#chronicillnesses — Public Fediverse posts

Hi, I’m Rook. I’m a 30-something nerdy #trans vixen.

I’ve been doing #WebDevelopment, #programming, and #database stuff since I was a kit, and I'm still loving it.

Currently, I am recovering from #AutisticBurnout and dealing with multiple #ChronicIllnesses.

Previously, I worked with complex #automation and #robotics systems in #HealthCare, doing a mix of #UserSupport, #SystemAdmin, and #DataAnalysis.

At home, I’m constantly tinkering with #SmartHome projects using #HomeAssistant, building my own #electronics, and battling my #3DPrinting hardware.

I also enjoy running around as a big, silly #fox in the #Furry fandom. #Fursuiter

I’m #ActuallyAutistic, #AuDHD, and #ADHD. I’m a proud #transgender member of the #LGBTQIA #queer community,

#introduction #reintroduction

Hi, I’m Rook. I’m a 30-something nerdy #trans vixen.

I’ve been doing #WebDevelopment, #programming, and #database stuff since I was a kit, and I'm still loving it.

Currently, I am recovering from #AutisticBurnout and dealing with multiple #ChronicIllnesses.

Previously, I worked with complex #automation and #robotics systems in #HealthCare, doing a mix of #UserSupport, #SystemAdmin, and #DataAnalysis.

At home, I’m constantly tinkering with #SmartHome projects using #HomeAssistant, building my own #electronics, and battling my #3DPrinting hardware.

I also enjoy running around as a big, silly #fox in the #Furry fandom. #Fursuiter

I’m #ActuallyAutistic, #AuDHD, and #ADHD. I’m a proud #transgender member of the #LGBTQIA #queer community,

#introduction #reintroduction

Hi, I’m Rook. I’m a 30-something nerdy #trans vixen.

I’ve been doing #WebDevelopment, #programming, and #database stuff since I was a kit, and I'm still loving it.

Currently, I am recovering from #AutisticBurnout and dealing with multiple #ChronicIllnesses.

Previously, I worked with complex #automation and #robotics systems in #HealthCare, doing a mix of #UserSupport, #SystemAdmin, and #DataAnalysis.

At home, I’m constantly tinkering with #SmartHome projects using #HomeAssistant, building my own #electronics, and battling my #3DPrinting hardware.

I also enjoy running around as a big, silly #fox in the #Furry fandom. #Fursuiter

I’m #ActuallyAutistic, #AuDHD, and #ADHD. I’m a proud #transgender member of the #LGBTQIA #queer community,

#introduction #reintroduction

Hi, I’m Rook. I’m a 30-something nerdy #trans vixen.

I’ve been doing #WebDevelopment, #programming, and #database stuff since I was a kit, and I'm still loving it.

Currently, I am recovering from #AutisticBurnout and dealing with multiple #ChronicIllnesses.

Previously, I worked with complex #automation and #robotics systems in #HealthCare, doing a mix of #UserSupport, #SystemAdmin, and #DataAnalysis.

At home, I’m constantly tinkering with #SmartHome projects using #HomeAssistant, building my own #electronics, and battling my #3DPrinting hardware.

I also enjoy running around as a big, silly #fox in the #Furry fandom. #Fursuiter

I’m #ActuallyAutistic, #AuDHD, and #ADHD. I’m a proud #transgender member of the #LGBTQIA #queer community,

#introduction #reintroduction

Hi, I’m Rook. I’m a 30-something nerdy #trans vixen.

I’ve been doing #WebDevelopment, #programming, and #database stuff since I was a kit, and I'm still loving it.

Currently, I am recovering from #AutisticBurnout and dealing with multiple #ChronicIllnesses.

Previously, I worked with complex #automation and #robotics systems in #HealthCare, doing a mix of #UserSupport, #SystemAdmin, and #DataAnalysis.

At home, I’m constantly tinkering with #SmartHome projects using #HomeAssistant, building my own #electronics, and battling my #3DPrinting hardware.

I also enjoy running around as a big, silly #fox in the #Furry fandom. #Fursuiter

I’m #ActuallyAutistic, #AuDHD, and #ADHD. I’m a proud #transgender member of the #LGBTQIA #queer community,

#introduction #reintroduction

3/

Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:

• Insufficient preparation for chronic illness
• Common and serious diseases are neglected in medical training
• Psychosomatic illness
• Inability to accept uncertainty

#MedicalGaslighting #Gaslighting #MedMastodon
@longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses

3/

Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:

• Insufficient preparation for chronic illness
• Common and serious diseases are neglected in medical training
• Psychosomatic illness
• Inability to accept uncertainty

#MedicalGaslighting #Gaslighting #MedMastodon
@longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses

3/

Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:

• Insufficient preparation for chronic illness
• Common and serious diseases are neglected in medical training
• Psychosomatic illness
• Inability to accept uncertainty

