#endalz — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #endalz, aggregated by home.social.
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💜 This Alzheimer’s & Brain Health Awareness Month, I honor my grandmother, Doña Patria, and the millions of families affected by this disease.
➡️ Progress depends on research, prevention, early diagnosis, and the caregivers who hold everything together.
💜To every caregiver out there: you are seen, you are valued, and you are heroes.
#AlzheimersAwareness #BrainHealth #EndALZ #Caregivers #HealthEquity #Boston #Love #Dementia #Aging
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💜 This Alzheimer’s & Brain Health Awareness Month, I honor my grandmother, Doña Patria, and the millions of families affected by this disease.
➡️ Progress depends on research, prevention, early diagnosis, and the caregivers who hold everything together.
💜To every caregiver out there: you are seen, you are valued, and you are heroes.
#AlzheimersAwareness #BrainHealth #EndALZ #Caregivers #HealthEquity #Boston #Love #Dementia #Aging
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💜 This Alzheimer’s & Brain Health Awareness Month, I honor my grandmother, Doña Patria, and the millions of families affected by this disease.
➡️ Progress depends on research, prevention, early diagnosis, and the caregivers who hold everything together.
💜To every caregiver out there: you are seen, you are valued, and you are heroes.
#AlzheimersAwareness #BrainHealth #EndALZ #Caregivers #HealthEquity #Boston #Love #Dementia #Aging
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💜 This Alzheimer’s & Brain Health Awareness Month, I honor my grandmother, Doña Patria, and the millions of families affected by this disease.
➡️ Progress depends on research, prevention, early diagnosis, and the caregivers who hold everything together.
💜To every caregiver out there: you are seen, you are valued, and you are heroes.
#AlzheimersAwareness #BrainHealth #EndALZ #Caregivers #HealthEquity #Boston #Love #Dementia #Aging
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💜 This Alzheimer’s & Brain Health Awareness Month, I honor my grandmother, Doña Patria, and the millions of families affected by this disease.
➡️ Progress depends on research, prevention, early diagnosis, and the caregivers who hold everything together.
💜To every caregiver out there: you are seen, you are valued, and you are heroes.
#AlzheimersAwareness #BrainHealth #EndALZ #Caregivers #HealthEquity #Boston #Love #Dementia #Aging
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Every country, every culture, every community, and every person has an equal stake in addressing Alzheimer's disease and other forms of dementia.
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Every country, every culture, every community, and every person has an equal stake in addressing Alzheimer's disease and other forms of dementia.
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The holiday season can be hard, esp. if you are someone w/#dementia and/or a #caregiver for someone w/#dementia. #HFC has many support groups for #caregivers, inc. "Keeping Each Other Company: Caregiving & #Grief." We meet 12.17 at 11 am PT.
Please consider filling out this google doc & joining one of these groups if you are feeling sad &/or lonely. Weirdly, sometimes talking w/people you don't know is easier than confiding in people you do.
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The holiday season can be hard, esp. if you are someone w/#dementia and/or a #caregiver for someone w/#dementia. #HFC has many support groups for #caregivers, inc. "Keeping Each Other Company: Caregiving & #Grief." We meet 12.17 at 11 am PT.
Please consider filling out this google doc & joining one of these groups if you are feeling sad &/or lonely. Weirdly, sometimes talking w/people you don't know is easier than confiding in people you do.
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The holiday season can be hard, esp. if you are someone w/#dementia and/or a #caregiver for someone w/#dementia. #HFC has many support groups for #caregivers, inc. "Keeping Each Other Company: Caregiving & #Grief." We meet 12.17 at 11 am PT.
Please consider filling out this google doc & joining one of these groups if you are feeling sad &/or lonely. Weirdly, sometimes talking w/people you don't know is easier than confiding in people you do.
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The holiday season can be hard, esp. if you are someone w/#dementia and/or a #caregiver for someone w/#dementia. #HFC has many support groups for #caregivers, inc. "Keeping Each Other Company: Caregiving & #Grief." We meet 12.17 at 11 am PT.
