#caregiving — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #caregiving, aggregated by home.social.
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RE: https://zeroes.ca/@broadwaybabyto/117250298769417299
Read the quoted toot below 👇🏻 and start to come to terms with the fact you, too, will become disabled at some point in time. If only, it will happen faster than you can ever imagine, accelerating the pace day in day out.
Oooh, and in case you're wondering, switch disabled for immigrant and apply the same. We're all bound to become disabled immigrants at some point.
It's a good time now to start learning some #empathy & #caregiving for others for when *you* may need help & support yourself.
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How can you keep your small business running when you have personal issues, like being a caregiver for someone with Alzheimer's dementia? Maintain a basic presence, don't disappear, and hang tough:
https://www.sheilascarborough.com/2025/11/24/hello-from-the-other-side/
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New post: The Gap Between the Principle and the Practice
https://lanie.work/advocacy/the-gap-between-the-principle-and-the-practice/
#Disability #Institutionalization #Long-Term-Care #Caregiving #Medicaid #Advocacy
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New post: The Gap Between the Principle and the Practice
https://lanie.work/advocacy/the-gap-between-the-principle-and-the-practice/
#Disability #Institutionalization #Long-Term-Care #Caregiving #Medicaid #Advocacy
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New post: The Gap Between the Principle and the Practice
https://lanie.work/advocacy/the-gap-between-the-principle-and-the-practice/
#Disability #Institutionalization #Long-Term-Care #Caregiving #Medicaid #Advocacy
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New post: The Gap Between the Principle and the Practice
https://lanie.work/advocacy/the-gap-between-the-principle-and-the-practice/
#Disability #Institutionalization #Long-Term-Care #Caregiving #Medicaid #Advocacy
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New post: The Gap Between the Principle and the Practice
https://lanie.work/advocacy/the-gap-between-the-principle-and-the-practice/
#Disability #Institutionalization #Long-Term-Care #Caregiving #Medicaid #Advocacy
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Smurfs Log: Arghhh…. Fuck bureaucracy!
* While I am writing a message to the notary to correct two errors to sell my mother's house next week, I just noticed that the mortgage bank had also made mistakes in their documents...
All of this was likely caused by an error made by the Land Registry, which was later corrected after I filed a complaint two months ago…
So I just had to reschedule my tomorrow morning meeting to get things moving again... 😡
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Trehalose's untapped mechanisms in alzheimer's: gut-brain-autophagy signalling beyond the usual targets.
Daru. 2026 Aug 31;34(2)Authors: Gunasekaran SK, K HK, Gobinath M, Roychowdhury P, N MSPubMed: 42675343Submit Comment
Read more: https://www.alzforum.org/papers/trehaloses-untapped-mechanisms-alzheimers-gut-brain-autophagy-signalling-beyond-usual-targets
#Dementia #Alzheimers #Autism #Caregiving -
Current Targeted Nanoparticle Therapy for Alzheimer's Disease: Current Advances and Future Prospects.
Curr Neurovasc Res. 2026 Aug 1; Epub 2026 Aug 1Authors: Mishra R, Chauhan N, Agrawal KKPubMed: 42634511Submit Comment
Read more: https://www.alzforum.org/papers/current-targeted-nanoparticle-therapy-alzheimers-disease-current-advances-and-future
#Dementia #Alzheimers #Autism #Caregiving -
The world is thick with grief. I talk about losing people we love -- in my case, my father who had early-onset Alzheimer's -- in this podcast with Nicole Will who focuses her work on #caregiving. If you listen, I hope you find it helpful.
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RE: https://federate.social/@jik/117072388781473348
In an ideal world, this will be the last update I post in my saga about trying to get #Edgepark to stop delaying my uncle’s monthly shipments of incontinence supplies.
#healthcare #healthInsurance #elderCare #sandwichGeneration #careGivingMy uncle’s supplies arrived, a few days after Edgepark said they were (finally) shipping them.
And then today, a rep from Edgepark’s “patient advocacy” team called me to discuss the repeated delays in my uncle’s orders.
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Smurfs Log: Uncharted Territory
* I have had a long-term commitment to caregiving. The first vacation in a long, long time is going to begin tomorrow. I'm excited!
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Random Thoughts, Purposeful Life @randomthoughtspurposefullife.com@randomthoughtspurposefullife.com ·No. Not Today.
