#frailandfurious — Public Fediverse posts

I'm back to list ways you can help folks with ME/CFS & Long Covid.

USA resident? You can add your signature to #MEAction's letter to the HHS secretary!

Congress has mandated that Medicaid recipients must work 80 hours a month unless they can prove they're “medically frail." This letter urges HHS to recognize people with ME/CFS & Long COVID as “medically frail" to protect their Medicaid access.

https://www.meaction.net/savemedicaid

17/n

@mecfs @longcovid

#MEcfs #LongCovid #Medicaid #HHS #FrailAndFurious

I'm back to list ways you can help folks with ME/CFS & Long Covid.

USA resident? You can add your signature to #MEAction's letter to the HHS secretary!

Congress has mandated that Medicaid recipients must work 80 hours a month unless they can prove they're “medically frail." This letter urges HHS to recognize people with ME/CFS & Long COVID as “medically frail" to protect their Medicaid access.

https://www.meaction.net/savemedicaid

17/n

@mecfs @longcovid

#MEcfs #LongCovid #Medicaid #HHS #FrailAndFurious

I'm back to list ways you can help folks with ME/CFS & Long Covid.

USA resident? You can add your signature to #MEAction's letter to the HHS secretary!

Congress has mandated that Medicaid recipients must work 80 hours a month unless they can prove they're “medically frail." This letter urges HHS to recognize people with ME/CFS & Long COVID as “medically frail" to protect their Medicaid access.

https://www.meaction.net/savemedicaid

17/n

@mecfs @longcovid

#MEcfs #LongCovid #Medicaid #HHS #FrailAndFurious

I'm back to list ways you can help folks with ME/CFS & Long Covid.

USA resident? You can add your signature to #MEAction's letter to the HHS secretary!

Congress has mandated that Medicaid recipients must work 80 hours a month unless they can prove they're “medically frail." This letter urges HHS to recognize people with ME/CFS & Long COVID as “medically frail" to protect their Medicaid access.

https://www.meaction.net/savemedicaid

17/n

@mecfs @longcovid

#MEcfs #LongCovid #Medicaid #HHS #FrailAndFurious

I'm back to list ways you can help folks with ME/CFS & Long Covid.

USA resident? You can add your signature to #MEAction's letter to the HHS secretary!

Congress has mandated that Medicaid recipients must work 80 hours a month unless they can prove they're “medically frail." This letter urges HHS to recognize people with ME/CFS & Long COVID as “medically frail" to protect their Medicaid access.

https://www.meaction.net/savemedicaid

17/n

@mecfs @longcovid

#MEcfs #LongCovid #Medicaid #HHS #FrailAndFurious

"Walk On By"

A poem by R.M. Carlson, shared in honor of Millions Missing. Carlson has lived with moderately severe ME/CFS for 3 years.

@mecfs

#MEcfs #PwME #SevereME #MillionsMissing #FrailAndFurious #Poetry #Disability

"Walk On By"

A poem by R.M. Carlson, shared in honor of Millions Missing. Carlson has lived with moderately severe ME/CFS for 3 years.

@mecfs

#MEcfs #PwME #SevereME #MillionsMissing #FrailAndFurious #Poetry #Disability

"Walk On By"

A poem by R.M. Carlson, shared in honor of Millions Missing. Carlson has lived with moderately severe ME/CFS for 3 years.

@mecfs

#MEcfs #PwME #SevereME #MillionsMissing #FrailAndFurious #Poetry #Disability

"Walk On By"

A poem by R.M. Carlson, shared in honor of Millions Missing. Carlson has lived with moderately severe ME/CFS for 3 years.

@mecfs

#MEcfs #PwME #SevereME #MillionsMissing #FrailAndFurious #Poetry #Disability

"Walk On By"

A poem by R.M. Carlson, shared in honor of Millions Missing. Carlson has lived with moderately severe ME/CFS for 3 years.

@mecfs

#MEcfs #PwME #SevereME #MillionsMissing #FrailAndFurious #Poetry #Disability

@mecfs
More links from #MEAction:

USA:

"Join us in person at HHS in Washington D.C. for an art installation and storytelling session"

https://www.meaction.net/millionsmissing26-usa

UK:

https://www.meaction.net/millionsmissing26-uk

Global:

https://www.meaction.net/millionsmissing26-global

2/2

@mecfs

#MEcfs #PwME #MillionsMissing #FrailAndFurious #MEAwareness

@mecfs
More links from #MEAction:

USA:

"Join us in person at HHS in Washington D.C. for an art installation and storytelling session"

https://www.meaction.net/millionsmissing26-usa

UK:

https://www.meaction.net/millionsmissing26-uk

Global:

https://www.meaction.net/millionsmissing26-global

2/2

@mecfs

#MEcfs #PwME #MillionsMissing #FrailAndFurious #MEAwareness

@mecfs
More links from #MEAction:

USA:

"Join us in person at HHS in Washington D.C. for an art installation and storytelling session"

https://www.meaction.net/millionsmissing26-usa

UK:

https://www.meaction.net/millionsmissing26-uk

Global:

https://www.meaction.net/millionsmissing26-global

2/2

@mecfs

#MEcfs #PwME #MillionsMissing #FrailAndFurious #MEAwareness

@mecfs
More links from #MEAction:

USA:

"Join us in person at HHS in Washington D.C. for an art installation and storytelling session"

https://www.meaction.net/millionsmissing26-usa

UK:

https://www.meaction.net/millionsmissing26-uk

Global:

https://www.meaction.net/millionsmissing26-global

2/2

@mecfs

#MEcfs #PwME #MillionsMissing #FrailAndFurious #MEAwareness

@mecfs
More links from #MEAction:

USA:

"Join us in person at HHS in Washington D.C. for an art installation and storytelling session"

https://www.meaction.net/millionsmissing26-usa

UK:

https://www.meaction.net/millionsmissing26-uk

Global:

https://www.meaction.net/millionsmissing26-global

2/2

@mecfs

#MEcfs #PwME #MillionsMissing #FrailAndFurious #MEAwareness

🚨 One week until May 12, International ME/CFS Awareness Day!

ME/CFS = myalgic encephalomyelitis / chronic fatigue syndrome

This toolkit from #MEAction has a list of actions, sorted by battery level, for the week of May 9-16:

https://docs.google.com/document/d/1uJflVh8PP209MPEYSxeVw1SmFWlez0Gox1C9B8y98VY/

If all you can do next week is rest, that's OK!

But if you can, please like and boost posts about ME/CFS - look for hashtags #MillionsMissing & #FrailAndFurious

Or share your story - see toolkit for tips!

1/2

@mecfs

#MEcfs #PwME

🚨 One week until May 12, International ME/CFS Awareness Day!

ME/CFS = myalgic encephalomyelitis / chronic fatigue syndrome

This toolkit from #MEAction has a list of actions, sorted by battery level, for the week of May 9-16:

https://docs.google.com/document/d/1uJflVh8PP209MPEYSxeVw1SmFWlez0Gox1C9B8y98VY/

If all you can do next week is rest, that's OK!

But if you can, please like and boost posts about ME/CFS - look for hashtags #MillionsMissing & #FrailAndFurious

Or share your story - see toolkit for tips!

1/2

@mecfs

#MEcfs #PwME

🚨 One week until May 12, International ME/CFS Awareness Day!

ME/CFS = myalgic encephalomyelitis / chronic fatigue syndrome

This toolkit from #MEAction has a list of actions, sorted by battery level, for the week of May 9-16:

https://docs.google.com/document/d/1uJflVh8PP209MPEYSxeVw1SmFWlez0Gox1C9B8y98VY/

If all you can do next week is rest, that's OK!

But if you can, please like and boost posts about ME/CFS - look for hashtags #MillionsMissing & #FrailAndFurious

Or share your story - see toolkit for tips!

1/2

@mecfs

#MEcfs #PwME

🚨 One week until May 12, International ME/CFS Awareness Day!

ME/CFS = myalgic encephalomyelitis / chronic fatigue syndrome

This toolkit from #MEAction has a list of actions, sorted by battery level, for the week of May 9-16:

https://docs.google.com/document/d/1uJflVh8PP209MPEYSxeVw1SmFWlez0Gox1C9B8y98VY/

If all you can do next week is rest, that's OK!

But if you can, please like and boost posts about ME/CFS - look for hashtags #MillionsMissing & #FrailAndFurious

Or share your story - see toolkit for tips!

1/2

@mecfs

#MEcfs #PwME

🚨 One week until May 12, International ME/CFS Awareness Day!

ME/CFS = myalgic encephalomyelitis / chronic fatigue syndrome

This toolkit from #MEAction has a list of actions, sorted by battery level, for the week of May 9-16:

https://docs.google.com/document/d/1uJflVh8PP209MPEYSxeVw1SmFWlez0Gox1C9B8y98VY/

If all you can do next week is rest, that's OK!

But if you can, please like and boost posts about ME/CFS - look for hashtags #MillionsMissing & #FrailAndFurious

Or share your story - see toolkit for tips!

1/2

@mecfs

#MEcfs #PwME

✅ One concrete action you can do to help patients is to sign on to the letter that #MEAction has sent to RFK Jr, Secretary of HHS, urging him to recognize people with ME/CFS and Long COVID as “medically frail” so that access to Medicaid is protected.