Please consider filling out this google doc & joining one of these groups if you are feeling sad &/or lonely. Weirdly, sometimes talking w/people you don't know is easier than confiding in people you do.
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December 17th at 11 am PT, I will be leading the last HFC support group -- "Keeping Each Other Company: Caregiving & Grief" -- of this year. The holidays can be especially hard for #caregivers & those they care for, so if you want/need a place to talk, listen, decompress, please consider joining one of the support groups offered by Seth & Lauren Miller Rogen's amazing foundation Hilarity for Charity. Here is a link:
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“I think the thing that I hope to dispel about Alzheimer’s is the reality of how hard it is,” Lauren [Miller Rogen] said. “There are many people who are lucky enough to have not been touched by it, & that’s amazing—but I hope they understand how dark it can get, how long it can last, & what it is like for a caregiver. When we don’t understand those things, we don’t strive for change & we don’t work toward making things better.”
https://lamag.com/philanthropy/hilarity-for-charity-hosts-friendsgiving/
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“I think the thing that I hope to dispel about Alzheimer’s is the reality of how hard it is,” Lauren [Miller Rogen] said. “There are many people who are lucky enough to have not been touched by it, & that’s amazing—but I hope they understand how dark it can get, how long it can last, & what it is like for a caregiver. When we don’t understand those things, we don’t strive for change & we don’t work toward making things better.”
https://lamag.com/philanthropy/hilarity-for-charity-hosts-friendsgiving/
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“I think the thing that I hope to dispel about Alzheimer’s is the reality of how hard it is,” Lauren [Miller Rogen] said. “There are many people who are lucky enough to have not been touched by it, & that’s amazing—but I hope they understand how dark it can get, how long it can last, & what it is like for a caregiver. When we don’t understand those things, we don’t strive for change & we don’t work toward making things better.”
https://lamag.com/philanthropy/hilarity-for-charity-hosts-friendsgiving/
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“I think the thing that I hope to dispel about Alzheimer’s is the reality of how hard it is,” Lauren [Miller Rogen] said. “There are many people who are lucky enough to have not been touched by it, & that’s amazing—but I hope they understand how dark it can get, how long it can last, & what it is like for a caregiver. When we don’t understand those things, we don’t strive for change & we don’t work toward making things better.”
https://lamag.com/philanthropy/hilarity-for-charity-hosts-friendsgiving/
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Johns Hopkins UP is discounting all books by 50%. Purchases over $50 get free shipping. Use discount code HCYB25.
Here is a link to the preface of my #memoir, written w/the brilliant #UCSF #neurologist Dr. Bruce Miller, Finding the Right Words: A Story of Literature, Grief, and the Brain. His explanations of how the #brain works (or w/#dementia, why it doesn't) are beautifully written & incredibly helpful to those who struggle to understand.
https://www.press.jhu.edu/books/title/12605/finding-right-words
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Today is the last day of National Family #Caregivers Month. As @TonyStark likes to remind us -- and correctly -- Kamala had a plan to help caregivers keep their loved ones at home. But people rejected that in favor of the fascist sh#tshow we have now.
Anyway, here's to my mother who took care of my father for over 15 years -- some at home; some not. A photo, my favorite of the two of them, from the happiest of days.💜
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Today is the last day of National Family #Caregivers Month. As @TonyStark likes to remind us -- and correctly -- Kamala had a plan to help caregivers keep their loved ones at home. But people rejected that in favor of the fascist sh#tshow we have now.
Anyway, here's to my mother who took care of my father for over 15 years -- some at home; some not. A photo, my favorite of the two of them, from the happiest of days.💜
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Johns Hopkins University Press is having its Holiday Sale until 12.7. 40% off all books w/discount code HHOL25 & free shipping on orders over $50.00. Hopkins publishes many wonderful books & I'm proud that my #memoir written w/#UCSF #neurologist Bruce Miller is on the health & wellness list. If you click on the link below & then click Look Inside, you can read the preface to Finding the Right Words: A Story of Literature, #Grief, and the #Brain.
https://www.press.jhu.edu/books/title/12605/finding-right-words
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For all who strive to live fully with dementia and all who offer support.
