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#parkinsons — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #parkinsons, aggregated by home.social.

  1. So...Your Friend Has Parkinson's | Michael J. Fox & Harrison Ford

    The advice is actually good for many types of sudden diagnoses and your relationships.

    youtube.com/watch?v=XbtEFkgqew0 #Disability #Parkinsons

  2. 🇳🇴 Onsdag: Våken og gråter ikke 😆 (Les: ferdig på postoperativ og på plass på overvåkningen på nevrologisk avdeling. Operasjonen har gått fin-fint med topp resultat.) Jeg er nå en kyborg!

    🇬🇧 Wednesday: Awake and not crying (Read: post surgery done and at the intermediary bedpost. The surgery went well with results in the top tier.) I am now a cyborg.

    #rikshospitalet #dbs #adbs #parkinsons #dystoni #dystonia #deepbrainStimulation #adaptiveDeepBrainStimulation

  3. 🇳🇴 Tirsdag denne uken: Forberedelser til hode-operasjon.

    🇬🇧 Tuesday this week: Preparing for the head surgery.

    #rikshospitalet #dbs #adbs #parkinsons #dystoni #dystonia #deepbrainStimulation #adaptiveDeepBrainStimulation

  4. An observational study of the frequency of Parkinson's disease in about 19 million U.S. residents 67 or older, relative to their residence's distance to a dry cleaner's, found a dose-response relationship, with an approximately 20% higher risk of disease for those living closest.

    Summary: sciencealert.com/huge-us-study

    Original paper: nature.com/articles/s41531-026

    #Science #Health #Parkinsons #DryCleaners #Pollution #Trichloroethylene #TCE

  5. "On August 10, the California Department of #Pesticide Regulation announced that all manufacturers of pesticide products containing paraquat-dichloride had voluntarily canceled their product registrations in California, beginning a phase-out of #paraquat use in the state.

    “These developments are more than policy milestones. They represent a combination of people living with Parkinson’s, care partners, researchers, clinicians, and #advocates who have called for stronger action on #environmental risk factors associated with the disease.”

    apdaparkinson.org/california-m

    #Parkinsons #pesticides #farming #ag #golf

  6. ICYMI (published May 8, 2025)
    ,"This population-based case-control study provides evidence in support of an association between living within proximity to #golf courses and the risk of developing PD [Parkinson Disease]. Shorter distances from golf courses were associated with an increased risk of PD compared with those living farther away. Associations with the largest increase in odds was found in individuals living within #water service areas with a golf course and in vulnerable #GroundWater regions.” — "Proximity to Golf Courses and Risk of Parkinson Disease,” Brittany Krzyzanowski, PhD1]; Aidan F. Mullan, MA; E. Ray Dorsey, MD, et al. jamanetwork.com/journals/jaman

    jamanetwork.com/journals/jaman #WaterQuality #water #groundwater #rotenone #pesticides #paraquat #RayDorsey #ParkinsonsResearch #Parkinsons #JAMA #MedicalResearch

  7. 🇳🇴 Menyen er «noe» større denne gangen dog …

    🇬🇧 A "somewhat" larger menu this time around…

    #parkinsons #dystoni #dystonia #deepBrainStimulation #gpi #dbs

  8. - have tentative dates for a trip back to Boston to see my former partner who seems to have likely transitioned into the last stage of her life. #Parkinsons Nothing booked yet.

    - the feature I want to add to MuseScore seems like it might be feasible to add, based on some initial exploration

    - church continues to be very meaningful to me. And I got called on to help lead some singing this morning, which was gratifying

    #3goodThings #threeGoodThings

  9. Glasses That Beam Blue Light Into the Eyes: A Wearable Fix for Parkinson's Sleep Problems

    Share if you found this interesting.

    1ban.news/blue-light-glasses-p

    #1ban #blue #light #glasses #parkinsons #sleep

  10. (somewhat) related articles:

    Vitamin B12 modulates Parkinson’s disease LRRK2 kinase activity through allosteric regulation and confers neuroprotection. [2019] doi.org/10.1038/s41422-019-015

    Loss of Parkinson’s susceptibility gene LRRK2 promotes carcinogen-induced lung tumorigenesis [2021]
    doi.org/10.1038/s41598-021-816

    Is high vitamin B12 status a cause of lung cancer? [2019]
    doi.org/10.1002/ijc.32033

    #LRRK2 #VitaminB12 #Parkinsons #cancer

  11. 1. Excellent and meaningful (to me) sermon from Rev. Aija today

    2. Such interesting people and the stories of their spiritual path at the Path to Membership meeting today.

    3. While making the decision to move Alyssa back to MA was hard, and then my decision to move back to CA, it was the right thing. Her sister is excellent at managing her care at this stage of the disease.

