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#caregiver — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #caregiver, aggregated by home.social.

  1. #ArtTherapy self-made with fruit tea. I feel like a wrung-out piece of cloth, drained of all blood. After a few weeks of sheer horror as a #caregiver, then hellish knee pain. (Here in rural France, I have to wait 1 month for a radio/echography.)

    But at last, I’m hungry for #art again. Preparing #gauze for an #paperArt #textileArt #artBook with intuitive #embroidery and #collage. 🩸 #Stitching helps me against the pain, and I love this artificial tea blood. 🧛‍♀️ Still searching for a theme ...

  2. Advanced gallbladder cancer, HER2+++

    After months in the hospital, my father finally received zanidatamab.
    We had followed this drug on DengYueMed for over a year.

    The timing was cruel. The fever reaction was strong.
    But today, he felt better, ate more, and asked for dinner.

    Sometimes hope isn’t a response rate.
    Sometimes it’s simply getting through the day.

    #CancerCare #HER2 #GallbladderCancer #Caregiver #Zanidatamab #DengYueMed

  3. Question for caregivers:

    Grandma has been able to drink from a straw up until today. Now, she blows bubbles thru the straw in an effort to suck.

    Has anyone seen this? Any suggestions on how to prompt a sucking motion when the patient is stuck in "opposite action" mode? I improvised by plugging the top of the straw with my fingertip and dropping juice into her mouth one straw-full at a time.

    Any advice you can give is greatly appreciated. 🩷🩷

    #hospice #caregiver #PatientCare

  4. Một người đàn ông U60 đã 4 năm làm nghề chăm sóc bệnh nhân tại bệnh viện và tại nhà. Điều đặc biệt là ông phải giấu vợ con theo đuổi công việc này. Dù gặp nhiều tình huống éo le trong nghề, nhưng ông vẫn yêu và tận tâm với công việc chăm sóc người bệnh.

    #ChămSócBệnhNhân #NghềNghiệp #CâuChuyệnCuộcSống #Caregiver #LifeStory

    vietnamnet.vn/nguoi-dan-ong-u6

  5. The holiday season can be hard, esp. if you are someone w/#dementia and/or a #caregiver for someone w/#dementia. #HFC has many support groups for #caregivers, inc. "Keeping Each Other Company: Caregiving & #Grief." We meet 12.17 at 11 am PT.

    Please consider filling out this google doc & joining one of these groups if you are feeling sad &/or lonely. Weirdly, sometimes talking w/people you don't know is easier than confiding in people you do.

    docs.google.com/forms/u/0/d/e/

    @caregivers
    #EndAlz

  6. Enhancing Caregiver Support: Cultivating Mindfulness Practices

     

    Discovering Sacredness

    We are all unique beings of energy, existing briefly before returning to the cosmos. Each of us plays a part in the symphony of life, contributing to our journey through the universe. Every experience is sacred and filled with the wonder of existence. By adopting this perspective, we discover the universe’s secrets, and each encounter unveils a new aspect of life’s beauty. To understand our connection to everything, we must let go of judgment and fear, recognizing the divine essence within ourselves and our place in creation. Let us begin a journey of self-discovery, moving through time and space as we allow our true selves to grow freely and naturally.

    Embracing Present-Moment Awareness: Finding Magic in the Ordinary

    Remember that the ordinary is truly sacred, and within you, it shines its brightest. Embrace present-moment awareness to infuse each moment with enchantment, for it is in these fleeting seconds that life reveals its most profound beauty. By pausing to fully embrace each moment, we invite the magic that envelops us, awakening our senses and rejuvenating our souls. This conscious practice allows us to breathe in the richness of our surroundings, enhancing our appreciation for the simple things, like the warmth of sunlight on our skin or the sound of laughter echoing in the air. As we cultivate this mindfulness, we create a deeper connection with ourselves and the world around us, transforming the mundane into the miraculous and igniting a spark of joy that resonates in every heartbeat.

