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#chronicillnesses — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #chronicillnesses, aggregated by home.social.

  1. "Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone

    mecfs.substack.com/p/medical-g

    #MedicalGaslighting #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

  2. "Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone

    mecfs.substack.com/p/medical-g

    #MedicalGaslighting #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

  3. "Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone

    mecfs.substack.com/p/medical-g

    #MedicalGaslighting #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

  4. "Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone

    mecfs.substack.com/p/medical-g

    #MedicalGaslighting #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

  5. "Rather than holding onto the idea that the only life worth living is one without disease, consider expanding your definition of hope to include connection, purpose, & meaning under any circumstances"

    From:
    Recap: Support group: Coping with Depression & Emotional Overload
    batemanhornecenter.org/wp-cont

    #MEcfs #CFS #PwME
    @mecfs @longcovid
    #LongCovid #POTS @pots #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

  6. "Rather than holding onto the idea that the only life worth living is one without disease, consider expanding your definition of hope to include connection, purpose, & meaning under any circumstances"

    From:
    Recap: Support group: Coping with Depression & Emotional Overload
    batemanhornecenter.org/wp-cont

    #MEcfs #CFS #PwME
    @mecfs @longcovid
    #LongCovid #POTS @pots #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

  7. "Rather than holding onto the idea that the only life worth living is one without disease, consider expanding your definition of hope to include connection, purpose, & meaning under any circumstances"

    From:
    Recap: Support group: Coping with Depression & Emotional Overload
    batemanhornecenter.org/wp-cont

    #MEcfs #CFS #PwME
    @mecfs @longcovid
    #LongCovid #POTS @pots #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

  8. "Rather than holding onto the idea that the only life worth living is one without disease, consider expanding your definition of hope to include connection, purpose, & meaning under any circumstances"

    From:
    Recap: Support group: Coping with Depression & Emotional Overload
    batemanhornecenter.org/wp-cont

    #MEcfs #CFS #PwME
    @mecfs @longcovid
    #LongCovid #POTS @pots #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

  9. 🧵
    "The Quiet Art of Extending a Life: Notes on Assistive Tools, Capacity, and the Dignity of Support"

    onelifelivedwell.substack.com/

    Another thoughtful post from this OT who specialises in ME/CFS & long Covid

    She calls such devices "capacity extenders".

    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll
    #MEcfs #CFS #PwME
    @mecfs @longcovid
    #LongCovid #POTS @pots
    #Disabled
    #Disability

    1/

  10. 🧵
    Another thoughtful blog post from this blogger:

    "Some people feel validated by an FND diagnosis; we should treat these people with respect, understanding and compassion (even if we think they're wrong). It’s complicated!" by K. Johnstone

    mecfs.substack.com/p/some-peop

    #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    1/

  11. 🧵
    Another thoughtful blog post from this blogger:

    "Some people feel validated by an FND diagnosis; we should treat these people with respect, understanding and compassion (even if we think they're wrong). It’s complicated!" by K. Johnstone

    mecfs.substack.com/p/some-peop

    #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    1/

  12. 🧵
    Another thoughtful blog post from this blogger:

    "Some people feel validated by an FND diagnosis; we should treat these people with respect, understanding and compassion (even if we think they're wrong). It’s complicated!" by K. Johnstone

    mecfs.substack.com/p/some-peop

    #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    1/

  13. 🧵
    Another thoughtful blog post from this blogger:

    "Some people feel validated by an FND diagnosis; we should treat these people with respect, understanding and compassion (even if we think they're wrong). It’s complicated!" by K. Johnstone

    mecfs.substack.com/p/some-peop

    #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    1/

  14. 🧵
    "Somatic symptom disorder: Why your doctor doesn't believe you're really sick: SSD is a mainly-female condition which medicine treats as real and common, but which has no solid scientific basis"

    mecfs.substack.com/p/somatic-s

    I have been impressed by this blogger.

    #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    1/

  15. 🧵
    "Somatic symptom disorder: Why your doctor doesn't believe you're really sick: SSD is a mainly-female condition which medicine treats as real and common, but which has no solid scientific basis"

    mecfs.substack.com/p/somatic-s

    I have been impressed by this blogger.

    #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    1/

  16. 🧵
    "Somatic symptom disorder: Why your doctor doesn't believe you're really sick: SSD is a mainly-female condition which medicine treats as real and common, but which has no solid scientific basis"

    mecfs.substack.com/p/somatic-s

    I have been impressed by this blogger.

    #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    1/

  17. 🧵
    "Somatic symptom disorder: Why your doctor doesn't believe you're really sick: SSD is a mainly-female condition which medicine treats as real and common, but which has no solid scientific basis"

    mecfs.substack.com/p/somatic-s

    I have been impressed by this blogger.

    #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    1/

  18. I saw this 36-page booklet recommended for people with disabilities & chronic illnesses as well as older people but haven't read.

    aarp.org/livable-communities/h

    Not sure whether it is mainly of use to those in the US or whether it is pretty international?

    #Disabled #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll
    #Disability

    1/

  19. I saw this 36-page booklet recommended for people with disabilities & chronic illnesses as well as older people but haven't read.

    aarp.org/livable-communities/h

    Not sure whether it is mainly of use to those in the US or whether it is pretty international?

    #Disabled #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll
    #Disability

    1/

  20. I saw this 36-page booklet recommended for people with disabilities & chronic illnesses as well as older people but haven't read.

    aarp.org/livable-communities/h

    Not sure whether it is mainly of use to those in the US or whether it is pretty international?

    #Disabled #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll
    #Disability

    1/

  21. ENG: In women with chronic pain syndromes, an excellent real-life Brazilian study of full-spectrum cannabis extracts with tailored dosages found improvements in pain relief, cognitive function, motor abilities, professional activities & ability, irritability, anxiety, melancholy, fatigue & sleep quality

    ESP: En mujeres con síndrome de dolor crónico, un excelente estudio brasileño en el mundo real sobre extractos de cannabis de espectro completo (flor de cannabis, no fibras de cáñamo) y dosis personalizadas, encontró mejoras en el alivio del dolor, la función cognitiva, las habilidades motoras, las actividades y capacidades profesionales, la irritabilidad, la ansiedad, la melancolía, la fatiga y la calidad del sueño.

    frontiersin.org/journals/pharm

    #pain #menstrual #menstrualcycle
    #autoinmunes #autoinmunedisease
    #ChronicIllnesses #chronicpain
    #cannabis #Cannabinoids #thc
    #cannabinoide #EfectoSéquito
    #dolor #mujeres #saludmental
    #medicalcannabis #marijuana
    #cannabismedicinal #cbd

  22. Przez wiele lat, na innych lekach, nie mogłam się szczepić nawet na grypę. Zmienili mi leki, covid (ja już 7 dawek) wymusił dokładne przebadanie i oto dziś wyszłam z gabinetu z oficjalnym glejtem
    Twoja stara jest fanatyczką szczepień.

    #SM #StwardnienieRozsiane #MultipleSclerosis #ChronicIllnesses

  23. #ChronicIllnesses thrive in a sink-or-swim #culture, w/the US gov spending far less than peer countries on #PreventiveMedicine & #SocialWelfare generally. Breakthroughs in #technology, #medicine & #nutrition that should be boosting average life spans have instead been overwhelmed by #poverty, #racism, #distrust of the #MedicalSystem, fracturing of #social networks & #unhealthy #diets built around highly #ProcessedFood, researchers told The Post.

    #FoodDeserts #Accessibility #GeographicInequality