#mswarrior — Public Fediverse posts

ICYMI: From the AOF Studio New from the Studio: My Lesions Are Real. Your “Hallucinations” Are Just Bad Maths https://www.artoffaceless.com/my-lesions-are-real-your-hallucinations/?utm_source=dlvr.it&utm_medium=mastodon #MultipleSclerosis #SPMS #ChronicIllness #InvisibleIllness #MSWarrior

Ever wondered why the butterfly is the face of the MS community? It’s more than just a pretty symbol—it’s about the transformation we live through every single day. 🦋🧡 We've curated the ultimate guide to captions for your ribbons, ink, and advocacy posts. Check it out here:

#MSAwareness, #MultipleSclerosis, #SpoonieLife, #MSWarrior, #OrangeForMS

Read more: https://mooddrafts.com/orange-ribbon-butterfly-captions-wear-your-ms-strength/

Posting for World MS Day isn't just about orange ribbons—it's about honoring the 'terms and conditions' of a body that moves at its own pace. Whether you're a warrior or an ally, your voice matters. Let's make the invisible visible. 🧡

#WorldMSDay, #MSWarrior, #InvisibleIllness, #MyMSDiagnosis, #ChronicIllness, #MSAwareness

Read more: https://mooddrafts.com/world-ms-day-captions-powerful-ways-to-share-your-story/

Posting for World MS Day isn't just about orange ribbons—it's about honoring the 'terms and conditions' of a body that moves at its own pace. Whether you're a warrior or an ally, your voice matters. Let's make the invisible visible. 🧡

#WorldMSDay, #MSWarrior, #InvisibleIllness, #MyMSDiagnosis, #ChronicIllness, #MSAwareness

Read more: https://mooddrafts.com/world-ms-day-captions-powerful-ways-to-share-your-story/

Posting for World MS Day isn't just about orange ribbons—it's about honoring the 'terms and conditions' of a body that moves at its own pace. Whether you're a warrior or an ally, your voice matters. Let's make the invisible visible. 🧡

#WorldMSDay, #MSWarrior, #InvisibleIllness, #MyMSDiagnosis, #ChronicIllness, #MSAwareness

Read more: https://mooddrafts.com/world-ms-day-captions-powerful-ways-to-share-your-story/

Posting for World MS Day isn't just about orange ribbons—it's about honoring the 'terms and conditions' of a body that moves at its own pace. Whether you're a warrior or an ally, your voice matters. Let's make the invisible visible. 🧡

#WorldMSDay, #MSWarrior, #InvisibleIllness, #MyMSDiagnosis, #ChronicIllness, #MSAwareness

Read more: https://mooddrafts.com/world-ms-day-captions-powerful-ways-to-share-your-story/

Let’s be real: living with MS isn't always an 'inspirational journey.' Sometimes, it just sucks. 🧡 We’ve curated a collection of captions that skip the toxic positivity and speak the unvarnished truth for World MS Day. Copy, paste, and be heard.

#WorldMSDay, #MSAwareness, #InvisibleIllness, #SpoonieLife, #MSWarrior

Read more: https://mooddrafts.com/ms-awareness-captions-honest-support-for-world-ms-day/

Told ya'. Orange for neuron. Because it's the color of solidarity with Sclerosis Multiplex community! Here's model: https://www.thingiverse.com/thing:2100675

I'm starting to like the joke "I am lack of healthy neurons so had to print one! And on the right it's neuron before start of SM treatment" XD

But no, Sclerosis Multiplex do not erases neurons, but damages the protective sheaths around neurons (myelin).

#sclerosismultiplex #stwardnienierozsiane #mswarrior #ms #multiplesclerosis #3dprint #solidarity

Told ya'. Orange for neuron. Because it's the color of solidarity with Sclerosis Multiplex community! Here's model: https://www.thingiverse.com/thing:2100675

I'm starting to like the joke "I am lack of healthy neurons so had to print one! And on the right it's neuron before start of SM treatment" XD

But no, Sclerosis Multiplex do not erases neurons, but damages the protective sheaths around neurons (myelin).

