthroscopy

alittlebriton @[email protected] · 2022-12-22 · 10:27 UTC

Lordt, it's an intro toot:

I'm a 40-something woman in London with a husband and two cats. My work is to make other people happy at work and I love it. My passions are #gaming, #knitting, #sff, #tv, #fanfic, #theatre and #books.

I'm also a #skincare and #makeup junkie and have written my own skincare guide that I'm happy to share (the secret is cake and retinol).

I have recently diagnosed #adhd and #hypermobility and am #perimenopausal so that's fun!

I'm a motherfucking delight.

#gaming #knitting #sff #tv #fanfic #theatre