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#hypermobility — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #hypermobility, aggregated by home.social.

  1. Hypermobility spectrum disorders and hypermobile Ehlers-Danlos syndrome: patient experiences, disability and implications for rehabilitation. - Abstract - Europe PMC

    europepmc.org/article/MED/4229

    #EhlersDanlos #Hypermobility

  2. Hypermobility spectrum disorders and hypermobile Ehlers-Danlos syndrome: patient experiences, disability and implications for rehabilitation. - Abstract - Europe PMC

    europepmc.org/article/MED/4229

    #EhlersDanlos #Hypermobility

  3. Hypermobility spectrum disorders and hypermobile Ehlers-Danlos syndrome: patient experiences, disability and implications for rehabilitation. - Abstract - Europe PMC

    europepmc.org/article/MED/4229

    #EhlersDanlos #Hypermobility

  4. Hypermobility spectrum disorders and hypermobile Ehlers-Danlos syndrome: patient experiences, disability and implications for rehabilitation. - Abstract - Europe PMC

    europepmc.org/article/MED/4229

    #EhlersDanlos #Hypermobility

  5. Hypermobility spectrum disorders and hypermobile Ehlers-Danlos syndrome: patient experiences, disability and implications for rehabilitation. - Abstract - Europe PMC

    europepmc.org/article/MED/4229

    #EhlersDanlos #Hypermobility

  6. @spiegelmama
    On my dad's side of the family nearly every male died of an aneurysm or had an aneurysm that was found when they died. This was the biggest determining factor that led to my diagnosis (I was diagnosed unspecified EDS with the old criteria). It's important to remember, however, that EDS is a spectrum disorder and unless you have family history or have vascular EDS (if you live beyond 40 you almost certainty don't have vEDS) I wouldn't freak out. Checking is always a good idea though with ultrasound, CT-A, etc just in case.

    #hypermobileEhlersDanlosSyndrome #hEDS #hypermobility

  7. @spiegelmama
    On my dad's side of the family nearly every male died of an aneurysm or had an aneurysm that was found when they died. This was the biggest determining factor that led to my diagnosis (I was diagnosed unspecified EDS with the old criteria). It's important to remember, however, that EDS is a spectrum disorder and unless you have family history or have vascular EDS (if you live beyond 40 you almost certainty don't have vEDS) I wouldn't freak out. Checking is always a good idea though with ultrasound, CT-A, etc just in case.

    #hypermobileEhlersDanlosSyndrome #hEDS #hypermobility

  8. @spiegelmama
    On my dad's side of the family nearly every male died of an aneurysm or had an aneurysm that was found when they died. This was the biggest determining factor that led to my diagnosis (I was diagnosed unspecified EDS with the old criteria). It's important to remember, however, that EDS is a spectrum disorder and unless you have family history or have vascular EDS (if you live beyond 40 you almost certainty don't have vEDS) I wouldn't freak out. Checking is always a good idea though with ultrasound, CT-A, etc just in case.

    #hypermobileEhlersDanlosSyndrome #hEDS #hypermobility

  9. @spiegelmama
    On my dad's side of the family nearly every male died of an aneurysm or had an aneurysm that was found when they died. This was the biggest determining factor that led to my diagnosis (I was diagnosed unspecified EDS with the old criteria). It's important to remember, however, that EDS is a spectrum disorder and unless you have family history or have vascular EDS (if you live beyond 40 you almost certainty don't have vEDS) I wouldn't freak out. Checking is always a good idea though with ultrasound, CT-A, etc just in case.

    #hypermobileEhlersDanlosSyndrome #hEDS #hypermobility

  10. @spiegelmama
    On my dad's side of the family nearly every male died of an aneurysm or had an aneurysm that was found when they died. This was the biggest determining factor that led to my diagnosis (I was diagnosed unspecified EDS with the old criteria). It's important to remember, however, that EDS is a spectrum disorder and unless you have family history or have vascular EDS (if you live beyond 40 you almost certainty don't have vEDS) I wouldn't freak out. Checking is always a good idea though with ultrasound, CT-A, etc just in case.

  11. Pour commencer par un truc intéressant : étude[1] rétrospective sur des dossiers médicaux qui cherche à évaluer la prévalence de SEDh/HSD (syndrôme d'Ehlers-Danlos type hypermobile/trouble du spectre de l'hypermobilité) chez les personnes trans/nb. Elle trouve :

    • prévalence de 2.62% chez les personnes transmasc
    • prévalence de 1% chez les personnes transfem
    • pas de différence significative dans la prévalence vis-à-vis de la prise ou non de THLa même étude trouve une prévalence de 0.16% chez les femmes cis et 0.04% chez les hommes cis ; ça fait presque 20 fois plus de chances d'avoir un SED chez les personnes trans (OR 18.45).