#MedicalGaslighting #Gaslighting #MedMastodon
@longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses

3/

Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:

• Insufficient preparation for chronic illness
• Common and serious diseases are neglected in medical training
• Psychosomatic illness
• Inability to accept uncertainty

#MedicalGaslighting #Gaslighting #MedMastodon
@longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses

3/

Includes subsections under the category of "Failures in medical training that promote medical gaslighting" with the following headings:

• Insufficient preparation for chronic illness
• Common and serious diseases are neglected in medical training
• Psychosomatic illness
• Inability to accept uncertainty

#MedicalGaslighting #Gaslighting #MedMastodon
@longcovid @mecfs #chronicillness #spoonies #NEISvoid #chronicillnesses #hiddenillnesses

🧵
"How medical training promotes medical gaslighting" by K. Johnstone

https://mecfs.substack.com/p/how-medical-training-promotes-medical

This is not illness specific.

#chronicillness #hiddenillness #invisibleillness @longcovid
#LongCovid #MEcfs
@mecfs #ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

1/

🧵
"How medical training promotes medical gaslighting" by K. Johnstone

https://mecfs.substack.com/p/how-medical-training-promotes-medical

This is not illness specific.

#chronicillness #hiddenillness #invisibleillness @longcovid
#LongCovid #MEcfs
@mecfs #ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

1/

🧵
"How medical training promotes medical gaslighting" by K. Johnstone

https://mecfs.substack.com/p/how-medical-training-promotes-medical

This is not illness specific.

#chronicillness #hiddenillness #invisibleillness @longcovid
#LongCovid #MEcfs
@mecfs #ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

1/

🧵
"How medical training promotes medical gaslighting" by K. Johnstone

https://mecfs.substack.com/p/how-medical-training-promotes-medical

This is not illness specific.

#chronicillness #hiddenillness #invisibleillness @longcovid
#LongCovid #MEcfs
@mecfs #ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

1/

🧵
"How medical training promotes medical gaslighting" by K. Johnstone

https://mecfs.substack.com/p/how-medical-training-promotes-medical

This is not illness specific.

#chronicillness #hiddenillness #invisibleillness @longcovid
#LongCovid #MEcfs
@mecfs #ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

1/

"Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone

https://mecfs.substack.com/p/medical-gaslighting-is-serious-harmful

#MedicalGaslighting #neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

"Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone

https://mecfs.substack.com/p/medical-gaslighting-is-serious-harmful

#MedicalGaslighting #neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

"Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone

https://mecfs.substack.com/p/medical-gaslighting-is-serious-harmful

#MedicalGaslighting #neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

"Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone

https://mecfs.substack.com/p/medical-gaslighting-is-serious-harmful

#MedicalGaslighting #neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

"Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at." by K. Johnstone

https://mecfs.substack.com/p/medical-gaslighting-is-serious-harmful

#MedicalGaslighting #neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

News Release 9-Mar-2026

Telemedicine remains popular, but who uses it varies widely

https://www.eurekalert.org/news-releases/1119321

“Telemedicine is no longer just a pandemic workaround—it has become a routine part of care delivery,”

#chronicillness #Spoonie #ChronicallyIll #ChronicIllnesses #Spoonies

News Release 9-Mar-2026

Telemedicine remains popular, but who uses it varies widely

https://www.eurekalert.org/news-releases/1119321

“Telemedicine is no longer just a pandemic workaround—it has become a routine part of care delivery,”

#chronicillness #Spoonie #ChronicallyIll #ChronicIllnesses #Spoonies

Years of scapegoating rhetoric has led to ‘envy & resentment’ of those with blue badges, research finds

Note: blue badge = UK name for disabled parking permit

https://www.disabilitynewsservice.com/years-of-scapegoating-rhetoric-has-led-to-envy-and-resentment-of-those-with-blue-badges-research-finds/

Screenshot from AMMES March 2026 Newsletter

#Disabled #Disability #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots

Years of scapegoating rhetoric has led to ‘envy & resentment’ of those with blue badges, research finds

Note: blue badge = UK name for disabled parking permit

https://www.disabilitynewsservice.com/years-of-scapegoating-rhetoric-has-led-to-envy-and-resentment-of-those-with-blue-badges-research-finds/

Screenshot from AMMES March 2026 Newsletter

#Disabled #Disability #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots

Years of scapegoating rhetoric has led to ‘envy & resentment’ of those with blue badges, research finds

Note: blue badge = UK name for disabled parking permit

https://www.disabilitynewsservice.com/years-of-scapegoating-rhetoric-has-led-to-envy-and-resentment-of-those-with-blue-badges-research-finds/

Screenshot from AMMES March 2026 Newsletter

#Disabled #Disability #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots

Years of scapegoating rhetoric has led to ‘envy & resentment’ of those with blue badges, research finds

