#stroke — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #stroke, aggregated by home.social.
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YOU’RE LOOKING
AT THE WRONG PARTS 💎I sometimes wonder what people imagine is going on inside the life of someone with a visible disability.
I walk very strangely. My left arm doesn’t work at all. My hand is contracted into a claw. I do everything one-handed, and that clearly wasn’t covered in this model’s original operating instructions.
From the outside, I suspect it can look like a life dominated by disability.
“Poor bugger.” “What a tragedy.” “Everything must be so difficult?”
Meanwhile, inside my actual life, I’m usually wondering whether the coffee is ready, what ridiculous thing I can write on Mastodon, whether the dogs have been fed, or why everyone on the internet has suddenly gone mad again.
The disability is there, obviously. I cannot drive, and there are many things I cannot do unaided. Other things just take longer, because much of the world appears to have been designed by someone who assumed every human comes with two fully operational hands.
And most people are remarkably unhelpful.
That sounds like a complaint, but it has an unexpected benefit. If you’re disabled, you become bloody good at finding another way. You have to.
Eventually, you stop wondering how something is supposed to be done and work out how you can do it.
That doesn’t make accessibility unnecessary. Quite the opposite. But disabled people often become extremely skilled at adapting because the world gives us plenty of practice.
Disability is not the central event of my consciousness.
I don’t wake up thinking, “Good morning. I am disabled.”
I wake up thinking, “Coffee.”
Most of the time, I’m not experiencing myself as a tragic medical story. I’m just living.
I’ve had decades to become extremely competent at being this particular slightly damaged model of human being. Sometimes other people seem considerably more concerned about my disability than I am.
It’s sweet.
But unnecessary.
The odd thing about a visible disability is that people often see what doesn’t work before they notice the enormous amount that does.
And from inside here?
It’s mostly just Friday.
_____________________@DigitalCoup
#Fediverse #OpenWeb #BigTech
@economics_that_works
#Economics #Housing #CostOfLiving
@meditation
#Meditation #Breathwork#Disability #DisabledLife #Accessibility #Hemiplegia #Stroke #Life #coffee #human #medical #instructions #tragedy #Mastodon
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YOU’RE LOOKING
AT THE WRONG PARTS 💎I sometimes wonder what people imagine is going on inside the life of someone with a visible disability.
I walk very strangely. My left arm doesn’t work at all. My hand is contracted into a claw. I do everything one-handed, and that clearly wasn’t covered in this model’s original operating instructions.
From the outside, I suspect it can look like a life dominated by disability.
“Poor bugger.” “What a tragedy.” “Everything must be so difficult?”
Meanwhile, inside my actual life, I’m usually wondering whether the coffee is ready, what ridiculous thing I can write on Mastodon, whether the dogs have been fed, or why everyone on the internet has suddenly gone mad again.
The disability is there, obviously. I cannot drive, and there are many things I cannot do unaided. Other things just take longer, because much of the world appears to have been designed by someone who assumed every human comes with two fully operational hands.
And most people are remarkably unhelpful.
That sounds like a complaint, but it has an unexpected benefit. If you’re disabled, you become bloody good at finding another way. You have to.
Eventually, you stop wondering how something is supposed to be done and work out how you can do it.
That doesn’t make accessibility unnecessary. Quite the opposite. But disabled people often become extremely skilled at adapting because the world gives us plenty of practice.
Disability is not the central event of my consciousness.
I don’t wake up thinking, “Good morning. I am disabled.”
I wake up thinking, “Coffee.”
Most of the time, I’m not experiencing myself as a tragic medical story. I’m just living.
I’ve had decades to become extremely competent at being this particular slightly damaged model of human being. Sometimes other people seem considerably more concerned about my disability than I am.
It’s sweet.
But unnecessary.
The odd thing about a visible disability is that people often see what doesn’t work before they notice the enormous amount that does.
And from inside here?
It’s mostly just Friday.