    #3goodThings #threeGoodThings #uu #unitarianUniversalism #parkinsons

  12. The Quiet Side of the House: How Road Traffic Noise Shapes Parkinson's Risk

    Share if you found this interesting.

    1ban.news/road-traffic-noise-p

    #1ban #road #traffic #noise #parkinsons #science

  13. Norsk biobank for stamceller er på vei:

    «… I laboratoriet er hudcellene nå i ferd med å programmeres om til å bli såkalte iPS-celler. Altså stamceller som kan gi opphav til alle typer spesialiserte celler i kroppen, for eksempel muskel-, blod- og nerveceller. …

    Neste mål er å kunne reparere skadede organer og ødelagt vev hos de med #ParkinsonsSykdom, alvorlige #hudsykdommer, #hjerteinfarkt og #diabetes. …»

    nrk.no/trondelag/har-funnet-ni

    #norsktut #allheimen #helse #Parkinsons #Parkinson

  14. A retrospective analysis of causes of death among approximately 20,000 U.S. National Football League players found that, although they had lower rates of all-cause mortality than the general population, their death rates from neurodegenerative diseases (dementia or Parkinson's) were almost four times higher.

    Summary: medicalxpress.com/news/2026-07

    Original paper: thelancet.com/journals/eclinm/

    #Science #Health #Sports #Football #NFL #Dementia #Parkinsons

  15. Hi, I'm hoping to recruit a minimum of 12 people to test my simple and free Android/WearOS app. It's aimed primarily at those with #Parkinsons , but also #sports and/or #music people. Details in the link: theastroguy.wordpress.com/stea

    Crossposted with @openvibe

  16. Yoga for Oslo og Akershus YOPD-ere hos Krønsj

    February 18, 2026, 4:30:00 PM UTC - GMT - 34 Torggata, 0183, Oslo, Noreg

    gjer.no/events/12a2c37f-78dc-4

  17. Scientists Thought #Parkinsons Was in Our Genes. It Might Be in the #Water

    New ideas about #ChronicIllness could revolutionize treatment, if we take the research seriously.

    By David Ferry, December 10, 2025

    Excerpt: "Sometime before 1953, a massive plume of #trichlorethylene, or #TCE, had entered the groundwater beneath #CampLejeune. TCE is a highly effective solvent—one of those midcentury wonder chemicals—that vaporizes quickly and dissolves whatever grease it touches. The spill’s source is debated, but grunts on base used TCE to maintain machinery, and the dry cleaner sprayed it on dress blues. It was ubiquitous at Lejeune and all over America.

    "And TCE appeared benign, too—you could rub it on your hands or huff its fumes and feel no immediate effects. It plays a longer game. For approximately 35 years, Marines and sailors who lived at Lejeune unknowingly breathed in vaporized TCE whenever they turned on their tap. The Navy, which oversees the Marine Corps, first denied the toxic plume’s existence, then refused to admit it could affect Marines’ health. But as Lejeune’s vets aged, cancers and unexplained illness began stalking them at staggering rates. Marines stationed on base had a 35 percent higher risk of developing kidney cancer, a 47 percent higher risk of Hodgkin’s lymphoma, a 68 percent higher risk of multiple myeloma. At the local cemetery, the section reserved for infants had to be expanded.

    "Meanwhile, Langston had spent the remainder of the 1980s setting up the California Parkinson’s Foundation (later renamed the Parkinson’s Institute), a lab and treatment facility equipped with everything needed to finally reveal the cause of the disease. 'We thought we were going to solve it,' Langston told me. Researchers affiliated with the institute created the first animal model for Parkinson’s, identified a pesticide called #Paraquat as a near chemical match to #MPTP, and proved that farm workers who sprayed Paraquat developed Parkinson’s at exceedingly high rates.

    "Then they showed that identical twins developed Parkinson’s at the same rate as fraternal twins—something that wouldn’t make sense if the disease were purely genetic, since identical twins share DNA and fraternal twins do not. They even noted TCE as a potential cause of the disease, Langston says. Each revelation, the team thought, represented another nail in the coffin of the genetic theory of Parkinson’s."

    Read more:
    wired.com/story/scientists-tho

    Archived version:
    archive.ph/w8kFq

    #TCE #Solvents #DryCleaningFluid #Toxins #ToxicContamination #ParkinsonsDisease #WaterIsLife #WaterContamination

  18. #Pesticider menes at kunne udløse #Parkinsons sygdom.
    Danske miljømyndigheder giver dispensation til anvendelse af det ellers forbudte #diquat

    Køb #økologisk hvis du vil have rent #drikkevand og undgå unødvendige giftstoffer.

    ugeskriftet.dk/nyhed/pesticide m.fl.
    #EUpol #DKpol #økologi

  19. #Farmers allege link between popular #herbicide and #Parkinsons disease

    November 29, 2023

    "It is against the law to use #paraquat in China, Switzerland, the United Kingdom and dozens of other countries. Many countries have banned the herbicide due to its extreme #toxicity, while others have expressed concerns over the possible risk for Parkinson's disease.

