#caregivers — Public Fediverse posts

💜 This Alzheimer’s & Brain Health Awareness Month, I honor my grandmother, Doña Patria, and the millions of families affected by this disease.

➡️ Progress depends on research, prevention, early diagnosis, and the caregivers who hold everything together.

💜To every caregiver out there: you are seen, you are valued, and you are heroes.

#AlzheimersAwareness #BrainHealth #EndALZ #Caregivers #HealthEquity #Boston #Love #Dementia #Aging

#SolarPunkSundayMusings...

So, in contemplating my own vision of a #SolarPunk community, there are some *jobs* that imho are crucial to running any type of close-knit community /society...

1. People trained in #FirstAid / #MedicalArts -- for both humans and non-humans
2. #Plumbers
3. #Carpenters
4. #Masons
5. #Blacksmiths / #Metalworkers
6. #Architects / #Planners
7. #Foresters / #Foragers
8. #Gardeners / #Farmers / #FoodProducers
9. #Menders / #Cobblers / #Clothiers / #Seamsters / #Tailors
10. #Chemists / #Alchemists
11. #Herbalists / #Compounders
12. #CitizenScientists / #Observers
13. #Potters / #Ceramics experts
14. #Computer / #Technology fixers (especially #electrical and #solar)
15. #Mothers / #Caregivers
16. #Teachers / #Librarians
17. #Cooks
18. #Cleaners
19. #Weavers / #Spinners / #FiberArtists

Other suggestions?

#SolarPunkSunday

The holiday season can be hard, esp. if you are someone w/#dementia and/or a #caregiver for someone w/#dementia. #HFC has many support groups for #caregivers, inc. "Keeping Each Other Company: Caregiving & #Grief." We meet 12.17 at 11 am PT.

Please consider filling out this google doc & joining one of these groups if you are feeling sad &/or lonely. Weirdly, sometimes talking w/people you don't know is easier than confiding in people you do.

https://docs.google.com/forms/u/0/d/e/1FAIpQLSeU6Waw5K_qdJ2AvowQwjNUORcAus16weFE2AsLpxYtCvrR9w/viewform?pli=1&authuser=0

@caregivers
#EndAlz

December 17th at 11 am PT, I will be leading the last HFC support group -- "Keeping Each Other Company: Caregiving & Grief" -- of this year. The holidays can be especially hard for #caregivers & those they care for, so if you want/need a place to talk, listen, decompress, please consider joining one of the support groups offered by Seth & Lauren Miller Rogen's amazing foundation Hilarity for Charity. Here is a link:

https://docs.google.com/forms/d/e/1FAIpQLSeU6Waw5K_qdJ2AvowQwjNUORcAus16weFE2AsLpxYtCvrR9w/viewform?pli=1

#EndAlz
#Grief
@[email protected]
@[email protected]

ONTARIO PASSES BILL 33, GRANTS MORE POWERS TO GOVERNMENT

Ontario legislature passed the Bill 33, known as the Supporting Children and Students Act, 2025 on Nov.19, bringing in major changes to how school boards, children’s aid societies, and post-secondary institutions are governed  

The newly passed controversial bill is a piece of legislation that introduces significant changes to the oversight of school boards and post-secondary institutions in Ontario, giving the Minister of Education expanded powers to intervene in local decision-making.   

Under this bill, Paul Calandra, Ontario’s minister of education, can take over school boards, mandate collaboration with local police to implement school resource officer programs where available and even remove school board trustees.  

The government framed it as a necessary intervention to put school boards back on track, strengthen school safety and allow students to succeed. Calandra took over five school boards using earlier versions of these powers, citing financial mismanagement. He has now signalled that more boards are in his sights under Bill 33.  

While the government has framed the bill as necessary for accountability, critics in the post-secondary sector say it increases provincial control without addressing core funding issues.   

“Bill 33 hands the Minister more levers to pull and hands universities more paperwork for their already overworked staff,” Bruce Gillespie, president of Wilfrid Laurier University Faculty Association (WLUFA), said.   

“It does not fix the basic problem, which is that Ontario’s universities are being asked to do more and more with less and less public funding,” he said.

Gillespie also raised concerns about the impact on post-secondary institutions. Bill 33 adds compliance requirements and administrative workload for universities without increasing provincial operating funding.   

