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#chronicillnesses — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #chronicillnesses, aggregated by home.social.

  1. From Canada 🇨🇦

    ‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

    Free fulltext:
    digitalcommons.osgoode.yorku.c

    #MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    @mecfs

  2. From Canada 🇨🇦

    ‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

    Free fulltext:
    digitalcommons.osgoode.yorku.c

    #MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    @mecfs

  3. From Canada 🇨🇦

    ‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

    Free fulltext:
    digitalcommons.osgoode.yorku.c

    #MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    @mecfs

  4. From Canada 🇨🇦

    ‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

    Free fulltext:
    digitalcommons.osgoode.yorku.c

    #MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    @mecfs

  5. "Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone

    mecfs.substack.com/p/medical-g

    #MedicalGaslighting #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

  6. "Rather than holding onto the idea that the only life worth living is one without disease, consider expanding your definition of hope to include connection, purpose, & meaning under any circumstances"

    From:
    Recap: Support group: Coping with Depression & Emotional Overload
    batemanhornecenter.org/wp-cont

    #MEcfs #CFS #PwME
    @mecfs @longcovid
    #LongCovid #POTS @pots #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

  7. 🧵
    Another thoughtful blog post from this blogger:

    "Some people feel validated by an FND diagnosis; we should treat these people with respect, understanding and compassion (even if we think they're wrong). It’s complicated!" by K. Johnstone

    mecfs.substack.com/p/some-peop

    #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    1/

  8. 🧵
    "Somatic symptom disorder: Why your doctor doesn't believe you're really sick: SSD is a mainly-female condition which medicine treats as real and common, but which has no solid scientific basis"

    mecfs.substack.com/p/somatic-s

    I have been impressed by this blogger.

    #neisvoid
    #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

    1/

  9. I saw this 36-page booklet recommended for people with disabilities & chronic illnesses as well as older people but haven't read.

    aarp.org/livable-communities/h

    Not sure whether it is mainly of use to those in the US or whether it is pretty international?

    #Disabled #chronicillness
    #chroniclife
    #ChronicPain
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll
    #Disability

    1/

  10. Opinion piece on the word "journey" as a problematic euphemism for chronic illness.

    "Sugarcoating my bitter pill, a chronic disease, by calling it a “journey” might sweeten it for you, but not for me."

    statnews.com/2025/11/25/chroni

    Screenshot from latest Science for ME weekly update

    #LongCovid @longcovid #neisvoid
    #chronicillness
    #chroniclife
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie
    #ChronicallyIll

  11. Find New Meaning
    cfsselfhelp.org/library/10-fin

    "In sum, we experience the loss of the person we used to be. The pervasiveness of loss presents us with one of our biggest tasks: finding meaning when so much has been taken from us"

    A little bit of what might be called psychobabble near the start but interesting topic

    @mecfs
    #MyalgicEncephalomyelitis #MEcfs #CFS #PwME @longcovid
    #LongCovid #POTS @pots #chroniclife
    #Spoonielife
    #hiddenillness
    #invisibleillness
    #ChronicIllnesses
    #Spoonies
    #Spoonie

  12. 🌟 Introduction Post 🌟

    Hi everyone! 👋 I'm Lanie Molinar Carmelo (she/her), and I'm thrilled to join the amazing community here on allovertheplace.ca! Here's a little about me:

    🧑‍💻 Who I Am

    I'm a #UsabilityTester and an aspiring #AccessibilityConsultant, working to make technology better for everyone, especially those of us with disabilities. I'm most passionate about helping those with multiple disabilities, as it's an area that doesn't get enough attention.

    🐾 Meet Squeaker!

    I'm also the proud human to my 10-year-old Miniature Pinscher, Squeaker, who is the best little companion anyone could ask for. 🐕💖 He drives me nuts sometimes, but I don't know what I'd do without him. My profile picture features me with Squeaker, and my header shows him wrapped in a blanket with just his adorable face peeking out!

    📚 What I’m Studying

    I'm currently learning:

    • Digital Accessibility through the BIT Accessibility Analyst Course
    • Literary Braille Proofreading via the NLS
    • Programming on platforms like freeCodeCamp and Codecademy

    My goal is to develop accessible apps that empower people with disabilities, contribute to open-source projects that promote inclusion, and just do what I can to make the world more accessible.

    💡 What I Do

    I run or co-lead several online support groups for people with multiple disabilities. These groups provide safe spaces to connect, share resources, and talk with others who "get it." You can find them here:

    • Facebook: Multiple Disabilities Peer to Peer Support Group
    • Discord/Mailing List: MultAbilities
    • Clubhouse: People with Multiple Disabilities

    Right now, my focus is on growing these groups and making connections with others who are passionate about supporting multiply disabled individuals. If you're interested in joining or collaborating, feel free to reach out or check out my website at laniecarmelo.tech, where you'll find links to all the groups!

    🎮📖🍴 My Interests

    When I’m not advocating or studying, you can find me:

    I also love swimming 🏊‍♀️ when my health allows it.

    🛠️ My Goals

    One day, I hope to found a nonprofit organization to support multiply disabled individuals. The nonprofit would:

    • Provide peer support groups
    • Help fund assistive technology
    • Advocate for education and employment opportunities
    • Collaborate with disability-focused organizations to improve accessibility

    For now, I'm focused on running my support groups and building connections that could help make this dream a reality. If you have ideas or resources—or just want to chat—let me know! 🤝

    🤝 Let’s Connect!

    I’m always happy to chat about:

    • Accessibility in #tech or tech in general
    • Disability advocacy
    • Programming (#HTML, #JavaScript)
    • Braille
    • Books
    • Or just life in general!

    Feel free to follow me here or check out my website at laniecarmelo.tech.

    #Introduction #DisabilityCommunity #AccessibilityMatters #Blindness #AutismAcceptance #ChronicIllnessWarrior #TechForGood #DisabilityAdvocate #OpenSourceProjects #BrailleLiteracy #GamingWithDisabilities #InclusiveDesign