    "Yet the herbicide, manufactured by a #Swiss company that is owned by the #Chinese state, is still widely used throughout the #UnitedStates in part because it is a highly effective way to kill weeds.

    "The company, Syngenta, says that paraquat, which it produces under the name Gramoxone, 'is safe for its intended and labelled use.'

    "Clayton Tucholke, who used Gramoxone for years on his farm in LaBolt, #SouthDakota, and has since been diagnosed with Parkinson's disease, says otherwise.

    "'It should have been pulled, I think, you know, so it didn't happen to somebody else,' Tucholke told ABC News.

    "A 76-year-old father and grandfather, Tucholke lived on his farm with his wife Denise, but as the symptoms of #Parkinson's have worsened, he says he was forced to give up his career in #agriculture and had to move to the nearby town of Milbank to be closer to medical professionals.

    "Daily tasks have become arduous for Tucholke, who now has to travel to physical therapy three times a week to slow the progression of his symptoms.

    "'This man was so independent,' Denise Tucholke said. 'And his independence has been taken from him, which is unfair.'

    "The Tucholkes are among the more than 4,000 Americans who have filed lawsuits as part of a multi-district litigation against #Syngenta, which currently manufactures #Gramoxone, and #Chevron, which distributed it in the U.S. from 1966 until 1986.

    "Although Syngenta and Chevron told ABC News that there is no scientific evidence that supports a causal link between #paraquat and #Parkinsonsdisease, the Tucholkes and other plaintiffs allege that such a link exists, arguing that Syngenta and Chevron knew or should have known that the #herbicide could 'cause severe #neurological injuries.'

    "'Our daughter and son-in-law are still #farming. I think any time [a] chemical is applied to the fields that they have to use, they should know what's going to happen,' Denise Tucholke said.

    "'All the generations that are coming up afterwards need to know,' she said."

    Read more:
    msn.com/en-us/health/other/far

    #SyngentaKnew #ChevronKnew #Herbicide #Toxins #WaterIsLife #EnvironmentalPollution

  20. Re - #Introduction

    I'm @paul. On the fowl site I was known as #FeedingTubePaul because I first started tweeting feeding tube awareness videos after getting mine on April 16, 2012, 11 years ago.

    My social life & purpose evolved so here I am just Paul & @hashtaggames

    My hashtags are #Parkinsons Plus-#MSA #MultipleSystemAtrophy #Disability #HashtagGames #Jokester #Healthcare, #USpol, #climate, #music, #literature, #movies, #TV, #fedi22 #Ohio #US #Veteran #Banjo #CatsOfMastodon among others.

  21. The first indication of a possible link between #MyalgicEncephalomyelitis and #CNS diseases:

    “However, one new association was found, with the gene #PDE10A, which is implicated in #CentralNervousSystem diseases, such as #Parkinsons and #Huntingtons disease. This association has never been seen before, and would require replication in a new cohort before its role in #MECFS could be confirmed.“

    era.ed.ac.uk/bitstream/handle/

  22. Good Morning, #Mastodon !!!

    For #FollowbackFriday I'm looking for people who want to be active members of #horrorcommunity #horrorfam #horrorfamily #mutantfam in discussion of #horror #horrorfilms #fiction #writing #horrorart etc.

    Also interestred in #scifi #sciencefiction #Parkinsons #YOPD and my #Parkies #PwP and #UnixPorn

    I'm not concerned with quanity of followers but quality. For the like minded #followandboost and I'll do the same.

  23. A bit about my #Parkinsons for #Parkies and others:

    I was diagnosed with #YOPD in 2011, by 2020 meds were maxed, movement, balance, speech, rigidity and dystonia made it difficult to enjoy life. People think tremor; it’s the least of problems.

    #DBS was a relief. Brain surgery is scary. I had to be conscious, but it was'nt painful. Moving the probes and adjusting power changed my me from complete constriction to rubber. But we found a happy medium in each limb.

    Each #PwP is different.

  24. Haven’t done an #introduction yet, so I thought it was time.

    As most of you can probably see, I’m a big #horror fan. That includes:

    #horromovies #horrorstories #horrorfiction #horror #art #horrorcommunity #horrorfam and #mutantfam #thelastdrivein with #joebobbriggs

    I have #YOPD ( #Parkinsons ) #disability

    Also, love #scifi as well as hobby #boardgames #punkrock #FOSS #FLOSS #linux and much more.

    I’m open and friendly. Please feel free to contact me. Love meeting new people.