_____________________@DigitalCoup
#Fediverse #OpenWeb #BigTech
@economics_that_works
#Economics #Housing #CostOfLiving
@meditation
#Meditation #Breathwork#Disability #DisabledLife #Accessibility #Hemiplegia #Stroke #Life #coffee #human #medical #instructions #tragedy #Mastodon
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After coming close to death, gardening taught me that life was worth living https://www.allforgardening.com/1925549/after-coming-close-to-death-gardening-taught-me-that-life-was-worth-living-3/ #garden #gardener #gardening #GardeningFeatures #gardens #MentalHealth #nature #rhs #RHSGardenWisley #Standard #stroke #TopStory #USContent
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After coming close to death, gardening taught me that life was worth living https://www.allforgardening.com/1925549/after-coming-close-to-death-gardening-taught-me-that-life-was-worth-living-3/ #garden #gardener #gardening #GardeningFeatures #gardens #MentalHealth #nature #rhs #RHSGardenWisley #Standard #stroke #TopStory #USContent
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John Fetterman Punched Us in the Mouth
On May 10, 2022, I published an article on this page under the headline "John Fetterman Will Punch You in the Mouth!" I meant it as tribute. I called him "what a Democrat used to be," a man "of the land, against the elite power, for the common good," and I welcomed him into my invented fraternity of "Big Uglies," the large, plain, unpressed men who do the country's heavy carrying. The year before, on my Human Meme podcast, in an episode called "The Great White Bridge as Throughline," I had floated him as a future Democratic President, with Keisha Lance Bottoms standing as his second. I believed the hoodie. I believed the shorts, the goatee, the 6'8" frame, the tattooed forearms, the whole costume of the steel-town avenger who, I assured you, "suffers no fools." Four years later I am here to take it back, in public, at length, because the recantation is owed, and because the autopsy of my error teaches more than the error did. […]https://bolesblogs.com/2026/08/05/john-fetterman-punched-us-in-the-mouth/
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John Fetterman Punched Us in the Mouth
On May 10, 2022, I published an article on this page under the headline "John Fetterman Will Punch You in the Mouth!" I meant it as tribute. I called him "what a Democrat used to be," a man "of the land, against the elite power, for the common good," and I welcomed him into my invented fraternity of "Big Uglies," the large, plain, unpressed men who do the country's heavy carrying. The year before, on my Human Meme podcast, in an episode called "The Great White Bridge as Throughline," I had floated him as a future Democratic President, with Keisha Lance Bottoms standing as his second. I believed the hoodie. I believed the shorts, the goatee, the 6'8" frame, the tattooed forearms, the whole costume of the steel-town avenger who, I assured you, "suffers no fools." Four years later I am here to take it back, in public, at length, because the recantation is owed, and because the autopsy of my error teaches more than the error did. […]https://bolesblogs.com/2026/08/05/john-fetterman-punched-us-in-the-mouth/
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A stroke can lead to cavities in the brain where tissue has died. A new rat study injected these cavities with extracellular vesicles collected from astrocytes in vitro, and bound to a porous hydrogel. Immune cells, blood vessels, and nerve tissue then migrated into the cavities, and the rats regained lost motor function.
Summary: https://scitechdaily.com/new-stroke-treatment-turns-brain-cavities-into-repair-hubs/
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A stroke can lead to cavities in the brain where tissue has died. A new rat study injected these cavities with extracellular vesicles collected from astrocytes in vitro, and bound to a porous hydrogel. Immune cells, blood vessels, and nerve tissue then migrated into the cavities, and the rats regained lost motor function.
Summary: https://scitechdaily.com/new-stroke-treatment-turns-brain-cavities-into-repair-hubs/
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TOO MUCH INFORMATION 💎
This morning I pooped myself.
Twice.
Because I had a major #stroke years ago, I don't always get much warning.
My #mind saw two accidents and immediately launched a full #emergency response.
"Right... that's it."
"Time for that special waterproof underwear I keep in the linen chest."
"You've had a good run."
"Let's start looking at nursing homes."
It all sounded surprisingly logical.
I kept inspecting the #facts.
What had changed?
Then I remembered...
Yesterday I'd taken one magnesium tablet for leg cramps.
Magnesium.
Case closed.