    Ça recoupe quelques autres études qui montrent une prévalence importante de SEDh chez les personnes trans :

    • étude[2] dans un centre médical prescrivant des TH qui trouve une prévalence de SEDh de 2.7% chez des personnes trans
    • étude[3] dans un centre médical trouvant une prévalence de SED de 2.6% chez des personnes trans ayant eu une opération de transition (72% SEDh, le reste pas spécifié ; ~70% transmasc). Pas de surrisque de complications postop ou de réopérations dans ce groupe, pour principalement des mammecs, qqs orchis, et d'autres opés.
    • étude[4] dans un centre pédiatrique de prise en charge du SED trouvant une prévalence de dysphorie de genre de 17% chez des ados avec un diag de SED(h)/HSD

    [1] : Prevalence of Hypermobile Ehlers-Danlos Syndrome in Transgender and Gender Diverse Individuals: A Retrospective Cohort Study. Tabernacki T et al., 2025. doi.org/10.1177/23258292251382
    [2] : The prevalence of hypermobile Ehlers–Danlos syndrome at a gender-affirming primary care clinic. Stein T et al., 2025. doi.org/10.1177/20503121251315
    [3] : Ehlers-Danlos syndrome: prevalence and outcomes in gender affirming surgery - a single institution experience. Najafian A, 2022. doi.org/10.20517/2347-9264.202
    [4] : Gender dysphoria in adolescents with Ehlers–Danlos syndrome. Jones JT et al., 2022. doi.org/10.1177/20503121221146
    #EDS #hEDS #trans #hypermobility #hypermobileEhlersDanlosSyndrome #HSD

  12. Pour commencer par un truc intéressant : étude[1] rétrospective sur des dossiers médicaux qui cherche à évaluer la prévalence de SEDh/HSD (syndrôme d'Ehlers-Danlos type hypermobile/trouble du spectre de l'hypermobilité) chez les personnes trans/nb. Elle trouve :

    • prévalence de 2.62% chez les personnes transmasc
    • prévalence de 1% chez les personnes transfem
    • pas de différence significative dans la prévalence vis-à-vis de la prise ou non de TH

    La même étude trouve une prévalence de 0.16% chez les femmes cis et 0.04% chez les hommes cis ; ça fait presque 20 fois plus de chances d'avoir un SED chez les personnes trans (OR 18.45).

    Ça recoupe quelques autres études qui montrent une prévalence importante de SEDh chez les personnes trans :

    • étude[2] dans un centre médical prescrivant des TH qui trouve une prévalence de SEDh de 2.7% chez des personnes trans
    • étude[3] dans un centre médical trouvant une prévalence de SED de 2.6% chez des personnes trans ayant eu une opération de transition (72% SEDh, le reste pas spécifié ; ~70% transmasc). Pas de surrisque de complications postop ou de réopérations dans ce groupe, pour principalement des mammecs, qqs orchis, et d'autres opés.
    • étude[4] dans un centre pédiatrique de prise en charge du SED trouvant une prévalence de dysphorie de genre de 17% chez des ados avec un diag de SED(h)/HSD

    [1] : Prevalence of Hypermobile Ehlers-Danlos Syndrome in Transgender and Gender Diverse Individuals: A Retrospective Cohort Study. Tabernacki T et al., 2025. doi.org/10.1177/23258292251382

    [2] : The prevalence of hypermobile Ehlers–Danlos syndrome at a gender-affirming primary care clinic. Stein T et al., 2025. doi.org/10.1177/20503121251315

    [3] : Ehlers-Danlos syndrome: prevalence and outcomes in gender affirming surgery - a single institution experience. Najafian A, 2022. doi.org/10.20517/2347-9264.202

    [4] : Gender dysphoria in adolescents with Ehlers–Danlos syndrome. Jones JT et al., 2022. doi.org/10.1177/20503121221146

    #EDS #hEDS #trans #hypermobility #hypermobileEhlersDanlosSyndrome #HSD

  13. Pour commencer par un truc intéressant : étude[1] rétrospective sur des dossiers médicaux qui cherche à évaluer la prévalence de SEDh/HSD (syndrôme d'Ehlers-Danlos type hypermobile/trouble du spectre de l'hypermobilité) chez les personnes trans/nb. Elle trouve :

    • prévalence de 2.62% chez les personnes transmasc
    • prévalence de 1% chez les personnes transfem
    • pas de différence significative dans la prévalence vis-à-vis de la prise ou non de THLa même étude trouve une prévalence de 0.16% chez les femmes cis et 0.04% chez les hommes cis ; ça fait presque 20 fois plus de chances d'avoir un SED chez les personnes trans (OR 18.45).