#sclerosismultiplex #stwardnienierozsiane #mswarrior #ms #multiplesclerosis #3dprint #solidarity

Told ya'. Orange for neuron. Because it's the color of solidarity with Sclerosis Multiplex community! Here's model: https://www.thingiverse.com/thing:2100675

I'm starting to like the joke "I am lack of healthy neurons so had to print one! And on the right it's neuron before start of SM treatment" XD

But no, Sclerosis Multiplex do not erases neurons, but damages the protective sheaths around neurons (myelin).

#sclerosismultiplex #stwardnienierozsiane #mswarrior #ms #multiplesclerosis #3dprint #solidarity

Told ya'. Orange for neuron. Because it's the color of solidarity with Sclerosis Multiplex community! Here's model: https://www.thingiverse.com/thing:2100675

I'm starting to like the joke "I am lack of healthy neurons so had to print one! And on the right it's neuron before start of SM treatment" XD

But no, Sclerosis Multiplex do not erases neurons, but damages the protective sheaths around neurons (myelin).

#sclerosismultiplex #stwardnienierozsiane #mswarrior #ms #multiplesclerosis #3dprint #solidarity

I've just had my monthly dose of Kesimpa. It wasn't so bad this time, and usually I just get really stressed out about the injection, which ends up making me feel worse. Today was better!
Here's video, how injection work, because it's so automated 💜

https://youtu.be/I7OSMjHMtYI

#kesimpta #sclerosismultiplex #ms #mswarrior

I've just had my monthly dose of Kesimpa. It wasn't so bad this time, and usually I just get really stressed out about the injection, which ends up making me feel worse. Today was better!
Here's video, how injection work, because it's so automated 💜

https://youtu.be/I7OSMjHMtYI

#kesimpta #sclerosismultiplex #ms #mswarrior

I've just had my monthly dose of Kesimpa. It wasn't so bad this time, and usually I just get really stressed out about the injection, which ends up making me feel worse. Today was better!
Here's video, how injection work, because it's so automated 💜

https://youtu.be/I7OSMjHMtYI

#kesimpta #sclerosismultiplex #ms #mswarrior

I've just had my monthly dose of Kesimpa. It wasn't so bad this time, and usually I just get really stressed out about the injection, which ends up making me feel worse. Today was better!
Here's video, how injection work, because it's so automated 💜

https://youtu.be/I7OSMjHMtYI

#kesimpta #sclerosismultiplex #ms #mswarrior

I've just had my monthly dose of Kesimpa. It wasn't so bad this time, and usually I just get really stressed out about the injection, which ends up making me feel worse. Today was better!
Here's video, how injection work, because it's so automated 💜

https://youtu.be/I7OSMjHMtYI

#kesimpta #sclerosismultiplex #ms #mswarrior

International Ataxia Awareness Day.

#ataxia #johnfrusciante #redhotchilipeppers #az #trickfinger #rhcp #disability #flea #ataxiaawareness #chadsmith #frusciante #softspokenwithabrokenjaw #johnanthonymotherfuckingfruscianteeeeeeeeeeeeee #genetics #hospital #child #pedia #congenital #anamoly #genes #dna #diagnose #diagnosis #facitis #guess #medicalnotes #nectrotising #necrosis #mswarrior #cremastric Today is International Ataxia Awareness Day. Ataxia is a disease that…

https://itsmostamazingindia.wordpress.com/2025/09/25/international-ataxia-awareness-day/

International Ataxia Awareness Day.

#ataxia #johnfrusciante #redhotchilipeppers #az #trickfinger #rhcp #disability #flea #ataxiaawareness #chadsmith #frusciante #softspokenwithabrokenjaw #johnanthonymotherfuckingfruscianteeeeeeeeeeeeee #genetics #hospital #child #pedia #congenital #anamoly #genes #dna #diagnose #diagnosis #facitis #guess #medicalnotes #nectrotising #necrosis #mswarrior #cremastric Today is International Ataxia Awareness Day. Ataxia is a disease that…

https://itsmostamazingindia.wordpress.com/2025/09/25/international-ataxia-awareness-day/

International Ataxia Awareness Day.

#ataxia #johnfrusciante #redhotchilipeppers #az #trickfinger #rhcp #disability #flea #ataxiaawareness #chadsmith #frusciante #softspokenwithabrokenjaw #johnanthonymotherfuckingfruscianteeeeeeeeeeeeee #genetics #hospital #child #pedia #congenital #anamoly #genes #dna #diagnose #diagnosis #facitis #guess #medicalnotes #nectrotising #necrosis #mswarrior #cremastric Today is International Ataxia Awareness Day. Ataxia is a disease that…

https://itsmostamazingindia.wordpress.com/2025/09/25/international-ataxia-awareness-day/

International Ataxia Awareness Day.