    Cultivating Present-Moment Awareness: Releasing attachment

    Photo by Anete Lusina on Pexels.com

    To cultivate present-moment awareness, consistent practice is required. Our lives have become encumbered with social media and fear-mongering that pushes us towards anxiety about the future, while we remain constricted by the unchangeable past. We need to return to the present moment with cues such as the breath or heartbeat, which serve as gentle reminders of our existence right here and now. When we embody present-moment awareness, we ultimately lose attachment to the ego, shedding the burdens of societal expectations and self-imposed limitations. We release attachment to who we think we are and instead experience life as the witness, calmly reflecting on the beautiful mystery of creation. This shift in perspective allows us to embrace the richness of our experiences, nurturing a deeper understanding of our connection to the world around us, fostering peace and gratitude in our everyday existence. By staying grounded in the present, we can navigate our lives with clarity and purpose, appreciating the fleeting moments that make up our lives.

    Ways to Cultivate Present-Moment Awareness

    Photo by Riccardo on Pexels.com
    1. Mindful Breathing: Take a few moments each day to focus on your breath. Inhale deeply, hold for a moment, and exhale slowly. This practice centers your mind and brings you into the present.
    2. Body Scan Meditation: Lie down comfortably and mentally scan your body from head to toe, paying attention to any sensations. This practice heightens awareness of your physical presence.
    3. Nature Walks: Spend time in nature and consciously observe your surroundings. Notice the colors, sounds, and textures around you, immersing yourself in the beauty of the moment.
    4. Gratitude Journaling: Write down three things you are grateful for each day. This practice shifts your focus to the present and enhances your appreciation for the small joys in life.
    5. Mindful Eating: When you eat, savor each bite. Notice the flavors, textures, and aromas of your food. This practice helps you appreciate nourishment in a meaningful way.
    6. Digital Detox: Set aside specific times to unplug from technology. Use this time to engage in activities that allow you to connect with yourself and your surroundings without distractions.
    7. Meditation: Establish a daily meditation practice. Even a few minutes of focusing on your breath or a specific thought can enhance your ability to remain in the present.
    8. Grounding Exercises: Practice grounding techniques, such as feeling the ground beneath your feet or identifying five things you can see, hear, smell, taste, and touch in your environment.
    9. Mindful Movement: Engage in yoga, tai chi, or any gentle physical activity where you concentrate on the movements and your body’s sensations, fostering a deep connection with the present.
    10. Limit Multitasking: Focus on one task at a time, whether it’s working, eating, or conversing. This practice enhances concentration and presence in each activity.

    By integrating these practices into your daily routine, you can cultivate a greater awareness of the present moment, enriching your life experience and fostering a deeper connection with yourself and the world around you.

    Remember to be patient with yourself. If you are dealing with hardship, such as health problems or caring for others, these practices can be overwhelming. During such challenging periods, it’s essential to acknowledge your limits and accept that it’s okay to prioritize self-care. Sometimes it is better to remove practices that are not currently serving you instead of adding new priorities. The key is to focus on what truly nurtures your well-being and contributes positively to your life. We do not want to overstress ourselves, but learn to find the functional middle ground. Striking this balance allows for personal growth and fosters resilience, leading to a healthier approach toward handling life’s obstacles. Remember, the journey to healing and balance is not a race; it’s a gradual process that requires gentleness and self-compassion.

    Mindful Coping Strategies for Health Challenges

    Photo by Alina Zahorulko on Pexels.com

    Navigating health problems, whether your own or those of a loved one, can be incredibly challenging. Here are some mindful strategies to help you cope during these difficult times:

    1. Practice Self-Compassion: Acknowledge that it’s okay to feel overwhelmed. Treat yourself with kindness and understanding, just as you would for a friend in a similar situation.
    2. Breathing Exercises: Utilize deep breathing techniques to ground yourself. Inhale deeply through your nose, hold for a few seconds, and exhale slowly through your mouth. This simple practice can help reduce stress and anxiety.
    3. Mindful Journaling: Take a few moments each day to express your thoughts and feelings in a journal. Writing can serve as an emotional release and help clarify your feelings about your situation.
    4. Seek Support: Connect with others who understand what you’re going through. Whether it’s a support group or simply friends and family, talking about your experiences can provide comfort and reduce feelings of isolation.
    5. Limit Information Overload: While it’s important to stay informed, excessive research about health conditions can lead to anxiety. Set boundaries around how much time you spend gathering information.
    6. Establish a Routine: Create a daily routine that includes time for self-care. Whether it’s a leisurely cup of tea or a short walk, having structured time can provide stability.
    7. Engage in Gentle Movement: Participate in gentle physical activities like yoga or stretching. These practices can help release tension and promote relaxation.
    8. Mindful Listening: If caring for someone else, practice active listening. Be present and fully engaged when they speak, fostering feelings of connection and support.
    9. Limit Distractions: Set aside time when you are fully present, free from distractions like phones or television. This can help you focus on the moment and your feelings.
    10. Nurture Moments of Joy: Find small moments that bring you joy, whether it’s listening to music, enjoying nature, or savoring a favorite meal. Acknowledging these moments can enhance your well-being amidst difficulties.
    11. Gratitude Practice: Reflect on aspects of your life that you are grateful for, even during tough times. Writing down three things each day can shift your perspective.
    12. Professional Support: If feelings of stress or anxiety become overwhelming, consider seeking the help of a mental health professional. Therapy can offer guidance and coping strategies tailored to your situation.

    By incorporating these mindful strategies into your life, you can cultivate resilience and find moments of peace, even amid challenges. Remember to be gentle with yourself and recognize that it’s okay to ask for help when needed.

    Caregiver Support and Mental Health Resources

    Photo by Hakan Tahmaz on Pexels.com
    1. National Alliance for Caregiving (NAC)

      Website: www.caregiving.org

      Provides support and resources for caregivers, including research, tools, and advocacy.

    2. Family Caregiver Alliance (FCA)

      Website: www.caregiver.org

      Offers information, support groups, and resources to help caregivers take care of themselves.

    3. AARP Caregiver Resources

      Website: www.aarp.org/caregiving

      Features a wide range of resources, from articles to community partnerships for caregiver support.

    4. Caregiver Action Network (CAN)

      Website: www.caregiveraction.org

      Provides educational resources, webinars, and a community for caregivers.

    5. National Institute of Mental Health (NIMH)

      Website: www.nimh.nih.gov

      Offers information on mental health conditions, coping strategies, and finding help.

    6. Mental Health America (MHA)

      Website: www.mhanational.org

      Provides resources for mental health support and information on various conditions.

    7. Psychology Today – Find a Therapist

      Website: www.psychologytoday.com

      A tool for finding mental health professionals in your area.

    8. Crisis Text Line

      Text: “HELLO” to 741741

      A free text service that connects you with a trained crisis counselor for immediate support.

    9. Support Groups Central

      Website: www.supportgroupscentral.com

      Offers online support groups for caregivers and those dealing with mental health issues.

    10. Alzheimer’s Association

      Website: www.alz.org

      Provides support for caregivers of individuals with Alzheimer’s, including resources and community support.

    11. Caregiving.com

      Website: www.caregiving.com

      A community for caregivers to share experiences, advice, and find support.

    12. BetterHelp

      Website: www.betterhelp.com

      An online platform for professional counseling, connecting individuals with licensed therapists.

    By using these resources, caregivers can find the support and mental health assistance they need to manage their responsibilities and well-being better.

    This Reiki-infused meditation gently shifts our awareness to the present moment. This practice allows us to consciously embrace each day, experiencing its beauty without worrying about the future or getting caught up in the past. Whether you start your day with this meditation or need to recenter yourself throughout the day, you can experience the essence of each moment.