    Ça recoupe quelques autres études qui montrent une prévalence importante de SEDh chez les personnes trans :

    • étude[2] dans un centre médical prescrivant des TH qui trouve une prévalence de SEDh de 2.7% chez des personnes trans
    • étude[3] dans un centre médical trouvant une prévalence de SED de 2.6% chez des personnes trans ayant eu une opération de transition (72% SEDh, le reste pas spécifié ; ~70% transmasc). Pas de surrisque de complications postop ou de réopérations dans ce groupe, pour principalement des mammecs, qqs orchis, et d'autres opés.
    • étude[4] dans un centre pédiatrique de prise en charge du SED trouvant une prévalence de dysphorie de genre de 17% chez des ados avec un diag de SED(h)/HSD

    [1] : Prevalence of Hypermobile Ehlers-Danlos Syndrome in Transgender and Gender Diverse Individuals: A Retrospective Cohort Study. Tabernacki T et al., 2025. doi.org/10.1177/23258292251382
    [2] : The prevalence of hypermobile Ehlers–Danlos syndrome at a gender-affirming primary care clinic. Stein T et al., 2025. doi.org/10.1177/20503121251315
    [3] : Ehlers-Danlos syndrome: prevalence and outcomes in gender affirming surgery - a single institution experience. Najafian A, 2022. doi.org/10.20517/2347-9264.202
    [4] : Gender dysphoria in adolescents with Ehlers–Danlos syndrome. Jones JT et al., 2022. doi.org/10.1177/20503121221146
    #EDS #hEDS #trans #hypermobility #hypermobileEhlersDanlosSyndrome #HSD

  14. Pour commencer par un truc intéressant : étude[1] rétrospective sur des dossiers médicaux qui cherche à évaluer la prévalence de SEDh/HSD (syndrôme d'Ehlers-Danlos type hypermobile/trouble du spectre de l'hypermobilité) chez les personnes trans/nb. Elle trouve :

    • prévalence de 2.62% chez les personnes transmasc
    • prévalence de 1% chez les personnes transfem
    • pas de différence significative dans la prévalence vis-à-vis de la prise ou non de THLa même étude trouve une prévalence de 0.16% chez les femmes cis et 0.04% chez les hommes cis ; ça fait presque 20 fois plus de chances d'avoir un SED chez les personnes trans (OR 18.45).

    Ça recoupe quelques autres études qui montrent une prévalence importante de SEDh chez les personnes trans :

    • étude[2] dans un centre médical prescrivant des TH qui trouve une prévalence de SEDh de 2.7% chez des personnes trans
    • étude[3] dans un centre médical trouvant une prévalence de SED de 2.6% chez des personnes trans ayant eu une opération de transition (72% SEDh, le reste pas spécifié ; ~70% transmasc). Pas de surrisque de complications postop ou de réopérations dans ce groupe, pour principalement des mammecs, qqs orchis, et d'autres opés.
    • étude[4] dans un centre pédiatrique de prise en charge du SED trouvant une prévalence de dysphorie de genre de 17% chez des ados avec un diag de SED(h)/HSD

    [1] : Prevalence of Hypermobile Ehlers-Danlos Syndrome in Transgender and Gender Diverse Individuals: A Retrospective Cohort Study. Tabernacki T et al., 2025. doi.org/10.1177/23258292251382
    [2] : The prevalence of hypermobile Ehlers–Danlos syndrome at a gender-affirming primary care clinic. Stein T et al., 2025. doi.org/10.1177/20503121251315
    [3] : Ehlers-Danlos syndrome: prevalence and outcomes in gender affirming surgery - a single institution experience. Najafian A, 2022. doi.org/10.20517/2347-9264.202
    [4] : Gender dysphoria in adolescents with Ehlers–Danlos syndrome. Jones JT et al., 2022. doi.org/10.1177/20503121221146
    #EDS #hEDS #trans #hypermobility #hypermobileEhlersDanlosSyndrome #HSD

  15. Pour commencer par un truc intéressant : étude[1] rétrospective sur des dossiers médicaux qui cherche à évaluer la prévalence de SEDh/HSD (syndrôme d'Ehlers-Danlos type hypermobile/trouble du spectre de l'hypermobilité) chez les personnes trans/nb. Elle trouve :

    • prévalence de 2.62% chez les personnes transmasc
    • prévalence de 1% chez les personnes transfem
    • pas de différence significative dans la prévalence vis-à-vis de la prise ou non de TH

    La même étude trouve une prévalence de 0.16% chez les femmes cis et 0.04% chez les hommes cis ; ça fait presque 20 fois plus de chances d'avoir un SED chez les personnes trans (OR 18.45).