Note: blue badge = UK name for disabled parking permit

https://www.disabilitynewsservice.com/years-of-scapegoating-rhetoric-has-led-to-envy-and-resentment-of-those-with-blue-badges-research-finds/

Screenshot from AMMES March 2026 Newsletter

#Disabled #Disability #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots

Years of scapegoating rhetoric has led to ‘envy & resentment’ of those with blue badges, research finds

Note: blue badge = UK name for disabled parking permit

https://www.disabilitynewsservice.com/years-of-scapegoating-rhetoric-has-led-to-envy-and-resentment-of-those-with-blue-badges-research-finds/

Screenshot from AMMES March 2026 Newsletter

#Disabled #Disability #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots

Scientists Find a Deficiency in This Vitamin Increases Inflammation

Study: Low Vitamin D May Increase Inflammation Elena Noviello – Getty Images Low vitamin D levels may contribute…
#NewsBeep #News #Nutrition #CA #Canada #chronicillnesses #chronicinflammation #Health #Inflammation #JackieNewgent #vitamind #vitaminDdeficiency #VitaminDlevels
https://www.newsbeep.com/ca/518308/

https://www.europesays.com/uk/808053/ Scientists Find a Deficiency in This Vitamin Increases Inflammation #ChronicIllnesses #ChronicInflammation #Health #Inflammation #JackieNewgent #Nutrition #UK #UnitedKingdom #VitaminD #VitaminDDeficiency #VitaminDLevels

https://www.europesays.com/ie/371038/ Scientists Find a Deficiency in This Vitamin Increases Inflammation #ChronicIllnesses #ChronicInflammation #Éire #Health #IE #inflammation #Ireland #JackieNewgent #Nutrition #VitaminD #VitaminDDeficiency #VitaminDLevels

Scientists Find a Deficiency in This Vitamin Increases Inflammation

Study: Low Vitamin D May Increase Inflammation Elena Noviello – Getty Images Low vitamin D levels may contribute…
#NewsBeep #News #US #USA #UnitedStates #UnitedStatesOfAmerica #Nutrition #chronicillnesses #chronicinflammation #Health #inflammation #JackieNewgent #VitaminD #VitaminDdeficiency #VitaminDlevels
https://www.newsbeep.com/us/506963/

Scientists Find a Deficiency in This Vitamin Increases Inflammation

Study: Low Vitamin D May Increase Inflammation Elena Noviello – Getty Images Low vitamin D levels may contribute…
#NewsBeep #News #US #USA #UnitedStates #UnitedStatesOfAmerica #Nutrition #chronicillnesses #chronicinflammation #Health #inflammation #JackieNewgent #VitaminD #VitaminDdeficiency #VitaminDlevels
https://www.newsbeep.com/us/506963/

Scientists Find a Deficiency in This Vitamin Increases Inflammation

Study: Low Vitamin D May Increase Inflammation Elena Noviello – Getty Images Low vitamin D levels may contribute to chronic inflammation, according to a s…
#dining #cooking #diet #food #Nutrition ##inflammation #chronicillnesses #chronicinflammation #Jackienewgent #nutrition #vitamind #VitaminDdeficiency #vitaminDlevels
https://www.diningandcooking.com/2540588/scientists-find-a-deficiency-in-this-vitamin-increases-inflammation/

Scientists Find a Deficiency in This Vitamin Increases Inflammation

Study: Low Vitamin D May Increase Inflammation Elena Noviello – Getty Images Low vitamin D levels may contribute to chronic inflammation, according to a s…
#dining #cooking #diet #food #Nutrition ##inflammation #chronicillnesses #chronicinflammation #Jackienewgent #nutrition #vitamind #VitaminDdeficiency #vitaminDlevels
https://www.diningandcooking.com/2540588/scientists-find-a-deficiency-in-this-vitamin-increases-inflammation/

Scientists Find a Deficiency in This Vitamin Increases Inflammation

Study: Low Vitamin D May Increase Inflammation Elena Noviello – Getty Images Low vitamin D levels may contribute to chronic inflammation, according to a s…
#dining #cooking #diet #food #Nutrition ##inflammation #chronicillnesses #chronicinflammation #Jackienewgent #nutrition #vitamind #VitaminDdeficiency #vitaminDlevels
https://www.diningandcooking.com/2540588/scientists-find-a-deficiency-in-this-vitamin-increases-inflammation/

Scientists Find a Deficiency in This Vitamin Increases Inflammation

Study: Low Vitamin D May Increase Inflammation Elena Noviello – Getty Images Low vitamin D levels may contribute to chronic inflammation, according to a s…
#dining #cooking #diet #food #Nutrition ##inflammation #chronicillnesses #chronicinflammation #Jackienewgent #nutrition #vitamind #VitaminDdeficiency #vitaminDlevels
https://www.diningandcooking.com/2540588/scientists-find-a-deficiency-in-this-vitamin-increases-inflammation/