#ataxia #johnfrusciante #redhotchilipeppers #az #trickfinger #rhcp #disability #flea #ataxiaawareness #chadsmith #frusciante #softspokenwithabrokenjaw #johnanthonymotherfuckingfruscianteeeeeeeeeeeeee #genetics #hospital #child #pedia #congenital #anamoly #genes #dna #diagnose #diagnosis #facitis #guess #medicalnotes #nectrotising #necrosis #mswarrior #cremastric Today is International Ataxia Awareness Day. Ataxia is a disease that…

https://itsmostamazingindia.wordpress.com/2025/09/25/international-ataxia-awareness-day/

#stwardnienierozsiane

Po 6 latach remisji (wstrzymania) choroby dostałom do kolekcji kolejne dwa ogniska chorobowe, na szczęście nieaktywne, czyli mogłom nawet nie odczuć ich pojawienia się. Może to sprawiły te upały ostatnie :/

No ale tego powodu rozpoczynam kolejny, nowy lek, nowy też w Polsce: Kesimpta (ofatumumab).

Wydaje się spoko, bo zastrzyki będą co miesiąc, a i skutków ubocznych ma ogromnie mniej niż poprzedni lek Tecfidera (codziennie brane kapsułki): obajwy grypo-podobne po zastrzyku (podobnie jak po szczepionkach), czy zakażenie dróg moczowych, oprócz standardowego obniżenia odporności zgodnie z planem leczenia.

#kesimpta #ofatumumab #tecfidera #sm #ms #mswarrior

#stwardnienierozsiane

Po 6 latach remisji (wstrzymania) choroby dostałom do kolekcji kolejne dwa ogniska chorobowe, na szczęście nieaktywne, czyli mogłom nawet nie odczuć ich pojawienia się. Może to sprawiły te upały ostatnie :/

No ale tego powodu rozpoczynam kolejny, nowy lek, nowy też w Polsce: Kesimpta (ofatumumab).

Wydaje się spoko, bo zastrzyki będą co miesiąc, a i skutków ubocznych ma ogromnie mniej niż poprzedni lek Tecfidera (codziennie brane kapsułki): obajwy grypo-podobne po zastrzyku (podobnie jak po szczepionkach), czy zakażenie dróg moczowych, oprócz standardowego obniżenia odporności zgodnie z planem leczenia.

#kesimpta #ofatumumab #tecfidera #sm #ms #mswarrior

#stwardnienierozsiane

Po 6 latach remisji (wstrzymania) choroby dostałom do kolekcji kolejne dwa ogniska chorobowe, na szczęście nieaktywne, czyli mogłom nawet nie odczuć ich pojawienia się. Może to sprawiły te upały ostatnie :/

No ale tego powodu rozpoczynam kolejny, nowy lek, nowy też w Polsce: Kesimpta (ofatumumab).

Wydaje się spoko, bo zastrzyki będą co miesiąc, a i skutków ubocznych ma ogromnie mniej niż poprzedni lek Tecfidera (codziennie brane kapsułki): obajwy grypo-podobne po zastrzyku (podobnie jak po szczepionkach), czy zakażenie dróg moczowych, oprócz standardowego obniżenia odporności zgodnie z planem leczenia.

#kesimpta #ofatumumab #tecfidera #sm #ms #mswarrior

#stwardnienierozsiane

Po 6 latach remisji (wstrzymania) choroby dostałom do kolekcji kolejne dwa ogniska chorobowe, na szczęście nieaktywne, czyli mogłom nawet nie odczuć ich pojawienia się. Może to sprawiły te upały ostatnie :/

No ale tego powodu rozpoczynam kolejny, nowy lek, nowy też w Polsce: Kesimpta (ofatumumab).

Wydaje się spoko, bo zastrzyki będą co miesiąc, a i skutków ubocznych ma ogromnie mniej niż poprzedni lek Tecfidera (codziennie brane kapsułki): obajwy grypo-podobne po zastrzyku (podobnie jak po szczepionkach), czy zakażenie dróg moczowych, oprócz standardowego obniżenia odporności zgodnie z planem leczenia.