    Ça recoupe quelques autres études qui montrent une prévalence importante de SEDh chez les personnes trans :

    • étude[2] dans un centre médical prescrivant des TH qui trouve une prévalence de SEDh de 2.7% chez des personnes trans
    • étude[3] dans un centre médical trouvant une prévalence de SED de 2.6% chez des personnes trans ayant eu une opération de transition (72% SEDh, le reste pas spécifié ; ~70% transmasc). Pas de surrisque de complications postop ou de réopérations dans ce groupe, pour principalement des mammecs, qqs orchis, et d'autres opés.
    • étude[4] dans un centre pédiatrique de prise en charge du SED trouvant une prévalence de dysphorie de genre de 17% chez des ados avec un diag de SED(h)/HSD

    [1] : Prevalence of Hypermobile Ehlers-Danlos Syndrome in Transgender and Gender Diverse Individuals: A Retrospective Cohort Study. Tabernacki T et al., 2025. doi.org/10.1177/23258292251382

    [2] : The prevalence of hypermobile Ehlers–Danlos syndrome at a gender-affirming primary care clinic. Stein T et al., 2025. doi.org/10.1177/20503121251315

    [3] : Ehlers-Danlos syndrome: prevalence and outcomes in gender affirming surgery - a single institution experience. Najafian A, 2022. doi.org/10.20517/2347-9264.202

    [4] : Gender dysphoria in adolescents with Ehlers–Danlos syndrome. Jones JT et al., 2022. doi.org/10.1177/20503121221146

    #EDS #hEDS #trans #hypermobility #hypermobileEhlersDanlosSyndrome #HSD

  16. Just realized the weight ive recently put on might actually be muscle??? Crying bc no other reaction feels to quite fit this emotion im experiencing/failing to name

    I havent been trying to gain or lose weight, just doing range of motion and flexibility stuff plus the odd dance movement with a fancy French name... i have a few what feel to me both modest and extravagant dance aspirations, so in some ways this development makes sense, its just so incredibly alien to me to actually detect progress toward those goals!!

    For context: ive been #chronicallyill since at least 2012, and was fully bedridden for at least seven of those years. Im still rather severely mentally ill but my body has been doing somewhat better lately (ongoing problems notwithstanding), for which im endlessly grateful and going to make the most of while I can, whatever that ends up looking like

    Random snaps my partner took of me the other day, for attention and bc i look fantastic 🩷

    #ChronicFatigue #ChronicPain #mecfs #fibromyalgia #hypermobility

  17. Just realized the weight ive recently put on might actually be muscle??? Crying bc no other reaction feels to quite fit this emotion im experiencing/failing to name

    I havent been trying to gain or lose weight, just doing range of motion and flexibility stuff plus the odd dance movement with a fancy French name... i have a few what feel to me both modest and extravagant dance aspirations, so in some ways this development makes sense, its just so incredibly alien to me to actually detect progress toward those goals!!

    For context: ive been #chronicallyill since at least 2012, and was fully bedridden for at least seven of those years. Im still rather severely mentally ill but my body has been doing somewhat better lately (ongoing problems notwithstanding), for which im endlessly grateful and going to make the most of while I can, whatever that ends up looking like

    Random snaps my partner took of me the other day, for attention and bc i look fantastic 🩷

    #ChronicFatigue #ChronicPain #mecfs #fibromyalgia #hypermobility

  18. Just realized the weight ive recently put on might actually be muscle??? Crying bc no other reaction feels to quite fit this emotion im experiencing/failing to name

    I havent been trying to gain or lose weight, just doing range of motion and flexibility stuff plus the odd dance movement with a fancy French name... i have a few what feel to me both modest and extravagant dance aspirations, so in some ways this development makes sense, its just so incredibly alien to me to actually detect progress toward those goals!!