Hi friends. Me again. Though I want to feel chipper and happy, my heart isn’t quite in it today, which is exactly why I’ve chosen today to check in with y’all. Pull up an Adirondack chair, pour yourself a glass of sweet tea (or unsweetened if you prefer) and let’s catch up. Let your toes burrow into the sand, and we’ll listen to the waves crash on the beach, because #lifegoals, y’all.
Where do I even start? I’m not even sure anymore which end is up. I thought with the end of immediate surgery prep that life would sort itself out, and that my schedule would settle down. That hasn’t been the case. Because now, it’s turned into another level of fresh hell that somehow has landed on my shoulders, whether or not I wanted that responsibility.
The plan was, when the surgery was postponed, for Hubby to work on lowering his glucose numbers to be closer to adequate control. And to some extent, that’s happening because I’m making better choices for both of us. Until you’re in a position where you’re responsible for another adult’s health, and it’s implied the fallback is on you? You can’t know what it’s like.
After the surgery appointment fell through, his nurse came in loaded for bear, asking ME questions about why his numbers were so out of whack. I really wanted to look him dead in the eye and say, “You know? Not my circus, not my monkeys.” Because let’s face it. I can buy healthy food all day long, but I can’t make him choose cherries over candy.
I’ve struggled with maintaining my agency in this marriage, in this relationship. Not only from Hubby, but from people outside the two of us. Caregivers. People on his health team. Too many people assume way too much about us just looking from the outside inward. And unfortunately, when their assumptions are wrong, they land with a dull thud.
Case in point. A few months ago, a member of Hubby’s medical team came for an annual check-in. This person was not a physician or nurse, but a nutritionist. He came waltzing in (using that word for dramatic effect – he did not actually dance, except around the truth) and threw around broad generalizations. The one that hurt the most, though, was this:
“I mean, you’re married and you obviously love each other.”
I’d like to thank you, kind sir, for not just coming into my home and placing labels that may, or may not, apply to this relationship. If that assumption was obvious to him, that was a gross misread of the room.
If you’re a caregiver, and if you’re tempted to offer such sweeping statements without context, please don’t.
Another instance was a caregiver who I asked to run a simple errand; bring home a sub sandwich for Hubby. She asked if there was something else I needed. I mentioned in passing an on-sale item, but that I wanted to go myself. Instead of doing simply what I’d asked of her, she bought the thing anyway. Perhaps I should’ve been happy because she saved me a trip. But, what if the trip itself was my respite? She took that from me without asking.
I’ll preface this next part by telling you about a blessing that arrived in April this year—a 55” Samsung Smart TV. I mean, this thing is beautiful, and I got it at no charge through an Amazon program. Being as it’s fifty-five inches on the diagonal, it was a larger TV than I had ever handled, so after I assembled the stand, I needed help putting the new TV up. And that’s where I ran into the second, bigger issue.
The caregiver from the grocery store debacle was the same lady who helped me that day. And while I truly appreciated her help with the physical aspect, she, in her excitement, took over the actual set up. While I was working through an issue connecting my Samsung account, she simply kept going with the remote without asking me. I hadn’t asked her to take over. I was still doing it.
Help stops being help when it overrides the wishes of the person you’re helping.
It might seem like an overreaction to say that she is no longer welcome here. But having someone override my wishes in my own home?
Hell no. And while you’re leaving, don’t let the door hit you on the way out.
One of the reasons you haven’t seen me around much on the pages of this blog is because my free time is no longer my own unless I’m deliberate about it. I have to carve out moments—opportunities—where I say, “You know what? I’m off-duty while your caregiver is here.” Hubby seems to believe that it’s my job to be a “gracious hostess.” They’re not houseguests. They’re employees.
The simple truth is… No one will just magically grant me three unhindered hours of time to write, make appointments, answer emails, call a friend, or just listen to music. I have to take those hours, or they’ll slip away. And since leaving my home has become more and more of a challenge, I’m creating a space where this time can quietly exist—whether it’s an hour or just ten minutes—without someone needing my energy or attention.
Every other Saturday, I have been responsible for an enormous task that I’ve done since 2023. And before today, though it wasn’t entirely enjoyable, I did the task with no complaints. But this morning, an argument broke out between Hubby and me that helped to put things into perspective. He wants autonomy with his healthcare decisions? Fine. Then that’s what he’ll get, but I can guarantee it will be nothing like what he imagined. Actions have consequences, something he seldom has to experience because I’ve always been here to absorb them.