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For all who strive to live fully with dementia and all who offer support.
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The holidays are coming. If you are a caregiver of someone w/#dementia, you might find comfort in being w/others in similar situations. Here's a link to the free #HFC online support groups for #caregivers. #HFC is the foundation created by Lauren Miller Rogen & Seth Rogen in honor of her mother, Adele, who died of early-onset #Alzheimer's. I lead, "Keeping Each Other Company: Caregiving & Grief," & would be honored to see you Wednesday 11 am (PT), 11.19.
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Is there anything more to say about why we must stop dementia?
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Is there anything more to say about why we must stop dementia?
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I wrote this for #caregivers w/my friend & healthcare expert, Ilyse Veron, a while back. One thing that strikes me as important but not always top of mind is that the person w/#dementia might be having an especially difficult day b/c they are in pain, physical pain. I think we are quick to attribute symptoms to neurological deficits when sometimes the problem is bodily. It can be hard to figure out but worth trying.
https://www.ncoa.org/article/8-tips-for-alzheimers-and-dementia-caregivers/
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Words of reassurance left for an elderly lady with dementia by her daughter. A simple white board left in her sight line in her sitting room. Helped to reduce constant anxious phone calls.
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Words of reassurance left for an elderly lady with dementia by her daughter. A simple white board left in her sight line in her sitting room. Helped to reduce constant anxious phone calls.
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I just read (thank you @rwg) that Bookshop.org is having an anti-prime sale. 20% off and free shipping today and tomorrow. Local bookstores get the benefit and not the person whose billions are wreaking havoc.
Here's a link to my #memoir, written with #UCSF #neurologist, Dr. Bruce Miller.
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I just read (thank you @rwg) that Bookshop.org is having an anti-prime sale. 20% off and free shipping today and tomorrow. Local bookstores get the benefit and not the person whose billions are wreaking havoc.
Here's a link to my #memoir, written with #UCSF #neurologist, Dr. Bruce Miller.
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Hilary for Charity is an amazing foundation, dedicated to helping caregivers whose loved ones have #dementia, created by Lauren Miller Rogen and Seth Rogen. I lead a support grief-- "Keeping Each Other Company: #Caregiving and Grief" -- focused on #grief, but there are many other groups. All are free and on Zoom.
If you are sad, angry, confused, lonely, whatever, these groups provide a space to share, listen, and even take a beat for a laugh.
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Hilary for Charity is an amazing foundation, dedicated to helping caregivers whose loved ones have #dementia, created by Lauren Miller Rogen and Seth Rogen. I lead a support grief-- "Keeping Each Other Company: #Caregiving and Grief" -- focused on #grief, but there are many other groups. All are free and on Zoom.
If you are sad, angry, confused, lonely, whatever, these groups provide a space to share, listen, and even take a beat for a laugh.
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This very nice review of my #memoir w/ #neurologist Dr. BruceMiller just came to my attention. Here's a bit from the last paragraph: "This unlikely author team has Miller explain brain function in lay terms, while Weinstein shares her love of literature — a unique partnership of science & art. But despite its grim subject it’s not a downer, rather offering useful information to help fend off this dreaded disease.
https://authorlink.eboz.com/bookreview/review-finding-the-right-words-by-weinstein-miller-md-2021/
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I had to type the preface to my #memoir for a writer-in-residence application, and upon rereading it thought it said what I wanted to say -- which isn't always the case, as anyone who writes knows.
Here it is, courtesy of Johns Hopkins University Press. I hope you find it interesting and perhaps even helpful.
https://www.press.jhu.edu/books/title/12605/finding-right-words
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5 Tips for Talking with Someone Living with Alzheimer’s.