    #aging #anxietyRelief #caregiver #caregiving #cargiverSupport #chronicIllness #copingSkills #dementia #elderCare #flow #grounding #healing #jsutForToday #meditation #meditationForBeginners #meditatiopn #mentalHealth #migraine #mindful #mindfulness #moments #nature #practice #resilience #resources #sacredness #simpleLife #stressAnxiety #stressRelief

  7. 5/

    “I love seeing my counsellor. As a carer, it's important to have an outlet and help to navigate the new landscape. It can be exhausting.”

    #caring #caregiver #carer @mecfs

  8. Digesting Food Studies (the CFS podcast)—Episode 104: Infant Food Security

    Whether you #breastfeed, feed with #babyformula, or do both, securing sustenance for newborns can be fraught. #Infant and #caregiver #foodsecurity is a multi-layered, multi-experiential reality, in the past and present. What will its future hold?

    rss.com/podcasts/digesting-foo

    This episode features Lesley Frank on the “first food systems” of infant feeding, Natalia Alaniz-Salinas responding to Lesley’s article, “Finding Formula” (Vol. 5 No. 1 of CFS), and Alexia Moyer on the history of milk, including its price, positioning, and propaganda. Drink up!

    #DigestingFoodStudies
    #Infancy
    #Caregivers
    #Parenting
    #InfantFoodSecurity
    #BabyFormula
    #Breastfeeding
    #Milk
    #FindingFormula
    #FirstFoodSystems
    #FoodHistory
    #FoodSecurity
    #Advertising
    #Propoganda
    #FoodInsecurity
    #Gender
    #WomensWork
    #FoodPodcast

    photo: Erik De Leon; visual effects: Natalie Doonan

  9. Caregiver: sentenza di portata storica, la Corte di Giustizia Europea riconosce finalmente il diritto, a chi assiste un famigliare disabile, agli “accomodamenti ragionevoli”. Leggi il nostro commento e la sentenza completa. #caregiver #smartworking smartworkersunion.it/tkyz

  10. Today in The Medium Newsletter, featured stories include:

    #FoodCulture and #FoodQuality in Spain vs the US, by @roccopendola

    • A tribute to #MalcolmJamalWarner, by Jonathan Apollo

    • Healing from #caregiver burnout, by Andrea Romeo

    • How #AI is democratizing #language, by Youjin Nam

    medium.com/blog/examining-the-

    #Medium #writing

  11. Today in The Medium Newsletter, featured stories include:

    #FoodCulture and #FoodQuality in Spain vs the US, by @roccopendola

    • A tribute to #MalcolmJamalWarner, by Jonathan Apollo

    • Healing from #caregiver burnout, by Andrea Romeo

    • How #AI is democratizing #language, by Youjin Nam

    medium.com/blog/examining-the-

    #Medium #writing

  12. Today in The Medium Newsletter, featured stories include:

    #FoodCulture and #FoodQuality in Spain vs the US, by @roccopendola

    • A tribute to #MalcolmJamalWarner, by Jonathan Apollo

    • Healing from #caregiver burnout, by Andrea Romeo

    • How #AI is democratizing #language, by Youjin Nam

    medium.com/blog/examining-the-

    #Medium #writing

  13. Today in The Medium Newsletter, featured stories include:

    #FoodCulture and #FoodQuality in Spain vs the US, by @roccopendola

    • A tribute to #MalcolmJamalWarner, by Jonathan Apollo

    • Healing from #caregiver burnout, by Andrea Romeo

    • How #AI is democratizing #language, by Youjin Nam

    medium.com/blog/examining-the-

    #Medium #writing

  14. Today in The Medium Newsletter, featured stories include:

    #FoodCulture and #FoodQuality in Spain vs the US, by @roccopendola

    • A tribute to #MalcolmJamalWarner, by Jonathan Apollo

    • Healing from #caregiver burnout, by Andrea Romeo

    • How #AI is democratizing #language, by Youjin Nam

    medium.com/blog/examining-the-

    #Medium #writing

  15. A fundraiser for one of my friends here in Maine, organized by her sister. Jessica is a caregiver of two autistic kids and a good human. Please boost and donate if you can...