- Meds run out? I make the two-hour round trip to Tampa.
- Glucose is out of control? I absorb the blame for his poor choices.
- Caregiver has a question? The first thing said is, “Hon, where is…?”
Consequences never disappear. They simply migrate to whoever is closest, to the one who has always accepted the responsibility.
Does no one ever think, “Hey, maybe Wendy actually needs a break”?
No. No, they don’t.
Because Hubby sees just his wife.
Because the nutritionist saw just the caregiver.
Because his aide saw just the family manager.
None of them see Wendy, the person. Wendy, the author. Wendy, the cat mom. In my loss of self, I’m invisible unless I say, in no uncertain terms, “No. Not today.”
So today, I washed my hands of the “big thing” that took up four to five hours of my Saturday every other week, and placed that responsibility where it probably belonged all along—on Hubby. On his care team. And little by little, this woman is taking back the things she’s lost, one stolen moment at a time.
Some people say to go outside and touch grass. In Florida, that’s terrible advice. The grass has fire ants. Stand in the rain instead. It asks nothing of you except that you be present.
Cover image generated by ChatGPT. All written content is the product of human creativity.
©2026 Wendy Londona. All Rights Reserved
#CaregiverBurnout #caregiving #Family #Healing #Journal #life #love #MentalHealth #Recovery #Writing -
Steve Way appears in "Furious" as the character Alden who, like him, has physical disabilities that mean he needs a caregiver. He writes for his newsletter about the lie that disabled people are a burden, the fact that everyone needs care, and the economics of it all. "My care shows up as a line item. Yours is dispersed across a hundred transactions you don’t think about, most of them performed by people paid worse than they should be."
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Wrote a letter to my patrons today about shutting down my Patreon. You can read it here if you like: https://www.patreon.com/audioerotica/posts/final-post-166389114
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RE: https://federate.social/@jik/116934183567815196
Today's update on the saga of Uncle's electric wheelchair repair…
Full saga here: https://blog.kamens.us/2026/08/10/how-hard-should-it-be-to-get-an-electric-wheelchair-repaired-with-insurance-coverage/
Updates:
- July 21: 5 days after tech examined wheelchair in Uncle's apartment, NuCare still can't tell me the result of the examination.
- July 24: NuCare claims wheelchair was picked up and is at warehouse. [LIE!]
- August 10: I discover wheelchair is still in Uncle's apartment. They claim they'll pick it up on Thursday.
#healthcare #healthInsurance #caregiving #sandwichGeneration #NuCare -
~200,000 #Haitians with #TPS hold jobs, with large concentrations of workers in #healthcare, #foodservice, #warehousing, #retail & long-term #caregiving, acc/to an analysis of government data by the #immigration advocacy group FWD.us. Business owners have been preparing for weeks by raising sign-on bonuses, cutting shifts & making inroads at community colleges & high schools to hire new staff, industry leaders said.
#FuckSCOTUS #Trump #law #WhiteSupremacy #TheCrueltyIsThePoint -
Also in this #ChangingPopulations, we focus on caring, working and ageing, and ask whether Britain is prepared as we face a “perfect storm”, with people expected to work longer, fund their own future care, and provide informal unpaid care, all at once - page 4
▶️ https://sway.cloud.microsoft/6PeRZlzYry4nhGtm?ref=Link
#demography #population #ageing #laterlife #care #socialcare #unpaidcare #retirement #pensions #employment #healthinequalities #familynetworks #caregiving #socialpolicy #ageingresearch #socialscience
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New post: The Pipe and the Voice
https://lanie.work/technology/the-pipe-and-the-voice/
#Disability #Ai #Writing #Accessibility #Caregiving #Assistive-Technology #Personal #Technology
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😞 Ugh, oh.
Maybe stopping for a rest wasn't the wisest move after overloading my back pack 🎒 with goodies from the Amish stand.
Two jars 🫙 of chemisty 🧪 - set -free-homemade jam peach and blueberry 🫐 , a jar of pickles🥒 , another of sauerkraut🥬 , and a watermelon.🍉🤦♀️ In my shoulder bag, 2 large zucchinis, snap peas🫛 , and onions🧅 .Note to Self: Smarten up, you silly old 👵 woman, you're Not 20 years old!