In less than a minute I'd gone from #shopping for continence #products...
...to laughing at myself in the #bathroom.
The #imagination is a wonderful servant.
It's just a terrible #diagnostician. 😄
#Humour #GettingOlder #StrokeSurvivor #Disability #Reality #Life #Magnesium #Mindfulness #NoComment #Laughter #PoopHappens #PeopleOfEarth
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TOO MUCH INFORMATION 💎
This morning I pooped myself.
Twice.
Because I had a major #stroke years ago, I don't always get much warning.
My #mind saw two accidents and immediately launched a full #emergency response.
"Right... that's it."
"Time for that special waterproof underwear I keep in the linen chest."
"You've had a good run."
"Let's start looking at nursing homes."
It all sounded surprisingly logical.
I kept inspecting the #facts.
What had changed?
Then I remembered...
Yesterday I'd taken one magnesium tablet for leg cramps.
Magnesium.
Case closed.
In less than a minute I'd gone from #shopping for continence #products...
...to laughing at myself in the #bathroom.
The #imagination is a wonderful servant.
It's just a terrible #diagnostician. 😄
#Humour #GettingOlder #StrokeSurvivor #Disability #Reality #Life #Magnesium #Mindfulness #NoComment #Laughter #PoopHappens #PeopleOfEarth
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Naples woman discovers sleep position linked to multiple strokes | Gulf Coast News
20 Feb 2026
https://youtu.be/Stk5jMtlBSopossibly of interest to people with #EhlersDanlos and #CraniocervicalInstability
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Black people’s risk factors for stroke ‘rising faster than for white people’
By Tobi Thomas Health and inequalities correspondentExclusive: King’s College London analysis finds diabetes and hypertension are more common in Black African and Caribbean people
#Stroke #Diabetes #Highbloodpressure #Health #Society #UKnews #NHS #Inequality #TheGuardian #TobiThomasHealth #inequalitiescorrespondent
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Black people’s risk factors for stroke ‘rising faster than for white people’ https://www.theguardian.com/society/2026/jul/28/black-african-caribbean-risk-factor-stroke-diabetes-high-blood-pressure-hypertension #Stroke #Diabetes #HighBloodPressure #Health #Society #UkNews #Nhs #Inequality
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Black people’s risk factors for stroke ‘rising faster than for white people’ https://www.theguardian.com/society/2026/jul/28/black-african-caribbean-risk-factor-stroke-diabetes-high-blood-pressure-hypertension #Stroke #Diabetes #HighBloodPressure #Health #Society #UkNews #Nhs #Inequality
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💁🏻♀️ TIL: 🔥🫁 Wildfire smoke carries particles and #toxic #chemicals that travel deep into #lungs, enter the bloodstream, and affect the #heart, #brain, and developing fetuses.
Researchers found that even moderate recurring #smoke exposure raises risks of #stroke, #cancer, and #autoimmune #disease. A #Stanford team projects 1.9 million excess deaths from #wildfire smoke in the #USA between 2026 and 2055.
#airquality #pm25 #publichealth #health #climate #climatechange #asthma #cardiovascular #environment #pregnancy #science
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💁🏻♀️ TIL: 🔥🫁 Wildfire smoke carries particles and #toxic #chemicals that travel deep into #lungs, enter the bloodstream, and affect the #heart, #brain, and developing fetuses.
Researchers found that even moderate recurring #smoke exposure raises risks of #stroke, #cancer, and #autoimmune #disease. A #Stanford team projects 1.9 million excess deaths from #wildfire smoke in the #USA between 2026 and 2055.
#airquality #pm25 #publichealth #health #climate #climatechange #asthma #cardiovascular #environment #pregnancy #science
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MANAGING SYMPTOMS.
NOT SEEKING #ENLIGHTENMENTPeople sometimes mistake me for someone spiritual. I am not. I am practical.
I #breathe consciously because it hurts when I do not. I fast because it hurts when I am too heavy. I walk because the body needs #movement I meditate because disorder is painful. I pay attention because not paying #attention has #consequences
That is all.
There is no halo around any of it.