    Support Jessica's Healing After ICU Battle

    Organized by Shelly Cox

    "My sister Jessica went in for an emergency abdominal surgery on May 27th. She was in the ICU on a ventilator for 8 days as she fought off the sepsis and worked hard on healing. It was terrifying, and I thought we were going to lose her. She is now in a regular room in the hospital and is preparing for discharge. Thank goodness.

    "The recovery will be long, and she will need to have help at home for herself and also to help care for her children. Both of Jessica's children are on the autism spectrum, and the younger one has very high support needs. She is their sole caregiver and has given every part of herself to them, often in neglect of her own needs.

    "I would like to raise some money to help with the care of Alexander, her younger son, while she heals and regains her strength over the next couple of months. I want her to be able to focus on taking care of herself and minimize stress as much as possible!"

    gofundme.com/f/support-jessica

    #MutualAid #GFM #MedicalEmergency #Caregiver #ASDCaregiver #ASD #SingleMom #Mainers #Maine #Fundraisers

  16. This Wednesday, May 21 from 11 to 12 PT, I'll be leading the monthly #HFC caregiver group on #grief. It's called "Keeping Each Other Company." If you are a #caregiver for someone with #dementia, or if you aren't but feel the grief of losing someone about whom you care, please join. Here is the google doc to sign up and get matched with the caregiver group that best fits what you need. It may be the one I lead, it may not. Either way, it may help.💜

    docs.google.com/forms/d/e/1FAI

    #caregiving
    #EndAlz

  17. Keeping Each Other Company is the monthly grief support group I lead, thanks to #HFC (Lauren Miller Rogen and Seth Rogen's foundation established in honor of Lauren's mother who died of early-onset Alzheimer's). We meet next week. If you are or were a #caregiver to someone w/#dementia & would like a space to share your feelings &/or hear others' share theirs, please use this google doc & HFC will match you with the group that fits your needs best.

    #EndAlz
    #Caregiving

    docs.google.com/forms/d/e/1FAI

  18. Keeping Each Other Company is the monthly grief support group I lead, thanks to #HFC (Lauren Miller Rogen and Seth Rogen's foundation established in honor of Lauren's mother who died of early-onset Alzheimer's). We meet next week. If you are or were a #caregiver to someone w/#dementia & would like a space to share your feelings &/or hear others' share theirs, please use this google doc & HFC will match you with the group that fits your needs best.

    #EndAlz
    #Caregiving

    docs.google.com/forms/d/e/1FAI

  19. We're In This Together!

    Renegade Research is on a mission to help people manage and recover from #MECFS and #longCOVID. It is a non-profit 501c3 decentralized organization pioneering #patient and #caregiver led #research with a focus on ME/CFS, longCOVID and other infection associated chronic illnesses.

    Remission Biome is a project of Renegade Research.

    ✅️ Learn more: renegade-research.org and remissionbiome.org

    #clinician #chronic #illness #iaci

  20. Tomorrow at 12 to 3 pm PT, 3 to 6 pm ET is HFC CareCon 2025. #HFC is the foundation created by #LaurenMillerRogen & #SethRogen in honor of Lauren's mother Adele, who died of early-onset #Alzheimer's. Please register if you are a #caregiver, know a loved one with #dementia, and/or want to have a laugh (it is Seth Rogen after all!). I will be on the panel, "End of Life but not the End of Love."

    Here's the link.
    donatehfc.com/event/hfc-careco

    #EndAlz
    #Grief

  21. "There’s a vocal #coach arrested in #Kazakhstan... A #caregiver for the elderly detained in #Montenegro... A #schoolteacher detained by Armenian border guards after telling her students about Russia’s crimes in #Bucha. A toy shop owner, an industrial climber, a punk rocker — these are some of the people caught in the #Kremlin dragnet, all over the #world.