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5 Tips for Talking with Someone Living with Alzheimer’s.
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World Alzheimer’s Day.
#alzheimers #dementia #alzheimersawareness #caregiver #dementiaawareness #dementiacare #seniorcare #caregiving #caregivers #alzheimersdisease #eldercare #endalz #homecare #elderlycare #health #seniorliving #caregiversupport #alzheimerscare #care #assistedliving #alzheimersassociation #healthcare #elderly #memorycare #dementiasupport #family #alzheimer #alzheimerssupport #seniors #aging Today, World Alzheimer's Day is being celebrated. With…
https://itsmostamazingindia.wordpress.com/2025/09/21/world-alzheimers-day/
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World Alzheimer’s Day.
#alzheimers #dementia #alzheimersawareness #caregiver #dementiaawareness #dementiacare #seniorcare #caregiving #caregivers #alzheimersdisease #eldercare #endalz #homecare #elderlycare #health #seniorliving #caregiversupport #alzheimerscare #care #assistedliving #alzheimersassociation #healthcare #elderly #memorycare #dementiasupport #family #alzheimer #alzheimerssupport #seniors #aging Today, World Alzheimer's Day is being celebrated. With…
https://itsmostamazingindia.wordpress.com/2025/09/21/world-alzheimers-day/
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Today is my #memoir's 4th birthday. It wasn't until I wrote the preface that I realized writing the #book was my way of sitting #shiva & saying #kaddish for my father who died of early-onset #Alzheimer's. Dr. Bruce Miller, #neurologist @ #UCSF, sat shiva w/me. I will be eternally grateful.
Acknowledging that I'll never recover from how my father died has strangely liberated me to remember him (w/ and w/o the disease- I had forgotten the latter) & help others.
https://www.press.jhu.edu/books/title/12605/finding-right-words
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Dr. Bruce Miller & I were on the Nocturnists #podcast a while back. Dr. Emily Silverman has put together a wonderful & informative series of conversations covering aspects of medical care that aren't often discussed; for ex., shame, uncertainty, race. About the podcast w/me & Bruce, she writes: "[Finding the Right Words] serves as a dialogue btw. patient & doctor, literary critic & neuroscientist. A great example of narrative medicine in action."
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My #memoir about my beloved dad, Jerry, turns 4 this week. Please consider buying it from #JohnsHopkinsUP or Bookshop.org. Here is my website with links to both. #UCSF #neurologist, dear friend, and co-author Dr. Bruce Miller explains what happens to the brain when #dementia strikes. The #book has a lot to say about #grief, #neurology, and #literature, especially #MobyDick. Readers have said they have found it helpful. If you read it, I hope you do, too.
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Some ask why we dare believe there will be an Alzheimer's cure.
#Alzheimers #dementia #EndAlz #science #poetry #poetrycommunity
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Some ask why we dare believe there will be an Alzheimer's cure.
#Alzheimers #dementia #EndAlz #science #poetry #poetrycommunity
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If you watched the poignant special on Bruce Willis's #FTD and Emma Willis's experiences, and thought what Dr. Bruce Miller had to say was illuminating, you might want to check out these 2 books (one which he wrote with me).
Dr. Miller and Dr. Sturm, Mysteries of The Social Brain: Understanding Human Behavior through Science.
Dr. Miller and me, Finding the Right Words: A Story of Literature, Grief, and the Brain.
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Some modifiable risk factors re: early-onset #dementia.
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powerful reminder to those of us who do not have #Alzheimers disease or another form of #dementia to continue seeing and focusing on the whole person, to support #disabilities while respecting and embracing abilities.
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powerful reminder to those of us who do not have #Alzheimers disease or another form of #dementia to continue seeing and focusing on the whole person, to support #disabilities while respecting and embracing abilities.
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Sometimes #caregiving is about the chores: medications, money, meals, bathing, and more. But, in the quiet moments between the chores, it also can be about giving and sharing comfort, peace of mind, dignity, #kindness and love.