Oh well, the delighted smile on his face will be worth it.😊
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Carolyn Hax Advises on Handling In-Laws with Memory Issues
📰 Original title: Carolyn Hax: Tell in-law with memory issues she forgot her grandkids’ birthdays?
🤖 IA: It's clickbait ⚠️
👥 Users: It's clickbait ⚠️View full AI summary https://en.killbait.com/carolyn-hax-advises-on-handling-in-laws-with-memory-issues.html?utm_source=mastodon_world&utm_medium=social&utm_campaign=killbait.mastodon_world
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Another night 🌛 walking along the hallways of the retirement 🧓 home and again the one nurse ⚕️ and the sole PSW are sleeping. 😴
So, if there's a fire 🔥 in this old building who will move residents? There isn't one person here without mobility problems.
How quickly does a sleeping nurse respond to a resident falling and bleeding from a head injury? I've seen it happen at night.
This is why I moved here,
to watch over my husband. -
:blobcateyes: Walks by the bed. Stops.
Turns and walks back and looks under the bed at two glowing lights.
💭 'Well, that's an unusual place to set your hearing aid charger. I wonder if you will remember in the morning.
Hmmmm. 🤔 Probably not because of the sundown effect.'
Quietly reaches for the case and lifts it back up to the table.
' There now, you won't be upset when you wake and can't remember putting it in an odd place".😊
Sleep well, my love. ❤️ -
Smurfs Log: Odd and Weird Feeling
Gosh! I'm having an odd and weird feeling. I have not only convinced bureaucrats to correct their errors, but today the headstone on my mum’s grave has been put back in place and I have paid the last bills. And to top it all off, the house has been sold for the asking price! ❤️
* They will do a construction check and make sure everything is in order.
Conclusion: Nothing is to be done by me in the next two months 🏝️
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Smurfs Log: Fighting Bureaucracy (Paarse krokodil besluit)
* Part of the "Housecleaning (Things Left in My Mom's House)" series
Today I convinced bureaucrats to correct their own errors regarding my Mom’s property 🥳
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New post: Becoming
https://lanie.work/advocacy/becoming/
#Disability #Faith #Chronic-Illness #Long-Term-Care #Identity #Neurodiversity #Personal-Growth #Caregiving #Advocacy
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Young people in India's northeast are learning Japanese and training as caregivers for jobs in Japan, drawn by better pay and new opportunities. But many also face language barriers, homesickness and the realities of life in an aging society. https://www.japantimes.co.jp/community/2026/07/06/issues/indian-caregivers-japan-migration/?utm_medium=Social&utm_source=mastodon #community #issues #indiansinjapan #caregiving #elderly #india #nursingcare #immigration
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The Weather of Our First Reaching
In the luminous space between mother and child, attachment becomes the first language of love — a silent exchange shaping how we trust, connect, and heal. This reflection explores the invisible architecture of early bonds, where psychology meets poetry and the heart learns its first rhythm of belonging.https://thereflectivemind9.wordpress.com/2026/06/18/the-weather-of-our-first-reaching/
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The Weather of Our First Reaching
In the luminous space between mother and child, attachment becomes the first language of love — a silent exchange shaping how we trust, connect, and heal. This reflection explores the invisible architecture of early bonds, where psychology meets poetry and the heart learns its first rhythm of belonging.https://thereflectivemind9.wordpress.com/2026/06/18/the-weather-of-our-first-reaching/
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The Weather of Our First Reaching
In the luminous space between mother and child, attachment becomes the first language of love — a silent exchange shaping how we trust, connect, and heal. This reflection explores the invisible architecture of early bonds, where psychology meets poetry and the heart learns its first rhythm of belonging.https://thereflectivemind9.wordpress.com/2026/06/18/the-weather-of-our-first-reaching/
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The Weather of Our First Reaching
In the luminous space between mother and child, attachment becomes the first language of love — a silent exchange shaping how we trust, connect, and heal. This reflection explores the invisible architecture of early bonds, where psychology meets poetry and the heart learns its first rhythm of belonging.https://thereflectivemind9.wordpress.com/2026/06/18/the-weather-of-our-first-reaching/
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The Weather of Our First Reaching
In the luminous space between mother and child, attachment becomes the first language of love — a silent exchange shaping how we trust, connect, and heal. This reflection explores the invisible architecture of early bonds, where psychology meets poetry and the heart learns its first rhythm of belonging.https://thereflectivemind9.wordpress.com/2026/06/18/the-weather-of-our-first-reaching/
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“[…] when policies are geared toward mothers or parents, managers have worse perceptions of remote working in regard to commitments, productivity, team spirit, and promotion opportunities”
Dehumanisation of work at play? 🤔 Gosh, the lack of #empathy & understanding of #caregiving needs & wants by employers is just staggering! 😤
What a bunch of ars*h*les! 😡
#DistanceWorking #RemoteWork #HybridWork #DistributedWork #FlexibleWork #Parenthood
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Goddamn shitty medical supply company didn't ship Uncle's glucose monitor sensors because of some sort of insurance problem, didn't send any email notifying us there was a problem, so now my Uncle has no glucose sensors and it's going to be a couple days at a minimum before I can get this fixed.