    And it is a truly #global operation."

    #GiftArticle #GiftLink
    nytimes.com/2024/09/23/opinion

    #Russia #Putin #Crime #News #WorldNews

  22. #Healthcare #MentalHealth #Caregiver #NoJudgement #Listening

    Trauma is trauma is trauma.

    Mental health care isn't about the listener.

    It's about who is speaking/asking for help. [THIS!]

    It's not up to the listener to decide what constitutes trauma, or how bad it is.

    Normalize being a regular human who approaches mental health care with empathy, not judgement.

  23. Il #27Maggio ricorre il #Caregiver day #DissertationNursing, rivista #OpenAccess, dedica uno studio osservazionale al rischio di #depressione e ai livelli di #burden a cui sono soggetti i familiari che prestano #assistenza a parenti con malattie croniche

    👉

    doi.org/10.54103/dn/20926

  24. If you're death positive and have studied the process of dying and grief, there's nothing new here, but I still found this worthwhile.

    #death #DeathPositive #caregiver

    Hadley Vlahos: A Hospice Nurse on Caregiving, Fear of the Unknown, and Having a ‘Death-Positive Household’ | SELF
    self.com/story/hadley-vlahos-i

  25. CW: medical issues, elder care

    Being even a part time #caregiver for someone suffering from #dementia is draining, emotionally, and physically.

    Always good to remember, being #AbleBodied is always temporary...

  26. It's #BrainAwarenessWeek & one of the activities that's good for your #brain is reading. Here are some book recommendations. What would you suggest?

    #PattiSmith, Just Kids
    #MatJohnson, Pym
    #JoanDidion, The Year of Magical Thinking
    #KaitlynGreenidge, Libertie
    #JasonMott, Hell of a Book
    #JuliaMayJonas, Vladimir
    #DashaKiper, Travelers to Unimaginable Lands: Stories of #Dementia, The #Caregiver, and the Human Brain
    #PercivalEverett, The Trees
    #rachelyoder, Nightbitch

    #BooksWorthReading
    #BanTheBan

  27. It's #BrainAwarenessWeek & one of the activities that's good for your #brain is reading. Here are some book recommendations. What would you suggest?

    #PattiSmith, Just Kids
    #MatJohnson, Pym
    #JoanDidion, The Year of Magical Thinking
    #KaitlynGreenidge, Libertie
    #JasonMott, Hell of a Book
    #JuliaMayJonas, Vladimir
    #DashaKiper, Travelers to Unimaginable Lands: Stories of #Dementia, The #Caregiver, and the Human Brain
    #PercivalEverett, The Trees
    #rachelyoder, Nightbitch

    #BooksWorthReading
    #BanTheBan

  28. It's #BrainAwarenessWeek & one of the activities that's good for your #brain is reading. Here are some book recommendations. What would you suggest?

    #PattiSmith, Just Kids
    #MatJohnson, Pym
    #JoanDidion, The Year of Magical Thinking
    #KaitlynGreenidge, Libertie
    #JasonMott, Hell of a Book
    #JuliaMayJonas, Vladimir
    #DashaKiper, Travelers to Unimaginable Lands: Stories of #Dementia, The #Caregiver, and the Human Brain
    #PercivalEverett, The Trees
    #rachelyoder, Nightbitch

    #BooksWorthReading
    #BanTheBan

  29. It's #BrainAwarenessWeek & one of the activities that's good for your #brain is reading. Here are some book recommendations. What would you suggest?

    #PattiSmith, Just Kids
    #MatJohnson, Pym
    #JoanDidion, The Year of Magical Thinking
    #KaitlynGreenidge, Libertie
    #JasonMott, Hell of a Book
    #JuliaMayJonas, Vladimir
    #DashaKiper, Travelers to Unimaginable Lands: Stories of #Dementia, The #Caregiver, and the Human Brain
    #PercivalEverett, The Trees
    #rachelyoder, Nightbitch

    #bookstodon
    #litstudies