He warned that these new obligations could destabilize student-funded services, such as mental health support, transit and campus media, which directly affect students’ well-being and faculty’s ability to deliver quality education.  

Equity-based admissions initiatives are also at risk.  

“Equity-based admissions do not lower standards. They recognize that grades are produced inside unequal systems,” Gillespie said.   

“Bill 33 gives the government new tools to second-guess those efforts from Queen’s Park, which is exactly the opposite of what we need if we want campuses to reflect the diversity of Ontario,” he said.  

Gillespie warns that preserving the authority of university Senates is critical under the new legislation. Senates play a key role in maintaining academic standards and research independence, and Gillespie argues that provincial intervention in admissions and research priorities could undermine academic freedom.  

This bill not only impacts post-secondary institutions, but also influences primary and secondary school boards, such as the Waterloo Region District School Board (WRDSB).  

“With the passing of Bill 33, the WRDSB will continue to follow the direction and guidance of the Ministry of Education and comply with all provincial legislation,” Scott Miller, director of education at the WRDSB, said.   

“Our commitment to supporting student achievement and the well-being of all students remains the highest priority. We will continue to work closely and collaboratively with students, staff, parents, families, caregivers, and community partners to ensure that all decisions and actions reflect the needs and values of those in WRDSB schools and workplaces,” Miller said.  

He also said more information about Bill 33 and its changes to the school board will be made available on the WRDSB website.  

The government portrays Bill 33 as a measure to improve oversight and student success. Faculty, staff and student representatives across Ontario argue that the legislation prioritizes increased provincial control over the funding crisis, campus services and local governance, leaving many in the education community concerned about its long-term impact.  

#bill33 #Caregivers #childrensAidSocieties #communityPartners #families #Government #paulCalandra #postSecondaryInstitutions #SangjunHan #School #Staff #supportingChildrenAndStudentsAct #WRDSB

Today is the last day of National Family #Caregivers Month. As @TonyStark likes to remind us -- and correctly -- Kamala had a plan to help caregivers keep their loved ones at home. But people rejected that in favor of the fascist sh#tshow we have now.

Anyway, here's to my mother who took care of my father for over 15 years -- some at home; some not. A photo, my favorite of the two of them, from the happiest of days.💜

@caregivers
#EndAlz

The holidays are coming. If you are a caregiver of someone w/#dementia, you might find comfort in being w/others in similar situations. Here's a link to the free #HFC online support groups for #caregivers. #HFC is the foundation created by Lauren Miller Rogen & Seth Rogen in honor of her mother, Adele, who died of early-onset #Alzheimer's. I lead, "Keeping Each Other Company: Caregiving & Grief," & would be honored to see you Wednesday 11 am (PT), 11.19.

https://wearehfc.org/support-groups/

#EndAlz
#Care

I wrote this for #caregivers w/my friend & healthcare expert, Ilyse Veron, a while back. One thing that strikes me as important but not always top of mind is that the person w/#dementia might be having an especially difficult day b/c they are in pain, physical pain. I think we are quick to attribute symptoms to neurological deficits when sometimes the problem is bodily. It can be hard to figure out but worth trying.

https://www.ncoa.org/article/8-tips-for-alzheimers-and-dementia-caregivers/

#endAlz
#Caregiving

Here is an announcement about the new grief support group I'll be leading for #HFC. The 1st meeting is on 3.19 at 2 pm ET, 11 am PT. Click enroll & sign up if you want to talk about your grief or listen to others share theirs. My experience comes from my father's early-onset #Alzheimer's. He was diagnosed in his mid 50s & died 15 years later. Looking back, he was sick well before then (the #prodromal phase). How I wish I knew then what I know now. I'll share this & more.

#EndAlz
#Caregivers

Here is an announcement about the new grief support group I'll be leading for #HFC. The 1st meeting is on 3.19 at 2 pm ET, 11 am PT. Click enroll & sign up if you want to talk about your grief or listen to others share theirs. My experience comes from my father's early-onset #Alzheimer's. He was diagnosed in his mid 50s & died 15 years later. Looking back, he was sick well before then (the #prodromal phase). How I wish I knew then what I know now. I'll share this & more.