Scientists Find a Deficiency in This Vitamin Increases Inflammation https://www.diningandcooking.com/2540588/scientists-find-a-deficiency-in-this-vitamin-increases-inflammation/ ##inflammation #ChronicIllnesses #ChronicInflammation #JackieNewgent #nutrition #VitaminD #VitaminDDeficiency #VitaminDLevels

Scientists Find a Deficiency in This Vitamin Increases Inflammation https://www.diningandcooking.com/2540588/scientists-find-a-deficiency-in-this-vitamin-increases-inflammation/ ##inflammation #ChronicIllnesses #ChronicInflammation #JackieNewgent #nutrition #VitaminD #VitaminDDeficiency #VitaminDLevels

Scientists Find a Deficiency in This Vitamin Increases Inflammation https://www.diningandcooking.com/2540588/scientists-find-a-deficiency-in-this-vitamin-increases-inflammation/ ##inflammation #ChronicIllnesses #ChronicInflammation #JackieNewgent #nutrition #VitaminD #VitaminDDeficiency #VitaminDLevels

https://www.europesays.com/ie/368046/ Scientists Find a Deficiency in This Vitamin Increases Inflammation #ChronicIllnesses #ChronicInflammation #Éire #Health #IE #inflammation #Ireland #JackieNewgent #Nutrition #VitaminD #VitaminDDeficiency #VitaminDLevels

https://www.europesays.com/uk/804231/ Scientists Find a Deficiency in This Vitamin Increases Inflammation #ChronicIllnesses #ChronicInflammation #Health #Inflammation #JackieNewgent #Nutrition #UK #UnitedKingdom #VitaminD #VitaminDDeficiency #VitaminDLevels

"What do you do?", "had a busy day?" And similar questions are those I dread. I rarely have to meet acquaintances now, thankfully.

But even the grocery drivers can ask that. It's friendly, it's conversational, it's shallow (in an appropriate way, not derogatory).

Even "how are you?" Is a greeting, not a question people want an honest answer to.

This writer thinks "what do you live for?" would be better.

#chronicpain #ChronicIllnesses #chronicillness
https://whatapain.co.uk/what-do-you-do

Chronic illness be like...

#chronicillness #chronicillnesses #chronicallyill #disability #disabled #chronicillnesshumor

"Rather than holding onto the idea that the only life worth living is one without disease, consider expanding your definition of hope to include connection, purpose, & meaning under any circumstances"

From:
Recap: Support group: Coping with Depression & Emotional Overload
https://batemanhornecenter.org/wp-content/uploads/2026/02/20260217-Support-Group-Recap.pdf

#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

"Rather than holding onto the idea that the only life worth living is one without disease, consider expanding your definition of hope to include connection, purpose, & meaning under any circumstances"

From:
Recap: Support group: Coping with Depression & Emotional Overload
https://batemanhornecenter.org/wp-content/uploads/2026/02/20260217-Support-Group-Recap.pdf

#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

"Rather than holding onto the idea that the only life worth living is one without disease, consider expanding your definition of hope to include connection, purpose, & meaning under any circumstances"

From:
Recap: Support group: Coping with Depression & Emotional Overload
https://batemanhornecenter.org/wp-content/uploads/2026/02/20260217-Support-Group-Recap.pdf

#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

"Rather than holding onto the idea that the only life worth living is one without disease, consider expanding your definition of hope to include connection, purpose, & meaning under any circumstances"

From:
Recap: Support group: Coping with Depression & Emotional Overload
https://batemanhornecenter.org/wp-content/uploads/2026/02/20260217-Support-Group-Recap.pdf

#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

"Rather than holding onto the idea that the only life worth living is one without disease, consider expanding your definition of hope to include connection, purpose, & meaning under any circumstances"

From:
Recap: Support group: Coping with Depression & Emotional Overload
https://batemanhornecenter.org/wp-content/uploads/2026/02/20260217-Support-Group-Recap.pdf

#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

🧵
"The Quiet Art of Extending a Life: Notes on Assistive Tools, Capacity, and the Dignity of Support"

https://onelifelivedwell.substack.com/p/the-quiet-art-of-extending-a-life

Another thoughtful post from this OT who specialises in ME/CFS & long Covid

She calls such devices "capacity extenders".

#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots
#Disabled
#Disability

1/

🧵
"The Quiet Art of Extending a Life: Notes on Assistive Tools, Capacity, and the Dignity of Support"

https://onelifelivedwell.substack.com/p/the-quiet-art-of-extending-a-life

Another thoughtful post from this OT who specialises in ME/CFS & long Covid

She calls such devices "capacity extenders".

#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots
#Disabled
#Disability

1/