    For context: ive been #chronicallyill since at least 2012, and was fully bedridden for at least seven of those years. Im still rather severely mentally ill but my body has been doing somewhat better lately (ongoing problems notwithstanding), for which im endlessly grateful and going to make the most of while I can, whatever that ends up looking like

    Random snaps my partner took of me the other day, for attention and bc i look fantastic 🩷

    #ChronicFatigue #ChronicPain #mecfs #fibromyalgia #hypermobility

  19. Just realized the weight ive recently put on might actually be muscle??? Crying bc no other reaction feels to quite fit this emotion im experiencing/failing to name

    I havent been trying to gain or lose weight, just doing range of motion and flexibility stuff plus the odd dance movement with a fancy French name... i have a few what feel to me both modest and extravagant dance aspirations, so in some ways this development makes sense, its just so incredibly alien to me to actually detect progress toward those goals!!

    For context: ive been #chronicallyill since at least 2012, and was fully bedridden for at least seven of those years. Im still rather severely mentally ill but my body has been doing somewhat better lately (ongoing problems notwithstanding), for which im endlessly grateful and going to make the most of while I can, whatever that ends up looking like

    Random snaps my partner took of me the other day, for attention and bc i look fantastic 🩷

    #ChronicFatigue #ChronicPain #mecfs #fibromyalgia #hypermobility

  20. Just realized the weight ive recently put on might actually be muscle??? Crying bc no other reaction feels to quite fit this emotion im experiencing/failing to name

    I havent been trying to gain or lose weight, just doing range of motion and flexibility stuff plus the odd dance movement with a fancy French name... i have a few what feel to me both modest and extravagant dance aspirations, so in some ways this development makes sense, its just so incredibly alien to me to actually detect progress toward those goals!!

    For context: ive been #chronicallyill since at least 2012, and was fully bedridden for at least seven of those years. Im still rather severely mentally ill but my body has been doing somewhat better lately (ongoing problems notwithstanding), for which im endlessly grateful and going to make the most of while I can, whatever that ends up looking like

    Random snaps my partner took of me the other day, for attention and bc i look fantastic 🩷

    #ChronicFatigue #ChronicPain #mecfs #fibromyalgia #hypermobility

  21. As a #disabled #gardener…it is really frustrating when the weight of tools is not listed online when purchasing ⛏️ :meow_cowboy:

    #gardening #HEDS #fibromyalgia #hypermobility #badback

  22. As a #disabled #gardener…it is really frustrating when the weight of tools is not listed online when purchasing ⛏️ :meow_cowboy:

    #gardening #HEDS #fibromyalgia #hypermobility #badback

  23. As a #disabled #gardener…it is really frustrating when the weight of tools is not listed online when purchasing ⛏️ :meow_cowboy:

    #gardening #HEDS #fibromyalgia #hypermobility #badback

  24. As a #disabled #gardener…it is really frustrating when the weight of tools is not listed online when purchasing ⛏️ :meow_cowboy:

    #gardening #HEDS #fibromyalgia #hypermobility #badback

  25. "Let me open up my diagnosis box and see if I have something that explains why this situation went this way."

    #Autism #ADHD #audhd #neurodivergent #CFS #lupus #hypermobility

  26. "Let me open up my diagnosis box and see if I have something that explains why this situation went this way."

    #Autism #ADHD #audhd #neurodivergent #CFS #lupus #hypermobility

  27. "Let me open up my diagnosis box and see if I have something that explains why this situation went this way."

    #Autism #ADHD #audhd #neurodivergent #CFS #lupus #hypermobility

  28. "Let me open up my diagnosis box and see if I have something that explains why this situation went this way."

    #Autism #ADHD #audhd #neurodivergent #CFS #lupus #hypermobility

  29. "Let me open up my diagnosis box and see if I have something that explains why this situation went this way."

    #Autism #ADHD #audhd #neurodivergent #CFS #lupus #hypermobility

  30. CW: HEDS, hypermobility TW

    I feel like my joint #hypermobility would thank me if I could just stand KT tape on my skin :meow_angry_intensifies: :meow_comfymelt: :meow_grimace:

    #HEDS

  31. CW: HEDS, hypermobility TW

    I feel like my joint #hypermobility would thank me if I could just stand KT tape on my skin :meow_angry_intensifies: :meow_comfymelt: :meow_grimace:

    #HEDS

  32. CW: HEDS, hypermobility TW

    I feel like my joint #hypermobility would thank me if I could just stand KT tape on my skin :meow_angry_intensifies: :meow_comfymelt: :meow_grimace:

    #HEDS

  33. CW: HEDS, hypermobility TW

    I feel like my joint #hypermobility would thank me if I could just stand KT tape on my skin :meow_angry_intensifies: :meow_comfymelt: :meow_grimace:

    #HEDS