#hypermobility — Public Fediverse posts

*Known disability, it’s possible to be disabled or have infection risk factors you don’t know about.

I started this in December and only finished it last week. Crip time!

Symptom: Mast Cell Itching

https://www.illmarks.com/symptom-mast-cell-itching/

#allergicreactions #Allergies #allergy #art #bodyHorror #bodyMapping #buildingSafety #chonicillness #chronicIllness #claws #eds #ehlersdanlossyndrome #environmentalIllness #environmentalillness #fingers #formaldehyde #heds #hypermobile #hypermobility #hypermobilityspectrumdisorder #immunology #itched #itching #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastcell #mastcellactivationsyndrome #mastcelldisease #mastocytosis #mcas #medicalArt #MillionsMissing #nails #POTS #prop65 #publicHealth #publicHealth #pwLC #pwme #scratched #scratching #scratchy #severeallergy #vocs

Diagnosis: Hypermobile Ehlers-Danlos Syndrome

After self-diagnosing, I got an official diagnosis. The victory of the official diagnosis was upstaged by the foot trauma two days previously, which I now know is a broken bone. However, at lest it’s in the same limb as all my other orthopedic trauma and severe arthritis. That’s really my saving grace right now — it’s a familiar injury. Adding another new mystery set of symptoms would be less welcome than rehatching an old burden.

Anyway, back to the art. I love some of the light interactive properties here that are hard to capture in a scan so:

Reflective properties close up, gold paint in the eyes, green metallic reflection for the dark around and in the eyes. The shimmer (ultra fine glittering particles) in the green ink are vibrant blue, and in the blue zebra stripes are color shifting, right now a rose.

Metallic version of the hardware in my leg — I looked at my own x-rays for reference!

Final close up.

https://www.illmarks.com/diagnosis-hypermobile-ehlers-danlos-syndrome/

#art #bodyHorror #bodyMapping #chronicIllness #connectivetissue #connectivetissuedisease #eds #ehlersDanlosSyndrome #ehlersdanlossyndrome #heds #hsd #hypermobile #hypermobileEhlersDanlosSyndrome #hypermobileehlersdanlossyndrome #hypermobility #hypermobilitySpectrum #hypermobilityspectrum #hypermobilityspectrumdisorder #longCovid #longcovid #medicalArt #MillionsMissing #pwLC #pwme

Symptom: Arthralgia and Arthritis

I need to pick a “job title” to describe the work I do here. I initially tried to make a poll with a plug in, but alas it didn’t work the way I hoped.

Here are some of the options I’m considering. Feel free to reply/comment with any or suggest your own!:

• Health & Care Advocacy Designer
• Mast Cell Artist Syndrome
• Chronically ill-ustrating Health Advocacy
• Plague Artist

Rejected (not great for professional use) options that I’ll share with you because I love you, but don’t tell my PCP about any of these, k?

• Notorious Self-Diagnoser
• Health Insurance Reform Enthusiast
• Creatinine-level Checking Creative
• Medical System Subverter
• Bruh They’re a Totally Sick Designer
• Mario’s Brother Appreciator

https://www.illmarks.com/symptom-arthralgia-and-arthritis-and-a-poll/

#art #arthralgia #autoimmune #bodyHorror #bodyMapping #chronicIllness #eds #heds #hsd #hypermobility #hypermobilityspectrum #longCovid #longcovid #mastCell #mastcell #mcas #medicalArt #MillionsMissing #osteoarthritis #pwLC #pwme #spondylitis #symptom #symptomVisualization #symptomtracking

@trendless

an example of new onset skin stretchiness in someone with Long Covid, post includes photo:
https://twitter.com/D_Bone/status/1550692324941787136

It would be interesting to do skin biopsies and look at gene expression, protein level, and glycosylation differences between stretchy skin areas vs. non-stretchy skin.

~
edited to add:

So far I haven't seen a study like that for hEDS, EDS or Long Covid. It seems strange since it is the 1st thing I would do (and if I ever win the lottery, it would be the 1st study I would fund). If something similar has already been done then pls let me know.

#ConnectiveTissue #EhlersDanlos #hEDS #EDS #hypermobility #LongCovid

Now that this poll about hypermobility and broken bones has closed, here's some results.

57 hypermobile participants. 31.6% had broken any bones, 66.7% hadn't.

145 regularmobile participants. 31.7% had broken any bones, 68.3% hadn't.

I conclude: hypermobility probably doesn't affect whether or not you break any bones, maybe?

#poll #polls #hypermobility #hypermobile #hEDS #EDS #EhlersDanlos #EhlersDanlosSyndrome

How many bones have you broken, and are you hypermobile?

This is a poll for everyone, but I'm tagging a few specific groups to make sure I get a good sample!

#poll #polls #hypermobility #hypermobile #hEDS #EDS #EhlersDanlos #EhlersDanlosSyndrome

I hate it.

Having a very emotional response.

Really makes a difference when you don't feel like the Dr has heard or understood you 😪

Keen to talk to anyone who's used one before, this doesn't feel like it has any capacity to be useful, I don't understand it at all, and I'm finding that really stressful and depressing (I'm in tunnel vision panic mode, tbh)

#eds #hypermobile #hypermobility