It's the second time in two months one of these companies has run into insurance issues and just not shipped critical supplies, with no notice.
Fucking assholes.
#caregiving #eldercare #healthcare -
Please share to raise awareness about the power of music in the lives of people with dementia and those who are caregiving.
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Tragic Death of World’s Heaviest Man, 890 Pounds, After Years of Overeating
#Obesity #WeightLoss #FoodAddict #Health #Wellness #Addiction #Tragedy #LifeLost #FatLoss #Overeating #Struggle #Caregiving #HealthCrisis #BodyPositive #MentalHealth #SelfCare #LifeStory #Medical #HumanStory #Awareness
https://news-annakarolinaheinrich.com/tragic-story-of-890-pounds-man-who-lost-to-food-addiction
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There is a machine near my head that’s beeping and I don’t know if I want to melt down in tears or throw it across the ER in annoyance. Not a good sign. #caregiving #EmergencyRoom
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I will be at #KensingtonSeniorLiving in #RedondoBeach with these fine authors. Please come if you are in the area. The event is open to the public.
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I'll be at the #Kensington in #SierraMadre on Saturday, August 19th from 1 to 3 pm with authors #SherriSnelling, a #gerontologist, and #TsgoynaTanzman, a speech language #pathologist. The topic is #caregiving and I look forward to sharing what I learned at #UCSF's #MAC (Memory and Aging Center) while writing #FindingTheRIghtWords (published by #JohnsHopkinsUniversityPress) with #neurologist, #BruceMiller, and what I have learned since its publication. #EndAlz
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I'll be at the #Kensington in #SierraMadre on Saturday, August 19th from 1 to 3 pm with authors #SherriSnelling, a #gerontologist, and #TsgoynaTanzman, a speech language #pathologist. The topic is #caregiving and I look forward to sharing what I learned at #UCSF's #MAC (Memory and Aging Center) while writing #FindingTheRIghtWords (published by #JohnsHopkinsUniversityPress) with #neurologist, #BruceMiller, and what I have learned since its publication. #EndAlz
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I'll be at the #Kensington in #SierraMadre on Saturday, August 19th from 1 to 3 pm with authors #SherriSnelling, a #gerontologist, and #TsgoynaTanzman, a speech language #pathologist. The topic is #caregiving and I look forward to sharing what I learned at #UCSF's #MAC (Memory and Aging Center) while writing #FindingTheRIghtWords (published by #JohnsHopkinsUniversityPress) with #neurologist, #BruceMiller, and what I have learned since its publication. #EndAlz
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I'll be at the #Kensington in #SierraMadre on Saturday, August 19th from 1 to 3 pm with authors #SherriSnelling, a #gerontologist, and #TsgoynaTanzman, a speech language #pathologist. The topic is #caregiving and I look forward to sharing what I learned at #UCSF's #MAC (Memory and Aging Center) while writing #FindingTheRIghtWords (published by #JohnsHopkinsUniversityPress) with #neurologist, #BruceMiller, and what I have learned since its publication. #EndAlz
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I'll be at the #Kensington in #SierraMadre on Saturday, August 19th from 1 to 3 pm with authors #SherriSnelling, a #gerontologist, and #TsgoynaTanzman, a speech language #pathologist. The topic is #caregiving and I look forward to sharing what I learned at #UCSF's #MAC (Memory and Aging Center) while writing #FindingTheRIghtWords (published by #JohnsHopkinsUniversityPress) with #neurologist, #BruceMiller, and what I have learned since its publication. #EndAlz