#EndAlz
#Caregivers

The #UnitedStates of #Aunties: The #culture #powering #VicePresident #KamalaHarris' #campaign

In the #Black and #SouthAsian #communities Harris hails from, being an “#auntie” is an #honorific for #caregivers, #communitybuilders — and maybe even the next #president

https://19thnews.org/2024/08/the-united-states-of-aunties-culture-kamala-harris/

#AttachmentQandA (10): #Child-#Father #Attachment

ANSWER SUMMARY
▶️#Attachmenttheory and research nowadays more strongly considers #dads as #caregivers & attachment figures than ever, but much remains to be learned.

COMPLETE ANSWER & FURTHER READING
➡️https://pvrticka.com/attachment-qanda/

@SoNeAtLab

#Mother Says That She & Her #nonverbal #Autistic #Son Were #KickedOut Of #Cinemark’s #Hazlet12 #MovieTheater in #NewJersey After She #Assisted Him In The #Women's #Restroom.

The Mom explained the situation to the theater manager, who claimed that "grown men were not allowed in the women's restroom."

#Women #Transgender #LGBTQ #LGBTQIA #Disabilities #Autism #Caregivers #Hate #Bigotry #Discrimination #Transphobia

https://www.yourtango.com/news/mother-son-kicked-out-movie-theater-after-she-assisted-him-womens-restroom

Apply by 31/07 👇🏻

#PhD #Studentship: How #Children Get “In Sync” with their #Caregivers and How Optimal #Synchrony Benefits Child #Development, #Health and #Wellbeing

Main #research #method: #fNIRS #hyperscanning.

With @PVrticka at the Department of #Psychology, #University of #Essex (#Colchester, #UK).

UK home students only.

https://www.jobs.ac.uk/job/DAW604/phd-studentship-how-children-get-in-sync-with-their-caregivers-and-how-optimal-synchrony-benefits-child-development-health-and-wellbeing

I have a fully funded 3-year #PhD #studentship for a #UK #home #student in my @SoNeAtLab at the #Department of #Psychology, #University of #Essex in #Colchester:

https://www.jobs.ac.uk/job/DAW604/phd-studentship-how-children-get-in-sync-with-their-caregivers-and-how-optimal-synchrony-benefits-child-development-health-and-wellbeing

Project title: How #Children Get “In Sync” with their #Caregivers and How Optimal #Synchrony Benefits #Child #Development, #Health and #wellbeing.

Main method: #fNIRS #hyperscanning.

Please get in touch in case of questions. Thank you.

#TheLongestDay. Here are some links that might be helpful if #dementia has entered your life.
https://act.alz.org/site/SPageServer?pagename=the_longest_day
https://memory.ucsf.edu/
https://www.nia.nih.gov/health/alzheimers-disease-research-centers
https://pennmemorycenter.org/

There are 33 ADRCs (Alzheimer's Disease Research Centers) in the US funded by the #NationalInstituteOnAging. Many have #clinicaltrials, #outreach, and #supportgroups for #caregivers.

#EndAlz

#TheLongestDay. Here are some links that might be helpful if #dementia has entered your life.
https://act.alz.org/site/SPageServer?pagename=the_longest_day
https://memory.ucsf.edu/
https://www.nia.nih.gov/health/alzheimers-disease-research-centers
https://pennmemorycenter.org/

There are 33 ADRCs (Alzheimer's Disease Research Centers) in the US funded by the #NationalInstituteOnAging. Many have #clinicaltrials, #outreach, and #supportgroups for #caregivers.

#EndAlz

Heading to #Boston for #AAN2023 (#AAN #AANAM)! We are excited about two posters from the lab being presented by awesome #UCSF med students:

Poster Session 6, Monday 4/24 5:30-6:30. Abraham Dada presenting P6.9-002 Factors mediating public perceptions of therapeutic closed-loop #BrainImplants for epilepsy and mood disorders.

• In a national survey we characterized mediators of demographic (age, race) differences in the prospective acceptability of #ClosedLoop implanted devices. We found that concerns about hacking, privacy and differing attitudes about medical innovation were key mediators; in many cases the importance of such concerns was itself mediated by income level.

Poster Session 14, Thursday 4/27 11:45-12:45. Danielle Hart presenting P14-6.006 Financial toxicity in dementia #caregiving.

• In a national study of #dementia #caregivers we found high levels of #FinancialToxicity. Black, non-Hispanic caregivers are more likely to experience financial toxicity than White, non-Hispanic caregivers. In a base demographic model we were surprised to find older age as a protective factor; in a fully-adjusted model this is explained by the relationship between age and employment status (retirement and other unemployment).