"Protect Medicaid Access"

https://actionnetwork.org/petitions/freakin-frail?mc_cid=c993407feb

@mecfs @longcovid

#USPol #Medicaid #MEcfs #LongCovid #Disability #ChronicIllness #FrailAndFurious

✅ One concrete action you can do to help patients is to sign on to the letter that #MEAction has sent to RFK Jr, Secretary of HHS, urging him to recognize people with ME/CFS and Long COVID as “medically frail” so that access to Medicaid is protected.

"Protect Medicaid Access"

https://actionnetwork.org/petitions/freakin-frail?mc_cid=c993407feb

@mecfs @longcovid

#USPol #Medicaid #MEcfs #LongCovid #Disability #ChronicIllness #FrailAndFurious

✅ One concrete action you can do to help patients is to sign on to the letter that #MEAction has sent to RFK Jr, Secretary of HHS, urging him to recognize people with ME/CFS and Long COVID as “medically frail” so that access to Medicaid is protected.

"Protect Medicaid Access"

https://actionnetwork.org/petitions/freakin-frail?mc_cid=c993407feb

@mecfs @longcovid

#USPol #Medicaid #MEcfs #LongCovid #Disability #ChronicIllness #FrailAndFurious

✅ One concrete action you can do to help patients is to sign on to the letter that #MEAction has sent to RFK Jr, Secretary of HHS, urging him to recognize people with ME/CFS and Long COVID as “medically frail” so that access to Medicaid is protected.

"Protect Medicaid Access"

https://actionnetwork.org/petitions/freakin-frail?mc_cid=c993407feb

@mecfs @longcovid

#USPol #Medicaid #MEcfs #LongCovid #Disability #ChronicIllness #FrailAndFurious

✅ One concrete action you can do to help patients is to sign on to the letter that #MEAction has sent to RFK Jr, Secretary of HHS, urging him to recognize people with ME/CFS and Long COVID as “medically frail” so that access to Medicaid is protected.

"Protect Medicaid Access"

https://actionnetwork.org/petitions/freakin-frail?mc_cid=c993407feb

@mecfs @longcovid

#USPol #Medicaid #MEcfs #LongCovid #Disability #ChronicIllness #FrailAndFurious

If you want to learn more about Medicaid issues there's an "Ask Me Anything" session on #MEAction's instagram tomorrow, May 5, at 3 PM EDT

I'm not on Instagram myself so I can't help with details about how to watch but here's the link to their instagram account:

https://www.instagram.com/meactnet/

#USPol #Medicaid #MECFS #LongCovid #Disability #ChronicIllness #FrailAndFurious

If you want to learn more about Medicaid issues there's an "Ask Me Anything" session on #MEAction's instagram tomorrow, May 5, at 3 PM EDT

I'm not on Instagram myself so I can't help with details about how to watch but here's the link to their instagram account:

https://www.instagram.com/meactnet/

#USPol #Medicaid #MECFS #LongCovid #Disability #ChronicIllness #FrailAndFurious

If you want to learn more about Medicaid issues there's an "Ask Me Anything" session on #MEAction's instagram tomorrow, May 5, at 3 PM EDT

I'm not on Instagram myself so I can't help with details about how to watch but here's the link to their instagram account:

https://www.instagram.com/meactnet/

#USPol #Medicaid #MECFS #LongCovid #Disability #ChronicIllness #FrailAndFurious

If you want to learn more about Medicaid issues there's an "Ask Me Anything" session on #MEAction's instagram tomorrow, May 5, at 3 PM EDT

I'm not on Instagram myself so I can't help with details about how to watch but here's the link to their instagram account:

https://www.instagram.com/meactnet/

#USPol #Medicaid #MECFS #LongCovid #Disability #ChronicIllness #FrailAndFurious

If you want to learn more about Medicaid issues there's an "Ask Me Anything" session on #MEAction's instagram tomorrow, May 5, at 3 PM EDT

I'm not on Instagram myself so I can't help with details about how to watch but here's the link to their instagram account:

https://www.instagram.com/meactnet/

#USPol #Medicaid #MECFS #LongCovid #Disability #ChronicIllness #FrailAndFurious

@mecfs

A short video (3 minutes) on actions listed in the 2026 Millions Missing toolkit, starting with low energy items.

Short description: Animated cat, wearing a purple overcoat and black bowler hat, speaks directly to camera.

https://www.youtube.com/watch?v=cPb9wOkRxMM

Note: Video is from Instagram, can't tag MEActNet here (but you could ask #MEAction to get a Fediverse account😉)

Direct link to toolkit:

https://docs.google.com/document/d/1uJflVh8PP209MPEYSxeVw1SmFWlez0Gox1C9B8y98VY/edit?mc_cid=d4aa139b8f&tab=t.0

#MillionsMissing #MEcfs #Pwme #LongCovid #PwLC #Medicaid #FrailAndFurious

@mecfs

A short video (3 minutes) on actions listed in the 2026 Millions Missing toolkit, starting with low energy items.