#kesimpta #ofatumumab #tecfidera #sm #ms #mswarrior

#stwardnienierozsiane

Po 6 latach remisji (wstrzymania) choroby dostałom do kolekcji kolejne dwa ogniska chorobowe, na szczęście nieaktywne, czyli mogłom nawet nie odczuć ich pojawienia się. Może to sprawiły te upały ostatnie :/

No ale tego powodu rozpoczynam kolejny, nowy lek, nowy też w Polsce: Kesimpta (ofatumumab).

Wydaje się spoko, bo zastrzyki będą co miesiąc, a i skutków ubocznych ma ogromnie mniej niż poprzedni lek Tecfidera (codziennie brane kapsułki): obajwy grypo-podobne po zastrzyku (podobnie jak po szczepionkach), czy zakażenie dróg moczowych, oprócz standardowego obniżenia odporności zgodnie z planem leczenia.

#kesimpta #ofatumumab #tecfidera #sm #ms #mswarrior

Kłirowe wojownicze stwardnienia rozsianego

W Rawiczu odbywa się m. in. całodobowy maraton sztafetowy wokół Plant (~2.8km, historyczne wały obronne starówki).
Udało mi się pokonać 20km w ciągu w sumie 2h, z przerwami 15min i 30min.
Czemu biegam? Pyta się mnie. Żeby sobie afirmować, że SM nie jest końcem świata. Kiedyś mogę przestać biegać, i mam tą potrzebę nadrobienia osiągnięć, kiedy jeszcze mogę. SM z natury wpływa negatywie na ciało, ale mam wrażenie że depresja z tego powodu jest gorsza. Wspierajcie swoje osoby sm-owe 🖤
Świetna sobota - marsz i maraton xD

#sm #ms #mswarrior #multiplesclerosis #stwardnienierozsiane #maraton #bieganie #walka #depresja #queer

I'm going to start the #hnpp tag as it's not here yet. I have it. It stands for Hereditary Neuropathy with Liability to Pressure Palsies. It's a rare degenerative neurological condition, closely related to #multiplesclerosis.

It means I'm losing my limbs, my legs are around 30% and arms about 50%. My spine is at around 50% now hence needing a wheelchair. I hope to raise awareness and allow others to find me here!

#rarediseaseadvocate #ChronicIllnessDisability #MSWarrior #DisabilityAdvocate

I'm going to start the #hnpp tag as it's not here yet. I have it. It stands for Hereditary Neuropathy with Liability to Pressure Palsies. It's a rare degenerative neurological condition, closely related to #multiplesclerosis.

It means I'm losing my limbs, my legs are around 30% and arms about 50%. My spine is at around 50% now hence needing a wheelchair. I hope to raise awareness and allow others to find me here!

#rarediseaseadvocate #ChronicIllnessDisability #MSWarrior #DisabilityAdvocate

I'm going to start the #hnpp tag as it's not here yet. I have it. It stands for Hereditary Neuropathy with Liability to Pressure Palsies. It's a rare degenerative neurological condition, closely related to #multiplesclerosis.

It means I'm losing my limbs, my legs are around 30% and arms about 50%. My spine is at around 50% now hence needing a wheelchair. I hope to raise awareness and allow others to find me here!

#rarediseaseadvocate #ChronicIllnessDisability #MSWarrior #DisabilityAdvocate

I'm going to start the #hnpp tag as it's not here yet. I have it. It stands for Hereditary Neuropathy with Liability to Pressure Palsies. It's a rare degenerative neurological condition, closely related to #multiplesclerosis.

It means I'm losing my limbs, my legs are around 30% and arms about 50%. My spine is at around 50% now hence needing a wheelchair. I hope to raise awareness and allow others to find me here!

#rarediseaseadvocate #ChronicIllnessDisability #MSWarrior #DisabilityAdvocate

I'm going to start the #hnpp tag as it's not here yet. I have it. It stands for Hereditary Neuropathy with Liability to Pressure Palsies. It's a rare degenerative neurological condition, closely related to #multiplesclerosis.

It means I'm losing my limbs, my legs are around 30% and arms about 50%. My spine is at around 50% now hence needing a wheelchair. I hope to raise awareness and allow others to find me here!

#rarediseaseadvocate #ChronicIllnessDisability #MSWarrior #DisabilityAdvocate