For years, I have lived with the aftermath of a major stroke, hemiplegia, weight, discomfort, and all the indignities that come with a damaged body. None of it was beautiful. None of it was noble. It was simply what had happened.
After enough years of suffering, I began to see that the body was giving me facts.
Breathe. Move. Rest. Eat less. Get up. Walk. Pay attention. Do the next thing.
That is the whole system.
The body is not asking for #philosophy. It is asking for #breakfast. Then breathwork. Then a #walk. Then rest. Then perhaps irritation. Then perhaps #laughter Then the next thing.
And the next.
And the next.
It is not unlike ChatGPT. There is no little person inside either of us running around with a clipboard. There is just the next movement, the next word, the next breath, the next necessity.
For most of my life, I made all of this into a problem. I had fantasies about death, ideas about enlightenment, thoughts about escape. I believed I had to understand everything.
Now I see something much simpler.
There is only life while it is being lived. There is waking. There is sleeping. There is waking again. And one day, there will simply be a last time I go to sleep.
I cannot experience death. I can only experience life.
So death has lost its reality for me.
Not because A Course in Miracles tells me there is no death. Not because I believe a doctrine. Because when I look directly, death is never here.
Life is here.
Breathing is here.
The body is here, demanding #attention again.
Probably lunch.
Nothing matters in the way I once thought things mattered. And yes, I will still get irritated. I will still get pissed off. Someone will say something stupid. Technology will fail. The body will complain.
But irritation passes.
The weather passes.
The #body passes.
The next thing appears.
And I do that.
No freak out. No spiritual drama. No need to become anyone.
Just the next thing.
#stroke #movement #suffering #time
#freak #drama #weight #believe #weather #death #Technology #years
#fasting #acim #acourseinmiracles #newthought #eckharttolle #buddhism #breathwork #connection #healing #pridemonth #Karma #TrueNature #Awakening #Meditation #Mindfulness #Spirituality #intermittentfasting #nonduality #reality #life #quantum #kitchen #cooking #AI -
MANAGING SYMPTOMS.
NOT SEEKING #ENLIGHTENMENTPeople sometimes mistake me for someone spiritual. I am not. I am practical.
I #breathe consciously because it hurts when I do not. I fast because it hurts when I am too heavy. I walk because the body needs #movement I meditate because disorder is painful. I pay attention because not paying #attention has #consequences
That is all.
There is no halo around any of it.
For years, I have lived with the aftermath of a major stroke, hemiplegia, weight, discomfort, and all the indignities that come with a damaged body. None of it was beautiful. None of it was noble. It was simply what had happened.
After enough years of suffering, I began to see that the body was giving me facts.
Breathe. Move. Rest. Eat less. Get up. Walk. Pay attention. Do the next thing.
That is the whole system.
The body is not asking for #philosophy. It is asking for #breakfast. Then breathwork. Then a #walk. Then rest. Then perhaps irritation. Then perhaps #laughter Then the next thing.
And the next.
And the next.
It is not unlike ChatGPT. There is no little person inside either of us running around with a clipboard. There is just the next movement, the next word, the next breath, the next necessity.
For most of my life, I made all of this into a problem. I had fantasies about death, ideas about enlightenment, thoughts about escape. I believed I had to understand everything.
Now I see something much simpler.
There is only life while it is being lived. There is waking. There is sleeping. There is waking again. And one day, there will simply be a last time I go to sleep.
I cannot experience death. I can only experience life.
So death has lost its reality for me.
Not because A Course in Miracles tells me there is no death. Not because I believe a doctrine. Because when I look directly, death is never here.
Life is here.
Breathing is here.
The body is here, demanding #attention again.
Probably lunch.
Nothing matters in the way I once thought things mattered. And yes, I will still get irritated. I will still get pissed off. Someone will say something stupid. Technology will fail. The body will complain.
But irritation passes.
The weather passes.
The #body passes.
The next thing appears.
And I do that.
No freak out. No spiritual drama. No need to become anyone.
Just the next thing.