Short description: Animated cat, wearing a purple overcoat and black bowler hat, speaks directly to camera.

https://www.youtube.com/watch?v=cPb9wOkRxMM

Note: Video is from Instagram, can't tag MEActNet here (but you could ask #MEAction to get a Fediverse account😉)

Direct link to toolkit:

https://docs.google.com/document/d/1uJflVh8PP209MPEYSxeVw1SmFWlez0Gox1C9B8y98VY/edit?mc_cid=d4aa139b8f&tab=t.0

#MillionsMissing #MEcfs #Pwme #LongCovid #PwLC #Medicaid #FrailAndFurious

@mecfs

A short video (3 minutes) on actions listed in the 2026 Millions Missing toolkit, starting with low energy items.

Short description: Animated cat, wearing a purple overcoat and black bowler hat, speaks directly to camera.

https://www.youtube.com/watch?v=cPb9wOkRxMM

Note: Video is from Instagram, can't tag MEActNet here (but you could ask #MEAction to get a Fediverse account😉)

Direct link to toolkit:

https://docs.google.com/document/d/1uJflVh8PP209MPEYSxeVw1SmFWlez0Gox1C9B8y98VY/edit?mc_cid=d4aa139b8f&tab=t.0

#MillionsMissing #MEcfs #Pwme #LongCovid #PwLC #Medicaid #FrailAndFurious

@mecfs

A short video (3 minutes) on actions listed in the 2026 Millions Missing toolkit, starting with low energy items.

Short description: Animated cat, wearing a purple overcoat and black bowler hat, speaks directly to camera.

https://www.youtube.com/watch?v=cPb9wOkRxMM

Note: Video is from Instagram, can't tag MEActNet here (but you could ask #MEAction to get a Fediverse account😉)

Direct link to toolkit:

https://docs.google.com/document/d/1uJflVh8PP209MPEYSxeVw1SmFWlez0Gox1C9B8y98VY/edit?mc_cid=d4aa139b8f&tab=t.0

#MillionsMissing #MEcfs #Pwme #LongCovid #PwLC #Medicaid #FrailAndFurious

@mecfs

A short video (3 minutes) on actions listed in the 2026 Millions Missing toolkit, starting with low energy items.

Short description: Animated cat, wearing a purple overcoat and black bowler hat, speaks directly to camera.

https://www.youtube.com/watch?v=cPb9wOkRxMM

Note: Video is from Instagram, can't tag MEActNet here (but you could ask #MEAction to get a Fediverse account😉)

Direct link to toolkit:

https://docs.google.com/document/d/1uJflVh8PP209MPEYSxeVw1SmFWlez0Gox1C9B8y98VY/edit?mc_cid=d4aa139b8f&tab=t.0

#MillionsMissing #MEcfs #Pwme #LongCovid #PwLC #Medicaid #FrailAndFurious

RE: https://disabled.social/@ahimsa_pdx/116495749131742719

Update from #MEAction:

"How to Participate in #MillionsMissing 2026"

https://www.meaction.net/post/your-story-can-change-everything

Some actions listed:

- Share your story on social media from May 9 to 16

- Submit your story to #MEAction's Story Bank

- Help protect Medicaid by signing the letter sent to HHS Director

- Register to join the event in Washington D.C. on May 12

@mecfs

#MEcfs #PwME #LongCovid #PwLC #ChronicIllness #Disability #Medicaid #FrailAndFurious

May 12 is coming soon! #MEAction has this request:

"Telling your story for Millions Missing this year is so important!

There are MANY ways to tell your story & it all helps! Be yourself & know that if sharing your story brings up big feelings, you are not alone!"

Tips for how to tell your story:

https://www.meaction.net/millionsmissing-storytelling

This has a link to the Millions Missing toolkit and two videos.

@mecfs

#MEcfs #PwME #LongCovid #PwLC #MillionsMissing #FrailAndFurious #ChronicIllness #Medicaid

From #MEAction:

"Storytelling is a key part of Millions Missing! Find all you need in our toolkit:

https://docs.google.com/document/d/1uJflVh8PP209MPEYSxeVw1SmFWlez0Gox1C9B8y98VY/edit?tab=t.0

It’s essential that we make our policymakers understand that ME is a serious, complex disease that deserves care and support, appropriate treatments and research."

@mecfs
@longcovid

#MEcfs #PwME #LongCovid #PwLC #MillionsMissing #FrailAndFurious

New from #MEAction -

"‪Millions Missing 2026 'Frail & Furious' tees are now available!

https://www.bonfire.com/store/meaction-1/

We have lots of styles and colors to choose from!

You can choose tees with a logo on the back on ones without.

A portion of your purchase helps support our work!"

This store has hats, hoodies, mugs, tote bags, and other items in addition to t-shirts.

@mecfs

#MEcfs #PwME #LongCovid #PwLC #MillionsMissing #FrailAndFurious