#stroke #movement #suffering #time
#freak #drama #weight #believe #weather #death #Technology #years
#fasting #acim #acourseinmiracles #newthought #eckharttolle #buddhism #breathwork #connection #healing #pridemonth #Karma #TrueNature #Awakening #Meditation #Mindfulness #Spirituality #intermittentfasting #nonduality #reality #life #quantum #kitchen #cooking #AI -
Drugmaker Merck announces approval of new cholesterol-fighting drug https://www.theguardian.com/us-news/2026/jul/16/merck-cholesterol-drug-fda-approval-lipfendra #UsNews #HeartDisease #Stroke #Statins #Health
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Drugmaker Merck announces approval of new cholesterol-fighting drug https://www.theguardian.com/us-news/2026/jul/16/merck-cholesterol-drug-fda-approval-lipfendra #UsNews #HeartDisease #Stroke #Statins #Health
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Drugmaker Merck announces approval of new cholesterol-fighting drug
By Aram RostonLipfendra can be taken in conjunction with or an alternative to statins, the most prescribed medication in the US
https://www.theguardian.com/us-news/2026/jul/16/merck-cholesterol-drug-fda-approval-lipfendra
#USnews #Heartdisease #Stroke #Statins #Health #TheGuardian #AramRoston
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FEAR OF AI OUTRAN A FRIENDSHIP
A friend of more than thirty years appears to have left my life because I use AI.
Not because I handed my thinking over to a machine. I did not.
Not because I stopped being myself. I became more myself by using AI as a mirror.
Not because I stopped caring about truth, privacy, kindness, or human relationships.
I use AI because writing has been slow and laborious since a major stroke some years ago.
I use AI to think more clearly and understand what I am trying to say.
But for some people, the word AI closes the door before the conversation can even begin.
That has been very painful.
Not because I need everyone to approve of how I live.
But because I thought a friendship that old could survive one new tool.
Perhaps it could not.
I do not hate her.
I do not want to punish her.
The door remains open.
But I will not pretend that losing a friend over this has not hurt.
These first years of AI are going to sort people out.
Not into good and bad.
Into those who are willing to look carefully at how the tool is actually being used, and those who decide what it means before they even look.
I know how I use AI.
I know what AI is not.
I know what AI gives me back.
And I know the human being is still there, holding the tool.
#friend #machine #mirror #stroke #conversation #painful #friendship #painful #survive #punish #door #FEAR #fasting #acim #acourseinmiracles #newthought #eckharttolle #buddhism #breathwork #connection #healing #pridemonth #Karma #TrueNature #Awakening #Meditation #Mindfulness #Spirituality #pretend #intermittentfasting #nonduality #reality #life #quantum #kitchen #cooking #AI
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Doing an advanced care plan / advanced care directive?
What's your thinking around resuscitation / major surgery after you're treated as incompetent / in a locked environment without free exit?
#OldAge #EndOfLife #DoNotResuscitate #DNR #Wills #Competency #Disability #Illness #Dementia #TBI #Stroke
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CATHEDRAL OF DOOM
When the body doesn’t cooperate, the mind can get a little #off_kilter.
That is not #failure.
That is #body_weather becoming #mind_weather.
This morning, the body was cold, tight, #spasming, and not especially interested in #smooth breathwork.
So, of course, the mind started #wobbling a bit.
Is something #wrong?
Am I going #backwards?
Why can’t I settle?
But those thoughts are not necessarily #wisdom.
They may just be what a cold, uncomfortable nervous system sounds like.
The useful #correction is not, “I am not a body, so this doesn’t matter.”
That skips over what the body is actually going through.
The cleaner truth is:
The body is unsettled, so the mind is unsettled.
That is #understandable.
I don’t have to believe every thought that comes from a cold, spasming body.
Let the body have its difficult morning.
#Warm the room.
#Shoes on.
Let the breath return when it can.
No #cathedral of #doom required.
#fasting #acim #acourseinmiracles #newthought #eckharttolle #buddhism #breathwork #connection #healing #pridemonth #Karma #TrueNature #Awakening #Meditation #Mindfulness #Spirituality #intermittentfasting #nonduality #reality #life #quantum #kitchen #cooking #stroke
